TY 2013 Form 990

(A) Name and Title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)
(1) Stanley H Appel MD........................................................................ Director	1.0 .......................	X
(2) Robert M Bennett........................................................................ Director Emeritus	1.0 .......................	X
(3) Bart Conner........................................................................ Director	1.0 .......................	X
(4) Harold C Crump........................................................................ Director	1.0 .......................	X
(5) Benjamin F Cumbo III........................................................................ Director	1.0 .......................	X
(6) Joseph S DiMartino........................................................................ DIRECTOR EMERITUS	1.0 .......................	X
(7) Steve Farella........................................................................ Director	1.0 .......................	X
(8) Daniel G Fries........................................................................ Director	1.0 .......................	X
(9) Honorable Brad Henry........................................................................ Director	1.0 .......................	X
(10) R Rodney Howell MD........................................................................ Chairman	5.0 .......................	X
(11) Dave Hutton........................................................................ Director	1.0 .......................	X
(12) Louis M Kunkel PhD........................................................................ Director	1.0 .......................	X
(13) Timmi Masters........................................................................ SECRETARY	2.0 .......................	X
(14) Olin F Morris........................................................................ Director	1.0 .......................	X
(15) Christopher J Rosa PhD........................................................................ Director	1.0 .......................	X
(16) Charles D Schoor Esq........................................................................ Treasurer	5.0 .......................	X
(17) John Tognino........................................................................ Director	1.0 .......................	X

(A) Name and Title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)	(E) Reportable compensation from related organizations (W- 2/1099-MISC)	(F) Estimated amount of other compensation from the organization and related organizations
(18) Victor Wright........................................................................ Director	1.0 .......................	X				0	0
(19) Steven Derks........................................................................ President & CEO	60.0 .......................		X			460,538	62,129
(20) Valerie A Cwik MD........................................................................ ASST. SEC & CHIEF MED & RES	50.0 .......................		X			201,114	7,041
(21) Gail Schmertz Kerner Esq........................................................................ ASST SEC & CHIEF LEGAL OFFICER	50.0 .......................		X			193,559	13,592
(22) Peter Morgan........................................................................ ASST TREAS & EVP & CHIEF OP	50.0 .......................		X			168,799	13,592
(23) Stephen P Evans CPA........................................................................ asst treas & vp finance	50.0 .......................		X			117,465	13,592
(24) Jodi Walters........................................................................ asst treas & asst vp finance	50.0 .......................		X			70,017	7,037
(25) JULIE FABER........................................................................ CFO	50.0 .......................		X			21,653	587
(26) John Walsh........................................................................ Div Chief Executive	50.0 .......................			X		150,791	13,592
(27) Kevin W Moran........................................................................ VP Program Development	50.0 .......................				X	149,509	13,592
(28) Bradley J Barghols........................................................................ Div Chief Executive	50.0 .......................				X	140,003	7,506
(29) Steven Ford........................................................................ EVP Chief Communications	50.0 .......................				X	133,373	9,047
(30) Robert M Grinsfelder........................................................................ Div chief Executive	50.0 .......................				X	133,800	13,078
(31) TODD HERMON........................................................................ NVP RETAIL PARTERNSHIPS	50.0 .......................				X	126,975	13,099

(A) Name and business address	(B) Description of services	(C) Compensation
Alaniz Metro Group, 1805 E Washington StreetMt PleasantIA52641	Printing	1,214,524
New Edge Network Inc, PO Box 4800PortlandOR97208	Network Provider	1,224,010
AMERICAN BROADCASTING COMPANY INC, 77 W 66TH STREETNEW YORKNY10023	ABC NTWRK BROADCAST.	2,200,000
AGGREGATED SOURCING LLC, 8338 AUSTIN AVEMORTON GROVEIL60053	PRINTING	1,768,198
TARGETCAST LLC, 909 THIRD AVE 31ST FLOORNEW YORKNY10022	MEDIA PLACEMENT	1,306,520
2 Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization 102

Do not include amounts reported on lines 6b, 7b, 8b, 9b, and 10b of Part VIII.	(A) Total expenses	(B) Program service expenses	(C) Management and general expenses	(D) Fundraising expenses
1	Grants and other assistance to governments and organizations in the United States. See Part IV, line 21	35,720,781	35,720,781
2	Grants and other assistance to individuals in the United States. See Part IV, line 22	0	0
3	Grants and other assistance to governments, organizations, and individuals outside the United States. See Part IV, lines 15 and 16	3,009,271	3,009,271
4	Benefits paid to or for members	0	0
5	Compensation of current officers, directors, trustees, and key employees ....	1,678,194	526,353	970,430	181,411
6	Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) ....	0	0	0	0
7	Other salaries and wages	45,464,020	38,741,274	3,692,315	3,030,431
8	Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) ....	0	0	0	0
9	Other employee benefits .......	10,280,026	9,052,909	711,405	515,712
10	Payroll taxes ...........	4,108,398	3,509,097	331,259	268,042
11	Fees for services (non-employees):
a	Management ......	0	0	0	0
b	Legal .........	246,140	0	246,140	0
c	Accounting ...........	284,878	0	284,878	0
d	Lobbying ...........	0	0	0	0
e	Professional fundraising services. See Part IV, line 17	534,111			534,111
f	Investment management fees ......	104,709	0	104,709	0
g	Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O) ........	13,850,435	3,227,393	832,741	9,790,301
12	Advertising and promotion ....	0	0	0	0
13	Office expenses .......	11,801,496	5,188,079	1,219,654	5,393,763
14	Information technology ......	927,921	0	927,921	0
15	Royalties ..	0	0	0	0
16	Occupancy ...........	9,306,283	8,189,938	481,161	635,184
17	Travel ............	5,326,350	4,349,701	334,546	642,103
18	Payments of travel or entertainment expenses for any federal, state, or local public officials ......	0	0	0	0
19	Conferences, conventions, and meetings ....	69,654	41,653	23,239	4,762
20	Interest ...........	0	0	0	0
21	Payments to affiliates .......	0	0	0	0
22	Depreciation, depletion, and amortization .....	2,121,130	688,546	1,361,443	71,141
23	Insurance ..............	0
24	Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a	MISC EXPENSES	3,171,395	199,985	2,503,495	467,915
b
c
d
e	All other expenses
25	Total functional expenses. Add lines 1 through 24e	148,005,192	112,444,980	14,025,336	21,534,876
26	Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here if following SOP 98-2 (ASC 958-720).	4,516,286	1,623,354	383,884	2,509,048

Part X Balance Sheet Check if Schedule O contains a response or note to any line in this Part X ..............
	1	Cash–non-interest-bearing .............	6,347,489	1	30,728,769
2	Savings and temporary cash investments .........	0	2	0
3	Pledges and grants receivable, net ...........	3,346,295	3	2,608,340
4	Accounts receivable, net .............	0	4	0
5	Loans and other receivables from current and former officers, directors, trustees, key employees, and highest compensated employees. Complete Part II of Schedule L ..................
		0	5	0
6	Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), persons described in section 4958(c)(3)(B), and contributing employers and sponsoring organizations of section 501(c)(9) voluntary employees' beneficiary organizations (see instructions) Complete Part II of Schedule L
		0	6	0
7	Notes and loans receivable, net .............	0	7	0
8	Inventories for sale or use ..............	0	8	0
9	Prepaid expenses and deferred charges ..........	3,302,799	9	2,808,342
10a	Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D	10a	7,350,477
b	Less: accumulated depreciation .....	10b	5,604,526	14,135,612	10c	1,745,951
11	Investments—publicly traded securities ..........	72,967,427	11	55,961,890
12	Investments—other securities. See Part IV, line 11 .....	0	12	0
13	Investments—program-related. See Part IV, line 11 .....	0	13	0
14	Intangible assets ...............	0	14	0
15	Other assets. See Part IV, line 11 ...........	0	15	8,999,168
16	Total assets. Add lines 1 through 15 (must equal line 34)......	100,099,622	16	102,852,460
	17	Accounts payable and accrued expenses .........	9,576,961	17	10,214,400
18	Grants payable .................	23,453,207	18	21,825,074
19	Deferred revenue ................	0	19	0
20	Tax-exempt bond liabilities .............	0	20	0
21	Escrow or custodial account liability. Complete Part IV of Schedule D..	0	21	0
22	Loans and other payables to current and former officers, directors, trustees, key employees, highest compensated employees, and disqualified
	persons. Complete Part II of Schedule L..........	0	22	0
23	Secured mortgages and notes payable to unrelated third parties ..	14,500,000	23	15,500,000
24	Unsecured notes and loans payable to unrelated third parties ....	0	24	0
25	Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17-24). Complete Part X of Schedule D....................	51,104,926	25	34,181,789
26	Total liabilities. Add lines 17 through 25.........	98,635,094	26	81,721,263
		Organizations that follow SFAS 117 (ASC 958), check here and complete lines 27 through 29, and lines 33 and 34.
27	Unrestricted net assets ..............	-4,369,448	27	15,824,975
28	Temporarily restricted net assets ...........	5,427,860	28	4,832,997
29	Permanently restricted net assets ...........	406,116	29	473,225
	Organizations that do not follow SFAS 117 (ASC 958), check here and complete lines 30 through 34.
30	Capital stock or trust principal, or current funds ........		30
31	Paid-in or capital surplus, or land, building or equipment fund .....		31
32	Retained earnings, endowment, accumulated income, or other funds		32
33	Total net assets or fund balances ...........	1,464,528	33	21,131,197
34	Total liabilities and net assets/fund balances ........	100,099,622	34	102,852,460

- TIN:

SCHEDULE A
(Form 990 or 990EZ)

Department of the Treasury
Internal Revenue Service

Public Charity Status and Public Support

Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.

Attach to Form 990 or Form 990-EZ. right arrow

See separate instructions.
right arrow

Information about Schedule A (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2013

Open to Public
Inspection

Name of the organization

MUSCULAR DYSTROPHY ASSOCIATION INC

Employer identification number

13-1665552

Part I

Reason for Public Charity Status (All organizations must complete this part.) See instructions.

The organization is not a private foundation because it is: (For lines 1 through 11, check only one box.)

A church, convention of churches, or association of churches described in section 170(b)(1)(A)(i).

A school described in section 170(b)(1)(A)(ii). (Attach Schedule E.)

A hospital or a cooperative hospital service organization described in section 170(b)(1)(A)(iii).

A medical research organization operated in conjunction with a hospital described in section 170(b)(1)(A)(iii). Enter the hospital's name, city, and state:

An organization operated for the benefit of a college or university owned or operated by a governmental unit described in

section 170(b)(1)(A)(iv). (Complete Part II.)

A federal, state, or local government or governmental unit described in section 170(b)(1)(A)(v).

An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi). (Complete Part II.)

A community trust described in section 170(b)(1)(A)(vi). (Complete Part II.)

An organization that normally receives: (1) more than 331/3% of its support from contributions, membership fees, and gross

receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of

its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses

acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)

An organization organized and operated exclusively to test for public safety. See section 509(a)(4).

An organization organized and operated exclusively for the benefit of, to perform the functions of, or to carry out the purposes of one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2). See section 509(a)(3). Check the box that describes the type of supporting organization and complete lines 11e through 11h.

Type I

Type II

Type III - Functionally integrated

Type III - Non-functionally integrated

By checking this box, I certify that the organization is not controlled directly or indirectly by one or more disqualified persons other than foundation managers and other than one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2).

If the organization received a written determination from the IRS that it is a Type I, Type II, or Type III supporting organization, check this box ..................................................

Since August 17, 2006, has the organization accepted any gift or contribution from any of the
following persons?

(i) A person who directly or indirectly controls, either alone or together with persons described in (ii)

Yes

and (iii) below, the governing body of the supported organization? ................

11g(i)

(ii) A family member of a person described in (i) above? ......................

11g(ii)

(iii) A 35% controlled entity of a person described in (i) or (ii) above? ................

11g(iii)

Provide the following information about the supported organization(s).

(i) Name of supported organization	(ii) EIN	(iv) Is the organization in col. (i) listed in your governing document?		(v) Did you notify the organization in col. (i) of your support?		(vi) Is the organization in col. (i) organized in the U.S.?		(vii) Amount of monetary support
(i) Name of supported organization	(ii) EIN	Yes	No	Yes	No	Yes	No	(vii) Amount of monetary support


Total

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990EZ.

Cat. No. 11285F

Schedule A (Form 990 or 990-EZ) 2013

Page 2

Part II

Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization fails to qualify under the tests listed below, please complete Part III.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2009	(b) 2010	(c) 2011	(d) 2012	(e) 2013	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") ....	175,900,213	171,247,359	157,086,289	149,557,236	144,990,094	798,781,191
2	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.......						0
3	The value of services or facilities furnished by a governmental unit to the organization without charge..						0
4	Total. Add lines 1 through 3	175,900,213	171,247,359	157,086,289	149,557,236	144,990,094	798,781,191
5	The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f)..						0
6	Public support. Subtract line 5 from line 4.						798,781,191

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2009	(b) 2010	(c) 2011	(d) 2012	(e) 2013	(f) Total
7	Amounts from line 4..	175,900,213	171,247,359	157,086,289	149,557,236	144,990,094	798,781,191
8	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...	2,794,744	1,555,153	1,887,167	1,341,192	1,465,164	9,043,420
9	Net income from unrelated business activities, whether or not the business is regularly carried on..						0
10	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)..				270,273	478,287	748,560
11	Total support (Add lines 7 through 10).						808,573,171

Gross receipts from related activities, etc. (see instructions) ..................

First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization, check this box and stop here................................................. right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2013 (line 6, column (f) divided by line 11, column (f)) .........

98.789 %

Public support percentage for 2012 Schedule A, Part II, line 14 ...............

98.610 %

16a

33 1/3% support test—2013. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization ....................... right arrow

33 1/3% support test—2012. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization ..................... right arrow

17a

10%-facts-and-circumstances test—2013. If the organization did not check a box on line 13, 16a, or 16b, and line 14
is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain
in Part IV how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported
organization ..................................................... right arrow

10%-facts-and-circumstances test—2012. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line
15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here.
Explain in Part IV how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly
supported organization ................................................ right arrow

Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow

Schedule A (Form 990 or 990-EZ) 2013

Page 3

Part III

Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 9 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2009	(b) 2010	(c) 2011	(d) 2012	(e) 2013	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2	Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose......
3	Gross receipts from activities that are not an unrelated trade or business under section 513..
4	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5	The value of services or facilities furnished by a governmental unit to the organization without charge..
6	Total. Add lines 1 through 5.
7a	Amounts included on lines 1, 2, and 3 received from disqualified persons...
b	Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c	Add lines 7a and 7b..
8	Public support (Subtract line 7c from line 6.)

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2009	(b) 2010	(c) 2011	(d) 2012	(e) 2013	(f) Total
9	Amounts from line 6...
10a	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b	Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c	Add lines 10a and 10b.
11	Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.) ..
13	Total support. (Add lines 9, 10c, 11, and 12.)..

First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here............................................. right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2013 (line 8, column (f) divided by line 13, column (f)) .........

Public support percentage from 2012 Schedule A, Part III, line 15 ...............

Section D. Computation of Investment Income Percentage

Investment income percentage for 2013 (line 10c, column (f) divided by line 13, column (f)) ......

Investment income percentage from 2012 Schedule A, Part III, line 17 .............

19a

33 1/3% support tests—2013. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ........ right arrow

33 1/3% support tests—2012. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ..... right arrow

Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions ..... right arrow

Schedule A (Form 990 or 990-EZ) 2013

Page 4

Part IV

Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; and Part III, line 12. Also complete this part for any additional information. (See instructions).

Facts And Circumstances Test

Explanation

Schedule A (Form 990 or 990-EZ) 2013

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE C
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527
SchCMd Bullet

Complete if the organization is described below. SchCMd Bullet

Attach to Form 990 or Form 990-EZ.
SchCMd Bullet

See separate instructions. SchCMd Bullet

Information about Schedule C (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2013

Open to Public
Inspection

If the organization answered "Yes" to Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet

Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet

Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet

Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" to Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet

Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet

Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" to Form 990, Part IV, Line 5 (Proxy Tax) or Form 990-EZ, Part V, line 35c (Proxy Tax), then
Round Bullet

Section 501(c)(4), (5), or (6) organizations: Complete Part III.

Name of the organization

MUSCULAR DYSTROPHY ASSOCIATION INC

Employer identification number

13-1665552

Part I-A

Complete if the organization is exempt under section 501(c) or is a section 527 organization.

Provide a description of the organization’s direct and indirect political campaign activities in Part IV.

Political expenditures .................................... SchCMd Bullet

Volunteer hours ........................................

Part I-B

Complete if the organization is exempt under section 501(c)(3).

Enter the amount of any excise tax incurred by the organization under section 4955 ......... SchCMd Bullet

Enter the amount of any excise tax incurred by organization managers under section 4955 ...... SchCMd Bullet

If the organization incurred a section 4955 tax, did it file Form 4720 for this year? ..............

Yes No

Was a correction made? .........................................

Yes No

If "Yes," describe in Part IV.

Part I-C

Complete if the organization is exempt under section 501(c), except section 501(c)(3).

Enter the amount directly expended by the filing organization for section 527 exempt function activities SchCMd Bullet

Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ................................... SchCMd Bullet

Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b.. SchCMd Bullet

Did the filing organization file Form 1120-POL for this year? ..........................

Yes No

Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.

(a) Name	(b) Address	(c) EIN	(d) Amount paid from filing organization's funds. If none, enter -0-.	(e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.

For Paperwork Reduction Act Notice, see the instructions for Form 990 or 990-EZ.

Cat. No. 50084S

Schedule C (Form 990 or 990-EZ) 2013

Page 2

Part II-A

Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).

A Check SchCMd Bullet

if the filing organization belongs to an affiliated group (and list in Part IV each affiliated group member's name, address, EIN, expenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet

if the filing organization checked box A and "limited control" provisions apply.

Limits on Lobbying Expenditures (The term "expenditures" means amounts paid or incurred.)		(a) Filing organization's totals	(b) Affiliated group totals
1a	Total lobbying expenditures to influence public opinion (grass roots lobbying) ......	15,277
b	Total lobbying expenditures to influence a legislative body (direct lobbying) .......	318,170
c	Total lobbying expenditures (add lines 1a and 1b) ...................	333,447
d	Other exempt purpose expenditures ........................	149,037,095
e	Total exempt purpose expenditures (add lines 1c and 1d) ...............	149,370,542
f	Lobbying nontaxable amount. Enter the amount from the following table in both columns.	1,000,000
	If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
	Not over $500,00020% of the amount on line 1e.
	Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
	Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
	Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
	Over $17,000,000$1,000,000.

g	Grassroots nontaxable amount (enter 25% of line 1f) .................	250,000
h	Subtract line 1g from line 1a. If zero or less, enter -0-. ................
i	Subtract line 1f from line 1c. If zero or less, enter -0-. ................
j	If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting section 4911 tax for this year? ......................................		Yes No

4-Year Averaging Period Under Section 501(h) (Some organizations that made a section 501(h) election do not have to complete all of the five columns below. See the instructions for lines 2a through 2f on page 4.)
Lobbying Expenditures During 4-Year Averaging Period
	Calendar year (or fiscal year beginning in)	(a) 2010	(b) 2011	(c) 2012	(d) 2013	(e) Total

2a	Lobbying nontaxable amount	1,000,000	1,000,000	1,000,000	1,000,000	4,000,000

b	Lobbying ceiling amount (150% of line 2a, column(e))					6,000,000

c	Total lobbying expenditures	368,927	428,715	341,893	333,447	1,472,982

d	Grassroots nontaxable amount	250,000	250,000	250,000	250,000	1,000,000

e	Grassroots ceiling amount (150% of line 2d, column (e))					1,500,000

f	Grassroots lobbying expenditures	13,300	12,650	13,285	15,277	54,512

Schedule C (Form 990 or 990-EZ) 2013

Page 3

Part II-B

Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).

For each "Yes" response to lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.

(a)

Yes

(b)

Amount

During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:

Volunteers? .........................................

Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ....

Media advertisements? ....................................

Mailings to members, legislators, or the public? .........................

Publications, or published or broadcast statements? .......................

Grants to other organizations for lobbying purposes? .......................

Direct contact with legislators, their staffs, government officials, or a legislative body? ........

Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ......

Other activities? ..........................

Total. Add lines 1c through 1i ...............................

Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....

If "Yes," enter the amount of any tax incurred under section 4912 .................

If "Yes," enter the amount of any tax incurred by organization managers under section 4912 .....

If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? .......

Part III-A

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).

Yes

Were substantially all (90% or more) dues received nondeductible by members? ................

Did the organization make only in-house lobbying expenditures of $2,000 or less? ................

Did the organization agree to carry over lobbying and political expenditures from the prior year? ..........

Part III-B

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."

Dues, assessments and similar amounts from members .....................

Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political
expenses for which the section 527(f) tax was paid).

Current year .........................................

Carryover from last year ....................................

Total ............................................

Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .

If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ................................

Taxable amount of lobbying and political expenditures (see instructions) ..............

Part IV

Supplemental Information

Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, line 2; and Part ll-B, line 1. Also, complete this part for any additional information.

Return Reference	Explanation

Schedule C (Form 990 or 990EZ) 2013

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE D
(Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Financial Statements

Complete if the organization answered "Yes," to Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b
SchDMd Bullet

Attach to Form 990. SchDMd Bullet

See separate instructions. SchDMd Bullet

Information about Schedule D (Form 990) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2013

Open to Public Inspection

Name of the organization

MUSCULAR DYSTROPHY ASSOCIATION INC

Employer identification number

13-1665552

Part I

Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" to Form 990, Part IV, line 6.

		(a) Donor advised funds	(b) Funds and other accounts
1	Total number at end of year .........
2	Aggregate contributions to (during year) ...
3	Aggregate grants from (during year) .....
4	Aggregate value at end of year ........

Did the organization inform all donors and donor advisors in writing that the assets held in donor advised
funds are the organization's property, subject to the organization's exclusive legal control? ............

Yes No

Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be
used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................

Yes No

Part II

Conservation Easements. Complete if the organization answered "Yes" to Form 990, Part IV, line 7.

Purpose(s) of conservation easements held by the organization (check all that apply).

Preservation of land for public use (e.g., recreation or education) Preservation of an historically important land area

Protection of natural habitat Preservation of a certified historic structure

Preservation of open space

Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.


a	Total number of conservation easements .......................	2a
b	Total acreage restricted by conservation easements ..................	2b
c	Number of conservation easements on a certified historic structure included in (a) .....	2c
d	Number of conservation easements included in (c) acquired after 8/17/06, and not on a historic structure listed in the National Register ....................	2d

Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during
the tax year SchDMd Bullet

Number of states where property subject to conservation easement is located SchDMd Bullet

Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and
enforcement of the conservation easements it holds? .............................

Yes No

Staff and volunteer hours devoted to monitoring, inspecting, and enforcing conservation easements during the year
SchDMd Bullet

Amount of expenses incurred in monitoring, inspecting, and enforcing conservation easements during the year
SchDMd Bullet

Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .......................................

Yes No

In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" to Form 990, Part IV, line 8.

If the organization elected, as permitted under SFAS 116 (ASC 958), not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.

If the organization elected, as permitted under SFAS 116 (ASC 958), to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:

(i)

Revenues included in Form 990, Part VIII, line 1 ........................ SchDMd Bullet

(ii)

Assets included in Form 990, Part X .............................. SchDMd Bullet

If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under SFAS 116 (ASC 958) relating to these items:

Revenues included in Form 990, Part VIII, line 1 .......................... SchDMd Bullet

Assets included in Form 990, Part X ............................... SchDMd Bullet

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 52283D

Schedule D (Form 990) 2013

Page 2

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)

Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):

Public exhibition

Loan or exchange programs

Scholarly research

Other

Preservation for future generations

Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.

During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?........

Yes No

Part IV

Escrow and Custodial Arrangements. Complete if the organization answered "Yes" to Form 990,
Part IV, line 9, or reported an amount on Form 990, Part X, line 21.

Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................

Yes No

If "Yes," explain the arrangement in Part XIII and complete the following table:


c	Beginning balance .................................	1c
d	Additions during the year ..............................	1d
e	Distributions during the year .............................	1e
f	Ending balance ...................................	1f

Did the organization include an amount on Form 990, Part X, line 21? .....................

Yes No

If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ........

Part V

Endowment Funds. Complete if the organization answered "Yes" to Form 990, Part IV, line 10.

		(a)Current year	(b)Prior year	b (c)Two years back	(d)Three years back
1a	Beginning of year balance ....	251,275	175,428	125,667	115,000
b	Contributions ........	50,000	50,000	50,000	11,313
c	Net investment earnings, gains, and losses	45,482	25,847	-239
d	Grants or scholarships .....
e	Other expenditures for facilities and programs ........
f	Administrative expenses ....				646
g	End of year balance ......	346,757	251,275	175,428	125,667

Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:

Board designated or quasi-endowment SchDMd Bullet

Permanent endowment SchDMd Bullet

100.000 %

Temporarily restricted endowment SchDMd Bullet

The percentages in lines 2a, 2b, and 2c should equal 100%.

Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes

(i) unrelated organizations ........................

3a(i)

(ii) related organizations ........................

3a(ii)

If "Yes" to 3a(ii), are the related organizations listed as required on Schedule R? .........

Describe in Part XIII the intended uses of the organization's endowment funds.

Part VI

Land, Buildings, and Equipment. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11a. See Form 990, Part X, line 10.

Description of property		(b)Cost or other basis (other)	(c) Accumulated depreciation	(d) Book value
1a	Land .................
b	Buildings ................
c	Leasehold improvements ............	33,641	18,505	15,136
d	Equipment ................
e	Other .................	7,316,836	5,586,021	1,730,815
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).).......				1,745,951

Schedule D (Form 990) 2013

Page 3

Part VII

InvestmentsOther Securities. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11b. See Form 990, Part X, line 12.

(a) Description of security or category (including name of security)		(b)Book value	(c) Method of valuation: Cost or end-of-year market value
(1)Financial derivatives
(2)Closely-held equity interests
Other








Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)

Part VIII

InvestmentsProgram Related. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11c. See Form 990, Part X, line 13.

(a) Description of investment		(b) Book value	(c) Method of valuation: Cost or end-of-year market value









Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)

Part IX

Other Assets. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11d. See Form 990, Part X, line 15.

(a) Description				(b) Book value
(1) ASSETS HELD FOR SALE				8,999,168








Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........				8,999,168

Part X

Other Liabilities. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.

1.(a) Description of liability		(b) Book value
Federal income taxes		0
PENSION POSTRETIREMENT PLAN OBLIGATI		34,181,789








Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)		34,181,789
2. Liability for uncertain tax positions In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII ..................................................

Schedule D (Form 990) 2013

Page 4

Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return Complete if the organization answered 'Yes' to Form 990, Part IV, line 12a.
1	Total revenue, gains, and other support per audited financial statements .......			1	153,006,014
2	Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a	Net unrealized gains on investments ..........	2a	2,680,294
b	Donated services and use of facilities .........	2b
c	Recoveries of prior year grants ...........	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d .....................			2e	2,680,294
3	Subtract line 2e from line 1.....................			3	150,325,720
4	Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b .	4a
b	Other (Describe in Part XIII.) ...........	4b
c	Add lines 4a and 4b.......................			4c
5	Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ......			5	150,325,720

Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' to Form 990, Part IV, line 12a.
1	Total expenses and losses per audited financial statements ...........		1	148,005,193
2	Amounts included on line 1 but not on Form 990, Part IX, line 25:
a	Donated services and use of facilities ..........	2a
b	Prior year adjustments ..............	2b
c	Other losses ................	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d......................		2e
3	Subtract line 2e from line 1.....................		3	148,005,193
4	Amounts included on Form 990, Part IX, line 25, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b ..	4a
b	Other (Describe in Part XIII.) ............	4b
c	Add lines 4a and 4b.......................		4c
5	Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ......		5	148,005,193

Part XIII

Supplemental Information

Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b;
Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.

Return Reference	Explanation
FORM 990, SCHEDULE D, PART III, LINE 4	ESTABLISHED IN 1992 TO FOCUS ATTENTION ON THE ACHIEVEMENTS OF ARTISTS WITH DISABILITIES AND TO EMPHASIZE THAT PHYSICAL DISABILITY IS NO BARRIER TO CREATIVITY. THE COLLECTION, ON PERMANENT DISPLAY AT MDA NATIONAL HEADQUARTERS IN CHICAGO, IL. AND MDA OPERATION CENTER IN TUCSON AZ, COMPRISES NEARLY 400 ORIGINAL WORKS BY ADULTS AND CHILDREN WHO HAVE ANY OF THE NEUROMUSCULAR DISORDERS IN MDA'S PROGRAM. ARTISTS IN THE COLLECTION REPRESENT ALL 50 STATES, THE DISTRICT OF COLUMBIA AND PUERTO RICO, AND RANGE IN AGE FROM 2 TO 82. THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES, AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY.
FORM 990, SCHEDULE D, PART X, LINE 2	THE ASSOCIATION IS A NONPROFIT ORGANIZATION AND IS EXEMPT FROM TAXATION UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND NEW YORK CODES, RULES AND REGULATIONS (NCRR20 SECTION 1-3.4(B)(6)).
fORM 990, SCHEDULE D, PART X, LINE 2	GENERALLY ACCEPTED ACCOUNTING PRINCIPLES PROVIDE ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN THEIR FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR THE YEARS ENDED DECEMBER 31, 2013, 2012, AND 2011 ARE SUBJECT TO EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED.

Schedule D (Form 990) 2013

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE F(Form 990)

Department of the Treasury
Internal Revenue Service

Statement of Activities Outside the United States

Complete if the organization answered "Yes" to Form 990,Part IV, line 14b, 15, or 16. Right pointing arrow large image

Attach to Form 990. Right pointing arrow large image

See separate instructions. Right pointing arrow large image

Information about Schedule F (Form 990) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2013

Open to Public Inspection

Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION INC

Employer identification number

13-1665552

Part I

General Information on Activities Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 14b.

For grantmakers.Does the organization maintain records to substantiate the amount of its grants and

other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used

to award the grants or assistance? ...............................

Yes

For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.

Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)

(a) Region		(d) Activities conducted in region (by type) (e.g., fundraising, program services, investments, grants to recipients located in the region)	(e) If activity listed in (d) is a program service, describe specific type of service(s) in region	(f) Total expenditures for and investments in region
	Central America and the Caribbean	Program Services	GRANTS TO RECIPIENTS	116,210
	East Asia and the Pacific	Program Services	GRANTS TO RECIPIENTS	701,161
	Europe (Including Iceland and Greenland)	Program Services	GRANTS TO RECIPIENTS	901,584
	Middle East and North Africa	Program Services	GRANTS TO RECIPIENTS	100,003
	North America	Program Services	GRANTS TO RECIPIENTS	1,117,813
	South America	Program Services	GRANTS TO RECIPIENTS	72,500











3a	Sub-total .....			3,009,271
b	Total from continuation sheets to Part I ...
c	Totals (add lines 3a and 3b)			3,009,271

For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) 2013

Schedule F (Form 990) 2013

Page 2

Part II

Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.

(c) Region	(d) Purpose of grant	(e) Amount of cash grant	(f) Manner of cash disbursement
Central America and the Caribbean	RESEARCH	116,210	CHECK
East Asia and the Pacific	RESEARCH	701,161	CHECK
Europe (Including Iceland and Greenland)	RESEARCH	901,584	CHECK
Middle East and North Africa	Research	100,003	CHECK
North America	Research	1,117,813	CHECK
South America	RESEARCH	72,500	CHECK

Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter .... MediumBullet

Enter total number of other organizations or entities ....................... MediumBullet

Schedule F (Form 990) 2013

Schedule F (Form 990) 2013Page 3

Part III

Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 16.

Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance		(b) Region	(c) Number of recipients	(d) Amount of cash grant	(e) Manner of cash disbursement	(f) Amount of non-cash assistance	(g) Description of non-cash assistance	(h) Method of valuation (book, FMV, appraisal, other)

Schedule F (Form 990) 2013

Page 4

Part IV

Foreign Forms

Schedule F (Form 990) 2013

Page 5

Part V

Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information (see instructions).

ReturnReference	Explanation
FORM 990, SCHEDULE F, PART I, LINE 2	UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH(INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.

Schedule F (Form 990) 2013

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE G (Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Supplemental Information Regarding
Fundraising or Gaming Activities

Complete if the organization answered "Yes" to Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrow

Attach to Form 990 or Form 990-EZ. right arrow

See separate instructions.
right arrow

Information about Schedule G (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2013

Open to Public Inspection

Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION INC

Employer identification number

13-1665552

Part I

Fundraising Activities. Complete if the organization answered "Yes" to Form 990, Part IV, line 17.

Form 990-EZ filers are not required to complete this part.

Indicate whether the organization raised funds through any of the following activities. Check all that apply.

a	Mail solicitations	e	Solicitation of non-government grants
b	Internet and email solicitations	f	Solicitation of government grants
c	Phone solicitations	g	Special fundraising events
d	In-person solicitations

Did the organization have a written or oral agreement with any individual (including officers, directors, trustees

or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?

Yes

If "Yes," list the ten highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.

(i) Name and address of individual or entity (fundraiser)		(ii) Activity	(iii) Did fundraiser have custody or control of contributions?		(iv) Gross receipts from activity	(v) Amount paid to (or retained by) fundraiser listed in col. (i)	(vi) Amount paid to (or retained by) organization
			Yes	No
	Convio Inc 11501 DOMAIN DRIVE STE 200 Dallas, TX78758	Shared App services		No	17,946,846	534,111	17,412,735









Total .................					17,946,846	534,111	17,412,735

List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.

AL, AK, AZ, AR, CA, CO, CT, DE, DC, FL, GA, HI, ID, IL, IN, IA, KS, KY, LA, ME, MD, MA, MI, MN, MS, MO, MT, NE, NV, NH, NJ, NM, NY, NC, ND, OH, OK, OR, PA, RI, SC, SD, TN, TX, UT, VT, VA, WA, WV, WI, WY

For Paperwork Reduction Act Notice, see the Instructions for Form 990or 990-EZ.

Cat. No. 50083H

Schedule G (Form 990 or 990-EZ) 2013

Page 2

Part II

Fundraising Events. Complete if the organization answered "Yes" to Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.

		(a) Event #1 SPECIAL EVENTS (event type)	(b) Event #2 SIGNATURE EVENT (event type)	(c) Other events 9,406 (total number)	(d) Total events (add col. (a) through col. (c))
1	Gross receipts . . .	106,600,541	15,899,374	14,291,007	136,790,922
2	Less: Contributions . .	94,840,087	12,387,860	11,430,779	118,658,726
3	Gross income (line 1 minus line 2) . . .	11,760,454	3,511,514	2,860,228	18,132,196
4	Cash prizes . . .
5	Noncash prizes . .
6	Rent/facility costs . .
7	Food and beverages .
8	Entertainment . . .
9	Other direct expenses .	11,760,454	3,511,514	2,860,228	18,132,196
10	Direct expense summary. Add lines 4 through 9 in column (d) ...........				18,132,196
11	Net income summary. Subtract line 10 from line 3, column (d)...........

Part III

Gaming. Complete if the organization answered "Yes" to Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.

(a) Bingo

(b) Pull tabs/Instant
bingo/progressive bingo

(c) Other gaming

(d) Total gaming (add col.(a) through col.(c))

Gross revenue . . . .

538,330

Cash prizes . . . .

Non-cash prizes . . .

123,173

Rent/facility costs . . .

Other direct expenses . .

10,831

Volunteer labor . . .

	Yes %
	No

	Yes %
	No

	Yes100.000 %
	No

Direct expense summary. Add lines 2 through 5 in column (d) ........... right arrow

134,004

Net gaming income summary. Subtract line 7 from line 1, column (d) ......... right arrow

404,326

Enter the state(s) in which the organization operates gaming activities: AL , AK , HI , IL , IA , LA , MI , MN , MO , NE , OK , PA , TX , WI

Is the organization licensed to operate gaming activities in each of these states? ............

YesNo

If "No," explain:

10a

Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? .....

YesNo

If "Yes," explain:

Schedule G (Form 990 or 990-EZ) 2013

Page 3

Does the organization operate gaming activities with nonmembers? .................

YesNo

Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity

formed to administer charitable gaming? ..........................

YesNo

Indicate the percentage of gaming activity operated in:

The organization's facility ......................

13a

0 %

An outside facility ........................

13b

100.000 %

Enter the name and address of the person who prepares the organization's gaming/special events books and records:

Name

Stephen P Evans CPA

Address

222 SOUTH RIVERSIDE PLAZA SUITE 15
CHICAGO,IL606066000

15a

Does the organization have a contract with a third party from whom the organization receives gaming

revenue? ......................................

YesNo

If "Yes," enter the amount of gaming revenue received by the organization right arrow

$ and the

amount of gaming revenue retained by the third party right arrow

$ .

If "Yes," enter name and address of the third party:

Name

Address

Gaming manager information:

Name

Gaming manager compensation right arrow

Description of services provided right arrow

Director/officer Employee Independent contractor

Mandatory distributions:

Is the organization required under state law to make charitable distributions from the gaming proceeds to

retain the state gaming license? ............................

YesNo

Enter the amount of distributions required under state law distributed to other exempt organizations or spent

in the organization's own exempt activities during the tax year right arrow

Part IV

Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v), and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also complete this part to provide any additional information (see instructions).

Return Reference	Explanation
FORM 990, SCHEDULE G, PART I, LINE 2B	(I) NAME OF FUNDRAISER: CONVIO, INC. (I) ADDRESS OF FUNDRAISER: PO BOX 671445, DALLAS, TX 75267

Schedule G (Form 990 or 990-EZ) 2013

Additional Data

Software ID:
Software Version:

- TIN:

Schedule I
(Form 990)

Department of the Treasury
Internal Revenue Service

Grants and Other Assistance to Organizations,
Governments and Individuals in the United States

Complete if the organization answered "Yes," to Form 990, Part IV, line 21 or 22.
lBullet

Attach to Form 990
lBullet

Information about Schedule I (Form 990) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2013

Open to Public
Inspection

Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION INC

Employer identification number
13-1665552

Part I

General Information on Grants and Assistance

Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ....................................

Yes No

Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.

Part II

Grants and Other Assistance to Governments and Organizations in the United States. Complete if the organization answered "Yes" to
Form 990, Part IV, line 21, for any recipient that received more than $5,000. Part II can be duplicated if additional space is needed.

(a) Name and address of organization or government	(b) EIN	(c) IRC Code section if applicable	(d) Amount of cash grant	(h) Purpose of grant or assistance
(1) Albany Medical College-Dept of Neurology 47 New Scotland Ave MC 70 Albany,NY12208	14-1338310	501(c)(3)	18,900	Medical Diagnosis
(2) ALS Therapy Development Foundation 215 First Street Cambridge,MA02142	04-3462719	501(c)(3)	3,831,803	Research
(3) Amicus Therapeutics Inc 6 Cedar Brook Drive Cranbury,NJ08512	71-0869350	Corporation	60,000	Research
(4) Ann & Robert H Lurie Children's Hospital of Chica 225 E Chicago Box 205 Chicago,IL60611	36-2170833	501(c)(3)	25,000	Medical Diagnosis
(5) Ann an Robert H Lurie Children's Hospital of Chic 225 E Chicago Box 205 Chicago,IL60611	36-2170833	501(c)(3)	135,000	Research
(6) Arizona Board of Regents University of Arizona P O Box 3308 Tucson,AZ85722	74-2652689	State of Arizon	195,000	Research
(7) Armgo Pharma Inc 777 Old Saw Mill River Road Tarrytown,NY10591	26-0107795	Corporation	499,528	Research
(8) Baptist Hospital East 4000 Kresge Way Louisville,KY40207	61-0444707	501(c)(3)	11,700	Medical Diagnosis
(9) Baylor College of Medicine One Baylor Plaza MS BCM 310 Houston,TX77030	74-1613878	501(c)(3)	225,000	Research
(10) Billings Clinic Foundation PO Box 31031 Billings,MT59107	81-0407289	501(c)(3)	11,700	Medical Diagnosis
(11) Board of Regents University of Wisconsin System - 21 North Park Street Suite 6401 Madison,WI53715	39-6006492	State of Wiscon	25,000	Medical Diagnosis
(12) Board of Regents NSHE dba University of Nevada 204 Ross Hall Mailstop 325 Reno,NV89557	88-6000024	State of Nevada	162,676	Research
(13) Board of Trustees of SIU PO Box 19616 Springfield,IL62794	37-6005961	State of Illino	20,000	Medical Diagnosis
(14) Boston Biomedical Research Institute 64 Grove Street Watertown,MA02472	04-2451939	501(c)(3)	114,620	Research
(15) Brigham & Women's Hospital 75 Francis St Boston,MA02115	04-2312909	501(c)(3)	32,580	Medical Diagnosis
(16) Brigham and Women's Hospital Inc 75 Francis Street Boston,MA02115	04-2312909	501(c)(3)	135,000	Research
(17) California Pacific Medical Center 475 Brannan Street Ste 220 San Francisco,CA94107	94-0562680	501(c)(3)	300,000	Research
(18) California Pacific Medical Center 2324 Sacramento Street San Francisco,CA94115	94-0562680	501(c)(3)	372,593	Medical Diagnosis
(19) Carilion Medical Center 3 Riverside Circle Roanake,VA24016	54-0506332	501(c)(3)	20,000	Medical Diagnosis
(20) Carle Physician Group 611 W Park St Urbana,IL61801	37-1140016	501(c)(3)	10,800	Medical Diagnosis
(21) Carolinas Medical Center 1221 E Morehead Charlotte,NC28204	56-1398929	501(c)(3)	202,431	Research
(22) Carolinas Medical Center PO Box 32861 Charlotte,NC28232	56-6060481	501(c)(3)	90,000	Medical Diagnosis
(23) Catabasis Pharmaceuticals Inc One Kendall Square Suite B14202 Cambridge,MA02139	26-3687168	Corporation	35,000	Research
(24) Chicago Association for Research an Education in S 5000 South 5th Avenue Bld One Rm C Hines,IL60141	36-3334177	501(c)(3)	60,000	Research
(25) Children's Clinics For Rehabilitative Services 2600 N Wyatt Drive Tucson,AZ85712	86-0667510	501(c)(3)	24,300	Medical Diagnosis
(26) Children's Healthcare of Atlanta at Scottish Rite 1687 Tullie Circle Atlanta,GA30329	58-1947689	501(c)(3)	27,000	Medical Diagnosis
(27) Children's HospNational Med Ctr 111 Michigan NW Washington,DC20010	53-0196580	501(c)(3)	32,400	Medical Diagnosis
(28) Children's Hospof Philadelphia 34th Street Civic Ctr Philadelphia,PA19104	23-1352166	501(c)(3)	90,000	Medical Diagnosis
(29) Children's Hospital & Medical Cntr 4800 Sand Point Way-POBox 5371 Seattle,WA98105	91-0564748	501(c)(3)	49,050	Medical Diagnosis
(30) Children's Hospital an Research Center Oakland 747 52nd Street Oakland,CA94609	94-0382330	501(c)(3)	130,231	Research
(31) Children's Hospital Boston 300 Longwood Avenue Boston,MA02115	04-2774441	501(c)(3)	377,056	Research
(32) Children's Hospital Central CA 9300 Valley Childrens Pl Ms Pcx10 Madera,CA93636	94-1294954	501(c)(3)	9,000	Medical Diagnosis
(33) Children's Hospital Medical Center 3333 Burnet Ave ML 2015 Cincinnati,OH45229	31-0833963	501(c)(3)	54,450	Medical Diagnosis
(34) Children's Hospital Neurology Foundation Fegan 11-300 Lingwood Ave Boston,MA02115	22-2678594	501(c)(3)	27,000	Medical Diagnosis
(35) Children's Hospital of Los Angeles 4650 Sunset Boulevard Mail Stop 97 Los Angeles,CA90027	95-1690977	501(c)(3)	20,000	Medical Diagnosis
(36) Children's Hospital of Orange County 455 S Main Street Orange,CA92868	95-2321788	501(c)(3)	40,400	Medical Diagnosis
(37) Children's Hospital New Orleans 200 Henry Clay Avenue New Orleans,LA70118	72-0467503	501(c)(3)	9,000	Medical Diagnosis
(38) Children's Hospital Richmond 2924 Brook Road Richmond,VA23220	54-0506309	501(c)(3)	15,300	Medical Diagnosis
(39) Children's Hospital San Diego 3020 Childrens Way San Diego,CA92123	95-1691313	501(c)(3)	33,750	Medical Diagnosis
(40) Children's Medical Center 2350 Stemmons Frwy Ste 5400 Dallas,TX75207	75-0800628	501(c)(3)	36,750	Medical Diagnosis
(41) Children's Research Institute (CNMC) 111 Michigan Avenue NW Washington,DC20010	52-1654453	501(c)(3)	590,339	Research
(42) CHOP of UPMC 4401 Penn Ave Fac Pavilion 6th Fl Pittsburgh,PA15224	25-0402510	501(c)(3)	18,900	Medical Diagnosis
(43) Christus Spohn Hospital Corpus Christi Memorial 2606 Hospital Blvd Corpus Christi,TX78405	74-1109836	501(c)(3)	10,000	Medical Diagnosis
(44) Cleveland Clinic Foundation PO Box 931531 Cleveland,OH44193	34-0714585	501(c)(3)	130,000	Research
(45) Clinical Neurology PC 4221 S Western Suite 5010 Oklahoma City,OK73109	41-2141136	Corporation	107,100	Medical Diagnosis
(46) Colorado State University Campus Delivery Box 2002 Fort Collins,CO80523	84-6000545	State of Colora	121,000	Research
(47) Columbus Children's Hospital 700 Childrens Dr Columbus,OH43205	31-4379441	501(c)(3)	28,800	Medical Diagnosis
(48) Cook Children's Medical Center 901 Seventh Avenue Ste 120 Ft Worth,TX76104	75-2051646	501(c)(3)	8,100	Medical Diagnosis
(49) Cornell University 373 Pine Tree Road Ithaca,NY14850	15-0532082	501(c)(3)	120,000	Research
(50) Covenant Health System 3615 19th St Lubbock,TX79408	75-2765566	501(c)(3)	23,600	Medical Diagnosis
(51) Dana-Farber Cancer Institute 450 Brookline Avenue Boston,MA02215	04-2263040	501(c)(3)	101,443	Research
(52) Dean Clinic 1808 West Beltline Hwy Madison,WI53713	39-1128616	Corporation	25,000	Medical Diagnosis
(53) Dent Neurologic Group LLP 3980 Sheridan Drive Suite B Amherst,NY14226	16-1582336	Partnership	12,600	Medical Diagnosis
(54) Drexel Neurological Associates 245 North 15th St Mail Stop 423 Philadelphia,PA19102	75-4022380	Corporation	33,750	Medical Diagnosis
(55) Driscoll Children's Hospital 3533 South Alameda Street Corpus Christi,TX78411	74-2577746	501(c)(3)	6,000	Medical Diagnosis
(56) Duke University Medical Center 2200 West Main Street Suite 820 E Durham,NC27705	56-0532129	501(c)(3)	286,906	Research
(57) Duke University Medical Center Box 3069 Durham,NC27710	56-1029437	501(c)(3)	81,000	Medical Diagnosis
(58) Eastern Maine Medical Center 489 State Street Bangor,ME04401	01-0211501	501(c)(3)	8,100	Medical Diagnosis
(59) El Paso Child Neurology PA 1900 N Oregon Ste 520 El Paso,TX79902	26-4347703	Corporation	16,200	Medical Diagnosis
(60) Elkhart Clinic LLC 303 S Nappanee Elkhart,IN07103	35-1911857	Partnership	14,400	Medical Diagnosis
(61) Emory Clinic Inc 101 Woodruff Circle Atlanta,GA30322	58-2030692	501(c)(3)	81,000	Medical Diagnosis
(62) Emory University Food and Drug Administration 1365B Clifton Road NE Ste 6200 Atlanta,GA30322	58-0566256	501(c)(3)	426,464	Research
(63) Federation of American Socities for Experimental B 9650 ROCKVILLE PIKE Bethesda,MD20814	52-0700497	501(c)(3)	7,275	Research
(64) Fletcher Allen Health Care Center 1 South Prospect Street Burlington,VT05401	03-0219303	State of Vermon	6,300	Medical Diagnosis
(65) Fred Hutchinson Cancer Research Center 1100 Fairview Avenue N J6-500 Seattle,WA98109	23-7156071	501(c)(3)	100,000	Research
(66) Georgetown University 4000 Reservoir Rd NW Bldg D Rm 207 Washington,DC20057	53-0196603	501(c)(3)	20,635	Medical Diagnosis
(67) Georgia Health Sciences Medical Center 1120 15th Street Rm FY127 Augusta,GA30912	58-2144788	501(c)(3)	18,000	Medical Diagnosis
(68) Georgia Health Sciences University 1120 15th Street Augusta,GA30912	58-6002053	State of Georgi	130,000	Research
(69) Glendale Neurological Assoc DBA (MIND) 28595 Orchard Lake Rd 200 Farmington Hills,MI48334	38-1889896	Corporation	63,000	Medical Diagnosis
(70) Good Shepherd Rehabilitation Hosp 501 St John Street Allentown,PA18103	23-1371947	501(c)(3)	61,200	Medical Diagnosis
(71) Gordon Research Conferences 512 Liberty Lane West Kingston,RI02892	26-0150662	501(c)(3)	10,000	Research
(72) Greenville Hosp System Univ Medical Group 200 Patewood Drive A-200 Greenville,SC29615	57-6007863	501(c)(3)	8,100	Medical Diagnosis
(73) HALO THERAPEUTICS LLC 275 GROVE ST SUITE 2-400 NEWTON,MA02466	27-5336394	Partnership	293,000	Research
(74) Hamot 2nd Century Fund 302 French Street Erie,PA16507	25-1400909	501(c)(3)	9,000	Medical Diagnosis
(75) Harvard Medical School 25 Shattuck Street Suite 509A Boston,MA02115	04-2103580	501(c)(3)	295,937	Research
(76) Hershey Medical Center 500 University Drive Mail CodeEC0 Hershey,PA17033	25-1854772	State of Pennsy	73,800	Medical Diagnosis
(77) HospEspanol De Auxilio Mutuo Inc PO Box 191227 Hato Rey,PR00919	66-0486907	Corporation	49,500	Medical Diagnosis
(78) Hospital De La Concepcion PO Box 285 San German,PR00681	66-0227304	501(c)(3)	28,800	Medical Diagnosis
(79) Hospital For Special Care 2150 Corbin Avenue New Britain,CT06053	06-0646766	501(c)(3)	62,600	Medical Diagnosis
(80) Hospital For Special Surgery 535 E 70th Street 3rd Fl New York,NY10021	13-1624135	501(c)(3)	80,000	Medical Diagnosis
(81) Hospital of The University of Pennsylvania 3400 Spruce Street Philadelphia,PA19104	23-1352685	State of Pennsy	70,110	Medical Diagnosis
(82) Hugo W Moser Research Institute at Kennedy Kriege 707 N Broadway Baltimore,MD21205	52-1524967	501(c)(3)	126,513	Research
(83) Idaho Elks Rehabilitation Hospital PO Box 1100 Boise,ID83701	82-0302317	501(c)(3)	19,800	Medical Diagnosis
(84) Illinois Institute of Technology 3300 South Federal Street Main Bld Chicago,IL60616	36-2170136	501(c)(3)	85,837	Research
(85) Indiana University (Indianapolis) 620 Union Drive Room 518 Indianapolis,IN46202	35-6001673	State of Indian	149,024	Research
(86) Inst Of Rehab MedNY Univ Med School 240 East 348th Street Room 15-60B New York,NY10016	13-3971298	501(c)(3)	72,900	Medical Diagnosis
(87) Iowa Health Des Moines 1200 Pleasant St Des Moines,IA50309	42-0680452	501(c)(3)	10,800	Medical Diagnosis
(88) IU Health Neuroscience Center 335 W 16th Street 3rd Floor Indianapolis,IN46202	35-1955872	501(c)(3)	22,500	Medical Diagnosis
(89) IU Health Riley Hospital for Children 702 Barnhill Drive Room 1757 Indianapolis,IN46202	35-1955872	501(c)(3)	45,000	Medical Diagnosis
(90) Joan an Sanford I Weill Medical College of Cornel 1300 York Avenue Box 89 New York,NY10065	13-1623978	501(c)(3)	218,439	Research
(91) John Hopkins Univ School of Medicine 600 NWolfe Street Meyer 5-119 Baltimore,MD21287	32-0061260	501(c)(3)	195,300	Medical Diagnosis
(92) Johns Hopkins University School of Medicine 733 North Broadway Suite 117 Baltimore,MD21205	52-0595110	501(c)(3)	615,302	Research
(93) Kennedy Hospital 500 Marlboro Rd Cherry Hill,NJ08034	22-1773439	501(c)(3)	15,300	Medical Diagnosis
(94) KUMC Research Institute MS-1039 3901 Rainbow Blvd 6003 Wes Kansas City,KS66160	48-1108830	501(c)(3)	70,200	Medical Diagnosis
(95) Lahey Clinic Foundation Inc 41 Mall Road Burlington,MA01805	04-2704683	501(c)(3)	14,850	Medical Diagnosis
(96) Le Bonheur Children's Hospital 50 Peabody Place Suite 400 Memphis,TN38103	62-1872938	501(c)(3)	24,300	Medical Diagnosis
(97) LES TURNER ALS FOUNDATION 5550 W Touhy Avenue Suite 302 Skokie,IL60077	36-2916466	501(c)(3)	7,500	Research
(98) Loma Linda University Health Care 11175 Campus Street Coleman Pavili Loma Linda,CA92354	33-0364239	501(c)(3)	26,100	Medical Diagnosis
(99) Louisiana State Univ Health Sci Ctr 1501 Kings Highway Shreveport,LA71130	72-0702002	State of Louisi	27,000	Medical Diagnosis
(100) LSU School of Medicine 433 Bolivar St New Orleans,LA70112	72-1304948	State of Louisi	30,600	Medical Diagnosis
(101) Lucile Salter Packard Child Hosp 4100 Bohannon Drive Mail Code 5894 Menlo Park,CA94304	77-0003859	501(c)(3)	43,000	Medical Diagnosis
(102) Ludwig Institute for Cancer Research Ltd 9500 Gilman Drive MC-0660 La Jolla,CA92093	23-7121131	501(c)(3)	193,981	Research
(103) Lutheran Hospital of Indiana Inc 7950 W Jefferson Blvd Fort Wayne,IN46804	35-1963748	501(c)(3)	14,400	Medical Diagnosis
(104) Maine Medical Cntr-Dept of Rehabil 22 Bramhall Street Portland,ME04102	01-0238552	501(c)(3)	14,850	Medical Diagnosis
(105) Marshfield Clinic 1000 North Oak Avenue Marshfield,WI54449	39-0452970	501(c)(3)	10,800	Medical Diagnosis
(106) Mary Hitchcock Memorial Hospital One Medical Center Dr Lebanon,NH03756	02-0222140	501(c)(3)	22,500	Medical Diagnosis
(107) Massachusetts General Hospital (The General Hospit 101 Huntington Ave Suite 300 Boston,MA02199	04-2697983	501(c)(3)	90,000	Research
(108) Mayo Clinic Jacksonville 4500 San Pablo Road Jacksonville,FL32224	59-3337028	501(c)(3)	20,250	Medical Diagnosis
(109) MDAALS Center at the University of California Ir 200 South Manchester Avenue Ste 1 Orange,CA92868	95-2226406	State of Califo	66,000	Medical Diagnosis
(110) Medical College of Wisconsin 9200 W Wisconsin Ave Milwaukee,WI53226	39-0806261	501(c)(3)	30,600	Medical Diagnosis
(111) Memorial Sloan-Kettering Cancer Center 1275 York Avenue Box 701 New York,NY10065	13-1924236	501(c)(3)	187,850	Research
(112) Mercy Clinic Neurology 2115 S Fremont Springfield,MO65804	44-0552485	501(c)(3)	19,000	Medical Diagnosis
(113) Mercy Health Saint Mary's 200Jefferson SE Grand Rapids,MI49503	38-2113393	501(c)(3)	20,000	Medical Diagnosis
(114) Methodist Neurological Institute 6560 Fannin Street 802 Houston,TX77030	87-0721923	501(c)(3)	132,300	Medical Diagnosis
(115) MetroHealth Medical Center PO Box 73122 Cleveland,OH44193	34-6004382	501(c)(3)	36,000	Medical Diagnosis
(116) Michigan State University B-301 East Fee Hall A-217 Clinical East Lansing,MI48824	38-6005984	State of Michig	20,250	Medical Diagnosis
(117) Monmouth Medical Center Foundation 300 Second Ave Long Branch,NJ07740	22-3452412	501(c)(3)	27,000	Medical Diagnosis
(118) Montefiore Medical Center 3351 Steuben Ave 3rd Flr Bronx,NY10467	13-3908657	501(c)(3)	46,575	Medical Diagnosis
(119) Nemours Children's Clinic 13535 Nemours Parkway Orando,FL32827	59-0634433	501(c)(3)	48,300	Medical Diagnosis
(120) Neurology Associates 1301 S Cliff Ave 506 Sioux Falls,SD57105	46-0364889	Corporation	16,200	Medical Diagnosis
(121) Neurology Associates of Arlington 811 Interstate 20 W Ste 212 Arlington,TX76017	75-2405825	Corporation	24,300	Medical Diagnosis
(122) Neurology Medical Service Group 750 East Adams Street Syracuse,NY13210	16-6066240	501(c)(3)	45,900	Medical Diagnosis
(123) Neurology Specialists of Jupiter 601 University Blvd Suite 102 Jupiter,FL33458	65-0925187	501(c)(3)	7,200	Medical Diagnosis
(124) Northwestern Medical Faculty Found 710 N Lake Shore Dr Rm 1119 Chicago,IL60611	39-3097297	501(c)(3)	62,000	Medical Diagnosis
(125) Nymirum Inc 3510 W Liberty Rd Ann Arbor,MI48103	26-4216873	Corporation	197,066	Research
(126) Ohio State University Hospitals 1581 Dodd Drive McCampbell Hall Columbus,OH43210	31-6025986	State of Ohio	61,200	Medical Diagnosis
(127) Olive View - UCLA Medical Center 14445 Olive View Drive 2C136 Sylmar,CA91342	95-2249539	State of Califo	22,500	Medical Diagnosis
(128) Oregon Health & Science University 3181 SW Sam Jackson Park Road Portland,OR97201	93-1176109	501(c)(3)	36,000	Medical Diagnosis
(129) Oregon Health and Science University 3181 SW Sam Jackson Park Rd Portland,OR97239	93-1176109	170(c)(1)	177,188	Research
(130) OSF Medical Group Neurology PO Box 1712 Peoria,IL61656	37-0662569	Corporation	13,500	Medical Diagnosis
(131) Our Lady of Lourdes RMC 611 St Landry St Lafayette,LA70506	72-0423635	501(c)(3)	36,000	Medical Diagnosis
(132) Philadelphia Health and Education Corporation db 3201 Arch Street Suite 100 Philadelphia,PA19104	23-1352630	501(c)(3)	110,000	Research
(133) Physicians Billing 1600 Rockland Road-PO Box 269 Wilmington,DE19899	59-0634433	501(c)(3)	49,500	Medical Diagnosis
(134) Ponce School of Medicine PO Box 7004 Ponce,PR00732	66-0379122	501(c)(3)	36,000	Medical Diagnosis
(135) Prevea Clinic PO Box 19070 Green Bay,WI54307	39-1839349	501(c)(3)	17,576	Medical Diagnosis
(136) Rapid City Regional Hospital PO Box 3450 Rapid City,SD57709	46-0319070	501(c)(3)	7,200	Medical Diagnosis
(137) Rapides Specialty Clinic Division of RRMC Box 30101 211 Fourth Street Alexandria,LA71301	72-0702002	501(c)(3)	9,000	Medical Diagnosis
(138) Regents of The University of California(Los Angele 710 Westwood Plaza 4-231 Rnrc Los Angeles,CA90095	95-6006143	State of Califo	108,000	Medical Diagnosis
(139) Regents of The University of California(San Franci 1855 Folsom MCB 425 San Francisco,CA94143	94-6036493	State of Califo	29,215	Medical Diagnosis
(140) Regents of the University of Minnesota - Twin Citi 450 McNamara Alumni Center 200 Oak Minneapolis,MN55455	41-6007513	State of Minnes	755,774	Research
(141) Research Institute at Nationwide Children's Hospit 700 Childrens Drive Columbus,OH43205	31-6056230	501(c)(3)	453,188	Research
(142) ReveraGen BioPharma Inc 9700 GREAT SENECA HWY SUITE 150 Rockville,MD20850	26-3808415	Corporation	582,363	Research
(143) Rhode Island Hospital 593 Eddy Street Providence,RI02903	05-0258954	501(c)(3)	16,200	Medical Diagnosis
(144) Rutgers New Jersey Medical School 90 Bergen St Suite 8100 Newark,NJ07101	35-1911857	501(c)(3)	19,575	Medical Diagnosis
(145) Sacred Heart Medical Center Found 1255 Hilyard St PO Box 10905 Eugene,OR97440	93-1084906	501(c)(3)	13,500	Medical Diagnosis
(146) San Diego State University Research Foundation 5250 Campanile Dr San Diego,CA92182	95-6042721	State of Califo	123,437	Research
(147) Sanford Clinic Fargo Region 720 4th Street North Fargo,ND58122	91-1770748	501(c)(3)	17,100	Medical Diagnosis
(148) Sanford-Burnham Medical Research Institute 10901 North Torrey Pines Rd La Jolla,CA92037	51-0197108	501(c)(3)	148,777	Research
(149) Sarasota Memorial Hospital 1700 Tamiami Trail Sarasota,FL34239	59-6012500	501(c)(3)	24,000	Medical Diagnosis
(150) Seattle Institute for Biomedical and Clinical Rese 1660 S Columbian Way S-151F Seattle,WA98108	91-1452438	501(c)(3)	105,519	Research
(151) Sentara Norfolk General Hospital 6015 Poplar Hall Dr Ste 212 Norfolk,VA23502	54-1547408	501(c)(3)	22,500	Medical Diagnosis
(152) Sfida BioLogic Inc 615 Arapeen Dr Suite 310 Salt Lake City,UT84108	90-0513929	Corporation	78,419	Research
(153) Shands Hospital 302 Tigert Hall Gainesville,FL32611	59-6002052	501(c)(3)	16,650	Medical Diagnosis
(154) Shriners Hospfor Children - Portland 3101 SW Sam Jackson Park R Portland,OR97239	36-2193608	501(c)(3)	9,000	Medical Diagnosis
(155) Shriners Hospital For Children Chicago 2211 N Oak Park Avenue Chicago,IL60707	36-2193608	501(c)(3)	25,000	Medical Diagnosis
(156) Shriners Hospital For Children in Spokane 911 W 5th Avenue Spokane,WA99204	36-2193608	501(c)(3)	7,200	Medical Diagnosis
(157) Spartanburg Neurological Services 362 N Pine Street Spartanburg,SC29302	57-0902952	Corporation	8,100	Medical Diagnosis
(158) Specially For Children 1301 Barbara Jordan Blvd 200 Austin,TX78723	74-2800601	501(c)(3)	10,125	Medical Diagnosis
(159) St Anthony's Specialist LLC 300 S Park Place Blvd Ste 170 Clearwater,FL33759	74-3168197	501(c)(3)	22,500	Medical Diagnosis
(160) St Charles Hospital And Rehabilitation Center 200 Belle Terre Road Port Jefferson,NY11777	41-2076312	501(c)(3)	18,000	Medical Diagnosis
(161) St Francis Medical Ctr PO Box 1901 Monroe,LA71210	72-0408970	501(c)(3)	8,438	Medical Diagnosis
(162) St Joseph's Children's Hospital of Tampa 2700 W Dr Martin Luther King Jr Tampa,FL33607	59-1100828	501(c)(3)	31,500	Medical Diagnosis
(163) St Joseph's Hosp & Medical Center 350 West Thomas Rd Phoenix,AZ85013	86-0096787	501(c)(3)	36,000	Medical Diagnosis
(164) St Jude Children's Research Hospital 262 Danny Thomas Place Memphis,TN38105	62-0646012	501(c)(3)	60,000	Research
(165) St Luke's Rehabilitation Institute S 711 Cowley Spokane,WA99202	91-1307555	501(c)(3)	13,500	Medical Diagnosis
(166) St Peter's Hospital 410 Providence Lane NE Bldg 2 Olympia,WA98506	91-0567732	501(c)(3)	28,125	Medical Diagnosis
(167) St Peter's Hospital Foundation 319 S Manning Blvd Ste 309 Roessleville,NY12205	22-2262982	501(c)(3)	120,000	Medical Diagnosis
(168) Stanford University PO Box 44253 San Francisco,CA94144	94-1156365	State of Califo	287,687	Research
(169) SUNY Upstate Medical University 750 E Adams Street Syracuse,NY13210	14-1368361	State of New Yo	369,764	Research
(170) Texas Children's Hospital 6621 Fannin Houston,TX77030	74-1100555	501(c)(3)	9,000	Medical Diagnosis
(171) Texas Neurology PA 6301 Gaston Ave Ste 200W Dallas,TX75214	75-2654757	Corporation	19,000	Medical Diagnosis
(172) The Board of Trustees of the University of Illinoi 1737 W Polk St M/C 672 AOB 304 Chicago,IL60612	37-6000511	State of Illino	165,686	Research
(173) The Children's Hospital 13123 E 16th Avenul Rehab Medicine Aurora,CO80045	84-0166760	501(c)(3)	52,200	Medical Diagnosis
(174) The Children's Hospital of Philadelphia 3615 Civic Center Blvd Philadelphia,PA19104	23-1352166	501(c)(3)	135,000	Research
(175) The Curators of the University of Missouri 310 Jesse Hall Columbia,MO65211	43-6003859	State of Missou	127,194	Research
(176) The Duluth Clinic Ltd 400 E 3rd Street Duluth,MN55805	41-0883623	501(c)(3)	6,750	Medical Diagnosis
(177) The General Hospital Corporation 13th Street Bldg 149 Charlestown,MA02129	04-2697983	501(c)(3)	128,925	Medical Diagnosis
(178) The Methodist Hospital Research Institute 6565 Fannin MGJ4-024 Houston,TX77030	87-0721923	501(c)(3)	26,524	Research
(179) The Ohio State University 1960 Kenny Road Columbus,OH43210	31-6025986	State of Ohio	135,000	Research
(180) The Regents of The Univ of Michigan 2301 Commonwealth Blvd Ann Arbor,MI48105	38-6006809	State of Michig	30,000	Medical Diagnosis
(181) The Regents of the University of California (Davis 1850 Research Park Drive Ste 300 Davis,CA95618	94-6036494	State of Califo	137,500	Research
(182) The Regents of the University of California Los A 11000 Kinross Avenue Ste 211 Los Angeles,CA90095	94-6006143	State of Califo	866,257	Research
(183) The Regents of the University of California San D 9500 Gilman Drive Dept 0934 La Jolla,CA92093	95-6006144	State of Califo	299,271	Research
(184) The Regents of the University of California San F 3333 California Street Ste 315 San Francisco,CA94118	94-6036493	State of Califo	137,500	Research
(185) The Regents of the University of Colorado 3100 Marine Street Room 479 Boulder,CO80309	84-6000555	State of Colora	112,925	Research
(186) The Regents of the University of Michigan 3003 S State Street Room 1054 Ann Arbor,MI48109	38-6006309	State of Maryla	156,030	Research
(187) The Regents of the University of New Mexico 1700 Lomas BLvd NE Ste 2200 Albuquerque,NM87131	85-6000642	State of New Me	90,000	Research
(188) The Research Institute at Nationwide Children's Ho 700 Childrens Drive Columbus,OH43205	31-6056230	501(c)(3)	142,000	Research
(189) The Scripps Research Institute 10550 North Torrey Pines Rd La Jolla,CA92037	33-0435954	501(c)(3)	240,908	Research
(190) The Translational Genomics Research Institute 445 N Fifth Street Ste 600 Phoenix,AZ85004	75-3065445	501(c)(3)	129,076	Research
(191) The Trustees of Columbia University in the City of 630 West 168th Street Box 49 New York,NY10032	13-5598093	501(c)(3)	832,138	Research
(192) The Trustees of the University of Pennsylvania 3451 Walnut Street Franklin Bldg P Philadelphia,PA19104	23-1352685	State of Pennsy	478,053	Research
(193) The Univ Of Texas Southwestern 5323 Harry Hines Blvd Dallas,TX75390	75-6002868	State of Texas	192,000	Medical Diagnosis
(194) The University of Iowa 2 Gilmore Hall Iowa City,IA52242	42-6004813	State of Iowa	330,043	Research
(195) The University of North Carolina at Chapel Hill 104 Airport Drive Ste 2200 Campus Chapel Hill,NC27599	56-6001393	State of North	132,000	Research
(196) The University of Texas Health Science Center at H Post Office Box 20036 Houston,TX77225	74-1761309	State of Texas	318,286	Research
(197) The University of Texas Medical Branch at Galvesto 301 University Boulevard Galveston,TX77555	74-6000949	State of Texas	130,000	Research
(198) The University of Toledo 2801 West Bancroft Street Toledo,OH43606	34-6401483	State of Ohio	108,606	Research
(199) Tivorsan Pharmaceuticals Inc 3 Davol Square A301 Providence,RI02903	77-0702642	Corporation	150,000	Research
(200) Toledo Hospital 3949 Sunforest Ct Suite 203 Toledo,OH43623	34-4428256	501(c)(3)	30,375	Medical Diagnosis
(201) Trustees of Boston University 881 Commonwealth Avenue Boston,MA02215	04-2103547	501(c)(3)	119,149	Research
(202) Trustees of Columbia University 622 W 168th Street Box 16 New York,NY10032	13-3908657	501(c)(3)	176,400	Medical Diagnosis
(203) Tufts Medical Center Hospital 800 Washington St Dept of PMR Boston,MA02111	04-3148378	501(c)(3)	16,875	Medical Diagnosis
(204) UAB Division of Pediatric Neurology 1600 7th Ave South Ste 406 Birmingham,AL35233	63-0307306	501(c)(3)	18,000	Medical Diagnosis
(205) UMDNJ - University Hospital 150 Bergen St Rm G246 Newark,NJ07103	35-1911857	501(c)(3)	58,725	Medical Diagnosis
(206) UMDNJ-New Jersey Medical School 185 S Orange Avenue MSB C-690 Newark,NJ07101	22-1775306	501(c)(3)	125,000	Research
(207) UMPhysicians 2101 SE 6th St Ste 4-184 MMC 2641E Minneapolis,MN55455	41-1843943	501(c)(3)	157,500	Medical Diagnosis
(208) Univ of MA Medical School Rms 5-752 55 Lake Avenue N Worcester,MA01655	04-3167352	State of Massac	21,600	Medical Diagnosis
(209) Univ of North Carolina Hospitals 211 Friday Center Dr Suite 2033 Chapel Hill,NC27514	57-0935917	State of North	34,200	Medical Diagnosis
(210) Univ Hosp Brooklyn SUNY-Downstate Med Ctr 450 Clarkson Ave Box 1213 Brooklyn,NY11203	14-1368361	State of New Yo	40,500	Medical Diagnosis
(211) Univ of Arkansas for Medical Sciences 4301 W Markham Little Rock,AR72205	71-6046242	State of Arkans	54,000	Medical Diagnosis
(212) Univ of Miami Sponsored Programs PO Box 405803 Atlanta,GA30384	59-2579826	501(c)(3)	199,252	Medical Diagnosis
(213) Univ of Nevada School of Medicine 2040 W Charleston Blvd Ste 300 Las Vegas,NV89102	88-0330858	State of Nevada	22,500	Medical Diagnosis
(214) Univ of New Mexico Health Sciences Ctr MSC10 5620 1 University of New Mexi Albuquerque,NM87131	85-6000642	State of New Me	41,400	Medical Diagnosis
(215) Univ of Rochester Medical Center 601 Elmwood Ave Box 673 Rochester,NY14642	16-0743209	501(c)(3)	94,500	Medical Diagnosis
(216) Univ of TX Hlth Science Ctr MSRDP 7703 Floyd Curl Drive San Antonio,TX78284	74-1586031	State of Texas	74,700	Medical Diagnosis
(217) Univ of Utah School of Medicine 175 North Medical Dr East 5th Floo Salt Lake City,UT84132	87-0480520	State of Utah	67,500	Medical Diagnosis
(218) Univof Alabama Health SvcsFound 1720 7Th Ave South Suite 350 Spar Birmingham,AL35294	63-0649108	State of Alabam	25,000	Medical Diagnosis
(219) Univof Mississippi Medical Center 2500 N State Street Jackson,MS39216	64-6008520	State of Missou	87,500	Medical Diagnosis
(220) University Medical Associates 1 Poston Road Ste 350 Charleston,SC29407	57-1098556	State of South	35,100	Medical Diagnosis
(221) University Medical Center 1501 N Campbell PO Box 245142 Tucson,AZ85724	94-2958258	State of Arizon	31,500	Medical Diagnosis
(222) University Neurology Inc ML525-231 Bethesda Ave Cincinnati,OH45267	31-1000664	Corporation	70,200	Medical Diagnosis
(223) University of California Regents (Sacramento) 4860 Y Street Ste 3850 Sacramento,CA95817	94-6036494	State of Califo	45,000	Medical Diagnosis
(224) University of California Regents (San Francisco) 505 Parnassus Ave M 798 Box 0114 San Francisco,CA94143	94-6036493	State of Califo	103,500	Medical Diagnosis
(225) University of Cincinnati 51 Goodman Drive PO Box 210222 Cincinnati,OH45221	31-6000989	State of Ohio	110,000	Research
(226) University of Colorado Denver AMC and DC Mail Stop F428 Anschutz Medical Cam Aurora,CO80045	84-6000555	State of Colora	100,000	Research
(227) University of Florida 219 Grinter Hall Gainesville,FL32611	59-6002052	State of Florid	360,240	Research
(228) University of Iowa Hospitals & Clinics B5 Jessup Hall Iowa City,IA52242	42-6004813	State of Iowa	46,800	Medical Diagnosis
(229) University of Maryland Baltimore 620 W Lexington Street 4th Floor Baltimore,MD21201	52-6002033	State of Maryla	120,765	Research
(230) University of Massachusetts Medical School 55 Lake Avenue North Worcester,MA01655	04-3167352	State of Massac	330,000	Research
(231) University of Miami School of Medicine 1400 NW 10th Avenue Miami,FL33136	59-0624458	State of Florid	130,000	Research
(232) University of Nebraska Medical Center 600 S42nd St Omaha,NE68198	47-0049123	State of Nebras	36,000	Medical Diagnosis
(233) University of Pittsburgh 200 Lothrop Street Suite F875 Pittsburgh,PA15213	25-0965591	State of Pennsy	54,000	Medical Diagnosis
(234) University of Puerto Rico Medical Sciences GPO 365067 1st Fl Univ Hospital San Juan,PR00936	66-0433762	State of Puerto	45,000	Medical Diagnosis
(235) University of Rochester 518 Hylan Bldg Box 270140 Rochester,NY14627	16-0743209	501(c)(3)	660,271	Research
(236) University of Tennessee Medical Center 1928 Alcoa Highway Medical Bldg B Knoxville,TN37920	31-1626179	State of Tennes	12,600	Medical Diagnosis
(237) University of Texas MD Anderson Cancer Center 1515 Holcombe Blvd Houston,TX77030	74-6001118	State of Texas	106,130	Research
(238) University of Utah 75 S 2000 East 211 RAB Salt Lake City,UT84112	87-6000525	State of Utah	125,000	Research
(239) University of Virginia Health PO Box 9007 Charlottesville,VA22906	54-1124769	State of Virgin	57,600	Medical Diagnosis
(240) University of Washington 4333 Brooklyn Ave NE Box 359472 Seattle,WA98195	91-6001537	State of Washin	1,152,873	Research
(241) University of Washington MedCenter 1959 NE Pacific Street PO Box 25 Seattle,WA98195	91-6001537	State of Washin	63,900	Medical Diagnosis
(242) University Physicians One Hospital Drive DC05630 Columbia,MO65212	43-6003859	State of Missou	23,753	Medical Diagnosis
(243) University Physicians Inc PO Box 725 Aurora,CO80040	74-2161737	State of Colora	135,000	Medical Diagnosis
(244) Univiversity of IL Board of Trustees PO Box 20787 Springfield,IL62708	37-6000511	State of Illino	63,500	Medical Diagnosis
(245) UPH Neurology Clinic 2800 E Ajo Way Tucson,AZ85713	94-2958258	501(c)(3)	31,500	Medical Diagnosis
(246) USCUniversity of Southern California 837 West Downey Way STO 330 Los Angeles,CA90089	95-1642394	State of Califo	60,250	Research
(247) UT Southwestern Medical Center 5323 Harry Hines Blvd Dallas,TX75390	75-6002868	State of Texas	317,942	Research
(248) Valerion Therapeutics Inc 100 Main St Suite 110 Concord,MA01742	32-0246380	Corporation	140,612	Research
(249) Vanderbilt Department of Neurology Dept at 40303 - Center 4-01-400-5 Atlanta,GA31992	62-0476822	501(c)(3)	149,000	Medical Diagnosis
(250) Via Christi Med Ctr St Francis Campus 707 N Emporia Wichita,KS67147	48-1172106	501(c)(3)	29,250	Medical Diagnosis
(251) W Virginia University Research Corp 1 Medical Ctr Dr Ste 7500 Morgantown,WV26508	55-0665758	State of West V	32,400	Medical Diagnosis
(252) Wake Forest Univ School of Medicine Medical Center Blvd WinstonSalem,NC27157	22-3849199	501(c)(3)	18,000	Medical Diagnosis
(253) Washington State University Room 423 Neill Hall Pullman,WA99164	91-6001108	State of Washin	73,965	Research
(254) Washington UnivSchool of Medicine Box 8111 600 S Euclid Ave St Louis,MO63110	43-0653611	State of Missou	126,000	Medical Diagnosis
(255) Washington University in St Louis 660 South Euclid Avenue Campus Box St Louis,MO63110	43-0653611	501(c)(3)	452,990	Research
(256) Wesley Neurology Clinic PC 1211 Union Avenue Suite 400 Memphis,TN38104	58-1544781	501(c)(3)	55,700	Medical Diagnosis
(257) White Plains Hospital & Medical Center Davis Avenue at East Post Road White Plains,NY10601	13-1740130	501(c)(3)	12,600	Medical Diagnosis
(258) Wichita Falls Neurology Center PLLC 1600 7th Street Ste B Wichita Falls,TX76301	75-2151000	Partnership	10,800	Medical Diagnosis
(259) Yale University 800 Howard Ave PO Box 208071 New Haven,CT06520	06-0646973	501(c)(3)	10,000	Medical Diagnosis

Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................ Bullet Image

228

Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50055P

Schedule I (Form 990) 2013

Page 2

Part III

Grants and Other Assistance to Individuals in the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.

(a)Type of grant or assistance	(b)Number of recipients	(c)Amount of cash grant	(d)Amount of non-cash assistance	(e)Method of valuation (book, FMV, appraisal, other)	(f)Description of non-cash assistance

Part IV

Supplemental Information. Provide the information required in Part I, line 2, Part III, column (b), and any other additional information.

Return Reference

Explanation

FORM 990, SCHEDULE F, PART I, LINE 2

UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.

Schedule I (Form 990) 2013

Additional Data

Software ID:
Software Version:

- TIN:

Schedule J
(Form 990)

Department of the Treasury
Internal Revenue Service

Compensation Information

For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
SchJMediumBullet

Complete if the organization answered "Yes" to Form 990, Part IV, line 23.
SchJMediumBullet

Attach to Form 990. SchJMediumBullet

See separate instructions.
SchJMediumBullet

Information about Schedule J (Form 990) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2013

Open to Public Inspection

Name of the organization

MUSCULAR DYSTROPHY ASSOCIATION INC

Employer identification number

13-1665552

Part I

Questions Regarding Compensation

Yes

Check the appropiate box(es) if the organization provided any of the following to or for a person listed in Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.

First-class or charter travel Housing allowance or residence for personal use

Travel for companions Payments for business use of personal residence

Tax idemnification and gross-up payments Health or social club dues or initiation fees

Discretionary spending account Personal services (e.g., maid, chauffeur, chef)

If any of the boxes in line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain....

Yes

Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked in line 1a? ..

Yes

Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.

Compensation committee Written employment contract

Independent compensation consultant Compensation survey or study

Form 990 of other organizations Approval by the board or compensation committee

During the year, did any person listed in Form 990, Part VII, Section A, line 1a with respect to the filing organization or a related organization:

Receive a severance payment or change-of-control payment? ................

Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........

Yes

Participate in, or receive payment from, an equity-based compensation arrangement? .........

If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.

Only 501(c)(3) and 501(c)(4) organizations only must complete lines 5-9.

For persons listed in Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:

The organization? ...........................

Any related organization? .........................

If "Yes," to line 5a or 5b, describe in Part III.

For persons listed in Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:

The organization? ...........................

Any related organization? .........................

If "Yes," to line 6a or 6b, describe in Part III.

For persons listed in Form 990, Part VII, Section A, line 1a, did the organization provide any non-fixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............

Were any amounts reported in Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III .............................

If "Yes" to line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50053T

Schedule J (Form 990) 2013

Page 2

Part II

Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.

For each individual whose compensation must be reported in Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.

(A) Name and Title		(B) Breakdown of W-2 and/or 1099-MISC compensation			(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)	(F) Compensation reported as deferred in prior Form 990
(A) Name and Title		(i) Base compensation	(ii) Bonus & incentive compensation	(iii) Other reportable compensation	(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)	(F) Compensation reported as deferred in prior Form 990
(1)Steven DerksPresident & CEO	(i) (ii)	443,038 0	0 0	17,500 0	49,250 0	12,879 0	522,667 0	0
(2)Valerie A Cwik MDASST. SEC & CHIEF MED & RES	(i) (ii)	201,114 0	0 0	0 0	0 0	7,041 0	208,155 0	0
(3)Gail Schmertz Kerner EsqASST SEC & CHIEF LEGAL OFFICER	(i) (ii)	193,559 0	0 0	0 0	0 0	13,592 0	207,151 0	0
(4)Peter MorganASST TREAS & EVP & CHIEF OP	(i) (ii)	168,799 0	0 0	0 0	0 0	13,592 0	182,391 0	0
(5)John WalshDiv Chief Executive	(i) (ii)	150,791 0	0 0	0 0	0 0	13,592 0	164,383 0	0
(6)Kevin W MoranVP Program Development	(i) (ii)	149,509 0	0 0	0 0	0 0	13,592 0	163,101 0	0

Schedule J (Form 990) 2013

Page 3

Part III

Supplemental Information

Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II.
Also complete this part for any additional information.

Return Reference	Explanation
PARTICIPATION IN, OR RECEIVED PAYMENT FROM RETIREMENT PLAN	STEVEN M. DERKS - $66,750, 457 RETIREMENT PLAN

Schedule J (Form 990) 2013

Additional Data

Software ID:
Software Version:

- TIN:

Schedule L
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Transactions with Interested Persons

Complete if the organization answered
"Yes" on Form 990, Part IV, lines 25a, 25b, 26, 27, 28a, 28b, or 28c,
or Form 990-EZ, Part V, line 38a or 40b.
MediumBullet

Attach to Form 990 or Form 990-EZ. MediumBullet

See separate instructions.
MediumBullet

Information about Schedule L (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2013

Open to Public Inspection

Name of the organization

MUSCULAR DYSTROPHY ASSOCIATION INC

Employer identification number

13-1665552

Part I

Excess Benefit Transactions (section 501(c)(3) and section 501(c)(4) organizations only).
Complete if the organization answered "Yes" on Form 990, Part IV, line 25a or 25b, or Form 990-EZ, Part V, line 40b.

1(a) Name of disqualified person	(c) Description of transaction	(d) Corrected?
1(a) Name of disqualified person	(c) Description of transaction	Yes	No

Enter the amount of tax incurred by organization managers or disqualified persons during the year under section 4958. ........................... Bullet Image

Enter the amount of tax, if any, on line 2, above, reimbursed by the organization ....... Bullet Image

Part II

Loans to and/or From Interested Persons.
Complete if the organization answered "Yes" on Form 990-EZ, Part V, line 38a, or Form 990, Part IV, line 26; or if the organization reported an amount on Form 990, Part X, line 5, 6, or 22

(a) Name of interested person	(b) Relationship with organization	(c) Purpose of loan	(d) Loan to or from the organization?		(e)Original principal amount	(f)Balance due	(g) In default?		(h) Approved by board or committee?		(i)Written agreement?
(a) Name of interested person	(b) Relationship with organization	(c) Purpose of loan	To	From	(e)Original principal amount	(f)Balance due	Yes	No	Yes	No	Yes	No






Total ...... $

Part III

Grants or Assistance Benefitting Interested Persons.
Complete if the organization answered "Yes" on Form 990, Part IV, line 27.

(a) Name of interested person	(b) Relationship between interested person and the organization	(c) Amount of assistance	(d) Type of assistance	(e) Purpose of assistance

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 50056A

Schedule L (Form 990 or 990-EZ) 2013

Page 2

Part IV

Business Transactions Involving Interested Persons.
Complete if the organization answered "Yes" on Form 990, Part IV, line 28a, 28b, or 28c.

(a) Name of interested person	(b) Relationship between interested person and the organization	(c) Amount of transaction	(d) Description of transaction	(e) Sharing of organization's revenues?
(a) Name of interested person		(c) Amount of transaction	(d) Description of transaction	Yes	No
(1) Steve Farella	MDA Board Member	1,306,520	Public Service Announcements		No
(2) Daniel G Fries	MDA Board Member	262,005	Pension Actuaries Service		No

Part V

Supplemental Information
Provide additional information for responses to questions on Schedule L (see instructions).

Return Reference

Explanation

FORM 990, SCHEDULE L, PART IV

(A) NAME OF PERSON: STEVE FARELLA (B) RELATIONSHIP BETWEEN INTERESTED PERSON AND ORGANIZATION: MDA BOARD MEMBER (C) AMOUNT OF TRANSACTION $ 1,306,520 (D) DESCRIPTION OF TRANSACTION: MDA board member Steve Farella was the CEO of Targetcast. Of the $1,306,520 paid to Targetcast, $1,139,589 was passed through to the ABC Television Station Group for a promotional campaign supporting the MDA Show of Strength Telethon. Targetcast did not receive any commissions for the paid media placements. Targetcast also provided MDA with placement of free public service announcements in national media outlets and received fees of $166,931. Steve Farella is not directly compensated by MDA. (E) SHARING OF ORGANIZATION REVENUES? = NO (A) NAME OF PERSON: DANIEL G. FRIES (B) RELATIONSHIP BETWEEN INTERESTED PERSON AND ORGANIZATION: MDA BOARD MEMBER (C) AMOUNT OF TRANSACTION $ 262,005. (D) DESCRIPTION OF TRANSACTION: MDA BOARD MEMBER DAN FRIES IS EMPLOYED BY SIBSON CONSULTING AS A SENIOR VP, NEW YORK REGIONAL LEADER, AND IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. SIBSON CONSULTING PROVIDES MDA'S PENSION ACTUARIES. (E) SHARING OF ORGANIZATION REVENUES? = NO

Schedule L (Form 990 or 990-EZ) 2013

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE M
(Form 990)

Department of the Treasury

Internal Revenue Service

Noncash Contributions

Complete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image

Attach to Form 990.
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Information about Schedule M (Form 990) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2013

Open to Public Inspection

Name of the organization

MUSCULAR DYSTROPHY ASSOCIATION INC

Employer identification number

13-1665552

Part I

Types of Property

	(a) Check if applicable	(b) Number of contributions or items contributed	(c) Noncash contribution amounts reported on Form 990, Part VIII, line 1g	(d) Method of determining noncash contribution amounts
1 Art—Works of art ....	X	11	0
2 Art—Historical treasures .
3 Art—Fractional interests ..
4 Books and publications ..
5 Clothing and household goods .......
6 Cars and other vehicles ..
7 Boats and planes ....
8 Intellectual property ...
9 Securities—Publicly traded .	X	22	113,953	SELLING PRICE
10 Securities—Closely held stock .
11 Securities—Partnership, LLC, or trust interests ....
12 Securities—Miscellaneous ..
13 Qualified conservation contribution—Historic structures .....
14 Qualified conservation contribution—Other ...
15 Real estate—Residential .
16 Real estate—Commercial ..
17 Real estate—Other ...
18 Collectibles .....
19 Food inventory ...
20 Drugs and medical supplies .
21 Taxidermy ......
22 Historical artifacts ....
23 Scientific specimens ..
24 Archeological artifacts ...
25 Other ( MEDICAL EQUIPMENT )	X	26	412,414	APPRAISAL
26 Other ( ART WORK )	X	1	6,000	APPRAISAL
27 Other ( )
28 Other ( )

Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement ...

Yes

30a

During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that

it must hold for at least three years from the date of the initial contribution, and which is not required to be used

for exempt purposes for the entire holding period? ..................

30a

If "Yes," describe the arrangement in Part II.

Does the organization have a gift acceptance policy that requires the review of any non-standard contributions?

32a

Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash

contributions? ..........................

32a

If "Yes," describe in Part II.

If the organization did not report an amount in column (c) for a type of property for which column (a) is checked,

describe in Part II.

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 51227J

Schedule M (Form 990) (2013)

Page 2

Part II

Supplemental Information. Provide the information required by Part I, lines 30b,
32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.

Return Reference	Explanation

Schedule M (Form 990) (2013)

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE O
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or to provide any additional information.
MediumBullet

Attach to Form 990 or 990-EZ.
MediumBullet

Information about Schedule O (Form 990 or 990-EZ) and its instructions is at
www.irs.gov/form990.

OMB No. 1545-0047

2013

Open to Public
Inspection

Name of the organization

MUSCULAR DYSTROPHY ASSOCIATION INC

Employer identification number

13-1665552

Return Reference	Explanation
FORM 990, PART I, LINE 1	MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS, AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION.
FORM 990, PART VI, SECTION B, LINE 11	ALL BOARD MEMBERS WERE INVITED TO THE AUDIT COMMITTEE MEETING FOR THE FEDERAL FORM 990 REVIEW BY BDO BEFORE FILING WITH THE IRS. THOSE NOT IN ATTENDANCE WERE PROVIDED A HARD COPY.
FORM 990, PART VI, SECTION B, LINE 12C	THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCE DEPARTMENT IN CONJUNCTION WITH THE MDA LEGAL DEPARTMENT.
FORM 990, PART VI, SECTION B, LINE 15	A COMPENSATION STUDY WAS DONE AND WAS APPROVED BY THE BOARD OF DIRECTORS.
FORM 990, PART VI, SECTION C, LINE 19	GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.
FORM 990, PART XI, LINE 9	CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS 16,411,265 IMPAIRMENT LOSS -1,745,417 ----------- TOTAL TO FORM 990, PART XI, LINE 9 14,665,848
FORM 990, PART XI, LINE 2C	THERE HAVE BEEN NO CHANGES DURING THE YEAR IN THE PROCESS FOR OVERSIGHT OF THE AUDIT OF THE FINANCIAL STATEMENTS.
FORM 990, PART III, LINE 4A	The mission of the Muscular Dystrophy Association (MDA) is to save and improve lives for people fighting muscle diseases. In addition to funding research, MDA does this by supporting and empowering families through its services programs. MDA provides services to those affected by any of the disorders in its program, irrespective of age, race, creed, or gender. MDA's program is designed to assist those affected by muscular dystrophy and related diseases of the neuromuscular system, which affect children and adults. A complete list of diseases covered can be obtained by written request to MDA at 3300 East Sunrise Drive, Tucson, Arizona 85718 or via www.mda.org. MDA maintains the most comprehensive services program of any voluntary health agency in the country. This aspect of MDA's program accounted for over $65,014,202 of its 2013 expenditures. MDA's program - ranging from a nationwide network of clinics to assistance with essential support services - is administered through its field offices across the United States and in Puerto Rico. Caring MDA staff in these offices provides support for local families upon diagnosis and throughout their neuromuscular disease journey. MDA Clinics: MDA maintains a network of 200 hospital-affiliated clinics located at medical institutions and university-based facilities. Each year MDA provides tens of thousands of medical visits through its clinic program. With a referral from a physician who suspects a neuromuscular disorder, individuals are eligible for a diagnostic evaluation at an MDA clinic. Once confirmed with a diagnosis covered by MDA, individuals can receive follow-up care from clinic team members using a multidisciplinary team approach. Annual physical, occupational, respiratory and speech therapy consultations, as well as annual flu inoculations, are among the many services available through MDA clinics. MDA clinics also are essential to the advancement of neuromuscular disease research and serve as focal points for the clinical application of scientific advances designed to treat these disorders, including clinical trials. In 2012 the Association established the MDA U.S. Neuromuscular Disease Registry, with the aim of improving survival and quality of life for those with neuromuscular diseases, as well as expediting clinical trials. The registry was piloted at 25 MDA clinics in 2013, with plans in place to expand the registry to MDA's entire clinic network. As part of its clinic program, the Association has over 40 amyotrophic lateral sclerosis (ALS) centers across the country (listing available at mda.org). Equipment Assistance: Through its Equipment Inventory Program, MDA provided thousands of adaptive devices in 2013 - at no cost to those served by the Association. Examples of equipment provided include walkers, wheelchairs, communication technologies and hospital beds. MDA also assisted with repairs to all types of durable medical equipment for those it serves. Summer Camp: In 2013, thousands of children with neuromuscular disease enjoyed a week of fun and friendship at one of nearly 80 MDA summer camps across the country. Support and Information Services: Support and information were provided through MDA's nationwide network of over 150 local support groups and educational seminars. Support also was available through MDA's care coordination tool, www.mda.org/myMuscleTeam, which enables families to seek assistance from friends and loved ones by posting household tasks and caregiving needs for which help is being sought, such as transportation to medical appointments or meal preparation. MDA staff also assisted individuals by advising them about federal, state and community services for which they may be eligible. MDA's transitional services offered support and resources for youth with neuromuscular disease who are entering adulthood, including an online Transitions Center at www.transitions.mda.org/. Additional information about MDA's Health Care and Community Services Program is available through MDA's Web site at www.mda.org/services.html.
FORM 990, PART III, LINE 4B	The Muscular Dystrophy Association, Inc., (MDA) is a not-for-profit organization incorporated on June 6, 1950, under the laws of the State of New York. MDA supports worldwide research to find the causes of and develop therapies and cures for muscular dystrophies and related neuromuscular disorders. MDA's programs are supported almost entirely by individual private contributions from the general public. MDA neither receives fees from those it serves nor applies any means test for services. The diseases supported by MDA are the muscular dystrophies (among which are Duchenne and Becker); motor neuron diseases, including amyotrophic lateral sclerosis (ALS, Lou Gehrig's disease) and spinal muscular atrophy; the peripheral nerve disorders Charcot-Marie-Tooth disease and Friedreich ataxia; inflammatory myopathies; disorders of the neuromuscular junction; metabolic diseases of muscle and other myopathies. Most of the disorders in MDA's program have genetic underpinnings. Most cause progressive weakness resulting in significant mobility impairment. Some of the more than 40 neuromuscular diseases covered by MDA are life-shortening. As reported by the U.S. Department of Health and Human Services, National Institutes of Health (NIH), in the United States alone, muscular dystrophy and other neuromuscular disorders are estimated to affect some 1 million people. MDA supports hundreds of research teams worldwide, primarily at academic institutions, through its investigator initiated research grants program. The basic science projects funded by MDA, such as disease gene discovery, gene transfer technology, and cellular regulation studies, are now being applied to the development of therapies. The Association is currently funding therapeutic strategies such as gene- and stem cell-based therapies, biologics, small molecules, antisense oligonucleotides, RNA interference, epigenetic regulation, permanent gene repair and more. MDA is currently sponsoring research grants in the United States and a dozen foreign countries. The Association's research program accounted for some $29,354,830 of its expenditures for the 2013 calendar year. MDA's Scientific and Medical Advisory Committees, whose members are among the nation's foremost scientists and physicians in the field of neuromuscular disease, carefully evaluate all Research Grant and Development Grant proposals submitted to the Association. MDA maintains a diverse program of basic research, which advances investigations of possible treatments for neuromuscular diseases, muscle function, regulation and regeneration; biochemical changes involved in muscle disease; the genetics of neuromuscular disease; and the interaction of nerve and muscle. This work is crucial for providing a sound scientific foundation upon which practical advances against disease can be built. Additionally, the Association's translational research program is focused on milestone driven contracts with the biotech industry, pharmaceutical companies and academic investigators for research that is directly relevant to bringing new therapies to market. Advisors to MDA's translational research program include a number of top neuromuscular disease researchers, as well as representatives of NIH and industry. Recent Research Accomplishments Accelerating therapy development and reducing barriers to move therapies into human clinical trials is a focus of MDA's research program. Through its basic and translational research grants programs MDA is supporting preclinical development and early phase human testing of strategies and compounds designed to slow progression of neuromuscular diseases and important strides are being made as a result of MDA-support research. Exon skipping is a therapeutic strategy that coaxes muscle cells to ignore, or "skip over," a flawed section of genetic instructions for the dystrophin protein, which is absent in people with DMD. MDA funded much of the early work that led to exon skipping drugs that are now showing encouraging results in human clinical trials, and continues to develop the strategy for DMD. A 48-week phase 2b clinical trial of the exon-51 skipping drug, eteplirsen, reported that the drug was safe and well tolerated, resulted in significant production of dystrophin in the region of muscle fibers where it is required, and slowed the decline in walking ability in study participants. In an extension of that study reported in 2013, the drug remains safe and well tolerated and walking ability remained stable at 96 weeks. The synthetic molecules that promote exon-skipping are termed antisense-oligonucleotides (AONs) which are custom designed to target specific regions of the DNA or RNA genetic material. In addition to exon skipping to repair faulty dystrophin genes, MDA-supported researchers are employing AONs to develop innovative therapeutic approaches for a number of other diseases, including SMA, myotonic dystrophy, ALS, and FSHD. In 2013, the experimental antisense drug ISIS-SMNRx was shown to be safe and well tolerated in early phase testing in infants and children with spinal muscular atrophy and a phase 2 study of this drug was launched in infants. ISIS-SMNRx, developed by Isis Pharmaceuticals in Carlsbad, Calif.; MDA supported the laboratory development of this drug through a grant to Adrian Krainer at Cold Spring Harbor (N.Y.) Laboratory. For myotonic dystrophy type 1, scientists are using AONs to block disease-causing genetic instructions in cells and animal disease models. Planning for human clinical trials of this therapeutic strategy for myotonic muscular dystrophy is underway. With support from MDA Dr. Charles Thornton at the University of Rochester has developed a Myotonic Dystrophy Clinical Research Network to standardize methods for evaluating those with myotonic dystrophy types 1 and 2, in preparation for clinical trials in these disorders. MDA also supports a Clinical Research Network focused on DMD and another on ALS. In 2013, the DMD network announced results of its study of infants and toddlers with DMD, demonstrating that signs of the disorder are apparent at these very young ages. This information will help inform design of clinical trials to include this population in the future. Additionally in 2013 awarded the DMD Clinical Research Network a grant to test prednisone, the only drug currently available for the treatment of DMD, in boys 30 months of age and younger. Work of the ALS clinical research network is focused on quality measures for ALS, in conjunction with the American Academy of Neurology, as well as the effect of diet in the progression of the disorder. In ALS, MDA continued to fund studies aimed at better understanding the causes of ALS and identifying targets for therapy development. An important finding reported in 2013 was that generation of toxic RNA plays a role in C9ORF72 ALS and frontotemporal dementia, the most common genetic cause of ALS. These findings provide the basis for further investigation of antisense-based therapies as a treatment for this form of ALS. Another gene that is involved in causing ALS is the FUS gene. MDA-supported researchers linked ALS-causing mutations in the FUS gene to an impaired ability to repair DNA, and that a failure to repair DNA damage appears to play an important role in ALS. MDA also funded a ALS exome sequencing project to help identify new genes associated with ALS. In August 2013, MDA funded its second grantee under the Bridge-to-Industry (B2I) program, a pilot project designed to train promising researchers in translational research by providing experience both in academia and the biopharmaceutical industry. Translational research refers to the lengthy and complex "translation" of promising laboratory findings into marketable drugs. Dr. Christopher Penton will study compounds that boost muscle repair and dampen muscle scar formation at the University of Arizona and pharmaceutical company Sanofi. To promote timely sharing of results and to encourage collaborations among investigators MDA hosts a biennial Scientific Conference. With a focus on turning research into treatments as quickly as possible, more than 500 participants from the academic, corporate drug development and clinical arenas gathered in Washington, D.C. in April 2013 for this international meeting. More than 70 oral presentations and nearly 200 scientific posters were presented at the event, covering a wide range of diseases under MDA's umbrella MDA remains committed to supporting cutting-edge research by top scientists and clinicians throughout the world-research. The focus of MDA's research effort in the future remains the advancement of strategies to apply the technologies resulting from years of basic research toward the development of effective therapies. This is how MDA can best serve those with neuromuscular diseases and their families. MDA is enhancing its partnerships with industry, the National Institutes of Health and academia to accelerate neuromusc
FORM 990, PART III, LINE 4C	In the year ended December 31, 2013, the Muscular Dystrophy Association (MDA) expended $18,075,948 on its professional and public health education program. MDA annually provides the medical profession, scientific community, general public and people affected by muscle diseases with timely and thorough information about MDA's programs and the 43 different diseases they cover. MDA successfully worked with media outlets nationwide in 2013, placing thousands of documented news stories about its mission to save and improve lives for people fighting muscle disease with network, syndicated and local broadcast outlets, print news publications, and online, including social media mentions. Representing millions of impressions collectively, the valuable earned media placements were reinforced by thousands of no-cost public service advertisements. In addition to free banner advertisements on many high-traffic websites, a substantial number of MDA's "Progress that Moves Muscles" PSAs were published by newspapers and other periodicals; and broadcast by national, regional and local television, cable and radio stations. MDA publications and extensive online postings produced a steady stream of information about MDA-funded research and health care services, as well as insightful articles on relevant legislation and inspiring individuals. In addition to posting two to three online news articles per week during 2013, MDA produced four print issues of its award-winning national magazine Quest. In addition, MDA produced and distributed a variety of educational videos for families affected by muscular dystrophy and related diseases. These videos were reinforced by an extensive array of program-specific spots broadcast during the 2013 MDA Show of Strength Telethon viewed by tens of millions worldwide on the ABC network. Among these spots were special profiles of people living with muscle diseases; research updates; educational spots on the myriad medical and health care services available through MDA's national network of 200 medical clinics; a spotlight on MDA's extraordinary summer camp program for children ages 6 to 17; and much more. MDA also continued to enhance its popular website at mda.org, as well as many other program-specific sites. Internationally recognized as a key source of information about neuromuscular diseases, total 2013 page views at mda.org surpassed 5.7 million, with unique visitors exceeding 1.7 million for the year. MDA also facilitated and promoted a variety of webinars and conference live streams to give the families it serves, as well as medical and health care professionals, ample opportunities to ask questions about diseases, research, services and many other topics.

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 51056K

Schedule O (Form 990 or 990-EZ) 2013

Additional Data

Software ID:
Software Version:

1	Briefly describe the organization’s mission or most significant activities: SEE SCHEDULE O
2	Check this box
3	Number of voting members of the governing body (Part VI, line 1a) ........	3	16
4	Number of independent voting members of the governing body (Part VI, line 1b) .....	4	16
5	Total number of individuals employed in calendar year 2013 (Part V, line 2a) ......	5	1,321
6	Total number of volunteers (estimate if necessary) .............	6	1,500,000
7a	Total unrelated business revenue from Part VIII, column (C), line 12 ........	7a	253,113
b	Net unrelated business taxable income from Form 990-T, line 34 .........	7b	-29,469

		Prior Year	Current Year
8	Contributions and grants (Part VIII, line 1h) .........	149,557,236	144,990,094
9	Program service revenue (Part VIII, line 2g) .........	0	0
10	Investment income (Part VIII, column (A), lines 3, 4, and 7d ) ....	1,348,594	4,164,516
11	Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e)	1,209,221	1,171,110
12	Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)...................	152,115,051	150,325,720
13	Grants and similar amounts paid (Part IX, column (A), lines 1–3 )...	47,570,979	38,730,052
14	Benefits paid to or for members (Part IX, column (A), line 4).....	0	0
15	Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10)	67,163,193	61,530,638
16a	Professional fundraising fees (Part IX, column (A), line 11e).....	497,284	534,111
b	Total fundraising expenses (Part IX, column (D), line 25) 21,534,876
17	Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e)....	51,592,591	47,210,391
18	Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25)	166,824,047	148,005,192
19	Revenue less expenses. Subtract line 18 from line 12.......	-14,708,996	2,320,528
		Beginning of Current Year	End of Year
20	Total assets (Part X, line 16).............	100,099,622	102,852,460
21	Total liabilities (Part X, line 26).............	98,635,094	81,721,263
22	Net assets or fund balances. Subtract line 21 from line 20.....	1,464,528	21,131,197

Sign Here

	Signature of officer	Date

	Type or print name and title


4a	(Code: ) (Expenses $ 65,014,202 including grants of $ 12,946,604 ) (Revenue $ )
	HEALTH CARE AND COMMUNITY SERVICES (SEE SCHEDULE O)

4b	(Code: ) (Expenses $ 29,354,830 including grants of $ 25,783,448 ) (Revenue $ )
	RESEARCH (SEE SCHEDULE O)

4c	(Code: ) (Expenses $ 18,075,948 including grants of $ ) (Revenue $ )
	PROFESSIONAL AND PUBLIC HEALTH EDUCATION (SEE SCHEDULE O)

4d	Other program services (Describe in Schedule O.)
	(Expenses $ including grants of $ ) (Revenue $ )
4e	Total program service expenses112,444,980

1b	Sub-Total................
c	Total from continuation sheets to Part VII, Section A....
d	Total (add lines 1b and 1c)............	2,067,596	0	187,484

				(A) Total revenue	(B) Related or exempt function revenue	(C) Unrelated business revenue	(D) Revenue excluded from tax under sections 512-514
1a	Federated campaigns..1a		685,404
b	Membership dues....1b
c	Fundraising events....1c		118,658,726
d	Related organizations...1d
e	Government grants (contributions)1e

f	All other contributions, gifts, grants, and similar amounts not included above1f		25,645,964

g	Noncash contributions included in lines 1a-1f:$		532,367
h	Total. Add lines 1a-1f.......			144,990,094
			Business Code
2a
b
c
d
e
f	All other program service revenue .
g	Total. Add lines 2a–2f........			0
3	Investment income (including dividends, interest, and other similar amounts).......			1,429,780			1,429,780
4	Income from investment of tax-exempt bond proceeds..			0
5	Royalties...........			35,384			35,384
		(i) Real	(ii) Personal
6a	Gross rents
b	Less: rental expenses
c	Rental income or (loss)	0	0
d	Net rental income or (loss).......			0
		(i) Securities	(ii) Other
7a	Gross amount from sales of assets other than inventory	40,562,044	128,550
b	Less: cost or other basis and sales expenses	37,955,858
c	Gain or (loss)	2,606,186	128,550
d	Net gain or (loss)..........			2,734,736			2,734,736
8a	Gross income from fundraising events (not including $ 118,658,726 of contributions reported on line 1c). See Part IV, line 18 ..
	a		18,132,196
b	Less: direct expenses ...b		18,132,196
c	Net income or (loss) from fundraising events..			0
9a	Gross income from gaming activities. See Part IV, line 19 ...
	a		538,330
b	Less: direct expenses ...b		134,004
c	Net income or (loss) from gaming activities...			404,326			404,326
10a	Gross sales of inventory, less returns and allowances .
	a
b	Less: cost of goods sold ..b
c	Net income or (loss) from sales of inventory..			0
Miscellaneous Revenue			Business Code
11a	Quest Advertising		541800	253,113		253,113
b	OTHER REVENUE		900099	478,287			478,287
c
d	All other revenue ....
e	Total. Add lines 11a–11d ......			731,400
12	Total revenue. See Instructions......			150,325,720		253,113	5,082,513


				(A) Beginning of year		(B) End of year
1	Cash–non-interest-bearing .............			6,347,489	1	30,728,769
2	Savings and temporary cash investments .........			0	2	0
3	Pledges and grants receivable, net ...........			3,346,295	3	2,608,340
4	Accounts receivable, net .............			0	4	0
5	Loans and other receivables from current and former officers, directors, trustees, key employees, and highest compensated employees. Complete Part II of Schedule L ..................
				0	5	0
6	Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), persons described in section 4958(c)(3)(B), and contributing employers and sponsoring organizations of section 501(c)(9) voluntary employees' beneficiary organizations (see instructions) Complete Part II of Schedule L
				0	6	0
7	Notes and loans receivable, net .............			0	7	0
8	Inventories for sale or use ..............			0	8	0
9	Prepaid expenses and deferred charges ..........			3,302,799	9	2,808,342
10a	Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D	10a	7,350,477
b	Less: accumulated depreciation .....	10b	5,604,526	14,135,612	10c	1,745,951
11	Investments—publicly traded securities ..........			72,967,427	11	55,961,890
12	Investments—other securities. See Part IV, line 11 .....			0	12	0
13	Investments—program-related. See Part IV, line 11 .....			0	13	0
14	Intangible assets ...............			0	14	0
15	Other assets. See Part IV, line 11 ...........			0	15	8,999,168
16	Total assets. Add lines 1 through 15 (must equal line 34)......			100,099,622	16	102,852,460
17	Accounts payable and accrued expenses .........			9,576,961	17	10,214,400
18	Grants payable .................			23,453,207	18	21,825,074
19	Deferred revenue ................			0	19	0
20	Tax-exempt bond liabilities .............			0	20	0
21	Escrow or custodial account liability. Complete Part IV of Schedule D..			0	21	0
22	Loans and other payables to current and former officers, directors, trustees, key employees, highest compensated employees, and disqualified
	persons. Complete Part II of Schedule L..........			0	22	0
23	Secured mortgages and notes payable to unrelated third parties ..			14,500,000	23	15,500,000
24	Unsecured notes and loans payable to unrelated third parties ....			0	24	0
25	Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17-24). Complete Part X of Schedule D....................			51,104,926	25	34,181,789
26	Total liabilities. Add lines 17 through 25.........			98,635,094	26	81,721,263
	Organizations that follow SFAS 117 (ASC 958), check here and complete lines 27 through 29, and lines 33 and 34.
27	Unrestricted net assets ..............			-4,369,448	27	15,824,975
28	Temporarily restricted net assets ...........			5,427,860	28	4,832,997
29	Permanently restricted net assets ...........			406,116	29	473,225
	Organizations that do not follow SFAS 117 (ASC 958), check here and complete lines 30 through 34.
30	Capital stock or trust principal, or current funds ........				30
31	Paid-in or capital surplus, or land, building or equipment fund .....				31
32	Retained earnings, endowment, accumulated income, or other funds				32
33	Total net assets or fund balances ...........			1,464,528	33	21,131,197
34	Total liabilities and net assets/fund balances ........			100,099,622	34	102,852,460

1	Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes,"the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926)......................................	Yes	No
2	Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A).......................................	Yes	No
3	Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471)..............................	Yes	No
4	Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621)...............................................	Yes	No
5	Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships. (see Instructions for Form 8865)....................................	Yes	No
6	Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to file Form 5713, International Boycott Report (see Instructions for Form 5713)................................................	Yes	No