Attach to Form 990 or Form 990-EZ.
Go to
www.irs.gov/Form990 for instructions and the latest information.
| (i) Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 10 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
|
Total |
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Calendar year (or fiscal year beginning in) ![]() |
(a) 2015 | (b) 2016 | (c) 2017 | (d) 2018 | (e) 2019 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. | 135,304,032 | 122,553,876 | 102,801,334 | 118,306,745 | 108,955,331 | 587,921,318 |
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.... | ||||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 4 | Total. Add lines 1 through 3 | 135,304,032 | 122,553,876 | 102,801,334 | 118,306,745 | 108,955,331 | 587,921,318 |
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f).. | ||||||
| 6 | Public support. Subtract line 5 from line 4. | 587,921,318 | |||||
Calendar year
(or fiscal year beginning in) ![]() |
(a) 2015 | (b) 2016 | (c) 2017 | (d) 2018 | (e) 2019 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | 135,304,032 | 122,553,876 | 102,801,334 | 118,306,745 | 108,955,331 | 587,921,318 |
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | 4,560,225 | 4,337,308 | 4,063,059 | 4,492,015 | 3,352,336 | 20,804,943 |
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | 33,439 | 34,645 | 45,752 | 2,730 | 116,566 | |
| 11 | Total support. Add lines 7 through 10 | 608,842,827 | |||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2015 | (b) 2016 | (c) 2017 | (d) 2018 | (e) 2019 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | ||||||
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose | ||||||
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513 ..... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge | ||||||
| 6 | Total. Add lines 1 through 5 | ||||||
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2015 | (b) 2016 | (c) 2017 | (d) 2018 | (e) 2019 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | ||||||
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | ||||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | ||||||
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
|||||
| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by .035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | ||
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
||
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | ||
| 4 Amounts paid to acquire exempt-use assets | ||
| 5 Qualified set-aside amounts (prior IRS approval required) | ||
| 6 Other distributions (describe in Part VI). See instructions | ||
| 7Total annual distributions. Add lines 1 through 6. | ||
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
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| 9 Distributable amount for 2019 from Section C, line 6 | ||
| 10 Line 8 amount divided by Line 9 amount | ||
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2019 |
(iii) Distributable Amount for 2019 |
|
|---|---|---|---|---|
| 1 Distributable amount for 2019 from Section C, line 6 | ||||
|
2
Underdistributions, if any, for years prior to 2019 (reasonable cause required-- explain in Part VI). See instructions. |
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| 3 Excess distributions carryover, if any, to 2019: | ||||
| a From 2014....... | ||||
| b From 2015....... | ||||
| c From 2016....... | ||||
| d From 2017....... | ||||
| e From 2018....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2019 distributable amount | ||||
|
i
Carryover from 2014 not applied (see instructions) |
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| j Remainder. Subtract lines 3g, 3h, and 3i from 3f. | ||||
| 4Distributions for 2019 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2019 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from 4. | ||||
|
5
Remaining underdistributions for years prior to 2019, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
6
Remaining underdistributions for 2019. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
7 Excess distributions carryover to 2020. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a Excess from 2015..... | ||||
| b Excess from 2016..... | ||||
| c Excess from 2017..... | ||||
| d Excess from 2018..... | ||||
| e Excess from 2019..... | ||||
| Facts And Circumstances Test |
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| Return Reference | Explanation |
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| Software ID: | 19009610 |
| Software Version: | 19.2.1.0 |
Attach to Form 990 or 990-EZ.
Go to www.irs.gov/Form990 for the latest information.
| Return Reference | Explanation |
|---|---|
| Form 990, Part III, Line 4 | Connected for Life. Today, more than 122 million Americans in the United States have diabetes or prediabetes an invasive, unrelenting and debilitating disease that spans all ages, geography and educational levels. This chronic disease targets children, the elderly and minority populations more than others and costs the United States 327 billion dollars each year in lost productivity. It is a global epidemic that contributes to heart disease, stroke, nerve and kidney disease and vision loss. The American Diabetes Association is the only organization dedicated specifically to the research, education and advocacy required to improve the lives of the 34 million adults and children in the U. S. with diabetes and the 88 million people with prediabetes. For 79 years, we have been working on the frontlines to educate at-risk populations, protect the rights of people with diabetes at work, school and other aspects of daily life, pioneer clinical and research breakthroughs and foster a pipeline of the best and brightest scientists. From research labs to the halls of the Capitol to the offices of health care practitioners to communities nationwide, we are there. We are bending the curve to help people living with diabetes and their families thrive. Why Because we envision a life free of diabetes and all its burdens, which is fueled by our mission to prevent and cure diabetes and to improve the lives of all people affected by diabetes. |
| Form 990, Part III, Line 4 | DIABETES RESEARCH. Diabetes is an extremely complex disease, caused by a combination of various genetic and environmental factors that progressively lead to an inability to produce or effectively utilize insulin. The complexity of causes conspiring to diminish the bodys production or response to insulin, leading to high blood glucose and eventual development of diabetes, makes finding a single cure particularly difficult. While a cure has been elusive, critical research efforts in recent decades have led to significantly improved patient care, resulting in fewer complications and better health outcomes for individuals with diabetes. As a leader in diabetes research, and the only organization dedicated specifically to the research, education and advocacy required to improve the lives of all people with diabetes, the American Diabetes Association funds critical, innovative diabetes research and invests in promising scientists early in their careers. Our direct involvement in diabetes research extends back to the 1940s when Dr. Charles H. Best, one of four scientists credited with discovering insulin, provided the American Diabetes Association with the framework and early leadership for a formalized diabetes research program. |
| Form 990, Part III, Line 4 | Since our Research Programs inception in 1952, we have been the leader in funding cutting edge diabetes research, supporting more than 4,800 research projects and investing more than 860 million in diabetes research. In 2019, the ADA supported 295 new and continuing research projects at 118 leading research institutions across the United States. The projects cover the broad spectrum of research approaches, including basic, clinical and translational science and address all types of diabetes, diabetes related disease states and complications. The primary goals of the ADAs Research Program are to Support the highest quality science across the broad spectrum of diabetes research. Support investigators early in their careers to encourage them to dedicate their efforts to diabetes research Support innovative research with a high potential to have a significant impact for patients with diabetes. Peer Review Process. One of the factors that sets American Diabetes Association funded research apart and ensures that we are supporting the very best science is peer review. Peer review is a process whereby grant applications are reviewed and evaluated by individuals who are experts in the field or peers of the individual submitting the grant. ADA grant applications all undergo peer review by three or more volunteer experts who are themselves diabetes researchers. Reviewers provide both a score and detailed comments regarding the strengths and weaknesses of each grant they review. Scores from all reviewers for each grant are averaged to arrive at a composite merit score that is then used to determine which grants to support. |
| Form 990, Part III, Line 4 | Types of Research Awards. Research awards are divided into four major categories that reflect our research goals and priorities, provide extraordinary opportunities for researchers from diverse backgrounds, and foster the professional development of young scientists interested in diabetes research. The categories are Investigator-Initiated Awards Core Program Pathway to Stop Diabetes Collaborative Targeted Research and Research Co-Support. Approximately 80 percent of American Diabetes Association-funded research falls under the Core Research Awards. The ADA uses a single annual grant application cycle for its Core Research Program, featuring a streamlined grant portfolio. In 2019, a total of 609 research grant applications were submitted from scientists based at institutions across the United States. ADA-supported researchers made significant progress in understanding how diabetes develops and progresses, and in identifying new ways to combat the disease. |
| Form 990, Part III, Line 4 | A new way to prevent immune cells from attacking insulin-producing beta-cells Replacing insulin producing beta cells that have been lost in people with type 1 diabetes is a promising strategy to restore control of glucose levels. However, because the autoimmune disease is a continuous process, replacing beta cells results in another immune attack if immunosorbent drugs are not used, which carry significant side effects. This year, ADA funded researcher Dr. Jianxun Song reported on the potential of an immunotherapy he developed that prevents immune cells from attacking beta-cells and reduces inflammatory processes. This immunotherapy offers several potential benefits, including eliminating the need for immunosuppression, long lasting effects, and the ability to customize the treatment to each patient. The ability to suppress autoimmunity has implications for both prevention of type 1 diabetes and improving success rates of islet transplantation. A novel therapy to prevent type 1 diabetes The hormone insulin normally acts like a key, traveling through the blood and opening the cellular lock to enable the entry of glucose into muscle and fat cells. However, in people with type 2 diabetes, the lock on the cellular door has, in effect, been changed, meaning insulin isnt as effective. This phenomenon is called insulin resistance. Scientists have long sought to understand what causes insulin resistance and develop therapies to enable insulin to work correctly again. In 2019, ADA funded researcher Dr. Scott Summers determined an essential role for a molecule called ceramides as a driver of insulin resistance in mice. He also presented a new therapeutic strategy for lowering ceramides and reversing insulin resistance. His findings were published in one of the most prestigious scientific journals, Science. Soon, Dr. Summers and his team will attempt to validate these findings in humans, with the ultimate goal of developing a new medication to help improve outcomes in people with diabetes. |
| Form 990, Part III, Line 4 | Revealing the relationship between food insecurity and diabetes. Food insecurity is defined as the state of being without reliable access to a sufficient quantity of affordable, notorious food. For people living with prediabetes or type 2 diabetes, food insecurity can be even more detrimental as it can result in an inability to follow nutritional guidelines, even if they are motivated to do so. In 2019, ADA funded researcher Dr. Rebekah J. Walker conducted a study to determine the direct and indirect ways in which food insecurity influences glucose control and self-care behaviors. Her research determined that food insecurity was indirectly associated with A1C, and different self-care behaviors including diet, exercise and medication adherence. This year, she plans to test the effect of a culturally tailored food box to reduce food insecurity in African Americans with diabetes and improve outcomes. Pathway to Stop Diabetes. The American Diabetes Associations Pathway to Stop Diabetes initiative aims to inspire a new generation of diabetes researchers who are early in their career or are established but would like to expand their focus on diabetes research. Through awards of 1.625 million over the course of five years, the program allows researchers to have the time and focus needed to explore new ideas. With a goal of funding 100 new diabetes researchers over the next decade, Pathway provides crucial support to individuals focusing on innovative ideas and transformational approaches that will lead to new discoveries in diabetes prevention and treatment. |
| Form 990, Part III, Line 4 | Three new Pathway awardees began their research projects in January 2019. During the 2019 calendar year these new awardees, along with the 27 Pathway scientists who were continuing in their terms of Pathway funding, collectively published 30 high-impact original research manuscripts and seven reviews. They delivered 151 presentations at scientific meetings. Through 2019, all nine Pathway Initiator award recipients have secured their first independent faculty positions. Thirteen patent applications have been filed by Pathway awardees to date. These outcomes demonstrate that the Pathway initiative continues to exceed its objectives and progress toward our vision of bringing 100 brilliant scientists to diabetes research. Several exciting outcomes that have the potential to help patients with diabetes resulted from Pathway research in 2019. Dr. Zachary Knight identified a new pathway that regulates appetite which could help to explain the effectiveness of bariatric surgery to induce rapid weight loss and improve glucose control. Dr. Alexander Nectow discovered that a specific type of neuron in the brain potently regulates energy expenditure and could be targeted to help with weight-loss. Dr. Sumita Pennathur and her team of researchers developed a new molecule with the potential to improve the durability and accuracy of continuous glucose monitoring. |
| Form 990, Part III, Line 4 | The Pathway scientists came together at the 6th annual Pathway to Stop Diabetes Symposium, held at the 79th Scientific Sessions in San Francisco, CA, where the newest cohort of Pathway awardees presented their project plans and progress to date. This exclusive symposium brought the awardees together with the Mentor Advisory Group, program sponsors, philanthropic supporters, and American Diabetes Association leadership. The 7th annual Pathway to Stop Diabetes grant competition was held in 2019. The Mentor Advisory Group reviewed 72 outstanding nominations and selected two new Pathway awardees who began their grants in January 2020. With selection of these new awardees, the Pathway program has supported 34 outstanding investigators in total. In 2019, the second group of scientists completed their terms of Pathway funding, which had started in 2015. These scientists, Mayland Chang, PhD, of the University of Notre Dame Thomas Delong, PhD, of the University of Colorado, Denver Zhen Gu, PhD, of the University of California, Los Angeles and Stephen C.J. Parker, of the University of Michigan, all completed their fifth and final year of their awards. Each of them has already added substantially to our understanding of diabetes and diabetes risk, and their contributions will continue throughout their careers in diabetes science, because they are now set up for success in conducting the kind of innovative, transformative research that holds promise to ultimately stop the health crisis that is diabetes. |
| Form 990, Part III, Line 4 | Scientific Sessions. Held annually, Scientific Sessions exemplifies the American Diabetes Associations leadership role in the global diabetes community, while providing a critical platform for driving diabetes awareness. Scientific Sessions is the worlds largest scientific and medical meeting focused on the latest basic and clinical science research related to diabetes and its complications. The 79th Scientific Sessions, held June 7 to 11, 2019 in San Francisco, California, brought together over 12,000 physicians, scientists, researchers, and health care providers. Over the course of five days, participants received exclusive access to more than 3,000 original research presentations, increasing their knowledge on the latest advances in diabetes research, care, and education. More than 3,000 abstracts were received. Of those received, 2,544 were presented as either Oral or Poster presentations. The remaining abstracts were published on the journal Diabetes website as Published Only or not accepted for presentation by the Scientific Sessions Meeting Planning Committee. 6th Annual Focus on Fellows The 6th Annual Focus on Fellows program was held in conjunction with the 79th Scientific Sessions. This meeting is dedicated to fostering growth development of future diabetes clinicians, researchers and leaders and engage fellows early in their careers to encourage them to remain in the diabetes field. |
| Form 990, Part III, Line 4 | ADA Host Research Symposium with European Association for the Study of Diabetes EASD. The ADA hosted a research symposium on Advancing Precision Diabetes Medicine in Madrid, Spain in October of 2019. The symposium, held in conjunction with the European Association for the Study of Diabetes, focused on the future of precision medicine in diagnosing, preventing, and treating diabetes. As part of the ADAs new Precision Medicine in Diabetes Initiative, this scientific meeting was designed to engage diverse stakeholders in incorporating and building the evidence base for the adoption of a precision medicine approach to diabetes. The ultimate goals of the initiative are to better predict who is at risk for diabetes, determine how best to diagnose for treatment, and identify ways to improve treatment outcomes and reduce the risk of diabetes complications. INFORMATION. Saving Lives through Knowledge. For people affected by or at risk for diabetes, having access to the most up to date tools and resources can literally make the difference between life and death. As a trusted leader, the American Diabetes Association works hard to ensure that those affected by and at risk for diabetes, their health care team as well as the general public receive targeted, timely and accurate information. We deliver resources that people can access any time in multiple formats including our website for consumers and professionals, diabetes.org, our flagship social media channels, and our professional journals and publications. |
| Form 990, Part III, Line 4 | We focus our efforts on three areas Raising awareness of diabetes as a serious disease. Ensuring patients, providers and care givers have tools and resources to effectively treat and manage diabetes. Reaching diverse groups of people who are at risk for or have diabetes, their families and health care professionals, with the goal of reducing the incidence of diabetes and the impact of complications. Center for Information. The ADAs Center for Information CFI at 1 800 DIABETES, marks the very first stop for many of our constituents as they start their journey of living with diabetes. The CFI processed nearly 90,000 contacts from constituents, professional members and others in 2019. CFI helps to bend the curve every day by providing constituents with information and resources on prevention, nutrition and diabetes management, help with medications and supplies, discrimination issues, ADA events, assisting professional members and donors and much more In 2019, CFI supported ADAs mission by Helping nearly 90,000 contacts, Collecting a total of 178,544 in donations, Distributing more than 30,000 packets of information, Processing 3,100 intakes for our Legal Advocacy team, Assisting over 6,000 contacts with information and resources for assistance with medications and supplies. In addition, established working relationships with Novo Nordisk and Eli Lilly to connect constituents who need financial assistance for their insulin directly to the Novo Nordisk Customer Care Center and the Lilly Diabetes Solution Center., Handling logistics after the Living with Diabetes Ask the Expert Series assembled and mailed over 5,000 giveaways to Ask the Experts participants and assisted with over 500 unanswered questions from constituents., Providing onsite support at Scientific Sessions |
| Form 990, Part III, Line 4 | Digital Engagement. We offer a variety of targeted and interactive online properties to connect with our consumer and professional audiences, while providing the latest diabetes related information and news. Through our newly refreshed website, diabetes.org, our new blog diabetes.org/blog to our ever growing presence on Facebook, Twitter, YouTube, and Instagram, the American Diabetes Association is connected to its constituents 24 7. Diabetes.org. Our website for consumers and professionals, diabetes.org, is widely regarded as the most informative and credible diabetes and nutrition resource on the Internet. In 2019, the site had 25 million sessions, 34 million unique pageviews, and 15 million new users. Social Media. The ADAs flagship social media channels continue to grow Facebook fan base is now more than 740,000, Twitter following is up to 145,000, Pinterest following is over 15,000, Instagram following is now over 35,000, LinkedIn continues to be a dedicated marketing communications channel for the professional audience. Our company page has more than 49,000 followers. The ADAs 79th Scientific Sessions generated more than 340 million media impressions worldwide. In August 2019, the ADA launched a new blog diabetes.org/blog to lift up the stories of real people living and thriving with diabetes. Over the four and a half months it was live in 2019, it received nearly 175,000 pageviews. Constituent acquisition through digital channels continued to be a major focus for the ADA in 2019. The ADA continued promoting the new Facebook Fundraisers tool with great success, raising more than 3 million in 2019. |
| Form 990, Part III, Line 4 | Professional.diabetes.org. DiabetesPro at professional.diabetes.org provides the latest resources in diabetes care and research for health care professionals and scientists. The mobile-friendly platform gives the ADA enhanced ability to deliver customized members only content. DiabetesPro is the most advanced professional education website in any branch of medicine, giving those who have placed diabetes in the center of their careers the opportunity to stay informed and take advantage of various resources and educational offerings. Featured content includes Diabetes meetings and continuing education opportunities, News, Clinical practice recommendations, Webcasts and podcasts, Journals and books, Research grants, Recognition programs, Professional section interest groups. Youth, Young Adult and Family Initiatives Reaching Type 1 and Type 2 Diabetes Families. Reaching People. The American Diabetes Association continues to be the worlds largest provider of camps for children with diabetes. The ADA hosted 57 summer Camp and winter camp sessions serving 5,827 children and teens and more than 10,000 loved ones. |
| Form 990, Part III, Line 4 | 2,236 campers were new in 2019. 2,425 volunteers made these programs possible. 1,208 trained medical professionals served as medical, dietary and social work staff during the summer season. ADA also held two winter camps throughout the year, engaging parents and children who are newly diagnosed or new to the Camp community.. 5,219 of our 5,827 campers have Type 1 diabetes. All camps offer camp fee subsidies for participants of 50 or more. In addition to this subsidy, 24 of our campers received need-based financial aid and 513,456 was awarded in 2019. This program ensures that the cost of camp is not a barrier for any family.. Gaining New Diabetes Management Skills. After camp, 97 of campers were able to perform at least one diabetes management skill independently. Rotate injection sites 17 increase. Draw up insulin without assistance 12 increase. Recognize own low blood glucose levels 10 increase. Gave own injections 10 increase. Understand insulin to carb ratios 13 increase. Checked for ketones 13 increase. Changed pump site/sets 17 increase. In addition, 69 of campers were always or often able to solve diabetes management problems after attending camp a 17 increase from before Camp. Among all campers and across all areas, knowledge increased by 31 after camp. Nearly 30 of our youngest campers increased their knowledge of when to check blood sugar. 27 of parents and caregivers stated that their familial communication improved or significantly improved after their child attended Camp |
| Form 990, Part III, Line 4 | Sharing Best Practices. The Youth, Young Adult and Family Initiatives team hosted a conference in October 2019 to examine and address the needs of rapidly advancing medical technology and data with the support of The Leona M. and Harry B. Helmsley Charitable Trust. At the conference, 45 stakeholders, including leaders from the ADAs camp network, the Diabetes Education and Camping Association DECA, industry representatives, ADA Youth and Family Initiative staff, and The Helmsley Charitable Trust convened in Arlington, Virginia to plan for the future. The goal was to share best practices and information to create a living document entitled, Best Practices for the use of Diabetes Technology at Summer Camps, and a set of training materials entitled, Diabetes Basics that are available for download at diabetes.org/summercamp. Engaging Partners. Industry and professional partners contributed more than 4 million in donated services and supplies. Top supporters included Novo Nordisk, Lilly Diabetes, Sanofi-Aventis, Direct Relief, Animas/LifeScan, Medtronic, Omnipod, Insulet, and Nova Diabetes Care Camp supplies include, insulin, meters, pens needles, strips, lancets and insulin pump supplies. Youth and Family Initiatives were supported nationally by the generosity of Novo Nordisk, The Leona M. and Harry B. Helmsley Charitable Trust, and Lilly Diabetes. |
| Form 990, Part III, Line 4 | Project Power. The ADA continues to take on the growing rates of type 2 in youth with Project Power, our healthy lifestyle intervention program for children at risk for type 2 diabetes and their families. 3,866 participants in Project Power 600 growth in 2019. 23 total programs 4 new in 2019. Ask the Experts. To address issues commonly faced by people living with diabetes, the American Diabetes Association developed a free education series focused on diabetes management. The monthly wellness series includes live QA with diabetes experts, aimed to reinforce and increase participant knowledge of and engagement in healthy lifestyle behaviors as well as provide a community where individuals can ask questions and hear from others who might share similar experiences. As part of the Know Diabetes by Heart initiative, this series provides tools and resources for people living with type 2 diabetes to learn how to reduce their risk of cardiovascular disease. In 2019, experts connected with 6,141 participants who engaged for 20 minutes on the phone or online. Many participants attended multiple events, with 32 of unique participants attending six or more. Participants were highly satisfied with events and experienced notable impact. Across events, individual level knowledge increased 16 on average from before an event to after an event. On average, 23 of participants who had not done so previously, had a conversation with a healthcare provider about the link between heart disease and diabetes one month after attending an event. Additionally, 17 of participants who had not done so before, enrolled in a diabetes education program within one month after attending an event. |
| Form 990, Part III, Line 4 | Diabetes Self-Management Support DSMS. ADA launched the new Diabetes Support Initiative to identify and promote Diabetes Self-Management Support programs. ADA convened a subject matter expert workgroup to review, vet, and identify DSMS program curriculums and resources that meet the ADA criteria for support programming, align with the Standards of Care, and demonstrate significant positive outcomes. http//professional.diabetes.org/dsi. An online application platform was developed and a call for applications were submitted in March and July 2019 to review research-tested and practice-tested DSMS programs. 10 organizations diabetes support program curriculums and resources were approved based on ADA diabetes support criteria. ADA developed a new Diabetes Support Directory, a free online tool to help connect communities to a qualified, ADA-approved diabetes support program. The ADA-approved diabetes support programs currently listed on the Diabetes Support Directory are promoted to Education Recognition Programs, partner health clinics, community-based organizations, and health systems. http//professional.diabetes.org/dsdirectory ADA has developed a Community Grants process to offer financial support to deliver ADA approved diabetes support programs in high risk communities. ADA was awarded 98,000 in grant funding from Janssen Pharmaceuticals to implement one of the ADA approved diabetes support programs in partnership with one of our Education Recognition Programs FQHC as a 2020 pilot. |
| Form 990, Part III, Line 4 | Community Health Workers CHWs. To address ADAs Standards of Care highlighting the importance of CHWs in diabetes prevention and management, especially among underserved communities, the ADAs National Health Disparities Committee developed the new CHW webpage Resources for CHWs. The Health Disparities Committee and ADAs Professional Membership team established the new CHW Professional Membership for only 35 for community health representatives, peer health educators and other frontline public health workers. Promotions of the new CHW professional membership were done in collaboration with the National Association of Community Health Workers NACHW and through other ADA partner networks. In 2019, there were a total of 49 CHW professional members. A free Health Disparities Community Health Workers Resources continuing education webcast series was developed by the Health Disparities Committee to provide professional education resources addressing various topics related to CHWs and social determinants of health. The first webcast entitled Community Health Workers CHWs Strong Evidence base for Embracing CHWs into the Public Health and Healthcare Workforce held in December 2019, had a total of 870 registrants. |
| Form 990, Part III, Line 4 | Professional Education. The primary goal of our professional education program is to affect the quality of treatment and improve patient outcomes for people with diabetes by providing quality education for those health care professionals who provide their care. We conduct professional education activities directed toward enhancing knowledge, competence, advancing skills and apprising health care professionals of the latest developments in diabetes research and clinical practice. The American Diabetes Association has been accredited to provide continuing education to health care professionals for more than 30 years and is accredited by seven accrediting boards. The ADA remains in exemplary standing with each accrediting board proving our compliance with the continuing education guidelines. The ADA continues to be at the forefront of professional continuing education for the diabetes community as an accredited provider of continuing education credit for all health care professionals on the diabetes management team. Education Recognition Program. Since the American Diabetes Association became a National Accrediting Organization NAO for Medicare in 1986, our Education Recognition Program ERP has recognized more than 6,500 diabetes self-management education and support DSMES services across the Unites States plus U.S territories including as far as Guam |
| Form 990, Part III, Line 4 | In 2019, The ADA supported over 1,500 services in more than 3,600 sites across the U.S. These services are located within hospitals, clinics, pharmacies, health departments, Federally Qualifies Health Centers FQHC, rural health clinics, Indian health services and VA hospitals among others. More than 750,000 patients were served by the ADAs Recognized services. These services are provided by over 8,000 trained professionals such as Registered Nurses, Registered Dietitians, Pharmacists, and Certified Diabetes Care and Education Specialists CDCED. The ADA received 600 applications from services to renew, expand or start a new Recognized program. The average A1C decrease was 1.28 among patients documented in Chronicle Diabetes ADAs diabetes education platform. Nutrition Programs. What Can I Eat Program. Many high risk populations do not receive culturally appropriate prevention services. To address this need, the American Diabetes Association created What Can I Eat, a community based, nutrition focused support program for adults living with type 2 diabetes, their families and caregivers. This program is designed to promote positive dietary behavior change among disparately impacted adults with type 2 diabetes. |
| Form 990, Part III, Line 4 | In 2018, the What Can I Eat program was piloted in communities across the country - including Spanish language sites and American Indian Alaska Native pilot sites. Program participants demonstrated a significant increase in non-starchy vegetable consumption 17, use of the diabetes plate method 15, and use of food labels 14 following the program. Among participants with an A1C of 9 of higher, A1C significantly decreased 2 percentage points. The American Diabetes Association will continue working to scale and expand the What Can I Eat program to reach diverse communities of PWD where they are in their communities, in their life stage, and in their circumstances. Overcoming Therapeutic Inertia Accelerating Diabetes Care for Life. Despite more than 40 new diabetes treatment options being approved since 2005, and the ADA and other organizations developing clear guidelines and treatment algorithms, there has been no measurable improvement in glycemic control. In fact, between 1999 and 2014 the percentage of diabetes patients with an A1C 9 actually increased. At the root of this problem is therapeutic inertia, The failure to establish appropriate goals and to initiate or intensify therapy when therapeutic goals are not reached. |
| Form 990, Part III, Line 4 | During 2019, the ADA worked closely with a key opinion leaders and stakeholders to execute Phase Two of the Overcoming Therapeutic Inertia OTI Initiative. In October, a Steering Committee came together for an intensive one-day meeting, charting an ambitious course for addressing this long-term and multifaceted challenge. The plan includes three primary components Research to identify, evaluate and curate the most effective approaches for overcoming therapeutic inertia in clinical practice. An Awareness and Education Campaign promoting the urgent need for addressing therapeutic inertia now while sharing of practical approaches for identifying therapeutic inertia and rapidly intensifying therapy to achieve control quickly. Systems Level Barrier Busting aimed at engaging electronic medical record companies, insurance companies and key alliance partners to provide better clinical decision-making support and reduce barriers to medication and device access, including cost and coverage confusion. As Phase Two was being developed, the ADA executed several projects to support and inform OTI goals. These included A series of interactive clinical workshops held in Los Angeles, Chicago, Baltimore and Phoenix engaging over 280 clinicians. Participants left with an increased appreciation for the impact therapeutic inertia on patient outcomes, and increased confidence in assessing treatment barriers, setting explicit and collaborative treatment goals and helping patients achieve optimal control quickly. |
| Form 990, Part III, Line 4 | A newly formed Diabetes Technology Coalition brought together 18 diabetes patient and professional organizations to address issues impacting access to diabetes technologies and devices. Working in collaboration with device manufacturers, this group is developing coverage policy proposals for pumps, monitors, software/algorithms, and telehealth to be shared with CMS Centers for Medicare and Medicaid Services and Congress. A free Online Consumer Guide tool will be available late April 2020, where anyone can search, review and compare all diabetes therapies and devices. The Overcoming Therapeutic Inertia initiative is supported by Founding Sponsors Abbott, AstraZeneca, Merck, Novo Nordisk and Sanofi, plus Strategic Sponsors Dexcom, Janssen, Lilly Diabetes and Medtronic. Learn more at professional.diabetes.org/therapeuticinertia. Diabetes Is Primary. In 2019, ADA expanded its reach to primary care providers by hosting 10 Diabetes Is Primary programs. Since the program launched its national expansion in 2018, it has reached 7,508 primary care providers through both live programs and webcasts. This results in an estimated reach of 2.7 million patients with diabetes, and 1.4 million patients with prediabetes. To date, significant increases in referrals to diabetes education have been seen 55 referred patients with prediabetes to Diabetes Prevention Programs more often after attending a program. 51 referred patients with diabetes to Diabetes Self-Management Education and Support programs more often |
| Form 990, Part III, Line 4 | Diabetes INSIDE. In 2019, the American Diabetes Association launched a new Diabetes INSIDE collaboration centered in the Greater Philadelphia region, and extending into New Jersey and Maryland. The commitments from regional health partners include the areas largest healthcare systems whose service areas cover more than 18 million people. The Diabetes INSIDE leadership team also sits on the steering committee for the American Medical Association Philadelphia Diabetes Prevention Collaborative, the AMA CDC partnership with Philadelphia health systems, non profits, community groups, business leaders, and government to identify undiagnosed prediabetes patients and enroll them into DPP programs throughout PA, DE, and NJ. Novo Nordisks Cities Changing Diabetes global initiative has also selected Philadelphia as its next U.S. city, and has included the Diabetes INSIDE team on its advisory committee. Our involvement in these three major initiatives solidifies ADAs role as a leader in population health. Diabetes INSIDE has also now published results in Diabetes Care. This publication helps propel Diabetes INSIDE as an evidence based solution to improving diabetes population health outcomes. |
| Form 990, Part III, Line 4 | WIN ADA for Women in Diabetes. The Womens Interprofessional Network of the American Diabetes Association WIN ADA held its first full day Career Development Program in Indianapolis, Indiana on Nov. 15, 2019. More than 120 women clinicians, scientists, educators, and industry professionals attended this event, which focused on the advancement of women in the diabetes field. Sessions topics included leadership, networking, grant writing, work-life integration, and more. Attendees learned career development skills that they can apply in clinical and research settings and use to improve patient outcomes. Professional Membership. Exceeded the 19,000 benchmark for the first time since 2007 and achieved a 24 YOY increase. The growth was largely attributed to the addition of 5,000 third-party sponsored Adjunct Members from India. Added new membership category Community Health Worker. Refined existing categories by sunsetting in-training and replacing it with two separate categories Student and Early Career. Moved Emeritus retired from free to a nominal fee. Grew Scientific Sessions Membership Lounge visitors to 53 YOY, the largest number of visitors ever at 3,893. |
| Form 990, Part III, Line 4 | Digital Clinical Diabetes Roundtable Discussions. In 2019, the ADA launched a new educational opportunity whose goal is to facilitate dialogue and improve understanding with primary care audiences on important subjects and topics related to diabetes prevention and treatment. The program consists of a panel of experts who are recruited to participate in a roundtable discussion on a diabetes related topic, which is video recorded and posted on the Clinical Diabetes website along with a summary paper outlining content to be discussed. A separate sponsored landing page will also be developed and reside on the Clinical Diabetes website. It will house the roundtable discussion and carry speaker biographies and affiliations. Diabetes Core Update Podcast Sponsorships. Diabetes Core Update is a monthly audio podcast series devoted to presenting and discussing the latest clinically relevant articles from the ADAs four scholarly journals Diabetes, Diabetes Care, Clinical Diabetes and Diabetes Spectrum, as well as content gleaned from other sources. New for 2019, industry stakeholders were invited to sponsor podcast episodes covering important topics of mutual interest to both the ADA and the sponsoring partner. Each podcast episode can be accessed via iTunes, RSS feed or directly through diabetes.org. |
| Form 990, Part III, Line 4 | PUBLICATIONS. The American Diabetes Association is the leading authority in creating and publishing the worlds most respected consumer magazine, books, and professional journals about diabetes. Our award winning monthly magazine, Diabetes Forecast, is the premier healthy living magazine for individuals affected by diabetes. Numerous books by well known and credentialed authors are published each year, including consumer-oriented books on diabetes treatment, self care, nutrition, cooking and psychosocial issues, as well as a variety of titles for our professional readers, such as the frequently updated Medical Management Series. The ADA also publishes four highly valued professional journals, Diabetes, Diabetes Care, Clinical Diabetes and Diabetes Spectrum, as well as numerous articles, position and other professional papers. Standards of Care Medical Affairs. The Standards of Medical Care in Diabetes Standards of Care 2019, the ADAs key clinical practice guidelines, was published in December 2018. By the end of 2019, we had expanded the number of unique users of our Standards of Medical Care in Diabetes by 10. |
| Form 990, Part III, Line 4 | The Standards of Medical Care in Diabetes 2020 was developed throughout 2019 and published in December 2019, and includes key changes The Standards of Medical Care in Diabetes 2020 includes simplified figures and tables that more easily guide providers through treatment options and individualized recommendations for treatment of cardiovascular disease based on patients pre-existing conditions. Special considerations for older adults with type 1 diabetes have also been added to address the treatment of this growing population. Because diabetes technology is rapidly changing, revised recommendations and additional supporting evidence were included in section 7, Diabetes Technology. The Standards of Medical Care in Diabetes 2019 was disseminated through multiple channels Revised interactive Standards of Care app with digital tools for providers and the full Standards of Care for mobile devices. The abridged Standards of Care for primary care providers was published simultaneously in Clinical Diabetes, and is updated continuously based on Living Standard updates. A continuing education webcast with free CE credit, along with a comprehensive slide set for professionals to use in their own presentations, updated throughout the year based on Living Standard updates. Worked with expert writing committees on the publication of Nutrition Therapy for Adults with Diabetes or Prediabetes A Consensus Report. Diabetes Care, April 2019. Diabetes Digital App Technology Benefits, Challenges, and Recommendations. A Consensus Report by the European Association for the Study of Diabetes EASD and the American Diabetes Association ADA Diabetes Technology Working Group. Diabetes Care, December 2019. 2019 Update to Management of Hyperglycemia in Type 2 Diabetes, 2018. A Consensus Report by the American Diabetes Association ADA and the European Association for the Study of Diabetes EASD. Diabetes Care, December 2019 |
| Form 990, Part III, Line 4 | Professional Journals. The American Diabetes Association continued to publish the leading scientific and medical journals related to the prevention and treatment of diabetes and diabetes complications. In 2019, Diabetes, Diabetes Care, Clinical Diabetes and Diabetes Spectrum reached more than 40,000 health care professionals, including researchers, physicians and diabetes educators, with information on cutting edge diabetes research, state of the art treatment advances and clinical treatment guidelines.The American Diabetes Associations professional journals at diabetesjournals.org received more than 12 million visits and 25 million page views, and studies published in ADA journals were cited more than 124,000 times by studies published in other science and medical publications. The 2018 impact factors for Diabetes and Diabetes Care were released in July 2019. Diabetes Care achieved the highest impact factor ever recorded for an ADA journal 15.2 and Diabetes achieved an impact factor of 7.2. In addition, according to Eigenfactor, a measure of a journals total importance to the scientific community, Diabetes Care and Diabetes are the top two journals devoted to diabetes research, and ranked second and fourth, respectively, among the 145 journals indexed in the broader field of endocrinology and metabolism. |
| Form 990, Part III, Line 4 | In January 2019, the American Diabetes Association published the Standards of Medical Care in Diabetes and the abridged version of the Standards of Care for primary care physicians in Diabetes Care and Clinical Diabetes, respectively. In addition to these critical resources for diabetes health care professionals, numerous Association papers and special topic collections were published in ADA journals in 2019, including Predicting Diabetes Using Genetic Risk Scores. https//care.diabetesjournals.org/content/42/2 February 2019. Gestational Diabetes Mellitus New Evidence for the Continuing Challenge. https//care.diabetesjournals.org/content/42/3 March 2019. Continuing Evolution of Nutritional Therapy for Diabetes. https//care.diabetesjournals.org/content/42/5 May 2019. ADA Consensus Report Nutrition Therapy for Adults with Diabetes or Prediabetes A Consensus Report. https//doi.org/10.2337/dci19 0014 May 2019. Consensus Report International Consensus on Risk Management of Diabetic Ketoacidosis in Patients with Type 1 Diabetes Treated with Sodium Glucose Cotransporter SGLT Inhibitors. https//doi.org/10.2337/dc18 2316 June 2019. International Consensus Report Clinical Targets for Continuous Glucose Monitoring Data Interpretation Recommendations From the International Consensus on Time in Range. https//doi.org/10.2337/dci19 0028 August 2019. Realizing Better Diabetes Outcomes Through a Diabetes Data Revolution. https//spectrum.diabetesjournals.org/content/32/3 August 2019. Innovative Solutions to Care for Individuals With Diabetes in Underserved Populations. https//spectrum.diabetesjournals.org/content/32/4 November 2019 |
| Form 990, Part III, Line 4 | Compendia An Important Educational Tool for Health Care ProfessionalsThe development of educational compendia continued in 2019 and are focused on covering important topics of interest to health care providers who are treating diabetes and concomitant conditions. Through the sponsorship support of our industry partners, the ADAs task is to convene a panel of experts who author individual sections of educational compendia with distribution implemented via direct mail to approximately 40,000 health care professionals who are recipients of the ADAs four professional journals, Diabetes, Diabetes Care, Clinical Diabetes and Diabetes Spectrum. The compendia are also accessed digitally via diabetes.org to enhance reach. Currently two compendia are nearing completion CV and Renal Outcomes of Type 2 Diabetes Pharmacotherapies. The Role of SMBG in Diabetes Management |
| Form 990, Part III, Line 4 | Diabetes Forecast. Each issue of our healthy living magazine, Diabetes Forecast, reaches 6 million people with diabetes and prediabetes, as well as their caregivers. The magazine and website provide readers with recipes, diabetes management tips, stories about people thriving with diabetes, research news, and in-depth looks at issues affecting the diabetes community. In 2019, diabetesforecast.org had more than 5.7 million sessions and more than 6.6 million unique pageviews. Diabetes Forecast conducted a survey to determine reader perceptions of the magazine and 80 of people with diabetes learned something in Diabetes Forecast that improved their care. The magazines content prompted readers to make lifestyle changes, such as making healthy food swaps, exercising more, and beginning to take medications as prescribed. Know Diabetes by Heart Recipe Bookazine. Working with collaborators at the American Heart Association, the Publications department created the Diabetes Heart Healthy Recipes bookazine, a collection of more than five dozen recipes designed specifically for heart health and diabetes management. Branded under the Know Diabetes by Heart Initiative, the bookazine was released to newsstands nationwide in November and available at a number of major retailers, including Walgreens, Krogers brand stores, Barnes Nobles, and many more. |
| Form 990, Part III, Line 4 | New Book Titles. In 2019, the Books Department distributed 166,632 book units to physical booksellers, online resellers, international wholesalers, direct customers, and public libraries, where constituents can access our award-winning materials free of charge. This is a 6.6 increase over 2018, and much of this growth came from popular new titles for both patients and professionals. Consumer. The Instant Pot Diabetes Cookbook. Nancy S. Hughes. The Easy Air Fryer Cookbook. Kathy Moore and Roxanne Wyss. The Mindful Guide to Managing Diabetes Your Path to Reducing Stress and Living Well. Joseph P. Napora, PhD. Diabetes Superfoods Cookbook and Meal Planner. Cassandra L. Verdi, MPH, RD and Stephanie A. Dunbar, MPH, RD. The Diabetes Cookbook Food Hub Walmart edition. American Diabetes Association. The Mediterranean Diabetes Cookbook, 2nd edition. Amy Riolo. Complete Guide to Carb Counting, 4th edition. American Diabetes Association |
| Form 990, Part III, Line 4 | Professional. Diabetes Technology Science and Practice. Boris Draznin, MD, PhD, editor. 2019 Guide to Medications for the Treatment of Diabetes Mellitus. John R. White, Jr., PharmD, PA-C, editor. Medical Management of Pregnancy Complicated by Diabetes, 6th edition. Erika Werner, MD, editor. Practical Insulin, 5th edition. American Diabetes Association. Annual Review of Diabetes 2019. American Diabetes Association. Choose Your Foods Food Lists for Diabetes. American Diabetes Association/Academy of Nutrition and Dietetics. Choose Your Foods Food Lists for Weight Management. American Diabetes Association/Academy of Nutrition and Dietetics. Choose Your Foods Count Your Carbs, 4th edition. American Diabetes Association/Academy of Nutrition and Dietetics. Choose Your Foods Match Your Insulin to Your Carbs, 4th edition. American Diabetes Association/Academy of Nutrition and Dietetics. Choose Your Foods Plan Your Meals with the Plate Method, 3rd edition. American Diabetes Association/Academy of Nutrition and Dietetics. Choose Your Foods Food Lists for Diabetes, 5th edition Escoja Sus Alimentos Listas de Alimentos para la Diabetes. American Diabetes Association/Academy of Nutrition and Dietetics |
| Form 990, Part III, Line 4 | AWARENESS EDUCATION. American Diabetes Month. Observed every November, American Diabetes Month ADM is an important element in the efforts of the American Diabetes Association to focus the nations attention on diabetes and the tens of millions of people affected by the disease. Through the ADAs flagship awareness campaign, the ADA speaks directly to constituents and rally them to increase awareness and understanding of the prevalence of diabetes and the burden it places on individual lives. During the month of November, the American Diabetes Association highlighted the numbers that make a difference in fighting diabetes. The campaign dubbed Count Me In was supported by national Sponsors Colgate Total and CVS Pharmacy. Count Me In brought to life stories from all walks of life with diabetes and demonstrated why numbers are so critical in ending this disease. From the number of advocates voices fighting for those living with diabetes to the number of research breakthroughs towards a cure. From the number of people who know their risk, to the numbers people see on their blood glucose meter. Numbers like these can change everything. |
| Form 990, Part III, Line 4 | Throughout the month, we used captivating videos, emails, social media posts and more to reach people nationwide. We encouraged people to change their numbers by taking the Type 2 Diabetes Risk Test, signing up to be an advocate, or even cooking a healthy meal offering multiple ways to get involved. The team promoted the campaign using various mediums, ADA channels, and partner outreach. The campaign garnered nearly 56,300 pageviews to the ADM landing page, and more than 1.3 million impressions through social media. Know Diabetes by Heart The American Diabetes Association and the American Heart Association, along with other industry leaders continued to raise awareness and understanding of the link between diabetes and cardiovascular disease through its collaborative initiative Know Diabetes by Heart. In 2019, the initiative, aimed to reduce cardiovascular deaths, heart attacks and strokes in people living with type 2 diabetes, expanded its reach through the following. Facebook premiere, Satellite Media Tour and educational launches at ADA. Scientific Sessions. Radio integrations through the Tom Joyner Morning Show Guest series with Ask Tom web QA and GetUp Mornings with gospel singer and radio show host Erica Campbell. Ambassador recruitment efforts. Type2 Heart to Heart talk event and media day with actress Angela Bassett . Added 12 new alliances. Learn more about the Know Diabetes by Heart initiative at https//knowdiabetesbyheart.org/. |
| Form 990, Part III, Line 4 | Diabetes Food Hub. Diabetes food Hub continued to be a popular destination for people living with diabetes, caregivers, and health care professionals. In 2019, the food and recipe website received more than 1.3 million unique visitors and more than 5 million pageviews, with nearly half of those users finding the site via search. The site itself also saw a number of enhancements that improved search, navigation, and personalization features, and now boasts more than 1,000 recipes, with dozens of new recipes added on a monthly basis. Because of this, Diabetes Food Hub continues to be a popular opportunity for sponsors, and collaborations with a number of companies, including Saladmaster, Elior, and Luvo Foods, were activated in 2019. Signature Campaigns and Events. Our special events provide another opportunity for the American Diabetes Association to raise awareness about diabetes and are an integral part of our strategic vision to eradicate the disease. In 2019, all ADA events, including our signature events Step Out Walk to Stop Diabetes and Tour de Cure, incorporated our educational message to bring awareness of the seriousness of this diabetes epidemic and raised more than 2.4 million. |
| Form 990, Part III, Line 4 | Walmart Wellness Days. The ADA has partnered with Walmart to help provide resources, staff and volunteers for their Walmart Wellness Days since 2017. We have distributed 2.4M educational pieces in store for use at the screening table during Wellness events. Materials were shipped directly to all 4,700 stores for each Wellness event day since September 2017. In 2019, we supported 412 stores on each Wellness event day with over 834 ADA staff and volunteers to assist the stores and serve as a resource in the community. Since our partnership began, we have mobilized nearly 2,800 ADA staff and volunteers to attend Wellness events, supporting the stores and driving awareness in the local communities. ADVOCACY. Speaking Up for All People with Diabetes. The American Diabetes Associations advocacy efforts and achievements are at the core of creating effective and lasting change for people living with and at risk for diabetes. Raising our voices from Capitol Hill to state houses to court houses across the country, our dedicated Diabetes Advocates continue to drive momentum in our ongoing fight to Stop Diabetes. Our advocacy work gives people with diabetes, their families and health care professionals the power to influence public policy issues that affect people with diabetes at the local, state and national levels. |
| Form 990, Part III, Line 4 | Our primary goals are to increase federal and state funding for diabetes prevention, treatment and research, to prevent diabetes, to improve the availability of accessible, adequate and affordable health care, to end the discrimination people with diabetes face at school, work and elsewhere in their lives. We have trained advocates around the country who represent those with diabetes who need a raised voice to protect their rights. An ever-growing volunteer network of attorneys, health care professionals and advanced school advocates help thousands facing discrimination because of their diabetes. In 2019, the ADA Handled nearly 1,800 discrimination cases, providing expert legal assistance to people with diabetes facing unfair treatment at school, on the job, in custody and detention, and in other parts of daily life. In the nearly 20-year history of the Legal Advocate Program, ADA has helped with more than 25K cases of discrimination. |
| Form 990, Part III, Line 4 | Increased funding for National Institute of Diabetes and Digestive and Kidney Diseases by 84.5 million and for CDCs National Diabetes Prevention Program by 2 million in federal fiscal year 2020 and achieved tremendous bipartisan support of the Special Diabetes Program SDP, with 378 representatives and 68 senators signing letters supporting SDP renewal. Impacted nearly 21 million lives with 99 state legislative and regulatory wins an increase of 24 over the previous year. Convened over 200 people impacted by diabetes, health care professionals, researchers at Call to Congress to advocate on Capitol Hill for increased federal funding for diabetes research, affordable insulin, health care access and coverage and more. Expanded our Advocates in Action grassroots activities to include more advocates than ever before engaging 500,000 grassroots advocates, broadcasting a dozen webinars with a nearly 500 increase in number of advocates participating. |
| Form 990, Part III, Line 4 | The collaboration between Sun Life Financial and American Diabetes Association to deliver the 2019 Call to Congress, provided the opportunity to elevate our shared mission. We engaged the U.S. Congress, supported advocates of critical diabetes related legislation, highlighted the ADAs youth advocates during Call to Congress and executed an exclusive Call to Congress at home. In Late August we closed out with an exceptional Diabetes Advocacy Day featuring representatives from US Sen. Susan Collins office together with our Diabetes Advocates and a finale, Diabetes Awareness Night with the Portland Sea Dogs, both hosted and sponsored by Sun Life. |
| Form 990, Part III, Line 4 | Were Connected for Life. The American Diabetes Association is the nations leading voluntary health organization fighting to bend the curve on the diabetes epidemic to help people live a better life and thrive until we ultimately find a cure. The moving force behind the work of the American Diabetes Association is a network of more than 565,000 volunteers, including our dedicated Board of Directors, a membership of more than 540,000 people with diabetes, their families and caregivers, a professional society of nearly 20,000 health care professionals, as well as more than 450 staff members. Diabetes has brought us all together, what we do next makes us Connected for Life. Learn more about the American Diabetes Association at diabetes.org. |
| Form 990, Part III, Line 4 | Other Program Services revenue reported in Line 4d 1,816,333 relates to the investment in real estate. This investment represents a 1998 donor bequest that restricted the Association from selling the property for 25 years. A portion of the property is leased to corporations and derives monthly income that is reported in investment income. 249,411 relates to rental income received from tenants of subleased office space. |
| Form 990, Part VI, Section A, Line 6, 7a | The American Diabetes Association has established the voting membership of the Association as the Voting Members. The Voting Members are comprised of all of the members of the Board of Directors and additional delegates. The Voting Members vote on the election of the organizations governing body each year. No governance decisions are reserved to or subject to approval by the membership. |
| Form 990, Part VI, Section B, Line 11 | IRS Review Process by the Governing Body The American Diabetes Association Board of Directors assigns the Audit Committee the oversight responsibility of the IRS Form 990 and its supplemental schedules prior to completion. After review by management and BDO, the final signed 990 was provided to the Associations Board of Directors prior to filing with the IRS. |
| Form 990, Part VI, Section B, Line 12 | Managing Conflict of Interest To identify potential conflicts of interest with appropriate due diligence, Officers, Directors, and members of select Board appointed committees and their related subcommittees, journal/periodical editors, and senior staff of the Association must annually disclose any potential conflicts of interest. The American Diabetes Associations Audit Committee and senior staff in Legal Affairs manage the disclosure and monitoring processes. Through review of the annual disclosures and review of the agendas of the relevant Board ,Committee and other meetings, appropriate efforts are made in advance of the meetings to identify potential conflicts of interest. Each person also has the responsibility to report his/her own conflicts of interest actual or perceived as those conflicts may arise during a meeting. Based on the situation, senior volunteers and staff presiding over the discussion are responsible to ensure appropriate action is taken for the individual to publicly disclose the conflict, for the individual to recuse him or herself from the discussion, vote or room as appropriate and to ensure the disclosure and action is documented in the minutes of the meeting. |
| Form 990, Part VI, Section B, Line 15a | Compensation Process Annually, The American Diabetes Association Principal Officers Chair of the Board President, Medicine Science President, Health Care Education and Secretary/Treasurer are responsible for establishing executive compensation consistent with the guidelines approved by the Compensation Committee. The Principal Officers of the Association use a Compensation Committee, compensation studies and an in dependent consultant to establish the compensation of the Chief Executive Officer and other Key employees. The Chief Executive Officer is responsible for the individual performance evaluations of staff officers and key employees, and establishes the total compensation for key employees subject to the guidelines established by the Executive Compensation Committee. The Executive Compensation Committee develops guidelines for the key employee executive positions listed below following the process described in the IRS intermediate sanctions rules when determining compensation. Specifically, the Committee 1 Is composed entirely of non-employee volunteer leaders who have no familial, business or significant personal relationships with the American Diabetes Association or its executives 2 Assesses the short-term and long-term contribution and performance of CEO and other senior executive employees in meeting very definitive and quantifiable objectives focused on the Associations mission success 3 Engages an independent compensation consulting firm to compile appropriate comparability data including compensation market information for peers with whom the American Diabetes Association competes for executive talent. 4 The Committee reviews this data in detail for all elements of each executives total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executives hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executives entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions 5 Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting These minutes are reviewed, revised if necessary and approved at the following meeting of the Executive Compensation Committee. The process described above was used to establish compensation for the following positions Chief Executive Officer, Chief Field Development Officer, Chief Financial Officer, Chief Medical Officer, Chief Revenue Officer, Executive Vice President of Government Affairs Advocacy, Senior Vice President and Chief Technology Officer, Senior Vice President of Human Resources, Senior Vice President of Marketing Communications. The total compensation of executives at the American Diabetes Association is specifically designed to attract and retain the highest qualified executive talent to fulfill the critically important mission to prevent and cure diabetes and to improve the lives of all people affected by diabetes. |
| Form 990, Part VI, Section C, Line 17 | Filing Jurisdiction Registration Number Alabama-AL97-256, Alaska-N/A, Arizona-10145, Arkansas-N/A, California-CT81471, Colorado-2002-3003670, Connecticut-5084, District of Columbia-981855, Florida-CH1618, Georgia-CH-001422, Hawaii-N/A, Illinois-CO 01-025537, Indiana-000103829-000, Kansas- 177-257-3SO, Kentucky-45, Louisiana-N/A, Maine- CO-1247, Maryland-102, Massachusetts-029317, Michigan-MICS 10326, Minnesota-N/A, Mississippi- 100000294, Missouri- CO-021-87, New Hampshire-5006, New Jersey- CH-0581900, New Mexico-N/A, New York- 1/30/1965, North Carolina- SL000618, North Dakota-7894, Ohio- 01-0239, Oklahoma- N/A, Oregon- 16402, Pennsylvania- No. 21, Rhode Island-95-233, South Carolina-641, Tennessee-5104, Utah- 6536093-Char, Virginia-N/A, Washington-7664, West Virginia-N/A, Wisconsin- 3020-800. |
| Form 990, Part VI, Section C, Line 19 | The following information is available on the American Diabetes Associations website http//www.diabetes.org Board of Directors, Audited Consolidated Financial Statements, Latest 990 filed, Whistleblower policy. Available subject to request to the American Diabetes Association Legal Affairs department are the following Current Bylaws, Articles of Incorporation, Conflict of Interest Policy. |
| Form 990, Part VII, Section A, Line 1a | The Chief Executive Officer of the Association is a non-voting member of the Board of Directors. |
| Form 990, Part VI, Section A, Line 4 | The bylaws of the American Diabetes Association were revised in 2019. Changes to the bylaws include 1 Community and Volunteer Development Committee members added to Voting Members, 2 Immediate Past Principal Officers removed from Board of Directors, 3 At-Large Directors expanded from six to ten, and 4 Chief Scientific, Medical and Mission Officer removed from Board of Directors. |
| Form 990, Part VI, Section A, Line 9 | Employment term for William Cefalu, Chief Scientific, Medical and Mission Officer, ended on August 15, 2019. Employment term for Vignesh Clingam, Chief Marketing and Digital Officer, started on February 28, 2019 and ended on November 15, 2019. Employment term for Tony Chiles, Chief Information Officer, ended on September 20, 2019. Employment term for Tony Webster, Chief Human Resources Officer, ended on September 10, 2019. |
| Software ID: | 19009610 |
| Software Version: | 19.2.1.0 |