Department of the Treasury Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section
4947(a)(1) nonexempt charitable trust.
Attach to Form 990 or Form 990-EZ. See separate instructions. Information about Schedule A (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.
OMB No. 1545-0047
2013
Open to Public Inspection
Name of the organization
EDUCATION NETWORK TO ADVANCE CANCER CLINICAL TRIALS
Employer identification number
75-3170106
Part I
Reason for Public Charity Status
(All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 11, check only one box.)
1
2
3
4
5
section 170(b)(1)(A)(iv). (Complete Part II.)
6
7
8
9
receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of
its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses
acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)
10
11
e
By checking this box, I certify that the organization is not controlled directly or indirectly by one or more disqualified persons other than foundation managers and other than one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2).
f
If the organization received a written determination from the IRS that it is a Type I, Type II, or Type III supporting organization, check this box
..................................................
g
Since August 17, 2006, has the organization accepted any gift or contribution from any of the following persons?
(i) A person who directly or indirectly controls, either alone or together with persons described in (ii)
Yes
No
and (iii) below, the governing body of the supported organization?
................
11g(i)
(ii)
A family member of a person described in (i) above?
......................
11g(ii)
(iii)
A 35% controlled entity of a person described in (i) or (ii) above?
................
11g(iii)
h
Provide the following information about the supported organization(s).
(i) Name of supported organization
(ii) EIN
(iii) Type of organization (described on lines 1- 9 above or IRC section (see instructions))
(iv) Is the organization in col. (i) listed in your governing document?
(v) Did you notify the organization in col. (i) of your support?
(vi) Is the organization in col. (i) organized in the U.S.?
(vii) Amount of monetary support
Yes
No
Yes
No
Yes
No
Total
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990EZ.
Cat. No. 11285F
Schedule A (Form 990 or 990-EZ) 2013
Schedule A (Form 990 or 990-EZ) 2013
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi) (Complete only if you checked the box on line 5, 7, or 8 of Part I or if the
organization failed to qualify under Part III. If the organization fails to
qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") ....
1,138,033
951,097
632,409
317,915
270,627
3,310,081
2
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.......
3
The value of services or facilities furnished by a governmental unit to the organization without charge..
4
Total. Add lines 1 through 3
1,138,033
951,097
632,409
317,915
270,627
3,310,081
5
The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included
on line 1 that exceeds 2% of the amount shown on line 11, column (f)..
996,145
6
Public support. Subtract line 5 from line 4.
2,313,936
Section B. Total Support
Calendar year
(or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
7
Amounts from line 4..
1,138,033
951,097
632,409
317,915
270,627
3,310,081
8
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...
1,008
1,419
565
416
113
3,521
9
Net income from unrelated business activities, whether or not the business is regularly carried on..
10
Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)..
11
Total support (Add lines 7 through 10).
3,313,602
12
Gross receipts from related activities, etc. (see instructions)
..................
12
516,043
13
First five years.
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here.................................................
Section C. Computation of Public Support Percentage
14
Public support percentage for 2013 (line 6, column (f) divided by line 11, column (f))
.........
14
69.830 %
15
Public support percentage for 2012 Schedule A, Part II, line 14
...............
15
84.680 %
16a
33 1/3% support test—2013.
If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization
.......................
b
33 1/3% support test—2012.
If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization
.....................
17a
10%-facts-and-circumstances test—2013.
If the organization did not check a box on line 13, 16a, or 16b, and line 14
is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain
in Part IV how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported
organization
.....................................................
b
10%-facts-and-circumstances test—2012.
If the organization did not check a box on line 13, 16a, 16b, or 17a, and line
15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here.
Explain in Part IV how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization
................................................
18
Private foundation.
If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions
.....................................................
Schedule A (Form 990 or 990-EZ) 2013
Schedule A (Form 990 or 990-EZ) 2013
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2) (Complete only if you checked the box on line 9 of Part I or if the organization
failed to qualify under Part II. If the organization fails to qualify under
the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2
Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose......
3
Gross receipts from activities that are not an unrelated trade or business under section 513..
4
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5
The value of services or facilities furnished by a governmental unit to the organization without charge..
6
Total. Add lines 1 through 5.
7a
Amounts included on lines 1, 2, and 3 received from disqualified persons...
b
Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c
Add lines 7a and 7b..
8
Public support (Subtract line 7c from line 6.)
Section B. Total Support
Calendar year (or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
9
Amounts from line 6...
10a
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b
Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c
Add lines 10a and 10b.
11
Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12
Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)
..
13
Total support. (Add lines 9, 10c, 11, and 12.)..
14
First five years.
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here.............................................
Section C. Computation of Public Support Percentage
15
Public support percentage for 2013 (line 8, column (f) divided by line 13, column (f))
.........
15
16
Public support percentage from 2012 Schedule A, Part III, line 15
...............
16
Section D. Computation of Investment Income Percentage
17
Investment income percentage for 2013 (line 10c, column (f) divided by line 13, column (f))
......
17
18
Investment income percentage from 2012 Schedule A, Part III, line 17
.............
18
19a
33 1/3% support tests—2013.
If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
........
b
33 1/3% support tests—2012.
If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
.....
20
Private foundation.
If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions
.....
Schedule A (Form 990 or 990-EZ) 2013
Schedule A (Form 990 or 990-EZ) 2013
Page 4
Part IV
Supplemental Information.
Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; and Part III, line 12. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
Explanation
Schedule A (Form 990 or 990-EZ) 2013
Additional Data
Software ID:
Software Version:
-
TIN:
SCHEDULE O (Form 990 or 990-EZ)
Department of the Treasury Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ
Complete to provide information for responses to specific questions on
Form 990 or to provide any additional information.
Attach to Form 990 or 990-EZ.
Information about Schedule O (Form 990 or 990-EZ) and its instructions is at
www.irs.gov/form990.
OMB No. 1545-0047
2013
Open to Public Inspection
Name of the organization
EDUCATION NETWORK TO ADVANCE CANCER CLINICAL TRIALS
Employer identification number
75-3170106
Return Reference
Explanation
FORM 990 - ORGANIZATION'S MISSION
ENACCT'S MISSION IS TO IMPROVE ACCESS TO CANCER CLINICAL TRIALS THROUGH EDUCATION AND COLLABORATION WITH COMMUNITIES, HEALTH CARE PROVIDERS, AND RESEARCHERS. ENACCT'S VISION IS TO ACHIEVE THE HIGHEST QUALITY CANCER CARE AND RESEARCH THROUGH CLINICAL TRIALS.
FORM 990, PAGE 1, PART I, LINE 6
EXPERT ADVISORS FROM THE FIELDS OF ONCOLOGY, RESEARCH, EVALUATION, EDUCATION, AND ADVOCACY HAVE DONATED SIGNIFICANT AMOUNTS OF TIME TOTALING ABOUT 650 HOURS IN 2013
FORM 990, PAGE 2, PART III, LINE 4A
HEALTH CARE PROVIDER TRAINING "DEVELOPED A PATIENT DISCUSSION GUIDE FOR BOSTON MEDICAL CENTER. THE GUIDE IS INTENDED TO ASSIST NAVIGATORS IN DISCUSSING POTENTIAL TRIAL PARTICIPATION IN THE CLINIC SETTING. BMC USE OF THE GUIDE IS PENDING. "COMPLETED PROMOTION AND MONITORING OF CME-ACCREDITED ONLINE TRAINING DEVELOPED IN COLLABORATION WITH THE CENTER FOR ASIAN HEALTH. THE COURSE WAS DESIGNED FOR PRIMARY CARE PROVIDERS SERVING ASIAN PATIENTS TO INCREASE THEIR KNOWLEDGE OF CANCER CLINICAL TRIALS, ENCOURAGE DISCUSSION WITH PATIENTS ABOUT TRIALS, AND REFER PATIENTS TO CANCER CARE SITES THAT OFFER TRIALS. PROGRAMS "PLANNED AND COMPLETED THE NATIONAL CANCER CLINICAL TRIALS COLLABORATIVE LEARNING NETWORK, A PATIENT-CENTERED QUALITY IMPROVEMENT PROGRAM TO IMPROVE CANCER CLINICAL TRIAL RECRUITMENT, ACCRUAL AND RETENTION. THE LEARNING NETWORK PROVIDED 19 RESEARCH TEAMS - FROM BOTH COMMUNITY ONCOLOGY PRACTICES AND ACADEMIC CENTER - WITH TOOLS AND TECHNIQUES TO IDENTIFY AND CAPITALIZE ON SPECIFIC OPPORTUNITIES FOR IMPROVEMENT TO EXPAND ACCRUAL AND INCREASE EFFICIENCY. UTILIZING LESSONS LEARNED AND FEEDBACK FROM THE ORIGINAL PILOT LEARNING COLLABORATIVE, ENACCT SHOWED THE FEASIBILITY OF USING THE MODEL FOR RESEARCH TEAMS TO EFFECTIVELY EVALUATE AND REVIEW THEIR CURRENT PROCEDURES FOR GAPS AND LEAKS. "CONTINUED HOSTING A FREE, MONTHLY POLICY WEBINAR SERIES WHICH AIMED TO RAISE AWARENESS AND ENHANCE UNDERSTANDING OF SIGNIFICANT POLICY ISSUES IMPACTING CANCER CLINICAL TRIAL ACCRUAL. THROUGH THIS SERIES, ENACCT WAS ABLE TO CONTINUE ITS ADVOCACY FOR SYSTEM CHANGES TO FACILITATE ALL CANCER PATIENTS BEING SCREENED FOR AVAILABLE TRIALS, ALL TRIAL ELIGIBLE PATIENTS BEING APPROACHED BY THE ONCOLOGIST AND ALL TRIAL ELIGIBLE PATIENTS INTERESTED IN PARTICIPATION BEING SUCCESSFULLY ENROLLED. A TOTAL OF 12 WEBINARS WERE COMPLETED IN 2013, AVERAGING NEARLY 300 REGISTRANTS AND EACH RECEIVING VERY POSITIVE FEEDBACK. AN ADDITIONAL 2 WEBINARS ARE SCHEDULED TO TAKE PLACE IN JANUARY AND FEBRUARY OF 2014. "IMPLEMENTED PATIENT NAVIGATION IN CANCER CLINICAL TRIALS, A PILOT DEMONSTRATION PROGRAM DESIGNED TO PROMOTE PATIENT SELF-ADVOCACY, QUESTION- LISTING AND COMMUNICATION ABOUT POTENTIAL RESEARCH PARTICIPATION IN THE CLINICAL TRIAL SETTING. WITH INPUT FROM A NATIONAL ADVISORY COMMITTEE, THE PILOT SELECTED 2 PERFORMANCE SITES, WITH EACH INSTITUTION IMPLEMENTING THE INTERVENTION AND MONITORING TRIAL ACCRUAL OVER A SIX MONTH PERIOD. DEVELOPMENT "DEVELOPED THE 360 CANCER TRIAL ACCRUAL SELF-ASSESSMENT TOOL. THIS TOOL IS DESIGNED TO HELP COMMUNITY CANCER CENTERS AND NETWORKS EVALUATE AND IMPROVE THEIR OWN CANCER CLINICAL TRIALS ACCRUAL USING 7 CRITICAL DIMENSIONS. THE 7 DIMENSIONS INCLUDE: (1) MISSION, STRATEGY AND VISION, (2) TRIAL SELECTION AND INITIATION, (3) PEOPLE AND TOOLS, (4) ACCRUAL PROCESSES AND PROCEDURES, (5) FINANCE AND MANAGEMENT, (6) COMMUNITY OUTREACH, AND (7) COMMUNICATION PRACTICES. THIS TOOL IS DESIGNED AS A GUIDED ANALYSIS WHICH CAN BE COMPLETED ONLINE, IDEALLY BY THE CANCER RESEARCH LEADERSHIP TEAM WITH DATA PROVIDED BY THE STAFF. IT IS DESIGNED TO FOCUS THE ATTENTION OF THE LEADERSHIP TEAM ON BOTH QUALITATIVE AND QUANTITATIVE FACTORS ACROSS THE CRITICAL DIMENSIONS OF AN EFFECTIVE CLINICAL TRIALS PROCESS. THE TOOL INCLUDES THREE ELEMENTS: (1) EXCEL BASED DATA COLLECTION TOOL ALLOWING FOR EASY COMPILATION AND EVALUATION OF ALL DATA NEEDED TO COMPLETE THE ASSESSMENT, (2) A WEB-BASED ASSESSMENT SURVEY INTENDED TO BE COMPLETED BY THE RESEARCH LEADERSHIP TEAM, AND (3) THE QUICK 360 SURVEY WHICH CONSISTS OF A SUBSET OF QUESTIONS FROM THE WEB-BASED ASSESSMENT SURVEY AND IS INTENDED TO BE COMPLETED BY ACCRUING PHYSICIANS AND RESEARCH STAFF NOT INVOLVED IN COMPLETING THE WEB-BASED ASSESSMENT. THIS TOOL WAS TESTED AMONG 19 RESEARCH TEAMS. 100% OF THE TEAMS FOUND THE PROCESS OF COMPLETING THE SELF-ASSESSMENT TO BE VERY OR SOMEWHAT HELPFUL, AND 92% FOUND THE RESULTS TO BE VERY OR SOMEWHAT HELPFUL IN STRATEGICALLY IDENTIFYING AREAS FOR IMPROVEMENT IN THEIR PROCESSES. "COMPETENCIES FOR CLINICAL TRIAL ACCRUAL PROFESSIONALS. FOLLOWING EXTENSIVE REVIEW OF EXISTING PROFESSIONAL STANDARDS FOR INDIVIDUALS THAT WORK IN THE CANCER RESEARCH SETTING, ENACCT IDENTIFIED A SET OF KEY COMPETENCIES, CATEGORIZED ACCORDING TO SEVEN CORE DOMAINS THAT ARE DEEMED ESSENTIAL FOR PERSONNEL TO HAVE IN ORDER TO EFFECTIVELY IDENTIFY, APPROACH, ENROLL AND RETAIN PATIENTS ONTO CANCER CLINICAL TRIALS. CLINICAL TRIAL STAFF TRAINING "ENACCT COMPLETED OPEN TO OPTIONS PLUS, A TRAINING INITIATIVE FOR ONCOLOGY PROFESSIONALS IN COLLABORATION WITH THE CANCER SUPPORT COMMUNITY. EIGHTY- FOUR HEALTH PROFESSIONALS TRAINED ACROSS 4 CSC TRAINING SITES. FOLLOWING TRAINING, SIGNIFICANT IMPROVEMENT WERE OBSERVED IN 8 OUT OF 17 KNOWLEDGE AREAS. AMONG RESPONDENTS AT POST (N=76), 50% WERE VERY LIKELY AND 43% SOMEWHAT LIKELY TO MAKE CHANGES IN RECRUITMENT AND RETENTION PRACTICES AS A RESULT OF TRAINING. AMONG RESPONDENTS 3 MONTHS POST-TRAINING, (N=21), 60% HAD DECIDED TO WORK WITHIN THEIR ORGANIZATION ON CHANGES TO STRENGTHEN TRIALS RECRUITMENT, RETENTION AND COMMUNICATION PRACTICES
FORM 990, PAGE 6, PART VI, LINE 11B
THE 990 WAS REVIEWED BY THE EXECUTIVE DIRECTOR. ALL CHANGES WERE INCORPORATED.
FORM 990, PAGE 6, PART VI, LINE 12C
ENNACT'S POLICY IS REVIEWED YEARLY BY STAFF THROUGH THE EMPLOYEE MANUAL AND YEARLY EVALUATIONS. THE POLICY IS SIGNED YEARLY BY ALL BOARD MEMBERS.
FORM 990, PAGE 6, PART VI, LINE 15A
THERE IS A YEARLY REVIEW OF COMPARABLE SALARIES FROM NATIONAL NON-PROFITS AND THOSE IN DC. SALARY RANGES ARE REVIEWED AND APPROVED BY EXECUTIVE COMMITTEE OF BOARD.
FORM 990, PAGE 6, PART VI, LINE 19
UPON REQUEST COPIES ARE MADE AND SENT OUT OF IRS FORM 990'S AND 1023'S