Department of the Treasury Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section
4947(a)(1) nonexempt charitable trust.
Attach to Form 990 or Form 990-EZ. See separate instructions.
OMB No. 1545-0047
2011
Open to Public Inspection
Name of the organization
THE ANITA KAUFMANN FOUNDATION
Employer identification number
30-0233976
Part I
Reason for Public Charity Status
(All organizations must complete this part.) See instructions
The organization is not a private foundation because it is: (For lines 1 through 11, check only one box.)
1
2
3
4
5
section 170(b)(1)(A)(iv). (Complete Part II.)
6
7
8
9
receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of
its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses
acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)
10
11
e
By checking this box, I certify that the organization is not controlled directly or indirectly by one or more disqualified persons other than foundation managers and other than one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2).
f
If the organization received a written determination from the IRS that it is a Type I, Type II or Type III supporting organization, check this box
..................................................
g
Since August 17, 2006, has the organization accepted any gift or contribution from any of the following persons?
(i) a person who directly or indirectly controls, either alone or together with persons described in (ii)
Yes
No
and (iii) below, the governing body of the the supported organization?
................
11g(i)
(ii)
a family member of a person described in (i) above?
......................
11g(ii)
(iii)
a 35% controlled entity of a person described in (i) or (ii) above?
................
11g(iii)
h
Provide the following information about the supported organization(s).
(i) Name of supported organization
(ii) EIN
(iii) Type of organization (described on lines 1- 9 above or IRC section (see instructions))
(iv) Is the organization in col. (i) listed in your governing document?
(v) Did you notify the organization in col. (i) of your support?
(vi) Is the organization in col. (i) organized in the U.S.?
(vii) Amount of support?
Yes
No
Yes
No
Yes
No
Total
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 11285F
Schedule A (Form 990 or 990-EZ) 2011
Schedule A (Form 990 or 990-EZ) 2011
Page 2
Part II
Support Schedule for Organizations Described in IRC 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi) (Complete only if you checked the box on line 5, 7, or 8 of Part I or if the
organization failed to qualify under Part III. If the organization fails to
qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year(or fiscal year beginning in)
(a) 2007
(b) 2008
(c) 2009
(d) 2010
(e) 2011
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") ....
1,645
18,790
69,909
33,045
54,010
177,399
2
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.......
0
3
The value of services or facilities furnished by a governmental unit to the organization without charge..
0
4
Total. Add lines 1 through 3..
1,645
18,790
69,909
33,045
54,010
177,399
5
The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included
on line 1 that exceeds 2% of the amount shown on line 11, column (f)..
0
6
Public Support. Subtract line 5 from line 4.
177,399
Section B. Total Support
Calendar year(or fiscal year beginning in)
(a) 2007
(b) 2008
(c) 2009
(d) 2010
(e) 2011
(f) Total
7
Amounts from line 4..
1,645
18,790
69,909
33,045
54,010
177,399
8
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
122,422
117,727
81,431
44,548
43,996
410,124
9
Net income from unrelated business activities, whether or not the business is regularly carried on..
0
10
Other income. (Explain in Part IV.) Do not include gain or loss from the sale of capital assets..
0
11
Total support (Add lines 7 through 10).
587,523
12
Gross receipts from related activities, etc. (See instructions.)
..................
12
13
First Five Years
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here..........................................
Section C. Computation of Public Support Percentage
14
Public Support Percentage for 2010 (line 6 column (f) divided by line 11 column (f))
.........
14
30.190 %
15
Public Support Percentage for 2009 Schedule A, Part II, line 14
...............
15
23.660 %
16a
33 1/3% support test—2011.
If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization
......................
b
33 1/3% support test—2010.
If the organization did not check the box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization
.....................
17a
10%-facts-and-circumstances test—2011.
If the organization did not check a box on line 13, 16a, or 16b and line 14
is 10% or more, and if the organization meets the "facts and circumstances" test, check this box and stop here. Explain
in Part IV how the organization meets the "facts and circumstances" test. The organization qualifies as a publicly supported
organization
..................................................
b
10%-facts-and-circumstances test—2010.
If the organization did not check a box on line 13, 16a, 16b, or 17a and line
15 is 10% or more, and if the organization meets the "facts and circumstances" test, check this box and stop here.
Explain in Part IV how the organization meets the "facts and circumstances" test. The organization qualifies as a publicly supported organization
..............................................
18
Private Foundation
If the organization did not check a box on line 13, 16a, 16b, 17a or 17b, check this box and see
instructions
...................................................
Schedule A (Form 990 or 990-EZ) 2011
Schedule A (Form 990 or 990-EZ) 2011
Page 3
Part III
Support Schedule for Organizations Described in IRC 509(a)(2) (Complete only if you checked the box on line 9 of Part I or if the organization
failed to qualify under Part II. If the organization fails to qualify under
the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year(or fiscal year beginning in)
(a) 2007
(b) 2008
(c) 2009
(d) 2010
(e) 2011
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2
Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose......
3
Gross receipts from activities that are not an unrelated trade or business under section 513..
4
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5
The value of services or facilities furnished by a governmental unit to the organization without charge..
6
Total. Add lines 1 through 5.
7a
Amounts included on lines 1, 2, and 3 received from disqualified persons...
b
Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c
Add lines 7a and 7b..
8
Public Support (Subtract line 7c from line 6.)
Section B. Total Support
Calendar year (or fiscal year beginning in)
(a) 2007
(b) 2008
(c) 2009
(d) 2010
(e) 2011
(f) Total
9
Amounts from line 6...
10a
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b
Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c
Add lines 10a and 10b.
11
Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12
Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)
13
Total support (Add lines 9, 10c, 11 and 12.).
14
First Five Years
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here.............................................
Section C. Computation of Public Support Percentage
15
Public Support Percentage for 2011 (line 8 column (f) divided by line 13 column (f))
.........
15
16
Public support percentage from 2010 Schedule A, Part III, line 15
...............
16
Section D. Computation of Investment Income Percentage
17
Investment income percentage for 2011 (line 10c column (f) divided by line 13 column (f))
......
17
18
Investment income percentage from 2010 Schedule A, Part III, line 17
.............
18
19a
33 1/3% support tests—2011.
If the organization did not check the box on line 14, and line 15 is more than 33 1/3% and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
..........
b
33 1/3% support tests—2010.
If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
....
20
Private Foundation
If the organization did not check a box on line 14, 19a or 19b, check this box and see instructions
.....
Schedule A (Form 990 or 990-EZ) 2011
Schedule A (Form 990 or 990-EZ) 2011
Page 4
Part IV
Supplemental Information.
Supplemental Information. Complete this part to provide the explanation required by Part II, line 10; Part II, line 17a or 17b; or Part III, line 12. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
Part II, Line 17a--BackgroundThe Anita Kaufmann Foundation was formed in 2004 pursuant to the will of the late Anita Kaufmann Foundation. Anita who suffered from epilepsy, instructed her executor to establish a public charity named after herself to educate the public about epilepsy. Anita left virtually her entire estate to this Foundation. In her will Anita designated her friend from childhood, Debra Josephs and Debra's husband, Ben Kaplan, to direct and run the Foundation.Epilepsy is an unusual disease in that it affects about 1% of the population at any given time but over time about 10% of the population will experience a seizure during their lifetime. Drugs can treat about 65% of the people who develop epilepsy and over time they can lead normal lives. (It can take years for the right drug and the right combination of drugs to be identified). About 35% of the people who develop epilepsy are not treatable. They continue to have seizures. Generally speaking, the 65% who are treatable, want to be left alone and to remain anonymous. Unlike other diseases, there is very little solidarity and great fear of being exposed and stigmatized. Anita used to say that the stigma was worse than the condition itself.There are probably two major reasons that account for the stigma. One is historical, the church used to treat people with epilepsy as being "possessed" by the devil and secondly when a person with epilepsy has a seizure, that person loses control of their body, in a way that can be very frightening to the bystander. The person himself is generally oblivious to what is happening. The "cured" person with epilepsy does not want to be reminded of their vulnerability and therefore for the most part wish anonymity. The people with epilepsy ("uncured") are generally marginalized in our society. Many are incapable of holding jobs because of the frequency of their seizures or are forced to take low paying jobs. Thus although many people suffer from epilepsy, obtaining public support is very difficult.Thus, The Anita Kaufmann Foundation has struggled with how to obtain public support, as those most likely to understand (the "cured" ones), are fearful to declare themselves because of the stigma and those who need the help are among the most disadvantaged members of our society. The Foundation has invested in programs and materials that it believes will make a difference over time and change public attitudes. The fifth grade program, Thinking About Epilepsy ("TAE"), we believe will change a generation's perspective because it seeks to educate and influence students in their formative years with facts and empathy. Similarly, Purple Day, we believe will also lead to a significant change in attitudes and result in a public conversation about epilepsy and over time an outpouring of public support and acceptance that will take the disease out of the shadows and into the mainstream.
Explanation
The Foundation has taken the following steps to attract greater public financial support:1.The Foundation has developed various bookmarks, posters, flyers, first aid seizure pens, wrist brands, Purple Day buttons, etc. that it provides for free to those who ask for it, typically schools, epilepsy organizations, nurses, parents of children with epilepsy, etc. The Foundation now respectfully respects that recipients make a discretionary donation. This has become an ongoing continuous program.2.The Foundation has developed the Purple Ambassador Program in which people who have epilepsy volunteer to increase awareness and raise funds.Percentage of Financial SupportFor the 5 year period (2007-2011 the foundation's public support stands at 30%. The Foundation's level of public support was 55% in 2011, 43% in 2010 and 46% in 2009. The Foundation did not make any significant efforts to fundraise prior to 2009 because the development of the content and programming was still underway. The Directors of the Foundation felt it was inappropriate to solicit the general public for support until the Foundation had concrete accomplishments. In 2009, the Foundation started its first serious efforts at fundraising. The Foundation respectfully suggests that the public support obtained in 2009, 2010 and 2011 be given great weight because of the history previously mentioned and because 2011 is the current period. Sources of Public SupportIn 2011 approximately 400 persons donated to the Foundation. As previously mentioned fundraising within the epilepsy world is challenging because of the stigma associated with the disease. The natural constituents are among the nation's most disadvantaged population. The ability to fundraise from this population is obviously limited. Representative Governing BodyAs previously mentioned the Foundation came into existence due to a bequest. Two of the four board members were designated by the decedent in her will to serve as Board members, hereinafter referred to as donor appointed. The other two Board members, hereinafter referred to as independents, were selected due to their availability and compatibility with the donor appointed board members. One of the independent board members has considerable experience with working with disadvantaged persons as a sibling is institutionalized. In addition, this Board member, is in frequent contact with municipal and state officials as part of his day to day job in the engineering sector. The other independent board member is an entrepreneur with considerable experience in running a consumer business.The donor appointed board members consist of an attorney and an experienced sales and advertising professional. The latter board member has considerable experience working with disadvantaged persons as her sibling is developmentally disabled. All of the board members have considerable empathy for and experience working with disabled persons.Availability of Public Facilities or Service FactorThe Foundation sponsors various educational presentations and trainings in emergency seizure first aid to schools, restaurants, libraries, and shopping malls. The Foundation also distributes free books to public and school libraries. Conclusion 1.The Anita Kaufmann Foundation is a publicly supported charity as evidenced by its most recent (2011 public support presentation of 55%. The years before 2009 should be substantially discounted, because the Foundation was still developing its programming content and was not actively soliciting funds for a work in progress. Going forward the Foundation expects to continue generating significant public support. 2.In addition, the Foundation continues to take active steps to increase the amount of financial support from the public via various means such as: requesting contributions for the free materials requested, Purple Day Event fundraisers, and the Purple Ambassador Program.3.The Foundation believes that the public socially and culturally supports the Foundation's mission but that the general economic downturn has hampered that expression. The Foundation is the US sponsor of Purple Day and literally hundreds of thousands of people have participated as shown on the purple day website (www.purpleday.org). The number of donors averaged 300 in 2009 and 2010 and increased to about 400 in 2011. The Foundation believes that this shows the broad public support that it is generating. 4.The delivery by the Foundation of various services to the public: fifth grade program Thinking About Epilepsy, the dissemination of educational material and emergency seizure first aid material.
Schedule A (Form 990 or 990-EZ) 2011
Additional Data
Software ID:
11000144
Software Version:
2011v1.5
-
TIN:
SCHEDULE O (Form 990 or 990-EZ)
Department of the Treasury Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ
Complete to provide information for responses to specific questions on
Form 990 or to provide any additional information.
Attach to Form 990 or 990-EZ.
OMB No. 1545-0047
2011
Open to Public Inspection
Name of the organization
THE ANITA KAUFMANN FOUNDATION
Employer identification number
30-0233976
Identifier
Return Reference
Explanation
Form 990, Part VI, Line 19
Form 990, Part VI, Line 19: Other Organization Documents Publicly Available
Available upon request
Form 990, Part VI, Line 11
Form 990, Part VI, Line 11: Form 990 Review Process
THE BOARD OF DIRECTORS MET AND REVIEWED FORM 990 FOR COMPLETENESS AND ACCURACY BEFORE FILING THE RETURN.
Form 990, Part VI, Line 2
Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et
TWO DIRECTORS OF THE FOUNDATON ARE HUSBAND AND WIFE
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.