Department of the Treasury Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section
4947(a)(1) nonexempt charitable trust.
Attach to Form 990 or Form 990-EZ. See separate instructions. Information about Schedule A (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.
OMB No. 1545-0047
2013
Open to Public Inspection
Name of the organization
CHILDREN'S RESEARCH INSTITUTE
Employer identification number
52-1654453
Part I
Reason for Public Charity Status
(All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 11, check only one box.)
1
2
3
4
5
section 170(b)(1)(A)(iv). (Complete Part II.)
6
7
8
9
receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of
its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses
acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)
10
11
e
By checking this box, I certify that the organization is not controlled directly or indirectly by one or more disqualified persons other than foundation managers and other than one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2).
f
If the organization received a written determination from the IRS that it is a Type I, Type II, or Type III supporting organization, check this box
..................................................
g
Since August 17, 2006, has the organization accepted any gift or contribution from any of the following persons?
(i) A person who directly or indirectly controls, either alone or together with persons described in (ii)
Yes
No
and (iii) below, the governing body of the supported organization?
................
11g(i)
(ii)
A family member of a person described in (i) above?
......................
11g(ii)
(iii)
A 35% controlled entity of a person described in (i) or (ii) above?
................
11g(iii)
h
Provide the following information about the supported organization(s).
(i) Name of supported organization
(ii) EIN
(iii) Type of organization (described on lines 1- 9 above or IRC section (see instructions))
(iv) Is the organization in col. (i) listed in your governing document?
(v) Did you notify the organization in col. (i) of your support?
(vi) Is the organization in col. (i) organized in the U.S.?
(vii) Amount of monetary support
Yes
No
Yes
No
Yes
No
Total
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990EZ.
Cat. No. 11285F
Schedule A (Form 990 or 990-EZ) 2013
Schedule A (Form 990 or 990-EZ) 2013
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi) (Complete only if you checked the box on line 5, 7, or 8 of Part I or if the
organization failed to qualify under Part III. If the organization fails to
qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") ....
45,771,511
48,636,497
53,310,038
47,998,831
63,622,657
259,339,534
2
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.......
0
3
The value of services or facilities furnished by a governmental unit to the organization without charge..
0
4
Total. Add lines 1 through 3
45,771,511
48,636,497
53,310,038
47,998,831
63,622,657
259,339,534
5
The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included
on line 1 that exceeds 2% of the amount shown on line 11, column (f)..
0
6
Public support. Subtract line 5 from line 4.
259,339,534
Section B. Total Support
Calendar year
(or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
7
Amounts from line 4..
45,771,511
48,636,497
53,310,038
47,998,831
63,622,657
259,339,534
8
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...
0
0
0
9
Net income from unrelated business activities, whether or not the business is regularly carried on..
0
10
Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)..
40,180
0
0
40,180
11
Total support (Add lines 7 through 10).
259,379,714
12
Gross receipts from related activities, etc. (see instructions)
..................
12
0
13
First five years.
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here.................................................
Section C. Computation of Public Support Percentage
14
Public support percentage for 2013 (line 6, column (f) divided by line 11, column (f))
.........
14
99.984 %
15
Public support percentage for 2012 Schedule A, Part II, line 14
...............
15
99.961 %
16a
33 1/3% support test—2013.
If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization
.......................
b
33 1/3% support test—2012.
If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization
.....................
17a
10%-facts-and-circumstances test—2013.
If the organization did not check a box on line 13, 16a, or 16b, and line 14
is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain
in Part IV how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported
organization
.....................................................
b
10%-facts-and-circumstances test—2012.
If the organization did not check a box on line 13, 16a, 16b, or 17a, and line
15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here.
Explain in Part IV how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization
................................................
18
Private foundation.
If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions
.....................................................
Schedule A (Form 990 or 990-EZ) 2013
Schedule A (Form 990 or 990-EZ) 2013
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2) (Complete only if you checked the box on line 9 of Part I or if the organization
failed to qualify under Part II. If the organization fails to qualify under
the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
1
Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2
Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose......
3
Gross receipts from activities that are not an unrelated trade or business under section 513..
4
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5
The value of services or facilities furnished by a governmental unit to the organization without charge..
6
Total. Add lines 1 through 5.
7a
Amounts included on lines 1, 2, and 3 received from disqualified persons...
b
Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c
Add lines 7a and 7b..
8
Public support (Subtract line 7c from line 6.)
Section B. Total Support
Calendar year (or fiscal year beginning in)
(a) 2009
(b) 2010
(c) 2011
(d) 2012
(e) 2013
(f) Total
9
Amounts from line 6...
10a
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b
Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c
Add lines 10a and 10b.
11
Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12
Other income. Do not include gain or loss from the sale of capital assets (Explain in Part IV.)
..
13
Total support. (Add lines 9, 10c, 11, and 12.)..
14
First five years.
If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a 501(c)(3) organization,
check this box and stop here.............................................
Section C. Computation of Public Support Percentage
15
Public support percentage for 2013 (line 8, column (f) divided by line 13, column (f))
.........
15
0 %
16
Public support percentage from 2012 Schedule A, Part III, line 15
...............
16
Section D. Computation of Investment Income Percentage
17
Investment income percentage for 2013 (line 10c, column (f) divided by line 13, column (f))
......
17
18
Investment income percentage from 2012 Schedule A, Part III, line 17
.............
18
19a
33 1/3% support tests—2013.
If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
........
b
33 1/3% support tests—2012.
If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization
.....
20
Private foundation.
If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions
.....
Schedule A (Form 990 or 990-EZ) 2013
Schedule A (Form 990 or 990-EZ) 2013
Page 4
Part IV
Supplemental Information.
Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; and Part III, line 12. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
Explanation
Schedule A (Form 990 or 990-EZ) 2013
Additional Data
Software ID:
Software Version:
-
TIN:
SCHEDULE O (Form 990 or 990-EZ)
Department of the Treasury Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ
Complete to provide information for responses to specific questions on
Form 990 or to provide any additional information.
Attach to Form 990 or 990-EZ.
Information about Schedule O (Form 990 or 990-EZ) and its instructions is at
www.irs.gov/form990.
OMB No. 1545-0047
2013
Open to Public Inspection
Name of the organization
CHILDREN'S RESEARCH INSTITUTE
Employer identification number
52-1654453
Return Reference
Explanation
ORGANIZATION'S MISSION
FORM 990, PART I, LINE 1 CHILDREN'S RESEARCH INSTITUTE CONDUCTS AND PROMOTES TRANSLATIONAL AND CLINICAL MEDICAL RESEARCH AND EDUCATION PROGRAMS THAT LEAD TO IMPROVED UNDERSTANDING, PREVENTION, TREATMENT, AND CARE OF CHILDHOOD DISEASES. PROGRAM SERVICE ACTIVITY #1 Form 990, Part III, Line 4A CENTER FOR TRANSLATIONAL SCIENCE: THE CENTER FOR TRANSLATIONAL SCIENCE SUPPORTS THE FULL SPECTRUM OF INVESTIGATORS (FACULTY, TRAINEES, AND STAFF) AT CHILDRENS NATIONAL WHO ARE PERFORMING PATIENT-CENTERED CLINICAL AND TRANSLATIONAL RESEARCH (CTR), AND HEALTH SERVICES RESEARCH (HSR). THE POOL OF SUCH INVESTIGATORS AT CHILDRENS IS LARGE AND GROWING, AND THESE INDIVIDUALS APPROACH THEIR WORK WITH A WIDE RANGE OF EXPERIENCE, EXPERTISE, AND SUPPORT. IT HOUSES BOTH LARGE PROGRAMS OF EXTRAMURALLY FUNDED RESEARCH (E.G. THE CLINICAL AND TRANSLATIONAL SCIENCE AWARD (CTSA) FUNDED BY NIH, THE HRSA-FUNDED PEDIATRIC EMERGENCY CARE AND APPLIED RESEARCH NETWORK/PECARN) AND FACULTY WITH LIMITED FUNDING WORKING ON SPECIFIC, LIMITED PROJECTS. THIS GROWING CENTER EXPENSED $17,959,087 IN FY 2014. PROGRAM SERVICE ACTIVITY #2 Form 990, Part III, LINE 4B CENTER FOR GENETIC MEDICINE RESEARCH: THE CENTER FOR GENETIC MEDICINE RESEARCH RESEARCHES, DIAGNOSES, AND TREATS GENETIC DISORDERS--DISEASES AND CONDITIONS IN CHILDREN THAT ARE CAUSED BY INHERITED GENES THAT DONT FUNCTION NORMALLY. FOUNDED IN 1999, THE CENTER EMPHASIZES TRANSLATIONAL RESEARCH (BENCH-TO-BEDSIDE) AND HARNESSES EMERGING TECHNOLOGIES FOR GENETIC AND PROTEOMIC ANALYSIS. APPROXIMATELY 80 SCIENTISTS STRESS OPEN, COLLABORATIVE, MULTIDISCIPLINARY RESEARCH. RESEARCHERS AT THE CENTER FOR GENETIC MEDICINE RESEARCH CONDUCT BASIC AND CLINICAL RESEARCH INTO SOME OF CHILDHOODS MOST WELL-KNOWN GENETIC DISORDERS, INCLUDING ASTHMA AND LUNG DISEASE, DIABETES, INBORN ERRORS OF METABOLISM, MACULAR DEGENERATION, MUSCULAR DYSTROPHIES, SICKLE CELL DISEASE, OBESITY & METABOLIC SYNDROME AND WHITE MATTER DISEASE. ALMOST ALL OF THE CENTERS PROGRAMS COMBINE BASIC, CLINICAL, AND/OR COMMUNITY RESEARCH, INCLUDING STUDIES OF: MUSCLE PHYSIOLOGY, GENETICS & METABOLISM AND DUCHENNE MUSCULAR DYSTROPHY. THE CENTER FOR GENETIC MEDICINE RESEARCH HAD $17,919,347 IN EXPENSES FY 2014. PROGRAM SERVICE ACTIVITY #3 Form 990, Part VI, Line 4C CENTER FOR NEUROSCIENCE RESEARCH ("CNR"): THE CNR HAS GROWN RAPIDLY IN THE PAST 8 YEARS WITH SIGNIFICANT INCREASES IN THE PROGRAM AND THE GENERATION OF IMPORTANT SCIENTIFIC DISCOVERIES. THE CNR CURRENTLY COMPRISES 39 FACULTY MEMBERS WITH FULL APPOINTMENTS AT OUR ACADEMIC AFFILIATE, THE GEORGE WASHINGTON UNIVERSITY SCHOOL OF MEDICINE AND HEALTH SCIENCES (GW). IN RECOGNITION OF THESE ACCOMPLISHMENTS, CNMC CONSTRUCTED A NEW FLOOR OF LABORATORY SPACE IN 2008 TO SERVE AS HOME FOR THE CNR AND TO PROVIDE ADDITIONAL SPACE FOR RECRUITMENTS. THE CNR CURRENTLY RESIDES IN OVER 12,000 SQUARE FEET OF OPEN ARCHITECTURE RESEARCH SPACE. WE BELIEVE THAT THE CNR IS NOW UNIQUELY POISED TO ACCOMPLISH ITS MISSION, AS ITS RESEARCH PROGRAM, RESEARCH LABS AND SUPPORTING INFRASTRUCTURES, IS NOW PHYSICALLY LOCATED ON THE 6TH FLOOR OF THE MAIN BUILDING OF CNMC. THIS ALLOWS CLOSE INTERACTIONS BETWEEN BASIC NEUROSCIENTISTS, TRANSLATIONAL NEUROSCIENTISTS AND CLINICIAN NEUROSCIENTISTS, INCLUDING CHILD NEUROLOGISTS, NEONATOLOGISTS, AND CRITICAL CARE PEDIATRICIANS. THIS UNIQUE AND EXCITING SETTING HAS SUPPORTED AND PROMOTED A LARGE NUMBER OF RESEARCH PROJECTS THAT SPAN BASIC, TRANSLATIONAL AND CLINICAL RESEARCH IN NEURODEVELOPMENTAL DISORDERS. THE CNR INCLUDES EIGHT MAJOR AREAS OF RESEARCH, INCLUDING NEURAL STEM CELLS AND DEVELOPMENTAL NEUROBIOLOGY, BRAIN INJURY AND BRAIN PROTECTION, PERINATAL HYPOXIA AND HYPEROXIA, EPILEPSY, NEURO-ONCOLOGY, NEUROFIBROMATOSIS, ATTENTION DEFICIT HYPERACTIVITY DISORDER, AND AUTISM. THE CNR COMPRISES AN EXPANDING GROUP OF HIGHLY PRODUCTIVE LAB-BASED DEVELOPMENTAL NEUROSCIENTISTS, ALL OF WHOM HAVE ESTABLISHED STRONG RESEARCH PROGRAMS AND COLLABORATIONS IN THE AREA OF NEURODEVELOPMENTAL DISORDERS. WHILE THESE INVESTIGATORS HAVE DISTINCT EXPERTISE AND RESEARCH PROGRAMS, THEIR RESEARCH AS A WHOLE IS FOCUSED ON CHILDHOOD NEUROLOGICAL DISORDERS, FROM EARLY STAGES OF WHEN THE NERVOUS SYSTEM IS FIRST ESTABLISHED, TO POSTNATAL STAGES THAT INCLUDE THE FORMATION OF NEURONAL CONNECTIONS AND THE WRAPPING OF NEURONAL PROCESSES BY THE MYELIN INSULATOR. THUS, INVESTIGATORS AT THE CNR HAVE A COMMON GOAL FOR WHICH THEY ARE ALL STRIVING. THE CENTER FOR NEUROSCIENCE RESEARCH HAD $11,530,706 IN EXPENSES FY 2014. OTHER PROGRAM SERVICES Form 990, Part III, LINE 4D CENTRER FOR CANCER AND IMMUNOLOGY RESEARCH: The Center for Cancer & Immunology Research was reorganized to integrate the clinical and research enterprises in oncology, infectious diseases, and hematology, in order to promote and facilitate the conduct of translational research. This reorganization resulted in the establishment of 4 sections: 1. Childhood Cancer 2. Infectious Diseases 3. Cancer Immunology 4. Hematology & Transfusion Medicine In the future sections may be added (Rheumatology, Allergy) or combined (Childhood Cancer and Cancer Immunology), but at this point in time, the creation of these sections provides individual investigators to seek for common research themes as well as better identify their clinical counterparts. Also, the new structure has allowed the CCRI leadership to better develop a strategic goal for the future, including strategic expansion of research programs rather than opportunistic recruitments. While the breadth and depth of the CCRI and Center for Cancer and Blood Disorders allow for the establishment of multiple Institutes (Sickle Cell Disease, Transfusion Medicine, HIV, cancer), the focus for the next 5 years will be the establishment of a comprehensive cancer center that is positioned to apply for NCI designation in 2016-2020, and the establishment of an Institute of Transfusion Medicine (details still being worked on). The Center for Cancer and Immunology Research had $11,116,915 in expenses FY 2014. SHEIKH ZAYED INSTITUTE FOR PEDIATRIC SURGICAL INNOVATION: Launched in September 2009, the Sheikh Zayed Institute for Pediatric Surgical Innovation at Children's National redefines what is possible in surgery for children by combining research and clinical expertise into one collaborative team. The institute develops knowledge, tools, and procedures that benefit children in the Washington DC region, across the country, and around the world. The primary focus is to learn from today's surgeries, and conduct innovative research based on that knowledge to improve pediatric surgery for children. Though the research space officially opened in April 2011, all four initiatives (Pain Medicine; Systems Biology and Personal Medicine; Bioengineering; and Immunology) had significant research projects underway prior to moving into the institute's official home. By the end of FY 11, the Institute had collectively published more than 25 studies in peer reviewed journals across a variety of scientific areas. The Sheikh Zayed Institute for Pediatric Surgical Innovation had $10,026,550 in expenses FY 2014. ORGANIZATION MEMBERS Form 990, Part VI, Line 6, 7A AND 7B CHILDREN'S NATIONAL MEDICAL CENTER IS THE SOLE MEMBER OF CHILDREN'S RESEARCH INSTITUTE AND HAS THE RIGHT TO ELECT DIRECTORS OF CHILDREN'S RESEARCH INSTITUTE. THE ARTICLES AND BY-LAWS OF CHILDREN'S RESEARCH INSTITUTE DESCRIBE CERTAIN RIGHTS RESERVED TO THE SOLE MEMBER. INSTITUTE DESCRIBE CERTAIN RIGHTS RESERVED TO THE SOLE MEMBER.
FORM 990 REVIEW
Form 990, Part VI, Line 11b THE RELEVANT COMMITTEES OF THE ORGANIZATION AND ITS PARENT ORGANIZATION, CHILDREN'S NATIONAL MEDICAL CENTER, REVIEW APPLICABLE PORTIONS OF THE 990. THE LEGAL AFFAIRS AND AUDIT COMMITTEE REVIEW THE FINANCIAL DISCLOSURES, The legal affairs and audit committee reviews the financial disclosures, the CNAPPI board reviews the public benefit sections, and the executive compensation committee reviews the compensation disclosures. The full board reviewed the entire Form 990. The completed Form 990 is made available to the board of Children's National Medical Center before filing.
CONFLICT OF INTEREST POLICY
Form 990, Part VI, Line 12c CHILDREN'S RESEARCH INSTITUTE ("CRI") REQUIRES THAT EACH OFFICER, DIRECTOR, AND KEY EMPLOYEE COMPLETE A CONFLICT OF INTEREST FORM AT LEAST EVERY YEAR. IN ADDITION EACH OFFICER, DIRECTOR, AND KEY EMPLOYEE IS INSTRUCTED AND REQUIRED TO AMEND THE CONFLICT OF INTEREST FORM IMMEDIATELY UPON A CHANGE IN STATUS OF ANY OF THE QUESTIONS ON THE FORM. THESE FORMS ARE REVIEWED ANNUALLY BY THE CHIEF LEGAL OFFICER AND CONFLICTS AND INTERESTS ARE NOTED. THE CHILDREN'S RESEARCH INSTITUTE BOARD MAKES A DETERMINATION, BASED ON THE RECOMMENDATION OF THE CHIEF LEGAL OFFICER AS TO WHICH PERSONS SHOULD BE CONSIDERED "INTERESTED PARTIES" BASED ON THE CRITERIA SET FORTH IN THE BOARD'S GOVERNANCE POLICY. CRI FORMALLY ADOPTED THE CONFLICT OF INTEREST POLICY OF ITS PARENT, CHILDREN'S NATIONAL MEDICAL CENTER, DURING ITS MAY-JUNE 2011 BOARD MEETINGS. GOVERNING POLICIES Form 990, Part VI, Lines 13 AND 14 Children's Research Institute ("CRI") is governed by the policies of its parent, Children's National Medical Center ("CNMC"). These policies include a written whistleblower policy and a written document retention and destruction policy.
PROCESS FOR DETERMINING COMPENSATION
Form 990, Part VI, Line 15a and 15b CHILDREN'S RESEARCH INSTITUTE ("CRI") RELIES ON ITS PARENT, CHILDREN'S NATIONAL MEDICAL CENTER, TO DETERMINE COMPENSATION FOR CRI'S LEADERSHIP. CHILDREN'S NATIONAL MEDICAL CENTER USED A COMPENSATION COMMITTEE, WRITTEN EMPLOYMENT CONTRACT, INDEPENDENT COMPENSATION CONSULTANT, COMPENSATION SURVEY OR STUDY, AND APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE.
DOCUMENTS MADE AVAILABLE TO THE PUBLIC
Form 990, Part VI, Line 19 CHILDREN'S RESEARCH INSTITUTE MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST.
FORM 990 PART IX LINE 11G
DESCRIPTION:PROFESSIONAL FEES CONSULTANTS TOTAL FEES:2006919
FORM 990 PART IX LINE 11G
DESCRIPTION:SUBCONTRACTS TOTAL FEES:6706821
FORM 990 PART IX LINE 11G
DESCRIPTION:PURCHASED MEDICAL SERVICES TOTAL FEES:486586
FORM 990 PART IX LINE 11G
DESCRIPTION:PURCHASED PERSONNEL TOTAL FEES:414014
FORM 990 PART IX LINE 11G
DESCRIPTION:OTHER PURCHASED RESEARCH SERVI TOTAL FEES:737761
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.