Attach to Form 990 or Form 990-EZ.
Information about Schedule A (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.
| (i)Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 9 above or IRC section (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
| Total | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2010 | (b) 2011 | (c) 2012 | (d) 2013 | (e) 2014 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .... | 25,742 | 21,759 | 17,040 | 48,663 | 74,427 | 187,631 |
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....... | ||||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 4 | Total. Add lines 1 through 3 | 25,742 | 21,759 | 17,040 | 48,663 | 74,427 | 187,631 |
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f).. | 50,855 | |||||
| 6 | Public support. Subtract line 5 from line 4. | 136,776 | |||||
Calendar year
(or fiscal year beginning in) ![]() |
(a) 2010 | (b) 2011 | (c) 2012 | (d) 2013 | (e) 2014 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | 25,742 | 21,759 | 17,040 | 48,663 | 74,427 | 187,631 |
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | 528 | 343 | 169 | 75 | 144 | 1,259 |
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | ||||||
| 11 | Total support Add lines 7 through 10. | 188,890 | |||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2010 | (b) 2011 | (c) 2012 | (d) 2013 | (e) 2014 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | ||||||
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose...... | ||||||
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513.. | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 6 | Total. Add lines 1 through 5. | ||||||
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons... | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support (Subtract line 7c from line 6.) | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2010 | (b) 2011 | (c) 2012 | (d) 2013 | (e) 2014 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | ||||||
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | ||||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | ||||||
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
||||
| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e | Discount claimed for blockage or other factors (explain in detail in Part VI): | |||||
| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by .035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| 7 | Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (see instructions) | |||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | ||
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
||
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | ||
| 4 Amounts paid to acquire exempt-use assets | ||
| 5 Qualified set-aside amounts (prior IRS approval required) | ||
| 6 Other distributions (describe in Part VI). See instructions | ||
| 7Total annual distributions. Add lines 1 through 6. | ||
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
||
| 9 Distributable amount for 2014 from Section C, line 6 | ||
| 10 Line 8 amount divided by Line 9 amount | ||
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2014 |
(iii) Distributable Amount for 2014 |
|
|---|---|---|---|---|
|
1
Distributable amount for 2014 from Section C, line 6 |
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|
2
Underdistributions, if any, for years prior to 2014 (reasonable cause required--see instructions) |
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| 3 Excess distributions carryover, if any, to 2014: | ||||
| a From 2009.......X | ||||
| b From 2010.......X | ||||
| c From 2011.......X | ||||
| d From 2012.......X | ||||
| e From 2013....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2014 distributable amount | ||||
|
i
Carryover from 2009 not applied (see instructions) |
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| j Remainder. Subtract lines 3g, 3h, and 3i from 3f. | ||||
| 4Distributions for 2014 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2014 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from 4. | ||||
|
5
Remaining underdistributions for years prior to 2014, if any. Subtract lines 3g and 4a from line 2 (if amount greater than zero, see instructions) |
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|
6
Remaining underdistributions for 2014. Subtract lines 3h and 4b from line 1 (if amount greater than zero, see instructions) |
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|
7 Excess distributions carryover to 2015. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a From 2010.......X | ||||
| b From 2011.......X | ||||
| c From 2012.......X | ||||
| d From 2013....... | ||||
| e From 2014....... | ||||
| Facts And Circumstances Test |
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| Return Reference | Explanation |
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Attach to Form 990 or 990-EZ.
Information about Schedule O (Form 990 or 990-EZ) and its instructions is at| Return Reference | Explanation |
|---|---|
| FORM 990 - ORGANIZATION'S MISSION | TO HELP THOSE BORN WITH LOW VISION DUE TO ANIRIDIA THROUGH EDUCATIONAL, RESEARCH AND PUBLIC AWARENESS PROGRAMS AND MEDICAL CONFERENCES. BECAUSE ANIRIDIA IS COMPRISED OF CONDITIONS FOUND COMMONLY IN THE GENERAL POPULATION SUCH AS GLAUCOMA, CORNEAL SCARRING, CATARACTS AND BLINDNESS, OUR RESEARCH INTO ANIRIDIA, AND THESE CONDITIONS, MAY ULTIMATELY ALSO HELP OTHERS WITH THESE SAME CONDITIONS IN THE GENERAL PUBLIC. WE ALSO SEEK TO DELVE DEEPER INTO THE PAX 6 GENE EFFECT ON THE OTHER AREAS OF THE BODY OUTSIDE THE EYE AS WE ARE NOW FINDING ISSUES SUCH AS DIABETES, GLUCOSE INTOLERANCE, OBESITY, AUTISM SPECTRUM DISORDERS, LEARNING DISABILITIES, AND OTHER ISSUES UNDER INVESTIGATION IN THIS POPULATION OF PEOPLE WITH PAX 6 DEFECTS. THE INTERNATIONAL ANIRIDIA MEDICAL REGISTRY (IAMR) AND GENE BANK IS A GOOD EXAMPLE. THESE SAMPLES AND DATA ARE BEING COLLECTED AND USED TO AIDE RESEARCH IN NOT ONLY ANIRIDIA BUT ALSO GLAUCOMA. OUR MISSION INCORPORATES THE IDEA THAT BY PROVIDING RESEARCHERS THE OPPORTUNITY FOR EDUCATIONAL INFORMATION OR KNOWLEDGE VIA OUR MEDICAL AND SCIENTIFIC BOARDS, A DETAILED DATA COLLECTION SYSTEM AND ACCESS TO A BANK OF DNA SAMPLES FROM THOSE UNITED BY ANIRIDIA, TRUE PROGRESS COULD BE POSSIBLE IN A MORE TIMELY FASHION. PUBLIC AWARENESS AND SUPPORT PROGRAMS ASSIST THE FAMILY AFFECTED EMOTIONALLY AND HELP WITH HOW THEIR LIVES INTERACT WITH THE PUBLIC AND MEDICAL COMMUNITY. |
| FORM 990, PAGE 2, PART III, LINE 4A | WITH THIS GENETIC BIRTH DEFECT. CHILDREN BORN WITH THIS MUST LIVE THEIR LIVES INTO ADULTHOOD WITH LOW VISION, BLINDNESS AND MEDICAL CONDITIONS SUCH AS INSULIN RESISTANCE, AUTISM SPECTRUM DISORDERS, ETC. WHICH REQUIRES SPECIAL LIFELONG SUPPORT TO DEAL WITH MEDICAL, DAILY LIVING AND SOCIAL ISSUES. THE CONFERENCE PROVIDES IMPORTANT SUPPORT OPPORTUNITIES FOR THOSE AFFECTED TO MEET AND SHARE WITH OTHERS WHO KNOW WHAT THEY ARE LIVING WITH DAILY. NEW PARENTS SEEK SUPPORT FOR THE UNKNOWN AND FIND COMFORT AND ADVISE IN SEEING/INTERACTING WITH THOSE LIVING THEIR LIVES AS ADULTS WITH ANIRIDIA SYNDROME. BECAUSE THIS IS A MULTI-DIMENSIONAL DISEASE IT AFFECTS THE EYES AS WELL AS THE BODY SYSTEMICALLY LEADING TO SOMETIMES SERIOUS MEDICAL CONDTIIONS. SUPPORT BOTH FINANCIALLY VIA OUR HOPE FUND (HELPING OTHER PEOPLE) AND EMOTIONALLY VIA VARIOUS AVENUES ARE IMPERATIVE AS RAISING A CHILD AND/OR LIVING WITH A DISABILTIY CAN NOT ONLY BE FINANCIALLY BUT EMOTIONALLY DRAINING. SINCE THIS IS A GENETIC SYNDROME IT IS PASSED INTO EACH GENERATION WITH 50 PERCENT CHANGE WITH EACH PREGNANCY. THEREFORE, A PARENT COULD HAVE ANIRIDIA SYNDROME AND THEN HAVE MULITPLE CHILDREN AFFECTED ALSO WHICH EXEMPLIFIES THE FINANCIAL AND EMOTIONAL BURDEN. TOPIC BOOKS, "EYE ON ANIRIDIA" NEWSLETTERS, WEBSITE ADN PRIVATE SUPPORT AREAS HELP WITH OUR EDUCATIONAL AND SUPPORT FOR THOSE AFFECTED. PEER COUNSELING BY THOSE WITH EDUCATIONAL BACKGROUNDS IN LOW VISION, EDCUATION, PSYCHOLOGY AND ALSO LIVING WITH ANIRIDIA ARE INVALUABLE ASSETS TO THE CHILDREN/ADULTS WITH ANIRIDIA SYNDROME AND THEIR FAMILIES/PARENTS. WE TRY TO DESIGN OUR PROGRAMS TO BE MULTI-PURPOSE TO ACHIEVE THE MOST BENEFIT FOR THE FUNDING. FOR EXAMPLE, OUR CONFERENCES EXPLAINED ABOVE ADDRESS BENEFITS TO THOSE BORN WITH ANIRIDIA SYNDROME THROUGH EDUCATION, SUPPORT, FREE EXAMS BY OPTHALMOLOGISTS AND VOLUNTARY DATA COLLECTION TO ADVANCE RESEARCH. |
| FORM 990, PAGE 2, PART III, LINE 4B | KEY PEOPLE WORKING WITH THE ANIRIDIA SYNDROME POPULATION AND IS AN ACCOMPLISHED AUTHOR PROMOTING ANIRIDIA SYNDROME. |
| FORM 990, PAGE 6, PART VI, LINE 2 | JILL A. NERBY CHRISTOPHER J. ALBRECHT CEO/DIRECTOR DIRECTOR FAMILY RELATIONSHIP - COUSINS |
| FORM 990, PAGE 6, PART VI, LINE 11B | THE CHIEF EXECUTIVE OFFICER/DIRECTOR REVIEWS THE FORM 990 FOR ACCURACY AND THE CERTIFIED PUBLIC ACCOUNTANT BOARD MEMBER REVIEWS THE FORM 990 FOR REASONABLENESS PRIOR TO FILING. IN YEARS WHERE THE BOARD OF DIRECTORS REQUIRE AN INDEPENDENT REVIEW OF THE ORGANIZATION'S FINANCIAL TRANSACTIONS, A COPY OF THE REVIEW REPORT AND RELATED STATEMENTS IS PROVIDED TO ALL BOARD MEMBERS BEFORE THE FORM 990 IS FINALIZED AND FILED. |
| FORM 990, PAGE 6, PART VI, LINE 12C | ON AN ANNUAL BASIS, THE BOARD MEMBERS ARE REQUIRED TO COMPLETE AND SIGN A CONFIDENTIALITY, CONFLICT OF INTEREST AND NONDISCLOSURE POLICY. THE POLICY REQUIRES MEMBERS TO DISCLOSE ANY EMPLOYMENT OR FINANCIAL INTEREST TO THE ORGANIZATION THAT THE BOARD MEMBER AND/OR THE BOARD MEMBER'S FAMILY HOLDS THAT MAY IMPACT HIS OR HER ABILITY TO REMAIN INDEPENDENT AND OBJECTIVE. |
| FORM 990, PAGE 6, PART VI, LINE 19 | ANIRIDIA FOUNDATION INTERNATIONAL PROVIDES COPIES OF THE FORM 990 OR ADDITIONAL INFORMATION SUCH AS THE CONFLICT OF INTEREST POLICY UPON WRITTEN REQUEST. |
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