Attach to Form 990 or Form 990-EZ.
Go to
www.irs.gov/Form990 for the latest information.
| (i) Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 10 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
|
Total |
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Calendar year (or fiscal year beginning in) ![]() |
(a) 2014 | (b) 2015 | (c) 2016 | (d) 2017 | (e) 2018 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. | 22,702,462 | 41,900,164 | 43,176,330 | 12,048,978 | 15,969,356 | 135,797,290 |
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.... | 0 | |||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | 0 | |||||
| 4 | Total. Add lines 1 through 3 | 22,702,462 | 41,900,164 | 43,176,330 | 12,048,978 | 15,969,356 | 135,797,290 |
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f).. | 59,892,027 | |||||
| 6 | Public support. Subtract line 5 from line 4. | 75,905,263 | |||||
Calendar year
(or fiscal year beginning in) ![]() |
(a) 2014 | (b) 2015 | (c) 2016 | (d) 2017 | (e) 2018 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | 22,702,462 | 41,900,164 | 43,176,330 | 12,048,978 | 15,969,356 | 135,797,290 |
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | 823,971 | 907,101 | 1,377,642 | 515,595 | 1,755,392 | 5,379,701 |
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | 371,093 | 371,093 | ||||
| 11 | Total support. Add lines 7 through 10 | 141,548,084 | |||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2014 | (b) 2015 | (c) 2016 | (d) 2017 | (e) 2018 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | ||||||
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose | ||||||
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513 ..... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge | ||||||
| 6 | Total. Add lines 1 through 5 | ||||||
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2014 | (b) 2015 | (c) 2016 | (d) 2017 | (e) 2018 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | ||||||
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | ||||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | ||||||
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
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| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by .035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | ||
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
||
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | ||
| 4 Amounts paid to acquire exempt-use assets | ||
| 5 Qualified set-aside amounts (prior IRS approval required) | ||
| 6 Other distributions (describe in Part VI). See instructions | ||
| 7Total annual distributions. Add lines 1 through 6. | ||
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
||
| 9 Distributable amount for 2018 from Section C, line 6 | ||
| 10 Line 8 amount divided by Line 9 amount | ||
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2018 |
(iii) Distributable Amount for 2018 |
|
|---|---|---|---|---|
|
1
Distributable amount for 2018 from Section C, line 6 |
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|
2
Underdistributions, if any, for years prior to 2018 (reasonable cause required-- explain in Part VI). See instructions. |
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| 3 Excess distributions carryover, if any, to 2018: | ||||
| a From 2013....... | ||||
| b From 2014....... | ||||
| c From 2015....... | ||||
| d From 2016....... | ||||
| e From 2017....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2018 distributable amount | ||||
|
i
Carryover from 2013 not applied (see instructions) |
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| j Remainder. Subtract lines 3g, 3h, and 3i from 3f. | ||||
| 4Distributions for 2018 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2018 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from 4. | ||||
|
5
Remaining underdistributions for years prior to 2018, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
6
Remaining underdistributions for 2018. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
7 Excess distributions carryover to 2019. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a Excess from 2014...... | ||||
| b Excess from 2015..... | ||||
| c Excess from 2016..... | ||||
| d Excess from 2017..... | ||||
| e Excess from 2018..... | ||||
| Facts And Circumstances Test |
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| Return Reference | Explanation |
|---|---|
| SCHEDULE A, PART VI | THE FOUNDATION CHANGED ITS FISCAL YEAR END DATE TO JUNE 30TH IN 2018, RESULTING IN A SHORT PERIOD TAX YEAR OF SIX MONTHS FROM JANUARY 1 JUNE 30, 2018. AS A RESULT, AMOUNTS REPORTED IN COLUMN (d) REFLECT AMOUNTS FOR THE SHORT PERIOD JANUARY 1, 2018 - JUNE 30, 2018. COLUMNS (a) THROUGH (c) REFLECT AMOUNTS REPORTED FOR CALENDAR YEARS 2015 - 2017, RESPECTIVELY. |
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| Software Version: |
Attach to Form 990 or 990-EZ.
Go to www.irs.gov/Form990 for the latest information.
| Return Reference | Explanation |
|---|---|
| FORM 990, PART I, LINE 1 | The Lustgarten Foundation is the largest private funder of pancreatic cancer research in the world. The Foundations mission is to cure pancreatic cancer by funding scientific and clinical research related to the diagnosis, treatment and prevention of pancreatic cancer; providing research information and clinical support services to patients, caregivers and individuals at high risk; and increasing public awareness and hope for those dealing with this disease. FORM 990, PART III, LINE 1 The Foundations mission is to cure pancreatic cancer by funding scientific and clinical research related to the diagnosis, treatment and prevention of pancreatic cancer; providing research information and clinical support services to patients, caregivers and individuals at high risk; and increasing public awareness and hope for those dealing with this disease. |
| FORM 990, PART III, LINE 4A | RESEARCH PROGRAM $24,673,145 GRANTS $23,777,569 Our mission is to cure pancreatic cancer. To advance our progress toward this goal, the Foundation committed an additional $24 million to research during FY 2019, bringing the cumulative total invested through June 2019 to $188 million. Through this significant investment in research, the Foundation has supported nearly 200 projects worldwide, with partnerships at more than 60 academic institutions. Moreover, two-thirds of the worlds private funding for pancreatic cancer research is provided by the Lustgarten Foundation. During FY 2019, major Lustgarten-funded research milestones and achievements have included: Establishing Dedicated Pancreatic Cancer Research Laboratories: Building on the success of the Foundations first dedicated pancreatic cancer research laboratory at Cold Spring Harbor Laboratory, the Foundation established three additional dedicated pancreatic cancer laboratories in 2018-2019 at Dana-Farber Cancer Institute (Boston), Johns Hopkins (Baltimore) and Massachusetts Institute of Technology (Boston). The opening of these facilities ushered in a new era of research progress and represented an initial $15 million investment over five years. Together, these laboratories position the Foundation as the only non-profit in the world to have four laboratories devoted to pancreatic cancer research, which means more resources, time and talent are being put toward this disease so that many more patients can become survivors. Advancing Our Progress Through the Pancreatic Cancer Collective: In 2018 the Foundation and Stand Up To Cancer entered into a formal strategic partnership by establishing the Pancreatic Cancer Collective to accelerate research for pancreatic cancer patients who desperately need better treatments. The Collective awarded $7 million in first-round "New Therapies Challenge Grants" to seven teams of top cancer researchers to explore new pancreatic cancer treatments. The overall goal of this grant program is to bring new, cutting-edge treatments to pancreatic cancer patients, including seeking new uses for treatments developed or approved for other uses. The Collective has also awarded two $1 million grants for computational approaches using artificial intelligence, focusing on machines programmed to mimic human reasoning. The two teams are each pursuing a different approach to identifying individuals in the general population who are at high-risk for pancreatic cancer. Focusing on Pancreatic Cancer Prevention in Families: In conjunction with Stand Up To Cancer, the Lustgarten Foundation began funding the GENERATE(GENetic Education, Risk Assessment, and TEsting) Study(generatestudy.org). This study is designed for people who have a close relative with pancreatic cancer caused by an inherited mutation in a gene, and the goal of this study is to improve genetic testing and cancer prevention in family members of pancreatic cancer patients with identified mutations. If a family member does have an inherited risk, there may be options for preventing cancer or detecting it early at a curable stage via frequent cancer screenings. Detecting Pancreatic Cancer Early Through a Single Blood Test: The CancerSEEK blood test can detect the early presence of multiple cancers, including pancreatic cancer, and also identify the organ of origin of these cancers. The pancreatic and ovarian cancer portions of this blood test have been "Fast Tracked" by the FDA. The CancerSeek research lays the foundation for a single blood-screening test for multiple cancers that could be offered as part of routine medical checks. Using Artificial Intelligence to Discover Pancreatic Cancer Earlier: Scientists from a broad range of disciplines are utilizing artificial intelligence to detect pancreatic cancer earlier. Their research has demonstrated computers can be trained to recognize patterns in medical images to detect very small pancreatic tumors on MRI and CT scans, the most commonly used imaging tests for the initial evaluation of suspected pancreatic cancer. Identifying and Testing Pancreatic Cysts: Researchers at Johns Hopkins are working on the Comprehensive Cyst (CompCyst) test. This test combines clinical, radiological, genetic and protein marker information to distinguish if pancreatic cysts, which can be common within the general population, can develop into pancreatic cancer (and require surgical intervention) or remain as benign cysts (and require surveillance). Lustgarten-funded researchers published research in several scientific journals including Cancer Discovery (October 2018) and the American Journal of Roentgenology (May 2019). FORM 990, PART III, LINE 4B PUBLIC EDUCATION AND INFORMATION PROGRAM $1,436,761 The Lustgarten Foundation created, printed and distributed the materials to update patients, caregivers, survivors, donors, volunteers, walk and event leaders and corporate sponsors with news about our research program and Foundation milestones. Materials include "ABOUT US" BROCHURE, Progress & Promise Newsletter, 20th Anniversary Book, Interview with an Expert Patient Education Pieces, and a Monthly E-Newsletter. Additionally, the Understanding Pancreatic Cancer: A Guide for Patients & Caregivers was updated and printed during FY 2019. Many of these materials are also available electronically at www.lustgarten.org. FORM 990, PART III, LINE 4C PROFESSIONAL EDUCATION PROGRAM $261,711 Professional education focused on the Foundations senior leadership conducting high-level meetings with scientists, directors of our four dedicated laboratories and collaborating organizations as well as attending/presenting at scientific meetings for organizations including the American Association for Cancer Research (AACR) and Stand Up To Cancer. The Foundation served as a Lead Sponsor for the AACR Special Meeting on Pancreatic Cancer held in September 2018. The Foundation held its annual scientific meeting for the Scientific Advisory Board and select other researchers in November 2018 as well. These meetings helped to foster a better understanding of global developments in pancreatic cancer research progress and trends to help shape the Foundations annual research grant program and long-term strategic plan. |
| FORM 990, PART VI, SECTION A, LINE 2 | CHARLES F. DOLAN, JAMES L. DOLAN AND QUENTIN DOLAN - FAMILY AND BUSINESS RELATIONSHIP. MARCIA LUSTGARTEN, ANDREW LUSTGARTEN AND JESSICA LUSTGARTEN COURTEMANCHE FAMILY RELATIONSHIP. |
| FORM 990, PART VI, SECTION B, LINE 11B | FORM 990 IS REVIEWED BY THE PRESIDENT FOR ACCURACY AND REASONABLENESS PRIOR TO SUBMISSION TO THE IRS. ADDITIONALLY A COMPLETE COPY OF THE FINAL RETURN IS PROVIDED TO ALL VOTING BOARD MEMBERS PRIOR TO FILING WITH THE IRS. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE ORGANIZATION HAS A WRITTEN CONFLICT OF INTEREST POLICY. THE WRITTEN POLICY REQUIRES ANNUAL DISCLOSURES BY ALL MEMBERS OF THE BOARD OF DIRECTORS, OFFICERS, AND KEY PERSONS OF ANY INTEREST THAT COULD GIVE RISE TO CONFLICT. THE ORGANIZATION REGULARLY AND CONSISTENTLY MONITORS AND ENFORCES THE COMPLIANCE OF THE CONFLICT OF INTEREST POLICY. |
| FORM 990, PART VI, SECTION B, LINE 15A | COMPENSATION LEVELS WITHIN THE ORGANIZATION ARE REVIEWED AND APPROVED BY MEMBERS OF THE BOARD OF DIRECTORS. |
| FORM 990, PART VI, SECTION C, LINE 19 | AUDITED FINANCIAL STATEMENTS ARE MADE AVAILABLE ON THE ORGANIZATION'S WEBSITE. IN ADDITION, GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. |
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