Department of the Treasury Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section
4947(a)(1) nonexempt charitable trust.
Attach to Form 990 or Form 990-EZ. See separate instructions.
OMB No. 1545-0047
2010
Open to Public Inspection
Name of the organization
NATIONAL PARKINSON FOUNDATION INC
Employer identification number
59-0968031
Part I
Reason for Public Charity Status
(All organizations must complete this part.) See instructions
The organization is not a private foundation because it is: (For lines 1 through 11, check only one box.)
1
2
3
4
5
section 170(b)(1)(A)(iv). (Complete Part II.)
6
7
8
9
receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of
its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses
acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)
10
11
e
By checking this box, I certify that the organization is not controlled directly or indirectly by one or more disqualified persons other than foundation managers and other than one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2).
f
If the organization received a written determination from the IRS that it is a Type I, Type II or Type III supporting organization, check this box
..................................................
g
Since August 17, 2006, has the organization accepted any gift or contribution from any of the following persons?
(i) a person who directly or indirectly controls, either alone or together with persons described in (ii)
Yes
No
and (iii) below, the governing body of the the supported organization?
................
11g(i)
(ii)
a family member of a person described in (i) above?
......................
11g(ii)
(iii)
a 35% controlled entity of a person described in (i) or (ii) above?
................
11g(iii)
h
Provide the following information about the supported organization(s).
(i) Name of supported organization
(ii) EIN
(iii) Type of organization (described on lines 1- 9 above or IRC section (see instructions))
(iv) Is the organization in col. (i) listed in your governing document?
(v) Did you notify the organization in col. (i) of your support?
(vi) Is the organization in col. (i) organized in the U.S.?
(vii) Amount of support?
Yes
No
Yes
No
Yes
No
Total
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 11285F
Schedule A (Form 990 or 990-EZ) 2010
Schedule A (Form 990 or 990-EZ) 2010
Page 2
Part II
Support Schedule for Organizations Described in IRC 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi) (Complete only if you checked the box on line 5, 7, or 8 of Part I or if the
organization failed to qualify under Part III. If the organization fails to
qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year(or fiscal year beginning in)
(a) 2006
(b) 2007
(c) 2008
(d) 2009
(e) 2010
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") ....
2
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.......
3
The value of services or facilities furnished by a governmental unit to the organization without charge..
4
Total. Add lines 1 through 3..
5
The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included
on line 1 that exceeds 2% of the amount shown on line 11, column (f)..
6
Public Support. Subtract line 5 from line 4.
Section B. Total Support
Calendar year(or fiscal year beginning in)
(a) 2006
(b) 2007
(c) 2008
(d) 2009
(e) 2010
(f) Total
7
Amounts from line 4..
8
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
9
Net income from unrelated business activities, whether or not the business is regularly carried on..
10
Other income. (Explain in Part IV.) Do not include gain or loss from the sale of capital assets..
11
Total support (Add lines 7 through 10).
12
Gross receipts from related activities, etc. (See instructions.)
..................
12
13
First Five Years
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here..........................................
Section C. Computation of Public Support Percentage
14
Public Support Percentage for 2010 (line 6 column (f) divided by line 11 column (f))
.........
14
15
Public Support Percentage for 2009 Schedule A, Part II, line 14
...............
15
16a
33 1/3% support test—2010.
If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization
......................
b
33 1/3% support test—2009.
If the organization did not check the box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization
.....................
17a
10%-facts-and-circumstances test—2010.
If the organization did not check a box on line 13, 16a, or 16b and line 14
is 10% or more, and if the organization meets the "facts and circumstances" test, check this box and stop here. Explain
in Part IV how the organization meets the "facts and circumstances" test. The organization qualifies as a publicly supported
organization
..................................................
b
10%-facts-and-circumstances test—2009.
If the organization did not check a box on line 13, 16a, 16b, or 17a and line
15 is 10% or more, and if the organization meets the "facts and circumstances" test, check this box and stop here.
Explain in Part IV how the organization meets the "facts and circumstances" test. The organization qualifies as a publicly supported organization
..............................................
18
Private Foundation
If the organization did not check a box on line 13, 16a, 16b, 17a or 17b, check this box and see
instructions
...................................................
Schedule A (Form 990 or 990-EZ) 2010
Schedule A (Form 990 or 990-EZ) 2010
Page 3
Part III
Support Schedule for Organizations Described in IRC 509(a)(2) (Complete only if you checked the box on line 9 of Part I or if the organization
failed to qualify under Part II. If the organization fails to qualify under
the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year(or fiscal year beginning in)
(a) 2006
(b) 2007
(c) 2008
(d) 2009
(e) 2010
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
9,044,807
9,070,618
7,176,041
8,881,327
9,695,787
43,868,580
2
Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose......
530,273
140,426
305,238
319,508
294,292
1,589,737
3
Gross receipts from activities that are not an unrelated trade or business under section 513..
4
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5
The value of services or facilities furnished by a governmental unit to the organization without charge..
6
Total. Add lines 1 through 5.
9,575,080
9,211,044
7,481,279
9,200,835
9,990,079
45,458,317
7a
Amounts included on lines 1, 2, and 3 received from disqualified persons...
432,228
131,224
298,085
255,020
185,866
1,302,423
b
Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
0
c
Add lines 7a and 7b..
432,228
131,224
298,085
255,020
185,866
1,302,423
8
Public Support (Subtract line 7c from line 6.)
44,155,894
Section B. Total Support
Calendar year (or fiscal year beginning in)
(a) 2006
(b) 2007
(c) 2008
(d) 2009
(e) 2010
(f) Total
9
Amounts from line 6...
9,575,080
9,211,044
7,481,279
9,200,835
9,990,079
45,458,317
10a
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
793,942
780,816
516,271
402,632
428,669
2,922,330
b
Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c
Add lines 10a and 10b.
793,942
780,816
516,271
402,632
428,669
2,922,330
11
Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12
Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)
13
Total support (Add lines 9, 10c, 11 and 12.).
10,369,022
9,991,860
7,997,550
9,603,467
10,418,748
48,380,647
14
First Five Years
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here.............................................
Section C. Computation of Public Support Percentage
15
Public Support Percentage for 2010 (line 8 column (f) divided by line 13 column (f))
.........
15
91.270 %
16
Public support percentage from 2009 Schedule A, Part III, line 15
...............
16
90.400 %
Section D. Computation of Investment Income Percentage
17
Investment income percentage for 2010 (line 10c column (f) divided by line 13 column (f))
......
17
6.040 %
18
Investment income percentage from 2009 Schedule A, Part III, line 17
.............
18
6.880 %
19a
33 1/3% support tests—2010.
If the organization did not check the box on line 14, and line 15 is more than 33 1/3% and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
..........
b
33 1/3% support tests—2009.
If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
....
20
Private Foundation
If the organization did not check a box on line 14, 19a or 19b, check this box and see instructions
.....
Schedule A (Form 990 or 990-EZ) 2010
Schedule A (Form 990 or 990-EZ) 2010
Page 4
Part IV
Supplemental Information.
Supplemental Information. Complete this part to provide the explanation required by Part II, line 10; Part II, line 17a or 17b; or Part III, line 12. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
Explanation
Schedule A (Form 990 or 990-EZ) 2010
Additional Data
Software ID:
Software Version:
-
TIN:
SCHEDULE O (Form 990 or 990-EZ)
Department of the Treasury Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ
Complete to provide information for responses to specific questions on
Form 990 or to provide any additional information.
Attach to Form 990 or 990-EZ.
OMB No. 1545-0047
2010
Open to Public Inspection
Name of the organization
NATIONAL PARKINSON FOUNDATION INC
Employer identification number
59-0968031
Identifier
Return Reference
Explanation
NEW PROGRAM SERVICES
FORM 990, PART III, LINE 2
ACTIVITIES AND PROGRAMS TO SUPPORT THE FOUNDATION'S CHAPTER NETWORK.
FORM 990, PART VI, SECTION A, LINE 2
HAROLD KRAVITZ, SHELLEY KRAVITZ - FAMILY RELATIONSHIP PAUL OREFFICE, JOANNE PEPPER OREFFICE - FAMILY RELATIONSHIP
FORM 990, PART VI, SECTION B, LINE 11
AS INFORMATION IS COMPILED, VARIOUS COMPONENTS ARE REVIEWED BY SENIOR MANAGEMENT AND THE CHAIRMAN OF THE BOARD. ONCE FINALIZED, THE ENTIRE FORM 990 IS REVIEWED BY THE V.P. OF FINANCE AND PRESIDENT AND CEO. A COPY OF THE FORM 990 IS DISTRIBUTED ELECTRONICALLY TO DIRECTORS BEFORE IT IS FILED.
FORM 990, PART VI, SECTION B, LINE 12C
A CONFLICT OF INTEREST DISCLOSURE STATEMENT MUST BE COMPLETED AND SIGNED BY EACH BOARD MEMBER, EMPLOYEE, AGENT, OR TRUSTEE OF THE FOUNDATION. ANY KNOWN OR REASONABLY FORESEEABLE ACTUAL OR POTENTIAL CONFLICT OF INTEREST MUST BE DISCLOSED IN WRITING AS SOON AS POSSIBLE TO THE VICE PRESIDENT, FINANCE AND ADMINISTRATION, CHIEF EXECUTIVE OFFICER OR A MEMBER OF THE EXECUTIVE COMMITTEE OF THE BOARD. THE DISCLOSURE STATEMENT MUST BE COMPLETED, EXECUTED AND FILED WITH THE FOUNDATION BY ALL INDIVIDUALS SEEKING TO SERVE THE FOUNDATION AS AN INTERESTED PERSON PRIOR TO SUCH INDIVIDUALS COMMENCING HIS OR HER SERVICE TO THE FOUNDATION.
FORM 990, PART VI, SECTION B, LINE 15A
THE PRESIDENT AND CEO'S COMPENSATION WAS ESTABLISHED BASED ON ADVICE PROVIDED BY A PROFESSIONAL RECRUITING FIRM RETAINED BY NPF, WHICH ADVICE WAS BASED ON COMPARABLE MARKET DATA. NPF HAD FORMED A COMMITTEE, COMPRISED OF THREE BOARD MEMBERS, TO RECRUIT A NEW CEO, AND THAT COMMITTEE VOTED TO APPROVE THE LEVEL OF COMPENSATION PROPOSED. NO ADJUSTMENTS TO THE CEO'S SALARY HAVE BEEN MADE SINCE THE DATE OF HIRE.
FORM 990, PART VI, SECTION C, LINE 19
THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. THE LATEST FINANCIAL STATEMENTS AND TAX RETURN ARE ALSO AVAILABLE FOR DOWNLOAD FROM THE ORGANIZATION'S WEBSITE.
CHANGES IN NET ASSETS OR FUND BALANCES:
FORM 990, PART XI, LINE 5:
NET UNREALIZED GAINS ON INVESTMENTS: 971,617.
FINANCIAL STATEMENTS
FORM 990, PART XI, LINE 2C
THE ORGANIZATION'S AUDIT COMMITTEE IS RESPONSIBLE FOR THE SELECTION OF THE INDEPENDENT ACCOUNTANTS AND OVERSIGHT OF THE ANNUAL AUDIT. THIS PROCESS HAS NOT CHANGED FROM THE PREVIOUS YEAR.
MISSION STATEMENT
FORM 990, PART III, LINE 1 & PART I, LINE 1
THE MISSION OF THE NATIONAL PARKINSON FOUNDATION IS TO IMPROVE THE QUALITY OF CARE FOR PEOPLE WITH PARKINSON'S DISEASE THROUGH RESEARCH, EDUCATION AND OUTREACH. FOUNDED IN 1957, NPF IS A LEADING NATIONAL ORGANIZATION WITH AN EXTENSIVE GRASSROOTS NETWORK OF CENTERS OF EXCELLENCE, CHAPTERS AND SUPPORT GROUPS IN THE UNITED STATES, CANADA AND INTERNATIONALLY. UNIQUE AMONG THE NATIONAL PARKINSON'S ORGANIZATIONS, NPF IS THE ONLY ORGANIZATION WITH A SINGULAR FOCUS ON IMPROVING THE QUALITY OF CARE IN PARKINSON'S DISEASE. SINCE 1982, NPF HAS FUNDED MORE THAN $164 MILLION IN RESEARCH AND SUPPORT SERVICES. THE CORE OF OUR EFFORTS IS THE NPF CENTER OF EXCELLENCE NETWORK, 43 LEADING MEDICAL CENTERS AROUND THE GLOBE THAT DELIVER CARE TO MORE THAN 50,000 PARKINSON'S PATIENTS. THROUGH THIS NETWORK, NPF CREATES A COMMUNITY OF HEALTH CARE PROFESSIONALS DEDICATED TO IMPROVING CLINICAL CARE IN PARKINSON'S DISEASE. IN EACH OF OUR RESEARCH, EDUCATION AND OUTREACH PROGRAMS, NPF IS DEDICATED TO PROMOTING OUR PASSIONATE BELIEF THAT THE BEST CARE IS A COMPREHENSIVE APPROACH THAT ADDRESSES THE WHOLE PERSON AND THE FULL RANGE OF SYMPTOMS OF THE DISEASE.
EXPLANATION OF GRANTS
SCHEDULE F, PART II, COLUMN (F) AND SCHEDULE I, PART II, COLUMN (H)
GRANTS WERE AWARDED TO INSTITUTIONS IN THE FOUNDATION'S NETWORK OF 43 CENTERS OF EXCELLENCE (COE) AND 11 CARE CONSORTIUM MEMBER CENTERS. THROUGH THE COES ALONE, NPF REACHES MORE THAN 50,000 PATIENTS WITH PARKINSON'S DISEASE AND ALMOST 70,000 PATIENTS WITH MOVEMENT DISORDERS. OF THE TOTAL $3.6 MILLION IN GRANTS FUNDED BY NPF, APPROXIMATELY, $1.4 MILLION (39%) WAS DEDICATED TO RESEARCH, OF WHICH $510,000 WAS ALLOCATED FOR THE QUALITY IMPROVEMENT INITIATIVE; $200,000 (6%) WENT TO ADVOCACY AND OUTREACH; AND $2.0 MILLION (55%) TO COMPREHENSIVE CARE SERVICES FOR THE 2010-2011 FISCAL YEAR. RESEARCH FUNDED IS LARGELY THROUGH NPF'S CLINICAL RESEARCH FUND, DESIGNED TO SUPPORT CUTTING-EDGE CLINICAL STUDIES OF NEW THERAPEUTIC OPTIONS FOR PARKINSON'S PATIENTS AS WELL AS RESEARCH COMPARING THE EFFECTIVENESS OF EXISTING TREATMENT OPTIONS. EACH YEAR, NPF, UNDER THE DIRECTION OF OUR CLINICAL AND SCIENTIFIC ADVISORY BOARD (CSAB), SUPPORTS FORWARD-LOOKING RESEARCH CONDUCTED BY THE WORLD'S TOP PARKINSON'S DISEASE (PD) EXPERTS. THE SINGULAR AIM OF NPF'S CLINICAL RESEARCH FUND IS TO DISCOVER THE BEST TREATMENT AND CARE OPTIONS FOR PEOPLE LIVING WITH PARKINSON'S DISEASE ANNUAL FUNDING PROCESS: REQUEST FOR APPLICATIONS ("RFAS") ARE ISSUED AS FUNDING BECOMES AVAILABLE, BUT NO LESS THAN ONCE PER YEAR. APPLICATIONS ARE ACCEPTED FROM ANY PRINCIPAL INVESTIGATOR AFFILIATED WITH A CURRENTLY CERTIFIED COE INDIVIDUAL INVESTIGATORS AT NON-CERTIFIED INSTITUTIONS ARE INVITED TO APPLY AS COLLABORATORS ALL RESEARCH IS PEER-REVIEWED BY NPF'S CLINICAL AND SCIENTIFIC ADVISORY BOARD, (CSAB) NPF DOES NOT FUND BASIC LABORATORY RESEARCH. PROGRAMS FUNDED IN COMPREHENSIVE CARE WERE AWARDED TO OFFER PATIENTS ACCESS TO AN ARRAY OF SERVICES THAT MANY TIMES ARE NOT COVERED BY INSURANCE INCLUDING TELEMEDICINE, EXERCISE AND PHYSICAL AND VOICE THERAPY. COMPREHENSIVE CARE GRANTS ALSO PROMOTED EDUCATION OF PATIENTS, CAREGIVERS AND HEALTHCARE PROVIDERS IN MULTIPLE AREAS; THESE EDUCATION PROGRAMS OFFERED THE TOOLS NECESSARY TO IMPROVE QUALITY OF LIFE AND PROMOTE CONTINUITY OF CARE OF THOSE AFFECTED BY PARKINSON'S DISEASE. THE QUALITY IMPROVEMENT INITIATIVE (QII) IS NPF'S SIGNATURE INITIATIVE; THE CORE IS THE CREATION OF A STANDARDIZED, MULTI-CENTER CLINICAL PRACTICE DATABASE IN REAL-WORLD CLINICAL SETTINGS. IN PARTNERSHIP WITH OUR CENTERS OF EXCELLENCE, IN 2009 NPF LAUNCHED THE FIRST DATA-DRIVEN QUALITY IMPROVEMENT INITIATIVE TO INTRODUCE TO PARKINSON'S DISEASE A FOCUS ON CONTINUOUS IMPROVEMENT. THIS PROJECT SYSTEMATICALLY MEASURES AND TRACKS CARE OVER TIME FOR EVERY PATIENT DIAGNOSED WITH PARKINSON'S DISEASE. THE GOAL IS TO EXPLORE THE VARIATION IN CURRENT CLINICAL PRACTICE IN ORDER TO DETERMINE THE "RECIPES" FOR BEST OUTCOMES IN PARKINSON'S. OUR ULTIMATE AIM IS TO CREATE AND SHARE MODELS OF EXCELLENT CARE, SO THAT EVERY PARKINSON'S PATIENT RECEIVES THE MOST EFFECTIVE TREATMENT OPTIONS AVAILABLE, WHETHER THEY ARE SEEN BY A SPECIALIST AT A NPF CENTER OF EXCELLENCE, A GENERAL NEUROLOGIST OR THEIR PRIMARY CARE PHYSICIAN. THIS TYPE OF CLINICAL DATABASE, CAPTURING NON-SELECTED PATIENTS WHO ARE PROSPECTIVELY FOLLOWED OVER TIME IN LARGE NUMBERS AND MULTIPLE LOCATIONS, DOES NOT CURRENTLY EXIST IN PARKINSON'S CARE. IN ADDITION TO IMPROVING THE QUALITY OF CARE AND EXPANDING THE RESEARCH CAPACITY ACROSS THE NETWORK OF CENTERS. NPF'S QII AIMS TO: DRIVE IDENTIFICATION OF BEST PRACTICES IN PD CARE DISSEMINATE THESE PRACTICES TO BENEFIT EVERY PATIENT ESTABLISH PROVEN BASELINES FOR CARE TO INCREASE THE SENSITIVITY OF FUTURE RESEARCH THE DATA COLLECTED IN QII RELIES NOT ONLY ON PHYSICIANS TO ASSESS BUT ALSO THE EXPERIENCES OF PATIENTS. THE INTENT IS TO DEVELOP SCIENTIFICALLY VALIDATED QUALITY INDICATORS OF PARKINSON'S CARE WHICH CAN BE USED BY CENTERS TO BENCHMARK THEIR PROGRESS, TARGET CARE PROCESSES IN NEED OF IMPROVEMENT AND THUS, ENHANCE THEIR POSITIVE TREATMENT OUTCOMES.
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.