TY 2017 Form 990

- TIN:

Form990

Department of the TreasuryInternal Revenue Service

Return of Organization Exempt From Income Tax

Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private foundations)

Do not enter social security numbers on this form as it may be made public.

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public Inspection

A For the 2019 calendar year, or tax year beginning 07-01-2017 , and ending 06-30-2018

BCheck if applicable: Address change Name change Initial return Final return/terminated Amended return Application pending

CName of organization
American Association of Kidney Patients Inc

Doing business as

Number and street (or P.O. box if mail is not delivered to street address)
14440 Bruce B Downs Blvd

Room/suite

City or town, state or province, country, and ZIP or foreign postal code
Tampa, FL33613

D Employer identification number

11-2306416

E Telephone number

G Gross receipts $ 945,900

F Name and address of principal officer:
DIANA CLYNES
14440 Bruce B Downs Blvd
Tampa,FL33613

Tax-exempt status: 501(c)(3) 501(c) ( ) LeftBullet

(insert no.) 4947(a)(1) or 527

Website:

www.aakp.org

H(a)

Is this a group return for
subordinates? Yes No

H(b)

Are all subordinates
included?

Yes No

If "No," attach a list. (see instructions)

H(c)

Group exemption number MediumBullet

K Form of organization: Corporation Trust Association Other MediumBullet

L Year of formation: 1973

M State of legal domicile: FL

Part I

Summary

1	Briefly describe the organization’s mission or most significant activities: AAKP IS DEDICATED TO IMPROVING THE LIVES AND LONG-TERM OUTCOME OF KIDNEY PATIENTS THROUGH EDUCATION, ADVOCACY, PATIENT ENGAGEMENT AND THE FOSTERING OF PATIENT COMMUNITIES.
2	Check this box
3	Number of voting members of the governing body (Part VI, line 1a) ........	3	23
4	Number of independent voting members of the governing body (Part VI, line 1b) .....	4	23
5	Total number of individuals employed in calendar year 2019 (Part V, line 2a) ......	5	7
6	Total number of volunteers (estimate if necessary) .............	6	200
7a	Total unrelated business revenue from Part VIII, column (C), line 12 ........	7a	58,432
b	Net unrelated business taxable income from Form 990-T, line 39 .........	7b

		Prior Year	Current Year
8	Contributions and grants (Part VIII, line 1h) .........	454,193	573,211
9	Program service revenue (Part VIII, line 2g) .........	517,568	308,067
10	Investment income (Part VIII, column (A), lines 3, 4, and 7d ) ....		0
11	Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e)	38,184	48,858
12	Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)	1,009,945	930,136
13	Grants and similar amounts paid (Part IX, column (A), lines 1–3 )...		0
14	Benefits paid to or for members (Part IX, column (A), line 4).....		0
15	Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10)	282,792	338,719
16a	Professional fundraising fees (Part IX, column (A), line 11e) .....		0
b	Total fundraising expenses (Part IX, column (D), line 25) 39,264
17	Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e)....	819,666	593,543
18	Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25)	1,102,458	932,262
19	Revenue less expenses. Subtract line 18 from line 12.......	-92,513	-2,126
		Beginning of Current Year	End of Year
20	Total assets (Part X, line 16).............	222,857	464,195
21	Total liabilities (Part X, line 26).............	203,442	474,406
22	Net assets or fund balances. Subtract line 21 from line 20.....	19,415	-10,211

Part II

Signature Block

Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it is true, correct, and complete. Declaration of preparer (other than officer) is based on all information of which preparer has any knowledge.

Sign Here

	Signature of officer	Date

	Type or print name and title

Paid Preparer Use Only

Print/Type preparer's name

Preparer's signature

Date

Check if
self-employed

PTIN

Firm's name MediumBullet

Firm's EIN MediumBullet

Firm's address MediumBullet

Phone no.

May the IRS discuss this return with the preparer shown above? (see instructions) ..........YesNo

For Paperwork Reduction Act Notice, see the separate instructions.

Cat. No. 11282Y Form 990 (2019)

Form 990 (2019)

Page 2

Part III

Statement of Program Service Accomplishments

Check if Schedule O contains a response or note to any line in this Part III..............

Briefly describe the organization’s mission: AAKP is dedicated to improving the lives and long-term

Did the organization undertake any significant program services during the year which were not listed on
the prior Form 990 or 990-EZ? ..................... Yes No

If "Yes," describe these new services on Schedule O.

Did the organization cease conducting, or make significant changes in how it conducts, any program
services? ........................... Yes No

If "Yes," describe these changes on Schedule O.

Describe the organization’s program service accomplishments for each of its three largest program services, as measured by expenses. Section 501(c)(3) and 501(c)(4) organizations are required to report the amount of grants and allocations to others, the total expenses, and revenue, if any, for each program service reported.


4a	(Code: ) (Expenses $ 172,061 including grants of $ ) (Revenue $ 216,217 )
	NATIONAL PATIENT MEETING: THE AAKP NATIONAL PATIENT MEETING IS THE LARGEST GATHERING OF KIDNEY PATIENTS AND THEIR FAMILY MEMBERS IN THE U.S. HOSTED FOR MORE THAN 40 YEARS, PATIENTS AND THEIR CARE PARTNERS GAIN THE KNOWLEDGE, INFORMATION, AND ADVOCACY SKILLS NEEDED TO BE EVEN MORE EFFECTIVE IN USING THEIR VOICES AND EXPERIENCES TO IMPROVE ACCESS AND QUALITY OF CARE; INFLUENCE PUBLIC POLICY DECISIONS; BE A LEADER IN THEIR HEALTHCARE TEAM; AND MAKE INFORMED DECISIONS REGARDING THEIR HEALTHCARE PLAN. THE PATIENT MEETING ATTRACTS MORE THAN 250 ATTENDEES COMPRISED OF PATIENTS, FAMILY MEMBERS, HEALTHCARE PROFESSIONALS, GOVERNMENT REPRESENTATIVES AND INDUSTRY PARTNERS. ESTEEMED MEMBERS FROM ACROSS THE RENAL COMMUNITY INCLUDING: ALLIED ORGANIZATIONS SUCH AS AMERICAN SOCIETY OF NEPHROLOGY, AMERICAN SOCIETY OF TRANSPLANTATION, AMERICAN SOCIETY OF TRANSPLANT SUREGONS, RENAL PHYSICIANS ASSOCIATION; FELLOW NON-PROFIT ORGANIZATIONS; INDUSTRY PARTNERS AND GOVERNMENT AGENCIES SUCH AS HHS, VA, CMS, CDC, FDA, NIH, AND VA ARE REPRESENTED.

4b	(Code: ) (Expenses $ 151,032 including grants of $ ) (Revenue $ )
	AAKP FABRY DISEASE TESTING AND EDUCATION PROGRAM: WHILE A VARIETY OF FACTORS MAY CAUSE AN INDIVIDUAL TO BE DIAGNOSED WITH KIDNEY DISEASE, GENETIC CAUSES ARE ESPECIALLY DIFFICULT, DUE TO THE FACT THAT AN INDIVIDUAL MAY NOT BE AWARE THEY HAVE A GENE MUTATION PREDISPOSING THEM TO A DISEASE, THEY MAY NOT UNDERSTAND HOW EARLY DETECTION CAN HELP IDENTIFY INTERVENTIONS AND TREATMENT OPTIONS AND THEY MAY NOT UNDERSTAND IF OR HOW OTHER FAMILY MEMBERS MAY BE AT RISK FOR THE SAME DIAGNOSIS. UNDERSTANDING T

4c	(Code: ) (Expenses $ 115,926 including grants of $ ) (Revenue $ 13,598 )
	PATIENT INFORMATION AND EDUCATION: AAKP IS DEDICATED TO IMPROVING THE LIVES AND LONG-TERM OUTCOME OF KIDNEY PATIENTS THROUGH EDUCATION, ADVOCACY, PATIENT ENGAGEMENT AND THE FOSTERING OF PATIENT COMMUNITIES. AAKP FIGHTS FOR EARLY DETECTION; INCREASED KIDNEY TRANSPLANTATION AND PRE- EMPTIVE TRANSPLANTATION; FULL PATIENT CHOICE OF EITHER IN-CENTER OR HOME DIALYSIS; PROTECTION OF THE PATIENT/PHYSICIAN RELATIONSHIP; PROMOTION OF RESEARCH AND INNOVATION; THE ELIMINATION OF BARRIERS FOR PATIENT ACCESS

	(Code: ) (Expenses $ 316,250 including grants of $ ) (Revenue $ 13,598 )
	See Scheule O

4d	Other program services (Describe in Schedule O.)
	(Expenses $ 316,250 including grants of $ ) (Revenue $ 13,598 )
4e	Total program service expenses755,269

Form 990 (2019)

Page 3

Part IV

Checklist of Required Schedules

Yes

Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)? If "Yes," complete Schedule A Click to see attachment

.....................

Yes

Is the organization required to complete Schedule B, Schedule of Contributors (see instructions)? Click to see attachment

...

Yes

Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office? If "Yes," complete Schedule C, Part I.............

Section 501(c)(3) organizations. Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year? If "Yes," complete Schedule C, Part II.........

Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Revenue Procedure 98-19? If "Yes," complete Schedule C, Part III..

Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts? If "Yes," complete Schedule D, Part I.........................

Did the organization receive or hold a conservation easement, including easements to preserve open space,
the environment, historic land areas, or historic structures? If "Yes," complete Schedule D, Part II....

Did the organization maintain collections of works of art, historical treasures, or other similar assets? If "Yes,"
complete Schedule D, Part III..............

Did the organization report an amount in Part X, line 21 for escrow or custodial account liability; serve as a custodian for amounts not listed in Part X; or provide credit counseling, debt management, credit repair, or debt negotiation services? If "Yes," complete Schedule D, Part IV..............

Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi endowments? If "Yes," complete Schedule D, Part V......

If the organization’s answer to any of the following questions is "Yes," then complete Schedule D, Parts VI, VII, VIII, IX, or X as applicable.

Did the organization report an amount for land, buildings, and equipment in Part X, line 10? If "Yes," complete
Schedule D, Part VI. Click to see attachment

...................

11a

Yes

Did the organization report an amount for investments—other securities in Part X, line 12 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VII.......

11b

Did the organization report an amount for investments—program related in Part X, line 13 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIII.......

11c

Did the organization report an amount for other assets in Part X, line 15 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part IX............

11d

Did the organization report an amount for other liabilities in Part X, line 25? If "Yes," complete Schedule D, Part X

11e

Did the organization’s separate or consolidated financial statements for the tax year include a footnote that addresses the organization’s liability for uncertain tax positions under FIN 48 (ASC 740)? If "Yes," complete Schedule D, Part X Click to see attachment

11f

Yes

12a

Did the organization obtain separate, independent audited financial statements for the tax year? If "Yes," complete
Schedule D, Parts XI and XII Click to see attachment

......................

12a

Yes

Was the organization included in consolidated, independent audited financial statements for the tax year? If "Yes," and if the organization answered "No" to line 12a, then completing Schedule D, Parts XI and XII is optional

12b

Is the organization a school described in section 170(b)(1)(A)(ii)? If "Yes," complete Schedule E

14a

Did the organization maintain an office, employees, or agents outside of the United States? .....

14a

Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more? If "Yes," complete Schedule F, Parts I and IV.........

14b

Did the organization report on Part IX, column (A), line 3, more than $5,000 of grants or other assistance to or for any foreign organization? If “Yes,” complete Schedule F, Parts II and IV.....

Did the organization report on Part IX, column (A), line 3, more than $5,000 of aggregate grants or other assistance to or for foreign individuals? If “Yes,” complete Schedule F, Parts III and IV...

Did the organization report a total of more than $15,000 of expenses for professional fundraising services on Part IX, column (A), lines 6 and 11e? If "Yes," complete Schedule G, Part I(see instructions) ....

Did the organization report more than $15,000 total of fundraising event gross income and contributions on Part VIII, lines 1c and 8a? If "Yes," complete Schedule G, Part II............ Click to see attachment

Yes

Did the organization report more than $15,000 of gross income from gaming activities on Part VIII, line 9a? If "Yes," complete Schedule G, Part III...................

20a

Did the organization operate one or more hospital facilities? If "Yes," complete Schedule H....

20a

If "Yes" to line 20a, did the organization attach a copy of its audited financial statements to this return?

20b

Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government on Part IX, column (A), line 1? If “Yes,” complete Schedule I, Parts I and II.....

Form 990 (2019)

Page 4

Part IV

Checklist of Required Schedules (continued)

Yes

Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals on Part IX, column (A), line 2? If “Yes,” complete Schedule I, Parts I and III........

Did the organization answer "Yes" to Part VII, Section A, line 3, 4, or 5 about compensation of the organization’s current and former officers, directors, trustees, key employees, and highest compensated employees? If "Yes," complete Schedule J.......................

24a

Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002? If “Yes,” answer lines 24b through 24d and complete Schedule K. If “No,” go to line 25a...............

24a

Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?...

24b

Did the organization maintain an escrow account other than a refunding escrow at any time during the year
to defease any tax-exempt bonds? ...............

24c

Did the organization act as an "on behalf of" issuer for bonds outstanding at any time during the year?...

24d

25a

Section 501(c)(3), 501(c)(4), and 501(c)(29) organizations. Did the organization engage in an excess benefit transaction with a disqualified person during the year? If "Yes," complete Schedule L, Part I ....

25a

Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization’s prior Forms 990 or 990-EZ? If "Yes," complete Schedule L, Part I.......................

25b

Did the organization report any amount on Part X, line 5 or 22 for receivables from or payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons? If "Yes," complete Schedule L, Part II...........

Did the organization provide a grant or other assistance to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or employee thereof, a grant selection committee member, or to a 35% controlled entity (including an employee thereof) or family member of any of these persons?

If "Yes," complete

Schedule L, Part III.........................

Was the organization a party to a business transaction with one of the following parties (see Schedule L, Part IV instructions for applicable filing thresholds, conditions, and exceptions):

A current or former officer, director, trustee, key employee, creator or founder, or substantial contributor? If "Yes," complete Schedule L, Part IV......................

28a

A family member of any individual described in line 28a? If "Yes," complete Schedule L, Part IV.....

28b

A 35% controlled entity of one or more individuals and/or organizations described in lines 28a or 28b? If "Yes," complete Schedule L, Part IV.....................

28c

Did the organization receive more than $25,000 in non-cash contributions? If "Yes," complete Schedule M..

Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions? If "Yes," complete Schedule M .................

Did the organization liquidate, terminate, or dissolve and cease operations? If "Yes," complete Schedule N, Part I

Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets? If "Yes," complete Schedule N, Part II........................

Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3? If "Yes," complete Schedule R, Part I............

Was the organization related to any tax-exempt or taxable entity? If "Yes," complete Schedule R, Part II, III, or IV, and Part V, line 1.........................

35a

Did the organization have a controlled entity within the meaning of section 512(b)(13)?

35a

If ‘Yes’ to line 35a, did the organization receive any payment from or engage in any transaction with a controlled entity within the meaning of section 512(b)(13)? If "Yes," complete Schedule R, Part V, line 2 ...

35b

Section 501(c)(3) organizations. Did the organization make any transfers to an exempt non-charitable related organization? If "Yes," complete Schedule R, Part V, line 2.............

Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes? If "Yes," complete Schedule R, Part VI

Did the organization complete Schedule O and provide explanations in Schedule O for Part VI, lines 11b and 19? Note. All Form 990 filers are required to complete Schedule O. ............

Yes

Part V

Statements Regarding Other IRS Filings and Tax Compliance
Check if Schedule O contains a response or note to any line in this Part V...........

Yes

Enter the number reported in Box 3 of Form 1096. Enter -0- if not applicable ..

Enter the number of Forms W-2G included in line 1a. Enter -0- if not applicable .

Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners? ..................

Yes

Form 990 (2019)

Page 5

Part V

Statements Regarding Other IRS Filings and Tax Compliance (continued)

Enter the number of employees reported on Form W-3, Transmittal of Wage and
Tax Statements, filed for the calendar year ending with or within the year covered by this return ..................

If at least one is reported on line 2a, did the organization file all required federal employment tax returns?
Note. If the sum of lines 1a and 2a is greater than 250, you may be required to e-file (see instructions)

Yes

Did the organization have unrelated business gross income of $1,000 or more during the year?...

Yes

If “Yes,” has it filed a Form 990-T for this year? If “No” to line 3b, provide an explanation in Schedule O...

Yes

At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)? ..

If "Yes," enter the name of the foreign country: MediumBullet

See instructions for filing requirements for FinCEN Form 114, Report of Foreign Bank and Financial Accounts (FBAR).

Was the organization a party to a prohibited tax shelter transaction at any time during the tax year? ..

Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?

If "Yes," to line 5a or 5b, did the organization file Form 8886-T? ............

Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions? ...

If "Yes," did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible? ......................

Organizations that may receive deductible contributions under section 170(c).

Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor? ....................

Yes

If "Yes," did the organization notify the donor of the value of the goods or services provided? .....

Yes

Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282? .........................

If "Yes," indicate the number of Forms 8282 filed during the year ....

Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?

Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract? ..

If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required? ......................

If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C? ..........................

Sponsoring organizations maintaining donor advised funds. Did a donor advised fund maintained by the sponsoring organization have excess business holdings at any time during the year? ........

Sponsoring organizations maintaining donor advised funds.

Did the sponsoring organization make any taxable distributions under section 4966?........

Did the sponsoring organization make a distribution to a donor, donor advisor, or related person?...

Section 501(c)(7) organizations. Enter:

Initiation fees and capital contributions included on Part VIII, line 12 ...

10a

Gross receipts, included on Form 990, Part VIII, line 12, for public use of club facilities

10b

Section 501(c)(12) organizations. Enter:

Gross income from members or shareholders .........

11a

Gross income from other sources (Do not net amounts due or paid to other sources against amounts due or received from them.) ..........

11b

12a

Section 4947(a)(1) non-exempt charitable trusts. Is the organization filing Form 990 in lieu of Form 1041?

12a

If "Yes," enter the amount of tax-exempt interest received or accrued during the year.

12b

Section 501(c)(29) qualified nonprofit health insurance issuers.

Is the organization licensed to issue qualified health plans in more than one state? .........
Note. See the instructions for additional information the organization must report on Schedule O.

13a

Enter the amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans ....

13b

Enter the amount of reserves on hand ............

13c

14a

Did the organization receive any payments for indoor tanning services during the tax year?.....

14a

If "Yes," has it filed a Form 720 to report these payments? If "No," provide an explanation in Schedule O..

14b

Is the organization subject to the section 4960 tax on payment(s) of more than $1,000,000 in remuneration or excess parachute payment(s) during the year? ....................
If "Yes," see instructions and file Form 4720, Schedule N.

Is the organization an educational institution subject to the section 4968 excise tax on net investment income? ..
If "Yes," complete Form 4720, Schedule O.

Form 990 (2019)

Page 6

Part VI

Governance, Management, and Disclosure For each "Yes" response to lines 2 through 7b below, and for a "No" response to lines 8a, 8b, or 10b below, describe the circumstances, processes, or changes in Schedule O. See instructions.

Check if Schedule O contains a response or note to any line in this Part VI..............

Section A. Governing Body and Management

Yes

Enter the number of voting members of the governing body at the end of the tax year

If there are material differences in voting rights among members of the governing body, or if the governing body delegated broad authority to an executive committee or similar committee, explain in Schedule O.

Enter the number of voting members included in line 1a, above, who are independent

Did any officer, director, trustee, or key employee have a family relationship or a business relationship with any other officer, director, trustee, or key employee? .................

Did the organization delegate control over management duties customarily performed by or under the direct supervision of officers, directors or trustees, or key employees to a management company or other person? .

Did the organization make any significant changes to its governing documents since the prior Form 990 was filed? .

Did the organization become aware during the year of a significant diversion of the organization’s assets? .

Did the organization have members or stockholders? ................

Yes

Did the organization have members, stockholders, or other persons who had the power to elect or appoint one or more members of the governing body? ....................

Are any governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or persons other than the governing body? ...................

Did the organization contemporaneously document the meetings held or written actions undertaken during the year by the following:

The governing body? .......................

Yes

Each committee with authority to act on behalf of the governing body? ............

Yes

Is there any officer, director, trustee, or key employee listed in Part VII, Section A, who cannot be reached at the organization’s mailing address? If "Yes," provide the names and addresses in Schedule O.......

Section B. Policies (This Section B requests information about policies not required by the Internal Revenue Code.)

Yes

10a

Did the organization have local chapters, branches, or affiliates? ............

10a

If "Yes," did the organization have written policies and procedures governing the activities of such chapters, affiliates, and branches to ensure their operations are consistent with the organization's exempt purposes?

10b

11a

Has the organization provided a complete copy of this Form 990 to all members of its governing body before filing the form? ............................

11a

Yes

Describe in Schedule O the process, if any, used by the organization to review this Form 990. .....

12a

Did the organization have a written conflict of interest policy? If "No," go to line 13.......

12a

Yes

Were officers, directors, or trustees, and key employees required to disclose annually interests that could give rise to conflicts? ..........................

12b

Yes

Did the organization regularly and consistently monitor and enforce compliance with the policy? If "Yes," describe in Schedule O how this was done...................

12c

Yes

Did the organization have a written whistleblower policy? ...............

Yes

Did the organization have a written document retention and destruction policy? .........

Did the process for determining compensation of the following persons include a review and approval by independent persons, comparability data, and contemporaneous substantiation of the deliberation and decision?

The organization’s CEO, Executive Director, or top management official ...........

15a

Yes

Other officers or key employees of the organization ................

15b

If "Yes" to line 15a or 15b, describe the process in Schedule O (see instructions).

16a

Did the organization invest in, contribute assets to, or participate in a joint venture or similar arrangement with a taxable entity during the year? ......................

16a

If "Yes," did the organization follow a written policy or procedure requiring the organization to evaluate its participation in joint venture arrangements under applicable federal tax law, and take steps to safeguard the organization’s exempt status with respect to such arrangements? ............

16b

Section C. Disclosure

List the states with which a copy of this Form 990 is required to be filed MediumBullet

FL , NY

Section 6104 requires an organization to make its Form 1023 (or 1024-A if applicable), 990, and 990-T (501(c)(3)s only) available for public inspection. Indicate how you made these available. Check all that apply.

Own website Another's website Upon request Other (explain in Schedule O)

Describe in Schedule O whether (and if so, how) the organization made its governing documents, conflict of interest policy, and financial statements available to the public during the tax year.

State the name, address, and telephone number of the person who possesses the organization's books and records:
MediumBullet

DIANA CLYNES14440 Bruce B Downs Blvd Tampa,FL33613 (813) 636-8100

Form 990 (2019)

Page 7

Part VII

Compensation of Officers, Directors,Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors

Check if Schedule O contains a response or note to any line in this Part VII..............

Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees

1a Complete this table for all persons required to be listed. Report compensation for the calendar year ending with or within the organization’s tax year.
RoundBullet

List all of the organization’s current officers, directors, trustees (whether individuals or organizations), regardless of amount
of compensation. Enter -0- in columns (D), (E), and (F) if no compensation was paid.

List all of the organization’s current key employees, if any. See instructions for definition of "key employee."

List the organization’s five current highest compensated employees (other than an officer, director, trustee or key employee)
who received reportable compensation (Box 5 of Form W-2 and/or Box 7 of Form 1099-MISC) of more than $100,000 from the
organization and any related organizations.

List all of the organization’s former officers, key employees, or highest compensated employees who received more than $100,000
of reportable compensation from the organization and any related organizations.

List all of the organization’s former directors or trustees that received, in the capacity as a former director or trustee of the
organization, more than $10,000 of reportable compensation from the organization and any related organizations.

See instructions for the order in which to list the persons above.

Check this box if neither the organization nor any related organization compensated any current officer, director, or trustee.

(A) Name and title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)	(D) Reportable compensation from the organization (W-2/1099-MISC)	(E) Reportable compensation from related organizations (W-2/1099-MISC)	(F) Estimated amount of other compensation from the organization and related organizations
(A) Name and title
(1) TERI BROWNE PHD MSW NSW-C...................................................................... Board member	1.00 .................	X	0	0	0
(2) TEJAS DESAI MD...................................................................... Board member	1.00 .................	X	0	0	0
(3) LOUIS H DIAMOND MD...................................................................... Board member	1.00 .................	X	0	0	0
(4) LISA GARNER...................................................................... Board member	1.00 .................	X	0	0	0
(5) THEODORE GEE JR...................................................................... Board member	1.00 .................	X	0	0	0
(6) SUZANNE RUFF...................................................................... Board member	1.00 .................	X	0	0	0
(7) LANA SCHMIDT MBA...................................................................... Board member	1.00 .................	X	0	0	0
(8) SCOTT TONER...................................................................... Board member	1.00 .................	X	0	0	0
(9) LINDA S TYLER...................................................................... Board member	1.00 .................	X	0	0	0
(10) BRIAN HESS...................................................................... Board member	1.00 .................	X	0	0	0
(11) KEVIN J FOWLER...................................................................... Board member	1.00 .................	X	0	0	0
(12) DOUGLAS S JOHNSON MD...................................................................... Board member	1.00 .................	X	0	0	0
(13) DAVID DAVE M WHITE...................................................................... Board member	1.00 .................	X	0	0	0
(14) KENT BRESSLER...................................................................... Board member	1.00 .................	X	0	0	0
(15) EDWARD V HICKEY...................................................................... Board member	1.00 .................	X	0	0	0
(16) JANICE LEA MD MSC FASN...................................................................... Board member	1.00 .................	X	0	0	0
(17) WILLIAM K BILL MURRAY...................................................................... Board member	1.00 .................	X	0	0	0

Form 990 (2019)

Page 8

Part VII

Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (continued)

(A) Name and title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)		(D) Reportable compensation from the organization (W-2/1099-MISC)	(E) Reportable compensation from related organizations (W-2/1099-MISC)	(F) Estimated amount of other compensation from the organization and related organizations
(A) Name and title
(18) JAMES W MYERS III........................................................................ Board member	1.00 .......................	X		0	0	0
(19) DAVID RODRIQUEZ........................................................................ Board member	1.00 .......................	X		0	0	0
(20) PAUL CONWAY........................................................................ President	2.00 .......................	X	X	0	0	0
(21) RICHARD KNIGHT........................................................................ Vice President	2.00 .......................	X	X	0	0	0
(22) DANIEL L ABEL........................................................................ Secretary	2.00 .......................	X	X	0	0	0
(23) JENNY KITSEN........................................................................ Treasurer	2.00 .......................	X	X	0	0	0
(24) GARY GREEN........................................................................ Executive Director	40.00 .......................	X	X	69,302	0	0
(25) DIANA CLYNES........................................................................ Executive Director	40.00 .......................		X	60,500	0	0

1b	Sub-Total................
c	Total from continuation sheets to Part VII, Section A....
d	Total (add lines 1b and 1c)...........	129,802

Total number of individuals (including but not limited to those listed above) who received more than $100,000 of reportable compensation from the organization MediumBullet

Yes

Did the organization list any former officer, director or trustee, key employee, or highest compensated employee on line 1a? If "Yes," complete Schedule J for such individual ..............

For any individual listed on line 1a, is the sum of reportable compensation and other compensation from the organization and related organizations greater than $150,000? If "Yes," complete Schedule J for such
individual...........................

Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services rendered to the organization? If "Yes," complete Schedule J for such person ........

Section B. Independent Contractors

Complete this table for your five highest compensated independent contractors that received more than $100,000 of compensation from the organization. Report compensation for the calendar year ending with or within the organization’s tax year.

(A) Name and business address	(B) Description of services	(C) Compensation





2 Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization 0

Form 990 (2019)

Page 9

Part VIII

Statement of Revenue

Check if Schedule O contains a response or note to any line in this Part VIII.............

(A)
Total revenue

(B)
Related or
exempt
function
revenue

(D)
Revenue
excluded from
tax under sections
512 - 514

1a	Federated campaigns..		1a	6,023
b	Membership dues..		1b
c	Fundraising events..		1c	60,250
d	Related organizations		1d
e	Government grants (contributions)		1e

f	All other contributions, gifts, grants, and similar amounts not included above		1f	506,938

g	Noncash contributions included in lines 1a - 1f:$		1g

h Total. Add lines 1a-1f.......		573,211

		Business Code
2a	Brochures & magazines	511120	13,598	2,112
b	Annual meeting fees	900099	216,217
c	Membership dues	900099	78,252
d
e
f	All other program service revenue.
g	Total. Add lines 2a–2f .....		308,067

3 Investment income (including dividends, interest, and othersimilar amounts) ......
4 Income from investment of tax-exempt bond proceeds
5 Royalties...........
		(ii) Personal	(i) Real
6a	Gross rents			6a
b	Less: rental expenses			6b
c	Rental income or (loss)			6c
d	Net rental income or (loss).......
		(ii) Other	(i) Securities
7a	Gross amount from sales of assets other than inventory			7a
b	Less: cost or other basis and sales expenses			7b
c	Gain or (loss)			7c
d	Net gain or (loss).........
8a	Gross income from fundraising events (not including $ 60,250of contributions reported on line 1c). See Part IV, line 18 ....
			8a	4,625
b	Less: direct expenses ...		8b	15,764
c	Net income or (loss) from fundraising events..			-11,139			-11,139
9a	Gross income from gaming activities. See Part IV, line 19 ...
			9a
b	Less: direct expenses ...		9b
c	Net income or (loss) from gaming activities..
10a	Gross sales of inventory, less returns and allowances ..
			10a
b	Less: cost of goods sold ..		10b
c	Net income or (loss) from sales of inventory..
Business Code			Miscellaneous Revenue
11a	Advertising sales		900099	56,320		56,320
b	Repayment of old debt		900099	1,200	1,200
c	Credit card rewards		900099	772	772
d	All other revenue ....			1,705	1,705
e	Total. Add lines 11a–11d ......			59,997
12	Total revenue. See instructions.....			930,136	309,632	58,432	-11,139

Form 990 (2019)

Page 10

Part IX

Statement of Functional Expenses

Section 501(c)(3) and 501(c)(4) organizations must complete all columns. All other organizations must complete column (A).Check if Schedule O contains a response or note to any line in this Part IX..............

Do not include amounts reported on lines 6b, 7b, 8b, 9b, and 10b of Part VIII.		(A) Total expenses	(B) Program service expenses	(C) Management and general expenses	(D) Fundraising expenses

1	Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 ....
2	Grants and other assistance to domestic individuals. See Part IV, line 22 ...........
3	Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. .............
4	Benefits paid to or for members .......
5	Compensation of current officers, directors, trustees, and key employees ...........	72,581	37,680	23,688	11,213
6	Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .........
7	Other salaries and wages........	206,922	169,912	28,535	8,475
8	Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) ....
9	Other employee benefits .......	38,121	28,313	7,123	2,685
10	Payroll taxes ...........	21,095	15,501	4,111	1,483
11	Fees for services (non-employees):
a	Management ......
b	Legal .........	1,457	0	1,457	0
c	Accounting ...........	30,101	0	30,101	0
d	Lobbying ...........
e	Professional fundraising services. See Part IV, line 17
f	Investment management fees ......
g	Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O)	44,659	39,158	2,751	2,750
12	Advertising and promotion ....
13	Office expenses .......
14	Information technology ......
15	Royalties ..
16	Occupancy ...........	33,917	25,191	6,337	2,389
17	Travel ............	41,314	40,770	544	0
18	Payments of travel or entertainment expenses for any federal, state, or local public officials .
19	Conferences, conventions, and meetings ....
20	Interest ...........	1,544	0	1,544	0
21	Payments to affiliates .......
22	Depreciation, depletion, and amortization ..	3,978	2,955	743	280
23	Insurance ...	3,037	755	2,282	0
24	Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a	Annual Meeting & program expenses	304,891	304,891	0	0
b	Printing & publications	48,396	45,509	1,884	1,003
c	Postage & shipping	18,336	15,198	2,320	818
d	Supplies	1,956	466	1,398	92
e	All other expenses	59,957	28,970	22,911	8,076
25	Total functional expenses. Add lines 1 through 24e	932,262	755,269	137,729	39,264
26	Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here if following SOP 98-2 (ASC 958-720).	0	0	0	0

Form 990 (2019)

Page 11

Part X

Balance Sheet

Check if Schedule O contains a response or note to any line in this Part IX..............

				(A) Beginning of year		(B) End of year

1	Cash–non-interest-bearing ........			160,932	1	421,992
2	Savings and temporary cash investments .........				2
3	Pledges and grants receivable, net ......				3
4	Accounts receivable, net .............			2,660	4
5	Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
					5
6	Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
					6
7	Notes and loans receivable, net ...........				7
8	Inventories for sale or use ............			20,987	8	21,293
9	Prepaid expenses and deferred charges ......			18,285	9	4,895
10a	Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D	10a	40,980
b	Less: accumulated depreciation	10b	27,965	16,993	10c	13,015
11	Investments—publicly traded securities .				11
12	Investments—other securities. See Part IV, line 11 .....				12
13	Investments—program-related. See Part IV, line 11 ..				13
14	Intangible assets ...............				14
15	Other assets. See Part IV, line 11 ...........			3,000	15	3,000
16	Total assets. Add lines 1 through 15 (must equal line 33)...			222,857	16	464,195

17	Accounts payable and accrued expenses .....	45,979	17	91,248
18	Grants payable ...		18
19	Deferred revenue .........	131,536	19	360,396
20	Tax-exempt bond liabilities .........		20
21	Escrow or custodial account liability. Complete Part IV of Schedule D		21
22	Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
			22
23	Secured mortgages and notes payable to unrelated third parties ..		23
24	Unsecured notes and loans payable to unrelated third parties ..		24
25	Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D	25,927	25	22,762
26	Total liabilities. Add lines 17 through 25..	203,442	26	474,406

	Organizations that follow FASB ASC 958, check here and complete lines 27, 28, 32, and 33.
27	Net assets without donor restrictions ..........		27
28	Net assets with donor restrictions ...........		28
	Organizations that do not follow FASB ASC 958, check here and complete lines 29 through 33.
29	Capital stock or trust principal, or current funds .....		29
30	Paid-in or capital surplus, or land, building or equipment fund ...		30
31	Retained earnings, endowment, accumulated income, or other funds		31
32	Total net assets or fund balances ...........	19,415	32	-10,211
33	Total liabilities and net assets/fund balances ........	222,857	33	464,195

Form 990 (2019)

Page 12

Part XI

Reconcilliation of Net Assets

Check if Schedule O contains a response or note to any line in this Part XI..............

Total revenue (must equal Part VIII, column (A), line 12) ............

930,136

Total expenses (must equal Part IX, column (A), line 25) ............

932,262

Revenue less expenses. Subtract line 2 from line 1 ..............

-2,126

Net assets or fund balances at beginning of year (must equal Part X, line 32, column (A)) ..

19,415

Net unrealized gains (losses) on investments ...............

Donated services and use of facilities .................

Investment expenses .....................

Prior period adjustments .....................

-27,500

Other changes in net assets or fund balances (explain in Schedule O) ........

Net assets or fund balances at end of year. Combine lines 3 through 9 (must equal Part X, line 32, column (B))

-10,211

Part XII

Financial Statements and Reporting

Check if Schedule O contains a response or note to any line in this Part XII.............

Yes

Accounting method used to prepare the Form 990: Cash Accrual Other
If the organization changed its method of accounting from a prior year or checked "Other," explain in
Schedule O.

Were the organization’s financial statements compiled or reviewed by an independent accountant?

If ‘Yes,’ check a box below to indicate whether the financial statements for the year were compiled or reviewed on a separate basis, consolidated basis, or both:

Separate basis Consolidated basis Both consolidated and separate basis

Were the organization’s financial statements audited by an independent accountant?

Yes

If ‘Yes,’ check a box below to indicate whether the financial statements for the year were audited on a separate basis, consolidated basis, or both:

Separate basis Consolidated basis Both consolidated and separate basis

If "Yes," to line 2a or 2b, does the organization have a committee that assumes responsibility for oversight of the audit, review, or compilation of its financial statements and selection of an independent accountant?

Yes

If the organization changed either its oversight process or selection process during the tax year, explain in Schedule O.

As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Single Audit Act and OMB Circular A-133?

If "Yes," did the organization undergo the required audit or audits? If the organization did not undergo the required audit or audits, explain why in Schedule O and describe any steps taken to undergo such audits.

Form 990 (2019)

Additional Data

Software ID:	17005306
Software Version:

Form 990, Special Condition Description:

Special Condition Description

- TIN:

SCHEDULE A
(Form 990 or 990EZ)

Department of the Treasury
Internal Revenue Service

Public Charity Status and Public Support

Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
right arrow

Attach to Form 990 or Form 990-EZ.
right arrow

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public
Inspection

Name of the organization

American Association of Kidney Patients Inc

Employer identification number

11-2306416

Part I

Reason for Public Charity Status (All organizations must complete this part.) See instructions.

The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)

A church, convention of churches, or association of churches described in section 170(b)(1)(A)(i).

A school described in section 170(b)(1)(A)(ii). (Attach Schedule E (Form 990 or 990-EZ).)

A hospital or a cooperative hospital service organization described in section 170(b)(1)(A)(iii).

A medical research organization operated in conjunction with a hospital described in section 170(b)(1)(A)(iii). Enter the hospital's name, city, and state:

An organization operated for the benefit of a college or university owned or operated by a governmental unit described in section 170(b)(1)(A)(iv). (Complete Part II.)

A federal, state, or local government or governmental unit described in section 170(b)(1)(A)(v).

An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi). (Complete Part II.)

A community trust described in section 170(b)(1)(A)(vi). (Complete Part II.)

An agricultural research organization described in 170(b)(1)(A)(ix) operated in conjunction with a land-grant college or university or a non-land grant college of agriculture. See instructions. Enter the name, city, and state of the college or university:

An organization that normally receives: (1) more than 331/3% of its support from contributions, membership fees, and gross receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)

An organization organized and operated exclusively to test for public safety. See section 509(a)(4).

An organization organized and operated exclusively for the benefit of, to perform the functions of, or to carry out the purposes of one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2). See section 509(a)(3). Check the box in lines 12a through 12d that describes the type of supporting organization and complete lines 12e, 12f, and 12g.

Type I. A supporting organization operated, supervised, or controlled by its supported organization(s), typically by giving the supported organization(s) the power to regularly appoint or elect a majority of the directors or trustees of the supporting organization. You must complete Part IV, Sections A and B.

Type II. A supporting organization supervised or controlled in connection with its supported organization(s), by having control or management of the supporting organization vested in the same persons that control or manage the supported organization(s). You must complete Part IV, Sections A and C.

Type III functionally integrated. A supporting organization operated in connection with, and functionally integrated with, its supported organization(s) (see instructions). You must complete Part IV, Sections A, D, and E.

Type III non-functionally integrated. A supporting organization operated in connection with its supported organization(s) that is not functionally integrated. The organization generally must satisfy a distribution requirement and an attentiveness requirement (see instructions). You must complete Part IV, Sections A and D, and Part V.

Check this box if the organization received a written determination from the IRS that it is a Type I, Type II, Type III functionally integrated, or Type III non-functionally integrated supporting organization.

Enter the number of supported organizations ...............................

Provide the following information about the supported organization(s).

(i) Name of supported organization	(ii) EIN	(iv) Is the organization listed in your governing document?		(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)
(i) Name of supported organization	(ii) EIN	Yes	No	(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)


Total

For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.

Cat. No. 11285F

Schedule A (Form 990 or 990-EZ) 2019

Page 2

Part II

Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2015	(b) 2016	(c) 2017	(d) 2018	(e) 2019	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") ..	667,680	545,589	543,502	454,193	573,211	2,784,175
2	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....
3	The value of services or facilities furnished by a governmental unit to the organization without charge..
4	Total. Add lines 1 through 3	667,680	545,589	543,502	454,193	573,211	2,784,175
5	The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f)..
6	Public support. Subtract line 5 from line 4.						2,784,175

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2015	(b) 2016	(c) 2017	(d) 2018	(e) 2019	(f) Total
7	Amounts from line 4..	667,680	545,589	543,502	454,193	573,211	2,784,175
8	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...	455	59				514
9	Net income from unrelated business activities, whether or not the business is regularly carried on..			50,591	63,760		114,351
10	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.)..	9,939	2,615	4,799		3,677	21,030
11	Total support. Add lines 7 through 10						2,920,070

Gross receipts from related activities, etc. (see instructions) ..................

1,233,019

First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here........................................ right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2019 (line 6, column (f) divided by line 11, column (f)) .........

95.350 %

Public support percentage for 2018 Schedule A, Part II, line 14 ...............

95.520 %

16a

33 1/3% support test—2019. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization ....................... right arrow

33 1/3% support test—2018. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization ..................... right arrow

17a

10%-facts-and-circumstances test—2019. If the organization did not check a box on line 13, 16a, or 16b, and line 14
is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain
in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported
organization ..................................................... right arrow

10%-facts-and-circumstances test—2018. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line
15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here.
Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly
supported organization ................................................ right arrow

Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow

Schedule A (Form 990 or 990-EZ) 2019

Page 3

Part III

Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2	Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose
3	Gross receipts from activities that are not an unrelated trade or business under section 513 .....
4	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5	The value of services or facilities furnished by a governmental unit to the organization without charge
6	Total. Add lines 1 through 5
7a	Amounts included on lines 1, 2, and 3 received from disqualified persons
b	Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c	Add lines 7a and 7b..
8	Public support. (Subtract line 7c from line 6.)	0

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2015	(b) 2016	(c) 2017	(d) 2018	(e) 2019	(f) Total
9	Amounts from line 6...
10a	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b	Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c	Add lines 10a and 10b.
11	Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..
13	Total support. (Add lines 9, 10c, 11, and 12.)..

First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization,
check this box and stop here............................................. right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2019 (line 8, column (f) divided by line 13, column (f)) .........

0 %

Public support percentage from 2018 Schedule A, Part III, line 15 ...............

Section D. Computation of Investment Income Percentage

Investment income percentage for 2019 (line 10c, column (f) divided by line 13, column (f)) ......

0 %

Investment income percentage from 2018 Schedule A, Part III, line 17 .............

19a

331/3% support tests—2019. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ....... right arrow

33 1/3% support tests—2018. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization .... right arrow

Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions .... right arrow

Schedule A (Form 990 or 990-EZ) 2019

Page 4

Part IV

Supporting Organizations

(Complete only if you checked a box on line 12 of Part I. If you checked 12a of Part I, complete Sections A and B. If you checked 12b of Part I, complete Sections A and C. If you checked 12c of Part I, complete Sections A, D, and E. If you checked 12d of Part I, complete Sections A and D, and complete Part V.)

Section A. All Supporting Organizations

Yes

Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.

Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).

Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer (b) and (c) below.

Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.

Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.

Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked 12a or 12b in Part I, answer (b) and (c) below.

Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.

Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.

Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer (b) and (c) below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).

Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?

Substitutions only. Was the substitution the result of an event beyond the organization's control?

Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.

Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ) .

Did the organization make a loan to a disqualified person (as defined in section 4958) not described in line 7? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ).

Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.

Did one or more disqualified persons (as defined in line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.

Did a disqualified person (as defined in line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.

10a

Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.

10a

Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).

10b

Schedule A (Form 990 or 990-EZ) 2019

Page 5

Part IV

Supporting Organizations (continued)

Yes

Has the organization accepted a gift or contribution from any of the following persons?

A person who directly or indirectly controls, either alone or together with persons described in (b) and (c) below, the governing body of a supported organization?

11a

A family member of a person described in (a) above?

11b

A 35% controlled entity of a person described in (a) or (b) above? If “Yes” to a, b, or c, provide detail in Part VI.

11c

Section B. Type I Supporting Organizations

Yes

Did the directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.

Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.

Section C. Type II Supporting Organizations

Yes

Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).

Section D. All Type III Supporting Organizations

Yes

Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?

Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).

By reason of the relationship described in (2), did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.

Section E. Type III Functionally-Integrated Supporting Organizations

Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):

The organization satisfied the Activities Test. Complete line 2 below.

The organization is the parent of each of its supported organizations. Complete line 3 below.

The organization supported a governmental entity. Describe in Part VI how you supported a government entity (see instructions)

Activities Test. Answer (a) and (b) below.

Yes

Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.

Did the activities described in (a) constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.

Parent of Supported Organizations. Answer (a) and (b) below.

Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations? Provide details in Part VI.

Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.

Schedule A (Form 990 or 990-EZ) 2019

Page 6

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations

Check here if the organization satisfied the Integral Part Test as a qualifying trust on Nov. 20, 1970 (explain in Part VI). See instructions. All other Type III non-functionally integrated supporting organizations must complete Sections A through E.

	Section A - Adjusted Net Income		(A) Prior Year	(B) Current Year (optional)
1	Net short-term capital gain	1
2	Recoveries of prior-year distributions	2
3	Other gross income (see instructions)	3
4	Add lines 1 through 3	4
5	Depreciation and depletion	5
6	Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions)	6
7	Other expenses (see instructions)	7
8	Adjusted Net Income (subtract lines 5, 6 and 7 from line 4)	8

	Section B - Minimum Asset Amount		(A) Prior Year	(B) Current Year (optional)
1	Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year):	1
a	Average monthly value of securities	1a
b	Average monthly cash balances	1b
c	Fair market value of other non-exempt-use assets	1c
d	Total (add lines 1a, 1b, and 1c)	1d
e	Discount claimed for blockage or other factors (explain in detail in Part VI):
2	Acquisition indebtedness applicable to non-exempt use assets	2
3	Subtract line 2 from line 1d	3
4	Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions).	4
5	Net value of non-exempt-use assets (subtract line 4 from line 3)	5
6	Multiply line 5 by .035	6
7	Recoveries of prior-year distributions	7
8	Minimum Asset Amount (add line 7 to line 6)	8

	Section C - Distributable Amount		Current Year
1	Adjusted net income for prior year (from Section A, line 8, Column A)	1
2	Enter 85% of line 1	2
3	Minimum asset amount for prior year (from Section B, line 8, Column A)	3
4	Enter greater of line 2 or line 3	4
5	Income tax imposed in prior year	5
6	Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions)	6

Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (see instructions)

Schedule A (Form 990 or 990-EZ) 2019

Page 7

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)

Section D - Distributions		Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity
3 Administrative expenses paid to accomplish exempt purposes of supported organizations
4 Amounts paid to acquire exempt-use assets
5 Qualified set-aside amounts (prior IRS approval required)
6 Other distributions (describe in Part VI). See instructions
7Total annual distributions. Add lines 1 through 6.
8 Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions
9 Distributable amount for 2019 from Section C, line 6
10 Line 8 amount divided by Line 9 amount

Section E - Distribution Allocations (see instructions)		(i) Excess Distributions	(ii) Underdistributions Pre-2019	(iii) Distributable Amount for 2019
1 Distributable amount for 2019 from Section C, line 6
2 Underdistributions, if any, for years prior to 2019 (reasonable cause required-- explain in Part VI). See instructions.
3 Excess distributions carryover, if any, to 2019:
a From 2014.......
b From 2015.......
c From 2016.......
d From 2017.......
e From 2018.......
fTotal of lines 3a through e
g Applied to underdistributions of prior years
h Applied to 2019 distributable amount
i Carryover from 2014 not applied (see instructions)
j Remainder. Subtract lines 3g, 3h, and 3i from 3f.
4Distributions for 2019 from Section D, line 7:
$
a Applied to underdistributions of prior years
b Applied to 2019 distributable amount
c Remainder. Subtract lines 4a and 4b from 4.
5 Remaining underdistributions for years prior to 2019, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions.
6 Remaining underdistributions for 2019. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions.
7 Excess distributions carryover to 2020. Add lines 3j and 4c.
8 Breakdown of line 7:
a Excess from 2015.....
b Excess from 2016.....
c Excess from 2017.....
d Excess from 2018.....
e Excess from 2019.....

Schedule A (Form 990 or 990-EZ) (2019)

Schedule A (Form 990 or 990-EZ) 2019

Page 8

Part VI

Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).

Facts And Circumstances Test

Return Reference	Explanation
Pt II Ln 10	Other Income Part II, Line 10 Description: Copier refund 2013: 8907. Description: Other 2013: 1032. 2015: 99. 2017: 1705. Description: Refunds/repayments 2014: 2615. 2015: 2250. 2017: 1200. Description: Escheated funds 2015: 2450. Description: CC rewards 2017: 772.

Schedule A (Form 990 or 990-EZ) 2019

Additional Data

Software ID:	17005306
Software Version:

- TIN:

Schedule B
(Form 990, 990-EZ,
or 990-PF)

Department of the Treasury
Internal Revenue Service

Schedule of Contributors

Attach to Form 990, 990-EZ, or 990-PF.

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2019

Name of the organization

American Association of Kidney Patients Inc

Employer identification number

11-2306416

Organization type (check one):

Filers of:

Section:

Form 990 or 990-EZ

501(c)( ) (enter number) organization

4947(a)(1) nonexempt charitable trust not treated as a private foundation

527 political organization

Form 990-PF

501(c)(3) exempt private foundation

4947(a)(1) nonexempt charitable trust treated as a private foundation

501(c)(3) taxable private foundation

Check if your organization is covered by the General Rule or a Special Rule.
Note: Only a section 501(c)(7), (8), or (10) organization can check boxes for both the General Rule and a Special Rule. See instructions.

General Rule

For an organization filing Form 990, 990-EZ, or 990-PF that received, during the year, contributions totaling $5,000 or more (in money or other property) from any one contributor. Complete Parts I and II. See instructions for determining a contributor's total contributions.

Special Rules

For an organization described in section 501(c)(3) filing Form 990 or 990-EZ that met the 33¹/3% support test of the regulations
under sections 509(a)(1) and 170(b)(1)(A)(vi), that checked Schedule A (Form 990 or 990-EZ), Part II, line 13, 16a, or 16b, and that received from any one contributor, during the year, total contributions of the greater of (1) $5,000 or (2) 2% of the amount on (i) Form 990, Part VIII, line 1h, or (ii) Form 990-EZ, line 1. Complete Parts I and II.

For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, total contributions of more than $1,000 exclusively for religious, charitable, scientific, literary, or educational purposes, or for the prevention of cruelty to children or animals. Complete Parts I, II, and III.

For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, contributions exclusively for religious, charitable, etc., purposes, but no such contributions totaled more than $1,000. If this box is checked, enter here the total contributions that were received during the year for an exclusively religious, charitable, etc., purpose. Don't complete any of the parts unless the General Rule applies to this organization because it received nonexclusively religious, charitable, etc., contributions totaling $5,000 or more during the year ......... Arrow Bullet

Caution: An organization that isn't covered by the General Rule and/or the Special Rules doesn't file Schedule B (Form 990,
990-EZ, or 990-PF), but it must answer “No” on Part IV, line 2, of its Form 990; or check the box on line H of its Form 990-EZ
or on its Form 990PF, Part I, line 2, to certify that it doesn't meet the filing requirements of Schedule B (Form 990,
990-EZ, or 990-PF).

For Paperwork Reduction Act Notice, see the Instructions
for Form 990, 990-EZ, or 990-PF.

Cat. No. 30613XSchedule B (Form 990, 990-EZ, or 990-PF) (2019)

Schedule B (Form 990, 990-EZ, or 990-PF) (2019) Page 2

Name of organization American Association of Kidney Patients Inc

Part I Contributors	Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
Schedule B (Form 990, 990-EZ, or 990-PF) (2019)

Schedule B (Form 990, 990-EZ, or 990-PF) (2019)

Page 3

Name of organization American Association of Kidney Patients Inc		Employer identification number 11-2306416

Part II	Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
Schedule B (Form 990, 990-EZ, or 990-PF) (2019)

Schedule B (Form 990, 990-EZ, or 990-PF) (2019)

Page 4


Name of organization American Association of Kidney Patients Inc			Employer identification number 11-2306416
Part III Exclusively religious, charitable, etc., contributions to organizations described in section 501(c)(7), (8), or (10) that total more than $1,000 for the year from any one contributor. Complete columns (a) through (e) and the following line entry. For organizations completing Part III, enter the total of exclusively religious, charitable, etc., contributions of $1,000 or less for the year. (Enter this information once. See instructions.) $ Use duplicate copies of Part III if additional space is needed.

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

Schedule B (Form 990, 990-EZ, or 990-PF) (2019)

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE D
(Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Financial Statements

Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
SchDMd Bullet

Attach to Form 990.
SchDMd Bullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public Inspection

Name of the organization

American Association of Kidney Patients Inc

Employer identification number

11-2306416

Part I

Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.

		(a) Donor advised funds	(b) Funds and other accounts
1	Total number at end of year .........
2	Aggregate value of contributions to (during year)
3	Aggregate value of grants from (during year)
4	Aggregate value at end of year ........

Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............

Yes No

Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................

Yes No

Part II

Conservation Easements.
Complete if the organization answered "Yes" on Form 990, Part IV, line 7.

Purpose(s) of conservation easements held by the organization (check all that apply).

Preservation of land for public use (e.g., recreation or education) Preservation of an historically important land area

Protection of natural habitat Preservation of a certified historic structure

Preservation of open space

Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.


a	Total number of conservation easements ......................	2a
b	Total acreage restricted by conservation easements ....................	2b
c	Number of conservation easements on a certified historic structure included in (a) .....	2c
d	Number of conservation easements included in (c) acquired after 7/25/06, and not on a historic structure listed in the National Register ...	2d

Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year SchDMd Bullet

Number of states where property subject to conservation easement is located SchDMd Bullet

Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............

Yes No

Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet

Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet

Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................

Yes No

In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.

If the organization elected, as permitted under FASB ASC 958, not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.

If the organization elected, as permitted under FASB ASC 958, to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:

(i)

Revenue included on Form 990, Part VIII, line 1 ......................... SchDMd Bullet

(ii)

Assets included in Form 990, Part X ............................... SchDMd Bullet

If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under FASB ASC 958 relating to these items:

Revenue included on Form 990, Part VIII, line 1 .......................... SchDMd Bullet

Assets included in Form 990, Part X ............................... SchDMd Bullet

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 52283D

Schedule D (Form 990) 2019

Page 2

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)

Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):

Public exhibition

Loan or exchange programs

Scholarly research

Other

Preservation for future generations

Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.

During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...

Yes No

Part IV

Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.

Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................

Yes No


b	If "Yes," explain the arrangement in Part XIII and complete the following table:		Amount
c	Beginning balance .............................	1c
d	Additions during the year ............................	1d
e	Distributions during the year ..........................	1e
f	Ending balance ................................	1f

Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...

Yes No

If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....

Part V

Endowment Funds.
Complete if the organization answered "Yes" on Form 990, Part IV, line 10.

		(a) Current year	(b) Prior year	(c) Two years back	(d) Three years back	(e) Four years back

1a	Beginning of year balance ....
b	Contributions ...
c	Net investment earnings, gains, and losses
d	Grants or scholarships ...
e	Other expenditures for facilities and programs ...
f	Administrative expenses ....
g	End of year balance ......

Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:

Board designated or quasi-endowment SchDMd Bullet

Permanent endowment SchDMd Bullet

Term endowment SchDMd Bullet

The percentages on lines 2a, 2b, and 2c should equal 100%.

Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes

(i) Unrelated organizations .................

3a(i)

(ii) Related organizations .................

3a(ii)

If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........

Describe in Part XIII the intended uses of the organization's endowment funds.

Part VI

Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.

Description of property		(a) Cost or other basis (investment)	(b) Cost or other basis (other)	(c) Accumulated depreciation	(d) Book value

1a	Land .....
b	Buildings ....
c	Leasehold improvements
d	Equipment ....	40,980	27,965	13,015
e	Other .....
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).)..				13,015

Schedule D (Form 990) 2019

Page 3

Part VII

InvestmentsOther Securities.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.

(a) Description of security or category (including name of security)	(b) Book value	(c) Method of valuation: Cost or end-of-year market value
(1) Financial derivatives.........
(2) Closely-held equity interests........
(3)Other
(B)
(C)
(D)
(E)
(F)
(G)
(H)
(I)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)

Part VIII

InvestmentsProgram Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.

(a) Description of investment	(b) Book value	(c) Method of valuation: Cost or end-of-year market value

(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)

Part IX

Other Assets.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.

(a) Description				(b) Book value

(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........

Part X

Other Liabilities.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.

1.(a) Description of liability	(b) Book value
(1) Federal income taxes
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)	22,762
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII

Schedule D (Form 990) 2019

Page 4

Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total revenue, gains, and other support per audited financial statements .......			1	951,084
2	Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a	Net unrealized gains (losses) on investments ....	2a
b	Donated services and use of facilities .........	2b	20,948
c	Recoveries of prior year grants ...........	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d .....................			2e	20,948
3	Subtract line 2e from line 1..................			3	930,136
4	Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b .	4a
b	Other (Describe in Part XIII.) ...........	4b
c	Add lines 4a and 4b....................			4c
5	Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ......			5	930,136

Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total expenses and losses per audited financial statements ...........			1	953,210
2	Amounts included on line 1 but not on Form 990, Part IX, line 25:
a	Donated services and use of facilities .........	2a	20,948
b	Prior year adjustments ............	2b
c	Other losses ................	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d....................			2e	20,948
3	Subtract line 2e from line 1...................			3	932,262
4	Amounts included on Form 990, Part IX, line 25, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b ..	4a
b	Other (Describe in Part XIII.) ............	4b
c	Add lines 4a and 4b.....................			4c
5	Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ......			5	932,262

Part XIII

Supplemental Information

Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.

Return Reference

Explanation

Pt X, Line 2

The Organization accounts for the effect of any uncertain tax positions based on a "more likely than not" threshold to the recognition of the tax positions being sustained based on the technical merits of the position under scrutiny by the applicable taxing authority. If a tax position or positions are deemed to result in uncertainties of those positions, the unrecognized tax benefit is estimated based on a "cumulative probability assessment" that aggregates the estimated tax liability for all uncertain tax positions. The Organization has identified its tax status as a tax-exempt entity as its only significant tax position; however, the Organization has determined that such tax position does not result in an uncertainty requiring recognition. The Organization is not currently under examination by any taxing jurisdiction. The Organization's federal returns are generally open for examination for three years following the date filed.

Schedule D (Form 990) 2019

Additional Data

Software ID:	17005306
Software Version:

- TIN:

SCHEDULE G (Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Supplemental Information Regarding
Fundraising or Gaming Activities

Complete if the organization answered "Yes" on Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrow

Attach to Form 990 or Form 990-EZ.
right arrow

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public Inspection

Name of the organization
American Association of Kidney Patients Inc

Employer identification number

11-2306416

Part I

Fundraising Activities.Complete if the organization answered "Yes" on Form 990, Part IV, line 17.

Form 990-EZ filers are not required to complete this part.

Indicate whether the organization raised funds through any of the following activities. Check all that apply.

a	Mail solicitations	e	Solicitation of non-government grants
b	Internet and email solicitations	f	Solicitation of government grants
c	Phone solicitations	g	Special fundraising events
d	In-person solicitations

Did the organization have a written or oral agreement with any individual (including officers, directors, trustees

or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?

YesNo

If "Yes," list the 10 highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.

(i) Name and address of individual or entity (fundraiser)	(iii) Did fundraiser have custody or control of contributions?
	Yes	No










Total . . . . . . . . . . . . . . . . . . . .

List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 50083H

Schedule G (Form 990 or 990-EZ) 2019

Page 2

Part II

Fundraising Events. Complete if the organization answered "Yes" on Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.

		(a) Event #1 Medal of Excellance (event type)	(d) Total events (add col. (a) through col. (c))
1	Gross receipts . . . . .	64,875	64,875
2	Less: Contributions . . . .	60,250	60,250
3	Gross income (line 1 minus line 2) . . . . . .	4,625	4,625

4	Cash prizes . . . . .
5	Noncash prizes . . . .
6	Rent/facility costs . . . .	11,391	11,391
7	Food and beverages . . .
8	Entertainment . . . .
9	Other direct expenses . . .	4,373	4,373
10	Direct expense summary. Add lines 4 through 9 in column (d) . . . . . . . . . .		15,764
11	Net income summary. Subtract line 10 from line 3, column (d). . . . . . . . . .		-11,139

Part III

Gaming. Complete if the organization answered "Yes" on Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.

		(a) Bingo	(b) Pull tabs/Instant bingo/progressive bingo	(c) Other gaming	(d) Total gaming (add col.(a) through col.(c))
1	Gross revenue . . . . .

2	Cash prizes . . . . .
3	Noncash prizes . . . .
4	Rent/facility costs . . . .
5	Other direct expenses . . .

Volunteer labor . . . .

	Yes %
	No

	Yes %
	No

	Yes %
	No

Direct expense summary. Add lines 2 through 5 in column (d) . . . . . . . . . . right arrow

Net gaming income summary. Subtract line 7 from line 1, column (d). . . . . . . . . right arrow

Enter the state(s) in which the organization conducts gaming activities:

Is the organization licensed to conduct gaming activities in each of these states? . . . . . . . .

YesNo

If "No," explain:

10a

Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? . . .

YesNo

If "Yes," explain:

Schedule G (Form 990 or 990-EZ) 2019

Page 3

Does the organization conduct gaming activities with nonmembers? . . . . . . . . . . .

YesNo

Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity

formed to administer charitable gaming? . . . . . . . . . . . . . . . . .

YesNo

Indicate the percentage of gaming activity conducted in:

The organization's facility . . . . . . . . . . . . . . . . . .

13a

An outside facility . . . . . . . . . . . . . . . . . . . .

13b

Enter the name and address of the person who prepares the organization's gaming/special events books and records:

Name

Address

15a

Does the organization have a contract with a third party from whom the organization receives gaming

revenue? . . . . . . . . . . . . . . . . . . . . . . . .

YesNo

If "Yes," enter the amount of gaming revenue received by the organization right arrow

$ and the

amount of gaming revenue retained by the third party right arrow

$ .

If "Yes," enter name and address of the third party:

Name

Address

Gaming manager information:

Name

Gaming manager compensation right arrow

Description of services provided right arrow

Director/officer Employee Independent contractor

Mandatory distributions:

Is the organization required under state law to make charitable distributions from the gaming proceeds to

retain the state gaming license? . . . . . . . . . . . . . . . . . . .

YesNo

Enter the amount of distributions required under state law distributed to other exempt organizations or spent

in the organization's own exempt activities during the tax year right arrow

Part IV

Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v); and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information. See instructions.

Return Reference	Explanation

Schedule G (Form 990 or 990-EZ) 2019

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE O
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet

Attach to Form 990 or 990-EZ.
MediumBullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2019

Open to Public
Inspection

Name of the organization

American Association of Kidney Patients Inc

Employer identification number

11-2306416

Return Reference	Explanation
Pt VI, Line 6	The Organization has one class of membership which is
Pt VI, Line 6	free. Members receive a one year electronic subscription
Pt VI, Line 6	to the Organization's bimonthly magazine and discounted
Pt VI, Line 6	pricing to the annual convention.
Pt VI, Line 6	Members can nominate individuals
Pt VI, Line 6	for inclusion on the Board of Directors; however, only
Pt VI, Line 6	the Board of Directors' vote on new Board members.
Pt VI, Line 11b	The Form 990 is reviewed in detail by the Finance Committee. The Finance Committee approves the return. Copies of the Form 990 are provided to all Board members prior to the return being filed.
Pt VI, Line 12c	All members of the Board of Directors and employees of the organization receive a copy of the conflict of interest policy. The Executive Director and all Board members are required to complete and sign a written statement that they have been and are in compliance with this policy.
Pt VI, Line 15a	The Executive Committee conducts an annual review of the Executive Director's performance and recommends any adjustment to salary to the Board of Directors. The Board of Directors approves raises for the Executive Director and approves the overall salary levels for all employees.
Pt VI, Line 15a	and approves the overall salary levels for all employees.
Pt VI, Line 15b	No other key employees or compensated officers.
Pt VI, Line 19	The Organization makes its governing documents and 990
Pt VI, Line 19	available upon request.
Pt V, Line 3b	Form 990 T being completed currently & to be filed ASAP.
Other	Additional information for Part III line 4d
Other	NATIONAL AWARDS PROGRAM:AAKP'S AWARDS ENCOMPASS TWO MAJOR CATEGORIES. THE FIRST CATEGORY INCLUDES LEGACY AWARDS - AWARDS THAT AAKP HAS EXTENDED TO ORGANIZATIONS AND PROFESSIONALS FOR SEVERAL DECADES. THE SECOND CATEGORY ENCOMPASSES PATIENT ENGAGEMENT AND ADVOCACY AWARDS - AWARDS CREATED OVER THE COURSE OF THE PAST SEVERAL YEARS THROUGH AAKP'S NEW CENTER FOR PATIENT ENGAGEMENT AND ADVOCACY AS A MEANS OF RECOGNIZING THE INCREASED INFLUENCE PATIENTS HAVE ON NATIONAL POLICY-MAKERS AND HEALTHCARE DELIBERATIONS.LEGACY AWARDS:PRESIDENT'S AWARD PRESENTED TO AN INDIVIDUAL WHO MADE A LONG-TERM COMMITMENT TOWARD ADVANCEMENT AND EVOLVEMENT OF AAKP'S NATIONAL STRATEGY.SAMUEL J. ORENSTEIN AWARD PRESENTED TO AN INDIVIDUAL WHO CONSISTENTLY RENDERS EXTRAORDINARY SERVICE TOWARD THE ACHIEVEMENT OF AAKP'S GOALS, OBJECTIVES AND NATIONAL STRATEGY. PETER LUNDIN, MD AWARD PRESENTED TO A RENAL PHYSICIAN WHO HAS MADE CONTRIBUTIONS TO THE CARE, WELFARE AND WELL-BEING OF PATIENTS OVER A LIFETIME OF DEVOTED SERVICE.DOMINICK GENTILE, MD MEMORIAL AWARD PRESENTED TO AN ESRD NETWORK THAT HAS DEVELOPED AND MAINTAINED A PROGRAM WHICH HAS SIGNIFICANTLY BENEFITED PATIENTS AND DEMONSTRATED SUSTAINABILITY.KIDNEY PATIENT SUPPORT GROUP OF THE YEARPRESENTED TO A KIDNEY PATIENT SUPPORT GROUP THAT HAS BEEN ACTIVE WITHIN THEIR LOCAL COMMUNITY. THIS SUPPORT GROUP SHOULD HAVE HOSTED COMMUNITY EDUCATIONAL PROGRAMS AND ACTIVITIES TO SUPPORT ITS LOCAL PATIENTS AND RAISE AWARENESS OF KIDNEY DISEASE.NEW PATIENT ENGAGEMENT AND ADVOCACY AWARDS:NATIONAL SOCIAL MEDIA EDUCATION AND ADVOCACY AWARDPRESENTED TO AN INDIVIDUAL AND ORGANIZATION EACH WHO HAVE DEMONSTRATED A NATIONAL LEVEL OF EXCELLENCE THROUGH SOCIAL MEDIA TO EITHER EDUCATE OR ADVOCATE ON BEHALF OF KIDNEY PATIENTS AND THEIR LOVED ONES IN THE AREAS OF DISEASE AWARENESS, POLICY ADVOCACY OR THE CREATION OF ONLINE COMMUNITIES. THIS HIGHLY COMPETITIVE AWARD WILL RECOGNIZE EXCELLENCE ON A VARIETY OF SOCIAL MEDIA PLATFORMS AND WILL INCLUDE VIDEO, BLOGGERS AND SOCIAL MEDIA CONTENT AND SITES THAT HAVE GROWN LARGE AUDIENCES THROUGH CREATIVE AND EFFECTIVE USE OF SOCIAL MEDIA. NATIONAL PATIENT ENGAGEMENT AND ADVOCACY AWARDPRESENTED TO AN INDIVIDUAL, ORGANIZATION AND PUBLIC SERVANT EACH WHO ARE RECOGNIZED LEADERS IN THE FIELD OF KIDNEY PATIENT EDUCATION AND ADVOCACY AND WHOSE BODY OF PROFESSIONAL WORK AND COMMITMENT TO ADVANCE THE INTERESTS OF KIDNEY PATIENTS THROUGH POLICY, EDUCATION OR ACTIVISM. NATIONAL JOURNALISM AWARDPRESENTED TO A REPORTER OR JOURNALIST WHOSE WORK IN EITHER PRINT, ONLINE, TELEVISION OR WEB ARENA(S) HAS BROUGHT THE NEEDS AND INTERESTS OF THE KIDNEY PATIENT COMMUNITY TO THE NATIONAL FOREFRONT THROUGH JOURNALISTIC EXCELLENCE. PRESENTED EITHER FOR A SINGLE COMPELLING STORY WITH LOCAL, REGIONAL OR NATIONAL SIGNIFICANCE, OR BODY OF WORK, WHICH OVER TIME HAS INFORMED AMERICANS OF THE CRITICAL NEEDS AND CONCERNS OF THE KIDNEY PATIENT COMMUNITY.NATIONAL PUBLIC SERVICE AWARDPRESENTED TO A PUBLIC SERVANT WHOSE BODY OF PROFESSIONAL WORK AND COMMITMENT TO ADVANCE THE INTERESTS AND WELL-BEING OF THE NATION'S KIDNEY PATIENT POPULATION THROUGH POLICY, EDUCATION AND ACTIVISM. PAST AWARDEES INCLUDE DR. CAROLYN NEULAND, THE U.S. FOOD AND DRUG ADMINISTRATION; DR. PRITI PATEL, CENTERS FOR DISEASE CONTROL AND PREVENTION; DR. ROBERT STAR, NATIONAL INSTITUTE OF HEALTH; AND ELENA BALOVLENKOV, MS, RN, CHH, CENTERS FOR MEDICARE AND MEDICAID SERVICES.
Other	MEDAL OF EXCELLENCE:THE AAKP MEDAL OF EXCELLENCE HONORS HEALTH CARE PROFESSIONALS WHO HAVE MADE SIGNIFICANT CONTRIBUTIONS TO THE ADVANCEMENT AND EVOLUTION OF DIRECT PATIENT CARE; ENCOURAGED THE EXPANSION OF THE PATIENT ENGAGEMENT MODEL WITHIN THE RENAL COMMUNITY; AND ENHANCED THE QUALITY OF LIFE FOR KIDNEY PATIENTS AND THEIR FAMILIES. THE 2019 MEDAL OF EXCELLENCE RECIPIENTS ARE RECOGNIZED THROUGHOUT THE CALENDAR YEAR.THE 2019 MEDAL OF EXCELLENCE AWARD RECIPIENTS: STEPHEN Z. FADEM, MD, FACP, FASN, KIDNEY ASSOCIATES LLC (HOUSTON, TX) - PHYSICIAN CATEGORYSHERILYN GORDON, MD, FACS, METHODIST HOSPITAL (HOUSTON, TX) - TRANSPLANT SURGEON CATEGORY PRESENTED POSTHUMOUSRONALD GILL, PHD, COLORADO CENTER FOR TRANSPLANTATION CARE (AURORA, CO) - TRANSPLANT PROFESSIONAL CATEGORYBARBARA CASAZZA, FNP, THE ROGOSIN INSTITUTE (WOODSIDE, NY) - NURSING CATEGORYRENEE BOVA-COLLIS, MSW, LCSW, QUALITY INSIGHTS MID-ATLANTIC RENAL COALITION (RICHMOND, VA) - SOCIAL WORK CATEGORYSTACEY PHILLIPS, RD, MERCY HEALTH (GRAND RAPIDS, MI) - DIETETIC CATEGORYDWELYN WILLIAMS, CCHT, DAVITA KIDNEY CARE (ORLANDO, FL) - DIALYSIS TECHNICIAN CATEGORY
Other	AAKP CENTER FOR PATIENT EDUCATION AND RESEARCH. THE CENTER FOR PATIENT EDUCATION AND RESEARCH BRINGS, UNDER ONE FOCUS AREA, ALL AAKP EFFORTS TO BUILD EXISTING AND EMERGING AAKP PATIENT EDUCATION PROGRAMS AND RESEARCH ACTIVITIES. AAKP FIRMLY BELIEVES, AS RESEARCH HAS ALSO SHOWN, THAT PATIENT AND CAREGIVER EDUCATION IS A CENTRAL PART OF TREATMENT AND ENHANCING QUALITY OF LIFE. NOT EDUCATING A PATIENT AND THEIR CARE PARTNER ABOUT THEIR CONDITION AND TREATMENT OPTIONS LEAVES THE PATIENT AT RISK FOR COMPLICATIONS AS WELL AS THE POSSIBILITY OF NOT SELECTING A COURSE OF TREATMENT BEST SUITED FOR THEM. EDUCATION IS A SIMPLE AND EFFECTIVE WAY TO IMPROVE OVERALL HEALTH AND ACHIEVE BETTER OUTCOMES.IN THE SAME VEIN, AAKP IS UNIQUELY POSITIONED TO ENSURE THAT THE PATIENT HAS A CENTRAL ROLE IN RESEARCH AND OTHER ACTIVITIES THAT ARE DESIGNED TO DETERMINE OPTIMAL APPROACHES AND STRATEGIES FOR PROVIDING HEALTHCARE SERVICES, ASSISTANCE PROGRAMS, ACCESS TO NEW PRODUCTS AND SERVICES, ETC. AAKP CONSTITUENTS REPRESENT ALL AGES, MODALITIES, ETHNICITIES, DISEASE STATES, AND A VARIETY OF DEMOGRAPHIC INDICATORS. AAKP IS KNOWN WITHIN THE RENAL COMMUNITY AS A LEADER IN QUALITY EDUCATION; TAKING TIME TO PRODUCE PROGRAMS AND MATERIALS THAT ARE CURRENT, RELEVANT AND ADDRESS THE MOST PRESSING ISSUES PATIENTS AND THEIR FAMILIES FACE. AAKP IS DELIBERATE IN ITS DEVELOPMENT OF EDUCATIONAL PROGRAMS, WORKING CLOSELY WITH ITS MEDICAL ADVISORY BOARD, HEALTH EDUCATORS AND FELLOW PATIENTS TO CREATE UNBIASED, RELIABLE RESOURCES THAT ARE EASILY UNDERSTOOD AND BENEFICIAL TO PATIENTS. AAKP ROUTINELY USES MATRIXES TO MEASURE PROGRAM OUTCOMES TO ASSESS EFFECTIVENESS, SUCCESSES AS WELL AS OPPORTUNITIES FOR ENHANCEMENT. AAKP OFFERS ITS PROGRAMS IN A VARIETY OF MEDIUMS TO ENSURE WE REACH AS MANY PATIENTS AS POSSIBLE (PRINT, ONLINE/WEB-BASED, SMART DEVICES, LIVE/IN-PERSON).AAKP'S RESEARCH CAPABILITIES HAVE GROWN RAPIDLY AND THE ASSOCIATION HAS CREATED A SOPHISTICATED DATABASE AND EXPANSIVE SOCIAL MEDIA CHANNELS WHICH ALLOW AAKP TO BETTER CONNECT AND LEARN FROM ITS CONSTITUENTS. IN TURN, AAKP PROVIDES EDUCATION TO PATIENTS AND CAREGIVERS ON WHAT IT MEANS TO BE INVOLVED IN RESEARCH INITIATIVES AS WELL AS OPPORTUNITIES TO GET INVOLVED. FROM ONLINE SURVEYS, INTERVIEWS, FOCUS GROUPS, AND CLINICAL TRIAL AWARENESS CAMPAIGNS - AAKP IS FOCUSED ON INSERTING IMPORTANT PATIENT INSIGHT AND PREFERENCES INTO RESEARCH TO HELP INFORM INNOVATION, ADVANCE CARE AND MAKE A MEANINGFUL IMPACT TO IMPROVE LIVES - THIS MEANS AAKP MEMBERS ARE HELPING SHAPE THE FUTURE POLICIES AND DISCOVERIES THAT CHARACTERIZE KIDNEY CARE!
Other	KIDNEYWORKS: THE KIDNEYWORKS INITIATIVE RESEARCH AND POLICY COLLABORATION AIMS TO HELP AMERICANS WITH CHRONIC KIDNEY DISEASE WHO ARE NOT ON DIALYSIS MAINTAIN THEIR JOBS AND SLOW THEIR DISEASE. KIDNEYWORKS SEEKS TO REDUCE DISABILITY AND DEPENDENCY AND HELP PEOPLE WITH ND-CKD REMAIN ACTIVE, PRODUCTIVE, TAXPAYING CITIZENS BY TAKING PROACTIVE STEPS TO EDUCATE PATIENTS, FAMILIES, CLINICIANS, AND LAWMAKERS AND ENACT WORK-FRIENDLY PRACTICES AND POLICIES. "PHASE ONE (COMPLETED)PHASE ONE INCLUDED A NATIONAL STAKEHOLDER MEETING, PREPARING AND RELEASING A POLICY WHITE PAPER AND EXECUTIVE SUMMARY, CONDUCTING NATIONAL MEDIA ROLLOUT, AND DEVELOPING WWW.KIDNEYWORKS.ORG. THE NATIONAL ROUNDTABLE HELD IN WASHINGTON, D.C. IN JUNE 2016 INCLUDE SECTORS OF THE KIDNEY COMMUNITY - PATIENTS, NON-PROFITS, PROFESSIONALS, MEMBERS OF INDUSTRY AND REPRESENTATIVES FROM FEDERAL GOVERNMENT. THE COMPREHENSIVE KIDNEYWORKS WHITE PAPER AND EXECUTIVE SUMMARY WAS FORMALLY AND PUBLICLY RELEASED IN JULY 2017. THE REPORT IDENTIFIED BARRIERS TO PATIENTS' DESIRE AND ABILITY TO KEEP WORKING AND OUTLINED A COMPREHENSIVE STRATEGY TO REMOVE THEM. THE NATIONAL MEDIA ROLLOUT INCLUDED MORE THAN 800 MEDIA WEBSITES AND CHANNELS FEATURING KIDNEYWORKS AND THE WHITE PAPER, INCLUDING FOX BUSINESS NEWS AND NEPHROLOGY NEWS & ISSUES."PHASE TWO (UNDERWAY)PHASE TWO WILL USE STRATEGIES IDENTIFIED IN PHASE ONE TO DEVELOP INTERVENTIONS TO HELP PEOPLE WITH ND-CKD SLOW THEIR DISEASE PROGRESSION AND KEEP THEIR JOBS, INCLUDING TARGETED MESSAGING, TOOLS AND RESOURCES, TELEPHONE HELPLINE SUPPORT, AND A ROBUST DATABASE TO TRACK CONTACTS AND OUTCOMES. "PHASE THREE (2020-2021)PHASE THREE WILL INCLUDE EVALUATION OF THE IMPACT OF KIDNEYWORKS BY USING THE DATABASE AND CONDUCTING OUTCOMES RESEARCH.
Other	FABRY DISEASE DIAGNOSTIC AND EDUCATION PROJECT:AAKP AND EMORY UNIVERSITY HAVE PARTNERED TO CONDUCT AN EDUCATIONAL RESEARCH PROJECT AIMED AT PROVIDING FREE GENETIC TESTING TO INDIVIDUALS AFFECTED AND AT-RISK FOR FABRY DISEASE. THE RESEARCH FINDINGS WILL HELP IDENTIFY MARKERS TO FABRY THAT IN TURN WILL ALLOW PATIENTS AFFECTED BE DIAGNOSED EARLIER IN THE DISEASE STATE AND BEGIN INTERVENTION AND TREATMENT IMMEDIATELY. AAKP CONTINUES TO DEVELOP A NUMBER OF EDUCATIONAL RESOURCES SUCH AS MEDICAL ARTICLES, BROCHURES AND WEBINARS HIGHLIGHTING THE ADVANCEMENTS IN FABRY DISEASE, BEST PRACTICES AND THE PROJECT'S RESEARCH FINDINGS.
Other	AAKP NATIONAL PATIENT MEETING:THE AAKP NATIONAL PATIENT MEETING IS THE LARGEST GATHERING OF KIDNEY PATIENTS AND THEIR CARE-PARTNERS IN THE U.S. OVER THE COURSE OF THE THREE-DAY PROGRAM, ATTENDEES HAVE THE OPPORTUNITY TO LEARN THE LATEST SCIENTIFIC RESEARCH REGARDING KIDNEY DISEASE AND TREATMENT OPTIONS; INNOVATIONS IN DEVICES AND MEDICATION; DIET/NUTRITION; PATIENT SAFETY; PUBLIC POLICY ISSUES AFFECTING THEIR CARE; AND OPPORTUNITIES TO ENGAGE WITH GOVERNMENT AGENCIES TO INCREASE THE PATIENT VOICE. THE PROGRAM INCLUDES INTERACTIVE SESSIONS (RECORDED AND LIVE STREAMED FOR ENDURING EDUCATION); AN EXTENSIVE EXHIBIT HALL FEATURING COMPANIES THAT PROVIDE PRODUCTS AND SERVICES FOR INDIVIDUALS WITH KIDNEY DISEASE, ALONG WITH FELLOW NON-PROFIT ORGANIZATIONS; AND A VARIETY OF SOCIAL EVENTS TO ALLOW ATTENDEES TO INTERACT WITH GOVERNMENT OFFICIALS, HEALTHCARE PROFESSIONALS AND FELLOW PATIENTS GOING THROUGH SIMILAR CIRCUMSTANCES.
Other	PATIENT ENGAGEMENT PROGRAM: AS A LEADING VOICE IN THE PATIENT COMMUNITY, AAKP IS UNIQUELY POSITIONED TO ASSIST COMPANIES INTERESTED IN UNDERSTANDING THE PATIENT EXPERIENCE BY CONNECTING THEM DIRECTLY TO THE THOUSANDS OF PATIENTS, FAMILY MEMBERS AND CAREGIVERS IN OUR DATABASE. AAKP'S PROPRIETY DATABASE AND ENGAGED COMMUNITY OF PATIENTS, CREATES A VALUABLE RESOURCE TO COMPANIES TARGETING THE KIDNEY PATIENT POPULATION FOR MARKET RESEARCH AND/OR RAISING AWARENESS ON CLINICAL TRIAL OPPORTUNITIES.
Other	MEDAL OF EXCELLENCE AWARD:THE MEDAL OF EXCELLENCE AWARD IS THE ASSOCIATION'S HIGHEST HONOR FOR KIDNEY HEALTHCARE PROFESSIONALS AND IS DESIGNED TO ELEVATE NATIONAL AND INTERNATIONAL FIGURES WHO HAVE BEEN IN THE FOREFRONT OF ADVANCEMENTS IN KIDNEY CARE AND PATIENT EMPOWERMENT. THE AWARD RECOGNIZES PROFESSIONALS WHO ARE COMMITTED TO IMPROVING AND EXTENDING THE LIVES OF ALL KIDNEY PATIENTS THROUGH ADVOCACY, RESEARCH, TECHNOLOGY AND QUALITY-DRIVEN TREATMENTS THAT PROTECT PATIENT DIGNITY AND FULLY ALIGN WITH PATIENT ASPIRATIONS. THIS PRESTIGIOUS AWARD PROGRAM RECOGNIZES A VARIETY OF PROFESSIONALS WITHIN THE HEALTH CARE TEAM INCLUDING: NEPHROLOGISTS, TRANSPLANT SURGEONS, TRANSPLANT PROFESSIONALS, NURSES, SOCIAL WORKERS, DIETITIANS AND DIALYSIS TECHNICIANS.
Other	JENNY KITSEN PATIENT SAFETY AWARD:ESTABLISHED IN 2013 BY THE NETWORK OF NEW ENGLAND BOARD OF DIRECTORS TO CONTINUE THE PATIENT SAFETY WORK OF THE NONPROFIT ORGANIZATION LED BY JENNY KITSEN. THAT ORGANIZATION HELD THE CMS CONTRACT FOR ESRD NETWORK 1 FOR 35 YEARS, FROM 1977-2012. THE NETWORK STAFF, PATIENTS AND PROFESSIONAL VOLUNTEERS WHO SUPPORTED NETWORK ACTIVITIES MADE A NUMBER OF INNOVATIVE CONTRIBUTIONS TO THE ESRD NETWORK PROGRAM. UNDER MS. KITSEN'S DIRECTION, WITH THE BOARD GUIDANCE, THE NEW ENGLAND NETWORK ORGANIZATION BECAME KNOWN FOR ITS LEADERSHIP IN PATIENT SAFETY. THE AAKP HAS ACCEPTED AN ENDOWMENT FROM THE NETWORK OF NEW ENGLAND BOARD OF DIRECTORS TO HONOR MS. KITSEN THROUGH AN ANNUAL LECTURE OR PROGRAM THAT WILL ADVANCE PATIENT SAFETY BY EXPLORING INNOVATION IN HEALTH SYSTEMS MANAGEMENT, EDUCATION AND BEST PRACTICES.
Other	AAKP NUTRITION PROGRAM:"THE AAKP DELICIOUS! SERIES FEATURES A VARIETY OF KIDNEY-FRIENDLY RECIPES FOR PATIENTS AT ALL STAGES OF KIDNEY DISEASE. ALL RECIPES HAVE BEEN CAREFULLY REVIEWED BY RENAL DIETITIANS AND PROVIDE INDICATIONS ON WHAT TYPE OF PATIENT THESE RECIPES ARE MOST SUITED FOR. THIS RECIPE PROGRAM HAS BEEN FAVORABLY REVIEWED BY THE RENAL PRACTICE GROUP OF THE ACADEMY OF NUTRITION AND DIETETICS. FIVE EDITIONS OF AAKP DELICIOUS! ARE AVAILABLE FEATURING MORE THAN 100 KIDNEY-FRIENDLY RECIPES. "AAKP NUTRITION COUNTER IS A POCKET-SIZED GUIDE THAT LISTS THE NUTRIENT VALUES FOR STANDARD PORTIONS OF MORE THAN 300 COMMONLY USED FOODS. NUTRIENT VALUES LISTED INCLUDE: CARBOHYDRATES, FAT, SATURATED FAT, PROTEIN, CALORIE, SODIUM, POTASSIUM, AND PHOSPHORUS LEVELS - DIETARY VALUES THAT MUST BE CLOSELY MONITORED IN KIDNEY PATIENTS. "UNDERSTANDING" SERIES:THIS WORKBOOK SERIES COVERS A VARIETY OF IMPORTANT TOPICS SUCH AS: HEMODIALYSIS OPTIONS, ACCESS OPTIONS, PD OPTIONS, HOME HEMODIALYSIS, ANEMIA, IRON, DEPRESSION, FABRY DISEASE, HEPATITIS C, KIDNEY TRANSPLANTATION, GOUT AND PROTEINURIA. ALL BROCHURES ARE AVAILABLE IN PRINT AND ONLINE PDF. KIDNEY BEGINNINGS:THIS WORKBOOK PROVIDES AN INTRODUCTION TO CHRONIC KIDNEY DISEASE AND IS DESIGNED FOR INDIVIDUALS RECENTLY DIAGNOSED OR WITH RISK FACTORS SUCH AS DIABETES AND HYPERTENSION. THE VARIOUS CHAPTERS ADDRESS COMMON TOPICS FOR INDIVIDUALS WITH OR AT-RISK FOR KIDNEY DISEASE SUCH AS: DIABETES, HYPERTENSION, COMMON MEDICAL TEST, COMMON MEDICATIONS, EMOTIONAL ISSUES, DIET/NUTRITION, EXERCISE, EMPLOYMENT AND MUCH MORE.PATIENT PLAN SERIES:THESE FOUR PHASED WORKBOOK SERIES ARE DESIGNED TO PROVIDE INDIVIDUALS WITH THE INFORMATION THEY NEED AS THEY PROGRESS THROUGH KIDNEY DISEASE. THE INFORMATION IS DIVIDED AMONG THE FOUR BOOKS TO ALLOW A PATIENT TO ADVANCE WHEN THEY ARE READY AND LEARN INFORMATION IN A MANAGEABLE WAY THAT ALLOWS FOR THE GREATEST IMPACT ON BEHAVIORAL CHANGES.AAKPRENALIFE:AAKPRENALIFE IS THE OFFICIAL FLAGSHIP MAGAZINE OF THE ASSOCIATION. PRODUCED BI-MONTHLY, THE ARTICLES AND INFORMATION ARE EDUCATIONAL IN NATURE AND DESIGNED TO BE RELEVANT FOR PATIENTS REGARDLESS OF STAGE OF KIDNEY DISEASE OR MODALITY OPTION. CONTENT IS MADE AVAILABLE ONLINE AS WELL SO THAT PATIENTS AND CAREGIVERS HAVE ACCESS TO SPECIALTY ARTICLES AT ANY TIME POST-PRODUCTION.E-NEWSLETTERS: ARE DISTRIBUTED MONTHLY AND COVER CURRENT NEWS AND ISSUES FOR INDIVIDUALS WITH CHRONIC KIDNEY DISEASE, REGARDLESS OF STAGE OR MODALITY.
Other	AAKP CENTER FOR PATIENT ENGAGEMENT AND ADVOCACY:AAKP IS A LEADER IN PATIENT ADVOCACY AND IS ONE OF THE FEW PATIENT-CENTERED ORGANIZATIONS HIGHLY RECOGNIZED BY GOVERNMENT ORGANIZATIONS AND NATIONAL POLICY MAKERS AS A TRULY INDEPENDENT, PATIENT LEAD ORGANIZATIONS WITH A PATIENT-LEAD BOARD OF DIRECTORS. OUR ADVOCACY PROGRAMS ARE BUILT AROUND OUR AAKP STRATEGIC PRINCIPLES, ADOPTED BY THE AAKP BOARD OF DIRECTORS IN 2014, WHICH PROVIDE THE FOUNDATION FOR EVERY KEY DECISION WE MAKE AS AN ORGANIZATION. OUR STRATEGIC PRINCIPLES ARE:1.ELEVATE PATIENT VOICE IN NATIONAL ISSUES AND ACROSS DRUG, DIAGNOSTIC AND DEVICE DEVELOPMENT2.PROTECT UNIQUE RELATIONSHIP BETWEEN PATIENTS AND THEIR DOCTORS3.EDUCATE PATIENTS AND PRESERVE THEIR ACCESS TO CHOICES AS INFORMED CONSUMERS OF HEALTHCARE4.MAINTAIN FULL INDEPENDENCE IN ALL NATIONAL POLICY AND DECISIONS - NEVER SURRENDER YOUR LETTERHEAD5.HONOR THE PRINCIPLE OF "NO SURPRISES" AMONG TRUSTED ALLIES AND FEDERAL GOVERNMENT OFFICIALS AAKP HAS A HISTORY OF ADVOCATING ON IMPORTANT ISSUES AFFECTING PATIENTS' CARE, TREATMENT, OPTIONS, MEDICATIONS AND SUCH. THE ADVOCACY PROGRAM HELPS SUPPORT INITIATIVES SUCH AS: CAPITOL HILL DAY VISITS, PARTICIPATION IN MEETINGS/SEMINARS/CONVENTIONS, PUBLIC POLICY, COMMUNICATION, RESEARCH ISSUES AFFECTING PATIENTS AND PRACTICAL TOOLS THAT EXPLAIN HOW TO BE MORE EFFECTIVE ADVOCATES.
Other	CAPITOL HILL DAY VISITS:THESE EDUCATIONAL VISITS ENGAGE PATIENTS, CARE PARTNERS AND HEALTHCARE PROFESSIONALS WITH THEIR LEGISLATIVE REPRESENTATIVES AND STAFF TO DISCUSS CURRENT POLICY ISSUES THAT AFFECT PATIENT CARE AND QUALITY OF LIFE. PARTICIPANTS ARE PROVIDED TRAINING ON HOW TO CONDUCT RESPECTFUL AND SUBSTANTIVE MEETINGS BEFORE EVER VISITING CAPITOL HILL. AAKP ALSO PARTNERS WITH MEDICAL PROFESSIONAL ORGANIZATIONS WHEN POLICY ISSUES RELATED TO PATIENT SERVICES OVERLAP WITH OUR STRATEGIC ISSUE AGENDA. THESE ORGANIZATIONS INCLUDE, BUT ARE NOT LIMITED TO THE FOLLOWING: "ALLIANCE FOR HOME DIALYSIS"ALPORT SYNDROME FOUNDATION"AMERICAN KIDNEY FUND"AMERICAN SOCIETY OF NEPHROLOGY"AMERICAN SOCIETY OF PEDIATRIC NEPHROLOGY"AMERICAN SOCIETY OF TRANSPLANTATION "AMERICAN SOCIETY OF TRANSPLANT SURGEONS"KIDNEY COMMUNITY HILL DAY (A COLLABORATIVE EFFORT OF OVER TWELVE NATIONAL ORGANIZATIONS)"KIDNEY HEALTH INITIATIVE "MEDICAL EDUCATION INSTITUTE"NATIONAL KIDNEY FOUNDATION"NATIONAL RENAL ADMINISTRATORS ASSOCIATION"PKD FOUNDATION "RENAL PHYSICIANS ASSOCIATION"TRANSPLANTFIRST ACADEMY
Other	AAKP'S AMBASSADOR PROGRAM: THE AAKP AMBASSADOR PROGRAM IS PART OF OUR CENTER FOR PATIENT ENGAGEMENT AND ADVOCACY. AMBASSADORS ARE OUR MOST ENGAGED VOLUNTEERS - SEASONED EXPERTS ON KIDNEY DISEASE, DIALYSIS, TRANSPLANT, AND LIVING KIDNEY DONATION. AMBASSADORS UTILIZE THEIR PERSONAL EXPERIENCES AND PROFESSIONAL SKILLS TO CONTRIBUTE TO BOTH THE AAKP MISSION AND THE LARGER KIDNEY COMMUNITY BASED ON THEIR DESIRE TO SERVE A CAUSE LARGER THAN THEMSELVES. AAKP HELPS PROVIDE FEDERAL OFFICIALS WITH THE PATIENT INPUT THEY SEEK, THROUGH OUR AMBASSADORS' ENGAGEMENT. AMBASSADORS MAINTAIN RELATIONSHIPS AND COMMUNICATIONS WITH THEIR ELECTED LEADERS TO BE SURE KIDNEY DISEASE IS ON THEIR RADAR. THEY PARTICIPATE IN FOCUS GROUPS, ROUNDTABLES, TECHNICAL EVALUATION PANELS (TEPS), SURVEYS, CLINICAL TRIALS, PUBLIC TESTIMONY BEFORE FEDERAL AGENCIES, AND MORE. INAUGURAL AAKP POLICY SUMMIT:AAKP IS A NATIONALLY RECOGNIZED LEADER IN PATIENT EDUCATION AND ADVOCACY AND OUR INDEPENDENT INSIGHTS ARE HIGHLY REGARDED AND RELIED UPON BY GOVERNMENT AGENCIES, ELECTED AND APPOINTED NATIONAL POLICY-MAKERS AND POLICY INFLUENCERS. WITH 50 YEARS OF EFFECTIVE PATIENT ENGAGEMENT EXPERIENCE, AAKP KNOWS THAT PATIENTS, GOVERNMENT, RESEARCHERS, PROFESSIONALS AND INDUSTRY WORKING COLLABORATIVELY TOGETHER IS THE FASTEST WAY TO TRANSLANT NEW INNOVATIONS IN KIDNEY CARE INTO CARE SOLUTIONS THAT IMPACT PATIENT HEALTH OUTCOMES. THE POLICY SUMMIT BRINGS TOGETHER KEY INFLUENCERS FROM ACROSS ALL SECTORS OF THE POLICY SPECTRUM FOR A TWO-DAY SUMMIT THAT ADDRESSES THE CURRENT STATE OF KIDNEY CARE AT THE CROSSROADS OF INNOVATION, REGULATION AND PAYMENT. STRATEGIC PARTNERSHIPS AND ALLIANCES:AAKP HAS MAINTAINED OUR NATIONAL REPUTATION AS A TRUSTED AND INDEPENDENT VOICE FOR PATIENTS BY BOTH MAINTAIN OUR INDEPENDENCE AND THROUGH A SELECT AND TARGETED SERIES OF COLLABORATIVE RELATIONSHIPS WITH OTHER NON-PROFIT PROFESSIONAL AND PATIENT ORGANIZATIONS. BEFORE AAKP COLLABORATES WITH ANY ORGANIZATION, WE POSE SEVERAL QUESTIONS TO ASSESS THEIR CREDIBILITY IN OUR ORDER TO PROTECT OUR ORGANIZATION AND THE PATIENT INTERESTS WE REPRESENT. THESE QUESTIONS INCLUDE:1.WILL OUR ASSOCIATION WITH THIS ORGANIZATION DISCREDIT THE AAKP MISSION AND LEGACY?2.WILL OUR ASSOCIATION WITH THIS ORGANIZATION CONFUSE OR CONTRADICT THE AAKP MESSAGE?3.WILL OUR ASSOCIATION WITH THIS ORGANIZATION TURN AWAY POTENTIAL LONG-TERM ALLIES?4.WILL OUR ASSOCIATION WITH THIS ORGANIZATION DISCOURAGE ELECTED/CAREER POLICY-MAKER INTEREST OR SUPPORT OF POLICY GOAL?5.WILL OUR ASSOCIATION WITH THIS ORGANIZATION FULFILL A NEGATIVE NARRATIVE ALREADY UNDERWAY ABOUT YOUR ISSUE/COMMUNITY?OUR CURRENT STRATEGIC PARTNERSHIPS AND ALLIANCES INCLUDE: "ACADEMY OF NUTRITION AND DIETETICS"ALLIANCE FOR HOME DIALYSIS"ALPORT SYNDROME FOUNDATION"ALLIANCE FOR GOUT AWARENESS"ALLIANCE FOR A STRONGER FDA"AMERICAN KIDNEY FUND"AMERICAN NEPHROLOGY NURSES ASSOCIATION"AMERICAN SOCIETY OF NEPHROLOGY"AMERICAN SOCIETY OF PAEDIATRIC NEPHROLOGY"AMERICAN SOCIETY OF TRANSPLANT SURGEONS"AMERICAN SOCIETY OF TRANSPLANTATION"ESRD ROCKSTARS"FOR KIDNEY'S SAKE, INC."FORUM OF ESRD NETWORKS "FRIENDS OF NIDDK"FRIENDS OF HRSA"HOME DIALYZERS UNITED"IGA NEPHROPATHY FOUNDATION OF AMERICA"KIDNEY HEALTH INITIATIVE"MEDICAL EDUCATION INSTITUTE"NATIONAL ASSOCIATION OF NEPHROLOGY TECHNICIANS"NATIONAL KIDNEY FOUNDATION"NATIONAL RENAL ADMINISTRATORS ASSOCIATION"NEPHCURE KIDNEY INTERNATIONAL"OXALOSIS AND HYPEROXALURIA FOUNDATION"PATIENT ACCESS TO PAIN RELIEF (PAPR)"PATIENT ALLIANCE FOR DRUG SAFETY PROTECTIONS"POLYCYSTIC KIDNEY DISEASE FOUNDATION"REMEND"RENAL PHYSICIANS ASSOCIATION"RENAL SUPPORT NETWORK"ROGOSIN INSTITUTE"SOCIETY OF TRANSPLANT SOCIAL WORKERS"TRIO - TRANSPLANT RECIPIENTS INTERNATIONAL ORGANIZATION"VETERANS TRANSPLANT ASSOCIATION
Other	FEDERAL AGENCY ENGAGEMENT:OVER THE COURSE OF THE PAST YEAR, AND AGAIN AS A RESULT OF OUR NATIONAL ENGAGEMENT STRATEGY, AAKP HAS BEEN HEAVILY INVOLVED WITH MULTIPLE FEDERAL AGENCIES. AAKP HAS TRADITIONALLY WORKED VERY CLOSELY WITH FEDERAL AGENCIES SINCE OUR ORGANIZATION LEAD NATIONAL EFFORTS TO ESTABLISH THE END STAGE RENAL DISEASE PROGRAM (ESRD), ADMINISTERED SINCE 1973 BY DEPARTMENT OF HEALTH AND HUMAN SERVICES UNDER THE CENTERS FOR MEDICARE AND MEDICAID SERVICES (CMS). AAKP VALUES THE CIVIL SERVICE OF THE UNITED STATES AND HAS MAINTAINED STRONG RELATIONSHIPS WITH PROGRAMS, AGENCIES AND PERSONNEL UNDER EVERY PRESIDENTIAL ADMINISTRATION SINCE 1973 AND IS NON-PARTISAN IN OUR ENGAGEMENTS WITH THE U.S. CIVIL SERVICE. BELOW ARE JUST A FEW OF THE AGENCIES AAKP ENGAGED WITH: "CENTER FOR DISEASE CONTROL AND PREVENTION"WHITE HOUSE OFFICE OF SCIENCE AND TECHNOLOGY POLICY (OSTP)"WHITE HOUSE, NATIONAL ECONOMIC COUNCIL (NEC)"U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES (HHS)"U.S. DEPARTMENT OF LABOR (DOL)"DOL/OFFICE OF DISABILITY EMPLOYMENT PROGRAMS (ODEP)"HHS/CENTERS FOR MEDICARE AND MEDICAID ASSISTANCE (CMS)"HHS/CENTER FOR MEDICARE AND MEDICAID INNOVATION (CMMI)"HHS/FOOD AND DRUG ADMINISTRATION (FDA)"HHS/NATIONAL INSTITUTES OF HEALTH, (NIH)"HHS/NATIONAL INSTITUTE OF DIABETES AND DIGESTIVE AND KIDNEY DISEASES (NIDDK)"HHS/HEALTH RESOURCES AND SERVICES ADMINISTRATION (HRSA)"HHS/CENTERS FOR DISEASE CONTROL (CDC)"VETERAN'S ADMINISTRATION"DEPARTMENT OF DEFENSEIN ADDITION TO THESE AGENCY ENGAGEMENTS, AAKP HAS SERVED AS THE CHAIR OF THE CMS TECHNICAL EVALUATION PANEL (TEP) FOR THE CMS DIALYSIS FACILITY COMPARE 5 STAR RATING PROGRAM AS WELL AS MULTIPLE OTHER TEP'S. AAKP ALSO HOLDS MULTIPLE SEATS ON THE BOARD AND SUBCOMMITTEES OF THE KIDNEY HEALTH INITIATIVE - AN FDA/ASN BREAKTHROUGH COLLABORATIVE AND IS ACTIVELY INVOLVED AS WELL IN THE CLINICAL TRIALS TRANSFORMATION INITIATIVE, ANOTHER BREAKTHROUGH COLLABORATIVE BETWEEN THE FDA AND DUKE UNIVERSITY. AAKP LEADERSHIP HOLDS POSITIONS WITHIN THE NIH KIDNEY PRECISION MEDICINE PROGRAM, THE FDA PATIENT ENGAGEMENT ADVISORY PANEL, AND THE CDC HEALTHCARE INFECTION CONTROL AND ADVISORY COUNCIL.
Form 990, Part III, Line 4d	See Scheule O 316250. 0. 13598.
Form 990, Part IX, Line 24e	Fees, dues & subscript. 6567. 500. 1549. 4518.
Form 990, Part IX, Line 24e	Equipment rental & maint. 34816. 21445. 10319. 3052.
Form 990, Part IX, Line 24e	Other 12565. 2562. 9920. 83.
Form 990, Part IX, Line 24e	Telephone 6009. 4463. 1123. 423.

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 51056K

Schedule O (Form 990 or 990-EZ) 2019

Additional Data

Software ID:	17005306
Software Version: