Department of the Treasury Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section
4947(a)(1) nonexempt charitable trust.
Attach to Form 990 or Form 990-EZ. See separate instructions. Information about Schedule A (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.
OMB No. 1545-0047
2013
Open to Public Inspection
Name of the organization
NEW YORK GENOME CENTER INC
Employer identification number
80-0631734
Part I
Reason for Public Charity Status
(All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 11, check only one box.)
1
2
3
4
5
section 170(b)(1)(A)(iv). (Complete Part II.)
6
7
8
9
receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of
its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses
acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)
10
11
e
By checking this box, I certify that the organization is not controlled directly or indirectly by one or more disqualified persons other than foundation managers and other than one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2).
f
If the organization received a written determination from the IRS that it is a Type I, Type II, or Type III supporting organization, check this box
..................................................
g
Since August 17, 2006, has the organization accepted any gift or contribution from any of the following persons?
(i) A person who directly or indirectly controls, either alone or together with persons described in (ii)
Yes
No
and (iii) below, the governing body of the supported organization?
................
11g(i)
(ii)
A family member of a person described in (i) above?
......................
11g(ii)
(iii)
A 35% controlled entity of a person described in (i) or (ii) above?
................
11g(iii)
h
Provide the following information about the supported organization(s).
(i) Name of supported organization
(ii) EIN
(iii) Type of organization (described on lines 1- 9 above or IRC section (see instructions))
(iv) Is the organization in col. (i) listed in your governing document?
(v) Did you notify the organization in col. (i) of your support?
(vi) Is the organization in col. (i) organized in the U.S.?
(vii) Amount of monetary support
Yes
No
Yes
No
Yes
No
Total
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990EZ.
Cat. No. 11285F
Schedule A (Form 990 or 990-EZ) 2013
Schedule A (Form 990 or 990-EZ) 2013
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi) (Complete only if you checked the box on line 5, 7, or 8 of Part I or if the
organization failed to qualify under Part III. If the organization fails to
qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") ....
0
50,100
19,728,681
19,649,601
14,419,687
53,848,069
2
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.......
0
3
The value of services or facilities furnished by a governmental unit to the organization without charge..
0
4
Total. Add lines 1 through 3
0
50,100
19,728,681
19,649,601
14,419,687
53,848,069
5
The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included
on line 1 that exceeds 2% of the amount shown on line 11, column (f)..
36,507,604
6
Public support. Subtract line 5 from line 4.
17,340,465
Section B. Total Support
Calendar year
(or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
7
Amounts from line 4..
0
50,100
19,728,681
19,649,601
14,419,687
53,848,069
8
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...
115
24,896
83,412
108,423
9
Net income from unrelated business activities, whether or not the business is regularly carried on..
22,767
43,718
66,485
10
Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)..
0
11
Total support (Add lines 7 through 10).
54,022,977
12
Gross receipts from related activities, etc. (see instructions)
..................
12
4,911,892
13
First five years.
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here.................................................
Section C. Computation of Public Support Percentage
14
Public support percentage for 2013 (line 6, column (f) divided by line 11, column (f))
.........
14
15
Public support percentage for 2012 Schedule A, Part II, line 14
...............
15
16a
33 1/3% support test—2013.
If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization
.......................
b
33 1/3% support test—2012.
If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization
.....................
17a
10%-facts-and-circumstances test—2013.
If the organization did not check a box on line 13, 16a, or 16b, and line 14
is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain
in Part IV how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported
organization
.....................................................
b
10%-facts-and-circumstances test—2012.
If the organization did not check a box on line 13, 16a, 16b, or 17a, and line
15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here.
Explain in Part IV how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization
................................................
18
Private foundation.
If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions
.....................................................
Schedule A (Form 990 or 990-EZ) 2013
Schedule A (Form 990 or 990-EZ) 2013
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2) (Complete only if you checked the box on line 9 of Part I or if the organization
failed to qualify under Part II. If the organization fails to qualify under
the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2
Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose......
3
Gross receipts from activities that are not an unrelated trade or business under section 513..
4
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5
The value of services or facilities furnished by a governmental unit to the organization without charge..
6
Total. Add lines 1 through 5.
7a
Amounts included on lines 1, 2, and 3 received from disqualified persons...
b
Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c
Add lines 7a and 7b..
8
Public support (Subtract line 7c from line 6.)
Section B. Total Support
Calendar year (or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
9
Amounts from line 6...
10a
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b
Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c
Add lines 10a and 10b.
11
Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12
Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)
..
13
Total support. (Add lines 9, 10c, 11, and 12.)..
14
First five years.
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here.............................................
Section C. Computation of Public Support Percentage
15
Public support percentage for 2013 (line 8, column (f) divided by line 13, column (f))
.........
15
16
Public support percentage from 2012 Schedule A, Part III, line 15
...............
16
Section D. Computation of Investment Income Percentage
17
Investment income percentage for 2013 (line 10c, column (f) divided by line 13, column (f))
......
17
18
Investment income percentage from 2012 Schedule A, Part III, line 17
.............
18
19a
33 1/3% support tests—2013.
If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
........
b
33 1/3% support tests—2012.
If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
.....
20
Private foundation.
If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions
.....
Schedule A (Form 990 or 990-EZ) 2013
Schedule A (Form 990 or 990-EZ) 2013
Page 4
Part IV
Supplemental Information.
Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; and Part III, line 12. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
Explanation
Schedule A (Form 990 or 990-EZ) 2013
Additional Data
Software ID:
Software Version:
-
TIN:
SCHEDULE O (Form 990 or 990-EZ)
Department of the Treasury Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ
Complete to provide information for responses to specific questions on
Form 990 or to provide any additional information.
Attach to Form 990 or 990-EZ.
Information about Schedule O (Form 990 or 990-EZ) and its instructions is at
www.irs.gov/form990.
OMB No. 1545-0047
2013
Open to Public Inspection
Name of the organization
NEW YORK GENOME CENTER INC
Employer identification number
80-0631734
Return Reference
Explanation
Form 990, Part I, Line 1 & Part III, Line 1:
The Organization's Mission NEW YORK GENOME CENTER, INC. IS ORGANIZED AND SHALL BE OPERATED AS AN INDEPENDENT, NON-PROFIT CORPORATION BY LEADING ACADEMIC, MEDICAL, AND RESEARCH INSTITUTIONS FOR THE PURPOSE OF ESTABLISHING A STATE-OF-THE-ART, WORLD CLASS GENOME SEQUENCING, BIOINFORMATICS AND RESEARCH CENTER IN NEW YORK CITY, WITH THE FOLLOWING KEY OBJECTIVES: (I) CREATING AN INTELLECTUALLY VIBRANT COLLABORATION AMONGST THE ACADEMIC AND SCIENTIFIC COMMUNITY IN NEW YORK CITY; (II) RECRUITING WORLD CLASS SCIENTIFIC LEADERSHIP TO DIRECT THE SCIENTIFIC DEVELOPMENT OF THE CORPORATION, TOGETHER WITH THE MEMBERS OF THE CORPORATION; (III) OBTAINING COMMITMENTS FROM THE INSTITUTIONAL FOUNDING MEMBERS, OTHER ACADEMIC, RESEARCH AND MEDICAL INSTITUTIONS AND THE BIOTECHNOLOGY/PHARMACEUTICAL INDUSTRY TO AFFILIATE WITH AND USE SERVICES PROVIDED BY THE CORPORATION; (IV) PROVIDING SEQUENCING AND BIOINFORMATICS SERVICES TO THE ACADEMIC AND SCIENTIFIC COMMUNITIES, INCLUDING THE INSTITUTIONAL FOUNDING MEMBERS; (V) DEVELOPING ADVANCED BIOINFORMATICS CAPABILITIES BASED UPON THE RESEARCH AND SEQUENCING ACTIVITIES CONDUCTED AT THE CORPORATION'S FACILITIES; (VI) ADVANCING THE DEVELOPMENT OF NEW TREATMENTS, THERAPIES AND THERAPEUTICS TO TREAT HUMAN DISEASE; AND (VII) CONDUCTING ACTIVITIES ANCILLARY TO THESE OBJECTIVES. FORM 990, PART III, LINE 4A: THE NEW YORK GENOME CENTER, INC. STARTED ITS RESEARCH SEQUENCING SERVICES IN 2012 with five sequencing machines in a temporary pilot lab space. In 2013, the Center opened its headquarters at 101 Avenue of the Americas in New York City. The new facility includes: 30,000 square feet of sequencing lab space, WHICH AS OF DECEMBER 31, 2013, HELD 16 ILLUMINA HISEQ MACHINES; this is more sequencing capacity than any other single institution in the city AND SERVES AS A STATE OF THE ART SEQUENCING CENTER TO THE ACADEMIC AND SCIENTIFIC COMMUNITIES IN NEW YORK CITY TO AID THEM IN RESEARCH, INCLUDING COLLABORATIVE RESEARCH WITH THE CENTER, TO ADVANCE THE DEVELOPMENT OF NEW TREATMENTS, THERAPIES, AND THERAPUTICS TO TREAT HUMAN DISEASE A dedicated open-plan bioinformatics floor to encourage discussion and collaboration AMONG RESEARCHERS AND SCIENTISTS A data storage annex to safely store the immense amounts of data produced AND FACILITATE RESEARCH STUDIES ACROSS A LARGE NUMBER OF PEOPLE Translational research labs with space to host a number of principal investigators and their teams from various member institutions An Innovation Lab to test and evaluate new sequencing technologies A CLIA lab (application pending) to service clinical LABORATORY TESTING needs SEQUENCING IS A LABORATORY PROCESS THAT DETERMINES THE COMPLETE DNA SEQUENCE OF AN ORGANISM'S GENOME AT A SINGLE TIME. A SINGLE HUMAN GENOME YIELDS APPROXIMATELY 750 KILOBYTES OF DATA. THIS DATA IS THEN PUT THROUGH A COMPUTATION ANALYSIS TO GENERATE BIOINFORMATICS ACCORDING TO THE RESEARCHER'S SPECIFICATIONS. BIOINFORMATICS IS A BRANCH OF BIOLOGICAL SCIENCE WHICH DEALS WITH ANALYZING BIOLOGICAL DATA AND EXPRESSING IT GRAPHICALLY USING SPECIALIZED SOFTWARE AND COMPUTATIONAL METHODS. THROUGH BIOINFORMATICS, GENOMIC VARIATIONS CAN BE DETECTED AND ANALYZED. IN HUMANS, GENETIC VARIATION CAN HAVE MEDICAL CONSEQUENCES AFFECTING DISEASE SUSCEPTIBILITY, INCLUDING PREDISPOSITION TO COMPLEX GENETIC DISEASES SUCH AS CANCER, DIABETES, CARDIOVASCULAR DISEASE, AND ALZHEIMER'S DISEASE. THEY CAN ALSO IMPACT AN INDIVIDUAL'S RESPONSE TO CERTAIN DRUG TREATMENTS, CAUSING THEM TO RESPOND WELL, NOT RESPOND AT ALL, OR EXPERIENCE ADVERSE SIDE EFFECTS. FORM 990, PART VI, SECTION A, LINE 4: IN 2013, SECTION 3.04 OF THE ORGANIZATION'S BYLAWS WERE AMENDED. ASSOCIATE MEMBERS AND PHARMA/TECHNOLOGY MEMBERS MAY BE REMOVED WITH CAUSE BY A MAJORITY VOTE OF THE BOARD OF DIRECTORS, WHICH VOTE MUST INCLUDE THE AFFIRMATIVE VOTE OF of at least three-fourths of the Designated Directors. FORM 990, PART VI, SECTION A, LINE 6: THERE ARE FOUR (4) CATEGORIES OF MEMBERS OF THE CENTER: INSTITUTIONAL FOUNDING MEMBERS, ASSOCIATE MEMBERS, PHARMA/TECHNOLOGY MEMBERS AND OTHER MEMBERS. *THE INSTITUTIONAL FOUNDING MEMBERS OF THE CENTER ARE THE FOLLOWING RECOGNIZED ACADEMIC, MEDICAL AND RESEARCH INSTITUTIONS: (1) COLD SPRING HARBOR LABORATORY, (2) CORNELL UNIVERSITY/WEILL CORNELL MEDICAL COLLEGE, (3) THE JACKSON LABORATORY, (4) MEMORIAL SLOAN-KETTERING CANCER CENTER, (5) MOUNT SINAI SCHOOL OF MEDICINE, (6) NEW YORK-PRESBYTERIAN HOSPITAL, (7) NEW YORK UNIVERSITY, (8) NORTH SHORE LONG ISLAND JEWISH HEALTH SYSTEM, (9) THE RESEARCH FOUNDATION OF STATE UNIVERSITY OF NEW YORK, ON BEHALF OF STONY BROOK UNIVERSITY, (10) THE ROCKEFELLER UNIVERSITY, (11) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK, AND (12) Albert Einstein School of Medicine of Yeshiva University *ASSOCIATE MEMBERS - NONE *PHARMACEUTICAL/TECHNOLOGY MEMBERS - NONE *OTHER MEMBERS - NONE FORM 990, PART VI, SECTION A, LINE 7A & 7B: EACH INSTITUTIONAL FOUNDING MEMBER WILL APPOINT ONE REPRESENTATIVE TO SERVE ON THE BOARD OF DIRECTORS. THE EXECUTIVE DIRECTOR ALSO SERVES ON THE BOARD. MANAGEMENT OBTAINS APPROVAL FROM THE BOARD PRIOR TO MAKING OPERATIONAL DECISIONS, INCLUDING APPROVAL OF THE OPERATING BUDGET, CERTAIN HIRING AND TERMINATION MATTERS, ETC. FORM 990, PART VI, SECTION B, LINE 11: THE FORM 990 IS PREPARED BY AN INDEPENDENT PUBLIC ACCOUNTING FIRM, UTILIZING INFORMATION PROVIDED BY MANAGEMENT. UPON RECEIPT OF THE DRAFT 990, MANAGEMENT (VP OF FINANCE, Chief of Staff, AND PRESIDENT) WILL REVIEW THE 990. MANAGEMENT WILL THEN PRESENT THE 990 TO THE FINANCE AND AUDIT COMMITTEE. AFTER ALL COMMENTS AND REVISIONS ARE ADDRESSED, THE FINANCE AND AUDIT COMMITTEE AND NYGC EXECUTIVE TEAM WILL RECOMMEND THE BOARD OF DIRECTORS TO APPROVE THE 990. THE BOARD OF DIRECTORS WILL THEN REVIEW AND APPROVE THE FINAL 990. FORM 990, PART VI, SECTION B, LINE 12C: THE CENTER REQUIRES ALL INTERESTED PERSONS (DEFINED AS BOARD MEMBERS, PRINCIPAL OFFICERS, OR MEMBERS OF A COMMITTEE IN WHICH THE BOARD HAS DELEGATED POWERS) TO DISCLOSE CONFLICTS OF INTEREST AS REQUIRED BY THE CONFLICT OF INTEREST POLICY. ADDITIONALLY, OTHER INDIVIDUALS LISTED ON THE FORM 990 COMPLETE THE QUESTIONNAIRE. THE CENTER FOLLOWS A PROCEDURE FOR OBTAINING SUCH DISCLOSURES ANNUALLY, COMMENCING WITH DECEMBER 2013. IF An interested person HAS A POTENTIAL CONFLICT OF INTEREST, HE OR SHE may make a presentation at the board or committee meeting, but after such presentation, he/she shall leave the meeting during the discussion of, and the vote on, the transaction or arrangement that results in the conflict of interest. FORM 990, PART VI, SECTION B, LINE 14: THE ORGANIZATION'S GOVERNING BODY ADOPTED A WRITTEN DOCUMENT RETENTION AND DESTRUCTION POLICY IN 2014. FORM 990, PART VI, SECTION B, LINE 15: NYGC bases SALARIES ON MARKET SURVEYS. IN 2012, THE INDEPENDENT BOARD APPROVED BOB DARNELL'S COMPENSATION; THE BOARD ALSO WORKED CLOSELY WITH THE PRESIDENT AND A THIRD PARTY RECRUITING FIRM TO DETERMINE SENIOR MANAGEMENT COMPENSATION. When determining the salary amount for top management positions, NYGC utilizes an independent third-party provider for compensation data (e.g. Radford). NYGC also obtains compensation data for similar positions at similar sized not-for-profit companies, in the relevant field (from 990s). If other documentation is available during the time when salary is determined, NYGC will include for consideration (e.g. other offers). FORM 990, PART VI, SECTION C, LINE 19: THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.