TY 2014 Form 990

(A) Name and Title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)	(E) Reportable compensation from related organizations (W- 2/1099-MISC)
(1) Michael L Beatty Esq........................................................................ TRUSTEE	3.0 .......................3.0	X		0	0	0
(2) J Taylor Crandall........................................................................ TRUSTEE	3.0 .......................3.0	X		0	0	0
(3) Richard L Dandurand........................................................................ VICE CHAIRMAN	3.0 .......................5.0	X		0	0	0
(4) Louis DeFalco........................................................................ TRUSTEE	3.0 .......................3.0	X		0	0	0
(5) Richard J Gray Esq........................................................................ VICE CHAIRMAN	5.0 .......................3.0	X		0	0	0
(6) Carole B Griego MD........................................................................ TRUSTEE	3.0 .......................3.0	X		0	0	0
(7) Susan L Hook........................................................................ LEADERSHIP COUNCIL CHAIR	5.0 .......................3.0	X		0	0	0
(8) Catherine C McLoud........................................................................ CHAIR	8.0 .......................6.0	X		0	0	0
(9) Chad T Moore........................................................................ TRUSTEE	3.0 .......................3.0	X		0	0	0
(10) David A Mount........................................................................ TRUSTEE	3.0 .......................3.0	X		0	0	0
(11) Gray B Sabin........................................................................ VICE CHAIRMAN	5.0 .......................3.0	X		0	0	0
(12) Steven Shak MD........................................................................ TRUSTEE	3.0 .......................6.0	X		0	0	0
(13) Charles J Thayer........................................................................ TREASURER	3.0 .......................3.0	X		0	0	0
(14) Amy S Weinberg........................................................................ TRUSTEE	3.0 .......................3.0	X		0	0	0
(15) Paul W Whetsell........................................................................ EXEC VICE CHAIRMAN	5.0 .......................3.0	X		0	0	0
(16) KC Bryan White........................................................................ ADULT ADVISORY COUNCIL CHAIR	5.0 .......................3.0	X		0	0	0
(17) Robert J Beall PhD........................................................................ PRESIDENT / CEO	36.0 .......................24.0	X	X	650,137	323,554	224,033

(A) Name and business address	(B) Description of services	(C) Compensation
SUFIAN PASSAMANO, 712 MAIN STREET STE 2130 HOUSTON,TX77002	HOTLINE/PATIENT ASST	1,098,500
FOOD SERVICES MANAGEMENT BY MGR LL, 41 MARIETTA STREET ATLANTA,GA30303	CONFERENCE CATERING	881,861
ACCU-LABEL INC, 2021 RESEARCH DRIVE FORT WAYNE,IN46808	PRINTING	661,335
SCHANER LUBITZ PLLC, 6391 ARLINGTON ROAD BETHESDA,MD20814	LEGAL COUNSEL	634,894
GRANTMAIL DIRECT LTD, A01-01 15F WORLD TRADE CENTER,NINGBO CH	PRINTING	613,668
2 Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization 50

Do not include amounts reported on lines 6b, 7b, 8b, 9b, and 10b of Part VIII.	(A) Total expenses	(B) Program service expenses	(C) Management and general expenses	(D) Fundraising expenses
1	Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 ....	30,871,659	30,871,659
2	Grants and other assistance to domestic individuals. See Part IV, line 22 ....	1,831,702	1,831,702
3	Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16 ............	199,070	199,070
4	Benefits paid to or for members ....	0
5	Compensation of current officers, directors, trustees, and key employees ....	3,025,537	1,838,876	666,075	520,586
6	Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) ....	0
7	Other salaries and wages ....	18,137,443	11,023,665	3,992,977	3,120,801
8	Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) ....	898,939	546,362	197,902	154,675
9	Other employee benefits .......	2,528,201	1,536,603	556,586	435,012
10	Payroll taxes ...........	1,361,461	813,849	289,253	258,359
11	Fees for services (non-employees):
a	Management ......	0
b	Legal .........	481,774	420,744	61,030	0
c	Accounting ...........	286,629	28,425	258,204	0
d	Lobbying ...........	435,561	435,561	0
e	Professional fundraising services. See Part IV, line 17	192,000			192,000
f	Investment management fees ......	196,167		196,167
g	Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O) ....	0
12	Advertising and promotion ....	3,712,955	2,309,448	931,076	472,431
13	Office expenses .......	10,608	6,153	1,379	3,076
14	Information technology ......	543,025	433,387	31,903	77,735
15	Royalties ..	3,908,327	3,040,725	362,357	505,245
16	Occupancy ...........	1,235,897	736,177	326,076	173,644
17	Travel ............	614,123	514,654	37,822	61,647
18	Payments of travel or entertainment expenses for any federal, state, or local public officials ......	0
19	Conferences, conventions, and meetings ....	2,701,138	2,638,865	20,276	41,997
20	Interest ...........	0
21	Payments to affiliates .......	0
22	Depreciation, depletion, and amortization .....	455,762	300,088	91,501	64,173
23	Insurance ..............	395,424	318,970	15,690	60,764
24	Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a	DIRECT MAIL PRINTING	2,218,536	686,193		1,532,343
b	DIRECT MAIL POSTAGE	2,006,784	620,698		1,386,086
c	QUALITY IMPROVEMENT TRAINING	783,404	783,404		0
d	TRAINING	366,111	232,448	45,905	87,758
e	All other expenses	623,201	269,629	153,344	200,228
25	Total functional expenses. Add lines 1 through 24e	80,021,438	62,437,355	8,235,523	9,348,560
26	Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here if following SOP 98-2 (ASC 958-720).	6,321,435	1,955,220	0	4,366,215

Part X Balance Sheet Check if Schedule O contains a response or note to any line in this Part X ..............
	1	Cash–non-interest-bearing .............	0	1	0
2	Savings and temporary cash investments .........	53,791,914	2	200,542,178
3	Pledges and grants receivable, net ...........	12,026,413	3	10,323,508
4	Accounts receivable, net .............	3,855,668	4	50,121,025
5	Loans and other receivables from current and former officers, directors, trustees, key employees, and highest compensated employees. Complete Part II of Schedule L ..................
		0	5	0
6	Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), persons described in section 4958(c)(3)(B), and contributing employers and sponsoring organizations of section 501(c)(9) voluntary employees' beneficiary organizations (see instructions) Complete Part II of Schedule L
		0	6	0
7	Notes and loans receivable, net .............	0	7	0
8	Inventories for sale or use ..............	229,641	8	265,490
9	Prepaid expenses and deferred charges ..........	1,307,422	9	923,653
10a	Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D	10a	8,353,181
b	Less: accumulated depreciation .....	10b	5,465,660	3,313,390	10c	2,887,521
11	Investments—publicly traded securities ..........	484,322,357	11	2,473,908,461
12	Investments—other securities. See Part IV, line 11 .....	126,808,444	12	1,176,671,743
13	Investments—program-related. See Part IV, line 11 .....	0	13	0
14	Intangible assets ...............	0	14	0
15	Other assets. See Part IV, line 11 ...........	7,043,457	15	7,045,114
16	Total assets. Add lines 1 through 15 (must equal line 34)......	692,698,706	16	3,922,688,693
	17	Accounts payable and accrued expenses .........	16,483,836	17	16,831,621
18	Grants payable .................	23,236,520	18	28,741,961
19	Deferred revenue ................	4,992,667	19	3,325,808
20	Tax-exempt bond liabilities .............	0	20	0
21	Escrow or custodial account liability. Complete Part IV of Schedule D..	0	21	0
22	Loans and other payables to current and former officers, directors, trustees, key employees, highest compensated employees, and disqualified
	persons. Complete Part II of Schedule L..........	0	22	0
23	Secured mortgages and notes payable to unrelated third parties ..	0	23	0
24	Unsecured notes and loans payable to unrelated third parties ....	0	24	0
25	Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17-24). Complete Part X of Schedule D....................	50,219,837	25	59,426,357
26	Total liabilities. Add lines 17 through 25.........	94,932,860	26	108,325,747
		Organizations that follow SFAS 117 (ASC 958), check here and complete lines 27 through 29, and lines 33 and 34.
27	Unrestricted net assets ..............	574,947,148	27	3,796,361,145
28	Temporarily restricted net assets ...........	18,850,884	28	14,083,576
29	Permanently restricted net assets ...........	3,967,814	29	3,918,225
	Organizations that do not follow SFAS 117 (ASC 958), check here and complete lines 30 through 34.
30	Capital stock or trust principal, or current funds ........		30
31	Paid-in or capital surplus, or land, building or equipment fund .....		31
32	Retained earnings, endowment, accumulated income, or other funds		32
33	Total net assets or fund balances ...........	597,765,846	33	3,814,362,946
34	Total liabilities and net assets/fund balances ........	692,698,706	34	3,922,688,693

- TIN:

SCHEDULE A
(Form 990 or 990EZ)

Department of the Treasury
Internal Revenue Service

Public Charity Status and Public Support

Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
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Attach to Form 990 or Form 990-EZ.
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Information about Schedule A (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2014

Open to Public
Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Employer identification number

13-1930701

Part I

Reason for Public Charity Status (All organizations must complete this part.) See instructions.

The organization is not a private foundation because it is: (For lines 1 through 11, check only one box.)

A church, convention of churches, or association of churches described in section 170(b)(1)(A)(i).

A school described in section 170(b)(1)(A)(ii). (Attach Schedule E.)

A hospital or a cooperative hospital service organization described in section 170(b)(1)(A)(iii).

A medical research organization operated in conjunction with a hospital described in section 170(b)(1)(A)(iii). Enter the hospital's name, city, and state:

An organization operated for the benefit of a college or university owned or operated by a governmental unit described in

section 170(b)(1)(A)(iv). (Complete Part II.)

A federal, state, or local government or governmental unit described in section 170(b)(1)(A)(v).

An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi). (Complete Part II.)

A community trust described in section 170(b)(1)(A)(vi). (Complete Part II.)

An organization that normally receives: (1) more than 331/3% of its support from contributions, membership fees, and gross

receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of

its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses

acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)

An organization organized and operated exclusively to test for public safety. See section 509(a)(4).

An organization organized and operated exclusively for the benefit of, to perform the functions of, or to carry out the purposes of one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2). See section 509(a)(3). Check the box in lines 11a through 11d that describes the type of supporting organization and complete lines 11e, 11f, and 11g.

Type I. A supporting organization operated, supervised, or controlled by its supported organization(s), typically by giving the supported organization(s) the power to regularly appoint or elect a majority of the directors or trustees of the supporting organization. You must complete Part IV, Sections A and B.

Type II. A supporting organization supervised or controlled in connection with its supported organization(s), by having control or management of the supporting organization vested in the same persons that control or manage the supported organization(s). You must complete Part IV, Sections A and C.

Type III functionally integrated. A supporting organization operated in connection with, and functionally integrated with, its supported organization(s) (see instructions). You must complete Part IV, Sections A, D, and E.

Type III non-functionally integrated. A supporting organization operated in connection with its supported organization(s) that is not functionally integrated. The organization generally must satisfy a distribution requirement and an attentiveness requirement (see instructions). You must complete Part IV, Sections A and D, and Part V.

Check this box if the organization received a written determination from the IRS that it is a Type I, Type II, Type III functionally integrated, or Type III non-functionally integrated supporting organization.

Enter the number of supported organizations .............................

Provide the following information about the supported organization(s).

(i)Name of supported organization	(ii) EIN	(iv) Is the organization listed in your governing document?		(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)
(i)Name of supported organization	(ii) EIN	Yes	No	(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)


Total

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990EZ.

Cat. No. 11285F

Schedule A (Form 990 or 990-EZ) 2014

Page 2

Part II

Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization fails to qualify under the tests listed below, please complete Part III.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2010	(b) 2011	(c) 2012	(d) 2013	(e) 2014	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") ....	106,799,244	101,016,043	193,893,253	279,115,653	3,285,132,614	3,965,956,807
2	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.......						0
3	The value of services or facilities furnished by a governmental unit to the organization without charge..						0
4	Total. Add lines 1 through 3	106,799,244	101,016,043	193,893,253	279,115,653	3,285,132,614	3,965,956,807
5	The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f)..						0
6	Public support. Subtract line 5 from line 4.						3,965,956,807

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2010	(b) 2011	(c) 2012	(d) 2013	(e) 2014	(f) Total
7	Amounts from line 4..	106,799,244	101,016,043	193,893,253	279,115,653	3,285,132,614	3,965,956,807
8	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...	2,848,122	4,888,930	14,145,772	17,054,431	54,160,127	93,097,382
9	Net income from unrelated business activities, whether or not the business is regularly carried on..	0	0	0	0	0	0
10	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.)..	467,607	576,265	480,632	449,051	341,467	2,315,022
11	Total support Add lines 7 through 10.						4,061,369,211

Gross receipts from related activities, etc. (see instructions) ..................

82,114,382

First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here........................................ right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2014 (line 6, column (f) divided by line 11, column (f)) .........

97.651 %

Public support percentage for 2013 Schedule A, Part II, line 14 ...............

94.573 %

16a

33 1/3% support test—2014. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization ....................... right arrow

33 1/3% support test—2013. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization ..................... right arrow

17a

10%-facts-and-circumstances test—2014. If the organization did not check a box on line 13, 16a, or 16b, and line 14
is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain
in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported
organization ..................................................... right arrow

10%-facts-and-circumstances test—2013. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line
15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here.
Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly
supported organization ................................................ right arrow

Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow

Schedule A (Form 990 or 990-EZ) 2014

Page 3

Part III

Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 9 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2010	(b) 2011	(c) 2012	(d) 2013	(e) 2014	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2	Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose......
3	Gross receipts from activities that are not an unrelated trade or business under section 513..
4	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5	The value of services or facilities furnished by a governmental unit to the organization without charge..
6	Total. Add lines 1 through 5.
7a	Amounts included on lines 1, 2, and 3 received from disqualified persons...
b	Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c	Add lines 7a and 7b..
8	Public support (Subtract line 7c from line 6.)

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2010	(b) 2011	(c) 2012	(d) 2013	(e) 2014	(f) Total
9	Amounts from line 6...
10a	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b	Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c	Add lines 10a and 10b.
11	Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..
13	Total support. (Add lines 9, 10c, 11, and 12.)..

First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization,
check this box and stop here............................................. right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2014 (line 8, column (f) divided by line 13, column (f)) .........

Public support percentage from 2013 Schedule A, Part III, line 15 ...............

Section D. Computation of Investment Income Percentage

Investment income percentage for 2014 (line 10c, column (f) divided by line 13, column (f)) ......

Investment income percentage from 2013 Schedule A, Part III, line 17 .............

19a

33 1/3% support tests—2014. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ....... right arrow

33 1/3% support tests—2013. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization .... right arrow

Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions .... right arrow

Schedule A (Form 990 or 990-EZ) 2014

Page 4

Part IV

Supporting Organizations

(Complete only if you checked a box on line 11 of Part I. If you checked 11a of Part I, complete Sections A and B. If you checked 11b of Part I, complete Sections A and C. If you checked 11c of Part I, complete Sections A, D, and E. If you checked 11d of Part I, complete Sections A and D, and complete Part V.)

Section A. All Supporting Organizations

Yes

Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.

Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).

Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer (b) and (c) below.

Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.

Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.

Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked 11a or 11b in Part I, answer (b) and (c) below.

Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations....

Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.

Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer (b) and (c) below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed, (ii) the reasons for each such action, (iii) the authority under the organization's organizing document authorizing such action, and (iv) how the action was accomplished (such as by amendment to the organizing document).

Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?

Substitutions only. Was the substitution the result of an event beyond the organization's control?

Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (a) its supported organizations; (b) individuals that are part of the charitable class benefited by one or more of its supported organizations; or (c) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.

Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in IRC 4958(c)(3)(C)), a family member of a substantial contributor, or a 35-percent controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990) .

Did the organization make a loan to a disqualified person (as defined in section 4958) not described in line 7? If “Yes,” complete Part II of Schedule L (Form 990).

Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.

Did one or more disqualified persons (as defined in line 9(a)) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.

Did a disqualified person (as defined in line 9(a)) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.

10a

Was the organization subject to the excess business holdings rules of IRC 4943 because of IRC 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer b below.

10a

Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).

10b

Has the organization accepted a gift or contribution from any of the following persons?

A person who directly or indirectly controls, either alone or together with persons described in (b) and (c) below, the governing body of a supported organization?

11a

A family member of a person described in (a) above?

11b

A 35% controlled entity of a person described in (a) or (b) above? If “Yes” to a, b, or c, provide detail in Part VI.

11c

Schedule A (Form 990 or 990-EZ) 2014

Page 5

Part IV

Supporting Organizations (continued)

Section B. Type I Supporting Organizations

Yes

Did the directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.

Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.

Section C. Type II Supporting Organizations

Yes

Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).

Section D. All Type III Supporting Organizations

Yes

Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (1) a written notice describing the type and amount of support provided during the prior tax year, (2) a copy of the Form 990 that was most recently filed as of the date of notification, and (3) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?

Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).

By reason of the relationship described in (2), did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.

Section E. Type III Functionally-Integrated Supporting Organizations

Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):

The organization satisfied the Activities Test. Complete line 2 below.

The organization is the parent of each of its supported organizations. Complete line 3 below.

The organization supported a governmental entity. Describe in Part VI how you supported a government entity (see instructions)

Activities Test. Answer (a) and (b) below.

Yes

Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.

Did the activities described in (a) constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.

Parent of Supported Organizations. Answer (a) and (b) below.

Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations? Provide details in Part VI.

Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI the role played by the organization in this regard.

Schedule A (Form 990 or 990-EZ) 2014

Page 6

Part V – Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations

1. Check here if the organization satisfied the Integral Part Test as a qualifying trust on Nov. 20, 1970. See instructions. All other Type III non-functionally integrated supporting organizations must complete Sections A through E.

	Section A - Adjusted Net Income		(A) Prior Year	(B) Current Year (optional)
1	Net short-term capital gain	1
2	Recoveries of prior-year distributions	2
3	Other gross income (see instructions)	3
4	Add lines 1 through 3	4
5	Depreciation and depletion	5
6	Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions)	6
7	Other expenses (see instructions)	7
8	Adjusted Net Income (subtract lines 5, 6 and 7 from line 4)	8

	Section B - Minimum Asset Amount		(A) Prior Year	(B) Current Year (optional)
1	Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year):	1
a	Average monthly value of securities	1a
b	Average monthly cash balances	1b
c	Fair market value of other non-exempt-use assets	1c
d	Total (add lines 1a, 1b, and 1c)	1d
e	Discount claimed for blockage or other factors (explain in detail in Part VI):
2	Acquisition indebtedness applicable to non-exempt use assets	2
3	Subtract line 2 from line 1d	3
4	Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions).	4
5	Net value of non-exempt-use assets (subtract line 4 from line 3)	5
6	Multiply line 5 by .035	6
7	Recoveries of prior-year distributions	7
8	Minimum Asset Amount (add line 7 to line 6)	8

	Section C - Distributable Amount		Current Year
1	Adjusted net income for prior year (from Section A, line 8, Column A)	1
2	Enter 85% of line 1	2
3	Minimum asset amount for prior year (from Section B, line 8, Column A)	3
4	Enter greater of line 2 or line 3	4
5	Income tax imposed in prior year	5
6	Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions)	6
7	Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (see instructions)

Schedule A (Form 990 or 990-EZ) 2014

Page 7

Section D - Distributions		Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity
3 Administrative expenses paid to accomplish exempt purposes of supported organizations
4 Amounts paid to acquire exempt-use assets
5 Qualified set-aside amounts (prior IRS approval required)
6 Other distributions (describe in Part VI). See instructions
7Total annual distributions. Add lines 1 through 6.
8 Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions
9 Distributable amount for 2014 from Section C, line 6
10 Line 8 amount divided by Line 9 amount

Section E - Distribution Allocations (see instructions)		(i) Excess Distributions	(ii) Underdistributions Pre-2014	(iii) Distributable Amount for 2014
1 Distributable amount for 2014 from Section C, line 6
2 Underdistributions, if any, for years prior to 2014 (reasonable cause required--see instructions)
3 Excess distributions carryover, if any, to 2014:
a From 2009.......X
b From 2010.......X
c From 2011.......X
d From 2012.......X
e From 2013.......
fTotal of lines 3a through e
g Applied to underdistributions of prior years
h Applied to 2014 distributable amount
i Carryover from 2009 not applied (see instructions)
j Remainder. Subtract lines 3g, 3h, and 3i from 3f.
4Distributions for 2014 from Section D, line 7:
$
a Applied to underdistributions of prior years
b Applied to 2014 distributable amount
c Remainder. Subtract lines 4a and 4b from 4.
5 Remaining underdistributions for years prior to 2014, if any. Subtract lines 3g and 4a from line 2 (if amount greater than zero, see instructions)
6 Remaining underdistributions for 2014. Subtract lines 3h and 4b from line 1 (if amount greater than zero, see instructions)
7 Excess distributions carryover to 2015. Add lines 3j and 4c.
8 Breakdown of line 7:
a From 2010.......X
b From 2011.......X
c From 2012.......X
d From 2013.......
e From 2014.......

Schedule A (Form 990 or 990-EZ) (2014)

Schedule A (Form 990 or 990-EZ) 2014

Page 8

Part VI

Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).

Facts And Circumstances Test

Return Reference	Explanation
OTHER INCOME	THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY

Schedule A (Form 990 or 990-EZ) 2014

Additional Data

Software ID:
Software Version:

- TIN:

Schedule B
(Form 990, 990-EZ,
or 990-PF)

Department of the Treasury
Internal Revenue Service

Schedule of Contributors

Attach to Form 990, 990-EZ, or 990-PF.

Information about Schedule B (Form 990, 990-EZ, or 990-PF) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2014

Name of the organization

CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Employer identification number

13-1930701

Organization type (check one):

Filers of:

Section:

Form 990 or 990-EZ

501(c)( ) (enter number) organization

4947(a)(1) nonexempt charitable trust not treated as a private foundation

527 political organization

Form 990-PF

501(c)(3) exempt private foundation

4947(a)(1) nonexempt charitable trust treated as a private foundation

501(c)(3) taxable private foundation

Check if your organization is covered by the General Rule or a Special Rule.
Note. Only a section 501(c)(7), (8), or (10) organization can check boxes for both the General Rule and a Special Rule. See instructions.

General Rule

For an organization filing Form 990, 990-EZ, or 990-PF that received, during the year, contributions totaling $5,000 or more (in money or
property) from any one contributor. Complete Parts I and II. See instructions for determining a contributor's total contributions.

Special Rules

For an organization described in section 501(c)(3) filing Form 990 or 990-EZ that met the 33¹/3% support test of the regulations
under sections 509(a)(1) and 170(b)(1)(A)(vi), that checked Schedule A (Form 990 or 990-EZ), Part II, line 13, 16a, or 16b, and that received from any one contributor, during the year, total contributions of the greater of (1) $5,000 or (2) 2% of the amount on (i) Form 990, Part VIII, line 1h, or (ii) Form 990-EZ, line 1. Complete Parts I and II.

For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, total contributions of more than $1,000 exclusively for religious, charitable, scientific, literary, or educational purposes, or for the prevention of cruelty to children or animals. Complete Parts I, II, and III.

For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, contributions exclusively for religious, charitable, etc., purposes, but no such contributions totaled more than $1,000. If this box is checked, enter here the total contributions that were received during the year for an exclusively religious, charitable, etc., purpose. Do not complete any of the parts unless the General Rule applies to this organization because it received nonexclusively religious, charitable, etc., contributions totaling $5,000 or more during the year ......... Arrow Bullet

Caution. An organization that is not covered by the General Rule and/or the Special Rules does not file Schedule B (Form 990,
990-EZ, or 990-PF), but it must answer “No” on Part IV, line 2, of its Form 990; or check the box on line H of its
Form 990-EZ or on its Form 990PF, Part I, line 2, to certify that it does not meet the filing requirements of Schedule B (Form 990,
990-EZ, or 990-PF).

For Paperwork Reduction Act Notice, see the Instructions
for Form 990, 990-EZ, or 990-PF.

Cat. No. 30613XSchedule B (Form 990, 990-EZ, or 990-PF) (2014)

Schedule B (Form 990, 990-EZ, or 990-PF) (2014)

Page 2

Name of organization CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Part I	Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
RESTRICTED	,	$RESTRICTED	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
Schedule B (Form 990, 990-EZ, or 990-PF) (2014)

Schedule B (Form 990, 990-EZ, or 990-PF) (2014)

Page 3

Name of organization CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Part II	Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (see instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (see instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (see instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (see instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (see instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (see instructions)	(d) Date received
		$
Schedule B (Form 990, 990-EZ, or 990-PF) (2014)

Schedule B (Form 990, 990-EZ, or 990-PF) (2014)

Page 4

Name of organization
CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Employer identification number

13-1930701

Part III

Exclusively religious, charitable, etc., contributions to organizations described in section 501(c)(7), (8), or (10)
that total more than $1,000 for the year from any one contributor. Complete columns (a) through (e) and the following line entry. For organizations completing Part III, enter the total of exclusively religious, charitable, etc., contributions of $1,000 or less for the year. (Enter this information once. See instructions.) Arrow Bullet

$
Use duplicate copies of Part III if additional space is needed.

(a) No.
from
Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a) No.
from
Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a) No.
from
Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a) No.
from
Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

Schedule B (Form 990, 990-EZ, or 990-PF) (2014)

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE C
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527
SchCMd Bullet

Complete if the organization is described below. SchCMd Bullet

Attach to Form 990 or Form 990-EZ.
SchCMd Bullet

Information about Schedule C (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2014

Open to Public
Inspection

If the organization answered "Yes" to Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet

Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet

Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet

Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" to Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet

Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet

Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" to Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet

Section 501(c)(4), (5), or (6) organizations: Complete Part III.

Name of the organization

CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Employer identification number

13-1930701

Part I-A

Complete if the organization is exempt under section 501(c) or is a section 527 organization.

Provide a description of the organization’s direct and indirect political campaign activities in Part IV.

Political expenditures .................................... SchCMd Bullet

Volunteer hours ........................................

Part I-B

Complete if the organization is exempt under section 501(c)(3).

Enter the amount of any excise tax incurred by the organization under section 4955 ......... SchCMd Bullet

Enter the amount of any excise tax incurred by organization managers under section 4955 ...... SchCMd Bullet

If the organization incurred a section 4955 tax, did it file Form 4720 for this year? ..............

Yes No

Was a correction made? .........................................

Yes No

If "Yes," describe in Part IV.

Part I-C

Complete if the organization is exempt under section 501(c), except section 501(c)(3).

Enter the amount directly expended by the filing organization for section 527 exempt function activities SchCMd Bullet

Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ................................... SchCMd Bullet

Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b.. SchCMd Bullet

Did the filing organization file Form 1120-POL for this year? ..........................

Yes No

Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.

(a) Name	(b) Address	(c) EIN	(d) Amount paid from filing organization's funds. If none, enter -0-.	(e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.

For Paperwork Reduction Act Notice, see the instructions for Form 990 or 990-EZ.

Cat. No. 50084S

Schedule C (Form 990 or 990-EZ) 2014

Page 2

Part II-A

Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).

A Check SchCMd Bullet

if the filing organization belongs to an affiliated group (and list in Part IV each affiliated group member's name, address, EIN, expenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet

if the filing organization checked box A and "limited control" provisions apply.

Limits on Lobbying Expenditures (The term "expenditures" means amounts paid or incurred.)		(b) Affiliated group totals
1a	Total lobbying expenditures to influence public opinion (grass roots lobbying) ......
b	Total lobbying expenditures to influence a legislative body (direct lobbying) .......
c	Total lobbying expenditures (add lines 1a and 1b) ...................
d	Other exempt purpose expenditures ........................
e	Total exempt purpose expenditures (add lines 1c and 1d) ...............
f	Lobbying nontaxable amount. Enter the amount from the following table in both columns.
	If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
	Not over $500,00020% of the amount on line 1e.
	Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
	Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
	Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
	Over $17,000,000$1,000,000.

g	Grassroots nontaxable amount (enter 25% of line 1f) .................
h	Subtract line 1g from line 1a. If zero or less, enter -0-. ................
i	Subtract line 1f from line 1c. If zero or less, enter -0-. ................
j	If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting section 4911 tax for this year? ......................................	Yes No

4-Year Averaging Period Under section 501(h) (Some organizations that made a section 501(h) election do not have to complete all of the five columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
	Calendar year (or fiscal year beginning in)	(a) 2011	(b) 2012	(c) 2013	(d) 2014	(e) Total

2a	Lobbying nontaxable amount	1,000,000	1,000,000	1,000,000		3,000,000

b	Lobbying ceiling amount (150% of line 2a, column(e))					4,500,000

c	Total lobbying expenditures	572,513	688,016	561,245		1,821,774

d	Grassroots nontaxable amount	250,000	250,000	250,000		750,000

e	Grassroots ceiling amount (150% of line 2d, column (e))					1,125,000

f	Grassroots lobbying expenditures	91,903	186,450	125,445		403,798

Schedule C (Form 990 or 990-EZ) 2014

Page 3

Part II-B

Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).

For each "Yes" response to lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.

(a)

Yes

(b)

Amount

During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:

Volunteers? .........................................

Yes

Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ....

Yes

Media advertisements? ....................................

Mailings to members, legislators, or the public? .........................

Yes

3,271

Publications, or published or broadcast statements? .......................

Yes

1,142

Grants to other organizations for lobbying purposes? .......................

Direct contact with legislators, their staffs, government officials, or a legislative body? ........

Yes

621,824

Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ......

Yes

6,096

Other activities? ..........................

Yes

5,000

Total. Add lines 1c through 1i ...............................

637,333

Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....

If "Yes," enter the amount of any tax incurred under section 4912 .................

If "Yes," enter the amount of any tax incurred by organization managers under section 4912 .....

If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? .......

Part III-A

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).

Yes

Were substantially all (90% or more) dues received nondeductible by members? ................

Did the organization make only in-house lobbying expenditures of $2,000 or less? ................

Did the organization agree to carry over lobbying and political expenditures from the prior year? ..........

Part III-B

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."

Dues, assessments and similar amounts from members .....................

Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political
expenses for which the section 527(f) tax was paid).

Current year .........................................

Carryover from last year ....................................

Total ............................................

Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .

If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ................................

Taxable amount of lobbying and political expenditures (see instructions) ..............

Part IV

Supplemental Information

Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.

Return Reference	Explanation
LOBBYING ACTIVITY	THE CYSTIC FIBROSIS FOUNDATION IS A NON-PROFIT FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH DIRECTLY, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL "FLY-IN" EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY AS WELL AS COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.

Return Reference

Explanation

LOBBYING ACTIVITY

THE CYSTIC FIBROSIS FOUNDATION IS A NON-PROFIT FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH DIRECTLY, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL "FLY-IN" EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY AS WELL AS COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.

Schedule C (Form 990 or 990EZ) 2014

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE D
(Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Financial Statements

Complete if the organization answered "Yes," to Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
SchDMd Bullet

Attach to Form 990.
Information about Schedule D (Form 990) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2014

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Employer identification number

13-1930701

Part I

Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" to Form 990, Part IV, line 6.

		(a) Donor advised funds	(b) Funds and other accounts
1	Total number at end of year .........
2	Aggregate value of contributions to (during year)
3	Aggregate value of grants from (during year)
4	Aggregate value at end of year ........

Did the organization inform all donors and donor advisors in writing that the assets held in donor advised
funds are the organization's property, subject to the organization's exclusive legal control? ............

Yes No

Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be
used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................

Yes No

Part II

Conservation Easements. Complete if the organization answered "Yes" to Form 990, Part IV, line 7.

Purpose(s) of conservation easements held by the organization (check all that apply).

Preservation of land for public use (e.g., recreation or education) Preservation of an historically important land area

Protection of natural habitat Preservation of a certified historic structure

Preservation of open space

Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.


a	Total number of conservation easements .......................	2a
b	Total acreage restricted by conservation easements ..................	2b
c	Number of conservation easements on a certified historic structure included in (a) .....	2c
d	Number of conservation easements included in (c) acquired after 8/17/06, and not on a historic structure listed in the National Register ....................	2d

Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during
the tax year SchDMd Bullet

Number of states where property subject to conservation easement is located SchDMd Bullet

Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and
enforcement of the conservation easements it holds? .............................

Yes No

Staff and volunteer hours devoted to monitoring, inspecting, and enforcing conservation easements during the year
SchDMd Bullet

Amount of expenses incurred in monitoring, inspecting, and enforcing conservation easements during the year
SchDMd Bullet

Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .......................................

Yes No

In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" to Form 990, Part IV, line 8.

If the organization elected, as permitted under SFAS 116 (ASC 958), not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.

If the organization elected, as permitted under SFAS 116 (ASC 958), to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:

(i)

Revenue included in Form 990, Part VIII, line 1 ........................ SchDMd Bullet

(ii)

Assets included in Form 990, Part X .............................. SchDMd Bullet

If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under SFAS 116 (ASC 958) relating to these items:

Revenue included in Form 990, Part VIII, line 1 .......................... SchDMd Bullet

Assets included in Form 990, Part X ............................... SchDMd Bullet

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 52283D

Schedule D (Form 990) 2014

Page 2

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)

Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):

Public exhibition

Loan or exchange programs

Scholarly research

Other

Preservation for future generations

Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.

During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?........

Yes No

Part IV

Escrow and Custodial Arrangements. Complete if the organization answered "Yes" to Form 990,
Part IV, line 9, or reported an amount on Form 990, Part X, line 21.

Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................

Yes No

If "Yes," explain the arrangement in Part XIII and complete the following table:


c	Beginning balance .................................	1c
d	Additions during the year ..............................	1d
e	Distributions during the year .............................	1e
f	Ending balance ...................................	1f

Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability?

Yes No

If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII .......

Part V

Endowment Funds. Complete if the organization answered "Yes" to Form 990, Part IV, line 10.

		(a)Current year	(b)Prior year	b (c)Two years back	(d)Three years back	(e)Four years back
1a	Beginning of year balance ....
b	Contributions ........
c	Net investment earnings, gains, and losses
d	Grants or scholarships .....
e	Other expenditures for facilities and programs ........
f	Administrative expenses ....
g	End of year balance ......

Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:

Board designated or quasi-endowment SchDMd Bullet

Permanent endowment SchDMd Bullet

Temporarily restricted endowment SchDMd Bullet

The percentages in lines 2a, 2b, and 2c should equal 100%.

Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes

(i) unrelated organizations ........................

3a(i)

(ii) related organizations ........................

3a(ii)

If "Yes" to 3a(ii), are the related organizations listed as required on Schedule R? .........

Describe in Part XIII the intended uses of the organization's endowment funds.

Part VI

Land, Buildings, and Equipment. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11a. See Form 990, Part X, line 10.

Description of property		(b)Cost or other basis (other)	(c) Accumulated depreciation	(d) Book value
1a	Land .................
b	Buildings ................
c	Leasehold improvements ............	1,574,544	583,727	990,817
d	Equipment ................	6,778,637	4,881,933	1,896,704
e	Other .................
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).).......				2,887,521

Schedule D (Form 990) 2014

Page 3

Part VII

InvestmentsOther Securities. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11b. See Form 990, Part X, line 12.

(a) Description of security or category (including name of security)	(b)Book value	(c) Method of valuation: Cost or end-of-year market value
(1)Financial derivatives
(2)Closely-held equity interests
(3)Other (A) INFLATION HEDGE COMMINGLED FUN	63,273,961	F
(B) ABSOLUTE VALUE FUND	132,668,791	F
(C) US GOVERMENT TREASURY SEC	521,289,634	F
(D) CORPORATE DEBT SECURITIES	201,668,572	F
(E) US GOVERNMENT AGENCY ASSET	123,860,400	F
(F) COMMERICAL AND OTHER ASSET	129,992,161	F
(G) PERPETUAL TRUSTS	3,918,224	F


Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)	1,176,671,743

Part VIII

InvestmentsProgram Related. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11c. See Form 990, Part X, line 13.

(a) Description of investment		(b) Book value	(c) Method of valuation: Cost or end-of-year market value









Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)

Part IX

Other Assets. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11d. See Form 990, Part X, line 15.

(a) Description				(b) Book value









Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........

Part X

Other Liabilities. Complete if the organization answered 'Yes' to Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.

1.(a) Description of liability		(b) Book value
Federal income taxes		0
INTERCOMPANY PAYABLE		59,426,357








Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)		59,426,357
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII

Schedule D (Form 990) 2014

Page 4

Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return Complete if the organization answered 'Yes' to Form 990, Part IV, line 12a.
1	Total revenue, gains, and other support per audited financial statements .......		1
2	Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a	Net unrealized gains (losses) on investments ....	2a
b	Donated services and use of facilities .........	2b
c	Recoveries of prior year grants ...........	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d .....................		2e
3	Subtract line 2e from line 1.....................		3
4	Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b .	4a
b	Other (Describe in Part XIII.) ...........	4b
c	Add lines 4a and 4b.......................		4c
5	Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ......		5

Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' to Form 990, Part IV, line 12a.
1	Total expenses and losses per audited financial statements ...........		1
2	Amounts included on line 1 but not on Form 990, Part IX, line 25:
a	Donated services and use of facilities ..........	2a
b	Prior year adjustments ..............	2b
c	Other losses ................	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d......................		2e
3	Subtract line 2e from line 1.....................		3
4	Amounts included on Form 990, Part IX, line 25, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b ..	4a
b	Other (Describe in Part XIII.) ............	4b
c	Add lines 4a and 4b.......................		4c
5	Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ......		5

Part XIII

Supplemental Information

Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b;
Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.

Return Reference	Explanation

Schedule D (Form 990) 2014

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE F(Form 990)

Department of the Treasury
Internal Revenue Service

Statement of Activities Outside the United States

Complete if the organization answered "Yes" to Form 990,Part IV, line 14b, 15, or 16. Right pointing arrow large image

Attach to Form 990. Right pointing arrow large image

Information about Schedule F (Form 990) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2014

Open to Public Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Employer identification number

13-1930701

Part I

General Information on Activities Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 14b.

For grantmakers. Does the organization maintain records to substantiate the amount of its grants

and other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria

used to award the grants or assistance? ...........................

Yes

For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.

Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)

(a) Region		(d) Activities conducted in region (by type) (e.g., fundraising, program services, investments, grants to recipients located in the region)	(e) If activity listed in (d) is a program service, describe specific type of service(s) in region	(f) Total expenditures for and investments in region
	North America	Grantmaking	NONE	127,570
	Europe (Including Iceland and Greenland)	Grantmaking	NONE	71,500















3a	Sub-total .....			199,070
b	Total from continuation sheets to Part I ...
c	Totals (add lines 3a and 3b)			199,070

For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) 2014

Schedule F (Form 990) 2014

Page 2

Part II

Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.

(a)(c) Region	(b)(d) Purpose of grant	(e) Amount of cash grant	(f) Manner of cash disbursement
North America	PILOT STUDY	84,370	CHECK
North America	PILOT STUDY	43,200	CHECK
Europe (Including Iceland and Greenland)	PILOT STUDY	21,500	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	50,000	WIRE

Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter .... MediumBullet

Enter total number of other organizations or entities ....................... MediumBullet

Schedule F (Form 990) 2014

Schedule F (Form 990) 2014Page 3

Part III

Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 16.

Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance		(b) Region	(c) Number of recipients	(d) Amount of cash grant	(e) Manner of cash disbursement	(f) Amount of non-cash assistance	(g) Description of non-cash assistance	(h) Method of valuation (book, FMV, appraisal, other)

Schedule F (Form 990) 2014

Page 4

Part IV

Foreign Forms

Schedule F (Form 990) 2014

Page 5

Part V

Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information (see instructions).

ReturnReference	Explanation
Procedures for monitoring grant funds outside of the U.S.	THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS.
FOREIGN FORMS	THE ACTIVITIES REFERENCED IN SCHEDULE F PART IV ARE LIMITED TO THE FOUNDATION'S INVESTMENT IN A FUND OF FUNDS AND A GLOBAL EQUITY FUND.

Schedule F (Form 990) 2014

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE G (Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Supplemental Information Regarding
Fundraising or Gaming Activities

Complete if the organization answered "Yes" to Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrow

Attach to Form 990 or Form 990-EZ.
right arrow

Information about Schedule G (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2014

Open to Public Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Employer identification number

13-1930701

Part I

Fundraising Activities. Complete if the organization answered "Yes" to Form 990, Part IV, line 17. Form 990-EZ

filers are not required to complete this part.

Indicate whether the organization raised funds through any of the following activities. Check all that apply.

a	Mail solicitations	e	Solicitation of non-government grants
b	Internet and email solicitations	f	Solicitation of government grants
c	Phone solicitations	g	Special fundraising events
d	In-person solicitations

Did the organization have a written or oral agreement with any individual (including officers, directors, trustees

or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?

Yes

If "Yes," list the ten highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.

(i) Name and address of individual or entity (fundraiser)		(ii) Activity	(iii) Did fundraiser have custody or control of contributions?		(iv) Gross receipts from activity	(v) Amount paid to (or retained by) fundraiser listed in col. (i)	(vi) Amount paid to (or retained by) organization
			Yes	No
	NNE MARKETING 105 PAUL REVERE ROAD CONCORD, MA01742	strategy on mail		No	9,952,379	281,210	9,671,169









Total .................					9,952,379	281,210	9,671,169

List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.

AL, AK, AZ, AR, CA, CO, CT, DE, FL, GA, HI, ID, IL, IN, IA, KS, KY, LA, ME, MD, MA, MI, MN, MS, MO, MT, NE, NV, NH, NJ, NM, NY, NC, ND, OH, OK, OR, PA, RI, SC, SD, TN, TX, UT, VT, VA, WA, WV, WI, WY

For Paperwork Reduction Act Notice, see the Instructions for Form 990or 990-EZ.

Cat. No. 50083H

Schedule G (Form 990 or 990-EZ) 2014

Page 2

Part II

Fundraising Events. Complete if the organization answered "Yes" to Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.

			(a) Event #1 (event type)	(b) Event #2 (event type)	(c) Other events (total number)	(d) Total events (add col. (a) through col. (c))
	1	Gross receipts . . .
	2	Less: Contributions . .
	3	Gross income (line 1 minus line 2) . . .
	4	Cash prizes . . .
	5	Noncash prizes . .
	6	Rent/facility costs . .
	7	Food and beverages .
	8	Entertainment . . .
	9	Other direct expenses .
	10	Direct expense summary. Add lines 4 through 9 in column (d) ...........
	11	Net income summary. Subtract line 10 from line 3, column (d)...........

Part III

Gaming. Complete if the organization answered "Yes" to Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.

(a) Bingo

(b) Pull tabs/Instant
bingo/progressive bingo

(c) Other gaming

(d) Total gaming (add col.(a) through col.(c))

Gross revenue . . . .

Cash prizes . . . .

Non-cash prizes . . .

Rent/facility costs . . .

Other direct expenses . .

Volunteer labor . . .

	Yes %
	No

	Yes %
	No

	Yes %
	No

Direct expense summary. Add lines 2 through 5 in column (d) ........... right arrow

Net gaming income summary. Subtract line 7 from line 1, column (d) ......... right arrow

Enter the state(s) in which the organization conducts gaming activities:

Is the organization licensed to conduct gaming activities in each of these states? ............

YesNo

If "No," explain:

10a

Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? .....

YesNo

If "Yes," explain:

Schedule G (Form 990 or 990-EZ) 2014

Page 3

Does the organization conduct gaming activities with nonmembers? .................

YesNo

Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity

formed to administer charitable gaming? ..........................

YesNo

Indicate the percentage of gaming activities conducted in:

The organization's facility ......................

13a

An outside facility ........................

13b

Enter the name and address of the person who prepares the organization's gaming/special events books and records:

Name

Address

15a

Does the organization have a contract with a third party from whom the organization receives gaming

revenue? ......................................

YesNo

If "Yes," enter the amount of gaming revenue received by the organization right arrow

$ and the

amount of gaming revenue retained by the third party right arrow

If "Yes," enter name and address of the third party:

Name

Address

Gaming manager information:

Name

Gaming manager compensation right arrow

Description of services provided right arrow

Director/officer Employee Independent contractor

Mandatory distributions:

Is the organization required under state law to make charitable distributions from the gaming proceeds to

retain the state gaming license? ............................

YesNo

Enter the amount of distributions required under state law distributed to other exempt organizations or spent

in the organization's own exempt activities during the tax year right arrow

Part IV

Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v), and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information (see instructions).

Return Reference

Explanation

PROFESSIONAL FUNDRAISING SERVICES

SCHEDULE G, PART I, LINE 2B CFF HAS A WRITTEN CONTRACT WITH NNE MARKETING TO CONSULT ON ITS DIRECT MARKETING FUNDRAISING EFFORTS. THE EXPENSE FOR THE PROJECT IS $16,000 PER MONTH OR $192,000 PER YEAR, PLUS CREATIVE DEVELOPMENT, WHICH IS BILLED SEPARATELY AND ACCOUNTS FOR THE DIFFERENCE IN THE TOTAL AMOUNT PAID AND THOSE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES. ALL DONATIONS THAT RESULT FROM MARKETING CAMPAIGNS, WHICH NNE ASSISTS WITH, ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION.

Schedule G (Form 990 or 990-EZ) 2014

Additional Data

Software ID:
Software Version:

- TIN:

Schedule I
(Form 990)

Department of the Treasury
Internal Revenue Service

Grants and Other Assistance to Organizations,
Governments and Individuals in the United States

Complete if the organization answered "Yes," to Form 990, Part IV, line 21 or 22.
lBullet

Attach to Form 990.
lBullet

Information about Schedule I (Form 990) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2014

Open to Public
Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Employer identification number
13-1930701

Part I

General Information on Grants and Assistance

Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ....................................

Yes No

Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.

Part II

Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" to
Form 990, Part IV, line 21, for any recipient that received more than $5,000. Part II can be duplicated if additional space is needed.

(a) Name and address of organization or government	(b) EIN	(c) IRC section if applicable	(d) Amount of cash grant	(h) Purpose of grant or assistance
(1) Advocate Medical Group 701 Lee St Des Plaines,IL60016	36-2169147	501c(3)	59,570	CF CARE CENTER
(2) Albany Medical College Elsmere A-107 Albany,NY12208	14-1338310	501c(3)	99,590	CF CARE CENTER
(3) Alfred I Dupont Institute of the Nemours Foundati 1600 Rockland Road Wilmington,DE19899	59-0634433	501c(3)	214,435	CF CARE CENTER
(4) All Children's Hospital Dept 9010 PO Box 269 St Petersburg,FL33731	59-0683252	501c(3)	95,090	CF CARE CENTER
(5) Ann and Robert H Lurie Children's Hospital of Chi 2300 Childrens Plaza - Box 205 PO Box 31020 Chicago,IL60614	36-2170833	501c(3)	152,100	CF CARE CENTER
(6) Ann and Robert H Lurie Children's Hospital of Chi 2300 Childrens Plaza - Box 205 Chicago,IL60614	36-2170833	501c(3)	120,615	RESEARCH
(7) Ann and Robert H Lurie Children's Hospital of Chi 2300 Childrens Plaza - Box 205 Chicago,IL60614	36-2170833	501c(3)	43,200	PILOT STUDY
(8) Ann and Robert H Lurie Children's Hospital of Chi 2300 Childrens Plaza - Box 205 Chicago,IL60614	36-2170833	501c(3)	102,600	QUALITY IMPROVEMENT
(9) Arizona Board of Regents University of Arizona Sponsored Projects Services Tucson,AZ857223308	74-2652689	IRC 115	27,000	ADULT CARE
(10) Arizona Board of Regents University of Arizona Sponsored Projects Services 888 N Euclid Room 510 Tucson,AZ857223308	74-2652689	IRC 115	56,825	CF CARE CENTER
(11) Arkansas Children's Hospital Research Institute I 800 Marshall Street 888 N Euclid Room 510 Little Rock,AR72202	71-0694931	501c(3)	85,225	CF CARE CENTER
(12) Asthma and Allergy Specialists PA 411 Billings Road Slot 512-17 Charlotte,NC28211	56-1913043	C CORP	49,370	CF CARE CENTER
(13) Atlantic Health System 100 Madison Avenue Suite 104 Morristown,NJ07962	52-1958352	501c(3)	77,710	CF CARE CENTER
(14) Baylor College of Medicine PO Box 1 Houston,TX77212	74-1613878	501c(3)	59,393	ADULT CARE
(15) Baylor College of Medicine PO Box 1 Houston,TX77212	74-1613878	501c(3)	281,525	CF CARE CENTER
(16) Baystate Medical Center (95-196) 759 Chestnut Street Springfield,MA01199	04-2790311	501c(3)	33,615	CF CARE CENTER
(17) Beth Israel Medical Center Office of Grants Contracts New York,NY10038	13-5564934	501c(3)	52,050	CF CARE CENTER
(18) Billings Clinic 2800 10th Avenue North 160 Water Street 24th Floor Billings,MT59107	81-0231784	501c(3)	62,365	CF CARE CENTER
(19) Board of Regents of the University of Wisconsin Sy 750 University Avenue Madison,WI53706	39-6006492	501c(3)	163,545	CF CARE CENTER
(20) Board of Trustees of Southern Illinois University Division of Pulmonary Medicine Springfield,IL62794	37-6005961	501c(3)	17,710	CF CARE CENTER
(21) Board of Trustees of the Leland Stanford Junior Un Stanford University PO Box 19636 Stanford,CA943056215	94-1156365	501c(3)	168,303	CF CARE CENTER
(22) Board of Trustees of the Leland Stanford Junior Un Stanford University 651 Serra Street Suite 220 Stanford,CA943056215	94-1156365	501c(3)	97,200	RESEARCH
(23) Board of Trustees of the Leland Stanford Junior Un Stanford University 651 Serra Street Suite 220 Stanford,CA943056215	94-1156365	501c(3)	48,000	TRAINING
(24) Brigham and Women's Hospital Boston 10 Vining Street 651 Serra Street Suite 220 Boston,MA02115	04-2312909	501c(3)	97,200	RESEARCH
(25) Brigham and Women's Hospital Boston 10 Vining Street Boston,MA02115	04-2312909	501c(3)	43,200	PILOT STUDY
(26) California Pacific Medical Center Research Institu 2200 Webster Street Room 405 San Francisco,CA94115	94-0562680	501c(3)	15,950	CF CARE CENTER
(27) CAMC Health Education and Research Institute PO Box 765 Charleston,WV25323	55-0753754	501c(3)	38,815	CF CARE CENTER
(28) Carle Foundation Hospital 611 W Park Street Urbana,IL61801	37-1119538	501c(3)	29,570	CF CARE CENTER
(29) Case Western Reserve University 10900 Euclid Avenue Cleveland,OH441067037	34-1018992	501c(3)	269,400	RESEARCH
(30) Case Western Reserve University 10900 Euclid Avenue Attn Deborah Elam Cleveland,OH441067037	34-1018992	501c(3)	43,200	PILOT STUDY
(31) Case Western Reserve University 10900 Euclid Avenue Attn Deborah Elam Cleveland,OH441067037	34-1018992	501c(3)	349,281	RESEARCH CENTER
(32) Case Western Reserve University 10900 Euclid Avenue Attn Deborah Elam Cleveland,OH441067037	34-1018992	501c(3)	11,880	QUALITY IMPROVEMENT
(33) Center for Medical Technology Policy World Trade Center Baltimore Attn Deborah Elam Baltimore,MD21202	27-1203017	501c(3)	149,712	QUALITY IMPROVEMENT
(34) Central Florida Pulmonary Group 326 North Mills Avenue 401 East Pratt Street Suite 631 Orlando,FL32803	59-1760017	C CORP	51,325	CF CARE CENTER
(35) Chest Medicine Associates 100 Foden Road South Portland,ME04103	01-0461391	C CORP	27,000	ADULT CARE
(36) Children's & Women's Physicians of Westchester Pediatric Pulmonology Valhalla,NY10595	13-3956599	LLP	75,855	CF CARE CENTER
(37) Children's Health Care 2525 Chicago Avenue SO Munger Pavilion Room 106 Minneapolis,MN55404	41-1754276	501c(3)	57,415	CF CARE CENTER
(38) Children's Healthcare of Atlanta 1001 Johnson Ferry Road North 32-2210 Atlanta,GA30342	58-2367819	501c(3)	86,600	CF CARE CENTER
(39) Children's Healthcare of Atlanta 1001 Johnson Ferry Road North Atlanta,GA30342	58-2367819	501c(3)	11,880	QUALITY IMPROVEMENT
(40) Children's Hospital & Research Center at Oakland 747 52nd Street Oakland,CA94609	94-0382330	501c(3)	35,005	CF CARE CENTER
(41) Children's Hospital Central California 9300 Valley Childrens Place Madera,CA93638	94-1294954	501c(3)	72,805	CF CARE CENTER
(42) Children's Hospital Corporation 300 Longwood Ave Boston,MA021155737	04-2774441	501c(3)	32,200	ADULT CARE
(43) Children's Hospital Corporation 300 Longwood Ave Boston,MA021155737	04-2774441	501c(3)	288,370	CF CARE CENTER
(44) Children's Hospital Corporation 300 Longwood Ave Boston,MA021155737	04-2774441	501c(3)	103,000	TRAINING
(45) Children's Hospital Medical Center Cincinnati Childrens Hospital Medi Cincinnati,OH45229	31-0833936	501c(3)	117,110	CF CARE CENTER
(46) Children's Hospital Medical Center Cincinnati Childrens Hospital Medi Research Accounting Cincinnati,OH45229	31-0833936	501c(3)	97,750	TRAINING
(47) Children's Hospital Medical Center Cincinnati Childrens Hospital Medi Research Accounting Cincinnati,OH45229	31-0833936	501c(3)	384,368	RESEARCH CENTER
(48) Children's Hospital Medical Center Akron One Perkins Square Research Accounting Akron,OH443081062	34-0714357	501c(3)	129,235	CF CARE CENTER
(49) Children's Hospital Medical Center Akron One Perkins Square Akron,OH443081062	34-0714357	501c(3)	9,903	QUALITY IMPROVEMENT
(50) Children's Hospital of Michigan 3663 Woodward Ave S Ste 200 Detroit,MI48201	38-1357994	501c(3)	70,960	CF CARE CENTER
(51) Children's Hospital of Orange County PO Box 5700 Orange,CA926135700	95-2321786	501c(3)	40,155	CF CARE CENTER
(52) Children's Hospital of Pittsburgh 3705 Fifth Avenue Pittsburgh,PA15213	25-0402510	501c(3)	249,635	CF CARE CENTER
(53) Children's Hospital Los Angeles Research Institute Los Angeles,CA90027	95-1690977	501c(3)	82,820	CF CARE CENTER
(54) Children's Lung Specialists 3838 Meadows Lane 4650 Sunset Blvd Las Vegas,NV89107	88-0271963	501c(3)	82,765	CF CARE CENTER
(55) Children's Medical Center One Childrens Plaza Dayton,OH454041815	31-0672132	501c(3)	86,180	CF CARE CENTER
(56) Children's Mercy Hospital 2401 Gillham Road Kansas City,MO64108	44-0605373	501c(3)	120,795	CF CARE CENTER
(57) Children's National Medical Center 111 Michigan Avenue NW Washington,DC20010	52-1654453	501c(3)	100,430	CF CARE CENTER
(58) Children's Specialty Group PLLC 811 Redgate Ave Norfolk,VA23507	54-1871633	501c(3)	72,495	CF CARE CENTER
(59) Christus Santa Rosa Healthcare 333 North Santa Rosa San Antonio,TX78207	74-1109665	501c(3)	23,500	CF CARE CENTER
(60) Connecticut Children's Medical Center 282 Washington Street Hartford,CT06106	06-0646755	501c(3)	47,035	CF CARE CENTER
(61) Cook Children's Medical Center CF Center 801 Seventh Avenue Ft Worth,TX76104	75-2051646	501c(3)	152,045	CF CARE CENTER
(62) Daughters of Charity Health Services of Austin PO Box 1 Houston,TX77212	74-1109643	501c(3)	98,435	CF CARE CENTER
(63) Daughters of Charity Health Services of Austin PO Box 1 Houston,TX77212	74-1109643	501c(3)	23,760	QUALITY IMPROVEMENT
(64) Duke University Office of Sponsored Programs Durham,NC27710	56-0532129	501c(3)	63,815	CF CARE CENTER
(65) East Tennessee Children's Hospital Association I 2100 Clinch Avenue 310 Box 104025 Knoxville,TN37916	62-6002604	501c(3)	75,610	CF CARE CENTER
(66) East Tennessee Children's Hospital Association I 2100 Clinch Avenue 310 Knoxville,TN37916	62-6002604	501c(3)	23,760	QUALITY IMPROVEMENT
(67) Eastern Maine Medical Center 417 State Street Bangor,ME04401	01-0211501	501c(3)	29,635	CF CARE CENTER
(68) Emory University 1380 South Oxford Road Suite 305 Atlanta,GA30322	58-0566256	501c(3)	59,149	ADULT CARE
(69) Emory University 1380 South Oxford Road Atlanta,GA30322	58-0566256	501c(3)	212,880	CF CARE CENTER
(70) Emory University 1380 South Oxford Road Atlanta,GA30322	58-0566256	501c(3)	246,860	RESEARCH
(71) Emory University 1380 South Oxford Road Atlanta,GA30322	58-0566256	501c(3)	43,200	PILOT STUDY
(72) Emory University 1380 South Oxford Road Atlanta,GA30322	58-0566256	501c(3)	100,000	RESEARCH CENTER
(73) Emory University 1380 South Oxford Road Atlanta,GA30322	58-0566256	501c(3)	9,210	QUALITY IMPROVEMENT
(74) Erlanger Health System 975 East Third Street Chattanooga,TN37403	62-6000101	501c(3)	40,355	CF CARE CENTER
(75) Faculty Physicians & Surgeons of LLUSM Coleman Pavilion Loma Linda,CA92350	33-0672915	501c(3)	51,495	CF CARE CENTER
(76) Fairfax Neonatal Associates PC dbaPediatric Lung 2730-B Prosperity Avenue PO Box 2000 Fairfax,VA22031	54-1110106	C CORP	20,790	CF CARE CENTER
(77) Fletcher Allen Health Care 111 Colchester Ave Burlington,VT05401	03-0219309	501c(3)	32,157	ADULT CARE
(78) Fletcher Allen Health Care 111 Colchester Ave Burlington,VT05401	03-0219309	501c(3)	92,535	CF CARE CENTER
(79) Geisinger Medical Center Pediatric Allergy Immunology Pul Danville,PA17822	23-6291113	501c(3)	55,865	CF CARE CENTER
(80) Georgia Health Sciences University 1120 15th Street 100 N Academy Drive Augusta,GA309128300	58-6002053	501c(3)	98,370	CF CARE CENTER
(81) Good Samaritan Hospital 1000 Montauk Highway New York,NY11795	11-1888924	501c(3)	13,750	CF CARE CENTER
(82) Greenville Hospital System 701 Grove Road Greenville,SC29605	57-6007863	501c(3)	37,765	CF CARE CENTER
(83) Gundersen Lutheran Medical Foundation 1900 South Avenue La Crosse,WI54601	39-1249705	501c(3)	19,765	CF CARE CENTER
(84) Hartford Hospital Department of Medicine Hartford,CT06102	06-0646668	501c(3)	51,995	CF CARE CENTER
(85) Henry M Jackson Foundation for the advancement of 1404 Rockville Pike Suite 600 80 Seymour Street Rockville,MD20852	52-1317896	501c(3)	45,505	CF CARE CENTER
(86) Henry M Jackson Foundation for the advancement of 1404 Rockville Pike Suite 600 Rockville,MD20852	52-1317896	501c(3)	86,400	PILOT STUDY
(87) Iowa Health Foundation (Blank Children's CF Center 1440 Ingersoll Avenue Des Moines,IA50309	42-1467682	501c(3)	50,155	CF CARE CENTER
(88) Kaiser Foundation Research Institute 1800 Harrison Street OAKLAND,CA94612	94-1105628	501c(3)	190,090	CF CARE CENTER
(89) Kaleida Health 219 Bryant Street 16th floor Buffalo,NY14209	16-1533232	501c(3)	99,870	CF CARE CENTER
(90) Landon Pediatric Foundation 3291 Loma Vista Road Ventura,CA93003	93-1097216	501c(3)	32,730	CF CARE CENTER
(91) Lee Memorial Health System Foundation Inc 16451 HealthPark Commons 200 Building 340 Suite 302 Ft Myers,FL339083630	65-0645343	501c(3)	19,855	CF CARE CENTER
(92) Lehigh Valley Hospital Pediatric Specialty Center Bethlehem,PA18017	23-1689692	501c(3)	20,090	CF CARE CENTER
(93) Long Island Jewish Medical Center Finance Department 2545 Schoenersville Road Westbury,NY11590	11-2241326	501c(3)	105,780	CF CARE CENTER
(94) Long Island Jewish Medical Center Finance Department 972 Brushhollow Road Westbury,NY11590	11-2241326	501c(3)	266,668	QUALITY IMPROVEMENT
(95) Loyola University of Chicago 2160 S First Avenue 972 Brushhollow Road Maywood,IL60153	36-1408475	501c(3)	50,645	CF CARE CENTER
(96) LSUMC - Shreveport P O Box 33932 Shreveport,LA71130	72-0702002	501c(3)	77,445	CF CARE CENTER
(97) Lutheran Hospital of Indiana 7950 West Jefferson Boulevard FT Wayne,IN46804	35-1963748	C CORP	42,465	CF CARE CENTER
(98) Maine Medical Center 22 Bramhall Street Portland,ME04102	01-0238552	501c(3)	100,430	CF CARE CENTER
(99) Marshfield Clinic Research Foundation 1000 North Oak Avenue Marshfield,WI54449	39-0452970	501c(3)	23,390	CF CARE CENTER
(100) Mary Bridge Children's Foundation 311 South L Street Tacoma,WA98405	94-3030039	501c(3)	39,475	CF CARE CENTER
(101) Mayo Clinic Rochester 200 First Street SW Mailstop B1-OC Rochester,MN55905	41-6011702	501c(3)	18,000	CF CARE CENTER
(102) Medical University of South Carolina PO Box 997 Plummer 5 Charleston,SC29402	57-6000722	501c(3)	89,035	CF CARE CENTER
(103) Memorial Medical Center Foundation 2801 Atlantic Avenue Long Beach,CA908011428	95-6105984	501c(3)	118,410	CF CARE CENTER
(104) Miami Children's Hospital MOB 203 PO Box 1428 Miami,FL33155	59-0638499	501c(3)	28,325	CF CARE CENTER
(105) Michigan State University 301 Administration Bldg 3200 SW 60th Court East Lansing,MI488241046	38-6005984	501c(3)	43,200	PILOT STUDY
(106) Michigan State UniversityKCMS 1000 Oakland Drive Kalamazoo,MI49001	38-6005984	501c(3)	52,080	CF CARE CENTER
(107) Miller School of Medicine University of Miami 1600 NW 10th Ave Miami,FL33136	59-0624458	501c(3)	288,174	QUALITY IMPROVEMENT
(108) Mission Healthcare Foundation Inc 980 Hendersonville Road Room 7058 Asheville,NC28803	56-1881331	501c(3)	6,000	CF CARE CENTER
(109) Monmouth Medical Center Foundation 300 Second Avenue Suite C Long Branch,NJ07740	22-2456079	501c(3)	65,810	CF CARE CENTER
(110) National Jewish Medical and Research Center 1400 Jackson Street Denver,CO80206	74-2044647	501c(3)	127,470	CF CARE CENTER
(111) National Jewish Medical and Research Center 1400 Jackson Street Denver,CO80206	74-2044647	501c(3)	291,240	RESEARCH
(112) Nemours Children's Clinic Jacksonville 807 Nira Street Jacksonville,FL32207	59-0634433	501c(3)	32,400	ADULT CARE
(113) Nemours Children's Clinic Jacksonville 807 Nira Street Jacksonville,FL32207	59-0634433	501c(3)	21,600	QUALITY IMPROVEMENT
(114) New York University School of Medicine 550 First Avenue New York,NY10016	13-5562308	501c(3)	27,000	ADULT CARE
(115) New York University School of Medicine 550 First Avenue New York,NY10016	13-5562308	501c(3)	50,985	CF CARE CENTER
(116) North Suburban Pulmonary Research and Education 8780 W Gold Niles,IL60714	36-4393617	501c(3)	9,000	CF CARE CENTER
(117) Oregon Health & Science University Sponsored Projects Administration O Suite 102 Portland,OR97239	23-7083114	501c(3)	32,400	ADULT CARE
(118) Oregon Health & Science University Sponsored Projects Administration O 0690 SW Bancroft Street Portland,OR97239	23-7083114	501c(3)	187,835	CF CARE CENTER
(119) Oregon Health & Science University Sponsored Projects Administration O 0690 SW Bancroft Street Portland,OR97239	23-7083114	501c(3)	41,525	QUALITY IMPROVEMENT
(120) Orlando Health Foundation 3160 Southgate Commerce Blvd 0690 SW Bancroft Street Orlando,FL32806	59-2244943	501c(3)	55,470	CF CARE CENTER
(121) Pennsylvania State University College of Medicine Suite 50 Hershey,PA17033	24-6000376	IRC 115	130,460	CF CARE CENTER
(122) Philadelphia Health & Education Corp (Drexel U) 3201 Arch Street Office of Research Affairs H138 Philadelphia,PA19104	23-2979433	501c(3)	56,831	ADULT CARE
(123) Philadelphia Health & Education Corp (Drexel U) 3201 Arch Street Suite 420 Philadelphia,PA19104	23-2979433	501c(3)	89,720	CF CARE CENTER
(124) Phoenix Children's Hospital 1300 North 12th Street Suite 420 Phoenix,AZ85006	86-0422559	501c(3)	146,800	CF CARE CENTER
(125) Providence Alaska Medical Center 3200 Providence Drive Anchorage,AK995196604	92-0016429	501c(3)	31,315	CF CARE CENTER
(126) Providence Physician Service 101 W 8th Ave PO Box 196604 Spokane,WA99204	91-1216033	C CORP	67,530	CF CARE CENTER
(127) Regents of the University of Colorado Grants Contracts Aurora,CO800450508	84-6000555	501c(3)	180,580	CF CARE CENTER
(128) Regents of the University of Colorado Grants Contracts F428 Fitzsimons Building 500 Aurora,CO800450508	84-6000555	501c(3)	167,011	TRAINING
(129) Renown Health Foundation 1155 Mill St Z-5 F428 Fitzsimons Building 500 Reno,NV89502	94-2872749	501c(3)	19,645	CF CARE CENTER
(130) Rhode Island Hospital 593 Eddy Street Providence,RI02903	05-0258954	501c(3)	60,900	CF CARE CENTER
(131) Rosalind Franklin University of Medicine and Scien 3333 Green Bay Road North Chicago,IL60064	36-2181973	501c(3)	173,774	RESEARCH
(132) Rush University Medical Center 1725 West Harrison Suite 718 Chicago,IL60612	36-2174823	501c(3)	27,000	ADULT CARE
(133) Rush University Medical Center 1725 West Harrison Suite 718 Chicago,IL60612	36-2174823	501c(3)	47,690	CF CARE CENTER
(134) Rutgers The State University of New Jersey 58 Bevier Road Piscataway,NJ088548010	46-2354111	501c(3)	67,855	CF CARE CENTER
(135) Saint Barnabas Medical Center Saint Barnabas Medical Center Livingston,NJ07039	22-1494440	501c(3)	25,495	CF CARE CENTER
(136) Saint Francis Medical Center 530 NE Glen Oak Avenue Pediatric Pulmonary Division Peoria,IL61637	37-0662569	501c(3)	49,015	CF CARE CENTER
(137) Saint Joseph's Hospital and Medical Center 703 Main Street Paterson,NJ07503	22-1487602	501c(3)	24,945	CF CARE CENTER
(138) Samaritan Medical Center Child Adolescent Health Services Watertown,NY13601	15-0533577	501c(3)	8,950	CF CARE CENTER
(139) Sanford Children's Specialty Clinic 1305 W 18th Street 513 Washington Street Sioux Falls,SD571175039	46-0447693	501c(3)	67,485	CF CARE CENTER
(140) Sanford Medical Center Fargo 801 North Broadway Fargo,ND581220176	45-0226909	501c(3)	18,610	CF CARE CENTER
(141) Santa Barbara Cottage Hospital 2405 De La Vina Street Santa Barbara,CA93105	95-1644629	501c(3)	6,000	CF CARE CENTER
(142) Scott & White Memorial Hospital 2401 South 31st Street Temple,TX76508	74-1166904	501c(3)	26,360	CF CARE CENTER
(143) Seattle Children's Hospital Foundation 6901 Sand Point Way NE Seattle,WA981050371	91-0564748	501c(3)	111,845	CF CARE CENTER
(144) South Broward Hospital District Joe DiMaggios Childrens Hospital Hollywood,FL33321	59-6014973	501c(3)	71,980	CF CARE CENTER
(145) Spectrum Health Foundation Downtown Campus Cystic Fibrosis Clinic Grand Rapids,MI49503	38-2752328	501c(3)	145,490	CF CARE CENTER
(146) Spectrum Health Foundation Downtown Campus 100 Michigan Street NE MC 004 Grand Rapids,MI49503	38-2752328	501c(3)	23,760	QUALITY IMPROVEMENT
(147) St Alexius Medical Center PO Box 5510 100 Michigan Street NE MC 004 Bismarck,ND585065510	45-0226711	501c(3)	32,655	CF CARE CENTER
(148) St Joseph's Regional Medical Center Inc 611 East Cedar Street Mishawaka,IN465451468	35-1568821	501c(3)	27,570	CF CARE CENTER
(149) St Louis University 3500 Lindell Blvd Suite 405 St Louis,MO63103	43-0654872	501c(3)	105,540	CF CARE CENTER
(150) St Luke's Regional Medical Center 100 East Idaho Boise,ID83712	82-0161600	501c(3)	68,615	CF CARE CENTER
(151) Stony Brook University Hospital Division of Pediatric Pulmonary Suite 200 Stony Brook,NY117943362	14-1368361	501c(3)	157,275	CF CARE CENTER
(152) Sutter Medical Center Sacramento 5609 J Street Suite C HSC T11-080 Sacramento,CA95819	94-1156621	501c(3)	50,190	CF CARE CENTER
(153) Tenet St Mary's Inc Cystic Fibrosis Center PO Box 24620 West Palm Beach,FL33407	75-2932830	C CORP	48,070	CF CARE CENTER
(154) Tennessee Department of HealthLab Services 710 James Robertson Parkway 6th fl 901 45th Street Nashville,TN37243	62-6001445	OTHER-GOV'T	20,000	QUALITY IMPROVEMENT
(155) Texas Tech University Health Sciences Center 3601 4th Street Lubbock,TX79430	75-2668014	IRC 115	20,470	CF CARE CENTER
(156) The Adult Cystic Fibrosis Center of Jacksonville 425 N Lee Street Suite 202 Mail Stop 6591 Jacksonville,FL32204	20-4055796	501c(3)	23,620	CF CARE CENTER
(157) The Children's Hospital of Philadelphia 3516 Civic Center Blvd Philadelphia,PA191044318	23-1352166	501c(3)	32,400	ADULT CARE
(158) The Children's Hospital of Philadelphia 3516 Civic Center Blvd Philadelphia,PA191044318	23-1352166	501c(3)	153,975	CF CARE CENTER
(159) The Children's Hospital of Philadelphia 3516 Civic Center Blvd Philadelphia,PA191044318	23-1352166	501c(3)	68,250	TRAINING
(160) The Curators of the University of Missouri Office of Sponsored Program Adminis Columbia,MO65211	43-6003859	501c(3)	79,105	CF CARE CENTER
(161) The Curators of the University of Missouri Office of Sponsored Program Adminis 310 Jesse Hall Columbia,MO65211	43-6003859	501c(3)	11,660	RESEARCH
(162) The Curators of the University of Missouri Office of Sponsored Program Adminis 310 Jesse Hall Columbia,MO65211	43-6003859	501c(3)	43,850	RESEARCH STUDY
(163) The General Hospital Corporation (Massachusetts) Mass General Research Finance 310 Jesse Hall Boston,MA02114	04-2697983	501c(3)	103,120	CF CARE CENTER
(164) The General Hospital Corporation (Massachusetts) Mass General Research Finance PO Box 414876 Boston,MA02114	04-2697983	501c(3)	86,950	RESEARCH STUDY
(165) The General Hospital Corporation (Massachusetts) Mass General Research Finance PO Box 414876 Boston,MA02114	04-2697983	501c(3)	107,999	PILOT STUDY
(166) The General Hospital Corporation (Massachusetts) Mass General Research Finance PO Box 414876 Boston,MA02114	04-2697983	501c(3)	86,263	TRAINING
(167) The Hitchcock Foundation One Medical Center Drive PO Box 414876 Lebanon,NH03756	02-0222139	501c(3)	108,690	CF CARE CENTER
(168) The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore,MD21205	52-0595110	501c(3)	255,700	CF CARE CENTER
(169) The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore,MD21205	52-0595110	501c(3)	289,350	RESEARCH
(170) The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore,MD21205	52-0595110	501c(3)	54,750	RESEARCH STUDY
(171) The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore,MD21205	52-0595110	501c(3)	43,166	PILOT STUDY
(172) The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore,MD21205	52-0595110	501c(3)	263,790	RESEARCH CENTER
(173) The Medical College of Wisconsin 8701 Watertown Plk Rd Milwaukee,WI53226	39-0806261	501c(3)	166,435	CF CARE CENTER
(174) The Medical College of Wisconsin 8701 Watertown Plk Rd Milwaukee,WI53226	39-0806261	501c(3)	81,000	QUALITY IMPROVEMENT
(175) The Ohio State University 1960 Kenny Road Columbus,OH43210	31-6025986	IRC 115	97,200	RESEARCH
(176) The President & Fellows of Harvard College 25 Shattuck Street Boston,MA02115	04-2103580	501c(3)	42,750	RESEARCH STUDY
(177) The Rector and Visitors of the University of Virgi PO Box 400195 Charlottesville,VA229044195	54-6001796	501c(3)	110,530	CF CARE CENTER
(178) The Regents of the University of California Davis Cashiers Office 1200 Dutton Hall Office of Sponsored Programs Davis,CA95616	94-6036494	501c(3)	72,510	CF CARE CENTER
(179) The Regents of the University of California San D Office of Post Award Financial Serv One Shields Avenue La Jolla,CA920930954	95-6006144	501c(3)	27,000	ADULT CARE
(180) The Regents of the University of California San D Office of Post Award Financial Serv 9500 Gilman Drive Dept 0934 La Jolla,CA920930954	95-6006144	501c(3)	145,165	CF CARE CENTER
(181) The Regents of the University of California San F UCSF Office of Sponsored Research 9500 Gilman Drive Dept 0934 San Francisco,CA941430962	94-6036493	501c(3)	32,400	ADULT CARE
(182) The Regents of the University of California San F UCSF Office of Sponsored Research 3333 California Street Suite 315 San Francisco,CA941430962	94-6036493	501c(3)	81,060	CF CARE CENTER
(183) The Regents of the University of California San F UCSF Office of Sponsored Research 3333 California Street Suite 315 San Francisco,CA941430962	94-6036493	501c(3)	100,000	RESEARCH
(184) The Regents of the University of California San F UCSF Office of Sponsored Research 3333 California Street Suite 315 San Francisco,CA941430962	94-6036493	501c(3)	89,317	TRAINING
(185) The Regents of the University of California San F UCSF Office of Sponsored Research 3333 California Street Suite 315 San Francisco,CA941430962	94-6036493	501c(3)	460,000	RESEARCH CENTER
(186) The Regents of the University of Michigan 3003 South State Street Room 3089 3333 California Street Suite 315 Ann Arbor,MI481091274	38-6006309	501c(3)	32,400	ADULT CARE
(187) The Regents of the University of Michigan 3003 South State Street Room 3089 Ann Arbor,MI481091274	38-6006309	501c(3)	237,170	CF CARE CENTER
(188) The Regents of the University of Michigan 3003 South State Street Room 3089 Ann Arbor,MI481091274	38-6006309	501c(3)	43,200	PILOT STUDY
(189) The Regents of the University of Michigan 3003 South State Street Room 3089 Ann Arbor,MI481091274	38-6006309	501c(3)	49,750	TRAINING
(190) The Regents of the University of Michigan 3003 South State Street Room 3089 Ann Arbor,MI481091274	38-6006309	501c(3)	21,600	QUALITY IMPROVEMENT
(191) The Regents of the University of Minnesota Sponsored Projects Administration Minneapolis,MN554552070	41-6007513	501c(3)	32,400	ADULT CARE
(192) The Regents of the University of Minnesota Sponsored Projects Administration 200 Oak St SE Minneapolis,MN554552070	41-6007513	501c(3)	279,860	CF CARE CENTER
(193) The Research Institute at Nationwide Children's H 700 CHILDRENS DRIVE Columbus,OH432052664	31-6056230	501c(3)	221,340	CF CARE CENTER
(194) The Research Institute at Nationwide Children's H 700 CHILDRENS DRIVE Columbus,OH432052664	31-6056230	501c(3)	43,200	PILOT STUDY
(195) The Tampa General Hospital Foundation PO Box 1289 Dept 4656 / Ref 413407 Tampa,FL33601	23-7354477	501c(3)	86,575	CF CARE CENTER
(196) The Trustees of Columbia University in the City of 351 Engineering Terrace New York,NY10027	13-5598093	501c(3)	32,400	ADULT CARE
(197) The Trustees of Columbia University in the City of 351 Engineering Terrace New York,NY10027	13-5598093	501c(3)	141,355	CF CARE CENTER
(198) The Trustees of Columbia University in the City of 351 Engineering Terrace New York,NY10027	13-5598093	501c(3)	97,750	TRAINING
(199) The University of Alabama at Birmingham 1530 3rd Ave S THT422 Birmingham,AL352940006	63-6005396	501c(3)	276,250	CF CARE CENTER
(200) The University of Alabama at Birmingham 1530 3rd Ave S THT422 Birmingham,AL352940006	63-6005396	501c(3)	215,909	RESEARCH
(201) The University of Alabama at Birmingham 1530 3rd Ave S THT422 Birmingham,AL352940006	63-6005396	501c(3)	42,750	RESEARCH STUDY
(202) The University of Alabama at Birmingham 1530 3rd Ave S THT422 Birmingham,AL352940006	63-6005396	501c(3)	500,000	RESEARCH CENTER
(203) The University of Alabama at Birmingham 1530 3rd Ave S THT422 Birmingham,AL352940006	63-6005396	501c(3)	137,919	QUALITY IMPROVEMENT
(204) The University of Chicago 5801 S Ellis Avenue Chicago,IL60637	36-2177139	501c(3)	64,385	CF CARE CENTER
(205) The University of Chicago University Research Administration Chicago,IL60637	36-2177139	501c(3)	75,000	RESEARCH
(206) The University of North Carolina at Chapel Hill North Carolina State Treasurer 970 E 58th Street Chapel Hill,NC275991350	56-6001393	501c(3)	282,840	CF CARE CENTER
(207) The University of North Carolina at Chapel Hill North Carolina State Treasurer Office of Sponsored Research Chapel Hill,NC275991350	56-6001393	501c(3)	423,368	RESEARCH
(208) The University of North Carolina at Chapel Hill North Carolina State Treasurer Office of Sponsored Research Chapel Hill,NC275991350	56-6001393	501c(3)	165,540	TRAINING
(209) The University of North Carolina at Chapel Hill North Carolina State Treasurer Office of Sponsored Research Chapel Hill,NC275991350	56-6001393	501c(3)	88,800	RESEARCH STUDY
(210) The University of North Carolina at Chapel Hill North Carolina State Treasurer Office of Sponsored Research Chapel Hill,NC275991350	56-6001393	501c(3)	43,181	PILOT STUDY
(211) The University of North Carolina at Chapel Hill North Carolina State Treasurer Office of Sponsored Research Chapel Hill,NC275991350	56-6001393	501c(3)	460,000	RESEARCH CENTER
(212) The University of North Carolina at Chapel Hill 300 Bynum Hall Office of Sponsored Research Chapel Hill,NC275994100	56-6001393	501c(3)	96,047	QUALITY IMPROVEMENT
(213) The University of North Carolina at Charlotte 9201 University City Blvd CB 4100 Charlotte,NC282230001	56-0791228	501c(3)	42,746	RESEARCH STUDY
(214) The University of Texas at Austin P O Box 7726 Austin,TX787137726	74-6000203	501c(3)	86,599	RESEARCH STUDY
(215) The University of Texas at Austin P O Box 7726 Austin,TX787137726	74-6000203	501c(3)	43,200	PILOT STUDY
(216) Toledo Children's Hospital 2142 N Cove Blvd Toledo,OH43606	34-4428256	501c(3)	96,945	CF CARE CENTER
(217) Toledo Children's Hospital 2142 N Cove Blvd Toledo,OH43606	34-4428256	501c(3)	23,760	QUALITY IMPROVEMENT
(218) Trustees of Boston University 881 Commonwealth Avenue Boston,MA02215	04-2103547	501c(3)	104,500	TRAINING
(219) Trustees of Dartmouth College 11 Rope Ferry Road 6210 Hanover,NH037551404	02-0222111	501c(3)	89,900	RESEARCH STUDY
(220) Trustees of Dartmouth College 11 Rope Ferry Road 6210 Hanover,NH037551404	02-0222111	501c(3)	43,200	PILOT STUDY
(221) Trustees of Dartmouth College 11 Rope Ferry Road 6210 Hanover,NH037551404	02-0222111	501c(3)	346,667	RESEARCH CENTER
(222) Trustees of Dartmouth College 11 Rope Ferry Road 6210 Hanover,NH037551404	02-0222111	501c(3)	652,847	QUALITY IMPROVEMENT
(223) Trustees of Indiana University Financial Management Services Bloomington,IN462666057	35-6001673	501c(3)	32,400	ADULT CARE
(224) Trustees of Indiana University Financial Management Services PO Box 66057 Bloomington,IN462666057	35-6001673	501c(3)	232,580	CF CARE CENTER
(225) Trustees of Indiana University Financial Management Services PO Box 66057 Bloomington,IN462666057	35-6001673	501c(3)	49,750	TRAINING
(226) Trustees of the University of Pennsylvania 133 South 36th Street Mezzanine PO Box 66057 Philadelphia,PA191043246	23-1352685	501c(3)	27,000	ADULT CARE
(227) Trustees of the University of Pennsylvania 133 South 36th Street Mezzanine Philadelphia,PA191043246	23-1352685	501c(3)	73,358	PILOT STUDY
(228) Trustees of the University of Pennsylvania 133 South 36th Street Mezzanine Philadelphia,PA191043246	23-1352685	501c(3)	59,083	RESEARCH CENTER
(229) Trustees of the University of Pennsylvania on beha 3451 Walnut Street Philadelphia,PA19104	23-1352685	501c(3)	124,990	CF CARE CENTER
(230) Tulane University Medical School 6401 Freret St Franklin Bldg P-221 New Orleans,LA70118	72-0423889	501c(3)	32,400	ADULT CARE
(231) Tulane University Medical School 6401 Freret St New Orleans,LA70118	72-0423889	501c(3)	110,635	CF CARE CENTER
(232) University at Buffalo Pediatric Associates 1028 Main Street Buffalo,NY01402	16-1238821	501c(3)	81,000	QUALITY IMPROVEMENT
(233) University Hospitals of Cleveland 2074 Abingdon Road Cleveland,OH44106	34-0714775	501c(3)	26,336	ADULT CARE
(234) University Hospitals of Cleveland 2074 Abingdon Road Cleveland,OH44106	34-0714775	501c(3)	179,085	CF CARE CENTER
(235) University Hospitals of Cleveland 2074 Abingdon Road Cleveland,OH44106	34-0714775	501c(3)	11,880	QUALITY IMPROVEMENT
(236) University of Arkansas for Medical Sciences 4301 West Markham Street Little Rock,AR72205	71-6046242	501c(3)	53,865	CF CARE CENTER
(237) University of Cincinnati Physicians Company 231 Albert Sabin Way Mail Slot 555 Cincinnati,OH452670564	31-1405915	501c(3)	66,445	CF CARE CENTER
(238) University of Cincinnati Physicians Company 231 Albert Sabin Way MSB 60048 Cincinnati,OH452670564	31-1405915	501c(3)	91,893	QUALITY IMPROVEMENT
(239) University of Florida Shands Childrens Hospital MSB 60048 Gainesville,FL32610	59-6002052	IRC 115	93,450	CF CARE CENTER
(240) University of Florida Shands Childrens Hospital 1600 SW Archer Rd Suite D2-15 Gainesville,FL32610	59-6002052	IRC 115	17,210	QUALITY IMPROVEMENT
(241) University of Iowa Grant Accounting Office 1600 SW Archer Rd Suite D2-15 Iowa City,IA52242	42-6004813	501c(3)	142,305	CF CARE CENTER
(242) University of Iowa Grant Accounting Office B 5 Jessup Hall Iowa City,IA52242	42-6004813	501c(3)	194,400	RESEARCH
(243) University of Iowa Grant Accounting Office B 5 Jessup Hall Iowa City,IA52242	42-6004813	501c(3)	136,500	TRAINING
(244) University of Iowa Grant Accounting Office B 5 Jessup Hall Iowa City,IA52242	42-6004813	501c(3)	129,600	PILOT STUDY
(245) University of Iowa Grant Accounting Office B 5 Jessup Hall Iowa City,IA52242	42-6004813	501c(3)	1,000,000	RESEARCH CENTER
(246) University of Kansas Medical Center Research Insti 3901 Rainbow Boulevard MSN 1039 B 5 Jessup Hall Kansas City,KS661032937	48-1108830	501c(3)	27,000	ADULT CARE
(247) University of Kansas Medical Center Research Insti 3901 Rainbow Boulevard MSN 1039 Kansas City,KS661032937	48-1108830	501c(3)	102,885	CF CARE CENTER
(248) University of Kansas Medical Center Research Insti 3901 Rainbow Boulevard MSN 1039 Kansas City,KS661032937	48-1108830	501c(3)	97,200	RESEARCH
(249) University of Kentucky Research Foundation Kentucky CF Clinic J424 Lexington,KY405360284	61-6033693	501c(3)	121,670	CF CARE CENTER
(250) University of Louisville Research Foundation Inc Office of Grants Management 740 South Limestone Louisville,KY40292	61-1029626	501c(3)	114,675	CF CARE CENTER
(251) University of Maryland 650 W Baltimore St - 8 South Jouett Hall Belknap Campus Baltimore,MD21201	52-6002033	IRC 115	43,200	PILOT STUDY
(252) University of Massachusetts Medical Center 55 Lake Avenue Worcester,MA10655	04-3167352	IRC 115	25,240	ADULT CARE
(253) University of Massachusetts Medical Center 55 Lake Avenue Worcester,MA10655	04-3167352	IRC 115	73,836	CF CARE CENTER
(254) University of Miami Pediatric/Pulmonary Division Miami,FL33137	59-0624458	501c(3)	73,575	CF CARE CENTER
(255) University of Miami Pediatric/Pulmonary Division 1601 NW 12th Avenue Miami,FL33137	59-0624458	501c(3)	97,200	RESEARCH
(256) University of Nebraska Medical Center Service Building 1601 NW 12th Avenue Omaha,NE681987835	47-0049123	501c(3)	27,000	ADULT CARE
(257) University of Nebraska Medical Center Service Building 985100 Nebraska Medical Center Omaha,NE681987835	47-0049123	501c(3)	162,400	CF CARE CENTER
(258) University of New Mexico Health Sciences Center Controllers Office 985100 Nebraska Medical Center Albuquerque,NM871315041	85-6000642	IRC 115	80,775	CF CARE CENTER
(259) University of Oklahoma Health Sciences Center PO Box 26901 Health Sciences and Services Bldg Oklahoma City,OK73190	73-6017987	IRC 115	145,570	CF CARE CENTER
(260) University of Pittsburgh 350 Thackeray Hall Pittsburgh,PA15260	25-0965591	501c(3)	27,000	ADULT CARE
(261) University of Pittsburgh 350 Thackeray Hall Pittsburgh,PA15260	25-0965591	501c(3)	391,600	RESEARCH
(262) University of Pittsburgh 350 Thackeray Hall Pittsburgh,PA15260	25-0965591	501c(3)	97,200	PILOT STUDY
(263) University of Pittsburgh 350 Thackeray Hall Pittsburgh,PA15260	25-0965591	501c(3)	170,435	TRAINING
(264) University of Pittsburgh 350 Thackeray Hall Pittsburgh,PA15260	25-0965591	501c(3)	460,000	RESEARCH CENTER
(265) University of Pittsburgh 350 Thackeray Hall Pittsburgh,PA15260	25-0965591	501c(3)	148,848	QUALITY IMPROVEMENT
(266) University of Rochester 1325 Mt Hope Avenue Rochester,NY14642	16-0743209	501c(3)	91,590	CF CARE CENTER
(267) University of South Carolina Research Foundation 901 Sumter Street Suite 260 Columbia,SC29208	57-0967350	501c(3)	41,865	CF CARE CENTER
(268) University of South Florida Department of Pediatrics Suite 501 Tampa,FL33606	59-3102112	IRC 115	27,100	CF CARE CENTER
(269) University of Southern California USC Contracts and Grants 17 Davis Boulevard Suite 200 Los Angeles,CA900339002	95-1642394	501c(3)	97,097	RESEARCH
(270) University of Southern California Keck School of M Contracts and Grants Office 1540 Alcazar Street LOS ANGELES,CA90033	95-1642394	501c(3)	95,560	CF CARE CENTER
(271) University of Tennessee Medical Center 1940 Alcoa Hwy 1540 Alcazar Street CHP-100 Knoxville,TN37920	31-1626179	501c(3)	38,745	CF CARE CENTER
(272) University of Tennessee 62 S Dunlap Suite E-110 Memphis,TN38163	62-6001636	IRC 115	31,375	CF CARE CENTER
(273) University of Texas Health Center at Tyler 11937 US Hwy 271 Tyler,TX75708	75-6001354	501c(3)	44,620	CF CARE CENTER
(274) University of Texas Health Science Center at San A Mail Code 7828 San Antonio,TX782293900	74-1586031	501c(3)	38,500	CF CARE CENTER
(275) University of Utah 406 Park Bldg 7703 Floyd Curl Drive Salt Lake City,UT84112	87-6000525	501c(3)	233,570	CF CARE CENTER
(276) University of Utah 406 Park Bldg Salt Lake City,UT84112	87-6000525	501c(3)	100,000	RESEARCH
(277) University of Washington 4333 Brooklyn Avenue NE Box 359472 Seattle,WA981959472	91-6001537	IRC 115	101,175	CF CARE CENTER
(278) University of Washington 4333 Brooklyn Avenue NE Box 359472 Seattle,WA981959472	91-6001537	IRC 115	296,200	RESEARCH
(279) University of Washington 4333 Brooklyn Avenue NE Box 359472 Seattle,WA981959472	91-6001537	IRC 115	42,750	RESEARCH STUDY
(280) University of Washington 4333 Brooklyn Avenue NE Box 359472 Seattle,WA981959472	91-6001537	IRC 115	120,500	TRAINING
(281) University of Washington 4333 Brooklyn Avenue NE Box 359472 Seattle,WA981959472	91-6001537	IRC 115	500,000	RESEARCH CENTER
(282) University of Washington 4333 Brooklyn Avenue NE Box 359472 Seattle,WA981959472	91-6001537	IRC 115	149,721	QUALITY IMPROVEMENT
(283) UT Southwestern Medical Center at Dallas 5323 Harry Hines Blvd Dallas,TX753909040	75-6002868	IRC 115	91,530	ADULT CARE
(284) UT Southwestern Medical Center at Dallas 5323 Harry Hines Blvd Dallas,TX753909040	75-6002868	IRC 115	221,315	CF CARE CENTER
(285) UT Southwestern Medical Center at Dallas 5323 Harry Hines Blvd Dallas,TX753909040	75-6002868	IRC 115	43,200	PILOT STUDY
(286) UT Southwestern Medical Center at Dallas 5323 Harry Hines Blvd Dallas,TX753909040	75-6002868	IRC 115	23,760	QUALITY IMPROVEMENT
(287) Vanderbilt University PO Box 30195 Nashville,TN372410195	62-0476822	501c(3)	207,425	CF CARE CENTER
(288) Vanderbilt University PO Box 30195 Nashville,TN372410195	62-0476822	501c(3)	43,850	RESEARCH STUDY
(289) Via Christi Regional Medical Center CF Clinic 3311 East Murdock Street Wichita,KS67218	48-1172106	501c(3)	59,275	CF CARE CENTER
(290) Virginia Commonwealth University Box 2506 - VCU Station Richmond,VA232842506	54-6001758	501c(3)	73,620	CF CARE CENTER
(291) Virginia Commonwealth University Box 2506 - VCU Station Richmond,VA232842506	54-6001758	501c(3)	81,000	QUALITY IMPROVEMENT
(292) Wake Forest University Health Sciences Medical Center Blvd WinstonSalem,NC271571064	22-3849199	501c(3)	69,560	CF CARE CENTER
(293) Wake Forest University Health Sciences Medical Center Blvd WinstonSalem,NC271571064	22-3849199	501c(3)	94,016	RESEARCH
(294) Wake Forest University Health Sciences Medical Center Blvd WinstonSalem,NC271571064	22-3849199	501c(3)	43,200	PILOT STUDY
(295) Washington University Campus Box 1034 St Louis,MO631121408	43-0653611	501c(3)	216,820	CF CARE CENTER
(296) Washington University Campus Box 1034 700 Rosedale Avenue St Louis,MO631121408	43-0653611	501c(3)	21,591	QUALITY IMPROVEMENT
(297) Wayne State University Grants Contracts Office III 700 Rosedale Avenue Detroit,MI48201	38-6028425	501c(3)	44,620	CF CARE CENTER
(298) West Virginia University Research Corporation West Virginia University Research and Sponsored Programs Morgantown,WV265066001	55-0665758	501c(3)	68,946	CF CARE CENTER
(299) Yale University 47 College Street Suite 203 PO Box 6001 New Haven,CT065208047	06-0646973	501c(3)	59,374	ADULT CARE
(300) Yale University 47 College Street Suite 203 New Haven,CT065208047	06-0646973	501c(3)	73,625	CF CARE CENTER
(301) Yale University 47 College Street Suite 203 New Haven,CT065208047	06-0646973	501c(3)	97,200	RESEARCH
(302) Yale University 47 College Street Suite 203 PO Box 208047 New Haven,CT065208047	06-0646973	501c(3)	43,200	PILOT STUDY

Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................ Bullet Image

172

Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50055P

Schedule I (Form 990) 2014

Page 2

Part III

Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" to Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.

(a)Type of grant or assistance	(b)Number of recipients	(c)Amount of cash grant
(1) PATIENT ASSISTANCE PROGRAM	1167	1,813,694
(2) FELLOWSHIPS	4	18,008

Part IV

Supplemental Information. Provide the information required in Part I, line 2, Part III, column (b), and any other additional information.

Return Reference

Explanation

PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S.

PART 1, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE US. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS.

Schedule I (Form 990) 2014

Additional Data

Software ID:
Software Version:

- TIN:

Schedule J
(Form 990)

Department of the Treasury
Internal Revenue Service

Compensation Information

For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
SchJMediumBullet

Complete if the organization answered "Yes" to Form 990, Part IV, line 23.
SchJMediumBullet

Attach to Form 990.
SchJMediumBullet

Information about Schedule J (Form 990) and its instructions is at www.irs.gov/form990.

OMB No. 1545-0047

2014

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Employer identification number

13-1930701

Part I

Questions Regarding Compensation

Yes

Check the appropiate box(es) if the organization provided any of the following to or for a person listed in Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.

First-class or charter travel Housing allowance or residence for personal use

Travel for companions Payments for business use of personal residence

Tax idemnification and gross-up payments Health or social club dues or initiation fees

Discretionary spending account Personal services (e.g., maid, chauffeur, chef)

If any of the boxes in line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain....

Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked in line 1a? ..

Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.

Compensation committee Written employment contract

Independent compensation consultant Compensation survey or study

Form 990 of other organizations Approval by the board or compensation committee

During the year, did any person listed in Form 990, Part VII, Section A, line 1a with respect to the filing organization or a related organization:

Receive a severance payment or change-of-control payment? ................

Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........

Yes

Participate in, or receive payment from, an equity-based compensation arrangement? .........

If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.

Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.

For persons listed in Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:

The organization? ...........................

Any related organization? .........................

If "Yes," to line 5a or 5b, describe in Part III.

For persons listed in Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:

The organization? ...........................

Any related organization? .........................

If "Yes," to line 6a or 6b, describe in Part III.

For persons listed in Form 990, Part VII, Section A, line 1a, did the organization provide any non-fixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............

Yes

Were any amounts reported in Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III .............................

If "Yes" to line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50053T

Schedule J (Form 990) 2014

Page 2

Part II

Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.

For each individual whose compensation must be reported in Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.

(A) Name and Title		(B) Breakdown of W-2 and/or 1099-MISC compensation			(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)	(F) Compensation in column(B) reported as deferred in prior Form 990
(A) Name and Title		(i) Base compensation	(ii) Bonus & incentive compensation	(iii) Other reportable compensation	(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)
1Robert J Beall PhDPRESIDENT / CEO	(i) (ii)	399,993 ............................... 200,570	233,330 ............................... 114,924	16,814 ............................... 8,060	145,953 ............................... 58,825	19,255 ............................... 0	815,345 ............................... 382,379	65,086 ............................... 32,057
2C Richard MattinglyEXEC VP, COO & SECRETARY	(i) (ii)	399,981 ............................... 0	222,762 ............................... 0	23,012 ............................... 0	173,105 ............................... 0	16,161 ............................... 0	835,021 ............................... 0	72,377 ............................... 0
3Preston Campbell MDEXEC VP OF MEDICAL AFFAIRS	(i) (ii)	261,919 ............................... 133,626	151,307 ............................... 74,524	19,649 ............................... 5,775	108,170 ............................... 40,216	26,436 ............................... 0	567,481 ............................... 254,141	47,912 ............................... 23,599
4Vera H TwiggEXECUTIVE VP AND CFO	(i) (ii)	300,886 ............................... 0	139,087 ............................... 0	21,930 ............................... 0	59,013 ............................... 0	26,436 ............................... 0	547,352 ............................... 0	30,185 ............................... 0
5Maureen FraserVP OF FIELD MANAGEMENT	(i) (ii)	196,495 ............................... 0	20,672 ............................... 0	2,788 ............................... 0	22,127 ............................... 0	18,255 ............................... 0	260,337 ............................... 0	0 ............................... 0
6Daniel KleinSR VP, PATIENT ACCESS PROGRAMS	(i) (ii)	253,270 ............................... 0	37,689 ............................... 0	3,188 ............................... 0	26,520 ............................... 0	41,461 ............................... 0	362,128 ............................... 0	0 ............................... 0
7Christopher Penland PhDVP OF RESEARCH	(i) (ii)	160,625 ............................... 28,345	38,695 ............................... 2,400	612 ............................... 0	23,688 ............................... 0	25,790 ............................... 0	249,410 ............................... 30,745	0 ............................... 0
8David McLoughlinSR. VP OF OPERATIONS	(i) (ii)	194,290 ............................... 59,132	37,828 ............................... 10,707	1,242 ............................... 0	31,520 ............................... 0	26,136 ............................... 0	291,016 ............................... 69,839	0 ............................... 0
9Glen GoldmarkVP OF HUMAN RESOURCES	(i) (ii)	196,260 ............................... 0	40,188 ............................... 0	2,790 ............................... 0	29,369 ............................... 0	17,655 ............................... 0	286,262 ............................... 0	0 ............................... 0
10Mary DwightSVP POLICY & COMM AFFAIRS	(i) (ii)	185,223 ............................... 0	36,276 ............................... 0	376 ............................... 0	28,626 ............................... 0	31,436 ............................... 0	281,937 ............................... 0	0 ............................... 0

Schedule J (Form 990) 2014

Page 3

Part III

Supplemental Information

Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II.
Also complete this part for any additional information.

Return Reference

Explanation

SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN

Part I, Line 4b: Certain persons listed in Form 990, Part VII, Section A participate in a nonqualified deferred compensation plan, under which interests are forfeited by the participant if the participant voluntarily terminates employment prior to the designated vesting date. Further information about the nonqualified deferred compensation plan in which those persons participate is provided in the additional information for Schedule J, Part II, below. Part I, Line 7: Several individuals listed in Form 990, Part VII, Section A, line 1a, (who are identified in Part II, below) participated in the Foundation's Incentive Compensation Plan, from which non-fixed payments not described in lines 5 and 6 were paid. The Incentive Compensation Plan pays non-fixed payments subject to, and based on, the achievement of annual performance objectives established in advance by the Compensation Committee of the Board of Trustees. In addition, the Incentive Compensation Plan pays non-fixed payments that relate to a three-year performance period, subject to, and based on, the achievement of long-term performance objectives established in advance by the Compensation Committee of the Board. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other program-related income, and sales proceeds from transfer of the foregoing to third parties) related to the development and approval of CF drugs.

COMPENSATION

Cystic Fibrosis Foundation - Headquarters. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $384,583, 401(k) bonus - $15,410; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $121,344, long-term incentive plan payment, which was previously reported (6) - $65,086, long-term incentive plan treatment award (3) - $46,900; (B)(iii) Other Reportable Compensation: health insurance benefit - $3,165, automobile allowance - $4,824, other benefits - $8,825; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $53,773, SERP (4) - $65,660; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $12,031, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $4,724 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $192,980, 401(k) bonus - $7,590; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $59,767, long-term incentive plan payment, which was previously reported (6) - $32,057, long-term incentive plan treatment award (3) - $23,100; (B)(iii) Other Reportable Compensation: health insurance benefit - $1,559, automobile allowance - $2,376, other benefits - $4,125 (C) Deferred Compensation: long-term incentive plan benefit (6) - $26,485, SERP (4) - $32,340; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $261,919; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $69,894, long-term incentive plan payment, which was previously reported (6) - $47,912, long-term incentive plan treatment award (3) - $33,500; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $7,924, Section 457(b) Plan (5) - $11,725; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $39,099, SERP (4) - $42,551; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,053, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,883 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $133,626; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $34,426, long-term incentive plan payment, which was previously reported (6) - $23,599, long-term incentive plan treatment award (3) - $16,500; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $5,775; (C) Deferred Compensation: long-term incentive plan benefit (6) - $19,258, SERP (4) - $20,958; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. (A) Name: R. Mattingly; (B)(i) Base Compensation: base salary - $399,981; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $100,385, long-term incentive plan payment, which was previously reported (6) - $72,377, long-term incentive plan treatment award (3) - $50,000; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $17,500; other benefits including taxable general organization group term life insurance premium - $5,512; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $58,531, SERP (4) - $88,054; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $10,760, employee contribution to flexible spending account benefit - $1,600, employee contribution to general organization health plan benefit - $3,801 Cystic Fibrosis Foundation - Headquarters. (A) Name: V. Twigg; (B)(i) Base Compensation: base salary - $300,886; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $73,902, long-term incentive plan payment, which was previously reported (6) - $30,185, long-term incentive plan treatment award (3) - $35,000; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $4,430, Section 457(b) Plan (5) - $17,500; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $27,386, SERP (4) - $5,107; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,053, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,883 (1) This is an award subject to, and based on, achievement of annual performance standards established in advance by the Compensation Committee of the Board. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other program-related income, and sales proceeds from transfer of the foregoing to third parties) related to the development and approval of CF drugs. (2) This is the employer contribution made under the Cystic Fibrosis Foundation 401(k) Plan for the 2014 Plan Year. (3) This is an award under a plan that pays a specified dollar amount only if and when the FDA approves certain pre-specified types of therapies. In the event the employee terminates employment prior to FDA approval of the specified therapy type and payment of the award, the employee will forfeit his or her right to receive payment, unless termination is due to retirement or disability. The plan will terminate on December 31, 2018 unless the Foundation determines to extend the plan. (4) A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to attaining the vesting date designated by CFF (which is either a specified age or date, depending on the participant). C. SERP interests are held in a trust subject to the claims of CFF's bankruptcy creditors. In the event of a CFF bankruptcy, participants would become general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. For example, under current law, interests under SERPs are reportable as taxable compensation when they become vested, even if those amounts are not yet payable to the participant (and even if those amounts are never paid to the participant). E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. SERP contribution amounts were determined by an independent actuary. F. CFF retains the right to amend or terminate the SERP at any time. (5) A. This is a vested contribution to the 457(b) Plan for the reporting period. B. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. C. Distributions from the 457(b) Plan may not be rolled-over to an IRA or qualified plan (but may only be rolled-over to another 457(b) plan). D. The 457(b) Plan's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which 457(b) contribution amounts are determined. Contributions to the 457(b) Plan are subject to annual IRS limits (currently $17,500). E. CFF retains the right to amend or terminate the 457(b) Plan at any time. (6) This Plan provides for awards that relate to a three-year performance period, subject to, and based on, achievement of performance objectives established in advance by the Compensation Committee of the Board. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other program-related income, and sales proceeds from transfer of the foregoing to third parties) related to the development and approval of CF drugs. Each year, a new three-year performance period begins. As required by the Form 990 instructions, the amounts reported on this Form 990 reflect an estimate of the portion of each award that the executive accrued under the Plan for performance in 2014 (i.e., with respect to the 2012-2014, 2013-2015 and the 2014-2017 performance periods), but the amounts reported have not been earned, awarded or paid under the Plan. The individual must be employed on 12/31/15 and 12/31/16 to be eligible to receive full payment of the award for the 2013-2015, and the 2014-2016 performance periods, respectively. The award relating to the 3-year performance period ending 12/31/13 was paid in 2014, and is properly reported again (as compensation) on this Form 990.

Schedule J (Form 990) 2014

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE O
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet

Attach to Form 990 or 990-EZ.
MediumBullet

Information about Schedule O (Form 990 or 990-EZ) and its instructions is at
www.irs.gov/form990.

OMB No. 1545-0047

2014

Open to Public
Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Employer identification number

13-1930701

Return Reference	Explanation
OTHER PROGRAM SERVICES	PART III, LINE 4D: Community Services - The Cystic Fibrosis Foundation provides year-round efforts to educate, inform and empower individuals with CF and their families about the latest developments in treatment and care. The programs are designed to help the general public in the detection of the disease by providing a referral service and handling inquiries concerning cystic fibrosis. Approximately 28,600 people with CF were served in 2014, including approximately 840 individuals who were newly diagnosed.
REVIEW OF 990 BY GOVERNING BODY	PART VI, SECTION B, LINE 11B (PAGE 6 CORE FORM) The Cystic Fibrosis Foundation Board of Trustees receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Compensation Committee of the Board of Trustees and the Foundation's ERISA attorneys review the executive compensation sections of the Form 990. The Audit Committee of the Board of Trustees also reviews the Form 990 as part of its chartered responsibilities. In all cases the Cystic Fibrosis Foundation Board of Trustees receives a complete copy of the final Form 990 before it is filed.
CONFLICT OF INTEREST MONITORING	PART VI, SECTION B, LINE 12C (PAGE 6 CORE FORM) A conflict of interest disclosure statement is completed annually by each Board member and officer. Disclosures provided are reported to the Nominating and Governance Committee, the Audit Committee and the Board of Trustees. As required within the bylaws, any potential conflicts of interest must be reported to the Board as they arise. When any matter is deemed a potential conflict of interest and requires action by the Board of Trustees, the interested trustee or officer is required to retire from the room in which the Board or its committee is meeting, may not participate in the final deliberation of the matter, and may not vote on the matter. The Organization enforced the policy during 2014 and had no conflicts of interest as defined by the policy.
DETERMINING COMPENSATION	PART VI - SECTION B, LINE 15A AND 15B (PAGE 6 CORE FORM) The total compensation of executives at the Cystic Fibrosis Foundation is specifically designed to attract and retain the highest qualified executive and medical talent to fulfill the critically important mission of curing cystic fibrosis and providing all people with the disease the opportunity to lead full, productive lives. The independent Compensation Committee of the CF Foundation's Board of Trustees follows the process described in the IRS intermediate sanctions rules when determining compensation. Specifically, the Committee: (1) Is composed entirely of non-employee volunteer directors who have no familial, business or significant personal relationships with the CF Foundation or its executives. (2) Assesses the short-term and long-term contribution and performance of each executive in meeting very definitive and quantifiable objectives focused on the CF Foundation's mission success. (3) Engages an independent compensation consulting firm to compile appropriate comparability data (including compensation market information for peers with whom the CF Foundation competes for executive talent) for Committee reliance. The Committee meets with representatives of the consulting firm to review this data in detail. (4) Reviews all elements of each executive's total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executive's hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets with its independent compensation consulting firm before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executive's entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions. (5) Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting. These minutes are reviewed, revised if necessary and approved at the following meeting of the Committee. (6) Obtains a written legal opinion concerning the Committee's compliance with the IRS intermediate sanctions rules. The process described above was used to establish compensation for the following officers or key employees of the organization: President & CEO Executive Vice President & COO Executive Vice President for Medical Affairs Executive Vice President & CFO Vice President of Field Management The process was last undertaken in 2014.
PUBLIC INSPECTION	PART VI, SECTION C, LINE 19 (PAGE 6 CORE FORM) Forms 1023 and 990-T for the Organization were available on its website, CFF.org and the Organization's website provided a direct link to its Form 990 on Guidestar.org. The Foundation's governing documents (Bylaws and Articles of Incorporation) were available upon request by contacting the National Office of the Cystic Fibrosis Foundation in writing or by phone. Information on how to obtain the governing documents was also available on the Foundation's website, www.cff.org during 2014. The Board and Officer Conflict of Interest Policy and the audited financial statements were available on the Foundation's website, www.cff.org during 2014.
COMPENSATION OF OFFICERS, DIRECTORS, TRUSTEES, KEY EMPLOYEES, ETC	PART VII, SECTION A: NAME AND TITLE MICHAEL L. BEATTY ESQ., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE J. TAYLOR CRANDALL, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE RICHARD L. DANDURAND, VICE CHAIRMAN AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE LOUIS DEFALCO, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE RICHARD J. GRAY ESQ., VICE CHAIRMAN AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CAROLE B. GRIEGO, M.D., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE SUSAN L. HOOK, LEADERSHIP COUNCIL CHAIR AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CATHERINE C. MCLOUD, CHAIR AVG HRS WORKED 8 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CHAD T. MOORE, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE DAVID A. MOUNT, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE GARY B. SABIN, VICE CHAIRMAN AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE STEVEN SHAK, M.D., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CHARLES J. THAYER, TREASURER AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE AMY S. WEINBERG, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE PAUL W. WHETSELL, EXEC VICE CHAIRMAN AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE KC BRYAN WHITE, ADULT ADVISORY COUNCIL CHAIR AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE ROBERT J. BEALL, PH.D., PRES/CEO AVG HRS WORKED 36 HRS AVG HRS WORKED - RELATED 24 HRS POSITION INDIVIDUAL TRUSTEE & OFFICER REPORTABLE COMP FROM THE ORG 650,137 REPORTABLE COMP FROM RELATED ORG 323,554 EST. AMT OF OTHER COMP FROM THE ORG 224,033 NAME AND TITLE C. RICHARD MATTINGLY, EXEC VP, COO & SECRETARY AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED 10 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 645,755 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 189,266 NAME AND TITLE PRESTON CAMPBELL, M.D., EXEC VP OF MEDICAL AFFAIRS AVG HRS WORKED 36 HRS AVG HRS WORKED - RELATED 24 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 432,875 REPORTABLE COMP FROM RELATED ORG 213,925 EST. AMT OF OTHER COMP FROM THE ORG 174,822 NAME AND TITLE VERA H. TWIGG, EXECUTIVE VP & CFO AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED 10 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 461,903 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 85,449 NAME AND TITLE MAUREEN FRASER, VP OF FIELD MGMT AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION KEY EMPLOYEE REPORTABLE COMP FROM THE ORG 219,955 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 40,382 NAME AND TITLE DANIEL KLEIN, SR VP PATIENT ACCESS PROGRAMS AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 294,147 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 67,981 NAME AND TITLE CHRISTOPHER PENLAND, PH.D., VP OF RESEARCH AVG HRS WORKED 35 HRS AVG HRS WORKED - RELATED 15 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 199,932 REPORTABLE COMP FROM RELATED ORG 30,745 EST. AMT OF OTHER COMP FROM THE ORG 49,478 NAME AND TITLE DAVID MCLOUGHLIN, SR. VP OF OPS AVG HRS WORKED 35 HRS AVG HRS WORKED - RELATED 15 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 233,360 REPORTABLE COMP FROM RELATED ORG 69,839 EST. AMT OF OTHER COMP FROM THE ORG 57,656 NAME AND TITLE GLEN GOLDMARK, VP OF HUMAN RES. AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 239,238 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 47,024 NAME AND TITLE MARY DWIGHT, SVP POLICY AND COMMUNITY AFFAIRS AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 221,875 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 60,062 TOTAL REPORTABLE COMP FROM THE ORG 3,599,177 TOTAL REPORTABLE COMP FROM RELATED ORG 638,063 TOTAL EST. AMT OF OTHER COMP FROM THE ORG 996,153
UNRESTRICTED NET ASSETS - BOARD DESIGNATED	FORM 990, PART X, LINE 27 The Foundation's unrestricted net assets totalled $3,796,361,145 as of December 31, 2014. Of this amount, the Foundation's Board of Trustees has designated $3,300,000,000 to be spent in support of the mission of the Foundation over the long term.
SIGNIFICANT DIVERSION OF THE ORGANIZATION'S ASSETS	Part VI, Section A, Line 5 (Page 6 Core Form) During the year, the organization's internal controls detected misappropriations of Foundation assets, which amounted to approximately $1,470,000. The misappropriations were carried out from 2010 to September 2014, with approximately $1,233,000 of the losses incurred between January 2013 and September 2014. These misappropriations involved IT equipment that was stolen by two employees, and fraudulent invoicing by a vendor and employee. Upon discovery, the Foundation immediately notified the Audit Committee of the Board of Trustees who engaged an independent law firm to investigate the schemes. The individuals involved are no longer employed by the Foundation and the Foundation has terminated its business relationship with the vendor involved in the fraudulent invoicing. The Foundation is cooperating with law enforcement officials in support of prosecution of any individuals who have violated the law. The Foundation has filed claims with its insurance company and corrective actions have been instituted.

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 51056K

Schedule O (Form 990 or 990-EZ) 2014

Additional Data

Software ID:
Software Version:

		Prior Year	Current Year
8	Contributions and grants (Part VIII, line 1h) .........	279,115,653	3,285,132,614
9	Program service revenue (Part VIII, line 2g) .........	2,168,133	2,155,742
10	Investment income (Part VIII, column (A), lines 3, 4, and 7d ) ....	8,179,793	55,016,588
11	Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e)	8,226,904	6,708,116
12	Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)...................	297,690,483	3,349,013,060
13	Grants and similar amounts paid (Part IX, column (A), lines 1–3 )...	27,334,715	32,902,431
14	Benefits paid to or for members (Part IX, column (A), line 4).....	0	0
15	Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10)	25,419,186	25,951,581
16a	Professional fundraising fees (Part IX, column (A), line 11e).....	0	192,000
b	Total fundraising expenses (Part IX, column (D), line 25) 9,348,560
17	Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e)....	22,293,820	20,975,426
18	Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25)	75,047,721	80,021,438
19	Revenue less expenses. Subtract line 18 from line 12.......	222,642,762	3,268,991,622
		Beginning of Current Year	End of Year
20	Total assets (Part X, line 16).............	692,698,706	3,922,688,693
21	Total liabilities (Part X, line 26).............	94,932,860	108,325,747
22	Net assets or fund balances. Subtract line 21 from line 20.....	597,765,846	3,814,362,946

Sign Here

	Signature of officer	Date

	Type or print name and title


4a	(Code: ) (Expenses $ 45,089,603 including grants of $ 31,088,737 ) (Revenue $ 2,155,742 )
	Medical Programs - Since 1955, the Cystic Fibrosis Foundation has been dedicated to curing and controlling cystic fibrosis (CF). The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis, a life-threatening genetic disease that affects 30,000 children and adults in the United States, and 70,000 people worldwide. The treatment and care protocols developed by the CF Foundation are helping tens of thousands of people with the disease live longer, healthier lives. To support its mission, the Foundation funds and accredits a nationwide network of 110 care centers. The care center network provides the best care for people with CF and has been recognized by the National Institutes of Health as a model of care for a chronic disease. Through the Foundation's efforts, the life expectancy of a child with CF has doubled in the last 30 years, and research to find a cure is more promising than ever before. The Foundation provides much-needed support for patients and their families as they manage the difficult consequences of the disease - from supporting specialized, quality CF care to providing information and support to help people with CF access that care. The Foundation's patient registry collects information on the health status of more than 28,600 CF patients, providing caregivers and researchers critical information to help identify new health trends and effective treatments and improve the quality of CF care. The patient registry is an internationally recognized model for other nonprofit health organizations, including CF advocacy groups. Medical programs consist of approximately 338 grants and other costs to support scientific studies/investigations and cystic fibrosis centers. Approximately 165 grants totaling $15 million were awarded to cystic fibrosis care centers serving approximately 28,600 patients.

4b	(Code: ) (Expenses $ 3,724,005 including grants of $ 1,813,694 ) (Revenue $ 0 )
	The mission of the Cystic Fibrosis Patient Assistance Foundation (CFPAF) is to assist cystic fibrosis patients residing in the United States, regardless of their health insurance coverage or financial resources, with access to FDA-approved drugs (and paired devices) for the inhaled treatment of cystic fibrosis pulmonary disease and to medications for the treatment of pancreatic insufficiency. Furthermore, CFPAF is committed to maintaining the highest standards of customer service and operating efficiency, in order to maximize the support and assistance that it can provide to the CF community. Since its inception, Cystic Fibrosis Patient Assistance Foundation, LLC (CFPAF) has responded to 46,496 calls for assistance. In 2014, CFPAF provided $1,813,694 in patient assistance grants to 1,167 CF patients and assisted 190 in filing for benefits.

4c	(Code: ) (Expenses $ 10,589,008 including grants of $ 0 ) (Revenue $ 0 )
	Public and Professional Information and Education - To broaden its reach and to support its mission, the CF Foundation has programs designed to improve the knowledge of CF patients and their families, medical professionals and the general public regarding the disease. In 2014, there were 17 publications and 29 videos produced and made available for patients, families, medical professionals, and the general public. Year-round, meetings and conferences provide updates for CF researchers, physicians and allied health professionals and opportunities for collaboration on future CF research projects and treatment/care efforts. In 2014, over 3,090,075 unique visitors came to the CF Foundation's website.

4d	Other program services (Describe in Schedule O.)
	(Expenses $ 3,034,739 including grants of $ 0 ) (Revenue $ 0 )
4e	Total program service expenses62,437,355

				(A) Total revenue	(B) Related or exempt function revenue	(C) Unrelated business revenue	(D) Revenue excluded from tax under sections 512-514
1a	Federated campaigns..1a
b	Membership dues....1b
c	Fundraising events....1c
d	Related organizations...1d		3,271,167,143
e	Government grants (contributions)1e

f	All other contributions, gifts, grants, and similar amounts not included above1f		13,965,471

g	Noncash contributions included in lines 1a-1f:$
h	Total. Add lines 1a-1f.......			3,285,132,614
			Business Code
2a	SCIENTIFIC CONFERENCE		611600	1,990,732	1,990,732
b	TRANSITION SERVICES		541610	80,261	80,261
c	REFUNDED OR CANCELLED GRANTS		900099	84,749	84,749
d
e
f	All other program service revenue .
g	Total. Add lines 2a–2f........			2,155,742
3	Investment income (including dividends, interest, and other similar amounts).......			47,793,478			47,793,478
4	Income from investment of tax-exempt bond proceeds..			0
5	Royalties...........			6,366,649			6,366,649
		(i) Real	(ii) Personal
6a	Gross rents
b	Less: rental expenses
c	Rental income or (loss)	0	0
d	Net rental income or (loss).......			0
		(i) Securities	(ii) Other
7a	Gross amount from sales of assets other than inventory	521,781,867
b	Less: cost or other basis and sales expenses	514,493,068	65,689
c	Gain or (loss)	7,288,799	-65,689
d	Net gain or (loss)..........			7,223,110			7,223,110
8a	Gross income from fundraising events (not including $ of contributions reported on line 1c). See Part IV, line 18 ..
	a
b	Less: direct expenses ...b
c	Net income or (loss) from fundraising events..			0
9a	Gross income from gaming activities. See Part IV, line 19 ...
	a
b	Less: direct expenses ...b
c	Net income or (loss) from gaming activities...			0
10a	Gross sales of inventory, less returns and allowances .
	a
b	Less: cost of goods sold ..b
c	Net income or (loss) from sales of inventory..			0
Miscellaneous Revenue			Business Code
11a	LIST RENTAL		533110	341,467			341,467
b
c
d	All other revenue ....
e	Total. Add lines 11a–11d ......			341,467
12	Total revenue. See Instructions......			3,349,013,060	2,155,742		61,724,704

(a) Name, address, and EIN (if applicable) of disregarded entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Total income	(e) End-of-year assets	(f) Direct controlling entity
(1) cystic fibrosis patient assistance fdn 6931 arlington rd bethesda,MD20814 90-0350985	patient asst	DE	1,903,128	4,023,017	na

1	Briefly describe the organization’s mission or most significant activities: THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES.
2	Check this box
3	Number of voting members of the governing body (Part VI, line 1a) ........	3	17
4	Number of independent voting members of the governing body (Part VI, line 1b) .....	4	16
5	Total number of individuals employed in calendar year 2014 (Part V, line 2a) ......	5	271
6	Total number of volunteers (estimate if necessary) .............	6	250,000
7a	Total unrelated business revenue from Part VIII, column (C), line 12 ........	7a	0
b	Net unrelated business taxable income from Form 990-T, line 34 .........	7b	0

(A) Name and Title	(B) Average hours per week (list any hours for related organizations below dotted line)				(D) Reportable compensation from the organization (W- 2/1099-MISC)	(E) Reportable compensation from related organizations (W- 2/1099-MISC)	(F) Estimated amount of other compensation from the organization and related organizations
(A) Name and Title
(18) C Richard Mattingly........................................................................ EXEC VP, COO & SECRETARY	50.0 .......................10.0	X			645,755	0	189,266
(19) Preston Campbell MD........................................................................ EXEC VP OF MEDICAL AFFAIRS	36.0 .......................24.0	X			432,875	213,925	174,822
(20) Vera H Twigg........................................................................ EXECUTIVE VP AND CFO	50.0 .......................10.0	X			461,903	0	85,449
(21) Maureen Fraser........................................................................ VP OF FIELD MANAGEMENT	50.0 .......................0.0		X		219,955	0	40,382
(22) Daniel Klein........................................................................ SR VP, PATIENT ACCESS PROGRAMS	50.0 .......................0.0			X	294,147	0	67,981
(23) Christopher Penland PhD........................................................................ VP OF RESEARCH	35.0 .......................15.0			X	199,932	30,745	49,478
(24) David McLoughlin........................................................................ SR. VP OF OPERATIONS	35.0 .......................15.0			X	233,360	69,839	57,656
(25) Glen Goldmark........................................................................ VP OF HUMAN RESOURCES	50.0 .......................0.0			X	239,238	0	47,024
(26) Mary Dwight........................................................................ SVP POLICY & COMM AFFAIRS	50.0 .......................0.0			X	221,875	0	60,062

1b	Sub-Total................
c	Total from continuation sheets to Part VII, Section A....
d	Total (add lines 1b and 1c)............	3,599,177	638,063	996,153


				(A) Beginning of year		(B) End of year
1	Cash–non-interest-bearing .............			0	1	0
2	Savings and temporary cash investments .........			53,791,914	2	200,542,178
3	Pledges and grants receivable, net ...........			12,026,413	3	10,323,508
4	Accounts receivable, net .............			3,855,668	4	50,121,025
5	Loans and other receivables from current and former officers, directors, trustees, key employees, and highest compensated employees. Complete Part II of Schedule L ..................
				0	5	0
6	Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), persons described in section 4958(c)(3)(B), and contributing employers and sponsoring organizations of section 501(c)(9) voluntary employees' beneficiary organizations (see instructions) Complete Part II of Schedule L
				0	6	0
7	Notes and loans receivable, net .............			0	7	0
8	Inventories for sale or use ..............			229,641	8	265,490
9	Prepaid expenses and deferred charges ..........			1,307,422	9	923,653
10a	Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D	10a	8,353,181
b	Less: accumulated depreciation .....	10b	5,465,660	3,313,390	10c	2,887,521
11	Investments—publicly traded securities ..........			484,322,357	11	2,473,908,461
12	Investments—other securities. See Part IV, line 11 .....			126,808,444	12	1,176,671,743
13	Investments—program-related. See Part IV, line 11 .....			0	13	0
14	Intangible assets ...............			0	14	0
15	Other assets. See Part IV, line 11 ...........			7,043,457	15	7,045,114
16	Total assets. Add lines 1 through 15 (must equal line 34)......			692,698,706	16	3,922,688,693
17	Accounts payable and accrued expenses .........			16,483,836	17	16,831,621
18	Grants payable .................			23,236,520	18	28,741,961
19	Deferred revenue ................			4,992,667	19	3,325,808
20	Tax-exempt bond liabilities .............			0	20	0
21	Escrow or custodial account liability. Complete Part IV of Schedule D..			0	21	0
22	Loans and other payables to current and former officers, directors, trustees, key employees, highest compensated employees, and disqualified
	persons. Complete Part II of Schedule L..........			0	22	0
23	Secured mortgages and notes payable to unrelated third parties ..			0	23	0
24	Unsecured notes and loans payable to unrelated third parties ....			0	24	0
25	Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17-24). Complete Part X of Schedule D....................			50,219,837	25	59,426,357
26	Total liabilities. Add lines 17 through 25.........			94,932,860	26	108,325,747
	Organizations that follow SFAS 117 (ASC 958), check here and complete lines 27 through 29, and lines 33 and 34.
27	Unrestricted net assets ..............			574,947,148	27	3,796,361,145
28	Temporarily restricted net assets ...........			18,850,884	28	14,083,576
29	Permanently restricted net assets ...........			3,967,814	29	3,918,225
	Organizations that do not follow SFAS 117 (ASC 958), check here and complete lines 30 through 34.
30	Capital stock or trust principal, or current funds ........				30
31	Paid-in or capital surplus, or land, building or equipment fund .....				31
32	Retained earnings, endowment, accumulated income, or other funds				32
33	Total net assets or fund balances ...........			597,765,846	33	3,814,362,946
34	Total liabilities and net assets/fund balances ........			692,698,706	34	3,922,688,693

1	Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes,"the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926)......................................	Yes	No
2	Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A; do not file with Form 990)............................	Yes	No
3	Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471)..............................	Yes	No
4	Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621)...............................................	Yes	No
5	Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships. (see Instructions for Form 8865)....................................	Yes	No
6	Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to file Form 5713, International Boycott Report (see Instructions for Form 5713; do not file with Form 990).....................................	Yes	No

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Exempt Code section	(e) Public charity status (if section 501(c)(3))	(f) Direct controlling entity	(g) Section 512(b)(13) controlled entity?
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Exempt Code section	(e) Public charity status (if section 501(c)(3))	(f) Direct controlling entity	Yes	No
(1) cystic fibrosis foundation therapeutics 6931 ARLINGTON RD BETHESDA,MD20814 91-2059167	RESEARCH	MD	501(c)(3)	11A	CFF-HQ	Yes
(2) CYSTIC FIBROSIS FOUNDATION GROUP 6931 ARLINGTON RD BETHESDA,MD20814 13-6161105	EDUCATION	DE	501(c)(3)	7	cfF-hq	Yes

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(f) Share of total income	(g) Share of end-of-year assets	(h) Disproprtionate allocations?		(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	(j) General or managing partner?
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(f) Share of total income	(g) Share of end-of-year assets	Yes	No	(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	Yes	No

(a) Name of related organization	(b) Transaction type (a-s)	(c) Amount involved	(d) Method of determining amount involved
(1) CYSTIC FIBROSIS FOUNDATION THERAPEUTICS	C	3,180,372,057	FMV
(2) CYSTIC FIBROSIS FOUNDATION GROUP	c	90,795,086	FMV
(3) CYSTIC FIBROSIS FOUNDATION THERAPEUTICS	N	1,330,603	COST
(4) CYSTIC FIBROSIS FOUNDATION THERAPEUTICS	O	3,615,373	COST

(a) Name, address, and EIN of entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	(e) Are all partners section 501(c)(3) organizations?		(f) Share of total income	(g) Share of end-of-year assets	(h) Disproprtionate allocations?		(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	(j) General or managing partner?
(a) Name, address, and EIN of entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	Yes	No	(f) Share of total income	(g) Share of end-of-year assets	Yes	No	(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	Yes	No