Form990
Click to see attachment
Department of the Treasury
Internal Revenue Service
Return of Organization Exempt From Income Tax
Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private
foundations)
MediumBullet Do not enter social security numbers on this form as it may be made public.
MediumBullet Information about Form 990 and its instructions is at www.IRS.gov/form990.
OMB No. 1545-0047
2014
Open to Public Inspection
A For the 2014 calendar year, or tax year beginning 02-01-2014 , and ending 01-31-2015
BCheck if applicable:
CName of organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Doing business as
THE ALS ASSOCIATION
 
Number and street (or P.O. box if mail is not delivered to street address)
1275 K STREET NW NO 250
 
Room/suite
City or town, state or province, country, and ZIP or foreign postal code
WASHINGTON, DC20005
D Employer identification number

13-3271855
E Telephone number

G Gross receipts $ 140,186,210
F Name and address of principal officer:
BARBARA J NEWHOUSE
1275 K STREET NW NO 250
WASHINGTON,DC20005
I
Tax-exempt status: (   ) LeftBullet (insert no.) or
J
Website:MediumBullet
WWW.ALSA.ORG
H(a)
Is this a group return for
subordinates?
H(b)
Are all subordinates
included?
If "No," attach a list. (see instructions)
H(c)
Group exemption number MediumBullet4119
K Form of organization:
 
L Year of formation: 1985
M State of legal domicile: DE
Part I
Summary
Activities & Governance 1 Briefly describe the organization’s mission or most significant activities: TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH. TO EMPOWER PEOPLE WITH THE DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
2 Check this box MediumBullet
3 Number of voting members of the governing body (Part VI, line 1a) ........ 3 24
4 Number of independent voting members of the governing body (Part VI, line 1b) ..... 4 24
5 Total number of individuals employed in calendar year 2014 (Part V, line 2a) ...... 5 69
6 Total number of volunteers (estimate if necessary) ............. 6 25
7a Total unrelated business revenue from Part VIII, column (C), line 12 ........ 7a 0
b Net unrelated business taxable income from Form 990-T, line 34 ......... 7b 0
Revenues Prior Year Current Year
8 Contributions and grants (Part VIII, line 1h) ......... 23,517,487 137,917,563
9 Program service revenue (Part VIII, line 2g) ......... 56,675 162,174
10 Investment income (Part VIII, column (A), lines 3, 4, and 7d ) .... 440,600 269,009
11 Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e) 15,925 -8,187
12 Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)................... 24,030,687 138,340,559
Expenses; 13 Grants and similar amounts paid (Part IX, column (A), lines 1–3 )... 7,086,727 22,560,285
14 Benefits paid to or for members (Part IX, column (A), line 4)..... 0 0
15 Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10) 5,843,475 6,041,807
16a Professional fundraising fees (Part IX, column (A), line 11e)..... 467,822 398,696
b Total fundraising expenses (Part IX, column (D), line 25) MediumBullet6,023,408    
17 Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e).... 7,766,341 10,121,584
18 Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25) 21,164,365 39,122,372
19 Revenue less expenses. Subtract line 18 from line 12....... 2,866,322 99,218,187
Net Assets or Fund Balances; Beginning of Current Year End of Year
20 Total assets (Part X, line 16)............. 24,512,086 130,622,674
21 Total liabilities (Part X, line 26)............. 4,111,696 10,862,558
22 Net assets or fund balances. Subtract line 21 from line 20..... 20,400,390 119,760,116
Part II
Signature Block
Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it is true, correct, and complete. Declaration of preparer (other than officer) is based on all information of which preparer has any knowledge.
Sign Here
JumboBullet
Signature of officer Date
JumboBullet
Type or print name and title
Paid Preparer Use Only
Print/Type preparer's name
Preparer's signature
Date
PTIN
Firm's name MediumBullet
Firm's EIN MediumBullet
Firm's address MediumBullet



Phone no.
May the IRS discuss this return with the preparer shown above? (see instructions) ..........
For Paperwork Reduction Act Notice, see the separate instructions.
Cat. No. 11282Y Form 990 (2014)
Form 990 (2014)
Page 2
Part III
Statement of Program Service Accomplishments
Check if Schedule O contains a response or note to any line in this Part III ..............
1
Briefly describe the organization’s mission: LEADS THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
2
Did the organization undertake any significant program services during the year which were not listed on
the prior Form 990 or 990-EZ? ......................
If "Yes," describe these new services on Schedule O.
3
Did the organization cease conducting, or make significant changes in how it conducts, any program services? ............................
If "Yes," describe these changes on Schedule O.
4
Describe the organization’s program service accomplishments for each of its three largest program services, as measured by expenses. Section 501(c)(3) and 501(c)(4) organizations are required to report the amount of grants and allocations to others, the total expenses, and revenue, if any, for each program service reported.
4a (Code:   ) (Expenses $ 13,610,936 including grants of $ 12,918,711 ) (Revenue $   )
RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS). DURING THE YEAR ENDING JANUARY 31, 2015, RESEARCH GRANTS WERE $12,918,711, WHICH ALMOST DOUBLED THE AMOUNT OF RESEARCH GRANT FUNDING FROM THE PRIOR YEAR. THE SIGNIFICANT INCREASE WAS MADE POSSIBLE BY THE ICE BUCKET CHALLENGE (IBC), AN ORGANIC FUNDRAISING EVENT THAT EMPOWERED INDIVIDUALS TO RAISE AWARENESS AND FUNDS FOR ALS BY POURING ICE WATER OVER THEIR HEADS AND CHALLENGING THEIR FRIENDS TO DO THE SAME. THE ASSOCIATION WAS THE MAIN BENEFACTOR OF THIS EVENT AND RECEIVED APPROXIMATELY $115 MILLION IN CONTRIBUTIONS AS A RESULT. BECAUSE OF THE SUCCESS OF THE IBC, THE ASSOCIATION PLANS ON FURTHER INCREASING RESEARCH FUNDING IN ENSUING YEARS WITH THE GOAL OF SPENDING OVER $20 MILLION ANNUALLY ON RESEARCH.
4b (Code:   ) (Expenses $ 14,208,270 including grants of $ 9,641,574 ) (Revenue $ 64,311 )
PATIENT AND COMMUNITY SERVICES - THE ASSOCIATION'S NATIONAL CARE SERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OF CHAPTERS, IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE (1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; (2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; (3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH 'OTHER THAN' CERTIFIED CENTERS; (4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND (5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE' AND AVAILABLE RESOURCES.AS A RESULT OF THE SUCCESS OF IBC, THE ASSOCIATION WAS ABLE TO PROVIDE GRANTS OF APPROXIMATELY $8.5 MILLION TO ITS CHAPTER NETWORK TO HELP SUPPORT CHAPTER INITIATIVES FOR THE YEAR ENDING JANUARY 31, 2015. IN ADDITION, THE ASSOCIATION PROVIDED APPROXIMATELY $1.1 MILLION IN GRANTS TO ITS CERTIFIED TREATMENT CENTERS OF EXCELLENCE.
4c (Code:   ) (Expenses $ 3,400,573 including grants of $   ) (Revenue $ 97,863 )
PUBLIC AND PROFESSIONAL EDUCATION - THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31,2015, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH. THE ASSOCIATION ALSO WORKED WITH CONGRESS TO HELP ENSURE ACCESS TO SPEECH GENERATING DEVICES AND ADVANCE THE DEVELOPMENT OF NEW TREATMENTS FOR ALS BY WORKING TO PASS THE MODDERN CURES ACT.
4d Other program services (Describe in Schedule O.)
(Expenses $   including grants of $   ) (Revenue $   )
4e Total program service expensesMediumBullet31,219,779
Form 990 (2014)
Form 990 (2014)
Page 3
Part IV
Checklist of Required Schedules
Yes
No
1
Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)? If "Yes," complete Schedule AClick to see attachment........................
1
Yes
 
2
Is the organization required to complete Schedule B, Schedule of Contributors (see instructions)? ...
2
 
No
3
Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office? If "Yes," complete Schedule C, Part IClick to see attachment..........
3
 
No
4
Section 501(c)(3) organizations. Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year? If "Yes," complete Schedule C, Part IIClick to see attachment........
4
Yes
 
5
Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Revenue Procedure 98-19? If "Yes," complete Schedule C,
Part IIIClick to see attachment............................
5
 
No
6
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts? If "Yes," complete Schedule D, Part IClick to see attachment........................
6
 
No
7
Did the organization receive or hold a conservation easement, including easements to preserve open space,
the environment, historic land areas, or historic structures? If "Yes," complete Schedule D, Part IIClick to see attachment...
7
 
No
8
Did the organization maintain collections of works of art, historical treasures, or other similar assets? If "Yes," complete Schedule D, Part III Click to see attachment....................
8
 
No
9
Did the organization report an amount in Part X, line 21 for escrow or custodial account liability; serve as a custodian for amounts not listed in Part X; or provide credit counseling, debt management, credit repair, or debt negotiation services? If "Yes," complete Schedule D, Part IVClick to see attachment..............
9
 
No
10
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi-endowments? If "Yes," complete Schedule D, Part VClick to see attachment......
10
Yes
 
11
If the organization’s answer to any of the following questions is "Yes," then complete Schedule D, Parts VI, VII, VIII, IX, or X as applicable.
a
Did the organization report an amount for land, buildings, and equipment in Part X, line 10?
If "Yes," complete Schedule D, Part VI.Click to see attachment...................
11a
Yes
 
b
Did the organization report an amount for investments—other securities in Part X, line 12 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIClick to see attachment.......
11b
 
No
c
Did the organization report an amount for investments—program related in Part X, line 13 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIIClick to see attachment.......
11c
 
No
d
Did the organization report an amount for other assets in Part X, line 15 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part IXClick to see attachment............
11d
 
No
e
Did the organization report an amount for other liabilities in Part X, line 25? If "Yes," complete Schedule D, Part XClick to see attachment
11e
Yes
 
f
Did the organization’s separate or consolidated financial statements for the tax year include a footnote that addresses the organization’s liability for uncertain tax positions under FIN 48 (ASC 740)? If "Yes," complete Schedule D, Part XClick to see attachment.........................
11f
Yes
 
12a
Did the organization obtain separate, independent audited financial statements for the tax year?
If "Yes," complete Schedule D, Parts XI and XII Click to see attachment.................
12a
Yes
 
b
Was the organization included in consolidated, independent audited financial statements for the tax year? If "Yes," and if the organization answered "No" to line 12a, then completing Schedule D, Parts XI and XII is optional Click to see attachment
12b
 
No
13
Is the organization a school described in section 170(b)(1)(A)(ii)? If "Yes," complete Schedule E....
13
 
No
14a
Did the organization maintain an office, employees, or agents outside of the United States?.....
14a
 
No
b
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more? If "Yes," complete Schedule F, Parts I and IV......... Click to see attachment
14b
Yes
 
15
Did the organization report on Part IX, column (A), line 3, more than $5,000 of grants or other assistance to or for any foreign organization? If “Yes,” complete Schedule F, Parts II and IVClick to see attachment
15
Yes
 
16
Did the organization report on Part IX, column (A), line 3, more than $5,000 of aggregate grants or other assistance to or for foreign individuals? If “Yes,” complete Schedule F, Parts III and IV... Click to see attachment
16
 
No
17
Did the organization report a total of more than $15,000 of expenses for professional fundraising services on Part IX, column (A), lines 6 and 11e? If "Yes," complete Schedule G, Part I (see instructions) .... Click to see attachment
17
Yes
 
18
Did the organization report more than $15,000 total of fundraising event gross income and contributions on Part VIII, lines 1c and 8a? If "Yes," complete Schedule G, Part II............ Click to see attachment
18
Yes
 
19
Did the organization report more than $15,000 of gross income from gaming activities on Part VIII, line 9a? If "Yes," complete Schedule G, Part III................... Click to see attachment
19
 
No
20a
Did the organization operate one or more hospital facilities? If "Yes," complete Schedule H....
20a
 
No
b
If "Yes" to line 20a, did the organization attach a copy of its audited financial statements to this return?
20b
 
 
Form 990 (2014)
Form 990 (2014)
Page 4
Part IV
Checklist of Required Schedules (continued)
21
Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government on Part IX, column (A), line 1? If “Yes,” complete Schedule I, Parts I and II.. Click to see attachment
21
Yes
 
22
Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals on Part IX, column (A), line 2? If “Yes,” complete Schedule I, Parts I and III........ Click to see attachment
22
 
No
23
Did the organization answer "Yes" to Part VII, Section A, line 3, 4, or 5 about compensation of the organization’s current and former officers, directors, trustees, key employees, and highest compensated employees? If "Yes," complete Schedule J....................... Click to see attachment
23
Yes
 
24a
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002? If “Yes,” answer lines 24b through 24d and complete Schedule K. If “No,” go to line 25a................
24a
 
No
b
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?...
24b
 
 
c
Did the organization maintain an escrow account other than a refunding escrow at any time during the year
to defease any tax-exempt bonds?......................
24c
 
 
d
Did the organization act as an "on behalf of" issuer for bonds outstanding at any time during the year?...
24d
 
 
25a
Section 501(c)(3), 501(c)(4), and 501(c)(29) organizations. Did the organization engage in an excess benefit transaction with a disqualified person during the year? If "Yes," complete Schedule L, Part I....
25a
 
No
b
Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization’s prior Forms 990 or 990-EZ? If "Yes," complete Schedule L, Part I...................
25b
 
No
26
Did the organization report any amount on Part X, line 5, 6, or 22 for receivables from or payables to any current or former officers, directors, trustees, key employees, highest compensated employees, or disqualified persons? If "Yes," complete Schedule L, Part II................
26
 
No
27
Did the organization provide a grant or other assistance to an officer, director, trustee, key employee, substantial contributor or employee thereof, a grant selection committee member, or to a 35% controlled entity or family member of any of these persons? If "Yes," complete Schedule L, Part III.........
27
 
No
28
Was the organization a party to a business transaction with one of the following parties (see Schedule L, Part IV instructions for applicable filing thresholds, conditions, and exceptions):
a
A current or former officer, director, trustee, or key employee? If "Yes," complete Schedule L, Part IV ..........................
28a
 
No
b
A family member of a current or former officer, director, trustee, or key employee? If "Yes,"
complete Schedule L, Part IV.....................
28b
 
No
c
An entity of which a current or former officer, director, trustee, or key employee (or a family member thereof) was an officer, director, trustee, or direct or indirect owner? If "Yes," complete Schedule L, Part IV...
28c
 
No
29
Did the organization receive more than $25,000 in non-cash contributions? If "Yes," complete Schedule M..Click to see attachment
29
Yes
 
30
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions? If "Yes," complete Schedule M............. Click to see attachment
30
 
No
31
Did the organization liquidate, terminate, or dissolve and cease operations? If "Yes," complete Schedule N,
Part I...........................
31
 
No
32
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets? If "Yes," complete Schedule N, Part II......................
32
 
No
33
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3? If "Yes," complete Schedule R, Part I........ Click to see attachment
33
 
No
34
Was the organization related to any tax-exempt or taxable entity? If "Yes," complete Schedule R, Part II, III, or IV, and Part V, line 1........................ Click to see attachment
34
Yes
 
35a
Did the organization have a controlled entity within the meaning of section 512(b)(13)?
35a
 
No
b
If ‘Yes’ to line 35a, did the organization receive any payment from or engage in any transaction with a controlled entity within the meaning of section 512(b)(13)? If "Yes," complete Schedule R, Part V, line 2...
35b
 
 
36
Section 501(c)(3) organizations. Did the organization make any transfers to an exempt non-charitable related organization? If "Yes," complete Schedule R, Part V, line 2............. Click to see attachment
36
 
No
37
Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes? If "Yes," complete Schedule R, Part VIClick to see attachment
37
 
No
38
Did the organization complete Schedule O and provide explanations in Schedule O for Part VI, lines 11b and 19? Note. All Form 990 filers are required to complete Schedule O. ............
38
Yes
 
Form 990 (2014)
Form 990 (2014)
Page 5
Part V
Statements Regarding Other IRS Filings and Tax Compliance
Check if Schedule O contains a response or note to any line in this Part V ..............
Yes
No
1a
Enter the number reported in Box 3 of Form 1096 Enter -0- if not applicable ..
1a
78
b
Enter the number of Forms W-2G included in line 1a. Enter -0- if not applicable .
1b
0
c
Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners? ..................
1c
Yes
 
2a
Enter the number of employees reported on Form W-3, Transmittal of Wage and
Tax Statements, filed for the calendar year ending with or within the year covered by this return ..................
2a
69
b
If at least one is reported on line 2a, did the organization file all required federal employment tax returns?
Note. If the sum of lines 1a and 2a is greater than 250, you may be required to e-file (see instructions)
2b
Yes
 
3a
Did the organization have unrelated business gross income of $1,000 or more during the year?...
3a
 
No
b
If “Yes,” has it filed a Form 990-T for this year? If “No” to line 3b, provide an explanation in Schedule O...
3b
 
 
4a
At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)?..........................
4a
 
No
b
If "Yes," enter the name of the foreign country: MediumBullet
See instructions for filing requirements for FinCEN Form 114, Report of Foreign Bank and Financial Accounts (FBAR).
5a
Was the organization a party to a prohibited tax shelter transaction at any time during the tax year?..
5a
 
No
b
Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?
5b
 
No
c
If "Yes," to line 5a or 5b, did the organization file Form 8886-T? ............
5c
 
 
6a
Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions?...
6a
 
No
b
If "Yes," did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible?........................
6b
 
 
7
Organizations that may receive deductible contributions under section 170(c).
a
Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor?....................
7a
Yes
 
b
If "Yes," did the organization notify the donor of the value of the goods or services provided?.....
7b
Yes
 
c
Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282?...........................
7c
 
No
d
If "Yes," indicate the number of Forms 8282 filed during the year ....
7d
 
e
Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?............................
7e
 
No
f
Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract?..
7f
 
No
g
If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required?............................
7g
 
 
h
If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C?..........................
7h
Yes
 
8
Sponsoring organizations maintaining donor advised funds.
Did a donor advised fund maintained by the sponsoring organization have excess business holdings at any time during the year?.........................
8
 
 
9a
Did the sponsoring organization make any taxable distributions under section 4966?...
9a
 
 
b
Did the sponsoring organization make a distribution to a donor, donor advisor, or related person?...
9b
 
 
10
Section 501(c)(7) organizations. Enter:
a
Initiation fees and capital contributions included on Part VIII, line 12 ...
10a
 
b
Gross receipts, included on Form 990, Part VIII, line 12, for public use of club facilities
10b
 
11
Section 501(c)(12) organizations. Enter:
a
Gross income from members or shareholders .........
11a
 
b
Gross income from other sources (Do not net amounts due or paid to other sources against amounts due or received from them.) ..........
11b
 
12a
Section 4947(a)(1) non-exempt charitable trusts. Is the organization filing Form 990 in lieu of Form 1041?
12a
 
 
b
If "Yes," enter the amount of tax-exempt interest received or accrued during the year. ....................
12b
 
13
Section 501(c)(29) qualified nonprofit health insurance issuers.
a
Is the organization licensed to issue qualified health plans in more than one state?
Note. See the instructions for additional information the organization must report on Schedule O.
13a
 
 
b
Enter the amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans ....
13b
 
c
Enter the amount of reserves on hand ............
13c
 
14a
Did the organization receive any payments for indoor tanning services during the tax year?.....
14a
 
No
b
If "Yes," has it filed a Form 720 to report these payments? If "No," provide an explanation in Schedule O..
14b
 
 
Form 990 (2014)
Form 990 (2014)
Page 6
Part VI
Governance, Management, and Disclosure For each "Yes" response to lines 2 through 7b below, and for a "No" response to lines 8a, 8b, or 10b below, describe the circumstances, processes, or changes in Schedule O. See instructions.
Check if Schedule O contains a response or note to any line in this Part VI ..............
Section A. Governing Body and Management
Yes
No
1a
Enter the number of voting members of the governing body at the end of the tax year .....................
1a
24
If there are material differences in voting rights among members of the governing body, or if the governing body delegated broad authority to an executive committee or similar committee, explain in Schedule O.
b
Enter the number of voting members included in line 1a, above, who are independent ...................
1b
24
2
Did any officer, director, trustee, or key employee have a family relationship or a business relationship with any other officer, director, trustee, or key employee? .................
2
 
No
3
Did the organization delegate control over management duties customarily performed by or under the direct supervision of officers, directors or trustees, or key employees to a management company or other person? .
3
 
No
4
Did the organization make any significant changes to its governing documents since the prior Form 990 was filed? ...........................
4
 
No
5
Did the organization become aware during the year of a significant diversion of the organization’s assets? .
5
 
No
6
Did the organization have members or stockholders? ................
6
 
No
7a
Did the organization have members, stockholders, or other persons who had the power to elect or appoint one or more members of the governing body? ....................
7a
 
No
b
Are any governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or persons other than the governing body? ...................
7b
 
No
8
Did the organization contemporaneously document the meetings held or written actions undertaken during the year by the following:
a
The governing body? .........................
8a
Yes
 
b
Each committee with authority to act on behalf of the governing body? ............
8b
Yes
 
9
Is there any officer, director, trustee, or key employee listed in Part VII, Section A, who cannot be reached at the organization’s mailing address? If "Yes," provide the names and addresses in Schedule O.......
9
 
No
Section B. Policies (This Section B requests information about policies not required by the Internal Revenue Code.)
Yes
No
10a
Did the organization have local chapters, branches, or affiliates? ............
10a
Yes
 
b
If "Yes," did the organization have written policies and procedures governing the activities of such chapters, affiliates, and branches to ensure their operations are consistent with the organization's exempt purposes?
10b
Yes
 
11a
Has the organization provided a complete copy of this Form 990 to all members of its governing body before filing the form? ............................
11a
Yes
 
b
Describe in Schedule O the process, if any, used by the organization to review this Form 990. .....
12a
Did the organization have a written conflict of interest policy? If "No," go to line 13.......
12a
Yes
 
b
Were officers, directors, or trustees, and key employees required to disclose annually interests that could give rise to conflicts? ..........................
12b
Yes
 
c
Did the organization regularly and consistently monitor and enforce compliance with the policy? If "Yes," describe in Schedule O how this was done.......................
12c
Yes
 
13
Did the organization have a written whistleblower policy? ...............
13
Yes
 
14
Did the organization have a written document retention and destruction policy? .........
14
Yes
 
15
Did the process for determining compensation of the following persons include a review and approval by independent persons, comparability data, and contemporaneous substantiation of the deliberation and decision?
a
The organization’s CEO, Executive Director, or top management official ...........
15a
Yes
 
b
Other officers or key employees of the organization ................
15b
Yes
 
If "Yes" to line 15a or 15b, describe the process in Schedule O (see instructions).
16a
Did the organization invest in, contribute assets to, or participate in a joint venture or similar arrangement with a taxable entity during the year? ......................
16a
 
No
b
If "Yes," did the organization follow a written policy or procedure requiring the organization to evaluate its participation in joint venture arrangements under applicable federal tax law, and take steps to safeguard the organization’s exempt status with respect to such arrangements? ............
16b
 
 
Section C. Disclosure
17
List the States with which a copy of this Form 990 is required to be filedMediumBullet
CA , AL , AK , AR , CO , CT , DE , DC , FL , GA , HI , IL , KS , KY , LA , ME , MD , MA , MI , MN , MS , NH , NJ , NV , NY , NC , ND , OH , OK , OR , PA , RI , SC , TN , UT , VA , WA , WV , WI , NM
18
Section 6104 requires an organization to make its Form 1023 (or 1024 if applicable), 990, and 990-T (501(c)(3)s only) available for public inspection. Indicate how you made these available. Check all that apply.
19
Describe in Schedule O whether (and if so, how) the organization made its governing documents, conflict of interest policy, and financial statements available to the public during the tax year.
20
State the name, address, and telephone number of the person who possesses the organization's books and records:
MediumBulletGREGORY MITCHELL

1275 K STREET NW SUITE 250
WASHINGTON,DC20005 (202) 407-8580
Form 990 (2014)
Form 990 (2014)
Page 7
Part VII
Compensation of Officers, Directors,Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors
Check if Schedule O contains a response or note to any line in this Part VII ..............
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
1a Complete this table for all persons required to be listed. Report compensation for the calendar year ending with or within the organization’s tax year.
RoundBullet List all of the organization’s current officers, directors, trustees (whether individuals or organizations), regardless of amount
of compensation. Enter -0- in columns (D), (E), and (F) if no compensation was paid.

RoundBullet List all of the organization’s current key employees, if any. See instructions for definition of "key employee."
RoundBullet List the organization’s five current highest compensated employees (other than an officer, director, trustee or key employee)
who received reportable compensation (Box 5 of Form W-2 and/or Box 7 of Form 1099-MISC) of more than $100,000 from the
organization and any related organizations.

RoundBullet List all of the organization’s former officers, key employees, or highest compensated employees who received more than $100,000
of reportable compensation from the organization and any related organizations.

RoundBullet List all of the organization’s former directors or trustees that received, in the capacity as a former director or trustee of the
organization, more than $10,000 of reportable compensation from the organization and any related organizations.

List persons in the following order: individual trustees or directors; institutional trustees; officers; key employees; highest
compensated employees; and former such persons.
Check this box if neither the organization nor any related organization compensated any current officer, director, or trustee.
(A)
Name and Title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W- 2/1099-MISC) 		(E)
Reportable compensation from related organizations (W- 2/1099-MISC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(1) WILLIAM THOET........................................................................
CHAIRMAN
 5.00
.......................   		X   X       0 0 0
(2) LAWRENCE R BARNETT ESQ........................................................................
VICE CHAIR
 4.00
.......................   		X   X       0 0 0
(3) WARREN NELSON........................................................................
TREASURER
 4.00
.......................   		X   X       0 0 0
(4) DOUGLAS BUTCHER........................................................................
SECRETARY
 4.00
.......................   		X   X       0 0 0
(5) PHYLLIS R BROURMAN ESQ........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(6) CHRIS W BRUSSALIS........................................................................
TRUSTEE
 3.00
.......................   		X           0 0 0
(7) MILLIE ARNOLD........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(8) ANDREW T BROPHY........................................................................
TRUSTEE
 3.00
.......................   		X           0 0 0
(9) DON CASEY........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(10) KIM ANN MINK PHD........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(11) ELLYN G PHILLIPS........................................................................
TRUSTEE
 3.00
.......................   		X           0 0 0
(12) ALLAN J TOBIN........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(13) WILLIAM D SOFFEL........................................................................
TRUSTEE
 3.00
.......................   		X           0 0 0
(14) ANDREA PAULS BACKMAN........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(15) STUART OBERMANN........................................................................
TRUSTEE
 3.00
.......................   		X           0 0 0
(16) JOHN P KRAVE........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(17) CHRISTI L KOLARCIK PHD........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
Form 990 (2014)
Form 990 (2014)
Page 8
Part VII
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (continued)
(A)
Name and Title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W- 2/1099-MISC) 		(E)
Reportable compensation from related organizations (W- 2/1099-MISC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(18) LOU LIBBY MD........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(19) JUDY PRATT DMD........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(20) THOMAS D KETTLER........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(21) GEORGE HARADA JR........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(22) SUE GORMAN........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(23) NANCY E FRATES........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(24) MARTY HERBERT........................................................................
TRUSTEE
 3.00
.......................   		X           0 0 0
(25) JANE H GILBERT........................................................................
PRESIDENT & CEO (THRU 07/01/2014)
 40.00
.......................   		    X       208,386 0 10,842
(26) BARBARA J NEWHOUSE........................................................................
PRES.& CEO (EFFECTIVE 06/02/2014)
 40.00
.......................   		    X       166,002 0 10,429
(27) DANIEL M REZNIKOV........................................................................
CFO (THRU 05/02/14)
 40.00
.......................   		    X       97,658 0 2,724
(28) GREGORY MITCHELL........................................................................
CFO (EFFECTIVE 09/29/14)
 40.00
.......................   		    X       54,189 0 1,273
(29) STEVE GIBSON........................................................................
CHIEF PUBLIC POLICY OFFICER
 40.00
.......................   		      X     189,051 0 16,835
(30) LANCE SLAUGHTER........................................................................
CHIEF CHAPT. RELATIONS OFFICER
 40.00
.......................   		      X     171,938 0 14,993
(31) KIMBERLY HARDING-MAGINNIS........................................................................
CHIEF CARE SERVICES OFFICER
 40.00
.......................   		      X     163,930 0 12,708
(32) CARRIE MUNK........................................................................
CHIEF COMM. & MKTING OFFICER
 40.00
.......................   		        X   147,166 0 5,258
(33) JOHN W APPLEGATE........................................................................
ASSOCIATE FINANCE OFFICER
 40.00
.......................   		        X   135,677 0 12,621
(34) MONICA SANTA CRUZ........................................................................
VP, TALENT MANAGEMENT & HR
 40.00
.......................   		        X   113,465 0 12,413
(35) MARY SUSAN BRUNEY........................................................................
VP, CHAPTER RELATIONS
 40.00
.......................   		        X   117,690 0 14,492
(36) BETTY YUAN-CARDINAL........................................................................
DIRECTOR, DIGITAL STRAT. & OPERATIONS
 40.00
.......................   		        X   117,461 0 6,892
1b Sub-Total................MediumBullet
c Total from continuation sheets to Part VII, Section A....MediumBullet
d Total (add lines 1b and 1c)............MediumBullet 1,682,613 0 121,480
2
Total number of individuals (including but not limited to those listed above) who received more than $100,000 of reportable compensation from the organizationMediumBullet16
Yes
No
3
Did the organization list any former officer, director or trustee, key employee, or highest compensated employee on line 1a? If "Yes," complete Schedule J for such individual ..............
3
 
No
4
For any individual listed on line 1a, is the sum of reportable compensation and other compensation from the organization and related organizations greater than $150,000? If "Yes," complete Schedule J for such individual...........................
4
Yes
 
5
Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services rendered to the organization? If "Yes," complete Schedule J for such person ........
5
 
No
Section B. Independent Contractors
1
Complete this table for your five highest compensated independent contractors that received more than $100,000 of compensation from the organization. Report compensation for the calendar year ending with or within the organization’s tax year.
(A)
Name and business address 		(B)
Description of services 		(C)
Compensation
NNE MARKETING

105 PAUL REVERE RD
CONCORD,MA01742 		MARKETING 361,570
BRUIJN-YARD CONSULTANTS

PO BOX 670236
CHUGIAK,AK99567 		RESEARCH CONSULTANT 261,458
2
Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization MediumBullet2
Form 990 (2014)
Form 990 (2014)
Page 9
Part VIII
Statement of Revenue
Check if Schedule O contains a response or note to any line in this Part VIII .............
(A)
Total revenue 		(B)
Related or
exempt
function
revenue 		(C)
Unrelated
business
revenue 		(D)
Revenue
excluded from
tax under sections
512-514
Contributions, Gifts, GrantAmt and OtherAmt Similar Amounts 1a Federated campaigns..1a 227,576
b Membership dues....1b  
c Fundraising events....1c 600,749
d Related organizations...1d  
e Government grants (contributions)1e 273,482
f All other contributions, gifts, grants, and
similar amounts not included above1f 		136,815,756
g Noncash contributions included in lines
1a-1f:$ 		44,258
h Total. Add lines 1a-1f.......MediumBullet 137,917,563
Program Service RevenueAmt Business Code
2a CONFERENCE FEES 900099 97,863 97,863    
b CHAPTER SUBLEASE 900099 64,311 64,311    
c
d
e
f All other program service revenue .        
g Total. Add lines 2a–2f........MediumBullet 162,174
OtherAmt RevenueAmt 3 Investment income (including dividends, interest, and other similar amounts).......MediumBullet 221,293     221,293
4 Income from investment of tax-exempt bond proceeds..MediumBullet        
5 Royalties...........MediumBullet        
(i) Real (ii) Personal
6a Gross rents    
b Less: rental expenses    
c Rental income or (loss)    
d Net rental income or (loss).......MediumBullet        
(i) Securities (ii) Other
7a Gross amount from sales of assets other than inventory 1,855,837  
b Less: cost or other basis and sales expenses 1,808,121  
c Gain or (loss) 47,716  
d Net gain or (loss)..........MediumBullet 47,716     47,716
8a Gross income from fundraising events (not including
$ 600,749
of contributions reported on line 1c). See Part IV, line 18 ..
a 0
b Less: direct expenses ...b 37,530
c Net income or (loss) from fundraising events..MediumBullet -37,530   -37,530
9a Gross income from gaming activities.
See Part IV, line 19 ...
a  
b Less: direct expenses ...b  
c Net income or (loss) from gaming activities...MediumBullet        
10a Gross sales of inventory, less
returns and allowances .
a  
b Less: cost of goods sold ..b  
c Net income or (loss) from sales of inventory..MediumBullet        
Miscellaneous Revenue Business Code
11a MISCELLANEOUS INCOME 900099 29,343     29,343
b            
c            
d All other revenue ....        
e Total. Add lines 11a–11d ...... MediumBullet 29,343
12 Total revenue. See Instructions......MediumBullet 138,340,559 162,174 0 260,822
Form 990 (2014)
Form 990 (2014)
Page 10
Part IX
Statement of Functional Expenses
Section 501(c)(3) and 501(c)(4) organizations must complete all columns. All other organizations must complete column (A).Check if Schedule O contains a response or note to any line in this Part IX ...............
Do not include amounts reported on lines 6b,
7b, 8b, 9b, and 10b of Part VIII. 		(A)
Total expenses 		(B)
Program service expenses 		(C)
Management and general expenses 		(D)
Fundraising expenses
1 Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 .... 21,582,577 21,582,577
2 Grants and other assistance to domestic individuals. See Part IV, line 22 ....    
3 Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16 ............ 977,708 977,708
4 Benefits paid to or for members ....    
5 Compensation of current officers, directors, trustees, and key employees .... 1,124,232 811,031 234,949 78,252
6 Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) ....        
7 Other salaries and wages .... 3,990,928 2,531,407 488,104 971,417
8 Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) .... 116,534 73,612 14,998 27,924
9 Other employee benefits ....... 389,763 245,769 57,733 86,261
10 Payroll taxes ........... 420,350 273,816 59,506 87,028
11 Fees for services (non-employees):        
a Management ......        
b Legal ......... 118,981 2,619 96,480 19,882
c Accounting ........... 53,540   53,540  
d Lobbying ...........        
e Professional fundraising services. See Part IV, line 17 398,696 398,696
f Investment management fees ......        
g Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O) .... 3,826,519 1,929,278 348,665 1,548,576
12 Advertising and promotion .... 333,273 229,990 2,473 100,810
13 Office expenses ....... 398,542 128,019 64,700 205,823
14 Information technology ...... 72,894 63,395 9,499  
15 Royalties ..        
16 Occupancy ........... 697,102 454,360 72,053 170,689
17 Travel ............ 1,482,635 1,218,248 182,669 81,718
18 Payments of travel or entertainment expenses for any federal, state, or local public officials ......        
19 Conferences, conventions, and meetings ....        
20 Interest ...........        
21 Payments to affiliates .......        
22 Depreciation, depletion, and amortization ..... 126,990 87,063 13,901 26,026
23 Insurance ..............        
24 Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a CREDIT CARD & DATA FEES 2,100,763     2,100,763
b CHAPTER SUPPORT 448,173 448,173    
c TELECOMMUNICATIONS 172,107 126,796 13,957 31,354
d BAD DEBT EXPENSE 163,182   163,182  
e All other expenses 126,883 35,918 2,776 88,189
25 Total functional expenses. Add lines 1 through 24e 39,122,372 31,219,779 1,879,185 6,023,408
26 Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here MediumBullet if following SOP 98-2 (ASC 958-720). 1,250,986 150,986 0 1,100,000
Form 990 (2014)
Form 990 (2014)
Page 11
Part X Balance Sheet Check if Schedule O contains a response or note to any line in this Part X ..............
(A)
Beginning of year 		(B)
End of year
Assets 1 Cash–non-interest-bearing ............. 8,998,024 1 7,497,387
2 Savings and temporary cash investments ......... 1,427,846 2 109,295,145
3 Pledges and grants receivable, net ........... 1,541,569 3 925,274
4 Accounts receivable, net .............   4  
5 Loans and other receivables from current and former officers, directors, trustees, key employees, and highest compensated employees. Complete Part II of
Schedule L ..................
  5  
6 Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), persons described in section 4958(c)(3)(B), and contributing employers and sponsoring organizations of section 501(c)(9) voluntary employees' beneficiary organizations (see instructions) Complete Part II of Schedule L
  6  
7 Notes and loans receivable, net .............   7  
8 Inventories for sale or use ..............   8  
9 Prepaid expenses and deferred charges .......... 262,525 9 438,608
10a Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D 10a 1,564,449
b Less: accumulated depreciation ..... 10b 1,364,707 235,614 10c 199,742
11 Investments—publicly traded securities .......... 7,778,069 11 8,108,414
12 Investments—other securities. See Part IV, line 11 .....   12  
13 Investments—program-related. See Part IV, line 11 .....   13  
14 Intangible assets ...............   14  
15 Other assets. See Part IV, line 11 ........... 4,268,439 15 4,158,104
16 Total assets. Add lines 1 through 15 (must equal line 34)...... 24,512,086 16 130,622,674
Liabilities 17 Accounts payable and accrued expenses ......... 2,242,302 17 2,618,660
18 Grants payable ................. 1,002,005 18 7,269,898
19 Deferred revenue ................   19  
20 Tax-exempt bond liabilities .............   20  
21 Escrow or custodial account liability. Complete Part IV of Schedule D..   21  
22 Loans and other payables to current and former officers, directors, trustees, key employees, highest compensated employees, and disqualified
persons. Complete Part II of Schedule L..........   22  
23 Secured mortgages and notes payable to unrelated third parties ..   23  
24 Unsecured notes and loans payable to unrelated third parties ....   24  
25 Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17-24). Complete Part X of Schedule D.................... 867,389 25 974,000
26 Total liabilities. Add lines 17 through 25......... 4,111,696 26 10,862,558
Net Assets or Fund Balance Organizations that follow SFAS 117 (ASC 958), check here MediumBullet and complete lines 27 through 29, and lines 33 and 34.
27 Unrestricted net assets .............. 8,312,123 27 81,245,556
28 Temporarily restricted net assets ........... 11,169,117 28 37,551,888
29 Permanently restricted net assets ........... 919,150 29 962,672
Organizations that do not follow SFAS 117 (ASC 958), check here MediumBullet and complete lines 30 through 34.
30 Capital stock or trust principal, or current funds ........   30  
31 Paid-in or capital surplus, or land, building or equipment fund .....   31  
32 Retained earnings, endowment, accumulated income, or other funds   32  
33 Total net assets or fund balances ........... 20,400,390 33 119,760,116
34 Total liabilities and net assets/fund balances ........ 24,512,086 34 130,622,674
Form 990 (2014)
Form 990 (2014)
Page 12
Part XI
Reconcilliation of Net Assets
Check if Schedule O contains a response or note to any line in this Part XI ..............
1
Total revenue (must equal Part VIII, column (A), line 12) ............
1
138,340,559
2
Total expenses (must equal Part IX, column (A), line 25) ............
2
39,122,372
3
Revenue less expenses. Subtract line 2 from line 1 ..............
3
99,218,187
4
Net assets or fund balances at beginning of year (must equal Part X, line 33, column (A)) ..
4
20,400,390
5
Net unrealized gains (losses) on investments ...............
5
180,375
6
Donated services and use of facilities .................
6
 
7
Investment expenses .....................
7
 
8
Prior period adjustments .....................
8
 
9
Other changes in net assets or fund balances (explain in Schedule O) ........
9
-38,836
10
Net assets or fund balances at end of year. Combine lines 3 through 9 (must equal Part X, line 33, column (B))
10
119,760,116
Part XII
Financial Statements and Reporting
Check if Schedule O contains a response or note to any line in this Part XII .............
Yes
No
1
Accounting method used to prepare the Form 990:  
If the organization changed its method of accounting from a prior year or checked "Other," explain in
Schedule O.
2a
Were the organization’s financial statements compiled or reviewed by an independent accountant?
2a
 
No
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were compiled or reviewed on a separate basis, consolidated basis, or both:
b
Were the organization’s financial statements audited by an independent accountant?
2b
Yes
 
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were audited on a separate basis, consolidated basis, or both:
c
If "Yes," to line 2a or 2b, does the organization have a committee that assumes responsibility for oversight of the audit, review, or compilation of its financial statements and selection of an independent accountant?
2c
Yes
 
If the organization changed either its oversight process or selection process during the tax year, explain in Schedule O.
3a
As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Single Audit Act and OMB Circular A-133? .................
3a
 
No
b
If "Yes," did the organization undergo the required audit or audits? If the organization did not undergo the required audit or audits, explain why in Schedule O and describe any steps taken to undergo such audits.
3b
 
 
Form 990 (2014)
Form 990 (2014)
Page 13
Form 990, Special Condition Description:
Special Condition Description
Form 990 (2014)
Form 990 (2014)
Page 14
Additional Data


Software ID:  
Software Version:  
SCHEDULE A
(Form 990 or 990EZ)

Department of the Treasury
Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
right arrow Attach to Form 990 or Form 990-EZ.
right arrow Information about Schedule A (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.
OMB No. 1545-0047
2014
Open to Public
Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
Reason for Public Charity Status (All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 11, check only one box.)
1
2
3
4
5
section 170(b)(1)(A)(iv). (Complete Part II.)
6
7
8
9
receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of
its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses
acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)
10
11
a
b
c
d
e
f
Enter the number of supported organizations .............................  
g
Provide the following information about the supported organization(s).
(i)Name of supported organization (ii) EIN (iii) Type of organization (described on lines 1- 9 above or IRC section (see instructions)) (iv) Is the organization listed in your governing document? (v) Amount of monetary support (see instructions) (vi) Amount of other support (see instructions)
Yes No
Total    

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990EZ.
Cat. No. 11285F
Schedule A (Form 990 or 990-EZ) 2014
Schedule A (Form 990 or 990-EZ) 2014
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization fails to qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2010 (b) 2011 (c) 2012 (d) 2013 (e) 2014 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .... 17,744,381 19,126,742 19,357,009 23,550,946 137,959,833 217,738,911
2 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.......            
3 The value of services or facilities furnished by a governmental unit to the organization without charge..            
4 Total. Add lines 1 through 3 17,744,381 19,126,742 19,357,009 23,550,946 137,959,833 217,738,911
5 The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f).. 1,377,767
6 Public support. Subtract line 5 from line 4. 216,361,144
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2010 (b) 2011 (c) 2012 (d) 2013 (e) 2014 (f) Total
7 Amounts from line 4.. 17,744,381 19,126,742 19,357,009 23,550,946 137,959,833 217,738,911
8 Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... 55,620 119,967 174,222 179,732 221,293 750,834
9 Net income from unrelated business activities, whether or not the business is regularly carried on..            
10 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. 31,744 14,736 30,161 15,926 29,343 121,910
11 Total support Add lines 7 through 10. 218,611,655
12
12
343,904
13
First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here........................................right arrow
Section C. Computation of Public Support Percentage
14
14
98.970 %
15
15
94.910 %
16a
b
17a
b
18
Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow
Schedule A (Form 990 or 990-EZ) 2014
Schedule A (Form 990 or 990-EZ) 2014
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 9 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2010 (b) 2011 (c) 2012 (d) 2013 (e) 2014 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .            
2 Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose......            
3 Gross receipts from activities that are not an unrelated trade or business under section 513..            
4 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...            
5 The value of services or facilities furnished by a governmental unit to the organization without charge..            
6 Total. Add lines 1 through 5.            
7a Amounts included on lines 1, 2, and 3 received from disqualified persons...            
b Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.            
c Add lines 7a and 7b..            
8 Public support (Subtract line 7c from line 6.)  
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2010 (b) 2011 (c) 2012 (d) 2013 (e) 2014 (f) Total
9 Amounts from line 6...            
10a Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..            
b Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.            
c Add lines 10a and 10b.            
11 Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.            
12 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..            
13 Total support. (Add lines 9, 10c, 11, and 12.)..            
14
Section C. Computation of Public Support Percentage
15
15
 
16
16
 
Section D. Computation of Investment Income Percentage
17
17
 
18
18
 
19a
b
20
Schedule A (Form 990 or 990-EZ) 2014
Schedule A (Form 990 or 990-EZ) 2014
Page 4
Part IV
Supporting Organizations
(Complete only if you checked a box on line 11 of Part I. If you checked 11a of Part I, complete Sections A and B. If you checked 11b of Part I, complete Sections A and C. If you checked 11c of Part I, complete Sections A, D, and E. If you checked 11d of Part I, complete Sections A and D, and complete Part V.)
Section A. All Supporting Organizations
Yes
No
1
Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.
1
 
 
2
Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).
2
 
 
3a
Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer (b) and (c) below.
3a
 
 
b
Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.
3b
 
 
c
Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.
3c
 
 
4a
Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked 11a or 11b in Part I, answer (b) and (c) below.
4a
 
 
b
Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations....
4b
 
 
c
Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.
4c
 
 
5a
Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer (b) and (c) below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed, (ii) the reasons for each such action, (iii) the authority under the organization's organizing document authorizing such action, and (iv) how the action was accomplished (such as by amendment to the organizing document).
5a
 
 
b
Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?
5b
 
 
c
Substitutions only. Was the substitution the result of an event beyond the organization's control?
5c
 
 
6
Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (a) its supported organizations; (b) individuals that are part of the charitable class benefited by one or more of its supported organizations; or (c) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.
6
 
 
7
Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in IRC 4958(c)(3)(C)), a family member of a substantial contributor, or a 35-percent controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990) .
7
 
 
8
Did the organization make a loan to a disqualified person (as defined in section 4958) not described in line 7? If “Yes,” complete Part II of Schedule L (Form 990).
8
 
 
9a
Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.
9a
 
 
b
Did one or more disqualified persons (as defined in line 9(a)) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.
9b
 
 
c
Did a disqualified person (as defined in line 9(a)) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.
9c
 
 
10a
Was the organization subject to the excess business holdings rules of IRC 4943 because of IRC 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer b below.
10a
 
 
b
Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).
10b
 
 
11
Has the organization accepted a gift or contribution from any of the following persons?
a
A person who directly or indirectly controls, either alone or together with persons described in (b) and (c) below, the governing body of a supported organization?
11a
 
 
b
A family member of a person described in (a) above?
11b
 
 
c
A 35% controlled entity of a person described in (a) or (b) above? If “Yes” to a, b, or c, provide detail in Part VI.
11c
 
 
Schedule A (Form 990 or 990-EZ) 2014
Schedule A (Form 990 or 990-EZ) 2014
Page 5
Part IV
Supporting Organizations (continued)

Section B. Type I Supporting Organizations
Yes
No
1
Did the directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.
1
 
 
2
Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.
2
 
 
Section C. Type II Supporting Organizations
Yes
No
1
Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).
1
 
 
Section D. All Type III Supporting Organizations
Yes
No
1
Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (1) a written notice describing the type and amount of support provided during the prior tax year, (2) a copy of the Form 990 that was most recently filed as of the date of notification, and (3) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?
1
 
 
2
Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).
2
 
 
3
By reason of the relationship described in (2), did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.
3
 
 
Section E. Type III Functionally-Integrated Supporting Organizations
1
Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):
a
b
c
2
Activities Test. Answer (a) and (b) below.
Yes
No
a
Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.
2a
 
 
b
Did the activities described in (a) constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.
2b
 
 
3
Parent of Supported Organizations. Answer (a) and (b) below.
a
Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations? Provide details in Part VI.
3a
 
 
b
Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI the role played by the organization in this regard.
3b
 
 
Schedule A (Form 990 or 990-EZ) 2014
Schedule A (Form 990 or 990-EZ) 2014
Page 6
Part V – Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations

1.   Check here if the organization satisfied the Integral Part Test as a qualifying trust on Nov. 20, 1970. See instructions. All other Type III non-functionally integrated supporting organizations must complete Sections A through E.
Section A - Adjusted Net Income (A) Prior Year (B) Current Year
(optional)
1 Net short-term capital gain 1    
2 Recoveries of prior-year distributions 2    
3 Other gross income (see instructions) 3    
4 Add lines 1 through 3 4    
5 Depreciation and depletion 5    
6 Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) 6    
7 Other expenses (see instructions) 7    
8 Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) 8    

Section B - Minimum Asset Amount (A) Prior Year (B) Current Year
(optional)
1 Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): 1
a Average monthly value of securities 1a    
b Average monthly cash balances 1b    
c Fair market value of other non-exempt-use assets 1c    
d Total (add lines 1a, 1b, and 1c) 1d    
e Discount claimed for blockage or other factors (explain in detail in Part VI):  
2 Acquisition indebtedness applicable to non-exempt use assets 2    
3 Subtract line 2 from line 1d 3    
4 Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions). 4    
5 Net value of non-exempt-use assets (subtract line 4 from line 3) 5    
6 Multiply line 5 by .035 6    
7 Recoveries of prior-year distributions 7    
8 Minimum Asset Amount (add line 7 to line 6) 8    

Section C - Distributable Amount Current Year
1 Adjusted net income for prior year (from Section A, line 8, Column A) 1  
2 Enter 85% of line 1 2  
3 Minimum asset amount for prior year (from Section B, line 8, Column A) 3  
4 Enter greater of line 2 or line 3 4  
5 Income tax imposed in prior year 5  
6 Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) 6  
7   Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (see instructions)
Schedule A (Form 990 or 990-EZ) 2014
Schedule A (Form 990 or 990-EZ) 2014
Page 7
Section D - Distributions Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes  
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in
excess of income from activity		  
3 Administrative expenses paid to accomplish exempt purposes of supported organizations  
4 Amounts paid to acquire exempt-use assets  
5 Qualified set-aside amounts (prior IRS approval required)  
6 Other distributions (describe in Part VI). See instructions  
7Total annual distributions. Add lines 1 through 6.  
8 Distributions to attentive supported organizations to which the organization is responsive (provide
details in Part VI). See instructions		  
9 Distributable amount for 2014 from Section C, line 6  
10 Line 8 amount divided by Line 9 amount  

Section E - Distribution Allocations (see instructions) (i)
Excess Distributions 		(ii)
Underdistributions
Pre-2014 		(iii)
Distributable
Amount for 2014
1 Distributable amount for 2014 from Section C, line
6 		 
2 Underdistributions, if any, for years prior to 2014
(reasonable cause required--see instructions)		  
3 Excess distributions carryover, if any, to 2014:
a From 2009.......X
b From 2010.......X
c From 2011.......X
d From 2012.......X
e From 2013.......  
fTotal of lines 3a through e  
g Applied to underdistributions of prior years  
h Applied to 2014 distributable amount  
i Carryover from 2009 not applied (see
instructions)
j Remainder. Subtract lines 3g, 3h, and 3i from 3f.  
4Distributions for 2014 from Section D, line 7:
$  
a Applied to underdistributions of prior years  
b Applied to 2014 distributable amount  
c Remainder. Subtract lines 4a and 4b from 4.  
5 Remaining underdistributions for years prior to
2014, if any. Subtract lines 3g and 4a from line 2
(if amount greater than zero, see instructions)		  
6 Remaining underdistributions for 2014. Subtract
lines 3h and 4b from line 1 (if amount greater than
zero, see instructions)		  
7 Excess distributions carryover to 2015. Add lines
3j and 4c.		  
8 Breakdown of line 7:
a From 2010.......X
b From 2011.......X
c From 2012.......X
d From 2013.......  
e From 2014.......  
Schedule A (Form 990 or 990-EZ) (2014)
Schedule A (Form 990 or 990-EZ) 2014
Page 8
Part VI
Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
 
Return Reference Explanation
Schedule A (Form 990 or 990-EZ) 2014

Additional Data


Software ID:  
Software Version:  
SCHEDULE C
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service
Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527
SchCMd Bullet Complete if the organization is described below.SchCMd Bullet Attach to Form 990 or Form 990-EZ.
SchCMd Bullet Information about Schedule C (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.
OMB No. 1545-0047
2014
Open to Public
Inspection
If the organization answered "Yes" to Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" to Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" to Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet Section 501(c)(4), (5), or (6) organizations: Complete Part III.
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I-A
Complete if the organization is exempt under section 501(c) or is a section 527 organization.

1
Provide a description of the organization’s direct and indirect political campaign activities in Part IV.
2
Political expenditures ....................................SchCMd Bullet
$  
3
Volunteer hours ........................................
 

Part I-B
Complete if the organization is exempt under section 501(c)(3).
1
Enter the amount of any excise tax incurred by the organization under section 4955 .........SchCMd Bullet
$  
2
Enter the amount of any excise tax incurred by organization managers under section 4955 ......SchCMd Bullet
$  
3
If the organization incurred a section 4955 tax, did it file Form 4720 for this year? ..............
4a
Was a correction made? .........................................
b
If "Yes," describe in Part IV.
Part I-C
Complete if the organization is exempt under section 501(c), except section 501(c)(3).
1
Enter the amount directly expended by the filing organization for section 527 exempt function activities SchCMd Bullet
$  
2
Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ...................................SchCMd Bullet

$  
3
Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b..SchCMd Bullet

$  
4
Did the filing organization file Form 1120-POL for this year? ..........................
5
Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.
(a) Name (b) Address (c) EIN (d) Amount paid from filing organization's funds. If none, enter -0-. (e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.










For Paperwork Reduction Act Notice, see the instructions for Form 990 or 990-EZ.
Cat. No. 50084S
Schedule C (Form 990 or 990-EZ) 2014

Schedule C (Form 990 or 990-EZ) 2014
Page 2
Part II-A
Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).
A Check SchCMd Bulletexpenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet
Limits on Lobbying Expenditures
(The term "expenditures" means amounts paid or incurred.) 		(a) Filing
organization's
totals 		(b) Affiliated group
totals
1a Total lobbying expenditures to influence public opinion (grass roots lobbying) ...... 53,629  
b Total lobbying expenditures to influence a legislative body (direct lobbying) ....... 369,151  
c Total lobbying expenditures (add lines 1a and 1b) ................... 422,780  
d Other exempt purpose expenditures ........................ 36,834,308  
e Total exempt purpose expenditures (add lines 1c and 1d) ............... 37,257,088  
f Lobbying nontaxable amount. Enter the amount from the following table in both
columns.		 1,000,000  
If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
Not over $500,00020% of the amount on line 1e.
Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
Over $17,000,000$1,000,000.
g Grassroots nontaxable amount (enter 25% of line 1f) ................. 250,000  
h Subtract line 1g from line 1a. If zero or less, enter -0-. ................ 0  
i Subtract line 1f from line 1c. If zero or less, enter -0-. ................ 0  
j If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting
section 4911 tax for this year? ......................................

4-Year Averaging Period Under section 501(h)
(Some organizations that made a section 501(h) election do not have to complete all of the five
columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
Calendar year (or fiscal year
beginning in) 		(a) 2011 (b) 2012 (c) 2013 (d) 2014 (e) Total
2a Lobbying nontaxable amount 869,634 879,798 932,385 1,000,000 3,681,817
b Lobbying ceiling amount
(150% of line 2a, column(e)) 		5,522,726
c Total lobbying expenditures 374,683 285,767 440,857 422,780 1,524,087
d Grassroots nontaxable amount 217,409 219,950 233,096 250,000 920,455
e Grassroots ceiling amount
(150% of line 2d, column (e))		 1,380,683
f Grassroots lobbying expenditures 32,593 26,625 43,750 53,629 156,597
Schedule C (Form 990 or 990-EZ) 2014


Schedule C (Form 990 or 990-EZ) 2014
Page 3
Part II-B
Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).
For each "Yes" response to lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.
(a)
No
Yes
(b)
Amount
1
During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:
a
Volunteers? .........................................
 
 
b
Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ....
 
 
c
Media advertisements? ....................................
 
 
 
d
Mailings to members, legislators, or the public? .........................
 
 
 
e
Publications, or published or broadcast statements? .......................
 
 
 
f
Grants to other organizations for lobbying purposes? .......................
 
 
 
g
Direct contact with legislators, their staffs, government officials, or a legislative body? ........
 
 
 
h
Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ......
 
 
 
i
Other activities? ..........................
 
 
 
j
Total. Add lines 1c through 1i ...............................
 
2a
Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....
 
 
b
If "Yes," enter the amount of any tax incurred under section 4912 .................
 
c
If "Yes," enter the amount of any tax incurred by organization managers under section 4912 .....
 
d
If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? .......
 
 
Part III-A
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).
Yes
No
1
Were substantially all (90% or more) dues received nondeductible by members? ................
1
 
 
2
Did the organization make only in-house lobbying expenditures of $2,000 or less? ................
2
 
 
3
Did the organization agree to carry over lobbying and political expenditures from the prior year? ..........
3
 
 
Part III-B
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."
1
Dues, assessments and similar amounts from members .....................
1
 
2
Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political
expenses for which the section 527(f) tax was paid).
a
Current year .........................................
2a
 
b
Carryover from last year ....................................
2b
 
c
Total ............................................
2c
 
3
Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .
3
 
4
If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ................................
4
 
5
Taxable amount of lobbying and political expenditures (see instructions) ..............
5
 
Part IV
Supplemental Information
Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.
Return Reference Explanation
FORM 990, SCHEDULE C, PART II-B THE PUBLIC POLICY DEPARTMENT IS THE ALS COMMUNITY'S VOICE IN OUR NATION'S CAPITAL, ADVOCATING FOR ALS RESEARCH FUNDING AND OTHER PUBLIC POLICIES THAT BENEFIT PEOPLE WITH ALS AND THEIR FAMILIES. THE DEPARTMENT COORDINATES THE ANNUAL NATIONAL ALS ADVOCACY DAY AND PUBLIC POLICY CONFERENCE, WHICH IS THE SINGLE LARGEST GATHERING OF THE ENTIRE ALS COMMUNITY AND IS OUR OPPORTUNITY TO JOIN TOGETHER, EDUCATE CONGRESS ABOUT ALS AND URGE THEM TO JOIN THE FIGHT AGAINST THIS HORRIFIC DISEASE. THE DEPARTMENT ALSO MANAGES THE ALS ASSOCIATION'S FEDERAL ADVOCACY PROGRAM, WORKING DIRECTLY WITH CONGRESS, THE WHITE HOUSE, FEDERAL AGENCIES AND OTHER NATIONAL ORGANIZATIONS TO ADVANCE THE ASSOCIATION'S MISSION. THE DEPARTMENT PROVIDES TRAINING AND SUPPORT TO THE ALS ASSOCIATION'S CHAPTERS AND ADVOCATES FROM ACROSS THE COUNTRY AND EMPOWERS THEM WITH THE TOOLS THEY NEED TO PLAY AN ACTIVE ROLE IN THE FIGHT FOR A TREATMENT AND CURE. THE ASSOCIATION BELIEVES THIS KIND OF ACTIVITY, WHICH IT INTENDS TO CONTINUE AS ITS ADVOCACY PROGRAM, IS CRITICAL TO THE ACHIEVEMENT OF ITS MISSION, AND THEREFORE, IS IN DIRECT RELATION TO ITS TAX EXEMPT PURPOSE.
Schedule C (Form 990 or 990EZ) 2014

Additional Data


Software ID:  
Software Version:  

SCHEDULE D
(Form 990)
Department of the Treasury
Internal Revenue Service
Supplemental Financial Statements
SchDMd Bullet Complete if the organization answered "Yes," to Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
SchDMd Bullet Attach to Form 990.
Information about Schedule D (Form 990) and its instructions is at www.irs.gov/form990.
OMB No. 1545-0047
2014
Open to Public Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" to Form 990, Part IV, line 6.
(a) Donor advised funds (b) Funds and other accounts
1 Total number at end of year .........    
2 Aggregate value of contributions to (during year)    
3 Aggregate value of grants from (during year)    
4 Aggregate value at end of year ........    
5
Did the organization inform all donors and donor advisors in writing that the assets held in donor advised
funds are the organization's property, subject to the organization's exclusive legal control? ............
6
Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be
used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................
Part II
Conservation Easements. Complete if the organization answered "Yes" to Form 990, Part IV, line 7.
1
Purpose(s) of conservation easements held by the organization (check all that apply).
2
Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.
Held at the End of the Year
a Total number of conservation easements ....................... 2a  
b Total acreage restricted by conservation easements .................. 2b  
c Number of conservation easements on a certified historic structure included in (a) ..... 2c  
d Number of conservation easements included in (c) acquired after 8/17/06, and not on a historic structure listed in the National Register .................... 2d  
3
Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during
the tax year SchDMd Bullet  
4
Number of states where property subject to conservation easement is located SchDMd Bullet  
5
Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and
enforcement of the conservation easements it holds? .............................
6
Staff and volunteer hours devoted to monitoring, inspecting, and enforcing conservation easements during the year
SchDMd Bullet  
7
Amount of expenses incurred in monitoring, inspecting, and enforcing conservation easements during the year
SchDMd Bullet $  
8
Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .......................................
9
In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" to Form 990, Part IV, line 8.
1a
If the organization elected, as permitted under SFAS 116 (ASC 958), not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.
b
If the organization elected, as permitted under SFAS 116 (ASC 958), to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:
(i)
Revenue included in Form 990, Part VIII, line 1 ........................SchDMd Bullet $  
(ii)
Assets included in Form 990, Part X ..............................SchDMd Bullet $  
2
If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under SFAS 116 (ASC 958) relating to these items:
a
Revenue included in Form 990, Part VIII, line 1 ..........................SchDMd Bullet $  
b
Assets included in Form 990, Part X ...............................SchDMd Bullet $  
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 52283D
Schedule D (Form 990) 2014

Schedule D (Form 990) 2014
Page 2
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)
3
Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):
a
d
b
e
 
c
4
Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.
5
During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?........
Part IV
Escrow and Custodial Arrangements. Complete if the organization answered "Yes" to Form 990,
Part IV, line 9, or reported an amount on Form 990, Part X, line 21.
1a
Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................
b
If "Yes," explain the arrangement in Part XIII and complete the following table:
Amount
c Beginning balance ................................. 1c  
d Additions during the year .............................. 1d  
e Distributions during the year ............................. 1e  
f Ending balance ................................... 1f  
2a
Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability?
b
If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII .......
Part V
Endowment Funds. Complete if the organization answered "Yes" to Form 990, Part IV, line 10.
(a)Current year (b)Prior year b (c)Two years back (d)Three years back (e)Four years back
1a Beginning of year balance .... 5,990,000 5,990,000 240,000 240,000 240,000
b Contributions ........          
c Net investment earnings, gains, and losses 28,557 21,965 13,666 8,091 26,305
d Grants or scholarships .....          
e Other expenditures for facilities
and programs ........ 		28,557 21,965 13,666 8,091 26,305
f Administrative expenses ....          
g End of year balance ...... 5,990,000 5,990,000 240,000 240,000 240,000
2
Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:
a
Board designated or quasi-endowment SchDMd Bullet0 %
b
Permanent endowment SchDMd Bullet4.000 %
c
Temporarily restricted endowment SchDMd Bullet96.000 %
The percentages in lines 2a, 2b, and 2c should equal 100%.
3a
Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes
No
(i) unrelated organizations ........................
3a(i)
 
No
(ii) related organizations ........................
3a(ii)
 
No
b
If "Yes" to 3a(ii), are the related organizations listed as required on Schedule R? .........
3b
 
 
4
Describe in Part XIII the intended uses of the organization's endowment funds.
Part VI
Land, Buildings, and Equipment. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11a. See Form 990, Part X, line 10.
Description of property (a) Cost or other basis (investment) (b)Cost or other basis (other) (c) Accumulated depreciation (d) Book value
1a Land .................      
b Buildings ................        
c Leasehold improvements ............   230,648 189,944 40,704
d Equipment ................   1,333,801 1,174,763 159,038
e Other .................        
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).).......SchDMdBullet 199,742
Schedule D (Form 990) 2014

Schedule D (Form 990) 2014
Page 3
Part VII
Investments—Other Securities. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11b. See Form 990, Part X, line 12.
(a) Description of security or category
(including name of security)		 (b)Book value (c) Method of valuation:
Cost or end-of-year market value
(1)Financial derivatives    
(2)Closely-held equity interests    
Other








Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)Small Bullet  
Part VIII
Investments—Program Related. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11c. See Form 990, Part X, line 13.
(a) Description of investment (b) Book value (c) Method of valuation:
Cost or end-of-year market value








Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)Small Bullet  
Part IX
Other Assets. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11d. See Form 990, Part X, line 15.
(a) Description (b) Book value








Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........Small Bullet  
Part X
Other Liabilities. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.
1.(a) Description of liability (b) Book value
Federal income taxes  
ANNUITY PAYMENT LIABILITY 974,000








Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)Small Bullet 974,000
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII
Schedule D (Form 990) 2014

Schedule D (Form 990) 2014
Page 4
Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return Complete if the organization answered 'Yes' to Form 990, Part IV, line 12a.
1 Total revenue, gains, and other support per audited financial statements ....... 1 138,553,385
2 Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a Net unrealized gains (losses) on investments .... 2a 180,375
b Donated services and use of facilities ......... 2b 79,800
c Recoveries of prior year grants ........... 2c  
d Other (Describe in Part XIII.) ............ 2d -38,836
e Add lines 2a through 2d ..................... 2e 221,339
3 Subtract line 2e from line 1..................... 3 138,332,046
4 Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b . 4a  
b Other (Describe in Part XIII.) ........... 4b 8,513
c Add lines 4a and 4b....................... 4c 8,513
5 Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ...... 5 138,340,559
Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' to Form 990, Part IV, line 12a.
1 Total expenses and losses per audited financial statements ........... 1 39,193,659
2 Amounts included on line 1 but not on Form 990, Part IX, line 25:
a Donated services and use of facilities .......... 2a 79,800
b Prior year adjustments .............. 2b  
c Other losses ................ 2c  
d Other (Describe in Part XIII.) ............ 2d  
e Add lines 2a through 2d...................... 2e 79,800
3 Subtract line 2e from line 1..................... 3 39,113,859
4 Amounts included on Form 990, Part IX, line 25, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b .. 4a  
b Other (Describe in Part XIII.) ............ 4b 8,513
c Add lines 4a and 4b....................... 4c 8,513
5 Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ...... 5 39,122,372
Part XIII
Supplemental Information
Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b;
Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.
Return Reference Explanation
PART V, LINE 4: IN DECEMBER 2013, THE ASSOCIATION RECEIVED A BEQUEST TOTALING $5,750,000, ESTABLISHING A TERM ENDOWMENT ACCORDING TO DESIGNATIONS MADE BY THE DONOR. THE PROCEEDS OF THIS BEQUEST ARE TO BE MAINTAINED BY THE ASSOCIATION IN AN ENDOWMENT FUND FOR A PERIOD OF TEN YEARS. EARNINGS FROM THE FUND ARE RESTRICTED TO SUPPORT RESEARCH AND MAY BE SPENT ON A CURRENT BASIS. UPON EXPIRATION OF THE ENDOWMENT TERM, THE CORPUS OF THE FUND MUST ALSO BE USED TO SUPPORT RESEARCH. THE ASSOCIATION ANTICIPATES THAT IT WILL RECEIVE ADDITIONAL CONTRIBUTIONS FROM THE DONOR'S ESTATE WHICH ARE NOT CURRENTLY ABLE TO BE ESTIMATED. THE RESEARCH ENDOWMENT PRINCIPAL IS HELD IN PERPETUITY TO GENERATE EARNINGS TO SUPPORT RESEARCH EXPENDITURES.
PART X, LINE 2: THE ASSOCIATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND STATE TAXES RELATED TO REVENUE RECEIVED IN CONNECTION WITH EXEMPT PROGRAMS. THE ASSOCIATION RECOGNIZES THE FINANCIAL STATEMENT BENEFIT OF TAX POSITIONS, SUCH AS ITS FILING STATUS AS TAX EXEMPT, ONLY AFTER DETERMINING THAT THE RELEVANT TAX AUTHORITY WOULD MORE LIKELY THAN NOT SUSTAIN THE POSITION FOLLOWING AN AUDIT. THE ASSOCIATION BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR ANY TAX POSITIONS TAKEN, AND THEREFORE DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS THAT ARE MATERIAL TO THE FINANCIAL STATEMENTS. THE ASSOCIATION IS SUBJECT TO POTENTIAL INCOME TAX AUDITS ON OPEN TAX YEARS BY ANY TAXING JURISDICTION IN WHICH IT OPERATES. THE STATUTE OF LIMITATIONS FOR FEDERAL PURPOSES IS THREE YEARS AND FOR STATE PURPOSES IS GENERALLY THREE TO FOUR YEARS.
PART XI, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 43,522. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -82,358.
PART XI, LINE 4B - OTHER ADJUSTMENTS: CAR DONATION PROGRAM 8,513.
PART XII, LINE 4B - OTHER ADJUSTMENTS: CAR DONATION PROGRAM 8,513.
Schedule D (Form 990) 2014

Additional Data


Software ID:  
Software Version:  




SCHEDULE F(Form 990)
Department of the Treasury
Internal Revenue Service
Statement of Activities Outside the United States
Right pointing arrow large image Complete if the organization answered "Yes" to Form 990,Part IV, line 14b, 15, or 16.Right pointing arrow large image Attach to Form 990.Right pointing arrow large image Information about Schedule F (Form 990) and its instructions is at www.irs.gov/form990.
OMB No. 1545-0047
2014
Open to Public Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
General Information on Activities Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 14b.
1
For grantmakers. Does the organization maintain records to substantiate the amount of its grants
and other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria
used to award the grants or assistance? ...........................
2
For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.
3
Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)
(a) Region (b) Number of offices in the region (c) Number of employees, agents, and independent contractors in region (d) Activities conducted in region (by type) (e.g., fundraising, program services, investments, grants to recipients located in the region) (e) If activity listed in (d) is a program service, describe specific type of
service(s) in region		 (f) Total expenditures
for and investments
in region
EUROPE (INCLUDING ICELAND & GREENLAND) - 0 0 RESEARCH GRANTS   604,020
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES 0 0 RESEARCH GRANTS   273,688
MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT, 0 0 RESEARCH GRANTS   60,000
EAST ASIA AND THE PACIFIC 0 0 RESEARCH GRANTS   40,000
           
           
           
           
           
           
           
           
           
           
           
           
           
3a Sub-total ..... 0 0 977,708
b Total from continuation sheets to Part I ... 0 0 0
c Totals (add lines 3a and 3b) 0 0 977,708
For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) 2014
Schedule F (Form 990) 2014
Page 2
Part II
Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.
1 (a) Name of organization (b) IRS code section
and EIN (if applicable)		 (a)(c) Region (b)(d) Purpose of
grant 		(e) Amount of
cash grant 		(f) Manner of
cash
disbursement 		(g) Amount
of non-cash
assistance 		(h) Description
of non-cash
assistance 		(i) Method of
valuation
(book, FMV,
appraisal, other)
EAST ASIA AND THE PACIFIC TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 40,000 CHECK & WIRE TRANSFER      
EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 339,061 CHECK & WIRE TRANSFER      
EUROPE (INCLUDING ICELAND & GREENLAND) LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS 214,959 CHECK & WIRE TRANSFER      
EUROPE (INCLUDING ICELAND & GREENLAND) POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 50,000 CHECK & WIRE TRANSFER      
MIDDLE EAST AND NORTH AFRICA TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 60,000 CHECK & WIRE TRANSFER      
NORTH AMERICA TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 248,688 CHECK & WIRE TRANSFER      
NORTH AMERICA POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 25,000 CHECK & WIRE TRANSFER      
             
             
             
             
             
             
             
             
             
2 Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter ....MediumBullet
18
3
Enter total number of other organizations or entities .......................MediumBullet
 
Schedule F (Form 990) 2014
Schedule F (Form 990) 2014Page 3
Part III
Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 16.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Region (c) Number of recipients (d) Amount of
cash grant 		(e) Manner of cash
disbursement 		(f) Amount of
non-cash
assistance 		(g) Description
of non-cash
assistance 		(h) Method of
valuation
(book, FMV,
appraisal, other)
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
Schedule F (Form 990) 2014
Schedule F (Form 990) 2014
Page 4
Part IV
Foreign Forms
1 Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes,"the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926)......................................
2 Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A; do not file with Form 990)............................
3 Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471)..............................
4 Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621)...............................................
5 Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships. (see Instructions for Form 8865)....................................
6 Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to file Form 5713, International Boycott Report (see Instructions for Form 5713; do not file with Form 990).....................................
Schedule F (Form 990) 2014
Schedule F (Form 990) 2014
Page 5
Part V
Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information (see instructions).
ReturnReference Explanation
PART I, LINE 2: FOREIGN INVESTIGATORS, SIMILAR TO U.S. INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH CONSULTANT.
PART I, LINE 3: ALL FOREIGN APPLICANTS, SIMILAR TO U.S. INVESTIGATORS, PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED.
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
Schedule F (Form 990) 2014
Additional Data


Software ID:  
Software Version:  



SCHEDULE G (Form 990 or 990-EZ)
Department of the Treasury
Internal Revenue Service
Supplemental Information Regarding
Fundraising or Gaming Activities
Complete if the organization answered "Yes" to Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrowAttach to Form 990 or Form 990-EZ.
right arrowInformation about Schedule G (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.
OMB No. 1545-0047
2014
Open to Public Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
Fundraising Activities. Complete if the organization answered "Yes" to Form 990, Part IV, line 17. Form 990-EZ
filers are not required to complete this part.
1
Indicate whether the organization raised funds through any of the following activities. Check all that apply.
a e
b f
c g
d
2a
Did the organization have a written or oral agreement with any individual (including officers, directors, trustees
or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?
b
If "Yes," list the ten highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.
(i) Name and address of individual
or entity (fundraiser) 		(ii) Activity (iii) Did fundraiser have custody or control of contributions? (iv) Gross receipts
from activity 		(v) Amount paid to
(or retained by)
fundraiser listed in
col. (i) 		(vi) Amount paid to
(or retained by)
organization
Yes No
 
NNE MARKETING LLC
754 MASSACHUSETTS AVENUE
 
ARLINGTON, MA02476 		FUNDRAISING COUNSEL   No 3,710,686 361,570 3,349,116
 
AMERICA'S CAR DONATION CENTER
3755 OMEC CR 4
 
RANCHO CORDOVA, CA95742 		CAR DONATIONS Yes   34,259 8,513 25,746
 
STRATEGIC FUNDRAISING INC
7800 3RD STREETN SUITE 900
 
ST PAUL, MN55128 		MANAGES TELEMARKETING SOLICITATIONS   No 14,961 28,613 -13,652
             
             
             
             
             
             
             
Total .................right arrow 3,759,906 398,696 3,361,210
3
List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.
AL, AK, AR, CA, CO, CT, DE, DC, FL, GA, HI, IL, KS, KY, LA, ME, MD, MA, MI, MN, MS, NH, NJ, NM, NY, ND, OH, OK, OR, PA, RI, SC, TN, UT, VA, WA, WV, WI, NV
For Paperwork Reduction Act Notice, see the Instructions for Form 990or 990-EZ.
Cat. No. 50083H
Schedule G (Form 990 or 990-EZ) 2014
Schedule G (Form 990 or 990-EZ) 2014
Page 2
Part II
Fundraising Events. Complete if the organization answered "Yes" to Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.
(a) Event #1

ALSA WALK - BANGOR, ME
(event type) 		(b) Event #2

ALSA WALK - BURLINGTON, VT
(event type) 		(c) Other events

5
(total number) 		(d) Total events
(add col. (a) through col. (c))
VerticalRevenue 1 Gross receipts . . . 79,602 74,768 446,379 600,749
2 Less: Contributions . . 79,602 74,768 446,379 600,749
3 Gross income (line 1
minus line 2) . . . 		       
VerticalDirectExpenses 4 Cash prizes . . . 778 778 2,406 3,962
5 Noncash prizes . .        
6 Rent/facility costs . . 450 560 3,081 4,091
7 Food and beverages .     750 750
8 Entertainment . . .        
9 Other direct expenses . 2,226 3,120 23,381 28,727
10 Direct expense summary. Add lines 4 through 9 in column (d) ........... right arrow 37,530
11 Net income summary. Subtract line 10 from line 3, column (d)........... right arrow -37,530
Part III
Gaming. Complete if the organization answered "Yes" to Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.
VerticalRevenue (a) Bingo (b) Pull tabs/Instant
bingo/progressive bingo 		(c) Other gaming (d) Total gaming (add col.(a) through col.(c))
1 Gross revenue . . . .        
VerticalDirectExpenses 2 Cash prizes . . . .        
3 Non-cash prizes . . .        
4 Rent/facility costs . . .        
5 Other direct expenses . .        
6 Volunteer labor . . .
%
%
%
7 Direct expense summary. Add lines 2 through 5 in column (d) ........... right arrow  
8 Net gaming income summary. Subtract line 7 from line 1, column (d) ......... right arrow  
9
Enter the state(s) in which the organization conducts gaming activities:
a
Is the organization licensed to conduct gaming activities in each of these states? ............
b
If "No," explain:
 
10a
Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? .....
b
If "Yes," explain:
 
Schedule G (Form 990 or 990-EZ) 2014
Schedule G (Form 990 or 990-EZ) 2014
Page 3
11
Does the organization conduct gaming activities with nonmembers? .................
12
Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity
formed to administer charitable gaming? ..........................
13
Indicate the percentage of gaming activities conducted in:
a
The organization's facility ......................
13a
%
b
An outside facility ........................
13b
%
14
Enter the name and address of the person who prepares the organization's gaming/special events books and records:
Name right arrow
Address right arrow
15a
Does the organization have a contract with a third party from whom the organization receives gaming
revenue? ......................................
b
If "Yes," enter the amount of gaming revenue received by the organization right arrow $   and the
amount of gaming revenue retained by the third party right arrow $  
c
If "Yes," enter name and address of the third party:
Name right arrow
Address right arrow
 
 
16
Gaming manager information:
Name right arrow
Gaming manager compensation right arrow $  
Description of services provided right arrow
 
17
Mandatory distributions:
a
Is the organization required under state law to make charitable distributions from the gaming proceeds to
retain the state gaming license? ............................
b
Enter the amount of distributions required under state law distributed to other exempt organizations or spent
in the organization's own exempt activities during the tax year right arrow$  
Part IV
Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v), and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information (see instructions).
Return Reference Explanation
SCHEDULE G, PART II, LINE 11 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION HELD WALKS TO FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE.
Schedule G (Form 990 or 990-EZ) 2014
Additional Data


Software ID:  
Software Version:  
Schedule I
(Form 990)
Department of the Treasury
Internal Revenue Service
Grants and Other Assistance to Organizations,
Governments and Individuals in the United States
Complete if the organization answered "Yes," to Form 990, Part IV, line 21 or 22.
lBullet Attach to Form 990.
lBullet Information about Schedule I (Form 990) and its instructions is at www.irs.gov/form990.
OMB No. 1545-0047
2014
Open to Public
Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number
13-3271855
Part I
General Information on Grants and Assistance
1
Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ....................................
2
Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.
Part II
Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" to
Form 990, Part IV, line 21, for any recipient that received more than $5,000. Part II can be duplicated if additional space is needed.
(a) Name and address of organization
or government		 (b) EIN (c) IRC section
if applicable		 (d) Amount of cash grant (e) Amount of non-cash
assistance		 (f) Method of valuation
(book, FMV, appraisal,
other)		 (g) Description of
non-cash assistance		 (h) Purpose of grant
or assistance
(1) AMERICAN BRAIN FOUNDATION
201 CHICAGO AVENUE SOUTH
MINNEAPOLIS,MN55401 		41-1717098 501(C)(3) 18,852       TREAT ALS CLINICAL SCIENTIST
(2) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARL STREET SUITE 6401
MADISON,WI53715 		36-9006492 501(C)(3) 179,991       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(3) BRANDEIS UNIVERSITY
MS 110 415 SOUTH STREET
WALTHAM,MA02454 		04-1103552 501(C)(3) 20,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(4) BRIGHAM AND WOMEN'S HOSPITAL RESEARCH
P O BOX 3887
BOSTON,MA022413887 		04-2312909 501(C)(3) 140,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(5) BRIGHAM AND WOMEN'S HOSPITAL RESEARCH
75 FRANCIS STREET
BOSTON,MA02115 		04-2312909 501(C)(3) 121,751       TREAT ALS
(6) BROWN UNIVERSITY
PO BOX 1929
PROVIDENCE,RI02912 		05-0258809 501(C)(3) 80,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(7) BROWN UNIVERSITY
PO BOX 1911
PROVIDENCE,RI02912 		05-0258809 501(C)(3) 40,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(8) CEDARS SINAI
8700 BEVERLY BLVD 6500 WIL SUITE
1150
LOS ANGELES,CA90048 		95-1644600 501(C)(3) 80,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(9) CEDARS-SINAI MEDICAL CENTER
6500 WILSHIRE BLVD SUITE 1150
LOS ANGELES,CA90048 		95-1644600 501(C)(3) 526,000       TREAT ALS
(10) CEDARS-SINAI MEDICAL CENTER
6500 WILSHIRE BLVD SUITE 1150
LOS ANGELES,CA90048 		95-1644600 501(C)(3) 534,000       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(11) CINCINNATI CHILDREN'S HOSPITAL
3333 BURNET AVE ML 4900
CINCINNATI,OH452293039 		31-0833936 501(C)(3) 10,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(12) CLEVELAND CLINIC FOUNDATION
P O BOX 931531
CLEVELAND,OH44193 		34-0714585 501(C)(3) 20,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(13) DIGNITY HEALTH ST JOSEPH'S HOSPITAL & MEDICAL CENTER
DIGNITY HEALTH ST JOSEPHS HOSPITAL
AZ FILE 57431
LOS ANGELES,CA90074 		86-0096787 501(C)(3) 50,000       POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
(14) EMORY UNIVERSITY
1599 CLIFTON RD 4TH FLOOR
ATLANTA,GA303224250 		58-0566256 501(C)(3) 18,091       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(15) EMORY UNIVERSITY
101 WOODRUFF CIRCLE
ATLANTA,GA30322 		58-0566256 501(C)(3) 149,486       TREAT ALS
(16) EMORY UNIVERSITY
PO BOX 935084
ATLANTIS,GA31193 		58-0566256 501(C)(3) 158,729       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(17) JOHNS HOPKINS UNIVERSITY
12529 COLLECTION CENTER DRIVE
CHICAGO,IL606930001 		52-0595110 501(C)(3) 50,000       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(18) JOHNS HOPKINS UNIVERSITY
12529 COLLECTIONS CENTER DRIVE
CHICAGO,IL11476 		52-0595110 501(C)(3) 292,540       TREAT ALS
(19) JOHNS HOPKINS UNIVERSITY
12529 COLLECTION CENTER DRIVE
CHICAGO,IL606930001 		52-0595110 501(C)(3) 25,000       POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
(20) JOHNS HOPKINS UNIVERSITY
12529 COLLECTION CENTER DRIVE
CHICAGO,IL606930001 		52-0595110 501(C)(3) 80,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(21) JOHNS HOPKINS UNIVERSITY AT EASTERN
725 N WOLFE STREET WBSB 1003
BALTIMORE,MD21205 		52-0595110 501(C)(3) 40,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(22) LUDWIG INSTITUTE FOR CANCER RESEARCH
9500 GILMAN DRIVE MC-0660 CMM-EAST
ROOM 3041
LA JOLLA,CA920930660 		23-7121131 501(C)(3) 65,500       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(23) LUDWIG INSTITUTE FOR CANCER RESEARCH
P O BOX 12385
LA JOLLA,CA92039 		23-7121131 501(C)(3) 50,000       POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
(24) LUDWIG INSTITUTE FOR CANCER RESEARCH
9500 GILMAN DRIVE MC-0660 CMM- EAST
ROOM 3041
LA JOLLA,CA92093 		23-7121131 501(C)(3) 37,500       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(25) LUDWIG INSTITUTE FOR CANCER RESEARCH
9500 GILMAN DRIVE MC-0660 CMM- EAST
ROOM 3041
LA JOLLA,CA92093 		23-7121131 501(C)(3) 534,000       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(26) MARY HITCHCOCK MEMORIAL HOSPITAL
ONE MEDIVAL CENTER DRIVE
LEBANON,NH03756 		02-0222139 501(C)(3) 80,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(27) MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVE STE 300
BOSTON,MA02199 		04-2697983 501(C)(3) 150,000       TREAT ALS
(28) MASSACHUSETTS GENERAL HOSPITAL
P O BOX 414876
BOSTON,MA02241 		04-2697983 501(C)(3) 115,000       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(29) MASSACHUSETTS GENERAL HOSPITAL
PO BOX 414876
BOSTON,MA02241 		04-2697983 501(C)(3) 638,192       TREAT ALS
(30) MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
PO BOX 414876
BOSTON,MA022414876 		04-2697983 501(C)(3) 50,000       CLINCIAL MANAGEMENT
(31) MAYO CLINIC JACKSONVILLE
BIRDSALL 102 4500 SAN PABLO RD
JACKSONVILLE,FL32224 		59-3337028 501(C)(3) 130,000       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(32) MAYO CLINIC JACKSONVILLE
BIRDSALL 102 4500 SAN PABLO RD
JACKSONVILLE,FL32224 		59-3337028 501(C)(3) 75,000       POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
(33) MAYO CLINIC JACKSONVILLE
BIRDSALL 102 4500 SAN PABLO RD
JACKSONVILLE,FL32224 		59-3337028 501(C)(3) 40,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(34) MAYO CLINIC JACKSONVILLE
200 FIRST STREET SW PLUMMER 5
ROCHESTER,MN559034008 		59-3337028 501(C)(3) 50,000       POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
(35) NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS
9000 ROCKVILLE PIKE
BETHESDA,MD20892 		52-0858115 501(C)(3) 125,000       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(36) NEW YORK GENOME CENTER
101 AVENUE OF THE AMERICAS
NEW YORK,NY10013 		80-0631734 501(C)(3) 2,500,000       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(37) NORTHWESTERN UNIVERSITY
633 CLARK ROOM G-547
EVANSTON,IL60208 		36-2167817 501(C)(3) 40,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(38) NORTHWESTERN UNIVERSITY
1801 MAPLE AVE 2ND FLOOR SUITE 2410
2410
EVANSTON,IL60201 		36-2167817 501(C)(3) 50,000       POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
(39) NYU SCHOOL OF MEDICINE
ONE PARK AVENUE 6TH FLOOR
NEW YORK,NY10016 		13-5562308 501(C)(3) 113,808       TREAT ALS
(40) OHIO STATE UNIVERSITY RESEARCH FOUNDATION
1960 KENNY ROAD RESEARCH FOUNDATION
4TH FLOOR
COLUMBUS,OH432101063 		31-6401599 501(C)(3) 65,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(41) OREGON HEALTH AND SCIENCE UNIVERSITY
0690 SW BANCROFT L106SPA
PORTLAND,OR97239 		93-1176109 501(C)(3) 40,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(42) PRESIDENT AND FELLOWS OF HARVARD COLLEGE
HARVARD UNIV OFFICE OF SPNSRD PRG
HOLYOKE CENTER SUITE 600
CAMBRIDGE,MA02138 		04-2103580 501(C)(3) 79,922       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(43) PRESIDENT AND FELLOWS OF HARVARD COLLEGE
PO BOX 415649
BOSTON,MA022415649 		04-2103580 501(C)(3) 29,990       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(44) REGENTS OF THE UNIVERSITY OF CALIFORNIA
11000 KINROSS AVE STE 211
LOS ANGELES,CA90095 		94-6036493 501(C)(3) 40,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(45) REGENTS OF THE UNIVERSITY OF CALIFORNIA
11000 KINROSS AVE STE 211
LOS ANGELES,CA90095 		94-6036493 501(C)(3) 40,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(46) REGENTS OF THE UNIVERSITY OF CALIFORNIA
9500 GILMAN DRIVE MC 0934
LA JOLLA,CA92093 		94-6036493 501(C)(3) 160,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(47) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET
ANN ARBOR,MI48109 		94-6036493 501(C)(3) 10,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(48) SAINT JOSEPH'S HOSPITAL AND MEDICAL CENTER
350 WEST THOMAS ROAD
PHOENIX,AZ85013 		86-0096787 501(C)(3) 242,058       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(49) SRI INTERNATIONAL
333 RAVENSWOOD AVENUE
MENLO PARK,CA94025 		94-1160950 501(C)(3) 175,424       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(50) ST JOSEPH'S HOSPITAL AND MEDICAL CENTER
350 W THOMAS ROAD
PHOENIX,AZ85013 		72-1561134 501(C)(3) 75,000       TREAT ALS
(51) STANFORD UNIVERSITY OPERATIONS OSR
PO BOX 44253
SAN FRANCISCO,CA941444253 		94-1156365 501(C)(3) 40,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(52) TACONIC BIOSCIENCES INC
273 HANOVER AVENUE
GERMANTOWN,NY12526 		14-1301101 501(C)(3) 58,982       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(53) TACONIC FARMS INC
273 HOVER AVE
GERMANTOWN,NY125265320 		14-1381104 501(C)(3) 29,198       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(54) THE CURATORS OF THE UNIVERSITY OF MISSOURI
P O BOX 80712
KANSAS CITY,MO64180 		43-6003859 501(C)(3) 60,021       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(55) THE GENERAL HOSPITAL CORP DBA MASSACHUSETTS GENERAL HOSPITAL
P O BOX 414876
BOSTON,MA02241 		04-2697983 501(C)(3) 50,000       TREAT ALS
(56) THE GENERAL HOSPITAL CORPORATION
101 HUNGTINGTON AVENUE
BOSTON,MA02199 		04-2697983 501(C)(3) 357,185       TREAT ALS
(57) THE HOUSTON HOSPITAL RESEARCH INSTITUTE
6670 BERTNER AVENUE R2-216
HOUSTON,TX77030 		76-0152699 501(C)(3) 20,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(58) THE J DAVID GLADSTONE INSTITUTE
1650 OWENS STREET
SAN FRANCISCO,CA94158 		23-7203666 501(C)(3) 544,000       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(59) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
PO BOX 989062
WEST SACRAMENTO,CA95798 		94-6036493 501(C)(3) 48,000       CLINCIAL MANAGEMENT
(60) THE RESEARCH FOUNDATION OF THE STATE OF NEW YORK
750 EAST ADAMS STREET
SYRACUSE,NY13210 		14-1368361 501(C)(3) 70,765       TREAT ALS
(61) THE SCRIPPS RESEARCH INSTITUTE
10550 NORTH TORREY PINES ROAD TPC-7
LA JOLLA,CA92037 		33-0435954 501(C)(3) 50,000       POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
(62) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
PO BOX 29789
NEW YORK,NY100879789 		13-5598093 501(C)(3) 80,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(63) THE UNIVERSITY OF CHICAGO
6030 S ELLLIS AVENUE ROOM 114
CHICAGO,IL60637 		36-2177139 501(C)(3) 80,000       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(64) TRUSTEES OF DARTMOUTH COLLEGE
11 ROPE FERRY ROAD 6210
HANOVER,NH03755 		02-0222111 501(C)(3) 10,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(65) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
P-221 FRANKLIN BLDG 3451 WALNUT
STREET
PHILADELPHIA,PA19104 		23-1352685 501(C)(3) 40,000       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(66) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET FRANKLIN
BUILDING P221
PHILADELPHIA,PA19104 		23-1352685 501(C)(3) 40,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(67) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S AB 990
BIRMINGHAM,AL35294 		63-6005396 501(C)(3) 10,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(68) UNIVERSITY OF FLORIDA
1233 GRINTER HALL
GAINESVILLE,FL32611 		59-6002052 501(C)(3) 110,000       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(69) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BLVD MSN 1039
KANSAS CITY,KS66160 		48-1647721 501(C)(3) 116,882       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(70) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
C/O PNC BANK PO BOX 931113
CLEVELAND,OH44193 		61-6033693 501(C)(3) 100,000       CLINCIAL MANAGEMENT
(71) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
337 FRANK D PETERSON SERVICE BLDG
LEXINGON,KY405060005 		61-6033693 501(C)(3) 39,852       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(72) UNIVERSITY OF MASSACHUSETTS
UNIVERSITY OF MASSACHUSETTS
AMHERST,MA01003 		38-6006309 501(C)(3) 500,000       TREAT ALS
(73) UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH
WORCESTER,MA01655 		04-3167352 501(C)(3) 400,000       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(74) UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH
WORCESTER,MA01655 		04-3167352 501(C)(3) 160,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(75) UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH
WORCESTER,MA01655 		04-3167352 501(C)(3) 25,000       POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
(76) UNIVERSITY OF MIAMI
PO BOX 405803
ATLANTA,GA303845803 		59-0624458 501(C)(3) 150,000       TREAT ALS
(77) UNIVERSITY OF PITTSBURGH
P O BOX 371220
PITTSBURGH,PA15251 		25-0965591 501(C)(3) 84,195       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(78) UT SOUTHWESTERN MEDICAL CENTER
PO BOX 841753
DALLAS,TX75284 		75-6002868 501(C)(3) 40,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(79) WASHINGTON UNIVERSITY
700 ROSEDALE AVE BOX 1034
ST LOUIS,MO63112 		43-0653611 501(C)(3) 151,092       LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
(80) WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
575 LEXINGTON AVENUE 9TH FLOOR
NEW YORK,NY10022 		13-3376695 501(C)(3) 40,000       TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
(81) ALABAMA CHAPTER
PO BOX 2888
HUNTSVILLE,AL35804 		20-2218566 501(C)(3) 127,866       CHAPTER SUPPORT
(82) ARKANSAS CIO
1200 W WALNUT ST STE 2309
ROGERS,AR72756 		20-4863643 501(C)(3) 80,429       CHAPTER SUPPORT
(83) ARIZONA CHAPTER
360 E CORONADO STE 140
PHOENIX,AZ85004 		86-0727136 501(C)(3) 171,477       CHAPTER SUPPORT
(84) ALS ASSOCIATION GOLDEN WEST CHAPTER
27001 AGOURA RD STE 250
AGOURA HILLS,CA91301 		95-4163338 501(C)(3) 911,668       CHAPTER SUPPORT
(85) GREATER SACRAMENTO CHAPTER
2717 COTTAGE WAY STE 17
SACRAMENTO,CA95825 		68-0159292 501(C)(3) 72,216       CHAPTER SUPPORT
(86) GREATER SAN DIEGO CHAPTER
7920 SILVERTON AVE STE E
SAN DIEGO,CA92126 		04-3651272 501(C)(3) 77,983       CHAPTER SUPPORT
(87) ROCKY MOUNTAIN CHAPTER
10855 DOVER ST STE 500
WESTMINSTER,CO80021 		84-1337868 501(C)(3) 180,488       CHAPTER SUPPORT
(88) CONNECTICUT CHAPTER
4 OXFORD RD UNIT D4
MILFORD,CT06460 		04-3417472 501(C)(3) 152,812       CHAPTER SUPPORT
(89) ALS ASSOCIATION FLORIDA CHAPTER INC
3242 PARKSIDE CENTER CIR
TAMPA,FL33619 		94-3124732 501(C)(3) 352,981       CHAPTER SUPPORT
(90) GEORGIA CHAPTER
5881 GLENRIDGE DR STE 200
ATLANTA,GA30328 		58-1943490 501(C)(3) 250,003       CHAPTER SUPPORT
(91) IOWA CHAPTER
900 MULBERRY ST STE 204
DES MOINES,IA50309 		30-0051272 501(C)(3) 137,360       CHAPTER SUPPORT
(92) GREATER CHICAGO CHAPTER
202 W HURON STE 4003
CHICAGO,IL60654 		54-2126575 501(C)(3) 215,741       CHAPTER SUPPORT
(93) INDIANA CHAP
6525 E 82 STREET STE 115
INDIANAPOLIS,IN46250 		35-2029321 501(C)(3) 146,760       CHAPTER SUPPORT
(94) MID-AMERICA CHAPTER
6950 SQUIBB RD STE 210
MISSION,KS66202 		48-1021611 501(C)(3) 348,454       CHAPTER SUPPORT
(95) KENTUCKY CHAPTER
2815 AMSTERDAM RD
VILLA HILLS,KY41017 		94-3124729 501(C)(3) 157,586       CHAPTER SUPPORT
(96) LOUISIANA MISSISSIPPI CHAPTER
PO BOX 66825
BATON ROUGE,LA70896 		20-1742120 501(C)(3) 156,796       CHAPTER SUPPORT
(97) MASSACHUSETTS CHAPTER
315 S NORWOOD PARK 1ST FL
NORWOOD,MA02062 		04-3085718 501(C)(3) 331,680       CHAPTER SUPPORT
(98) DC MD VA CHAPTER
7507 STANDISH PL
ROCKVILLE,MD20855 		52-1749047 501(C)(3) 391,855       CHAPTER SUPPORT
(99) MICHIGAN CHAPTER
675 E BIG BEAVER ROAD 207
TROY,MI48083 		38-2718994 501(C)(3) 169,252       CHAPTER SUPPORT
(100) MINNESOTA NORTH DAKOTA SOUTH DAKOTA
333 N WASHINGTON AVE STE 105
MINNEAPOLIS,MN55401 		41-1756085 501(C)(3) 342,638       CHAPTER SUPPORT
(101) ST LOUIS REGIONAL CHAPTER
2258 WELDON PKWY
SAINT LOUIS,MO63146 		43-1458163 501(C)(3) 175,466       CHAPTER SUPPORT
(102) JIM CATFISH HUNTER CHAPTER
4 N BLOUNT ST 2ND FL
RALEIGH,NC27601 		56-1609591 501(C)(3) 274,561       CHAPTER SUPPORT
(103) NEW MEXICO CHAPTER
2309 RENARD STE 202
ALBUQUERQUE,NM87106 		85-0473026 501(C)(3) 22,565       CHAPTER SUPPORT
(104) UPSTATE NEW YORK CHAPTER ALS ASSOC
890 7TH NORTH ST STE 108
LIVERPOOL,NY13088 		37-1667986 501(C)(3) 138,799       CHAPTER SUPPORT
(105) GREATER NEW YORK CHAPTER
42 BROADWAY STE 1724
NEW YORK,NY10004 		13-3616680 501(C)(3) 658,368       CHAPTER SUPPORT
(106) CENTRAL & SOUTHERN OHIO CHAPTER
1170 OLD HENDERSON RD STE 221
COLUMBUS,OH43220 		31-1235704 501(C)(3) 224,054       CHAPTER SUPPORT
(107) NORTHERN OHIO CHAPTER
6155 ROCKSIDE RD STE 403
INDEPENDENCE,OH44131 		34-1595148 501(C)(3) 208,365       CHAPTER SUPPORT
(108) OREGON AND SW WASHINGTON
700 NE MULTNOMAH ST STE 1180
PORTLAND,OR97232 		68-0516066 501(C)(3) 276,527       CHAPTER SUPPORT
(109) GREATER PHILADELPHIA CHAPTER
321 NORRISTOWN RD STE 260
AMBLER,PA19002 		23-2387205 501(C)(3) 630,073       CHAPTER SUPPORT
(110) WESTERN PENNSYLVANIA CHAPTER
416 LINCOLN AVE
PITTSBURGH,PA15209 		23-7123851 501(C)(3) 205,246       CHAPTER SUPPORT
(111) RHODE ISLAND CHAPTER
2915 POST RD
WARWICK,RI02886 		05-0460482 501(C)(3) 72,946       CHAPTER SUPPORT
(112) SOUTH CAROLINA CHAPTER
7499 PARK LANE RD STE 144
COLUMBIA,SC29223 		20-3780277 501(C)(3) 54,109       CHAPTER SUPPORT
(113) TENNESSEE CHAPTER
PO BOX 40244
NASHVILLE,TN37204 		94-3124723 501(C)(3) 185,055       CHAPTER SUPPORT
(114) ALS ASSOCIATION TEXAS CHAPTER
2251 CHENAULT
CARROLLTON,TX75006 		74-2678974 501(C)(3) 362,768       CHAPTER SUPPORT
(115) EVERGREEN CHAPTER
19115 68TH AVE S H-105
KENT,WA98032 		91-1950869 501(C)(3) 254,046       CHAPTER SUPPORT
(116) ALS CENTER
500 UNIVERSITY DRIVE
HERSHEY,PA17033 		24-6000376 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(117) ALLEGHANY HEALTH NETWORK
30 ISABELLA STREET SUITE 300
PITTSBURGH,PA15212 		25-1320493 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(118) BANNER GOOD SAMARITAN MEDICAL CENTER
1012 E WILLETTA STREET
PHOENIX,AZ85006 		41-0726167 501(C)(3) -12,500       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(119) BAYLOR COLLEGE OF MEDICINE
6550 FANNIN SUITE 1801 SMITH TOWER
HOUSTON,TX77030 		74-1613878 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(120) BETH ISRAEL MEDICAL CENTER ALS CLINIC
10 UNION SQUARE EAST
NEW YORK,NY10003 		04-2103881 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(121) CEDARS-SINAI MEDICAL CENTER
127 S SAN VICENTE BLVD 6TH FLOOR
LOS ANGELES,CA90048 		95-1644600 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(122) CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE
CLEVELAND,OH44195 		34-0714585 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(123) COMMUNITY FOUNDATION OF HUNTSVILLEMADISON COUNTY
POBOX 332
HUNTSVILLE,AL35804 		26-3750673 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(124) CURT AND SHONDA SCHILLING ALS CLINIC
41 MALL ROAD
BURLINGTON,MA01805 		23-7121131 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(125) THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE
LEBANON,NH037560001 		02-0222139 501(C)(3) 36,800       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(126) DUKE UNIVERSITY MEDICAL CENTER
DUMC BOX 3333 932 MORREENE ROAD
DURHAM,NC27705 		56-0532129 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(127) FORBES NORRIS ALS RESEARCH CENTER
2324 SACRAMENTO ST
SAN FRANCISCO,CA94115 		26-2047755 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(128) GEORGE WASHINGTON UNIVERSITY
2150 PENNSYLVANIA AVE NW 7-401
WASHINGTON,DC20037 		54-2126575 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(129) GEORGIA HEALTH SCIENCES FOUNDATION INC
1120 15TH STREET BP 4390
AUGUSTA,GA309120004 		35-2310573 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(130) HARRY J HOENSLAAR ALS CLINIC
2799 WEST GRAND AVE K-11 NEUROLOGY
DETROIT,MI48202 		38-1357020 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(131) HENNEPIN COUNTY MEDICAL CENTER (HCMC)
825 SOUTH EIGHTH STREET SUITE 250
MINNEAPOLIS,MD55404 		38-1357020 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(132) INDIANA UNIVERSITY ALS CENTER
1050 WISHARD BLVD REGENSTRIEF 6TH
FLOOR
INDIANAPOLIS,IN46202 		52-0595110 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(133) MAYO CLINIC - ALS CLINIC
13400 EAST SHEA BLVD
SCOTTSDALE,AZ852595404 		59-3337028 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(134) MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD S CANNADAY 2E
JACKSONVILLE,FL322241865 		59-3337028 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(135) MAYO MEDICAL CLINIC
200 FIRST STREET SW
ROCHESTER,MD55905 		41-6011702 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(136) MEDICAL COLLEGE OF WISCONSINFROEDTERT HOSPITAL
9200 W WISCONSIN AVE
MILWAUKEE,WI53226 		39-0806261 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(137) NEUROLOGY ASSOCIATES OF STONY BROOK
179 BELLE MEADE ROAD SUITE 3
EAST SETAUKET,NY11733 		11-3243405 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(138) PENN STATE UNIVERSITY
500 UNIVERSITY DRIVE
HERSHEY,PA17033 		24-6000376 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(139) PHOENIX NEUROLOGICAL ASSOCIATES
5090 40TH STREET SUITE 250
PHOENIX,AZ85018 		86-0217237 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(140) PROVIDENCE ALS CENTER
5050 NE HOYT STE 315
PORTLAND,OR97213 		93-1176109 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(141) ROBERT WOOD JOHNSON UNIVERSITY HOSPITAL & UMDNJ MEDICAL SCHO
97 PATERSON ST
NEW BRUNSWICK,NJ08903 		20-1285267 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(142) SOUTH TEXAS ALS CLINIC
8300 FLOYD CURL DRIVE MSC 7883
SAN ANTONIO,TX782293900 		74-1586031 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(143) ST LOUIS UNIVERSITY HOSPITAL
1438 SOUTH GRAND BLVD MONTELEONE
HALL
ST LOUIS,MO63104 		43-0654872 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(144) SUNY RESEARCH FOUNDATION
750 E ADAMS ST
SYRACUSE,NY13210 		14-1368361 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(145) THE NEUROMUSCULAR ALS CLINIC
2150 CORBIN AVE
NEW BRITAIN,CT06053 		06-0546766 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(146) UNIVERSITY OF CALIFORNIA-DAVIS MULTIDISCIPLINARY ALS CLINIC
4860 Y STREET
SACRAMENTO,CA95817 		94-6036494 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(147) UNIVERSITY OF CALIFORNIA-SAN FRANCISCO
350 PARNASSUS AVENUE SUITE 500
SAN FRANCISCO,CA94117 		94-6036493 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(148) UNIVERSITY OF CHICAGO MEDICINE
5841 S MARYLAND AVENUE MC 2030
CHICAGO,IL60637 		36-3488183 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(149) UNIVERSITY OF KANSAS MEDICAL CENTER
3599 RAINBOW BLVD MAIL STOP 2012
KANSAS CITY,KS66160 		48-0647721 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(150) UNIVERSITY OF KENTUCKYCARDINAL HILL ALSA CTR
ALBERT CHANDLER MED CTR
LEXINGTON,KY40536 		61-6001218 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(151) UNIVERSITY OF MARYLAND BALTIMORE
PO BOX 41428
BALTIMORE,MD21203 		52-0595110 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(152) UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE
1120 NW 14TH STREET SUITE1311
MIAMI,FL33136 		59-0624458 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(153) UNIVERSITY OF MICHIGAN HEALTH SYSTEM
1500 E MEDICAL CENTER DR
ANN ARBOR,MI481090316 		38-6006309 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(154) UNIVERSITY OF MINNESOTA ALS CLINIC
420 DELAWARE STREET SE
MINNEAPOLIS,MN55455 		41-6007513 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(155) UNIVERSITY OF NEBRASKA MEDICAL CENTER
987400 NEBRASKA MEDICAL CENTER
OMAHA,NE681987400 		47-0049123 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(156) UNIVERSITY OF NEW MEXICO-SCHOOL OF MEDICINE
2211 LOMAS NE - MSC 10 5620
ALBUQUERQUE,NM87131 		85-6000642 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(157) UNIVERSITY OF VERMONT
89 BEAUMONT AVENUE
BURLINGTON,VT05405 		03-0179440 501(C)(3) 61,800       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(158) VIRGINIA MASON MEDICAL CENTER ALS CLINIC
PO BOX 900 M/S X7 NEU
SEATTLE,WA98111 		91-0565539 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
(159) WAKE FOREST BAPTIST MEDICAL CENTER
MEDICAL CENTER BLVD 3RD FLOOR MEADS
MEADS
WINSTONSALEM,NC271571078 		22-3849199 501(C)(3) 25,000       ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
2
Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................ Bullet Image
159
3
Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image
 
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50055P
Schedule I (Form 990) 2014

Schedule I (Form 990) 2014
Page 2
Part III
Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" to Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.
(a)Type of grant or assistance (b)Number of
recipients		 (c)Amount of
cash grant		 (d)Amount of
non-cash assistance		 (e)Method of valuation (book,
FMV, appraisal, other)		 (f)Description of non-cash assistance












Part IV
Supplemental Information. Provide the information required in Part I, line 2, Part III, column (b), and any other additional information.
Return Reference Explanation
PART I, LINE 2: ALL APPLICANTS PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED.
SCHEDULE I, PART III ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH CONSULTANT.
Schedule I (Form 990) 2014


Additional Data


Software ID:  
Software Version:  


Schedule J
(Form 990)
Department of the Treasury
Internal Revenue Service
Compensation Information
For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
SchJMediumBullet Complete if the organization answered "Yes" to Form 990, Part IV, line 23.
SchJMediumBullet Attach to Form 990.
SchJMediumBullet Information about Schedule J (Form 990) and its instructions is at www.irs.gov/form990.
OMB No. 1545-0047
2014
Open to Public Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
Questions Regarding Compensation
Yes
No
1a
Check the appropiate box(es) if the organization provided any of the following to or for a person listed in Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.
b
If any of the boxes in line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain....
1b
 
 
2
Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked in line 1a? ..
2
Yes
 
3
Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.
4
During the year, did any person listed in Form 990, Part VII, Section A, line 1a with respect to the filing organization or a related organization:
a
Receive a severance payment or change-of-control payment? ................
4a
 
No
b
Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........
4b
 
No
c
Participate in, or receive payment from, an equity-based compensation arrangement? .........
4c
 
No
If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.
Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.
5
For persons listed in Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:
a
The organization? ...........................
5a
 
No
b
Any related organization? .........................
5b
 
No
If "Yes," to line 5a or 5b, describe in Part III.
6
For persons listed in Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:
a
The organization? ...........................
6a
 
No
b
Any related organization? .........................
6b
 
No
If "Yes," to line 6a or 6b, describe in Part III.
7
For persons listed in Form 990, Part VII, Section A, line 1a, did the organization provide any non-fixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............
7
 
No
8
Were any amounts reported in Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III .............................
8
 
No
9
If "Yes" to line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................
9
 
 
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50053T
Schedule J (Form 990) 2014

Schedule J (Form 990) 2014
Page 2
Part II
Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.
For each individual whose compensation must be reported in Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.
(A) Name and Title (B) Breakdown of W-2 and/or 1099-MISC compensation (C) Retirement and other deferred compensation (D) Nontaxable
benefits		 (E) Total of columns
(B)(i)-(D) 		(F) Compensation in column(B) reported as deferred in prior Form 990
(i) Base compensation (ii) Bonus & incentive compensation (iii) Other reportable compensation
1JANE H GILBERTPRESIDENT & CEO (THRU 07/01/2014) (i)
(ii)		 198,386
...............................
0 		10,000
...............................
0 		0
...............................
0 		5,400
...............................
0 		5,442
...............................
0 		219,228
...............................
0 		0
...............................
0
2BARBARA J NEWHOUSEPRES.& CEO (EFFECTIVE 06/02/2014) (i)
(ii)		 166,002
...............................
0 		0
...............................
0 		0
...............................
0 		4,275
...............................
0 		6,154
...............................
0 		176,431
...............................
0 		0
...............................
0
3STEVE GIBSONCHIEF PUBLIC POLICY OFFICER (i)
(ii)		 189,051
...............................
0 		0
...............................
0 		0
...............................
0 		5,819
...............................
0 		11,016
...............................
0 		205,886
...............................
0 		0
...............................
0
4LANCE SLAUGHTERCHIEF CHAPT. RELATIONS OFFICER (i)
(ii)		 171,938
...............................
0 		0
...............................
0 		0
...............................
0 		5,321
...............................
0 		9,672
...............................
0 		186,931
...............................
0 		0
...............................
0
5KIMBERLY HARDING-MAGINNISCHIEF CARE SERVICES OFFICER (i)
(ii)		 163,930
...............................
0 		0
...............................
0 		0
...............................
0 		4,933
...............................
0 		7,775
...............................
0 		176,638
...............................
0 		0
...............................
0
6CARRIE MUNKCHIEF COMM. & MKTING OFFICER (i)
(ii)		 147,166
...............................
0 		0
...............................
0 		0
...............................
0 		4,422
...............................
0 		836
...............................
0 		152,424
...............................
0 		0
...............................
0
Schedule J (Form 990) 2014

Schedule J (Form 990) 2014
Page 3
Part III
Supplemental Information
Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II.
Also complete this part for any additional information.
Return Reference Explanation
PART I, LINE 3 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO CALCULATE THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA.
Schedule J (Form 990) 2014

Additional Data


Software ID:  
Software Version:  
SCHEDULE M
(Form 990)

Department of the Treasury
Internal Revenue Service
Noncash Contributions
Right pointing arrow large imageComplete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image Attach to Form 990.
Right pointing arrow large imageInformation about Schedule M (Form 990) and its instructions is at www.irs.gov/form990.
OMB No. 1545-0047
2014
Open to Public Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
Types of Property
(a)
Check if applicable 		(b)
Number of contributions or items contributed 		(c)
Noncash contribution amounts reported on
Form 990, Part VIII, line 1g 		(d)
Method of determining
noncash contribution amounts
1 Art—Works of art ....        
2 Art—Historical treasures .        
3 Art—Fractional interests ..        
4 Books and publications ..      
5 Clothing and household
goods ....... 		     
6 Cars and other vehicles .. X 49 34,259 FMV
7 Boats and planes ....        
8 Intellectual property ...        
9 Securities—Publicly traded .        
10 Securities—Closely held stock .        
11 Securities—Partnership, LLC,
or trust interests .... 		       
12 Securities—Miscellaneous ..        
13 Qualified conservation
contribution—Historic
structures ..... 		       
14 Qualified conservation
contribution—Other ... 		       
15 Real estate—Residential .        
16 Real estate—Commercial ..        
17 Real estate—Other ...        
18 Collectibles .....        
19 Food inventory ...        
20 Drugs and medical supplies .        
21 Taxidermy ......        
22 Historical artifacts ....        
23 Scientific specimens ..        
24 Archeological artifacts ...        
25 Other Right pointing arrow large image ( SEAT LIFTS ) X 10 9,999 FMV
26 Other Right pointing arrow large image( )
27 Other Right pointing arrow large image( )
28 Other Right pointing arrow large image ( )
29
Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement ...
29
 
Yes
No
30a
During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that
it must hold for at least three years from the date of the initial contribution, and which is not required to be used
for exempt purposes for the entire holding period? ..................
30a
 
No
b
If "Yes," describe the arrangement in Part II.
31
Does the organization have a gift acceptance policy that requires the review of any non-standard contributions?
31
Yes
 
32a
Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash
contributions? ..........................
32a
Yes
 
b
If "Yes," describe in Part II.
33
If the organization did not report an amount in column (c) for a type of property for which column (a) is checked,
describe in Part II.
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 51227J
Schedule M (Form 990) (2014)
Schedule M (Form 990) (2014)
Page 2
Part II
Supplemental Information. Provide the information required by Part I, lines 30b,
32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.
Return Reference Explanation
PART I, COLUMN (B): THE AMOUNTS IN PART I, COLUMN (B) REPRESENT THE NUMBER OF CONTRIBUTIONS.
PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR DONATION PROGRAM, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES.
Schedule M (Form 990) (2014)
Additional Data


Software ID:  
Software Version:  
SCHEDULE O
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet Attach to Form 990 or 990-EZ.
MediumBullet Information about Schedule O (Form 990 or 990-EZ) and its instructions is at
www.irs.gov/form990.
OMB No. 1545-0047
2014
Open to Public
Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Return Reference Explanation
FORM 990, PART VI, SECTION B, LINE 11 THE CFO OF THE ASSOCIATION WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL MAIL THE FINAL COPY TO THE IRS AND APPROPRIATE STATE AGENCIES.
FORM 990, PART VI, SECTION B, LINE 12C EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED.
FORM 990, PART VI, SECTION B, LINE 15 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO CALCULATE THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA.
FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST.
FORM 990, PART XI, LINE 9: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUST 43,522. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -82,358.
FORM 990, PART VIII, LINE 8C THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION HELD WALKS TO BOTH FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE.
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 51056K
Schedule O (Form 990 or 990-EZ) 2014

Additional Data


Software ID:  
Software Version:  
SCHEDULE R
(Form 990)
Department of the Treasury
Internal Revenue Service
Related Organizations and Unrelated Partnerships
MediumBulletComplete if the organization answered "Yes" on Form 990, Part IV, line 33, 34, 35b, 36, or 37.
MediumBulletAttach to Form 990.
MediumBullet Information about Schedule R (Form 990) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047
2014
Open to Public Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
Identification of Disregarded Entities Complete if the organization answered "Yes" on Form 990, Part IV, line 33.
(a)
Name, address, and EIN (if applicable) of disregarded entity


(b)
Primary activity


 		(c)
Legal domicile (state
or foreign country)

 		(d)
Total income


 		(e)
End-of-year assets


 		(f)
Direct controlling
entity










Part II
Identification of Related Tax-Exempt Organizations Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related tax-exempt organizations during the tax year.
(a)
Name, address, and EIN of related organization


(b)
Primary activity


 		(c)
Legal domicile (state
or foreign country)

 		(d)
Exempt Code section


 		(e)
Public charity status
(if section 501(c)(3))

 		(f)
Direct controlling
entity

 		(g)
Section 512(b)(13) controlled entity?
Yes No












For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50135Y
Schedule R (Form 990) 2014
Schedule R (Form 990) 2014
Page 2
Part III
Identification of Related Organizations Taxable as a Partnership Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related organizations treated as a partnership during the tax year.
(a)
Name, address, and EIN of
related organization



 		(b)
Primary activity




 		(c)
Legal
domicile
(state or foreign
country)


 		(d)
Direct controlling
entity



 		(e)
Predominant income(related, unrelated, excluded from tax under sections 512-514)

(f)
Share of total income




 		(g)
Share of end-of-year
assets



 		(h)
Disproprtionate allocations?




 		(i)
Code V-UBI
amount in box 20 of
Schedule K-1
(Form 1065)
 		(j)
General or
managing
partner?



 		(k)
Percentage
ownership
Yes No Yes No












Part IV
Identification of Related Organizations Taxable as a Corporation or Trust Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related organizations treated as a corporation or trust during the tax year.
(a)
Name, address, and EIN of
related organization
 		(b)
Primary activity
 		(c)
Legal
domicile
(state or foreign
country)
 		(d)
Direct controlling
entity
 		(e)
Type of entity
(C corp, S corp,
or trust) 		(f)
Share of total income
 		(g)
Share of end-of-year
assets
 		(h)
Percentage
ownership
 		(i)
Section 512(b)(13) controlled entity?
Yes No
(1) CHARITABLE REMAINDER TRUST (1)

 
 
  CA  
T         No
(2) LIVING TRUST (1)

 
 
  CA  
T         No










Schedule R (Form 990) 2014
Schedule R (Form 990) 2014
Page 3
Part V
Transactions With Related Organizations Complete if the organization answered "Yes" on Form 990, Part IV, line 34, 35b, or 36.
Note. Complete line 1 if any entity is listed in Parts II, III, or IV of this schedule.
Yes
No
1 During the tax year, did the orgranization engage in any of the following transactions with one or more related organizations listed in Parts II-IV?
a Receipt of (i) interest, (ii) annuities, (iii) royalties, or (iv) rent from a controlled entity . . . . . . . . . . . . . . . . . . . . . . .
1a
 
No
b Gift, grant, or capital contribution to related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1b
 
No
c Gift, grant, or capital contribution from related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1c
 
No
d Loans or loan guarantees to or for related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1d
 
No
e Loans or loan guarantees by related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1e
 
No
f Dividends from related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1f
 
No
g Sale of assets to related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1g
 
No
h Purchase of assets from related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1h
 
No
i Exchange of assets with related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1i
 
No
j Lease of facilities, equipment, or other assets to related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1j
 
No
k Lease of facilities, equipment, or other assets from related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . .
1k
 
No
l Performance of services or membership or fundraising solicitations for related organization(s) . . . . . . . . . . . . . . . . . . . .
1l
 
No
m Performance of services or membership or fundraising solicitations by related organization(s) . . . . . . . . . . . . . . . . . . . .
1m
 
No
n Sharing of facilities, equipment, mailing lists, or other assets with related organization(s) . . . . . . . . . . . . . . . . . . . . .
1n
 
No
o Sharing of paid employees with related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1o
 
No
p Reimbursement paid to related organization(s) for expenses . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1p
 
No
q Reimbursement paid by related organization(s) for expenses . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1q
 
No
r Other transfer of cash or property to related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1r
 
No
s Other transfer of cash or property from related organization(s) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
1s
 
No
2
If the answer to any of the above is "Yes," see the instructions for information on who must complete this line, including covered relationships and transaction thresholds.
(a)
Name of related organization 		(b)
Transaction
type (a-s) 		(c)
Amount involved 		(d)
Method of determining amount involved





Schedule R (Form 990) 2014
Schedule R (Form 990) 2014
Page 4
Part VI
Unrelated Organizations Taxable as a Partnership Complete if the organization answered "Yes" on Form 990, Part IV, line 37.
Provide the following information for each entity taxed as a partnership through which the organization conducted more than five percent of its activities (measured by total assets or gross revenue) that was not a related organization. See instructions regarding exclusion for certain investment partnerships.
(a)
Name, address, and EIN of entity 		(b)
Primary activity 		(c)
Legal domicile
(state or foreign
country) 		(d)
Predominant income (related, unrelated, excluded from tax under sections 512-514)

(e)
Are all partners
section
501(c)(3)
organizations? 		(f)
Share of total income




 		(g)
Share of
end-of-year
assets 		(h)
Disproprtionate allocations? 		(i)
Code V-UBI
amount in box 20
of Schedule K-1
(Form 1065) 		(j)
General or
managing
partner? 		(k)
Percentage
ownership
Yes No Yes No Yes No






























Schedule R (Form 990) 2014
Schedule R (Form 990) 2014
Page 5
Part VII
Supplemental Information
Provide additional information for responses to questions on Schedule R (see instructions).
Return Reference Explanation
Schedule R (Form 990) 2014
Additional Data


Software ID:  
Software Version: