Attach to Form 990 or Form 990-EZ.
Information about Schedule A (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.
| (i)Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 9 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
| Total | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2011 | (b) 2012 | (c) 2013 | (d) 2014 | (e) 2015 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any unusual grants.) .... | ||||||
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....... | ||||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 4 | Total. Add lines 1 through 3 | ||||||
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f).. | ||||||
| 6 | Public support. Subtract line 5 from line 4. | ||||||
Calendar year
(or fiscal year beginning in) ![]() |
(a) 2011 | (b) 2012 | (c) 2013 | (d) 2014 | (e) 2015 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | ||||||
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | ||||||
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | ||||||
| 11 | Total support. Add lines 7 through 10. | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2011 | (b) 2012 | (c) 2013 | (d) 2014 | (e) 2015 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | 451,976 | 422,979 | 490,953 | 586,153 | 614,865 | 2,566,926 |
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose...... | 85,080 | 112,314 | 125,976 | 152,209 | 205,360 | 680,939 |
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 6 | Total. Add lines 1 through 5. | 537,056 | 535,293 | 616,929 | 738,362 | 820,225 | 3,247,865 |
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons... | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | 3,247,865 | |||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2011 | (b) 2012 | (c) 2013 | (d) 2014 | (e) 2015 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | 537,056 | 535,293 | 616,929 | 738,362 | 820,225 | 3,247,865 |
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | 12,403 | 13,986 | 12,131 | 11,846 | 4,010 | 54,376 |
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | 12,403 | 13,986 | 12,131 | 11,846 | 4,010 | 54,376 |
| 11 | Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | 549,459 | 549,279 | 629,060 | 750,208 | 824,235 | 3,302,241 |
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
||||
| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
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| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by .035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | ||
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
||
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | ||
| 4 Amounts paid to acquire exempt-use assets | ||
| 5 Qualified set-aside amounts (prior IRS approval required) | ||
| 6 Other distributions (describe in Part VI). See instructions | ||
| 7Total annual distributions. Add lines 1 through 6. | ||
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
||
| 9 Distributable amount for 2015 from Section C, line 6 | ||
| 10 Line 8 amount divided by Line 9 amount | ||
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2015 |
(iii) Distributable Amount for 2015 |
|
|---|---|---|---|---|
|
1
Distributable amount for 2015 from Section C, line 6 |
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|
2
Underdistributions, if any, for years prior to 2015 (reasonable cause required--see instructions) |
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| 3 Excess distributions carryover, if any, to 2015: | ||||
| a | ||||
| b | ||||
| c | ||||
| d From 2013....... | ||||
| e From 2014....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2015 distributable amount | ||||
|
i
Carryover from 2010 not applied (see instructions) |
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| j Remainder. Subtract lines 3g, 3h, and 3i from 3f. | ||||
| 4Distributions for 2015 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2015 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from 4. | ||||
|
5
Remaining underdistributions for years prior to 2015, if any. Subtract lines 3g and 4a from line 2 (if amount greater than zero, see instructions) |
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|
6
Remaining underdistributions for 2015. Subtract lines 3h and 4b from line 1 (if amount greater than zero, see instructions) |
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|
7 Excess distributions carryover to 2016. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a | ||||
| b | ||||
| c Excess from 2013....... | ||||
| d From 2014....... | ||||
| e From 2015....... | ||||
| Facts And Circumstances Test |
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| Return Reference | Explanation |
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| Software ID: | |
| Software Version: |
Attach to Form 990 or 990-EZ.
Information about Schedule O (Form 990 or 990-EZ) and its instructions is at| Return Reference | Explanation |
|---|---|
| FORM 990 - ORGANIZATION'S MISSION | THE MISSION OF THE PSC PARTNERS SEEKING A CURE FOUNDATION IS TO PROVIDE EDUCATION AND SUPPORT TO PSC PATIENTS, FAMILIES AND CAREGIVERS AND TO RAISE FUNDS TO RESEARCH CAUSES, TREATMENTS AND POTENTIAL CURES FOR PRIMARY SCLEROSING CHOLANGITIS. OTHER SIGNIFICANT ACTIVITIES THE MEMBERS OF THE PSCP SCIENTIFIC/MEDICAL ADVISORY COMMITTEE ARE ACTIVELY ENGAGED IN DECIDING WHERE TO ALLOCATE OUR FUNDS FOR PSC RESEARCH. THROUGH THIS COMPETITIVE PROGRAM, PSCP HAS AWARDED RESEARCH GRANTS TO PROMINENT PSC RESEARCHERS. IN 2014, PSCP LAUNCHED THE PSC PARTNERS PATIENT REGISTRY. THE GOAL OF THE REGISTRY IS TO COLLECT DE-IDENTIFIED (ANONYMOUS) INFORMATION ON PATIENTS DIAGNOSED WITH PRIMARY SCLEROSING CHOLANGITIS (PSC) IN ORDER TO INCREASE AND ACCELERATE RESEARCH, ENABLE CLINICAL AND DRUG TRIALS, AND FIND EFFECTIVE TREATMENTS FOR PSC. PSC IS A POORLY UNDERSTOOD DISEASE FOR WHICH THERE ARE CURRENTLY NO EFFECTIVE THERAPIES AND NO KNOWN CURE. WE HOPE THAT OUR PATIENT REGISTRY WILL PROVIDE A FORUM FOR PSC PATIENTS FROM ALL OVER THE WORLD TO SHARE THEIR MEDICAL INFORMATION AND PROVIDE RESEARCHER WITH DATA THAT WILL LEAD TO A BETTER UNDERSTANDING OF PSC. SINCE 2005 PSCP HAS HELD ANNUAL PATIENT CONFERENCES FOR PSC PATIENTS AND CAREGIVERS AT DIFFERENT MEDICAL CENTERS THROUGHOUT THE COUNTRY. THESE WEEKEND CONFERENCES OFFER THE OPPORTUNITY TO LEARN ABOUT THE MOST RECENT ADVANCES IN PSC TREATMENTS AND RESEARCH AND ALSO TO SHARE EXPERIENCES, ADVICE, AND CONCERNS WITH OTHER PSCERS. PSCP HAS STARTED HOLDING LOCAL FORUMS FOR PSC PATIENTS AND CAREGIVERS. THE PSC PARTNERS SEEKING A CURE WEBSITE INCLUDES ADVICE AND PERSONAL STORIES FROM OUR MEMBERS, SO THAT WE CAN OFFER VALUABLE EVERYDAY LIVING SUGGESTIONS TO PSCERS IN ADDITION TO UPDATES ON TREATMENTS AND MEDICAL RESEARCH. IN ADDITION, PSCP PUBLISHES A FREE ONLINE NEWSLETTER WITH UPDATES ABOUT THE LATEST TREATMENTS, RESEARCH RESULTS, AND COPING SUGGESTIONS. |
| FORM 990, PAGE 6, PART VI, LINE 11B | ALL MEMBERS OF THE BOARD OF DIRECTORS RECEIVE A COPY OF THE 990 PRIOR TO IT BEING FILED. |
| FORM 990, PAGE 6, PART VI, LINE 12C | ANNUAL DISCLOSURE OF CONFLICTS OF INTEREST REQUIRED. |
| FORM 990, PAGE 6, PART VI, LINE 15A | CEO AND BOARD OF DIRECTORS DO NOT RECEIVE COMPENSATION COMPENSATION POLICY FOR EXECUTIVE DIRECTOR THE CORPORATION'S PRIMARY OBJECTIVE IS TO PROVIDE REASONABLE AND COMPETITIVE EXECUTIVE TOTAL COMPENSATION CONSISTENT WITH MARKET-BASED COMPENSATION PRACTICES FOR INDIVIDUALS POSSESSING THE EXPERIENCE AND SKILLS NEEDED TO IMPROVE THE OVERALL PERFORMANCE OF THE ORGANIZATION. THE ORGANIZATION'S EXECUTIVE COMPENSATION POLICY IS DESIGNED TO: A) ENCOURAGE THE ATTRACTION AND RETENTION OF HIGH-CALIBER EXECUTIVES. B) PROVIDE A COMPETITIVE TOTAL COMPENSATION PACKAGE, INCLUDING BENEFITS. C) ENSURE THAT PAY IS PERCEIVED TO BE FAIR AND EQUITABLE. D) ENSURE THAT THE POLICY COMPLIES WITH I.R.S. REGULATIONS AND STATE AND FEDERAL LEGISLATION. ESTABLISHMENT OF COMPENSATION COMMITTEE A COMPENSATION COMMITTEE OF THE BOARD WILL BE ESTABLISHED ANNUALLY BY THE BOARD CHAIR AS AN AD HOC COMMITTEE. THE COMPENSATION COMMITTEE WILL ADMINISTER THIS POLICY. THE FOLLOWING COMPONENTS WILL BE PRESENT IN THE PROCESS OF SETTING EXECUTIVE COMPENSATION: REVIEW/APPROVAL BY THE BOARD. NO INVOLVEMENT OF PERSONS WITH CONFLICTS OF INTEREST. COLLECTION AND USE OF COMPENSATION DATA FOR SIMILARLY QUALIFIED PERSONS IN COMPARABLE POSITIONS AT SIMILARLY SITUATED ORGANIZATIONS. CONTEMPORANEOUS DOCUMENTATION AND RECORDKEEPING. REVIEW/APPROVAL BY THE BOARD THE CORPORATION'S EXECUTIVE COMPENSATION POLICY IS ADMINISTERED BY THE COMPENSATION COMMITTEE OF THE BOARD. THE COMPENSATION COMMITTEE IS RESPONSIBLE FOR ESTABLISHING AND MAINTAINING A COMPETITIVE COMPENSATION POLICY FOR THE KEY EXECUTIVES OF THE ORGANIZATION. THE COMMITTEE MEETS AS NEEDED TO REVIEW THE COMPENSATION POLICY AND MAKE RECOMMENDATIONS FOR ANY CHANGES TO THE BOARD, AS APPROPRIATE. NO INVOLVEMENT OF PERSONS WITH CONFLICTS OF INTEREST THE BOARD CHAIR, IN APPOINTING THE COMPENSATION COMMITTEE WILL ENSURE THAT NO MEMBER OF THE COMPENSATION COMMITTEE HAS A CONFLICT OF INTEREST THAT WOULD IMPAIR THEIR ABILITY TO BE FAIR AND IMPARTIAL TO THE COMPENSATION PROCESS. FURTHER, THE COMPENSATION COMMITTEE WILL ENGAGE AN INDEPENDENT FIRM TO REVIEW COMPARABLE COMPENSATION DATA, ALONG WITH THE PROPOSED COMPENSATION FOR KEY EXECUTIVES. COLLECTION AND USE OF COMPENSATION DATA COMPENSATION MUST BE COMMENSURATE WITH THE DUTIES AND RESPONSIBILITIES OF THE PERSON BEING COMPENSATED. REASONABLE COMPENSATION IS THE AMOUNT THAT WOULD ORDINARILY BE PAID FOR LIKE SERVICES BY LIKE ENTERPRISES, WHETHER TAXABLE OR TAX-EXEMPT, UNDER LIKE CIRCUMSTANCES. IN ORDER TO SATISFY THE REBUTTABLE PRESUMPTION SAFE HARBOR PROCEDURE, THE COMPENSATION COMMITTEE WILL RELY ON THE FOLLOWING DEFINITIONS WHEN SEEKING COMPARABILITY DATA TO MAKE ITS DETERMINATION REGARDING COMPENSATION ISSUES. LIKE SERVICES. IN COMPARING AN INDIVIDUAL'S COMPENSATION TO ANOTHER INDIVIDUAL'S COMPENSATION, THE COMPARISON MUST BE BASED ON SUBSTANTIALLY SIMILAR DUTIES AND RESPONSIBILITIES. THE I.R.S. HAS STATED THAT THE KEY IS COMPARING DUTIES AND RESPONSIBILITIES, A FUNCTIONAL COMPARISON, AND NOT THE JOB TITLE. TO DETERMINE WHETHER THE INDIVIDUAL'S COMPENSATION IS COMMENSURATE WITH OTHERS IN THE SAME POSITION AND THUS REASONABLE, THE I.R.S. CONSIDERS, AMONG OTHER FACTORS: THE INDIVIDUAL'S DUTIES AND RESPONSIBILITIES. THE NUMBER OF EMPLOYEES THE INDIVIDUAL MANAGES. THE SIZE OF THE BUDGET OR ASSETS THE INDIVIDUAL MANAGES. THE NUMBER OF HOURS WORKED. WHETHER THE JOB IS NATIONAL OR LOCAL IN SCOPE. WHETHER THE INDIVIDUAL MANAGES MULTIPLE FUNCTIONS OR DEPARTMENTS. LIKE ENTERPRISES. COMPARISONS OF ENTERPRISES NEED TO BE BASED ON ENTITIES OF SIMILAR SIZE. INDICATORS OF SIZE INCLUDE NUMBER OF EMPLOYEES, NUMBER OF PERSONS SERVED BY THE ORGANIZATION, BUDGET AND REVENUES. ADDITIONALLY, THE COMPARABLES SHOULD COME FROM THE SAME INDUSTRY SO AS TO BEST MATCH THE INDIVIDUAL'S DUTIES AND RESPONSIBILITIES. TAX-EXEMPT ORGANIZATIONS CAN LOOK TO BOTH THE FOR-PROFIT AND NON-PROFIT SECTORS TO DETERMINE REASONABLE COMPENSATION. LIKE CIRCUMSTANCES. COMPENSATION PACKAGES BEING COMPARED MUST CONSIST OF A SIMILAR MIX OF COMPENSATION ITEMS. ALL FORMS OF COMPENSATION MUST BE PROPERLY AGGREGATED AND ACCOUNTED AND INCLUDED IN TOTAL COMPENSATION. THE ORGANIZATION SHOULD ALSO USE COMPARABLES FROM THE SAME GEOGRAPHIC AREA WHERE POSSIBLE. THE AVAILABILITY OF SIMILAR SERVICES IN THE GEOGRAPHIC AREA OF THE ORGANIZATION IS RELEVANT TO DETERMINING THE APPROPRIATE LEVEL OF COMPENSATION. IF THERE ARE NOT COMPARABLES IN THE GEOGRAPHIC AREA, THE TAX-EXEMPT ORGANIZATION CAN GO OUTSIDE OF THAT GEOGRAPHIC AREA FOR COMPARABLES BUT MUST MAKE APPROPRIATE COST-OF-LIVING ADJUSTMENTS. THE COMPENSATION COMMITTEE WILL USE AT LEAST THREE COMPARABLES IN THE SAME OR SIMILAR COMMUNITIES FOR SIMILAR SERVICES. THE TARGET RANGE FOR TOTAL COMPENSATION FOR KEY EXECUTIVES IS AT OR BELOW THE FIFTIETH PERCENTILE FOR THE RELEVANT MARKET. CONTEMPORANEOUS DOCUMENTATION AND RECORDKEEPING THE COMPENSATION COMMITTEE WILL ADEQUATELY DOCUMENT THE BASIS FOR ITS DETERMINATION. TO "ADEQUATELY DOCUMENT" THE DECISION FOR PURPOSES OF THE REBUTTABLE PRESUMPTION PROCESS, THE RECORDS OF THE COMPENSATION COMMITTEE MUST STATE THE TERMS OF THE COMPENSATION PACKAGE THAT WERE APPROVED, THE DATE IT WAS APPROVED, THE MEMBERS OF THE BOARD WHO WERE PRESENT DURING THE DEBATE ON THE COMPENSATION ARRANGEMENT THAT WAS APPROVED AND THOSE WHO VOTED TO APPROVE OR REJECT IT. THE DOCUMENTATION SHOULD ALSO NOTE THE COMPARABILITY DATA OBTAINED AND RELIED UPON BY THE COMPENSATION COMMITTEE, HOW IT WAS OBTAINED. ADDITIONALLY, THE COMPENSATION COMMITTEE WILL RECORD THE BASIS FOR ITS DETERMINATION WHENEVER IT DECIDES THAT REASONABLE COMPENSATION IS HIGHER OR LOWER THAN THE RANGE OF COMPARABLE DATA RECEIVED. THE DOCUMENTATION MUST BE MADE CONCURRENTLY WITH THE DETERMINATION OF THE COMPENSATION ARRANGEMENT. RECORDS MUST BE PREPARED BY THE NEXT MEETING OR WITHIN 60 DAYS OF THE COMPENSATION COMMITTEE MEETING AND MUST BE REVIEWED AND APPROVED BY THE BOARD AS REASONABLE, ACCURATE AND COMPLETE WITHIN A REASONABLE TIME THEREAFTER. |
| FORM 990, PAGE 6, PART VI, LINE 19 | UPON REQUEST |
| Software ID: | |
| Software Version: |