Department of the Treasury Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section
4947(a)(1) nonexempt charitable trust.
Attach to Form 990 or Form 990-EZ. See separate instructions.
OMB No. 1545-0047
2012
Open to Public Inspection
Name of the organization
Craniofacial Foundation of Arizona
Employer identification number
86-0649623
Part I
Reason for Public Charity Status
(All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 11, check only one box.)
1
2
3
4
5
section 170(b)(1)(A)(iv). (Complete Part II.)
6
7
8
9
receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of
its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses
acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)
10
11
e
By checking this box, I certify that the organization is not controlled directly or indirectly by one or more disqualified persons other than foundation managers and other than one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2).
f
If the organization received a written determination from the IRS that it is a Type I, Type II, or Type III supporting organization, check this box
..................................................
g
Since August 17, 2006, has the organization accepted any gift or contribution from any of the following persons?
(i) A person who directly or indirectly controls, either alone or together with persons described in (ii)
Yes
No
and (iii) below, the governing body of the supported organization?
................
11g(i)
(ii)
A family member of a person described in (i) above?
......................
11g(ii)
(iii)
A 35% controlled entity of a person described in (i) or (ii) above?
................
11g(iii)
h
Provide the following information about the supported organization(s).
(i) Name of supported organization
(ii) EIN
(iii) Type of organization (described on lines 1- 9 above or IRC section (see instructions))
(iv) Is the organization in col. (i) listed in your governing document?
(v) Did you notify the organization in col. (i) of your support?
(vi) Is the organization in col. (i) organized in the U.S.?
(vii) Amount of monetary support
Yes
No
Yes
No
Yes
No
Total
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990EZ.
Cat. No. 11285F
Schedule A (Form 990 or 990-EZ) 2012
Schedule A (Form 990 or 990-EZ) 2012
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi) (Complete only if you checked the box on line 5, 7, or 8 of Part I or if the
organization failed to qualify under Part III. If the organization fails to
qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in)
(a) 2008
(b) 2009
(c) 2010
(d) 2011
(e) 2012
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") ....
491,705
147,410
185,576
150,070
43,499
1,018,260
2
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.......
3
The value of services or facilities furnished by a governmental unit to the organization without charge..
4
Total. Add lines 1 through 3
491,705
147,410
185,576
150,070
43,499
1,018,260
5
The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included
on line 1 that exceeds 2% of the amount shown on line 11, column (f)..
72,203
6
Public support. Subtract line 5 from line 4.
946,057
Section B. Total Support
Calendar year
(or fiscal year beginning in)
(a) 2008
(b) 2009
(c) 2010
(d) 2011
(e) 2012
(f) Total
7
Amounts from line 4..
491,705
147,410
185,576
150,070
43,499
1,018,260
8
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...
23,521
74,441
4,474
-2,657
2,694
102,473
9
Net income from unrelated business activities, whether or not the business is regularly carried on..
10
Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)..
11
Total support (Add lines 7 through 10).
1,120,733
12
Gross receipts from related activities, etc. (see instructions)
..................
12
181,369
13
First five years.
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here........................................
Section C. Computation of Public Support Percentage
14
Public support percentage for 2012 (line 6, column (f) divided by line 11, column (f))
.........
14
84.410 %
15
Public support percentage for 2011 Schedule A, Part II, line 14
...............
15
79.350 %
16a
33 1/3% support test—2012.
If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization
.......................
b
33 1/3% support test—2011.
If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization
.....................
17a
10%-facts-and-circumstances test—2012.
If the organization did not check a box on line 13, 16a, or 16b, and line 14
is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain
in Part IV how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported
organization
.....................................................
b
10%-facts-and-circumstances test—2011.
If the organization did not check a box on line 13, 16a, 16b, or 17a, and line
15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here.
Explain in Part IV how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization
................................................
18
Private foundation.
If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions
.....................................................
Schedule A (Form 990 or 990-EZ) 2012
Schedule A (Form 990 or 990-EZ) 2012
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2) (Complete only if you checked the box on line 9 of Part I or if the organization
failed to qualify under Part II. If the organization fails to qualify under
the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in)
(a) 2008
(b) 2009
(c) 2010
(d) 2011
(e) 2012
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2
Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose......
3
Gross receipts from activities that are not an unrelated trade or business under section 513..
4
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5
The value of services or facilities furnished by a governmental unit to the organization without charge..
6
Total. Add lines 1 through 5.
7a
Amounts included on lines 1, 2, and 3 received from disqualified persons...
b
Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c
Add lines 7a and 7b..
8
Public support (Subtract line 7c from line 6.)
Section B. Total Support
Calendar year (or fiscal year beginning in)
(a) 2008
(b) 2009
(c) 2010
(d) 2011
(e) 2012
(f) Total
9
Amounts from line 6...
10a
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b
Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c
Add lines 10a and 10b.
11
Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12
Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)
..
13
Total support. (Add lines 9, 10c, 11, and 12.)..
14
First five years.
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here.............................................
Section C. Computation of Public Support Percentage
15
Public support percentage for 2012 (line 8, column (f) divided by line 13, column (f))
.........
15
0 %
16
Public support percentage from 2011 Schedule A, Part III, line 15
...............
16
Section D. Computation of Investment Income Percentage
17
Investment income percentage for 2012 (line 10c, column (f) divided by line 13, column (f))
......
17
0 %
18
Investment income percentage from 2011 Schedule A, Part III, line 17
.............
18
19a
33 1/3% support tests—2012.
If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
........
b
33 1/3% support tests—2011.
If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
.....
20
Private foundation.
If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions
.....
Schedule A (Form 990 or 990-EZ) 2012
Schedule A (Form 990 or 990-EZ) 2012
Page 4
Part IV
Supplemental Information.
Complete this part to provide the explanations required by Part II, line 10; Part II, line 17a or 17b; and Part III, line 12. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
Explanation
Schedule A (Form 990 or 990-EZ) 2012
Additional Data
Software ID:
12000057
Software Version:
12.19.1011.1
-
TIN:
SCHEDULE O (Form 990 or 990-EZ)
Department of the Treasury Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ
Complete to provide information for responses to specific questions on
Form 990 or to provide any additional information.
Attach to Form 990 or 990-EZ.
OMB No. 1545-0047
2012
Open to Public Inspection
Name of the organization
Craniofacial Foundation of Arizona
Employer identification number
86-0649623
Identifier
Return Reference
Explanation
Form 990-EZ, Part III, Line 31 SEE SCHEDULE O Grants and allocations 0, Program service expenses 71,982
Form 990-EZ, Part I, Line 10, Grants Paid Activity , Grantee PATIENT ASSISTANCE, Cash Grant 9,241, Relationship NONE
Form 990-EZ, Part I, Line 16, Other Expenses INSURANCE 1,344
Form 990-EZ, Part I, Line 16, Other Expenses DUES LICENSES 350
Form 990-EZ, Part I, Line 16, Other Expenses MATERIALS AND SUPPLIES 2,362
Form 990-EZ, Part I, Line 16, Other Expenses BANK AND CREDIT CARD FEES 721
Form 990-EZ, Part I, Line 20, Net Assets UNREALIZED GAIN ON INVESTMENTS 15,772
Form 990-EZ, Part II, Line 24, Other Assets INVESTMENTS - PUBLICALLY TRADED Beginning of year 182,572, End of year 18,115
Form 990-EZ Part III MISSION STATEMENT DEDICATED TO PROVIDING FINANCIAL AND EMOTIONAL SUPPORT TO CRANOFACIAL PATIENTS AND THEIR FAMILIES, PROMOTE EDUCATIONAL PROGRAMS TO INCREASE AWARENESS ABOUT AND ACCEPTANCE OF CRANIOFACIAL CONDITIONS, AND SUPPORT RESEARCH TO IMPROVE METHODS OF PREVENTING, DIAGNOSING AND CORRECTING CRANIOFACIAL ABNORMALITIES.
Form 990-EZ Part III Line 28 PROGRAM SERVICE 1 SUPPORT GROUPS REACHING AN APPROXIMATE COMBINED TOTAL OF 425 PEOPLE - A PROGRAM THAT PROVIDES PROFESSIONAL COUNSELING, FAMILY NETWORKING, AND HOPE IN A LOVING AND SAFE ENVIRONMENT TO CRANIOFACIAL PATIENTS AND THEIR FAMILIES. ALL SUPPORT GROUPS ARE FACILITATED BY OUR PSYCHOLOGY EXPENSE 24,166
Form 990-EZ Part III Line 29 PROGRAM SERVICE 2 MENTOR PROGRAM, SERVING OUR CURRENT BASE OF FAMILIES OF APPROXIMATELY 500 ACTIVE MEMBERS, REACHING OUT TO APPROXIMATELY 60 TO 100 NEW FAMILIES EACH YEAR - THE CFA MENTOR PROGRAM PROVIDES CRANIOFACIAL PATIENTS AND THE FAMILIES OF CRANIOFACIAL PATIENTS THE COMPASSION AND RESOURCES REQUIRED TO OVERCOME THE SOMETIMES OVERWHELMING CHALLENGES PRESENTED TO THEM BY PERSONAL, ONE-ON-ONE CONTACT BY SPECIALLY TRAINED PARENTS OF CRANIOFACIAL PATIENTS. MENTORS CONTACT PATIENTS THROUGHOUT THE YEAR, AS WELL AS VISIT DOCTORS OFFICES, HOSPITAL, IMAGING FACILITIES, AND HEALTH PROVIDERS TO REACH OUT TO FAMILIES IN NEED. EXPENSE 85,738
Form 990-EZ Part III Line 30 PROGRAM SERVICE 3 PATIENT ASSISTANCE - OUR PATIENT ASSISTANCE FUND HELPS WITH COSTS NOT COVERED BY INSURANCE OR WHEN INSURANCE FAILS TO COVER THE PATIENT THROUGH THEIR ENTIRE TREATMENT PLAN. CFA ALSO PROVIDES EXPENSE 9,241
Form 990-EZ Part III Line 30 PROGRAM SERVICE 4 EDUCATION, 3350 STUDENTS IN 2012- CFA WORKS TO EDUCATE THE PUBLIC BY SPONSORING SEVERAL PROGRAMS DESIGNED TO INCREASE AWARENESS AND ACCEPTANCE OF CRANIOFACIAL CONDITIONS THROUGH LIVE, SCHOOL-BASED PRESENTATION, UNWRAPPING THE PACKAGE DISPELLING MYTHS ABOUT UNUSUAL APPEARANCES, THROUGH A COLLABORATIVE PARTNERSHIP WITH THE GREAT ARIZONA PUPPET THEATER, AN INTERACTIVE PUPPET SHOW, BLINDFOLDED, IS ALSO AVAILABLE TO HELP EDUCATE VALLEY YOUTH ABOUT FIRST IMPRESSIONS, APPEARANCES, AND HOW JUDGMENT IS OFTEN WRONGLY BASED ON PHYSICAL APPEARANCES. EXPENSE 1,589
Form 990-EZ Part III Line 30 PROGRAM SERVICE 5 NEWSLETTER, DISTRIBUTED TO 1200 PEOPLE - CFA PRODUCES AND DISTRIBUTES A NEWSLETTER ON AN ANNUAL BASIS THAT INCLUDES ARTICLES ABOUT OUR CFA PATIENTS AND THEIR FAMILIES ADVICE COLUMNS ON INSURANCE, SUPPORT GROUPS, AND MENTORING PHOTOS OF RECENT CFA EVENTS CALENDAR OF UPCOMING SUPPORT GROUPS AND EVENTS NEWS AND RESOURCES. EXPENSE 3,223
Form 990-EZ Part III Line 30 PROGRAM SERVICE 6 INSURANCE ASSISTANCE AND ADVOCACY, 150 PEOPLE SERVED - OUR CFA INSURANCE ADVISOR ASSISTS CRANIOFACIAL PATIENTS AND THEIR FAMILIES WITH PROFESSIONAL ADVICE, GUIDANCE AND ADVOCATES FOR THEM WHEN INSURANCE DENIES COVERAGE FOR A CRANIOFACIAL PROCEDURE THE PATIENT REQUIRES. IT CAN BE VERY DIFFICULT AND FRUSTRATING FOR OUR PATIENTS AND THEIR FAMILIES TO NAVIGATE THROUGH INSURANCE CLAIMS AND DENIALS THIS PROGRAM WAS DEVELOPED IN DIRECT RESPONSE TO PARENTS REQUESTS LEARNED THROUGH OUR PARENT FOCUS GROUPS. EXPENSE 12,000
Form 990-EZ Part III Line 30 PROGRAM SERVICE 7 HAPPY FACES RETREAT, 300 PEOPLE ATTENDED IN 2012- AN ANNUAL EVENT WHERE CRANIOFACIAL PATIENTS AND THEIR FAMILIES GATHER FOR A WEEKEND OF FUN, GAMES, DANCING, PROGRAMS, AND FAMILY TIME IN A LOVING AND SAFE ENVIRONMENT. THE WEEKEND GIVES MANY PARENTS, AS WELL AS CFA EMPLOYEES AND VOLUNTEERS, A CHANCE TO FORM DEEPER BONDS, SHARE RESOURCES, AND GIVE FEEDBACK DURING OUR PARENT FOCUS GROUP. THE HAPPY FACES RETREAT OCCURS IN AUGUST EACH YEAR IN A LOCAL HOTEL AND PROVIDES ROOMS, MEALS, CHILD CARE, GAMES, GIFTS, AND SUPPORT PROGRAMS TO THE ATTENDEES. EXPENSE 34,860
Form 990-EZ Part III Line 30 PROGRAM SERVICE 8 ANNUAL HOLIDAY PARTY, 307 PEOPLE SERVED IN 2012 - EACH DECEMBER, CFA SPONSORS A HOLIDAY PARTY FOR CRANIOFACIAL PATIENTS AND THEIR FAMILIES TO SHARE THE JOYS OF THE SEASON IN A FUN ATMOSPHERE. FOOD, DRINKS, GAMES, PRESENTS FOR THE YOUNG CHILDREN, MUSIC PROVIDED BY A DJ, AND DANCING. THE HOLIDAY PARTY OFFERS ANOTHER AVENUE FOR FAMILIES AND CFA EMPLOYEES AND VOLUNTEERS TO CONNECT, SHARE RESOURCES, AND HAVE FUN IN A LOVING AND ACCEPTING ENVIRONMENT. EXPENSE 20,310
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.