Form990-PF
Click to see list of attachments

Department of the Treasury
Internal Revenue Service
Return of Private Foundation
or Section 4947(a)(1) Trust Treated as Private Foundation
bulletDo not enter Social Security numbers on this form as it may be made public. By law, the IRS cannot redact the information on the form.
bulletInformation about Form 990-PF and its instructions is at www.irs.gov/form990pf.
OMB No. 1545-0052
2013
Open to Public Inspection
For calendar year 2013, or tax year beginning 01-01-2013 , and ending 12-31-2013
Name of foundation
The Jain Foundation Inc
 

Number and street (or P.O. box number if mail is not delivered to street address)9725 Third Avenue NE   Room/suite
City or town, state or province, country, and ZIP or foreign postal code
Seattle, WA98117
A Employer identification number

20-0284800
B Telephone number (see instructions)

(425) 882-1492
C bullet
G Check all that apply:

D 1. bullet
2. bullet
E bullet
H Check type of organization:
I Fair market value of all assets at end
of year (from Part II, col. (c),
line 16)bullet$22,792,686J Accounting method:
 
(Part I, column (d) must be on cash basis.)
F bullet
Part I Analysis of Revenue and Expenses (The total of amounts in columns (b), (c), and (d) may not necessarily equal the amounts in column (a) (see instructions).) (a) Revenue and
expenses per
books 		(b) Net investment
income 		(c) Adjusted net
income 		(d) Disbursements
for charitable
purposes
(cash basis only)
Revenue 1 Contributions, gifts, grants, etc., received (attach schedule)  
2 Check bullet
3 Interest on savings and temporary cash investments 82 82  
4 Dividends and interest from securities......      
5a Gross rents..............      
b Net rental income or (loss)  
6a Net gain or (loss) from sale of assets not on line 10 5,055,584
b Gross sales price for all assets on line 6a 5,055,996
7 Capital gain net income (from Part IV, line 2)... 5,055,584
8 Net short-term capital gain.........  
9 Income modifications...........  
10a Gross sales less returns and allowances  
b Less: Cost of goods sold....  
c Gross profit or (loss) (attach schedule).....    
11 Other income (attach schedule)....... Click to see attachment 21,088    
12 Total. Add lines 1 through 11........ 5,076,754 5,055,666  
Operating and Administrative Expenses 13 Compensation of officers, directors, trustees, etc. 200,000     200,000
14 Other employee salaries and wages...... 429,816     429,816
15 Pension plans, employee benefits....... 60,533     60,533
16a Legal fees (attach schedule)......... Click to see attachment 9,750     7,312
b Accounting fees (attach schedule)....... Click to see attachment 5,010     3,758
c Other professional fees (attach schedule).... Click to see attachment 31,245     31,245
17 Interest............... 44      
18 Taxes (attach schedule) (see instructions) Click to see attachment 30,000      
19 Depreciation (attach schedule) and depletion...      
20 Occupancy.............. 44,615     44,615
21 Travel, conferences, and meetings....... 156,646     156,646
22 Printing and publications..........        
23 Other expenses (attach schedule)....... Click to see list of attachments 980,105     979,355
24 Total operating and administrative expenses.
Add lines 13 through 23.......... 1,947,764 0   1,913,280
25 Contributions, gifts, grants paid........ 1,900,450 1,900,450
26 Total expenses and disbursements. Add lines 24 and 25 3,848,214 0   3,813,730
27 Subtract line 26 from line 12:
a Excess of revenue over expenses and disbursements 1,228,540
b Net investment income (if negative, enter -0-) 5,055,666
c Adjusted net income (if negative, enter -0-)...  
For Paperwork Reduction Act Notice, see instructions.
Cat. No. 11289X Form 990-PF (2013)
Form 990-PF (2013)
Page 2
Part II Balance Sheets Attached schedules and amounts in the description column
should be for end-of-year amounts only. (See instructions.)		 Beginning of year End of year
(a) Book Value (b) Book Value (c) Fair Market Value
Assets 1 Cash—non-interest-bearing...............      
2 Savings and temporary cash investments.......... 113,669 1,440,421  
3 Accounts receivable bullet  
Less: allowance for doubtful accounts bullet        
4 Pledges receivable bullet  
Less: allowance for doubtful accounts bullet        
5 Grants receivable.................      
6 Receivables due from officers, directors, trustees, and other
disqualified persons (attach schedule) (see instructions).....      
7 Other notes and loans receivable (attach schedule) bullet2,901
Less: allowance for doubtful accounts bullet     2,901  
8 Inventories for sale or use...............      
9 Prepaid expenses and deferred charges........... 5,907 12,091  
10a Investments—U.S. and state government obligations (attach schedule)      
b Investments—corporate stock (attach schedule)........ 19,565,356 19,564,935 22,792,686
c Investments—corporate bonds (attach schedule)........      
11 Investments—land, buildings, and equipment: basis bullet  
Less: accumulated depreciation (attach schedule) bullet        
12 Investments—mortgage loans..............      
13 Investments—other (attach schedule)...........      
14 Land, buildings, and equipment: basis bullet  
Less: accumulated depreciation (attach schedule) bullet        
15 Other assets (describe bullet)      
16 Total assets (to be completed by all filers—see the
instructions. Also, see page 1, item I) 19,684,932 21,020,348 22,792,686
Liabilities 17 Accounts payable and accrued expenses.......... 36,932 24,356
18 Grants payable...................    
19 Deferred revenue..................    
20 Loans from officers, directors, trustees, and other disqualified persons    
21 Mortgages and other notes payable (attach schedule)......    
22 Other liabilities (describe bullet)    
23 Total liabilities (add lines 17 through 22).......... 36,932 24,356
Net Assets or Fund Balances bullet
and complete lines 24 through 26 and lines 30 and 31.
24 Unrestricted.................... 19,648,000 20,995,992
25 Temporarily restricted................    
26 Permanently restricted................    
bullet
and complete lines 27 through 31.
27 Capital stock, trust principal, or current funds.........    
28 Paid-in or capital surplus, or land, bldg., and equipment fund    
29 Retained earnings, accumulated income, endowment, or other funds    
30 Total net assets or fund balances (see page 17 of the
instructions).................... 19,648,000 20,995,992
31 Total liabilities and net assets/fund balances (see page 17 of
the instructions).................. 19,684,932 21,020,348
Part III Analysis of Changes in Net Assets or Fund Balances
1 Total net assets or fund balances at beginning of year—Part II, column (a), line 30 (must agree
with end-of-year figure reported on prior year’s return)............... 1 19,648,000
2 Enter amount from Part I, line 27a..................... 2 1,228,540
3 Other increases not included in line 2 (itemize) bulletClick to see attachment 3 119,452
4 Add lines 1, 2, and 3.......................... 4 20,995,992
5 Decreases not included in line 2 (itemize) bullet 5  
6 Total net assets or fund balances at end of year (line 4 minus line 5)—Part II, column (b), line 30. 6 20,995,992
Form 990-PF (2013)
Form 990-PF (2013)
Page 3
Part IV
Capital Gains and Losses for Tax on Investment Income
(a) List and describe the kind(s) of property sold (e.g., real estate,
2-story brick warehouse; or common stock, 200 shs. MLC Co.) 		(b) How acquired
P—Purchase
D—Donation 		(c) Date acquired
(mo., day, yr.) 		(d) Date sold
(mo., day, yr.)
1a
b
c
d
e
(e) Gross sales price (f) Depreciation allowed
(or allowable) 		(g) Cost or other basis
plus expense of sale 		(h) Gain or (loss)
(e) plus (f) minus (g)
a
b
c
d
e
Complete only for assets showing gain in column (h) and owned by the foundation on 12/31/69 (l) Gains (Col. (h) gain minus
col. (k), but not less than -0-) or
Losses (from col.(h))
(i) F.M.V. as of 12/31/69 (j) Adjusted basis
as of 12/31/69 		(k) Excess of col. (i)
over col. (j), if any
a
b
c
d
e
2 Capital gain net income or (net capital loss) Bracket If gain, also enter in Part I, line 7
If (loss), enter -0- in Part I, line 7		 Bracket 2 5,055,584
3 Net short-term capital gain or (loss) as defined in sections 1222(5) and (6):
If gain, also enter in Part I, line 8, column (c) (see instructions). If (loss), enter -0-
in Part I, line 8 . . . . . . . . . . . . . . . . 		Bracket 3  
Part V
Qualification Under Section 4940(e) for Reduced Tax on Net Investment Income
(For optional use by domestic private foundations subject to the section 4940(a) tax on net investment income.)

If section 4940(d)(2) applies, leave this part blank.
Was the foundation liable for the section 4942 tax on the distributable amount of any year in the base period?
If "Yes," the foundation does not qualify under section 4940(e). Do not complete this part.
1 Enter the appropriate amount in each column for each year; see page 18 of the instructions before making any entries.
(a)
Base period years Calendar
year (or tax year beginning in) 		(b)
Adjusted qualifying distributions 		(c)
Net value of noncharitable-use assets 		(d)
Distribution ratio
(col. (b) divided by col. (c))
2012 2,488,458 11,336,068 0.21952
2011 2,070,176 8,637,266 0.23968
2010 2,010,592 9,806,815 0.20502
2009 3,127,278 10,783,042 0.29002
2008 2,102,194 16,818,122 0.12500
2 Total of line 1, column (d) ...................... 2 1.07923
3 Average distribution ratio for the 5-year base period—divide the total on line 2 by 5, or by
the number of years the foundation has been in existence if less than 5 years. . . 		3 0.21585
4 Enter the net value of noncharitable-use assets for 2013 from Part X, line 5..... 4 23,984,328
5 Multiply line 4 by line 3....................... 5 5,176,921
6 Enter 1% of net investment income (1% of Part I, line 27b)........... 6 50,557
7 Add lines 5 and 6......................... 7 5,227,478
8 Enter qualifying distributions from Part XII, line 4.............. 8 3,813,730
If line 8 is equal to or greater than line 7, check the box in Part VI, line 1b, and complete that part using a 1% tax rate. See
the Part VI instructions.
Form 990-PF (2013)
Form 990-PF (2013)
Page 4
Part VI
Excise Tax Based on Investment Income (Section 4940(a), 4940(b), 4940(e), or 4948—see page 18 of the instructions)
1a Bulletand enter “N/A" on line 1. Bracket
Date of ruling or determination letter:   (attach copy of letter if necessary–see instructions)
b 1 101,113
hereBulletand enter 1% of Part I, line 27b...................
c All other domestic foundations enter 2% of line 27b. Exempt foreign organizations enter 4% of Part I, line 12, col. (b)
2 Tax under section 511 (domestic section 4947(a)(1) trusts and taxable foundations only. Others enter -0-) 2  
3 Add lines 1 and 2............................ 3 101,113
4 Subtitle A (income) tax (domestic section 4947(a)(1) trusts and taxable foundations only. Others enter -0-). 4  
5 Tax based on investment income. Subtract line 4 from line 3. If zero or less, enter -0- ..... 5 101,113
6 Credits/Payments:
a 2013 estimated tax payments and 2012 overpayment credited to 2013 6a 155,217
b Exempt foreign organizations—tax withheld at source....... 6b
c Tax paid with application for extension of time to file (Form 8868) 6c  
d Backup withholding erroneously withheld ........... 6d  
7 Total credits and payments. Add lines 6a through 6d.............. 7 155,217
8 Enter any penalty for underpayment of estimated tax. if Form 2220 is attached. Click to see attachment 8 504
9 Tax due. If the total of lines 5 and 8 is more than line 7, enter amount owed.......Bullet 9  
10 Overpayment. If line 7 is more than the total of lines 5 and 8, enter the amount overpaid...Bullet 10 53,600
11 Enter the amount of line 10 to be: Credited to 2014 estimated taxBullet53,600 RefundedBullet 11  
Part VII-A
Statements Regarding Activities
1a
During the tax year, did the foundation attempt to influence any national, state, or local legislation or did
Yes
No
it participate or intervene in any political campaign? ....................
1a
 
No
b
Did it spend more than $100 during the year (either directly or indirectly) for political purposes (see page 19 of
the instructions for definition)?............................
1b
 
No
If the answer is "Yes" to 1a or 1b, attach a detailed description of the activities and copies of any materials
published or distributed by the foundation in connection with the activities.
c
Did the foundation file Form 1120-POL for this year?.....................
1c
 
No
d
Enter the amount (if any) of tax on political expenditures (section 4955) imposed during the year:
(1) On the foundation. bullet$   (2) On foundation managers.bullet$  
e
Enter the reimbursement (if any) paid by the foundation during the year for political expenditure tax imposed
on foundation managers.bullet$  
2
Has the foundation engaged in any activities that have not previously been reported to the IRS?.......
2
 
No
If "Yes," attach a detailed description of the activities.
3
Has the foundation made any changes, not previously reported to the IRS, in its governing instrument, articles
of incorporation, or bylaws, or other similar instruments? If "Yes," attach a conformed copy of the changes....
3
 
No
4a
Did the foundation have unrelated business gross income of $1,000 or more during the year?........
4a
 
No
b
If "Yes," has it filed a tax return on Form 990-T for this year?...................
4b
 
No
5
Was there a liquidation, termination, dissolution, or substantial contraction during the year?.........
5
 
No
If "Yes," attach the statement required by General Instruction T.
6
Are the requirements of section 508(e) (relating to sections 4941 through 4945) satisfied either:
  • By language in the governing instrument, or
  • By state legislation that effectively amends the governing instrument so that no mandatory directions
    • that conflict with the state law remain in the governing instrument?................
    6
    Yes
     
    7
    Did the foundation have at least $5,000 in assets at any time during the year? If "Yes," complete Part II, col. (c), and Part XV.
    7
    Yes
     
    8a
    Enter the states to which the foundation reports or with which it is registered (see instructions)
    bulletNY
    b
    If the answer is "Yes" to line 7, has the foundation furnished a copy of Form 990-PF to the Attorney
    General (or designate) of each state as required by General Instruction G? If "No," attach explanation .
    8b
    Yes
     
    9
    Is the foundation claiming status as a private operating foundation within the meaning of section 4942(j)(3)
    or 4942(j)(5) for calendar year 2013 or the taxable year beginning in 2013 (see instructions for Part XIV)?
    If "Yes," complete Part XIV.............................
    9
     
    No
    10
    Did any persons become substantial contributors during the tax year? If "Yes," attach a schedule listing their names and addresses.
    10
     
    No
    11
    At any time during the year, did the foundation, directly or indirectly, own a controlled entity within the
    meaning of section 512(b)(13)? If "Yes," attach schedule. (see instructions) .............
    11
     
    No
    12
    Did the foundation make a distribution to a donor advised fund over which the foundation or a disqualified person had
    advisory privileges? If "Yes," attach statement (see instructions).................
    12
     
    No
    13
    Did the foundation comply with the public inspection requirements for its annual returns and exemption application?
    13
    Yes
     
    Website addressbullethttps://www.jain-foundation.org/
    14
    The books are in care ofbulletPlavi Mittal Telephone no.bullet (425) 882-1492
    Located atbullet9725 Third Avenue NE Suite 204SeattleWA ZIP+4bullet98005
    15
    Section 4947(a)(1) nonexempt charitable trusts filing Form 990-PF in lieu of Form 1041.........bullet
    and enter the amount of tax-exempt interest received or accrued during the year ......bullet
    15  
    16 At any time during calendar year 2013, did the foundation have an interest in or a signature or other authority over YesNo
    a bank, securities, or other financial account in a foreign country?
    16   No
    See instructions for exceptions and filing requirements for Form TD F 90-22.1. If "Yes", enter the name of the
    foreign country bullet  
    Form 990-PF (2013)
    Form 990-PF (2013)
    Page 5
    Part VII-B
    Statements Regarding Activities for Which Form 4720 May Be Required
    File Form 4720 if any item is checked in the "Yes" column, unless an exception applies.
    Yes
    No
    1a
    During the year did the foundation (either directly or indirectly):
    (1) Engage in the sale or exchange, or leasing of property with a disqualified person?
    (2) Borrow money from, lend money to, or otherwise extend credit to (or accept it from)
    a disqualified person?.........................
    (3) Furnish goods, services, or facilities to (or accept them from) a disqualified person?
    (4) Pay compensation to, or pay or reimburse the expenses of, a disqualified person?
    (5) Transfer any income or assets to a disqualified person (or make any of either available
    for the benefit or use of a disqualified person)?.................
    (6) Agree to pay money or property to a government official? (Exception. Check "No"
    if the foundation agreed to make a grant to or to employ the official for a period
    after termination of government service, if terminating within 90 days.).........
    b
    If any answer is "Yes" to 1a(1)–(6), did any of the acts fail to qualify under the exceptions described in Regulations
    section 53.4941(d)-3 or in a current notice regarding disaster assistance (see page 20 of the instructions)?...
    1b
     
    No
    .........bullet
    c
    Did the foundation engage in a prior year in any of the acts described in 1a, other than excepted acts,
    that were not corrected before the first day of the tax year beginning in 2013?.............
    1c
     
    No
    2
    Taxes on failure to distribute income (section 4942) (does not apply for years the foundation was a private
    operating foundation defined in section 4942(j)(3) or 4942(j)(5)):
    a
    At the end of tax year 2013, did the foundation have any undistributed income (lines 6d
    and 6e, Part XIII) for tax year(s) beginning before 2013?...............
    If "Yes," list the years bullet20, 20, 20, 20
    b
    Are there any years listed in 2a for which the foundation is not applying the provisions of section 4942(a)(2)
    (relating to incorrect valuation of assets) to the year’s undistributed income? (If applying section 4942(a)(2)
    to all years listed, answer "No" and attach statement—see instructions.) ..............
    2b
     
    No
    c
    If the provisions of section 4942(a)(2) are being applied to any of the years listed in 2a, list the years here.
    bullet20, 20, 20, 20
    3a
    Did the foundation hold more than a 2% direct or indirect interest in any business enterprise at
    any time during the year?.........................
    b
    If "Yes," did it have excess business holdings in 2013 as a result of (1) any purchase by the foundation
    or disqualified persons after May 26, 1969; (2) the lapse of the 5-year period (or longer period approved
    by the Commissioner under section 4943(c)(7)) to dispose of holdings acquired by gift or bequest; or (3)
    the lapse of the 10-, 15-, or 20-year first phase holding period? (Use Schedule C, Form 4720, to determine
    if the foundation had excess business holdings in 2013.)....................
    3b
     
    No
    4a
    Did the foundation invest during the year any amount in a manner that would jeopardize its charitable purposes?
    4a
     
    No
    b
    Did the foundation make any investment in a prior year (but after December 31, 1969) that could jeopardize its
    charitable purpose that had not been removed from jeopardy before the first day of the tax year beginning in 2013?
    4b
     
    No
    5a
    During the year did the foundation pay or incur any amount to:
    (1) Carry on propaganda, or otherwise attempt to influence legislation (section 4945(e))?
    (2) Influence the outcome of any specific public election (see section 4955); or to carry
    on, directly or indirectly, any voter registration drive?...............
    (3) Provide a grant to an individual for travel, study, or other similar purposes?
    (4) Provide a grant to an organization other than a charitable, etc., organization described
    in section 509(a)(1), (2), or (3), or section 4940(d)(2)? (see instructions)........
    (5) Provide for any purpose other than religious, charitable, scientific, literary, or
    educational purposes, or for the prevention of cruelty to children or animals?........
    b
    If any answer is "Yes" to 5a(1)–(5), did any of the transactions fail to qualify under the exceptions described in
    Regulations section 53.4945 or in a current notice regarding disaster assistance (see instructions)? ......
    5b
     
    No
    .........bullet
    c
    If the answer is "Yes" to question 5a(4), does the foundation claim exemption from the
    tax because it maintained expenditure responsibility for the grant?............
    If "Yes," attach the statement required by Regulations section 53.4945–5(d).
    6a
    Did the foundation, during the year, receive any funds, directly or indirectly, to pay premiums on
    a personal benefit contract?........................
    b
    Did the foundation, during the year, pay premiums, directly or indirectly, on a personal benefit contract?....
    6b
     
    No
    If "Yes" to 6b, file Form 8870.
    7a
    At any time during the tax year, was the foundation a party to a prohibited tax shelter transaction?
    b
    If yes, did the foundation receive any proceeds or have any net income attributable to the transaction? ....
    7b
     
    No
    Form 990-PF (2013)
    Form 990-PF (2013)
    Page 6
    Part VIII
    Information About Officers, Directors, Trustees, Foundation Managers, Highly Paid Employees,
    and Contractors
    1 List all officers, directors, trustees, foundation managers and their compensation (see instructions).
    (a) Name and address (b) Title, and average
    hours per week
    devoted to position     		(c) Compensation
     (If not paid, enter
    -0-)     		(d) Contributions to
    employee benefit plans
    and deferred compensation     		(e) Expense account,
    other allowances
    Dr Plavi Mittal President
    50.00     		200,000    
    9725 Third Avenue NE Ste 204
    Seattle,WA98117
    Ajit Jain Director & CEO
    3.00     		0    
    Island Drive
    Rye,NY10580
    Indrima Jain Director
    1.00     		0    
    Island Drive
    Rye,NY10580
    Akshay Jain Director
    5.00     		0    
    Island Drive
    New York,NY10580
    Ajay Jain Director
    1.00     		0    
    Island Drive
    Rye,NY10580
    2 Compensation of five highest-paid employees (other than those included on line 1—see instructions). If none, enter “NONE."
    (a) Name and address of each employee paid more than $50,000 (b) Title, and average
    hours per week
    devoted to position     		(c) Compensation (d) Contributions to
    employee benefit
    plans and deferred
    compensation     		(e) Expense account,
    other allowances
    D Albrecht PhD Research Director
    40.00     		91,000 12,000  
    9725 Third Avenue NE Suite 204
    Seattle,WA98117
    L Rufibach PhD Research Director
    40.00     		88,955 11,545  
    9725 Third Avenue NE Suite 204
    Seattle,WA98117
    HWindish Research Program O
    40.00     		55,645 4,839  
    9725 Third Avenue NE Suite 204
    Seattle,WA98117
    S Shira Office Manager
    40.00     		51,975 5,775  
    9725 Third Avenue NE Suite 204
    Seattle,WA98117
    E Lee Research Program O
    40.00     		47,775 5,308  
    9725 Third Avenue NE Suite 204
    Seattle,WA98117
    Total number of other employees paid over $50,000...................bullet  
    3 Five highest-paid independent contractors for professional services (see instructions). If none, enter "NONE".
    (a) Name and address of each person paid more than $50,000 (b) Type of service (c) Compensation
    NONE
    Total number of others receiving over $50,000 for professional services.............bullet  
    Part IX-A
    Summary of Direct Charitable Activities
    List the foundation’s four largest direct charitable activities during the tax year. Include relevant statistical information such as the number of organizations and other beneficiaries served, conferences convened, research papers produced, etc. Expenses
    1 While the focus of the Jain Foundation is LGMD2B, the resulting scientific advances and collaboration have a broader impact on human health through their relevance to other muscle disorders, degenerative diseases of tissues other than muscle, and normal aging. The Foundation is hands on in its approach to funding. We closely monitor progress of every project we fund and keep track of results and agreed upon timelines through quarterly detail oriented conference calls with researchers and site visits. Our goal continues to be to fund all possible approaches to a cure and have the patients diagnosed for when we reach a cure so they are able to avail it. Contract Research Organizations: In 2013 we continued existing and initiated new projects at Contract Research Organizations (CROs). There are many drugs in development (some even FDA approved) for other diseases that may be useful in LGMD2B. To evaluate their benefit in LGMD2B we need specific assays. The process of developing assays is 874,375
    2 Patient Recruitment and Diagnosis: LGMD2B is very rare. An important goal of the Foundation is to identify LGMD2B patients worldwide. The Foundation maintains a patient registry and facilitates by providing funding for patients' diagnosis. The Jain Foundation team reviews patient records to identify patients that have a high probability of having dysferlinopathy before doing expensive protein or genetic analysis covered by the Foundation. More often than not, however, patients records or their physicians do not have the information needed for us to make a well-informed decision. In an attempt to identify patients rapidly and to save money, the Foundation developed an easy-to-use online diagnostic tool. The tool is based on a Bayesian algorithm and is grounded on published clinical reports. The tool discriminates between 25 types of LGMD. The tool was launched in May 2012 and has been very well received by the medical community all over the world. This tool has increased our rate of fin 161,849
    3 Foundation Conference: The Dysferlin Conference brings together scientists and clinicians working to understand and develop a therapy for the dysferlinopathies, Limb Girdle Muscular Dystrophy 2B (LGMD2B) and Miyoshi Myopathy. These diseases, caused by mutations in dysferlin, are characterized by progressive muscle wasting beginning in the late teenage years. Although dysferlin has been implicated in repair of muscle fiber membrane tears, a more complete understanding of dysferlins function and role in pathology is required for effective development of therapies. The objective of the 6th Annual Dysferlin Conference, held from April 3-6, 2013 in Washington DC, USA, was to speed research on dysferlinopathy by promoting the sharing of ideas and unpublished data between scientists actively working on dysferlin and other relevant therapeutic approaches. During this meeting the Jain Foundation-funded researchers presented new findings implicating new roles for Dysferlin and opening new avenue 140,351
    4 Clinical Outcome Study: The process of becoming trial ready was initiated in 2012 and continued in 2013. Clinical trials frequently fail because testable outcomes are not well defined and are not sensitive enough to measure a small benefit from the treatment or drug being delivered. To find measurable outcomes for dysferlinopathy we launched a Clinical Outcome Study (COS) running out of 14 centers (in the US, Europe, Japan and Australia). The study is being funded through a grant to Dr. Bushby, Newcastle, UK and a grant for the statistical analysis of the data to Dr. Cnaan at CNMC, Washington, DC. At the end of 2013, 145 patients had been recruited into COS. Patients will visit their respective centers 6 times over 3 years for medical, physiotherapy and MRI/MRS assessments at each visit. We are funding, leading and managing this study. COS will help define the best tests for measuring disease progression. We have started collecting and banking biological samples through this study for 118,408
    Form 990-PF (2013)
    Form 990-PF (2013)
    Page 7
    Part IX-B
    Summary of Program-Related Investments (see instructions)
    Describe the two largest program-related investments made by the foundation during the tax year on lines 1 and 2. Amount
    1  
    2  
    All other program-related investments. See page 24 of the instructions.
    3  
    Total. Add lines 1 through 3.........................bullet  
    Part X
    Minimum Investment Return (All domestic foundations must complete this part. Foreign foundations,
    see instructions.)
    1
    Fair market value of assets not used (or held for use) directly in carrying out charitable, etc.,
    purposes:
    a
    Average monthly fair market value of securities...................
    1a
     
    b
    Average of monthly cash balances.......................
    1b
     
    c
    Fair market value of all other assets (see instructions)................
    1c
     
    d
    Total (add lines 1a, b, and c).........................
    1d
     
    e
    Reduction claimed for blockage or other factors reported on lines 1a and
    1c (attach detailed explanation) .............
    1e
     
    2
    Acquisition indebtedness applicable to line 1 assets..................
    2
     
    3
    Subtract line 2 from line 1d.........................
    3
     
    4
    Cash deemed held for charitable activities. Enter 1 1/2% of line 3 (for greater amount, see
    instructions) .............................
    4
     
    5
    Net value of noncharitable-use assets. Subtract line 4 from line 3. Enter here and on Part V, line 4
    5
     
    6
    Minimum investment return. Enter 5% of line 5..................
    6
     
    Part XI
    Distributable Amount bullet and do not complete this part.)
    1
    Minimum investment return from Part X, line 6....................
    1
    1,199,216
    2a
    Tax on investment income for 2013 from Part VI, line 5......
    2a
    101,113
    b
    Income tax for 2013. (This does not include the tax from Part VI.)...
    2b
     
    c
    Add lines 2a and 2b............................
    2c
    101,113
    3
    Distributable amount before adjustments. Subtract line 2c from line 1............
    3
    1,098,103
    4
    Recoveries of amounts treated as qualifying distributions................
    4
    12,248
    5
    Add lines 3 and 4............................
    5
    1,110,351
    6
    Deduction from distributable amount (see instructions).................
    6
     
    7
    Distributable amount as adjusted. Subtract line 6 from line 5. Enter here and on Part XIII,
    line 1................................
    7
    1,110,351
    Part XII
    Qualifying Distributions (see instructions)
    1
    Amounts paid (including administrative expenses) to accomplish charitable, etc., purposes:
    a
    Expenses, contributions, gifts, etc.—total from Part I, column (d), line 26 ..........
    1a
     
    b
    Program-related investments—total from Part IX-B..................
    1b
     
    2
    Amounts paid to acquire assets used (or held for use) directly in carrying out charitable, etc.,
    purposes...............................
    2
     
    3
    Amounts set aside for specific charitable projects that satisfy the:
    a
    Suitability test (prior IRS approval required)....................
    3a
     
    b
    Cash distribution test (attach the required schedule) .................
    3b
     
    4
    Qualifying distributions. Add lines 1a through 3b. Enter here and on Part V, line 8, and Part XIII, line 4
    4
     
    5
    Foundations that qualify under section 4940(e) for the reduced rate of tax on net investment
    income. Enter 1% of Part I, line 27b (see instructions).................
    5
     
    6
    Adjusted qualifying distributions. Subtract line 5 from line 4..............
    6
     
    Note: The amount on line 6 will be used in Part V, column (b), in subsequent years when calculating whether the foundation qualifies for
    the section 4940(e) reduction of tax in those years.
    Form 990-PF (2013)
    Form 990-PF (2013)
    Page 8
    Part XIII
    Undistributed Income (see instructions)
    (a)
    Corpus     		(b)
    Years prior to 2012     		(c)
    2012     		(d)
    2013
    1 Distributable amount for 2013 from Part XI, line 7 1,110,351
    2 Undistributed income, if any, as of the end of 2013:
    a Enter amount for 2012 only.......  
    b Total for prior years:20, 20, 20  
    3 Excess distributions carryover, if any, to 2013:
    a From 2008....... 1,281,403
    b From 2009....... 2,619,026
    c From 2010....... 1,476,657
    d From 2011....... 1,684,805
    e From 2012....... 1,950,684
    fTotal of lines 3a through e......... 9,012,575
    4Qualifying distributions for 2013 from Part
    XII, line 4: bullet$ 3,813,730
    a Applied to 2012, but not more than line 2a  
    b Applied to undistributed income of prior years
    (Election required—see instructions)......     		 
    c Treated as distributions out of corpus (Election
    required—see instructions).........     		0
    d Applied to 2013 distributable amount..... 1,110,351
    e Remaining amount distributed out of corpus 2,703,379
    5 Excess distributions carryover applied to 2013.    
    (If an amount appears in column (d), the
    same amount must be shown in column (a).)
    6Enter the net total of each column as
    indicated below:
    a Corpus. Add lines 3f, 4c, and 4e. Subtract line 5 11,715,954
    b Prior years’ undistributed income. Subtract
    line 4b from line 2b ...........     		 
    c Enter the amount of prior years’ undistributed
    income for which a notice of deficiency has
    been issued, or on which the section 4942(a)
    tax has been previously assessed......     		 
    d Subtract line 6c from line 6b. Taxable amount
    —see instructions ...........     		 
    e Undistributed income for 2012. Subtract line
    4a from line 2a. Taxable amount—see
    instructions .............     		 
    f Undistributed income for 2013. Subtract
    lines 4d and 5 from line 1. This amount must
    be distributed in 2014 ..........     		0
    7 Amounts treated as distributions out of
    corpus to satisfy requirements imposed by
    section 170(b)(1)(F) or 4942(g)(3) (see
    instructions) .............     		 
    8Excess distributions carryover from 2008 not
    applied on line 5 or line 7 (see instructions) ...     		1,281,403
    9Excess distributions carryover to 2014.
    Subtract lines 7 and 8 from line 6a ......     		10,434,551
    10 Analysis of line 9:
    a Excess from 2009.... 2,619,026
    b Excess from 2010.... 1,476,657
    c Excess from 2011.... 1,684,805
    d Excess from 2012.... 1,950,684
    e Excess from 2013.... 2,703,379
    Form 990-PF (2013)
    Form 990-PF (2013)
    Page 9
    Part XIV
    Private Operating Foundations (see instructions and Part VII-A, question 9)
    1a If the foundation has received a ruling or determination letter that it is a private operating
    foundation, and the ruling is effective for 2013, enter the date of the ruling.......bullet
     
    b Check box to indicate whether the organization is a private operating foundation described in section or
    2a Enter the lesser of the adjusted net
    income from Part I or the minimum
    investment return from Part X for each
    year listed ..........     		Tax year Prior 3 years (e) Total
    (a) 2013 (b) 2012 (c) 2011 (d) 2010
             
    b 85% of line 2a .........          
    c Qualifying distributions from Part XII,
    line 4 for each year listed .....     		         
    d Amounts included in line 2c not used
    directly for active conduct of exempt activities ...........     		         
    e Qualifying distributions made directly
    for active conduct of exempt activities.
    Subtract line 2d from line 2c ....     		         
    3 Complete 3a, b, or c for the
    alternative test relied upon:
    a “Assets" alternative test—enter:
    (1) Value of all assets ......          
    (2) Value of assets qualifying
    under section 4942(j)(3)(B)(i)    		          
    b “Endowment" alternative test— enter 2/3
    of minimum investment return shown in
    Part X, line 6 for each year listed...     		         
    c “Support" alternative test—enter:
    (1) Total support other than gross
    investment income (interest,
    dividends, rents, payments
    on securities loans (section
    512(a)(5)), or royalties) ....     		         
    (2) Support from general public
    and 5 or more exempt
    organizations as provided in
    section 4942(j)(3)(B)(iii)....     		         
    (3) Largest amount of support
    from an exempt organization    		          
    (4) Gross investment income          
    Part XV
    Supplementary Information (Complete this part only if the organization had $5,000 or more in
    assets at any time during the year—see instructions.)
    1Information Regarding Foundation Managers:
    aList any managers of the foundation who have contributed more than 2% of the total contributions received by the foundation
    before the close of any tax year (but only if they have contributed more than $5,000). (See section 507(d)(2).)
    bList any managers of the foundation who own 10% or more of the stock of a corporation (or an equally large portion of the
    ownership of a partnership or other entity) of which the foundation has a 10% or greater interest.
    2Information Regarding Contribution, Grant, Gift, Loan, Scholarship, etc., Programs:
    Check here bullet
    aThe name, address, and telephone number or e-mail address of the person to whom applications should be addressed:
    The Jain Foundation Inc
    2310 130th Ave NE Suite B101
    Bellevue,WA98005
    (425) 882-1492
    See Foundation Website www.jain-foundation.org
    bThe form in which applications should be submitted and information and materials they should include:
    See Foundation Website www.jain-foundation.org
    cAny submission deadlines:
    There are no application deadlines
    dAny restrictions or limitations on awards, such as by geographical areas, charitable fields, kinds of institutions, or other
    factors:
    The explicit goal of the Jain Foundation is to expedite development of a treatment or cure for LGMD2B/Miyoshi. Any proposed project that does not have application to this disease will not be considered.
    Form 990-PF (2013)
    Form 990-PF (2013)
    Page 10
    Part XV
    Supplementary Information (continued)
    3 Grants and Contributions Paid During the Year or Approved for Future Payment
    Recipient If recipient is an individual,
    show any relationship to
    any foundation manager
    or substantial contributor
    		 Foundation
    status of
    recipient     		Purpose of grant or
    contribution     		Amount
    Name and address (home or business)
    aPaid during the year
    Gnthon Dr Isabelle Richard
    1 bis rue de lInternationale BP60
    Evry,Cedex91002
    FR     		N/A foreign Scientific Research Grant 9,395
    NIH- Dr Zimmerberg
    9000 Rockville Pike
    Bethesda,MD20892     		N/A PC Scientific Research Grant 94,537
    University of Maryland- Dr Joseph R
    PO Box 41428
    Baltimore,MD21203     		N/A PC Scientific Research Grant 33,333
    Texas Tech University Dr B Sutton
    3601 4th Street
    Lubbock,TX79415     		N/A PC Scientific Research Grant 124,694
    UNC Chapel Hill-Dr Matthew Hirsch
    104 Airport Dr
    Chapel Hill,NC27599     		N/A PC Scientific Research Grant 128,358
    Univof Wisconsin Madison-Dr KSonnem
    21 N Park Street Suite 6401
    Madison,WI53715     		N/A PC Scientific Research Grant 101,091
    Institute of Human Genetics-Dr Bush
    Central Parkwway
    New Castle upon Tyne   NE1 3BZ
    UK     		N/A foreign Natural History Project 187,500
    MIT Leonard Guarente Professor Biol
    77 Massachusetts Avenue 68-280
    Cambridge,MA02139     		N/A PC Scientific Research Grant 67,533
    Emory Genetics Lab - Dr Madhuri Heg
    2165 N Decatur Road
    Atlanta,GA30033     		N/A PC Scientific Research Grant 75,872
    Univ Western Australia - Dr MGround
    35 Stirling Highway
    Crawley,Western Australia6009
    AS     		N/A foreign Scientific Research Grant 19,421
    Labof Molecular Genetics-Dr Bartoli
    27 boulevard Jean Moulin
    Marseille   13385
    FR     		N/A foreign Scientific Research Grant 16,232
    Children's Hospital Boston-Dr Kunke
    300 Longwood Ave
    Boston,MA02115     		N/A PC Scientific Research Grant 23,403
    University of Maryland-Dr Robert Bl
    PO Box 41428
    Baltimore,MD21203     		N/A PC Scientific Research Grant 293,838
    Childrens Research Institute Dr Coh
    111 Michigan Avenue NW Suite 5400
    Washington DC,DC20010     		N/A PC Scientific Research Grant 26,667
    Laboratori Malalties Neuromusculars
    UAB C/ Paret Claret 167
    Barcelona   08025
    SP     		N/A foreign Scientific Research Grant 44,331
    Childrens Research Institute DrPart
    111 Michigan Avenue NW Suite 5400
    Washington DC,DC20010     		N/A PC Scientific Research Grant 101,958
    Monash University
    Wellington Road
    Clayton   3800
    OC     		NONE foreign Scientific Research Grant 60,170
    Immune Disease Institute
    3 Blackfan Circle
    Boston,MA02115     		N/A PC Scientific Research Grant 46,667
    Ms Wheel Chair Tennessee Inc
    1217 Bentley Park Lane
    Knoxville,TN37922     		NONE PC General Support 2,000
    Rockefeller University
    1230 York Avenue
    New York,NY10065     		N/A PC General Support 119,460
    Children's Hospital at Westmead- Co
    Locked Bag 4001 Westmead
    Sydney   2145
    AS     		N/A foreign Scientific ResearchGrant 132,934
    Children's National Medical Ctr -Cn
    111 Michigan Avenue NW
    Washington DC,DC20010     		N/A PC Scientific Research Grant 33,970
    Hugo W Moser Research Inst Dr TCohe
    707 North Broadway
    Baltimore,MD21205     		N/A PC Scientfic Research Grant 14,732
    Research Inst Nationwide Childrens
    700 Childrens Drive
    Columbus,OH43205     		N/A PC Scientific Research Grant 123,060
    The Jackson Laboratory
    610 Main Street
    Bar Harbor,ME04609     		N/A PC Scientific Research 19,294
    Total .................................bullet 3a 1,900,450
    bApproved for future payment
    Total .................................bullet 3b  
    Form 990-PF (2013)
    Form 990-PF (2013)
    Page 11
    Part XVI-A
    Analysis of Income-Producing Activities
    Enter gross amounts unless otherwise indicated. Unrelated business income Excluded by section 512, 513, or 514 (e)
    Related or exempt
    function income
    (See instructions.)
    1Program service revenue: (a)
    Business code     		(b)
    Amount     		(c)
    Exclusion code     		(d)
    Amount
    a
    b
    c
    d
    e
    f
    gFees and contracts from government agencies          
    2 Membership dues and assessments....          
    3
    Interest on savings and temporary cash investments ............     		    14 82  
    4 Dividends and interest from securities....     14    
    5 Net rental income or (loss) from real estate:
    aDebt-financed property......          
    bNot debt-financed property.....          
    6
    Net rental income or (loss) from personal property .............     		         
    7 Other investment income.....          
    8
    Gain or (loss) from sales of assets other than inventory .............     		        5,055,584
    9 Net income or (loss) from special events:          
    10 Gross profit or (loss) from sales of inventory..          
    11 Other revenue: aFoundation Conference     1 8,840  
    bUnused Grants Refunded     21 12,248  
    c
    d
    e
    12 Subtotal. Add columns (b), (d), and (e)..   21,170 5,055,584
    13Total. Add line 12, columns (b), (d), and (e)..................
    135,076,754
    (See worksheet in line 13 instructions to verify calculations.)
    Part XVI-B
    Relationship of Activities to the Accomplishment of Exempt Purposes
    Line No.
    DownArrow     		Explain below how each activity for which income is reported in column (e) of Part XVI-A contributed importantly to
    the accomplishment of the foundation’s exempt purposes (other than by providing funds for such purposes). (See
    instructions.)
    Form 990-PF (2013)
    Form 990-PF (2013)
    Page 12
    Part XVII
    Information Regarding Transfers To and Transactions and Relationships With Noncharitable Exempt Organizations
    1
    Did the organization directly or indirectly engage in any of the following with any other organization described in section 501(c) of the Code (other than section 501(c)(3) organizations) or in section 527, relating to political
    Yes
    No
    organizations?
    a
    Transfers from the reporting foundation to a noncharitable exempt organization of:
    (1) Cash...................................
    1a(1)
     
    No
    (2) Other assets.................................
    1a(2)
     
    No
    b
    Other transactions:
    (1) Sales of assets to a noncharitable exempt organization....................
    1b(1)
     
    No
    (2) Purchases of assets from a noncharitable exempt organization..................
    1b(2)
     
    No
    (3) Rental of facilities, equipment, or other assets.......................
    1b(3)
     
    No
    (4) Reimbursement arrangements...........................
    1b(4)
     
    No
    (5) Loans or loan guarantees.............................
    1b(5)
     
    No
    (6) Performance of services or membership or fundraising solicitations................
    1b(6)
     
    No
    c
    Sharing of facilities, equipment, mailing lists, other assets, or paid employees..............
    1c
     
    No
    d
    If the answer to any of the above is "Yes," complete the following schedule. Column (b) should always show the fair market value
    of the goods, other assets, or services given by the reporting foundation. If the foundation received less than fair market value
    in any transaction or sharing arrangement, show in column (d) the value of the goods, other assets, or services received.
    (a) Line No. (b) Amount involved (c) Name of noncharitable exempt organization (d) Description of transfers, transactions, and sharing arrangements
    2a
    Is the foundation directly or indirectly affiliated with, or related to, one or more tax-exempt organizations
    described in section 501(c) of the Code (other than section 501(c)(3)) or in section 527?...........
    b
    If "Yes," complete the following schedule.
    (a) Name of organization (b) Type of organization (c) Description of relationship
    Sign Here
    Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it is true, correct, and complete. Declaration of preparer (other than taxpayer or fiduciary) is based on all information of which preparer has any knowledge.
    Bullet Bullet
    May the IRS discuss this return
    with the preparer shown below
    (see instr.)?
    Signature of officer or trustee Date Title
    Paid Preparer Use Only Print/Type preparer's name Preparer's Signature Date PTIN
    Firm's namebullet



    Firm's addressbullet







         		Firm's EINbullet
    Phone no.
    Form 990-PF (2013)
    Additional Data


    Software ID: 13000170
    Software Version: 2013v3.1


    Form 990PF - Special Condition Description:
    Special Condition Description

    TY 2013 AccountingFeesSchedule
    Name:
    The Jain Foundation Inc
    EIN: 20-0284800
    Software ID:13000170
    Software Version:2013v3.1
    Category Amount Net Investment Income Adjusted Net Income Disbursements for Charitable Purposes
    Pradeep Agarwal 5,010 0 0 3,758

    TY 2013 LegalFeesSchedule
    Name:
    The Jain Foundation Inc
    EIN: 20-0284800
    Software ID:13000170
    Software Version:2013v3.1
    Category Amount Net Investment Income Adjusted Net Income Disbursements for Charitable Purposes
    Legal Expenses / tax compliance 9,750 0 0 7,312


    TY 2013 OtherExpensesSchedule
    Name:
    The Jain Foundation Inc
    EIN: 20-0284800
    Software ID:13000170
    Software Version:2013v3.1
    Description Revenue and Expenses per Books Net Investment Income Adjusted Net Income Disbursements for Charitable Purposes
    Books & Periodicals 1,804     1,804
    COS direct costs 11,422     11,422
    CRO Biofocus 157,300     157,300
    CRO Charles Rover Discovery Service 131,335     131,335
    CRO Evotec AG 335,143     335,143
    CRO MRM Proteomics 103,025     103,025
    CRO Psychogenics CRO 55,000     55,000
    Insurance 693     693
    Miscellaneous 4,394     4,394
    NYS Charities Bureau Filing Fee 750      
    Office Expenses 18,513     18,513
    Patient Diagnosis & Recruitment 11,866     11,866
    Patient Diagnosis Emory University 60,000     60,000
    Postage, shipping, delivery 868     868
    Research Tools 69,450     69,450
    Telephone & Internet 6,762     6,762
    Website design & Software 11,780     11,780


    TY 2013 OtherIncomeSchedule2
    Name:
    The Jain Foundation Inc
    EIN: 20-0284800
    Software ID:13000170
    Software Version:2013v3.1
    Description Revenue And Expenses Per Books Net Investment Income Adjusted Net Income
    Foundation Conference 8,840    
    Unused Grants Refunded 12,248    


    TY 2013 OtherIncreasesSchedule
    Name:
    The Jain Foundation Inc
    EIN: 20-0284800
    Software ID:13000170
    Software Version:2013v3.1
    Description Amount
    Adjust FMV vs. Cost Basis Book Value of Donated Securities 119,452


    TY 2013 OtherProfessionalFeesSchedule
    Name:
    The Jain Foundation Inc
    EIN: 20-0284800
    Software ID:13000170
    Software Version:2013v3.1
    Category Amount Net Investment Income Adjusted Net Income Disbursements for Charitable Purposes
    B Williams PhD Research Consultant 24,085 0 0 24,085
    N Monnier PhD Research Consultant 2,120 0 0 2,120
    Other Consultants/Interns 5,040 0 0 5,040


    TY 2013 TaxesSchedule
    Name:
    The Jain Foundation Inc
    EIN: 20-0284800
    Software ID:13000170
    Software Version:2013v3.1
    Category Amount Net Investment Income Adjusted Net Income Disbursements for Charitable Purposes
    2012 Excise tax on Investment Income 30,000