Attach to Form 990 or Form 990-EZ.
Go to
www.irs.gov/Form990 for instructions and the latest information.
| (i) Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 10 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
|
Total |
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Calendar year (or fiscal year beginning in) ![]() |
(a) 2015 | (b) 2016 | (c) 2017 | (d) 2018 | (e) 2019 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. | ||||||
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.... | ||||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 4 | Total. Add lines 1 through 3 | ||||||
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f).. | ||||||
| 6 | Public support. Subtract line 5 from line 4. | ||||||
Calendar year
(or fiscal year beginning in) ![]() |
(a) 2015 | (b) 2016 | (c) 2017 | (d) 2018 | (e) 2019 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | ||||||
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | ||||||
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | ||||||
| 11 | Total support. Add lines 7 through 10 | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2015 | (b) 2016 | (c) 2017 | (d) 2018 | (e) 2019 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | 139,500 | 270,749 | 487,655 | 822,299 | 912,756 | 2,632,959 |
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose | 350 | 69,557 | 29,154 | 34,890 | 133,951 | |
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513 ..... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge | ||||||
| 6 | Total. Add lines 1 through 5 | 139,850 | 270,749 | 557,212 | 851,453 | 947,646 | 2,766,910 |
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | 2,766,910 | |||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2015 | (b) 2016 | (c) 2017 | (d) 2018 | (e) 2019 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | 139,850 | 270,749 | 557,212 | 851,453 | 947,646 | 2,766,910 |
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | 0 | |||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | 0 | |||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on. | 0 | |||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | 0 | |||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | 139,850 | 270,749 | 557,212 | 851,453 | 947,646 | 2,766,910 |
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
||||
| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
||||
| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
|||||
| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by .035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | ||
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
||
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | ||
| 4 Amounts paid to acquire exempt-use assets | ||
| 5 Qualified set-aside amounts (prior IRS approval required) | ||
| 6 Other distributions (describe in Part VI). See instructions | ||
| 7Total annual distributions. Add lines 1 through 6. | ||
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
||
| 9 Distributable amount for 2019 from Section C, line 6 | ||
| 10 Line 8 amount divided by Line 9 amount | ||
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2019 |
(iii) Distributable Amount for 2019 |
|
|---|---|---|---|---|
| 1 Distributable amount for 2019 from Section C, line 6 | ||||
|
2
Underdistributions, if any, for years prior to 2019 (reasonable cause required-- explain in Part VI). See instructions. |
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| 3 Excess distributions carryover, if any, to 2019: | ||||
| a From 2014....... | ||||
| b From 2015....... | ||||
| c From 2016....... | ||||
| d From 2017....... | ||||
| e From 2018....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2019 distributable amount | ||||
|
i
Carryover from 2014 not applied (see instructions) |
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| j Remainder. Subtract lines 3g, 3h, and 3i from 3f. | ||||
| 4Distributions for 2019 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2019 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from 4. | ||||
|
5
Remaining underdistributions for years prior to 2019, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
6
Remaining underdistributions for 2019. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
7 Excess distributions carryover to 2020. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a Excess from 2015..... | ||||
| b Excess from 2016..... | ||||
| c Excess from 2017..... | ||||
| d Excess from 2018..... | ||||
| e Excess from 2019..... | ||||
| Facts And Circumstances Test |
|---|
| Return Reference | Explanation |
|---|
| Software ID: | 19009610 |
| Software Version: | 19.2.1.0 |
Attach to Form 990 or 990-EZ.
Go to www.irs.gov/Form990 for the latest information.
| Return Reference | Explanation |
|---|---|
| Form 990, Part III, Line 4d | Program Service Expenses 141,723, Grants and allocations 110,000, Revenue 32,290 September 2019 Metabolic University, an interactive, didactic program designed to provide training to dietitians and other medical professionals working in the field of inborn errors of metabolism. The workshop focused heavily on experience-based small group participation and discussion, diet calcuations and counseling in a digital learning format. |
| Form 990, Part III, Line 4d | Program Service Expenses 206,415, Grants and allocations 207,143, Revenue 0 My 2019 Argentina--Speakers include expert metabolic clinicians and researchers from South America and the U.S. This program offered the opportunity to network and share ideas about managing children and adults with PKU. Participants learned to identify the childhood and adult burden of disease identify neorupsyciatric symptoms due to high phenylalanine explore solutions to PKU management and learn updated research on PKU. |
| Form 990, Part III, Line 4d | Program Service Expenses 7,607, Grants and allocations 12,500, Revenue 0 A series of one-page summaries on the management of metabolic disorders. There are eight disorders covered in the At A Glance series phenylketonuria homocystinuria hereditary tyrosinemia type 1 maple syrup urine disease glutaric acidemia propionic acidemia urea cycle disorders and fatty acid oxidation disorders. The goal of creating At A Glance is to provide an easy-to-read reference with the basic information necessary to manage the diets of individuals with select metabolic disorders. |
| Form 990, Part III, Line 4d | Program Service Expenses 43,314, Grants and allocations 45,754, Revenue 0 Memphis Advisory Board--WIth the introduction of Palynziq therapy for adults with PKU, the role of the metabolic dietitian is changing from that of prescribing a phenylalanine-restricted diet to promoting higher protein intake once a patients blood phenylalanine is reduced. This exciting treatment option is unfamiliar to PKU dietitians and presents new educational challenges about diet during Palynziq therapy. Met Ed held a focus group prior to the start of the Abbott Metabolic Educational Conference. The focus group consisted of metabolic dietitians who were not part of the clinical trials and are therefore relatively new to managing patients with Palynziq. The focus group assessed the educational needs of patients on Palynziq so that materials can be developed. |
| Form 990, Part III, Line 4d | Program Service Expenses 53,394, Grants and allocations 53,628, Revenue 0 Memphis Dinner Program--A dinner session was held the first night of the Abbott Nutrition Metabolic Conference. Met Ed developed and implemented the program. An adult patient with PKU who participated in the clinicial trials for Palynziq told her story, guided by questions from the session moderator. The audience was surveyed via live polling technology concerning how they handle issues in their Palynzig clinics. The moderator identified areas of variation in practice and areas of agreement and compared polling results to current published management guidance. |
| Form 990, Part III, Line 4d | Program Service Expenses 49,992, Grants and allocations 50,000, Revenue 0 Peer-to-Peer Slide Deck--Met Ed developed a slide deck to educate dietitians who are either following patients treated with Palynziq or considering it. The deck contains an overview about Palynziq and focuses on practical aspects of the nutritional management of Palynziq patients. |
| Form 990, Part III, Line 4d | Program Service Expenses 5,010, Grants and allocations 5,010, Revenue 0 Vitaflo April 2019 Meeting--Met Ed facilitated a meeting focused on providing an overview of nutritional management educational tools used in PKU from the perspectives of clinicians, parents and patients. |
| Form 990, Part III, Line 4d | Program Service Expenses 32,632, Grants and allocations 30,160, Revenue 0 Vitaflo October 2019 Educational Summit--Met Ed facilitated two eight-hour programs designed for Metabolic Dietitians and other health care professionals to educate them about current practices on the nutrition management of inherited metabolic diseases. The learning objectives for each disorder included a review of the pathophysiology discussion of curreent nutrition and medical management understanding the role medical food and cofactors. |
| Form 990, Part III, Line 4d | Program Service Expenses 9,759, Grants and allocations 0, Revenue 9,850 Stepping Up Your Protein--This book is a guide for learning about adding protein to ones diet. The traditional diet management of PKU is based on limiting protein from food while taking a metabolic formula to complete ones protein needs. With medical management now available to help maintain blood Phenylaline in the target range. This tool is intended to help with the transition from ones current diet to meeting ones protein needs with food in conjunction with medical management. |
| Software ID: | 19009610 |
| Software Version: | 19.2.1.0 |