TY 2018 Form 990

(A) Name and Title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)	(E) Reportable compensation from related organizations (W- 2/1099-MISC)
(1) RICHARD L DANDURAND...................................................................... TRUSTEE (THROUGH 5/15/18)	3.0 ................. 0.0	X		0	0
(2) LOUIS A DEFALCO...................................................................... VICE CHAIR	5.0 ................. 0.0	X		0	0
(3) RICHARD J GRAY ESQ...................................................................... VICE CHAIR	5.0 ................. 0.0	X		0	0
(4) CAROLE B GRIEGO MD...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(5) SUSAN L HOOK...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(6) CATHERINE C MCLOUD...................................................................... CHAIR	8.0 ................. 0.0	X		0	0
(7) CHAD T MOORE...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(8) DAVID A MOUNT...................................................................... TREASURER	3.0 ................. 0.0	X		0	0
(9) ROBERT H NIEHAUS...................................................................... VICE CHAIR	5.0 ................. 0.0	X		0	0
(10) ERIC R OLSON PHD...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(11) TERESA L ELDER...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(12) STEVEN SHAK MD...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(13) THEODORE J TORPHY PHD...................................................................... VICE CHAIR	5.0 ................. 0.0	X		0	0
(14) JOHN S WEINBERG...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(15) PAUL W WHETSELL...................................................................... EXECUTIVE VICE CHAIR	5.0 ................. 0.0	X		0	0
(16) KC BRYAN WHITE...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(17) PRESTON CAMPBELL MD...................................................................... PRESIDENT & CEO	40.0 ................. 0.0	X	X	1,263,852	162,414

(A) Name and Title	(B) Average hours per week (list any hours for related organizations below dotted line)	(E) Reportable compensation from related organizations (W- 2/1099-MISC)	(F) Estimated amount of other compensation from the organization and related organizations
(18) MARC S GINSKY........................................................................ EXECUTIVE VP, COO & SECRETARY	40.0 .......................1.0	X				733,685	186,426
(19) VERA H TWIGG........................................................................ EXECUTIVE VP & CFO	40.0 .......................1.0	X				696,431	102,882
(20) JACK MAHLER MD........................................................................ CHIEF INVESTMENT OFFICER	40.0 .......................0.0		X			924,937	153,170
(21) BRUCE MARSHALL MD........................................................................ SENIOR VP, CLINICAL AFFAIRS	40.0 .......................0.0		X			602,074	32,864
(22) WILLIAM SKACH MD........................................................................ SENIOR VP, RESEARCH AFFAIRS	40.0 .......................0.0		X			491,019	113,951
(23) MICHAEL P BOYLE MD........................................................................ SR.VP,THERAPEUTICS DEVELOPMENT	40.0 .......................0.0		X			497,768	113,948
(24) DRUCY S BOROWITZ MD........................................................................ SENIOR VP, COMMUNITY AFFAIRS	40.0 .......................0.0			X		499,834	35,464
(25) CHRIS GEGELYS........................................................................ SENIOR VP, CHIEF LEGAL OFFICER	40.0 .......................1.0			X		378,810	66,831
(26) MATTHEW MCBRADY........................................................................ MANAGING DIRECTOR, INVESTMENTS	40.0 .......................0.0			X		470,395	62,631
(27) ALBERT FARO MD........................................................................ SR.DIRECTOR CLINICAL AFFAIRS	40.0 .......................0.0			X		355,016	66,941
(28) MARYBETH MCMAHON PHD........................................................................ CHIEF OF STAFF	40.0 .......................0.0			X		364,566	53,765
(29) ROBERT J BEALL PHD........................................................................ FORMER CEO/2018 CONSULTANT	10.0 .......................0.0				X	335,359	0
(30) C RICHARD MATTINGLY........................................................................ FORMER COO	0.0 .......................0.0				X	100,816	0

(A) Name and business address	(B) Description of services	(C) Compensation
CORBUS PHARMACEUTICALS INC, 100 RIVER RIDGE DRIVE NORWOOD,MA02062	CONTRACTED RESEARCH	12,515,000
VERTEX PHARMACEUTICALS INC, 50 NORTHERN AVE BOSTON,MA02210	CONTRACTED RESEARCH	7,500,000
CELTAXSYS INC, 201 17TH STREET NW ATLANTA,GA30363	CONTRACTED RESEARCH	3,896,667
GENZYME CORPORATION, FIVE MOUNTAIN ROAD FRAMINGHAM,MA01701	CONTRACTED RESEARCH	2,943,660
SPYRYX BIOSCIENCES INC, 801-9 CAPITOLA DRIVE DURHAM,NC27713	CONTRACTED RESEARCH	2,923,217
2 Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization 113

- TIN:

SCHEDULE A
(Form 990 or 990EZ)

Department of the Treasury
Internal Revenue Service

Public Charity Status and Public Support

Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
right arrow

Attach to Form 990 or Form 990-EZ.
right arrow

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2018

Open to Public
Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Reason for Public Charity Status (All organizations must complete this part.) See instructions.

The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)

A church, convention of churches, or association of churches described in section 170(b)(1)(A)(i).

A school described in section 170(b)(1)(A)(ii). (Attach Schedule E (Form 990 or 990-EZ).)

A hospital or a cooperative hospital service organization described in section 170(b)(1)(A)(iii).

A medical research organization operated in conjunction with a hospital described in section 170(b)(1)(A)(iii). Enter the hospital's name, city, and state:

An organization operated for the benefit of a college or university owned or operated by a governmental unit described in section 170(b)(1)(A)(iv). (Complete Part II.)

A federal, state, or local government or governmental unit described in section 170(b)(1)(A)(v).

An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi). (Complete Part II.)

A community trust described in section 170(b)(1)(A)(vi). (Complete Part II.)

An agricultural research organization described in 170(b)(1)(A)(ix) operated in conjunction with a land-grant college or university or a non-land grant college of agriculture. See instructions. Enter the name, city, and state of the college or university:

An organization that normally receives: (1) more than 331/3% of its support from contributions, membership fees, and gross receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)

An organization organized and operated exclusively to test for public safety. See section 509(a)(4).

An organization organized and operated exclusively for the benefit of, to perform the functions of, or to carry out the purposes of one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2). See section 509(a)(3). Check the box in lines 12a through 12d that describes the type of supporting organization and complete lines 12e, 12f, and 12g.

Type I. A supporting organization operated, supervised, or controlled by its supported organization(s), typically by giving the supported organization(s) the power to regularly appoint or elect a majority of the directors or trustees of the supporting organization. You must complete Part IV, Sections A and B.

Type II. A supporting organization supervised or controlled in connection with its supported organization(s), by having control or management of the supporting organization vested in the same persons that control or manage the supported organization(s). You must complete Part IV, Sections A and C.

Type III functionally integrated. A supporting organization operated in connection with, and functionally integrated with, its supported organization(s) (see instructions). You must complete Part IV, Sections A, D, and E.

Type III non-functionally integrated. A supporting organization operated in connection with its supported organization(s) that is not functionally integrated. The organization generally must satisfy a distribution requirement and an attentiveness requirement (see instructions). You must complete Part IV, Sections A and D, and Part V.

Check this box if the organization received a written determination from the IRS that it is a Type I, Type II, Type III functionally integrated, or Type III non-functionally integrated supporting organization.

Enter the number of supported organizations ...............................

Provide the following information about the supported organization(s).

(i) Name of supported organization	(ii) EIN	(iv) Is the organization listed in your governing document?		(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)
(i) Name of supported organization	(ii) EIN	Yes	No	(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)


Total

For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.

Cat. No. 11285F

Schedule A (Form 990 or 990-EZ) 2018

Page 2

Part II

Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv), 170(b)(1)(A)(vi), and 170(b)(1)(A)(ix)
(Complete only if you checked the box on line 5, 7, 8, or 9 of Part I or if the organization failed to qualify under Part III. If the organization fails to qualify under the tests listed below, please complete Part III.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2014	(b) 2015	(c) 2016	(d) 2017	(e) 2018	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") ..	3,312,085,535	122,210,533	117,148,751	110,650,273	108,058,591	3,770,153,683
2	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....						0
3	The value of services or facilities furnished by a governmental unit to the organization without charge..						0
4	Total. Add lines 1 through 3	3,312,085,535	122,210,533	117,148,751	110,650,273	108,058,591	3,770,153,683
5	The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f)..						0
6	Public support. Subtract line 5 from line 4.						3,770,153,683

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2014	(b) 2015	(c) 2016	(d) 2017	(e) 2018	(f) Total
7	Amounts from line 4..	3,312,085,535	122,210,533	117,148,751	110,650,273	108,058,591	3,770,153,683
8	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...	54,160,127	75,041,033	64,638,761	67,686,719	66,681,682	328,208,322
9	Net income from unrelated business activities, whether or not the business is regularly carried on..						0
10	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.)..	15,655,168	16,333,174	14,060,761	15,116,982	15,369,965	76,536,050
11	Total support. Add lines 7 through 10						4,174,898,055

Gross receipts from related activities, etc. (see instructions) ..................

21,989,231

First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here........................................ right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2018 (line 6, column (f) divided by line 11, column (f)) .........

90.305 %

Public support percentage for 2017 Schedule A, Part II, line 14 ...............

91.795 %

16a

33 1/3% support test—2018. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization ....................... right arrow

33 1/3% support test—2017. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization ..................... right arrow

17a

10%-facts-and-circumstances test—2018. If the organization did not check a box on line 13, 16a, or 16b, and line 14
is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain
in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported
organization ..................................................... right arrow

10%-facts-and-circumstances test—2017. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line
15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here.
Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly
supported organization ................................................ right arrow

Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow

Schedule A (Form 990 or 990-EZ) 2018

Page 3

Part III

Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2014	(b) 2015	(c) 2016	(d) 2017	(e) 2018	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2	Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose
3	Gross receipts from activities that are not an unrelated trade or business under section 513 .....
4	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5	The value of services or facilities furnished by a governmental unit to the organization without charge
6	Total. Add lines 1 through 5
7a	Amounts included on lines 1, 2, and 3 received from disqualified persons
b	Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c	Add lines 7a and 7b..
8	Public support. (Subtract line 7c from line 6.)

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2014	(b) 2015	(c) 2016	(d) 2017	(e) 2018	(f) Total
9	Amounts from line 6...
10a	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b	Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c	Add lines 10a and 10b.
11	Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..
13	Total support. (Add lines 9, 10c, 11, and 12.)..

First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization,
check this box and stop here............................................. right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2018 (line 8, column (f) divided by line 13, column (f)) .........

Public support percentage from 2017 Schedule A, Part III, line 15 ...............

Section D. Computation of Investment Income Percentage

Investment income percentage for 2018 (line 10c, column (f) divided by line 13, column (f)) ......

Investment income percentage from 2017 Schedule A, Part III, line 17 .............

19a

331/3% support tests—2018. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ....... right arrow

33 1/3% support tests—2017. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization .... right arrow

Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions .... right arrow

Schedule A (Form 990 or 990-EZ) 2018

Page 4

Part IV

Supporting Organizations

(Complete only if you checked a box on line 12 of Part I. If you checked 12a of Part I, complete Sections A and B. If you checked 12b of Part I, complete Sections A and C. If you checked 12c of Part I, complete Sections A, D, and E. If you checked 12d of Part I, complete Sections A and D, and complete Part V.)

Section A. All Supporting Organizations

Yes

Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.

Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).

Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer (b) and (c) below.

Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.

Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.

Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked 12a or 12b in Part I, answer (b) and (c) below.

Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.

Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.

Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer (b) and (c) below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).

Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?

Substitutions only. Was the substitution the result of an event beyond the organization's control?

Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.

Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ) .

Did the organization make a loan to a disqualified person (as defined in section 4958) not described in line 7? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ).

Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.

Did one or more disqualified persons (as defined in line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.

Did a disqualified person (as defined in line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.

10a

Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.

10a

Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).

10b

Schedule A (Form 990 or 990-EZ) 2018

Page 5

Part IV

Supporting Organizations (continued)

Yes

Has the organization accepted a gift or contribution from any of the following persons?

A person who directly or indirectly controls, either alone or together with persons described in (b) and (c) below, the governing body of a supported organization?

11a

A family member of a person described in (a) above?

11b

A 35% controlled entity of a person described in (a) or (b) above? If “Yes” to a, b, or c, provide detail in Part VI.

11c

Section B. Type I Supporting Organizations

Yes

Did the directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.

Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.

Section C. Type II Supporting Organizations

Yes

Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).

Section D. All Type III Supporting Organizations

Yes

Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?

Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).

By reason of the relationship described in (2), did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.

Section E. Type III Functionally-Integrated Supporting Organizations

Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):

The organization satisfied the Activities Test. Complete line 2 below.

The organization is the parent of each of its supported organizations. Complete line 3 below.

The organization supported a governmental entity. Describe in Part VI how you supported a government entity (see instructions)

Activities Test. Answer (a) and (b) below.

Yes

Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.

Did the activities described in (a) constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.

Parent of Supported Organizations. Answer (a) and (b) below.

Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations? Provide details in Part VI.

Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.

Schedule A (Form 990 or 990-EZ) 2018

Page 6

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations

Check here if the organization satisfied the Integral Part Test as a qualifying trust on Nov. 20, 1970 (explain in Part VI). See instructions. All other Type III non-functionally integrated supporting organizations must complete Sections A through E.

	Section A - Adjusted Net Income		(A) Prior Year	(B) Current Year (optional)
1	Net short-term capital gain	1
2	Recoveries of prior-year distributions	2
3	Other gross income (see instructions)	3
4	Add lines 1 through 3	4
5	Depreciation and depletion	5
6	Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions)	6
7	Other expenses (see instructions)	7
8	Adjusted Net Income (subtract lines 5, 6 and 7 from line 4)	8

	Section B - Minimum Asset Amount		(A) Prior Year	(B) Current Year (optional)
1	Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year):	1
a	Average monthly value of securities	1a
b	Average monthly cash balances	1b
c	Fair market value of other non-exempt-use assets	1c
d	Total (add lines 1a, 1b, and 1c)	1d
e	Discount claimed for blockage or other factors (explain in detail in Part VI):
2	Acquisition indebtedness applicable to non-exempt use assets	2
3	Subtract line 2 from line 1d	3
4	Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions).	4
5	Net value of non-exempt-use assets (subtract line 4 from line 3)	5
6	Multiply line 5 by .035	6
7	Recoveries of prior-year distributions	7
8	Minimum Asset Amount (add line 7 to line 6)	8

	Section C - Distributable Amount		Current Year
1	Adjusted net income for prior year (from Section A, line 8, Column A)	1
2	Enter 85% of line 1	2
3	Minimum asset amount for prior year (from Section B, line 8, Column A)	3
4	Enter greater of line 2 or line 3	4
5	Income tax imposed in prior year	5
6	Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions)	6

Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (see instructions)

Schedule A (Form 990 or 990-EZ) 2018

Page 7

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations (continued)

Section D - Distributions		Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity
3 Administrative expenses paid to accomplish exempt purposes of supported organizations
4 Amounts paid to acquire exempt-use assets
5 Qualified set-aside amounts (prior IRS approval required)
6 Other distributions (describe in Part VI). See instructions
7Total annual distributions. Add lines 1 through 6.
8 Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions
9 Distributable amount for 2018 from Section C, line 6
10 Line 8 amount divided by Line 9 amount

Section E - Distribution Allocations (see instructions)		(i) Excess Distributions	(ii) Underdistributions Pre-2018	(iii) Distributable Amount for 2018
1 Distributable amount for 2018 from Section C, line 6
2 Underdistributions, if any, for years prior to 2018 (reasonable cause required-- explain in Part VI). See instructions.
3 Excess distributions carryover, if any, to 2018:
a From 2013.......
b From 2014.......
c From 2015.......
d From 2016.......
e From 2017.......
fTotal of lines 3a through e
g Applied to underdistributions of prior years
h Applied to 2018 distributable amount
i Carryover from 2013 not applied (see instructions)
j Remainder. Subtract lines 3g, 3h, and 3i from 3f.
4Distributions for 2018 from Section D, line 7:
$
a Applied to underdistributions of prior years
b Applied to 2018 distributable amount
c Remainder. Subtract lines 4a and 4b from 4.
5 Remaining underdistributions for years prior to 2018, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions.
6 Remaining underdistributions for 2018. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions.
7 Excess distributions carryover to 2019. Add lines 3j and 4c.
8 Breakdown of line 7:
a Excess from 2014......
b Excess from 2015.....
c Excess from 2016.....
d Excess from 2017.....
e Excess from 2018.....

Schedule A (Form 990 or 990-EZ) (2018)

Schedule A (Form 990 or 990-EZ) 2018

Page 8

Part VI

Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).

Facts And Circumstances Test

Return Reference	Explanation
SCHEDULE A, PART II, LINE 12 - GROSS RECEIPTS FROM RELATED ACTIVITIES	THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATION RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. The Foundation manages a post-marketing safety study mandated by the Food & Drug Administration (FDA) in order to ensure the safety of people with CF. Fees for this service are reported on Line 12. REIMBURSEMENTS FOR DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE RELATED COSTS ARE REPORTED ON LINE 12.

Return Reference

Explanation

SCHEDULE A, PART II, LINE 12 - GROSS RECEIPTS FROM RELATED ACTIVITIES

THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATION RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. The Foundation manages a post-marketing safety study mandated by the Food & Drug Administration (FDA) in order to ensure the safety of people with CF. Fees for this service are reported on Line 12. REIMBURSEMENTS FOR DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE RELATED COSTS ARE REPORTED ON LINE 12.

Schedule A (Form 990 or 990-EZ) 2018

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE C
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527

SchCMd Bullet

Complete if the organization is described below. SchCMd Bullet

Attach to Form 990 or Form 990-EZ.
SchCMd Bullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2018

Open to Public
Inspection

If the organization answered "Yes" on Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet

Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet

Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet

Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" on Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet

Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet

Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" on Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet

Section 501(c)(4), (5), or (6) organizations: Complete Part III.

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I-A

Complete if the organization is exempt under section 501(c) or is a section 527 organization.

Provide a description of the organization’s direct and indirect political campaign activities in Part IV (see instructions for definition of “political campaign activities")

Political campaign activity expenditures (see instructions) .................................................................... SchCMd Bullet

Volunteer hours for political campaign activities (see instructions) ..................................................................

Part I-B

Complete if the organization is exempt under section 501(c)(3).

Enter the amount of any excise tax incurred by the organization under section 4955 ................................ SchCMd Bullet

Enter the amount of any excise tax incurred by organization managers under section 4955 ....................... SchCMd Bullet

If the organization incurred a section 4955 tax, did it file Form 4720 for this year? .........................................

Yes No

Was a correction made? ......................................................................................................................

Yes No

If "Yes," describe in Part IV.

Part I-C

Complete if the organization is exempt under section 501(c), except section 501(c)(3).

Enter the amount directly expended by the filing organization for section 527 exempt function activities ..... SchCMd Bullet

Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ............................................................................................................................ SchCMd Bullet

Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b........... SchCMd Bullet

Did the filing organization file Form 1120-POL for this year? ...................................................................

Yes No

Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.

(a) Name	(b) Address	(c) EIN	(d) Amount paid from filing organization's funds. If none, enter -0-.	(e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.
1
2
3
4
5
6

For Paperwork Reduction Act Notice, see the instructions for Form 990 or 990-EZ.

Cat. No. 50084S

Schedule C (Form 990 or 990-EZ) 2018

Page 2

Part II-A

Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).

A Check SchCMd Bullet

if the filing organization belongs to an affiliated group (and list in Part IV each affiliated group member's name, address, EIN, expenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet

if the filing organization checked box A and "limited control" provisions apply.

Limits on Lobbying Expenditures (The term "expenditures" means amounts paid or incurred.)		(b) Affiliated group totals
1a	Total lobbying expenditures to influence public opinion (grass roots lobbying) ......................
b	Total lobbying expenditures to influence a legislative body (direct lobbying) ...............................
c	Total lobbying expenditures (add lines 1a and 1b) ...................................................................
d	Other exempt purpose expenditures ........................................................................
e	Total exempt purpose expenditures (add lines 1c and 1d) ...............................................
f	Lobbying nontaxable amount. Enter the amount from the following table in both columns.
	If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
	Not over $500,00020% of the amount on line 1e.
	Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
	Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
	Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
	Over $17,000,000$1,000,000.

g	Grassroots nontaxable amount (enter 25% of line 1f) .................................................
h	Subtract line 1g from line 1a. If zero or less, enter -0-. ................................................
i	Subtract line 1f from line 1c. If zero or less, enter -0-. ................................................
j	If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting section 4911 tax for this year? ...................................................................................................................	Yes No

4-Year Averaging Period Under section 501(h) (Some organizations that made a section 501(h) election do not have to complete all of the five columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
	Calendar year (or fiscal year beginning in)	(a) 2015	(b) 2016	(c) 2017	(d) 2018	(e) Total

2a	Lobbying nontaxable amount

b	Lobbying ceiling amount (150% of line 2a, column(e))

c	Total lobbying expenditures

d	Grassroots nontaxable amount

e	Grassroots ceiling amount (150% of line 2d, column (e))

f	Grassroots lobbying expenditures

Schedule C (Form 990 or 990-EZ) 2018

Page 3

Part II-B

Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).

For each "Yes" response on lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.

(a)

Yes

(b)

Amount

During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:

Volunteers? ...........................................................................................................

Yes

Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ........

Yes

Media advertisements? ...................................................................................................

Mailings to members, legislators, or the public? .............................................................................

Yes

55,305

Publications, or published or broadcast statements? ...........................................................

Yes

15,541

Grants to other organizations for lobbying purposes? ..........................................................

Direct contact with legislators, their staffs, government officials, or a legislative body? .......................

Yes

1,894,586

Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ..................

Other activities? ...................................................................................................................

Yes

7,522

Total. Add lines 1c through 1i ....................................................................................................

1,972,954

Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....

If "Yes," enter the amount of any tax incurred under section 4912 ...........................................

If "Yes," enter the amount of any tax incurred by organization managers under section 4912 ...................

If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? ........................

Part III-A

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).

Yes

Were substantially all (90% or more) dues received nondeductible by members? ...............................................

Did the organization make only in-house lobbying expenditures of $2,000 or less? ............................................

Did the organization agree to carry over lobbying and political expenditures from the prior year? .................................

Part III-B

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."

Dues, assessments and similar amounts from members ......................................................................

Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political expenses for which the section 527(f) tax was paid).

Current year .............................................................................................................................

Carryover from last year ............................................................................................................

Total ...........................................................................................................................................

Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .

If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ......................................................................................................................

Taxable amount of lobbying and political expenditures (see instructions) .........................................

Part IV

Supplemental Information

Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.

Return Reference	Explanation
LOBBYING ACTIVITY	THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.

Return Reference

Explanation

LOBBYING ACTIVITY

THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.

Schedule C (Form 990 or 990EZ) 2018

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE D
(Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Financial Statements

Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
SchDMd Bullet

Attach to Form 990.
SchDMd Bullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2018

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.

		(a) Donor advised funds	(b) Funds and other accounts
1	Total number at end of year .........
2	Aggregate value of contributions to (during year)
3	Aggregate value of grants from (during year)
4	Aggregate value at end of year ........

Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............

Yes No

Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................

Yes No

Part II

Conservation Easements. Complete if the organization answered "Yes" on Form 990, Part IV, line 7.

Purpose(s) of conservation easements held by the organization (check all that apply).

Preservation of land for public use (e.g., recreation or education) Preservation of an historically important land area

Protection of natural habitat Preservation of a certified historic structure

Preservation of open space

Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.


a	Total number of conservation easements ......................	2a
b	Total acreage restricted by conservation easements ....................	2b
c	Number of conservation easements on a certified historic structure included in (a) .....	2c
d	Number of conservation easements included in (c) acquired after 7/25/06, and not on a historic structure listed in the National Register ...	2d

Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year SchDMd Bullet

Number of states where property subject to conservation easement is located SchDMd Bullet

Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............

Yes No

Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet

Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet

Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................

Yes No

In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.

If the organization elected, as permitted under SFAS 116 (ASC 958), not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.

If the organization elected, as permitted under SFAS 116 (ASC 958), to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:

(i)

Revenue included on Form 990, Part VIII, line 1 ......................... SchDMd Bullet

(ii)

Assets included in Form 990, Part X ............................... SchDMd Bullet

If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under SFAS 116 (ASC 958) relating to these items:

Revenue included on Form 990, Part VIII, line 1 .......................... SchDMd Bullet

Assets included in Form 990, Part X ............................... SchDMd Bullet

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 52283D

Schedule D (Form 990) 2018

Page 2

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)

Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):

Public exhibition

Loan or exchange programs

Scholarly research

Other

Preservation for future generations

Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.

During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...

Yes No

Part IV

Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.

Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................

Yes No


b	If "Yes," explain the arrangement in Part XIII and complete the following table:		Amount
c	Beginning balance .............................	1c
d	Additions during the year ............................	1d
e	Distributions during the year ..........................	1e
f	Ending balance ................................	1f

Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...

Yes No

If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....

Part V

Endowment Funds. Complete if the organization answered "Yes" on Form 990, Part IV, line 10.

		(a)Current year	(b)Prior year	(c)Two years back	(d)Three years back	(e)Four years back

1a	Beginning of year balance ....
b	Contributions ...
c	Net investment earnings, gains, and losses
d	Grants or scholarships ...
e	Other expenditures for facilities and programs ...
f	Administrative expenses ....
g	End of year balance ......

Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:

Board designated or quasi-endowment SchDMd Bullet

Permanent endowment SchDMd Bullet

Temporarily restricted endowment SchDMd Bullet

The percentages on lines 2a, 2b, and 2c should equal 100%.

Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes

(i) unrelated organizations .................

3a(i)

(ii) related organizations .................

3a(ii)

If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........

Describe in Part XIII the intended uses of the organization's endowment funds.

Part VI

Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.

Description of property		(a) Cost or other basis (investment)	(b) Cost or other basis (other)	(c) Accumulated depreciation	(d) Book value

1a	Land .....
b	Buildings ....
c	Leasehold improvements	5,791,808	1,765,041	4,026,767
d	Equipment ....	18,197,786	10,678,611	7,519,175
e	Other .....
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).)..				11,545,942

Schedule D (Form 990) 2018

Page 3

Part VII

InvestmentsOther Securities. Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.

(a) Description of security or category (including name of security)	(b) Book value	(c) Method of valuation: Cost or end-of-year market value
(1) Financial derivatives.........
(2) Closely-held equity interests........
(3) Other (A) FIXED INCOME INDEX COMMINGLED	130,016,792	F
(B) PUBLIC EQUITY COMMINGLED	1,420,424,553	F
(C) OTHER PUBLIC EQUITY BASED	85,829,930	F
(D) HEDGED STRATEGIES	241,649,622	F
(E) PVT EQTY & OTHR ILLIQUID FUNDS	242,432,458	F
(F) PERPETUAL TRUSTS	3,505,698	F
(F)
(G)
(H)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)	2,123,859,053

Part VIII

InvestmentsProgram Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.

(a) Description of investment	(b) Book value	(c) Method of valuation: Cost or end-of-year market value

(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)

Part IX

Other Assets. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.

(a) Description				(b) Book value

(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........

Part X

Other Liabilities. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.

1.(a) Description of liability	(b) Book value
(1) Federal income taxes	0
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)	0
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII

Schedule D (Form 990) 2018

Page 4

Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total revenue, gains, and other support per audited financial statements .......			1	-95,787,139
2	Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a	Net unrealized gains (losses) on investments ....	2a	-356,700,781
b	Donated services and use of facilities .........	2b
c	Recoveries of prior year grants ...........	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d .....................			2e	-356,700,781
3	Subtract line 2e from line 1..................			3	260,913,642
4	Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b .	4a	14,877,114
b	Other (Describe in Part XIII.) ...........	4b
c	Add lines 4a and 4b....................			4c	14,877,114
5	Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ......			5	275,790,756

Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total expenses and losses per audited financial statements ...........			1	323,035,454
2	Amounts included on line 1 but not on Form 990, Part IX, line 25:
a	Donated services and use of facilities .........	2a
b	Prior year adjustments ............	2b
c	Other losses ................	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d....................			2e
3	Subtract line 2e from line 1...................			3	323,035,454
4	Amounts included on Form 990, Part IX, line 25, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b ..	4a	14,877,114
b	Other (Describe in Part XIII.) ............	4b
c	Add lines 4a and 4b.....................			4c	14,877,114
5	Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ......			5	337,912,568

Part XIII

Supplemental Information

Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.

Return Reference

Explanation

SCHEDULE D, PART X

FIN 48 FOOTNOTE THE FOUNDATION IS A NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2018 AND 2017. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. THE TAX CUTS AND JOBS ACT (THE TAX ACT) WAS SIGNED INTO LAW ON DECEMBER 22, 2017. THE TAX ACT INCLUDES SEVERAL CHANGES RELEVANT TO TAX-EXEMPT ORGANIZATIONS, PRIMARILY RELATED TO UNRELATED BUSINESS INCOME, NET OPERATING LOSSES, CERTAIN NEW EXCISE TAXES, AND CHANGES AFFECTING THE DEDUCTIBILITY OF CERTAIN EXPENSES. MANAGEMENT HAS DETERMINED THAT THE NEW LAW WILL NOT HAVE A SIGNIFICANT IMPACT ON THE FOUNDATION'S FINANCIAL STATEMENTS.

Schedule D (Form 990) 2018

Additional Data

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SCHEDULE F(Form 990)

Department of the Treasury
Internal Revenue Service

Statement of Activities Outside the United States

Complete if the organization answered "Yes" to Form 990, Part IV, line 14b, 15, or 16. Right pointing arrow large image

Attach to Form 990. Right pointing arrow large image

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2018

Open to Public Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

General Information on Activities Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 14b.

For grantmakers. Does the organization maintain records to substantiate the amount of its grants and

other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used

to award the grants or assistance? . . . . . . . . . . . . . . . . . . . . . . . . .

Yes

For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.

Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)

(a) Region		(d) Activities conducted in region (by type) (e.g., fundraising, program services, investments, grants to recipients located in the region)	(e) If activity listed in (d) is a program service, describe specific type of service(s) in region	(f) Total expenditures for and investments in region
	North America	Grantmaking	NONE	2,414,488
	Middle East and North Africa	Grantmaking	NONE	42,120
	Europe (Including Iceland and Greenland)	Grantmaking	NONE	4,460,431
	East Asia and the Pacific	Grantmaking	NONE	2,037,919
	Central America and the Caribbean	Investments		670,086,377
	East Asia and the Pacific	Investments		4,546,262
	Europe (Including Iceland and Greenland)	Investments		65,552,178
	North America	Investments		2,252,536
	North America	Program Services	CONTRACTED RESEARCH	1,400,000
	Middle East and North Africa	Program Services	CONTRACTED RESEARCH	200,000
	Europe (Including Iceland and Greenland)	Program Services	CONTRACTED RESEARCH	1,101,601






3a	Sub-total .....			754,093,912
b	Total from continuation sheets to Part I ...
c	Totals (add lines 3a and 3b)			754,093,912

For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) 2018

Schedule F (Form 990) 2018

Page 2

Part II

Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.

(c) Region	(d) Purpose of grant	(e) Amount of cash grant	(f) Manner of cash disbursement
Europe (Including Iceland and Greenland)	CLINICAL STUDY	60,000	WIRE
East Asia and the Pacific	QUALITY IMPROVEMENT	205,480	WIRE
North America	CLINICAL STUDY	541,000	CHECK
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH CTR	755,337	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	134,987	WIRE
Europe (Including Iceland and Greenland)	RESEARCH STUDY	63,100	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH	985,268	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH CTR	769,475	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	108,000	WIRE
North America	RESEARCH	243,000	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	54,000	WIRE
Middle East and North Africa	CLINICAL RESEARCH	42,120	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	108,000	WIRE
North America	CLINICAL STUDY	52,510	WIRE
North America	RESEARCH	233,000	WIRE
North America	CLINICAL STUDY	383,184	CHECK
North America	CLINICAL RESEARCH	33,916	CHECK
Europe (Including Iceland and Greenland)	RESEARCH	91,257	WIRE
North America	RESEARCH	95,475	WIRE
East Asia and the Pacific	RESEARCH	108,000	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	54,000	WIRE
Europe (Including Iceland and Greenland)	CLINICAL STUDY	220,865	WIRE
North America	PILOT STUDY	54,000	CHECK
North America	PILOT STUDY	53,892	WIRE
East Asia and the Pacific	CLINICAL STUDY	304,691	WIRE
East Asia and the Pacific	CLINICAL STUDY	242,956	WIRE
East Asia and the Pacific	CLINICAL RESEARCH	556,574	WIRE
East Asia and the Pacific	THERAPEUTICS DISCOVERY	89,616	WIRE
East Asia and the Pacific	CLINICAL STUDY	310,770	WIRE
East Asia and the Pacific	CLINICAL RESEARCH	219,832	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	50,500	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	54,000	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	54,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	107,955	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	67,972	WIRE
North America	PILOT STUDY	54,000	WIRE
North America	RESEARCH	134,962	CHECK
North America	CLINICAL RESEARCH	162,000	CHECK
North America	CLINICAL RESEARCH	135,000	WIRE
North America	THERAPEUTICS DISCOVERY	187,047	WIRE
Europe (Including Iceland and Greenland)	THERAPEUTICS DISCOVERY	40,000	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	49,680	WIRE
Europe (Including Iceland and Greenland)	THERAPEUTICS DISCOVERY	141,231	WIRE
North America	PILOT STUDY	49,882	WIRE
Europe (Including Iceland and Greenland)	CLINICAL STUDY	53,984	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	106,338	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	135,000	WIRE
Europe (Including Iceland and Greenland)	THERAPEUTICS DISCOVERY	193,482	WIRE

2	Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter .......	34
3	Enter total number of other organizations or entities .......................

Schedule F (Form 990) 2018

Schedule F (Form 990) 2018Page 3

Part III

Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" to Form 990, Part IV, line 16.

Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance		(b) Region	(c) Number of recipients	(d) Amount of cash grant	(e) Manner of cash disbursement	(f) Amount of non-cash assistance	(g) Description of non-cash assistance	(h) Method of valuation (book, FMV, appraisal, other)

Schedule F (Form 990) 2018

Page 4

Part IV

Foreign Forms

Schedule F (Form 990) 2018

Page 5

Part V

Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information (see instructions).

ReturnReference	Explanation
PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S.	THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE GRANT TO THE MIDDLE EAST/NORTH AFRICA REGION WAS MADE TO THE RESEARCH FUND OF THE HADASSAH MEDICAL ORGANIZATION IN ISRAEL.
FOREIGN FORMS	THE ACTIVITIES REFERENCED IN SCHEDULE F, PART IV ARE LIMITED TO CERTAIN OF THE FOUNDATION'S INVESTMENTS.

Schedule F (Form 990) 2018

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SCHEDULE G (Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Supplemental Information Regarding
Fundraising or Gaming Activities

Complete if the organization answered "Yes" on Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrow

Attach to Form 990 or Form 990-EZ.
right arrow

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2018

Open to Public Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Fundraising Activities. Complete if the organization answered "Yes" on Form 990, Part IV, line 17.

Form 990-EZ filers are not required to complete this part.

Indicate whether the organization raised funds through any of the following activities. Check all that apply.

a	Mail solicitations	e	Solicitation of non-government grants
b	Internet and email solicitations	f	Solicitation of government grants
c	Phone solicitations	g	Special fundraising events
d	In-person solicitations

Did the organization have a written or oral agreement with any individual (including officers, directors, trustees

or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?

YesNo

If "Yes," list the ten highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.

(i) Name and address of individual or entity (fundraiser)		(ii) Activity	(iii) Did fundraiser have custody or control of contributions?		(iv) Gross receipts from activity	(v) Amount paid to (or retained by) fundraiser listed in col. (i)	(vi) Amount paid to (or retained by) organization
			Yes	No
	LAUTMAN MASKA NEILL COMPAN	MAIL COUNSEL		No	8,531,656	226,000	8,305,656
	THE PURSUANT GROUP INC	DATA ANALYSIS		No		100,000








Total . . . . . . . . . . . . . . . . . . . .					8,531,656	326,000	8,305,656

List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.

AL, AK, AZ, AR, CA, CO, CT, DE, FL, GA, HI, ID, IL, IN, IA, KS, KY, LA, ME, MD, MA, MI, MN, MS, MO, MT, NE, NV, NH, NJ, NM, NY, NC, ND, OH, OK, OR, PA, RI, SC, SD, TN, TX, UT, VT, VA, WA, WV, WI, WY

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 50083H

Schedule G (Form 990 or 990-EZ) 2018

Page 2

Part II

Fundraising Events. Complete if the organization answered "Yes" on Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.

		(a) Event #1 SKI (event type)	(b) Event #2 ATLANTA WALK (event type)	(c) Other events 854 (total number)	(d) Total events (add col. (a) through col. (c))
1	Gross receipts . . . . .	2,470,895	2,536,483	90,607,929	95,615,307
2	Less: Contributions . . . .	1,127,214	2,463,742	77,249,901	80,840,857
3	Gross income (line 1 minus line 2) . . . . . .	1,343,681	72,741	13,358,028	14,774,450

4	Cash prizes . . . . .			6,653	6,653
5	Noncash prizes . . . .	6,154	14,983	840,334	861,471
6	Rent/facility costs . . . .	194,005	27,071	5,907,822	6,128,898
7	Food and beverages . . .	973,622	19,464	3,777,650	4,770,736
8	Entertainment . . . .		450	412,137	412,587
9	Other direct expenses . . .	268,900	10,773	2,314,432	2,594,105
10	Direct expense summary. Add lines 4 through 9 in column (d) . . . . . . . . . .				14,774,450
11	Net income summary. Subtract line 10 from line 3, column (d). . . . . . . . . .

Part III

Gaming. Complete if the organization answered "Yes" on Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.

		(a) Bingo	(b) Pull tabs/Instant bingo/progressive bingo	(c) Other gaming	(d) Total gaming (add col.(a) through col.(c))
1	Gross revenue . . . . .			128,250	128,250

2	Cash prizes . . . . .
3	Noncash prizes . . . .	39,194	39,194
4	Rent/facility costs . . . .
5	Other direct expenses . . .

Volunteer labor . . . .

	Yes %
	No

	Yes %
	No

	Yes %
	No

Direct expense summary. Add lines 2 through 5 in column (d) . . . . . . . . . . right arrow

39,194

Net gaming income summary. Subtract line 7 from line 1, column (d). . . . . . . . . right arrow

89,056

Enter the state(s) in which the organization conducts gaming activities: CO , IL , MT , NE , NH , OH , TX

Is the organization licensed to conduct gaming activities in each of these states? . . . . . . . .

YesNo

If "No," explain:

10a

Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? . . .

YesNo

If "Yes," explain:

Schedule G (Form 990 or 990-EZ) 2018

Page 3

Does the organization conduct gaming activities with nonmembers? . . . . . . . . . . .

YesNo

Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity

formed to administer charitable gaming? . . . . . . . . . . . . . . . . .

YesNo

Indicate the percentage of gaming activity conducted in:

The organization's facility . . . . . . . . . . . . . . . . . .

13a

An outside facility . . . . . . . . . . . . . . . . . . . .

13b

100.000 %

Enter the name and address of the person who prepares the organization's gaming/special events books and records:

Name

THE ORGANIZATION

Address

4550 MONTGOMERY AVE SUITE 1100N
BETHESDA,MD20814

15a

Does the organization have a contract with a third party from whom the organization receives gaming

revenue? . . . . . . . . . . . . . . . . . . . . . . . .

YesNo

If "Yes," enter the amount of gaming revenue received by the organization right arrow

$ and the

amount of gaming revenue retained by the third party right arrow

$ .

If "Yes," enter name and address of the third party:

Name

Address

Gaming manager information:

Name

Gaming manager compensation right arrow

Description of services provided right arrow

Director/officer Employee Independent contractor

Mandatory distributions:

Is the organization required under state law to make charitable distributions from the gaming proceeds to

retain the state gaming license? . . . . . . . . . . . . . . . . . . .

YesNo

Enter the amount of distributions required under state law distributed to other exempt organizations or spent

in the organization's own exempt activities during the tax year right arrow

Part IV

Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v); and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information. See instructions.

Return Reference

Explanation

PROFESSIONAL FUNDRAISING SERVICES

SCHEDULE G, PART I, LINE 2B CFF HAD A WRITTEN CONTRACT WITH LAUTMAN MASKA NEILL & COMPANY TO CONSULT ON ITS DIRECT MAIL AND ANNUAL FUND EFFORTS DURING 2018. THE EXPENSE FOR THE PROJECT IS $18,000 PER MONTH OR $216,000 FOR THE ENTIRE YEAR OF SERVICES. LAUTMAN MASKA NEILL & COMPANY ALSO PERFORMED A DATA AUDIT FOR $10,000 DURING 2018. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED LAUTMAN MASKA NEILL & COMPANY FOR CREATIVE DEVELOPMENT. LAUTMAN MASKA NEILL & COMPANY DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM MAILINGS WITH WHICH LAUTMAN MASKA NEILL & COMPANY ASSISTS ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION. CFF HAD A WRITTEN CONTRACT WITH THE PURSUANT GROUP, INC TO CONDUCT A DONOR FILE ANALYSIS DURING 2018. THE EXPENSE FOR THE PROJECT WAS $100,000. THE PURSUANT GROUP DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM ANALYSIS PERFORMED BY THE PURSUANT GROUP ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION.

SCHEDULE G, PART III

ON OCCASION, THE CYSTIC FIBROSIS FOUNDATION CONDUCTS RAFFLES, DRAWINGS, OR GAMES OF CHANCE AS PART OF ITS FUNDRAISING EVENTS. GAMING LICENSES ARE OBTAINED WHEN APPLICABLE PER STATE OR LOCAL REGULATION. THERE ARE CERTAIN STATES WHERE CFF ONLY CONDUCTS OPPORTUNITY DRAWINGS. ANY VOLUNTEER INVOLVEMENT IN SUCH ACTIVITIES WAS INSIGNIFICANT. NO OUTSIDE PARTY HAD ANY INVOLVEMENT IN GAMING ACTIVITIES AND THESE ACTIVITIES DO NOT GENERATE UNRELATED BUSINESS INCOME. THE EXECUTIVE DIRECTOR OF EACH OFFICE IS RESPONSIBLE FOR OVERSEEING GAMING ACTIVITIES CONDUCTED BY THEIR OFFICE.

Schedule G (Form 990 or 990-EZ) 2018

Additional Data

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Schedule I
(Form 990)

Department of the Treasury
Internal Revenue Service

Grants and Other Assistance to Organizations,
Governments and Individuals in the United States

Complete if the organization answered "Yes," on Form 990, Part IV, line 21 or 22.
lBullet

Attach to Form 990.
lBullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2018

Open to Public
Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number
13-1930701

Part I

General Information on Grants and Assistance

Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ........................

Yes No

Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.

Part II

Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" on Form 990, Part IV, line 21, for any recipient

that received more than $5,000. Part II can be duplicated if additional space is needed.

(a) Name and address of organization or government	(b) EIN	(c) IRC section (if applicable)	(d) Amount of cash grant	(h) Purpose of grant or assistance
(1) 3RD STREET SOCIETY 107 E INDIAN AVE BOX 102 FOLLY BEACH,SC29439	82-1635295	501C(3)	6,300	COMMUNITY IMPACT
(2) ADVOCATE CHARITABLE FOUNDATION 3075 HIGHLAND PARKWAY SUITE 600 DOWNERS GROVE,IL605151288	36-3297360	501C(3)	151,193	CF CARE CENTER
(3) ALBANY MEDICAL COLLEGE ELSMERE A-107 ALBANY,NY12208	14-1338310	501C(3)	140,625	CF CARE CENTER
(4) ALBANY MEDICAL COLLEGE ELSMERE A-107 ALBANY,NY12208	14-1338310	501C(3)	97,681	CLINICAL RESEARCH CENTER
(5) ALL CHILDREN'S HOSPITAL INC DEPT 9010 PO BOX 31020 ST PETERSBURG,FL33731	59-0683252	501C(3)	185,256	CF CARE CENTER
(6) ALL CHILDREN'S HOSPITAL INC DEPT 9010 PO BOX 31020 ST PETERSBURG,FL33731	59-0683252	501C(3)	152,000	CLINICAL RESEARCH CENTER
(7) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 2300 CHILDRENS PLAZA - BOX 205 CHICAGO,IL60614	36-2170833	501C(3)	135,395	CF CARE CENTER
(8) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 2300 CHILDRENS PLAZA - BOX 205 CHICAGO,IL60614	36-2170833	501C(3)	275,054	CLINICAL RESEARCH CENTER
(9) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 2300 CHILDRENS PLAZA - BOX 205 CHICAGO,IL60614	36-2170833	501C(3)	164,150	CLINICAL RESEARCH STUDY
(10) ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 888 N EUCLID ROOM 510 TUCSON,AZ85722	74-2652689	IRC 115	32,400	ADHERENCE
(11) ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 888 N EUCLID ROOM 510 TUCSON,AZ85722	74-2652689	IRC 115	194,025	CF CARE CENTER
(12) ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 888 N EUCLID ROOM 510 TUCSON,AZ85722	74-2652689	IRC 115	146,365	CLINICAL RESEARCH CENTER
(13) ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 888 N EUCLID ROOM 510 TUCSON,AZ85722	74-2652689	IRC 115	313,573	CLINICAL RESEARCH STUDY
(14) ARKANSAS CHILDREN'S HOSPITAL RESEARCH INSTITUTE I 800 MARSHALL STREET SLOT 512-17 LITTLE ROCK,AR72202	71-0694931	501C(3)	114,500	CF CARE CENTER
(15) ASTHMA AND ALLERGY SPECIALISTS PA 411 BILLINGS ROAD SUITE 104 CHARLOTTE,NC28211	56-1913043	C CORP	76,485	CF CARE CENTER
(16) ATLANTIC HEALTH SYSTEM 100 MADISON AVENUE MORRISTOWN,NJ07962	52-1958352	501C(3)	41,922	ADULT CARE
(17) ATLANTIC HEALTH SYSTEM 100 MADISON AVENUE MORRISTOWN,NJ07962	52-1958352	501C(3)	118,735	CF CARE CENTER
(18) ATLANTIC HEALTH SYSTEM 100 MADISON AVENUE MORRISTOWN,NJ07962	52-1958352	501C(3)	27,000	CLINICAL RESEARCH CENTER
(19) ATLANTIC HEALTH SYSTEM 100 MADISON AVENUE MORRISTOWN,NJ07962	52-1958352	501C(3)	106,903	CLINICAL RESEARCH CENTER
(20) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC 1120 15TH STREET CJ3301 AUGUSTA,GA30912	58-1418202	501C(3)	153,020	CF CARE CENTER
(21) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC 1120 15TH STREET CJ3301 AUGUSTA,GA30912	58-1418202	501C(3)	68,769	CLINICAL RESEARCH CENTER
(22) BAYLOR COLLEGE OF MEDICINE PO BOX 1 HOUSTON,TX77212	74-1613878	501C(3)	410,190	CF CARE CENTER
(23) BAYLOR COLLEGE OF MEDICINE PO BOX 1 HOUSTON,TX77212	74-1613878	501C(3)	362,117	CLINICAL RESEARCH CENTER
(24) BAYLOR COLLEGE OF MEDICINE PO BOX 1 HOUSTON,TX77212	74-1613878	501C(3)	90,610	CLINICAL RESEARCH STUDY
(25) BAYSTATE MEDICAL CENTER INC 759 CHESTNUT STREET SPRINGFIELD,MA01199	04-2790311	501C(3)	51,535	CF CARE CENTER
(26) BETH ISRAEL DEACONESS MEDICAL CENTER BR305 330 BROOKLINE AVE BOSTON,MA02215	04-2103881	501C(3)	75,052	ADULT CARE
(27) BETH ISRAEL DEACONESS MEDICAL CENTER BR305 330 BROOKLINE AVE BOSTON,MA02215	04-2103881	501C(3)	28,240	CLINICAL RESEARCH
(28) BETH ISRAEL MEDICAL CENTER OFFICE OF GRANTS CONTRACTS 160 WATER STREET 24TH FLOOR NEW YORK,NY10038	13-5564934	501C(3)	190,815	CF CARE CENTER
(29) BETH ISRAEL MEDICAL CENTER OFFICE OF GRANTS CONTRACTS 160 WATER STREET 24TH FLOOR NEW YORK,NY10038	13-5564934	501C(3)	134,855	CLINICAL RESEARCH CENTER
(30) BILLINGS CLINIC FOUNDATION 2800 TENTH AVENUE NORTH PO BOX 3700 BILLINGS,MT59107	81-0407289	501C(3)	116,340	CF CARE CENTER
(31) BILLINGS CLINIC FOUNDATION 2800 TENTH AVENUE NORTH PO BOX 3700 BILLINGS,MT59107	81-0407289	501C(3)	65,452	CLINICAL RESEARCH CENTER
(32) BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEA PO BOX 26901 OKLAHOMA CITY,OK73190	73-1563627	501C(3)	31,050	ADULT CARE
(33) BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEA PO BOX 26901 OKLAHOMA CITY,OK73190	73-1563627	501C(3)	460,207	CF CARE CENTER
(34) BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEA PO BOX 26901 OKLAHOMA CITY,OK73190	73-1563627	501C(3)	231,019	CLINICAL RESEARCH CENTER
(35) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY 750 UNIVERSITY AVENUE MADISON,WI53706	39-6006492	501C(3)	296,766	CF CARE CENTER
(36) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY 750 UNIVERSITY AVENUE MADISON,WI53706	39-6006492	501C(3)	151,889	CLINICAL RESEARCH CENTER
(37) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY 750 UNIVERSITY AVENUE MADISON,WI53706	39-6006492	501C(3)	357,830	CLINICAL RESEARCH STUDY
(38) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY 750 UNIVERSITY AVENUE MADISON,WI53706	39-6006492	501C(3)	102,358	QUALITY IMPROVEMENT
(39) BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY DIVISION OF PULMONARY MEDICINE PO BOX 19636 SPRINGFIELD,IL62794	37-6005961	501C(3)	30,210	CF CARE CENTER
(40) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 651 SERRA STREET SUITE 220 STANFORD,CA943056215	94-1156365	501C(3)	32,009	ADHERENCE
(41) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 651 SERRA STREET SUITE 220 STANFORD,CA943056215	94-1156365	501C(3)	306,875	CF CARE CENTER
(42) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 651 SERRA STREET SUITE 220 STANFORD,CA943056215	94-1156365	501C(3)	193,318	CLINICAL RESEARCH CENTER
(43) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 651 SERRA STREET SUITE 220 STANFORD,CA943056215	94-1156365	501C(3)	173,084	CLINICAL RESEARCH STUDY
(44) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 651 SERRA STREET SUITE 220 STANFORD,CA943056215	94-1156365	501C(3)	446,000	RESEARCH
(45) BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS 809 S MARSHFIELD AVENUE MB 502 M/C 551 CHICAGO,IL60612	37-6000511	501C(3)	10,000	COMMUNITY IMPACT
(46) BOSTON CHILDREN'S HEALTH PHYSICIANS LLP 40 SUNSHINE COTTAGE ROAD SKYLINE SUITE 1N-C08 VALHALLA,NY10595	13-3956599	LLP	215,990	CF CARE CENTER
(47) BOSTON CHILDREN'S HEALTH PHYSICIANS LLP 40 SUNSHINE COTTAGE ROAD SKYLINE SUITE 1N-C08 VALHALLA,NY10595	13-3956599	LLP	126,258	CLINICAL RESEARCH CENTER
(48) BREATHE FOR BRITT FOUNDATION 15 HANCOCK COURT S SETAUKET,NY117204610	30-0492819	501C(3)	10,000	COMMUNITY IMPACT
(49) BRIGHAM AND WOMEN'S HOSPITAL BOSTON 10 VINING BOSTON,MA02115	04-2312909	501C(3)	53,479	PILOT STUDY
(50) CALIFORNIA INSTITUTE OF TECHNOLOGY 1200 E CALIFORNIA BLVD M/C 201-15 PASADENA,CA91125	95-1643307	501C(3)	65,363	RESEARCH STUDY
(51) CAMC HEALTH EDUCATION AND RESEARCH INSTITUTE PO BOX 765 CHARLESTON,WV25323	55-0753754	501C(3)	69,470	CF CARE CENTER
(52) CARLE FOUNDATION HOSPITAL 611 W PARK STREET URBANA,IL61801	37-1119538	501C(3)	45,430	CF CARE CENTER
(53) CARNEGIE MELLON UNIVERSITY 5000 FORBES AVENUE PITTSBURGH,PA15213	25-0969449	501C(3)	54,000	PILOT STUDY
(54) CAROLINAS HEALTHCARE FOUNDATION 208 EAST BOULEVARD CHARLOTTE,NC28203	56-6060481	501C(3)	106,032	CF CARE CENTER
(55) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE ATTN DEBORAH ELAM CLEVELAND,OH441067037	34-1018992	501C(3)	32,400	ADULT CARE
(56) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE ATTN DEBORAH ELAM CLEVELAND,OH441067037	34-1018992	501C(3)	352,786	CLINICAL RESEARCH CENTER
(57) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE ATTN DEBORAH ELAM CLEVELAND,OH441067037	34-1018992	501C(3)	108,000	PILOT STUDY
(58) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE ATTN DEBORAH ELAM CLEVELAND,OH441067037	34-1018992	501C(3)	699,947	RESEARCH
(59) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE ATTN DEBORAH ELAM CLEVELAND,OH441067037	34-1018992	501C(3)	923,133	RESEARCH CENTER
(60) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE ATTN DEBORAH ELAM CLEVELAND,OH441067037	34-1018992	501C(3)	60,866	RESEARCH STUDY
(61) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE ATTN DEBORAH ELAM CLEVELAND,OH441067037	34-1018992	501C(3)	88,800	TRAINING
(62) CEDARS-SINAI MEDICAL CENTER 8700 BEVERLY BOULEVARD 65WIL SUIT LOS ANGELES,CA90048	95-1644600	501C(3)	95,712	RESEARCH STUDY
(63) CEDARS-SINAI MEDICAL CENTER 8700 BEVERLY BOULEVARD 65WIL SUIT LOS ANGELES,CA90048	95-1644600	501C(3)	216,000	THERAPEUTICS DISCOVERY RESEARCH
(64) CENTRAL FLORIDA PULMONARY GROUP PA 326 NORTH MILLS AVENUE ORLANDO,FL32803	59-1760017	C CORP	82,242	ADULT CARE
(65) CENTRAL FLORIDA PULMONARY GROUP PA 326 NORTH MILLS AVENUE ORLANDO,FL32803	59-1760017	C CORP	210,360	CF CARE CENTER
(66) CENTRAL FLORIDA PULMONARY GROUP PA 326 NORTH MILLS AVENUE ORLANDO,FL32803	59-1760017	C CORP	194,468	CLINICAL RESEARCH CENTER
(67) CHATTANOOGA HAMILTON COUNTY HOSPITAL AUTHORITY (DB 975 EAST THIRD STREET CHATTANOOGA,TN37403	62-6000101	501C(3)	53,945	CF CARE CENTER
(68) CHILDREN'S HEALTH CARE 2525 CHICAGO AVENUE SO MINNEAPOLIS,MN55404	41-1754276	501C(3)	145,875	CF CARE CENTER
(69) CHILDREN'S HEALTH CARE 2525 CHICAGO AVENUE SO MINNEAPOLIS,MN55404	41-1754276	501C(3)	155,997	CLINICAL RESEARCH CENTER
(70) CHILDREN'S HEALTH CARE 2525 CHICAGO AVENUE SO MINNEAPOLIS,MN55404	41-1754276	501C(3)	13,194	QUALITY IMPROVEMENT
(71) CHILDREN'S HEALTHCARE OF ATLANTA 1001 JOHNSON FERRY ROAD NORTH ATLANTA,GA30342	58-2367819	501C(3)	149,775	CF CARE CENTER
(72) CHILDREN'S HEALTHCARE OF ATLANTA 1001 JOHNSON FERRY ROAD NORTH ATLANTA,GA30342	58-2367819	501C(3)	141,910	CLINICAL RESEARCH CENTER
(73) CHILDREN'S HOSPITAL & MEDICAL CENTER FOUNDATION 8401 W DODGE ROAD SUITE 120 OMAHA,NE68114	47-6105603	501C(3)	34,514	ADULT CARE
(74) CHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND 747 52ND STREET OAKLAND,CA94609	94-0382330	501C(3)	200,000	THERAPEUTICS DISCOVERY RESEARCH
(75) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVE BOSTON,MA021155737	04-2774441	501C(3)	2,679,950	ADHERENCE
(76) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVE BOSTON,MA021155737	04-2774441	501C(3)	48,117	ADULT CARE
(77) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVE BOSTON,MA021155737	04-2774441	501C(3)	367,170	CF CARE CENTER
(78) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVE BOSTON,MA021155737	04-2774441	501C(3)	352,525	CLINICAL RESEARCH CENTER
(79) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVE BOSTON,MA021155737	04-2774441	501C(3)	238,000	RESEARCH
(80) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVE BOSTON,MA021155737	04-2774441	501C(3)	63,100	RESEARCH STUDY
(81) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVE BOSTON,MA021155737	04-2774441	501C(3)	128,000	TRAINING
(82) CHILDREN'S HOSPITAL LOS ANGELES RESEARCH INSTITUTE 4650 SUNSET BLVD LOS ANGELES,CA90027	95-1690977	501C(3)	120,685	CF CARE CENTER
(83) CHILDREN'S HOSPITAL LOS ANGELES RESEARCH INSTITUTE 4650 SUNSET BLVD LOS ANGELES,CA90027	95-1690977	501C(3)	52,776	CLINICAL RESEARCH CENTER
(84) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	32,400	ADHERENCE
(85) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	153,175	CF CARE CENTER
(86) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	1,660,903	CLINICAL CARE RESEARCH
(87) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	38,163	CLINICAL RESEARCH
(88) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	186,284	CLINICAL RESEARCH CENTER
(89) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	292,000	CLINICAL RESEARCH STUDY
(90) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	43,200	QUALITY IMPROVEMENT
(91) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	125,000	RESEARCH
(92) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	470,000	RESEARCH CENTER
(93) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	254,750	RESEARCH STUDY
(94) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	100,242	THERAPEUTICS DISCOVERY RESEARCH
(95) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	128,000	TRAINING
(96) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON ONE PERKINS SQUARE AKRON,OH44308	34-0714357	501C(3)	178,265	CF CARE CENTER
(97) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON ONE PERKINS SQUARE AKRON,OH44308	34-0714357	501C(3)	95,250	CLINICAL RESEARCH CENTER
(98) CHILDREN'S HOSPITAL OF MICHIGAN 3663 WOODWARD AVE S STE 200 DETROIT,MI48201	38-1357994	501C(3)	88,370	CF CARE CENTER
(99) CHILDREN'S HOSPITAL OF ORANGE COUNTY PO BOX 5700 ORANGE,CA926135700	95-2321786	501C(3)	32,400	ADULT CARE
(100) CHILDREN'S HOSPITAL OF ORANGE COUNTY PO BOX 5700 ORANGE,CA926135700	95-2321786	501C(3)	130,767	CF CARE CENTER
(101) CHILDREN'S HOSPITAL OF ORANGE COUNTY PO BOX 5700 ORANGE,CA926135700	95-2321786	501C(3)	54,000	CLINICAL RESEARCH CENTER
(102) CHILDREN'S HOSPITAL OF PITTSBURGH OF UPMC HEALTH S 3705 FIFTH AVENUE PITTSBURGH,PA15213	25-0402510	501C(3)	391,710	CF CARE CENTER
(103) CHILDREN'S HOSPITAL OF THE KING'S DAUGHTERS INC 601 CHILDRENS LANE NORFOLK,VA235071910	54-0506321	501C(3)	13,811	CF CARE CENTER
(104) CHILDREN'S LUNG SPECIALISTS 3838 MEADOWS LANE LAS VAGAS,NV89107	88-0271963	501C(3)	132,250	CF CARE CENTER
(105) CHILDREN'S MEDICAL CENTER ONE CHILDRENS PLAZA DAYTON,OH45404	31-0672132	501C(3)	244,781	CF CARE CENTER
(106) CHILDREN'S MEDICAL CENTER ONE CHILDRENS PLAZA DAYTON,OH45404	31-0672132	501C(3)	146,225	CLINICAL RESEARCH CENTER
(107) CHILDREN'S NATIONAL MEDICAL CENTER 111 MICHIGAN AVENUE NW WASHINGTON,DC20010	52-1640403	501C(3)	142,065	CF CARE CENTER
(108) CHILDREN'S RESEARCH INSTITUTE (AT CNMC) CHILDRENS NATIONAL MEDICAL CENTER 111 MICHIGAN AVENUE NW WASHINGTON,DC20010	52-1654453	501C(3)	130,000	CLINICAL RESEARCH STUDY
(109) CHILDREN'S SPECIALTY GROUP PLLC 811 REDGATE AVE NORFOLK,VA23507	54-1871633	LLC	116,595	CF CARE CENTER
(110) CHRISTIANA CARE HEALTH SERVICES INC PO BOX 2653 WILMINGTON,DE19805	51-0103684	501C(3)	36,065	CF CARE CENTER
(111) CHRISTUS SANTA ROSA HEALTH SYSTEM 333 NORTH SANTA ROSA STREET SAN ANTONIO,TX78207	74-1109665	501C(3)	34,955	CF CARE CENTER
(112) COACH-ED INC 526 SPROUL RD VILLANOVA,PA19085	45-3399942	501C(3)	10,000	COMMUNITY IMPACT
(113) CODY DIERUF BENEFIT FOUNDATION PO BOX 6044 BOZEMAN,MT59771	20-4498266	501C(3)	10,000	COMMUNITY IMPACT
(114) COLD SPRING HARBOR LABORATORY 1 BUNGTOWN COLD SPRING COLD SPRING HARBOR,NY117242213	11-2013303	501C(3)	106,691	RESEARCH
(115) CONNECTICUT CHILDREN'S MEDICAL CENTER 282 WASHINGTON STREET HARTFORD,CT06106	06-0646755	501C(3)	65,425	CF CARE CENTER
(116) COOK CHILDREN'S MEDICAL CENTER CF CENTER 801 SEVENTH AVENUE FT WORTH,TX76104	75-2051646	501C(3)	222,590	CF CARE CENTER
(117) COOK CHILDREN'S MEDICAL CENTER CF CENTER 801 SEVENTH AVENUE FT WORTH,TX76104	75-2051646	501C(3)	132,679	CLINICAL RESEARCH CENTER
(118) COOKS CHILDREN'S MEDICAL CENTER 801 SEVENTH AVENUE FT WORTH,TX76104	75-2051646	501C(3)	39,971	CLINICAL RESEARCH CENTER
(119) CREIGHTON UNIVERSITY 2500 CALIFORNIA PLAZA OMAHA,NE68178	47-0376583	501C(3)	54,000	PILOT STUDY
(120) DAUGHTERS OF CARING HEALTH SERVICES OF AUSTIN PO BOX 1 HOUSTON,TX77212	74-1109643	501C(3)	331,965	CF CARE CENTER
(121) DAUGHTERS OF CARING HEALTH SERVICES OF AUSTIN PO BOX 1 HOUSTON,TX77212	74-1109643	501C(3)	141,020	CLINICAL RESEARCH CENTER
(122) DREXEL UNIVERSITY 3201 ARCH STREET SUITE 420 PHILADELPHIA,PA19104	23-1352630	501C(3)	134,335	CF CARE CENTER
(123) DREXEL UNIVERSITY COLLEGE OF MEDICINE ST CHRIST 3201 ARCH STREET SUITE 420 PHILADELPHIA,PA19104	23-2979433	501C(3)	32,264	CLINICAL RESEARCH CENTER
(124) DRISCOLL CHILDREN'S HOSPITAL CORPUS CHRISTI TX 78411 CORPUS CHRISTI,TX78411	74-2577746	501C(3)	39,535	CF CARE CENTER
(125) DUKE UNIVERSITY OFFICE OF SPONSORED PROGRAMS BOX 104025 DURHAM,NC27710	56-0532129	501C(3)	82,284	ADULT CARE
(126) DUKE UNIVERSITY OFFICE OF SPONSORED PROGRAMS BOX 104025 DURHAM,NC27710	56-0532129	501C(3)	256,619	CF CARE CENTER
(127) DUKE UNIVERSITY OFFICE OF SPONSORED PROGRAMS BOX 104025 DURHAM,NC27710	56-0532129	501C(3)	490,316	CLINICAL CARE RESEARCH
(128) DUKE UNIVERSITY OFFICE OF SPONSORED PROGRAMS BOX 104025 DURHAM,NC27710	56-0532129	501C(3)	158,687	THERAPEUTICS DISCOVERY RESEARCH
(129) EAST CAROLINA UNIVERSITY FINANCIAL SERVICES BUILDING GREENVILLE,NC27858	56-6000403	IRC 115	17,000	CF CARE CENTER
(130) EAST TENNESSEE CHILDREN'S HOSPITAL ASSOCIATION I 2100 CLINCH AVENUE 310 KNOXVILLE,TN37916	62-6002604	501C(3)	102,810	CF CARE CENTER
(131) EASTERN MAINE MEDICAL CENTER 417 STATE STREET SUITE 305 BANGOR,ME04401	01-0211501	501C(3)	49,275	CF CARE CENTER
(132) EASTERN VIRGINIA MEDICAL SCHOOL 601 CHILDRENS LANE NORFOLK,VA23507	54-6055378	501C(3)	54,000	PILOT STUDY
(133) EMORY UNIVERSITY 1599 CLIFTON RD NE ATLANTA,GA30322	58-0566256	501C(3)	78,263	ADULT CARE
(134) EMORY UNIVERSITY 1599 CLIFTON RD NE ATLANTA,GA30322	58-0566256	501C(3)	304,230	CF CARE CENTER
(135) EMORY UNIVERSITY 1599 CLIFTON RD NE ATLANTA,GA30322	58-0566256	501C(3)	17,371	CLINICAL RESEARCH
(136) EMORY UNIVERSITY 1599 CLIFTON RD NE ATLANTA,GA30322	58-0566256	501C(3)	195,493	CLINICAL RESEARCH CENTER
(137) EMORY UNIVERSITY 1599 CLIFTON RD NE ATLANTA,GA30322	58-0566256	501C(3)	161,672	PILOT STUDY
(138) EMORY UNIVERSITY 1599 CLIFTON RD NE ATLANTA,GA30322	58-0566256	501C(3)	580,717	RESEARCH
(139) EMORY UNIVERSITY 1599 CLIFTON RD NE ATLANTA,GA30322	58-0566256	501C(3)	563,126	RESEARCH CENTER
(140) EMORY UNIVERSITY 1599 CLIFTON RD NE ATLANTA,GA30322	58-0566256	501C(3)	194,000	RESEARCH STUDY
(141) EMORY UNIVERSITY 1599 CLIFTON RD NE ATLANTA,GA30322	58-0566256	501C(3)	110,000	THERAPEUTICS DISCOVERY RESEARCH
(142) EMORY UNIVERSITY 1599 CLIFTON RD NE ATLANTA,GA30322	58-0566256	501C(3)	223,362	TRAINING
(143) FAIRFAX NEONATAL ASSOCIATES PC DBAPEDIATRIC LUNG 2730-B PROSPERITY AVENUE FAIRFAX,VA22031	54-1110106	C CORP	62,050	CF CARE CENTER
(144) GEISINGER CLINIC PEDIATRIC ALLERGY IMMONOLOGY PUL 100 N ACADEMY DRIVE DANVILLE,PA17822	23-6291113	501C(3)	214,082	CF CARE CENTER
(145) GEORGIA TECH RESEARCH CORPORATION PO BOX 100117 ATLANTA,GA30384	58-0603146	501C(3)	54,000	PILOT STUDY
(146) GEORGIA TECH RESEARCH CORPORATION PO BOX 100117 ATLANTA,GA30384	58-0603146	501C(3)	103,200	RESEARCH
(147) GEORGIA TECH RESEARCH CORPORATION PO BOX 100117 ATLANTA,GA30384	58-0603146	501C(3)	204,540	RESEARCH STUDY
(148) GOOD SAMARITAN HOSPITAL 1000 MONTAUK HIGHWAY NEW YORK,NY11795	11-1888924	501C(3)	27,895	CF CARE CENTER
(149) GUNDERSEN LUTHERAN MEDICAL FOUNDATION 1900 SOUTH AVENUE LA CROSSE,WI54601	39-1249705	501C(3)	30,260	CF CARE CENTER
(150) HARTFORD HOSPITAL DEPARMENT OF MEDICINE 80 SEYMOUR STREET HARTFORD,CT06102	06-0646668	501C(3)	123,569	CF CARE CENTER
(151) HARVARD MEDICAL SCHOOL 200 LONGWOOD AVENUE BOSTON,MA02115	04-2103580	501C(3)	130,900	RESEARCH STUDY
(152) HARVARD MEDICAL SCHOOL 200 LONGWOOD AVENUE BOSTON,MA02115	04-2103580	501C(3)	554,924	THERAPEUTICS DISCOVERY RESEARCH
(153) HEALTH RESEARCH INC NEW YORK STATE DEPARTMENT O 150 BROADWAY SUITE 560 MENANDS,NY122042719	14-1402155	501C(3)	108,000	RESEARCH
(154) HEALTHWELL FOUNDATION PO BOX 4133 GAITHERSBURG,MD20885	20-0413676	501C(3)	2,750,000	PATIENT ASSISTANCE
(155) HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF 1404 ROCKVILLE PIKE SUITE 600 ROCKVILLE,MD20852	52-1317896	501C(3)	38,500	CF CARE CENTER
(156) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ONE GUSTAVE L LEVY PLACE BOX 3500 NEW YORK,NY10029	13-6171197	501C(3)	21,460	CF CARE CENTER
(157) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ONE GUSTAVE L LEVY PLACE BOX 3500 NEW YORK,NY10029	13-6171197	501C(3)	18,247	CLINICAL RESEARCH CENTER
(158) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ONE GUSTAVE L LEVY PLACE BOX 3500 NEW YORK,NY10029	13-6171197	501C(3)	43,200	QUALITY IMPROVEMENT
(159) INFECTIOUS DISEASE RESEARCH INSTITUTE 1616 EASTLAKE AVENUE EAST 400 SEATTLE,WA98102	91-1608978	501C(3)	54,000	PILOT STUDY
(160) INOVA HEALTH CARE SERVICES 8110 GATEHOUSE ROAD SUITE 400W FALLS CHURCH,VA22042	54-0620889	501C(3)	50,580	CF CARE CENTER
(161) IOM HEALTH SYSTEM LP 7950 WEST JEFFERSON BOULEVARD FT WAYNE,IN46804	35-1963748	C CORP	59,570	CF CARE CENTER
(162) IOWA HEALTH FOUNDATION 1440 INGERSOLL AVENUE DES MOINES,IA50309	42-1467682	501C(3)	75,995	CF CARE CENTER
(163) JOE DIMAGGIO CHILDREN'S HOSPITAL FOUNDATION INC 3329 JOHNSON STREET HOLLYWOOD,FL33021	65-0492343	501C(3)	131,096	CLINICAL RESEARCH CENTER
(164) KAISER FOUNDATION RESEARCH INSTITUTE A DIVIDISION 1800 HARRISON STREET 16TH FLOOR OAKLAND,CA94612	94-1105628	501C(3)	342,335	CF CARE CENTER
(165) KALEIDA HEALTH 219 BRYANT STREET BUFFALO,NY14209	16-1533232	501C(3)	147,355	CF CARE CENTER
(166) KID LOGISTICS 470 ARUNDEL DRIVE BRANDON,MS39047	81-3019912	501C(3)	9,680	COMMUNITY IMPACT
(167) LANDON PEDIATRIC FOUNDATION 3291 LOMA VISTA ROAD BUILDING 340 SUITE 302 VENTURA,CA93003	93-1097216	501C(3)	38,590	CF CARE CENTER
(168) LEE MEMORIAL HEALTH SYSTEM FOUNDATION INC 16451 HEALTHPARK COMMONS 200 FT MYERS,FL339083630	65-0645343	501C(3)	39,005	CF CARE CENTER
(169) LEHIGH VALLEY HOSPITAL PEDIATRIC SPECIALTY CENTER 2545 SCHOENERSVILLE ROAD BETHLEHEM,PA18017	23-1689692	501C(3)	74,832	CF CARE CENTER
(170) LOMA LINDA UNIVERSITY 11175 E CAMPUS STREET COLEMAN PAV A1120N LOMA LINDA,CA92354	95-3522679	501C(3)	64,445	CF CARE CENTER
(171) LONG ISLAND JEWISH MEDICAL CENTER FINANCE DEPARTMENT 972 BRUSHHOLLOW ROAD WESTBURY,NY11590	11-2241326	501C(3)	213,413	CF CARE CENTER
(172) LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER P O BOX 33932 SHREVEPORT,LA71130	72-0702002	501C(3)	117,080	CF CARE CENTER
(173) LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER 642 CSRB 533 BOLIVAR ST NEW ORLEANS,LA70112	72-6087770	501C(3)	54,000	PILOT STUDY
(174) LOYOLA UNIVERSITY CHICAGO 2160 S FIRST AVENUE MAYWOOD,IL60153	36-1408475	501C(3)	89,045	CF CARE CENTER
(175) LOYOLA UNIVERSITY CHICAGO 2160 S FIRST AVENUE MAYWOOD,IL60153	36-1408475	501C(3)	135,000	CLINICAL CARE RESEARCH
(176) MAINE MEDICAL CENTER 22 BRAMHALL STREET PORTLAND,ME04102	01-0238552	501C(3)	158,775	CF CARE CENTER
(177) MAINE MEDICAL CENTER 22 BRAMHALL STREET PORTLAND,ME04102	01-0238552	501C(3)	134,432	CLINICAL RESEARCH CENTER
(178) MAINE MEDICAL CENTER 22 BRAMHALL STREET PORTLAND,ME04102	01-0238552	501C(3)	375,674	CLINICAL RESEARCH STUDY
(179) MARSHFIELD CLINIC RESEARCH FOUNDATION 1000 NORTH OAK AVENUE MARSHFIELD,WI54449	39-0452970	501C(3)	86,394	CF CARE CENTER
(180) MARY BRIDGE CHILDREN'S FOUNDATION 311 SOUTH L STREET MAILSTOP B1-OC TACOMA,WA98405	94-3030039	501C(3)	64,835	CF CARE CENTER
(181) MAYO CLINIC 200 FIRST STREET SW PLUMMER 5 ROCHESTER,MN55905	41-6011702	501C(3)	91,230	CF CARE CENTER
(182) MEDICAL UNIVERSITY OF SOUTH CAROLINA PO BOX 997 CHARLESTON,SC29402	57-6000722	501C(3)	72,497	ADULT CARE
(183) MEDICAL UNIVERSITY OF SOUTH CAROLINA PO BOX 997 CHARLESTON,SC29402	57-6000722	501C(3)	198,650	CF CARE CENTER
(184) MEDICAL UNIVERSITY OF SOUTH CAROLINA PO BOX 997 CHARLESTON,SC29402	57-6000722	501C(3)	44,799	CLINICAL CARE RESEARCH
(185) MEDICAL UNIVERSITY OF SOUTH CAROLINA PO BOX 997 CHARLESTON,SC29402	57-6000722	501C(3)	30,262	CLINICAL RESEARCH
(186) MEDICAL UNIVERSITY OF SOUTH CAROLINA PO BOX 997 CHARLESTON,SC29402	57-6000722	501C(3)	249,696	CLINICAL RESEARCH CENTER
(187) MEDICAL UNIVERSITY OF SOUTH CAROLINA PO BOX 997 CHARLESTON,SC29402	57-6000722	501C(3)	53,853	CLINICAL RESEARCH STUDY
(188) MEDICAL UNIVERSITY OF SOUTH CAROLINA PO BOX 997 CHARLESTON,SC29402	57-6000722	501C(3)	125,000	RESEARCH
(189) MEGAN'S LIGHT INC 71 HOMER ST FEEDING HILLS,MA01030	47-5429549	501C(3)	10,000	COMMUNITY IMPACT
(190) MEMORIAL HEALTH SERVICES 17360 BROOKHURST STREET FOUNTAIN VALLEY,CA92708	95-1643381	501C(3)	73,991	CLINICAL RESEARCH CENTER
(191) MEMORIAL MEDICAL CENTER FOUNDATION (ON BEHALF OF L 2801 ATLANTIC AVENUE PO BOX 1428 LONG BEACH,CA908011428	95-6105984	501C(3)	153,890	CF CARE CENTER
(192) MICHIGAN STATE UNIVERSITY 301 ADMINISTRATION BLDG EAST LANSING,MI488241046	38-6005984	501C(3)	79,101	CF CARE CENTER
(193) MISSION HEALTHCARE FOUNDATION INC 980 HENDERSONVILLE ROAD SUITE C ASHEVILLE,NC28803	56-1881331	501C(3)	23,050	CF CARE CENTER
(194) MONMOUTH MEDICAL CENTER FOUNDATION 300 SECOND AVENUE LONG BRANCH,NJ07740	22-2456079	501C(3)	120,590	CF CARE CENTER
(195) MONMOUTH MEDICAL CENTER FOUNDATION 300 SECOND AVENUE LONG BRANCH,NJ07740	22-2456079	501C(3)	67,672	CLINICAL RESEARCH CENTER
(196) NATIONAL DISEASE RESEARCH INTERCHANGE 8 PENN CENTER 15TH FLOOR 1628 JFK BOULEVARD PHILADELPHIA,PA19103	23-2213205	501C(3)	320,000	RESEARCH
(197) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	26,779	ADHERENCE
(198) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	38,923	ADULT CARE
(199) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	233,701	CF CARE CENTER
(200) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	328,310	CLINICAL RESEARCH
(201) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	180,779	CLINICAL RESEARCH CENTER
(202) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	270,000	CLINICAL RESEARCH STUDY
(203) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	216,000	RESEARCH
(204) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	525,000	RESEARCH CENTER
(205) NEMOURS CHILDREN'S HEALTH SYSTEM 10140 CTN PARKWAY N JACKSONVILLE,FL32256	59-0634433	501C(3)	406,780	CF CARE CENTER
(206) NEMOURS CHILDREN'S HEALTH SYSTEM 10140 CTN PARKWAY N JACKSONVILLE,FL32256	59-0634433	501C(3)	291,872	CLINICAL RESEARCH CENTER
(207) NEMOURS CHILDREN'S HEALTH SYSTEM 10140 CTN PARKWAY N JACKSONVILLE,FL32256	59-0634433	501C(3)	42,526	QUALITY IMPROVEMENT
(208) NEW YORK UNIVERSITY 550 FIRST AVENUE NEW YORK,NY10016	13-5562308	501C(3)	99,223	CF CARE CENTER
(209) NEW YORK UNIVERSITY 550 FIRST AVENUE NEW YORK,NY10016	13-5562308	501C(3)	43,200	QUALITY IMPROVEMENT
(210) NORTH SUBURBAN PULMONARY RESEARCH AND EDUCATION 8780 W GOLD SUITE 102 NILES,IL60714	36-4393617	C CORP	42,035	CF CARE CENTER
(211) NORTHWESTERN UNIVERSITY 750 N LAKE SHORE DRIVE RUBLOFF 7TH FLOOR CHICAGO,IL606113008	36-2167817	501C(3)	27,889	ADHERENCE
(212) NORTHWESTERN UNIVERSITY 750 N LAKE SHORE DRIVE RUBLOFF 7TH FLOOR CHICAGO,IL606113008	36-2167817	501C(3)	72,689	ADULT CARE
(213) NORTHWESTERN UNIVERSITY 750 N LAKE SHORE DRIVE RUBLOFF 7TH FLOOR CHICAGO,IL606113008	36-2167817	501C(3)	216,827	CF CARE CENTER
(214) NORTHWESTERN UNIVERSITY 750 N LAKE SHORE DRIVE RUBLOFF 7TH FLOOR CHICAGO,IL606113008	36-2167817	501C(3)	201,392	CLINICAL RESEARCH CENTER
(215) NORTHWESTERN UNIVERSITY 750 N LAKE SHORE DRIVE RUBLOFF 7TH FLOOR CHICAGO,IL606113008	36-2167817	501C(3)	52,544	CLINICAL RESEARCH STUDY
(216) NORTHWESTERN UNIVERSITY 750 N LAKE SHORE DRIVE RUBLOFF 7TH FLOOR CHICAGO,IL606113008	36-2167817	501C(3)	54,000	PILOT STUDY
(217) NORTHWESTERN UNIVERSITY 750 N LAKE SHORE DRIVE RUBLOFF 7TH FLOOR CHICAGO,IL606113008	36-2167817	501C(3)	105,194	RESEARCH
(218) OREGON HEALTH & SCIENCE UNIVERSITY 0690 SW BANCROFT STREET PORTLAND,OR97239	93-1176109	501C(3)	32,400	ADULT CARE
(219) OREGON HEALTH & SCIENCE UNIVERSITY 0690 SW BANCROFT STREET PORTLAND,OR97239	93-1176109	501C(3)	303,955	CF CARE CENTER
(220) OREGON HEALTH & SCIENCE UNIVERSITY 0690 SW BANCROFT STREET PORTLAND,OR97239	93-1176109	501C(3)	196,733	CLINICAL RESEARCH CENTER
(221) OREGON STATE UNIVERSITY 312 KERR ADMINISTRATION BLDG CORVALLIS,OR973312140	61-1730890	IRC 115	124,727	RESEARCH
(222) ORLANDO HEALTH FOUNDATION 3160 SOUTHGATE COMMERCE BLVD SUITE 50 ORLANDO,FL32806	59-2244943	501C(3)	84,465	CF CARE CENTER
(223) OSF SAINT FRANCIS MEDICAL CENTER 530 NE GLEN OAK AVENUE PEORIA,IL61637	37-0662569	501C(3)	105,250	CF CARE CENTER
(224) OSF SAINT FRANCIS MEDICAL CENTER 530 NE GLEN OAK AVENUE PEORIA,IL61637	37-0662569	501C(3)	68,998	CLINICAL RESEARCH CENTER
(225) PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE OFFICE OF RESEARCH AFFAIRS H138 HERSHEY,PA17033	24-6000376	IRC 115	179,420	CF CARE CENTER
(226) PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE OFFICE OF RESEARCH AFFAIRS H138 HERSHEY,PA17033	24-6000376	IRC 115	89,522	CLINICAL RESEARCH CENTER
(227) PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE OFFICE OF RESEARCH AFFAIRS H138 HERSHEY,PA17033	24-6000376	IRC 115	108,000	RESEARCH
(228) PHOENIX CHILDREN'S HOSPITAL FOUNDATION 2929 CAMELBACK RD SUITE 122 PHOENIX,AZ85016	74-2421549	501C(3)	303,176	CF CARE CENTER
(229) PROVIDENCE HEALTH & SERVICES WASHINGTON 101 W EIGHTH AVE SPOKANE,WA99204	51-0216586	501C(3)	34,495	ADULT CARE
(230) PROVIDENCE HEALTH & SERVICES WASHINGTON 101 W EIGHTH AVE SPOKANE,WA99204	51-0216586	501C(3)	233,080	CF CARE CENTER
(231) PROVIDENCE HEALTH & SERVICES WASHINGTON 101 W EIGHTH AVE SPOKANE,WA99204	51-0216586	501C(3)	143,700	CLINICAL RESEARCH CENTER
(232) RADY CHILDREN'S HOSPITAL FOUNDATION - SAN DIEGO 3020 CHILDRENS WAY MC 5005 SAN DIEGO,CA92123	33-0170626	501C(3)	98,577	CF CARE CENTER
(233) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BLDG 500 AURORA,CO80045	84-6000555	501C(3)	16,567	ADHERENCE
(234) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BLDG 500 AURORA,CO80045	84-6000555	501C(3)	42,344	ADULT CARE
(235) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BLDG 500 AURORA,CO80045	84-6000555	501C(3)	353,132	CF CARE CENTER
(236) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BLDG 500 AURORA,CO80045	84-6000555	501C(3)	1,023,264	CLINICAL CARE RESEARCH
(237) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BLDG 500 AURORA,CO80045	84-6000555	501C(3)	971,865	CLINICAL RESEARCH
(238) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BLDG 500 AURORA,CO80045	84-6000555	501C(3)	1,034,874	CLINICAL RESEARCH CENTER
(239) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BLDG 500 AURORA,CO80045	84-6000555	501C(3)	436,574	CLINICAL RESEARCH STUDY
(240) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BLDG 500 AURORA,CO80045	84-6000555	501C(3)	54,000	PILOT STUDY
(241) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BLDG 500 AURORA,CO80045	84-6000555	501C(3)	375,727	RESEARCH
(242) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BLDG 500 AURORA,CO80045	84-6000555	501C(3)	57,425	THERAPEUTICS DISCOVERY RESEARCH
(243) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BLDG 500 AURORA,CO80045	84-6000555	501C(3)	378,360	TRAINING
(244) RENOWN HEALTH FOUNDATION 1155 MILL ST Z-5 RENO,NV89502	94-2972749	501C(3)	44,185	CF CARE CENTER
(245) RHODE ISLAND HOSPITAL 593 EDDY STREET PROVIDENCE,RI02903	05-0258954	501C(3)	77,620	ADULT CARE
(246) RHODE ISLAND HOSPITAL 593 EDDY STREET PROVIDENCE,RI02903	05-0258954	501C(3)	117,925	CF CARE CENTER
(247) ROSALIND FRANKLIN UNIVERSITY OF MEDICINE AND SCIEN 3333 GREEN BAY ROAD NORTH CHICAGO,IL60064	36-2181973	501C(3)	135,000	RESEARCH
(248) ROSALIND FRANKLIN UNIVERSITY OF MEDICINE AND SCIEN 3333 GREEN BAY ROAD NORTH CHICAGO,IL60064	36-2181973	501C(3)	353,910	THERAPEUTICS DISCOVERY RESEARCH
(249) RUSH UNIVERSITY MEDICAL CENTER 1725 WEST HARRISON SUITE 718 CHICAGO,IL60612	36-2174823	501C(3)	119,670	CF CARE CENTER
(250) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 58 BEVIER ROAD PISCATAWAY,NJ08854	46-2354111	IRC 115	201,730	CF CARE CENTER
(251) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 58 BEVIER ROAD PISCATAWAY,NJ08854	46-2354111	IRC 115	165,863	CLINICAL RESEARCH CENTER
(252) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 58 BEVIER ROAD PISCATAWAY,NJ08854	46-2354111	IRC 115	232,200	RESEARCH
(253) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 58 BEVIER ROAD PISCATAWAY,NJ08854	46-2354111	IRC 115	324,000	THERAPEUTICS DISCOVERY RESEARCH
(254) SAINT BARNABAS MEDICAL CENTER SAINT BARNABAS MEDICAL CENTER PEDIATRIC PULMONARY DIVISION LIVINGSTON,NJ07039	22-1494440	501C(3)	41,385	CF CARE CENTER
(255) SAINT JOSEPH'S HOSPITAL AND MEDICAL CENTER 703 MAIN STREET PATERSON,NJ07503	22-1487602	501C(3)	39,425	CF CARE CENTER
(256) SANFORD CLINIC 1305 W 18TH STREET SIOUX FALLS,SD571175039	46-0447693	501C(3)	127,420	CF CARE CENTER
(257) SANFORD CLINIC 1305 W 18TH STREET SIOUX FALLS,SD571175039	46-0447693	501C(3)	100,538	CLINICAL RESEARCH CENTER
(258) SANFORD MEDICAL CENTER FARGO 801 NORTH BROADWAY FARGO,ND581220176	45-0226909	501C(3)	36,040	CF CARE CENTER
(259) SANTA BARBARA COTTAGE HOSPITAL 2405 DE LA VINA STREET SANTA BARBARA,CA93105	95-1644629	501C(3)	44,350	CF CARE CENTER
(260) SCOTT & WHITE HEALTHCARE FOUNDATION 2401 S 31ST STREET TEMPLE,TX76508	27-3513154	501C(3)	41,175	CF CARE CENTER
(261) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	215,215	CF CARE CENTER
(262) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	558,093	CLINICAL CARE RESEARCH
(263) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	8,993,639	CLINICAL RESEARCH
(264) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	8,025,599	CLINICAL RESEARCH CENTER
(265) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	1,155,050	CLINICAL RESEARCH STUDY
(266) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	42,497	QUALITY IMPROVEMENT
(267) SOCIAL GOOD FUND PO BOX 5473 RICHMOND,CA94805	46-1323531	501C(3)	10,000	COMMUNITY IMPACT
(268) SOUTH BROWARD HOSPITAL DISTRICT JOE DIMAGGIOS CHILDRENS HOSPITAL CYSTIC FIBROSIS CLINIC HOLLYWOOD,FL33321	59-6014973	501C(3)	129,015	CF CARE CENTER
(269) SOUTHERN RESEARCH INSTITUTE 2000 NINTH AVENUE SOUTH BIRMINGHAM,AL35205	63-0288868	501C(3)	2,431,262	THERAPEUTICS DISCOVERY RESEARCH
(270) SPECTRUM HEALTH FOUNDATION 100 MICHIGAN ST NE GRAND RAPIDS,MI49503	38-2752328	501C(3)	321,628	CF CARE CENTER
(271) SPECTRUM HEALTH FOUNDATION 100 MICHIGAN ST NE GRAND RAPIDS,MI49503	38-2752328	501C(3)	171,281	CLINICAL RESEARCH CENTER
(272) ST ALEXIUS MEDICAL CENTER 900 EAST BROADWAY AVENUE BISMARCK,ND58501	45-0226711	501C(3)	65,785	CF CARE CENTER
(273) ST JOSEPH'S REGIONAL MEDICAL CENTER INC 611 EAST CEDAR STREET SUITE 405 MISHAWAKA,IN465451468	35-1568821	501C(3)	47,285	CF CARE CENTER
(274) ST LOUIS UNIVERSITY 3500 LINDELL BLVD ST LOUIS,MO63103	43-0654872	501C(3)	174,251	CF CARE CENTER
(275) ST LOUIS UNIVERSITY 3500 LINDELL BLVD ST LOUIS,MO63103	43-0654872	501C(3)	173,258	CLINICAL RESEARCH CENTER
(276) ST LUKE'S REGIONAL MEDICAL CENTER LTD 100 EAST IDAHO SUITE 200 BOISE,ID83712	82-0161600	501C(3)	177,380	CF CARE CENTER
(277) ST LUKE'S REGIONAL MEDICAL CENTER LTD 100 EAST IDAHO SUITE 200 BOISE,ID83712	82-0161600	501C(3)	118,679	CLINICAL RESEARCH CENTER
(278) ST MARY'S MEDICAL CENTER INC PO BOX 24620 901 45TH STREET WEST PALM BEACH,FL33407	75-2932830	C CORP	101,830	CF CARE CENTER
(279) ST VINCENT HOSPITAL OF THE HOSPITAL SISTERS OF TH 835 S VANBUREN ST GREEN BAY,WI54301	39-0817529	501C(3)	52,640	CF CARE CENTER
(280) STATE OF MISSISSIPPIUNIVERSITY OF MISSISSIPPI MED 2500 NORTH STATE STREET JACKSON,MS392164505	64-6008520	501C(3)	264,167	CF CARE CENTER
(281) STATE OF MISSISSIPPIUNIVERSITY OF MISSISSIPPI MED 2500 NORTH STATE STREET JACKSON,MS392164505	64-6008520	501C(3)	54,000	PILOT STUDY
(282) STATE OF NEW JERSEY PO BOX 360 TRENTON,NJ086250360	21-6000928	U.S. STATE	43,200	QUALITY IMPROVEMENT
(283) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN P O BOX 9 ALBANY,NY12201	14-1368361	501C(3)	30,000	ADHERENCE
(284) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN P O BOX 9 ALBANY,NY12201	14-1368361	501C(3)	380,925	CF CARE CENTER
(285) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN P O BOX 9 ALBANY,NY12201	14-1368361	501C(3)	277,966	CLINICAL RESEARCH CENTER
(286) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN P O BOX 9 ALBANY,NY12201	14-1368361	501C(3)	28,401	QUALITY IMPROVEMENT
(287) SUTTER BAY HOSPITALS 2200 WEBSTER STREET ROOM 405 SAN FRANCISCO,CA94115	94-0562680	501C(3)	25,270	CF CARE CENTER
(288) SUTTER MEDICAL CENTER SACRAMENTO 5609 J STREET SUITE C SACRAMENTO,CA95819	94-1156621	501C(3)	73,005	CF CARE CENTER
(289) TAMPA GENERAL HOSPITAL FOUNDATION INC PO BOX 1289 TAMPA,FL33601	23-7354477	501C(3)	127,500	CF CARE CENTER
(290) TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER 3601 4TH STREET MAIL STOP 6591 LUBBOCK,TX79430	75-2668014	501C(3)	42,470	CF CARE CENTER
(291) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 6401 FRERET ST NEW ORLEANS,LA70118	72-0423889	501C(3)	152,925	CF CARE CENTER
(292) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 6401 FRERET ST NEW ORLEANS,LA70118	72-0423889	501C(3)	54,000	CLINICAL RESEARCH CENTER
(293) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF AR ACTI 4301 WEST MARKHAM STREET MAIL SLOT 555 LITTLE ROCK,AR72205	71-6046242	501C(3)	192,749	CF CARE CENTER
(294) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF AR ACTI 4301 WEST MARKHAM STREET MAIL SLOT 555 LITTLE ROCK,AR72205	71-6046242	501C(3)	111,745	CLINICAL RESEARCH CENTER
(295) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3516 CIVIC CTR BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	265,263	CF CARE CENTER
(296) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3516 CIVIC CTR BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	89,057	CLINICAL RESEARCH
(297) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3516 CIVIC CTR BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	217,499	CLINICAL RESEARCH CENTER
(298) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3516 CIVIC CTR BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	233,750	TRAINING
(299) THE CHILDREN'S MERCY HOSPITAL 2401 GILLHAM ROAD KANSAS CITY,MO64108	44-0605373	501C(3)	218,220	CF CARE CENTER
(300) THE CHILDREN'S MERCY HOSPITAL 2401 GILLHAM ROAD KANSAS CITY,MO64108	44-0605373	501C(3)	250,205	CLINICAL RESEARCH CENTER
(301) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVE CLEVELAND,OH44195	34-0714585	501C(3)	49,865	CF CARE CENTER
(302) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVE CLEVELAND,OH44195	34-0714585	501C(3)	146,070	CLINICAL CARE RESEARCH
(303) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVE CLEVELAND,OH44195	34-0714585	501C(3)	53,872	CLINICAL RESEARCH CENTER
(304) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVE CLEVELAND,OH44195	34-0714585	501C(3)	108,000	RESEARCH
(305) THE CURATORS OF THE UNIVERSITY OF MISSOURI OFFICE OF SPONSORED PROGRAM ADMINIS 310 JESSE HALL COLUMBIA,MO65211	43-6003859	501C(3)	226,418	CF CARE CENTER
(306) THE CURATORS OF THE UNIVERSITY OF MISSOURI OFFICE OF SPONSORED PROGRAM ADMINIS 310 JESSE HALL COLUMBIA,MO65211	43-6003859	501C(3)	108,000	RESEARCH
(307) THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH 350 COMMUNITY DRIVE MANHASSET,NY11030	11-2673595	501C(3)	160,825	CLINICAL RESEARCH CENTER
(308) THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH 350 COMMUNITY DRIVE MANHASSET,NY11030	11-2673595	501C(3)	239,439	QUALITY IMPROVEMENT
(309) THE GENERAL HOSPITAL CORPORATION (AKA MASSACHUSE PO BOX 414876 BOSTON,MA02114	04-2697983	501C(3)	113,280	CLINICAL RESEARCH CENTER
(310) THE GENERAL HOSPITAL CORPORATION (AKA MASSACHUSE PO BOX 414876 BOSTON,MA02114	04-2697983	501C(3)	670,122	CLINICAL RESEARCH STUDY
(311) THE GENERAL HOSPITAL CORPORATION (AKA MASSACHUSE PO BOX 414876 BOSTON,MA02114	04-2697983	501C(3)	160,800	THERAPEUTICS DISCOVERY RESEARCH
(312) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE PO BOX 414876 BOSTON,MA02114	04-2697983	501C(3)	39,015	ADULT CARE
(313) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE PO BOX 414876 BOSTON,MA02114	04-2697983	501C(3)	249,800	CF CARE CENTER
(314) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE PO BOX 414876 BOSTON,MA02114	04-2697983	501C(3)	25,596	CLINICAL RESEARCH CENTER
(315) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE PO BOX 414876 BOSTON,MA02114	04-2697983	501C(3)	130,000	RESEARCH
(316) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE PO BOX 414876 BOSTON,MA02114	04-2697983	501C(3)	131,000	TRAINING
(317) THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON,NH03756	02-0222139	501C(3)	41,108	ADULT CARE
(318) THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON,NH03756	02-0222139	501C(3)	162,295	CF CARE CENTER
(319) THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON,NH03756	02-0222139	501C(3)	171,264	CLINICAL RESEARCH CENTER
(320) THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON,NH03756	02-0222139	501C(3)	131,832	RESEARCH
(321) THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE,MD21205	52-0595110	501C(3)	1,617,267	ADHERENCE
(322) THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE,MD21205	52-0595110	501C(3)	77,575	ADULT CARE
(323) THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE,MD21205	52-0595110	501C(3)	407,104	CF CARE CENTER
(324) THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE,MD21205	52-0595110	501C(3)	142,744	CLINICAL CARE RESEARCH
(325) THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE,MD21205	52-0595110	501C(3)	353,162	CLINICAL RESEARCH
(326) THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE,MD21205	52-0595110	501C(3)	320,000	CLINICAL RESEARCH CENTER
(327) THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE,MD21205	52-0595110	501C(3)	764,243	CLINICAL RESEARCH STUDY
(328) THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE,MD21205	52-0595110	501C(3)	104,000	PILOT STUDY
(329) THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE,MD21205	52-0595110	501C(3)	215,835	RESEARCH
(330) THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE,MD21205	52-0595110	501C(3)	99,988	RESEARCH CENTER
(331) THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE,MD21205	52-0595110	501C(3)	958,231	THERAPEUTICS DISCOVERY RESEARCH
(332) THE MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLK RD MILWAUKEE,WI53226	39-0806261	501C(3)	37,833	ADULT CARE
(333) THE MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLK RD MILWAUKEE,WI53226	39-0806261	501C(3)	234,334	CF CARE CENTER
(334) THE MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLK RD MILWAUKEE,WI53226	39-0806261	501C(3)	168,070	CLINICAL RESEARCH CENTER
(335) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH43210	31-6025986	IRC 115	108,000	PILOT STUDY
(336) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH43210	31-6025986	IRC 115	242,161	RESEARCH
(337) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH43210	31-6025986	IRC 115	128,549	RESEARCH STUDY
(338) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI PO BOX 400195 OFFICE OF SPONSORED PROGRAMS CHARLOTTESVILLE,VA229044195	54-6001796	501C(3)	40,483	ADULT CARE
(339) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI PO BOX 400195 OFFICE OF SPONSORED PROGRAMS CHARLOTTESVILLE,VA229044195	54-6001796	501C(3)	249,012	CF CARE CENTER
(340) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI PO BOX 400195 OFFICE OF SPONSORED PROGRAMS CHARLOTTESVILLE,VA229044195	54-6001796	501C(3)	120,368	CLINICAL RESEARCH CENTER
(341) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS CASHIERS OFFICE 1200 DUTTON HALL ONE SHIELDS AVENUE DAVIS,CA95616	94-6036494	501C(3)	46,440	ADULT CARE
(342) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS CASHIERS OFFICE 1200 DUTTON HALL ONE SHIELDS AVENUE DAVIS,CA95616	94-6036494	501C(3)	198,080	CF CARE CENTER
(343) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS CASHIERS OFFICE 1200 DUTTON HALL ONE SHIELDS AVENUE DAVIS,CA95616	94-6036494	501C(3)	75,946	CLINICAL RESEARCH CENTER
(344) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS A UCLA OFFICE OF CONTRACT AND GRANT A 10920 WILSHIRE BLVD SUITE 200 LOS ANGELES,CA900241406	95-6006143	501C(3)	100,548	CF CARE CENTER
(345) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS A UCLA OFFICE OF CONTRACT AND GRANT A 10920 WILSHIRE BLVD SUITE 200 LOS ANGELES,CA900241406	95-6006143	501C(3)	162,000	THERAPEUTICS DISCOVERY RESEARCH
(346) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN D 9500 GILMAN DRIVE LA JOLLA,CA92093	95-6006144	501C(3)	458,555	CF CARE CENTER
(347) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN D 9500 GILMAN DRIVE LA JOLLA,CA92093	95-6006144	501C(3)	122,827	CLINICAL RESEARCH CENTER
(348) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN D 9500 GILMAN DRIVE LA JOLLA,CA92093	95-6006144	501C(3)	100,000	CLINICAL RESEARCH STUDY
(349) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN D 9500 GILMAN DRIVE LA JOLLA,CA92093	95-6006144	501C(3)	108,000	RESEARCH
(350) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F UCSF OFFICE OF SPONSORED RESEARCH 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO,CA941430962	94-6036493	501C(3)	328,725	CF CARE CENTER
(351) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F UCSF OFFICE OF SPONSORED RESEARCH 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO,CA941430962	94-6036493	501C(3)	70,232	CLINICAL RESEARCH CENTER
(352) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F UCSF OFFICE OF SPONSORED RESEARCH 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO,CA941430962	94-6036493	501C(3)	130,000	CLINICAL RESEARCH STUDY
(353) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F UCSF OFFICE OF SPONSORED RESEARCH 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO,CA941430962	94-6036493	501C(3)	613,000	RESEARCH
(354) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F UCSF OFFICE OF SPONSORED RESEARCH 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO,CA941430962	94-6036493	501C(3)	430,000	RESEARCH CENTER
(355) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F UCSF OFFICE OF SPONSORED RESEARCH 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO,CA941430962	94-6036493	501C(3)	162,000	THERAPEUTICS DISCOVERY RESEARCH
(356) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F UCSF OFFICE OF SPONSORED RESEARCH 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO,CA941430962	94-6036493	501C(3)	192,250	TRAINING
(357) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE ST ANN ARBOR,MI48109	38-6006309	501C(3)	18,246	ADHERENCE
(358) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE ST ANN ARBOR,MI48109	38-6006309	501C(3)	37,240	ADULT CARE
(359) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE ST ANN ARBOR,MI48109	38-6006309	501C(3)	476,079	CF CARE CENTER
(360) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE ST ANN ARBOR,MI48109	38-6006309	501C(3)	585,311	CLINICAL CARE RESEARCH
(361) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE ST ANN ARBOR,MI48109	38-6006309	501C(3)	277,743	CLINICAL RESEARCH CENTER
(362) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE ST ANN ARBOR,MI48109	38-6006309	501C(3)	249,698	CLINICAL RESEARCH STUDY
(363) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE ST ANN ARBOR,MI48109	38-6006309	501C(3)	215,989	THERAPEUTICS DISCOVERY RESEARCH
(364) THE REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK ST SE MINNEAPOLIS,MN55455	41-6007513	501C(3)	230,757	ADULT CARE
(365) THE REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK ST SE MINNEAPOLIS,MN55455	41-6007513	501C(3)	586,482	CF CARE CENTER
(366) THE REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK ST SE MINNEAPOLIS,MN55455	41-6007513	501C(3)	380,617	CLINICAL CARE RESEARCH
(367) THE REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK ST SE MINNEAPOLIS,MN55455	41-6007513	501C(3)	117,940	CLINICAL RESEARCH
(368) THE REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK ST SE MINNEAPOLIS,MN55455	41-6007513	501C(3)	205,929	CLINICAL RESEARCH CENTER
(369) THE REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK ST SE MINNEAPOLIS,MN55455	41-6007513	501C(3)	54,000	PILOT STUDY
(370) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE DEPT 4656 / REF 413407 COLUMBUS,OH43260	31-6056230	501C(3)	32,400	ADULT CARE
(371) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE DEPT 4656 / REF 413407 COLUMBUS,OH43260	31-6056230	501C(3)	396,130	CF CARE CENTER
(372) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE DEPT 4656 / REF 413407 COLUMBUS,OH43260	31-6056230	501C(3)	252,399	CLINICAL RESEARCH CENTER
(373) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE DEPT 4656 / REF 413407 COLUMBUS,OH43260	31-6056230	501C(3)	81,113	CLINICAL RESEARCH STUDY
(374) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE DEPT 4656 / REF 413407 COLUMBUS,OH43260	31-6056230	501C(3)	165,421	QUALITY IMPROVEMENT
(375) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE DEPT 4656 / REF 413407 COLUMBUS,OH43260	31-6056230	501C(3)	259,120	RESEARCH
(376) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE DEPT 4656 / REF 413407 COLUMBUS,OH43260	31-6056230	501C(3)	200,000	RESEARCH CENTER
(377) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE DEPT 4656 / REF 413407 COLUMBUS,OH43260	31-6056230	501C(3)	253,594	THERAPEUTICS DISCOVERY RESEARCH
(378) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE DEPT 4656 / REF 413407 COLUMBUS,OH43260	31-6056230	501C(3)	61,750	TRAINING
(379) THE ROCKEFELLER UNIVERSITY 1230 YORK AVENUE NEW YORK,NY10065	13-1624158	501C(3)	63,100	RESEARCH STUDY
(380) THE ROCKEFELLER UNIVERSITY 1230 YORK AVENUE NEW YORK,NY10065	13-1624158	501C(3)	279,914	THERAPEUTICS DISCOVERY RESEARCH
(381) THE TOLEDO HOSPITAL 2142 N COVE BLVD TOLEDO,OH43606	34-4428256	501C(3)	195,884	CF CARE CENTER
(382) THE TOLEDO HOSPITAL 2142 N COVE BLVD TOLEDO,OH43606	34-4428256	501C(3)	110,376	CLINICAL RESEARCH CENTER
(383) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 351 ENGINEERING TERRACE NEW YORK,NY10027	13-5598093	501C(3)	32,400	ADULT CARE
(384) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 351 ENGINEERING TERRACE NEW YORK,NY10027	13-5598093	501C(3)	298,480	CF CARE CENTER
(385) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 351 ENGINEERING TERRACE NEW YORK,NY10027	13-5598093	501C(3)	31,851	CLINICAL CARE RESEARCH
(386) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 351 ENGINEERING TERRACE NEW YORK,NY10027	13-5598093	501C(3)	337,880	CLINICAL RESEARCH CENTER
(387) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 351 ENGINEERING TERRACE NEW YORK,NY10027	13-5598093	501C(3)	537,904	RESEARCH
(388) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 351 ENGINEERING TERRACE NEW YORK,NY10027	13-5598093	501C(3)	65,450	RESEARCH STUDY
(389) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 351 ENGINEERING TERRACE NEW YORK,NY10027	13-5598093	501C(3)	363,542	THERAPEUTICS DISCOVERY RESEARCH
(390) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 351 ENGINEERING TERRACE NEW YORK,NY10027	13-5598093	501C(3)	66,250	TRAINING
(391) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM,AL352940006	63-6005396	501C(3)	29,297	ADHERENCE
(392) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM,AL352940006	63-6005396	501C(3)	415,345	CF CARE CENTER
(393) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM,AL352940006	63-6005396	501C(3)	463,308	CLINICAL RESEARCH
(394) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM,AL352940006	63-6005396	501C(3)	794,402	CLINICAL RESEARCH CENTER
(395) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM,AL352940006	63-6005396	501C(3)	293,720	CLINICAL RESEARCH STUDY
(396) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM,AL352940006	63-6005396	501C(3)	215,839	PILOT STUDY
(397) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM,AL352940006	63-6005396	501C(3)	375,154	QUALITY IMPROVEMENT
(398) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM,AL352940006	63-6005396	501C(3)	525,000	RESEARCH CENTER
(399) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM,AL352940006	63-6005396	501C(3)	715,658	THERAPEUTICS DISCOVERY RESEARCH
(400) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM,AL352940006	63-6005396	501C(3)	128,500	TRAINING
(401) THE UNIVERSITY OF CHICAGO 5801 S ELLIS AVENUE CHICAGO,IL60637	36-2177139	501C(3)	240,836	CF CARE CENTER
(402) THE UNIVERSITY OF MARYLAND COLLEGE PARK 3112 LEE BUILDING COLLEGE PARK,MD20742	52-6002033	IRC 115	161,777	PILOT STUDY
(403) THE UNIVERSITY OF MARYLAND COLLEGE PARK 3112 LEE BUILDING COLLEGE PARK,MD20742	52-6002033	IRC 115	243,000	RESEARCH
(404) THE UNIVERSITY OF MARYLAND COLLEGE PARK 3112 LEE BUILDING COLLEGE PARK,MD20742	52-6002033	IRC 115	63,100	RESEARCH STUDY
(405) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL NORTH CAROLINA STATE TREASURER OFFICE OF SPONSORED RESEARCH CHAPEL HILL,NC275991350	56-6001393	501C(3)	39,036	ADULT CARE
(406) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL NORTH CAROLINA STATE TREASURER OFFICE OF SPONSORED RESEARCH CHAPEL HILL,NC275991350	56-6001393	501C(3)	368,610	CF CARE CENTER
(407) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL NORTH CAROLINA STATE TREASURER OFFICE OF SPONSORED RESEARCH CHAPEL HILL,NC275991350	56-6001393	501C(3)	128,709	CLINICAL RESEARCH
(408) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL NORTH CAROLINA STATE TREASURER OFFICE OF SPONSORED RESEARCH CHAPEL HILL,NC275991350	56-6001393	501C(3)	405,860	CLINICAL RESEARCH CENTER
(409) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL NORTH CAROLINA STATE TREASURER OFFICE OF SPONSORED RESEARCH CHAPEL HILL,NC275991350	56-6001393	501C(3)	618,182	CLINICAL RESEARCH STUDY
(410) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL NORTH CAROLINA STATE TREASURER OFFICE OF SPONSORED RESEARCH CHAPEL HILL,NC275991350	56-6001393	501C(3)	323,722	PILOT STUDY
(411) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL NORTH CAROLINA STATE TREASURER OFFICE OF SPONSORED RESEARCH CHAPEL HILL,NC275991350	56-6001393	501C(3)	54,502	QUALITY IMPROVEMENT
(412) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL NORTH CAROLINA STATE TREASURER OFFICE OF SPONSORED RESEARCH CHAPEL HILL,NC275991350	56-6001393	501C(3)	1,264,289	RESEARCH
(413) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL NORTH CAROLINA STATE TREASURER OFFICE OF SPONSORED RESEARCH CHAPEL HILL,NC275991350	56-6001393	501C(3)	600,000	RESEARCH CENTER
(414) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL NORTH CAROLINA STATE TREASURER OFFICE OF SPONSORED RESEARCH CHAPEL HILL,NC275991350	56-6001393	501C(3)	126,200	RESEARCH STUDY
(415) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL NORTH CAROLINA STATE TREASURER OFFICE OF SPONSORED RESEARCH CHAPEL HILL,NC275991350	56-6001393	501C(3)	1,837,577	THERAPEUTICS DISCOVERY RESEARCH
(416) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL NORTH CAROLINA STATE TREASURER OFFICE OF SPONSORED RESEARCH CHAPEL HILL,NC275991350	56-6001393	501C(3)	130,500	TRAINING
(417) THE UNIVERSITY OF TENNESSEE 62 S DUNLAP MEMPHIS,TN38163	62-6001636	IRC 115	144,190	CF CARE CENTER
(418) THE UNIVERSITY OF TEXAS AT ARLINGTON 701 S NEDDERMAN DRIVE BOX 19145 ARLINGTON,TX76019	75-6000121	IRC 115	53,197	PILOT STUDY
(419) THE UNIVERSITY OF TEXAS AT AUSTIN P O BOX 7726 AUSTIN,TX78713	74-6000203	501C(3)	53,145	PILOT STUDY
(420) THE UNIVERSITY OF TEXAS AT AUSTIN P O BOX 7726 AUSTIN,TX78713	74-6000203	501C(3)	107,600	RESEARCH
(421) THE UNIVERSITY OF TEXAS AT AUSTIN P O BOX 7726 AUSTIN,TX78713	74-6000203	501C(3)	108,000	THERAPEUTICS DISCOVERY RESEARCH
(422) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT H 7000 FANNIN STREET HOUSTON,TX77030	74-1761309	501C(3)	234,360	THERAPEUTICS DISCOVERY RESEARCH
(423) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT S MAIL CODE 7828 7703 FLOYD CURL DRIVE SAN ANTONIO,TX782293900	74-1586031	501C(3)	41,137	ADULT CARE
(424) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT S MAIL CODE 7828 7703 FLOYD CURL DRIVE SAN ANTONIO,TX782293900	74-1586031	501C(3)	215,579	CF CARE CENTER
(425) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT S MAIL CODE 7828 7703 FLOYD CURL DRIVE SAN ANTONIO,TX782293900	74-1586031	501C(3)	61,750	TRAINING
(426) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD DALLAS,TX753909040	75-6002868	IRC 115	28,986	ADHERENCE
(427) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD DALLAS,TX753909040	75-6002868	IRC 115	458,535	CF CARE CENTER
(428) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD DALLAS,TX753909040	75-6002868	IRC 115	62,695	CLINICAL RESEARCH
(429) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD DALLAS,TX753909040	75-6002868	IRC 115	290,849	CLINICAL RESEARCH CENTER
(430) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD DALLAS,TX753909040	75-6002868	IRC 115	492,035	RESEARCH
(431) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD DALLAS,TX753909040	75-6002868	IRC 115	517,010	THERAPEUTICS DISCOVERY RESEARCH
(432) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD DALLAS,TX753909040	75-6002868	IRC 115	130,500	TRAINING
(433) THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL C 85 SO PROSPECT STREET BURLINGTON,VT054050160	03-0179440	501C(3)	66,960	CF CARE CENTER
(434) THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL C 85 SO PROSPECT STREET BURLINGTON,VT054050160	03-0179440	501C(3)	118,120	CLINICAL RESEARCH CENTER
(435) THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL C 85 SO PROSPECT STREET BURLINGTON,VT054050160	03-0179440	501C(3)	54,000	PILOT STUDY
(436) THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL C 85 SO PROSPECT STREET BURLINGTON,VT054050160	03-0179440	501C(3)	233,000	RESEARCH
(437) TRUSTEES OF BOSTON UNIVERSITY 881 COMMONWEALTH AVENUE BOSTON,MA02215	04-2103547	501C(3)	54,000	PILOT STUDY
(438) TRUSTEES OF DARTMOUTH COLLEGE 11 ROPE FERRY ROAD 6210 HANOVER,NH037551404	02-0222111	501C(3)	529,057	CLINICAL RESEARCH STUDY
(439) TRUSTEES OF DARTMOUTH COLLEGE 11 ROPE FERRY ROAD 6210 HANOVER,NH037551404	02-0222111	501C(3)	54,000	PILOT STUDY
(440) TRUSTEES OF DARTMOUTH COLLEGE 11 ROPE FERRY ROAD 6210 HANOVER,NH037551404	02-0222111	501C(3)	2,189,123	QUALITY IMPROVEMENT
(441) TRUSTEES OF DARTMOUTH COLLEGE 11 ROPE FERRY ROAD 6210 HANOVER,NH037551404	02-0222111	501C(3)	520,000	RESEARCH CENTER
(442) TRUSTEES OF DARTMOUTH COLLEGE 11 ROPE FERRY ROAD 6210 HANOVER,NH037551404	02-0222111	501C(3)	63,100	RESEARCH STUDY
(443) TRUSTEES OF INDIANA UNIVERSITY PO BOX 66057 BLOOMINGTON,IN46266	35-6001673	501C(3)	397,487	CF CARE CENTER
(444) TRUSTEES OF INDIANA UNIVERSITY PO BOX 66057 BLOOMINGTON,IN46266	35-6001673	501C(3)	15,272	CLINICAL CARE RESEARCH
(445) TRUSTEES OF INDIANA UNIVERSITY PO BOX 66057 BLOOMINGTON,IN46266	35-6001673	501C(3)	442,497	CLINICAL RESEARCH CENTER
(446) TRUSTEES OF INDIANA UNIVERSITY PO BOX 66057 BLOOMINGTON,IN46266	35-6001673	501C(3)	355,426	CLINICAL RESEARCH STUDY
(447) TRUSTEES OF INDIANA UNIVERSITY PO BOX 66057 BLOOMINGTON,IN46266	35-6001673	501C(3)	54,000	PILOT STUDY
(448) TRUSTEES OF INDIANA UNIVERSITY PO BOX 66057 BLOOMINGTON,IN46266	35-6001673	501C(3)	43,200	QUALITY IMPROVEMENT
(449) TRUSTEES OF INDIANA UNIVERSITY PO BOX 66057 BLOOMINGTON,IN46266	35-6001673	501C(3)	194,115	TRAINING
(450) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 133 SOUTH 36TH STREET MEZZANINE PHILADELPHIA,PA191043246	23-1352685	501C(3)	344,820	CF CARE CENTER
(451) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 133 SOUTH 36TH STREET MEZZANINE PHILADELPHIA,PA191043246	23-1352685	501C(3)	503,688	CLINICAL CARE RESEARCH
(452) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 133 SOUTH 36TH STREET MEZZANINE PHILADELPHIA,PA191043246	23-1352685	501C(3)	130,000	CLINICAL RESEARCH STUDY
(453) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 133 SOUTH 36TH STREET MEZZANINE PHILADELPHIA,PA191043246	23-1352685	501C(3)	108,000	RESEARCH
(454) TUFTS MEDICAL CENTER 800 WASHINGTON STREET BOX 817 BOSTON,MA02111	04-3400617	501C(3)	22,065	CF CARE CENTER
(455) UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES 2074 ABINGDON ROAD CLEVELAND,OH44106	34-1567805	501C(3)	43,927	ADULT CARE
(456) UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES 2074 ABINGDON ROAD CLEVELAND,OH44106	34-1567805	501C(3)	222,125	CF CARE CENTER
(457) UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES 2074 ABINGDON ROAD CLEVELAND,OH44106	34-1567805	501C(3)	21,614	CLINICAL RESEARCH CENTER
(458) UNIVERSITY OF ALABAMA IN HUNTSVILLE 301 SPARKMAN DR SW HUNTSVILLE,AL35899	63-0520830	IRC 115	125,000	RESEARCH
(459) UNIVERSITY OF CENTRAL FLORIDA RESEARCH FOUNDATION 12201 RESEARCH PARKWAY SUITE 501 ORLANDO,FL32826	59-3086453	501C(3)	107,920	RESEARCH
(460) UNIVERSITY OF CINCINNATI 560 UNIVERSITY HALL SPONSORED PROGRAMS ACCOUNTING DEPT CINCINNATI,OH45221	31-6000989	501C(3)	26,260	CLINICAL RESEARCH CENTER
(461) UNIVERSITY OF CINCINNATI PHYSICIANS COMPANY 231 ALBERT SABIN WAY CINCINNATI,OH45267	31-1405915	501C(3)	96,180	CF CARE CENTER
(462) UNIVERSITY OF CINCINNATI PHYSICIANS COMPANY 231 ALBERT SABIN WAY CINCINNATI,OH45267	31-1405915	501C(3)	61,712	CLINICAL RESEARCH CENTER
(463) UNIVERSITY OF CONNECTICUT OFFICE OF SPONSORED PROGRAMS 438 WHITNEY ROAD EXT U-1133 STORRS,CT062691133	06-0772160	501C(3)	54,000	PILOT STUDY
(464) UNIVERSITY OF FLORIDA 1600 SW ARCHER RD GAINESVILLE,FL32610	59-6002052	IRC 115	84,743	ADULT CARE
(465) UNIVERSITY OF FLORIDA 1600 SW ARCHER RD GAINESVILLE,FL32610	59-6002052	IRC 115	302,321	CF CARE CENTER
(466) UNIVERSITY OF FLORIDA 1600 SW ARCHER RD GAINESVILLE,FL32610	59-6002052	IRC 115	151,262	CLINICAL RESEARCH CENTER
(467) UNIVERSITY OF FLORIDA 1600 SW ARCHER RD GAINESVILLE,FL32610	59-6002052	IRC 115	34,719	QUALITY IMPROVEMENT
(468) UNIVERSITY OF GEORGIA RESEARCH FOUNDATION INC DE 232 EPPS BRIDGE RD UNIT 3A ATHENS,GA30606	58-1353149	501C(3)	101,481	RESEARCH
(469) UNIVERSITY OF IOWA B 5 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	46,440	ADULT CARE
(470) UNIVERSITY OF IOWA B 5 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	191,680	CF CARE CENTER
(471) UNIVERSITY OF IOWA B 5 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	128,517	CLINICAL RESEARCH CENTER
(472) UNIVERSITY OF IOWA B 5 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	481,909	CLINICAL RESEARCH STUDY
(473) UNIVERSITY OF IOWA B 5 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	106,800	PILOT STUDY
(474) UNIVERSITY OF IOWA B 5 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	108,000	RESEARCH
(475) UNIVERSITY OF IOWA B 5 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	600,000	RESEARCH CENTER
(476) UNIVERSITY OF IOWA B 5 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	202,207	RESEARCH STUDY
(477) UNIVERSITY OF IOWA B 5 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	836,651	THERAPEUTICS DISCOVERY RESEARCH
(478) UNIVERSITY OF IOWA B 5 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	100,000	TRAINING
(479) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BOULEVARD MSN 1039 KANSAS CITY,KS661032937	48-1108830	501C(3)	60,099	ADHERENCE
(480) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BOULEVARD MSN 1039 KANSAS CITY,KS661032937	48-1108830	501C(3)	63,025	ADULT CARE
(481) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BOULEVARD MSN 1039 KANSAS CITY,KS661032937	48-1108830	501C(3)	265,650	CF CARE CENTER
(482) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BOULEVARD MSN 1039 KANSAS CITY,KS661032937	48-1108830	501C(3)	104,566	CLINICAL RESEARCH CENTER
(483) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BOULEVARD MSN 1039 KANSAS CITY,KS661032937	48-1108830	501C(3)	121,141	CLINICAL RESEARCH STUDY
(484) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BOULEVARD MSN 1039 KANSAS CITY,KS661032937	48-1108830	501C(3)	108,000	PILOT STUDY
(485) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 740 SOUTH LIMESTONE LEXINGTON,KY40536	61-6033693	501C(3)	201,395	CF CARE CENTER
(486) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 740 SOUTH LIMESTONE LEXINGTON,KY40536	61-6033693	501C(3)	130,169	CLINICAL RESEARCH CENTER
(487) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC OFFICE OF GRANTS MANAGEMENT JOUETT HALL BELKNAP CAMPUS LOUISVILLE,KY40292	61-1029626	501C(3)	161,980	CF CARE CENTER
(488) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC OFFICE OF GRANTS MANAGEMENT JOUETT HALL BELKNAP CAMPUS LOUISVILLE,KY40292	61-1029626	501C(3)	66,733	CLINICAL RESEARCH CENTER
(489) UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER 55 LAKE AVENUE WORCESTER,MA10655	04-3167352	IRC 115	172,750	CF CARE CENTER
(490) UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER 55 LAKE AVENUE WORCESTER,MA10655	04-3167352	IRC 115	140,477	CLINICAL RESEARCH CENTER
(491) UNIVERSITY OF MIAMI PEDIATRIC/PULMONARY DIVISION 1601 NW 12TH AVENUE MIAMI,FL33136	59-0624458	501C(3)	38,083	ADULT CARE
(492) UNIVERSITY OF MIAMI PEDIATRIC/PULMONARY DIVISION 1601 NW 12TH AVENUE MIAMI,FL33136	59-0624458	501C(3)	158,940	CF CARE CENTER
(493) UNIVERSITY OF MIAMI PEDIATRIC/PULMONARY DIVISION 1601 NW 12TH AVENUE MIAMI,FL33136	59-0624458	501C(3)	167,755	CLINICAL RESEARCH CENTER
(494) UNIVERSITY OF MIAMI PEDIATRIC/PULMONARY DIVISION 1601 NW 12TH AVENUE MIAMI,FL33136	59-0624458	501C(3)	332,145	CLINICAL RESEARCH STUDY
(495) UNIVERSITY OF NEBRASKA MEDICAL CENTER 985100 NEBRASKA MEDICAL CTR OMAHA,NE68198	47-0049123	501C(3)	346,305	CF CARE CENTER
(496) UNIVERSITY OF NEBRASKA MEDICAL CENTER 985100 NEBRASKA MEDICAL CTR OMAHA,NE68198	47-0049123	501C(3)	33,044	CLINICAL RESEARCH
(497) UNIVERSITY OF NEBRASKA MEDICAL CENTER 985100 NEBRASKA MEDICAL CTR OMAHA,NE68198	47-0049123	501C(3)	132,806	CLINICAL RESEARCH CENTER
(498) UNIVERSITY OF NEBRASKA MEDICAL CENTER 985100 NEBRASKA MEDICAL CTR OMAHA,NE68198	47-0049123	501C(3)	52,500	CLINICAL RESEARCH STUDY
(499) UNIVERSITY OF NEW MEXICO CONTROLLERS OFFICE HEALTH SCIENCES AND SERVICES BLDG ALBUQUERQUE,NM871315041	85-6000642	IRC 115	128,435	CF CARE CENTER
(500) UNIVERSITY OF NOTRE DAME DU LAC 731 GRACE HALL NOTRE DAME,IN46556	35-0868188	501C(3)	53,906	PILOT STUDY
(501) UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH,PA15260	25-0965591	501C(3)	33,098	ADULT CARE
(502) UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH,PA15260	25-0965591	501C(3)	56,160	CF CARE CENTER
(503) UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH,PA15260	25-0965591	501C(3)	187,289	CLINICAL CARE RESEARCH
(504) UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH,PA15260	25-0965591	501C(3)	239,202	CLINICAL RESEARCH CENTER
(505) UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH,PA15260	25-0965591	501C(3)	286,574	CLINICAL RESEARCH STUDY
(506) UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH,PA15260	25-0965591	501C(3)	16,765	QUALITY IMPROVEMENT
(507) UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH,PA15260	25-0965591	501C(3)	515,734	RESEARCH
(508) UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH,PA15260	25-0965591	501C(3)	500,000	RESEARCH CENTER
(509) UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH,PA15260	25-0965591	501C(3)	75,990	RESEARCH STUDY
(510) UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH,PA15260	25-0965591	501C(3)	188,224	THERAPEUTICS DISCOVERY RESEARCH
(511) UNIVERSITY OF ROCHESTER 1325 MT HOPE AVENUE SUITE 260 ROCHESTER,NY14642	16-0743209	501C(3)	32,400	ADULT CARE
(512) UNIVERSITY OF ROCHESTER 1325 MT HOPE AVENUE SUITE 260 ROCHESTER,NY14642	16-0743209	501C(3)	171,842	CF CARE CENTER
(513) UNIVERSITY OF ROCHESTER 1325 MT HOPE AVENUE SUITE 260 ROCHESTER,NY14642	16-0743209	501C(3)	98,288	CLINICAL RESEARCH CENTER
(514) UNIVERSITY OF ROCHESTER 1325 MT HOPE AVENUE SUITE 260 ROCHESTER,NY14642	16-0743209	501C(3)	135,000	RESEARCH
(515) UNIVERSITY OF SOUTH CAROLINA RESEARCH FOUNDATION 901 SUMTER STREET SUITE 501 COLUMBIA,SC29208	57-0967350	501C(3)	69,765	CF CARE CENTER
(516) UNIVERSITY OF SOUTH FLORIDA DEPARTMENT OF PEDIATRICS 17 DAVIS BOULEVARD SUITE 200 TAMPA,FL33606	59-3102112	IRC 115	43,415	CF CARE CENTER
(517) UNIVERSITY OF SOUTHERN CALIFORNIA 1540 ALCAZAR STREET LOS ANGELES,CA90033	95-1642394	501C(3)	175,950	CF CARE CENTER
(518) UNIVERSITY OF SOUTHERN CALIFORNIA 1540 ALCAZAR STREET LOS ANGELES,CA90033	95-1642394	501C(3)	106,152	CLINICAL RESEARCH CENTER
(519) UNIVERSITY OF SOUTHERN CALIFORNIA 1540 ALCAZAR STREET LOS ANGELES,CA90033	95-1642394	501C(3)	187,775	THERAPEUTICS DISCOVERY RESEARCH
(520) UNIVERSITY OF TENNESSE MEDICAL CENTER 1940 ALCOA HWY SUITE E-110 KNOXVILLE,TN37920	31-1626179	501C(3)	153,915	CF CARE CENTER
(521) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER 11937 US HWY 271 TYLER,TX75708	75-6001354	501C(3)	132,473	CF CARE CENTER
(522) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER 11937 US HWY 271 TYLER,TX75708	75-6001354	501C(3)	171,753	CLINICAL RESEARCH CENTER
(523) UNIVERSITY OF UTAH 406 PARK BLDG SALT LAKE CITY,UT84112	87-6000525	501C(3)	32,400	ADULT CARE
(524) UNIVERSITY OF UTAH 406 PARK BLDG SALT LAKE CITY,UT84112	87-6000525	501C(3)	462,259	CF CARE CENTER
(525) UNIVERSITY OF UTAH 406 PARK BLDG SALT LAKE CITY,UT84112	87-6000525	501C(3)	205,764	CLINICAL RESEARCH CENTER
(526) UNIVERSITY OF UTAH 406 PARK BLDG SALT LAKE CITY,UT84112	87-6000525	501C(3)	61,750	TRAINING
(527) UNIVERSITY OF VERMONT MEDICAL CENTER INC PO BOX 1870 BURLINGTON,VT05402	03-0219309	501C(3)	165,209	CF CARE CENTER
(528) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE,WA981959472	91-6001537	IRC 115	176,751	CF CARE CENTER
(529) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE,WA981959472	91-6001537	IRC 115	373,816	CLINICAL CARE RESEARCH
(530) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE,WA981959472	91-6001537	IRC 115	321,917	CLINICAL RESEARCH
(531) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE,WA981959472	91-6001537	IRC 115	279,742	CLINICAL RESEARCH CENTER
(532) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE,WA981959472	91-6001537	IRC 115	446,924	CLINICAL RESEARCH STUDY
(533) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE,WA981959472	91-6001537	IRC 115	108,000	PILOT STUDY
(534) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE,WA981959472	91-6001537	IRC 115	314,491	RESEARCH
(535) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE,WA981959472	91-6001537	IRC 115	600,000	RESEARCH CENTER
(536) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE,WA981959472	91-6001537	IRC 115	257,100	RESEARCH STUDY
(537) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE,WA981959472	91-6001537	IRC 115	870,332	THERAPEUTICS DISCOVERY RESEARCH
(538) UNIVERSITY PSYCHIATRIC PRACTICE INC 462 GRIDER ST BUFFALO,NY14215	16-1426208	501C(3)	24,684	CF CARE CENTER
(539) UPSTATE AFFILIATE ORGANIZATION DBA GREENVILLE HOSP 701 GROVE ROAD GREENVILLE,SC29605	57-6007863	501C(3)	70,945	CF CARE CENTER
(540) UTAH STATE UNIVERSITY 2400 OLD MAIN HILL LOGAN,UT843222400	87-6000528	501C(3)	134,536	RESEARCH
(541) VALLEY CHILDREN'S HOSPITAL 9300 VALLEY CHILDRENS PLACE MADERA,CA93638	94-1294954	501C(3)	192,427	CF CARE CENTER
(542) VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVENUE SOUTH SUITE D3300 MCN NASHVILLE,TN37232	35-2528741	501C(3)	337,958	CF CARE CENTER
(543) VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVENUE SOUTH SUITE D3300 MCN NASHVILLE,TN37232	35-2528741	501C(3)	210,604	CLINICAL RESEARCH CENTER
(544) VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVENUE SOUTH SUITE D3300 MCN NASHVILLE,TN37232	35-2528741	501C(3)	130,000	RESEARCH
(545) VARIETY CHILDREN'S HOSPITAL 3100 SW 62ND AVE MIAMI,FL33155	59-0638499	501C(3)	40,785	CF CARE CENTER
(546) VIA CHRISTI HOSPITAL WICHITA INC 707 N EMPORIA WICHITA,KS67214	48-1172106	501C(3)	108,685	CF CARE CENTER
(547) VIA CHRISTI HOSPITAL WICHITA INC 707 N EMPORIA WICHITA,KS67214	48-1172106	501C(3)	65,080	CLINICAL RESEARCH CENTER
(548) VIRGINIA COMMONWEALTH UNIVERSITY BOX 2506 - VCU STATION RICHMOND,VA232842506	54-6001758	IRC 115	32,400	ADHERENCE
(549) VIRGINIA COMMONWEALTH UNIVERSITY BOX 2506 - VCU STATION RICHMOND,VA232842506	54-6001758	IRC 115	55,480	ADULT CARE
(550) VIRGINIA COMMONWEALTH UNIVERSITY BOX 2506 - VCU STATION RICHMOND,VA232842506	54-6001758	IRC 115	171,218	CF CARE CENTER
(551) VIRGINIA COMMONWEALTH UNIVERSITY BOX 2506 - VCU STATION RICHMOND,VA232842506	54-6001758	IRC 115	133,890	CLINICAL RESEARCH CENTER
(552) VIRGINIA COMMONWEALTH UNIVERSITY BOX 2506 - VCU STATION RICHMOND,VA232842506	54-6001758	IRC 115	100,000	RESEARCH
(553) VIRGINIA COMMONWEALTH UNIVERSITY BOX 2506 - VCU STATION RICHMOND,VA232842506	54-6001758	IRC 115	97,097	TRAINING
(554) WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM,NC271571064	22-3849199	501C(3)	180,320	CF CARE CENTER
(555) WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM,NC271571064	22-3849199	501C(3)	73,440	CLINICAL RESEARCH CENTER
(556) WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM,NC271571064	22-3849199	501C(3)	54,000	PILOT STUDY
(557) WASHINGTON UNIVERSITY 700 ROSEDALE AVE ST LOUIS,MO63112	43-0653611	501C(3)	32,400	ADHERENCE
(558) WASHINGTON UNIVERSITY 700 ROSEDALE AVE ST LOUIS,MO63112	43-0653611	501C(3)	84,875	ADULT CARE
(559) WASHINGTON UNIVERSITY 700 ROSEDALE AVE ST LOUIS,MO63112	43-0653611	501C(3)	304,640	CF CARE CENTER
(560) WASHINGTON UNIVERSITY 700 ROSEDALE AVE ST LOUIS,MO63112	43-0653611	501C(3)	662,462	CLINICAL CARE RESEARCH
(561) WASHINGTON UNIVERSITY 700 ROSEDALE AVE ST LOUIS,MO63112	43-0653611	501C(3)	295,838	CLINICAL RESEARCH CENTER
(562) WASHINGTON UNIVERSITY 700 ROSEDALE AVE ST LOUIS,MO63112	43-0653611	501C(3)	154,000	CLINICAL RESEARCH STUDY
(563) WASHINGTON UNIVERSITY 700 ROSEDALE AVE ST LOUIS,MO63112	43-0653611	501C(3)	108,000	RESEARCH
(564) WAYNE STATE UNIVERSITY GRANTS CONTRACTS OFFICE III RESEARCH AND SPONSORED PROGRAMS DETROIT,MI48201	38-6028429	501C(3)	174,838	CF CARE CENTER
(565) WAYNE STATE UNIVERSITY GRANTS CONTRACTS OFFICE III RESEARCH AND SPONSORED PROGRAMS DETROIT,MI48201	38-6028429	501C(3)	147,836	CLINICAL RESEARCH CENTER
(566) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION PO BOX 6001 MORGANTOWN,WV26506	55-0665758	501C(3)	32,388	ADHERENCE
(567) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION PO BOX 6001 MORGANTOWN,WV26506	55-0665758	501C(3)	117,425	CF CARE CENTER
(568) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION PO BOX 6001 MORGANTOWN,WV26506	55-0665758	501C(3)	95,699	CLINICAL RESEARCH CENTER
(569) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION PO BOX 6001 MORGANTOWN,WV26506	55-0665758	501C(3)	107,806	RESEARCH
(570) WESTERN MICHIGAN UNIVERSITY SCHOOL OF MEDICINE 1000 OAKLAND DRIVE KALAMAZOO,MI49008	45-4135256	501C(3)	62,905	CF CARE CENTER
(571) YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN,CT065208047	06-0646973	501C(3)	207,692	CF CARE CENTER
(572) YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN,CT065208047	06-0646973	501C(3)	140,803	CLINICAL RESEARCH CENTER
(573) YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN,CT065208047	06-0646973	501C(3)	54,000	PILOT STUDY
(574) YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN,CT065208047	06-0646973	501C(3)	610,611	RESEARCH
(575) YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN,CT065208047	06-0646973	501C(3)	128,550	RESEARCH STUDY

Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................. Bullet Image

220

Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50055P

Schedule I (Form 990) 2018

Page 2

Part III

Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" on Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance	(b) Number of recipients	(c) Amount of cash grant	(d) Amount of noncash assistance	(e) Method of valuation (book, FMV, appraisal, other)	(f) Description of noncash assistance

(1) FELLOWSHIPS	28	108,224
(2) COMMUNITY IMPACT	3	29,997
(2)
(3)
(4)
(5)
(6)
(7)

Part IV

Supplemental Information. Provide the information required in Part I, line 2; Part III, column (b); and any other additional information.

Return Reference

Explanation

SCHEDULE I, PART I, LINE 2

THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. FOR GRANTS TO FOR-PROFIT ORGANIZATIONS THE CF FOUNDATION HAS PROCEDURES IN PLACE TO 1) SEE THAT THE GRANT FUNDS AWARDED ARE SPENT ONLY FOR THE PURPOSE FOR WHICH THE GRANT IS MADE AND 2) OBTAIN FULL AND COMPLETE REPORTS FROM THE GRANTEE ORGANIZATION ON HOW THE FUNDS ARE SPENT CONSISTENT WITH IRS GUIDELINES FOR EXPENDITURE RESPONSIBILITY. THE ORGANIZATION PERFORMS PRE-GRANT INQUIRIES DEALING WITH MATTERS SUCH AS THE IDENTITY, HISTORY, ACTIVITIES, AND PRACTICES OF THE GRANTEE TO GAIN REASONABLE ASSURANCE THAT THEY WILL USE THE GRANT FUNDS FOR THE PURPOSE FOR WHICH RECEIVED. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE THAT INCLUDES THE FOLLOWING AGREEMENTS: ANY AMOUNTS NOT USED FOR PURPOSES OF THE GRANT WILL BE REPAID, THE GRANTEE WILL KEEP RECORDS OF RECEIPTS AND EXPENDITURES AND MAKE THEM AVAILABLE TO THE GRANTOR AT REASONABLE TIMES, AND FUNDS CANNOT BE USED TO INFLUENCE LEGISLATION OR UNDERTAKE ANY NONEXEMPT ACTIVITY.

SCHEDULE I, PART III

SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS.

Schedule I (Form 990) 2018

Additional Data

Software ID:
Software Version:

- TIN:

Schedule J
(Form 990)

Department of the Treasury
Internal Revenue Service

Compensation Information

For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
SchJMediumBullet

Complete if the organization answered "Yes" on Form 990, Part IV, line 23.
SchJMediumBullet

Attach to Form 990.
SchJMediumBullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2018

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Questions Regarding Compensation

Yes

Check the appropiate box(es) if the organization provided any of the following to or for a person listed on Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.

First-class or charter travel Housing allowance or residence for personal use

Travel for companions Payments for business use of personal residence

Tax idemnification and gross-up payments Health or social club dues or initiation fees

Discretionary spending account Personal services (e.g., maid, chauffeur, chef)

If any of the boxes in line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain .........

Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked in line 1a? ..

Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.

Compensation committee Written employment contract

Independent compensation consultant Compensation survey or study

Form 990 of other organizations Approval by the board or compensation committee

During the year, did any person listed on Form 990, Part VII, Section A, line 1a, with respect to the filing organization or a related organization:

Receive a severance payment or change-of-control payment? .............

Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........

Yes

Participate in, or receive payment from, an equity-based compensation arrangement? .........

If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.

Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:

The organization? ....................

Any related organization? .......................

If "Yes," on line 5a or 5b, describe in Part III.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:

The organization? ..................

Any related organization? ......................

If "Yes," on line 6a or 6b, describe in Part III.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization provide any nonfixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............

Yes

Were any amounts reported on Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III ..........................

If "Yes" on line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50053T

Schedule J (Form 990) 2018

Page 2

Part II

Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.

For each individual whose compensation must be reported on Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.

(A) Name and Title		(B) Breakdown of W-2 and/or 1099-MISC compensation			(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)	(F) Compensation in column (B) reported as deferred on prior Form 990
(A) Name and Title		(i) Base compensation	(ii) Bonus & incentive compensation	(iii) Other reportable compensation	(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)
1PRESTON CAMPBELL MD PRESIDENT & CEO	(i) (ii)	647,336 ------------- 0	488,881 ------------- 0	127,635 ------------- 0	137,108 ------------- 0	25,306 ------------- 0	1,426,266 ------------- 0	118,351 ------------- 0
2JACK MAHLER MD CHIEF INVESTMENT OFFICER	(i) (ii)	557,534 ------------- 0	359,879 ------------- 0	7,524 ------------- 0	127,864 ------------- 0	25,306 ------------- 0	1,078,107 ------------- 0	0 ------------- 0
3MARC S GINSKY EXECUTIVE VP, COO & SECRETARY	(i) (ii)	482,025 ------------- 0	227,006 ------------- 0	24,654 ------------- 0	150,809 ------------- 0	35,617 ------------- 0	920,111 ------------- 0	110,452 ------------- 0
4VERA H TWIGG EXECUTIVE VP & CFO	(i) (ii)	370,883 ------------- 0	217,600 ------------- 0	107,948 ------------- 0	67,265 ------------- 0	35,617 ------------- 0	799,313 ------------- 0	87,540 ------------- 0
5ROBERT J BEALL PHD FORMER CEO/2018 CONSULTANT	(i) (ii)	262,000 ------------- 0	0 ------------- 0	73,359 ------------- 0	0 ------------- 0	0 ------------- 0	335,359 ------------- 0	43,103 ------------- 0
6C RICHARD MATTINGLY FORMER COO	(i) (ii)	0 ------------- 0	0 ------------- 0	100,816 ------------- 0	0 ------------- 0	0 ------------- 0	100,816 ------------- 0	43,100 ------------- 0
7DRUCY S BOROWITZ MD SENIOR VP, COMMUNITY AFFAIRS	(i) (ii)	402,143 ------------- 0	69,669 ------------- 0	28,022 ------------- 0	32,864 ------------- 0	2,600 ------------- 0	535,298 ------------- 0	15,000 ------------- 0
8BRUCE MARSHALL MD SENIOR VP, CLINICAL AFFAIRS	(i) (ii)	427,629 ------------- 0	120,873 ------------- 0	53,572 ------------- 0	32,864 ------------- 0	0 ------------- 0	634,938 ------------- 0	35,000 ------------- 0
9WILLIAM SKACH MD SENIOR VP, RESEARCH AFFAIRS	(i) (ii)	400,993 ------------- 0	83,800 ------------- 0	6,226 ------------- 0	78,484 ------------- 0	35,467 ------------- 0	604,970 ------------- 0	0 ------------- 0
10MICHAEL P BOYLE MD SR.VP,THERAPEUTICS DEVELOPMENT	(i) (ii)	407,940 ------------- 0	87,683 ------------- 0	2,145 ------------- 0	80,663 ------------- 0	33,285 ------------- 0	611,716 ------------- 0	0 ------------- 0
11CHRIS GEGELYS SENIOR VP, CHIEF LEGAL OFFICER	(i) (ii)	376,824 ------------- 0	0 ------------- 0	1,986 ------------- 0	32,864 ------------- 0	33,967 ------------- 0	445,641 ------------- 0	0 ------------- 0
12MATTHEW MCBRADY MANAGING DIRECTOR, INVESTMENTS	(i) (ii)	365,385 ------------- 0	103,750 ------------- 0	1,260 ------------- 0	27,864 ------------- 0	34,767 ------------- 0	533,026 ------------- 0	0 ------------- 0
13ALBERT FARO MD SR.DIRECTOR CLINICAL AFFAIRS	(i) (ii)	306,492 ------------- 0	45,557 ------------- 0	2,967 ------------- 0	32,864 ------------- 0	34,077 ------------- 0	421,957 ------------- 0	0 ------------- 0
14MARYBETH MCMAHON PHD CHIEF OF STAFF	(i) (ii)	278,023 ------------- 0	82,489 ------------- 0	4,054 ------------- 0	32,864 ------------- 0	20,901 ------------- 0	418,331 ------------- 0	0 ------------- 0

Schedule J (Form 990) 2018

Page 3

Part III

Supplemental Information

Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II. Also complete this part for any additional information.

Return Reference	Explanation
PART I, LINE 4B - SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN:	CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE, INCLUDING THE AMOUNT OF ANY PAYMENT MADE BY THE PLAN DURING THE REPORTING YEAR, IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW.
PART I, LINE 7	SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, PARTICIPATED IN THE FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS.
PART II	(A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $647,336; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $195,530, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $118,351, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $175,000; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $8,199, AUTOMOBILE ALLOWANCE - $7,200, OTHER BENEFITS - $12,950, VESTED SERP ACCOUNT (8) - $99,286; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $27,864, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $109,244; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $17,292, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,650, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,364; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $118,351. CYSTIC FIBROSIS FOUNDATION. (A) NAME: M. GINSKY.; (B)(I) BASE COMPENSATION: BASE SALARY - $482,025; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $116,554, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $110,452; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $5,004, SECTION 457(B)PLAN (5) - $18,500 OTHER BENEFITS - $1,150; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $27,864, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $92,655, SERP (4) - $30,290; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $25,152, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,650, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,815; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $110,452. CYSTIC FIBROSIS FOUNDATION. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $370,883; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $84,499, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $45,601, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $87,500; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $18,500, VESTED SERP ACCOUNT (9) - $89,448; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $27,864, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $39,401; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $25,152, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,650, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,815; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $87,540. CYSTIC FIBROSIS FOUNDATION. (A) NAME: J. MAHLER; (B)(I) BASE COMPENSATION: BASE SALARY - $557,534; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $359,879; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $7,524; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $27,864, SERP (4) - $100,000; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $17,292, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,650, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,364. CYSTIC FIBROSIS FOUNDATION. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: EXECUTIVE ADVISORY CONSULTING SERVICES FEES - $262,000; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $73,359; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $43,103. CYSTIC FIBROSIS FOUNDATION. (A) NAME: R. MATTINGLY; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $100,816; (F)COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $43,100. (1) THIS IS AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2018 PLAN YEAR. (3) THIS AMOUNT IS INCLUDED IN COLUMN B OF THIS FORM 990 AND HAS ALREADY BEEN PREVIOUSLY REPORTED AS COMPENSATION ON PRIOR YEARS' FORM 990S, AND THEREFORE (AS REQUIRED BY THE INSTRUCTIONS) IS DOUBLE-REPORTED. (4) A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING THE VESTING DATE DESIGNATED BY CFF (WHICH IS EITHER A SPECIFIED AGE OR DATE, DEPENDING ON THE PARTICIPANT). C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5) A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE ROLLED-OVER TO ANOTHER 457(B) PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS ($18,500 FOR 2018). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C)ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2018 (I.E., WITH RESPECT TO THE 2016-2018, 2017-2019 AND THE 2018-2020 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/18, 12/31/19 AND 12/31/20 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2016-2018, 2017-2019 AND THE 2018-2020 PERFORMANCE PERIODS, RESPECTIVELY. THE AWARD RELATING TO THE 3-YEAR PERFORMANCE PERIOD ENDING 12/31/17 WAS PAID IN 2018, AND IS PROPERLY REPORTED AGAIN (AS COMPENSATION IN COLUMN (B)(II)) ON THIS FORM 990 (EVEN THOUGH AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2017, 2016 AND 2015 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS).
PART II, CONTINUED	(7) THIS PAYMENT IS A DISTRIBUTION FROM THE 457(B) PLAN DESCRIBED IN FOOTNOTE (5) ABOVE. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, BECAUSE CONTRIBUTIONS TO THIS PLAN ARE FULLY VESTED WHEN MADE, CONTRIBUTIONS TO THIS PLAN WERE PREVIOUSLY REPORTED IN THE YEARS CONTRIBUTED, IN COLUMN B(III) AS "OTHER REPORTABLE COMPENSATION". THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (8) THIS AMOUNT IS A 2018 SERP CONTRIBUTION THAT ALSO BECAME VESTED AND TAXABLE IN 2018 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE. (9) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2018 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE. A PORTION ($45,645) OF THIS AMOUNT RELATES TO CONTRIBUTIONS THE INDIVIDUAL RECEIVED UNDER THE SERP FROM 2007-2013, AND THIS AMOUNT HAS BECOME VESTED BUT HAS NOT BEEN PAID, IN ACCORDANCE WITH THE GOVERNING SERP DOCUMENTS. THIS VESTED BUT UNPAID AMOUNT CONTINUES TO BE SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS, AND IN THE EVENT OF A CFF BANKRUPTCY, THE INDIVIDUAL WOULD BECOME A GENERAL UNSECURED CREDITOR OF CFF WITH RESPECT TO THIS AMOUNT. THE REMAINING PORTION ($43,803) OF THE AMOUNT RELATES TO CONTRIBUTIONS THE INDIVIDUAL RECEIVED UNDER THE SERP FROM 2014-2018, WHICH HAS BECOME VESTED AND WAS PAID IN ACCORDANCE WITH THE GOVERNING SERP DOCUMENTS. AS REQUIRED, THE PORTION OF THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B(III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN(C). THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (10) THIS IS AN AWARD UNDER A PLAN THAT PAYS A SPECIFIED DOLLAR AMOUNT ONLY IF AND WHEN THE FDA APPROVES CERTAIN PRE-SPECIFIED TYPES OF THERAPIES. GENERALLY, IN THE EVENT THE EMPLOYEE TERMINATES EMPLOYMENT PRIOR TO FDA APPROVAL OF THE SPECIFIED THERAPY TYPE, THE EMPLOYEE WILL FORFEIT HIS OR HER RIGHT TO RECEIVE PAYMENT OF THE AWARD, UNLESS THE EMPLOYEE IS AN OFFICER AND HIS/HER TERMINATION IS DUE TO RETIREMENT OR DISABILITY. HOWEVER, THE AWARD THAT BECAME VESTED AND PAID IN 2018 WAS RELATED TO A THERAPY APPROVED BY THE FDA IN 2012. WHEN THE PLAN WAS INITIALLY APPROVED AND ADOPTED (IN 2014), THIS AWARD WAS SUBJECTED TO A SUBSTANTIAL RISK OF FORFEITURE UNTIL 2018. BECAUSE THE SPECIFIED THERAPY HAD BEEN APPROVED BY THE FDA BEFORE THE PLAN WAS ADOPTED, AN ELIGIBLE PARTICIPANT FORFEITED THE AWARD IF THE PARTICIPANT VOLUNTARILY TERMINATED EMPLOYMENT OR WAS TERMINATED FOR CAUSE PRIOR TO THE 2018 VESTING DATE. THE PLAN TERMINATES ON DECEMBER 31, 2019. THE ACTIVITIES OF CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. WERE ASSUMED BY THE FOUNDATION AS OF 1/1/2018. THEREFORE AMOUNTS REPORTED AS COMPENSATION FROM THE RELATED ORGANIZATION IN PRIOR YEARS ARE NOW INCLUDED IN COMPENSATION FROM THE FILING ORGANIZATION.

Schedule J (Form 990) 2018

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE M
(Form 990)

Department of the Treasury

Internal Revenue Service

Noncash Contributions

Complete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image

Attach to Form 990.
Right pointing arrow large image

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2018

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Types of Property

	(a) Check if applicable	(b) Number of contributions or items contributed	(c) Noncash contribution amounts reported on Form 990, Part VIII, line 1g	(d) Method of determining noncash contribution amounts
1 Art—Works of art ....
2 Art—Historical treasures .
3 Art—Fractional interests ..
4 Books and publications ..
5 Clothing and household goods .......
6 Cars and other vehicles ..	X	60	32,926	NET CASH RECEIPTS
7 Boats and planes ....
8 Intellectual property ...
9 Securities—Publicly traded .	X	130	876,081	NET CASH RECEIPTS
10 Securities—Closely held stock .
11 Securities—Partnership, LLC, or trust interests ....
12 Securities—Miscellaneous ..
13 Qualified conservation contribution—Historic structures .....
14 Qualified conservation contribution—Other ...
15 Real estate—Residential .
16 Real estate—Commercial ..
17 Real estate—Other ...
18 Collectibles .....
19 Food inventory ...
20 Drugs and medical supplies .
21 Taxidermy ......
22 Historical artifacts ....
23 Scientific specimens ..
24 Archeological artifacts ...
25 Other ( TANGIBLE AND SERVICE AUCTION ITEMS )	X	24,462	9,460,490	NET CASH RECEIPTS
26 Other ( )
27 Other ( )
28 Other ( )

Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement

Yes

30a

During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that it must hold for at least three years from the date of the initial contribution, and which is not required to be used for exempt purposes for the entire holding period? ...................

30a

If "Yes," describe the arrangement in Part II.

Does the organization have a gift acceptance policy that requires the review of any nonstandard contributions?

Yes

32a

Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash

contributions? ..........................

32a

Yes

If "Yes," describe in Part II.

If the organization did not report an amount in column (c) for a type of property for which column (a) is checked,

describe in Part II.

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 51227J

Schedule M (Form 990) (2018)

Page 2

Part II

Supplemental Information. Provide the information required by Part I, lines 30b, 32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.

Return Reference	Explanation
THIRD PARTY SELLER	Schedule M, Part I, Line 6 CYSTIC FIBROSIS FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS.

Schedule M (Form 990) (2018)

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE O
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet

Attach to Form 990 or 990-EZ.
MediumBullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2018

Open to Public
Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Return Reference	Explanation
REVIEW OF 990 BY GOVERNING BODY	PART VI, SECTION B, LINE 11B THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A DRAFT OF THE FORM 990 PRIOR TO ITS BEING FILED, WITH SUFFICIENT TIME FOR REVIEW AND COMMENT ALLOWED. THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES AND THE FOUNDATION'S ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. THE AUDIT COMMITTEE OF THE BOARD OF TRUSTEES ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. IN ALL CASES THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED.
CONFLICT OF INTEREST MONITORING	PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. POTENTIAL CONFLICTS ARE REPORTED TO THE GOVERNANCE COMMITTEE OR THE BOARD OF TRUSTEES. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF TRUSTEES, THE INTERESTED TRUSTEE OR OFFICER IS REQUIRED TO RETIRE FROM THE ROOM IN WHICH THE BOARD OR ITS COMMITTEE IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2018 AND HAD NO UNRESOLVED CONFLICTS OF INTEREST.
DETERMINING COMPENSATION	PART VI, SECTION B, LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE AND MEDICAL TALENT TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE CF FOUNDATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. (4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVE'S HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVE'S ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. (5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEE'S COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT, COO AND SECRETARY EXECUTIVE VICE PRESIDENT AND CFO CHIEF INVESTMENT OFFICER SENIOR VP, THERAPEUTICS DEVELOPMENT SENIOR VP, RESEARCH AFFAIRS SENIOR VP, CLINICAL AFFAIRS THE PROCESS WAS LAST UNDERTAKEN IN 2017. THE ACTIVITIES OF CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. WERE ASSUMED BY THE FOUNDATION AS OF 1/1/2018. THEREFORE AMOUNTS REPORTED AS COMPENSATION FROM THE RELATED ORGANIZATION IN PRIOR YEARS ARE NOW INCLUDED IN COMPENSATION FROM THE FILING ORGANIZATION.
PART VI, SECTION C, LINE 19	PUBLIC INSPECTION FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG AND THE ORGANIZATION'S WEBSITE PROVIDED A DIRECT LINK TO ITS FORM 990 ON GUIDESTAR.ORG. THE FOUNDATION'S GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE NATIONAL OFFICE OF THE CYSTIC FIBROSIS FOUNDATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2018. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2018.

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 51056K

Schedule O (Form 990 or 990-EZ) 2018

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE R
(Form 990)

Department of the Treasury
Internal Revenue Service

Related Organizations and Unrelated Partnerships

Complete if the organization answered "Yes" on Form 990, Part IV, line 33, 34, 35b, 36, or 37.
MediumBullet

Attach to Form 990.
MediumBullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2018

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Identification of Disregarded Entities Complete if the organization answered "Yes" on Form 990, Part IV, line 33.

(a) Name, address, and EIN (if applicable) of disregarded entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Total income	(e) End-of-year assets	(f) Direct controlling entity
(1) Cystic Fibrosis Patient Assistance Fdn 4550 MONTGOMERY AVE SUITE 1100N BETHESDA,MD20814 90-0350985	PATIENT ASST	DE	0	0	CFF

Part II

Identification of Related Tax-Exempt Organizations Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related tax-exempt organizations during the tax year.

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Exempt Code section	(e) Public charity status (if section 501(c)(3))	(f) Direct controlling entity	(g) Section 512(b)(13) controlled entity?
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Exempt Code section	(e) Public charity status (if section 501(c)(3))	(f) Direct controlling entity	Yes	No
(1)CYSTIC FIBROSIS FOUNDATION THERAPEUTICS 4550 MONTGOMERY AVE SUITE 1100N BETHESDA,MD20814 91-2059167	RESEARCH	MD	501(C)(3)	12A	CFF		No

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50135Y

Schedule R (Form 990) 2018

Page 2

Part III

Identification of Related Organizations Taxable as a Partnership Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related organizations treated as a partnership during the tax year.

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(f) Share of total income	(g) Share of end-of-year assets	(h) Disproprtionate allocations?		(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	(j) General or managing partner?
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(f) Share of total income	(g) Share of end-of-year assets	Yes	No	(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	Yes	No

Part IV

Identification of Related Organizations Taxable as a Corporation or Trust Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related organizations treated as a corporation or trust during the tax year.

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(e) Type of entity (C corp, S corp, or trust)	(f) Share of total income	(g) Share of end-of-year assets	(i) Section 512(b)(13) controlled entity?
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(e) Type of entity (C corp, S corp, or trust)	(f) Share of total income	(g) Share of end-of-year assets	Yes	No

Schedule R (Form 990) 2018

Page 3

Part V

Transactions With Related Organizations Complete if the organization answered "Yes" on Form 990, Part IV, line 34, 35b, or 36.

Note. Complete line 1 if any entity is listed in Parts II, III, or IV of this schedule.

Yes

1 During the tax year, did the orgranization engage in any of the following transactions with one or more related organizations listed in Parts II-IV?

a Receipt of (i) interest, (ii) annuities, (iii) royalties, or (iv) rent from a controlled entity .....................

b Gift, grant, or capital contribution to related organization(s) ............................

c Gift, grant, or capital contribution from related organization(s) ............................

d Loans or loan guarantees to or for related organization(s) ............................

e Loans or loan guarantees by related organization(s) ............................

f Dividends from related organization(s) ............................

g Sale of assets to related organization(s) ............................

h Purchase of assets from related organization(s) ............................

i Exchange of assets with related organization(s) ............................

j Lease of facilities, equipment, or other assets to related organization(s) .......................

k Lease of facilities, equipment, or other assets from related organization(s) ......................

l Performance of services or membership or fundraising solicitations for related organization(s) .....................

m Performance of services or membership or fundraising solicitations by related organization(s) .................

n Sharing of facilities, equipment, mailing lists, or other assets with related organization(s) ...................

o Sharing of paid employees with related organization(s) ............................

p Reimbursement paid to related organization(s) for expenses ............................

q Reimbursement paid by related organization(s) for expenses ............................

r Other transfer of cash or property to related organization(s) ............................

s Other transfer of cash or property from related organization(s) ............................

Yes

If the answer to any of the above is "Yes," see the instructions for information on who must complete this line, including covered relationships and transaction thresholds.

(a) Name of related organization	(b) Transaction type (a-s)	(c) Amount involved	(d) Method of determining amount involved
(1) CYSTIC FIBROSIS FOUNDATION THERAPEUTICS	s	6,350,249	BOOK VALUE

Schedule R (Form 990) 2018

Page 4

Part VI

Unrelated Organizations Taxable as a Partnership Complete if the organization answered "Yes" on Form 990, Part IV, line 37.

Provide the following information for each entity taxed as a partnership through which the organization conducted more than five percent of its activities (measured by total assets or gross revenue) that was not a related organization. See instructions regarding exclusion for certain investment partnerships.

(a) Name, address, and EIN of entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	(e) Are all partners section 501(c)(3) organizations?		(f) Share of total income	(g) Share of end-of-year assets	(h) Disproprtionate allocations?		(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	(j) General or managing partner?
(a) Name, address, and EIN of entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	Yes	No	(f) Share of total income	(g) Share of end-of-year assets	Yes	No	(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	Yes	No

Schedule R (Form 990) 2018

Page 5

Part VII

Supplemental Information

Provide additional information for responses to questions on Schedule R (see instructions).

Return Reference	Explanation

Schedule R (Form 990) 2018

Additional Data

Software ID:
Software Version:

1	Briefly describe the organization’s mission or most significant activities: THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES.
2	Check this box
3	Number of voting members of the governing body (Part VI, line 1a) ........	3	16
4	Number of independent voting members of the governing body (Part VI, line 1b) .....	4	15
5	Total number of individuals employed in calendar year 2018 (Part V, line 2a) ......	5	846
6	Total number of volunteers (estimate if necessary) .............	6	92,000
7a	Total unrelated business revenue from Part VIII, column (C), line 12 ........	7a	-4,072,385
b	Net unrelated business taxable income from Form 990-T, line 34 .........	7b	-3,775,530

		Prior Year	Current Year
8	Contributions and grants (Part VIII, line 1h) .........	110,650,273	108,058,591
9	Program service revenue (Part VIII, line 2g) .........	3,971,424	4,441,092
10	Investment income (Part VIII, column (A), lines 3, 4, and 7d ) ....	149,520,920	141,144,690
11	Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e)	11,339,404	22,146,383
12	Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)	275,482,021	275,790,756
13	Grants and similar amounts paid (Part IX, column (A), lines 1–3 )...	179,923,805	144,315,284
14	Benefits paid to or for members (Part IX, column (A), line 4).....	0	0
15	Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10)	68,025,837	90,187,520
16a	Professional fundraising fees (Part IX, column (A), line 11e) .....	288,543	326,000
b	Total fundraising expenses (Part IX, column (D), line 25) 26,896,581
17	Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e)....	44,528,505	103,083,764
18	Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25)	292,766,690	337,912,568
19	Revenue less expenses. Subtract line 18 from line 12.......	-17,284,669	-62,121,812
		Beginning of Current Year	End of Year
20	Total assets (Part X, line 16).............	4,401,077,858	4,013,935,956
21	Total liabilities (Part X, line 26).............	206,891,793	238,572,484
22	Net assets or fund balances. Subtract line 21 from line 20.....	4,194,186,065	3,775,363,472

Sign Here

	Signature of officer	Date

	Type or print name and title


4a	(Code: ) (Expenses $ 237,133,914 including grants of $ 141,459,307 ) (Revenue $ 9,280,366 )
	MEDICAL PROGRAMS - SINCE 1955, THE CYSTIC FIBROSIS FOUNDATION HAS BEEN DEDICATED TO CURING AND CONTROLLING CYSTIC FIBROSIS (CF). THE CYSTIC FIBROSIS FOUNDATION IS THE WORLD'S LEADER IN THE SEARCH FOR A CURE FOR CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE THAT AFFECTS MORE THAN 30,000 PEOPLE IN THE UNITED STATES, AND 70,000 WORLDWIDE. THE FOUNDATION ACCOMPLISHES ITS MISSION BY FUNDING LIFE-SAVING RESEARCH TO DISCOVER AND DEVELOP EFFECTIVE THERAPIES FOR PEOPLE WITH CF. THE CF FOUNDATION HAS FUNDED HUNDREDS OF MILLIONS OF DOLLARS OF RESEARCH COSTS TO HELP DISCOVER/DEVELOP CF DRUGS AND THERAPIES. THROUGH THE FOUNDATIONS EFFORTS, THE LIFE EXPECTANCY OF PEOPLE WITH CF HAS MORE THAN DOUBLED IN THE LAST 30 YEARS, AND RESEARCH TO FIND A CURE IS MORE PROMISING THAN EVER BEFORE. IN 2018, THE CF FOUNDATION INVESTED $189 MILLION INTO RESEARCH AND CARE. THE CF FOUNDATION HAS ATTRACTED SIGNIFICANT INDUSTRY INVOLVEMENT IN THE FIGHT AGAINST CF BY FUNDING CONTRACTED DRUG DISCOVERY AND DEVELOPMENT RESEARCH CONDUCTED BY BIOTECHNOLOGY COMPANIES. IT ALSO PROVIDES MATCHING AWARDS TO CF DRUG DEVELOPERS FOR CF RESEARCH AND FUNDS A SPECIALIZED CF CLINICAL TRIALS NETWORK OF NEARLY 90 FOUNDATION-ACCREDITED CARE CENTERS. AS A RESULT OF THIS FUNDING, IN 2018 THE CF DRUG DEVELOPMENT PIPELINE HAD 26 THERAPIES IN DEVELOPMENT IN ADDITION TO 10 FDA APPROVED TREATMENTS THAT ADDRESS COMPLICATIONS LIKE INFECTIONS AND A POTENTIAL CURE. THE TREATMENT AND CARE PROTOCOLS DEVELOPED BY THE CF FOUNDATION ARE HELPING TENS OF THOUSANDS OF PEOPLE WITH THE DISEASE LIVE LONGER, HEALTHIER LIVES. TO SUPPORT ITS MISSION, THE FOUNDATION FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF MORE THAN 130 CARE CENTERS. THE CARE CENTER NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. IN 2018, THE FOUNDATION PROVIDED MORE THAN $47 MILLION OF SUPPORT FOR CARE CENTERS AND CLINICIANS. THE FOUNDATION'S PATIENT REGISTRY COLLECTS INFORMATION ON THE HEALTH STATUS OF MORE THAN 30,700 PEOPLE WITH CF, PROVIDING CAREGIVERS AND RESEARCHERS CRITICAL INFORMATION TO HELP IDENTIFY NEW HEALTH TRENDS AND EFFECTIVE TREATMENTS AND IMPROVE THE QUALITY OF CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR OTHER NONPROFIT HEALTH ORGANIZATIONS, INCLUDING CF ADVOCACY GROUPS.

4b	(Code: ) (Expenses $ 20,043,322 including grants of $ 2,855,977 ) (Revenue $ )
	COMMUNITY SERVICES - THE FOUNDATION PROVIDES MUCH-NEEDED SUPPORT FOR PATIENTS AND THEIR FAMILIES AS THEY MANAGE THE PHYSICAL, EMOTIONAL, AND FINANCIAL CHALLENGES OF LIVING WITH CF - FROM SUPPORTING SPECIALIZED QUALITY CF CARE, TO PROVIDING INFORMATION AND RESOURCES TO HELP PEOPLE WITH CF BECOME EFFECTIVE PARTNERS IN THEIR CARE TO PROGRAMS TO HELP AFFECT THE ISOLATION OF LIVING WITH THIS DISEASE. APPROXIMATELY 30,700 PEOPLE WITH CF WERE SERVED IN 2018, INCLUDING APPROXIMATELY 788 INDIVIDUALS WHO WERE NEWLY DIAGNOSED. LACK OF ADEQUATE INSURANCE COVERAGE FOR CF MEDICATIONS HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. COMPASS IS A HIGHLY PERSONALIZED SERVICE TAILORED TO AN INDIVIDUAL'S CIRCUMSTANCES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TO MUCH-NEEDED CF THERAPIES AND CARE. IN 2018, SKILLED CASE MANAGERS ADDRESSED MORE THAN 7,000 CASES FOR PEOPLE WITH CF, THEIR FAMILIES, AND THEIR PROVIDER NETWORK, INCLUDING UNDERSTANDING AND MAXIMIZING THEIR INSURANCE COVERAGE AND BENEFITS, AS WELL AS GETTING HELP WITH OTHER NEEDS RELATED TO DAILY LIFE WITH CF. CASE MANAGERS ALSO ASSISTED WITH FINDING RESOURCES FOR ISSUES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. TODAY, MORE THAN HALF OF ALL PEOPLE WITH CF ARE AGE 18 OR OLDER. IN 2018, APPROXIMATELY 1,243 PEOPLE WITH CF AND THEIR FAMILY MEMBERS JOINED VIRTUAL EVENTS DESIGNED BY AND FOR ADULTS WITH CF, INCLUDING BREATHECON AND FAMILYCON, THAT PROVIDE AN OPPORTUNITY FOR THE CF COMMUNITY TO CONNECT, SHARE, AND LEARN FROM PEERS THROUGH OPEN AND HONEST DIALOGUE.

4c	(Code: ) (Expenses $ 15,998,432 including grants of $ ) (Revenue $ )
	PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION - TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CF FOUNDATION HAS PROGRAMS DESIGNED TO IMPROVE THE KNOWLEDGE OF PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 2018, THERE WERE FOUR PUBLICATIONS AND 42 VIDEOS PRODUCED AND MADE AVAILABLE TO SUPPORT EDUCATION AND AWARENESS. YEAR-ROUND, MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS AND ALLIED HEALTH PROFESSIONALS AND OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2018, OVER 2,275,760 UNIQUE VISITORS CAME TO THE CF FOUNDATION'S WEBSITE. NEW CONTENT ON CFF.ORG IN 2018 INCLUDED THE LAUNCH OF NINE NEW SECTIONS AND 119 BLOG POSTS.

4d	Other program services (Describe in Schedule O.)
	(Expenses $ including grants of $ ) (Revenue $ )
4e	Total program service expenses273,175,668

1b	Sub-Total................
c	Total from continuation sheets to Part VII, Section A....
d	Total (add lines 1b and 1c)...........	7,714,562	0	1,151,287

1a	Federated campaigns..		1a	614,053
b	Membership dues..		1b
c	Fundraising events..		1c	80,840,857
d	Related organizations		1d
e	Government grants (contributions)		1e

f	All other contributions, gifts, grants, and similar amounts not included above		1f	26,603,681

g	Noncash contributions included in lines 1a - 1f:$ 10,369,497
h Total. Add lines 1a-1f.......		108,058,591

		Business Code
2a	SCIENTIFIC CONFERENCE	611600	3,933,428	3,933,428
b	CLINICAL STUDY	541900	131,364	131,364
c	DATA SAFETY MONITORING BOARD REVENUE	541990	376,300	376,300
d
e
f	All other program service revenue.
g	Total. Add lines 2a–2f ....		4,441,092

3 Investment income (including dividends, interest, and othersimilar amounts) ......			49,930,894		-4,072,385	54,003,279
4 Income from investment of tax-exempt bond proceeds			0
5 Royalties...........			16,750,788			16,750,788
		(ii) Personal	(i) Real
6a	Gross rents
b	Less: rental expenses
c	Rental income or (loss)	0	0
d	Net rental income or (loss)......			0
		(ii) Other	(i) Securities
7a	Gross amount from sales of assets other than inventory		1,458,001,534
b	Less: cost or other basis and sales expenses		1,366,787,738
c	Gain or (loss)		91,213,796
d	Net gain or (loss).....			91,213,796			91,213,796
8a	Gross income from fundraising events (not including $ 80,840,857of contributions reported on line 1c). See Part IV, line 18 ....
	a		14,774,450
b	Less: direct expenses ...b		14,774,450
c	Net income or (loss) from fundraising events..
9a	Gross income from gaming activities. See Part IV, line 19 ...
	a		128,250
b	Less: direct expenses ...b		39,194
c	Net income or (loss) from gaming activities..			89,056		0	89,056
10a	Gross sales of inventory, less returns and allowances ..
	a		0
b	Less: cost of goods sold ..b		0
c	Net income or (loss) from sales of inventory..			0
Business Code			Miscellaneous Revenue
11a	REFUNDED OR CANCELLED GRANTS		900099	4,839,274	4,839,274
b	CLAIM PROCEEDS		900099	467,265			467,265
c
d	All other revenue ....
e	Total. Add lines 11a–11d ......			5,306,539
12	Total revenue. See Instructions......			275,790,756	9,280,366	-4,072,385	162,524,184

1	Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21	135,222,105	135,222,105
2	Grants and other assistance to domestic individuals. See Part IV, line 22	138,221	138,221
3	Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, line 15 and 16.	8,954,958	8,954,958
4	Benefits paid to or for members	0
5	Compensation of current officers, directors, trustees, and key employees ....	6,075,419	3,482,544	1,217,947	1,374,928
6	Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) ....	436,175	364,913	33,474	37,788
7	Other salaries and wages	65,074,455	35,165,470	15,885,334	14,023,651
8	Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) ....	4,327,833	2,529,594	872,523	925,716
9	Other employee benefits .......	9,664,411	5,315,017	2,414,412	1,934,982
10	Payroll taxes ...........	4,609,227	2,694,375	929,105	985,747
11	Fees for services (non-employees):
a	Management ......	0
b	Legal .........	765,607	594,397	140,899	30,311
c	Accounting ...........	264,675		264,675
d	Lobbying ...........	856,530	856,530
e	Professional fundraising services. See Part IV, line 17	326,000			326,000
f	Investment management fees ......	9,655,029		9,655,029
g	Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O)	6,021,156	4,573,279	1,262,277	185,600
12	Advertising and promotion ....	9,888	4,692	3,734	1,462
13	Office expenses .......	6,011,970	3,328,071	675,199	2,008,700
14	Information technology ......	9,481,746	6,624,076	1,330,360	1,527,310
15	Royalties ..	0
16	Occupancy ...........	6,163,555	3,687,271	1,180,730	1,295,554
17	Travel ............	2,629,951	1,918,305	348,083	363,563
18	Payments of travel or entertainment expenses for any federal, state, or local public officials .	0
19	Conferences, conventions, and meetings ....	6,718,353	5,230,689	496,328	991,336
20	Interest ...........	0
21	Payments to affiliates .......	0
22	Depreciation, depletion, and amortization ..	3,460,046	2,645,379	371,225	443,442
23	Insurance ...	923,613	562,178	163,909	197,526
24	Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a	CONTRACTED RESEARCH	47,792,297	47,792,297
b	MEDICAL QUALITY IMPROVEMENT	681,557	681,557
c	TRAINING	514,300	244,043	194,214	76,043
d	OTHER	1,133,491	565,707	400,862	166,922
e	All other expenses
25	Total functional expenses. Add lines 1 through 24e	337,912,568	273,175,668	37,840,319	26,896,581
26	Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here if following SOP 98-2 (ASC 958-720).	2,065,942	505,160		1,560,782

1	Cash–non-interest-bearing ........			36,212	1	59,884
2	Savings and temporary cash investments .........			136,933,644	2	82,861,615
3	Pledges and grants receivable, net ......			7,687,519	3	6,564,345
4	Accounts receivable, net .............			4,147,509	4	5,700,247
5	Loans and other receivables from current and former officers, directors, trustees, key employees, and highest compensated employees. Complete Part II of Schedule L .............
				0	5	0
6	Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), persons described in section 4958(c)(3)(B), and contributing employers and sponsoring organizations of section 501(c)(9) voluntary employees' beneficiary organizations (see instructions) Complete Part II of Schedule L ..............
				0	6	0
7	Notes and loans receivable, net ....			0	7	0
8	Inventories for sale or use ........			330,993	8	315,551
9	Prepaid expenses and deferred charges ......			2,660,134	9	3,056,446
10a	Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D	10a	23,989,594
b	Less: accumulated depreciation	10b	12,443,652	9,330,039	10c	11,545,942
11	Investments—publicly traded securities .			1,921,918,665	11	1,746,072,213
12	Investments—other securities. See Part IV, line 11 .....			2,317,776,911	12	2,123,859,053
13	Investments—program-related. See Part IV, line 11 ..			0	13	0
14	Intangible assets ...............			0	14	0
15	Other assets. See Part IV, line 11 ...........			256,232	15	33,900,660
16	Total assets. Add lines 1 through 15 (must equal line 34)...			4,401,077,858	16	4,013,935,956

17	Accounts payable and accrued expenses .....	27,505,186	17	36,567,354
18	Grants payable ...	75,687,961	18	196,882,717
19	Deferred revenue .........	5,081,024	19	5,122,413
20	Tax-exempt bond liabilities .........	0	20	0
21	Escrow or custodial account liability. Complete Part IV of Schedule D	0	21	0
22	Loans and other payables to current and former officers, directors, trustees, key employees, highest compensated employees, and disqualified
	persons. Complete Part II of Schedule L..	0	22	0
23	Secured mortgages and notes payable to unrelated third parties ..	0	23	0
24	Unsecured notes and loans payable to unrelated third parties ..	0	24	0
25	Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D	98,617,622	25	0
26	Total liabilities. Add lines 17 through 25..	206,891,793	26	238,572,484

	Organizations that follow SFAS 117 (ASC 958), check here and complete lines 27 through 29, and lines 33 and 34.
27	Unrestricted net assets	4,181,431,067	27	3,764,331,282
28	Temporarily restricted net assets ...........	8,657,764	28	7,526,492
29	Permanently restricted net assets	4,097,234	29	3,505,698
	Organizations that do not follow SFAS 117 (ASC 958), check here and complete lines 30 through 34.
30	Capital stock or trust principal, or current funds .....		30
31	Paid-in or capital surplus, or land, building or equipment fund ...		31
32	Retained earnings, endowment, accumulated income, or other funds		32
33	Total net assets or fund balances ...........	4,194,186,065	33	3,775,363,472
34	Total liabilities and net assets/fund balances ........	4,401,077,858	34	4,013,935,956

1	Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes,"the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
2	Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to separately file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A; don't file with Form 990). . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
3	Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471). . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
4	Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621) .	Yes	No
5	Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships (see Instructions for Form 8865). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
6	Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to separately file Form 5713, International Boycott Report (see Instructions for Form 5713; don't file with Form 990).. . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No