Form990
Click to see attachment
Department of the Treasury
Internal Revenue Service
Return of Organization Exempt From Income Tax
Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except black lung benefit trust or private foundation)

MediumBullet The organization may have to use a copy of this return to satisfy state reporting requirements.
OMB No. 1545-0047
2012
Open to Public Inspection
A For the 2012 calendar year, or tax year beginning 07-01-2012 , 2012, and ending 06-30-2013
BCheck if applicable:
CName of organization
Alzheimer's Disease & Related Disorders
Association Inc
Doing Business As
Alzheimer's Association
 
Number and street (or P.O. box if mail is not delivered to street address)
225 N Michigan Ave
Suite 17th Flr
Room/suite
City or town, state or country, and ZIP + 4
Chicago, IL606017633
D Employer identification number

13-3039601
E Telephone number

G Gross receipts $ 144,015,808
F Name and address of principal officer:
Richard Hovland
225 N Michigan Ave
Chicago,IL606017633
I
Tax-exempt status: (   ) LeftBullet (insert no.) or
J
Website:MediumBullet
www.alz.org
H(a)
Is this a group return for
affiliates?
H(b)
Are all affiliates included?
If "No," attach a list. (see instructions)
H(c)
Group exemption number MediumBullet9334
K Form of organization:
 
L Year of formation: 1980
M State of legal domicile: IL
Part I
Summary
Activities & Governance 1 Briefly describe the organization’s mission or most significant activities: To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support all affected; and to reduce the risk of dementia through the promotion of brain health.
2 Check this box MediumBullet
3 Number of voting members of the governing body (Part VI, line 1a) ........ 3 38
4 Number of independent voting members of the governing body (Part VI, line 1b) ..... 4 38
5 Total number of individuals employed in calendar year 2011 (Part V, line 2a) ...... 5 443
6 Total number of volunteers (estimate if necessary) ............. 6 8,276
7a Total unrelated business revenue from Part VIII, column (C), line 12 ........ 7a 0
b Net unrelated business taxable income from Form 990-T, line 34 ......... 7b 0
Revenues Prior Year Current Year
8 Contributions and grants (Part VIII, line 1h) ......... 92,496,080 108,946,787
9 Program service revenue (Part VIII, line 2g) ......... 5,109,038 3,589,556
10 Investment income (Part VIII, column (A), lines 3, 4, and 7d ) .... 2,227,187 2,271,114
11 Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e) 4,743,184 4,223,272
12 Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)................... 104,575,489 119,030,729
Expenses; 13 Grants and similar amounts paid (Part IX, column (A), lines 1–3 )... 13,494,403 16,736,969
14 Benefits paid to or for members (Part IX, column (A), line 4)..... 0 0
15 Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10) 31,688,578 35,949,146
16a Professional fundraising fees (Part IX, column (A), line 11e)..... 433,534 140,283
b Total fundraising expenses (Part IX, column (D), line 25) MediumBullet19,112,704    
17 Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e).... 54,211,857 56,795,873
18 Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25) 99,828,372 109,622,271
19 Revenue less expenses. Subtract line 18 from line 12....... 4,747,117 9,408,458
Net Assets or Fund Balances; Beginning of Current Year End of Year
20 Total assets (Part X, line 16)............. 122,758,605 138,486,960
21 Total liabilities (Part X, line 26)............. 52,119,030 53,897,965
22 Net assets or fund balances. Subtract line 21 from line 20..... 70,639,575 84,588,995
Part II
Signature Block
Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it is true, correct, and complete. Declaration of preparer (other than officer) is based on all information of which preparer has any knowledge.
Sign Here
JumboBullet
Signature of officer Date
JumboBullet
Type or print name and title
Paid Preparer Use Only
Print/Type preparer's name
 
Preparer's signature
Date
PTIN
Firm's name MediumBullet

Firm's EIN MediumBullet
Firm's address MediumBullet



Phone no.
May the IRS discuss this return with the preparer shown above? (see instructions) ............
For Paperwork Reduction Act Notice, see the separate instructions.
Cat. No. 11282Y
Form 990 (2012)
Form 990 (2012)
Page 2
Part III
Statement of Program Service Accomplishments
Check if Schedule O contains a response to any question in this Part III ...............
1
Briefly describe the organization’s mission: THE ALZHEIMER'S ASSOCIATION IS THE WORLD'S LEADING VOLUNTARY HEALTH ORGANIZATION IN ALZHEIMER CARE, SUPPORT, AND RESEARCH. OUR MISSION IS TO ELIMINATE ALZHEIMER'S DISEASE THROUGH THE ADVANCEMENT OF RESEARCH; TO PROVIDE AND ENHANCE CARE AND SUPPORT FOR ALL AFFECTED; AND TO REDUCE THE RISK OF DEMENTIA THROUGH THE PROMOTION OF BRAIN HEALTH. OUR VISION: A WORLD WITHOUT ALZHEIMER'S. THE ALZHEIMER'S ASSOCIATION IS A VALUED RESOURCE FOR CAREGIVERS AND THOSE LIVING WITH THE DISEASE, OFFERING INFORMATION, EDUCATION AND SUPPORT. WE ARE A NATIONWIDE NETWORK WITH 80 CHAPTERS WORKING TOGETHER TO ACCOMPLISH OUR MISSION. OUR NATIONAL OFFICE IS HEADQUARTERED IN CHICAGO, AND WE HAVE A PUBLIC POLICY OFFICE IN WASHINGTON, D.C. THE ALZHEIMER'S ASSOCIATION PROVIDES 24/7 CONSTITUENT SUPPORT THROUGH OUR HELPLINE 365 DAYS A YEAR (1.800.272.3900) AND AN AWARD-WINNING WEB SITE, ALZ.ORG. WE ARE THE LARGEST NONPROFIT FUNDER OF ALZHEIMER'S DISEASE RESEARCH. SINCE AWARDING OUR FIRST GRANTS IN 1982, THE ASSOCIATION
2
Did the organization undertake any significant program services during the year which were not listed on
the prior Form 990 or 990-EZ? ......................
If “Yes,” describe these new services on Schedule O.
3
Did the organization cease conducting, or make significant changes in how it conducts, any program services? ............................
If “Yes,” describe these changes on Schedule O.
4
Describe the organization’s program service accomplishments for each of its three largest program services, as measured by expenses. Section 501(c)(3) and 501(c)(4) organizations are required to report the amount of grants and allocations to others, the total expenses, and revenue, if any, for each program service reported.
4a (Code:   ) (Expenses $ 26,754,020 including grants of $ 0 ) (Revenue $ 57,954 )
Public Awareness and Education - Alzheimer's is a progressive, degenerative and ultimately fatal disease. Too few Americans understand the current and future economic impact of Alzheimer's. Already more than 5 million Americans and their families are struggling with this disease without enough information and support. The Alzheimer's Association has invested in education campaigns and initiatives to increase knowledge about Alzheimer's disease and awareness of the Alzheimer's Association as the center of help and hope. Key messages include the importance of early detection, resources for people with Alzheimer's and their families, and the societal impact of the disease. We also engage millions of people as champions to educate their communities and workplaces.
4b (Code:   ) (Expenses $ 25,109,751 including grants of $ 15,068,608 ) (Revenue $ 3,311,475 )
Research - The Alzheimer's Association is on the forefront of the Alzheimer's scientific field, globally connecting researchers in the quest to find methods of treatment, prevention and a cure. The Alzheimer's Association implements an aggressive research and science program strategically designed to accelerate progress by fostering innovation, identifying and filling critical knowledge gaps, developing and disseminating tools, and nurturing scientific talent. The Alzheimer's Association has been a catalyst and convener for more than 30 years. Whether funding innovative grants to help further treatments and discovery, hosting the Alzheimer's Association International Conference (AAIC*), the world's largest gathering of Alzheimer's researchers, or leading the Worldwide Alzheimer's Disease Neuroimaging Initiative (WW-ADNI) to accelerate advances in imaging, the Alzheimer's Association seeks to fund and advance best-in-class research. We work with collaborators around the globe from all sectors to hasten this progress. * These are names that are trademarks to Alzheimer's Association
4c (Code:   ) (Expenses $ 9,448,335 including grants of $ 493,222 ) (Revenue $ 278,081 )
Chapter Services - From coast to coast, 80 chapters are in communities nationwide, providing services to families and professionals, including information and referral, support groups, care consultation, education and safety services. The national organization provides strategic and tactical support in these activities.
4d Other program services (Describe in Schedule O.)
(Expenses $ 22,235,052 including grants of $ 1,175,139 ) (Revenue $ 0 )
4e Total program service expensesMediumBullet83,547,158
Form 990 (2012)
Form 990 (2012)
Page 3
Part IV
Checklist of Required Schedules
Yes
No
1
Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)? If “Yes,” complete Schedule AClick to see attachment........................
1
Yes
 
2
Is the organization required to complete Schedule B, Schedule of Contributors (see instructions)? Click to see attachment...
2
Yes
 
3
Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office? If “Yes,” complete Schedule C, Part IClick to see attachment..........
3
 
No
4
Section 501(c)(3) organizations. Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year? If “Yes,” complete Schedule C, Part IIClick to see attachment........
4
Yes
 
5
Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Revenue Procedure 98-19? If “Yes,” complete Schedule C,
Part IIIClick to see attachment............................
5
 
No
6
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts? If “Yes,” complete Schedule D, Part IClick to see attachment........................
6
 
No
7
Did the organization receive or hold a conservation easement, including easements to preserve open space,
the environment, historic land areas, or historic structures? If “Yes,” complete Schedule D, Part IIClick to see attachment...
7
 
No
8
Did the organization maintain collections of works of art, historical treasures, or other similar assets? If “Yes,” complete Schedule D, Part III Click to see attachment....................
8
 
No
9
Did the organization report an amount in Part X, line 21 for escrow or custodial account liability; serve as a custodian for amounts not listed in Part X; or provide credit counseling, debt management, credit repair, or debt negotiation services? If “Yes,” complete Schedule D, Part IVClick to see attachment..............
9
 
No
10
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi-endowments? If “Yes,” complete Schedule D, Part VClick to see attachment......
10
Yes
 
11
If the organization’s answer to any of the following questions is "Yes," then complete Schedule D, Parts VI, VII, VIII, IX, or X as applicable.
a
Did the organization report an amount for land, buildings, and equipment in Part X, line 10?
If “Yes,” complete Schedule D, Part VI.Click to see attachment...................
11a
Yes
 
b
Did the organization report an amount for investments—other securities in Part X, line 12 that is 5% or more of its total assets reported in Part X, line 16? If “Yes,” complete Schedule D, Part VIIClick to see attachment.......
11b
Yes
 
c
Did the organization report an amount for investments—program related in Part X, line 13 that is 5% or more of its total assets reported in Part X, line 16? If “Yes,” complete Schedule D, Part VIIIClick to see attachment.......
11c
 
No
d
Did the organization report an amount for other assets in Part X, line 15 that is 5% or more of its total assets reported in Part X, line 16? If “Yes,” complete Schedule D, Part IXClick to see attachment............
11d
 
No
e
Did the organization report an amount for other liabilities in Part X, line 25? If “Yes,” complete Schedule D, Part XClick to see attachment
11e
Yes
 
f
Did the organization’s separate or consolidated financial statements for the tax year include a footnote that addresses the organization’s liability for uncertain tax positions under FIN 48 (ASC 740)? If “Yes,” complete Schedule D, Part XClick to see attachment.........................
11f
Yes
 
12a
Did the organization obtain separate, independent audited financial statements for the tax year?
If “Yes,” complete Schedule D, Parts XI and XII Click to see attachment.................
12a
 
No
b
Was the organization included in consolidated, independent audited financial statements for the tax year? If “Yes,” and if the organization answered "No" to line 12a, then completing Schedule D, Parts XI and XII is optional Click to see attachment
12b
Yes
 
13
Is the organization a school described in section 170(b)(1)(A)(ii)? If “Yes,” complete Schedule E....
13
 
No
14a
Did the organization maintain an office, employees, or agents outside of the United States?.....
14a
 
No
b
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more? If “Yes,” complete Schedule F, Parts I and IV......... Click to see attachment
14b
Yes
 
15
Did the organization report on Part IX, column (A), line 3, more than $5,000 of grants or assistance to any organization or entity located outside the United States? If “Yes,” complete Schedule F, Parts II and IVClick to see attachment
15
Yes
 
16
Did the organization report on Part IX, column (A), line 3, more than $5,000 of aggregate grants or assistance to individuals located outside the United States? If “Yes,” complete Schedule F, Parts III and IV... Click to see attachment
16
 
No
17
Did the organization report a total of more than $15,000 of expenses for professional fundraising services on Part IX, column (A), lines 6 and 11e? If “Yes,” complete Schedule G, Part I (see instructions).... Click to see attachment
17
Yes
 
18
Did the organization report more than $15,000 total of fundraising event gross income and contributions on Part VIII, lines 1c and 8a? If “Yes,” complete Schedule G, Part II............ Click to see attachment
18
Yes
 
19
Did the organization report more than $15,000 of gross income from gaming activities on Part VIII, line 9a? If “Yes,” complete Schedule G, Part III................... Click to see attachment
19
Yes
 
20a
Did the organization operate one or more hospital facilities? If “Yes,” complete Schedule H....
20a
 
No
b
If “Yes” to line 20a, did the organization attach a copy of its audited financial statements to this return?
20b
 
 
Form 990 (2012)
Form 990 (2012)
Page 4
Part IV
Checklist of Required Schedules (continued)
21
Did the organization report more than $5,000 of grants and other assistance to any government or organization in the United States on Part IX, column (A), line 1? If “Yes,” complete Schedule I, Parts I and II... Click to see attachment
21
Yes
 
22
Did the organization report more than $5,000 of grants and other assistance to individuals in the United States on Part IX, column (A), line 2? If “Yes,” complete Schedule I, Parts I and III........ Click to see attachment
22
 
No
23
Did the organization answer “Yes” to Part VII, Section A, line 3, 4, or 5 about compensation of the organization’s current and former officers, directors, trustees, key employees, and highest compensated employees? If “Yes,” complete Schedule J....................... Click to see attachment
23
Yes
 
24a
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002? If “Yes,” answer lines 24b through 24d and complete Schedule K. If “No,” go to line 25................
24a
 
No
b
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?...
24b
 
 
c
Did the organization maintain an escrow account other than a refunding escrow at any time during the year
to defease any tax-exempt bonds?......................
24c
 
 
d
Did the organization act as an “on behalf of” issuer for bonds outstanding at any time during the year?...
24d
 
 
25a
Section 501(c)(3) and 501(c)(4) organizations. Did the organization engage in an excess benefit transaction with a disqualified person during the year? If “Yes,” complete Schedule L, Part I........
25a
 
No
b
Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization’s prior Forms 990 or 990-EZ? If “Yes,” complete Schedule L, Part I...................
25b
 
No
26
Was a loan to or by a current or former officer, director, trustee, key employee, highest compensated employee, or disqualified person outstanding as of the end of the organization’s tax year? If “Yes,” complete Schedule L,
Part II..........................
26
 
No
27
Did the organization provide a grant or other assistance to an officer, director, trustee, key employee, substantial contributor or employee thereof, a grant selection committee member, or to a 35% controlled entity or family member of any of these persons? If “Yes,” complete Schedule L, Part III.........
27
 
No
28
Was the organization a party to a business transaction with one of the following parties (see Schedule L, Part IV instructions for applicable filing thresholds, conditions, and exceptions):
a
A current or former officer, director, trustee, or key employee? If “Yes,” complete Schedule L, Part IV ..........................
28a
 
No
b
A family member of a current or former officer, director, trustee, or key employee? If “Yes,”
complete Schedule L, Part IV.....................
28b
 
No
c
An entity of which a current or former officer, director, trustee, or key employee (or a family member thereof) was an officer, director, trustee, or direct or indirect owner? If “Yes,” complete Schedule L, Part IV...
28c
 
No
29
Did the organization receive more than $25,000 in non-cash contributions? If “Yes,” complete Schedule M..Click to see attachment
29
Yes
 
30
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions? If “Yes,” complete Schedule M............. Click to see attachment
30
 
No
31
Did the organization liquidate, terminate, or dissolve and cease operations? If “Yes,” complete Schedule N,
Part I...........................
31
 
No
32
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets? If “Yes,” complete Schedule N, Part II......................
32
 
No
33
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3? If “Yes,” complete Schedule R, Part I........ Click to see attachment
33
 
No
34
Was the organization related to any tax-exempt or taxable entity? If “Yes,” complete Schedule R, Part II, III, or IV, and Part V, line 1........................ Click to see attachment
34
Yes
 
35a
Did the organization have a controlled entity within the meaning of section 512(b)(13)?
35a
Yes
 
b
If ‘Yes’ to line 35a, did the organization receive any payment from or engage in any transaction with a controlled entity within the meaning of section 512(b)(13)? If “Yes,” complete Schedule R, Part V, line 2... Click to see attachment
35b
Yes
 
36
Section 501(c)(3) organizations. Did the organization make any transfers to an exempt non-charitable related organization? If “Yes,” complete Schedule R, Part V, line 2............. Click to see attachment
36
Yes
 
37
Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes? If “Yes,” complete Schedule R, Part VIClick to see attachment
37
 
No
38
Did the organization complete Schedule O and provide explanations in Schedule O for Part VI, lines 11b and 19? Note. All Form 990 filers are required to complete Schedule O. ............
38
Yes
 
Form 990 (2012)
Form 990 (2012)
Page 5
Part V
Statements Regarding Other IRS Filings and Tax Compliance
Check if Schedule O contains a response to any question in this Part V ...............
Yes
No
1a
Enter the number reported in Box 3 of Form 1096 Enter -0- if not applicable ..
1a
119
b
Enter the number of Forms W-2G included in line 1a. Enter -0- if not applicable .
1b
0
c
Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners? ..................
1c
Yes
 
2a
Enter the number of employees reported on Form W-3, Transmittal of Wage and
Tax Statements, filed for the calendar year ending with or within the year covered by this return ..................
2a
443
b
If at least one is reported on line 2a, did the organization file all required federal employment tax returns?
Note. If the sum of lines 1a and 2a is greater than 250, you may be required to e-file (see instructions)
2b
Yes
 
3a
Did the organization have unrelated business gross income of $1,000 or more during the year?...
3a
 
No
b
If “Yes,” has it filed a Form 990-T for this year? If “No,” provide an explanation in Schedule O.....
3b
 
 
4a
At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)?..........................
4a
 
No
b
If "Yes," enter the name of the foreign country: MediumBullet
See instructions for filing requirements for Form TD F 90-22.1, Report of Foreign Bank and Financial Accounts.
5a
Was the organization a party to a prohibited tax shelter transaction at any time during the tax year?..
5a
 
No
b
Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?
5b
 
No
c
If “Yes,” to line 5a or 5b, did the organization file Form 8886-T? ............
5c
 
 
6a
Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions?...
6a
 
No
b
If “Yes,” did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible?........................
6b
 
 
7
Organizations that may receive deductible contributions under section 170(c).
a
Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor?....................
7a
Yes
 
b
If “Yes,” did the organization notify the donor of the value of the goods or services provided?.....
7b
Yes
 
c
Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282?...........................
7c
 
No
d
If “Yes,” indicate the number of Forms 8282 filed during the year ....
7d
 
e
Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?............................
7e
 
No
f
Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract?..
7f
 
No
g
If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required?............................
7g
 
 
h
If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C?..........................
7h
 
 
8
Sponsoring organizations maintaining donor advised funds and section 509(a)(3) supporting organizations. Did the supporting organization, or a donor advised fund maintained by a sponsoring organization, have excess business holdings at any time during the year?............
8
 
 
9
Sponsoring organizations maintaining donor advised funds.
a
Did the organization make any taxable distributions under section 4966?..........
9a
 
 
b
Did the organization make a distribution to a donor, donor advisor, or related person?.......
9b
 
 
10
Section 501(c)(7) organizations. Enter:
a
Initiation fees and capital contributions included on Part VIII, line 12 ...
10a
 
b
Gross receipts, included on Form 990, Part VIII, line 12, for public use of club facilities
10b
 
11
Section 501(c)(12) organizations. Enter:
a
Gross income from members or shareholders .........
11a
 
b
Gross income from other sources (Do not net amounts due or paid to other sources against amounts due or received from them.) ..........
11b
 
12a
Section 4947(a)(1) non-exempt charitable trusts. Is the organization filing Form 990 in lieu of Form 1041?
12a
 
 
b
If “Yes,” enter the amount of tax-exempt interest received or accrued during the year. ....................
12b
 
13
Section 501(c)(29) qualified nonprofit health insurance issuers.
a
Is the organization licensed to issue qualified health plans in more than one state?
Note. See the instructions for additional information the organization must report on Schedule O.
13a
 
 
b
Enter the amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans ....
13b
 
c
Enter the amount of reserves on hand ............
13c
 
14a
Did the organization receive any payments for indoor tanning services during the tax year?.....
14a
 
No
b
If "Yes," has it filed a Form 720 to report these payments? If “No,” provide an explanation in Schedule O..
14b
 
 
Form 990 (2012)
Form 990 (2012)
Page 6
Part VI
Governance, Management, and Disclosure For each “Yes” response to lines 2 through 7b below, and for a “No” response to lines 8a, 8b, or 10b below, describe the circumstances, processes, or changes in Schedule O. See instructions.
Check if Schedule O contains a response to any question in this Part VI ...............
Section A. Governing Body and Management
Yes
No
1a
Enter the number of voting members of the governing body at the end of the tax year .....................
1a
38
If there are material differences in voting rights among members of the governing body, or if the governing body delegated broad authority to an executive committee or similar committee, explain in Schedule O.
b
Enter the number of voting members included in line 1a, above, who are independent ...................
1b
38
2
Did any officer, director, trustee, or key employee have a family relationship or a business relationship with any other officer, director, trustee, or key employee? .................
2
 
No
3
Did the organization delegate control over management duties customarily performed by or under the direct supervision of officers, directors or trustees, or key employees to a management company or other person? .
3
 
No
4
Did the organization make any significant changes to its governing documents since the prior Form 990 was filed? ...........................
4
 
No
5
Did the organization become aware during the year of a significant diversion of the organization’s assets? .
5
 
No
6
Did the organization have members or stockholders? ................
6
 
No
7a
Did the organization have members, stockholders, or other persons who had the power to elect or appoint one or more members of the governing body? ....................
7a
 
No
b
Are any governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or persons other than the governing body? ...................
7b
 
No
8
Did the organization contemporaneously document the meetings held or written actions undertaken during the year by the following:
a
The governing body? .........................
8a
Yes
 
b
Each committee with authority to act on behalf of the governing body? ............
8b
Yes
 
9
Is there any officer, director, trustee, or key employee listed in Part VII, Section A, who cannot be reached at the organization’s mailing address? If “Yes,” provide the names and addresses in Schedule O.......
9
 
No
Section B. Policies (This Section B requests information about policies not required by the Internal Revenue Code.)
Yes
No
10a
Did the organization have local chapters, branches, or affiliates? ............
10a
Yes
 
b
If “Yes,” did the organization have written policies and procedures governing the activities of such chapters, affiliates, and branches to ensure their operations are consistent with the organization's exempt purposes?
10b
Yes
 
11a
Has the organization provided a complete copy of this Form 990 to all members of its governing body before filing the form? ............................
11a
Yes
 
b
Describe in Schedule O the process, if any, used by the organization to review this Form 990. .....
12a
Did the organization have a written conflict of interest policy? If “No,” go to line 13.......
12a
Yes
 
b
Were officers, directors, or trustees, and key employees required to disclose annually interests that could give rise to conflicts? ..........................
12b
Yes
 
c
Did the organization regularly and consistently monitor and enforce compliance with the policy? If “Yes,” describe in Schedule O how this was done.......................
12c
Yes
 
13
Did the organization have a written whistleblower policy? ...............
13
Yes
 
14
Did the organization have a written document retention and destruction policy? .........
14
Yes
 
15
Did the process for determining compensation of the following persons include a review and approval by independent persons, comparability data, and contemporaneous substantiation of the deliberation and decision?
a
The organization’s CEO, Executive Director, or top management official ...........
15a
Yes
 
b
Other officers or key employees of the organization ................
15b
Yes
 
If "Yes" to line 15a or 15b, describe the process in Schedule O (see instructions).
16a
Did the organization invest in, contribute assets to, or participate in a joint venture or similar arrangement with a taxable entity during the year? ......................
16a
 
No
b
If “Yes,” did the organization follow a written policy or procedure requiring the organization to evaluate its participation in joint venture arrangements under applicable federal tax law, and take steps to safeguard the organization’s exempt status with respect to such arrangements? ............
16b
 
 
Section C. Disclosure
17
List the States with which a copy of this Form 990 is required to be filedMediumBullet
AL , AK , AZ , AR , CA , CO , CT , DE , DC , FL , GA , IL , IA , KS , KY , ME , MD , MA , MI , MN , MS , MO , NH , NJ , NM , NY , NC , ND , OH , OK , OR , PA , RI , SC , SD , TN , UT , VA , WA , WV , WI
18
Section 6104 requires an organization to make its Form 1023 (or 1024 if applicable), 990, and 990-T (501(c)(3)s only) available for public inspection. Indicate how you made these available. Check all that apply.
19
Describe in Schedule O whether (and if so, how), the organization made its governing documents, conflict of interest policy, and financial statements available to the public during the tax year.
20
State the name, physical address, and telephone number of the person who possesses the books and records of the organization:
MediumBulletRICHARD HOVLAND COOCFO225 N MICHIGAN AVENUEChicagoIL606017633 (312) 335-5771
Form 990 (2012)
Form 990 (2012)
Page 7
Part VII
Compensation of Officers, Directors,Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors
Check if Schedule O contains a response to any question in this Part VII ...............
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
1a Complete this table for all persons required to be listed. Report compensation for the calendar year ending with or within the organization’s tax year.
RoundBullet List all of the organization’s current officers, directors, trustees (whether individuals or organizations), regardless of amount
of compensation. Enter -0- in columns (D), (E), and (F) if no compensation was paid.

RoundBullet List all of the organization’s current key employees, if any. See instructions for definition of "key employee."
RoundBullet List the organization’s five current highest compensated employees (other than an officer, director, trustee or key employee)
who received reportable compensation (Box 5 of Form W-2 and/or Box 7 of Form 1099-MISC) of more than $100,000 from the
organization and any related organizations.

RoundBullet List all of the organization’s former officers, key employees, or highest compensated employees who received more than $100,000
of reportable compensation from the organization and any related organizations.

RoundBullet List all of the organization’s former directors or trustees that received, in the capacity as a former director or trustee of the
organization, more than $10,000 of reportable compensation from the organization and any related organizations.

List persons in the following order: individual trustees or directors; institutional trustees; officers; key employees; highest
compensated employees; and former such persons.
Check this box if neither the organization nor any related organization compensated any current officer, director, or trustee.
(A)
Name and Title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W- 2/1099-MISC) 		(E)
Reportable compensation from related organizations (W- 2/1099-MISC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; Officer; Key Employee; Highest compensated employee; Former;
(1) Gerald Sampson........................................................................
Chair, Exec. Comm., Director
 10.0
.......................   		X   X       0 0 0
(2) Stewart Putnam........................................................................
Vice Chair, Exec. Comm., Dir.
 10.0
.......................   		X   X       0 0 0
(3) Thomas J Winkel........................................................................
Treasurer, Exec. Comm., Dir.
 10.0
.......................   		X   X       0 0 0
(4) Deborah Jones........................................................................
Secretary, Exec. Comm., Dir.
 10.0
.......................   		X   X       0 0 0
(5) Christopher Binkley........................................................................
Director and Exec Committee
 5.0
.......................   		X           0 0 0
(6) R Thomas Bodkin........................................................................
Director and Exec Committee
 5.0
.......................   		X           0 0 0
(7) Bill Buechele........................................................................
Director and Exec Committee
 5.0
.......................   		X           0 0 0
(8) Cathy Edge........................................................................
Director and Exec Committee
 5.0
.......................   		X           0 0 0
(9) Marlana Geha PhD........................................................................
Director and Exec Committee
 5.0
.......................   		X           0 0 0
(10) Ralph A Nixon MD PhD........................................................................
Director and Exec Committee
 5.0
.......................   		X           0 0 0
(11) Ronald Petersen MD PhD........................................................................
Director and Exec Committee
 5.0
.......................   		X           0 0 0
(12) Kimberly Reed........................................................................
Director and Exec Committee
 5.0
.......................   		X                
(13) Electa Anderson........................................................................
DIRECTOR
 5.0
.......................   		X                
(14) Robert K Burke........................................................................
DIRECTOR
 5.0
.......................   		X                
(15) Anna C Catalano........................................................................
DIRECTOR
 5.0
.......................   		X                
(16) Jack Faer........................................................................
DIRECTOR
 5.0
.......................   		X                
(17) Matthew Furman........................................................................
DIRECTOR
 5.0
.......................   		X                
Form 990 (2012)
Form 990 (2012)
Page 8
Part VII
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (continued)
(A)
Name and Title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W- 2/1099-MISC) 		(E)
Reportable compensation from related organizations (W- 2/1099-MISC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; Officer; Key Employee; Highest compensated employee; Former;
(18) Deborah Garrett........................................................................
DIRECTOR
 5.0
.......................   		X                
(19) Elizabeth Gelfand Stearns........................................................................
DIRECTOR
 5.0
.......................   		X                
(20) David Goltermann........................................................................
DIRECTOR
 5.0
.......................   		X                
(21) Louis Holland Jr........................................................................
DIRECTOR
 5.0
.......................   		X                
(22) Verna Jones-Rodwell........................................................................
DIRECTOR
 5.0
.......................   		X                
(23) Karen Kauffman PhD CRNP BC........................................................................
DIRECTOR
 5.0
.......................   		X                
(24) Jacqueline Kouri........................................................................
DIRECTOR
 5.0
.......................   		X                
(25) John E Maggio PhD........................................................................
DIRECTOR
 5.0
.......................   		X                
(26) Jeffrey Maloney........................................................................
DIRECTOR
 5.0
.......................   		X                
(27) Bonnie H Marcus........................................................................
Director and Exec Committee
 5.0
.......................   		X                
(28) David Moscow........................................................................
DIRECTOR
 5.0
.......................   		X                
(29) Margaret Noel MD........................................................................
DIRECTOR
 5.0
.......................   		X                
(30) Patrick Peyton........................................................................
DIRECTOR
 5.0
.......................   		X                
(31) Deborah A Randall Esq........................................................................
DIRECTOR
 5.0
.......................   		X                
(32) Scott Russell EdD........................................................................
DIRECTOR
 5.0
.......................   		X                
(33) David Simbro........................................................................
Director
 5.0
.......................   		X                
(34) Alan Silverglat........................................................................
Director
 5.0
.......................   		X                
(35) Suzanne B Swift........................................................................
DIRECTOR
 5.0
.......................   		X                
(36) Carl E Tuerk Jr........................................................................
DIRECTOR
 5.0
.......................   		X                
(37) Paul Wexler........................................................................
Director
 5.0
.......................   		X                
(38) Jerome H Stone........................................................................
Founding Pres, Honorary Chair
 5.0
.......................   		X                
(39) Edward Berube........................................................................
Chair (THRU 10/6/12)
 10.0
.......................   		X   X            
(40) Mary Guerriero Austrom PhD........................................................................
Secretary (THRU 10/6/12)
 10.0
.......................   		X   X            
(41) John Osher........................................................................
Dir & Exec Comm (THRU 10/6/12)
 5.0
.......................   		X                
(42) John Sabl........................................................................
Dir & Exec Comm (THRU 10/6/12)
 5.0
.......................   		X                
(43) Richard Della Penna MD........................................................................
Director (THRU 1/4/13)
 5.0
.......................   		X                
(44) Colleen Goldhammer Benzin........................................................................
Director (THRU 10/6/12)
 5.0
.......................   		X                
(45) Stephen Hume PsyD........................................................................
Director (THRU 10/6/12)
 5.0
.......................   		X                
(46) Linda Mendelson........................................................................
Director (THRU 10/6/12)
 5.0
.......................   		X                
(47) Manny Najera........................................................................
Director (THRU 6/5/13)
 5.0
.......................   		X                
(48) Ron Profili........................................................................
Director (THRU 4/1/13)
 5.0
.......................   		X                
(49) Shellie N Williams MD........................................................................
Director (THRU 5/17/13)
 5.0
.......................   		X                
(50) Harry Johns........................................................................
PRESIDENT & CEO
 60.0
.......................1.7 		    X       2,700,754 30,262 78,658
(51) Richard Hovland........................................................................
COO/CFO
 60.0
........................1 		    X       364,855 271 89,777
(52) Angela Geiger........................................................................
CHIEF STRATEGY OFFICER
 60.0
........................1 		      X     672,327 107 47,185
(53) William Thies........................................................................
CHIEF MEDICAL SCIENCE OFFICER
 60.0
.......................   		        X   339,155 0 50,094
(54) Robert Egge........................................................................
VP - Public Policy
 60.0
.......................1.4 		        X   306,180 12,418 56,308
(55) Scott Gardner........................................................................
VP - CHAPTER RELATIONS
 60.0
.......................   		        X   261,088 0 39,989
(56) Paula Pelissero........................................................................
Sr. Director, Human Resources
 55.0
.......................   		        X   191,285 0 23,805
(57) Maria Carrillo........................................................................
VP Medical & Scientific Rel
 60.0
.......................   		        X   183,998 0 29,100
1b Sub-Total................MediumBullet
c Total from continuation sheets to Part VII, Section A....MediumBullet
d Total (add lines 1b and 1c)............MediumBullet 5,019,642 43,058 414,916
2
Total number of individuals (including but not limited to those listed above) who received more than $100,000 of reportable compensation from the organizationMediumBullet64
Yes
No
3
Did the organization list any former officer, director or trustee, key employee, or highest compensated employee on line 1a? If “Yes,” complete Schedule J for such individual ..............
3
 
No
4
For any individual listed on line 1a, is the sum of reportable compensation and other compensation from the organization and related organizations greater than $150,000? If “Yes,” complete Schedule J for such individual...........................
4
Yes
 
5
Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services rendered to the organization? If “Yes,” complete Schedule J for such person ........
5
 
No
Section B. Independent Contractors
1
Complete this table for your five highest compensated independent contractors that received more than $100,000 of compensation from the organization. Report compensation for the calendar year ending with or within the organization’s tax year.
(A)
Name and business address 		(B)
Description of services 		(C)
Compensation
TG Madison, 3340 Peachtree Rd NE Ste 2850ATLANTAGA30326 Communication Serv. 10,005,537
Alaniz, 425 N Iris StreetMT PLEASANTIA52641 Print/Letter Shop 7,182,215
Web Mason, P O Box 62414BALTIMOREMD21264 Print/Letter Shop 1,837,055
RR Donnelly, PO Box 93514CHICAGOIL60673 Print/Letter Shop 1,542,934
Michigan Avenue Plaza, PO Box 88181 Expedite WayCHICAGOIL60695 Realtor 1,475,299
2
Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization MediumBullet110
Form 990 (2012)
Form 990 (2012)
Page 9
Part VIII
Statement of Revenue
Check if Schedule O contains a response to any question in this Part VIII ..............
(A)
Total revenue 		(B)
Related or
exempt
function
revenue 		(C)
Unrelated
business
revenue 		(D)
Revenue
excluded from
tax under sections
512, 513, or 514
Contributions, Gifts, Grants and Other Similar Amounts 1a Federated campaigns..1a  
b Membership dues....1b 151,000
c Fundraising events....1c 641,055
d Related organizations...1d  
e Government grants (contributions)1e 2,359,140
f All other contributions, gifts, grants, and
similar amounts not included above1f 		105,795,592
g Noncash contributions included in lines
1a-1f:$ 		2,238,452
h Total. Add lines 1a-1f.......MediumBullet 108,946,787
Program Service Revenue Business Code
2a PROGRAM CONFERENCES 611710 3,146,813 3,146,813    
b JOURNAL 511120 164,662 164,662    
c SAFE RETURN REGISTRATION FEES 611710 139,137 139,137    
d CAREGIVER TRAINING 611710 138,944 138,944    
e
f All other program service revenue .        
g Total. Add lines 2a–2f........MediumBullet 3,589,556
Other Revenue 3 Investment income (including dividends, interest, and other similar amounts).......MediumBullet 2,340,586     2,340,586
4 Income from investment of tax-exempt bond proceeds..MediumBullet 0      
5 Royalties...........MediumBullet 36,151     36,151
(i) Real (ii) Personal
6a Gross rents    
b Less: rental expenses    
c Rental income or (loss) 0 0
d Net rental income or (loss).......MediumBullet 0      
(i) Securities (ii) Other
7a Gross amount from sales of assets other than inventory 23,184,568 0
b Less: cost or other basis and sales expenses 23,252,145 1,895
c Gain or (loss) -67,577 -1,895
d Net gain or (loss)..........MediumBullet -69,472     -69,472
8a Gross income from fundraising events (not including
$ 641,055
of contributions reported on line 1c). See Part IV, line 18 ..
a 2,656,793
b Less: direct expenses ...b 1,107,800
c Net income or (loss) from fundraising events..MediumBullet 1,548,993   1,548,993
9a Gross income from gaming activities.
See Part IV, line 19 ...
a 44,390
b Less: direct expenses ...b 4,945
c Net income or (loss) from gaming activities...MediumBullet 39,445     39,445
10a Gross sales of inventory, less
returns and allowances .
a 824,173
b Less: cost of goods sold ..b 618,294
c Net income or (loss) from sales of inventory..MediumBullet 205,879 57,954   147,925
Miscellaneous Revenue Business Code
11a AFFILIATE REVENUE 900099 1,196,319     1,196,319
b CHAPTER LICENSING AND MAINTENANCE 900099 692,056     692,056
c OTHER REVENUE 900099 504,429     504,429
d All other revenue ....        
e Total. Add lines 11a–11d ...... MediumBullet 2,392,804
12 Total revenue. See Instructions......MediumBullet 119,030,729 3,647,510   6,436,432
Form 990 (2012)
Form 990 (2012)
Page 10
Part IX
Statement of Functional Expenses
Section 501(c)(3) and 501(c)(4) organizations must complete all columns. All other organizations must complete column (A).Check if Schedule O contains a response to any question in this Part IX ...............
Do not include amounts reported on lines 6b,
7b, 8b, 9b, and 10b of Part VIII. 		(A)
Total expenses 		(B)
Program service expenses 		(C)
Management and general expenses 		(D)
Fundraising expenses
1 Grants and other assistance to governments and organizations in the United States. See Part IV, line 21 15,343,512 15,343,512
2 Grants and other assistance to individuals in the United States. See Part IV, line 22 0  
3 Grants and other assistance to governments, organizations, and individuals outside the United States. See Part IV, lines 15 and 16 1,393,457 1,393,457
4 Benefits paid to or for members 0  
5 Compensation of current officers, directors, trustees, and key employees .... 3,984,196 2,348,467 920,361 715,368
6 Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .... 0      
7 Other salaries and wages 24,932,077 18,357,704 1,007,821 5,566,552
8 Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) .... 4,366,240 3,162,760 267,768 935,712
9 Other employee benefits ....... 2,382,391 1,728,171 185,076 469,144
10 Payroll taxes ........... 284,242 219,034 15,061 50,147
11 Fees for services (non-employees):        
a Management ...... 0      
b Legal ......... 247,168 141,364 17,487 88,317
c Accounting ........... 131,376 101,162 16,606 13,608
d Lobbying ........... 0      
e Professional fundraising services. See Part IV, line 17 140,283 140,283
f Investment management fees ...... 111,685 111,685    
g Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O) ........ 11,393,256 6,041,391 810,066 4,541,799
12 Advertising and promotion .... 10,935,861 10,834,430   101,431
13 Office expenses ....... 19,680,728 12,306,627 3,343,274 4,030,827
14 Information technology ...... 271,647 237,809 6,543 27,295
15 Royalties .. 0      
16 Occupancy ........... 5,797,279 4,949,877 178,483 668,919
17 Travel ............ 5,911,565 4,593,631 77,590 1,240,344
18 Payments of travel or entertainment expenses for any federal, state, or local public officials ...... 0      
19 Conferences, conventions, and meetings .... 988,561 823,006 14,121 151,434
20 Interest ........... 0      
21 Payments to affiliates ....... 0      
22 Depreciation, depletion, and amortization ..... 933,396 686,243 80,659 166,494
23 Insurance .............. 132,948 110,611 4,264 18,073
24 Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a INVENTORY BUY BACK EXPENSE 14,791 14,791    
b .        
c .        
d .        
e All other expenses 245,612 41,426 17,229 186,957
25 Total functional expenses. Add lines 1 through 24e 109,622,271 83,547,158 6,962,409 19,112,704
26 Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here MediumBullet if following SOP 98-2 (ASC 958-720). 15,082,597 8,831,475 2,475,201 3,775,921
Form 990 (2012)
Form 990 (2012)
Page 11
Part X Balance Sheet Check if Schedule O contains a response to any question in this Part X ...............
(A)
Beginning of year 		(B)
End of year
Assets 1 Cash—non-interest-bearing ............. 0 1 0
2 Savings and temporary cash investments ......... 11,693,107 2 20,099,316
3 Pledges and grants receivable, net ........... 17,180,305 3 16,003,666
4 Accounts receivable, net ............. 16,708,937 4 26,978,835
5 Loans and other receivables from current and former officers, directors, trustees, key employees, and highest compensated employees. Complete Part II of
Schedule L ..................
0 5 0
6 Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), persons described in section 4958(c)(3)(B), and contributing employers and sponsoring organizations of section 501(c)(9) voluntary employees' beneficiary organizations (see instructions) Complete Part II of Schedule L
0 6 0
7 Notes and loans receivable, net ............. 493,120 7 947,586
8 Inventories for sale or use .............. 328,464 8 303,947
9 Prepaid expenses and deferred charges .......... 6,120,978 9 6,372,636
10a Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D 10a 18,816,440
b Less: accumulated depreciation ..... 10b 13,009,359 3,480,738 10c 5,807,081
11 Investments—publicly traded securities .......... 54,744,000 11 47,313,443
12 Investments—other securities. See Part IV, line 11 ..... 12,008,956 12 14,660,450
13 Investments—program-related. See Part IV, line 11 ..... 0 13 0
14 Intangible assets ............... 0 14 0
15 Other assets. See Part IV, line 11 ........... 0 15 0
16 Total assets. Add lines 1 through 15 (must equal line 34)...... 122,758,605 16 138,486,960
Liabilities 17 Accounts payable and accrued expenses ......... 6,929,664 17 7,485,089
18 Grants payable ................. 22,525,567 18 23,356,557
19 Deferred revenue ................ 2,479,892 19 2,795,357
20 Tax-exempt bond liabilities ............. 0 20 0
21 Escrow or custodial account liability. Complete Part IV of Schedule D.. 0 21 0
22 Loans and other payables to current and former officers, directors, trustees, key employees, highest compensated employees, and disqualified
persons. Complete Part II of Schedule L.......... 0 22 0
23 Secured mortgages and notes payable to unrelated third parties .. 0 23 0
24 Unsecured notes and loans payable to unrelated third parties .... 0 24 0
25 Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17-24). Complete Part X of Schedule D.................... 20,183,907 25 20,260,962
26 Total liabilities. Add lines 17 through 25......... 52,119,030 26 53,897,965
Net Assets or Fund Balance Organizations that follow SFAS 117 (ASC 958), check here MediumBullet and complete lines 27 through 29, and lines 33 and 34.
27 Unrestricted net assets .............. 26,593,123 27 34,866,162
28 Temporarily restricted net assets ........... 21,875,658 28 24,811,186
29 Permanently restricted net assets ........... 22,170,794 29 24,911,647
Organizations that do not follow SFAS 117 (ASC 958), check here MediumBullet and complete lines 30 through 34.
30 Capital stock or trust principal, or current funds ........   30  
31 Paid-in or capital surplus, or land, building or equipment fund .....   31  
32 Retained earnings, endowment, accumulated income, or other funds   32  
33 Total net assets or fund balances ........... 70,639,575 33 84,588,995
34 Total liabilities and net assets/fund balances ........ 122,758,605 34 138,486,960
Form 990 (2012)
Form 990 (2012)
Page 12
Part XI
Reconcilliation of Net Assets
Check if Schedule O contains a response to any question in this Part XI ...............
1
Total revenue (must equal Part VIII, column (A), line 12) ............
1
119,030,729
2
Total expenses (must equal Part IX, column (A), line 25) ............
2
109,622,271
3
Revenue less expenses. Subtract line 2 from line 1 ..............
3
9,408,458
4
Net assets or fund balances at beginning of year (must equal Part X, line 33, column (A)) ..
4
70,639,575
5
Net unrealized gains (losses) on investments ...............
5
3,180,022
6
Donated services and use of facilities .................
6
 
7
Investment expenses .....................
7
 
8
Prior period adjustments .....................
8
 
9
Other changes in net assets or fund balances (explain in Schedule O) ........
9
1,360,940
10
Net assets or fund balances at end of year. Combine lines 3 through 9 (must equal Part X, line 33, column (B))
10
84,588,995
Part XII
Financial Statements and Reporting
Check if Schedule O contains a response to any question in this Part XII ..............
Yes
No
1
Accounting method used to prepare the Form 990:  
If the organization changed its method of accounting from a prior year or checked "Other," explain in
Schedule O.
2a
Were the organization’s financial statements compiled or reviewed by an independent accountant?
2a
 
No
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were compiled or reviewed on a separate basis, consolidated basis, or both:
b
Were the organization’s financial statements audited by an independent accountant?
2b
Yes
 
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were audited on a separate basis, consolidated basis, or both:
c
If “Yes,” to line 2a or 2b, does the organization have a committee that assumes responsibility for oversight of the audit, review, or compilation of its financial statements and selection of an independent accountant?
2c
Yes
 
If the organization changed either its oversight process or selection process during the tax year, explain in Schedule O.
3a
As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Single Audit Act and OMB Circular A-133?
3a
Yes
 
b
If “Yes,” did the organization undergo the required audit or audits? If the organization did not undergo the required audit or audits, explain why in Schedule O and describe any steps taken to undergo such audits
3b
Yes
 
Form 990 (2012)
Form 990, Special Condition Description:
Special Condition Description
Additional Data


Software ID:  
Software Version:  
SCHEDULE A
(Form 990 or 990EZ)

Department of the Treasury
Internal Revenue Service
Public Charity Status and Public Support

Complete if the organization is a section 501(c)(3) organization or a section
4947(a)(1) nonexempt charitable trust.
right arrow Attach to Form 990 or Form 990-EZ. right arrow See separate instructions.
OMB No. 1545-0047
2012
Open to Public
Inspection
Name of the organization
Alzheimer's Disease & Related Disorders
Association Inc
Employer identification number

13-3039601
Part I
Reason for Public Charity Status (All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 11, check only one box.)
1
2
3
4
5
section 170(b)(1)(A)(iv). (Complete Part II.)
6
7
8
9
receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of
its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses
acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)
10
11
e
f
g
(i) A person who directly or indirectly controls, either alone or together with persons described in (ii)
Yes
No
and (iii) below, the governing body of the supported organization? ................
11g(i)
 
 
(ii) A family member of a person described in (i) above? ......................
11g(ii)
 
 
(iii) A 35% controlled entity of a person described in (i) or (ii) above? ................
11g(iii)
 
 
h
Provide the following information about the supported organization(s).
(i) Name of supported organization (ii) EIN (iii) Type of organization (described on lines 1- 9 above or IRC section (see instructions)) (iv) Is the organization in col. (i) listed in your governing document? (v) Did you notify the organization in col. (i) of your support? (vi) Is the organization in col. (i) organized in the U.S.? (vii) Amount of monetary support
Yes No Yes No Yes No
Total                  

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990EZ.
Cat. No. 11285F
Schedule A (Form 990 or 990-EZ) 2012
Schedule A (Form 990 or 990-EZ) 2012
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization fails to qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2008 (b) 2009 (c) 2010 (d) 2011 (e) 2012 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .... 78,177,850 75,805,366 86,383,096 92,496,080 108,946,787 441,809,179
2 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.......           0
3 The value of services or facilities furnished by a governmental unit to the organization without charge..           0
4 Total. Add lines 1 through 3 78,177,850 75,805,366 86,383,096 92,496,080 108,946,787 441,809,179
5 The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f)..           10,623,374
6 Public support. Subtract line 5 from line 4.           431,185,805
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2008 (b) 2009 (c) 2010 (d) 2011 (e) 2012 (f) Total
7 Amounts from line 4.. 78,177,850 75,805,366 86,383,096 92,496,080 108,946,787 441,809,179
8 Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... 3,077,704 1,969,538 2,154,572 2,076,055 2,376,737 11,654,606
9 Net income from unrelated business activities, whether or not the business is regularly carried on..           0
10 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.).. 607,419 2,610,156 4,921,675 6,683,529 5,918,160 20,740,939
11 Total support (Add lines 7 through 10).           474,204,724
12
12
21,608,928
13
First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization, check this box and stop here........................................right arrow
Section C. Computation of Public Support Percentage
14
14
90.928 %
15
15
92.570 %
16a
b
17a
b
18
Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow
Schedule A (Form 990 or 990-EZ) 2012
Schedule A (Form 990 or 990-EZ) 2012
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 9 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2008 (b) 2009 (c) 2010 (d) 2011 (e) 2012 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .            
2 Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose......            
3 Gross receipts from activities that are not an unrelated trade or business under section 513..            
4 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...            
5 The value of services or facilities furnished by a governmental unit to the organization without charge..            
6 Total. Add lines 1 through 5.            
7a Amounts included on lines 1, 2, and 3 received from disqualified persons...            
b Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.            
c Add lines 7a and 7b..            
8 Public support (Subtract line 7c from line 6.)            
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2008 (b) 2009 (c) 2010 (d) 2011 (e) 2012 (f) Total
9 Amounts from line 6...            
10a Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..            
b Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.            
c Add lines 10a and 10b.            
11 Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.            
12 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.) ..            
13 Total support. (Add lines 9, 10c, 11, and 12.)..            
14
Section C. Computation of Public Support Percentage
15
15
0 %
16
16
 
Section D. Computation of Investment Income Percentage
17
17
 
18
18
 
19a
b
20
Schedule A (Form 990 or 990-EZ) 2012
Schedule A (Form 990 or 990-EZ) 2012
Page 4
Part IV
Supplemental Information. Complete this part to provide the explanations required by Part II, line 10; Part II, line 17a or 17b; and Part III, line 12. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
 
Explanation
 
 
 
 
Schedule A (Form 990 or 990-EZ) 2012

Additional Data


Software ID:  
Software Version:  
Schedule B
(Form 990, 990-EZ,
or 990-PF)
Department of the Treasury
Internal Revenue Service
Schedule of Contributors
Arrow Bullet Attach to Form 990, 990-EZ, or 990-PF.
OMB No. 1545-0047
2012
Name of the organization
Alzheimer's Disease & Related Disorders
Association Inc
Employer identification number

13-3039601
Organization type (check one):
Filers of:
Section:
Form 990 or 990-EZ





Form 990-PF




Check if your organization is covered by the General Rule or a Special Rule.  
Note. Only a section 501(c)(7), (8), or (10) organization can check boxes for both the General Rule and a Special Rule. See instructions.
General Rule
Special Rules
......................... Arrow Bullet   $    
Caution. An organization that is not covered by the General Rule and/or the Special Rules does not file Schedule B (Form 990,
990-EZ, or 990-PF), but it must answer “No” on Part IV, line 2 of its Form 990; or check the box on line H of its
Form 990-EZ or on Part I, line 2 of its Form 990-PF, to certify that it does not meet the filing requirements of Schedule B (Form 990,
990-EZ, or 990-PF).
For Paperwork Reduction Act Notice, see the Instructions
for Form 990, 990-EZ, or 990-PF.
Cat. No. 30613XSchedule B (Form 990, 990-EZ, or 990-PF) (2012)

Schedule B (Form 990, 990-EZ, or 990-PF) (2012)
Page 2
Name of organization
Alzheimer's Disease & Related Disorders
Association Inc 		Employer identification number

13-3039601
Part I
Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
     
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
RESTRICTED
RESTRICTED
 

     
RESTRICTED
RESTRICTED  
RESTRICTED, RESTRICTED   RESTRICTED

$RESTRICTED


(Complete Part II if there is a noncash contribution.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 

     
 
   

$  


(Complete Part II if there is a noncash contribution.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 

     
 
   

$  


(Complete Part II if there is a noncash contribution.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 

     
 
   

$  


(Complete Part II if there is a noncash contribution.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 

     
 
   

$  


(Complete Part II if there is a noncash contribution.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 

     
 
   

$  


(Complete Part II if there is a noncash contribution.)
Schedule B (Form 990, 990-EZ, or 990-PF) (2012)

Schedule B (Form 990, 990-EZ, or 990-PF) (2012)
Page 3
Name of organization
Alzheimer's Disease & Related Disorders
Association Inc 		Employer identification number

13-3039601
Part II
Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
     
(a) No.
from
Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(see instructions) 		(d)
Date received
 
$    
(a) No.
from
Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(see instructions) 		(d)
Date received
 
$    
(a) No.
from
Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(see instructions) 		(d)
Date received
 
$    
(a) No.
from
Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(see instructions) 		(d)
Date received
 
$    
(a) No.
from
Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(see instructions) 		(d)
Date received
 
$    
(a) No.
from
Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(see instructions) 		(d)
Date received
 
$    
Schedule B (Form 990, 990-EZ, or 990-PF) (2012)

Schedule B (Form 990, 990-EZ, or 990-PF) (2012)
Page 4
Name of organization
Alzheimer's Disease & Related Disorders
Association Inc 		Employer identification number

13-3039601
Part III
Exclusively religious, charitable, etc., individual contributions to section 501(c)(7), (8), or (10) organizations
that total more than $1,000 for the year. Complete columns (a) through (e) and the following line entry.
For organizations completing Part III, enter the total of exclusively religious, charitable, etc.,
contributions of $1,000 or less for the year. (Enter this information once. See instructions.) Arrow Bullet$  
Use duplicate copies of Part III if additional space is needed.
(a) No.
from
Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
       
 
(a) No.
from
Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
       
 
(a) No.
from
Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
       
 
(a) No.
from
Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
       
 
Schedule B (Form 990, 990-EZ, or 990-PF) (2012)

Additional Data


Software ID:  
Software Version:  
SCHEDULE C
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service
Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527
SchCMd Bullet Complete if the organization is described below.SchCMd Bullet Attach to Form 990 or Form 990-EZ.
SchCMd Bullet See separate instructions.
OMB No. 1545-0047
2012
Open to Public
Inspection
If the organization answered “Yes” to Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet Section 527 organizations: Complete Part I-A only.
If the organization answered “Yes” to Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered “Yes” to Form 990, Part IV, Line 5 (Proxy Tax) or Form 990-EZ, Part V, line 35c (Proxy Tax), then
Round Bullet Section 501(c)(4), (5), or (6) organizations: Complete Part III.
Name of the organization
Alzheimer's Disease & Related Disorders
Association Inc
Employer identification number

13-3039601
Part I-A
Complete if the organization is exempt under section 501(c) or is a section 527 organization.

1
Provide a description of the organization’s direct and indirect political campaign activities in Part IV.
2
Political expenditures ....................................SchCMd Bullet
$  
3
Volunteer hours ........................................
 

Part I-B
Complete if the organization is exempt under section 501(c)(3).
1
Enter the amount of any excise tax incurred by the organization under section 4955 .........SchCMd Bullet
$  
2
Enter the amount of any excise tax incurred by organization managers under section 4955 ......SchCMd Bullet
$  
3
If the organization incurred a section 4955 tax, did it file Form 4720 for this year? ..............
4a
Was a correction made? .........................................
b
If "Yes," describe in Part IV.
Part I-C
Complete if the organization is exempt under section 501(c), except section 501(c)(3).
1
Enter the amount directly expended by the filing organization for section 527 exempt function activities SchCMd Bullet
$  
2
Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ...................................SchCMd Bullet

$  
3
Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b..SchCMd Bullet

$  
4
Did the filing organization file Form 1120-POL for this year? ..........................
5
Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.
(a) Name (b) Address (c) EIN (d) Amount paid from filing organization's funds. If none, enter -0-. (e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.










For Paperwork Reduction Act Notice, see the instructions for Form 990 or 990-EZ.
Cat. No. 50084S
Schedule C (Form 990 or 990-EZ) 2012

Schedule C (Form 990 or 990-EZ) 2012
Page 2
Part II-A
Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).
A Check SchCMd Bulletexpenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet
Limits on Lobbying Expenditures
(The term "expenditures" means amounts paid or incurred.) 		(a) Filing
organization's
totals 		(b) Affiliated group
totals
1a Total lobbying expenditures to influence public opinion (grass roots lobbying) ......    
b Total lobbying expenditures to influence a legislative body (direct lobbying) .......    
c Total lobbying expenditures (add lines 1a and 1b) ...................    
d Other exempt purpose expenditures ........................    
e Total exempt purpose expenditures (add lines 1c and 1d) ...............    
f Lobbying nontaxable amount. Enter the amount from the following table in both
columns.		    
  If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:    
  Not over $500,00020% of the amount on line 1e.    
  Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.    
  Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.    
  Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.    
  Over $17,000,000$1,000,000.    
       
g Grassroots nontaxable amount (enter 25% of line 1f) .................    
h Subtract line 1g from line 1a. If zero or less, enter -0-. ................    
i Subtract line 1f from line 1c. If zero or less, enter -0-. ................    
j If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting
section 4911 tax for this year? ......................................

4-Year Averaging Period Under Section 501(h)
(Some organizations that made a section 501(h) election do not have to complete all of the five
columns below. See the instructions for lines 2a through 2f on page 4.)
Lobbying Expenditures During 4-Year Averaging Period
  Calendar year (or fiscal year
beginning in) 		(a) 2009 (b) 2010 (c) 2011 (d) 2012 (e) Total
             
2a Lobbying nontaxable amount          
             
b Lobbying ceiling amount
(150% of line 2a, column(e)) 		         
             
c Total lobbying expenditures          
             
d Grassroots nontaxable amount          
             
e Grassroots ceiling amount
(150% of line 2d, column (e))		          
             
f Grassroots lobbying expenditures          
Schedule C (Form 990 or 990-EZ) 2012


Schedule C (Form 990 or 990-EZ) 2012
Page 3
Part II-B
Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).
For each “Yes” response to lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.
(a)
No
Yes
(b)
Amount
1
During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:
a
Volunteers? .........................................
Yes
 
b
Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ....
Yes
 
c
Media advertisements? ....................................
Yes
 
156,323
d
Mailings to members, legislators, or the public? .........................
Yes
 
547
e
Publications, or published or broadcast statements? .......................
Yes
 
 
f
Grants to other organizations for lobbying purposes? .......................
 
No
 
g
Direct contact with legislators, their staffs, government officials, or a legislative body? ........
Yes
 
336,000
h
Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ......
Yes
 
226,527
i
Other activities? ..........................
 
No
 
j
Total. Add lines 1c through 1i ...............................
719,397
2a
Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....
 
No
b
If "Yes," enter the amount of any tax incurred under section 4912 .................
 
c
If "Yes," enter the amount of any tax incurred by organization managers under section 4912 .....
 
d
If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? .......
 
 
Part III-A
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).
Yes
No
1
Were substantially all (90% or more) dues received nondeductible by members? ................
1
 
 
2
Did the organization make only in-house lobbying expenditures of $2,000 or less? ................
2
 
 
3
Did the organization agree to carry over lobbying and political expenditures from the prior year? ..........
3
 
 
Part III-B
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered “No” OR (b) Part III-A, line 3, is answered “Yes."
1
Dues, assessments and similar amounts from members .....................
1
 
2
Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political
expenses for which the section 527(f) tax was paid).
a
Current year .........................................
2a
 
b
Carryover from last year ....................................
2b
 
c
Total ............................................
2c
 
3
Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .
3
 
4
If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ................................
4
 
5
Taxable amount of lobbying and political expenditures (see instructions) ..............
5
 
Part IV
Supplemental Information
Complete this part to provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, line 2; and Part ll-B, line 1. Also, complete this part for any additional information.
Identifier Return Reference Explanation
Volunteers Schedule C, Part II-B, Line 1a Nearly all of the Association's lobbying is through staff or volunteers. Only a small amount of reportable expenses are incurred for grass roots lobbying. Additionally the association has training to develop and organize chapter based grassroots activities. For fiscal year 2013 these training expenditures were $300,563. As Alzheimer's disease and related dementia, hereafter referred to as Alzheimer's disease, threaten to bankrupt families, businesses and the healthcare system, scientists are coming closer to finding better treatments that could drastically alter the course of the disease. The Alzheimer's Association advocates for public policies aimed at advancing research toward better therapies, detection, methods of prevention and ultimately a cure, as well as for high quality healthcare and long term services and support for people with Alzheimer's and their families. We also advocate for better care for people and families already facing Alzheimer's. More than 500,000 grass roots advocates speak up for the needs and rights of people with Alzheimer's and their families, and help encourage Congress to increase funding for research and care. Policy activities also include collaborating with other organizations to improve quality care and raise awareness of key issues.
Media Advertisements Schedule C, Part II-B, Line 1c Media advertisements were run during the Advocacy Forum.
Mailing to Members, Legislators or the Public Schedule C, Part II-B, Line 1d Mailing costs to distribute Facts and Figures to legislators.
Publications, or Published or Broadcast Statements Schedule C, Part II-B, Line 1e The Association distributed Federal and State Updates approximately 20 times during the year.
Direct Contact Schedule C, Part II-B, Line 1g The Association utilized Appropriation Consultants to make direct contact with legislators.
Schedule C (Form 990 or 990EZ) 2012

Additional Data


Software ID:  
Software Version:  

SCHEDULE D
(Form 990)
Department of the Treasury
Internal Revenue Service
Supplemental Financial Statements
SchDMd Bullet Complete if the organization answered "Yes," to Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b
SchDMd Bullet Attach to Form 990. SchDMd Bullet See separate instructions.
OMB No. 1545-0047
2012
Open to Public Inspection
Name of the organization
Alzheimer's Disease & Related Disorders
Association Inc
Employer identification number

13-3039601
Part I
Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" to Form 990, Part IV, line 6.
(a) Donor advised funds (b) Funds and other accounts
1 Total number at end of year .........    
2 Aggregate contributions to (during year) ...    
3 Aggregate grants from (during year) .....    
4 Aggregate value at end of year ........    
5
Did the organization inform all donors and donor advisors in writing that the assets held in donor advised
funds are the organization's property, subject to the organization's exclusive legal control? ............
6
Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be
used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................
Part II
Conservation Easements. Complete if the organization answered "Yes" to Form 990, Part IV, line 7.
1
Purpose(s) of conservation easements held by the organization (check all that apply).
2
Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.
Held at the End of the Year
a Total number of conservation easements ....................... 2a  
b Total acreage restricted by conservation easements .................. 2b  
c Number of conservation easements on a certified historic structure included in (a) ..... 2c  
d Number of conservation easements included in (c) acquired after 8/17/06, and not on a historic structure listed in the National Register .................... 2d  
3
Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during
the tax year SchDMd Bullet  
4
Number of states where property subject to conservation easement is located SchDMd Bullet  
5
Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and
enforcement of the conservation easements it holds? .............................
6
Staff and volunteer hours devoted to monitoring, inspecting, and enforcing conservation easements during the year
SchDMd Bullet  
7
Amount of expenses incurred in monitoring, inspecting, and enforcing conservation easements during the year
SchDMd Bullet $  
8
Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .......................................
9
In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" to Form 990, Part IV, line 8.
1a
If the organization elected, as permitted under SFAS 116 (ASC 958), not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.
b
If the organization elected, as permitted under SFAS 116 (ASC 958), to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:
(i)
Revenues included in Form 990, Part VIII, line 1 ........................SchDMd Bullet $  
(ii)
Assets included in Form 990, Part X ..............................SchDMd Bullet $  
2
If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under SFAS 116 (ASC 958) relating to these items:
a
Revenues included in Form 990, Part VIII, line 1 ..........................SchDMd Bullet $  
b
Assets included in Form 990, Part X ...............................SchDMd Bullet $  
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 52283D
Schedule D (Form 990) 2012

Schedule D (Form 990) 2012
Page 2
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)
3
Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):
a
d
b
e
 
c
4
Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.
5
During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?........
Part IV
Escrow and Custodial Arrangements. Complete if the organization answered "Yes" to Form 990,
Part IV, line 9, or reported an amount on Form 990, Part X, line 21.
1a
Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................
b
If "Yes," explain the arrangement in Part XIII and complete the following table:
Amount
c Beginning balance ................................. 1c  
d Additions during the year .............................. 1d  
e Distributions during the year ............................. 1e  
f Ending balance ................................... 1f  
2a
Did the organization include an amount on Form 990, Part X, line 21? .....................
b
If “Yes,” explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ........
Part V
Endowment Funds. Complete if the organization answered "Yes" to Form 990, Part IV, line 10.
(a)Current year (b)Prior year b (c)Two years back (d)Three years back (e)Four years back
1a Beginning of year balance .... 11,611,486 11,255,752 9,438,167 8,125,409 9,400,894
b Contributions ........ 333,853 323,701 632,021 117,211 60,401
c Net investment earnings, gains, and losses 709,613 32,033 1,185,564 1,195,547 -1,285,475
d Grants or scholarships .....         50,411
e Other expenditures for facilities
and programs ........ 		         
f Administrative expenses ....          
g End of year balance ...... 12,654,952 11,611,486 11,255,752 9,438,167 8,125,409
2
Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:
a
Board designated or quasi-endowment SchDMd Bullet  
b
Permanent endowment SchDMd Bullet94.145 %
c
Temporarily restricted endowment SchDMd Bullet5.855 %
The percentages in lines 2a, 2b, and 2c should equal 100%.
3a
Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes
No
(i) unrelated organizations ........................
3a(i)
 
No
(ii) related organizations ........................
3a(ii)
 
No
b
If "Yes" to 3a(ii), are the related organizations listed as required on Schedule R? .........
3b
 
 
4
Describe in Part XIII the intended uses of the organization's endowment funds.
Part VI
Land, Buildings, and Equipment. See Form 990, Part X, line 10.
Description of property (a) Cost or other basis (investment) (b)Cost or other basis (other) (c) Accumulated depreciation (d) Book value
1a Land .................   160,000 160,000
b Buildings ................   440,000 11,282 428,718
c Leasehold improvements ............   4,223,870 2,577,464 1,646,406
d Equipment ................   6,121,098 4,887,033 1,234,065
e Other .................   7,871,472 5,533,580 2,337,892
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).).......SchDMdBullet 5,807,081
Schedule D (Form 990) 2012

Schedule D (Form 990) 2012
Page 3
Part VII
Investments—Other Securities. See Form 990, Part X, line 12.
(a) Description of security or category
(including name of security)		 (b)Book value (c) Method of valuation:
Cost or end-of-year market value
(1)Financial derivatives    
(2)Closely-held equity interests    
(3)Other
(A) BENEFICIAL INTERESTS 		14,497,082 F

(B) ASSETS HELD IN TRUST 		163,368 F







Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)Small Bullet 14,660,450
Part VIII
Investments—Program Related. See Form 990, Part X, line 13.
(a) Description of investment type (b) Book value (c) Method of valuation:
Cost or end-of-year market value








Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)Small Bullet  
Part IX
Other Assets. See Form 990, Part X, line 15.
(a) Description (b) Book value








Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........Small Bullet  
Part X
Other Liabilities. See Form 990, Part X, line 25.
1.(a) Description of liability (b) Book value
Federal income taxes 0
DUE TO CHAPTERS 13,778,329
GIFT ANNUITY OBLIGATIONS 4,351,583
DEFFERED RENT 1,967,682
DEFFERED COMPENSATION 163,368





Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)Small Bullet 20,260,962
2. Fin 48 (ASC 740) Footnote. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII .....................................................
Schedule D (Form 990) 2012

Schedule D (Form 990) 2012
Page 4
Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return
1 Total revenue, gains, and other support per audited financial statements ....... 1 126,646,584
2 Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a Net unrealized gains on investments .......... 2a 3,180,022
b Donated services and use of facilities ......... 2b 3,512,568
c Recoveries of prior year grants ........... 2c  
d Other (Describe in Part XIII.) ............ 2d 304,971
e Add lines 2a through 2d ..................... 2e 6,997,561
3 Subtract line 2e from line 1..................... 3 119,649,023
4 Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b . 4a  
b Other (Describe in Part XIII.) ........... 4b -618,294
c Add lines 4a and 4b....................... 4c -618,294
5 Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ...... 5 119,030,729
Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return
1 Total expenses and losses per audited financial statements ........... 1 114,379,293
2 Amounts included on line 1 but not on Form 990, Part IX, line 25:
a Donated services and use of facilities .......... 2a 3,512,568
b Prior year adjustments .............. 2b  
c Other losses ................ 2c  
d Other (Describe in Part XIII.) ............ 2d 1,244,454
e Add lines 2a through 2d...................... 2e 4,757,022
3 Subtract line 2e from line 1..................... 3 109,622,271
4 Amounts included on Form 990, Part IX, line 25, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b .. 4a  
b Other (Describe in Part XIII.) ............ 4b  
c Add lines 4a and 4b....................... 4c  
5 Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ...... 5 109,622,271
Part XIII
Supplemental Information
Complete this part to provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b;
Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.
Identifier Return Reference Explanation
Intended Uses of Endowment Funds Schedule D, Part V, Line 4 Permanently restricted net assets are restricted as investments in perpetuity. The Association's endowment consists only of donor-restricted endowment funds. Net assets associated with the Association's endowment funds are classified and reported based on the existence of donor-imposed restrictions. Donors restrict the earnings of some of the Association's endowment funds to fund the Association's research program. In accordance with donor stipulations, the income generated from these assets is restricted for research (approximately 47%) or not purpose restricted (approximately 53%). The Association accounts for endowment net assets by preserving the fair value of the original gift as of the gift date of the donor-restricted endowment fund absent explicit donor stipulations to the contrary. As a result, the Association classifies as permanently restricted net assets (1) the original value of gifts donated to the permanent endowment, (2) the original value of subsequent gifts to the permanent endowment and (3) accumulations to the permanent endowment made in accordance with the direction of the applicable donor gift instrument at the time the accumulation is added to the endowment fund. The Association considers the following factors in making a determination to appropriate or accumulate donor-restricted endowment funds: 1. The duration and preservation of the fund. 2. The purposes of the Association and the donor-restricted endowment fund. 3. General economic conditions. 4. The possible effects of inflation and deflation. 5. The expected total return from income and the appreciation of investments. 6. Other resources of the Association. 7. The investment policies of the Association. The Association has adopted an investment policy that attempts to provide a predictable stream of funding to programs supported by its endowment while seeking to maintain the purchasing power of the endowment assets. As of June 30, 2013, endowment assets only include those assets of donor-restricted funds that the Association must hold in perpetuity, as the Association does not have any Board-designated endowment funds. Under this policy, as approved by the Board of Directors, the endowment assets are invested in a manner that is intended to provide adequate liquidity, maximizing returns on all funds invested and achieving full employment of all available funds as earning assets. The Association has an active Finance Committee and Investment Sub-Committee that meets regularly to ensure that the objectives of the investment policy are being met, and that the strategies used to meet the objectives are in accordance with the investment policy. The Association's policy is to appropriate spending amounts deemed prudent for donor-restricted funds.
FIN 48 SCHEDULE D, PART X, LINE 2 The Association and the Alzheimer's Impact Movement (AIM) have received favorable determination letters from the Internal Revenue Service, stating that they are exempt from federal income taxes under the provisions of section 501(a) of the Internal Revenue Code of 1986 (IRC), as organizations described in sections 501(c)(3) and 501(c)(4), respectively, except for income taxes pertaining to unrelated business income. Alzheimer's Impact Movement Political Action Committee (AIMPAC) is a political action committee organization exempt from federal taxes under Section 527 of the IRC. The Financial Accounting Standards Board issued guidance that requires tax effects from uncertain tax positions to be recognized in the consolidated financial statements only if the position is more likely than not to be sustained if the position were to be challenged by a taxing authority. Management has determined there are no material uncertain positions that require recognition in the consolidated financial statements and as such, no provision for income taxes is reflected. Additionally, there are no interest or penalties recognized in the consolidated statements of activities or statements of position. Aside from the current year, the tax years ending 2009, 2010 and 2011 are still open to audit for both federal and state purposes.
Reconciliation of Revenue Schedule D, Part XI, Line 2D Change in perpetual trust $881,767 Change in split interest (576,796) TOTAL $304,971
Reconciliation of Revenue Schedule D, Part XI, Line 4B Cost Of Goods Sold $(618,294) TOTAL $(618,294)
Reconciliation of Expenses Schedule D, Part XII, Line 2D Cost of goods sold $618,294 Bad debt 626,160 TOTAL $1,244,454
Schedule D (Form 990) 2012

Additional Data


Software ID:  
Software Version:  




SCHEDULE F(Form 990)
Department of the Treasury
Internal Revenue Service
Statement of Activities Outside the United States
Right pointing arrow large image Complete if the organization answered "Yes" to Form 990,Part IV, line 14b, 15, or 16.Right pointing arrow large image Attach to Form 990. Right pointing arrow large image See separate instructions.
OMB No. 1545-0047
2012
Open to Public Inspection
Name of the organization
Alzheimer's Disease & Related Disorders
Association Inc
Employer identification number

13-3039601
Part I
General Information on Activities Outside the United States. Complete if the organization answered “Yes” to Form 990, Part IV, line 14b.
1
For grantmakers. Does the organization maintain records to substantiate the amount of the grants or
assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used to award
the grants or assistance? ...................................
2
For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of grant funds outside
the United States.
3
Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)
(a) Region (b) Number of offices in the region (c) Number of employees, agents, and independent contractors in region (d) Activities conducted in region (by type) (e.g., fundraising, program services, investments, grants to recipients located in the region) (e) If activity listed in (d) is a program service, describe specific type of
service(s) in region		 (f) Total expenditures
for and investments
in region
East Asia and the Pacific     Program Services Grantmaking 197,668
Europe (Including Iceland and Greenland)     Program Services Grantmaking 583,121
Middle East and North Africa     Program Services Grantmaking 412,754
North America     Program Services Grantmaking 199,914
           
           
           
           
           
           
           
           
           
           
           
           
           
3a Sub-total .....     1,393,457
b Total from continuation sheets to Part I ...      
c Totals (add lines 3a and 3b)     1,393,457
For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) 2012
Schedule F (Form 990) 2012
Page 2
Part II
Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered “Yes” to Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.
1 (a) Name of organization (b) IRS code section
and EIN (if applicable)		 (c) Region (d) Purpose of
grant 		(e) Amount of
cash grant 		(f) Manner of
cash
disbursement 		(g) Amount of
of non-cash
assistance 		(h) Description
of non-cash
assistance 		(i) Method of
valuation
(book, FMV,
appraisal, other)
Middle East and North Africa Program Support 150,000 Check     FMV
Europe (Including Iceland and Greenland) Program Support 95,239 Check     FMV
Europe (Including Iceland and Greenland) Program Support 100,000 Check     FMV
Middle East and North Africa Program Support 99,990 Check     FMV
Europe (Including Iceland and Greenland) Program Support 99,100 Check     FMV
East Asia and the Pacific Program Support 99,676 Check     FMV
Middle East and North Africa Program Support 88,880 Check     FMV
Europe (Including Iceland and Greenland) Program Support 99,682 Check     FMV
Europe (Including Iceland and Greenland) Program Support 100,000 Check     FMV
Middle East and North Africa Program Support 73,884 Check     FMV
North America Program Support 100,000 Check     FMV
East Asia and the Pacific Program Support 97,992 Check     FMV
Europe (Including Iceland and Greenland) Program Support 89,100 Check     FMV
North America Program Support 99,914 Check     FMV
             
             
2 Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter ....MediumBullet
14
3
Enter total number of other organizations or entities .......................MediumBullet
0
Schedule F (Form 990) 2012
Schedule F (Form 990) 2012Page 3
Part III
Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 16.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Region (c) Number of recipients (d) Amount of
cash grant 		(e) Manner of cash
disbursement 		(f) Amount of
non-cash
assistance 		(g) Description
of non-cash
assistance 		(h) Method of
valuation
(book, FMV,
appraisal, other)
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
Schedule F (Form 990) 2012
Schedule F (Form 990) 2012
Page 4
Part IV
Foreign Forms
1 Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If “Yes,”the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926)......................................
2 Did the organization have an interest in a foreign trust during the tax year? If “Yes,” the organizationmay be required to file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A).......................................
3 Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471)..............................
4 Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If "Yes," the organization may be required to file Form 8621, Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621)
5 Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships. (see Instructions for Form 8865)....................................
6 Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to file Form 5713, International Boycott Report (see Instructions for Form 5713)................................................
Schedule F (Form 990) 2012
Schedule F (Form 990) 2012
Page 5
Part V
Supplemental Information
Complete this part to provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information (see instructions).
Identifier ReturnReference Explanation
Procedure for Monitoring Use of Grant Funds Outside U.S. Schedule F, Part I, Line 2 The over-sight of the scientific integrity of the Alzheimer's Association International Research Grant Program is three-fold. First, the Alzheimer's Association voluntary Medical & Scientific Advisory Council ensures diversity of funded awards during the grant review process and develops focused requests for applications (RFAs) based on identified needs in the Alzheimer research community. Second, the Alzheimer's Association is engaged in a portfolio analysis of our scientific areas of investment to monitor the diversity of our grants portfolio, potential gaps in research funding, and potential overlap of areas funded. The analysis informs future funding decisions and areas of RFA focus. Third, there is a detailed process once a grant is awarded to monitor program and scientific and financial integrity. The Alzheimer's Association monitors the use of grant funds both inside and outside of the United States as follows: All awardees are required to provide annual reporting to the Alzheimer's Association on both the status of the research project and financial expenditures associated with the award. Sixty days prior to the anniversary of the award, an Alzheimer's Association Post-Award Specialist notifies all researchers and all designated institutional financial officials with fiscal responsibility for the award of the required reports, which include an interim scientific report, and interim financial report and documentation of any publications as a result of Association funding. The institutional official who has fiscal responsibility for the award cannot be the primary investigator of the project. The Alzheimer's Association provides a template for the interim scientific report and a template for the interim financial report, both of which are available for download by the researchers as well as the official with fiscal responsibility for the grant at the awarded institution at https://proposalcentral.altum.com/login.asp. The financial report must be signed by the institutional official with fiscal responsibility, and all reports must be uploaded by the award recipient to proposalcentral. After receipt, all financial reports are reviewed by an Alzheimer's Association post-award specialist for accuracy and consistency with the agreed upon budget. In addition, the Association required protocol continuation approval (i.e., IACUC, IRB, rDNA) annually, if applicable to the research project. Any subsequent payments to grant awardees are generated after their receipt and approval by our Vice President, Medical and Scientific Relations. At the conclusion of the award, all reports/publication(s) are due 90 days after the award expires and must be uploaded to proposalCENTRAL online system. The Financial Report must be signed by the Institutional Official who has fiscal responsibility for the award. In addition, we request, monitor, and follow-up to ensure submission compliance on all awarded contracts and that financial reporting requirements are met. We audit annual awardees financial reports to ensure eligibility for continued funding. Delinquent report(s) may result in the withdrawal of funding. Researchers are informed that delinquent reporting could lead to withdrawal of funding when the request for annual report(s) is sent. If funding is withdrawn due to delinquent reports, any unspent funds must be returned to the Alzheimer's Association. This Researcher becomes ineligible to apply for funding from the Alzheimer's Association. Foreign institutions are required to submit one of the following as verification of non-profit status: * Organization's charter, bylaws and other governing documents * Documentation of non-profit designation from organization's government For-profit organizations are not eligible to apply to the Alzheimer's Association's International Research Grant Program, with the exception of the Part the Cloud Translational Research Grant Program. All institutions are required to submit verification of their non-profit status dated within the last five years (e.g., IRS tax determination letter). If their determination letter is dated prior to this five year period, the institution is asked to provide documentation from an authorized organization individual to confirm there has not been a status change for the organization. For the Part the Cloud Translational Research Grant Program, any for-profit applicant is required to submit their financial statements. The Alzheimer's Association monitors the scientific advances of the Association's grant awardees by maintaining records of publications, presentations, and intellectual property that result from funded studies. The Association requires the grant recipient to notify us on an annual basis with updates to these records. We also monitor follow-on funding from federal agencies.
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
Schedule F (Form 990) 2012
Additional Data


Software ID:  
Software Version:  



SCHEDULE G (Form 990 or 990-EZ)
Department of the Treasury
Internal Revenue Service
Supplemental Information Regarding
Fundraising or Gaming Activities
Complete if the organization answered "Yes" to Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. Form 990-EZ filers are not required to complete this part. right arrowAttach to Form 990 or Form 990-EZ. right arrowSee separate instructions.
OMB No. 1545-0047
2012
Open to Public Inspection
Name of the organization
Alzheimer's Disease & Related Disorders
Association Inc
Employer identification number

13-3039601
Part I
Fundraising Activities. Complete if the organization answered "Yes" to Form 990, Part IV, line 17.
1
Indicate whether the organization raised funds through any of the following activities. Check all that apply.
a e
b f
c g
d
2a
Did the organization have a written or oral agreement with any individual (including officers, directors, trustees
or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?
b
If “Yes,” list the ten highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.
(i) Name and address of individual
or entity (fundraiser) 		(ii) Activity (iii) Did fundraiser have custody or control of contributions? (iv) Gross receipts
from activity 		(v) Amount paid to
(or retained by)
fundraiser listed in
col. (i) 		(vi) Amount paid to
(or retained by)
organization
Yes No
THD DM/Push EM PUSH E-MAIL   No 39,819,672 937,752 38,881,920
Infocision Aware/vol Program   No 2,543,426 1,329,966 1,213,460
             
             
             
             
             
             
             
             
Total .................right arrow 42,363,098 2,267,718 40,095,380
3
List all states in which the organization is registered or licensed to solicit funds or has been notified it is exempt from registration or licensing.
AL, AK, AZ, AR, CA, CO, CT, DE, DC, FL, GA, HI, ID, IL, IN, IA, KS, KY, LA, ME, MD, MI, MN, MS, MO, MT, NE, NV, NH, NJ, NM, NY, NC, ND, OH, OK, OR, PA, RI, SC, SD, TN, TX, UT, VT, VA, WA, WV, WI, WY
For Paperwork Reduction Act Notice, see the Instructions for Form 990or 990-EZ.
Cat. No. 50083H
Schedule G (Form 990 or 990-EZ) 2012
Schedule G (Form 990 or 990-EZ) 2012
Page 2
Part II
Fundraising Events. Complete if the organization answered "Yes" to Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.
(a) Event #1

NY Gala
(event type) 		(b) Event #2

Chicago Gala
(event type) 		(c) Other events

11
(total number) 		(d) Total events
(add col. (a) through col. (c))
VerticalRevenue 1 Gross receipts . . . 1,267,500 755,500 1,274,848 3,297,848
2 Less: Contributions . . 154,500 147,800 338,755 641,055
3 Gross income (line 1
minus line 2) . . . 		1,113,000 607,700 936,093 2,656,793
VerticalDirectExpenses 4 Cash prizes . . .        
5 Noncash prizes . . 121,379 139,357 38,240 298,976
6 Rent/facility costs . .   26,945 45,193 72,138
7 Food and beverages . 229,396 202,061 224,561 656,018
8 Entertainment . . .        
9 Other direct expenses . 138,183 113,751 127,710 379,644
10 Direct expense summary. Add lines 4 through 9 in column (d) ........... right arrow 1,406,776
11 Net income summary. Combine line 3, column (d), and line 10. .......... right arrow 1,250,017
Part III
Gaming. Complete if the organization answered "Yes" to Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.
VerticalRevenue (a) Bingo (b) Pull tabs/Instant
bingo/progressive bingo 		(c) Other gaming (d) Total gaming (add col.(a) through col.(c))
1 Gross revenue . . . .     44,390 44,390
VerticalDirectExpenses 2 Cash prizes . . . .        
3 Non-cash prizes . . .     4,945 4,945
4 Rent/facility costs . . .        
5 Other direct expenses . .        
6 Volunteer labor . . .
 
 
 
7 Direct expense summary. Add lines 2 through 5 in column (d) ........... right arrow 4,945
8 Net gaming income summary. Combine lines 1 and 7 in column (d) .......... right arrow 39,445
9
Enter the state(s) in which the organization operates gaming activities: IL
a
Is the organization licensed to operate gaming activities in each of these states? ............
b
If "No," explain:
 
10a
Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? .....
b
If "Yes," explain:
 
Schedule G (Form 990 or 990-EZ) 2012
Schedule G (Form 990 or 990-EZ) 2012
Page 3
11
Does the organization operate gaming activities with nonmembers? .................
12
Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity
formed to administer charitable gaming? ..........................
13
Indicate the percentage of gaming activity operated in:
a
The organization's facility ......................
13a
 
b
An outside facility ........................
13b
0.021 %
14
Enter the name and address of the person who prepares the organization's gaming/special events books and records:
Name right arrow
Michelle Helton
Address right arrow
225 N Michigan Ave 17th Flr
Chicago,IL606017633
15a
Does the organization have a contract with a third party from whom the organization receives gaming
revenue? ......................................
b
If "Yes," enter the amount of gaming revenue received by the organization right arrow $   and the
amount of gaming revenue retained by the third party right arrow $   .
c
If "Yes," enter name and address of the third party:
Name right arrow
Address right arrow
 
 
16
Gaming manager information:
Name right arrow
Lynne Carey
Gaming manager compensation right arrow $ 600
Description of services provided right arrow
Overall supervision and management
17
Mandatory distributions:
a
Is the organization required under state law to make charitable distributions from the gaming proceeds to
retain the state gaming license? ............................
b
Enter the amount of distributions required under state law distributed to other exempt organizations or spent
in the organization's own exempt activities during the tax year right arrow$  
Part IV
Supplemental Information. Complete this part to provide the explanations required by Part I, line 2b, columns (iii) and (v), and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also complete this part to provide any additional information (see instructions).
Identifier Return Reference Explanation
Fundraising Consultant- Control Arrangement Schedule G, Part I, Line 2B, Box (III) The Alzheimer's Association engages Infocision (IMC) for professional fundraising consultant services. A description of the arrangement of the funds is listed below: Post Office Box - IMC will facilitate the set-up of a post office box to be used solely for the purpose of the volunteer recruitment campaign. All donations mailed in for the volunteer recruitment campaign will be mailed to the separate post office box and will be collected daily (5 days per week, Monday through Friday) by the caging vendor. Post Office fees will be invoiced through IMC and paid through the cage. Bank Account - IMC will facilitate the set-up of a bank account, at the bank of the client's choice, to be used solely for deposits of donations from the volunteer recruitment campaign. All donations mailed in for the volunteer recruitment campaign will be collected and processed by the caging vendor. All funds from the volunteer recruitment donations will be deposited into the bank account set up for volunteer recruitment within two days. Bank fees will be invoiced through IMC and paid through the cage.
Fundraising Consultant- Gross Receipts Arrangement Schedule G, Part I, Line 2B, Box (IV) In FY13, the Association received $340,000 in revenue from Infocision as a result of FY12 campaigns. This $340,000 was over and above the FY12 stated gross revenue and remitted in FY13.
Fundraising Consultant- Fee Arrangement Schedule G, Part I, Line 2B, Box (VI) The agreement between Infocision Management Corporation (IMC) and the Alzheimer's Association is not a percentage-based agreement. Infocision Management Corporation is to be paid a fixed fee per completed call as described in the main agreement and said compensation provisions shall be controlling. The Alzheimer's Association exercises control and approval over the content and frequency of all solicitations and volunteer recruitment interactions.
Organization Operates Gaming Activities With Nonmembers SCHEDULE G, PART III, LINE 11 The Alzheimer's Association is not a membership organization as described by the IRS. The organization therefore doesn't consider its donors members. Therefore, the organization has checked box 11 in Part III of Schedule G, "Yes."
Additional Gaming Manager Information SCHEDULE G, PART III, LINE 16 Name: Kate Levy Gaming manager compensation: $300 Description of services provided: Recordkeeping Employee Name: Katherine Lee Gaming manager compensation: $300 Description of services provided: Cash management and bank deposits Employee
Schedule G (Form 990 or 990-EZ) 2012
Additional Data


Software ID:  
Software Version:  
Schedule I
(Form 990)
Department of the Treasury
Internal Revenue Service
Grants and Other Assistance to Organizations,
Governments and Individuals in the United States
Complete if the organization answered "Yes," to Form 990, Part IV, line 21 or 22.
lBullet Attach to Form 990
OMB No. 1545-0047
2012
Open to Public
Inspection
Name of the organization
Alzheimer's Disease & Related Disorders
Association Inc
Employer identification number
13-3039601
Part I
General Information on Grants and Assistance
1
Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ....................................
2
Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.
Part II
Grants and Other Assistance to Governments and Organizations in the United States. Complete if the organization answered "Yes" to
Form 990, Part IV, line 21, for any recipient that received more than $5,000. Part II can be duplicated if additional space is needed.
(a) Name and address of organization
or government		 (b) EIN (c) IRC Code section
if applicable		 (d) Amount of cash grant (e) Amount of non-cash
assistance		 (f) Method of valuation
(book, FMV, appraisal,
other)		 (g) Description of
non-cash assistance		 (h) Purpose of grant
or assistance
(1) University of Southern California
3720 S Flower St
Los Angeles,CA90089 		95-1642394 501(c)(3) 300,000   FMV   Program Support
(2) Sanford-Burnham Medical Research Institute
10901 Torrey Pines Rd
La Jolla,CA92037 		51-0197108 501(c)(3) 300,000   FMV   Program Support
(3) Medical University of South Carolina
19 Hagood Ave
Charleston,SC29425 		57-6000722 501(c)(3) 300,000   FMV   Program Support
(4) University of Kentucky Research Foundation
109 Kinkead Hall
Lexington,KY40506 		61-6033693 501(c)(3) 149,999   FMV   Program Support
(5) NorthWestern University
750 N Lake Shore Dr
Chicago,IL60611 		36-2167817 501(c)(3) 200,000   FMV   Program Support
(6) Stanford University
3172 Porter Drive
Palo Alto,CA94304 		94-1156365 501(c)(3) 199,992   FMV   Program Support
(7) New York University School of Medicine
One Park Ave 6th Flr
New York,NY10016 		13-5562308 501(c)(3) 240,000   FMV   Program Support
(8) The Salk Institute for Biological Studies
10010 Torrey Pines
La Jolla,CA92037 		95-2160097 501(c)(3) 240,000   FMV   Program Support
(9) Emory University
1599 Clifton Rd NE
Atlanta,GA31322 		58-0566256 501(c)(3) 240,000   FMV   Program Support
(10) New York University
665 Broadway Ste 801
New York,NY10012 		13-5562308 501(c)(3) 239,844   FMV   Program Support
(11) The Trustees of Univ of Pennsylvania
3451 Walnut St
Philadelphia,PA19104 		23-1352685 501(c)(3) 240,000   FMV   Program Support
(12) New York University School of Medicine
One Park Ave 6th Flr
New York,NY10016 		13-5562308 501(c)(3) 233,960   FMV   Program Support
(13) Trustees of Boston University
85 E Newton St M-921
Boston,MA02118 		10-4210354 501(c)(3) 239,490   FMV   Program Support
(14) Case Western Reserve University
10900 Euclid Ave
Cleveland,OH44106 		34-1018992 501(c)(3) 240,000   FMV   Program Support
(15) Mayo Clinic Jacksonville
4500 San Pablo Rd
Jacksonville,FL32224 		15-9333702 501(c)(3) 170,000   FMV   Program Support
(16) New York University School of Medicine
One Park Ave 6th Flr
New York,NY10016 		13-5562308 501(c)(3) 160,000   FMV   Program Support
(17) Johns Hopkins University
733 Broadway Ste 117
Baltimore,MD21205 		52-0595110 501(c)(3) 100,000   FMV   Program Support
(18) The Institute for Molecular Medicine
16371 Bothard
Huntington Beach,CA91647 		88-0366979 501(c)(3) 99,998   FMV   Program Support
(19) University of Florida
219 Grinter Hall
Gainesville,FL32611 		59-6002052 501(c)(3) 99,332   FMV   Program Support
(20) Regents of the University of California
9500 Gilman Dr
La Jolla,CA92093 		95-6006144 501(c)(3) 100,000   FMV   Program Support
(21) Duke University Medical Center
2200 W Main St Ste 820
Durham,NC27705 		56-0532129 501(c)(3) 100,000   FMV   Program Support
(22) Roskamp Foundation
2040 Whitfield Ave
Sarasota,FL34243 		65-6206042 501(c)(3) 100,000   FMV   Program Support
(23) Vanderbilt University Medical Center
1400 18th Ave South
Nashville,TN37212 		16-2047682 501(c)(3) 100,000   FMV   Program Support
(24) Columbia University Medical Center
630 W 168th St Box 49
New York,NY10032 		13-5598093 501(c)(3) 100,000   FMV   Program Support
(25) University of California San Diego
9500 Gilman Dr
La Jolla,CA92093 		95-6006144 501(c)(3) 99,998   FMV   Program Support
(26) University of Pennsylvania
3451 Walnut St P-221
Philadelphia,PA19104 		23-1352685 501(c)(3) 100,000   FMV   Program Support
(27) Stanford University
3172 Porter Drive
Palo Alto,CA94304 		94-1156365 501(c)(3) 100,000   FMV   Program Support
(28) University of Michigan
3003 S State St
Ann Arbor,MI48109 		38-6006309 501(c)(3) 100,000   FMV   Program Support
(29) Univ of Texas Health Science Center
Post Office Box 20036
Houston,TX77225 		74-1761309 501(c)(3) 100,000   FMV   Program Support
(30) Washington University St Louis
660 S Euclid Ave
St Louis,MO63110 		43-1653611 501(c)(3) 95,991   FMV   Program Support
(31) Hartford Hospital
80 Seymour St
Hartford,CT06102 		06-0646668 501(c)(3) 99,697   FMV   Program Support
(32) University of Arkansas
210 Admin
Fayetteville,AR72701 		71-6003252 501(c)(3) 97,823   FMV   Program Support
(33) University of Nebraska
987835 Nebraska Medical Ctr
Omaha,NE68198 		14-7004912 501(c)(3) 100,000   FMV   Program Support
(34) Widener University
One University Place
Chester,PA19013 		23-1386178 501(c)(3) 93,550   FMV   Program Support
(35) Beth Israel Deaconess Medical Center
330 Brookline Ave
Boston,MA02215 		04-2103881 501(c)(3) 100,000   FMV   Program Support
(36) Columbia University Medical Center
630 W 168th St Box 49
New York,NY10032 		13-5598093 501(c)(3) 100,000   FMV   Program Support
(37) Massachusetts General Hospital
101 Huntington Ave
Boston,MA02199 		04-2697983 501(c)(3) 99,999   FMV   Program Support
(38) Yale University
47 College St Ste 203
New Haven,CT06520 		06-0646973 501(c)(3) 100,000   FMV   Program Support
(39) The Washington University
1 Brookings Dr
St Louis,MO63130 		43-0653611 501(c)(3) 100,000   FMV   Program Support
(40) University of California San Francisco
3333 California St
San Francisco,CA94118 		94-6036493 501(c)(3) 100,000   FMV   Program Support
(41) University of California San Francisco
3333 California St
San Francisco,CA94118 		94-6036493 501(c)(3) 99,978   FMV   Program Support
(42) Wake Forest University
Medical Center
Winston Salem,NC27157 		22-3849199 501(c)(3) 99,309   FMV   Program Support
(43) Mayo Clinic Jacksonville
4500 San Pablo Rd
Jacksonville,FL32224 		15-9333702 501(c)(3) 100,000   FMV   Program Support
(44) Pharmatrophix Inc
2198 Sterling Ave
Menlo Park,CA94025 		14-1973571   600,000   FMV   Program Support
(45) University of California San Francisco
3333 California St
San Francisco,CA94118 		94-6036493 501(c)(3) 600,000   FMV   Program Support
(46) Buck Institute for Research on Aging
8001 Redwood Blvd
Novato,CA94945 		94-3030609 501(c)(3) 200,000   FMV   Program Support
(47) Palo Alto Institute
3801 Miranda Ave
Palo Alto,CA94304 		77-0207331 501(c)(3) 200,000   FMV   Program Support
(48) University of California San Francisco
3333 California St
San Francisco,CA94143 		94-6036493 501(c)(3) 200,000   FMV   Program Support
(49) Brigham & Women's Hospital
75 Francis St
Boston,MA02115 		10-4231290 501(c)(3) 137,500   FMV   Program Support
(50) NorthWestern University - Chicago Campus
750 N Lake Shore Dr
Chicago,IL60611 		36-2167817 501(c)(3) 450,000   FMV   Program Support
(51) University of California - San Diego
9500 Gilman Dr
La Jolla,CA92093 		95-6006144 501(c)(3) 450,000   FMV   Program Support
(52) Pacific Health Research & Education Inst
3375 Koapaka St
Honolulu,HI96819 		99-0312283 501(c)(3) 449,999   FMV   Program Support
(53) University of Pennsylvania
3451 Walnut St P-221
Philadelphia,PA19104 		23-1352685 501(c)(3) 450,000   FMV   Program Support
(54) Research Fdn for Mental Hygiene
150 Broadway Ste 301
Menands,NY12204 		14-1410842 501(c)(3) 450,000   FMV   Program Support
(55) American Brain Foundation
201 Chicago Ave
Minneapolis,MN55415 		43-0653611 501(c)(3) 43,333   FMV   Program Support Program Support
(56) Foundation for the National Inst of Health
9650 Rockville Pike
Bethesda,MD20814 		52-1986675 501(c)(3) 250,000   FMV   Program Support Program Support
(57) Washington University in St Louis
660 S Euclid Ave
St Louis,MO63110 		43-0653611 501(c)(3) 1,023,435   FMV   Program Support
(58) Illumina
5200 Illumina Way
San Diego,CA92122 		33-0804655 501(c)(3) 1,000,000   FMV   Program Support
(59) University of Wisconsin at Madison
21 N Park St Ste 6401
Madison,WI53715 		39-6006492 501(c)(3) 100,000   FMV   Program Support
(60) University of Wisconsin at Madison
21 N Park St Ste 6401
Madison,WI53715 		39-6006492 501(c)(3) 100,000   FMV   Program Support
(61) Cleveland Clinic Foundation
9500 Euclid Ave
Cleveland,OH44195 		34-0714585 501(c)(3) 46,667   FMV   Program Support
(62) Cleveland Clinic Foundation
9500 Euclid Ave
Cleveland,OH44195 		34-0714585 501(c)(3) 46,667   FMV   Program Support
(63) Cleveland Clinic Foundation
9500 Euclid Ave
Cleveland,OH44195 		34-0714585 501(c)(3) 46,667   FMV   Program Support
(64) Case Western Reserve Univ
10900 Euclid Ave
Cleveland,OH44106 		34-1018992 501(c)(3) 80,000   FMV   Program Support
(65) Alzheimer's Impact Movement
225 North Michigan Ave
Chicago,IL60601 		27-1961435 501(c)(4) 807,959   FMV   Program Support
2
Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................ Bullet Image
63
3
Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image
2
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50055P
Schedule I (Form 990) 2012

Schedule I (Form 990) 2012
Page 2
Part III
Grants and Other Assistance to Individuals in the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.
(a)Type of grant or assistance (b)Number of
recipients		 (c)Amount of
cash grant		 (d)Amount of
non-cash assistance		 (e)Method of valuation (book,
FMV, appraisal, other)		 (f)Description of non-cash assistance












Part IV
Supplemental Information.
Complete this part to provide the information required in Part I, line 2, Part III, column (b), and any other additional information.
Identifier Return Reference Explanation
Procedure for Monitoring Use of Grant Funds Inside U.S. Schedule I, Part I, Line 2 The over-sight of the scientific integrity of the Alzheimer's Association International Research Grant Program is three-fold. First, the Alzheimer's Association voluntary Medical & Scientific Advisory Council ensures diversity of funded awards during the grant review process and develops focused requests for applications (RFAs) based on identified needs in the Alzheimer research community. Second, the Alzheimer's Association is engaged in a portfolio analysis of our scientific areas of investment to monitor the diversity of our grants portfolio, potential gaps in research funding, and potential overlap of areas funded. The analysis informs future funding decisions and areas of RFA focus. Third, there is a detailed process once a grant is awarded to monitor program and scientific and financial integrity. The Alzheimer's Association monitors the use of grant funds both inside and outside of the United States as follows: All awardees are required to provide annual reporting to the Alzheimer's Association on both the status of the research project and financial expenditures associated with the award. Sixty days prior to the anniversary of the award, an Alzheimer's Association Post-Award Specialist notifies all researchers and all designated institutional financial officials with fiscal responsibility for the award of the required reports, which include an interim scientific report, and interim financial report and documentation of any publications as a result of Association funding. The institutional official who has fiscal responsibility for the award cannot be the primary investigator of the project. The Alzheimer's Association provides a template for the interim scientific report and a template for the interim financial report, both of which are available for download by the researchers as well as the official with fiscal responsibility for the grant at the awarded institution at https://proposalcentral.altum.com/login.asp. The financial report must be signed by the institutional official with fiscal responsibility, and all reports must be uploaded by the award recipient to proposalcentral. After receipt, all financial reports are reviewed by an Alzheimer's Association post-award specialist for accuracy and consistency with the agreed upon budget. In addition, the Association required protocol continuation approval (i.e., IACUC, IRB, rDNA) annually, if applicable to the research project. Any subsequent payments to grant awardees are generated after their receipt and approval by our Vice President, Medical and Scientific Relations. At the conclusion of the award, all reports/publication(s) are due 90 days after the award expires and must be uploaded to proposalCENTRAL online system. The Financial Report must be signed by the Institutional Official who has fiscal responsibility for the award. In addition, we request, monitor, and follow-up to ensure submission compliance on all awarded contracts and that financial reporting requirements are met. We audit annual awardees financial reports to ensure eligibility for continued funding. Delinquent report(s) may result in the withdrawal of funding. Researchers are informed that delinquent reporting could lead to withdrawal of funding when the request for annual report(s) is sent. If funding is withdrawn due to delinquent reports, any unspent funds must be returned to the Alzheimer's Association. This Researcher becomes ineligible to apply for funding from the Alzheimer's Association. Foreign institutions are required to submit one of the following as verification of non-profit status: * Organization's charter, bylaws and other governing documents * Documentation of non-profit designation from organization's government For-profit organizations are not eligible to apply to the Alzheimer's Association's International Research Grant Program, with the exception of the Part the Cloud Translational Research Grant Program. All institutions are required to submit verification of their non-profit status dated within the last five years (e.g., IRS tax determination letter). If their determination letter is dated prior to this five year period, the institution is asked to provide documentation from an authorized organization individual to confirm there has not been a status change for the organization. For the Part the Cloud Translational Research Grant Program, any for-profit applicant is required to submit their financial statements. The Alzheimer's Association monitors the scientific advances of the Association's grant awardees by maintaining records of publications, presentations, and intellectual property that result from funded studies. The Association requires the grant recipient to notify us on an annual basis with updates to these records. We also monitor follow-on funding from federal agencies.
Schedule I (Form 990) 2012


Additional Data


Software ID:  
Software Version:  


Schedule J
(Form 990)
Department of the Treasury
Internal Revenue Service
Compensation Information
For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
SchJMediumBullet Complete if the organization answered "Yes" to Form 990,
Part IV, question 23.
SchJMediumBullet Attach to Form 990. SchJMediumBullet See separate instructions.
OMB No. 1545-0047
2012
Open to Public Inspection
Name of the organization
Alzheimer's Disease & Related Disorders
Association Inc
Employer identification number

13-3039601
Part I
Questions Regarding Compensation
Yes
No
1a
Check the appropiate box(es) if the organization provided any of the following to or for a person listed in Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.
b
If any of the boxes in line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain....
1b
Yes
 
2
Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all officers,
directors, trustees, and the CEO/Executive Director, regarding the items checked in line 1a? .......
2
Yes
 
3
Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.
4
During the year, did any person listed in Form 990, Part VII, Section A, line 1a with respect to the filing organization or a related organization:
a
Receive a severance payment or change-of-control payment? ................
4a
 
No
b
Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........
4b
Yes
 
c
Participate in, or receive payment from, an equity-based compensation arrangement? .........
4c
 
No
If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.
Only 501(c)(3) and 501(c)(4) organizations only must complete lines 5-9.
5
For persons listed in Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:
a
The organization? ...........................
5a
 
No
b
Any related organization? .........................
5b
 
No
If "Yes," to line 5a or 5b, describe in Part III.
6
For persons listed in Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:
a
The organization? ...........................
6a
 
No
b
Any related organization? .........................
6b
 
No
If "Yes," to line 6a or 6b, describe in Part III.
7
For persons listed in Form 990, Part VII, Section A, line 1a, did the organization provide any non-fixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............
7
 
No
8
Were any amounts reported in Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III .............................
8
 
No
9
If "Yes" to line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................
9
 
 
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50053T
Schedule J (Form 990) 2012

Schedule J (Form 990) 2012
Page 2
Part II
Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.
For each individual whose compensation must be reported in Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.
(A) Name and Title (B) Breakdown of W-2 and/or 1099-MISC compensation (C) Retirement and other deferred compensation (D) Nontaxable
benefits		 (E) Total of columns
(B)(i)-(D) 		(F) Compensation
reported as deferred
in prior Form 990
(i) Base compensation (ii) Bonus & incentive compensation (iii) Other reportable compensation
(1)Harry JohnsPRESIDENT & CEO (i)
(ii)		 553,375
30,262 		107,000
0 		2,040,379
0 		57,000
0 		21,658
0 		2,779,412
30,262 		1,828,870
0
(2)Richard HovlandCOO/CFO (i)
(ii)		 293,956
271 		69,254
0 		1,645
0 		60,833
0 		28,944
0 		454,632
271 		0
0
(3)Angela GeigerCHIEF STRATEGY OFFICER (i)
(ii)		 340,143
107 		81,867
0 		250,317
0 		27,500
0 		19,685
0 		719,512
107 		222,083
0
(4)William ThiesCHIEF MEDICAL SCIENCE OFFICER (i)
(ii)		 265,757
0 		69,376
0 		4,022
0 		27,500
0 		22,594
0 		389,249
0 		0
0
(5)Robert EggeVP - Public Policy (i)
(ii)		 246,622
12,418 		59,296
0 		262
0 		27,500
0 		28,808
0 		362,488
12,418 		0
0
(6)Scott GardnerVP - CHAPTER RELATIONS (i)
(ii)		 212,531
0 		47,700
0 		857
0 		27,500
0 		12,489
0 		301,077
0 		0
0
(7)Paula PelisseroSr. Director, Human Resources (i)
(ii)		 180,621
0 		9,719
0 		945
0 		20,975
0 		2,830
0 		215,090
0 		0
0
(8)Maria CarrilloVP Medical & Scientific Rel (i)
(ii)		 177,869
0 		5,971
0 		158
0 		21,006
0 		8,094
0 		213,098
0 		0
0
Schedule J (Form 990) 2012

Schedule J (Form 990) 2012
Page 3
Part III
Supplemental Information
Complete this part to provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II.
Also complete this part for any additional information.
Identifier Return Reference Explanation
TRAVEL FOR COMPANIONS SCHEDULE J, PART I, LINE 1A AT TIMES A BOARD MEMBER WITH EARLY ON-SET ALZHEIMER'S DISEASE MAY REQUIRE A COMPANION TO ACCOMPANY him or her ON BUSINESS TRAVEL FOR SAFETY REASONS. SINCE his or her INVOLVEMENT IN THE MEETINGS IS BENEFICIAL TO THE MISSION of the Alzheimer's Association; THE EXPENSE OF COMPANION TRAVEL IS REIMBURSED.
SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN SCHEDULE J, PART I, LINE 4B HARRY JOHNS PARTICIPATED IN A 457(F) SUPPLEMENTAL NONQUALIFIED DEFERRED COMPENSATION OR RETIREMENT PLAN. THE ACCRUAL AMOUNT UNDER THE PLAN IN CALENDAR YEAR 2012 WAS $240,132 AND AS DISCUSSED LATER and reported on Schedule J, Part II, the amounts that became vested under the supplemental retirement plan were required to be reported on the Form 990 when included in taxable income, even though the amounts were earned over several years of service, and even though most of the final benefit had already been reported on prior Form 990s as accrued. IN ADDITION, RICHARD HOVLAND, ANGELA GEIGER, AND HARRY JOHNS ALSO PARTICIPATED IN A 457(B) RETIREMENT PLAN THE AMOUNT ACCRUED IN CALENDAR YEAR 2012 IS INCLUDED ON SCHEDULE J AS DEFERRED COMPENSATION (I.E., SCHEDULE J, PART II, COLUMN (C)). HARRY JOHNS WAS THE ONLY INDIVIDUAL IN CALENDAR YEAR 2012 WITH AN AMOUNT ACCRUED UNDER THE PROVISIONS OF THE PLAN DURING THE REPORTING PERIOD. THE AMOUNT ACCRUED FOR HARRY JOHNS UNDER THIS PLAN IN CALENDAR YEAR 2012 WAS $17,000, WHICH IS THE IRC PRESCRIBED MAXIMUM UNDER THIS TYPE OF PLAN FOR THE CALENDAR YEAR 2012.
Supplemental Compensation Information SCHEDULE J, PART II, COLUMN (B) (II) HARRY JOHNS RECEIVED PERFORMANCE BASED INCENTIVE COMPENSATION OF $107,000 BASED ON HIS SUCCESSFUL ACHIEVEMENT OF SPECIFIC GOALS, WHICH WERE DEVELOPED, REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS IN CONSULTATION WITH THE BOARD'S INDEPENDENT 3RD PARTY COMPENSATION CONSULTANTS. THIS PERFORMANCE BASED INCENTIVE COMPENSATION WAS EARNED FOR PERFORMANCE IN FISCAL YEAR 2012 BUT IT WAS PAID IN CALENDAR YEAR 2012 (I.E., FISCAL YEAR 2013).
Supplemental Compensation Information - OTHER REPORTABLE COMPENSATION SCHEDULE J, PART II, COLUMN (B) (III) AS PER HIS INITIAL EMPLOYMENT ARRANGEMENT IN 2005 WITH THE ALZHEIMER'S ASSOCIATION, MR. JOHNS WAS TO participate IN A 457(F) DEFERRED COMPENSATION OR RETIREMENT PLAN, to replace a defined benefit plan in which he had been participating during his 22-year career with his previous employer (with significant value given up when he agreed to become the President and Chief Executive Officer of the Alzheimer's Association in September 2005). Alzheimer's Association agreed, as part of the recruitment of Mr. Johns in 2005, to take into account the defined benefit pension benefit he would have earned from the prior employer had he remained there, as well as the benefit actually earned at the time he left to take the position with Alzheimer's Association, thus the combination of benefits from the prior employer and from this organization reflects his nearly 30 years of service to these two not-for-profit, tax-exempt charities, and reflects his record of superior leadership at two significant charities and his achieving and exceeding performance goals at the Alzheimer's Association. AS INDICATED ON THIS YEAR'S RETURN NEARLY 90% OF THE TOTAL PAYOUT NOW REPORTED AS "OTHER REPORTABLE COMPENSATION" HAD BEEN PREVIOUSLY REPORTED AS DEFERRED COMPENSATION ON THE FORM 990 AND the current amount reported reflects the accumulated and now vested value of the total retirement benefit, which was subject to forfeiture if Mr. Johns had not performed substantial future services, and which is required to be distributed as A VESTED NONQUALIFIED 457(F) RETIREMENT BENEFIT, WHICH IS SUBJECT TO FULL TAXATION AND REPORTING ON FORM W-2 AS CURRENT PERSONAL INCOME, DESPITE BEING DESIGNED AND INTENDED FOR RETIREMENT FUNDING PURPOSES.
Supplemental Compensation Information SCHEDULE J, PART II, COLUMN (C) HARRY JOHNS - RETIREMENT AND OTHER DEFERRED COMPENSATION OF $57,000 IS COMPRISED OF THE FOLLOWING: - EMPLOYER CONTRIBUTIONS TO THE QUALIFIED BROAD-BASED 401(K) RETIREMENT PLAN - $27,500; - EMPLOYER ACCRUAL OF RETIREMENT BENEFIT TO A SUPPLEMENTAL RETIREMENT ACCOUNT UNDER THE PREVIOUSLY DISCUSSED 457(B) - $17,000; - MULTI-YEAR RETENTION INCENTIVE - $12,500, ACCRUED AND PAID IN DECEMBER 2012 WITH VESTING OCCURRING ON JUNE 30, 2012. ANGELA GEIGER - RETIREMENT AND OTHER DEFERRED COMPENSATION INCLUDE EMPLOYER CONTRIBUTIONS TO A QUALIFIED 401(K) RETIREMENT PLAN. IN ADDITION, A RETENTION INCENTIVE AWARD WAS PAID TO MS. GEIGER IN JULY 2012, WHICH WAS A BENEFIT TIED TO SPECIFIC MULTI-YEAR VESTING REQUIREMENTS THROUGH JULY 30, 2012. SINCE THE VESTING REQUIREMENTS WERE SATISFIED THEY REQUIRED IMMEDIATE TAXATION AND DISTRIBUTION IN 2012. IT IS IMPORTANT TO NOTE THAT NEARLY 90% OF THE ENTIRE AMOUNT CURRENTLY TAXED AND DISTRIBUTED HAS BEEN PREVIOUSLY REPORTED AS DEFERRED COMPENSATION ON PRIOR FORM 990'S AS INDICATED IN SCHEDULE J, PART II, COLUMN (F). RICHARD HOVLAND - RETIREMENT AND OTHER DEFERRED COMPENSATION INCLUDES EMPLOYER CONTRIBUTION TO A QUALIFIED 401(K) RETIREMENT PLAN AND A RETENTION INCENTIVE ACCRUAL WHICH WAS NOT PAID AS OF DECEMBER 31, 2012 BUT WHICH IS TIED TO SPECIFIC MULTI-YEAR VESTING REQUIREMENTS THROUGH JULY 30, 2013. ROBERT EGGE, WILLIAM THIES, SCOTT GARDNER, PAULA PELISSERO AND MARIA CARRILLO - RETIREMENT AND OTHER DEFERRED COMPENSATION INCLUDES EMPLOYER CONTRIBUTIONS TO A QUALIFIED 401(K) RETIREMENT PLAN.
Supplemental Compensation Information SCHEDULE J, PART II, COLUMN (D) HARRY JOHNS - NON-TAXABLE BENEFITS OF $21,658 INCLUDE EMPLOYER CONTRIBUTIONS TO MEDICAL, DENTAL, BASIC LIFE INSURANCE, SHORT AND LONG-TERM DISABILITY, AND LONG TERM CARE INSURANCE BASED ON HIS PERSONAL ELECTIONS FOR CALENDAR YEAR 2012 THROUGH THE BENEFIT OFFERINGS AVAILABLE TO ALL OTHER BENEFITS-ELIGIBLE EMPLOYEES AT OUR ORGANIZATION.
Schedule J (Form 990) 2012

Additional Data


Software ID:  
Software Version:  
SCHEDULE M
(Form 990)

Department of the Treasury
Internal Revenue Service
Noncash Contributions
Right pointing arrow large imageComplete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image Attach to Form 990.
OMB No. 1545-0047
2012
Open to Public Inspection
Name of the organization
Alzheimer's Disease & Related Disorders
Association Inc
Employer identification number

13-3039601
Part I
Types of Property
(a)
Check if applicable 		(b)
Number of contributions or items contributed 		(c)
Noncash contribution amounts reported on
Form 990, Part VIII, line 1g 		(d)
Method of determining
noncash contribution amounts
1 Art—Works of art ....        
2 Art—Historical treasures .        
3 Art—Fractional interests ..        
4 Books and publications ..      
5 Clothing and household
goods ....... 		     
6 Cars and other vehicles .. X 522 219,500 Cost/Selling Price
7 Boats and planes ....        
8 Intellectual property ...        
9 Securities—Publicly traded .        
10 Securities—Closely held stock . X 111 1,719,976 Cost/Selling Price
11 Securities—Partnership, LLC,
or trust interests .... 		       
12 Securities—Miscellaneous ..        
13 Qualified conservation
contribution—Historic
structures ..... 		       
14 Qualified conservation
contribution—Other ... 		       
15 Real estate—Residential .        
16 Real estate—Commercial ..        
17 Real estate—Other ...        
18 Collectibles .....        
19 Food inventory ...        
20 Drugs and medical supplies .        
21 Taxidermy ......        
22 Historical artifacts ....        
23 Scientific specimens ..        
24 Archeological artifacts ...        
25 Other Right pointing arrow large image ( Various noncash items ) X 271 298,976 Fair Market Value
26 Other Right pointing arrow large image( )
27 Other Right pointing arrow large image( )
28 Other Right pointing arrow large image ( )
29
Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement ...
29
 
Yes
No
30a
During the year, did the organization receive by contribution any property reported in Part I, lines 1-28 that it
must hold for at least three years from the date of the initial contribution, and which is not required to be used
for exempt purposes for the entire holding period? ..................
30a
 
No
b
If "Yes," describe the arrangement in Part II.
31
Does the organization have a gift acceptance policy that requires the review of any non-standard contributions?
31
Yes
 
32a
Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash
contributions? ..........................
32a
Yes
 
b
If "Yes," describe in Part II.
33
If the organization did not report an amount in column (c) for a type of property for which column (a) is checked,
describe in Part II.
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 51227J
Schedule M (Form 990) (2012)
Schedule M (Form 990) (2012)
Page 2
Part II
Supplemental Information. Complete this part to provide the information required by Part I, lines 30b,
32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.
Identifier Return Reference Explanation
Third Party Assistance of Noncash Contributions SCHEDULE M, PART I, LINE 25 AND LINE 32B Line 25 - The Alzheimer's Association receives various noncash contributions for their fundraising events. These items include sporting tickets, jewelry, concert tickets, dinners and various other packages. Line 32B: A third party broker receives directly, sells and remits proceeds from stock gifts.
Schedule M (Form 990) (2012)
Additional Data


Software ID:  
Software Version:  
SCHEDULE O
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or to provide any additional information.
MediumBullet Attach to Form 990 or 990-EZ.
OMB No. 1545-0047
2012
Open to Public
Inspection
Name of the organization
Alzheimer's Disease & Related Disorders
Association Inc
Employer identification number

13-3039601
Identifier Return Reference Explanation
Other Program Services FORM 990, Part III, Line 4d Advocacy - As Alzheimer's disease threatens to bankrupt families, businesses and our healthcare system, scientists are coming close to finding better treatments that could drastically alter the course of the disease. The Alzheimer's Association advocates for public policies aimed at advancing research toward better therapies, detection, methods of prevention and ultimately a cure, as well as for better care and resources, and health and long-term coverage to ensure high quality cost effective care for people with Alzheimer's disease and their families. More than 500,000 grass roots advocates speak up for the needs and rights of people with Alzheimer's and the families, and help encourage Congress to increase funding for research and care. Policy activities also include collaborating with other organizations to improve quality care and raise awareness of key issues. Expenses: 5,649,926 Grants: 807,959 Revenues: NONE Patient and Family Services - The Alzheimer's Association* provides an array of information and support services designed specifically for individuals with Alzheimer's disease, their families, friends and caregivers. In order to meet the diverse needs of individuals affected by Alzheimer's disease, the Association's programs and services are offered in person, by phone and online. Through our programs and services, the Association serves more than 700,000 individuals in person or by telephone, and millions more via the web each year. Online nationwide and in chapters throughout the country, constituents can attend education programs and support groups, receive personalized care consultation and engage in early stage programs, enroll in support programs and purchase products to reduce the risks associated with wandering. The Association has been a leader in providing support programs and products to reduce the risks of wandering, a dangerous and potentially fatal symptom of Alzheimer's disease, for the approximately 6 of 10 persons with dementia at risk for wandering. Through the Medicalert* + Alzheimer's Association Safe Return Program* and Comfort Zone. Alzheimer's Association Alzheimer's Navigator* is an online tool to help caregivers and people with dementia evaluate the needs, identify action steps and connect with local programs and services. Developed with the feedback of people living with Alzheimer's and their caregivers, Alzheimer Navigator* also allows users to reassess needs and adjust care plans as the disease progresses. Alzconnected*, powered by the Alzheimer's Association, is the first social networking community designed for people living with Alzheimer's and their caregivers. It offers a place where those impacted by Alzheimer's can connect to others, find support and share tips and strategies for living with the disease. Through the Association's 24/7/365 helpline, individuals with Alzheimer's disease and their families can talk to a specialist to receive information and basic education about the disease; and for more complicated or urgent situations, constituents can speak to a Masters-level trained counselor, any time, day or night. This resource is also available in more than 15 languages. The Helpline handles over 290,000 calls per year. The Association's website (www.alz.org) receives an average of 1.8 million visits each month. Online programs include: self-service education programs, an online community, an interactive brain tour (available in 170 languages), access to comprehensive disease information, portals in Spanish, Chinese, and Vietnamese, a virtual library, a safety center, and a newly developed MICROSITE specifically for people living with Alzheimer's, with input from people in the early stages of Alzheimer's disease and their care partners. Through the Association's Early Stage Initiative, individuals in the early stages of the disease can participate in education programs, support groups and engagement programs. Additionally, the Association convenes an Early State Advisory Group whose members work to raise awareness, advocate for the cause, and provide guidance and review of our programs and services. The programs and services of the Alzheimer's Association are designed to provide education, information, support resources, and to help individuals with Alzheimer's and their families navigate the long and complicated journey through Alzheimer's disease. * These are names that are trademarks of the Alzheimer's Association. Expenses: 16,585,126 Grants: 367,180 Revenues: NONE
Governing Body Form 990, Part VI, Line 1a The Board of Directors of the Alzheimer's Association is the organization's governing body. The Board has delegated authority to its standing and other business committees as described in Article VII of the organizational bylaws. The following excerpt from the Association's bylaws discuss committees of the Board of Directors. Committees of Directors: The Board of Directors shall have the following standing committees: Executive, Finance, Governance and Nominating, Compensation and Audit. Executive Committee: The Executive Committee shall supervise the affairs of the Association, approve expenditures and commitments according to policies prescribed by the Board of Directors, act for and carry out the established policies of the Association as defined by the Board of Directors, including the policies and procedures, report to the Board of Directors at each meeting of the Board of Directors and have such other additional powers as may be by law or resolution of the Board of Directors provided. The Executive Committee shall have and may exercise all authority including the election of officers other than the Chair, Chair Elect, one or more vice Chairs, Secretary, Treasurer or President and Chief Executive Officer, it being understood that the Executive Committee may elect an interim President and Chief Executive Officer to serve until the next meeting of the Board of Directors in the management of the Association, subject to the limitations contained in the Delaware corporation law. The Committee's responsibilities shall include, but not be limited to, initiating long-range planning, environmental scanning and performance evaluation; initiating the Board's annual strategic priorities for approval by the Board; assisting the Chair in developing charges to the committees; identifying programmatic and financial indicators of Association performance; conducting the review, performance evaluation and succession planning for the President and CEO; making bylaw recommendations to the Board; reviewing the activities of the Medical and Scientific Advisory Council; and identifying significant issues as that term is defined in Article IX which require consideration by the Association Assembly as described in the same Article and receiving, on behalf of the Board, the Association Assembly's suggestions and recommendations for Board consideration or action. At each of its annual meetings, the Board of Directors by duly adopted resolution shall elect an Executive Committee consisting of not less than eleven or more than fifteen Directors. The Chair, Chair Elect, Vice Chairs, Secretary, Treasurer, Chairs of the Standing Committees and Chairs of the following Committees: Chapter Relations, Development, Diversity and Inclusion, Program, and Public Policy, as well as the Chair of the Medical and Scientific Advisory Council shall be members of the Executive Committee. The Chair of the Board of Directors shall be the Chair of the Executive Committee. The Executive Committee may hold regular meetings monthly or as it may otherwise determine, at such place and at such times and upon such notice as it may determine. Special meetings of the Executive Committee may be called at any time by the Chair or by any three of its members, by notice delivered personally or by mail, telephone, electronic mail or facsimile at least seven days (or at least 48 hours in the case of telephonic meetings) prior to the meeting. A majority of the currently serving members of the Executive Committee shall constitute a quorum for all purposes. Finance Committee: The Finance Committee shall consist of at least five Directors and shall be chaired by the Treasurer. The Finance Committee shall oversee and review all financial reports, accounting activities and investment decisions of the Association and also shall prepare a projected budget for each fiscal year to be presented to the Board of Directors for approval. Governance and Nominating Committee: At each of its annual meetings, the Board of Directors by duly adopted resolution shall elect a Governance and Nominating Committee consisting of not less than nine nor more than fifteen individuals currently serving as a Director. At least one-third of the Governance and Nominating Committee shall be Directors having chapter experience. The Governance and Nominating Committee shall assist the Board in ensuring the successful governance of the Association through board assessment, recruitment, nominations, orientation and development. The Governance and Nominating Committee shall nominate candidates for Directors, Officers and members of the Executive Committee. The Governance and Nominating Committee may nominate candidates for Director Emeritus, Honorary Director and any advisory or Honorary Councils or Committees and approve and present to the Board for approval the candidates for MSAC membership. The Governance and Nominating Committee also shall provide input to the Chair on the selection of Vice Chairs and Committee Chairs. Compensation Committee: A Compensation Committee which shall recommend salary and benefits for the President and CEO and Senior Officers of the Association; help ensure succession plans are in place for key positions in the Association and provide oversight on the retirement programs offered by the Association to its employees. Audit Committee: The Audit Committee shall be responsible for recommending an auditor to the Board of Directors and shall oversee the activities of any internal auditor of the Association. The Committee shall see that an annual audit is prepared by an independent firm of Certified Public Accountants selected by the Board of Directors and, upon receiving such auditor's report, the Committee shall preview the audit report for submission to the Board of Directors each year. The Committee shall review the financial reports of the Association, its system of internal controls, and the audit process, including the review of the activities of the Medical and Scientific Advisory Council. The Audit Committee shall have at least five members, all of whom are members of the Board of Directors and the majority of whom have appropriate financial expertise. At least one member of the Audit Committee shall meet the requirement of "Audit Committee Financial Expert" as then defined by the Securities and Exchange Commission. The majority of the members of the Audit Committee may not concurrently serve on the Finance Committee and the Treasurer and Chair of the Finance Committee may not serve concurrently on the Audit Committee. Other Committees: In addition to the standing committees, other committees may be designated by resolution adopted by a majority of the Directors present at any meeting. Other committees shall include, but not be limited to, the following business committees: A. A Chapter Relations Committee which shall recommend and monitor consistent, predictable and accountable Board Policy in affiliate relations. B. A Development Committee which shall advise the Board on philanthropic giving to the Association and recommend fundraising policies. C. A Program Committee which shall recommend for Board consideration and approval policy issues related to market and needs assessment, programs and services, quality and standards and related matters. D. A Public Policy Committee which shall provide guidance to the Board on advocacy strategies, federal, state and local public policy issues and strategies including research funding, health care, long term care, and publicly funded care and support programs. E. A Diversity & Inclusion Committee which shall help ensure that the Alzheimer's Association serves and reflects diverse communities, shall work with the National Board of Directors and other committees to foster diversity and inclusion with respect to the Association strategic plan and shall report on progress the Association and Board are making on achieving the Association's diversity and inclusion strategic goals.
Form 990 Review Process Form 990, Part VI, Line 11b The Organization undergoes a thorough review process before filing the return. The audit committee discusses and reviews the form before it goes to the officers and full Board of Directors. All officers and the full Board of Directors are provided a copy for their review and have the opportunity to comment before the form is filed.
Conflict of Interest Policy Monitoring & Enforcement Form 990, Part VI, Line 12c The Alzheimer's Association conflict of interest policy is described in Article XVII, Section 2 of the organizational bylaws. The responsibility for disclosing any known or reasonably foreseen actual or potential conflicts of interest shall be upon the interested party whose interests are or may appear to be in conflict with the Association. All interested parties are required to file with the Association a disclosure statement prior to such individual commencing his or her service with the Association and thereafter shall file with the Association an updated disclosure statement as may be required from time to time by the Board of Directors or its Committee designee and in no event less often than annually. As cited from Article XVII, Section 2 of the bylaws, interested persons or Chapters shall disclose any conflict and shall not vote on a matter and further if requested by the chair or resolution of the board shall leave the room in which the Board or committee is meeting and shall not participate in any deliberation or decision regarding the matter under consideration. The minutes shall reflect that the conflict of interest was disclosed and the interested person or Chapter representative did not participate in any discussion of the matter and did not vote on the matter in person or by proxy. When any such conflict of interest is relevant to a matter requiring action by the Board of Directors or any committee of the Board, the interested person or Chapter shall disclose such conflict to the Board of Directors or such committee and shall not vote on the matter. Further the interested person or representative from a Chapter having a conflict if requested by the chair or resolution of the board shall leave the room in which the Board or the committee is meeting and shall not participate in any deliberation or decision regarding the matter under consideration. When there is a doubt as to whether a conflict of interest exists, the matter shall be resolved by a vote of the Board of Directors or the committee, as the case may be, excluding the interested person or representative from a chapter concerning whom the doubt has arisen. The Governance and Nominating Committee of the Board of Directors shall report to the Board of Directors from time to time on the implementation of these guidelines and the status of any policy developments regarding compensation and conflicts of interest. Further, the Governance and Nominating committee shall report to the Board as soon as reasonable after having been alerted to specific instances when these guidelines have not been followed or any other issue regarding compensation or conflict of interest is determined to exist. Copies of the Alzheimer's Association bylaws, including the conflict of interest policy, are provided to all Board of Directors no less than annually. Board Director disclosure statements are submitted no less than annually. Potential conflicts disclosed by Board Directors or candidates for election to the board are reviewed by the Governance and Nominating Committee, which reports no less than annually on its review to the full board. As documented in the meeting minutes, at the start of each meeting of the Board of Directors as well as each meeting of the executive committee, the agenda is reviewed and all Directors in attendance are reminded of the Conflict of Interest Policy and advised to disclose any potential conflicts should they exist or arise.
Process for Determining Compensation Form 990, Part VI, Line 15a & 15b COMPENSATION IS ESTABLISHED FOR THE CEO BY THE COMPENSATION COMMITTEE AND THE EXECUTIVE COMMITTEE AFTER A THOROUGH SALARY/MARKET REVIEW CONDUCTED BY OUTSIDE CONSULTANTS. FOR THE CEO position, the gathering of relevant comparability data from independent sources occurred in 2012. The process was conducted in a manner intended to qualify for the rebuttable presumption of reasonableness under the intermediate sanctions rules. As to the members of the senior management team other than the CEO, annually updated market data also is provided by the outside compensation consultant, so that the updated market data can be used in setting reasonable compensation for each member of the senior management team. Each year the Compensation Committee evaluates the CEO's performance through a robust assessment process which includes 360 feedback collection, interviews and performance evaluation comparing results to goals. The Committee and Chair of the Board use this data to determine incentive compensation eligibility. The senior staff has a comprehensive performance evaluation and compensation review done at the end of each fiscal year. These include a self-assessment, 360 review and evaluation by the CEO. Updated market data for use in setting reasonable compensation is provided by a national compensation consulting firm to the Compensation Committee for confirmation of reasonableness using a process designed to qualify for the rebuttable presumption of reasonableness (including contemporaneous documentation in the Committee's minutes). For this year the salaries and total compensation packages of the senior staff were benchmarked by AonHewitt. Compensation is contemporaneously documented in the Compensation Committee minutes.
How Documents are Made Available to the Public FORM 990, Part VI, Section C, Line 18 The organization makes its Form 990 available to the general public by posting on the website at www.alz.org and upon request. The organization makes its Form 1023 available to the general public upon request.
How Documents are Made Available to the Public FORM 990, Part VI, Section C, Line 19 The organization's audited financial statements are made available to the general public by posting on the organization's website at www.alz.org and upon request. The organization makes its governing documents and conflict of interest policy available to the general public upon request.
Other Change in Net Assets or Fund Balances Form 990, Part XI, Line 9 CHANGE IN PERPETUAL TRUST $881,768 Change in split interest -576,796 Acquisition of dissolved chapters 1,682,128 Bad Debt -626,160 TOTAL $1,360,940
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 51056K
Schedule O (Form 990 or 990-EZ) 2012

Additional Data


Software ID:  
Software Version:  
SCHEDULE R
(Form 990)
Department of the Treasury
Internal Revenue Service
Related Organizations and Unrelated Partnerships
MediumBulletComplete if the organization answered "Yes" to Form 990, Part IV, line 33, 34, 35, 36, or 37.
MediumBulletAttach to Form 990. MediumBullet See separate instructions.

OMB No. 1545-0047
2012
Open to Public Inspection
Name of the organization
Alzheimer's Disease & Related Disorders
Association Inc
Employer identification number

13-3039601
Part I
Identification of Disregarded Entities (Complete if the organization answered "Yes" to Form 990, Part IV, line 33.)
(a)
Name, address, and EIN (if applicable) of disregarded entity


(b)
Primary activity


 		(c)
Legal domicile (state
or foreign country)

 		(d)
Total income


 		(e)
End-of-year assets


 		(f)
Direct controlling
entity










Part II
Identification of Related Tax-Exempt Organizations (Complete if the organization answered "Yes" to Form 990, Part IV, line 34 because it had one or more related tax-exempt organizations during the tax year.)
(a)
Name, address, and EIN of related organization


(b)
Primary activity


 		(c)
Legal domicile (state
or foreign country)

 		(d)
Exempt Code section


 		(e)
Public charity status
(if section 501(c)(3))

 		(f)
Direct controlling
entity

 		(g)
Section 512(b)(13) controlled entity?
Yes No
(1) Alzheimer's Impact Movement (AIM)

225 North Michigan Ave Suite 1700

Chicago,IL60601
27-1961435 		Soc Welfare IL 501c4   Alz Assoc
 
Yes
 












For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50135Y
Schedule R (Form 990) 2012
Schedule R (Form 990) 2012
Page 2
Part III
Identification of Related Organizations Taxable as a Partnership (Complete if the organization answered "Yes" to Form 990, Part IV, line 34 because it had one or more related organizations treated as a partnership during the tax year.)
(a)
Name, address, and EIN of
related organization



 		(b)
Primary activity




 		(c)
Legal
domicile
(state or foreign
country)


 		(d)
Direct controlling
entity



 		(e)
Predominant income(related, unrelated, excluded from tax under sections 512-514)

(f)
Share of total income




 		(g)
Share of end-of-year
assets



 		(h)
Disproprtionate allocations?




 		(i)
Code V—UBI
amount in box 20 of
Schedule K-1
(Form 1065)
 		(j)
General or
managing
partner?



 		(k)
Percentage
ownership
Yes No Yes No












Part IV
Identification of Related Organizations Taxable as a Corporation or Trust (Complete if the organization answered "Yes" to Form 990, Part IV, line 34 because it had one or more related organizations treated as a corporation or trust during the tax year.)
(a)
Name, address, and EIN of
related organization
 		(b)
Primary activity
 		(c)
Legal
domicile
(state or foreign
country)
 		(d)
Direct controlling
entity
 		(e)
Type of entity
(C corp, S corp,
or trust) 		(f)
Share of total income
 		(g)
Share of end-of-year
assets
 		(h)
Percentage
ownership
 		(i)
Section 512(b)(13) controlled entity?
Yes No












Schedule R (Form 990) 2012
Schedule R (Form 990) 2012
Page 3
Part V
Transactions With Related Organizations (Complete if the organization answered "Yes" to Form 990, Part IV, line 34, 35b, or 36.)
Note. Complete line 1 if any entity is listed in Parts II, III, or IV of this schedule.
Yes
No
1 During the tax year, did the orgranization engage in any of the following transactions with one or more related organizations listed in Parts II-IV?
a Receipt of (i) interest (ii) annuities (iii) royalties or (iv) rent from a controlled entity . . . . . . . . . . . . . . . . . . . . . . .
1a
 
No
b Gift, grant, or capital contribution to related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1b
Yes
 
c Gift, grant, or capital contribution from related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1c
 
No
d Loans or loan guarantees to or for related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1d
 
No
e Loans or loan guarantees by related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1e
 
No
f Dividends from related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1f
 
No
g Sale of assets to related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1g
 
No
h Purchase of assets from related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1h
 
No
i Exchange of assets with related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1i
 
No
j Lease of facilities, equipment, or other assets to related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1j
 
No
k Lease of facilities, equipment, or other assets from related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . .
1k
 
No
l Performance of services or membership or fundraising solicitations for related organization(s) . . . . . . . . . . . . . . . . . . . .
1l
 
No
m Performance of services or membership or fundraising solicitations by related organization(s) . . . . . . . . . . . . . . . . . . . .
1m
 
No
n Sharing of facilities, equipment, mailing lists, or other assets with related organization(s) . . . . . . . . . . . . . . . . . . . . .
1n
Yes
 
o Sharing of paid employees with related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1o
Yes
 
p Reimbursement paid to related organization(s) for expenses . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1p
 
No
q Reimbursement paid by related organization(s) for expenses . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1q
 
No
r Other transfer of cash or property to related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1r
 
No
s Other transfer of cash or property from related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1s
 
No
2
If the answer to any of the above is "Yes," see the instructions for information on who must complete this line, including covered relationships and transaction thresholds.
(a)
Name of other organization 		(b)
Transaction
type (a-s) 		(c)
Amount involved 		(d)
Method of determining amount involved
(1) Alzheimer's Impact Movement

 b 807,959 FMV
(2) Alzheimer's Impact Movement

 o 106,357 FMV




Schedule R (Form 990) 2012
Schedule R (Form 990) 2012
Page 4
Part VI
Unrelated Organizations Taxable as a Partnership (Complete if the organization answered "Yes" to Form 990, Part IV, line 37.)
Provide the following information for each entity taxed as a partnership through which the organization conducted more than five percent of its activities (measured by total assets or gross revenue) that was not a related organization. See instructions regarding exclusion for certain investment partnerships.
(a)
Name, address, and EIN of entity 		(b)
Primary activity 		(c)
Legal domicile
(state or foreign
country) 		(d)
Predominant income (related, unrelated, excluded from tax under section 512-514)

(e)
Are all partners
section
501(c)(3)
organizations? 		(f)
Share of total income




 		(g)
Share of
end-of-year
assets 		(h)
Disproprtionate allocations? 		(i)
Code V—UBI
amount in box 20
of Schedule K-1
(Form 1065) 		(j)
General or
managing
partner? 		(k)
Percentage
ownership
Yes No Yes No Yes No






























Schedule R (Form 990) 2012
Schedule R (Form 990) 2012
Page 5
Part VII
Supplemental Information
Complete this part to provide additional information for responses to questions on Schedule R (see instructions).
Identifier Return Reference Explanation
Amount Involved in Relationship Schedule R, Part V, Line 2 Alzheimer's Association granted funds to Alzheimer's Impact Movement (AIM) for public policy division activities in fiscal year 2013 to support the leadership roles identified in the strategic plan of the Alzheimer's Association. This grant is restricted to the following 501(c)(3) activities and the ancillary activities necessary to accomplish the listed activities: Implementation of the national Alzheimer's Project Act: Recognizing this growing Alzheimer's crisis, Congress unanimously passed and President Obama signed into law the National Alzheimer's Project Act (NAPA); Increasing the commitment to Alzheimer's research; Expanding education efforts and caregiver support services; Expanding diagnosis and care planning.

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