TY 2019 Form 990

(A) Name and title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)	(E) Reportable compensation from related organizations (W-2/1099-MISC)	(F) Estimated amount of other compensation from the organization and related organizations
(1) JACK MAHLER MD...................................................................... CHIEF INVESTMENT OFFICER	40.0 ................. 0.0			X			1,129,788	454,050
(2) PRESTON CAMPBELL MD...................................................................... PRESIDENT & CEO	40.0 ................. 0.0	X	X				1,296,038	160,730
(3) MARC S GINSKY...................................................................... EXECUTIVE VP, COO & SECRETARY	40.0 ................. 1.0		X				798,697	196,290
(4) ERIC KOEHRSEN...................................................................... MANAGING DIRECTOR, INVESTMENTS	40.0 ................. 0.0				X		724,272	181,211
(5) EARL LEE...................................................................... MANAGING DIRECTOR, INVESTMENTS	40.0 ................. 0.0				X		795,644	31,560
(6) VERA H TWIGG...................................................................... EXECUTIVE VP & CFO	40.0 ................. 1.0		X				616,492	116,663
(7) MICHAEL P BOYLE MD...................................................................... SR.VP,THERAPEUTICS DEVELOPMENT	40.0 ................. 0.0			X			572,626	110,366
(8) WILLIAM SKACH MD...................................................................... SENIOR VP, RESEARCH AFFAIRS	40.0 ................. 0.0			X			553,576	108,709
(9) BRUCE MARSHALL MD...................................................................... SENIOR VP, CLINICAL AFFAIRS	40.0 ................. 0.0			X			570,534	44,951
(10) CHRIS GEGELYS...................................................................... SENIOR VP, CHIEF LEGAL OFFICER	40.0 ................. 1.0				X		508,694	76,727
(11) DRUCY S BOROWITZ MD...................................................................... SENIOR VP, COMMUNITY AFFAIRS	40.0 ................. 0.0				X		542,352	28,284
(12) ANTHONY DURMOWICZ MD...................................................................... VP, CLINICAL DEVELOPMENT	40.0 ................. 0.0				X		519,124	45,129
(13) C RICHARD MATTINGLY...................................................................... FORMER OFFICER	0.0 ................. 0.0					X	101,212	0
(14) LOUIS A DEFALCO...................................................................... VICE CHAIR	5.0 ................. 0.0	X					0	0
(15) RICHARD J GRAY ESQ...................................................................... VICE CHAIR	5.0 ................. 0.0	X					0	0
(16) CAROLE B GRIEGO MD...................................................................... TRUSTEE	3.0 ................. 0.0	X					0	0
(17) SUSAN L HOOK...................................................................... TRUSTEE	3.0 ................. 0.0	X					0	0

(A) Name and business address	(B) Description of services	(C) Compensation
VERTEX PHARMACEUTICALS INC, 50 NORTHERN AVE BOSTON,MA02210	CONTRACTED RESEARCH	12,500,000
CLINICAL RESEARCH SEQUENCING PLATFO, 415 MAIN STREET CAMBRIDGE,MA02142	CONTRACTED RESEARCH	6,441,110
CORBUS PHARMACEUTICALS INC, 100 RIVER RIDGE DRIVE NORWOOD,MA02062	CONTRACTED RESEARCH	5,000,000
ARCTURUS THERAPEUTICS INC, 10628 SCIENCE CENTER DRIVE SUITE 2 SAN DIEGO,CA92121	CONTRACTED RESEARCH	4,100,901
Laurent Pharmaceuticals Inc, 355 PEEL STREET SUITE 503 MONTREAL,QUEBECH3C 2G9 CA	CONTRACTED RESEARCH	3,600,000
2 Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization 125

- TIN:

SCHEDULE A
(Form 990 or 990EZ)

Department of the Treasury
Internal Revenue Service

Public Charity Status and Public Support

Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
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Attach to Form 990 or Form 990-EZ.
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Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public
Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Reason for Public Charity Status (All organizations must complete this part.) See instructions.

The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)

A church, convention of churches, or association of churches described in section 170(b)(1)(A)(i).

A school described in section 170(b)(1)(A)(ii). (Attach Schedule E (Form 990 or 990-EZ).)

A hospital or a cooperative hospital service organization described in section 170(b)(1)(A)(iii).

A medical research organization operated in conjunction with a hospital described in section 170(b)(1)(A)(iii). Enter the hospital's name, city, and state:

An organization operated for the benefit of a college or university owned or operated by a governmental unit described in section 170(b)(1)(A)(iv). (Complete Part II.)

A federal, state, or local government or governmental unit described in section 170(b)(1)(A)(v).

An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi). (Complete Part II.)

A community trust described in section 170(b)(1)(A)(vi). (Complete Part II.)

An agricultural research organization described in 170(b)(1)(A)(ix) operated in conjunction with a land-grant college or university or a non-land grant college of agriculture. See instructions. Enter the name, city, and state of the college or university:

An organization that normally receives: (1) more than 331/3% of its support from contributions, membership fees, and gross receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)

An organization organized and operated exclusively to test for public safety. See section 509(a)(4).

An organization organized and operated exclusively for the benefit of, to perform the functions of, or to carry out the purposes of one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2). See section 509(a)(3). Check the box in lines 12a through 12d that describes the type of supporting organization and complete lines 12e, 12f, and 12g.

Type I. A supporting organization operated, supervised, or controlled by its supported organization(s), typically by giving the supported organization(s) the power to regularly appoint or elect a majority of the directors or trustees of the supporting organization. You must complete Part IV, Sections A and B.

Type II. A supporting organization supervised or controlled in connection with its supported organization(s), by having control or management of the supporting organization vested in the same persons that control or manage the supported organization(s). You must complete Part IV, Sections A and C.

Type III functionally integrated. A supporting organization operated in connection with, and functionally integrated with, its supported organization(s) (see instructions). You must complete Part IV, Sections A, D, and E.

Type III non-functionally integrated. A supporting organization operated in connection with its supported organization(s) that is not functionally integrated. The organization generally must satisfy a distribution requirement and an attentiveness requirement (see instructions). You must complete Part IV, Sections A and D, and Part V.

Check this box if the organization received a written determination from the IRS that it is a Type I, Type II, Type III functionally integrated, or Type III non-functionally integrated supporting organization.

Enter the number of supported organizations ...............................

Provide the following information about the supported organization(s).

(i) Name of supported organization	(ii) EIN	(iv) Is the organization listed in your governing document?		(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)
(i) Name of supported organization	(ii) EIN	Yes	No	(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)


Total

For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.

Cat. No. 11285F

Schedule A (Form 990 or 990-EZ) 2019

Page 2

Part II

Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2015	(b) 2016	(c) 2017	(d) 2018	(e) 2019	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") ..	122,210,533	117,148,751	110,650,273	108,058,591	108,894,890	566,963,038
2	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....						0
3	The value of services or facilities furnished by a governmental unit to the organization without charge..						0
4	Total. Add lines 1 through 3	122,210,533	117,148,751	110,650,273	108,058,591	108,894,890	566,963,038
5	The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f)..						0
6	Public support. Subtract line 5 from line 4.						566,963,038

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2015	(b) 2016	(c) 2017	(d) 2018	(e) 2019	(f) Total
7	Amounts from line 4..	122,210,533	117,148,751	110,650,273	108,058,591	108,894,890	566,963,038
8	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...	75,041,033	64,638,761	67,686,719	66,681,682	95,519,254	369,567,449
9	Net income from unrelated business activities, whether or not the business is regularly carried on..						0
10	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.)..	16,333,174	14,060,761	15,116,982	15,369,965	15,976,419	76,857,301
11	Total support. Add lines 7 through 10						1,013,387,788

Gross receipts from related activities, etc. (see instructions) ..................

52,401,021

First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here........................................ right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2019 (line 6, column (f) divided by line 11, column (f)) .........

55.947 %

Public support percentage for 2018 Schedule A, Part II, line 14 ...............

90.305 %

16a

33 1/3% support test—2019. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization ....................... right arrow

33 1/3% support test—2018. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization ..................... right arrow

17a

10%-facts-and-circumstances test—2019. If the organization did not check a box on line 13, 16a, or 16b, and line 14
is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain
in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported
organization ..................................................... right arrow

10%-facts-and-circumstances test—2018. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line
15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here.
Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly
supported organization ................................................ right arrow

Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow

Schedule A (Form 990 or 990-EZ) 2019

Page 3

Part III

Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2015	(b) 2016	(c) 2017	(d) 2018	(e) 2019	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2	Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose
3	Gross receipts from activities that are not an unrelated trade or business under section 513 .....
4	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5	The value of services or facilities furnished by a governmental unit to the organization without charge
6	Total. Add lines 1 through 5
7a	Amounts included on lines 1, 2, and 3 received from disqualified persons
b	Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c	Add lines 7a and 7b..
8	Public support. (Subtract line 7c from line 6.)

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2015	(b) 2016	(c) 2017	(d) 2018	(e) 2019	(f) Total
9	Amounts from line 6...
10a	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b	Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c	Add lines 10a and 10b.
11	Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..
13	Total support. (Add lines 9, 10c, 11, and 12.)..

First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization,
check this box and stop here............................................. right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2019 (line 8, column (f) divided by line 13, column (f)) .........

Public support percentage from 2018 Schedule A, Part III, line 15 ...............

Section D. Computation of Investment Income Percentage

Investment income percentage for 2019 (line 10c, column (f) divided by line 13, column (f)) ......

Investment income percentage from 2018 Schedule A, Part III, line 17 .............

19a

331/3% support tests—2019. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ....... right arrow

33 1/3% support tests—2018. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization .... right arrow

Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions .... right arrow

Schedule A (Form 990 or 990-EZ) 2019

Page 4

Part IV

Supporting Organizations

(Complete only if you checked a box on line 12 of Part I. If you checked 12a of Part I, complete Sections A and B. If you checked 12b of Part I, complete Sections A and C. If you checked 12c of Part I, complete Sections A, D, and E. If you checked 12d of Part I, complete Sections A and D, and complete Part V.)

Section A. All Supporting Organizations

Yes

Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.

Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).

Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer (b) and (c) below.

Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.

Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.

Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked 12a or 12b in Part I, answer (b) and (c) below.

Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.

Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.

Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer (b) and (c) below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).

Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?

Substitutions only. Was the substitution the result of an event beyond the organization's control?

Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.

Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ) .

Did the organization make a loan to a disqualified person (as defined in section 4958) not described in line 7? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ).

Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.

Did one or more disqualified persons (as defined in line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.

Did a disqualified person (as defined in line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.

10a

Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.

10a

Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).

10b

Schedule A (Form 990 or 990-EZ) 2019

Page 5

Part IV

Supporting Organizations (continued)

Yes

Has the organization accepted a gift or contribution from any of the following persons?

A person who directly or indirectly controls, either alone or together with persons described in (b) and (c) below, the governing body of a supported organization?

11a

A family member of a person described in (a) above?

11b

A 35% controlled entity of a person described in (a) or (b) above? If “Yes” to a, b, or c, provide detail in Part VI.

11c

Section B. Type I Supporting Organizations

Yes

Did the directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.

Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.

Section C. Type II Supporting Organizations

Yes

Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).

Section D. All Type III Supporting Organizations

Yes

Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?

Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).

By reason of the relationship described in (2), did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.

Section E. Type III Functionally-Integrated Supporting Organizations

Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):

The organization satisfied the Activities Test. Complete line 2 below.

The organization is the parent of each of its supported organizations. Complete line 3 below.

The organization supported a governmental entity. Describe in Part VI how you supported a government entity (see instructions)

Activities Test. Answer (a) and (b) below.

Yes

Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.

Did the activities described in (a) constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.

Parent of Supported Organizations. Answer (a) and (b) below.

Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations? Provide details in Part VI.

Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.

Schedule A (Form 990 or 990-EZ) 2019

Page 6

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations

Check here if the organization satisfied the Integral Part Test as a qualifying trust on Nov. 20, 1970 (explain in Part VI). See instructions. All other Type III non-functionally integrated supporting organizations must complete Sections A through E.

	Section A - Adjusted Net Income		(A) Prior Year	(B) Current Year (optional)
1	Net short-term capital gain	1
2	Recoveries of prior-year distributions	2
3	Other gross income (see instructions)	3
4	Add lines 1 through 3	4
5	Depreciation and depletion	5
6	Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions)	6
7	Other expenses (see instructions)	7
8	Adjusted Net Income (subtract lines 5, 6 and 7 from line 4)	8

	Section B - Minimum Asset Amount		(A) Prior Year	(B) Current Year (optional)
1	Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year):	1
a	Average monthly value of securities	1a
b	Average monthly cash balances	1b
c	Fair market value of other non-exempt-use assets	1c
d	Total (add lines 1a, 1b, and 1c)	1d
e	Discount claimed for blockage or other factors (explain in detail in Part VI):
2	Acquisition indebtedness applicable to non-exempt use assets	2
3	Subtract line 2 from line 1d	3
4	Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions).	4
5	Net value of non-exempt-use assets (subtract line 4 from line 3)	5
6	Multiply line 5 by .035	6
7	Recoveries of prior-year distributions	7
8	Minimum Asset Amount (add line 7 to line 6)	8

	Section C - Distributable Amount		Current Year
1	Adjusted net income for prior year (from Section A, line 8, Column A)	1
2	Enter 85% of line 1	2
3	Minimum asset amount for prior year (from Section B, line 8, Column A)	3
4	Enter greater of line 2 or line 3	4
5	Income tax imposed in prior year	5
6	Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions)	6

Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (see instructions)

Schedule A (Form 990 or 990-EZ) 2019

Page 7

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)

Section D - Distributions		Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity
3 Administrative expenses paid to accomplish exempt purposes of supported organizations
4 Amounts paid to acquire exempt-use assets
5 Qualified set-aside amounts (prior IRS approval required)
6 Other distributions (describe in Part VI). See instructions
7Total annual distributions. Add lines 1 through 6.
8 Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions
9 Distributable amount for 2019 from Section C, line 6
10 Line 8 amount divided by Line 9 amount

Section E - Distribution Allocations (see instructions)		(i) Excess Distributions	(ii) Underdistributions Pre-2019	(iii) Distributable Amount for 2019
1 Distributable amount for 2019 from Section C, line 6
2 Underdistributions, if any, for years prior to 2019 (reasonable cause required-- explain in Part VI). See instructions.
3 Excess distributions carryover, if any, to 2019:
a From 2014.......
b From 2015.......
c From 2016.......
d From 2017.......
e From 2018.......
fTotal of lines 3a through e
g Applied to underdistributions of prior years
h Applied to 2019 distributable amount
i Carryover from 2014 not applied (see instructions)
j Remainder. Subtract lines 3g, 3h, and 3i from 3f.
4Distributions for 2019 from Section D, line 7:
$
a Applied to underdistributions of prior years
b Applied to 2019 distributable amount
c Remainder. Subtract lines 4a and 4b from 4.
5 Remaining underdistributions for years prior to 2019, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions.
6 Remaining underdistributions for 2019. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions.
7 Excess distributions carryover to 2020. Add lines 3j and 4c.
8 Breakdown of line 7:
a Excess from 2015.....
b Excess from 2016.....
c Excess from 2017.....
d Excess from 2018.....
e Excess from 2019.....

Schedule A (Form 990 or 990-EZ) (2019)

Schedule A (Form 990 or 990-EZ) 2019

Page 8

Part VI

Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).

Facts And Circumstances Test

Return Reference	Explanation
SCHEDULE A, PART II, LINE 12 - GROSS RECEIPTS FROM RELATED ACTIVITIES	THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATION RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. THE FOUNDATION MANAGES A POST-MARKETING SAFETY STUDY MANDATED BY THE FOOD & DRUG ADMINISTRATION (FDA) IN ORDER TO ENSURE THE SAFETY OF PEOPLE WITH CF. FEES FOR THIS SERVICE ARE REPORTED ON LINE 12. REIMBURSEMENTS FOR DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE RELATED COSTS ARE REPORTED ON LINE 12.

Return Reference

Explanation

SCHEDULE A, PART II, LINE 12 - GROSS RECEIPTS FROM RELATED ACTIVITIES

THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATION RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. THE FOUNDATION MANAGES A POST-MARKETING SAFETY STUDY MANDATED BY THE FOOD & DRUG ADMINISTRATION (FDA) IN ORDER TO ENSURE THE SAFETY OF PEOPLE WITH CF. FEES FOR THIS SERVICE ARE REPORTED ON LINE 12. REIMBURSEMENTS FOR DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE RELATED COSTS ARE REPORTED ON LINE 12.

Schedule A (Form 990 or 990-EZ) 2019

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE C
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527

SchCMd Bullet

Complete if the organization is described below. SchCMd Bullet

Attach to Form 990 or Form 990-EZ.
SchCMd Bullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public
Inspection

If the organization answered "Yes" on Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet

Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet

Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet

Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" on Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet

Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet

Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" on Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet

Section 501(c)(4), (5), or (6) organizations: Complete Part III.

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I-A

Complete if the organization is exempt under section 501(c) or is a section 527 organization.

Provide a description of the organization’s direct and indirect political campaign activities in Part IV (see instructions for definition of “political campaign activities")

Political campaign activity expenditures (see instructions) .................................................................... SchCMd Bullet

Volunteer hours for political campaign activities (see instructions) ..................................................................

Part I-B

Complete if the organization is exempt under section 501(c)(3).

Enter the amount of any excise tax incurred by the organization under section 4955 ................................ SchCMd Bullet

Enter the amount of any excise tax incurred by organization managers under section 4955 ....................... SchCMd Bullet

If the organization incurred a section 4955 tax, did it file Form 4720 for this year? .........................................

Yes No

Was a correction made? ......................................................................................................................

Yes No

If "Yes," describe in Part IV.

Part I-C

Complete if the organization is exempt under section 501(c), except section 501(c)(3).

Enter the amount directly expended by the filing organization for section 527 exempt function activities ..... SchCMd Bullet

Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ............................................................................................................................ SchCMd Bullet

Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b........... SchCMd Bullet

Did the filing organization file Form 1120-POL for this year? ...................................................................

Yes No

Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.

(a) Name	(b) Address	(c) EIN	(d) Amount paid from filing organization's funds. If none, enter -0-.	(e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.
1
2
3
4
5
6

For Paperwork Reduction Act Notice, see the instructions for Form 990 or 990-EZ.

Cat. No. 50084S

Schedule C (Form 990 or 990-EZ) 2019

Page 2

Part II-A

Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).

A Check SchCMd Bullet

if the filing organization belongs to an affiliated group (and list in Part IV each affiliated group member's name, address, EIN, expenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet

if the filing organization checked box A and "limited control" provisions apply.

Limits on Lobbying Expenditures (The term "expenditures" means amounts paid or incurred.)		(b) Affiliated group totals
1a	Total lobbying expenditures to influence public opinion (grass roots lobbying) ......................
b	Total lobbying expenditures to influence a legislative body (direct lobbying) ........................
c	Total lobbying expenditures (add lines 1a and 1b) ............................................................
d	Other exempt purpose expenditures ...............................................................................
e	Total exempt purpose expenditures (add lines 1c and 1d) ..................................................
f	Lobbying nontaxable amount. Enter the amount from the following table in both columns.
	If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
	Not over $500,00020% of the amount on line 1e.
	Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
	Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
	Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
	Over $17,000,000$1,000,000.

g	Grassroots nontaxable amount (enter 25% of line 1f) .................................................
h	Subtract line 1g from line 1a. If zero or less, enter -0-. ................................................
i	Subtract line 1f from line 1c. If zero or less, enter -0-. ................................................
j	If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting section 4911 tax for this year? ...................................................................................................................	Yes No

4-Year Averaging Period Under Section 501(h) (Some organizations that made a section 501(h) election do not have to complete all of the five columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
	Calendar year (or fiscal year beginning in)	(a) 2016	(b) 2017	(c) 2018	(d) 2019	(e) Total

2a	Lobbying nontaxable amount

b	Lobbying ceiling amount (150% of line 2a, column(e))

c	Total lobbying expenditures

d	Grassroots nontaxable amount

e	Grassroots ceiling amount (150% of line 2d, column (e))

f	Grassroots lobbying expenditures

Schedule C (Form 990 or 990-EZ) 2019

Page 3

Part II-B

Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).

For each "Yes" response on lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.

(a)

Yes|No

(b)

Amount

During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:

Volunteers? ...........................................................................................................

Yes

Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ........

Yes

Media advertisements? ...................................................................................................

Mailings to members, legislators, or the public? .............................................................................

Yes

42,142

Publications, or published or broadcast statements? ...........................................................

Yes

16,982

Grants to other organizations for lobbying purposes? ..........................................................

Direct contact with legislators, their staffs, government officials, or a legislative body? .......................

Yes

1,665,989

Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ..................

Other activities? ...................................................................................................................

Yes

1,521

Total. Add lines 1c through 1i ....................................................................................................

1,726,634

Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....

If "Yes," enter the amount of any tax incurred under section 4912 ...........................................

If "Yes," enter the amount of any tax incurred by organization managers under section 4912 ...................

If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? ........................

Part III-A

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).

Yes

Were substantially all (90% or more) dues received nondeductible by members? ...............................................

Did the organization make only in-house lobbying expenditures of $2,000 or less? ............................................

Did the organization agree to carry over lobbying and political expenditures from the prior year? .................................

Part III-B

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."

Dues, assessments and similar amounts from members ......................................................................

Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political expenses for which the section 527(f) tax was paid).

Current year .............................................................................................................................

Carryover from last year ............................................................................................................

Total ...........................................................................................................................................

Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .

If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ......................................................................................................................

Taxable amount of lobbying and political expenditures (see instructions) .........................................

Part IV

Supplemental Information

Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.

Return Reference	Explanation
LOBBYING ACTIVITY	THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.

Return Reference

Explanation

LOBBYING ACTIVITY

THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.

Schedule C (Form 990 or 990EZ) 2019

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE D
(Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Financial Statements

Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
SchDMd Bullet

Attach to Form 990.
SchDMd Bullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.

		(a) Donor advised funds	(b) Funds and other accounts
1	Total number at end of year .........
2	Aggregate value of contributions to (during year)
3	Aggregate value of grants from (during year)
4	Aggregate value at end of year ........

Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............

Yes No

Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................

Yes No

Part II

Conservation Easements.
Complete if the organization answered "Yes" on Form 990, Part IV, line 7.

Purpose(s) of conservation easements held by the organization (check all that apply).

Preservation of land for public use (e.g., recreation or education) Preservation of an historically important land area

Protection of natural habitat Preservation of a certified historic structure

Preservation of open space

Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.


a	Total number of conservation easements ......................	2a
b	Total acreage restricted by conservation easements ....................	2b
c	Number of conservation easements on a certified historic structure included in (a) .....	2c
d	Number of conservation easements included in (c) acquired after 7/25/06, and not on a historic structure listed in the National Register ...	2d

Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year SchDMd Bullet

Number of states where property subject to conservation easement is located SchDMd Bullet

Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............

Yes No

Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet

Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet

Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................

Yes No

In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.

If the organization elected, as permitted under FASB ASC 958, not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.

If the organization elected, as permitted under FASB ASC 958, to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:

(i)

Revenue included on Form 990, Part VIII, line 1 ......................... SchDMd Bullet

(ii)

Assets included in Form 990, Part X ............................... SchDMd Bullet

If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under FASB ASC 958 relating to these items:

Revenue included on Form 990, Part VIII, line 1 .......................... SchDMd Bullet

Assets included in Form 990, Part X ............................... SchDMd Bullet

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 52283D

Schedule D (Form 990) 2019

Page 2

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)

Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):

Public exhibition

Loan or exchange programs

Scholarly research

Other

Preservation for future generations

Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.

During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...

Yes No

Part IV

Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.

Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................

Yes No


b	If "Yes," explain the arrangement in Part XIII and complete the following table:		Amount
c	Beginning balance .............................	1c
d	Additions during the year ............................	1d
e	Distributions during the year ..........................	1e
f	Ending balance ................................	1f

Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...

Yes No

If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....

Part V

Endowment Funds.
Complete if the organization answered "Yes" on Form 990, Part IV, line 10.

		(a) Current year	(b) Prior year	(c) Two years back	(d) Three years back	(e) Four years back

1a	Beginning of year balance ....
b	Contributions ...
c	Net investment earnings, gains, and losses
d	Grants or scholarships ...
e	Other expenditures for facilities and programs ...
f	Administrative expenses ....
g	End of year balance ......

Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:

Board designated or quasi-endowment SchDMd Bullet

Permanent endowment SchDMd Bullet

Term endowment SchDMd Bullet

The percentages on lines 2a, 2b, and 2c should equal 100%.

Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes

(i) Unrelated organizations .................

3a(i)

(ii) Related organizations .................

3a(ii)

If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........

Describe in Part XIII the intended uses of the organization's endowment funds.

Part VI

Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.

Description of property		(a) Cost or other basis (investment)	(b) Cost or other basis (other)	(c) Accumulated depreciation	(d) Book value

1a	Land .....
b	Buildings ....
c	Leasehold improvements	6,653,212	2,289,772	4,363,440
d	Equipment ....	20,449,525	13,698,313	6,751,212
e	Other .....
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).)..				11,114,652

Schedule D (Form 990) 2019

Page 3

Part VII

InvestmentsOther Securities.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.

(a) Description of security or category (including name of security)	(b) Book value	(c) Method of valuation: Cost or end-of-year market value
(1) Financial derivatives.........
(2) Closely-held equity interests........
(3) Other (A) GLOBAL PUBLIC EQUITY	422,998,835	F
(B) PVT EQTY & OTHR ILLIQUID FUNDS	334,752,615	F
(C) ABSOLUTE RETURN	242,052,193	F
(D) PERPETUAL TRUSTS	4,057,017	F
(E) OTHER	1,444,983	F
(F)
(G)
(H)
(I)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)	1,005,305,643

Part VIII

InvestmentsProgram Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.

(a) Description of investment	(b) Book value	(c) Method of valuation: Cost or end-of-year market value

(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)

Part IX

Other Assets.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.

(a) Description				(b) Book value

(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........

Part X

Other Liabilities.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.

1.(a) Description of liability	(b) Book value
(1) Federal income taxes	0

(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)	0
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII

Schedule D (Form 990) 2019

Page 4

Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total revenue, gains, and other support per audited financial statements .......			1	801,247,603
2	Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a	Net unrealized gains (losses) on investments ....	2a	204,217,034
b	Donated services and use of facilities .........	2b
c	Recoveries of prior year grants ...........	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d .....................			2e	204,217,034
3	Subtract line 2e from line 1..................			3	597,030,569
4	Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b .	4a	8,747,856
b	Other (Describe in Part XIII.) ...........	4b
c	Add lines 4a and 4b....................			4c	8,747,856
5	Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ......			5	605,778,425

Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total expenses and losses per audited financial statements ...........			1	339,902,243
2	Amounts included on line 1 but not on Form 990, Part IX, line 25:
a	Donated services and use of facilities .........	2a
b	Prior year adjustments ............	2b
c	Other losses ................	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d....................			2e
3	Subtract line 2e from line 1...................			3	339,902,243
4	Amounts included on Form 990, Part IX, line 25, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b ..	4a	8,747,856
b	Other (Describe in Part XIII.) ............	4b
c	Add lines 4a and 4b.....................			4c	8,747,856
5	Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ......			5	348,650,099

Part XIII

Supplemental Information

Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.

Return Reference

Explanation

SCHEDULE D, PART X

FIN 48 FOOTNOTE THE FOUNDATION IS A NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2019 AND 2018. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.

Schedule D (Form 990) 2019

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SCHEDULE F(Form 990)

Department of the Treasury
Internal Revenue Service

Statement of Activities Outside the United States

Complete if the organization answered "Yes" to Form 990, Part IV, line 14b, 15, or 16. Right pointing arrow large image

Attach to Form 990. Right pointing arrow large image

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

General Information on Activities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 14b.

For grantmakers. Does the organization maintain records to substantiate the amount of its grants and

other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used

to award the grants or assistance? . . . . . . . . . . . . . . . . . . . . . . . . .

Yes

For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.

Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)

(a) Region		(d) Activities conducted in region (by type) (such as, fundraising, program services, investments, grants to recipients located in the region)	(e) If activity listed in (d) is a program service, describe specific type of service(s) in the region	(f) Total expenditures for and investments in the region
	Europe (Including Iceland and Greenland)	Grantmaking	NONE	5,305,625
	East Asia and the Pacific	Grantmaking	NONE	4,083,554
	North America	Grantmaking	NONE	1,993,521
	Sub-Saharan Africa	Grantmaking	NONE	116,643
	Middle East and North Africa	Grantmaking	NONE	108,648
	South America	Grantmaking	NONE	35,000
	Central America and the Caribbean	Investments		710,982,000
	East Asia and the Pacific	Investments		237,725,000
	Europe (Including Iceland and Greenland)	Investments		416,741,000
	North America	Investments		63,725,000
	Middle East and North Africa	Investments		2,127,000
	Europe (Including Iceland and Greenland)	Program Services	CONTRACTED RESEARCH	3,135,360
	North America	Program Services	CONTRACTED RESEARCH	2,900,000
	East Asia and the Pacific	Program Services	CONTRACTED RESEARCH	82,038



3a	Sub-total ....			1,449,060,389
b	Total from continuation sheets to Part I ...
c	Totals (add lines 3a and 3b)			1,449,060,389

For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) 2019

Schedule F (Form 990) 2019

Page 2

Part II

Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.

(c) Region	(d) Purpose of grant	(e) Amount of cash grant	(f) Manner of cash disbursement
Europe (Including Iceland and Greenland)	RESEARCH STUDY	65,450	WIRE
Middle East and North Africa	THERAPEUTICS DISCOVERY RESEARCH	6,480	WIRE
East Asia and the Pacific	QUALITY IMPROVEMENT	113,700	WIRE
North America	CLINICAL RESEARCH STUDY	374,360	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH CENTER	1,420,762	WIRE
Europe (Including Iceland and Greenland)	QUALITY IMPROVEMENT	921,634	WIRE
North America	RESEARCH	107,379	CHECK
Europe (Including Iceland and Greenland)	RESEARCH	134,622	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH STUDY	144,253	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	131,871	WIRE
Europe (Including Iceland and Greenland)	QUALITY IMPROVEMENT	20,379	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	54,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	135,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	135,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	135,000	WIRE
South America	RESEARCH	35,000	WIRE
North America	RESEARCH	267,840	CHECK
Europe (Including Iceland and Greenland)	QUALITY IMPROVEMENT	511,283	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	54,000	WIRE
Middle East and North Africa	CLINICAL RESEARCH	52,920	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH	616,965	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	135,000	WIRE
Europe (Including Iceland and Greenland)	QUALITY IMPROVEMENT	23,701	WIRE
Middle East and North Africa	CLINICAL RESEARCH	49,248	WIRE
North America	CLINICAL RESEARCH STUDY	557,497	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	208,497	WIRE
East Asia and the Pacific	RESEARCH	108,000	WIRE
North America	PILOT STUDY	54,000	WIRE
North America	QUALITY IMPROVEMENT	54,000	WIRE
East Asia and the Pacific	CLINICAL RESEARCH	603,962	WIRE
East Asia and the Pacific	CLINICAL RESEARCH STUDY	1,476,089	WIRE
North America	CLINICAL RESEARCH STUDY	68,905	CHECK
Europe (Including Iceland and Greenland)	PILOT STUDY	108,000	WIRE
North America	CLINICAL CARE RESEARCH	375,280	WIRE
North America	RESEARCH	134,260	WIRE
Sub-Saharan Africa	CLINICAL RESEARCH	116,643	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH STUDY	53,957	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	49,680	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH STUDY	60,000	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	51,571	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	135,000	WIRE
East Asia and the Pacific	CLINICAL RESEARCH	1,781,803	WIRE

2	Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter .......	35
3	Enter total number of other organizations or entities .......................	0

Schedule F (Form 990) 2019

Schedule F (Form 990) 2019Page 3

Part III

Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 16.

Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance		(b) Region	(c) Number of recipients	(d) Amount of cash grant	(e) Manner of cash disbursement	(f) Amount of noncash assistance	(g) Description of noncash assistance	(h) Method of valuation (book, FMV, appraisal, other)

Schedule F (Form 990) 2019

Page 4

Part IV

Foreign Forms

Schedule F (Form 990) 2019

Page 5

Part V

Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information. See instructions.

ReturnReference	Explanation
PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S.	THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE GRANTS TO THE MIDDLE EAST/NORTH AFRICA REGION WERE MADE TO THE RESEARCH FUND OF THE HADASSAH MEDICAL ORGANIZATION, THE HEBREW UNIVERSITY OF JERUSALEM, AND CLALIT HEALTH SERVICES IN ISRAEL.
FOREIGN FORMS	THE ACTIVITIES REFERENCED IN SCHEDULE F, PART IV ARE LIMITED TO CERTAIN OF THE FOUNDATION'S INVESTMENTS.

Schedule F (Form 990) 2019

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SCHEDULE G (Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Supplemental Information Regarding
Fundraising or Gaming Activities

Complete if the organization answered "Yes" on Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrow

Attach to Form 990 or Form 990-EZ.
right arrow

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Fundraising Activities.Complete if the organization answered "Yes" on Form 990, Part IV, line 17.

Form 990-EZ filers are not required to complete this part.

Indicate whether the organization raised funds through any of the following activities. Check all that apply.

a	Mail solicitations	e	Solicitation of non-government grants
b	Internet and email solicitations	f	Solicitation of government grants
c	Phone solicitations	g	Special fundraising events
d	In-person solicitations

Did the organization have a written or oral agreement with any individual (including officers, directors, trustees

or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?

YesNo

If "Yes," list the 10 highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.

(i) Name and address of individual or entity (fundraiser)		(ii) Activity	(iii) Did fundraiser have custody or control of contributions?		(iv) Gross receipts from activity	(v) Amount paid to (or retained by) fundraiser listed in col. (i)	(vi) Amount paid to (or retained by) organization
			Yes	No
	LAUTMAN MASKA NEILL CO	MAIL COUNSEL		No	8,817,851	240,000	8,577,851
	THE PURSUANT GROUP INC	DATA ANALYSIS		No	0	83,686








Total . . . . . . . . . . . . . . . . . . . .					8,817,851	323,686	8,577,851

List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.

AL, AK, AZ, AR, CA, CO, CT, DE, FL, GA, HI, ID, IL, IN, IA, KS, LA, ME, MD, MA, MI, MN, MS, MO, MT, NE, NV, NH, NJ, NM, NY, NC, ND, OH, OK, OR, PA, RI, SC, SD, TN, TX, UT, VT, VA, WA, WV, WI, WY

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 50083H

Schedule G (Form 990 or 990-EZ) 2019

Page 2

Part II

Fundraising Events. Complete if the organization answered "Yes" on Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.

		(a) Event #1 SKI (event type)	(b) Event #2 ATLANTA WALK (event type)	(c) Other events 882 (total number)	(d) Total events (add col. (a) through col. (c))
1	Gross receipts . . . . .	2,854,425	3,359,794	89,906,008	96,120,227
2	Less: Contributions . . . .	1,434,338	3,200,325	75,673,961	80,308,624
3	Gross income (line 1 minus line 2) . . . . . .	1,420,087	159,469	14,232,047	15,811,603

4	Cash prizes . . . . .			9,500	9,500
5	Noncash prizes . . . .	110,995	23,310	1,304,466	1,438,771
6	Rent/facility costs . . . .	705,583	38,286	6,679,794	7,423,663
7	Food and beverages . . .	353,347	70,583	3,860,787	4,284,717
8	Entertainment . . . .		6,100	448,450	454,550
9	Other direct expenses . . .	250,162	21,190	1,929,050	2,200,402
10	Direct expense summary. Add lines 4 through 9 in column (d) . . . . . . . . . .				15,811,603
11	Net income summary. Subtract line 10 from line 3, column (d). . . . . . . . . .

Part III

Gaming. Complete if the organization answered "Yes" on Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.

		(a) Bingo	(b) Pull tabs/Instant bingo/progressive bingo	(c) Other gaming	(d) Total gaming (add col.(a) through col.(c))
1	Gross revenue . . . . .			135,192	135,192

2	Cash prizes . . . . .
3	Noncash prizes . . . .	8,999	8,999
4	Rent/facility costs . . . .
5	Other direct expenses . . .

Volunteer labor . . . .

	Yes %
	No

	Yes %
	No

	Yes %
	No

Direct expense summary. Add lines 2 through 5 in column (d) . . . . . . . . . . right arrow

8,999

Net gaming income summary. Subtract line 7 from line 1, column (d). . . . . . . . . right arrow

126,193

Enter the state(s) in which the organization conducts gaming activities: CO , IL , KS , MT , NH , TX

Is the organization licensed to conduct gaming activities in each of these states? . . . . . . . .

YesNo

If "No," explain:

10a

Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? . . .

YesNo

If "Yes," explain:

Schedule G (Form 990 or 990-EZ) 2019

Page 3

Does the organization conduct gaming activities with nonmembers? . . . . . . . . . . .

YesNo

Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity

formed to administer charitable gaming? . . . . . . . . . . . . . . . . .

YesNo

Indicate the percentage of gaming activity conducted in:

The organization's facility . . . . . . . . . . . . . . . . . .

13a

An outside facility . . . . . . . . . . . . . . . . . . . .

13b

100.000 %

Enter the name and address of the person who prepares the organization's gaming/special events books and records:

Name

THE ORGANIZATION

Address

4550 MONTGOMERY AVE SUITE 1100N BETHESDA, MD20814

15a

Does the organization have a contract with a third party from whom the organization receives gaming

revenue? . . . . . . . . . . . . . . . . . . . . . . . .

YesNo

If "Yes," enter the amount of gaming revenue received by the organization right arrow

$ and the

amount of gaming revenue retained by the third party right arrow

$ .

If "Yes," enter name and address of the third party:

Name

Address

Gaming manager information:

Name

Gaming manager compensation right arrow

Description of services provided right arrow

Director/officer Employee Independent contractor

Mandatory distributions:

Is the organization required under state law to make charitable distributions from the gaming proceeds to

retain the state gaming license? . . . . . . . . . . . . . . . . . . .

YesNo

Enter the amount of distributions required under state law distributed to other exempt organizations or spent

in the organization's own exempt activities during the tax year right arrow

Part IV

Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v); and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information. See instructions.

Return Reference

Explanation

PROFESSIONAL FUNDRAISING SERVICES

SCHEDULE G, PART I, LINE 2B CFF HAD A WRITTEN CONTRACT WITH LAUTMAN MASKA NEILL & COMPANY TO CONSULT ON ITS DIRECT MAIL AND ANNUAL FUND EFFORTS DURING 2019. THE EXPENSE FOR THE PROJECT IS $20,000 PER MONTH OR $240,000 FOR THE ENTIRE YEAR OF SERVICES. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED LAUTMAN MASKA NEILL & COMPANY FOR CREATIVE DEVELOPMENT. LAUTMAN MASKA NEILL & COMPANY DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM MAILINGS WITH WHICH LAUTMAN MASKA NEILL & COMPANY ASSISTS ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION. CFF HAD A WRITTEN CONTRACT WITH THE PURSUANT GROUP, INC TO CONDUCT DONOR FILE ANALYSIS AND SEGMENTATION DURING 2019. THE EXPENSE FOR THE PROJECT WAS $83,686. IN ADDITION TO THE ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED THE PURSUANT GROUP FOR CREATIVE DEVELOPMENT. THE PURSUANT GROUP DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM ANALYSIS PERFORMED BY THE PURSUANT GROUP ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION.

SCHEDULE G, PART III

ON OCCASION, THE CYSTIC FIBROSIS FOUNDATION CONDUCTS RAFFLES, DRAWINGS, OR GAMES OF CHANCE AS PART OF ITS FUNDRAISING EVENTS. GAMING LICENSES ARE OBTAINED WHEN APPLICABLE PER STATE OR LOCAL REGULATION. THERE ARE CERTAIN STATES WHERE CFF ONLY CONDUCTS OPPORTUNITY DRAWINGS. NO OUTSIDE PARTY HAD ANY INVOLVEMENT IN GAMING ACTIVITIES AND THESE ACTIVITIES DO NOT GENERATE UNRELATED BUSINESS INCOME. THE EXECUTIVE DIRECTOR OF EACH OFFICE IS RESPONSIBLE FOR OVERSEEING GAMING ACTIVITIES CONDUCTED BY THEIR OFFICE.

Schedule G (Form 990 or 990-EZ) 2019

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Schedule I
(Form 990)

Department of the Treasury
Internal Revenue Service

Grants and Other Assistance to Organizations,
Governments and Individuals in the United States

Complete if the organization answered "Yes," on Form 990, Part IV, line 21 or 22.
lBullet

Attach to Form 990.
lBullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2019

Open to Public
Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number
13-1930701

Part I

General Information on Grants and Assistance

Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ........................

Yes No

Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.

Part II

Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" on Form 990, Part IV, line 21, for any recipient

that received more than $5,000. Part II can be duplicated if additional space is needed.

(a) Name and address of organization or government	(b) EIN	(c) IRC section (if applicable)	(d) Amount of cash grant	(h) Purpose of grant or assistance
(1) 3RD STREET SOCIETY 107 E INDIAN AVENUE PO BOX 1012 FOLLY BEACH,SC29439	82-1635295	501C(3)	6,856	COMMUNITY IMPACT
(2) ADVOCATE CHARITABLE FOUNDATION 3075 HIGHLAND PARKWAY SUITE 600 SUITE 600 DOWNERS GROVE,IL60515	36-3297360	501C(3)	114,940	CF CARE CENTER
(3) ADVOCATE HEALTH AND HOSPITALS CORPORATION 3075 HIGHLAND PARKWAY SUITE 600 DOWNERS GROVE,IL695151288	36-2169147	501C(3)	29,160	CF CARE CENTER
(4) ALBANY MEDICAL COLLEGE 47 NEW SCOTLAND AVENUE ALBANY,NY12298	14-1338310	501C(3)	24,420	CLINICAL RESEARCH CENTER
(5) ALBANY MEDICAL COLLEGE 47 NEW SCOTLAND AVENUE ALBANY,NY12298	14-1338310	501C(3)	141,110	CF CARE CENTER
(6) ALL CHILDREN'S HOSPITAL INC 3910 KESWICK ROAD BALTIMORE,MD21211	59-0683252	501C(3)	38,000	CLINICAL RESEARCH CENTER
(7) ALL CHILDREN'S HOSPITAL INC 3910 KESWICK ROAD S BLDG NO 4300A BALTIMORE,MD21211	59-0683252	501C(3)	165,420	CF CARE CENTER
(8) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 225 E CHICAGO AVE S BLDG NO 4300A CHICAGO,IL606112991	36-2170833	501C(3)	70,461	CLINICAL RESEARCH CENTER
(9) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 225 E CHICAGO AVE BOX 282 CHICAGO,IL606112991	36-2170833	501C(3)	81,000	THERAPEUTICS DISCOVERY RESEARCH
(10) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 225 E CHICAGO AVE BOX 282 CHICAGO,IL606112991	36-2170833	501C(3)	241,754	CLINICAL RESEARCH STUDY
(11) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 225 E CHICAGO AVE BOX 282 CHICAGO,IL606112991	36-2170833	501C(3)	242,021	CF CARE CENTER
(12) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 225 E CHICAGO AVE BOX 282 CHICAGO,IL606112991	36-2170833	501C(3)	523,157	QUALITY IMPROVEMENT
(13) ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 1303 E UNIVERSITY BOX 282 TUCSON,AZ857190521	74-2652689	IRC 115	34,560	ADHERENCE
(14) ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 1303 E UNIVERSITY BOX 3 TUCSON,AZ857190521	74-2652689	IRC 115	36,920	CLINICAL RESEARCH CENTER
(15) ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 1303 E UNIVERSITY BOX 3 TUCSON,AZ857190521	74-2652689	IRC 115	182,875	CF CARE CENTER
(16) ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 1303 E UNIVERSITY BOX 3 TUCSON,AZ857190521	74-2652689	IRC 115	348,151	CLINICAL RESEARCH STUDY
(17) ARKANSAS CHILDREN'S HOSPITAL RESEARCH INSTITUTE I 13 CHILDRENS WAY BOX 3 LITTLE ROCK,AR72202	71-0694931	501C(3)	125,382	CF CARE CENTER
(18) ASCENSION SETON 2975 REGENT BLVD IRVING,TX75063	74-1109643	501C(3)	35,255	CLINICAL RESEARCH CENTER
(19) ASCENSION SETON 2975 REGENT BLVD IRVING,TX75063	74-1109643	501C(3)	254,367	CF CARE CENTER
(20) ATLANTIC HEALTH SYSTEM 475 SOUTH STREET MORRISTON,NJ07960	52-1958352	501C(3)	35,726	CLINICAL RESEARCH CENTER
(21) ATLANTIC HEALTH SYSTEM 475 SOUTH STREET MORRISTON,NJ07960	52-1958352	501C(3)	122,950	CF CARE CENTER
(22) AUGUSTA UNIVERSITY 1120 FIFTEENTH STREET AUGUSTA,GA30912	58-6002053	IRC 115	33,955	ADULT CARE
(23) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC 1120 15TH STREET HSB-132 AUGUSTA,GA30912	58-1418202	501C(3)	17,192	CLINICAL RESEARCH CENTER
(24) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC 1120 15TH STREET AUGUSTA,GA30912	58-1418202	501C(3)	262,234	CF CARE CENTER
(25) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC 1120 15TH STREET AUGUSTA,GA30912	58-1418202	501C(3)	399,307	CLINICAL RESEARCH STUDY
(26) BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA 330 BROOKLINE AVE HOUSTON,TX77030	74-1613878	501C(3)	25,877	CLINICAL RESEARCH
(27) BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA BCM 200 HOUSTON,TX77030	74-1613878	501C(3)	92,000	CLINICAL RESEARCH CENTER
(28) BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA BCM 200 HOUSTON,TX77030	74-1613878	501C(3)	100,551	CLINICAL RESEARCH STUDY
(29) BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA BCM 200 HOUSTON,TX77030	74-1613878	501C(3)	452,608	CF CARE CENTER
(30) BAYLOR SCOTT & WHITE HEALTH 2401 S 31ST STREET BCM 200 TEMPLE,TX76508	46-3131350	501C(3)	84,880	CF CARE CENTER
(31) BAYSTATE MEDICAL CENTER INC 759 CHESNUT STREET SPRINGFIELD,MA01199	04-2790311	501C(3)	44,335	CF CARE CENTER
(32) BETH ISRAEL DEACONESS MEDICAL CENTER 330 BROOKLINE AVENUE BOSTON,MA02215	04-2103881	501C(3)	26,620	CLINICAL RESEARCH
(33) BETH ISRAEL DEACONESS MEDICAL CENTER 330 BROOKLINE AVENUE BOSTON,MA02215	04-2103881	501C(3)	104,751	ADULT CARE
(34) BETH ISRAEL MEDICAL CENTER FIRST AVENUE AT 16TH STREET NEW YORK,NY10003	13-5564934	501C(3)	151,646	CF CARE CENTER
(35) BILLINGS CLINIC FOUNDATION 2917 TENTH AVE NORTH BILLINGS,MT59101	81-0407289	501C(3)	16,363	CLINICAL RESEARCH CENTER
(36) BILLINGS CLINIC FOUNDATION 2917 TENTH AVE NORTH PO BOX 31031 BILLINGS,MT59101	81-0407289	501C(3)	43,000	ADULT CARE
(37) BILLINGS CLINIC FOUNDATION 2917 TENTH AVE NORTH PO BOX 31031 BILLINGS,MT59101	81-0407289	501C(3)	234,115	CF CARE CENTER
(38) BOARD OF REGENTS NEVADA SYSTEM OF HIGHER EDUCATION 4505 SOUTH MARYLAND PARKWAY PO BOX 31031 LAS VEGAS,NV89154	88-6000024	IRC 115	54,000	PILOT STUDY
(39) BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEA PO BOX 26901 RP 865 ROOM 450 OKLAHOMA CITY,OK731260901	73-1563627	501C(3)	31,911	CLINICAL RESEARCH CENTER
(40) BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEA PO BOX 26901 RP 865 ROOM 450 OKLAHOMA CITY,OK731260901	73-1563627	501C(3)	246,562	CF CARE CENTER
(41) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY 21 N PARK STREET RP 865 ROOM 450 MADISON,WI537151218	39-6006492	501C(3)	37,973	CLINICAL RESEARCH CENTER
(42) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY 21 N PARK STREET SUITE 6401 MADISON,WI537151218	39-6006492	501C(3)	250,195	CF CARE CENTER
(43) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY 21 N PARK STREET SUITE 6401 MADISON,WI537151218	39-6006492	501C(3)	331,552	QUALITY IMPROVEMENT
(44) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY 21 N PARK STREET SUITE 6401 MADISON,WI537151218	39-6006492	501C(3)	368,003	CLINICAL RESEARCH STUDY
(45) BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY PO BOX 19616 SUITE 6401 SPRINGFIELD,IL627949616	37-6005961	501C(3)	30,855	CF CARE CENTER
(46) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 3145 PORTER DRIVE PALO ALTO,CA94304	94-1156365	501C(3)	34,315	ADHERENCE
(47) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 3145 PORTER DRIVE PALO ALTO,CA94304	94-1156365	501C(3)	35,640	ADULT CARE
(48) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 3145 PORTER DRIVE M/C 201-15 PALO ALTO,CA94304	94-1156365	501C(3)	43,229	TRAINING
(49) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 3145 PORTER DRIVE PALO ALTO,CA94304	94-1156365	501C(3)	76,379	CLINICAL RESEARCH CENTER
(50) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 3145 PORTER DRIVE PALO ALTO,CA94304	94-1156365	501C(3)	124,850	RESEARCH STUDY
(51) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 3145 PORTER DRIVE PALO ALTO,CA94304	94-1156365	501C(3)	144,220	CLINICAL CARE RESEARCH
(52) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 3145 PORTER DRIVE PALO ALTO,CA94304	94-1156365	501C(3)	154,625	CLINICAL RESEARCH STUDY
(53) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 3145 PORTER DRIVE ATTN DEBORAH ELAM PALO ALTO,CA94304	94-1156365	501C(3)	265,000	RESEARCH
(54) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 3145 PORTER DRIVE ATTN DEBORAH ELAM PALO ALTO,CA94304	94-1156365	501C(3)	356,789	CF CARE CENTER
(55) BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS 506 S WRIGHT STREET ATTN DEBORAH ELAM URBANA,IL61801	37-6000511	501C(3)	10,000	COMMUNITY IMPACT
(56) BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS 506 S WRIGHT STREET 209 HAB NO MC339 URBANA,IL61801	37-6000511	501C(3)	54,000	PILOT STUDY
(57) BOSTON CHILDREN'S HEALTH PHYSICIANS LLP 40 SUNSHINE COTTAGE ROAD 209 HAB NO MC339 VALHALLA,NY06488	13-3956599	LLP	31,564	CLINICAL RESEARCH CENTER
(58) BOSTON CHILDREN'S HEALTH PHYSICIANS LLP 40 SUNSHINE COTTAGE ROAD SKYLINE SUITE 1N-C08 VALHALLA,NY06488	13-3956599	LLP	76,501	ADULT CARE
(59) BOSTON CHILDREN'S HEALTH PHYSICIANS LLP 40 SUNSHINE COTTAGE ROAD SKYLINE SUITE 1N-C08 VALHALLA,NY06488	13-3956599	LLP	223,600	CF CARE CENTER
(60) BOWLING GREEN STATE UNIVERSITY 1851 N RESEARCH DR SKYLINE SUITE 1N-C08 BOWLING GREEN,OH43403	34-6402018	IRC 115	54,000	PILOT STUDY
(61) BREATHE BRAVELY INC 305 W 29TH ST CONTROLLERS OFFICE SIOUX FALLS,AL57105	47-5334258	501C(3)	19,275	COMMUNITY IMPACT
(62) BREATHE FOR BRITT FOUNDATION PO BOX 187 CENTEREACH,NY11720	30-0492819	501C(3)	10,000	COMMUNITY IMPACT
(63) BRIGHAM AND WOMEN'S HOSPITAL BOSTON 75 FRANCIS STREET BOSTON,MA02115	04-2312909	501C(3)	53,479	PILOT STUDY
(64) CALIFORNIA INSTITUTE OF TECHNOLOGY 1200 EAST CALIFORNIA BLVD M/C 234 PASADENA,CA91125	95-1643307	501C(3)	143,088	RESEARCH STUDY
(65) CAMC HEALTH EDUCATION AND RESEARCH INSTITUTE PO BOX 1547 CHARLESTON,WV253261547	55-0753754	501C(3)	78,670	CF CARE CENTER
(66) CARLE FOUNDATION HOSPITAL 611 WEST PARK URBANA,IL61801	37-1119538	501C(3)	49,065	CF CARE CENTER
(67) CAROLINAS HEALTHCARE FOUNDATION PO BOX 32861 CHARLOTTE,NC282322861	56-6060481	501C(3)	32,400	ADULT CARE
(68) CAROLINAS HEALTHCARE FOUNDATION PO BOX 32861 CHARLOTTE,NC282322861	56-6060481	501C(3)	200,916	CF CARE CENTER
(69) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	24,369	ADULT CARE
(70) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	91,178	CLINICAL RESEARCH CENTER
(71) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE SUITE 120 CLEVELAND,OH44106	34-1018992	501C(3)	324,000	PILOT STUDY
(72) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	565,467	THERAPEUTICS DISCOVERY RESEARCH
(73) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	674,981	RESEARCH
(74) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	1,453,663	RESEARCH CENTER
(75) CEDARS-SINAI MEDICAL CENTER 127 S SAN VICENTE BLVD AHSP 9600 LOS ANGELES,CA90048	95-1644600	501C(3)	54,000	PILOT STUDY
(76) CEDARS-SINAI MEDICAL CENTER 127 S SAN VICENTE BLVD AHSP 9600 LOS ANGELES,CA90048	95-1644600	501C(3)	260,000	RESEARCH
(77) CENTRAL FLORIDA PULMONARY GROUP PA 1115 EAST RIDGEWOOD STREET ORLANDO,FL32803	59-1760017	C CORP	32,626	CLINICAL RESEARCH CENTER
(78) CENTRAL FLORIDA PULMONARY GROUP PA 1115 EAST RIDGEWOOD STREET ORLANDO,FL32803	59-1760017	C CORP	166,325	CF CARE CENTER
(79) CHATTANOOGA HAMILTON COUNTY HOSPITAL AUTHORITY (DB 975 EAST THIRD STREET CHATTANOOGA,TN37403	62-6000101	501C(3)	91,780	CF CARE CENTER
(80) CHILDREN'S HEALTH CARE 2525 CHICAGO AVENUE SOUTH 4650 SUNSET BLVD MINNEAPOLIS,MN554041844	41-1754276	501C(3)	41,034	CLINICAL RESEARCH CENTER
(81) CHILDREN'S HEALTH CARE 2525 CHICAGO AVENUE SOUTH 4650 SUNSET BLVD MINNEAPOLIS,MN554041844	41-1754276	501C(3)	129,660	CF CARE CENTER
(82) CHILDREN'S HEALTHCARE OF ATLANTA 1575 NORTHEAST EXPRESSWAY ATLANTA,GA30329	58-2367819	501C(3)	17,171	CLINICAL RESEARCH CENTER
(83) CHILDREN'S HEALTHCARE OF ATLANTA 1575 NORTHEAST EXPRESSWAY ATLANTA,GA30329	58-2367819	501C(3)	125,165	CF CARE CENTER
(84) CHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND 747 52ND STREET OAKLAND,CA946091809	94-0382330	501C(3)	280,000	THERAPEUTICS DISCOVERY RESEARCH
(85) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVENUE BOSTON,MA02115	04-2774441	501C(3)	23,311	ADULT CARE
(86) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVENUE BOSTON,MA02115	04-2774441	501C(3)	65,450	RESEARCH STUDY
(87) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVENUE BOSTON,MA02115	04-2774441	501C(3)	141,226	CLINICAL RESEARCH CENTER
(88) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVENUE BOSTON,MA02115	04-2774441	501C(3)	228,500	TRAINING
(89) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVENUE BOSTON,MA02115	04-2774441	501C(3)	255,000	RESEARCH
(90) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVENUE BOSTON,MA02115	04-2774441	501C(3)	345,900	CF CARE CENTER
(91) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVENUE BOSTON,MA02115	04-2774441	501C(3)	2,566,209	ADHERENCE
(92) CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BOULEVARD LOS ANGELES,CA900270982	95-1690977	501C(3)	69,250	TRAINING
(93) CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BOULEVARD LOS ANGELES,CA900270982	95-1690977	501C(3)	86,400	CLINICAL RESEARCH STUDY
(94) CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BOULEVARD LOS ANGELES,CA900270982	95-1690977	501C(3)	184,432	CF CARE CENTER
(95) CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BOULEVARD LOS ANGELES,CA900270982	95-1690977	501C(3)	273,688	CLINICAL RESEARCH CENTER
(96) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	32,400	ADHERENCE
(97) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	43,200	QUALITY IMPROVEMENT
(98) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	90,455	CLINICAL RESEARCH CENTER
(99) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	128,500	TRAINING
(100) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	167,845	CF CARE CENTER
(101) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	194,000	RESEARCH STUDY
(102) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	600,000	RESEARCH CENTER
(103) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	1,201,070	CLINICAL RESEARCH STUDY
(104) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	2,927,422	CLINICAL CARE RESEARCH
(105) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON ONE PERKINS SQUARE AKRON,OH44308	34-0714357	501C(3)	23,813	CLINICAL RESEARCH CENTER
(106) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON ONE PERKINS SQUARE 111 MICHIGAN AVENUE NW AKRON,OH44308	34-0714357	501C(3)	35,640	ADULT CARE
(107) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON ONE PERKINS SQUARE AKRON,OH44308	34-0714357	501C(3)	238,770	CF CARE CENTER
(108) CHILDREN'S HOSPITAL OF ORANGE COUNTY 1201 WEST LA VETA AVENUE ORANGE,CA92868	95-2321786	501C(3)	13,500	CLINICAL RESEARCH CENTER
(109) CHILDREN'S HOSPITAL OF ORANGE COUNTY 1201 WEST LA VETA AVENUE ORANGE,CA92868	95-2321786	501C(3)	53,816	CLINICAL RESEARCH STUDY
(110) CHILDREN'S HOSPITAL OF ORANGE COUNTY 1201 WEST LA VETA AVENUE ORANGE,CA92868	95-2321786	501C(3)	106,627	CF CARE CENTER
(111) CHILDREN'S HOSPITAL OF PITTSBURGH OF UPMC HEALTH S 4401 PENN AVENUE PITTSBURGH,PA15224	25-0402510	501C(3)	61,750	TRAINING
(112) CHILDREN'S HOSPITAL OF PITTSBURGH OF UPMC HEALTH S 4401 PENN AVENUE COLD SPRING PITTSBURGH,PA15224	25-0402510	501C(3)	367,080	CF CARE CENTER
(113) CHILDREN'S LUNG SPECIALISTS 3006 S MARYLAND PKWY LAS VEGAS,NV89109	88-0271963	501C(3)	181,400	CF CARE CENTER
(114) CHILDREN'S MEDICAL CENTER ONE CHILDRENS PLAZA SUITE 315 DAYTON,OH454041815	31-0672132	501C(3)	29,029	CLINICAL RESEARCH CENTER
(115) CHILDREN'S MEDICAL CENTER ONE CHILDRENS PLAZA DAYTON,OH454041815	31-0672132	501C(3)	187,140	CF CARE CENTER
(116) CHILDREN'S NATIONAL MEDICAL CENTER 11 MICHIGAN AVENUE NW WASHINGTON,DC20010	52-1640403	501C(3)	42,412	ADULT CARE
(117) CHILDREN'S RESEARCH INSTITUTE (AT CNMC) 111 MICHIGAN AVENUE NW WASHINGTON,DC20010	52-1654453	501C(3)	130,000	CLINICAL RESEARCH STUDY
(118) CHILDREN'S RESEARCH INSTITUTE (AT CNMC) 111 MICHIGAN AVENUE NW WASHINGTON,DC20010	52-1654453	501C(3)	188,635	CF CARE CENTER
(119) CHILDREN'S SPECIALTY GROUP PLLC 811 REDGATE AVENUE NORFOLK,VA23507	54-1871633	LLC	128,330	CF CARE CENTER
(120) CHRISTIANA CARE HEALTH SERVICES INC PO BOX 2653 SUITE 420 WILMINGTON,DE198050653	51-0103684	501C(3)	8,394	CF CARE CENTER
(121) CHRISTUS SANTA ROSA HEALTH SYSTEM 333 N SANTA ROSA STREET SUITE 420 SAN ANTONIO,TX78207	74-1109665	501C(3)	36,430	CF CARE CENTER
(122) COACH-ED INC 526 SPROUL RD VILLANOVA,PA19085	45-3399942	501C(3)	10,000	COMMUNITY IMPACT
(123) COLORADO STATE UNIVERSITY 555 SOUTH HOWES BOX 104025 FORT COLLINS,CO805232002	84-6000545	IRC 115	391,850	RESEARCH
(124) CONNECTICUT CHILDREN'S MEDICAL CENTER 202 WASHINGTON STREET 6003 CAMPUS DELIVERY HARTFORD,CT061063322	06-0646755	501C(3)	70,775	CF CARE CENTER
(125) COOK CHILDREN'S MEDICAL CENTER CF CENTER 801 SEVENTH AVENUE BOX 104025 FORT WORTH,TX76104	75-2051646	501C(3)	44,670	CLINICAL RESEARCH CENTER
(126) COOK CHILDREN'S MEDICAL CENTER CF CENTER 801 SEVENTH AVENUE BOX 104025 FORT WORTH,TX76104	75-2051646	501C(3)	308,500	CF CARE CENTER
(127) CREIGHTON UNIVERSITY 2500 CALIFORNIA PLAZA OMAHA,NE68178	47-0376583	501C(3)	54,000	PILOT STUDY
(128) CYSTIC FIBROSIS LIFESTYLE FOUNDATION 300 71SR ST MIAMI,FL33141	57-1163801	501C(3)	10,000	COMMUNITY IMPACT
(129) DARTMOUTH-HITCHCOCK CLINIC ONE MEDICAL CENTER DRIVE SUITE 550 LEBANON,NH03756	22-2519596	501C(3)	61,750	TRAINING
(130) DARTMOUTH-HITCHCOCK CLINIC ONE MEDICAL CENTER DRIVE LEBANON,NH03756	22-2519596	501C(3)	90,430	CLINICAL RESEARCH CENTER
(131) DREXEL UNIVERSITY 1505 RACE STREET 10TH FLOOR PHILADELPHIA,PA19102	23-1352630	501C(3)	115,483	CLINICAL RESEARCH CENTER
(132) DREXEL UNIVERSITY 1505 RACE STREET 10TH FLOOR NO 420 PHILADELPHIA,PA19102	23-1352630	501C(3)	134,970	CF CARE CENTER
(133) DRISCOLL CHILDREN'S HOSPITAL 3533 SOUTH ALAMEDA NO 420 CORPUS CHRISTI,TX78411	74-2577746	501C(3)	111,005	CF CARE CENTER
(134) DUKE UNIVERSITY 324 BLACKWELL ST DURHAM,NC27701	56-0532129	501C(3)	53,262	therapeutics discovery research
(135) DUKE UNIVERSITY 324 BLACKWELL ST WASHIN BLDG NO 850 DURHAM,NC27701	56-0532129	501C(3)	264,300	CF CARE CENTER
(136) DUKE UNIVERSITY 324 BLACKWELL ST WASHIN BLDG NO 850 DURHAM,NC27701	56-0532129	501C(3)	1,907,878	CLINICAL CARE RESEARCH
(137) EAST CAROLINA UNIVERSITY GREENVILLE CENTRE SUITE 2900 WASHIN BLDG NO 850 GREENVILLE,NC278584353	56-6000403	IRC 115	31,410	CF CARE CENTER
(138) EAST TENNESSEE CHILDREN'S HOSPITAL ASSOCIATION I PO BOX 15010 2200 S CHARLES BLVD KNOXVILLE,TN379015010	62-6002604	501C(3)	118,265	CF CARE CENTER
(139) EASTERN MAINE MEDICAL CENTER 489 STATE STREET BANGOR,ME04402	01-0211501	501C(3)	52,260	CF CARE CENTER
(140) EMORY UNIVERSITY 1599 CLIFTON ROAD PO BOX 404 ATLANTA,GA30322	58-0566256	501C(3)	40,782	CLINICAL RESEARCH
(141) EMORY UNIVERSITY 1599 CLIFTON ROAD 4TH FLOOR ATLANTA,GA30322	58-0566256	501C(3)	42,680	CLINICAL RESEARCH CENTER
(142) EMORY UNIVERSITY 1599 CLIFTON ROAD 4TH FLOOR ATLANTA,GA30322	58-0566256	501C(3)	66,675	TRAINING
(143) EMORY UNIVERSITY 1599 CLIFTON ROAD 4TH FLOOR ATLANTA,GA30322	58-0566256	501C(3)	162,000	PILOT STUDY
(144) EMORY UNIVERSITY 1599 CLIFTON ROAD 4TH FLOOR ATLANTA,GA30322	58-0566256	501C(3)	196,350	RESEARCH STUDY
(145) EMORY UNIVERSITY 1599 CLIFTON ROAD 4TH FLOOR ATLANTA,GA30322	58-0566256	501C(3)	266,951	RESEARCH
(146) EMORY UNIVERSITY 1599 CLIFTON ROAD 4TH FLOOR ATLANTA,GA30322	58-0566256	501C(3)	341,140	CF CARE CENTER
(147) EMORY UNIVERSITY 1599 CLIFTON ROAD 4TH FLOOR ATLANTA,GA30322	58-0566256	501C(3)	907,774	CLINICAL RESEARCH STUDY
(148) FAIRFAX NEONATAL ASSOCIATES PC DBAPEDIATRIC LUNG 2730-B PROSPERITY AVENUE 4TH FLOOR FAIRFAX,VA22031	54-1110106	C CORP	70,595	CF CARE CENTER
(149) GEISINGER CLINIC 100 N ACADEMY AVE DANVILLE,PA178229800	23-6291113	501C(3)	61,750	TRAINING
(150) GEISINGER CLINIC 100 N ACADEMY AVE MC 49-70 DANVILLE,PA178229800	23-6291113	501C(3)	172,756	CF CARE CENTER
(151) GEORGIA TECH RESEARCH CORPORATION 505 TENTH ST NW MC 49-70 ATLANTA,GA30318	58-0603146	501C(3)	63,100	RESEARCH STUDY
(152) GEORGIA TECH RESEARCH CORPORATION 505 TENTH ST NW ATLANTA,GA30318	58-0603146	501C(3)	108,000	PILOT STUDY
(153) GEORGIA TECH RESEARCH CORPORATION 505 TENTH ST NW ATLANTA,GA30318	58-0603146	501C(3)	240,280	RESEARCH
(154) GOOD SAMARITAN HOSPITAL 1000 MONTAUK HIGHWAY BOX 3500 WEST ISLIP,NY11795	11-1888924	501C(3)	23,930	CF CARE CENTER
(155) GUNDERSEN LUTHERAN MEDICAL FOUNDATION 1836 SOUTH AVENUE BOX 3500 LA CROSSE,WI54601	39-1249705	501C(3)	32,955	CF CARE CENTER
(156) HARTFORD HOSPITAL 80 SEYMOUR STREET BOX 3500 HARTFORD,CT061025037	06-0646668	501C(3)	128,601	CF CARE CENTER
(157) HARVARD MEDICAL SCHOOL 1033 MASSACHUSETTS AVENUE PO BOX 5037 CAMBRIDGE,MA02138	04-2103580	501C(3)	54,380	therapeutics discovery research
(158) HARVARD MEDICAL SCHOOL 1033 MASSACHUSETTS AVENUE 2ND FLOOR CAMBRIDGE,MA02138	04-2103580	501C(3)	127,354	RESEARCH STUDY
(159) HEALTH ADVOCACY SUMMIT INC 1962 DOCKSIDE DRIVE 2ND FLOOR GREENWOOD,IN46143	83-0866589	501C(3)	10,000	COMMUNITY IMPACT
(160) HEALTH ASSESSMENT LAB INC 300 LEDGEWOOD PLACE SUITE 200 ROCKLAND,MD02370	04-3383748	501C(3)	16,553	CLINICAL RESEARCH CENTER
(161) HEALTH RESEARCH INC NEW YORK STATE DEPARTMENT O 150 BROADWAY MENANDS,NY122042719	14-1402155	501C(3)	107,762	RESEARCH
(162) HEALTHWELL FOUNDATION PO BOX 4133 SUITE 560 GAITHERSBURG,MD20885	20-0413676	501C(3)	3,400,000	PATIENT ASSISTANCE
(163) HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF 6720A ROCKLEDGE DRIVE BETHESDA,MD20817	52-1317896	501C(3)	47,500	CF CARE CENTER
(164) HMH HOSPITALS CORPORATION 343 THORNALL STREET NO 100 EDISON,NJ08837	22-1487576	501C(3)	125,000	RESEARCH
(165) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ONE GUSTAVE L LEVY PLACE BUILDING 340 SUITE 302 NEW YORK,NY10029	13-6171197	501C(3)	16,762	CLINICAL RESEARCH CENTER
(166) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ONE GUSTAVE L LEVY PLACE NEW YORK,NY10029	13-6171197	501C(3)	21,660	CF CARE CENTER
(167) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ONE GUSTAVE L LEVY PLACE 2545 SCHOENERSVILLE ROAD NEW YORK,NY10029	13-6171197	501C(3)	43,200	QUALITY IMPROVEMENT
(168) INFECTIOUS DISEASE RESEARCH INSTITUTE 1616 EASTLAKE AVENUE EAST COLEMAN PAV A1120N SEATTLE,WA98102	91-1608978	501C(3)	54,000	PILOT STUDY
(169) INOVA HEALTH CARE SERVICES 8110 GATEHOUSE ROAD 400 FALLS CHURCH,VA22042	54-0620889	501C(3)	40,166	ADULT CARE
(170) INOVA HEALTH CARE SERVICES 8110 GATEHOUSE ROAD SUITE 400W FALLS CHURCH,VA22042	54-0620889	501C(3)	86,908	CF CARE CENTER
(171) IOM HEALTH SYSTEM LP 7950 W JEFFERSON SUITE 400W FORT WAYNE,IN46804	35-1963748	C CORP	64,160	CF CARE CENTER
(172) IOWA HEALTH FOUNDATION 1415 WOODLAND AVENUE DES MOINES,IA50309	42-1467682	501C(3)	85,655	CF CARE CENTER
(173) JOE DIMAGGIO CHILDREN'S HOSPITAL FOUNDATION INC 3329 JOHNSON STREET NO E-200 HOLLYWOOD,FL33021	65-0492343	501C(3)	17,843	CLINICAL RESEARCH CENTER
(174) KAISER FOUNDATION RESEARCH INSTITUTE A DIVIDISION ONE KAISER PLAZA OAKLAND,CA94612	94-1105628	501C(3)	438,235	CF CARE CENTER
(175) KALEIDA HEALTH 726 EXCHANGE STREET 15L BUFFALO,NY14210	16-1533232	501C(3)	160,440	CF CARE CENTER
(176) LANDON PEDIATRIC FOUNDATION 3291 LOMA VISTA RD SUITE 200 VENTURA,CA93003	93-1097216	501C(3)	42,650	CF CARE CENTER
(177) LEE MEMORIAL HEALTH SYSTEM FOUNDATION INC 16451 HEALTH PARK COMMONS DRIVE BLDG 340 STE 302 FORT MYERS,FL33908	65-0645343	501C(3)	36,215	CF CARE CENTER
(178) LEHIGH VALLEY HOSPITAL 2100 MACK BLVD SUITE 200 ALLENTOWN,PA181035622	23-1689692	501C(3)	87,155	CF CARE CENTER
(179) LOMA LINDA UNIVERSITY 11145 ANDERSON STREET PLUMMER 5 LOMA LINDA,CA92354	95-1816009	501C(3)	71,260	CF CARE CENTER
(180) LONG ISLAND JEWISH MEDICAL CENTER 270-05 76TH AVENUE NEW HYDE PARK,NY11040	11-2241326	501C(3)	219,285	CF CARE CENTER
(181) LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER 433 BOLIVAR ST NEW ORLEANS,LA70112	72-6087770	501C(3)	54,000	PILOT STUDY
(182) LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER PO BOX 33932 SHREVEPORT,LA71130	72-0702002	501C(3)	125,065	CF CARE CENTER
(183) LOYOLA UNIVERSITY CHICAGO 820 NORTH MICHIGAN AVENUE CHICAGO,IL606112147	36-1408475	501C(3)	79,485	CF CARE CENTER
(184) LOYOLA UNIVERSITY CHICAGO 820 NORTH MICHIGAN AVENUE CHICAGO,IL606112147	36-1408475	501C(3)	145,600	CLINICAL CARE RESEARCH
(185) MAINE MEDICAL CENTER 22 BRAIMHALL STREET PORTLAND,ME041023175	01-0238552	501C(3)	35,274	CLINICAL RESEARCH CENTER
(186) MAINE MEDICAL CENTER 22 BRAIMHALL STREET PORTLAND,ME041023175	01-0238552	501C(3)	187,879	CF CARE CENTER
(187) MAINE MEDICAL CENTER 22 BRAIMHALL STREET PORTLAND,ME041023175	01-0238552	501C(3)	362,019	CLINICAL RESEARCH STUDY
(188) MARSHFIELD CLINIC RESEARCH FOUNDATION 1000 N OAK AVENUE MARSHFIELD,WI54449	39-0452970	501C(3)	48,310	CF CARE CENTER
(189) MARY BRIDGE CHILDREN'S FOUNDATION PO BOX 5299 PO BOX 1428 TACOMA,WA98415	94-3030039	501C(3)	64,520	CF CARE CENTER
(190) MASSACHUSETTS INSTITUTE OF TECHNOLOGY 77 MASSACHUSETTS AVENUE CAMBRIDGE,MA021394307	04-2103594	501C(3)	63,100	therapeutics discovery research
(191) MAYO CLINIC 200 FIRST STREET SW SUITE C ROCHESTER,MN55905	41-6011702	501C(3)	94,965	CF CARE CENTER
(192) MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE,FL32224	59-3337028	501C(3)	41,142	ADULT CARE
(193) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	42,090	ADULT CARE
(194) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE 1628 JFK BOULEVARD CHARLESTON,SC294258908	57-6000722	501C(3)	48,723	CLINICAL CARE RESEARCH
(195) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	63,669	CLINICAL RESEARCH CENTER
(196) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	66,750	TRAINING
(197) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	125,000	RESEARCH
(198) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	198,720	CF CARE CENTER
(199) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	217,147	CLINICAL RESEARCH STUDY
(200) MEMORIAL HEALTH SERVICES 17360 BROOKHURST STREET FOUNTAIN VALLEY,CA92708	95-1643381	501C(3)	18,498	CLINICAL RESEARCH CENTER
(201) MEMORIAL MEDICAL CENTER FOUNDATION (ON BEHALF OF L 2801 ATLANTIC AVENUE LONG BEACH,CA90806	95-6105984	501C(3)	160,365	CF CARE CENTER
(202) MH MISSION HOSPITAL LLLP PO BOX 550 NASHVILLE TN,MD372020550	83-2048706	LLP	18,080	CF CARE CENTER
(203) MICHIGAN STATE UNIVERSITY 426 AUDITORIUM ROAD EAST LANSING,MI48824	38-6005984	501C(3)	58,165	CF CARE CENTER
(204) MICHIGAN STATE UNIVERSITY 426 AUDITORIUM ROAD ROOM 360 EAST LANSING,MI48824	38-6005984	501C(3)	84,000	therapeutics discovery research
(205) MILES FOR CYSTIC FIBROSIS INC PO BOX 2984 ROOM 360 TUCKER,GA30085	26-4020016	501C(3)	10,000	COMMUNITY IMPACT
(206) MONMOUTH MEDICAL CENTER FOUNDATION 300 SECOND AVENUE LONG BRANCH,NJ07740	22-2456079	501C(3)	61,946	CLINICAL RESEARCH CENTER
(207) MONMOUTH MEDICAL CENTER FOUNDATION 300 SECOND AVENUE LONG BRANCH,NJ07740	22-2456079	501C(3)	134,070	CF CARE CENTER
(208) NATIONAL DISEASE RESEARCH INTERCHANGE 1628 JOHN F KENNEDY BLVD SUITE 102 PHILADELPHIA,PA19103	23-2213205	501C(3)	336,807	RESEARCH
(209) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET 8 PENN CENTER 15TH FLOOR DENVER,CO80206	74-2044647	501C(3)	28,868	ADHERENCE
(210) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET RUBLOFF 7TH FLOOR DENVER,CO80206	74-2044647	501C(3)	35,640	ADULT CARE
(211) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET RUBLOFF 7TH FLOOR DENVER,CO80206	74-2044647	501C(3)	54,000	PILOT STUDY
(212) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET RUBLOFF 7TH FLOOR DENVER,CO80206	74-2044647	501C(3)	79,015	CLINICAL RESEARCH CENTER
(213) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET RUBLOFF 7TH FLOOR DENVER,CO80206	74-2044647	501C(3)	233,385	CF CARE CENTER
(214) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET RUBLOFF 7TH FLOOR DENVER,CO80206	74-2044647	501C(3)	362,652	CLINICAL RESEARCH
(215) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET RUBLOFF 7TH FLOOR DENVER,CO80206	74-2044647	501C(3)	508,000	RESEARCH
(216) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	547,878	RESEARCH CENTER
(217) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	720,480	CLINICAL RESEARCH STUDY
(218) NEMOURS CHILDREN'S HEALTH SYSTEM 1600 ROCKLAND ROAD WILMINGTON,DE198033607	59-0634433	501C(3)	42,526	QUALITY IMPROVEMENT
(219) NEMOURS CHILDREN'S HEALTH SYSTEM 1600 ROCKLAND ROAD ROCKLAND CENTER 1 WILMINGTON,DE198033607	59-0634433	501C(3)	53,783	CLINICAL RESEARCH STUDY
(220) NEMOURS CHILDREN'S HEALTH SYSTEM 1600 ROCKLAND ROAD ROCKLAND CENTER 1 WILMINGTON,DE198033607	59-0634433	501C(3)	57,500	CLINICAL RESEARCH CENTER
(221) NEMOURS CHILDREN'S HEALTH SYSTEM 1600 ROCKLAND ROAD ROCKLAND CENTER 1 WILMINGTON,DE198033607	59-0634433	501C(3)	369,345	CF CARE CENTER
(222) NEW YORK UNIVERSITY 545 FIRST AVENUE ROCKLAND CENTER 1 NEW YORK,NY10016	13-5562308	501C(3)	43,200	QUALITY IMPROVEMENT
(223) NEW YORK UNIVERSITY 545 FIRST AVENUE OFFICE OF RESEARCH AFFAIRS H138 NEW YORK,NY10016	13-5562308	501C(3)	63,100	RESEARCH STUDY
(224) NEW YORK UNIVERSITY 545 FIRST AVENUE OFFICE OF RESEARCH AFFAIRS H138 NEW YORK,NY10016	13-5562308	501C(3)	119,910	CF CARE CENTER
(225) NORTH SUBURBAN PULMONARY AND CRITICAL CARE CONSULT 9201N WAUKEGAN ROAD OFFICE OF RESEARCH AFFAIRS H138 MORTON GROVE,IL60053	36-4393017	C CORP	42,575	CF CARE CENTER
(226) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	50,340	CLINICAL RESEARCH CENTER
(227) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	54,000	PILOT STUDY
(228) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	55,900	CLINICAL RESEARCH
(229) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	60,711	ADHERENCE
(230) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	94,240	CF CARE CENTER
(231) OREGON HEALTH & SCIENCE UNIVERSITY 2525 SW 3RD AVE PORTLAND,OR97201	93-1176109	501C(3)	20,115	ADHERENCE
(232) OREGON HEALTH & SCIENCE UNIVERSITY 2525 SW 3RD AVE SUITE 245 PORTLAND,OR97201	93-1176109	501C(3)	49,183	CLINICAL RESEARCH CENTER
(233) OREGON HEALTH & SCIENCE UNIVERSITY 2525 SW 3RD AVE SUITE 245 PORTLAND,OR97201	93-1176109	501C(3)	50,783	QUALITY IMPROVEMENT
(234) OREGON HEALTH & SCIENCE UNIVERSITY 2525 SW 3RD AVE SUITE 245 PORTLAND,OR97201	93-1176109	501C(3)	54,000	PILOT STUDY
(235) OREGON HEALTH & SCIENCE UNIVERSITY 2525 SW 3RD AVE SUITE 245 PORTLAND,OR97201	93-1176109	501C(3)	80,431	ADULT CARE
(236) OREGON HEALTH & SCIENCE UNIVERSITY 2525 SW 3RD AVE SUITE 245 PORTLAND,OR97201	93-1176109	501C(3)	309,395	CF CARE CENTER
(237) OREGON HEALTH & SCIENCE UNIVERSITY 2525 SW 3RD AVE SUITE 245 PORTLAND,OR97201	93-1176109	501C(3)	507,873	CLINICAL RESEARCH STUDY
(238) OREGON STATE UNIVERSITY PO BOX 1086 SUITE 245 CORVALLIS,OR973391086	61-1730890	IRC 115	124,706	RESEARCH
(239) OREGON STATE UNIVERSITY PO BOX 1086 CORVALLIS,OR973391086	61-1730890	IRC 115	270,838	THERAPEUTICS DISCOVERY RESEARCH
(240) ORLANDO HEALTH FOUNDATION 3160 SOUTHGATE COMMERCE BLVD SUITE ORLANDO,FL32806	59-2244943	501C(3)	90,075	CF CARE CENTER
(241) OSF SAINT FRANCIS MEDICAL CENTER 530 NE GLEN OAK AVE PEORIA,IL61637	37-0662569	501C(3)	17,250	CLINICAL RESEARCH CENTER
(242) OSF SAINT FRANCIS MEDICAL CENTER 530 NE GLEN OAK AVE PEORIA,IL61637	37-0662569	501C(3)	115,005	CF CARE CENTER
(243) PENNSYLVANIA STATE UNIVERSITY 500 UNIVERSITY DRIVE HERSHEY,PA17033	24-6000376	IRC 115	22,381	CLINICAL RESEARCH CENTER
(244) PENNSYLVANIA STATE UNIVERSITY 500 UNIVERSITY DRIVE MAIL CODE H157 HERSHEY,PA17033	24-6000376	IRC 115	187,300	CF CARE CENTER
(245) PHOENIX CHILDREN'S HOSPITAL FOUNDATION 2929 CAMELBACK ROAD MAIL CODE H157 PHOENIX,AZ85016	74-2421549	501C(3)	287,068	CF CARE CENTER
(246) PROJECT CF SPOUSE 170 DAVIS COURT SUITE 122 HIRAM,GA30141	81-3803502	501C(3)	10,000	COMMUNITY IMPACT
(247) PROVIDENCE HEALTH & SERVICES WASHINGTON PO BOX 389672 SEATTLE,WA981389672	51-0216586	501C(3)	34,495	ADULT CARE
(248) PROVIDENCE HEALTH & SERVICES WASHINGTON PO BOX 389672 SEATTLE,WA981389672	51-0216586	501C(3)	35,926	CLINICAL RESEARCH CENTER
(249) PROVIDENCE HEALTH & SERVICES WASHINGTON PO BOX 389672 SEATTLE,WA981389672	51-0216586	501C(3)	202,100	CF CARE CENTER
(250) REGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE ACCOUNTING OFFICE 120 THEORY IRVINE,CA926971050	95-2226406	501C(3)	145,600	CLINICAL CARE RESEARCH
(251) REGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE ACCOUNTING OFFICE 120 THEORY SUITE 200 IRVINE,CA926971050	95-2226406	501C(3)	574,000	THERAPEUTICS DISCOVERY RESEARCH
(252) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER GRANTS CONTRACTS MS F428 AMC BL SUITE 200 AURORA,CO800452571	84-6000555	501C(3)	21,673	ADHERENCE
(253) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER GRANTS CONTRACTS MS F428 AMC BL RM W1124 AURORA,CO800452571	84-6000555	501C(3)	53,999	PILOT STUDY
(254) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER GRANTS CONTRACTS MS F428 AMC BL RM W1124 AURORA,CO800452571	84-6000555	501C(3)	182,155	CLINICAL RESEARCH CENTER
(255) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER GRANTS CONTRACTS MS F428 AMC BL RM W1124 AURORA,CO800452571	84-6000555	501C(3)	222,410	CF CARE CENTER
(256) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER GRANTS CONTRACTS MS F428 AMC BL RM W1124 AURORA,CO800452571	84-6000555	501C(3)	239,800	RESEARCH
(257) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER GRANTS CONTRACTS MS F428 AMC BL RM W1124 AURORA,CO800452571	84-6000555	501C(3)	380,018	CLINICAL RESEARCH STUDY
(258) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER GRANTS CONTRACTS MS F428 AMC BL RM W1124 AURORA,CO800452571	84-6000555	501C(3)	457,000	TRAINING
(259) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER GRANTS CONTRACTS MS F428 AMC BL RM W1124 AURORA,CO800452571	84-6000555	501C(3)	768,483	CLINICAL RESEARCH
(260) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER GRANTS CONTRACTS MS F428 AMC BL RM W1124 AURORA,CO800452571	84-6000555	501C(3)	1,098,808	CLINICAL CARE RESEARCH
(261) RENOWN HEALTH FOUNDATION 1155 MILL ST RM W1124 RENO,NV89502	94-2972749	501C(3)	47,990	CF CARE CENTER
(262) RHODE ISLAND HOSPITAL 593 EDDY STREET O2 PROVIDENCE,RI02903	05-0258954	501C(3)	35,640	ADULT CARE
(263) RHODE ISLAND HOSPITAL 593 EDDY STREET PROVIDENCE,RI02903	05-0258954	501C(3)	162,240	CF CARE CENTER
(264) ROSALIND FRANKLIN UNIVERSITY OF MEDICINE AND SCIEN 3333 GREEN BAY RD NORTH CHICAGO,IL60064	36-2181973	501C(3)	136,178	RESEARCH
(265) RUSH UNIVERSITY MEDICAL CENTER 1653 W CONGRESS PARKWAY CYSTIC FIBROSIS CLINIC CHICAGO,IL60612	36-2174823	501C(3)	89,675	CF CARE CENTER
(266) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 65 DAVIDSON ROAD PISCATAWAY,NJ08854	46-2354111	IRC 115	41,142	ADULT CARE
(267) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 65 DAVIDSON ROAD PISCATAWAY,NJ08854	46-2354111	IRC 115	41,466	CLINICAL RESEARCH CENTER
(268) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 65 DAVIDSON ROAD PISCATAWAY,NJ08854	46-2354111	IRC 115	108,000	RESEARCH
(269) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 65 DAVIDSON ROAD PISCATAWAY,NJ08854	46-2354111	IRC 115	122,749	CF CARE CENTER
(270) SAINT BARNABAS MEDICAL CENTER 94 OLD SHORT HILLS ROAD SUITE 405 LIVINGSTON,NJ07039	22-1494440	501C(3)	42,860	CF CARE CENTER
(271) SAINT JOSEPH REGIONAL MEDICAL CENTER - SOUTH BEND 5215 HOLY CROSS PARKWAY MISHAWAKA,IN465451469	35-0868157	501C(3)	95,145	CF CARE CENTER
(272) SAINT JOSEPH'S HOSPITAL AND MEDICAL CENTER 703 MAIN STREET PETERSON,NJ07503	22-1487602	501C(3)	43,950	CF CARE CENTER
(273) SANFORD CLINIC PO BOX 5039 SUITE 200 SIOUX FALLS,SD571175039	46-0447693	501C(3)	25,134	CLINICAL RESEARCH CENTER
(274) SANFORD CLINIC PO BOX 5039 RTE 5218 SIOUX FALLS,SD571175039	46-0447693	501C(3)	141,450	CF CARE CENTER
(275) SANFORD MEDICAL CENTER FARGO PO BOX 2010 RTE 5218 FARGO,ND58112	45-0226909	501C(3)	36,915	CF CARE CENTER
(276) SANTA BARBARA COTTAGE HOSPITAL 400 WEST PUEBLO STREET SANTA BARBARA,CA93105	95-1644629	501C(3)	64,060	CF CARE CENTER
(277) SEATTLE CHILDREN'S HOSPITAL PO BOX 5371 SEATTLE,WA981455005	91-0564748	501C(3)	43,200	QUALITY IMPROVEMENT
(278) SEATTLE CHILDREN'S HOSPITAL PO BOX 5371 MS RC-507 SEATTLE,WA981455005	91-0564748	501C(3)	59,075	ADHERENCE
(279) SEATTLE CHILDREN'S HOSPITAL PO BOX 5371 MS RC-507 SEATTLE,WA981455005	91-0564748	501C(3)	69,250	TRAINING
(280) SEATTLE CHILDREN'S HOSPITAL PO BOX 5371 MS RC-507 SEATTLE,WA981455005	91-0564748	501C(3)	80,179	ADULT CARE
(281) SEATTLE CHILDREN'S HOSPITAL PO BOX 5371 MS RC-507 SEATTLE,WA981455005	91-0564748	501C(3)	214,834	CF CARE CENTER
(282) SEATTLE CHILDREN'S HOSPITAL PO BOX 5371 MS RC-507 SEATTLE,WA981455005	91-0564748	501C(3)	612,950	CLINICAL RESEARCH STUDY
(283) SEATTLE CHILDREN'S HOSPITAL PO BOX 5371 MS RC-507 SEATTLE,WA981455005	91-0564748	501C(3)	1,303,466	CLINICAL CARE RESEARCH
(284) SEATTLE CHILDREN'S HOSPITAL PO BOX 5371 MS RC-507 SEATTLE,WA981455005	91-0564748	501C(3)	8,852,451	CLINICAL RESEARCH CENTER
(285) SEATTLE CHILDREN'S HOSPITAL PO BOX 5371 MS RC-507 SEATTLE,WA981455005	91-0564748	501C(3)	9,086,103	CLINICAL RESEARCH
(286) SOCIAL GOOD FUND 12651 SAN PABLO AVE MS RC-507 RICHMOND,CA94805	46-1323531	501C(3)	10,000	COMMUNITY IMPACT
(287) SOUTH BROWARD HOSPITAL DISTRICT 3501 JOHNSON STREET 5473 HOLLYWOOD,FL33021	59-6014973	501C(3)	142,220	CF CARE CENTER
(288) SOUTHERN RESEARCH INSTITUTE 2000 NINTH AVENUE SOUTH BIRMINGHAM,AL35205	63-0288868	501C(3)	2,198,738	THERAPEUTICS DISCOVERY RESEARCH
(289) SPECTRUM HEALTH FOUNDATION 100 MICHIGAN ST NE GRAND RAPIDS,MI49503	38-2752328	501C(3)	82,080	ADULT CARE
(290) SPECTRUM HEALTH FOUNDATION 100 MICHIGAN ST NE MC 004 GRAND RAPIDS,MI49503	38-2752328	501C(3)	342,201	CF CARE CENTER
(291) ST ALEXIUS MEDICAL CENTER 900 EAST BROADWAY AVENUE MC 004 BISMARCK,ND585014520	45-0226711	501C(3)	66,600	CF CARE CENTER
(292) ST LOUIS UNIVERSITY 221 NORTH GRAND BLVD ST LOUIS,MO63103	43-0654872	501C(3)	6,633	CLINICAL RESEARCH CENTER
(293) ST LOUIS UNIVERSITY 221 NORTH GRAND BLVD ST LOUIS,MO63103	43-0654872	501C(3)	106,840	ADULT CARE
(294) ST LOUIS UNIVERSITY 221 NORTH GRAND BLVD ST LOUIS,MO63103	43-0654872	501C(3)	178,565	CF CARE CENTER
(295) ST LUKE'S REGIONAL MEDICAL CENTER LTD 190 E BANNOCK BOISE,ID83712	82-0161600	501C(3)	29,670	CLINICAL RESEARCH CENTER
(296) ST LUKE'S REGIONAL MEDICAL CENTER LTD 190 E BANNOCK BOISE,ID83712	82-0161600	501C(3)	247,360	CF CARE CENTER
(297) ST MARY'S MEDICAL CENTER INC PO BOX 741191 ATLANTA,GA303741191	75-2932830	C CORP	69,350	CF CARE CENTER
(298) ST VINCENT HOSPITAL OF THE HOSPITAL SISTERS OF TH 835 S VAN BUREN GREEN BAY,WI543013256	39-0817529	501C(3)	56,755	CF CARE CENTER
(299) STATE OF MISSISSIPPIUNIVERSITY OF MISSISSIPPI MED 2500 NORTH STATE STREET JACKSON,MS392164505	64-6008520	501C(3)	143,008	CF CARE CENTER
(300) STATE OF NEW JERSEY DEPARTMENT OF HEALTH TRENTON,NJ08625	21-6000928	U.S. STATE	43,200	QUALITY IMPROVEMENT
(301) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN PO BOX 9 310 JESSE HALL ALBANY,NY12201	14-1368361	501C(3)	33,000	ADHERENCE
(302) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN PO BOX 9 310 JESSE HALL ALBANY,NY12201	14-1368361	501C(3)	69,491	CLINICAL RESEARCH CENTER
(303) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN PO BOX 9 ALBANY,NY12201	14-1368361	501C(3)	82,059	ADULT CARE
(304) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN PO BOX 9 ALBANY,NY12201	14-1368361	501C(3)	215,419	CLINICAL RESEARCH
(305) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN PO BOX 9 ALBANY,NY12201	14-1368361	501C(3)	485,005	CF CARE CENTER
(306) SUTTER BAY HOSPITALS 475 BRANNAN STREET SAN FRANCISCO,CA94107	94-0562680	501C(3)	24,755	CF CARE CENTER
(307) SUTTER MEDICAL CENTER SACRAMENTO PO BOX 160727 SUITE 220 SACRAMENTO,CA95833	94-1156621	501C(3)	79,085	CF CARE CENTER
(308) TAMPA GENERAL HOSPITAL FOUNDATION INC PO BOX 1289 TAMPA,FL33601	23-7354477	501C(3)	143,945	CF CARE CENTER
(309) TEMPLE UNIVERSITY OF THE COMMONWEALTH SYSTEM OF HI 1852 N 10TH STREET PHILADELPHIA,PA19122	23-1365971	501C(3)	134,430	RESEARCH
(310) TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER 3601 4TH STREET LUBBOCK,TX794306209	75-2668014	501C(3)	44,795	CF CARE CENTER
(311) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 6823 ST CHARLES AVENUE STOP 6209 NEW ORLEANS,LA70118	72-0423889	501C(3)	13,500	CLINICAL RESEARCH CENTER
(312) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 6823 ST CHARLES AVENUE NEW ORLEANS,LA70118	72-0423889	501C(3)	37,226	ADULT CARE
(313) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 6823 ST CHARLES AVENUE NEW ORLEANS,LA70118	72-0423889	501C(3)	214,855	CF CARE CENTER
(314) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF AR ACTI 4301 WEST MARKHAM ST LITTLE ROCK,AR72205	71-6046242	501C(3)	96,205	CF CARE CENTER
(315) THE CHARLOTTE-MECKLENBURG HOSPITAL AUTHORITY PO BOX 601979 812 CHARLOTTE,NC282601979	56-0529945	501C(3)	67,110	CLINICAL RESEARCH
(316) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	54,375	CLINICAL RESEARCH CENTER
(317) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	106,245	CLINICAL RESEARCH
(318) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	133,067	RESEARCH
(319) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	210,975	CF CARE CENTER
(320) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	278,750	TRAINING
(321) THE CHILDREN'S MERCY HOSPITAL 2401 GILLHAM ROAD KANSAS CITY,MO64108	44-0605373	501C(3)	62,552	CLINICAL RESEARCH CENTER
(322) THE CHILDREN'S MERCY HOSPITAL 2401 GILLHAM ROAD KANSAS CITY,MO64108	44-0605373	501C(3)	162,320	CF CARE CENTER
(323) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND,OH44131	34-0714585	501C(3)	13,468	CLINICAL RESEARCH CENTER
(324) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE JJN5 CLEVELAND,OH44131	34-0714585	501C(3)	32,133	THERAPEUTICS DISCOVERY RESEARCH
(325) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE JJN5 CLEVELAND,OH44131	34-0714585	501C(3)	46,440	ADULT CARE
(326) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE JJN5 CLEVELAND,OH44131	34-0714585	501C(3)	76,295	CF CARE CENTER
(327) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE JJN5 CLEVELAND,OH44131	34-0714585	501C(3)	156,032	CLINICAL CARE RESEARCH
(328) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE JJN5 CLEVELAND,OH44131	34-0714585	501C(3)	238,000	RESEARCH
(329) THE CURATORS OF THE UNIVERSITY OF MISSOURI 118 UNIVERSITY HALL JJN5 COLUMBIA,MO652118230	43-6003859	501C(3)	40,325	ADULT CARE
(330) THE CURATORS OF THE UNIVERSITY OF MISSOURI 118 UNIVERSITY HALL COLUMBIA,MO652118230	43-6003859	501C(3)	81,000	THERAPEUTICS DISCOVERY RESEARCH
(331) THE CURATORS OF THE UNIVERSITY OF MISSOURI 118 UNIVERSITY HALL COLUMBIA,MO652118230	43-6003859	501C(3)	169,255	CF CARE CENTER
(332) THE CURATORS OF THE UNIVERSITY OF MISSOURI 118 UNIVERSITY HALL COLUMBIA,MO652118230	43-6003859	501C(3)	243,000	RESEARCH
(333) THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH 972 BRUSH HOLLOW ROAD WESTBURY,NY11590	11-2673595	501C(3)	43,917	CLINICAL RESEARCH CENTER
(334) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	34,720	CLINICAL RESEARCH CENTER
(335) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE 55 FRUIT STREET OFFICE OF SPONSORED PROGRAMS BOSTON,MA02114	04-2697983	501C(3)	71,376	ADULT CARE
(336) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE 55 FRUIT STREET OFFICE OF SPONSORED PROGRAMS BOSTON,MA02114	04-2697983	501C(3)	145,600	CLINICAL CARE RESEARCH
(337) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE 55 FRUIT STREET OFFICE OF SPONSORED PROGRAMS BOSTON,MA02114	04-2697983	501C(3)	160,800	THERAPEUTICS DISCOVERY RESEARCH
(338) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE 55 FRUIT STREET ONE SHIELDS AVENUE BOSTON,MA02114	04-2697983	501C(3)	175,800	CF CARE CENTER
(339) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE 55 FRUIT STREET ONE SHIELDS AVENUE BOSTON,MA02114	04-2697983	501C(3)	176,250	TRAINING
(340) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE 55 FRUIT STREET ONE SHIELDS AVENUE BOSTON,MA02114	04-2697983	501C(3)	189,298	RESEARCH STUDY
(341) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE 55 FRUIT STREET 10920 WILSHIRE BLVD SUITE 200 BOSTON,MA02114	04-2697983	501C(3)	265,000	RESEARCH
(342) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE 55 FRUIT STREET 10920 WILSHIRE BLVD SUITE 200 BOSTON,MA02114	04-2697983	501C(3)	439,347	CLINICAL RESEARCH CENTER
(343) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	441,398	QUALITY IMPROVEMENT
(344) THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON,NH03756	02-0222139	501C(3)	35,400	ADULT CARE
(345) THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON,NH03756	02-0222139	501C(3)	44,767	CLINICAL RESEARCH CENTER
(346) THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON,NH03756	02-0222139	501C(3)	179,185	CF CARE CENTER
(347) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD 3333 CALIFORNIA STREET SUITE 315 BALTIMORE,MD21211	52-0595110	501C(3)	27,439	QUALITY IMPROVEMENT
(348) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD NO N4327B BALTIMORE,MD21211	52-0595110	501C(3)	32,400	ADHERENCE
(349) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD NO N4327B BALTIMORE,MD21211	52-0595110	501C(3)	99,705	RESEARCH CENTER
(350) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD NO N4327B BALTIMORE,MD21211	52-0595110	501C(3)	135,000	RESEARCH
(351) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD NO N4327B BALTIMORE,MD21211	52-0595110	501C(3)	158,000	PILOT STUDY
(352) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD NO N4327B BALTIMORE,MD21211	52-0595110	501C(3)	241,910	CLINICAL RESEARCH CENTER
(353) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD NO N4327B BALTIMORE,MD21211	52-0595110	501C(3)	342,038	TRAINING
(354) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD NO N4327B BALTIMORE,MD21211	52-0595110	501C(3)	389,342	CLINICAL RESEARCH
(355) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD NO N4327B BALTIMORE,MD21211	52-0595110	501C(3)	437,334	CF CARE CENTER
(356) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD NO N4327B BALTIMORE,MD21211	52-0595110	501C(3)	630,093	THERAPEUTICS DISCOVERY RESEARCH
(357) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD NO N4327B BALTIMORE,MD21211	52-0595110	501C(3)	797,104	CLINICAL CARE RESEARCH
(358) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD NO N4327B BALTIMORE,MD21211	52-0595110	501C(3)	943,026	CLINICAL RESEARCH STUDY
(359) THE MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD NO N4327B MILWAUKEE,WI532263548	39-0806261	501C(3)	43,443	CLINICAL RESEARCH CENTER
(360) THE MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD MILWAUKEE,WI532263548	39-0806261	501C(3)	68,538	CLINICAL RESEARCH
(361) THE MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD MILWAUKEE,WI532263548	39-0806261	501C(3)	316,575	CF CARE CENTER
(362) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH432101016	31-6025986	IRC 115	54,000	PILOT STUDY
(363) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH432101016	31-6025986	IRC 115	131,323	RESEARCH
(364) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI 1001 NORTH EMMET STREET CHARLOTTESVILLE,VA22903	54-6001796	501C(3)	74,703	ADULT CARE
(365) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI 1001 NORTH EMMET STREET CHARLOTTESVILLE,VA22903	54-6001796	501C(3)	190,495	CF CARE CENTER
(366) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS ONE SHIELDS AVENUE DAVIS,CA95618	94-6036494	501C(3)	40,126	ADULT CARE
(367) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS ONE SHIELDS AVENUE DAVIS,CA95618	94-6036494	501C(3)	129,570	CF CARE CENTER
(368) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS A 10889 WILSHIRE BOULEVARD DEPT 4656 / REF 413407 LOS ANGELES,CA90095	95-6006143	501C(3)	92,880	ADULT CARE
(369) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS A 10889 WILSHIRE BOULEVARD SUITE 700 BOX 951406 LOS ANGELES,CA90095	95-6006143	501C(3)	154,326	CF CARE CENTER
(370) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS A 10889 WILSHIRE BOULEVARD SUITE 700 BOX 951406 LOS ANGELES,CA90095	95-6006143	501C(3)	162,000	THERAPEUTICS DISCOVERY RESEARCH
(371) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN D 9500 GILMAN DRIVE SUITE 700 BOX 951406 LA JOLLA,CA920930953	95-6006144	501C(3)	30,707	CLINICAL RESEARCH CENTER
(372) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN D 9500 GILMAN DRIVE DEPT 4656 / REF 413407 LA JOLLA,CA920930953	95-6006144	501C(3)	252,895	CF CARE CENTER
(373) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 1855 FOLSOM STREET DEPT 4656 / REF 413407 SAN FRANCISCO,CA94143	94-6036493	501C(3)	17,558	CLINICAL RESEARCH CENTER
(374) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 1855 FOLSOM STREET BOX 0812 SAN FRANCISCO,CA94143	94-6036493	501C(3)	41,142	ADULT CARE
(375) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 1855 FOLSOM STREET BOX 0812 SAN FRANCISCO,CA94143	94-6036493	501C(3)	145,600	CLINICAL CARE RESEARCH
(376) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 1855 FOLSOM STREET BOX 0812 SAN FRANCISCO,CA94143	94-6036493	501C(3)	175,000	RESEARCH CENTER
(377) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 1855 FOLSOM STREET BOX 0812 SAN FRANCISCO,CA94143	94-6036493	501C(3)	238,500	TRAINING
(378) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 1855 FOLSOM STREET BOX 0812 SAN FRANCISCO,CA94143	94-6036493	501C(3)	291,515	CF CARE CENTER
(379) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 1855 FOLSOM STREET BOX 0812 SAN FRANCISCO,CA94143	94-6036493	501C(3)	763,116	RESEARCH
(380) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 5082 WOLVERINE TOWER BOX 0812 ANN ARBOR,MI481091287	38-6006309	501C(3)	17,535	ADHERENCE
(381) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 5082 WOLVERINE TOWER 3003 SOUTH STATE STREET ANN ARBOR,MI481091287	38-6006309	501C(3)	45,003	CLINICAL RESEARCH CENTER
(382) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 5082 WOLVERINE TOWER 3003 SOUTH STATE STREET ANN ARBOR,MI481091287	38-6006309	501C(3)	86,472	ADULT CARE
(383) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 5082 WOLVERINE TOWER 3003 SOUTH STATE STREET ANN ARBOR,MI481091287	38-6006309	501C(3)	337,346	CLINICAL RESEARCH STUDY
(384) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 5082 WOLVERINE TOWER 3003 SOUTH STATE STREET ANN ARBOR,MI481091287	38-6006309	501C(3)	415,631	CF CARE CENTER
(385) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 5082 WOLVERINE TOWER 3003 SOUTH STATE STREET ANN ARBOR,MI481091287	38-6006309	501C(3)	431,362	THERAPEUTICS DISCOVERY RESEARCH
(386) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 5082 WOLVERINE TOWER 3003 SOUTH STATE STREET ANN ARBOR,MI481091287	38-6006309	501C(3)	561,096	CLINICAL CARE RESEARCH
(387) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 3003 SOUTH STATE STREET BAGLEY,MN56621	41-6007513	501C(3)	53,609	CLINICAL RESEARCH
(388) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 213 MAIN AVE N BAGLEY,MN56621	41-6007513	501C(3)	104,913	CLINICAL RESEARCH CENTER
(389) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 213 MAIN AVE N BAGLEY,MN56621	41-6007513	501C(3)	305,548	ADULT CARE
(390) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 213 MAIN AVE N BAGLEY,MN56621	41-6007513	501C(3)	391,603	CLINICAL CARE RESEARCH
(391) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 213 MAIN AVE N BAGLEY,MN56621	41-6007513	501C(3)	410,605	CF CARE CENTER
(392) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE 213 MAIN AVE N COLUMBUS,OH432052664	31-6056230	501C(3)	63,100	CLINICAL RESEARCH CENTER
(393) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	145,990	QUALITY IMPROVEMENT
(394) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	229,570	TRAINING
(395) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	253,594	THERAPEUTICS DISCOVERY RESEARCH
(396) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	420,075	CF CARE CENTER
(397) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	500,000	RESEARCH CENTER
(398) THE ROCKEFELLER UNIVERSITY 1230 YORK AVENUE NEW YORK,NY10065	13-1624158	501C(3)	279,885	THERAPEUTICS DISCOVERY RESEARCH
(399) THE SALTY LIFE FOUNDATION 150 ANDREWS ROAD FAYETTEVILLE,NC28311	83-1723847	501C(3)	10,000	COMMUNITY IMPACT
(400) THE SCRIPPS RESEARCH INSTITUTE 10550 N TORREY PINES ROAD SUITE 5A 13 LA JOLLA,CA92307	33-0435954	501C(3)	63,100	RESEARCH STUDY
(401) THE TOLEDO HOSPITAL 2142 N COVE BLVD TOLEDO,OH43606	34-4428256	501C(3)	28,545	CLINICAL RESEARCH CENTER
(402) THE TOLEDO HOSPITAL 2142 N COVE BLVD TOLEDO,OH43606	34-4428256	501C(3)	179,457	CF CARE CENTER
(403) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 615 WEST 131ST STREET OFFICE OF SPONSORED RESEARCH NEW YORK,NY100277922	13-5598093	501C(3)	37,828	ADULT CARE
(404) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 615 WEST 131ST STREET 3RD FLOOR NEW YORK,NY100277922	13-5598093	501C(3)	53,544	PILOT STUDY
(405) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 615 WEST 131ST STREET 3RD FLOOR NEW YORK,NY100277922	13-5598093	501C(3)	67,800	RESEARCH STUDY
(406) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 615 WEST 131ST STREET 3RD FLOOR NEW YORK,NY100277922	13-5598093	501C(3)	91,478	CLINICAL RESEARCH CENTER
(407) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 615 WEST 131ST STREET 3RD FLOOR NEW YORK,NY100277922	13-5598093	501C(3)	145,600	CLINICAL CARE RESEARCH
(408) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 615 WEST 131ST STREET 3RD FLOOR NEW YORK,NY100277922	13-5598093	501C(3)	329,900	CF CARE CENTER
(409) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 615 WEST 131ST STREET 3RD FLOOR NEW YORK,NY100277922	13-5598093	501C(3)	540,000	RESEARCH
(410) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH 3RD FLOOR BIRMINGHAM,AL352940111	63-6005396	501C(3)	31,801	ADHERENCE
(411) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 1170 BIRMINGHAM,AL352940111	63-6005396	501C(3)	63,100	RESEARCH STUDY
(412) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 1170 BIRMINGHAM,AL352940111	63-6005396	501C(3)	161,839	PILOT STUDY
(413) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 1170 BIRMINGHAM,AL352940111	63-6005396	501C(3)	192,750	TRAINING
(414) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 1170 BIRMINGHAM,AL352940111	63-6005396	501C(3)	266,752	CLINICAL RESEARCH CENTER
(415) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 1170 BIRMINGHAM,AL352940111	63-6005396	501C(3)	269,200	RESEARCH
(416) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 1170 BIRMINGHAM,AL352940111	63-6005396	501C(3)	300,124	CF CARE CENTER
(417) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 1170 BIRMINGHAM,AL352940111	63-6005396	501C(3)	371,200	THERAPEUTICS DISCOVERY RESEARCH
(418) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 1170 BIRMINGHAM,AL352940111	63-6005396	501C(3)	414,064	CLINICAL RESEARCH
(419) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 1170 BIRMINGHAM,AL352940111	63-6005396	501C(3)	480,382	QUALITY IMPROVEMENT
(420) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 1170 BIRMINGHAM,AL352940111	63-6005396	501C(3)	550,000	RESEARCH CENTER
(421) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 1170 BIRMINGHAM,AL352940111	63-6005396	501C(3)	561,532	CLINICAL RESEARCH STUDY
(422) THE UNIVERSITY OF CHICAGO 5801 SOUTH ELLIS AVENUE AB 1170 CHICAGO,IL60637	36-2177139	501C(3)	227,105	CF CARE CENTER
(423) THE UNIVERSITY OF MARYLAND COLLEGE PARK 7809 REGENTS DRIVE 7703 FLOYD CURL DRIVE COLLEGE PARK,MD207425141	52-6002033	IRC 115	54,000	PILOT STUDY
(424) THE UNIVERSITY OF MARYLAND COLLEGE PARK 7809 REGENTS DRIVE 3112 LEE BUILDING COLLEGE PARK,MD207425141	52-6002033	IRC 115	65,450	RESEARCH STUDY
(425) THE UNIVERSITY OF MARYLAND COLLEGE PARK 7809 REGENTS DRIVE 3112 LEE BUILDING COLLEGE PARK,MD207425141	52-6002033	IRC 115	135,000	RESEARCH
(426) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 3112 LEE BUILDING CHAPEL HILL,NC275991350	56-6001393	501C(3)	39,679	ADULT CARE
(427) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CAMPUS BOX 1350 CHAPEL HILL,NC275991350	56-6001393	501C(3)	101,406	CLINICAL RESEARCH
(428) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CAMPUS BOX 1350 CHAPEL HILL,NC275991350	56-6001393	501C(3)	128,500	TRAINING
(429) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CAMPUS BOX 1350 CHAPEL HILL,NC275991350	56-6001393	501C(3)	194,000	RESEARCH STUDY
(430) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CAMPUS BOX 1350 CHAPEL HILL,NC275991350	56-6001393	501C(3)	323,722	PILOT STUDY
(431) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CAMPUS BOX 1350 CHAPEL HILL,NC275991350	56-6001393	501C(3)	343,621	CLINICAL RESEARCH CENTER
(432) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CAMPUS BOX 1350 CHAPEL HILL,NC275991350	56-6001393	501C(3)	427,043	CF CARE CENTER
(433) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CAMPUS BOX 1350 CHAPEL HILL,NC275991350	56-6001393	501C(3)	550,000	RESEARCH CENTER
(434) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CAMPUS BOX 1350 CHAPEL HILL,NC275991350	56-6001393	501C(3)	886,932	CLINICAL RESEARCH STUDY
(435) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CAMPUS BOX 1350 CHAPEL HILL,NC275991350	56-6001393	501C(3)	1,599,357	RESEARCH
(436) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CAMPUS BOX 1350 CHAPEL HILL,NC275991350	56-6001393	501C(3)	2,856,504	THERAPEUTICS DISCOVERY RESEARCH
(437) THE UNIVERSITY OF TENNESSEE 63 SOUTH DUNLAP STREET CAMPUS BOX 1350 MEMPHIS,TN38163	62-6001636	IRC 115	150,460	CF CARE CENTER
(438) THE UNIVERSITY OF TEXAS AT AUSTIN 110 INNER CAMPUS DR SUITE 300 AUSTIN,TX78712	74-6000203	501C(3)	333,500	THERAPEUTICS DISCOVERY RESEARCH
(439) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT H 7000 FANNIN STREET STOP K5300 HOUSTON,TX77030	74-1761309	501C(3)	1,141,588	THERAPEUTICS DISCOVERY RESEARCH
(440) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT S 7703 FLOYD CURL DRIVE SAN ANTONIO,TX782293900	74-1586031	501C(3)	152,595	CF CARE CENTER
(441) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD DALLAS,TX753909020	75-6002868	IRC 115	34,534	ADHERENCE
(442) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD MC 9029 DALLAS,TX753909020	75-6002868	IRC 115	41,142	ADULT CARE
(443) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD MC 9029 DALLAS,TX753909020	75-6002868	IRC 115	68,170	CLINICAL RESEARCH
(444) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD MC 9029 DALLAS,TX753909020	75-6002868	IRC 115	124,334	RESEARCH
(445) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD MC 9029 DALLAS,TX753909020	75-6002868	IRC 115	130,608	TRAINING
(446) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD MC 9029 DALLAS,TX753909020	75-6002868	IRC 115	214,229	THERAPEUTICS DISCOVERY RESEARCH
(447) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD MC 9029 DALLAS,TX753909020	75-6002868	IRC 115	220,609	CLINICAL RESEARCH CENTER
(448) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD MC 9029 DALLAS,TX753909020	75-6002868	IRC 115	392,132	CLINICAL RESEARCH STUDY
(449) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD MC 9029 DALLAS,TX753909020	75-6002868	IRC 115	452,290	CF CARE CENTER
(450) THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL C 85 SOUTH PROSPECT STREET MC 9029 BURLINGTON,VT05405	03-0179440	501C(3)	31,149	CLINICAL RESEARCH CENTER
(451) THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL C 85 SOUTH PROSPECT STREET BURLINGTON,VT05405	03-0179440	501C(3)	39,987	ADULT CARE
(452) THE VANDERBILT UNIVERSITY 2301 VANDERBILT PLACE NASHVILLE,TN372406310	62-0476822	501C(3)	54,000	PILOT STUDY
(453) THE VANDERBILT UNIVERSITY 2301 VANDERBILT PLACE PMB 406310 NASHVILLE,TN372406310	62-0476822	501C(3)	63,098	RESEARCH STUDY
(454) TRUSTEES OF BOSTON UNIVERSITY 881 COMMONWEALTH AVENUE PMB 406310 BOSTON,MA02215	04-2103547	501C(3)	384,000	THERAPEUTICS DISCOVERY RESEARCH
(455) TRUSTEES OF DARTMOUTH COLLEGE 7 LEBANON STREET HANOVER,NH03755	02-0222111	501C(3)	65,450	RESEARCH STUDY
(456) TRUSTEES OF DARTMOUTH COLLEGE 7 LEBANON STREET SUITE 302 HANOVER,NH03755	02-0222111	501C(3)	523,932	CLINICAL RESEARCH STUDY
(457) TRUSTEES OF DARTMOUTH COLLEGE 7 LEBANON STREET SUITE 302 HANOVER,NH03755	02-0222111	501C(3)	540,000	RESEARCH
(458) TRUSTEES OF DARTMOUTH COLLEGE 7 LEBANON STREET SUITE 302 HANOVER,NH03755	02-0222111	501C(3)	600,000	RESEARCH CENTER
(459) TRUSTEES OF DARTMOUTH COLLEGE 7 LEBANON STREET SUITE 302 HANOVER,NH03755	02-0222111	501C(3)	4,317,660	QUALITY IMPROVEMENT
(460) TRUSTEES OF INDIANA UNIVERSITY 980 INDIANA AVENUE SUITE 302 INDIANAPOLIS,IN46202	35-6001673	501C(3)	40,151	CLINICAL CARE RESEARCH
(461) TRUSTEES OF INDIANA UNIVERSITY 980 INDIANA AVENUE LOCKEFIELD 2232 INDIANAPOLIS,IN46202	35-6001673	501C(3)	46,440	ADULT CARE
(462) TRUSTEES OF INDIANA UNIVERSITY 980 INDIANA AVENUE LOCKEFIELD 2232 INDIANAPOLIS,IN46202	35-6001673	501C(3)	95,490	CLINICAL RESEARCH
(463) TRUSTEES OF INDIANA UNIVERSITY 980 INDIANA AVENUE LOCKEFIELD 2232 INDIANAPOLIS,IN46202	35-6001673	501C(3)	104,000	PILOT STUDY
(464) TRUSTEES OF INDIANA UNIVERSITY 980 INDIANA AVENUE LOCKEFIELD 2232 INDIANAPOLIS,IN46202	35-6001673	501C(3)	180,213	CLINICAL RESEARCH CENTER
(465) TRUSTEES OF INDIANA UNIVERSITY 980 INDIANA AVENUE LOCKEFIELD 2232 INDIANAPOLIS,IN46202	35-6001673	501C(3)	189,683	TRAINING
(466) TRUSTEES OF INDIANA UNIVERSITY 980 INDIANA AVENUE LOCKEFIELD 2232 INDIANAPOLIS,IN46202	35-6001673	501C(3)	197,113	QUALITY IMPROVEMENT
(467) TRUSTEES OF INDIANA UNIVERSITY 980 INDIANA AVENUE LOCKEFIELD 2232 INDIANAPOLIS,IN46202	35-6001673	501C(3)	243,859	CLINICAL RESEARCH STUDY
(468) TRUSTEES OF INDIANA UNIVERSITY 980 INDIANA AVENUE LOCKEFIELD 2232 INDIANAPOLIS,IN46202	35-6001673	501C(3)	428,744	CF CARE CENTER
(469) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET LOCKEFIELD 2232 PHILADELPHIA,PA191046284	23-1352685	501C(3)	34,235	CLINICAL RESEARCH CENTER
(470) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 5TH FLOOR FRANKLIN BUILDING PHILADELPHIA,PA191046284	23-1352685	501C(3)	54,000	CLINICAL RESEARCH STUDY
(471) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 5TH FLOOR FRANKLIN BUILDING PHILADELPHIA,PA191046284	23-1352685	501C(3)	63,100	RESEARCH STUDY
(472) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 5TH FLOOR FRANKLIN BUILDING PHILADELPHIA,PA191046284	23-1352685	501C(3)	86,400	CLINICAL RESEARCH
(473) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 5TH FLOOR FRANKLIN BUILDING PHILADELPHIA,PA191046284	23-1352685	501C(3)	117,276	ADULT CARE
(474) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 5TH FLOOR FRANKLIN BUILDING PHILADELPHIA,PA191046284	23-1352685	501C(3)	145,600	CLINICAL CARE RESEARCH
(475) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 5TH FLOOR FRANKLIN BUILDING PHILADELPHIA,PA191046284	23-1352685	501C(3)	149,078	THERAPEUTICS DISCOVERY RESEARCH
(476) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 5TH FLOOR FRANKLIN BUILDING PHILADELPHIA,PA191046284	23-1352685	501C(3)	243,000	RESEARCH
(477) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 5TH FLOOR FRANKLIN BUILDING PHILADELPHIA,PA191046284	23-1352685	501C(3)	277,615	CF CARE CENTER
(478) TUFTS MEDICAL CENTER 800 WASHINGTON STREET 5TH FLOOR FRANKLIN BUILDING BOSTON,MA02111	04-3400617	501C(3)	17,000	CF CARE CENTER
(479) UNITED STATES ADULT CYSTIC FIBROSIS ASSOCIATION 4646 NE DIVISION STREET BOX 468 GRESHAM,OR97030	93-1036770	501C(3)	10,000	COMMUNITY IMPACT
(480) UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES 11100 EUCLID AVENUE CLEVELAND,OH44106	34-1567805	501C(3)	5,404	CLINICAL RESEARCH CENTER
(481) UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES 11100 EUCLID AVENUE CLEVELAND,OH44106	34-1567805	501C(3)	73,834	ADULT CARE
(482) UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES 11100 EUCLID AVENUE CLEVELAND,OH44106	34-1567805	501C(3)	232,465	CF CARE CENTER
(483) UNIVERSITY OF CINCINNATI 51 GOODMAN DR CINCINNATI,OH452210222	31-6000989	501C(3)	6,565	CLINICAL RESEARCH CENTER
(484) UNIVERSITY OF CINCINNATI 51 GOODMAN DR CINCINNATI,OH452210222	31-6000989	501C(3)	168,180	CF CARE CENTER
(485) UNIVERSITY OF CINCINNATI PHYSICIANS COMPANY 3200 BURNET AVENUE JOUETT HALL BELKNAP CAMPUS CINCINNATI,OH45229	31-1405915	501C(3)	22,646	CLINICAL RESEARCH CENTER
(486) UNIVERSITY OF FLORIDA SUITE 1250 EAST CAMPUS OFFICE BUILD JOUETT HALL BELKNAP CAMPUS GAINESVILLE,FL326115500	59-6002052	IRC 115	35,640	ADULT CARE
(487) UNIVERSITY OF FLORIDA SUITE 1250 EAST CAMPUS OFFICE BUILD PO BOX 113201 GAINESVILLE,FL326115500	59-6002052	IRC 115	39,944	CLINICAL RESEARCH CENTER
(488) UNIVERSITY OF FLORIDA SUITE 1250 EAST CAMPUS OFFICE BUILD PO BOX 113201 GAINESVILLE,FL326115500	59-6002052	IRC 115	54,000	PILOT STUDY
(489) UNIVERSITY OF FLORIDA SUITE 1250 EAST CAMPUS OFFICE BUILD PO BOX 113201 GAINESVILLE,FL326115500	59-6002052	IRC 115	61,750	TRAINING
(490) UNIVERSITY OF FLORIDA SUITE 1250 EAST CAMPUS OFFICE BUILD PO BOX 113201 GAINESVILLE,FL326115500	59-6002052	IRC 115	209,813	CF CARE CENTER
(491) UNIVERSITY OF GEORGIA RESEARCH FOUNDATION INC DE 310 EAST CAMPUS ROAD PO BOX 113201 ATHENS,GA30602	58-1353149	501C(3)	100,517	RESEARCH
(492) UNIVERSITY OF IOWA 105 JESSUP HALL 1601 NW 12TH AVENUE IOWA CITY,IA52242	42-6004813	501C(3)	33,807	CLINICAL RESEARCH CENTER
(493) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	53,200	PILOT STUDY
(494) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	130,000	RESEARCH
(495) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	171,250	RESEARCH STUDY
(496) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	200,365	CF CARE CENTER
(497) UNIVERSITY OF IOWA 105 JESSUP HALL HEALTH SCIENCES AND SERVICES BLDG IOWA CITY,IA52242	42-6004813	501C(3)	485,342	CLINICAL RESEARCH STUDY
(498) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	800,000	RESEARCH CENTER
(499) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	2,419,895	THERAPEUTICS DISCOVERY RESEARCH
(500) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BLVD KANSAS CITY,KS66160	48-1108830	501C(3)	50,138	ADHERENCE
(501) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BLVD MAILSTOP 1039 KANSAS CITY,KS66160	48-1108830	501C(3)	54,000	PILOT STUDY
(502) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BLVD MAILSTOP 1039 KANSAS CITY,KS66160	48-1108830	501C(3)	63,100	RESEARCH STUDY
(503) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BLVD MAILSTOP 1039 KANSAS CITY,KS66160	48-1108830	501C(3)	76,440	ADULT CARE
(504) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BLVD MAILSTOP 1039 KANSAS CITY,KS66160	48-1108830	501C(3)	194,189	CLINICAL RESEARCH CENTER
(505) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BLVD MAILSTOP 1039 KANSAS CITY,KS66160	48-1108830	501C(3)	225,305	CF CARE CENTER
(506) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 109 KINKEAD HALL MAILSTOP 1039 LEXINGTON,KY40506	61-6033693	501C(3)	34,143	CLINICAL RESEARCH CENTER
(507) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 109 KINKEAD HALL LEXINGTON,KY40506	61-6033693	501C(3)	223,860	CF CARE CENTER
(508) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC 300 E MARKET STREET LOUISVILLE,KY402021959	61-1029626	501C(3)	16,683	CLINICAL RESEARCH CENTER
(509) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC 300 E MARKET STREET SUITE 300 LOUISVILLE,KY402021959	61-1029626	501C(3)	53,149	PILOT STUDY
(510) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC 300 E MARKET STREET SUITE 300 LOUISVILLE,KY402021959	61-1029626	501C(3)	218,252	CF CARE CENTER
(511) UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER 55 NORTH LAKE AVENUE SUITE 300 WORCESTER,MA01655	04-3167352	IRC 115	35,120	CLINICAL RESEARCH CENTER
(512) UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER 55 NORTH LAKE AVENUE SUITE 260 WORCESTER,MA01655	04-3167352	IRC 115	41,100	ADULT CARE
(513) UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER 55 NORTH LAKE AVENUE SUITE 260 WORCESTER,MA01655	04-3167352	IRC 115	125,985	CF CARE CENTER
(514) UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER 55 NORTH LAKE AVENUE SUITE 501 WORCESTER,MA01655	04-3167352	IRC 115	216,000	THERAPEUTICS DISCOVERY RESEARCH
(515) UNIVERSITY OF MIAMI PO BOX 248106 CONTROLLERS OFFICE 17 DAVIS BOULEVARD SUITE 200 CORAL GABLES,FL331242912	59-0624458	501C(3)	35,640	ADULT CARE
(516) UNIVERSITY OF MIAMI PO BOX 248106 CONTROLLERS OFFICE CORAL GABLES,FL331242912	59-0624458	501C(3)	44,025	CLINICAL RESEARCH CENTER
(517) UNIVERSITY OF MIAMI PO BOX 248106 CONTROLLERS OFFICE CORAL GABLES,FL331242912	59-0624458	501C(3)	155,744	CF CARE CENTER
(518) UNIVERSITY OF NEBRASKA MEDICAL CENTER 987835 NEBRASKA MEDICAL CENTER OMAHA,NE681987835	47-0049123	501C(3)	33,202	CLINICAL RESEARCH CENTER
(519) UNIVERSITY OF NEBRASKA MEDICAL CENTER 987835 NEBRASKA MEDICAL CENTER SUITE E-110 OMAHA,NE681987835	47-0049123	501C(3)	56,752	CLINICAL RESEARCH STUDY
(520) UNIVERSITY OF NEBRASKA MEDICAL CENTER 987835 NEBRASKA MEDICAL CENTER OMAHA,NE681987835	47-0049123	501C(3)	352,765	CF CARE CENTER
(521) UNIVERSITY OF NEW MEXICO 1 UNIVERSITY OF NEW MEXICO ALBUQUERQUE,NM87131	85-6000642	IRC 115	107,092	CF CARE CENTER
(522) UNIVERSITY OF NORTH CAROLINA AT CHARLOTTE 9201 UNIVERSITY CITY BOULEVARD MSC09 5225 CHARLOTTE,NC28223	56-0791228	501C(3)	133,606	RESEARCH
(523) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET PITTSBURGH,PA15260	25-0965591	501C(3)	28,133	QUALITY IMPROVEMENT
(524) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET SUITE 201 PITTSBURGH,PA15260	25-0965591	501C(3)	40,705	CLINICAL RESEARCH CENTER
(525) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET SUITE 201 PITTSBURGH,PA15260	25-0965591	501C(3)	61,750	TRAINING
(526) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET SUITE 201 PITTSBURGH,PA15260	25-0965591	501C(3)	141,300	RESEARCH STUDY
(527) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET SUITE 201 PITTSBURGH,PA15260	25-0965591	501C(3)	199,289	CLINICAL CARE RESEARCH
(528) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET SUITE 201 PITTSBURGH,PA15260	25-0965591	501C(3)	550,000	RESEARCH CENTER
(529) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET SUITE 201 PITTSBURGH,PA15260	25-0965591	501C(3)	612,223	CLINICAL RESEARCH STUDY
(530) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET SUITE 201 PITTSBURGH,PA15260	25-0965591	501C(3)	672,295	RESEARCH
(531) UNIVERSITY OF PITTSBURGH PHYSICIANS CLINICAL TRAIL RECEIPTS MAIL STOP SUITE 201 PITTSBURGH,PA152192739	23-2919472	501C(3)	46,440	ADULT CARE
(532) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING 58TH FL ROCHESTER,NY14627	16-0743209	501C(3)	24,572	CLINICAL RESEARCH CENTER
(533) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	39,805	ADULT CARE
(534) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	135,000	RESEARCH
(535) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	148,709	CF CARE CENTER
(536) UNIVERSITY OF SOUTH CAROLINA 1600 HAMPTON STREET COLUMBIA,SC29208	57-6001153	IRC 115	78,030	CF CARE CENTER
(537) UNIVERSITY OF SOUTH FLORIDA 4202 EAST FOWLER AVENUE 6TH FLOOR TAMPA,FL336205800	59-3102112	IRC 115	47,755	CF CARE CENTER
(538) UNIVERSITY OF SOUTH FLORIDA 4202 EAST FOWLER AVENUE ALN 147 TAMPA,FL336205800	59-3102112	IRC 115	124,999	RESEARCH
(539) UNIVERSITY OF SOUTHERN CALIFORNIA UNIVERSITY GARDENS ALN 147 LOS ANGELES,CA900898003	95-1642394	501C(3)	14,038	CLINICAL RESEARCH CENTER
(540) UNIVERSITY OF SOUTHERN CALIFORNIA UNIVERSITY GARDENS SUITE 205 LOS ANGELES,CA900898003	95-1642394	501C(3)	181,955	CF CARE CENTER
(541) UNIVERSITY OF SOUTHERN CALIFORNIA UNIVERSITY GARDENS SUITE 205 LOS ANGELES,CA900898003	95-1642394	501C(3)	467,663	THERAPEUTICS DISCOVERY RESEARCH
(542) UNIVERSITY OF TENNESSE MEDICAL CENTER 1924 ALCOA HIGHWAY SUITE 205 KNOXVILLE,TN37920	31-1626179	501C(3)	123,230	CF CARE CENTER
(543) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER 11937 US HIGHWAY 271 SUITE D3300 MCN TYLER,TX757083154	75-6001354	501C(3)	19,940	CLINICAL RESEARCH CENTER
(544) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER 11937 US HIGHWAY 271 TYLER,TX757083154	75-6001354	501C(3)	61,775	CF CARE CENTER
(545) UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER 1515 HOLCOMBE BOULEVARD HOUSTON,TX770307009	74-6001118	IRC 115	229,400	RESEARCH
(546) UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE SALT LAKE CITY,UT841120922	87-6000525	501C(3)	53,322	CLINICAL RESEARCH CENTER
(547) UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE ROOM 411 SALT LAKE CITY,UT841120922	87-6000525	501C(3)	86,400	CLINICAL RESEARCH STUDY
(548) UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE ROOM 411 SALT LAKE CITY,UT841120922	87-6000525	501C(3)	450,688	CF CARE CENTER
(549) UNIVERSITY OF VERMONT MEDICAL CENTER INC 111 COLCHESTER AVENUE ROOM 411 BURLINGTON,VT05401	03-0219309	501C(3)	20,926	ADHERENCE
(550) UNIVERSITY OF VERMONT MEDICAL CENTER INC 111 COLCHESTER AVENUE BURLINGTON,VT05401	03-0219309	501C(3)	138,745	CF CARE CENTER
(551) UNIVERSITY OF WASHINGTON 4300 ROOSEVELT WAY NE BOX 354965 SEATTLE,WA98105	91-6001537	IRC 115	62,715	CLINICAL RESEARCH CENTER
(552) UNIVERSITY OF WASHINGTON 4300 ROOSEVELT WAY NE BOX 354965 SEATTLE,WA98105	91-6001537	IRC 115	82,080	ADULT CARE
(553) UNIVERSITY OF WASHINGTON 4300 ROOSEVELT WAY NE BOX 354965 SEATTLE,WA98105	91-6001537	IRC 115	117,971	CF CARE CENTER
(554) UNIVERSITY OF WASHINGTON 4300 ROOSEVELT WAY NE BOX 354965 SEATTLE,WA98105	91-6001537	IRC 115	162,000	PILOT STUDY
(555) UNIVERSITY OF WASHINGTON 4300 ROOSEVELT WAY NE BOX 354965 SEATTLE,WA98105	91-6001537	IRC 115	163,899	CLINICAL CARE RESEARCH
(556) UNIVERSITY OF WASHINGTON 4300 ROOSEVELT WAY NE BOX 354965 SEATTLE,WA98105	91-6001537	IRC 115	418,539	RESEARCH STUDY
(557) UNIVERSITY OF WASHINGTON 4300 ROOSEVELT WAY NE BOX 354965 SEATTLE,WA98105	91-6001537	IRC 115	476,490	RESEARCH
(558) UNIVERSITY OF WASHINGTON 4300 ROOSEVELT WAY NE BOX 354965 SEATTLE,WA98105	91-6001537	IRC 115	550,000	RESEARCH CENTER
(559) UNIVERSITY OF WASHINGTON 4300 ROOSEVELT WAY NE BOX 354965 SEATTLE,WA98105	91-6001537	IRC 115	668,360	CLINICAL RESEARCH STUDY
(560) UNIVERSITY OF WASHINGTON 4300 ROOSEVELT WAY NE BOX 354965 SEATTLE,WA98105	91-6001537	IRC 115	766,496	THERAPEUTICS DISCOVERY RESEARCH
(561) UNIVERSITY OF WASHINGTON 4300 ROOSEVELT WAY NE BOX 354965 SEATTLE,WA98105	91-6001537	IRC 115	896,992	CLINICAL RESEARCH
(562) UNIVERSITY PEDIATRICIANS 3901 BEAUBIEN BOX 354965 DETROIT,MI48201	38-3336414	501C(3)	60,337	CF CARE CENTER
(563) UNIVERSITY PSYCHIATRIC PRACTICE INC 462 GRIDER STREET RESEARCH AND SPONSORED PROGRAMS BUFFALO,NY14215	16-1426208	501C(3)	25,383	CF CARE CENTER
(564) UPSTATE AFFILIATE ORGANIZATION 300 E MCBEE AVE GREENVILLE,SC29601	81-1723202	501C(3)	77,165	CF CARE CENTER
(565) UTAH STATE UNIVERSITY 2400 OLD MAIN HILL SUITE 500 LOGAN,UT843222400	87-6000528	501C(3)	132,547	RESEARCH
(566) VALLEY CHILDREN'S HOSPITAL 9300 VALLEY CHILDRENS PLACE MADERA,CA93636	94-1294954	501C(3)	67,500	CLINICAL RESEARCH CENTER
(567) VALLEY CHILDREN'S HOSPITAL 9300 VALLEY CHILDRENS PLACE MS PC 05 MADERA,CA93636	94-1294954	501C(3)	216,314	CF CARE CENTER
(568) VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVE SOUTH MS PC 05 NASHVILLE,TN37232	35-2528741	501C(3)	5,663	CLINICAL RESEARCH CENTER
(569) VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVE SOUTH D-3300 MEDICAL CENTER NORTH NASHVILLE,TN37232	35-2528741	501C(3)	130,000	RESEARCH
(570) VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVE SOUTH D-3300 MEDICAL CENTER NORTH NASHVILLE,TN37232	35-2528741	501C(3)	352,247	CF CARE CENTER
(571) VARIETY CHILDREN'S HOSPITAL 3100 SW 62ND AVENUE D-3300 MEDICAL CENTER NORTH MIAMI,FL331553009	59-0638499	501C(3)	12,000	QUALITY IMPROVEMENT
(572) VARIETY CHILDREN'S HOSPITAL 3100 SW 62ND AVENUE MIAMI,FL331553009	59-0638499	501C(3)	42,140	CF CARE CENTER
(573) VHS CHILDREN'S HOSPITAL OF MICHIGAN INC 8663 WOODWARD AVE DETROIT,MI48201	27-2845064	C CORP	87,980	CF CARE CENTER
(574) VIA CHRISTI HOSPITAL WICHITA INC 929 N SAINT FRANCIS STE 200 WICHITA,KS67214	48-1172106	501C(3)	118,820	CF CARE CENTER
(575) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	32,940	ADHERENCE
(576) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	33,473	CLINICAL RESEARCH CENTER
(577) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	35,640	ADULT CARE
(578) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	81,000	QUALITY IMPROVEMENT
(579) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	135,000	RESEARCH
(580) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	152,768	CLINICAL RESEARCH STUDY
(581) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	169,250	TRAINING
(582) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	281,496	CF CARE CENTER
(583) WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM,NC27157	22-3849199	501C(3)	18,360	CLINICAL RESEARCH CENTER
(584) WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM,NC27157	22-3849199	501C(3)	190,875	CF CARE CENTER
(585) WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE ST LOUIS,MO631121408	43-0653611	501C(3)	32,400	ADHERENCE
(586) WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE CB1034 ST LOUIS,MO631121408	43-0653611	501C(3)	49,958	CLINICAL RESEARCH CENTER
(587) WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE CB1034 ST LOUIS,MO631121408	43-0653611	501C(3)	199,600	CLINICAL RESEARCH STUDY
(588) WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE CB1034 ST LOUIS,MO631121408	43-0653611	501C(3)	233,000	RESEARCH
(589) WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE CB1034 ST LOUIS,MO631121408	43-0653611	501C(3)	356,745	CF CARE CENTER
(590) WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE CB1034 ST LOUIS,MO631121408	43-0653611	501C(3)	525,539	CLINICAL CARE RESEARCH
(591) WAYNE STATE UNIVERSITY 5057 WOODWARD AVENUE CB1034 DETROIT,MI48202	38-6028429	501C(3)	12,750	ADULT CARE
(592) WAYNE STATE UNIVERSITY 5057 WOODWARD AVENUE 13TH FLOOR DETROIT,MI48202	38-6028429	501C(3)	39,534	CLINICAL RESEARCH CENTER
(593) WAYNE STATE UNIVERSITY 5057 WOODWARD AVENUE 13TH FLOOR DETROIT,MI48202	38-6028429	501C(3)	71,360	CF CARE CENTER
(594) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION 886 CHESTNUT RIDGE ROAD 13TH FLOOR MORGANTOWN,WV26506	55-0665758	501C(3)	19,743	CLINICAL RESEARCH CENTER
(595) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION 886 CHESTNUT RIDGE ROAD NO 408 MORGANTOWN,WV26506	55-0665758	501C(3)	34,205	ADHERENCE
(596) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION 886 CHESTNUT RIDGE ROAD NO 408 MORGANTOWN,WV26506	55-0665758	501C(3)	40,945	ADULT CARE
(597) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION 886 CHESTNUT RIDGE ROAD NO 408 MORGANTOWN,WV26506	55-0665758	501C(3)	107,847	RESEARCH
(598) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION 886 CHESTNUT RIDGE ROAD NO 408 MORGANTOWN,WV26506	55-0665758	501C(3)	287,078	CF CARE CENTER
(599) WESTERN MICHIGAN UNIVERSITY SCHOOL OF MEDICINE 1000 OAKLAND DRIVE NO 408 KALAMAZOO,MI49008	45-4135256	501C(3)	47,132	CF CARE CENTER
(600) WILLIAM MARSH RICE UNIVERSITY 6100 MAIN STREET HOUSTON,TX77005	74-1109620	501C(3)	363,030	THERAPEUTICS DISCOVERY RESEARCH
(601) YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN,CT065103209	06-0646973	501C(3)	56,841	CLINICAL RESEARCH STUDY
(602) YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN,CT065103209	06-0646973	501C(3)	137,960	CF CARE CENTER
(603) YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN,CT065103209	06-0646973	501C(3)	142,097	CLINICAL RESEARCH CENTER
(604) YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN,CT065103209	06-0646973	501C(3)	390,941	RESEARCH
(605) YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN,CT065103209	06-0646973	501C(3)	810,000	THERAPEUTICS DISCOVERY RESEARCH
(606) YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN,CT065103209	06-0646973	501C(3)	65,450	RESEARCH STUDY

Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................. Bullet Image

231

Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50055P

Schedule I (Form 990) 2019

Page 2

Part III

Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" on Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance	(b) Number of recipients	(c) Amount of cash grant	(d) Amount of noncash assistance	(e) Method of valuation (book, FMV, appraisal, other)	(f) Description of noncash assistance

(1) FELLOWSHIPS	37	166,762
(2) COMMUNITY IMPACT	4	37,500
(2)
(3)
(4)
(5)
(6)
(7)

Part IV

Supplemental Information. Provide the information required in Part I, line 2; Part III, column (b); and any other additional information.

Return Reference

Explanation

SCHEDULE I, PART I, LINE 2

THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. FOR GRANTS TO FOR-PROFIT ORGANIZATIONS THE CF FOUNDATION HAS PROCEDURES IN PLACE TO 1) SEE THAT THE GRANT FUNDS AWARDED ARE SPENT ONLY FOR THE PURPOSE FOR WHICH THE GRANT IS MADE AND 2) OBTAIN FULL AND COMPLETE REPORTS FROM THE GRANTEE ORGANIZATION ON HOW THE FUNDS ARE SPENT CONSISTENT WITH IRS GUIDELINES FOR EXPENDITURE RESPONSIBILITY. THE ORGANIZATION PERFORMS PRE-GRANT INQUIRIES DEALING WITH MATTERS SUCH AS THE IDENTITY, HISTORY, ACTIVITIES, AND PRACTICES OF THE GRANTEE TO GAIN REASONABLE ASSURANCE THAT THEY WILL USE THE GRANT FUNDS FOR THE PURPOSE FOR WHICH RECEIVED. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE THAT INCLUDES THE FOLLOWING AGREEMENTS: ANY AMOUNTS NOT USED FOR PURPOSES OF THE GRANT WILL BE REPAID, THE GRANTEE WILL KEEP RECORDS OF RECEIPTS AND EXPENDITURES AND MAKE THEM AVAILABLE TO THE GRANTOR AT REASONABLE TIMES, AND FUNDS CANNOT BE USED TO INFLUENCE LEGISLATION OR UNDERTAKE ANY NONEXEMPT ACTIVITY.

SCHEDULE I, PART III

SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS.

Schedule I (Form 990) 2019

Additional Data

Software ID:
Software Version:

- TIN:

Schedule J
(Form 990)

Department of the Treasury
Internal Revenue Service

Compensation Information

For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
SchJMediumBullet

Complete if the organization answered "Yes" on Form 990, Part IV, line 23.
SchJMediumBullet

Attach to Form 990.
SchJMediumBullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Questions Regarding Compensation

Yes

Check the appropiate box(es) if the organization provided any of the following to or for a person listed on Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.

First-class or charter travel Housing allowance or residence for personal use

Travel for companions Payments for business use of personal residence

Tax idemnification and gross-up payments Health or social club dues or initiation fees

Discretionary spending account Personal services (e.g., maid, chauffeur, chef)

If any of the boxes on Line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain .........

Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked on Line 1a? ..

Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.

Compensation committee Written employment contract

Independent compensation consultant Compensation survey or study

Form 990 of other organizations Approval by the board or compensation committee

During the year, did any person listed on Form 990, Part VII, Section A, line 1a, with respect to the filing organization or a related organization:

Receive a severance payment or change-of-control payment? .............

Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........

Yes

Participate in, or receive payment from, an equity-based compensation arrangement? .........

If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.

Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:

The organization? ....................

Any related organization? .......................

If "Yes," on line 5a or 5b, describe in Part III.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:

The organization? ..................

Any related organization? ......................

If "Yes," on line 6a or 6b, describe in Part III.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization provide any nonfixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............

Yes

Were any amounts reported on Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III ..........................

If "Yes" on line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50053T

Schedule J (Form 990) 2019

Page 2

Part II

Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.

For each individual whose compensation must be reported on Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.

(A) Name and Title		(B) Breakdown of W-2 and/or 1099-MISC compensation			(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)	(F) Compensation in column (B) reported as deferred on prior Form 990
(A) Name and Title		(i) Base compensation	(ii) Bonus & incentive compensation	(iii) Other reportable compensation	(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)
1PRESTON CAMPBELL MD PRESIDENT & CEO	(i) (ii)	699,283 ------------- 0	468,016 ------------- 0	128,739 ------------- 0	134,964 ------------- 0	25,766 ------------- 0	1,456,768 ------------- 0	119,446 ------------- 0
2JACK MAHLER MD CHIEF INVESTMENT OFFICER	(i) (ii)	585,579 ------------- 0	300,000 ------------- 0	244,209 ------------- 0	428,284 ------------- 0	25,766 ------------- 0	1,583,838 ------------- 0	200,000 ------------- 0
3MARC S GINSKY EXECUTIVE VP, COO & SECRETARY	(i) (ii)	506,350 ------------- 0	267,795 ------------- 0	24,552 ------------- 0	159,977 ------------- 0	36,313 ------------- 0	994,987 ------------- 0	101,309 ------------- 0
4VERA H TWIGG EXECUTIVE VP & CFO	(i) (ii)	399,129 ------------- 0	198,363 ------------- 0	19,000 ------------- 0	84,724 ------------- 0	31,939 ------------- 0	733,155 ------------- 0	43,080 ------------- 0
5C RICHARD MATTINGLY FORMER OFFICER	(i) (ii)	0 ------------- 0	0 ------------- 0	101,212 ------------- 0	0 ------------- 0	0 ------------- 0	101,212 ------------- 0	43,100 ------------- 0
6BRUCE MARSHALL MD SENIOR VP, CLINICAL AFFAIRS	(i) (ii)	448,893 ------------- 0	112,497 ------------- 0	9,144 ------------- 0	44,951 ------------- 0	0 ------------- 0	615,485 ------------- 0	0 ------------- 0
7WILLIAM SKACH MD SENIOR VP, RESEARCH AFFAIRS	(i) (ii)	422,032 ------------- 0	124,020 ------------- 0	7,524 ------------- 0	73,296 ------------- 0	35,413 ------------- 0	662,285 ------------- 0	16,023 ------------- 0
8MICHAEL P BOYLE MD SR.VP,THERAPEUTICS DEVELOPMENT	(i) (ii)	428,498 ------------- 0	139,226 ------------- 0	4,902 ------------- 0	76,239 ------------- 0	34,127 ------------- 0	682,992 ------------- 0	17,052 ------------- 0
9EARL LEE MANAGING DIRECTOR, INVESTMENTS	(i) (ii)	407,004 ------------- 0	387,500 ------------- 0	1,140 ------------- 0	28,284 ------------- 0	3,276 ------------- 0	827,204 ------------- 0	0 ------------- 0
10ERIC KOEHRSEN MANAGING DIRECTOR, INVESTMENTS	(i) (ii)	335,246 ------------- 0	388,000 ------------- 0	1,026 ------------- 0	145,284 ------------- 0	35,927 ------------- 0	905,483 ------------- 0	0 ------------- 0
11DRUCY S BOROWITZ MD SENIOR VP, COMMUNITY AFFAIRS	(i) (ii)	427,484 ------------- 0	105,724 ------------- 0	9,144 ------------- 0	28,284 ------------- 0	0 ------------- 0	570,636 ------------- 0	0 ------------- 0
12CHRIS GEGELYS SENIOR VP, CHIEF LEGAL OFFICER	(i) (ii)	380,463 ------------- 0	125,609 ------------- 0	2,622 ------------- 0	41,610 ------------- 0	35,117 ------------- 0	585,421 ------------- 0	0 ------------- 0
13ANTHONY DURMOWICZ MD VP, CLINICAL DEVELOPMENT	(i) (ii)	416,733 ------------- 0	94,867 ------------- 0	7,524 ------------- 0	42,429 ------------- 0	2,700 ------------- 0	564,253 ------------- 0	0 ------------- 0

Schedule J (Form 990) 2019

Page 3

Part III

Supplemental Information

Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II. Also complete this part for any additional information.

Return Reference	Explanation
PART I, LINE 4B - SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN:	CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE, INCLUDING THE AMOUNT OF ANY PAYMENT MADE BY THE PLAN DURING THE REPORTING YEAR, IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW.
PART I, LINE 7	SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, PARTICIPATED IN THE FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS.
PART II	(A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $699,283; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $208,570, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $119,446, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (9) $140,000; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $9,144, AUTOMOBILE ALLOWANCE - $7,200, OTHER BENEFITS - $12,950, VESTED SERP ACCOUNT (8) - $99,445; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $28,284, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $106,680; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $17,675, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,650, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,441; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $119,446. CYSTIC FIBROSIS FOUNDATION. (A) NAME: M. GINSKY.; (B)(I) BASE COMPENSATION: BASE SALARY - $506,350; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $134,486, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $101,309, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (9) $32,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $4,902, SECTION 457(B)PLAN (5) - $19,000, OTHER BENEFITS - $650; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $28,284, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $99,285, SERP (4) - $32,408; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $25,685, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,700, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,928; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $101,309. CYSTIC FIBROSIS FOUNDATION. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $399,129; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $85,283, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $43,080, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (9) $70,000; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $19,000; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $28,284, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $43,606, SERP (4) - $12,834; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $22,363 EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,700, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $6,876; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $43,080. CYSTIC FIBROSIS FOUNDATION. (A) NAME: J. MAHLER; (B)(I) BASE COMPENSATION: BASE SALARY - $585,579; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (11) - $300,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $7,524, VESTED SERP ACCOUNT (10) - 236,685; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $28,284, SERP (4) - $100,000, DEFERRED ANNUAL INCENTIVE (11) $300,000; (D)NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $17,675, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,650, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,441; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $200,000. CYSTIC FIBROSIS FOUNDATION. (A) NAME: R. MATTINGLY; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $101,212; (F)COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $43,100. (1) THIS IS AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2019 PLAN YEAR. (3) THIS AMOUNT IS INCLUDED IN COLUMN B OF THIS FORM 990 AND HAS ALREADY BEEN PREVIOUSLY REPORTED AS COMPENSATION ON PRIOR YEARS' FORM 990S, AND THEREFORE (AS REQUIRED BY THE INSTRUCTIONS) IS DOUBLE-REPORTED. (4) A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING THE VESTING DATE DESIGNATED BY CFF (WHICH IS EITHER A SPECIFIED AGE OR DATE, DEPENDING ON THE PARTICIPANT). C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5) A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE TRANSFERRED TO ANOTHER 457(B)PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS ($19,000 FOR 2019). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C)ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2019 (I.E., WITH RESPECT TO THE 2017-2019, 2018-2020 AND THE 2019-2021 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/19, 12/31/20 AND 12/31/21 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2017-2019, 2018-2020 AND THE 2019-2021 PERFORMANCE PERIODS, RESPECTIVELY. THE AWARD RELATING TO THE 3-YEAR PERFORMANCE PERIOD ENDING 12/31/18 WAS PAID IN 2019, AND IS PROPERLY REPORTED AGAIN (AS COMPENSATION IN COLUMN (B)(II)) ON THIS FORM 990 (EVEN THOUGH AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2018, 2017 AND 2016 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS).
PART II, CONTINUED	(7) THIS PAYMENT IS A DISTRIBUTION FROM THE 457(B) PLAN DESCRIBED IN FOOTNOTE (5) ABOVE. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, BECAUSE CONTRIBUTIONS TO THIS PLAN ARE FULLY VESTED WHEN MADE, CONTRIBUTIONS TO THIS PLAN WERE PREVIOUSLY REPORTED IN THE YEARS CONTRIBUTED, IN COLUMN B(III) AS "OTHER REPORTABLE COMPENSATION". THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (8) THIS AMOUNT IS A 2019 SERP CONTRIBUTION THAT ALSO BECAME VESTED AND TAXABLE IN 2019 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE. (9) THIS IS AN AWARD UNDER A PLAN THAT PAYS A SPECIFIED DOLLAR AMOUNT ONLY IF AND WHEN THE FDA APPROVES CERTAIN PRE-SPECIFIED TYPES OF THERAPIES. IN THE EVENT THE EMPLOYEE TERMINATES EMPLOYMENT PRIOR TO FDA APPROVAL OF THE SPECIFIED THERAPY TYPE AND PAYMENT OF THE AWARD, THE EMPLOYEE WILL FORFEIT HIS OR HER RIGHT TO RECEIVE PAYMENT, UNLESS THE EMPLOYEE IS AN OFFICER AND HIS/HER TERMINATION IS DUE TO RETIREMENT OR DISABILITY. THE PLAN TERMINATED ON DECEMBER 31, 2019. (10) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2019 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH THE INDIVIDUAL RECEIVED CONTRIBUTIONS FROM 2016-2017. AS REQUIRED, A PORTION OF THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B (III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS FORM 990S IN COLUMN (C). THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (11) A. THE INVESTMENT DEPARTMENT INCENTIVE AND RETENTION PLAN PROVIDES AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. B. UNDER THE PLAN, FIFTY PERCENT OF THE ANNUAL AWARD EARNED BY THE PARTICIPANT IS DEFERRED AND SUBJECT TO A SUBSTANTIAL RISK OF FORFEITURE. THE DEFERRED AWARD BECOMES VESTED AND PAID TWO YEARS AND A DAY AFTER IT IS DETERMINED THE AWARD HAS BEEN EARNED. THE DEFERRED AWARD IS FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT OR IS TERMINATED FOR CAUSE PRIOR TO ATTAINING THE VESTING DATE. DEFERRED INTERESTS ARE SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, THE PARTICIPANT WOULD BECOME A GENERAL UNSECURED CREDITOR OF CFF. C. THE PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. D. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE PLAN AT ANY TIME.

Schedule J (Form 990) 2019

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE M
(Form 990)

Department of the Treasury

Internal Revenue Service

Noncash Contributions

Complete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image

Attach to Form 990.
Right pointing arrow large image

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2019

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Types of Property

	(a) Check if applicable	(b) Number of contributions or items contributed	(c) Noncash contribution amounts reported on Form 990, Part VIII, line 1g	(d) Method of determining noncash contribution amounts
1 Art—Works of art ....
2 Art—Historical treasures .
3 Art—Fractional interests ..
4 Books and publications ..
5 Clothing and household goods .......
6 Cars and other vehicles ..	X	71	29,999	NET CASH RECEIPTS
7 Boats and planes ....
8 Intellectual property ...
9 Securities—Publicly traded .	X	139	1,168,733	NET CASH RECEIPTS
10 Securities—Closely held stock .
11 Securities—Partnership, LLC, or trust interests ....
12 Securities—Miscellaneous ..
13 Qualified conservation contribution—Historic structures .....
14 Qualified conservation contribution—Other ...
15 Real estate—Residential .
16 Real estate—Commercial ..
17 Real estate—Other ...
18 Collectibles .....
19 Food inventory ...
20 Drugs and medical supplies .
21 Taxidermy ......
22 Historical artifacts ....
23 Scientific specimens ..
24 Archeological artifacts ...
25 Other ( TANGIBLE AUCTION ITEMS )	X	23,495	9,719,508	NET CASH RECEIPTS
26 Other ( )
27 Other ( )
28 Other ( )

Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement

Yes

30a

During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that it must hold for at least three years from the date of the initial contribution, and which isn't required to be used for exempt purposes for the entire holding period? ...................

30a

If "Yes," describe the arrangement in Part II.

Does the organization have a gift acceptance policy that requires the review of any nonstandard contributions?

Yes

32a

Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash

contributions? ..........................

32a

Yes

If "Yes," describe in Part II.

If the organization didn't report an amount in column (c) for a type of property for which column (a) is checked,

describe in Part II.

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 51227J

Schedule M (Form 990) (2019)

Page 2

Part IISupplemental Information. Provide the information required by Part I, lines 30b, 32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.

Return Reference	Explanation
THIRD PARTY SELLER	Schedule M, Part I, Line 6 CYSTIC FIBROSIS FOUNDATION CONTRACTS WITH A THIRD PARTY NON-PROFIT ORGANIZATION TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS.

Schedule M (Form 990) (2019)

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE O
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet

Attach to Form 990 or 990-EZ.
MediumBullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2019

Open to Public
Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Return Reference	Explanation
CHAPTERS, AFFILIATES, AND BRANCHES	PART VI, SECTION B, LINE 10B CYSTIC FIBROSIS FOUNDATION HAS NUMEROUS OFFICES LOCATED ACROSS THE UNITED STATES WHICH ADHERE TO THE POLICIES AND PROCEDURES OF THE ORGANIZATION. REVIEW OF 990 BY GOVERNING BODY PART VI, SECTION B, LINE 11B THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A DRAFT OF THE FORM 990 PRIOR TO ITS BEING FILED, WITH SUFFICIENT TIME FOR REVIEW AND COMMENT ALLOWED. THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES AND THE FOUNDATION'S ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. THE AUDIT COMMITTEE OF THE BOARD OF TRUSTEES ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. IN ALL CASES THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED.
CONFLICT OF INTEREST MONITORING	PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. POTENTIAL CONFLICTS ARE REPORTED TO THE GOVERNANCE COMMITTEE OR THE BOARD OF TRUSTEES. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF TRUSTEES, THE INTERESTED TRUSTEE OR OFFICER IS REQUIRED TO RETIRE FROM THE ROOM IN WHICH THE BOARD OR ITS COMMITTEE IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2019 AND HAD NO UNRESOLVED CONFLICTS OF INTEREST.
DETERMINING COMPENSATION	PART VI, SECTION B, LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE TALENT (WHICH INCLUDES HAVING MEDICAL AND/OR INVESTMENT BACKGROUNDS TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD LONG, FULFILING LIVES. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE CF FOUNDATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. 4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVE'S HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVE'S ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. 5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEE'S COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT, COO AND SECRETARY EXECUTIVE VICE PRESIDENT AND CFO CHIEF INVESTMENT OFFICER SENIOR VP, THERAPEUTICS DEVELOPMENT SENIOR VP, RESEARCH AFFAIRS SENIOR VP, CLINICAL AFFAIRS THE PROCESS WAS LAST UNDERTAKEN IN 2018 WITH RESPECT TO COMPENSATION TO BE PAID IN 2019 TO ALL THE OFFICERS/KEY EMPLOYEES NAMED ABOVE.
PART VI, SECTION C, LINE 19	PUBLIC INSPECTION FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG AND THE ORGANIZATION'S WEBSITE PROVIDED A DIRECT LINK TO ITS FORM 990 ON GUIDESTAR.ORG. THE FOUNDATION'S GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE NATIONAL OFFICE OF THE CYSTIC FIBROSIS FOUNDATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2019. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2019.

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 51056K

Schedule O (Form 990 or 990-EZ) 2019

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE R
(Form 990)

Department of the Treasury
Internal Revenue Service

Related Organizations and Unrelated Partnerships

Complete if the organization answered "Yes" on Form 990, Part IV, line 33, 34, 35b, 36, or 37.
MediumBullet

Attach to Form 990.
MediumBullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Identification of Disregarded Entities. Complete if the organization answered "Yes" on Form 990, Part IV, line 33.

(a) Name, address, and EIN (if applicable) of disregarded entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Total income	(e) End-of-year assets	(f) Direct controlling entity

Part II

Identification of Related Tax-Exempt Organizations. Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related tax-exempt organizations during the tax year.

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Exempt Code section	(e) Public charity status (if section 501(c)(3))	(f) Direct controlling entity	(g) Section 512(b)(13) controlled entity?
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Exempt Code section	(e) Public charity status (if section 501(c)(3))	(f) Direct controlling entity	Yes	No
(1)CYSTIC FIBROSIS FOUNDATION THERAPEUTICS 4550 MONTGOMERY AVE SUITE 1100N BETHESDA,MD20814 91-2059167	RESEARCH	MD	501(C)(3)	12A	CFF	Yes

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50135Y

Schedule R (Form 990) 2019

Page 2

Part III

Identification of Related Organizations Taxable as a Partnership. Complete if the organization answered "Yes" on Form 990, Part IV, line 34, because it had one or more related organizations treated as a partnership during the tax year.

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(e) Predominant income(related, unrelated, excluded from tax under sections 512-514)	(f) Share of total income	(g) Share of end-of-year assets	(h) Disproprtionate allocations?		(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	(j) General or managing partner?		(k) Percentage ownership
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity		(f) Share of total income	(g) Share of end-of-year assets	Yes	No	(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	Yes	No
(1) NANTAHALA CAPITAL PARTNERS QR LP 130 MAIN ST NEW CANAAN,CT06840 83-3136898	INVESTMENTS	CT	NA	EXCLUDED	4,043,243	167,895,050		No	0		No	98.950 %

Part IV

Identification of Related Organizations Taxable as a Corporation or Trust. Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related organizations treated as a corporation or trust during the tax year.

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(e) Type of entity (C corp, S corp, or trust)	(f) Share of total income	(g) Share of end-of-year assets	(h) Percentage ownership	(i) Section 512(b)(13) controlled entity?
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(e) Type of entity (C corp, S corp, or trust)	(f) Share of total income	(g) Share of end-of-year assets		Yes	No
(1) TSSP ROTATIONAL CREDIT FEEDER LP UGLAND HOUSE SOUTH CHURCH ST GEORGE TOWN,GRAND CAYMANKY1-1104 CJ 98-1468724	INVESTMENTS	CJ	NA	C CORP	3,628,474	61,397,408	100.000 %	Yes
(2) CHARITABLE REMAINDER TRUST (2)	FIDUCIARY	CA	NA	TRUST
(3) CHARITABLE REMAINDER TRUST	FIDUCIARY	TN	NA	TRUST
(4) CHARITABLE REMAINDER TRUST	FIDUCIARY	NM	NA	TRUST
(5) PERPETUAL TRUST	FIDUCIARY	MA	NA	TRUST

Schedule R (Form 990) 2019

Page 3

Part V

Transactions With Related Organizations. Complete if the organization answered "Yes" on Form 990, Part IV, line 34, 35b, or 36.

Note. Complete line 1 if any entity is listed in Parts II, III, or IV of this schedule.

Yes

1 During the tax year, did the orgranization engage in any of the following transactions with one or more related organizations listed in Parts II-IV?

a Receipt of (i) interest, (ii) annuities, (iii) royalties, or (iv) rent from a controlled entity .....................

b Gift, grant, or capital contribution to related organization(s) ............................

Yes

c Gift, grant, or capital contribution from related organization(s) ............................

d Loans or loan guarantees to or for related organization(s) ............................

e Loans or loan guarantees by related organization(s) ............................

f Dividends from related organization(s) ............................

g Sale of assets to related organization(s) ............................

h Purchase of assets from related organization(s) ............................

i Exchange of assets with related organization(s) ............................

j Lease of facilities, equipment, or other assets to related organization(s) .......................

k Lease of facilities, equipment, or other assets from related organization(s) ......................

l Performance of services or membership or fundraising solicitations for related organization(s) .....................

m Performance of services or membership or fundraising solicitations by related organization(s) .................

n Sharing of facilities, equipment, mailing lists, or other assets with related organization(s) ...................

o Sharing of paid employees with related organization(s) ............................

p Reimbursement paid to related organization(s) for expenses ............................

q Reimbursement paid by related organization(s) for expenses ............................

r Other transfer of cash or property to related organization(s) ............................

s Other transfer of cash or property from related organization(s) ............................

If the answer to any of the above is "Yes," see the instructions for information on who must complete this line, including covered relationships and transaction thresholds.

(a) Name of related organization	(b) Transaction type (a-s)	(c) Amount involved	(d) Method of determining amount involved
(1) NANTAHALA CAPITAL PARTNERS QR LP	B	75,000,000	CASH
(2) TSSP ROTATIONAL CREDIT FEEDER LP	B	60,000,000	CASH

Schedule R (Form 990) 2019

Page 4

Part VI

Unrelated Organizations Taxable as a Partnership. Complete if the organization answered "Yes" on Form 990, Part IV, line 37.

Provide the following information for each entity taxed as a partnership through which the organization conducted more than five percent of its activities (measured by total assets or gross revenue) that was not a related organization. See instructions regarding exclusion for certain investment partnerships.

(a) Name, address, and EIN of entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	(e) Are all partners section 501(c)(3) organizations?		(f) Share of total income	(g) Share of end-of-year assets	(h) Disproprtionate allocations?		(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	(j) General or managing partner?
(a) Name, address, and EIN of entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	Yes	No	(f) Share of total income	(g) Share of end-of-year assets	Yes	No	(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	Yes	No

Schedule R (Form 990) 2019

Page 5

Part VII

Supplemental Information

Provide additional information for responses to questions on Schedule R. (see instructions).

Return Reference	Explanation

Schedule R (Form 990) 2019

Additional Data

Software ID:
Software Version:

1	Briefly describe the organization’s mission or most significant activities: The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives.
2	Check this box
3	Number of voting members of the governing body (Part VI, line 1a) ........	3	16
4	Number of independent voting members of the governing body (Part VI, line 1b) .....	4	15
5	Total number of individuals employed in calendar year 2019 (Part V, line 2a) ......	5	888
6	Total number of volunteers (estimate if necessary) .............	6	92,000
7a	Total unrelated business revenue from Part VIII, column (C), line 12 ........	7a	-4,139,609
b	Net unrelated business taxable income from Form 990-T, line 39 .........	7b	-4,173,957

		Prior Year	Current Year
8	Contributions and grants (Part VIII, line 1h) .........	108,058,591	108,894,890
9	Program service revenue (Part VIII, line 2g) .........	4,441,092	4,147,243
10	Investment income (Part VIII, column (A), lines 3, 4, and 7d ) ....	141,144,690	441,790,325
11	Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e)	22,146,383	50,945,967
12	Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)	275,790,756	605,778,425
13	Grants and similar amounts paid (Part IX, column (A), lines 1–3 )...	144,315,284	155,248,642
14	Benefits paid to or for members (Part IX, column (A), line 4).....	0	0
15	Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10)	90,187,520	99,469,166
16a	Professional fundraising fees (Part IX, column (A), line 11e) .....	326,000	323,686
b	Total fundraising expenses (Part IX, column (D), line 25) 28,709,961
17	Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e)....	103,083,764	93,608,605
18	Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25)	337,912,568	348,650,099
19	Revenue less expenses. Subtract line 18 from line 12.......	-62,121,812	257,128,326
		Beginning of Current Year	End of Year
20	Total assets (Part X, line 16).............	4,013,935,956	4,476,511,082
21	Total liabilities (Part X, line 26).............	238,572,484	239,802,250
22	Net assets or fund balances. Subtract line 21 from line 20.....	3,775,363,472	4,236,708,832

Sign Here

	Signature of officer	Date

	Type or print name and title


4a	(Code: ) (Expenses $ 245,607,340 including grants of $ 151,680,216 ) (Revenue $ 32,567,532 )
	MEDICAL PROGRAMS - SINCE 1955, THE CYSTIC FIBROSIS FOUNDATION HAS BEEN DEDICATED TO CURING AND CONTROLLING CYSTIC FIBROSIS (CF). THE CYSTIC FIBROSIS FOUNDATION IS THE WORLD'S LEADER IN THE SEARCH FOR A CURE FOR CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE THAT AFFECTS MORE THAN 30,000 PEOPLE IN THE UNITED STATES, AND 70,000 WORLDWIDE. THE FOUNDATION ACCOMPLISHES ITS MISSION BY FUNDING LIFE-SAVING RESEARCH TO DISCOVER AND DEVELOP EFFECTIVE THERAPIES FOR PEOPLE WITH CF. THE CF FOUNDATION HAS FUNDED HUNDREDS OF MILLIONS OF DOLLARS OF RESEARCH COSTS TO HELP DISCOVER/DEVELOP CF DRUGS AND THERAPIES. THROUGH THE FOUNDATION'S EFFORTS, THE LIFE EXPECTANCY OF PEOPLE WITH CF HAS MORE THAN DOUBLED IN THE LAST 30 YEARS, AND RESEARCH TO FIND A CURE IS MORE PROMISING THAN EVER BEFORE. IN 2019, THE CF FOUNDATION INVESTED $201 MILLION INTO RESEARCH AND CARE. THE CF FOUNDATION HAS ATTRACTED SIGNIFICANT INDUSTRY INVOLVEMENT IN THE FIGHT AGAINST CF BY FUNDING CONTRACTED DRUG DISCOVERY AND DEVELOPMENT RESEARCH CONDUCTED BY BIOTECHNOLOGY COMPANIES. IT ALSO PROVIDES MATCHING AWARDS TO CF DRUG DEVELOPERS FOR CF RESEARCH AND FUNDS A SPECIALIZED CF CLINICAL TRIALS NETWORK OF NEARLY 90 FOUNDATION-ACCREDITED CARE CENTERS. AS A RESULT OF THIS FUNDING, IN 2019 THE CF DRUG DEVELOPMENT PIPELINE HAD 29 THERAPIES IN DEVELOPMENT IN ADDITION TO 15 FDA APPROVED TREATMENTS THAT ADDRESS COMPLICATIONS LIKE INFECTIONS AND A POTENTIAL CURE. THE TREATMENT AND CARE PROTOCOLS DEVELOPED BY THE CF FOUNDATION ARE HELPING TENS OF THOUSANDS OF PEOPLE WITH THE DISEASE LIVE LONGER, HEALTHIER LIVES. TO SUPPORT ITS MISSION, THE FOUNDATION FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF MORE THAN 130 CARE CENTERS. THE CARE CENTER NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. IN 2019, THE FOUNDATION PROVIDED MORE THAN $41 MILLION OF SUPPORT FOR CARE CENTERS AND CLINICIANS. THE FOUNDATION'S PATIENT REGISTRY COLLECTS INFORMATION ON THE HEALTH STATUS OF MORE THAN 31,199 PEOPLE WITH CF, PROVIDING CAREGIVERS AND RESEARCHERS CRITICAL INFORMATION TO HELP IDENTIFY NEW HEALTH TRENDS AND EFFECTIVE TREATMENTS AND IMPROVE THE QUALITY OF CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR OTHER NONPROFIT HEALTH ORGANIZATIONS, INCLUDING CF ADVOCACY GROUPS.

4b	(Code: ) (Expenses $ 22,103,810 including grants of $ 3,568,426 ) (Revenue $ )
	COMMUNITY SERVICES - THE FOUNDATION PROVIDES MUCH-NEEDED SUPPORT FOR PATIENTS AND THEIR FAMILIES AS THEY MANAGE THE PHYSICAL, EMOTIONAL, AND FINANCIAL CHALLENGES OF LIVING WITH CF - FROM SUPPORTING SPECIALIZED QUALITY CF CARE, TO PROVIDING INFORMATION AND RESOURCES TO HELP PEOPLE WITH CF BECOME EFFECTIVE PARTNERS IN THEIR CARE TO PROGRAMS TO HELP AFFECT THE ISOLATION OF LIVING WITH THIS DISEASE. APPROXIMATELY 31,199 PEOPLE WITH CF WERE SERVED IN 2019, INCLUDING APPROXIMATELY 766 INDIVIDUALS WHO WERE NEWLY DIAGNOSED. LACK OF ADEQUATE INSURANCE COVERAGE FOR CF MEDICATIONS HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. COMPASS IS A HIGHLY PERSONALIZED SERVICE TAILORED TO AN INDIVIDUAL'S CIRCUMSTANCES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TO MUCH-NEEDED CF THERAPIES AND CARE. IN 2019, SKILLED CASE MANAGERS ADDRESSED MORE THAN 6,000 CASES FOR PEOPLE WITH CF, THEIR FAMILIES, AND THEIR PROVIDER NETWORK, INCLUDING UNDERSTANDING AND MAXIMIZING THEIR INSURANCE COVERAGE AND BENEFITS, AS WELL AS GETTING HELP WITH OTHER NEEDS RELATED TO DAILY LIFE WITH CF. CASE MANAGERS ALSO ASSISTED WITH FINDING RESOURCES FOR ISSUES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. TODAY, MORE THAN HALF OF ALL PEOPLE WITH CF ARE AGE 18 OR OLDER. IN 2019, APPROXIMATELY 1,500 PEOPLE WITH CF AND THEIR FAMILY MEMBERS JOINED VIRTUAL EVENTS DESIGNED BY AND FOR ADULTS WITH CF, FAMILY, CLINICIANS AND RESEARCHERS INCLUDING BREATHECON, FAMILYCON AND RESEARCHCON, THAT PROVIDE AN OPPORTUNITY FOR THE CF COMMUNITY TO CONNECT, SHARE, AND LEARN FROM PEERS THROUGH OPEN AND HONEST DIALOGUE.

4c	(Code: ) (Expenses $ 17,584,009 including grants of $ ) (Revenue $ )
	PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION - TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CF FOUNDATION HAS PROGRAMS DESIGNED TO IMPROVE THE KNOWLEDGE OF PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 2019, THERE WERE 27 PUBLICATIONS AND 39 VIDEOS PRODUCED AND MADE AVAILABLE TO SUPPORT EDUCATION AND AWARENESS. YEAR-ROUND, MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS AND ALLIED HEALTH PROFESSIONALS AND OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2019, OVER 3,063,346 UNIQUE VISITORS CAME TO THE CF FOUNDATION'S WEBSITE. NEW CONTENT ON CFF.ORG IN 2019 INCLUDED THE LAUNCH OF 11 NEW SECTIONS AND 90 BLOG POSTS.

4d	Other program services (Describe in Schedule O.)
	(Expenses $ including grants of $ ) (Revenue $ )
4e	Total program service expenses285,295,159

(A) Name and title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)	(D) Reportable compensation from the organization (W-2/1099-MISC)	(E) Reportable compensation from related organizations (W-2/1099-MISC)	(F) Estimated amount of other compensation from the organization and related organizations
(A) Name and title
(18) CATHERINE C MCLOUD........................................................................ CHAIR	8.0 .......................0.0	X	0	0	0
(19) CHAD T MOORE........................................................................ TRUSTEE	3.0 .......................0.0	X	0	0	0
(20) DAVID A MOUNT........................................................................ TREASURER	3.0 .......................0.0	X	0	0	0
(21) ROBERT H NIEHAUS........................................................................ VICE CHAIR	5.0 .......................0.0	X	0	0	0
(22) ERIC R OLSON PHD........................................................................ TRUSTEE	3.0 .......................0.0	X	0	0	0
(23) TERESA L ELDER........................................................................ TRUSTEE	3.0 .......................0.0	X	0	0	0
(24) STEVEN SHAK MD........................................................................ TRUSTEE	3.0 .......................0.0	X	0	0	0
(25) THEODORE J TORPHY PH........................................................................ VICE CHAIR	5.0 .......................0.0	X	0	0	0
(26) JOHN S WEINBERG........................................................................ EXECUTIVE VICE CHAIR	5.0 .......................0.0	X	0	0	0
(27) PAUL W WHETSELL........................................................................ TRUSTEE	3.0 .......................0.0	X	0	0	0
(28) KC BRYAN WHITE........................................................................ TRUSTEE	3.0 .......................0.0	X	0	0	0

1b	Sub-Total................
c	Total from continuation sheets to Part VII, Section A....
d	Total (add lines 1b and 1c)...........	8,729,049	0	1,554,670

1a	Federated campaigns..		1a	508,229
b	Membership dues..		1b
c	Fundraising events..		1c	80,308,624
d	Related organizations		1d
e	Government grants (contributions)		1e

f	All other contributions, gifts, grants, and similar amounts not included above		1f	28,078,037

g	Noncash contributions included in lines 1a - 1f:$		1g	10,918,240

h Total. Add lines 1a-1f.......		108,894,890

		Business Code
2a	SCIENTIFIC CONFERENCE	611600	3,624,953	3,624,953
b	CLINICAL STUDY	541900	135,305	135,305
c	DATA SAFETY MONITORING BOARD REVENUE	541990	386,985	386,985
d
e
f	All other program service revenue.
g	Total. Add lines 2a–2f .....		4,147,243

3 Investment income (including dividends, interest, and othersimilar amounts) ......			73,149,393		-4,139,609	77,289,002
4 Income from investment of tax-exempt bond proceeds			0
5 Royalties...........			44,535,937	22,166,076		22,369,861
		(ii) Personal	(i) Real
6a	Gross rents			6a
b	Less: rental expenses			6b
c	Rental income or (loss)	0	0	6c
d	Net rental income or (loss).......			0
		(ii) Other	(i) Securities
7a	Gross amount from sales of assets other than inventory		4,304,985,564	7a
b	Less: cost or other basis and sales expenses		3,936,344,632	7b
c	Gain or (loss)		368,640,932	7c
d	Net gain or (loss).........			368,640,932			368,640,932
8a	Gross income from fundraising events (not including $ 80,308,624of contributions reported on line 1c). See Part IV, line 18 ....
			8a	15,811,603
b	Less: direct expenses ...		8b	15,811,603
c	Net income or (loss) from fundraising events..
9a	Gross income from gaming activities. See Part IV, line 19 ...
			9a	135,192
b	Less: direct expenses ...		9b	8,999
c	Net income or (loss) from gaming activities..			126,193			126,193
10a	Gross sales of inventory, less returns and allowances ..
			10a	0
b	Less: cost of goods sold ..		10b	0
c	Net income or (loss) from sales of inventory..			0
Business Code			Miscellaneous Revenue
11a	REFUNDED OR CANCELLED GRANTS		900099	6,254,213	6,254,213
b	CLAIM PROCEEDS		900099	29,624			29,624
c
d	All other revenue ....
e	Total. Add lines 11a–11d ......			6,283,837
12	Total revenue. See instructions.....			605,778,425	32,567,532	-4,139,609	468,455,612

1	Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 ....	143,401,389	143,401,389
2	Grants and other assistance to domestic individuals. See Part IV, line 22 ...........	204,262	204,262
3	Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. .............	11,642,991	11,642,991
4	Benefits paid to or for members .......	0
5	Compensation of current officers, directors, trustees, and key employees ...........	6,729,509	3,697,320	1,613,438	1,418,751
6	Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .........	171,700	94,335	41,166	36,199
7	Other salaries and wages........	71,752,291	39,422,067	17,203,020	15,127,204
8	Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) ....	5,202,675	2,858,448	1,247,371	1,096,856
9	Other employee benefits .......	10,575,751	5,810,517	2,535,597	2,229,637
10	Payroll taxes ...........	5,037,240	2,721,815	1,130,120	1,185,305
11	Fees for services (non-employees):
a	Management ......	0
b	Legal .........	1,127,995	1,024,990	100,527	2,478
c	Accounting ...........	309,350		309,350
d	Lobbying ...........	720,241	720,241
e	Professional fundraising services. See Part IV, line 17	323,686			323,686
f	Investment management fees ......	3,272,948		3,272,948
g	Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O)	6,340,491	5,278,463	907,502	154,526
12	Advertising and promotion ....	12,625	4,166	2,525	5,934
13	Office expenses .......	6,140,270	3,747,788	652,027	1,740,455
14	Information technology ......	11,371,753	7,729,233	2,004,874	1,637,646
15	Royalties ..	0
16	Occupancy ...........	6,738,238	3,839,227	1,323,984	1,575,027
17	Travel ............	2,798,639	1,817,319	461,423	519,897
18	Payments of travel or entertainment expenses for any federal, state, or local public officials .	0
19	Conferences, conventions, and meetings ....	7,123,256	5,664,442	476,496	982,318
20	Interest ...........	0
21	Payments to affiliates .......	0
22	Depreciation, depletion, and amortization ..	4,034,528	3,244,104	379,614	410,810
23	Insurance ...	901,415	619,029	230,600	51,786
24	Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a	CONTRACTED RESEARCH	39,719,382	39,719,382
b	MEDICAL QUALITY IMPROVEMENT	716,903	716,903
c	TRAINING	699,217	447,790	209,312	42,115
d	OTHER	1,581,354	868,938	543,085	169,331
e	All other expenses
25	Total functional expenses. Add lines 1 through 24e	348,650,099	285,295,159	34,644,979	28,709,961
26	Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here if following SOP 98-2 (ASC 958-720).	1,716,518	427,334		1,289,184

1	Cash–non-interest-bearing ........			59,884	1	81,770
2	Savings and temporary cash investments .........			82,861,615	2	69,282,429
3	Pledges and grants receivable, net ......			6,564,345	3	5,560,596
4	Accounts receivable, net .............			5,700,247	4	23,594,344
5	Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
				0	5	0
6	Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
				0	6	0
7	Notes and loans receivable, net ...........			0	7	0
8	Inventories for sale or use ............			315,551	8	344,669
9	Prepaid expenses and deferred charges ......			3,056,446	9	5,846,146
10a	Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D	10a	27,102,737
b	Less: accumulated depreciation	10b	15,988,085	11,545,942	10c	11,114,652
11	Investments—publicly traded securities .			1,746,072,213	11	3,325,008,913
12	Investments—other securities. See Part IV, line 11 .....			2,123,859,053	12	1,005,305,643
13	Investments—program-related. See Part IV, line 11 ..			0	13	1,000,000
14	Intangible assets ...............			0	14	0
15	Other assets. See Part IV, line 11 ...........			33,900,660	15	29,371,920
16	Total assets. Add lines 1 through 15 (must equal line 33)...			4,013,935,956	16	4,476,511,082

17	Accounts payable and accrued expenses .....	36,567,354	17	38,067,909
18	Grants payable ...	196,882,717	18	196,869,140
19	Deferred revenue .........	5,122,413	19	4,865,201
20	Tax-exempt bond liabilities .........	0	20	0
21	Escrow or custodial account liability. Complete Part IV of Schedule D	0	21	0
22	Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
		0	22	0
23	Secured mortgages and notes payable to unrelated third parties ..	0	23	0
24	Unsecured notes and loans payable to unrelated third parties ..	0	24	0
25	Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D	0	25	0
26	Total liabilities. Add lines 17 through 25..	238,572,484	26	239,802,250

	Organizations that follow FASB ASC 958, check here and complete lines 27, 28, 32, and 33.
27	Net assets without donor restrictions ..........	3,764,331,282	27	4,226,469,269
28	Net assets with donor restrictions ...........	11,032,190	28	10,239,563
	Organizations that do not follow FASB ASC 958, check here and complete lines 29 through 33.
29	Capital stock or trust principal, or current funds .....		29
30	Paid-in or capital surplus, or land, building or equipment fund ...		30
31	Retained earnings, endowment, accumulated income, or other funds		31
32	Total net assets or fund balances ...........	3,775,363,472	32	4,236,708,832
33	Total liabilities and net assets/fund balances ........	4,013,935,956	33	4,476,511,082

1	Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
2	Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to separately file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A; don't file with Form 990). . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
3	Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471). . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
4	Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621) .	Yes	No
5	Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships (see Instructions for Form 8865). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
6	Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to separately file Form 5713, International Boycott Report (see Instructions for Form 5713; don't file with Form 990).. . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No