Form990
Click to see attachment
Department of the TreasuryInternal Revenue Service
Return of Organization Exempt From Income Tax
Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private foundations)
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MediumBullet Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public Inspection
A For the 2019 calendar year, or tax year beginning 01-01-2019 , and ending 12-31-2019
BCheck if applicable:
CName of organization
MUSCULAR DYSTROPHY ASSOCIATIONINC
 
 
Doing business as
 
 
Number and street (or P.O. box if mail is not delivered to street address)
161 N CLARK ST NO 3550
 
Room/suite
City or town, state or province, country, and ZIP or foreign postal code
CHICAGO, IL60601
D Employer identification number

13-1665552
E Telephone number

G Gross receipts $ 129,763,914
F Name and address of principal officer:
ELLEN VOSS
161 N CLARK ST NO 3550
CHICAGO,IL60601
I
Tax-exempt status: (   ) LeftBullet (insert no.) or
J
Website:MediumBullet
WWW.MDA.ORG
H(a)
Is this a group return for
subordinates?
H(b)
Are all subordinates
included?
If "No," attach a list. (see instructions)
H(c)
Group exemption number MediumBullet  
K Form of organization:  
L Year of formation: 1950
M State of legal domicile: NY
Part I
Summary
Activities & Governance 1 Briefly describe the organization’s mission or most significant activities: THE MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE.
2 Check this box MediumBullet
3 Number of voting members of the governing body (Part VI, line 1a) ........ 3 24
4 Number of independent voting members of the governing body (Part VI, line 1b) ..... 4 24
5 Total number of individuals employed in calendar year 2019 (Part V, line 2a) ...... 5 786
6 Total number of volunteers (estimate if necessary) ............. 6 350,000
7a Total unrelated business revenue from Part VIII, column (C), line 12 ........ 7a 286,145
b Net unrelated business taxable income from Form 990-T, line 39 ......... 7b 0
Revenues Prior Year Current Year
8 Contributions and grants (Part VIII, line 1h) ......... 103,881,886 99,904,218
9 Program service revenue (Part VIII, line 2g) ......... 0 0
10 Investment income (Part VIII, column (A), lines 3, 4, and 7d ) .... 6,232,772 2,526,139
11 Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e) 542,895 -1,457,582
12 Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12) 110,657,553 100,972,775
Expenses; 13 Grants and similar amounts paid (Part IX, column (A), lines 1–3 )... 26,577,877 26,371,876
14 Benefits paid to or for members (Part IX, column (A), line 4)..... 0 0
15 Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10) 49,730,603 47,805,447
16a Professional fundraising fees (Part IX, column (A), line 11e) ..... 0 0
b Total fundraising expenses (Part IX, column (D), line 25) MediumBullet47,863,906    
17 Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e).... 31,488,552 38,572,476
18 Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25) 107,797,032 112,749,799
19 Revenue less expenses. Subtract line 18 from line 12....... 2,860,521 -11,777,024
Net Assets or Fund Balances; Beginning of Current Year End of Year
20 Total assets (Part X, line 16)............. 83,664,541 81,509,086
21 Total liabilities (Part X, line 26)............. 73,718,038 82,222,737
22 Net assets or fund balances. Subtract line 21 from line 20..... 9,946,503 -713,651
Part II
Signature Block
Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it is true, correct, and complete. Declaration of preparer (other than officer) is based on all information of which preparer has any knowledge.
Sign Here
JumboBullet
Signature of officer Date
JumboBullet
Type or print name and title
Paid Preparer Use Only
Print/Type preparer's name
Preparer's signature
Date
PTIN
Firm's name MediumBullet

Firm's EIN MediumBullet
Firm's address MediumBullet



Phone no.
May the IRS discuss this return with the preparer shown above? (see instructions) ..........
For Paperwork Reduction Act Notice, see the separate instructions.
Cat. No. 11282Y Form 990 (2019)
Form 990 (2019)
Page 2
Part III
Statement of Program Service Accomplishments
Check if Schedule O contains a response or note to any line in this Part III..............
1
Briefly describe the organization’s mission: THE MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE.
2
Did the organization undertake any significant program services during the year which were not listed on
the prior Form 990 or 990-EZ? .....................
If "Yes," describe these new services on Schedule O.
3
Did the organization cease conducting, or make significant changes in how it conducts, any program
services? ...........................
If "Yes," describe these changes on Schedule O.
4
Describe the organization’s program service accomplishments for each of its three largest program services, as measured by expenses. Section 501(c)(3) and 501(c)(4) organizations are required to report the amount of grants and allocations to others, the total expenses, and revenue, if any, for each program service reported.
4a (Code:   ) (Expenses $ 28,614,874 including grants of $ 9,901,833 ) (Revenue $   )
HEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE AFFECTED BY MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES.
4b (Code:   ) (Expenses $ 19,855,585 including grants of $ 16,394,896 ) (Revenue $   )
RESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING MORE THAN 40 NEUROMUSCULAR DISEASES INCLUDING MUSCULAR DYSTROPHY, ALS, AND MANY OTHERS. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS AND CURE. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR UMBRELLA MODEL OF FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES.
4c (Code:   ) (Expenses $ 9,124,865 including grants of $ 75,147 ) (Revenue $   )
PROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE U.S., OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE, A FLAGSHIP EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NMD COMMUNITY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL.
4d Other program services (Describe in Schedule O.)
(Expenses $   including grants of $   ) (Revenue $   )
4e Total program service expensesMediumBullet57,595,324
Form 990 (2019)
Form 990 (2019)
Page 3
Part IV
Checklist of Required Schedules
Yes
No
1
Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)? If "Yes," complete Schedule AClick to see attachment.....................
1
Yes
 
2
Is the organization required to complete Schedule B, Schedule of Contributors (see instructions)? ...
2
 
No
3
Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office? If "Yes," complete Schedule C, Part IClick to see attachment.............
3
 
No
4
Section 501(c)(3) organizations. Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year? If "Yes," complete Schedule C, Part IIClick to see attachment.........
4
Yes
 
5
Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Revenue Procedure 98-19? If "Yes," complete Schedule C, Part IIIClick to see attachment..
5
 
No
6
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts? If "Yes," complete Schedule D, Part IClick to see attachment.........................
6
 
No
7
Did the organization receive or hold a conservation easement, including easements to preserve open space,
the environment, historic land areas, or historic structures? If "Yes," complete Schedule D, Part IIClick to see attachment....
7
 
No
8
Did the organization maintain collections of works of art, historical treasures, or other similar assets? If "Yes,"
complete Schedule D, Part IIIClick to see attachment..............
8
Yes
 
9
Did the organization report an amount in Part X, line 21 for escrow or custodial account liability; serve as a custodian for amounts not listed in Part X; or provide credit counseling, debt management, credit repair, or debt negotiation services? If "Yes," complete Schedule D, Part IVClick to see attachment..............
9
 
No
10
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi endowments? If "Yes," complete Schedule D, Part V......
10
Yes
 
11
If the organization’s answer to any of the following questions is "Yes," then complete Schedule D, Parts VI, VII, VIII, IX, or X as applicable.
a
Did the organization report an amount for land, buildings, and equipment in Part X, line 10? If "Yes," complete
Schedule D, Part VI. Click to see attachment...................
11a
Yes
 
b
Did the organization report an amount for investments—other securities in Part X, line 12 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIClick to see attachment.......
11b
 
No
c
Did the organization report an amount for investments—program related in Part X, line 13 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIIClick to see attachment.......
11c
 
No
d
Did the organization report an amount for other assets in Part X, line 15 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part IXClick to see attachment............
11d
 
No
e
Did the organization report an amount for other liabilities in Part X, line 25? If "Yes," complete Schedule D, Part XClick to see attachment
11e
Yes
 
f
Did the organization’s separate or consolidated financial statements for the tax year include a footnote that addresses the organization’s liability for uncertain tax positions under FIN 48 (ASC 740)? If "Yes," complete Schedule D, Part XClick to see attachment
11f
Yes
 
12a
Did the organization obtain separate, independent audited financial statements for the tax year? If "Yes," complete
Schedule D, Parts XI and XIIClick to see attachment......................
12a
Yes
 
b
Was the organization included in consolidated, independent audited financial statements for the tax year? If "Yes," and if the organization answered "No" to line 12a, then completing Schedule D, Parts XI and XII is optional Click to see attachment
12b
 
No
13
Is the organization a school described in section 170(b)(1)(A)(ii)? If "Yes," complete Schedule E
13
 
No
14a
Did the organization maintain an office, employees, or agents outside of the United States? .....
14a
 
No
b
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more? If "Yes," complete Schedule F, Parts I and IV.........Click to see attachment
14b
Yes
 
15
Did the organization report on Part IX, column (A), line 3, more than $5,000 of grants or other assistance to or for any foreign organization? If “Yes,” complete Schedule F, Parts II and IV.....Click to see attachment
15
Yes
 
16
Did the organization report on Part IX, column (A), line 3, more than $5,000 of aggregate grants or other assistance to or for foreign individuals? If “Yes,” complete Schedule F, Parts III and IV...Click to see attachment
16
 
No
17
Did the organization report a total of more than $15,000 of expenses for professional fundraising services on Part IX, column (A), lines 6 and 11e? If "Yes," complete Schedule G, Part I(see instructions) ....Click to see attachment
17
 
No
18
Did the organization report more than $15,000 total of fundraising event gross income and contributions on Part VIII, lines 1c and 8a? If "Yes," complete Schedule G, Part II............ Click to see attachment
18
Yes
 
19
Did the organization report more than $15,000 of gross income from gaming activities on Part VIII, line 9a? If "Yes," complete Schedule G, Part III...................Click to see attachment
19
Yes
 
20a
Did the organization operate one or more hospital facilities? If "Yes," complete Schedule H....
20a
 
No
b
If "Yes" to line 20a, did the organization attach a copy of its audited financial statements to this return?
20b
 
 
21
Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government on Part IX, column (A), line 1? If “Yes,” complete Schedule I, Parts I and II.....Click to see attachment
21
Yes
 
Form 990 (2019)
Form 990 (2019)
Page 4
Part IV
Checklist of Required Schedules (continued)
Yes
No
22
Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals on Part IX, column (A), line 2? If “Yes,” complete Schedule I, Parts I and III........Click to see attachment
22
 
No
23
Did the organization answer "Yes" to Part VII, Section A, line 3, 4, or 5 about compensation of the organization’s current and former officers, directors, trustees, key employees, and highest compensated employees? If "Yes," complete Schedule J....................... Click to see attachment
23
Yes
 
24a
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002? If “Yes,” answer lines 24b through 24d and complete Schedule K. If “No,” go to line 25a...............
24a
 
No
b
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?...
24b
 
 
c
Did the organization maintain an escrow account other than a refunding escrow at any time during the year
to defease any tax-exempt bonds? ...............
24c
 
 
d
Did the organization act as an "on behalf of" issuer for bonds outstanding at any time during the year?...
24d
 
 
25a
Section 501(c)(3), 501(c)(4), and 501(c)(29) organizations. Did the organization engage in an excess benefit transaction with a disqualified person during the year? If "Yes," complete Schedule L, Part I .... Click to see attachment
25a
 
No
b
Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization’s prior Forms 990 or 990-EZ? If "Yes," complete Schedule L, Part I.......................Click to see attachment
25b
 
No
26
Did the organization report any amount on Part X, line 5 or 22 for receivables from or payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons? If "Yes," complete Schedule L, Part IIClick to see attachment...........
26
 
No
27
Did the organization provide a grant or other assistance to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or employee thereof, a grant selection committee member, or to a 35% controlled entity (including an employee thereof) or family member of any of these persons?
If "Yes," complete
Schedule L, Part IIIClick to see attachment.........................
27
Yes
 
28
Was the organization a party to a business transaction with one of the following parties (see Schedule L, Part IV instructions for applicable filing thresholds, conditions, and exceptions):
a
A current or former officer, director, trustee, key employee, creator or founder, or substantial contributor? If "Yes," complete Schedule L, Part IV......................Click to see attachment
28a
 
No
b
A family member of any individual described in line 28a? If "Yes," complete Schedule L, Part IV.....Click to see attachment
28b
 
No
c
A 35% controlled entity of one or more individuals and/or organizations described in lines 28a or 28b? If "Yes," complete Schedule L, Part IV.....................
28c
Yes
 
29
Did the organization receive more than $25,000 in non-cash contributions? If "Yes," complete Schedule M..Click to see attachment
29
Yes
 
30
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions? If "Yes," complete Schedule M .................Click to see attachment
30
 
No
31
Did the organization liquidate, terminate, or dissolve and cease operations? If "Yes," complete Schedule N, Part I
31
 
No
32
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets? If "Yes," complete Schedule N, Part II........................
32
 
No
33
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3? If "Yes," complete Schedule R, Part I............
33
 
No
34
Was the organization related to any tax-exempt or taxable entity? If "Yes," complete Schedule R, Part II, III, or IV, and Part V, line 1.........................
34
 
No
35a
Did the organization have a controlled entity within the meaning of section 512(b)(13)?
35a
 
No
b
If ‘Yes’ to line 35a, did the organization receive any payment from or engage in any transaction with a controlled entity within the meaning of section 512(b)(13)? If "Yes," complete Schedule R, Part V, line 2 ...
35b
 
 
36
Section 501(c)(3) organizations. Did the organization make any transfers to an exempt non-charitable related organization? If "Yes," complete Schedule R, Part V, line 2.............
36
 
No
37
Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes? If "Yes," complete Schedule R, Part VI
37
 
No
38
Did the organization complete Schedule O and provide explanations in Schedule O for Part VI, lines 11b and 19? Note. All Form 990 filers are required to complete Schedule O. ............
38
Yes
 
Part V
Statements Regarding Other IRS Filings and Tax Compliance
Check if Schedule O contains a response or note to any line in this Part V...........
Yes
No
1a
Enter the number reported in Box 3 of Form 1096. Enter -0- if not applicable ..
1a
502
b
Enter the number of Forms W-2G included in line 1a. Enter -0- if not applicable .
1b
12
c
Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners? ..................
1c
Yes
 
Form 990 (2019)
Form 990 (2019)
Page 5
Part V
Statements Regarding Other IRS Filings and Tax Compliance (continued)
2a
Enter the number of employees reported on Form W-3, Transmittal of Wage and
Tax Statements, filed for the calendar year ending with or within the year covered by this return ..................
2a
786
b
If at least one is reported on line 2a, did the organization file all required federal employment tax returns?
Note. If the sum of lines 1a and 2a is greater than 250, you may be required to e-file (see instructions)
2b
Yes
 
3a
Did the organization have unrelated business gross income of $1,000 or more during the year?...
3a
Yes
 
b
If “Yes,” has it filed a Form 990-T for this year? If “No” to line 3b, provide an explanation in Schedule O...
3b
Yes
 
4a
At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)? ..
4a
 
No
b
If "Yes," enter the name of the foreign country: MediumBullet
See instructions for filing requirements for FinCEN Form 114, Report of Foreign Bank and Financial Accounts (FBAR).
5a
Was the organization a party to a prohibited tax shelter transaction at any time during the tax year? ..
5a
 
No
b
Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?
5b
 
No
c
If "Yes," to line 5a or 5b, did the organization file Form 8886-T? ............
5c
 
 
6a
Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions? ...
6a
 
No
b
If "Yes," did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible? ......................
6b
 
 
7
Organizations that may receive deductible contributions under section 170(c).
a
Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor? ....................
7a
Yes
 
b
If "Yes," did the organization notify the donor of the value of the goods or services provided? .....
7b
Yes
 
c
Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282? .........................
7c
 
No
d
If "Yes," indicate the number of Forms 8282 filed during the year ....
7d
 
e
Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?
7e
 
No
f
Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract? ..
7f
 
No
g
If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required? ......................
7g
 
 
h
If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C? ..........................
7h
 
 
8
Sponsoring organizations maintaining donor advised funds. Did a donor advised fund maintained by the sponsoring organization have excess business holdings at any time during the year? ........
8
 
 
9
Sponsoring organizations maintaining donor advised funds.
a
Did the sponsoring organization make any taxable distributions under section 4966?........
9a
 
 
b
Did the sponsoring organization make a distribution to a donor, donor advisor, or related person?...
9b
 
 
10
Section 501(c)(7) organizations. Enter:
a
Initiation fees and capital contributions included on Part VIII, line 12 ...
10a
 
b
Gross receipts, included on Form 990, Part VIII, line 12, for public use of club facilities
10b
 
11
Section 501(c)(12) organizations. Enter:
a
Gross income from members or shareholders .........
11a
 
b
Gross income from other sources (Do not net amounts due or paid to other sources against amounts due or received from them.) ..........
11b
 
12a
Section 4947(a)(1) non-exempt charitable trusts. Is the organization filing Form 990 in lieu of Form 1041?
12a
 
 
b
If "Yes," enter the amount of tax-exempt interest received or accrued during the year.
12b
 
13
Section 501(c)(29) qualified nonprofit health insurance issuers.
a
Is the organization licensed to issue qualified health plans in more than one state? .........
Note. See the instructions for additional information the organization must report on Schedule O.
13a
 
 
b
Enter the amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans ....
13b
 
c
Enter the amount of reserves on hand ............
13c
 
14a
Did the organization receive any payments for indoor tanning services during the tax year?.....
14a
 
No
b
If "Yes," has it filed a Form 720 to report these payments? If "No," provide an explanation in Schedule O..
14b
 
 
15
Is the organization subject to the section 4960 tax on payment(s) of more than $1,000,000 in remuneration or excess parachute payment(s) during the year? ....................
If "Yes," see instructions and file Form 4720, Schedule N.
15
 
No
16
Is the organization an educational institution subject to the section 4968 excise tax on net investment income? ..
If "Yes," complete Form 4720, Schedule O.
16
 
No
Form 990 (2019)
Form 990 (2019)
Page 6
Part VI
Governance, Management, and Disclosure For each "Yes" response to lines 2 through 7b below, and for a "No" response to lines 8a, 8b, or 10b below, describe the circumstances, processes, or changes in Schedule O. See instructions.
Check if Schedule O contains a response or note to any line in this Part VI..............
Section A. Governing Body and Management
Yes
No
1a
Enter the number of voting members of the governing body at the end of the tax year
1a
24
If there are material differences in voting rights among members of the governing body, or if the governing body delegated broad authority to an executive committee or similar committee, explain in Schedule O.
b
Enter the number of voting members included in line 1a, above, who are independent
1b
24
2
Did any officer, director, trustee, or key employee have a family relationship or a business relationship with any other officer, director, trustee, or key employee? .................
2
 
No
3
Did the organization delegate control over management duties customarily performed by or under the direct supervision of officers, directors or trustees, or key employees to a management company or other person? .
3
 
No
4
Did the organization make any significant changes to its governing documents since the prior Form 990 was filed? .
4
 
No
5
Did the organization become aware during the year of a significant diversion of the organization’s assets? .
5
 
No
6
Did the organization have members or stockholders? ................
6
 
No
7a
Did the organization have members, stockholders, or other persons who had the power to elect or appoint one or more members of the governing body? ....................
7a
 
No
b
Are any governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or persons other than the governing body? ...................
7b
 
No
8
Did the organization contemporaneously document the meetings held or written actions undertaken during the year by the following:
a
The governing body? .......................
8a
Yes
 
b
Each committee with authority to act on behalf of the governing body? ............
8b
Yes
 
9
Is there any officer, director, trustee, or key employee listed in Part VII, Section A, who cannot be reached at the organization’s mailing address? If "Yes," provide the names and addresses in Schedule O.......
9
 
No
Section B. Policies (This Section B requests information about policies not required by the Internal Revenue Code.)
Yes
No
10a
Did the organization have local chapters, branches, or affiliates? ............
10a
 
No
b
If "Yes," did the organization have written policies and procedures governing the activities of such chapters, affiliates, and branches to ensure their operations are consistent with the organization's exempt purposes?
10b
 
 
11a
Has the organization provided a complete copy of this Form 990 to all members of its governing body before filing the form? ............................
11a
Yes
 
b
Describe in Schedule O the process, if any, used by the organization to review this Form 990. .....
12a
Did the organization have a written conflict of interest policy? If "No," go to line 13.......
12a
Yes
 
b
Were officers, directors, or trustees, and key employees required to disclose annually interests that could give rise to conflicts? ..........................
12b
Yes
 
c
Did the organization regularly and consistently monitor and enforce compliance with the policy? If "Yes," describe in Schedule O how this was done...................
12c
Yes
 
13
Did the organization have a written whistleblower policy? ...............
13
Yes
 
14
Did the organization have a written document retention and destruction policy? .........
14
Yes
 
15
Did the process for determining compensation of the following persons include a review and approval by independent persons, comparability data, and contemporaneous substantiation of the deliberation and decision?
a
The organization’s CEO, Executive Director, or top management official ...........
15a
Yes
 
b
Other officers or key employees of the organization ................
15b
Yes
 
If "Yes" to line 15a or 15b, describe the process in Schedule O (see instructions).
16a
Did the organization invest in, contribute assets to, or participate in a joint venture or similar arrangement with a taxable entity during the year? ......................
16a
 
No
b
If "Yes," did the organization follow a written policy or procedure requiring the organization to evaluate its participation in joint venture arrangements under applicable federal tax law, and take steps to safeguard the organization’s exempt status with respect to such arrangements? ............
16b
 
 
Section C. Disclosure
17
List the states with which a copy of this Form 990 is required to be filedMediumBullet
AL , AK , AZ , CA , CO , CT , DE , FL , GA , HI , ID , IL , IN , IA , KS , KY , LA , ME , MD , MA , MI , MN , MO , MT , NE , NV , NJ , NM , NY , NC , ND , OH , OK , OR , PA , PR , RI , SC , SD , TN , UT , VA , WA , WV , WI , WY
18
Section 6104 requires an organization to make its Form 1023 (or 1024-A if applicable), 990, and 990-T (501(c)(3)s only) available for public inspection. Indicate how you made these available. Check all that apply.
19
Describe in Schedule O whether (and if so, how) the organization made its governing documents, conflict of interest policy, and financial statements available to the public during the tax year.
20
State the name, address, and telephone number of the person who possesses the organization's books and records:
MediumBulletJENNIFER BUZALSKI CONTROLLER161 N CLARK STREET STE 3550   CHICAGO,IL60601 (312) 260-5975
Form 990 (2019)
Form 990 (2019)
Page 7
Part VII
Compensation of Officers, Directors,Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors
Check if Schedule O contains a response or note to any line in this Part VII..............
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
1a Complete this table for all persons required to be listed. Report compensation for the calendar year ending with or within the organization’s tax year.
RoundBullet List all of the organization’s current officers, directors, trustees (whether individuals or organizations), regardless of amount
of compensation. Enter -0- in columns (D), (E), and (F) if no compensation was paid.

RoundBullet List all of the organization’s current key employees, if any. See instructions for definition of "key employee."
RoundBullet List the organization’s five current highest compensated employees (other than an officer, director, trustee or key employee)
who received reportable compensation (Box 5 of Form W-2 and/or Box 7 of Form 1099-MISC) of more than $100,000 from the
organization and any related organizations.

RoundBullet List all of the organization’s former officers, key employees, or highest compensated employees who received more than $100,000
of reportable compensation from the organization and any related organizations.

RoundBullet List all of the organization’s former directors or trustees that received, in the capacity as a former director or trustee of the
organization, more than $10,000 of reportable compensation from the organization and any related organizations.

See instructions for the order in which to list the persons above.
Check this box if neither the organization nor any related organization compensated any current officer, director, or trustee.
(A)
Name and title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W-2/1099-MISC) 		(E)
Reportable compensation from related organizations (W-2/1099-MISC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(1) ANJAN ARALIHALLI......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(2) ANKUR GHIA......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(3) BENJAMIN CUMBO III......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(4) CHARLES D SCHOOR ESQ......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(5) CHRISTOPHER J ROSA PHD......................................................................
VICE CHAIR
 1.00
.................
  		X   X       0 0 0
(6) DANIEL G FRIES......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(7) DAVE HUTTON......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(8) DON WOOD......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(9) ELIZABETH MCNALLY MD PHD......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(10) EUGENE WILLIAMS......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(11) GOVERNOR BRAD HENRY......................................................................
DIRECTOR
 3.00
.................
  		X           0 0 0
(12) JOHN COSTANTINO......................................................................
DIRECTOR
 3.00
.................
  		X           0 0 0
(13) JOHN TOGNINO......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(14) KRISTINE WELKER......................................................................
DIRECTOR
 3.00
.................
  		X           0 0 0
(15) LILIAN WU PHD......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(16) LOUIS KUNKEL PHD......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(17) MARK SMITH......................................................................
DIRECTOR
 3.00
.................
  		X           0 0 0
Form 990 (2019)
Form 990 (2019)
Page 8
Part VII
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (continued)
(A)
Name and title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W-2/1099-MISC) 		(E)
Reportable compensation from related organizations (W-2/1099-MISC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(18) MIKE ROWLETT........................................................................
DIRECTOR
 1.00
.......................   		X           0 0 0
(19) PATRICIA NAZEMETZ........................................................................
DIRECTOR
 1.00
.......................   		X           0 0 0
(20) R RODNEY HOWELL MD........................................................................
CHAIRMAN
 5.00
.......................   		X   X       0 0 0
(21) STANLEY APPEL MD........................................................................
DIRECTOR
 3.00
.......................   		X           0 0 0
(22) STEVE FARELLA........................................................................
DIRECTOR
 3.00
.......................   		X           0 0 0
(23) STEVE FELSHER........................................................................
DIRECTOR
 1.00
.......................   		X           0 0 0
(24) VICTOR WRIGHT........................................................................
DIRECTOR
 2.00
.......................   		X           0 0 0
(25) ELLEN VOS........................................................................
PRESIDENT & CEO
 50.00
.......................   		    X       508,029 0 28,218
(26) KAREN ANDREWS........................................................................
SECRETARY & CHIEF LEGAL OFFICER
 50.00
.......................   		    X       413,969 0 0
(27) MICHAEL KENNEDY........................................................................
TREASURER & CFO
 50.00
.......................   		    X       287,333 0 35,711
(28) JENNIFER ALLEBACH........................................................................
SVP OF RECREATION AND CAMP PROGRAMS
 40.00
.......................   		      X     150,209 0 3,008
(29) KATHY KAUFFMANN........................................................................
CHIEF STRATEGY DEVELOPMENT OFFICER
 40.00
.......................   		      X     152,342 0 17,976
(30) ADAM COTUMACCIO........................................................................
CHIEF IMPACT & PHILANTHROPY OFFICER
 40.00
.......................   		        X   284,234 0 46,389
(31) JEANNE ZUCKER........................................................................
SENIOR VP, HEALTHCARE PART
 40.00
.......................   		        X   260,422 0 11,000
(32) KRISTIN STEPHENSON........................................................................
SVP, CHIEF POLICY & COMM E
 40.00
.......................   		        X   203,107 0 40,598
(33) MEREDITH WILSON........................................................................
VP, HEALTHCARE COMMUNICATIONS & EDUCATION
 40.00
.......................   		        X   179,647 0 8,187
(34) MICHAEL BRUNO........................................................................
CHIEF PEOPLE AND ADMINISTRATIVE OFFICER
 40.00
.......................   		        X   214,376 0 13,292
1b Sub-Total................MediumBullet
c Total from continuation sheets to Part VII, Section A....MediumBullet
d Total (add lines 1b and 1c)...........MediumBullet 2,653,668 0 204,379
2
Total number of individuals (including but not limited to those listed above) who received more than $100,000 of reportable compensation from the organization MediumBullet49
Yes
No
3
Did the organization list any former officer, director or trustee, key employee, or highest compensated employee on line 1a? If "Yes," complete Schedule J for such individual ..............
3
 
No
4
For any individual listed on line 1a, is the sum of reportable compensation and other compensation from the organization and related organizations greater than $150,000? If "Yes," complete Schedule J for such
individual...........................
4
Yes
 
5
Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services rendered to the organization? If "Yes," complete Schedule J for such person ........
5
 
No
Section B. Independent Contractors
1
Complete this table for your five highest compensated independent contractors that received more than $100,000 of compensation from the organization. Report compensation for the calendar year ending with or within the organization’s tax year.
(A)
Name and business address 		(B)
Description of services 		(C)
Compensation
TYLER HAINES CUNNINGHAM

33 GARDEN AVE
BRONXVILLE,NY10708 		MARKETING 311,959
ERICK JAMES SODERSTROM

66 HUNTING LANE
SHERBORN,MA01770 		MARKETING 208,000
SIBSON CONSULTING

PO BOX 4058
NEW YORK,NY10261 		PENSION MANAGEMENT 172,900
DEB BARGE

PO BOX 35
OAS HARBOR,WA98277 		CONSULTING 140,000
ELLEN SHEDLARZ

151 EAST 83 ST APT 10A
NEW YORK,NY10028 		CONSULTING 120,961
2
Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization MediumBullet8
Form 990 (2019)
Form 990 (2019)
Page 9
Part VIII
Statement of Revenue
Check if Schedule O contains a response or note to any line in this Part VIII.............
(A)
Total revenue 		(B)
Related or
exempt
function
revenue 		(C)
Unrelated
business
revenue 		(D)
Revenue
excluded from
tax under sections
512 - 514
Contributions, Gifts, GrantAmt and OtherAmt Similar Amounts 1a Federated campaigns..1a 1,112,148
b Membership dues..1b  
c Fundraising events..1c 52,812,454
d Related organizations1d  
e Government grants (contributions)1e 335,898
f All other contributions, gifts, grants, and similar amounts not included above1f 45,643,718
g Noncash contributions included in lines 1a - 1f:$ 1g 59,097
h Total. Add lines 1a-1f.......MediumBullet 99,904,218
Program Service RevenueAmt Business Code
2a
b
c
d
e
f All other program service revenue.        
g Total. Add lines 2a–2f .....MediumBullet  
OtherAmtRevenueAmt 3 Investment income (including dividends, interest, and othersimilar amounts) ......MediumBullet 1,545,505     1,545,505
4 Income from investment of tax-exempt bond proceedsMediumBullet        
5 Royalties...........MediumBullet 6,780     6,780
(ii) Personal (i) Real
6a Gross rents     6a
b Less: rental expenses     6b
c Rental income or (loss)     6c
d Net rental income or (loss).......MediumBullet        
(ii) Other (i) Securities
7a Gross amount from sales of assets other than inventory   25,026,821 7a
b Less: cost or other basis and sales expenses   24,046,187 7b
c Gain or (loss)   980,634 7c
d Net gain or (loss).........MediumBullet 980,634     980,634
8a Gross income from fundraising events (not including $ 52,812,454of contributions reported on line 1c). See Part IV, line 18 ....
8a 2,928,946
b Less: direct expenses ... 8b 4,686,952
c Net income or (loss) from fundraising events..MediumBullet -1,758,006   -1,758,006
9a Gross income from gaming activities.
See Part IV, line 19 ...
9a 65,499
b Less: direct expenses ... 9b 58,000
c Net income or (loss) from gaming activities..MediumBullet 7,499     7,499
10a Gross sales of inventory, less
returns and allowances ..
10a  
b Less: cost of goods sold .. 10b  
c Net income or (loss) from sales of inventory..MediumBullet        
Business Code Miscellaneous Revenue
11a QUEST ADVERTISING 541800 286,145   286,145  
b            
c            
d All other revenue ....        
e Total. Add lines 11a–11d ...... MediumBullet 286,145
12 Total revenue. See instructions.....MediumBullet 100,972,775 0 286,145 782,412
Form 990 (2019)
Form 990 (2019)
Page 10
Part IX
Statement of Functional Expenses
Section 501(c)(3) and 501(c)(4) organizations must complete all columns. All other organizations must complete column (A).Check if Schedule O contains a response or note to any line in this Part IX..............
Do not include amounts reported on lines 6b,
7b, 8b, 9b, and 10b of Part VIII. 		(A)
Total expenses 		(B)
Program service expenses 		(C)
Management and general expenses 		(D)
Fundraising
expenses
1 Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 .... 23,783,703 23,783,703
2 Grants and other assistance to domestic individuals. See Part IV, line 22 ...........    
3 Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. ............. 2,588,173 2,588,173
4 Benefits paid to or for members .......    
5 Compensation of current officers, directors, trustees, and key employees ........... 1,183,626 480,577 72,018 631,031
6 Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .........        
7 Other salaries and wages........ 36,058,934 14,640,686 2,194,008 19,224,240
8 Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) .... 544,492 221,075 33,130 290,287
9 Other employee benefits ....... 6,924,383 2,811,445 421,315 3,691,623
10 Payroll taxes ........... 3,094,012 1,256,234 188,255 1,649,523
11 Fees for services (non-employees):        
a Management ......        
b Legal ......... 313,726 51,031 26,011 236,684
c Accounting ........... 173,954   173,954  
d Lobbying ........... 411,778 411,778    
e Professional fundraising services. See Part IV, line 17    
f Investment management fees ...... 240,913   240,913  
g Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O) 8,452,184 2,655,470 1,634,823 4,161,891
12 Advertising and promotion ....        
13 Office expenses ....... 11,024,831 2,948,960 712,242 7,363,629
14 Information technology ......        
15 Royalties ..        
16 Occupancy ........... 4,980,385 2,232,680 591,366 2,156,339
17 Travel ............ 2,931,884 1,870,297 192,404 869,183
18 Payments of travel or entertainment expenses for any federal, state, or local public officials .        
19 Conferences, conventions, and meetings .... 1,583,478 1,010,127 103,915 469,436
20 Interest ........... 315,915   315,915  
21 Payments to affiliates .......        
22 Depreciation, depletion, and amortization .. 669,763 241,087 70,684 357,992
23 Insurance ... 742,373 166,041 170,086 406,246
24 Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a EVENT EXPENSES 5,326,236 20,610 1,027 5,304,599
b MISCELLANEOUS EXPENSES 1,405,056 205,350 148,503 1,051,203
c
d
e All other expenses        
25 Total functional expenses. Add lines 1 through 24e 112,749,799 57,595,324 7,290,569 47,863,906
26 Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here MediumBullet if following SOP 98-2 (ASC 958-720). 4,641,396 666,298 1,127,344 2,847,754
Form 990 (2019)
Form 990 (2019)
Page 11
Part X
Balance Sheet
Check if Schedule O contains a response or note to any line in this Part IX..............
(A)
Beginning of year 		(B)
End of year
Assets 1 Cash–non-interest-bearing ........ 3,383,819 1 5,027,072
2 Savings and temporary cash investments ......... 9,445,671 2 4,021,308
3 Pledges and grants receivable, net ...... 5,660,208 3 4,999,917
4 Accounts receivable, net .............   4  
5 Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
  5  
6 Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
  6  
7 Notes and loans receivable, net ...........   7 1,000,000
8 Inventories for sale or use ............   8  
9 Prepaid expenses and deferred charges ...... 4,689,439 9 5,064,978
10a Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D 10a 9,640,680
b Less: accumulated depreciation 10b 6,974,082 644,947 10c 2,666,598
11 Investments—publicly traded securities . 59,455,546 11 58,344,302
12 Investments—other securities. See Part IV, line 11 .....   12  
13 Investments—program-related. See Part IV, line 11 ..   13  
14 Intangible assets ...............   14  
15 Other assets. See Part IV, line 11 ........... 384,911 15 384,911
16 Total assets. Add lines 1 through 15 (must equal line 33)... 83,664,541 16 81,509,086
Liabilities 17 Accounts payable and accrued expenses ..... 4,068,625 17 7,212,362
18 Grants payable ... 10,468,957 18 11,383,214
19 Deferred revenue ......... 1,689,054 19 1,721,885
20 Tax-exempt bond liabilities .........   20  
21 Escrow or custodial account liability. Complete Part IV of Schedule D   21  
22 Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
  22  
23 Secured mortgages and notes payable to unrelated third parties .. 7,500,000 23 7,500,000
24 Unsecured notes and loans payable to unrelated third parties ..   24  
25 Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D 49,991,402 25 54,405,276
26 Total liabilities. Add lines 17 through 25.. 73,718,038 26 82,222,737
Net Assets or Fund Balance Organizations that follow FASB ASC 958, check here MediumBullet and complete lines 27, 28, 32, and 33.
27 Net assets without donor restrictions .......... 5,364,018 27 -5,966,906
28 Net assets with donor restrictions ........... 4,582,485 28 5,253,255
Organizations that do not follow FASB ASC 958, check here MediumBullet and complete lines 29 through 33.
29 Capital stock or trust principal, or current funds .....   29  
30 Paid-in or capital surplus, or land, building or equipment fund ...   30  
31 Retained earnings, endowment, accumulated income, or other funds   31  
32 Total net assets or fund balances ........... 9,946,503 32 -713,651
33 Total liabilities and net assets/fund balances ........ 83,664,541 33 81,509,086
Form 990 (2019)
Form 990 (2019)
Page 12
Part XI
Reconcilliation of Net Assets
Check if Schedule O contains a response or note to any line in this Part XI..............
1
Total revenue (must equal Part VIII, column (A), line 12) ............
1
100,972,775
2
Total expenses (must equal Part IX, column (A), line 25) ............
2
112,749,799
3
Revenue less expenses. Subtract line 2 from line 1 ..............
3
-11,777,024
4
Net assets or fund balances at beginning of year (must equal Part X, line 32, column (A)) ..
4
9,946,503
5
Net unrealized gains (losses) on investments ...............
5
9,038,089
6
Donated services and use of facilities .................
6
 
7
Investment expenses .....................
7
 
8
Prior period adjustments .....................
8
 
9
Other changes in net assets or fund balances (explain in Schedule O) ........
9
-7,921,219
10
Net assets or fund balances at end of year. Combine lines 3 through 9 (must equal Part X, line 32, column (B))
10
-713,651
Part XII
Financial Statements and Reporting
Check if Schedule O contains a response or note to any line in this Part XII.............
Yes
No
1
Accounting method used to prepare the Form 990:  
If the organization changed its method of accounting from a prior year or checked "Other," explain in
Schedule O.
2a
Were the organization’s financial statements compiled or reviewed by an independent accountant?
2a
 
No
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were compiled or reviewed on a separate basis, consolidated basis, or both:
b
Were the organization’s financial statements audited by an independent accountant?
2b
Yes
 
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were audited on a separate basis, consolidated basis, or both:
c
If "Yes," to line 2a or 2b, does the organization have a committee that assumes responsibility for oversight of the audit, review, or compilation of its financial statements and selection of an independent accountant?
2c
Yes
 
If the organization changed either its oversight process or selection process during the tax year, explain in Schedule O.
3a
As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Single Audit Act and OMB Circular A-133?
3a
 
No
b
If "Yes," did the organization undergo the required audit or audits? If the organization did not undergo the required audit or audits, explain why in Schedule O and describe any steps taken to undergo such audits.
3b
 
 
Form 990 (2019)
Form 990 (2019)
Additional Data


Software ID:  
Software Version:  
Form 990, Special Condition Description:
Special Condition Description
SCHEDULE A
(Form 990 or 990EZ)

Department of the Treasury
Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
right arrow Attach to Form 990 or Form 990-EZ.
right arrow Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public
Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATIONINC
 
Employer identification number

13-1665552
Part I
Reason for Public Charity Status (All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)
1
2
3
4
5
6
7
8
9
10
11
12
a
b
c
d
e
f
Enter the number of supported organizations ...............................  
g
Provide the following information about the supported organization(s).
(i) Name of supported organization (ii) EIN (iii) Type of organization (described on lines 1- 10 above (see instructions)) (iv) Is the organization listed in your governing document? (v) Amount of monetary support (see instructions) (vi) Amount of other support (see instructions)
Yes No
Total
 
   
For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.
Cat. No. 11285F
Schedule A (Form 990 or 990-EZ) 2019

Schedule A (Form 990 or 990-EZ) 2019
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2015 (b) 2016 (c) 2017 (d) 2018 (e) 2019 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. 121,934,463 117,071,918 113,962,253 103,881,886 99,904,218 556,754,738
2 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....            
3 The value of services or facilities furnished by a governmental unit to the organization without charge..            
4 Total. Add lines 1 through 3 121,934,463 117,071,918 113,962,253 103,881,886 99,904,218 556,754,738
5 The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f)..  
6 Public support. Subtract line 5 from line 4. 556,754,738
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2015 (b) 2016 (c) 2017 (d) 2018 (e) 2019 (f) Total
7 Amounts from line 4.. 121,934,463 117,071,918 113,962,253 103,881,886 99,904,218 556,754,738
8 Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... 1,700,561 1,736,766 1,920,477 1,548,677 1,552,285 8,458,766
9 Net income from unrelated business activities, whether or not the business is regularly carried on.. 258,243 369,757 298,749 373,297 286,145 1,586,191
10 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. 9,750,743 10,013,249 8,664,556 7,167,108 2,986,946 38,582,602
11 Total support. Add lines 7 through 10 605,382,297
12
12
 
13
First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here........................................right arrow
Section C. Computation of Public Support Percentage
14
14
91.970 %
15
15
90.710 %
16a
b
17a
b
18
Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow
Schedule A (Form 990 or 990-EZ) 2019

Schedule A (Form 990 or 990-EZ) 2019
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2015 (b) 2016 (c) 2017 (d) 2018 (e) 2019 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .            
2 Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose            
3 Gross receipts from activities that are not an unrelated trade or business under section 513 .....            
4 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...            
5 The value of services or facilities furnished by a governmental unit to the organization without charge            
6 Total. Add lines 1 through 5            
7a Amounts included on lines 1, 2, and 3 received from disqualified persons            
b Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.            
c Add lines 7a and 7b..            
8 Public support. (Subtract line 7c from line 6.)  
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2015 (b) 2016 (c) 2017 (d) 2018 (e) 2019 (f) Total
9 Amounts from line 6...            
10a Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..            
b Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.            
c Add lines 10a and 10b.            
11 Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.            
12 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..            
13 Total support. (Add lines 9, 10c, 11, and 12.)..            
14
Section C. Computation of Public Support Percentage
15
15
 
16
16
 
Section D. Computation of Investment Income Percentage
17
17
 
18
18
 
19a
b
20
Schedule A (Form 990 or 990-EZ) 2019

Schedule A (Form 990 or 990-EZ) 2019
Page 4
Part IV
Supporting Organizations
(Complete only if you checked a box on line 12 of Part I. If you checked 12a of Part I, complete Sections A and B. If you checked 12b of Part I, complete Sections A and C. If you checked 12c of Part I, complete Sections A, D, and E. If you checked 12d of Part I, complete Sections A and D, and complete Part V.)
Section A. All Supporting Organizations
Yes
No
1
Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.
1
 
 
2
Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).
2
 
 
3a
Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer (b) and (c) below.
3a
 
 
b
Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.
3b
 
 
c
Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.
3c
 
 
4a
Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked 12a or 12b in Part I, answer (b) and (c) below.
4a
 
 
b
Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.
4b
 
 
c
Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.
4c
 
 
5a
Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer (b) and (c) below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).
5a
 
 
b
Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?
5b
 
 
c
Substitutions only. Was the substitution the result of an event beyond the organization's control?
5c
 
 
6
Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.
6
 
 
7
Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ) .
7
 
 
8
Did the organization make a loan to a disqualified person (as defined in section 4958) not described in line 7? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ).
8
 
 
9a
Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.
9a
 
 
b
Did one or more disqualified persons (as defined in line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.
9b
 
 
c
Did a disqualified person (as defined in line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.
9c
 
 
10a
Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.
10a
 
 
b
Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).
10b
 
 
Schedule A (Form 990 or 990-EZ) 2019

Schedule A (Form 990 or 990-EZ) 2019
Page 5
Part IV
Supporting Organizations (continued)
Yes
No
11
Has the organization accepted a gift or contribution from any of the following persons?
a
A person who directly or indirectly controls, either alone or together with persons described in (b) and (c) below, the governing body of a supported organization?
11a
 
 
b
A family member of a person described in (a) above?
11b
 
 
c
A 35% controlled entity of a person described in (a) or (b) above? If “Yes” to a, b, or c, provide detail in Part VI.
11c
 
 
Section B. Type I Supporting Organizations
Yes
No
1
Did the directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.
1
 
 
2
Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.
2
 
 
Section C. Type II Supporting Organizations
Yes
No
1
Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).
1
 
 
Section D. All Type III Supporting Organizations
Yes
No
1
Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?
1
 
 
2
Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).
2
 
 
3
By reason of the relationship described in (2), did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.
3
 
 
Section E. Type III Functionally-Integrated Supporting Organizations
1
Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):
a
b
c
2
Activities Test. Answer (a) and (b) below.
Yes
No
a
Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.
2a
 
 
b
Did the activities described in (a) constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.
2b
 
 
3
Parent of Supported Organizations. Answer (a) and (b) below.
a
Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations? Provide details in Part VI.
3a
 
 
b
Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.
3b
 
 
Schedule A (Form 990 or 990-EZ) 2019

Schedule A (Form 990 or 990-EZ) 2019
Page 6
Part V
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations
1
Section A - Adjusted Net Income (A) Prior Year (B) Current Year
(optional)
1 Net short-term capital gain 1    
2 Recoveries of prior-year distributions 2    
3 Other gross income (see instructions) 3    
4 Add lines 1 through 3 4    
5 Depreciation and depletion 5    
6 Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) 6    
7 Other expenses (see instructions) 7    
8 Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) 8    
Section B - Minimum Asset Amount (A) Prior Year (B) Current Year
(optional)
1 Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): 1
a Average monthly value of securities 1a    
b Average monthly cash balances 1b    
c Fair market value of other non-exempt-use assets 1c    
d Total (add lines 1a, 1b, and 1c) 1d    
e Discount claimed for blockage or other factors
(explain in detail in Part VI):  
2 Acquisition indebtedness applicable to non-exempt use assets 2    
3 Subtract line 2 from line 1d 3    
4 Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions). 4    
5 Net value of non-exempt-use assets (subtract line 4 from line 3) 5    
6 Multiply line 5 by .035 6    
7 Recoveries of prior-year distributions 7    
8 Minimum Asset Amount (add line 7 to line 6) 8    
Section C - Distributable Amount Current Year
1 Adjusted net income for prior year (from Section A, line 8, Column A) 1  
2 Enter 85% of line 1 2  
3 Minimum asset amount for prior year (from Section B, line 8, Column A) 3  
4 Enter greater of line 2 or line 3 4  
5 Income tax imposed in prior year 5  
6 Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) 6  
7
Schedule A (Form 990 or 990-EZ) 2019

Schedule A (Form 990 or 990-EZ) 2019
Page 7
Part V
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)
Section D - Distributions Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes  
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in
excess of income from activity		  
3 Administrative expenses paid to accomplish exempt purposes of supported organizations  
4 Amounts paid to acquire exempt-use assets  
5 Qualified set-aside amounts (prior IRS approval required)  
6 Other distributions (describe in Part VI). See instructions  
7Total annual distributions. Add lines 1 through 6.  
8 Distributions to attentive supported organizations to which the organization is responsive (provide
details in Part VI). See instructions		  
9 Distributable amount for 2019 from Section C, line 6  
10 Line 8 amount divided by Line 9 amount  
Section E - Distribution Allocations (see instructions) (i)
Excess Distributions 		(ii)
Underdistributions
Pre-2019 		(iii)
Distributable
Amount for 2019
1 Distributable amount for 2019 from Section C, line 6  
2 Underdistributions, if any, for years prior to 2019 (reasonable cause required-- explain in Part VI).
See instructions.		  
3 Excess distributions carryover, if any, to 2019:
a From 2014.......  
b From 2015.......  
c From 2016.......  
d From 2017.......  
e From 2018.......  
fTotal of lines 3a through e  
g Applied to underdistributions of prior years  
h Applied to 2019 distributable amount  
i Carryover from 2014 not applied (see
instructions) 		 
j Remainder. Subtract lines 3g, 3h, and 3i from 3f.  
4Distributions for 2019 from Section D, line 7:
$  
a Applied to underdistributions of prior years  
b Applied to 2019 distributable amount  
c Remainder. Subtract lines 4a and 4b from 4.  
5 Remaining underdistributions for years prior to
2019, if any. Subtract lines 3g and 4a from line 2.
If the amount is greater than zero, explain in Part VI.
See instructions.		  
6 Remaining underdistributions for 2019. Subtract
lines 3h and 4b from line 1. If the amount is greater
than zero, explain in Part VI. See instructions.		  
7 Excess distributions carryover to 2020. Add lines
3j and 4c.		  
8 Breakdown of line 7:
a Excess from 2015.....  
b Excess from 2016.....  
c Excess from 2017.....  
d Excess from 2018.....  
e Excess from 2019.....  
Schedule A (Form 990 or 990-EZ) (2019)

Schedule A (Form 990 or 990-EZ) 2019
Page 8
Part VI
Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
 
Return Reference Explanation
SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER REVENUE - 2015 AMOUNT: $ 432,222. 2016 AMOUNT: $ 312,578. 2017 AMOUNT: $ 347,946. SPECIAL EVENTS - 2015 AMOUNT: $ 8,673,714. 2016 AMOUNT: $ 8,970,739. 2017 AMOUNT: $ 7,942,063. 2018 AMOUNT: $ 6,990,769. 2019 AMOUNT: $ 2,928,946. GAMING EVENTS - 2015 AMOUNT: $ 644,807. 2016 AMOUNT: $ 729,932. 2017 AMOUNT: $ 374,547. 2018 AMOUNT: $ 176,339. 2019 AMOUNT: $ 58,000.
Schedule A (Form 990 or 990-EZ) 2019


Additional Data


Software ID:  
Software Version:  
SCHEDULE C
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service
Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527

SchCMd Bullet Complete if the organization is described below. SchCMd Bullet Attach to Form 990 or Form 990-EZ.
SchCMd BulletGo to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public
Inspection
If the organization answered "Yes" on Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" on Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" on Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet Section 501(c)(4), (5), or (6) organizations: Complete Part III.
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATIONINC
 
Employer identification number

13-1665552
Part I-A
Complete if the organization is exempt under section 501(c) or is a section 527 organization.

1
Provide a description of the organization’s direct and indirect political campaign activities in Part IV (see instructions for definition of “political campaign activities")

2
Political campaign activity expenditures (see instructions) ....................................................................SchCMd Bullet
$  
3
Volunteer hours for political campaign activities (see instructions) ..................................................................
 

Part I-B
Complete if the organization is exempt under section 501(c)(3).
1
Enter the amount of any excise tax incurred by the organization under section 4955 ................................SchCMd Bullet
$  
2
Enter the amount of any excise tax incurred by organization managers under section 4955 .......................SchCMd Bullet
$  
3
If the organization incurred a section 4955 tax, did it file Form 4720 for this year? .........................................
4a
Was a correction made? ......................................................................................................................
b
If "Yes," describe in Part IV.
Part I-C
Complete if the organization is exempt under section 501(c), except section 501(c)(3).
1
Enter the amount directly expended by the filing organization for section 527 exempt function activities ..... SchCMd Bullet
$  
2
Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ............................................................................................................................SchCMd Bullet

$  
3
Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b...........SchCMd Bullet

$  
4
Did the filing organization file Form 1120-POL for this year? ...................................................................
5
Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.
(a) Name (b) Address (c) EIN (d) Amount paid from filing organization's funds. If none, enter -0-. (e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.
1
2
3
4
5
6
For Paperwork Reduction Act Notice, see the instructions for Form 990 or 990-EZ.
Cat. No. 50084S
Schedule C (Form 990 or 990-EZ) 2019

Schedule C (Form 990 or 990-EZ) 2019
Page 2
Part II-A
Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).
A Check SchCMd Bulletexpenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet
Limits on Lobbying Expenditures
(The term "expenditures" means amounts paid or incurred.) 		(a) Filing
organization's
totals 		(b) Affiliated group totals
1a Total lobbying expenditures to influence public opinion (grass roots lobbying) ......................    
b Total lobbying expenditures to influence a legislative body (direct lobbying) ........................ 411,778  
c Total lobbying expenditures (add lines 1a and 1b) ............................................................ 411,778  
d Other exempt purpose expenditures ............................................................................... 57,183,546  
e Total exempt purpose expenditures (add lines 1c and 1d) .................................................. 57,595,324  
f Lobbying nontaxable amount. Enter the amount from the following table in both
columns.		 1,000,000  
If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
Not over $500,00020% of the amount on line 1e.
Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
Over $17,000,000$1,000,000.
g Grassroots nontaxable amount (enter 25% of line 1f) ................................................. 250,000  
h Subtract line 1g from line 1a. If zero or less, enter -0-. ................................................ 0  
i Subtract line 1f from line 1c. If zero or less, enter -0-. ................................................ 0  
j If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting
section 4911 tax for this year? ...................................................................................................................

4-Year Averaging Period Under Section 501(h)
(Some organizations that made a section 501(h) election do not have to complete all of the five
columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
Calendar year (or fiscal year
beginning in) 		(a) 2016 (b) 2017 (c) 2018 (d) 2019 (e) Total
2a Lobbying nontaxable amount 1,000,000 1,000,000 1,000,000 1,000,000 4,000,000
b Lobbying ceiling amount
(150% of line 2a, column(e)) 		6,000,000
c Total lobbying expenditures 463,056 510,119 546,855 411,778 1,931,808
d Grassroots nontaxable amount 250,000 250,000 250,000 250,000 1,000,000
e Grassroots ceiling amount
(150% of line 2d, column (e))		 1,500,000
f Grassroots lobbying expenditures 1,438       1,438
Schedule C (Form 990 or 990-EZ) 2019


Schedule C (Form 990 or 990-EZ) 2019
Page 3
Part II-B
Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).
For each "Yes" response on lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.
(a)
Yes|No
(b)
Amount
1
During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:
a
Volunteers? ...........................................................................................................
 
 
b
Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ........
 
 
c
Media advertisements? ...................................................................................................
 
 
 
d
Mailings to members, legislators, or the public? .............................................................................
 
 
 
e
Publications, or published or broadcast statements? ...........................................................
 
 
 
f
Grants to other organizations for lobbying purposes? ..........................................................
 
 
 
g
Direct contact with legislators, their staffs, government officials, or a legislative body? .......................
 
 
 
h
Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ..................
 
 
 
i
Other activities? ...................................................................................................................
 
 
 
j
Total. Add lines 1c through 1i ....................................................................................................
 
2a
Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....
 
 
b
If "Yes," enter the amount of any tax incurred under section 4912 ...........................................
 
c
If "Yes," enter the amount of any tax incurred by organization managers under section 4912 ...................
 
d
If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? ........................
 
 
Part III-A
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).
Yes
No
1
Were substantially all (90% or more) dues received nondeductible by members? ...............................................
1
 
 
2
Did the organization make only in-house lobbying expenditures of $2,000 or less? ............................................
2
 
 
3
Did the organization agree to carry over lobbying and political expenditures from the prior year? .................................
3
 
 
Part III-B
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."
1
Dues, assessments and similar amounts from members ......................................................................
1
 
2
Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political expenses for which the section 527(f) tax was paid).
a
Current year .............................................................................................................................
2a
 
b
Carryover from last year ............................................................................................................
2b
 
c
Total ...........................................................................................................................................
2c
 
3
Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .
3
 
4
If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ......................................................................................................................
4
 
5
Taxable amount of lobbying and political expenditures (see instructions) .........................................
5
 
Part IV
Supplemental Information
Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.
Return Reference Explanation
Schedule C (Form 990 or 990EZ) 2019


Additional Data


Software ID:  
Software Version:  

SCHEDULE D
(Form 990)
Department of the Treasury
Internal Revenue Service
Supplemental Financial Statements
SchDMd Bullet Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
SchDMd Bullet Attach to Form 990.
SchDMd Bullet Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATIONINC
 
Employer identification number

13-1665552
Part I
Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.
(a) Donor advised funds (b) Funds and other accounts
1 Total number at end of year .........    
2 Aggregate value of contributions to (during year)    
3 Aggregate value of grants from (during year)    
4 Aggregate value at end of year ........    
5
Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............
6
Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................
Part II
Conservation Easements.
Complete if the organization answered "Yes" on Form 990, Part IV, line 7.
1
Purpose(s) of conservation easements held by the organization (check all that apply).
2
Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.
Held at the End of the Year
a Total number of conservation easements ...................... 2a  
b Total acreage restricted by conservation easements .................... 2b  
c Number of conservation easements on a certified historic structure included in (a) ..... 2c  
d Number of conservation easements included in (c) acquired after 7/25/06, and not on a historic structure listed in the National Register ... 2d  
3
Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year SchDMd Bullet  
4
Number of states where property subject to conservation easement is located SchDMd Bullet  
5
Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............
6
Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet  
7
Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet $  
8
Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................
9
In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.
1a
If the organization elected, as permitted under FASB ASC 958, not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.
b
If the organization elected, as permitted under FASB ASC 958, to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:
(i)
Revenue included on Form 990, Part VIII, line 1 .........................SchDMd Bullet $  
(ii)
Assets included in Form 990, Part X ...............................SchDMd Bullet $  
2
If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under FASB ASC 958 relating to these items:
a
Revenue included on Form 990, Part VIII, line 1 ..........................SchDMd Bullet $  
b
Assets included in Form 990, Part X ...............................SchDMd Bullet $  
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 52283D
Schedule D (Form 990) 2019

Schedule D (Form 990) 2019
Page 2
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)
3
Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):
a
d
b
e
 
c
4
Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.
5
During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...
Part IV
Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.
1a
Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................
b If "Yes," explain the arrangement in Part XIII and complete the following table: Amount
c Beginning balance ............................. 1c  
d Additions during the year ............................ 1d  
e Distributions during the year .......................... 1e  
f Ending balance ................................ 1f  
2a
Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...
b
If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....
Part V
Endowment Funds.
Complete if the organization answered "Yes" on Form 990, Part IV, line 10.
(a) Current year (b) Prior year (c) Two years back (d) Three years back (e) Four years back
1a Beginning of year balance .... 639,479 790,985 477,155 357,197 362,888
b Contributions ...     259,816 90,075  
c Net investment earnings, gains, and losses 150,206 -43,248 54,014 29,883 -5,691
d Grants or scholarships ...          
e Other expenditures for facilities
and programs ... 		         
f Administrative expenses .... 127,675 108,258      
g End of year balance ...... 662,010 639,479 790,985 477,155 357,197
2
Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:
a
Board designated or quasi-endowment SchDMd Bullet  
b
Permanent endowment SchDMd Bullet100.000 %
c
Term endowment SchDMd Bullet  
The percentages on lines 2a, 2b, and 2c should equal 100%.
3a
Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes
No
(i) Unrelated organizations .................
3a(i)
 
No
(ii) Related organizations .................
3a(ii)
 
No
b
If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........
3b
 
 
4
Describe in Part XIII the intended uses of the organization's endowment funds.
Part VI
Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.
Description of property (a) Cost or other basis
(investment) 		(b) Cost or other basis (other) (c) Accumulated depreciation (d) Book value
1a Land .....      
b Buildings ....        
c Leasehold improvements   219,994 59,655 160,339
d Equipment ....   9,420,686 6,914,427 2,506,259
e Other .....        
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).)..SchDMdBullet 2,666,598
Schedule D (Form 990) 2019

Schedule D (Form 990) 2019
Page 3
Part VII
Investments—Other Securities.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.
(a) Description of security or category
(including name of security)		 (b) Book value (c) Method of valuation:
Cost or end-of-year market value
(1) Financial derivatives.........    
(2) Closely-held equity interests........    
(3)Other
(B)
(C)
(D)
(E)
(F)
(G)
(H)
(I)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)Small Bullet  
Part VIII
Investments—Program Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.
(a) Description of investment (b) Book value (c) Method of valuation:
Cost or end-of-year market value
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)Small Bullet  
Part IX
Other Assets.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.
(a) Description (b) Book value
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........Small Bullet  
Part X
Other Liabilities.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.
1.(a) Description of liability (b) Book value
(1) Federal income taxes  
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)Small Bullet 54,405,276
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII
Schedule D (Form 990) 2019

Schedule D (Form 990) 2019
Page 4
Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1 Total revenue, gains, and other support per audited financial statements ....... 1 101,548,855
2 Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a Net unrealized gains (losses) on investments .... 2a 9,038,089
b Donated services and use of facilities ......... 2b  
c Recoveries of prior year grants ........... 2c  
d Other (Describe in Part XIII.) ............ 2d -8,322,204
e Add lines 2a through 2d ..................... 2e 715,885
3 Subtract line 2e from line 1.................. 3 100,832,970
4 Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b . 4a 139,805
b Other (Describe in Part XIII.) ........... 4b  
c Add lines 4a and 4b.................... 4c 139,805
5 Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ...... 5 100,972,775
Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1 Total expenses and losses per audited financial statements ........... 1 112,209,009
2 Amounts included on line 1 but not on Form 990, Part IX, line 25:
a Donated services and use of facilities ......... 2a  
b Prior year adjustments ............ 2b  
c Other losses ................ 2c  
d Other (Describe in Part XIII.) ............ 2d  
e Add lines 2a through 2d.................... 2e 0
3 Subtract line 2e from line 1................... 3 112,209,009
4 Amounts included on Form 990, Part IX, line 25, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b .. 4a 139,805
b Other (Describe in Part XIII.) ............ 4b 400,985
c Add lines 4a and 4b..................... 4c 540,790
5 Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ...... 5 112,749,799
Part XIII
Supplemental Information
Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.
Return Reference Explanation
PART III, LINE 4: THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY.
PART V, LINE 4: THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED FOR THE ADVANCEMENT OF RESEARCH, PROGRAMS AND SERVICES FOR THOSE WITH MUSCULAR DYSTROPHY. THE GLEN E. & DAVID K. GUTTORMSEN ENDOWED FUND FOR DUCHENNE MUSCULAR DYSTROPHY RESEARCH WAS ESTABLISHED IN AN AGREEMENT, EFFECTIVE MAY 25, 2010, WHEREBY THE ASSOCIATION IS TO MAINTAIN AND ADMINISTER THE FUND IN ACCORDANCE WITH THE DONOR'S DESIRES.
PART X, LINE 2: U.S. GAAP PROVIDES ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2019, 2018, 2017, 2016 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES.
PART XI, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES -400,985. CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS -7,921,219.
PART XII, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 400,985.
Schedule D (Form 990) 2019


Additional Data


Software ID:  
Software Version:  




SCHEDULE F(Form 990)
Department of the Treasury
Internal Revenue Service
Statement of Activities Outside the United States
Right pointing arrow large image Complete if the organization answered "Yes" to Form 990, Part IV, line 14b, 15, or 16.Right pointing arrow large image Attach to Form 990.Right pointing arrow large image Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATIONINC
 
Employer identification number

13-1665552
Part I
General Information on Activities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 14b.
1
For grantmakers. Does the organization maintain records to substantiate the amount of its grants and
other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used
to award the grants or assistance? . . . . . . . . . . . . . . . . . . . . . . . . .
2
For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.
3
Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)
(a) Region (b) Number of offices in the region (c) Number of employees, agents, and independent contractors in the region (d) Activities conducted in region (by type) (such as, fundraising, program services, investments, grants to recipients located in the region) (e) If activity listed in (d) is a program service, describe specific type of
service(s) in the region		 (f) Total expenditures
for and investments
in the region
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, 0 0 PROGRAM SERVICES RESEARCH GRANT 262,599
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 0 0 PROGRAM SERVICES RESEARCH GRANT 1,892,851
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES 0 0 PROGRAM SERVICES RESEARCH GRANT 352,723
SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR, 0 0 PROGRAM SERVICES RESEARCH GRANT 80,000
           
           
           
           
           
           
           
           
           
           
           
           
           
3a Sub-total .... 0 0 2,588,173
b Total from continuation sheets to Part I ... 0 0 0
c Totals (add lines 3a and 3b) 0 0 2,588,173
For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) 2019
Schedule F (Form 990) 2019
Page 2
Part II
Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.
1 (a) Name of organization (b) IRS code section
and EIN (if applicable)		 (c) Region (d) Purpose of
grant 		(e) Amount of
cash grant 		(f) Manner of
cash
disbursement 		(g) Amount
of noncash
assistance 		(h) Description
of noncash
assistance 		(i) Method of
valuation
(book, FMV,
appraisal, other)
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, RESEARCH 262,599 CHECK      
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 1,892,851 CHECK      
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES RESEARCH 352,723 CHECK      
SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR, RESEARCH 80,000 CHECK      
             
             
             
             
             
             
             
             
             
             
             
             
2 Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter .......MediumBullet
 
3 Enter total number of other organizations or entities .......................MediumBullet
27
Schedule F (Form 990) 2019
Schedule F (Form 990) 2019Page 3
Part III
Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 16.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Region (c) Number of recipients (d) Amount of
cash grant 		(e) Manner of cash
disbursement 		(f) Amount of
noncash
assistance 		(g) Description
of noncash
assistance 		(h) Method of
valuation
(book, FMV,
appraisal, other)
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
Schedule F (Form 990) 2019
Schedule F (Form 990) 2019
Page 4
Part IV
Foreign Forms
1 Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
2 Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to separately file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A; don't file with Form 990). . . . . . . . . . . . . . . . . . . . . . . .
3 Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471). . . . . . . . . . . . . . . . . . . . . . . . . . . .
4 Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621) .
5 Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships (see Instructions for Form 8865). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
6 Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to separately file Form 5713, International Boycott Report (see Instructions for Form 5713; don't file with Form 990).. . . . . . . . . . . . . . . . . . . . . . . . . . . .
Schedule F (Form 990) 2019
Schedule F (Form 990) 2019
Page 5
Part V
Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information. See instructions.
ReturnReference Explanation
PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.
PART III ACCOUNTING METHOD:  
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
Schedule F (Form 990) 2019
Additional Data


Software ID:  
Software Version:  



SCHEDULE G (Form 990 or 990-EZ)
Department of the Treasury
Internal Revenue Service
Supplemental Information Regarding
Fundraising or Gaming Activities
Complete if the organization answered "Yes" on Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrowAttach to Form 990 or Form 990-EZ.
right arrowGo to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATIONINC
 
Employer identification number

13-1665552
Part I
Fundraising Activities.Complete if the organization answered "Yes" on Form 990, Part IV, line 17.
Form 990-EZ filers are not required to complete this part.
1
Indicate whether the organization raised funds through any of the following activities. Check all that apply.
a e
b f
c g
d
2a
Did the organization have a written or oral agreement with any individual (including officers, directors, trustees
or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?
b
If "Yes," list the 10 highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.


(i) Name and address of individual
or entity (fundraiser) 		(ii) Activity (iii) Did fundraiser have custody or control of contributions? (iv) Gross receipts
from activity 		(v) Amount paid to
(or retained by)
fundraiser listed in
col. (i) 		(vi) Amount paid to
(or retained by)
organization
Yes No
             
             
             
             
             
             
             
             
             
             
Total . . . . . . . . . . . . . . . . . . . . right arrow      
3
List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 50083H
Schedule G (Form 990 or 990-EZ) 2019
Schedule G (Form 990 or 990-EZ) 2019
Page 2
Part II
Fundraising Events. Complete if the organization answered "Yes" on Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.









VerticalRevenue
(a) Event #1

SPECIAL EVENTS
(event type) 		(b) Event #2

SIGNATURE
(event type) 		(c) Other events

144
(total number) 		(d) Total events
(add col. (a) through col. (c))

1
Gross receipts . . . . .
33,559,629
22,181,771
 
55,741,400

2
Less: Contributions . . . .
32,109,906
20,702,548
 
52,812,454
3 Gross income (line 1 minus
line 2) . . . . . .
1,449,723
1,479,223
 
2,928,946



VerticalDirectExpenses
4 Cash prizes . . . . .        
5 Noncash prizes . . . . 206,260 403,167   609,427
6 Rent/facility costs . . . . 254,540 1,506,888   1,761,428
7 Food and beverages . . . 66,551 1,092,497   1,159,048
8 Entertainment . . . .        
9 Other direct expenses . . . 676,191 480,858   1,157,049
10 Direct expense summary. Add lines 4 through 9 in column (d) . . . . . . . . . . right arrow 4,686,952
11 Net income summary. Subtract line 10 from line 3, column (d). . . . . . . . . . right arrow -1,758,006
Part III
Gaming. Complete if the organization answered "Yes" on Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.
VerticalRevenue
(a) Bingo (b) Pull tabs/Instant
bingo/progressive bingo 		(c) Other gaming (d) Total gaming (add col.(a) through col.(c))

1
Gross revenue . . . . .
 
 
65,499
65,499
VerticalDirectExpenses

2
Cash prizes . . . . .
 
 
 
 

3
Noncash prizes . . . .
 
 
 
 

4
Rent/facility costs . . . .
 
 
 
 

5
Other direct expenses . . .
 
 
58,000
58,000


6

Volunteer labor . . . .
%
%
%


7
Direct expense summary. Add lines 2 through 5 in column (d) . . . . . . . . . . right arrow
58,000

8
Net gaming income summary. Subtract line 7 from line 1, column (d). . . . . . . . . right arrow
7,499

9
Enter the state(s) in which the organization conducts gaming activities: WI , IL , MI , NC , IN , KS , CT , CA , WA , NY , MN , NE
a
Is the organization licensed to conduct gaming activities in each of these states? . . . . . . . .
b
If "No," explain:
 
10a
Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? . . .
b
If "Yes," explain:
 
Schedule G (Form 990 or 990-EZ) 2019
Schedule G (Form 990 or 990-EZ) 2019
Page 3
11
Does the organization conduct gaming activities with nonmembers? . . . . . . . . . . .
12
Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity
formed to administer charitable gaming? . . . . . . . . . . . . . . . . .
13
Indicate the percentage of gaming activity conducted in:
a
The organization's facility . . . . . . . . . . . . . . . . . .
13a
%
b
An outside facility . . . . . . . . . . . . . . . . . . . .
13b
100.000 %
14
Enter the name and address of the person who prepares the organization's gaming/special events books and records:
Name right arrow
JENNIFER BUZALSKI CONTROLLER
Address right arrow
161 N CLARK STREET STE 3550   CHICAGO, IL60601
15a
Does the organization have a contract with a third party from whom the organization receives gaming
revenue? . . . . . . . . . . . . . . . . . . . . . . . .
b
If "Yes," enter the amount of gaming revenue received by the organization right arrow $   and the
amount of gaming revenue retained by the third party right arrow $   .
c
If "Yes," enter name and address of the third party:
Name right arrow
Address right arrow
16
Gaming manager information:
Name right arrow
NA
Gaming manager compensation right arrow $  
Description of services provided right arrow
 
17
Mandatory distributions:
a
Is the organization required under state law to make charitable distributions from the gaming proceeds to
retain the state gaming license? . . . . . . . . . . . . . . . . . . .
b
Enter the amount of distributions required under state law distributed to other exempt organizations or spent
in the organization's own exempt activities during the tax year right arrow$  
Part IV
Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v); and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information. See instructions.
Return Reference Explanation
Schedule G (Form 990 or 990-EZ) 2019
Additional Data


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Schedule I
(Form 990)
Department of the Treasury
Internal Revenue Service
Grants and Other Assistance to Organizations,
Governments and Individuals in the United States
Complete if the organization answered "Yes," on Form 990, Part IV, line 21 or 22.
lBullet Attach to Form 990.
lBullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2019
Open to Public
Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATIONINC
 
Employer identification number
13-1665552
Part I
General Information on Grants and Assistance
1
Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ........................
2
Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.
Part II
Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" on Form 990, Part IV, line 21, for any recipient
that received more than $5,000. Part II can be duplicated if additional space is needed.
(a) Name and address of organization
or government		 (b) EIN (c) IRC section
(if applicable)		 (d) Amount of cash grant (e) Amount of non-cash
assistance		 (f) Method of valuation
(book, FMV, appraisal,
other)		 (g) Description of
noncash assistance		 (h) Purpose of grant
or assistance
(1) AMERICAN BRAIN FOUNDATION
201 CHICAGO AVE
MINNEAPOLIS,MN55415 		41-1717098 501(C)(3) 43,333       RESEARCH
(2) AMERICAN LUNG ASSOCIATION
55 WEST WACKER DR
CHICAGO,IL60601 		13-1632524 501(C)(3) 10,000       ADVOCACY
(3) ANN AN ROBERT H LURIE CHILDRENS HOSPITAL OF CHICAGO
225 E CHICAGO BOX 4
CHICAGO,IL60611 		36-2170833 501(C)(3) 50,000       MEDICAL DIAGNOSIS
(4) ASKLEPIOS BIOPHARMACEUTICAL INC
20 T W ALEXANDER DR STE 110
RESEARCH TRIANGLE PARK,NC27709 		20-0267834 C-CORP 192,500       RESEARCH
(5) ATRIUM HEALTH FOUNDATION
2018 EAST BLVD
CHARLOTTE,NC28203 		56-6060481 501(C)(3) 61,450       RESEARCH
(6) BAYCARE MEDICAL GROUP
300 PARK PLACE BLVD SUITE 170
CLEARWATER,FL33759 		59-3140335 501(C)(3) 25,000       MEDICAL DIAGNOSIS
(7) BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA MS BCM 310
HOUSTON,TX77030 		74-1613878 501(C)(3) 294,300       MEDICAL DIAGNOSIS AND RESEARCH
(8) BEAUMONT HEALTH SYSTEM
3601 W 13 MILE ROAD
ROYAL OAK,MI48073 		38-1459362 501(C)(3) 25,000       MEDICAL DIAGNOSIS
(9) BILLINGS CLINIC FOUNDATION
PO BOX 31031
BILLINGS,MT59107 		81-0407289 501(C)(3) 25,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(10) BOARD OF REGENTS NSHE OBO UNIVERSITY OF NEVADA RENO
CONTROLLERS OFFICE MAIL STOP 0124
RENO,NV89557 		88-6000024 STATE OF NV 200,000       RESEARCH
(11) BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY
PO BOX 19616
SPRINGFIELD,IL62794 		37-6005961 STATE OF IL 10,000       MEDICAL DIAGNOSIS
(12) BOSTON UNIVERSITY BU MEDICAL CAMPUS
85 EAST NEWTON ST
BOSTON,MA02118 		04-2103547 501(C)(3) 100,000       RESEARCH
(13) BRIGHAM AND WOMENS HOSPITAL RESEARCH
PO BOX 3149
BOSTON,MA02241 		04-2312909 501(C)(3) 30,000       MEDICAL DIAGNOSIS
(14) BROWN UNIVERSITY
350 EDDY STREET BOX 1929
PROVIDENCE,RI02912 		05-0258809 501(A) 207,005       RESEARCH
(15) CALIFORNIA PACIFIC MEDICAL
2324 SACRAMENTO STREET
SAN FRANCISCO,CA94115 		94-2728943 501(C)(3) 50,000       MEDICAL DIAGNOSIS
(16) CARILION CLINIC RESEARCH AN DEVELOPMENT
101 ELM AVENUE SE
ROANOKE,VA24013 		54-0506332 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(17) CARLE FOUNDATION HOSPITAL
611 WEST PARK
URBANA,IL61801 		37-1119538 501(C)(3) 25,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(18) CAROLINAS HEALTHCARE FOUNDATION
208 EAST BOULEVARD
CHARLOTTE,NC28203 		56-6060481 501(C)(3) 283,701       MEDICAL DIAGNOSIS AND RESEARCH
(19) CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BOULEVARD 65-WIL SUITE
1150
LOS ANGELES,CA90048 		95-1644600 501(C)(3) 120,000       MEDICAL DIAGNOSIS AND RESEARCH
(20) CENTRAL TEXAS NEUROLOGY CONSULTANTS
16040 PARK VALLEY DR B 100
ROUND ROCK,TX78681 		74-2710396 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(21) CHILD NEUROLOGY CONSULTANTS OF AUSTIN
6811 AUSTIN CENTER BLVD SUITE 400
AUSTIN,TX78731 		47-2192039   25,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(22) CHILDRENS CLINICS FOR REHABILITATIVE SERVICES
2600 NORTH WYATT DRIVE
TUCSON,AZ85712 		86-0667510 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(23) CHILDRENS HEALTHCARE OF ATLANTA
1577 NORTHEAST EXPRESSWAY
ATLANTA,GA30329 		58-0572465 501(C)(3) 25,000       MEDICAL DIAGNOSIS
(24) CHILDREN'S HOSPITAL BOSTON MA
300 LONGWOOD AVENUE
BOSTON,MA02115 		04-2774441 501(C)(3) 439,795       RESEARCH
(25) CHILDRENS HOSPITAL COLORADO MUSCLE CLINIC
13123 E 16TH AVENUE BOX 285
AURORA,CO80045 		84-0166760 501(C)(3) 81,225       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(26) CHILDRENS HOSPITAL CORPORATION
PO BOX 414413
BOSTON,MA02241 		04-2774441 501(C)(3) 25,000       MEDICAL DIAGNOSIS
(27) CHILDRENS HOSPITAL LOS ANGELES
4650 SUNSET BLVD
LOS ANGELES,CA90027 		95-1690977 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(28) CHILDRENS HOSPITAL MEDICAL CENTER
3333 BURNET AVE
CINCINNATI,OH45229 		31-0833963 501(C)(3) 135,000       MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
(29) CHILDRENS HOSPITAL OF ORANGE COUNTY
1201 W LA VETA AVE
ORANGE,CA92868 		95-2321786 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(30) CHILDRENS HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104 		23-1352166 501(C)(3) 90,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(31) CHILDRENS HOSPITAL OF PITTSBURGH FOUNDATION
4401 PENN AVENUE CENTRAL PLANT
FLOOR 3
PITTSBURGH,PA15224 		25-1865744 501(C)(3) 25,000       MEDICAL DIAGNOSIS
(32) CHILDRENS HOSPITAL OF THE KINGS DAUGHTERS INC
601 CHILDRENS LANE
NORFOLK,VA23507 		54-0506321 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(33) CHILDRENS HOSPITAL NEW ORLEANS
200 HENRY CLAY AVENUE
NEW ORLEANS,LA70118 		72-0467503 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(34) CHILDRENS NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NW
WASHINGTON,DC20010 		52-1640403 501(C)(3) 25,000       MEDICAL DIAGNOSIS
(35) CLINICAL NEUROLOGY PC
4221 S WESTERN SUITE 5010
OKLAHOMA CITY,TX73109 		41-2141136 501(C)(3) 75,000       MEDICAL DIAGNOSIS
(36) COLUMBIA UNIVERSITY MEDICAL CENTER
PO BOX 29789
NEW YORK,NY10087 		13-5598093 501(C)(3) 252,927       RESEARCH
(37) CONNECTICUT CHILDRENS MEDICAL CENTER
282 WASHINGTON STREET
HARTFORD,CT06106 		06-0646755 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(38) COOK CHILDRENS MEDICAL CENTER
801 SEVENTH AVENUE
FT WORTH,FL76104 		75-2051646 501(C)(3) 30,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(39) CORNELL UNIVERSITY
373 PINE TREE ROAD
ITHACA,NY14850 		15-0532082 501(C)(3) 70,000       RESEARCH
(40) DANA-FARBER CANCER INSTITUTE
450 BROOKLINE AVENUE
BOSTON,MA02115 		04-2263040 C-CORP 60,000       RESEARCH
(41) DEAN HEALTH SYSTEMS INC
1808 WEST BELTLINE HWY
MADISON,WI53715 		39-1128616 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(42) DENT NEUROLOGIC INSTITUTE
3980 SHERIDAN DRIVE 5TH FLOOR
AMHERST,NY14226 		16-1582336 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(43) DIGNITY HEALTH ST JOSEPHS HOSPITAL
3033 N 3RD AVENUE
CHANDLER,AZ85224 		86-0096787 501(C)(3) 37,500       MEDICAL DIAGNOSIS
(44) DRISCOLL CHILDRENS HOSPITAL
3533 SOUTH ALAMEDA STREET
CORPUS CHRISTI,TX78411 		74-2577746 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(45) DUKE UNIVERSITY MEDICAL CENTER
324 BLACKWELL ST
DURHAM,NC27701 		56-2070036 501(C)(3) 200,000       MEDICAL DIAGNOSIS AND RESEARCH
(46) EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLOOR
ATLANTA,GA30322 		58-0566256 501(C)(3) 253,356       RESEARCH
(47) ESSENTIA HEALTH DULUTH
400 E 3RD STREET
DULUTH,MN55805 		41-0884623 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(48) GEISINGER CLINIC
100 N ACADEMY AVE
DANVILLE,PA17822 		23-6291113 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(49) GILLETTE CHILDRENS SPECIALTY HEALTHCARE
200 EAST UNIVERSITY AVENUE
ST PAUL,FL55101 		36-3379150 501(C)(3) 50,000       MEDICAL DIAGNOSIS
(50) GOOD SHEPHERD REHABILITATION HOSPITAL
850 SOUTH 5TH STREET
ALLENTOWN,PA18103 		23-1371947 501(C)(3) 50,000       MEDICAL DIAGNOSIS
(51) GORDON RESEARCH CONFERENCES
512 LIBERTY LANE
W KINGSTON,RI02892 		26-0150662 501(C)(3) 12,500       RESEARCH
(52) GREENVILLE HEALTH SYSTEM UPSTATE AFFILIATE ORGANIZATION
701 GROVE ROAD
GREENVILLE,SC29605 		81-1723202 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(53) HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVENUE
NEW BRITAIN,CT06053 		06-0646766 501(C)(3) 50,000       MEDICAL DIAGNOSIS
(54) HOUSTON METHODIST NEUROLOGY INSTITUTE
6560 FANNIN ST SUITE 802
HOUSTON,TX77030 		57-1201170 501(C)(3) 53,775       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(55) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE BOX 1075
NEW YORK,NY10029 		13-6171197 501(C)(3) 100,000       RESEARCH
(56) IDAHO PHYSICAL MEDICINE AND REHABILITATION PA
161 E MALLARD DR SUITE 120
BOISE,ID83706 		82-0435241   15,000       REGISTRY SUPPORT
(57) INLAND NORTHWEST HEALTH SERVICES
PO BOX 2185
SPOKANE,WA99210 		91-1307555 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(58) INSTITUTO REHABILITACION DEL CARIBE

PO BOX 363792
SAN JUAN    
RQ 		  20,000       MEDICAL DIAGNOSIS
(59) IU HEALTH NEUROSCIENCE CENTER
355 W 16TH STREET 4TH FLOOR SUITE
4700
INDIANAPOLIS,IN46202 		35-1955872 501(C)(3) 40,000       MEDICAL DIAGNOSIS
(60) JOAN & SANFORD I WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
1300 YORK AVENUE BOX 89
NEW YORK,NY10065 		13-1623978 501(C)(3) 270,000       RESEARCH
(61) JOHNS HOPKINS UNIVERSITY
733 N BROADWAY SUITE 117
BALTIMORE,MD21205 		52-0595110 501(C)(3) 1,310,148       MEDICAL DIAGNOSIS AND RESEARCH
(62) KUMC RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD
KANSAS CITY,KS66160 		48-1108830 501(C)(3) 75,000       MEDICAL DIAGNOSIS
(63) LACERTA THERAPEUTICS INC
12085 RESEARCH DRIVE SUITE 46
ALACHUA,FL32615 		59-6002052 C-CORP 100,000       RESEARCH
(64) LOMA LINDA UNIVERSITY
24887 TAYLOR STREET SUITE 202
LOMA LINDA,CA92350 		95-1816009 501(C)(3) 35,000       MEDICAL DIAGNOSIS
(65) LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER
433 BOLIVAR ST
NEW ORLEANS,LA70112 		72-6087770 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(66) LSUHSC
1501 KINGS HWY
SHREVEPORT,LA71103 		72-0702002 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(67) LUDWIG INSTITUTE FOR CANCER RESEARCH LTD
9500 GILMAN DRIVE
LA JOLLA,CA92093 		23-7121131 501(C)(3) 300,000       RESEARCH
(68) MAINE MEDICAL CENTER
22 BRAMHALL ST
PORTLAND,OR04102 		01-0238552 501(C)(3) 15,000       MEDICAL DIAGNOSIS
(69) MARSHFIELD CLINIC RESEARCH FOUNDATION
1000 NORTH OAK AVENUE
MARSHFIELD,WI60302 		39-0452970 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(70) MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVENUE STE 300
BOSTON,MA02199 		04-2697983 501(C)(3) 235,000       MEDICAL DIAGNOSIS AND RESEARCH
(71) MASSACHUSETTS INSTITUTE OF TECHNOLOGY
77 MASSACHUSETTS AVENUE
CAMBRIDGE,MA01109 		04-2103594 501(C)(3) 100,000       RESEARCH
(72) MAYO CLINIC
4500 SAN PABLO ROAD
JACKSONVILLE,FL32224 		59-3337028 501(C)(3) 55,000       MEDICAL DIAGNOSIS
(73) MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD
JACKSONVILLE,FL32224 		59-3337028 501(C)(3) 195,000       RESEARCH
(74) MCKINNON MEDICAL GROUP PLLC
351 N BUFFALO DR
LAS VEGAS,NV89145 		45-3720025   25,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(75) MCV ASSOCIATED PHYSICIANS
PO BOX 980599
RICHMOND,VA23298 		54-1581185 501(C)(3) 30,000       MEDICAL DIAGNOSIS
(76) MDA CLINIC AT DARTMOUTH-HITCHCOCK MEDICAL CENTER
ONE MEDICAL CENTER DRIVE
LEBANON,NH03756 		02-0222140 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(77) MEDICAL COLLEGE OF WISCONSIN
9200 WEST WISCONSIN AVENUE
MILWAUKEE,WI53226 		39-0806261 501(C)(3) 45,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(78) MEDICAL UNIVERSITY OF SOUTH CAROLINA
19 HAGOOD AVENUE SUITE 606
CHARLESTON,SC29425 		57-6000722 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(79) MEDSTAR GEORGETOWN UNIVERSITY HOSPITAL
3800 RESERVOIR RD NW 7TH FLOOR PHC
WASHINGTON,DC20007 		52-2228444 501(C)(3) 35,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(80) MERCY HEALTH FOUNDATION SPRINGFIELD
620 S GLENSTONE AVE
SPRINGFIELD,IL65802 		32-0195818 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(81) METHODIST LE BONHEUR COMMUNITY OUTREACH
600 JEFFERSON AVE
MEMPHIS,TN38105 		62-1251288 501(C)(3) 25,000       MEDICAL DIAGNOSIS
(82) MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD ROOM 2
EAST LANSING,MI48824 		38-6005984 501(C)(3) 25,000       MEDICAL DIAGNOSIS
(83) MITOCHONDRIA IN MOTION INC
4440 LINDELL BOULEVARD SUITE 1202
ST LOUIS,MO63108 		83-2455511   146,905       RESEARCH
(84) MONTEFIORE MEDICAL CENTER
3351 STEUBEN AVE 3RD FLOOR
BRONX,NY10467 		13-1740114 501(C)(3) 50,000       MEDICAL DIAGNOSIS
(85) MYOGENE BIO LLC
907 WESTWOOD BOULEVARD 376
LOS ANGELES,CA90024 		83-1507489 C-CORP 99,894       RESEARCH
(86) NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE
PO BOX 5801
BETHESDA,MD20824 		US GOVERNMENT 59,688       RE
(87) NEMOURS FOUNDATION
10140 CENTURION PARKWAY
JACKSONVILLE,FL32256 		59-0634433 501(C)(3) 115,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(88) NEUROLOGY LLPC
1919 S WHEELING AVENUE SUITE 707
TULSA,OK74104 		73-1502318   25,000       MEDICAL DIAGNOSIS
(89) NEW YORK UNIVERSITY SCHOOL OF MEDICINE
PO BOX 415026
BOSTON,MA02241 		13-5562308 STATE OF NY 50,000       MEDICAL DIAGNOSIS
(90) NORTHEAST ALS CONSORTIUM
811 W 7TH STREET FLOOR 12
LOS ANGELES,CA90017 		56-2547779 501(C)(3) 126,062       RESEARCH
(91) NORTHWESTERN MEDICAL GROUP DEPARTMENT OF NEUROLOGY
710 N LAKESHORE DR SUITE 1119
CHICAGO,IL60611 		36-3097297 STATE OF IL 50,000       MEDICAL DIAGNOSIS
(92) NORTHWESTERN UNIVERSITY
750 NORTH LAKE SHORE DRIVE
CHICAGO,IL60611 		36-2167817 501(C)(3) 161,507       RESEARCH
(93) OLIVE VIEW-UCLA EDUCATION AN RESEARCH INSTITUTE
14445 OLIVE VIEW DR
OLIVE VIEW,CA91342 		95-2249539 501(C)(3) 25,000       MEDICAL DIAGNOSIS
(94) OREGON HEALTH AN SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD
PORTLAND,OR97239 		93-1176109 STATE OF OR 25,000       MEDICAL DIAGNOSIS
(95) OSF MULTI-SPECIALTY GROUP DBA ILLINOIS NEUROLOGICAL
800 NE GLEN OAK AVE
PEORIA,IL61603 		38-3852646 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(96) PHOENIX CHILDRENS HOSPITAL
1919 EAST THOMAS RD
PHOENIX,AZ85016 		86-0422559 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(97) PONCE HEALTH SCIENCES UNIVERSITY
PO BOX 7004
PONCE,PR00732 		66-0379122 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(98) PURDUE UNIVERSITY
155 S GRANT STREET
WEST LAFAYETTE,GA47907 		35-6002041 STATE OF IN 59,050       RESEARCH
(99) RADY CHILDRENS HOSPITAL FOUNDATION
3020 CHILDRENS WAY MC 5005
SAN DIEGO,CA92123 		33-0170626 501(C)(3) 35,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(100) REGENTS OF THE UNIVERSITY OF CALIFORNIA AT BERKELEY
2195 HEARST AVE RM 120 MC 1104
BERKELEY,CA94720 		94-6002123 501(C)(3) 243,203       RESEARCH
(101) REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
4860 Y STREET SUITE 3850
SACRAMENTO,CA95817 		94-6036494 501(C)(3) 137,500       MEDICAL DIAGNOSIS AND RESEARCH
(102) REGENTS OF THE UNIVERSITY OF MINNESOTA
PO BOX 1450
MINNEAPOLIS,MN55485 		41-6007513 501(C)(3) 275,000       MEDICAL DIAGNOSIS AND RESEARCH
(103) RESEARCH TRIANGLE INSTITUTE
PO BOX 900002
RALEIGH,NC27265 		56-0686338 501(C)(3) 37,500       ADVOCACY
(104) RHODE ISLAND HOSPITAL
593 EDDY STREET
PROVIDENCE,RI02903 		05-0258954 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(105) RUSH UNIVERSITY MEDICAL CENTER
1653 W CONGRESS PARKWAY
CHICAGO,IL60612 		36-2174823 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(106) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 BERGEN STREET
NEWARK,NJ07103 		46-2354111 STATE OF NJ 165,000       MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
(107) SAINT LOUIS UNIVERSITY
221 NORTH GRAND BOULEVARD
ST LOUIS,MO63103 		43-0654872 501(C)(3) 100,000       RESEARCH
(108) SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE
10901 NORTH TORREY PINES ROAD
LA JOLLA,CA92037 		51-0197108 501(C)(3) 7,500       RESEARCH
(109) SANFORD CHILDRENS SPECIALTY CLINIC
415 NORTH 3RD AVENUE
FARGO,ND58102 		91-1770748 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(110) SANFORD MEDICAL CENTER FARGO
415 NORTH 3RD AVENUE
FARGO,ND58102 		91-1770748 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(111) SARASOTA MEMORIAL HOSPITAL
1700 TAMIAMI TRAIL
SARASOTA,FL34239 		59-6012500 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(112) SEATTLE CHILDRENS HOSPITAL
4300 ROOSEVELT WAY NE
SEATTLE,WA98105 		91-0564748 501(C)(3) 50,000       MEDICAL DIAGNOSIS
(113) SHRINERS HOSPITAL FOR CHILDREN PORTLAND
3101 SW SAM JACKSON PARK R
PORTLAND,OR97239 		36-2193608 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(114) SHRINERS HOSPITALS FOR CHILDREN CHICAGO
3101 SW SAM JACKSON PARK R
PORTLAND,OR97239 		36-2193608 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(115) SHRINERS HOSPITALS FOR CHILDREN TAMPA
3101 SW SAM JACKSON PARK R
PORTLAND,OR97239 		36-2193608 501(C)(3) 25,000       MEDICAL DIAGNOSIS
(116) ST CHARLES HOSPITAL FOUNDATION
200 BELLE TERRE ROAD
PORT JEFFERSON,NY11777 		41-2076312 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(117) ST JOSEPHS HOSPITAL AND MEDICAL CENTER
350 WEST THOMAS RD
PHOENIX,AZ85013 		86-0096787 501(C)(3) 12,500       MEDICAL DIAGNOSIS
(118) ST LUKES HEALTH SYSTEM
PO BOX 1663
BOISE,ID83701 		82-0161600 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(119) ST PETERS HOSPITAL
310 S MANNING BLVD
ALBANY,NY12208 		22-2262982 501(C)(3) 150,000       MEDICAL DIAGNOSIS
(120) ST VINCENT HOSPITAL DBA PREVEA HEALTH
PO BOX 19070
GREEN BAY,WI54307 		39-0817529 501(C)(3) 40,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(121) STANFORD CHILD HEALTH RESEARCH INSTITUTE
4100 BOHANNON ROAD
MENLO PARK,CA94025 		77-0003859 501(C)(3) 50,000       MEDICAL DIAGNOSIS
(122) STANFORD HEALTH CARE
PO BOX 742835
LOS ANGELES,CA90074 		94-6174066 501(C)(3) 50,000       MEDICAL DIAGNOSIS
(123) STANFORD UNIVERSITY
3172 PORTER DRIVE
PALO ALTO,CA94304 		94-1156365 501(C)(3) 10,000       RESEARCH
(124) STEVENS INSTITUTE OF TECHNOLOGY
ONE CASTLE POINT ON HUDSON
HOBOKEN,NJ07030 		22-1487354 501(C)(3) 100,000       RESEARCH
(125) TEMPLE UNIVERSITY
PO BOX 827997
PHILADELPHIA,PA19182 		23-1365971 501(C)(3) 50,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(126) TEXAS NEUROLOGY PA
6301 GASTON AVE STE 300W
DALLAS,TX75214 		75-2654757 501(C)(3) 40,875       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(127) TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER
3601 4TH ST
LUBBOCK,TX79430 		75-2668014 501(C)(3) 93,500       RESEARCH
(128) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREET UNIT 39
NEW YORK,NY10032 		13-5598093 501(C)(3) 23,520       RESEARCH
(129) THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
600 HIGHLAND AVE
MADISON,WI53792 		39-6006492 STATE OF WI 20,000       MEDICAL DIAGNOSIS
(130) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS
1901 SOUTH FIRST STREET SUITE A
CHAMPAIGN,IL61820 		37-6000511 501(C)(3) 396,416       RESEARCH
(131) THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3615 CIVIC CENTER BLVD
PHILADELPHIA,PA19104 		23-1352166 501(C)(3) 100,000       RESEARCH
(132) THE CURATORS OF THE UNIVERSITY MISSOURI
ONE HOSP DRIVE
COLUMBIA,MO65212 		43-6003859 501(C)(3) 22,500       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(133) THE EMORY CLINIC INC
12 EXECUTIVE PARK DR NE RM 433
ATLANTA,GA30329 		58-2030692 501(C)(3) 100,000       MEDICAL DIAGNOSIS
(134) THE GEORGE WASHINGTON UNIVERSITY
2121 EYE ST NW ROOM 601
WASHINGTON,DC20052 		53-0196584 501(C)(3) 71,140       RESEARCH
(135) THE HOSPITAL OF SPECIAL SURGERY
535 EAST 70TH ST
NEW YORK,NY10021 		13-1624135 501(C)(3) 77,500       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(136) THE METHODIST HOSPITAL FOUNDATION
6560 FANNIN STREET 802
HOUSTON,TX77030 		76-0094743 501(C)(3) 75,000       MEDICAL DIAGNOSIS
(137) THE METHODIST HOSPITAL RESEARCH INSTITUTE
6565 FANNIN STREET
HOUSTON,TX77030 		87-0721923 501(C)(3) 139,250       RESEARCH
(138) THE METROHEALTH SYSTEM
PO BOX 73308
CLEVELAND,OH44193 		34-6004382 501(C)(3) 25,000       MEDICAL DIAGNOSIS
(139) THE OHIO STATE UNIVERSITY
1960 KENNY RD
COLUMBUS,OH43210 		31-6025986 STATE OF OH 215,000       MEDICAL DIAGNOSISAND REGISTRY SUPPORT
(140) THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE
PO BOX 850
HERSHEY,PA17033 		24-6000376 STATE OF PA 35,000       MEDICAL DIAGNOSIS
(141) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
PO BOX 400195
CHARLOTTESVILLE,NC22904 		54-6001796 501(C)(3) 30,000       MEDICAL DIAGNOSIS
(142) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (IRVINE)
141 INNOVATION SUITE 250
IRVINE,CA92697 		95-2226406 501(C)(3) 180,000       MEDICAL DIAGNOSIS AND RESEARCH
(143) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
11000 KINROSS AVENUE SUITE 211
LOS ANGELES,CA90095 		95-6006143 501(C)(3) 813,559       MEDICAL DIAGNOSIS AND RESEARCH
(144) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE DEPT 0934
LA JOLLA,CA92093 		95-6006144 501(C)(3) 80,000       MEDICAL DIAGNOSIS AND RESEARCH
(145) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
1855 FOLSOM STREET SUITE 425
SAN FRANCISCO,CA94143 		94-6036493 501(C)(3) 85,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(146) THE REGENTS OF THE UNIVERSITY OF COLORADO
500 13001 E 17TH PLACE RM W1124
AURORA,CO80045 		84-6000555 STATE OF CO 100,000       RESEARCH
(147) THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 S STATE STREET
ANN ARBOR,MI48109 		38-6006309 501(C)(3) 150,000       MEDICAL DIAGNOSIS AND RESEARCH
(148) THE RESEARCH FOUNDATION FOR THE SUNY ON BEHALF OF UNIVERSITY
35 STATE ST
ALBANY,NY12207 		14-1368361 501(C)(3) 200,000       RESEARCH
(149) THE RESEARCH FOUNDATION OF SUNY AT BINGHAMTON UNIVERSITY
35 STATE ST
ALBANY,NY12207 		14-1368361 501(C)(3) 100,000       RESEARCH
(150) THE RESEARCH FOUNDATION ON BEHALF OF SUNY
750 EAST ADAMS STREET
SYRACUSE,NY13210 		14-1368361 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(151) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE
COLUMBUS,OH43205 		31-6056230 501(C)(3) 160,000       MEDICAL DIAGNOSIS AND RESEARCH
(152) THE SCRIPPS RESEARCH INSTITUTE
10550 NORTH TORREY PINES ROAD
LA JOLLA,CA92037 		33-0435954 501(C)(3) 100,000       RESEARCH
(153) THE SPEAKER FOUNDATION LLC
1701 WILLIAMS COURT 1401
COLUMBUS,OH31904 		26-2087516 501(C)(3) 5,000       ADVOCACY
(154) THE TOLEDO HOSPITAL DBA PROMEDICA TOLEDO CHILDRENS HOSPITAL
3949 SUNFOREST COURT TWIN OAKS
MEDICAL BLDG SUITE 203
TOLEDO,OH43623 		34-4428256 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(155) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREET
NEW YORK,NY10032 		13-5598093 501(C)(3) 190,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(156) THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET
PHILADELPHIA,PA19104 		23-1352685 501(C)(3) 230,000       MEDICAL DIAGNOSIS AND RESEARCH
(157) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH AB 1170
BIRMINGHAM,AL35294 		63-6005396 STATE OF AL 119,550       MEDICAL DIAGNOSIS AND RESEARCH
(158) THE UNIVERSITY OF IOWA
2 GILMORE HALL
IOWA CITY,IA52242 		42-6004813 STATE OF IA 272,518       MEDICAL DIAGNOSIS AND RESEARCH
(159) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200
CHAPEL HILL,NC27599 		56-6001393 501(C)(3) 120,000       RESEARCH
(160) THE UNIVERSITY OF OKLAHOMA SCIENCES CENTER
1000 STANTON BLVD
OKLAHOMA CITY,OK73117 		73-6017987 STATE OF OK 100,000       RESEARCH
(161) THE UNIVERSITY OF ROCHESTER
601 ELMWOOD AVENUE BOX 673
ROCHESTER,NY14642 		16-0743209 501(C)(3) 93,223       RESEARCH
(162) THOMAS JEFFERSON UNIVERSITY
125 S 9TH ST
PHILADELPHIA,PA19107 		23-1352651 501(C)(3) 100,000       RESEARCH
(163) TRINITY HEALTH DBA MERCY HEALTH SAINT MARYS
200 JEFFERSON SE
GRAND RAPIDS,MI49503 		27-2491974 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(164) UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACE
PITTSBURGH,PA15213 		25-0965591 501(C)(3) 100,000       RESEARCH
(165) UNIVERSITY FACULTY ASSOCIATES INC
2335 E KASHIAN LANE SUITE 301
NIEVES FRESNO,CA93701 		46-3969536 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(166) UNIVERSITY HOSPITAL BROOOKLYN SUNY DOWNSTATE MED CTR
750 EAST ADAMS STREET
SYRACUSE,NY13210 		14-1368361 501(C)(3) 35,000       MEDICAL DIAGNOSIS
(167) UNIVERSITY NEUROLOGY INC
77 GOODELL ST
BUFFALO,NY14203 		16-1359213 501(C)(3) 25,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(168) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1600 7TH AVENUE
BIRMINGHAM,AL35233 		63-6005396 STATE OF AL 20,000       MEDICAL DIAGNOSIS
(169) UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
4301 WEST MARKHAM 812
LITTLE ROCK,AR72205 		71-6046242 STATE OF AR 20,000       MEDICAL DIAGNOSIS
(170) UNIVERSITY OF CALIFORNIA DAVIS
1 SHIELDS AVE
DAVIS,CA95616 		94-6036494 501(C)(3) 12,500       MEDICAL DIAGNOSIS
(171) UNIVERSITY OF CINCINNATI PHYSICIANS
51 GOODMAN DR SUITE 530
CINCINNATI,OH45221 		31-6000989 501(C)(3) 35,000       MEDICAL DIAGNOSIS
(172) UNIVERSITY OF COLORADO DENVER
3100 MARINE STREET ROOM 479
BOULDER,CO80309 		84-6000555 STATE OF CO 100,000       MEDICAL DIAGNOSIS
(173) UNIVERSITY OF COLORADO DENVER
1800 N GRANT ST STE 400
DENVER,CO80203 		84-6000555 501(C)(3) 60,000       RESEARCH
(174) UNIVERSITY OF FLORIDA
219 GRINTER HALL
GAINESVILLE,FL32611 		59-6002052 STATE OF FL 714,520       MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
(175) UNIVERSITY OF IOWA
2 GILMORE HALL
IOWA CITY,IA52242 		42-6004813 STATE OF IOWA 100,000       MEDICAL DIAGNOSIS
(176) UNIVERSITY OF IOWA
2 GILMORE HALL
IOWA CITY,IA52242 		42-6004813 STATE OF IOWA 15,000       REGISTRY SUPPORT
(177) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BLVD MSC 1039
KANSAS CITY,KS66160 		48-1108830 501(C)(3) 529,908       RESEARCH
(178) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET SUITE 300
LOUISVILLE,KY40202 		61-1029626 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(179) UNIVERSITY OF MARYLAND BALTIMORE
620 W LEXINGTON STREET 4TH FLOOR
BALTIMORE,MD21201 		52-6002033 STATE OF MD 169,373       RESEARCH
(180) UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH
WORCESTER,MA01655 		04-3167352 STATE OF MA 525,000       MEDICAL DIAGNOSIS AND RESEARCH
(181) UNIVERSITY OF MIAMI
1320 SOUTH DIXIE HIGHWAY SUITE 650
CORAL GABLES,FL33146 		59-0624458 STATE OF FL 707,457       MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
(182) UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREET
JACKSON,MS39216 		64-6008520 STATE OF MS 20,000       MEDICAL DIAGNOSIS
(183) UNIVERSITY OF NEBRASKA MEDICAL CENTER
985450 NEBRASKA MEDICAL CENTER
OMAHA,NE68198 		47-0049123 STATE OF NE 35,000       MEDICAL DIAGNOSIS
(184) UNIVERSITY OF NEW MEXICO HSC
1 UNIVERSITY OF NEW MEXICO
ALBUQUERQUE,NM87131 		85-6000642 STATE OF NM 20,000       MEDICAL DIAGNOSIS
(185) UNIVERSITY OF OREGON
2727 LEO HARRIS PKWY
EUGENE,OR97401 		46-4727800 501(C)(3) 70,000       RESEARCH
(186) UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACE
PITTSBURGH,PA15213 		25-0965591 STATE OF PA 150,841       MEDICAL DIAGNOSIS AND RESEARCH
(187) UNIVERSITY OF PUERTO RICO MEDICAL SCIENCES

400 FD ROOSEVELT AVE
SAN JUAN    
RQ 		66-0433762   55,000       MEDICAL DIAGNOSIS
(188) UNIVERSITY OF ROCHESTER
518 HYLAN BLDG BOX 270140
ROCHESTER,NY14627 		16-0743209 501(C)(3) 520,564       MEDICAL DIAGNOSIS AND RESEARCH
(189) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DRIVE MSC 7828
SAN ANTONIO,TX78229 		74-1586031 STATE OF TX 75,000       MEDICAL DIAGNOSIS
(190) UNIVERSITY OF UTAH
75 S 2000 E RM 111
SALT LAKE CITY,UT84112 		87-6000525 STATE OF UT 255,475       MEDICAL DIAGNOSIS AND RESEARCH
(191) UNIVERSITY OF VERMONT MEDICAL CENTER
PO BOX 1902
BURLINGTON,VT05401 		03-0219303 STATE OF VT 50,000       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(192) UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472
SEATTLE,WA98195 		91-6001537 STATE OF WA 96,992       RESEARCH
(193) UNIVERSITY OF WASHINGTON MEDICAL CENTER
1959 NE PACIFIC
SEATTLE,WA98195 		91-6001537 STATE OF WA 50,000       MEDICAL DIAGNOSIS
(194) UNIVERSITY OF WISCONSIN
4410 SOUTH 3RD STREET
RIVER FALLS,WI54022 		39-1805963 501(C)(3) 70,000       RESEARCH
(195) UNIVERSITY PHYSICIANS - FINANCE
310 JESSE HALL
COLUMBIA,OH65211 		43-6003859 STATE OF MO 2,500       MEDICAL DIAGNOSIS
(196) UT SOUTHWESTERN MEDICAL CENTER
PO BOX 841753
DALLAS,TX75284 		75-6002868 STATE OF TX 190,000       MEDICAL DIAGNOSIS
(197) UW HOSPITAL AN CLINICS AUTHORITY
600 HIGHLAND AVE
MILWAUKEE,WI53792 		39-1835630 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(198) VALLEY CHILDREN'S HOSPITAL
9300 VALLEY CHILDRENS PLACE
MADERA,CA93636 		94-1294954 501(C)(3) 10,000       MEDICAL DIAGNOSIS
(199) VANDERBILT UNIVERSITY MEDICAL CENTER
PO BOX 121236
DALLAS,TX75312 		35-2528741 501(C)(3) 100,000       MEDICAL DIAGNOSIS
(200) VIA CHRISTI HOSPITALS WICHITA INC
707 NORTH EMPORIA AVENUE
WICHITA,KS67214 		48-1172106 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(201) VIA CHRISTI HOSPITALS WICHITA INC
707 NORTH EMPORIA AVENUE
WICHITA,KS67214 		48-1172106 501(C)(3) 15,000       REGISTRY SUPPORT
(202) VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 980568
RICHMOND,VA23298 		54-6001758 501(C)(3) 235,001       RESEARCH
(203) WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD
WINSTON SALEM,NC27157 		22-3849199 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(204) WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD
WINSTON SALEM,NC27157 		22-3849199 501(C)(3) 99,746       RESEARCH
(205) WASHINGTON UNIVERSITY IN ST LOUIS
1054 ONE BROOKINGS DRIVE
ST LOUIS,MO63130 		43-0653611 501(C)(3) 219,070       MEDICAL DIAGNOSIS AND RESEARCH
(206) WESLEY NEUROLOGY CLINIC PC
800 CENTERVIEW PARKWAY STE 305
CORDOVA,TN38018 		62-1499155 501(C)(3) 65,400       MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
(207) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD
MORGANTOWN,WV26506 		55-0665758 501(C)(3) 20,000       MEDICAL DIAGNOSIS
(208) WRIGHT STATE UNIVERSITY
3640 COLONEL GLENN HWY
DAYTON,OH45435 		31-0732831 501(C)(3) 100,000       RESEARCH
(209) YALE UNIVERSITY
PO BOX 1873
NEW HAVEN,CT06508 		06-0646973 501(C)(3) 454,698       MEDICAL DIAGNOSIS AND RESEARCH
2
Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................. Bullet Image
162
3
Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image
47
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50055P
Schedule I (Form 990) 2019

Schedule I (Form 990) 2019
Page 2
Part III
Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" on Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Number of
recipients		 (c) Amount of
cash grant		 (d) Amount of
noncash assistance		 (e) Method of valuation (book,
FMV, appraisal, other)		 (f) Description of noncash assistance
(1)
(2)
(3)
(4)
(5)
(6)
(7)
Part IV
Supplemental Information. Provide the information required in Part I, line 2; Part III, column (b); and any other additional information.
Return Reference Explanation
PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.
Schedule I (Form 990) 2019



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Schedule J
(Form 990)
Department of the Treasury
Internal Revenue Service
Compensation Information
For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
SchJMediumBullet Complete if the organization answered "Yes" on Form 990, Part IV, line 23.
SchJMediumBullet Attach to Form 990.
SchJMediumBullet Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATIONINC
 
Employer identification number

13-1665552
Part I
Questions Regarding Compensation
Yes
No
1a
Check the appropiate box(es) if the organization provided any of the following to or for a person listed on Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.
b
If any of the boxes on Line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain .........
1b
 
 
2
Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked on Line 1a? ..
2
 
 
3
Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.
4
During the year, did any person listed on Form 990, Part VII, Section A, line 1a, with respect to the filing organization or a related organization:
a
Receive a severance payment or change-of-control payment? .............
4a
 
No
b
Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........
4b
 
No
c
Participate in, or receive payment from, an equity-based compensation arrangement? .........
4c
 
No
If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.
Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.
5
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:
a
The organization? ....................
5a
 
No
b
Any related organization? .......................
5b
 
No
If "Yes," on line 5a or 5b, describe in Part III.
6
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:
a
The organization? ..................
6a
 
No
b
Any related organization? ......................
6b
 
No
If "Yes," on line 6a or 6b, describe in Part III.
7
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization provide any nonfixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............
7
 
No
8
Were any amounts reported on Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III ..........................
8
 
No
9
If "Yes" on line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................
9
 
 
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50053T
Schedule J (Form 990) 2019

Schedule J (Form 990) 2019
Page 2
Part II
Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.
For each individual whose compensation must be reported on Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.
(A) Name and Title (B) Breakdown of W-2 and/or 1099-MISC compensation (C) Retirement and other deferred compensation (D) Nontaxable
benefits		 (E) Total of columns
(B)(i)-(D) 		(F) Compensation in column (B) reported as deferred on prior Form 990
(i) Base
compensation 		(ii) Bonus & incentive
compensation 		(iii) Other reportable compensation
1ELLEN VOS
PRESIDENT & CEO 		(i)

(ii)		 506,841
-------------
0 		0
-------------
0 		1,188
-------------
0 		0
-------------
0 		28,218
-------------
0 		536,247
-------------
0 		0
-------------
0
2KAREN ANDREWS
SECRETARY & CHIEF LEGAL OFFICER 		(i)

(ii)		 413,969
-------------
0 		0
-------------
0 		0
-------------
0 		0
-------------
0 		0
-------------
0 		413,969
-------------
0 		0
-------------
0
3MICHAEL KENNEDY
TREASURER & CFO 		(i)

(ii)		 286,145
-------------
0 		0
-------------
0 		1,188
-------------
0 		8,913
-------------
0 		26,798
-------------
0 		323,044
-------------
0 		0
-------------
0
4JENNIFER ALLEBACH
SVP OF RECREATION AND CAMP PROGRAMS 		(i)

(ii)		 139,615
-------------
0 		10,000
-------------
0 		594
-------------
0 		3,008
-------------
0 		0
-------------
0 		153,217
-------------
0 		0
-------------
0
5KATHY KAUFFMANN
CHIEF STRATEGY DEVELOPMENT OFFICER 		(i)

(ii)		 152,167
-------------
0 		0
-------------
0 		175
-------------
0 		4,500
-------------
0 		13,476
-------------
0 		170,318
-------------
0 		0
-------------
0
6ADAM COTUMACCIO
CHIEF IMPACT & PHILANTHROPY OFFICER 		(i)

(ii)		 283,820
-------------
0 		0
-------------
0 		414
-------------
0 		9,000
-------------
0 		37,389
-------------
0 		330,623
-------------
0 		0
-------------
0
7JEANNE ZUCKER
SENIOR VP, HEALTHCARE PART 		(i)

(ii)		 234,677
-------------
0 		25,000
-------------
0 		745
-------------
0 		0
-------------
0 		11,000
-------------
0 		271,422
-------------
0 		0
-------------
0
8KRISTIN STEPHENSON
SVP, CHIEF POLICY & COMM E 		(i)

(ii)		 202,927
-------------
0 		0
-------------
0 		180
-------------
0 		4,827
-------------
0 		35,771
-------------
0 		243,705
-------------
0 		0
-------------
0
9MEREDITH WILSON
VP, HEALTHCARE COMMUNICATIONS & EDUC 		(i)

(ii)		 179,377
-------------
0 		0
-------------
0 		270
-------------
0 		5,256
-------------
0 		2,931
-------------
0 		187,834
-------------
0 		0
-------------
0
10MICHAEL BRUNO
CHIEF PEOPLE AND ADMINISTRATIVE OFFI 		(i)

(ii)		 212,881
-------------
0 		0
-------------
0 		1,495
-------------
0 		0
-------------
0 		13,292
-------------
0 		227,668
-------------
0 		0
-------------
0
Schedule J (Form 990) 2019

Schedule J (Form 990) 2019
Page 3
Part III
Supplemental Information
Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II. Also complete this part for any additional information.
Return Reference Explanation
Schedule J (Form 990) 2019

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Schedule L
(Form 990 or 990-EZ)
Department of the Treasury
Internal Revenue Service
Transactions with Interested Persons
MediumBullet Complete if the organization answered "Yes" on Form 990, Part IV, lines 25a, 25b, 26, 27, 28a, 28b, or 28c, or Form 990-EZ, Part V, line 38a or 40b.
MediumBullet Attach to Form 990 or Form 990-EZ.
MediumBulletGo to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATIONINC
 
Employer identification number

13-1665552
Part I
Excess Benefit Transactions (section 501(c)(3), section 501(c)(4), and section 501(c)(29) organizations only).
Complete if the organization answered "Yes" on Form 990, Part IV, line 25a or 25b, or Form 990-EZ, Part V, line 40b.
1(a) Name of disqualified person (b) Relationship between disqualified person and organization (c) Description of transaction (d) Corrected?
Yes No
2
Enter the amount of tax incurred by the organization managers or disqualified persons during the year under section 4958. ........................... Bullet Image$
 
3
Enter the amount of tax, if any, on line 2, above, reimbursed by the organization ........ Bullet Image$
 

Part II
Loans to and/or From Interested Persons.
Complete if the organization answered "Yes" on Form 990-EZ, Part V, line 38a, or Form 990, Part IV, line 26; or if the organization reported an amount on Form 990, Part X, line 5, 6, or 22
(a) Name of interested person (b) Relationship with organization (c) Purpose of loan (d) Loan to or from the organization? (e) Original principal amount (f) Balance due (g) In default? (h) Approved by board or committee? (i) Written agreement?
To From Yes No Yes No Yes No
Total ...............Small Bullet $  
Part III
Grants or Assistance Benefiting Interested Persons.
Complete if the organization answered "Yes" on Form 990, Part IV, line 27.
(a) Name of interested person (b) Relationship between interested person and the organization (c) Amount of assistance (d) Type of assistance (e) Purpose of assistance
(1) STANLEY APPEL
  		BOARD MEMBER 239,250 RESEARCH GRANT SEE PART V
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 50056A
Schedule L (Form 990 or 990-EZ) 2019
Schedule L (Form 990 or 990-EZ) 2019
Page 2
Part IV
Business Transactions Involving Interested Persons.
Complete if the organization answered "Yes" on Form 990, Part IV, line 28a, 28b, or 28c.
(a) Name of interested person (b) Relationship between interested person and the organization (c) Amount of transaction (d) Description of transaction (e) Sharing of organization's revenues?
Yes No
(1) KAREN ANDREWS
  		OFFICER 413,969 KAREN ANDREWS IS PRINCIPAL AT KAREN ANDREWS LAW LLC, AND IS NOT COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. AS AN EMPLOYEE ON PART VII, SECTION A.   No
Part V
Supplemental Information
Provide additional information for responses to questions on Schedule L (see instructions).
Return Reference Explanation
PART III, LINE 1, COLUMN E: THE GRANT AMOUNT WENT TO STANLEY APPEL'S INSTITUTION, THE METHODIST HOSPITAL RESEARCH INSTITUTE. HE WAS THE RESEARCHER THAT THE GRANT BENEFITS.
Schedule L (Form 990 or 990-EZ) 2019


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SCHEDULE M
(Form 990)

Department of the Treasury
Internal Revenue Service
Noncash Contributions
Right pointing arrow large imageComplete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image Attach to Form 990.
Right pointing arrow large imageGo to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2019
Open to Public Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATIONINC
 
Employer identification number

13-1665552
Part I
Types of Property
(a)
Check if applicable 		(b)
Number of contributions or items contributed 		(c)
Noncash contribution amounts reported on
Form 990, Part VIII, line 1g 		(d)
Method of determining
noncash contribution amounts
1 Art—Works of art ....        
2 Art—Historical treasures .        
3 Art—Fractional interests ..        
4 Books and publications ..      
5 Clothing and household
goods ....... 		     
6 Cars and other vehicles ..        
7 Boats and planes ....        
8 Intellectual property ...        
9 Securities—Publicly traded .        
10 Securities—Closely held stock . X 17 59,097 FMV
11 Securities—Partnership, LLC,
or trust interests .... 		       
12 Securities—Miscellaneous ..        
13 Qualified conservation
contribution—Historic
structures ..... 		       
14 Qualified conservation
contribution—Other ... 		       
15 Real estate—Residential .        
16 Real estate—Commercial ..        
17 Real estate—Other ...        
18 Collectibles .....        
19 Food inventory ...        
20 Drugs and medical supplies .        
21 Taxidermy ......        
22 Historical artifacts ....        
23 Scientific specimens ..        
24 Archeological artifacts ...        
25 Other Right pointing arrow large image ( )
26 Other Right pointing arrow large image ( )
27 Other Right pointing arrow large image ( )
28 Other Right pointing arrow large image ( )
29
Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement
29
 
Yes
No
30a
During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that it must hold for at least three years from the date of the initial contribution, and which isn't required to be used for exempt purposes for the entire holding period? ...................
30a
 
No
b
If "Yes," describe the arrangement in Part II.
31
Does the organization have a gift acceptance policy that requires the review of any nonstandard contributions?
31
 
No
32a
Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash
contributions? ..........................
32a
 
No
b
If "Yes," describe in Part II.
33
If the organization didn't report an amount in column (c) for a type of property for which column (a) is checked,
describe in Part II.
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 51227J
Schedule M (Form 990) (2019)
Schedule M (Form 990) (2019)
Page 2
Part IISupplemental Information. Provide the information required by Part I, lines 30b, 32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.
Return Reference Explanation
PART I, COLUMN (B): AMOUNTS IN COLUMN B REPRESENT THE NUMBER OF CONTRIBUTIONS.
Schedule M (Form 990) (2019)

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SCHEDULE O
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet Attach to Form 990 or 990-EZ.
MediumBullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2019
Open to Public
Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATIONINC
 
Employer identification number

13-1665552
Return Reference Explanation
FORM 990, PART VI, SECTION B, LINE 11B ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCE DEPARTMENT IN CONJUNCTION WITH LEGAL.
FORM 990, PART VI, SECTION B, LINE 15 A COMPENSATION STUDY WAS DONE AND WAS APPROVED BY THE BOARD OF DIRECTORS.
FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.
FORM 990, PART XI, LINE 9: CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS -7,921,219.
FORM 990, PART XII LINE 2C: THE ORGANIZATION HAS A COMMITTEE RESPONSIBLE FOR THE OVERSIGHT OF THE AUDIT AS WELL AS THE SELECTION OF THE INDEPENDENT ACCOUNTANT.
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 51056K
Schedule O (Form 990 or 990-EZ) 2019


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