Department of the Treasury Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section
4947(a)(1) nonexempt charitable trust.
Attach to Form 990 or Form 990-EZ. See separate instructions. Information about Schedule A (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.
OMB No. 1545-0047
2013
Open to Public Inspection
Name of the organization
PSC PARTNERS SEEKING A CURE
Employer identification number
20-2112635
Part I
Reason for Public Charity Status
(All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 11, check only one box.)
1
2
3
4
5
section 170(b)(1)(A)(iv). (Complete Part II.)
6
7
8
9
receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of
its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses
acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)
10
11
e
By checking this box, I certify that the organization is not controlled directly or indirectly by one or more disqualified persons other than foundation managers and other than one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2).
f
If the organization received a written determination from the IRS that it is a Type I, Type II, or Type III supporting organization, check this box
..................................................
g
Since August 17, 2006, has the organization accepted any gift or contribution from any of the following persons?
(i) A person who directly or indirectly controls, either alone or together with persons described in (ii)
Yes
No
and (iii) below, the governing body of the supported organization?
................
11g(i)
(ii)
A family member of a person described in (i) above?
......................
11g(ii)
(iii)
A 35% controlled entity of a person described in (i) or (ii) above?
................
11g(iii)
h
Provide the following information about the supported organization(s).
(i) Name of supported organization
(ii) EIN
(iii) Type of organization (described on lines 1- 9 above or IRC section (see instructions))
(iv) Is the organization in col. (i) listed in your governing document?
(v) Did you notify the organization in col. (i) of your support?
(vi) Is the organization in col. (i) organized in the U.S.?
(vii) Amount of monetary support
Yes
No
Yes
No
Yes
No
Total
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990EZ.
Cat. No. 11285F
Schedule A (Form 990 or 990-EZ) 2013
Schedule A (Form 990 or 990-EZ) 2013
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi) (Complete only if you checked the box on line 5, 7, or 8 of Part I or if the
organization failed to qualify under Part III. If the organization fails to
qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") ....
2
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.......
3
The value of services or facilities furnished by a governmental unit to the organization without charge..
4
Total. Add lines 1 through 3
5
The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included
on line 1 that exceeds 2% of the amount shown on line 11, column (f)..
6
Public support. Subtract line 5 from line 4.
Section B. Total Support
Calendar year
(or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
7
Amounts from line 4..
8
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...
9
Net income from unrelated business activities, whether or not the business is regularly carried on..
10
Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)..
11
Total support (Add lines 7 through 10).
12
Gross receipts from related activities, etc. (see instructions)
..................
12
13
First five years.
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here.................................................
Section C. Computation of Public Support Percentage
14
Public support percentage for 2013 (line 6, column (f) divided by line 11, column (f))
.........
14
15
Public support percentage for 2012 Schedule A, Part II, line 14
...............
15
16a
33 1/3% support test—2013.
If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization
.......................
b
33 1/3% support test—2012.
If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization
.....................
17a
10%-facts-and-circumstances test—2013.
If the organization did not check a box on line 13, 16a, or 16b, and line 14
is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain
in Part IV how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported
organization
.....................................................
b
10%-facts-and-circumstances test—2012.
If the organization did not check a box on line 13, 16a, 16b, or 17a, and line
15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here.
Explain in Part IV how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization
................................................
18
Private foundation.
If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions
.....................................................
Schedule A (Form 990 or 990-EZ) 2013
Schedule A (Form 990 or 990-EZ) 2013
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2) (Complete only if you checked the box on line 9 of Part I or if the organization
failed to qualify under Part II. If the organization fails to qualify under
the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
259,417
429,367
451,976
422,979
490,953
2,054,692
2
Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose......
85,080
112,314
125,976
323,370
3
Gross receipts from activities that are not an unrelated trade or business under section 513..
4
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5
The value of services or facilities furnished by a governmental unit to the organization without charge..
6
Total. Add lines 1 through 5.
259,417
429,367
537,056
535,293
616,929
2,378,062
7a
Amounts included on lines 1, 2, and 3 received from disqualified persons...
b
Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c
Add lines 7a and 7b..
8
Public support (Subtract line 7c from line 6.)
2,378,062
Section B. Total Support
Calendar year (or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
9
Amounts from line 6...
259,417
429,367
537,056
535,293
616,929
2,378,062
10a
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
6,510
10,711
12,403
13,986
12,131
55,741
b
Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c
Add lines 10a and 10b.
6,510
10,711
12,403
13,986
12,131
55,741
11
Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12
Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)
..
26,390
26,390
13
Total support. (Add lines 9, 10c, 11, and 12.)..
292,317
440,078
549,459
549,279
629,060
2,460,193
14
First five years.
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here.............................................
Section C. Computation of Public Support Percentage
15
Public support percentage for 2013 (line 8, column (f) divided by line 13, column (f))
.........
15
96.660 %
16
Public support percentage from 2012 Schedule A, Part III, line 15
...............
16
95.150 %
Section D. Computation of Investment Income Percentage
17
Investment income percentage for 2013 (line 10c, column (f) divided by line 13, column (f))
......
17
2.000 %
18
Investment income percentage from 2012 Schedule A, Part III, line 17
.............
18
3.000 %
19a
33 1/3% support tests—2013.
If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
........
b
33 1/3% support tests—2012.
If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
.....
20
Private foundation.
If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions
.....
Schedule A (Form 990 or 990-EZ) 2013
Schedule A (Form 990 or 990-EZ) 2013
Page 4
Part IV
Supplemental Information.
Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; and Part III, line 12. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
Explanation
Schedule A (Form 990 or 990-EZ) 2013
Additional Data
Software ID:
Software Version:
-
TIN:
SCHEDULE O (Form 990 or 990-EZ)
Department of the Treasury Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ
Complete to provide information for responses to specific questions on
Form 990 or to provide any additional information.
Attach to Form 990 or 990-EZ.
Information about Schedule O (Form 990 or 990-EZ) and its instructions is at
www.irs.gov/form990.
OMB No. 1545-0047
2013
Open to Public Inspection
Name of the organization
PSC PARTNERS SEEKING A CURE
Employer identification number
20-2112635
Return Reference
Explanation
FORM 990 - ORGANIZATION'S MISSION
THE MISSION OF THE PSC PARTNERS SEEKING A CURE FOUNDATION IS TO PROVIDE EDUCATION AND SUPPORT TO PSC PATIENTS, FAMILIES AND CAREGIVERS AND TO RAISE FUNDS TO RESEARCH CAUSES, TREATMENTS AND POTENTIAL CURES FOR PRIMARY SCLEROSING CHOLANGITIS. OTHER SIGNIFICANT ACTIVITIES THE MEMBERS OF THE PSCP SCIENTIFIC/MEDICAL ADVISORY COMMITTEE ARE ACTIVELY ENGAGED IN DECIDING WHERE TO ALLOCATE OUR FUNDS FOR PSC RESEARCH. THROUGH THIS COMPETITIVE PROGRAM, PSCP HAS AWARDED RESEARCH GRANTS TO PROMINENT PSC RESEARCHERS. THE PSC PARTNERS SEEKING A CURE LITERATURE SITE IS THE PREMIER AND MOST EXTENSIVE WEBSITE FOR INFORMATION ON PSC AND CONTINUES TO BE UPDATED WEEKLY TO PROVIDE PSC PATIENTS, CAREGIVERS, PHYSICIANS, AND RESEARCHERS WITH EASY ACCESS TO A VAST BODY OF INFORMATION CONCERNING PSC AND ALLIED DISEASES. SINCE 2005 PSCP HAS HELD ANNUAL PATIENT CONFERENCES FOR PSC PATIENTS AND CAREGIVERS AT DIFFERENT MEDICAL CENTERS THROUGHOUT THE COUNTRY. THESE WEEKEND CONFERENCES OFFER THE OPPORTUNITY TO LEARN ABOUT THE MOST RECENT ADVANCES IN PSC TREATMENTS AND RESEARCH AND ALSO TO SHARE EXPERIENCES, ADVICE, AND CONCERNS WITH OTHER PSCERS. PSCP HAS STARTED HOLDING LOCAL FORUMS FOR PSC PATIENTS AND CAREGIVERS. THE PSC PARTNERS SEEKING A CURE WEBSITE INCLUDES ADVICE AND PERSONAL STORIES FROM OUR MEMBERS, SO THAT WE CAN OFFER VALUABLE EVERYDAY LIVING SUGGESTIONS TO PSCERS IN ADDITION TO UPDATES ON TREATMENTS AND MEDICAL RESEARCH. IN ADDITION, PSCP PUBLISHES A FREE ONLINE NEWSLETTER WITH UPDATES ABOUT THE LATEST TREATMENTS, RESEARCH RESULTS, AND COPING SUGGESTIONS.
FORM 990, PAGE 6, PART VI, LINE 11B
ALL MEMBERS OF THE BOARD OF DIRECTORS RECEIVE A COPY OF THE 990 PRIOR TO IT BEING FILED.
FORM 990, PAGE 6, PART VI, LINE 12C
ANNUAL DISCLOSURE OF CONFLICTS OF INTEREST REQUIRED.
FORM 990, PAGE 6, PART VI, LINE 15A
CEO AND BOARD OF DIRECTORS DO NOT RECEIVE COMPENSATION COMPENSATION POLICY FOR EXECUTIVE DIRECTOR THE CORPORATION'S PRIMARY OBJECTIVE IS TO PROVIDE REASONABLE AND COMPETITIVE EXECUTIVE TOTAL COMPENSATION CONSISTENT WITH MARKET-BASED COMPENSATION PRACTICES FOR INDIVIDUALS POSSESSING THE EXPERIENCE AND SKILLS NEEDED TO IMPROVE THE OVERALL PERFORMANCE OF THE ORGANIZATION. THE ORGANIZATION'S EXECUTIVE COMPENSATION POLICY IS DESIGNED TO: A) ENCOURAGE THE ATTRACTION AND RETENTION OF HIGH-CALIBER EXECUTIVES. B) PROVIDE A COMPETITIVE TOTAL COMPENSATION PACKAGE, INCLUDING BENEFITS. C) ENSURE THAT PAY IS PERCEIVED TO BE FAIR AND EQUITABLE. D) ENSURE THAT THE POLICY COMPLIES WITH I.R.S. REGULATIONS AND STATE AND FEDERAL LEGISLATION. ESTABLISHMENT OF COMPENSATION COMMITTEE A COMPENSATION COMMITTEE OF THE BOARD WILL BE ESTABLISHED ANNUALLY BY THE BOARD CHAIR AS AN AD HOC COMMITTEE. THE COMPENSATION COMMITTEE WILL ADMINISTER THIS POLICY. THE FOLLOWING COMPONENTS WILL BE PRESENT IN THE PROCESS OF SETTING EXECUTIVE COMPENSATION: REVIEW/APPROVAL BY THE BOARD. NO INVOLVEMENT OF PERSONS WITH CONFLICTS OF INTEREST. COLLECTION AND USE OF COMPENSATION DATA FOR SIMILARLY QUALIFIED PERSONS IN COMPARABLE POSITIONS AT SIMILARLY SITUATED ORGANIZATIONS. CONTEMPORANEOUS DOCUMENTATION AND RECORDKEEPING. REVIEW/APPROVAL BY THE BOARD THE CORPORATION'S EXECUTIVE COMPENSATION POLICY IS ADMINISTERED BY THE COMPENSATION COMMITTEE OF THE BOARD. THE COMPENSATION COMMITTEE IS RESPONSIBLE FOR ESTABLISHING AND MAINTAINING A COMPETITIVE COMPENSATION POLICY FOR THE KEY EXECUTIVES OF THE ORGANIZATION. THE COMMITTEE MEETS AS NEEDED TO REVIEW THE COMPENSATION POLICY AND MAKE RECOMMENDATIONS FOR ANY CHANGES TO THE BOARD, AS APPROPRIATE. NO INVOLVEMENT OF PERSONS WITH CONFLICTS OF INTEREST THE BOARD CHAIR, IN APPOINTING THE COMPENSATION COMMITTEE WILL ENSURE THAT NO MEMBER OF THE COMPENSATION COMMITTEE HAS A CONFLICT OF INTEREST THAT WOULD IMPAIR THEIR ABILITY TO BE FAIR AND IMPARTIAL TO THE COMPENSATION PROCESS. FURTHER, THE COMPENSATION COMMITTEE WILL ENGAGE AN INDEPENDENT FIRM TO REVIEW COMPARABLE COMPENSATION DATA, ALONG WITH THE PROPOSED COMPENSATION FOR KEY EXECUTIVES. COLLECTION AND USE OF COMPENSATION DATA COMPENSATION MUST BE COMMENSURATE WITH THE DUTIES AND RESPONSIBILITIES OF THE PERSON BEING COMPENSATED. REASONABLE COMPENSATION IS THE AMOUNT THAT WOULD ORDINARILY BE PAID FOR LIKE SERVICES BY LIKE ENTERPRISES, WHETHER TAXABLE OR TAX-EXEMPT, UNDER LIKE CIRCUMSTANCES. IN ORDER TO SATISFY THE REBUTTABLE PRESUMPTION SAFE HARBOR PROCEDURE, THE COMPENSATION COMMITTEE WILL RELY ON THE FOLLOWING DEFINITIONS WHEN SEEKING COMPARABILITY DATA TO MAKE ITS DETERMINATION REGARDING COMPENSATION ISSUES. LIKE SERVICES. IN COMPARING AN INDIVIDUAL'S COMPENSATION TO ANOTHER INDIVIDUAL'S COMPENSATION, THE COMPARISON MUST BE BASED ON SUBSTANTIALLY SIMILAR DUTIES AND RESPONSIBILITIES. THE I.R.S. HAS STATED THAT THE KEY IS COMPARING DUTIES AND RESPONSIBILITIES, A FUNCTIONAL COMPARISON, AND NOT THE JOB TITLE. TO DETERMINE WHETHER THE INDIVIDUAL'S COMPENSATION IS COMMENSURATE WITH OTHERS IN THE SAME POSITION AND THUS REASONABLE, THE I.R.S. CONSIDERS, AMONG OTHER FACTORS: THE INDIVIDUAL'S DUTIES AND RESPONSIBILITIES. THE NUMBER OF EMPLOYEES THE INDIVIDUAL MANAGES. THE SIZE OF THE BUDGET OR ASSETS THE INDIVIDUAL MANAGES. THE NUMBER OF HOURS WORKED. WHETHER THE JOB IS NATIONAL OR LOCAL IN SCOPE. WHETHER THE INDIVIDUAL MANAGES MULTIPLE FUNCTIONS OR DEPARTMENTS. LIKE ENTERPRISES. COMPARISONS OF ENTERPRISES NEED TO BE BASED ON ENTITIES OF SIMILAR SIZE. INDICATORS OF SIZE INCLUDE NUMBER OF EMPLOYEES, NUMBER OF PERSONS SERVED BY THE ORGANIZATION, BUDGET AND REVENUES. ADDITIONALLY, THE COMPARABLES SHOULD COME FROM THE SAME INDUSTRY SO AS TO BEST MATCH THE INDIVIDUAL'S DUTIES AND RESPONSIBILITIES. TAX-EXEMPT ORGANIZATIONS CAN LOOK TO BOTH THE FOR-PROFIT AND NON-PROFIT SECTORS TO DETERMINE REASONABLE COMPENSATION. LIKE CIRCUMSTANCES. COMPENSATION PACKAGES BEING COMPARED MUST CONSIST OF A SIMILAR MIX OF COMPENSATION ITEMS. ALL FORMS OF COMPENSATION MUST BE PROPERLY AGGREGATED AND ACCOUNTED AND INCLUDED IN TOTAL COMPENSATION. THE ORGANIZATION SHOULD ALSO USE COMPARABLES FROM THE SAME GEOGRAPHIC AREA WHERE POSSIBLE. THE AVAILABILITY OF SIMILAR SERVICES IN THE GEOGRAPHIC AREA OF THE ORGANIZATION IS RELEVANT TO DETERMINING THE APPROPRIATE LEVEL OF COMPENSATION. IF THERE ARE NOT COMPARABLES IN THE GEOGRAPHIC AREA, THE TAX-EXEMPT ORGANIZATION CAN GO OUTSIDE OF THAT GEOGRAPHIC AREA FOR COMPARABLES BUT MUST MAKE APPROPRIATE COST-OF-LIVING ADJUSTMENTS. THE COMPENSATION COMMITTEE WILL USE AT LEAST THREE COMPARABLES IN THE SAME OR SIMILAR COMMUNITIES FOR SIMILAR SERVICES. THE TARGET RANGE FOR TOTAL COMPENSATION FOR KEY EXECUTIVES IS AT OR BELOW THE FIFTIETH PERCENTILE FOR THE RELEVANT MARKET. CONTEMPORANEOUS DOCUMENTATION AND RECORDKEEPING THE COMPENSATION COMMITTEE WILL ADEQUATELY DOCUMENT THE BASIS FOR ITS DETERMINATION. TO "ADEQUATELY DOCUMENT" THE DECISION FOR PURPOSES OF THE REBUTTABLE PRESUMPTION PROCESS, THE RECORDS OF THE COMPENSATION COMMITTEE MUST STATE THE TERMS OF THE COMPENSATION PACKAGE THAT WERE APPROVED, THE DATE IT WAS APPROVED, THE MEMBERS OF THE BOARD WHO WERE PRESENT DURING THE DEBATE ON THE COMPENSATION ARRANGEMENT THAT WAS APPROVED AND THOSE WHO VOTED TO APPROVE OR REJECT IT. THE DOCUMENTATION SHOULD ALSO NOTE THE COMPARABILITY DATA OBTAINED AND RELIED UPON BY THE COMPENSATION COMMITTEE, HOW IT WAS OBTAINED. ADDITIONALLY, THE COMPENSATION COMMITTEE WILL RECORD THE BASIS FOR ITS DETERMINATION WHENEVER IT DECIDES THAT REASONABLE COMPENSATION IS HIGHER OR LOWER THAN THE RANGE OF COMPARABLE DATA RECEIVED. THE DOCUMENTATION MUST BE MADE CONCURRENTLY WITH THE DETERMINATION OF THE COMPENSATION ARRANGEMENT. RECORDS MUST BE PREPARED BY THE NEXT MEETING OR WITHIN 60 DAYS OF THE COMPENSATION COMMITTEE MEETING AND MUST BE REVIEWED AND APPROVED BY THE BOARD AS REASONABLE, ACCURATE AND COMPLETE WITHIN A REASONABLE TIME THEREAFTER.
FORM 990, PAGE 6, PART VI, LINE 19
UPON REQUEST
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.