Form990
Click to see attachment
Department of the TreasuryInternal Revenue Service
Return of Organization Exempt From Income Tax
Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private foundations)
MediumBullet Do not enter social security numbers on this form as it may be made public.
MediumBullet Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public Inspection
A For the 2019 calendar year, or tax year beginning 07-01-2019 , and ending 06-30-2020
BCheck if applicable:
CName of organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
 
 
Doing business as
 
 
Number and street (or P.O. box if mail is not delivered to street address)
17 N STATE STREET NO 650
 
Room/suite
City or town, state or province, country, and ZIP or foreign postal code
CHICAGO, IL60602
D Employer identification number

36-2317619
E Telephone number

G Gross receipts $ 3,085,553
F Name and address of principal officer:
BRYAN ANDERSON
17 N STATE STREET NO 650
CHICAGO,IL60602
I
Tax-exempt status: (   ) LeftBullet (insert no.) or
J
Website:MediumBullet
EPILEPSYCHICAGO.ORG
H(a)
Is this a group return for
subordinates?
H(b)
Are all subordinates
included?
If "No," attach a list. (see instructions)
H(c)
Group exemption number MediumBullet  
K Form of organization:  
L Year of formation: 1946
M State of legal domicile: IL
Part I
Summary
Activities & Governance 1 Briefly describe the organization’s mission or most significant activities: LEADS THE FIGHT TO STOP SEIZURES, FIND A CURE AND OVERCOME CHALLENGES CREATED BY EPILEPSY
2 Check this box MediumBullet
3 Number of voting members of the governing body (Part VI, line 1a) ........ 3 14
4 Number of independent voting members of the governing body (Part VI, line 1b) ..... 4 14
5 Total number of individuals employed in calendar year 2019 (Part V, line 2a) ...... 5 19
6 Total number of volunteers (estimate if necessary) ............. 6 40
7a Total unrelated business revenue from Part VIII, column (C), line 12 ........ 7a 0
b Net unrelated business taxable income from Form 990-T, line 39 ......... 7b 0
Revenues Prior Year Current Year
8 Contributions and grants (Part VIII, line 1h) ......... 2,443,671 2,901,616
9 Program service revenue (Part VIII, line 2g) ......... 0 0
10 Investment income (Part VIII, column (A), lines 3, 4, and 7d ) .... 47,821 32,222
11 Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e) -57,139 -68,103
12 Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12) 2,434,353 2,865,735
Expenses; 13 Grants and similar amounts paid (Part IX, column (A), lines 1–3 )... 106,000 20,000
14 Benefits paid to or for members (Part IX, column (A), line 4)..... 0 0
15 Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10) 1,358,190 1,477,522
16a Professional fundraising fees (Part IX, column (A), line 11e) ..... 0 0
b Total fundraising expenses (Part IX, column (D), line 25) MediumBullet241,816    
17 Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e).... 833,970 567,279
18 Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25) 2,298,160 2,064,801
19 Revenue less expenses. Subtract line 18 from line 12....... 136,193 800,934
Net Assets or Fund Balances; Beginning of Current Year End of Year
20 Total assets (Part X, line 16)............. 3,692,505 4,427,379
21 Total liabilities (Part X, line 26)............. 217,211 151,151
22 Net assets or fund balances. Subtract line 21 from line 20..... 3,475,294 4,276,228
Part II
Signature Block
Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it is true, correct, and complete. Declaration of preparer (other than officer) is based on all information of which preparer has any knowledge.
Sign Here
JumboBullet
Signature of officer Date
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Type or print name and title
Paid Preparer Use Only
Print/Type preparer's name
Preparer's signature
Date
PTIN
Firm's name MediumBullet

Firm's EIN MediumBullet
Firm's address MediumBullet



Phone no.
May the IRS discuss this return with the preparer shown above? (see instructions) ..........
For Paperwork Reduction Act Notice, see the separate instructions.
Cat. No. 11282Y Form 990 (2019)
Form 990 (2019)
Page 2
Part III
Statement of Program Service Accomplishments
Check if Schedule O contains a response or note to any line in this Part III..............
1
Briefly describe the organization’s mission: SEE SCHEDULE O
2
Did the organization undertake any significant program services during the year which were not listed on
the prior Form 990 or 990-EZ? .....................
If "Yes," describe these new services on Schedule O.
3
Did the organization cease conducting, or make significant changes in how it conducts, any program
services? ...........................
If "Yes," describe these changes on Schedule O.
4
Describe the organization’s program service accomplishments for each of its three largest program services, as measured by expenses. Section 501(c)(3) and 501(c)(4) organizations are required to report the amount of grants and allocations to others, the total expenses, and revenue, if any, for each program service reported.
4a (Code:   ) (Expenses $ 938,711 including grants of $ 20,000 ) (Revenue $   )
CLIENT/PATIENT SERVICES - SEE SCHEDULE O
4b (Code:   ) (Expenses $ 347,788 including grants of $   ) (Revenue $   )
COMMUNITY SERVICES - SEE SCHEDULE O
4c (Code:   ) (Expenses $ 228,102 including grants of $   ) (Revenue $   )
PUBLIC HEALTH EDUCATION - SEE SCHEDULE O
(Code:   ) (Expenses $ 148,770 including grants of $   ) (Revenue $   )
PROFESSIONAL EDUCATION AND TRAINING:THE EPILEPSY FOUNDATION OF GREATER CHICAGO EDUCATES THE GENERAL COMMUNITY THROUGH VARIOUS PUBLICITY OUTLETS, SUCH AS, ONLINE, TELEVISION, NEWSPAPERS, MAGAZINES AND SOCIAL MEDIA. "ECONNECTIONS," A QUARTERLY E-NEWSLETTER, IS SENT OUT FOUR TIMES TO THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S ENTIRE EMAIL DATABASE. ON AVERAGE, EACH E-BLAST IS SENT TO 10,000 SUBSCRIBERS. "ECONNECTIONS" COVERS A VARIETY OF TOPICS RELATING TO THE EPILEPSY FOUNDATION OF GREATER CHICAGO AND THE EPILEPSY COMMUNITY AS A WHOLE. DOZENS OF E-BLASTS PROMOTING A SPECIFIC ISSUE, PROGRAM, OR EVENT ARE ALSO SENT TO THE TARGETED AUDIENCES. OVER THE COURSE OF THE YEAR, THE EPILEPSY FOUNDATION OF GREATER CHICAGO SENT NEARLY 220,000 EMAILS TO PEOPLE INTERESTED IN EPILEPSY AND GENERATED MORE THAN 7 MILLION TARGETED MEDIA IMPRESSIONS. THE EPILEPSY FOUNDATION OF GREATER CHICAGO UTILIZES POPULAR SOCIAL MEDIA OUTLETS TO INCREASE ITS ONLINE PRESENCE. ITS FACEBOOK, TWITTER, INSTAGRAM, YOUTUBE, AND LINKEDIN PAGES COLLECTIVELY BOAST MORE THAN 17,000 FOLLOWERS. POSTS REGARDING THE LATEST INFORMATION ABOUT EPILEPSY, HOW IT IMPACTS THE PUBLIC, AS WELL AS THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S ACTIVITIES, ARE UPDATED ON A DAILY BASIS.IN NOVEMBER OF 2019, EFGC PARTNERED WITH THE NORTHWESTERN UNIVERSITY ATHLETIC DEPARTMENT AND HEAD FOOTBALL COACH PAT FITZGERALD TO CREATE MULTIPLE :30 SECOND PSA AND RADIO ADS TO BE AIRED AS AN EPILEPSY AWARENESS MONTH CAMPAIGN. THIS CAMPAIGN PLAYED ON A VARIETY NETWORKS INCLUDING NBC SPORTS CHICAGO, ESPN RADIO, AND WGNTV AND RADIO. THESE ADVERTISEMENTS PLAYED MORE THAN 200 TIMES, GARNERING MILLIONS OF IMPRESSIONS DURING THE MONTH OF NOVEMBER 2019. IN ADDITION TO THE NOVEMBER CAMPAIGN, EFGC PARTNERED WITH TWO OTHER EPILEPSY FOUNDATIONS IN CHICAGO, THE DANNY DID FOUNDATION AND CURE ON A MULTI-MONTH MARKETING CAMPAIGN. THIS CAMPAIGN RAN ON OUTDOOR BILLBOARDS AND CHICAGO TRANSIT AUTHORITY TRAIN PLATFORMS, AND HIGHLIGHTED THE PREVALENCE OF EPILEPSY. IN PARTNERSHIP WITH THE CHICAGO WHITE SOX, THE CHICAGO BLACKHAWKS, THE CHICAGO BEARS, AND NAVY PIER, THIS CAMPAIGN OFFERED A VISUAL ON EXACTLY HOW MANY PEOPLE THE 1 IN 26 STATISTIC WILL AFFECT IN THE VARIOUS VENUES. THIS AD CAMPAIGN RAN FROM MARCH 2020 - JUNE 2020, APPEARING ON A TOTAL OF 35 BILLBOARDS, GENERATING AN ESTIMATED 3.3 MILLION IMPRESSIONS.THE EPILEPSY FOUNDATION OF GREATER CHICAGO ALSO ENCOURAGES TEENAGERS WITH EPILEPSY TO ADVOCATE FOR THEMSELVES. ANNUALLY, 1-2 LOCAL TEENS ARE SELECTED TO PARTICIPATE IN OUR TEENS SPEAK UP PROGRAM, BRINGING ABOUT 100 TEENS FROM AROUND THE COUNTRY TO WASHINGTON, D.C. TO LEARN ABOUT EPILEPSY ADVOCACY. THE CONFERENCE CULMINATES IN MEETINGS WITH ILLINOIS SENATORS AND REPRESENTATIVES WHO ARE BRIEFED ON EPILEPSY AND MATTERS IMPORTANT TO THEIR CONSTITUENTS. THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S ASSOCIATE BOARD IS COMPRISED OF YOUNG PROFESSIONALS FROM BOTH WITHIN AND OUTSIDE OF THE EPILEPSY COMMUNITY. THIS GROUP IS TASKED NOT ONLY WITH FUNDRAISING AND PROVIDING SUPPORT THROUGH ADDITIONAL EVENTS, BUT HAS ALSO BEGUN OUTREACH TO LOCAL CORPORATE ENTITIES WITH THE GOAL OF PROVIDING EPILEPSY TRAINING TO STAFF AND ORGANIZATIONAL LEADERSHIP. IN NOVEMBER OF 2019, IT HOSTED ITS INAUGURAL CASINO NIGHT, WHICH SUCCESSFULLY RAISED VITAL FUNDS FOR EFGC.THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S HISPANIC OUTREACH PROGRAM PROVIDES VALUABLE SERVICES. THE PRIMARY GOAL OF THIS PROGRAM IS TO INCREASE EPILEPSY AWARENESS IN, AND PROVIDE RESOURCES TO, THE LATINO COMMUNITY. SOCIAL STIGMAS, CULTURAL BELIEFS, AND LACK OF EDUCATION KEEP MANY LATINOS FROM UNDERSTANDING THE REALITIES AND MYTHS ABOUT THE DISORDER. THE MANAGER OF THE HISPANIC OUTREACH PROGRAM IS RESPONSIBLE FOR OVERSEEING SPANISH-SPEAKING SUPPORT GROUPS AND CASE MANAGEMENT, DEVELOPING RELATIONSHIPS WITH ORGANIZATIONS THAT PROVIDE ASSISTANCE AND SERVICES TO THE HISPANIC POPULATION, AND MANAGING PROGRAMS SPECIFICALLY DESIGNED FOR THIS COMMUNITY, INCLUDING "LA EPILEPSIA AND "VIVIENDO BIEN CON EPILEPSIA" (LIVING WELL WITH EPILEPSY). THESE PROGRAMS PROVIDE PRESENTATIONS THAT ARE GIVEN IN SPANISH AND FOCUSED ON TREATMENTS, AS WELL AS PSYCHOSOCIAL ASPECTS OF EPILEPSY.IN 2019, HISPANIC OUTREACH WAS LED BY CASE MANAGER VALENTINA PADILLA-ACEVEDO. BY ENGAGING WITH SPANISH SPEAKING INDIVIDUALS AT FAITH-BASED ORGANIZATIONS AND PLACES OF WORSHIP (PRIMARILY THROUGH SPEAKING ENGAGEMENTS DURING CATHOLIC MASS SERVICES) THE EPILEPSY FOUNDATION OF GREATER CHICAGO HAS PROVIDED OUTREACH TO THOUSANDS OF ADDITIONAL INDIVIDUALS IN THE HISPANIC COMMUNITY AND HAS PROVIDED SERVICES TO MANY WHO APPROACHED EFGC AT THESE FAITH-BASED ORGANIZATIONS. MOVING FORWARD, THIS PROGRAM IS WORKING TO SETUP ADDITIONAL SUPPORT GROUPS AND EPILEPSY TRAINING SESSIONS IN EACH OF THESE LOCATIONS, ACTING AS A COMMUNITY RESOURCE. EDUCATION ALSO TOOK PLACE AT THE MEXICAN AND COLOMBIAN CONSULATES, PROMOTING EFGC'S FREE PROGRAMS AND SERVICES.
4d Other program services (Describe in Schedule O.)
(Expenses $ 148,770 including grants of $   ) (Revenue $   )
4e Total program service expensesMediumBullet1,663,371
Form 990 (2019)
Form 990 (2019)
Page 3
Part IV
Checklist of Required Schedules
Yes
No
1
Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)? If "Yes," complete Schedule AClick to see attachment.....................
1
Yes
 
2
Is the organization required to complete Schedule B, Schedule of Contributors (see instructions)? Click to see attachment...
2
Yes
 
3
Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office? If "Yes," complete Schedule C, Part IClick to see attachment.............
3
 
No
4
Section 501(c)(3) organizations. Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year? If "Yes," complete Schedule C, Part IIClick to see attachment.........
4
Yes
 
5
Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Revenue Procedure 98-19? If "Yes," complete Schedule C, Part IIIClick to see attachment..
5
 
No
6
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts? If "Yes," complete Schedule D, Part IClick to see attachment.........................
6
 
No
7
Did the organization receive or hold a conservation easement, including easements to preserve open space,
the environment, historic land areas, or historic structures? If "Yes," complete Schedule D, Part IIClick to see attachment....
7
 
No
8
Did the organization maintain collections of works of art, historical treasures, or other similar assets? If "Yes,"
complete Schedule D, Part IIIClick to see attachment..............
8
 
No
9
Did the organization report an amount in Part X, line 21 for escrow or custodial account liability; serve as a custodian for amounts not listed in Part X; or provide credit counseling, debt management, credit repair, or debt negotiation services? If "Yes," complete Schedule D, Part IVClick to see attachment..............
9
 
No
10
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi endowments? If "Yes," complete Schedule D, Part V......
10
 
No
11
If the organization’s answer to any of the following questions is "Yes," then complete Schedule D, Parts VI, VII, VIII, IX, or X as applicable.
a
Did the organization report an amount for land, buildings, and equipment in Part X, line 10? If "Yes," complete
Schedule D, Part VI. Click to see attachment...................
11a
Yes
 
b
Did the organization report an amount for investments—other securities in Part X, line 12 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIClick to see attachment.......
11b
 
No
c
Did the organization report an amount for investments—program related in Part X, line 13 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIIClick to see attachment.......
11c
 
No
d
Did the organization report an amount for other assets in Part X, line 15 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part IXClick to see attachment............
11d
 
No
e
Did the organization report an amount for other liabilities in Part X, line 25? If "Yes," complete Schedule D, Part XClick to see attachment
11e
Yes
 
f
Did the organization’s separate or consolidated financial statements for the tax year include a footnote that addresses the organization’s liability for uncertain tax positions under FIN 48 (ASC 740)? If "Yes," complete Schedule D, Part XClick to see attachment
11f
Yes
 
12a
Did the organization obtain separate, independent audited financial statements for the tax year? If "Yes," complete
Schedule D, Parts XI and XIIClick to see attachment......................
12a
 
No
b
Was the organization included in consolidated, independent audited financial statements for the tax year? If "Yes," and if the organization answered "No" to line 12a, then completing Schedule D, Parts XI and XII is optional Click to see attachment
12b
Yes
 
13
Is the organization a school described in section 170(b)(1)(A)(ii)? If "Yes," complete Schedule E
13
 
No
14a
Did the organization maintain an office, employees, or agents outside of the United States? .....
14a
 
No
b
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more? If "Yes," complete Schedule F, Parts I and IV.........
14b
 
No
15
Did the organization report on Part IX, column (A), line 3, more than $5,000 of grants or other assistance to or for any foreign organization? If “Yes,” complete Schedule F, Parts II and IV.....
15
 
No
16
Did the organization report on Part IX, column (A), line 3, more than $5,000 of aggregate grants or other assistance to or for foreign individuals? If “Yes,” complete Schedule F, Parts III and IV...
16
 
No
17
Did the organization report a total of more than $15,000 of expenses for professional fundraising services on Part IX, column (A), lines 6 and 11e? If "Yes," complete Schedule G, Part I(see instructions) ....Click to see attachment
17
 
No
18
Did the organization report more than $15,000 total of fundraising event gross income and contributions on Part VIII, lines 1c and 8a? If "Yes," complete Schedule G, Part II............ Click to see attachment
18
Yes
 
19
Did the organization report more than $15,000 of gross income from gaming activities on Part VIII, line 9a? If "Yes," complete Schedule G, Part III...................Click to see attachment
19
 
No
20a
Did the organization operate one or more hospital facilities? If "Yes," complete Schedule H....
20a
 
No
b
If "Yes" to line 20a, did the organization attach a copy of its audited financial statements to this return?
20b
 
 
21
Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government on Part IX, column (A), line 1? If “Yes,” complete Schedule I, Parts I and II.....Click to see attachment
21
 
No
Form 990 (2019)
Form 990 (2019)
Page 4
Part IV
Checklist of Required Schedules (continued)
Yes
No
22
Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals on Part IX, column (A), line 2? If “Yes,” complete Schedule I, Parts I and III........Click to see attachment
22
Yes
 
23
Did the organization answer "Yes" to Part VII, Section A, line 3, 4, or 5 about compensation of the organization’s current and former officers, directors, trustees, key employees, and highest compensated employees? If "Yes," complete Schedule J....................... Click to see attachment
23
Yes
 
24a
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002? If “Yes,” answer lines 24b through 24d and complete Schedule K. If “No,” go to line 25a...............
24a
 
No
b
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?...
24b
 
 
c
Did the organization maintain an escrow account other than a refunding escrow at any time during the year
to defease any tax-exempt bonds? ...............
24c
 
 
d
Did the organization act as an "on behalf of" issuer for bonds outstanding at any time during the year?...
24d
 
 
25a
Section 501(c)(3), 501(c)(4), and 501(c)(29) organizations. Did the organization engage in an excess benefit transaction with a disqualified person during the year? If "Yes," complete Schedule L, Part I ....
25a
 
No
b
Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization’s prior Forms 990 or 990-EZ? If "Yes," complete Schedule L, Part I.......................
25b
 
No
26
Did the organization report any amount on Part X, line 5 or 22 for receivables from or payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons? If "Yes," complete Schedule L, Part II...........
26
 
No
27
Did the organization provide a grant or other assistance to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or employee thereof, a grant selection committee member, or to a 35% controlled entity (including an employee thereof) or family member of any of these persons?
If "Yes," complete
Schedule L, Part III.........................
27
 
No
28
Was the organization a party to a business transaction with one of the following parties (see Schedule L, Part IV instructions for applicable filing thresholds, conditions, and exceptions):
a
A current or former officer, director, trustee, key employee, creator or founder, or substantial contributor? If "Yes," complete Schedule L, Part IV......................
28a
 
No
b
A family member of any individual described in line 28a? If "Yes," complete Schedule L, Part IV.....
28b
 
No
c
A 35% controlled entity of one or more individuals and/or organizations described in lines 28a or 28b? If "Yes," complete Schedule L, Part IV.....................
28c
 
No
29
Did the organization receive more than $25,000 in non-cash contributions? If "Yes," complete Schedule M..Click to see attachment
29
Yes
 
30
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions? If "Yes," complete Schedule M .................Click to see attachment
30
 
No
31
Did the organization liquidate, terminate, or dissolve and cease operations? If "Yes," complete Schedule N, Part I
31
 
No
32
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets? If "Yes," complete Schedule N, Part II........................
32
 
No
33
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3? If "Yes," complete Schedule R, Part I............Click to see attachment
33
 
No
34
Was the organization related to any tax-exempt or taxable entity? If "Yes," complete Schedule R, Part II, III, or IV, and Part V, line 1.........................Click to see attachment
34
Yes
 
35a
Did the organization have a controlled entity within the meaning of section 512(b)(13)?
35a
 
No
b
If ‘Yes’ to line 35a, did the organization receive any payment from or engage in any transaction with a controlled entity within the meaning of section 512(b)(13)? If "Yes," complete Schedule R, Part V, line 2 ...
35b
 
 
36
Section 501(c)(3) organizations. Did the organization make any transfers to an exempt non-charitable related organization? If "Yes," complete Schedule R, Part V, line 2............. Click to see attachment
36
 
No
37
Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes? If "Yes," complete Schedule R, Part VIClick to see attachment
37
 
No
38
Did the organization complete Schedule O and provide explanations in Schedule O for Part VI, lines 11b and 19? Note. All Form 990 filers are required to complete Schedule O. ............
38
Yes
 
Part V
Statements Regarding Other IRS Filings and Tax Compliance
Check if Schedule O contains a response or note to any line in this Part V...........
Yes
No
1a
Enter the number reported in Box 3 of Form 1096. Enter -0- if not applicable ..
1a
14
b
Enter the number of Forms W-2G included in line 1a. Enter -0- if not applicable .
1b
0
c
Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners? ..................
1c
 
 
Form 990 (2019)
Form 990 (2019)
Page 5
Part V
Statements Regarding Other IRS Filings and Tax Compliance (continued)
2a
Enter the number of employees reported on Form W-3, Transmittal of Wage and
Tax Statements, filed for the calendar year ending with or within the year covered by this return ..................
2a
19
b
If at least one is reported on line 2a, did the organization file all required federal employment tax returns?
Note. If the sum of lines 1a and 2a is greater than 250, you may be required to e-file (see instructions)
2b
Yes
 
3a
Did the organization have unrelated business gross income of $1,000 or more during the year?...
3a
 
No
b
If “Yes,” has it filed a Form 990-T for this year? If “No” to line 3b, provide an explanation in Schedule O...
3b
 
 
4a
At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)? ..
4a
 
No
b
If "Yes," enter the name of the foreign country: MediumBullet
See instructions for filing requirements for FinCEN Form 114, Report of Foreign Bank and Financial Accounts (FBAR).
5a
Was the organization a party to a prohibited tax shelter transaction at any time during the tax year? ..
5a
 
No
b
Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?
5b
 
No
c
If "Yes," to line 5a or 5b, did the organization file Form 8886-T? ............
5c
 
 
6a
Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions? ...
6a
 
No
b
If "Yes," did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible? ......................
6b
 
 
7
Organizations that may receive deductible contributions under section 170(c).
a
Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor? ....................
7a
Yes
 
b
If "Yes," did the organization notify the donor of the value of the goods or services provided? .....
7b
Yes
 
c
Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282? .........................
7c
 
No
d
If "Yes," indicate the number of Forms 8282 filed during the year ....
7d
 
e
Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?
7e
 
No
f
Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract? ..
7f
 
No
g
If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required? ......................
7g
 
 
h
If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C? ..........................
7h
 
 
8
Sponsoring organizations maintaining donor advised funds. Did a donor advised fund maintained by the sponsoring organization have excess business holdings at any time during the year? ........
8
 
 
9
Sponsoring organizations maintaining donor advised funds.
a
Did the sponsoring organization make any taxable distributions under section 4966?........
9a
 
 
b
Did the sponsoring organization make a distribution to a donor, donor advisor, or related person?...
9b
 
 
10
Section 501(c)(7) organizations. Enter:
a
Initiation fees and capital contributions included on Part VIII, line 12 ...
10a
 
b
Gross receipts, included on Form 990, Part VIII, line 12, for public use of club facilities
10b
 
11
Section 501(c)(12) organizations. Enter:
a
Gross income from members or shareholders .........
11a
 
b
Gross income from other sources (Do not net amounts due or paid to other sources against amounts due or received from them.) ..........
11b
 
12a
Section 4947(a)(1) non-exempt charitable trusts. Is the organization filing Form 990 in lieu of Form 1041?
12a
 
 
b
If "Yes," enter the amount of tax-exempt interest received or accrued during the year.
12b
 
13
Section 501(c)(29) qualified nonprofit health insurance issuers.
a
Is the organization licensed to issue qualified health plans in more than one state? .........
Note. See the instructions for additional information the organization must report on Schedule O.
13a
 
 
b
Enter the amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans ....
13b
 
c
Enter the amount of reserves on hand ............
13c
 
14a
Did the organization receive any payments for indoor tanning services during the tax year?.....
14a
 
No
b
If "Yes," has it filed a Form 720 to report these payments? If "No," provide an explanation in Schedule O..
14b
 
 
15
Is the organization subject to the section 4960 tax on payment(s) of more than $1,000,000 in remuneration or excess parachute payment(s) during the year? ....................
If "Yes," see instructions and file Form 4720, Schedule N.
15
 
No
16
Is the organization an educational institution subject to the section 4968 excise tax on net investment income? ..
If "Yes," complete Form 4720, Schedule O.
16
 
No
Form 990 (2019)
Form 990 (2019)
Page 6
Part VI
Governance, Management, and Disclosure For each "Yes" response to lines 2 through 7b below, and for a "No" response to lines 8a, 8b, or 10b below, describe the circumstances, processes, or changes in Schedule O. See instructions.
Check if Schedule O contains a response or note to any line in this Part VI..............
Section A. Governing Body and Management
Yes
No
1a
Enter the number of voting members of the governing body at the end of the tax year
1a
14
If there are material differences in voting rights among members of the governing body, or if the governing body delegated broad authority to an executive committee or similar committee, explain in Schedule O.
b
Enter the number of voting members included in line 1a, above, who are independent
1b
14
2
Did any officer, director, trustee, or key employee have a family relationship or a business relationship with any other officer, director, trustee, or key employee? .................
2
 
No
3
Did the organization delegate control over management duties customarily performed by or under the direct supervision of officers, directors or trustees, or key employees to a management company or other person? .
3
 
No
4
Did the organization make any significant changes to its governing documents since the prior Form 990 was filed? .
4
 
No
5
Did the organization become aware during the year of a significant diversion of the organization’s assets? .
5
 
No
6
Did the organization have members or stockholders? ................
6
 
No
7a
Did the organization have members, stockholders, or other persons who had the power to elect or appoint one or more members of the governing body? ....................
7a
 
No
b
Are any governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or persons other than the governing body? ...................
7b
 
No
8
Did the organization contemporaneously document the meetings held or written actions undertaken during the year by the following:
a
The governing body? .......................
8a
Yes
 
b
Each committee with authority to act on behalf of the governing body? ............
8b
Yes
 
9
Is there any officer, director, trustee, or key employee listed in Part VII, Section A, who cannot be reached at the organization’s mailing address? If "Yes," provide the names and addresses in Schedule O.......
9
 
No
Section B. Policies (This Section B requests information about policies not required by the Internal Revenue Code.)
Yes
No
10a
Did the organization have local chapters, branches, or affiliates? ............
10a
 
No
b
If "Yes," did the organization have written policies and procedures governing the activities of such chapters, affiliates, and branches to ensure their operations are consistent with the organization's exempt purposes?
10b
 
 
11a
Has the organization provided a complete copy of this Form 990 to all members of its governing body before filing the form? ............................
11a
Yes
 
b
Describe in Schedule O the process, if any, used by the organization to review this Form 990. .....
12a
Did the organization have a written conflict of interest policy? If "No," go to line 13.......
12a
Yes
 
b
Were officers, directors, or trustees, and key employees required to disclose annually interests that could give rise to conflicts? ..........................
12b
Yes
 
c
Did the organization regularly and consistently monitor and enforce compliance with the policy? If "Yes," describe in Schedule O how this was done...................
12c
Yes
 
13
Did the organization have a written whistleblower policy? ...............
13
Yes
 
14
Did the organization have a written document retention and destruction policy? .........
14
Yes
 
15
Did the process for determining compensation of the following persons include a review and approval by independent persons, comparability data, and contemporaneous substantiation of the deliberation and decision?
a
The organization’s CEO, Executive Director, or top management official ...........
15a
Yes
 
b
Other officers or key employees of the organization ................
15b
 
No
If "Yes" to line 15a or 15b, describe the process in Schedule O (see instructions).
16a
Did the organization invest in, contribute assets to, or participate in a joint venture or similar arrangement with a taxable entity during the year? ......................
16a
 
No
b
If "Yes," did the organization follow a written policy or procedure requiring the organization to evaluate its participation in joint venture arrangements under applicable federal tax law, and take steps to safeguard the organization’s exempt status with respect to such arrangements? ............
16b
 
 
Section C. Disclosure
17
List the states with which a copy of this Form 990 is required to be filedMediumBullet
IL
18
Section 6104 requires an organization to make its Form 1023 (or 1024-A if applicable), 990, and 990-T (501(c)(3)s only) available for public inspection. Indicate how you made these available. Check all that apply.
19
Describe in Schedule O whether (and if so, how) the organization made its governing documents, conflict of interest policy, and financial statements available to the public during the tax year.
20
State the name, address, and telephone number of the person who possesses the organization's books and records:
MediumBulletROBERTA J SHOEMAKER17 N STATE STREET NO 650   CHICAGO,IL60602 (312) 939-8622
Form 990 (2019)
Form 990 (2019)
Page 7
Part VII
Compensation of Officers, Directors,Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors
Check if Schedule O contains a response or note to any line in this Part VII..............
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
1a Complete this table for all persons required to be listed. Report compensation for the calendar year ending with or within the organization’s tax year.
RoundBullet List all of the organization’s current officers, directors, trustees (whether individuals or organizations), regardless of amount
of compensation. Enter -0- in columns (D), (E), and (F) if no compensation was paid.

RoundBullet List all of the organization’s current key employees, if any. See instructions for definition of "key employee."
RoundBullet List the organization’s five current highest compensated employees (other than an officer, director, trustee or key employee)
who received reportable compensation (Box 5 of Form W-2 and/or Box 7 of Form 1099-MISC) of more than $100,000 from the
organization and any related organizations.

RoundBullet List all of the organization’s former officers, key employees, or highest compensated employees who received more than $100,000
of reportable compensation from the organization and any related organizations.

RoundBullet List all of the organization’s former directors or trustees that received, in the capacity as a former director or trustee of the
organization, more than $10,000 of reportable compensation from the organization and any related organizations.

See instructions for the order in which to list the persons above.
Check this box if neither the organization nor any related organization compensated any current officer, director, or trustee.
(A)
Name and title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W-2/1099-MISC) 		(E)
Reportable compensation from related organizations (W-2/1099-MISC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(1) BRYAN ANDERSON......................................................................
PRESIDENT AND CEO
 37.50
.................
5.00 		    X       159,572 0 22,580
(2) ROBERTA SHOEMAKER......................................................................
VP OF OPERATIONS & FINANCE
 37.50
.................
  		        X   103,427 0 18,846
(3) HOWARD ZWIRN......................................................................
CHAIR
 5.00
.................
  		X   X       0 0 0
(4) ROXANNE DEVOS TYSSEN......................................................................
SECRETARY
 5.00
.................
  		X   X       0 0 0
(5) PAT CALLAGHAN......................................................................
TREASURER
 5.00
.................
  		X   X       0 0 0
(6) MIKE ADAMLE......................................................................
DIRECTOR
 5.00
.................
  		X           0 0 0
(7) SARAH CARLSON......................................................................
DIRECTOR
 5.00
.................
  		X           0 0 0
(8) LISA AHERN......................................................................
DIRECTOR
 5.00
.................
  		X           0 0 0
(9) JASON HOFFERICA......................................................................
DIRECTOR
 5.00
.................
  		X           0 0 0
(10) NANCY IIDA......................................................................
DIRECTOR
 5.00
.................
  		X           0 0 0
(11) MAX ROVNER MD......................................................................
DIRECTOR
 5.00
.................
  		X           0 0 0
(12) STEPHAN SCHUELE MD MPH......................................................................
DIRECTOR
 5.00
.................
  		X           0 0 0
(13) MATT MCINERNEY......................................................................
DIRECTOR
 5.00
.................
  		X           0 0 0
(14) PETE BABILLA......................................................................
DIRECTOR
 5.00
.................
  		X           0 0 0
(15) TAKIJAH HEARD......................................................................
DIRECTOR
 5.00
.................
  		X           0 0 0
(16) GEOFFREY VANCE......................................................................
DIRECTOR
 5.00
.................
  		X           0 0 0


Form 990 (2019)
Form 990 (2019)
Page 8
Part VII
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (continued)
(A)
Name and title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W-2/1099-MISC) 		(E)
Reportable compensation from related organizations (W-2/1099-MISC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;


























1b Sub-Total................MediumBullet
c Total from continuation sheets to Part VII, Section A....MediumBullet
d Total (add lines 1b and 1c)...........MediumBullet 262,999 0 41,426
2
Total number of individuals (including but not limited to those listed above) who received more than $100,000 of reportable compensation from the organization MediumBullet2
Yes
No
3
Did the organization list any former officer, director or trustee, key employee, or highest compensated employee on line 1a? If "Yes," complete Schedule J for such individual ..............
3
 
No
4
For any individual listed on line 1a, is the sum of reportable compensation and other compensation from the organization and related organizations greater than $150,000? If "Yes," complete Schedule J for such
individual...........................
4
Yes
 
5
Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services rendered to the organization? If "Yes," complete Schedule J for such person ........
5
 
No
Section B. Independent Contractors
1
Complete this table for your five highest compensated independent contractors that received more than $100,000 of compensation from the organization. Report compensation for the calendar year ending with or within the organization’s tax year.
(A)
Name and business address 		(B)
Description of services 		(C)
Compensation
2
Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization MediumBullet0
Form 990 (2019)
Form 990 (2019)
Page 9
Part VIII
Statement of Revenue
Check if Schedule O contains a response or note to any line in this Part VIII.............
(A)
Total revenue 		(B)
Related or
exempt
function
revenue 		(C)
Unrelated
business
revenue 		(D)
Revenue
excluded from
tax under sections
512 - 514
Contributions, Gifts, GrantAmt and OtherAmt Similar Amounts 1a Federated campaigns..1a  
b Membership dues..1b  
c Fundraising events..1c 260,210
d Related organizations1d  
e Government grants (contributions)1e 1,301,952
f All other contributions, gifts, grants, and similar amounts not included above1f 1,339,454
g Noncash contributions included in lines 1a - 1f:$ 1g 33,814
h Total. Add lines 1a-1f.......MediumBullet 2,901,616
Program Service RevenueAmt Business Code
2a
b
c
d
e
f All other program service revenue.        
g Total. Add lines 2a–2f .....MediumBullet  
OtherAmtRevenueAmt 3 Investment income (including dividends, interest, and othersimilar amounts) ......MediumBullet 32,222     32,222
4 Income from investment of tax-exempt bond proceedsMediumBullet        
5 Royalties...........MediumBullet        
(ii) Personal (i) Real
6a Gross rents     6a
b Less: rental expenses     6b
c Rental income or (loss)     6c
d Net rental income or (loss).......MediumBullet        
(ii) Other (i) Securities
7a Gross amount from sales of assets other than inventory     7a
b Less: cost or other basis and sales expenses     7b
c Gain or (loss)     7c
d Net gain or (loss).........MediumBullet        
8a Gross income from fundraising events (not including $ 260,210of contributions reported on line 1c). See Part IV, line 18 ....
8a 151,715
b Less: direct expenses ... 8b 219,818
c Net income or (loss) from fundraising events..MediumBullet -68,103   -68,103
9a Gross income from gaming activities.
See Part IV, line 19 ...
9a  
b Less: direct expenses ... 9b  
c Net income or (loss) from gaming activities..MediumBullet        
10a Gross sales of inventory, less
returns and allowances ..
10a  
b Less: cost of goods sold .. 10b  
c Net income or (loss) from sales of inventory..MediumBullet        
Business Code Miscellaneous Revenue
11a            
b            
c            
d All other revenue ....        
e Total. Add lines 11a–11d ...... MediumBullet  
12 Total revenue. See instructions.....MediumBullet 2,865,735 0 0 -35,881
Form 990 (2019)
Form 990 (2019)
Page 10
Part IX
Statement of Functional Expenses
Section 501(c)(3) and 501(c)(4) organizations must complete all columns. All other organizations must complete column (A).Check if Schedule O contains a response or note to any line in this Part IX..............
Do not include amounts reported on lines 6b,
7b, 8b, 9b, and 10b of Part VIII. 		(A)
Total expenses 		(B)
Program service expenses 		(C)
Management and general expenses 		(D)
Fundraising
expenses
1 Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 ....    
2 Grants and other assistance to domestic individuals. See Part IV, line 22 ........... 20,000 20,000
3 Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. .............    
4 Benefits paid to or for members .......    
5 Compensation of current officers, directors, trustees, and key employees ........... 182,152 151,277 11,658 19,217
6 Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .........        
7 Other salaries and wages........ 965,861 802,147 61,815 101,899
8 Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) .... 85,237 70,790 5,455 8,992
9 Other employee benefits ....... 165,489 137,439 10,592 17,458
10 Payroll taxes ........... 78,783 65,429 5,042 8,312
11 Fees for services (non-employees):        
a Management ......        
b Legal ......... 33,852 17,315 7,837 8,700
c Accounting ........... 16,052 8,211 3,716 4,125
d Lobbying ........... 66,000 33,759 15,279 16,962
e Professional fundraising services. See Part IV, line 17    
f Investment management fees ......        
g Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O) 55,936 28,615 12,942 14,379
12 Advertising and promotion .... 26,997 22,421 1,728 2,848
13 Office expenses ....... 83,007 68,936 5,313 8,758
14 Information technology ......        
15 Royalties ..        
16 Occupancy ........... 101,211 84,056 6,477 10,678
17 Travel ............ 19,235 15,975 1,231 2,029
18 Payments of travel or entertainment expenses for any federal, state, or local public officials .        
19 Conferences, conventions, and meetings ....        
20 Interest ...........        
21 Payments to affiliates .......        
22 Depreciation, depletion, and amortization .. 11,991 9,959 767 1,265
23 Insurance ... 11,794 9,795 755 1,244
24 Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a CATERING AND FACILITY R 81,155 67,399 5,194 8,562
b DUES AND SUBSCRIPTIONS 36,780 30,546 2,354 3,880
c MISCELLANEOUS EXPENSES 8,824 7,328 565 931
d EMPLOYEE RELATIONS 7,770 6,453 497 820
e All other expenses 6,675 5,521 397 757
25 Total functional expenses. Add lines 1 through 24e 2,064,801 1,663,371 159,614 241,816
26 Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here MediumBullet if following SOP 98-2 (ASC 958-720).        
Form 990 (2019)
Form 990 (2019)
Page 11
Part X
Balance Sheet
Check if Schedule O contains a response or note to any line in this Part IX..............
(A)
Beginning of year 		(B)
End of year
Assets 1 Cash–non-interest-bearing ........ 1,276,119 1 1,898,457
2 Savings and temporary cash investments ......... 2,249,732 2 2,250,004
3 Pledges and grants receivable, net ...... 107,603 3 211,166
4 Accounts receivable, net .............   4  
5 Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
  5  
6 Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
  6  
7 Notes and loans receivable, net ...........   7  
8 Inventories for sale or use ............   8  
9 Prepaid expenses and deferred charges ...... 34,621 9 50,509
10a Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D 10a 98,353
b Less: accumulated depreciation 10b 91,026 14,514 10c 7,327
11 Investments—publicly traded securities .   11  
12 Investments—other securities. See Part IV, line 11 .....   12  
13 Investments—program-related. See Part IV, line 11 ..   13  
14 Intangible assets ...............   14  
15 Other assets. See Part IV, line 11 ........... 9,916 15 9,916
16 Total assets. Add lines 1 through 15 (must equal line 33)... 3,692,505 16 4,427,379
Liabilities 17 Accounts payable and accrued expenses ..... 62,379 17 64,780
18 Grants payable ...   18  
19 Deferred revenue .........   19  
20 Tax-exempt bond liabilities .........   20  
21 Escrow or custodial account liability. Complete Part IV of Schedule D   21  
22 Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
  22  
23 Secured mortgages and notes payable to unrelated third parties ..   23  
24 Unsecured notes and loans payable to unrelated third parties ..   24  
25 Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D 154,832 25 86,371
26 Total liabilities. Add lines 17 through 25.. 217,211 26 151,151
Net Assets or Fund Balance Organizations that follow FASB ASC 958, check here MediumBullet and complete lines 27, 28, 32, and 33.
27 Net assets without donor restrictions .......... 3,475,294 27 4,263,728
28 Net assets with donor restrictions ........... 0 28 12,500
Organizations that do not follow FASB ASC 958, check here MediumBullet and complete lines 29 through 33.
29 Capital stock or trust principal, or current funds .....   29  
30 Paid-in or capital surplus, or land, building or equipment fund ...   30  
31 Retained earnings, endowment, accumulated income, or other funds   31  
32 Total net assets or fund balances ........... 3,475,294 32 4,276,228
33 Total liabilities and net assets/fund balances ........ 3,692,505 33 4,427,379
Form 990 (2019)
Form 990 (2019)
Page 12
Part XI
Reconcilliation of Net Assets
Check if Schedule O contains a response or note to any line in this Part XI..............
1
Total revenue (must equal Part VIII, column (A), line 12) ............
1
2,865,735
2
Total expenses (must equal Part IX, column (A), line 25) ............
2
2,064,801
3
Revenue less expenses. Subtract line 2 from line 1 ..............
3
800,934
4
Net assets or fund balances at beginning of year (must equal Part X, line 32, column (A)) ..
4
3,475,294
5
Net unrealized gains (losses) on investments ...............
5
 
6
Donated services and use of facilities .................
6
 
7
Investment expenses .....................
7
 
8
Prior period adjustments .....................
8
 
9
Other changes in net assets or fund balances (explain in Schedule O) ........
9
0
10
Net assets or fund balances at end of year. Combine lines 3 through 9 (must equal Part X, line 32, column (B))
10
4,276,228
Part XII
Financial Statements and Reporting
Check if Schedule O contains a response or note to any line in this Part XII.............
Yes
No
1
Accounting method used to prepare the Form 990:  
If the organization changed its method of accounting from a prior year or checked "Other," explain in
Schedule O.
2a
Were the organization’s financial statements compiled or reviewed by an independent accountant?
2a
 
No
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were compiled or reviewed on a separate basis, consolidated basis, or both:
b
Were the organization’s financial statements audited by an independent accountant?
2b
Yes
 
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were audited on a separate basis, consolidated basis, or both:
c
If "Yes," to line 2a or 2b, does the organization have a committee that assumes responsibility for oversight of the audit, review, or compilation of its financial statements and selection of an independent accountant?
2c
Yes
 
If the organization changed either its oversight process or selection process during the tax year, explain in Schedule O.
3a
As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Single Audit Act and OMB Circular A-133?
3a
 
No
b
If "Yes," did the organization undergo the required audit or audits? If the organization did not undergo the required audit or audits, explain why in Schedule O and describe any steps taken to undergo such audits.
3b
 
 
Form 990 (2019)
Form 990 (2019)
Additional Data


Software ID:  
Software Version:  
Form 990, Special Condition Description:
Special Condition Description
SCHEDULE A
(Form 990 or 990EZ)

Department of the Treasury
Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
right arrow Attach to Form 990 or Form 990-EZ.
right arrow Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public
Inspection
Name of the organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
 
Employer identification number

36-2317619
Part I
Reason for Public Charity Status (All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)
1
2
3
4
5
6
7
8
9
10
11
12
a
b
c
d
e
f
Enter the number of supported organizations ...............................  
g
Provide the following information about the supported organization(s).
(i) Name of supported organization (ii) EIN (iii) Type of organization (described on lines 1- 10 above (see instructions)) (iv) Is the organization listed in your governing document? (v) Amount of monetary support (see instructions) (vi) Amount of other support (see instructions)
Yes No
Total
 
   
For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.
Cat. No. 11285F
Schedule A (Form 990 or 990-EZ) 2019

Schedule A (Form 990 or 990-EZ) 2019
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2015 (b) 2016 (c) 2017 (d) 2018 (e) 2019 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. 1,883,452 2,826,916 2,442,587 2,443,671 2,901,616 12,498,242
2 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....            
3 The value of services or facilities furnished by a governmental unit to the organization without charge..            
4 Total. Add lines 1 through 3 1,883,452 2,826,916 2,442,587 2,443,671 2,901,616 12,498,242
5 The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f).. 253,204
6 Public support. Subtract line 5 from line 4. 12,245,038
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2015 (b) 2016 (c) 2017 (d) 2018 (e) 2019 (f) Total
7 Amounts from line 4.. 1,883,452 2,826,916 2,442,587 2,443,671 2,901,616 12,498,242
8 Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... 489 497 10,525 47,821 32,222 91,554
9 Net income from unrelated business activities, whether or not the business is regularly carried on..            
10 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.)..            
11 Total support. Add lines 7 through 10 12,589,796
12
12
628,828
13
First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here........................................right arrow
Section C. Computation of Public Support Percentage
14
14
97.260 %
15
15
99.510 %
16a
b
17a
b
18
Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow
Schedule A (Form 990 or 990-EZ) 2019

Schedule A (Form 990 or 990-EZ) 2019
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2015 (b) 2016 (c) 2017 (d) 2018 (e) 2019 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .            
2 Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose            
3 Gross receipts from activities that are not an unrelated trade or business under section 513 .....            
4 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...            
5 The value of services or facilities furnished by a governmental unit to the organization without charge            
6 Total. Add lines 1 through 5            
7a Amounts included on lines 1, 2, and 3 received from disqualified persons            
b Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.            
c Add lines 7a and 7b..            
8 Public support. (Subtract line 7c from line 6.)  
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2015 (b) 2016 (c) 2017 (d) 2018 (e) 2019 (f) Total
9 Amounts from line 6...            
10a Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..            
b Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.            
c Add lines 10a and 10b.            
11 Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.            
12 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..            
13 Total support. (Add lines 9, 10c, 11, and 12.)..            
14
Section C. Computation of Public Support Percentage
15
15
 
16
16
 
Section D. Computation of Investment Income Percentage
17
17
 
18
18
 
19a
b
20
Schedule A (Form 990 or 990-EZ) 2019

Schedule A (Form 990 or 990-EZ) 2019
Page 4
Part IV
Supporting Organizations
(Complete only if you checked a box on line 12 of Part I. If you checked 12a of Part I, complete Sections A and B. If you checked 12b of Part I, complete Sections A and C. If you checked 12c of Part I, complete Sections A, D, and E. If you checked 12d of Part I, complete Sections A and D, and complete Part V.)
Section A. All Supporting Organizations
Yes
No
1
Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.
1
 
 
2
Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).
2
 
 
3a
Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer (b) and (c) below.
3a
 
 
b
Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.
3b
 
 
c
Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.
3c
 
 
4a
Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked 12a or 12b in Part I, answer (b) and (c) below.
4a
 
 
b
Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.
4b
 
 
c
Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.
4c
 
 
5a
Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer (b) and (c) below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).
5a
 
 
b
Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?
5b
 
 
c
Substitutions only. Was the substitution the result of an event beyond the organization's control?
5c
 
 
6
Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.
6
 
 
7
Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ) .
7
 
 
8
Did the organization make a loan to a disqualified person (as defined in section 4958) not described in line 7? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ).
8
 
 
9a
Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.
9a
 
 
b
Did one or more disqualified persons (as defined in line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.
9b
 
 
c
Did a disqualified person (as defined in line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.
9c
 
 
10a
Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.
10a
 
 
b
Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).
10b
 
 
Schedule A (Form 990 or 990-EZ) 2019

Schedule A (Form 990 or 990-EZ) 2019
Page 5
Part IV
Supporting Organizations (continued)
Yes
No
11
Has the organization accepted a gift or contribution from any of the following persons?
a
A person who directly or indirectly controls, either alone or together with persons described in (b) and (c) below, the governing body of a supported organization?
11a
 
 
b
A family member of a person described in (a) above?
11b
 
 
c
A 35% controlled entity of a person described in (a) or (b) above? If “Yes” to a, b, or c, provide detail in Part VI.
11c
 
 
Section B. Type I Supporting Organizations
Yes
No
1
Did the directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.
1
 
 
2
Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.
2
 
 
Section C. Type II Supporting Organizations
Yes
No
1
Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).
1
 
 
Section D. All Type III Supporting Organizations
Yes
No
1
Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?
1
 
 
2
Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).
2
 
 
3
By reason of the relationship described in (2), did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.
3
 
 
Section E. Type III Functionally-Integrated Supporting Organizations
1
Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):
a
b
c
2
Activities Test. Answer (a) and (b) below.
Yes
No
a
Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.
2a
 
 
b
Did the activities described in (a) constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.
2b
 
 
3
Parent of Supported Organizations. Answer (a) and (b) below.
a
Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations? Provide details in Part VI.
3a
 
 
b
Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.
3b
 
 
Schedule A (Form 990 or 990-EZ) 2019

Schedule A (Form 990 or 990-EZ) 2019
Page 6
Part V
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations
1
Section A - Adjusted Net Income (A) Prior Year (B) Current Year
(optional)
1 Net short-term capital gain 1    
2 Recoveries of prior-year distributions 2    
3 Other gross income (see instructions) 3    
4 Add lines 1 through 3 4    
5 Depreciation and depletion 5    
6 Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) 6    
7 Other expenses (see instructions) 7    
8 Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) 8    
Section B - Minimum Asset Amount (A) Prior Year (B) Current Year
(optional)
1 Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): 1
a Average monthly value of securities 1a    
b Average monthly cash balances 1b    
c Fair market value of other non-exempt-use assets 1c    
d Total (add lines 1a, 1b, and 1c) 1d    
e Discount claimed for blockage or other factors
(explain in detail in Part VI):  
2 Acquisition indebtedness applicable to non-exempt use assets 2    
3 Subtract line 2 from line 1d 3    
4 Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions). 4    
5 Net value of non-exempt-use assets (subtract line 4 from line 3) 5    
6 Multiply line 5 by .035 6    
7 Recoveries of prior-year distributions 7    
8 Minimum Asset Amount (add line 7 to line 6) 8    
Section C - Distributable Amount Current Year
1 Adjusted net income for prior year (from Section A, line 8, Column A) 1  
2 Enter 85% of line 1 2  
3 Minimum asset amount for prior year (from Section B, line 8, Column A) 3  
4 Enter greater of line 2 or line 3 4  
5 Income tax imposed in prior year 5  
6 Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) 6  
7
Schedule A (Form 990 or 990-EZ) 2019

Schedule A (Form 990 or 990-EZ) 2019
Page 7
Part V
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)
Section D - Distributions Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes  
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in
excess of income from activity		  
3 Administrative expenses paid to accomplish exempt purposes of supported organizations  
4 Amounts paid to acquire exempt-use assets  
5 Qualified set-aside amounts (prior IRS approval required)  
6 Other distributions (describe in Part VI). See instructions  
7Total annual distributions. Add lines 1 through 6.  
8 Distributions to attentive supported organizations to which the organization is responsive (provide
details in Part VI). See instructions		  
9 Distributable amount for 2019 from Section C, line 6  
10 Line 8 amount divided by Line 9 amount  
Section E - Distribution Allocations (see instructions) (i)
Excess Distributions 		(ii)
Underdistributions
Pre-2019 		(iii)
Distributable
Amount for 2019
1 Distributable amount for 2019 from Section C, line 6  
2 Underdistributions, if any, for years prior to 2019 (reasonable cause required-- explain in Part VI).
See instructions.		  
3 Excess distributions carryover, if any, to 2019:
a From 2014.......  
b From 2015.......  
c From 2016.......  
d From 2017.......  
e From 2018.......  
fTotal of lines 3a through e  
g Applied to underdistributions of prior years  
h Applied to 2019 distributable amount  
i Carryover from 2014 not applied (see
instructions) 		 
j Remainder. Subtract lines 3g, 3h, and 3i from 3f.  
4Distributions for 2019 from Section D, line 7:
$  
a Applied to underdistributions of prior years  
b Applied to 2019 distributable amount  
c Remainder. Subtract lines 4a and 4b from 4.  
5 Remaining underdistributions for years prior to
2019, if any. Subtract lines 3g and 4a from line 2.
If the amount is greater than zero, explain in Part VI.
See instructions.		  
6 Remaining underdistributions for 2019. Subtract
lines 3h and 4b from line 1. If the amount is greater
than zero, explain in Part VI. See instructions.		  
7 Excess distributions carryover to 2020. Add lines
3j and 4c.		  
8 Breakdown of line 7:
a Excess from 2015.....  
b Excess from 2016.....  
c Excess from 2017.....  
d Excess from 2018.....  
e Excess from 2019.....  
Schedule A (Form 990 or 990-EZ) (2019)

Schedule A (Form 990 or 990-EZ) 2019
Page 8
Part VI
Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
 
Return Reference Explanation
Schedule A (Form 990 or 990-EZ) 2019


Additional Data


Software ID:  
Software Version:  
Schedule B
(Form 990, 990-EZ,
or 990-PF)
Department of the Treasury
Internal Revenue Service
Schedule of Contributors

Arrow Bullet Attach to Form 990, 990-EZ, or 990-PF.
Arrow Bullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2019
Name of the organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
 
Employer identification number

36-2317619
Organization type (check one):
Filers of:
Section:
Form 990 or 990-EZ






Form 990-PF




Check if your organization is covered by the General Rule or a Special Rule.  
Note: Only a section 501(c)(7), (8), or (10) organization can check boxes for both the General Rule and a Special Rule. See instructions.
General Rule
Special Rules
......... Arrow Bullet $  
Caution: An organization that isn't covered by the General Rule and/or the Special Rules doesn't file Schedule B (Form 990,
990-EZ, or 990-PF), but it must answer “No” on Part IV, line 2, of its Form 990; or check the box on line H of its Form 990-EZ
or on its Form 990PF, Part I, line 2, to certify that it doesn't meet the filing requirements of Schedule B (Form 990,
990-EZ, or 990-PF).
For Paperwork Reduction Act Notice, see the Instructions
for Form 990, 990-EZ, or 990-PF.
Cat. No. 30613XSchedule B (Form 990, 990-EZ, or 990-PF) (2019)
Schedule B (Form 990, 990-EZ, or 990-PF) (2019) Page 2
Name of organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
  		Employer identification number
36-2317619
Part I
Contributors
Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
RESTRICTED
 
 
 
 
  ,    

$ RESTRICTED


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
Schedule B (Form 990, 990-EZ, or 990-PF) (2019)
Schedule B (Form 990, 990-EZ, or 990-PF) (2019)
Page 3
Name of organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
  		Employer identification number

36-2317619
Part II
Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
(a)
No. from Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
Schedule B (Form 990, 990-EZ, or 990-PF) (2019)
Schedule B (Form 990, 990-EZ, or 990-PF) (2019)
Page 4
Name of organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
  		Employer identification number

36-2317619
Part III
Exclusively religious, charitable, etc., contributions to organizations described in section 501(c)(7), (8), or (10) that total more than $1,000 for the year from any one contributor. Complete columns (a) through (e) and the following line entry. For organizations completing Part III, enter the total of exclusively religious, charitable, etc., contributions of $1,000 or less for the year. (Enter this information once. See instructions.) Arrow Bullet$  
Use duplicate copies of Part III if additional space is needed.
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
Schedule B (Form 990, 990-EZ, or 990-PF) (2019)

Additional Data


Software ID:  
Software Version:  
SCHEDULE C
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service
Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527

SchCMd Bullet Complete if the organization is described below. SchCMd Bullet Attach to Form 990 or Form 990-EZ.
SchCMd BulletGo to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public
Inspection
If the organization answered "Yes" on Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" on Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" on Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet Section 501(c)(4), (5), or (6) organizations: Complete Part III.
Name of the organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
 
Employer identification number

36-2317619
Part I-A
Complete if the organization is exempt under section 501(c) or is a section 527 organization.

1
Provide a description of the organization’s direct and indirect political campaign activities in Part IV (see instructions for definition of “political campaign activities")

2
Political campaign activity expenditures (see instructions) ....................................................................SchCMd Bullet
$  
3
Volunteer hours for political campaign activities (see instructions) ..................................................................
 

Part I-B
Complete if the organization is exempt under section 501(c)(3).
1
Enter the amount of any excise tax incurred by the organization under section 4955 ................................SchCMd Bullet
$  
2
Enter the amount of any excise tax incurred by organization managers under section 4955 .......................SchCMd Bullet
$  
3
If the organization incurred a section 4955 tax, did it file Form 4720 for this year? .........................................
4a
Was a correction made? ......................................................................................................................
b
If "Yes," describe in Part IV.
Part I-C
Complete if the organization is exempt under section 501(c), except section 501(c)(3).
1
Enter the amount directly expended by the filing organization for section 527 exempt function activities ..... SchCMd Bullet
$  
2
Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ............................................................................................................................SchCMd Bullet

$  
3
Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b...........SchCMd Bullet

$  
4
Did the filing organization file Form 1120-POL for this year? ...................................................................
5
Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.
(a) Name (b) Address (c) EIN (d) Amount paid from filing organization's funds. If none, enter -0-. (e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.
1
2
3
4
5
6
For Paperwork Reduction Act Notice, see the instructions for Form 990 or 990-EZ.
Cat. No. 50084S
Schedule C (Form 990 or 990-EZ) 2019

Schedule C (Form 990 or 990-EZ) 2019
Page 2
Part II-A
Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).
A Check SchCMd Bulletexpenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet
Limits on Lobbying Expenditures
(The term "expenditures" means amounts paid or incurred.) 		(a) Filing
organization's
totals 		(b) Affiliated group totals
1a Total lobbying expenditures to influence public opinion (grass roots lobbying) ......................    
b Total lobbying expenditures to influence a legislative body (direct lobbying) ........................    
c Total lobbying expenditures (add lines 1a and 1b) ............................................................    
d Other exempt purpose expenditures ...............................................................................    
e Total exempt purpose expenditures (add lines 1c and 1d) ..................................................    
f Lobbying nontaxable amount. Enter the amount from the following table in both
columns.		    
If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
Not over $500,00020% of the amount on line 1e.
Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
Over $17,000,000$1,000,000.
g Grassroots nontaxable amount (enter 25% of line 1f) .................................................    
h Subtract line 1g from line 1a. If zero or less, enter -0-. ................................................    
i Subtract line 1f from line 1c. If zero or less, enter -0-. ................................................    
j If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting
section 4911 tax for this year? ...................................................................................................................

4-Year Averaging Period Under Section 501(h)
(Some organizations that made a section 501(h) election do not have to complete all of the five
columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
Calendar year (or fiscal year
beginning in) 		(a) 2016 (b) 2017 (c) 2018 (d) 2019 (e) Total
2a Lobbying nontaxable amount          
b Lobbying ceiling amount
(150% of line 2a, column(e)) 		 
c Total lobbying expenditures          
d Grassroots nontaxable amount          
e Grassroots ceiling amount
(150% of line 2d, column (e))		  
f Grassroots lobbying expenditures          
Schedule C (Form 990 or 990-EZ) 2019


Schedule C (Form 990 or 990-EZ) 2019
Page 3
Part II-B
Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).
For each "Yes" response on lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.
(a)
Yes|No
(b)
Amount
1
During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:
a
Volunteers? ...........................................................................................................
 
No
b
Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ........
 
No
c
Media advertisements? ...................................................................................................
 
No
 
d
Mailings to members, legislators, or the public? .............................................................................
 
No
 
e
Publications, or published or broadcast statements? ...........................................................
 
No
 
f
Grants to other organizations for lobbying purposes? ..........................................................
 
No
 
g
Direct contact with legislators, their staffs, government officials, or a legislative body? .......................
 
No
 
h
Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ..................
 
No
 
i
Other activities? ...................................................................................................................
Yes
 
66,000
j
Total. Add lines 1c through 1i ....................................................................................................
66,000
2a
Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....
 
No
b
If "Yes," enter the amount of any tax incurred under section 4912 ...........................................
 
c
If "Yes," enter the amount of any tax incurred by organization managers under section 4912 ...................
 
d
If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? ........................
 
 
Part III-A
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).
Yes
No
1
Were substantially all (90% or more) dues received nondeductible by members? ...............................................
1
 
 
2
Did the organization make only in-house lobbying expenditures of $2,000 or less? ............................................
2
 
 
3
Did the organization agree to carry over lobbying and political expenditures from the prior year? .................................
3
 
 
Part III-B
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."
1
Dues, assessments and similar amounts from members ......................................................................
1
 
2
Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political expenses for which the section 527(f) tax was paid).
a
Current year .............................................................................................................................
2a
 
b
Carryover from last year ............................................................................................................
2b
 
c
Total ...........................................................................................................................................
2c
 
3
Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .
3
 
4
If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ......................................................................................................................
4
 
5
Taxable amount of lobbying and political expenditures (see instructions) .........................................
5
 
Part IV
Supplemental Information
Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.
Return Reference Explanation
PART II-B, LINE 1: LEGISLATIVE CONSULTING FOR LOBBYING FOR SUPPORT OF EPILEPSY
Schedule C (Form 990 or 990EZ) 2019


Additional Data


Software ID:  
Software Version:  

SCHEDULE D
(Form 990)
Department of the Treasury
Internal Revenue Service
Supplemental Financial Statements
SchDMd Bullet Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
SchDMd Bullet Attach to Form 990.
SchDMd Bullet Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public Inspection
Name of the organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
 
Employer identification number

36-2317619
Part I
Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.
(a) Donor advised funds (b) Funds and other accounts
1 Total number at end of year .........    
2 Aggregate value of contributions to (during year)    
3 Aggregate value of grants from (during year)    
4 Aggregate value at end of year ........    
5
Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............
6
Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................
Part II
Conservation Easements.
Complete if the organization answered "Yes" on Form 990, Part IV, line 7.
1
Purpose(s) of conservation easements held by the organization (check all that apply).
2
Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.
Held at the End of the Year
a Total number of conservation easements ...................... 2a  
b Total acreage restricted by conservation easements .................... 2b  
c Number of conservation easements on a certified historic structure included in (a) ..... 2c  
d Number of conservation easements included in (c) acquired after 7/25/06, and not on a historic structure listed in the National Register ... 2d  
3
Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year SchDMd Bullet  
4
Number of states where property subject to conservation easement is located SchDMd Bullet  
5
Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............
6
Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet  
7
Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet $  
8
Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................
9
In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.
1a
If the organization elected, as permitted under FASB ASC 958, not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.
b
If the organization elected, as permitted under FASB ASC 958, to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:
(i)
Revenue included on Form 990, Part VIII, line 1 .........................SchDMd Bullet $  
(ii)
Assets included in Form 990, Part X ...............................SchDMd Bullet $  
2
If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under FASB ASC 958 relating to these items:
a
Revenue included on Form 990, Part VIII, line 1 ..........................SchDMd Bullet $  
b
Assets included in Form 990, Part X ...............................SchDMd Bullet $  
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 52283D
Schedule D (Form 990) 2019

Schedule D (Form 990) 2019
Page 2
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)
3
Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):
a
d
b
e
 
c
4
Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.
5
During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...
Part IV
Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.
1a
Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................
b If "Yes," explain the arrangement in Part XIII and complete the following table: Amount
c Beginning balance ............................. 1c  
d Additions during the year ............................ 1d  
e Distributions during the year .......................... 1e  
f Ending balance ................................ 1f  
2a
Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...
b
If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....
Part V
Endowment Funds.
Complete if the organization answered "Yes" on Form 990, Part IV, line 10.
(a) Current year (b) Prior year (c) Two years back (d) Three years back (e) Four years back
1a Beginning of year balance ....          
b Contributions ...          
c Net investment earnings, gains, and losses          
d Grants or scholarships ...          
e Other expenditures for facilities
and programs ... 		         
f Administrative expenses ....          
g End of year balance ......          
2
Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:
a
Board designated or quasi-endowment SchDMd Bullet  
b
Permanent endowment SchDMd Bullet  
c
Term endowment SchDMd Bullet  
The percentages on lines 2a, 2b, and 2c should equal 100%.
3a
Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes
No
(i) Unrelated organizations .................
3a(i)
 
 
(ii) Related organizations .................
3a(ii)
 
 
b
If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........
3b
 
 
4
Describe in Part XIII the intended uses of the organization's endowment funds.
Part VI
Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.
Description of property (a) Cost or other basis
(investment) 		(b) Cost or other basis (other) (c) Accumulated depreciation (d) Book value
1a Land .....      
b Buildings ....        
c Leasehold improvements   16,567 14,582 1,985
d Equipment ....   62,730 60,198 2,532
e Other .....   19,056 16,246 2,810
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).)..SchDMdBullet 7,327
Schedule D (Form 990) 2019

Schedule D (Form 990) 2019
Page 3
Part VII
Investments—Other Securities.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.
(a) Description of security or category
(including name of security)		 (b) Book value (c) Method of valuation:
Cost or end-of-year market value
(1) Financial derivatives.........    
(2) Closely-held equity interests........    
(3)Other
(B)
(C)
(D)
(E)
(F)
(G)
(H)
(I)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)Small Bullet  
Part VIII
Investments—Program Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.
(a) Description of investment (b) Book value (c) Method of valuation:
Cost or end-of-year market value
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)Small Bullet  
Part IX
Other Assets.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.
(a) Description (b) Book value
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........Small Bullet  
Part X
Other Liabilities.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.
1.(a) Description of liability (b) Book value
(1) Federal income taxes  
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)Small Bullet 86,371
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII
Schedule D (Form 990) 2019

Schedule D (Form 990) 2019
Page 4
Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1 Total revenue, gains, and other support per audited financial statements ....... 1 2,865,735
2 Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a Net unrealized gains (losses) on investments .... 2a  
b Donated services and use of facilities ......... 2b  
c Recoveries of prior year grants ........... 2c  
d Other (Describe in Part XIII.) ............ 2d  
e Add lines 2a through 2d ..................... 2e 0
3 Subtract line 2e from line 1.................. 3 2,865,735
4 Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b . 4a  
b Other (Describe in Part XIII.) ........... 4b  
c Add lines 4a and 4b.................... 4c 0
5 Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ...... 5 2,865,735
Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1 Total expenses and losses per audited financial statements ........... 1 2,064,801
2 Amounts included on line 1 but not on Form 990, Part IX, line 25:
a Donated services and use of facilities ......... 2a  
b Prior year adjustments ............ 2b  
c Other losses ................ 2c  
d Other (Describe in Part XIII.) ............ 2d  
e Add lines 2a through 2d.................... 2e 0
3 Subtract line 2e from line 1................... 3 2,064,801
4 Amounts included on Form 990, Part IX, line 25, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b .. 4a  
b Other (Describe in Part XIII.) ............ 4b  
c Add lines 4a and 4b..................... 4c 0
5 Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ...... 5 2,064,801
Part XIII
Supplemental Information
Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.
Return Reference Explanation
PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAXES ON ITS CHARITABLE PURPOSE RELATED INCOME UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THERE IS NO UNRELATED BUSINESS INCOME FOR THE ORGANIZATION AND, ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN RECORDED. THE ORGANIZATION HAS ADOPTED ACCOUNTING PRINCIPLES RELATED TO UNCERTAIN TAX POSITIONS AND HAS EVALUATED ITS TAX POSITION TAKEN FOR ALL OPEN TAX YEARS. CURRENTLY, THE 2016, 2017 AND 2018 TAX YEARS ARE OPEN AND SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE AND THE ILLINOIS DEPARTMENT OF REVENUE; HOWEVER, THE ORGANIZATION IS NOT CURRENTLY UNDER AUDIT NOR HAS THE ORGANIZATION BEEN CONTACTED BY ANY OF THESE JURISDICTIONS. BASED ON THE EVALUATION OF THE ORGANIZATION'S TAX POSITION, MANAGEMENT BELIEVES ALL POSITIONS TAKEN WOULD BE UPHELD UNDER AN EXAMINATION; THEREFORE, NO PROVISION FOR THE EFFECTS OF UNCERTAIN TAX POSITION HAS BEEN RECORDED FOR THE YEARS ENDED JUNE 30, 2020 AND 2019.
Schedule D (Form 990) 2019


Additional Data


Software ID:  
Software Version:  




SCHEDULE G (Form 990 or 990-EZ)
Department of the Treasury
Internal Revenue Service
Supplemental Information Regarding
Fundraising or Gaming Activities
Complete if the organization answered "Yes" on Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrowAttach to Form 990 or Form 990-EZ.
right arrowGo to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public Inspection
Name of the organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
 
Employer identification number

36-2317619
Part I
Fundraising Activities.Complete if the organization answered "Yes" on Form 990, Part IV, line 17.
Form 990-EZ filers are not required to complete this part.
1
Indicate whether the organization raised funds through any of the following activities. Check all that apply.
a e
b f
c g
d
2a
Did the organization have a written or oral agreement with any individual (including officers, directors, trustees
or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?
b
If "Yes," list the 10 highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.


(i) Name and address of individual
or entity (fundraiser) 		(ii) Activity (iii) Did fundraiser have custody or control of contributions? (iv) Gross receipts
from activity 		(v) Amount paid to
(or retained by)
fundraiser listed in
col. (i) 		(vi) Amount paid to
(or retained by)
organization
Yes No
             
             
             
             
             
             
             
             
             
             
Total . . . . . . . . . . . . . . . . . . . . right arrow      
3
List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 50083H
Schedule G (Form 990 or 990-EZ) 2019
Schedule G (Form 990 or 990-EZ) 2019
Page 2
Part II
Fundraising Events. Complete if the organization answered "Yes" on Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.









VerticalRevenue
(a) Event #1

WALK 2020
(event type) 		(b) Event #2

HEROES GALA
(event type) 		(c) Other events

1
(total number) 		(d) Total events
(add col. (a) through col. (c))

1
Gross receipts . . . . .
210,302
147,603
54,020
411,925

2
Less: Contributions . . . .
181,922
52,303
25,985
260,210
3 Gross income (line 1 minus
line 2) . . . . . .
28,380
95,300
28,035
151,715



VerticalDirectExpenses
4 Cash prizes . . . . .        
5 Noncash prizes . . . .   23,428 15,676 39,104
6 Rent/facility costs . . . . 2,527 6,506 10,028 19,061
7 Food and beverages . . . 2,020 26,041 10,029 38,090
8 Entertainment . . . .        
9 Other direct expenses . . . 54,615 58,941 10,007 123,563
10 Direct expense summary. Add lines 4 through 9 in column (d) . . . . . . . . . . right arrow 219,818
11 Net income summary. Subtract line 10 from line 3, column (d). . . . . . . . . . right arrow -68,103
Part III
Gaming. Complete if the organization answered "Yes" on Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.
VerticalRevenue
(a) Bingo (b) Pull tabs/Instant
bingo/progressive bingo 		(c) Other gaming (d) Total gaming (add col.(a) through col.(c))

1
Gross revenue . . . . .
 
 
 
 
VerticalDirectExpenses

2
Cash prizes . . . . .
 
 
 
 

3
Noncash prizes . . . .
 
 
 
 

4
Rent/facility costs . . . .
 
 
 
 

5
Other direct expenses . . .
 
 
 
 


6

Volunteer labor . . . .
%
%
%


7
Direct expense summary. Add lines 2 through 5 in column (d) . . . . . . . . . . right arrow
 

8
Net gaming income summary. Subtract line 7 from line 1, column (d). . . . . . . . . right arrow
 

9
Enter the state(s) in which the organization conducts gaming activities:
a
Is the organization licensed to conduct gaming activities in each of these states? . . . . . . . .
b
If "No," explain:
 
10a
Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? . . .
b
If "Yes," explain:
 
Schedule G (Form 990 or 990-EZ) 2019
Schedule G (Form 990 or 990-EZ) 2019
Page 3
11
Does the organization conduct gaming activities with nonmembers? . . . . . . . . . . .
12
Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity
formed to administer charitable gaming? . . . . . . . . . . . . . . . . .
13
Indicate the percentage of gaming activity conducted in:
a
The organization's facility . . . . . . . . . . . . . . . . . .
13a
%
b
An outside facility . . . . . . . . . . . . . . . . . . . .
13b
%
14
Enter the name and address of the person who prepares the organization's gaming/special events books and records:
Name right arrow
Address right arrow
15a
Does the organization have a contract with a third party from whom the organization receives gaming
revenue? . . . . . . . . . . . . . . . . . . . . . . . .
b
If "Yes," enter the amount of gaming revenue received by the organization right arrow $   and the
amount of gaming revenue retained by the third party right arrow $   .
c
If "Yes," enter name and address of the third party:
Name right arrow
Address right arrow
16
Gaming manager information:
Name right arrow
Gaming manager compensation right arrow $  
Description of services provided right arrow
 
17
Mandatory distributions:
a
Is the organization required under state law to make charitable distributions from the gaming proceeds to
retain the state gaming license? . . . . . . . . . . . . . . . . . . .
b
Enter the amount of distributions required under state law distributed to other exempt organizations or spent
in the organization's own exempt activities during the tax year right arrow$  
Part IV
Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v); and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information. See instructions.
Return Reference Explanation
Schedule G (Form 990 or 990-EZ) 2019
Additional Data


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Schedule I
(Form 990)
Department of the Treasury
Internal Revenue Service
Grants and Other Assistance to Organizations,
Governments and Individuals in the United States
Complete if the organization answered "Yes," on Form 990, Part IV, line 21 or 22.
lBullet Attach to Form 990.
lBullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2019
Open to Public
Inspection
Name of the organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
 
Employer identification number
36-2317619
Part I
General Information on Grants and Assistance
1
Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ........................
2
Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.
Part II
Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" on Form 990, Part IV, line 21, for any recipient
that received more than $5,000. Part II can be duplicated if additional space is needed.
(a) Name and address of organization
or government		 (b) EIN (c) IRC section
(if applicable)		 (d) Amount of cash grant (e) Amount of non-cash
assistance		 (f) Method of valuation
(book, FMV, appraisal,
other)		 (g) Description of
noncash assistance		 (h) Purpose of grant
or assistance
(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
(11)
(12)
2
Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................. Bullet Image
 
3
Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image
 
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50055P
Schedule I (Form 990) 2019

Schedule I (Form 990) 2019
Page 2
Part III
Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" on Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Number of
recipients		 (c) Amount of
cash grant		 (d) Amount of
noncash assistance		 (e) Method of valuation (book,
FMV, appraisal, other)		 (f) Description of noncash assistance
(1) SCHOLARSHIPS 4 20,000      
(1)
(2)
(3)
(4)
(5)
(6)
(7)
Part IV
Supplemental Information. Provide the information required in Part I, line 2; Part III, column (b); and any other additional information.
Return Reference Explanation
PART I, LINE 2: EFGC SOLICITS APPLICANTS FOR OUR ANNUAL SCHOLARSHIP. THE JIM DAVIES SCHOLARSHIP WILL PROVIDE FINANCIAL SUPPORT FOR THE PURSUIT OF HIGHER EDUCATION TO STUDENTS LIVING WITH EPILEPSY. THESE STUDENTS MUST DEMONSTRATE A STRONG COMMITMENT TO THEIR EDUCATION AND PERSEVERANCE IN OVERCOMING THE OBSTACLES EPILEPSY MAY PRESENT. SCHOLARSHIP APPLICATIONS ARE SUBMITTED THE SPRING OF EACH YEAR; A REVIEW COMMITTEE, CONSISTING OF PAB (PROFESSIONAL ADVISORY BOARD) MEMBERS AND COMMUNITY EPILEPSY PARTNER ORGANIZATIONS, REVIEW EACH CANDIDATE'S APPLICATION BASED ON MERIT, FINANCIAL NEED, ACADEMIC AND VOLUNTEER PURSUITS, AS WELL AS HOW EACH HAS BEEN IMPACTED BY EPILEPSY. WINNERS WERE NOTIFIED AND PRESENTED WITH THEIR AWARDS BY EPILEPSY FOUNDATION PRESIDENT/CEO AT THE HEROES GALA IN FEBRUARY 2020.
Schedule I (Form 990) 2019



Additional Data


Software ID:  
Software Version:  


Schedule J
(Form 990)
Department of the Treasury
Internal Revenue Service
Compensation Information
For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
SchJMediumBullet Complete if the organization answered "Yes" on Form 990, Part IV, line 23.
SchJMediumBullet Attach to Form 990.
SchJMediumBullet Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2019
Open to Public Inspection
Name of the organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
 
Employer identification number

36-2317619
Part I
Questions Regarding Compensation
Yes
No
1a
Check the appropiate box(es) if the organization provided any of the following to or for a person listed on Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.
b
If any of the boxes on Line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain .........
1b
 
 
2
Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked on Line 1a? ..
2
 
 
3
Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.
4
During the year, did any person listed on Form 990, Part VII, Section A, line 1a, with respect to the filing organization or a related organization:
a
Receive a severance payment or change-of-control payment? .............
4a
 
No
b
Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........
4b
 
No
c
Participate in, or receive payment from, an equity-based compensation arrangement? .........
4c
 
No
If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.
Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.
5
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:
a
The organization? ....................
5a
 
No
b
Any related organization? .......................
5b
 
No
If "Yes," on line 5a or 5b, describe in Part III.
6
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:
a
The organization? ..................
6a
 
No
b
Any related organization? ......................
6b
 
No
If "Yes," on line 6a or 6b, describe in Part III.
7
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization provide any nonfixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............
7
 
No
8
Were any amounts reported on Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III ..........................
8
 
No
9
If "Yes" on line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................
9
 
 
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50053T
Schedule J (Form 990) 2019

Schedule J (Form 990) 2019
Page 2
Part II
Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.
For each individual whose compensation must be reported on Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.
(A) Name and Title (B) Breakdown of W-2 and/or 1099-MISC compensation (C) Retirement and other deferred compensation (D) Nontaxable
benefits		 (E) Total of columns
(B)(i)-(D) 		(F) Compensation in column (B) reported as deferred on prior Form 990
(i) Base
compensation 		(ii) Bonus & incentive
compensation 		(iii) Other reportable compensation
1BRYAN ANDERSON
PRESIDENT AND CEO 		(i)

(ii)		 159,572
-------------
0 		0
-------------
0 		0
-------------
0 		9,733
-------------
0 		12,847
-------------
0 		182,152
-------------
0 		0
-------------
0
Schedule J (Form 990) 2019

Schedule J (Form 990) 2019
Page 3
Part III
Supplemental Information
Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II. Also complete this part for any additional information.
Return Reference Explanation
Schedule J (Form 990) 2019

Additional Data


Software ID:  
Software Version:  
SCHEDULE M
(Form 990)

Department of the Treasury
Internal Revenue Service
Noncash Contributions
Right pointing arrow large imageComplete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image Attach to Form 990.
Right pointing arrow large imageGo to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2019
Open to Public Inspection
Name of the organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
 
Employer identification number

36-2317619
Part I
Types of Property
(a)
Check if applicable 		(b)
Number of contributions or items contributed 		(c)
Noncash contribution amounts reported on
Form 990, Part VIII, line 1g 		(d)
Method of determining
noncash contribution amounts
1 Art—Works of art ....        
2 Art—Historical treasures .        
3 Art—Fractional interests ..        
4 Books and publications ..      
5 Clothing and household
goods ....... 		     
6 Cars and other vehicles ..        
7 Boats and planes ....        
8 Intellectual property ...        
9 Securities—Publicly traded .        
10 Securities—Closely held stock .        
11 Securities—Partnership, LLC,
or trust interests .... 		       
12 Securities—Miscellaneous ..        
13 Qualified conservation
contribution—Historic
structures ..... 		       
14 Qualified conservation
contribution—Other ... 		       
15 Real estate—Residential .        
16 Real estate—Commercial ..        
17 Real estate—Other ...        
18 Collectibles .....        
19 Food inventory ...        
20 Drugs and medical supplies .        
21 Taxidermy ......        
22 Historical artifacts ....        
23 Scientific specimens ..        
24 Archeological artifacts ...        
25 Other Right pointing arrow large image ( AUCTION ITEMS ) X 155 33,814 FAIR MARKET VALUE
26 Other Right pointing arrow large image ( )
27 Other Right pointing arrow large image ( )
28 Other Right pointing arrow large image ( )
29
Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement
29
 
Yes
No
30a
During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that it must hold for at least three years from the date of the initial contribution, and which isn't required to be used for exempt purposes for the entire holding period? ...................
30a
 
No
b
If "Yes," describe the arrangement in Part II.
31
Does the organization have a gift acceptance policy that requires the review of any nonstandard contributions?
31
 
No
32a
Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash
contributions? ..........................
32a
 
No
b
If "Yes," describe in Part II.
33
If the organization didn't report an amount in column (c) for a type of property for which column (a) is checked,
describe in Part II.
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 51227J
Schedule M (Form 990) (2019)
Schedule M (Form 990) (2019)
Page 2
Part IISupplemental Information. Provide the information required by Part I, lines 30b, 32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.
Return Reference Explanation
Schedule M (Form 990) (2019)

Additional Data


Software ID:  
Software Version:  
SCHEDULE O
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet Attach to Form 990 or 990-EZ.
MediumBullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2019
Open to Public
Inspection
Name of the organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
 
Employer identification number

36-2317619
Return Reference Explanation
FORM 990, PART III, LINE 1: THE EPILEPSY FOUNDATION OF GREATER CHICAGO IS AN ILLINOIS NOT-FOR-PROFIT ORGANIZATION SERVING 44 COUNTIES, OFFERING COUNSELING, ADVOCACY AND EDUCATIONAL SERVICES TO PEOPLE WITH EPILEPSY, THEIR FAMILIES, AND THE COMMUNITIES IN WHICH THEY LIVE. THE EPILEPSY FOUNDATION OF GREATER CHICAGO IS A 501(C)(3) TAX-EXEMPT CHARITABLE ORGANIZATION. THE MISSION OF THE EPILEPSY FOUNDATION OF GREATER CHICAGO IS TO LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES. THE EPILEPSY FOUNDATION PROVIDES WONDERFUL PROGRAMS AND SERVICES TO SO MANY PEOPLE SUFFERING FROM SEIZURES, THEIR FAMILIES AND THE COMMUNITIES IN WHICH THEY LIVE. IN FISCAL YEAR 2020 PEOPLE WITH EPILEPSY AND THEIR FAMILIES PARTICIPATED IN THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S PROGRAMS AND SERVICES ON MORE THAN 20,000 OCCASIONS, INCLUDING: 4,321 INSTANCES OF COUNSELING, CASE MANAGEMENT, ADVOCACY, INFORMATION AND REFERRAL SERVICES PROVIDED TO OUR CLIENTS, OVER 80% OF WHICH LIVE BELOW THE FEDERAL POVERTY LINE 142 PARTICIPANTS IN OUR CAMP BLACKHAWK SUMMER CAMP FOR KIDS, FAMILY RETREAT, AND WOMEN'S RETREAT 209 ATTENDEES OF OUR 10TH ANNUAL CONSUMER CONFERENCE FEATURING PANELS OF DOCTORS ANSWERING QUESTIONS ON NEW TREATMENT OPTIONS, EPILEPSY BASICS, COPING WITH EPILEPSY AND JOB READINESS 668 ATTENDEES AT 102 TOTAL SUPPORT GROUP EVENTS 13 PARTICIPANTS IN OUR STUDIO E ART PROGRAM 148 ATTENDEES OF OUR TEEN GROUP OUTINGS AND PROGRAMS 15 PARTICIPANTS IN OUR HEROES SPORTS CAMP 656 PATIENT VISITS AT OUR EPILEPSY CLINIC LOCATED AT ST. ALEXIUS HOSPITAL AND THE RUSH UNIVERSITY MEDICAL CENTER IN OAK BROOK 6,940 RECIPIENTS OF OUR EPILEPSY EDUCATION PROGRAMS, INCLUDING SCHOOL NURSES, TEACHERS, STUDENTS, POLICEMEN, FIREMEN AND EMTS. BEGINNING ON MARCH 12TH OF 2020, THE EPILEPSY FOUNDATION OF GREATER CHICAGO BEGAN REQUIRING ALL STAFF TO WORK FROM HOME AS WELL AS MOVED ALL MEETINGS, SUPPORT GROUPS, AND CLIENT GATHERINGS TO ONLINE FORMATS. WHILE THIS CREATED NUMEROUS LOGISTICAL CHALLENGES RESULTING IN THE POSTPONEMENT OF MANY IN-PERSON PROGRAMS, IT ALSO PROVIDED EFGC STAFF WITH A UNIQUE OPPORTUNITY TO REACH CLIENTS AT THEIR HOMES. THROUGH VIDEO CONFERENCING AND PHONE CALLS, EFGC HAS BEEN ABLE TO MAINTAIN MANY OF THE SAME SERVICE LEVELS, OFTEN INCREASING ATTENDANCE AT SUPPORT GROUPS. IN ADDITION, THE FEEDBACK FROM CLIENTS HAS BEEN OVERWHELMINGLY POSITIVE AS THESE VIRTUAL GROUPS AND MEETINGS ARE OFTEN MORE CONVENIENT FOR THOSE LIVING WITH EPILEPSY. CLIENTS HAVE REPORTED LOWER STRESS AND MANY TIMES, FEWER SEIZURES AS A RESULT. THE OPPORTUNITY TO HOST MEETINGS VIRTUALLY HAS ALSO HELPED PREPARE MANY CLIENTS FOR THE TELEMEDICINE MEETINGS WITH THEIR DOCTORS, WHICH HAVE BECOME MORE COMMON DURING THE COVID-19 PANDEMIC. THE EPILEPSY FOUNDATION OF GREATER CHICAGO ALSO PROVIDES EPILEPSY INFORMATION AND OTHER MEDIA OUTREACH, DISTRIBUTING NEARLY 220,000 EMAILS AND MORE THAN SEVEN MILLION TARGETED MEDIA IMPRESSIONS IN FY 2020, GENERATING EPILEPSY AWARENESS AND UNDERSTANDING AMONG THE GENERAL POPULATION OF ILLINOIS. A PSA FEATURING NORTHWESTERN'S FOOTBALL COACH PAT FITZGERALD AND HIS NIECE, AN EFGC CLIENT, AIRED ON WGN THROUGHOUT THE MONTH OF NOVEMBER, EPILEPSY AWARENESS MONTH. THE 1 IN 26 CAMPAIGN, WHICH THE EPILEPSY FOUNDATION OF GREATER CHICAGO CREATED IN PARTNERSHIP WITH TWO OTHER NON-PROFITS FOCUSED ON SERVING THE EPILEPSY COMMUNITY, THE DANNY DID FOUNDATION AND CURE: CITIZENS UNITED IN RESEARCH ON EPILEPSY, PLACED ADS ON THE CTA AND ON BILLBOARDS IN CHICAGO AND RAN IN MARCH OF 2020 TO HELP RAISE AWARENESS OF HOW COMMON EPILEPSY IS IN THE GENERAL COMMUNITY. THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S PROGRAMS AND SERVICES ARE ALL PROVIDED WITHOUT CHARGE. THESE PROGRAMS AND SERVICES ALL REQUIRE FUNDING AND ARE DEPENDENT UPON THE GENEROUS DONATIONS OF TIME AND FINANCIAL RESOURCES FROM OUR VOLUNTEERS, DONORS AND OTHER SOURCES.
FORM 990, PART III, LINE 4A: CLIENT/PATIENT SERVICES: THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S COUNSELING AND CASE MANAGEMENT PROGRAM PROVIDES PEOPLE LIVING WITH EPILEPSY ACCESS TO SUPPORTIVE COUNSELING AND ASSISTANCE THAT WILL ENHANCE THEIR ABILITY TO COPE WITH ISSUES RELATED TO THEIR MEDICAL CONDITION AND IMPROVE THEIR QUALITY OF LIFE. THE INDIVIDUAL CLINICAL SERVICES OFFERED ARE STRUCTURED TO ADDRESS SPECIFIC ISSUES FACED BY PEOPLE LIVING WITH EPILEPSY AND TO FACILITATE APPROPRIATE LINKAGE TO NECESSARY SERVICES AND BENEFITS. BY PARTICIPATING IN THIS CASE MANAGEMENT PROGRAM, CLIENTS CAN DEVELOP THE KNOWLEDGE AND SKILLS NECESSARY TO HANDLE COMMON CHALLENGES SUCH AS ISOLATION, MEDICATION COMPLIANCE, NAVIGATING PUBLIC BENEFITS, DIFFICULTIES WITH THE SCHOOL SYSTEM, AND EMPLOYEE DISCRIMINATION. THROUGH SUPPORTIVE COUNSELING, CASE MANAGERS ARE ABLE TO REACH OUT AND ASSURE ANYONE STRUGGLING WITH EPILEPSY IN THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S 44 COUNTY SERVICE AREA THAT THEY ARE NOT ALONE. IN FY2020, THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S CASE MANAGEMENT TEAM SERVED 920 INDIVIDUAL CLIENTS, PROVIDING ASSISTANCE ON 4,321 OCCASIONS AT THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S DOWNTOWN OFFICE, OVER THE PHONE AND THROUGH ONLINE COMMUNICATION, AS WELL AS LOCATIONS THAT WERE MORE ACCESSIBLE, SUCH AS THEIR HOMES. MOST CLIENTS NEEDED ASSISTANCE WITH OBTAINING ACCURATE INFORMATION ON EPILEPSY, EVALUATION AND ASSESSMENT, REFERRAL AND ENTITLEMENT ASSISTANCE, AND EMPLOYMENT ASSISTANCE. THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S CASE MANAGERS ALSO ADVOCATED ON BEHALF OF CLIENTS ON HUNDREDS OF OCCASIONS, DEALING WITH EMPLOYMENT, DISCRIMINATION, BENEFITS AND MEDICAL MATTERS. EACH INDIVIDUAL OR FAMILY SEEKING CASE MANAGEMENT SERVICES FROM THE EPILEPSY FOUNDATION OF GREATER CHICAGO MEETS WITH A QUALIFIED AND TRAINED CASE MANAGER WHO COMPLETES A SOCIAL HISTORY, MEDICAL HISTORY, INDIVIDUAL CARE PLAN AND SERVICE PLAN WITH THE CLIENT. THE CLIENT RECEIVES COPIES OF GOALS AND COPIES ARE KEPT IN THE CLIENT FILE MAINTAINED AT THE EPILEPSY FOUNDATION OF GREATER CHICAGO. EACH CLIENT ALSO RECEIVES A CLIENT HANDBOOK AND INFORMATION ABOUT THE ADA/AA. CLIENT FILES ARE KEPT AS PAPER FILE COPY, AS WELL AS ELECTRONIC COPY IN A SECURE, CLOUD-BASED DATABASE CALLED SALESFORCE. EPILEPSY CREATES UNIQUE DIFFICULTIES IN PROVIDING COMPREHENSIVE CASE MANAGEMENT. WHILE EPILEPSY CAN CREATE DIFFICULTIES IN MEMORY RECALL AND ORGANIZATION, THE AVERAGE TIME TO LOCATE SPECIALIZED CARE CAN RANGE FROM TWO TO TEN YEARS. THE SOCIAL/MEDICAL HISTORY PROVIDES THE CLIENT A VISUAL TIMELINE TO BUILD A TREATMENT PLAN THAT HELPS TO ORGANIZE HIS/HER HISTORY, PROVIDES DOCUMENTATION TO THE SPECIALTY CARE PROVIDER AND ASSISTS THE CLIENT WITH GOALS THAT ARE SPECIFIC, MEASURABLE, ATTAINABLE, REALISTIC AND TIME-BASED. AT THE FIRST VISIT AND THEN ANNUALLY, A SERVICE PLAN, INDIVIDUAL CARE PLAN, LIST OF CURRENT MEDICATIONS, CURRENT CLIENT DEMOGRAPHIC INFORMATION AND EMERGENCY CONTACT INFORMATION AS WELL AS AN EMERGENCY SEIZURE ACTION PLAN ARE CREATED OR REVIEWED. THE CLIENT IS ALSO OFFERED A FREE EMERGENCY ID NECKLACE/BRACELET TO ALERT FIRST RESPONDERS OF THEIR DIAGNOSIS AND THEIR DESIRED OUTCOME OF EMERGENCY TREATMENT. THE CLIENT SERVICES TEAM MEETS WEEKLY TO REVIEW SERVICE PLANS, STAFF NEW/OPEN CLIENTS, REVIEW SERVICE PLAN UPDATES, PROBLEM SOLVE, OFFER SOLUTIONS AND FIND APPROPRIATE SUPPORTS TO ASSIST CLIENTS IN MEETING SERVICE PLANNING GOALS. TEAM MEMBERS SIGN OFF AS SUPPORT ON CLIENT SERVICE PLANS. DURING EVERY INDIVIDUAL CLIENT MEETING, GOALS AND OBJECTIVES ARE REVIEWED WITH THE CLIENT. CASE MANAGERS ASSIST WITH SERVICE REQUESTS AND OFFER SUPPORT ACCORDINGLY. DURING ANNUAL REVIEWS, SERVICE PLANS AND ALL CLIENT CONTACT INFORMATION ARE UPDATED TO REFLECT NEW DESIRED GOALS OR TO DETERMINE IF SERVICES ARE NO LONGER NEEDED BASED ON GOAL ATTAINMENT. MANAGING THE FINANCIAL NEEDS OF PEOPLE WITH EPILEPSY AND THEIR FAMILIES IS AN IMPORTANT PART OF THE CASE MANAGEMENT AND COUNSELING SERVICES PROVIDED BY THE EPILEPSY FOUNDATION OF GREATER CHICAGO. DURING EACH INDIVIDUAL MEETING SESSION, EFGC CASE MANAGERS TAKE THE TIME TO ASSESS THE INDIVIDUAL NEEDS OF THE CLIENT. WHEN DETERMINED APPROPRIATE, ASSISTANCE IS PROVIDED WITH AREAS SUCH AS: FINDING EMPLOYMENT, GAINING BASIC FINANCIAL LITERACY, NAVIGATING DISABILITY LEGAL HURDLES, AND OBTAINING PUBLIC AID BENEFITS SUCH AS SOCIAL SECURITY, SNAP (FOOD STAMPS) AND TANF (TEMPORARY FINANCIAL ASSISTANCE FOR WOMEN AND CHILDREN). BY PROVIDING EACH CLIENT WITH PERSONALIZED GUIDANCE, WHILE WORKING WITH ORGANIZATIONS SUCH AS THE CENTER FOR ECONOMIC PROGRESS AND NASH DISABILITY LAW, EFGC CASE MANAGERS AND THE CLIENT SERVICES TEAM ARE ABLE TO ADDRESS THE INDIVIDUAL NEEDS OF EACH AND EVERY CLIENT. ASSISTING CLIENTS WITH CONDITION SPECIFIC CHALLENGES IS OF GREAT IMPORTANCE FOR EFGC AND PROGRAMS ARE HOSTED TO HELP WITH THESE UNIQUE CHALLENGES. ONE OF THESE PROGRAMS IS HOBSCOTCH WHICH IS AN 8-WEEK PROGRAM THAT WORKS TO IMPROVE THE MEMORY OF THOSE LIVING WITH EPILEPSY. OVER HALF OF PEOPLE WITH SEIZURES EXPERIENCE MEMORY PROBLEMS AND FEEL THAT SEIZURES INTERFERE WITH MEMORY. THE HOBSCOTCH PROGRAM IS DESIGNED TO HELP FIND WAYS TO MANAGE AND COPE WITH MEMORY PROBLEMS IN ORDER TO LEAD A HAPPIER, MORE PRODUCTIVE LIFE. THE PROGRAM USES PROBLEM SOLVING TREATMENT AND MEMORY STRATEGIES WHICH WILL HELP IDENTIFY MEMORY-RELATED PROBLEMS IN DAILY LIFE AND FIND SOLUTIONS TO MANAGE THESE PROBLEMS. IN FY2020, THE EPILEPSY FOUNDATION OF GREATER CHICAGO EXPANDED EXISTING SERVICES THROUGH THE NEWLY FORMED CLINICAL DEPARTMENT. THIS DEPARTMENT ACTS AS AN EXTENSION OF CASE MANAGEMENT, FOCUSING PRIMARILY ON THE MENTAL HEALTH OF THOSE LIVING WITH EPILEPSY. THROUGH THE NEWLY FORMED PSYCHOTHERAPY GROUP AND 1 ON 1 COUNSELING, CLIENTS ARE GETTING ADDITIONAL ATTENTION FOR THEIR MENTAL HEALTH ASSISTANCE REQUESTS. THIS PROGRAM IS MANAGED BY ONE FULL TIME CLINICAL DIRECTOR AND HAS TWO PART TIME INTERNS. THIS COLLABORATION WITH THE ADLER SCHOOL OF PROFESSIONAL PSYCHOLOGY AND THE LOYOLA UNIVERSITY SCHOOL OF SOCIAL WORK WILL BE IMPORTANT TO THE FUTURE OF EFGC AND THE WELLNESS OF OUR CLIENTS' MENTAL HEALTH. IN FY20, THIS PROGRAM SERVED 16 INDIVIDUALS OVER THE COURSE OF 2, 6-WEEK SESSIONS. THE EPILEPSY FOUNDATION OF GREATER CHICAGO ALSO MAINTAINS A CLIENT EMERGENCY FUND, WHICH CAN BE USED TO TEMPORARILY PROVIDE NEEDED MEDICATION, HOUSING, CLOTHING AND UTILITIES WHILE A PERMANENT SOLUTION IS WORKED OUT. EACH YEAR, FINANCIAL ASSISTANCE IS ALSO PROVIDED FOR STUDENTS LIVING WITH EPILEPSY. IN FY20 THERE WERE 4 RECIPIENTS OF THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S JAMES DAVIES SCHOLARSHIP. THE JAMES DAVIES SCHOLARSHIP IS AWARDED ANNUALLY IN THE AMOUNT OF $5,000 TO INDIVIDUALS WITH EPILEPSY WHO ARE ENROLLED IN A COLLEGE OR VOCATIONAL/TECHNICAL SCHOOL AND WILL BE A FULL-TIME STUDENT FOR THE UPCOMING ACADEMIC SCHOOL YEAR. THIS SCHOLARSHIP, WHICH WAS CREATED IN HONOR OF JAMES DAVIES, A LONG-TIME ADVOCATE FOR PEOPLE WITH EPILEPSY WHO WORKED FOR THE EPILEPSY FOUNDATION OF GREATER CHICAGO FOR OVER 30 YEARS. EACH OF THE SERVICES PROVIDED BY THE CLIENT SERVICES TEAM IS OFFERED IN AN EFFORT TO HELP PEOPLE LIVE BETTER WHILE DEALING WITH THE EFFECTS OF EPILEPSY. BY TAKING ADVANTAGE OF PROGRAMS, COUNSELING SERVICES, AND ASSISTANCE, CLIENTS OF EFGC ARE ABLE TO REGAIN CONTROL OF THEIR LIVES AND BETTER MANAGE THEIR DAY TO DAY.
FORM 990, PART III, LINE 4B: COMMUNITY SERVICES: BRINGING PEOPLE TOGETHER TO CREATE FRIENDSHIPS, SHARE STORIES, AND LEARN FROM ONE ANOTHER IS AN IMPORTANT GOAL OF THE EPILEPSY FOUNDATION OF GREATER CHICAGO. SOCIAL EVENTS SUCH AS THE BLACKHAWK FAMILY RETREAT ARE IDEAL WAYS OF MAKING THIS HAPPEN. THE EPILEPSY FOUNDATION OF GREATER CHICAGO ALSO HOSTS ITS ANNUAL PICNIC IN THE PARK, AN AFTERNOON OF FUN, FOOD AND GAMES IN AUGUST OF EACH YEAR. IN AUGUST 2019, NEARLY 100 PEOPLE ATTENDED THIS EVENT IN CATHERINE CHEVALIER WOODS IN CHICAGO. ANOTHER POPULAR EVENT, THE 10TH ANNUAL FAMILY HOLIDAY PARTY, WAS HELD AT HAMLIN PARK AND INCLUDED FOOD, CRAFTS, A VISIT FROM SANTA, MUSIC AND HOLIDAY FUN FOR ALL AGES. MORE THAN 230 PEOPLE ATTENDED THIS EVENT. THE EPILEPSY FOUNDATION OF GREATER CHICAGO UNDERSTANDS THE VALUE OF CREATIVITY AS A MEDIUM TO EXPRESS ONE'S FEELINGS. A TOTAL OF 6 SESSIONS OF STUDIO E: THE EPILEPSY ART PROGRAM TOOK PLACE IN FY20 WITH 13 PARTICIPANTS. THESE WORKSHOPS GIVE THEIR PARTICIPANTS LIVING WITH EPILEPSY THE OPPORTUNITY TO MEET WEEKLY AS A CLOSE-KNIT GROUP LED BY ART THERAPISTS, WHO ENCOURAGE ARTISTIC MEDIUMS AS A WAY TO EXPRESS EMOTIONS AND CUSTOMIZE EACH SESSION TO FIT THE NEEDS OF ITS AGE BRACKET. EACH GROUP SESSION FOCUSED ON A SPECIFIC ART MEDIUM, SUCH AS PAINTING, DANCE, YOGA, AND MORE. THE EPILEPSY FOUNDATION OF GREATER CHICAGO HELD ITS 6TH ANNUAL BLACKHAWK FAMILY RETREAT IN SEPTEMBER OF 2019. A TOTAL OF 17 PEOPLE SPENT THE WEEKEND AT RED LEAF, WHERE CAMP BLACKHAWK TAKES PLACE EVERY YEAR. THIS FREE EVENT WAS CREATED FOR FAMILIES WHOSE CHILDREN HAVE NOT ATTENDED CAMP BLACKHAWK AND WANT TO LEARN MORE ABOUT WHAT IT OFFERS. PARENTS AND THEIR KIDS GET TO ENJOY ALL THE FUN ACTIVITIES OF CAMP BLACKHAWK, WHILE CREATING A SENSE OF EASE AND EXCITEMENT ABOUT WHAT LIES AHEAD FOR THE NEXT SUMMER. SIBLINGS OF KIDS WITH EPILEPSY ALSO HAVE THEIR OWN SIB-SHOP BREAKOUT SESSION WHERE THEY CAN SHARE WITH OTHER SIBLINGS THEIR EXPERIENCES OF LIVING WITH A BROTHER OR SISTER THAT HAS SEIZURES. WHILE THE KIDS ARE ENJOYING CAMP ACTIVITIES, PARENTS RECEIVE EDUCATION ON EPILEPSY RELATED MATTERS. THE WOMEN'S RETREAT IS A WEEKEND GETAWAY FOR WOMEN WITH EPILEPSY, WHICH ALSO TAKES PLACE AT CAMP RED LEAF IN INGLESIDE. THE WOMEN FORM SPECIAL BONDS AS THEY PARTICIPATE IN ACTIVITIES SUCH AS YOGA AND WATCHING MOVIES. THE EPILEPSY FOUNDATION OF GREATER CHICAGO IS EXTREMELY ATTENTIVE TO THE NEEDS OF CHILDREN AND TEENS LIVING WITH EPILEPSY AND PROVIDES A VARIETY OF PROGRAMS AND SERVICES FOR KIDS. THE PARTICIPANTS ARE DIVERSE, NOT ONLY IN AGE, BUT IN THE LEVELS TO WHICH EPILEPSY IMPACTS THEIR LIVES. IT IS THE GOAL OF THE EPILEPSY FOUNDATION OF GREATER CHICAGO TO HELP KIDS UNDERSTAND THEIR CONDITION, BUILD RELATIONSHIPS WITH THOSE WHO SHARE SIMILAR EXPERIENCES, AS WELL AS BUILD THEIR CONFIDENCE. THROUGHOUT THE FISCAL YEAR, THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S KIDS AND TEEN GROUP HOSTS A WIDE VARIETY OF EVENTS FOR ITS PARTICIPANTS, WHICH ARE DESIGNED TO GIVE KIDS AND TEENAGERS LIVING WITH EPILEPSY THE OPPORTUNITY TO SOCIALIZE AMONG PEERS WHO CAN PERSONALLY UNDERSTAND THEIR CIRCUMSTANCES. PARTICIPANTS EMBARK ON VARIOUS EXCURSIONS INCLUDING CHICAGO WOLVES HOCKEY GAMES, CHICAGO WHITE SOX GAMES, AND TRIPS A PUMPKIN FARM, INDOOR AMUSEMENT CENTERS, AND A BOWLING OUTING. NO MATTER WHAT THE ACTIVITY IS, EVERYONE IS ABLE TO SPEND VALUABLE TIME CONNECTING WITH OTHERS THEIR AGE WITHOUT HAVING TO WORRY ABOUT ANY OF THE STIGMA THAT MIGHT BE ASSOCIATED WITH EPILEPSY. 8 TEEN GROUP ACTIVITIES WERE HOSTED IN FY2020, WELCOMING A TOTAL OF 148 PARTICIPANTS. THE EPILEPSY FOUNDATION OF GREATER CHICAGO ANNUALLY HOSTS THE HEROES SPORTS CAMP FOR CHILDREN LIVING WITH EPILEPSY AND THEIR SIBLINGS AND FRIENDS. THE EPILEPSY FOUNDATION OF GREATER CHICAGO PARTNERS WITH OTHER EPILEPSY-RELATED ORGANIZATIONS TO PROVIDE THIS THREE-DAY FREE CAMP. IN JULY 2019, 15 KIDS PARTICIPATED IN THE HEROES SPORTS CAMP, WHICH WAS HELD AT BLACKHAWK PARK. FOR THE PAST 24 YEARS, THE EPILEPSY FOUNDATION OF GREATER CHICAGO HAS OFFERED OUR EVER-POPULAR CAMP BLACKHAWK SUMMER CAMP FOR CHILDREN LIVING WITH SEIZURES. OVER THE COURSE OF TWO SESSIONS IN JULY AND AUGUST, APPROXIMATELY 120 PARTICIPANTS BETWEEN THE AGES OF 6-17 YEARS OLD TAKE PART IN THE ANNUAL FREE WEEK-LONG VENTURE TO CAMP BLACKHAWK AT CAMP RED LEAF IN INGLESIDE, IL. THE PARTICIPANTS TAKE PART IN TRADITIONAL CAMP ACTIVITIES SUCH AS FISHING, SWIMMING, AND ARTS AND CRAFTS, BUT ARE ALSO ABLE TO TAKE ADVANTAGE OF RED LEAF'S STATE-OF-THE-ART FACILITY AND SPEND AFTERNOONS ROCK-WALL-CLIMBING AND RIDING A 100-FOOT ZIP-LINE. ALL ACTIVITIES ARE PRACTICED IN A SAFE AND MEDICALLY MONITORED SETTING. FOR SOME, THIS IS THEIR FIRST TASTE OF INDEPENDENCE AWAY FROM THEIR PARENTS. WHILE THIS CAN BE EXCITING, IT MAY ALSO BE A LITTLE INTIMIDATING. THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S CASE MANAGERS DEVELOP SOLID RELATIONSHIPS WITH THE CAMPERS AND THEIR PARENTS IN THE MONTHS LEADING UP TO CAMP BLACKHAWK (OR FROM PREVIOUS YEARS OF CAMP) THUS LEADING EVERYONE TO FEEL COMFORTABLE WHEN THEIR WEEK-LONG TRIP BEGINS. ALONG WITH THE FACILITY'S FULLY TRAINED STAFF, THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S CASE MANAGERS' RELATIONSHIPS WITH THESE YOUNG CLIENTS ONLY GROW STRONGER. AS ONE PARENT NOTED, "CAMP BLACKHAWK WAS AN INCREDIBLE EXPERIENCE FOR MY SON! THIS WAS HIS SECOND YEAR AND IT WAS JUST AS GREAT AS HIS FIRST, IF NOT MORE. THIS YEAR HE BLOSSOMED EVEN MORE AS HIS CONFIDENCE IN HIMSELF GREW AND HE MADE NEW FRIENDS." THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S SUPPORT GROUPS ARE A POPULAR RESOURCE FOR ITS CLIENTS AND PEOPLE WHOSE LIVES ARE IMPACTED BY EPILEPSY. WITH 13 DIFFERENT GROUPS MEETING THROUGHOUT FY20, THE SUPPORT GROUP MEMBERS, SOME OF WHOM HAVE BEEN INVOLVED WITH THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S PROGRAMS FOR SEVERAL YEARS, ARE ABLE TO ENJOY ONE ANOTHER'S COMPANY AND KNOWLEDGE, WHILE ENHANCING THEIR SOCIAL LIVES. EACH GROUP IS GEARED TOWARD ADDRESSING THE NEEDS OF A SPECIFIC DEMOGRAPHIC, SUCH AS PARENTS OF CHILDREN WITH EPILEPSY, ADULTS AND TEENAGERS WITH EPILEPSY, AND SPANISH SPEAKING PEOPLE WITH EPILEPSY. THE MEN'S SUPPORT GROUP MEETS MONTHLY AND ALLOWS ITS MEMBERS THE OPPORTUNITY TO SHARE CONCERNS AND SOLUTIONS THAT ARE UNIQUE TO ISSUES FACING ITS PARTICIPANTS. ANOTHER SUPPORT GROUP, KNOWN AS LOOP GROUP, IS OUR LARGEST AND MOST WELL ATTENDED AND MEETS AT EFGC'S DOWNTOWN OFFICES. PARTICIPANTS DISCUSS THE CHALLENGES THEY ENCOUNTER IN THEIR DAILY LIVES, PARTAKE IN ACTIVITIES THAT STIMULATE MEMORY, AND ALSO HAVE AN OPPORTUNITY TO CONNECT WITH AN ON-SITE CASE MANAGER IF NEEDED AFTER THE SUPPORT GROUP MEETING. THE SOCIAL CLUB, A GROUP DESIGNED TO GIVE ADULTS WITH EPILEPSY THE CHANCE TO SOCIALIZE AND ENGAGE IN SOCIAL ACTIVITIES WITH ONE ANOTHER, MEETS MULTIPLE TIMES OVER THE COURSE OF THE YEAR, WHETHER IN-PERSON OR VIRTUALLY. SEVERAL OF THE PARTICIPANTS HAVE BEEN ATTENDING FOR YEARS BUT ARE ALWAYS WILLING TO ENGAGE NEW PARTICIPANTS. THE EPILEPSY FOUNDATION OF GREATER CHICAGO HAS ALSO BEEN SUPERVISING AN ADULT SUPPORT GROUP THAT MEETS AT STROGER HOSPITAL ONCE A MONTH AND IS OPEN TO THE HOSPITAL'S PATIENTS. THIS GROUP IS CONSISTENTLY WELL ATTENDED AS IT IS LED IN BOTH ENGLISH AND SPANISH (ALTERNATING MONTHS). NEUROLOGISTS FROM THE HOSPITAL ATTEND THE GROUP SO THAT THEY MAY BE AVAILABLE TO ANSWER ANY MEDICAL QUESTIONS THE PARTICIPANTS HAVE. THE ADVANTAGES OF THIS GROUP - THE FACT THAT IT IS OFFERED IN ENGLISH AND SPANISH AND THE ATTENDANCE OF THE RENOWNED NEUROLOGISTS WHO SERVE ON THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S PROFESSIONAL ADVISORY BOARD - ARE GREAT RESOURCES FOR PEOPLE CURRENTLY BEING TREATED FOR EPILEPSY. THEIR AGES SPAN FROM 20 TO 80 YEARS OLD, BUT THEY ALL HAVE SOMETHING IN COMMON: THEIR DESIRE TO LEARN MORE ABOUT EPILEPSY AND THEIR EAGERNESS TO CONNECT WITH OTHERS WHO SHARE A COMMON STORY.
FORM 990, PART III, LINE 4C: PUBLIC HEALTH EDUCATION: THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S EDUCATION STAFF PROVIDES EPILEPSY EDUCATION PRESENTATIONS AND PROGRAMS AND PARTICIPATES IN HEALTH FAIRS AND OTHER ACTIVITIES. THE DIRECTOR OF EDUCATION, 1 PART TIME EDUCATOR, 1 FULL TIME EMPLOYEE, AND 3 ACTIVE VOLUNTEERS PROVIDE SEIZURE FIRST AID TRAININGS AND REPRESENT THE EPILEPSY FOUNDATION AT NUMEROUS EDUCATIONAL PROGRAMS AND HEALTH FAIRS. IN TOTAL, OVER 6,940 PEOPLE TOOK PART IN THESE PRESENTATIONS AND PROGRAMS IN FISCAL YEAR 2020, WHICH COVERED A WIDE VARIETY OF TOPICS, AND CATERED TO THE SPECIFIC INTERESTS OF THE ATTENDEES. ALONG WITH PRESENTATIONS GIVEN TO COMMUNITY ORGANIZATIONS ON SEIZURE RECOGNITION AND FIRST AID, THE EPILEPSY FOUNDATION'S EDUCATORS ALSO FOCUS ON EDUCATING SCHOOL PERSONNEL. THROUGH PRESENTATIONS SUCH AS "SEIZURE TRAINING FOR SCHOOL PERSONNEL," "TAKE CHARGE OF THE STORM, AND "EPILEPSY 101," EFGC STAFF PROVIDED TRAINING TO MORE THAN 4,038 TEACHERS, STUDENTS (KINDERGARTEN THROUGH UNIVERSITY AGE) AND SCHOOL PERSONNEL AT 158 TOTAL SESSIONS. THE EPILEPSY FOUNDATION OF GREATER CHICAGO ALSO USES BROAD PLATFORMS TO EDUCATE THE GENERAL PUBLIC ABOUT EPILEPSY AND CURRENT ISSUES SURROUNDING THE DISORDER. IN NOVEMBER 2019, IT HOSTED THE 10TH ANNUAL EPILEPSY CONSUMER CONFERENCE IN DOWNTOWN CHICAGO. THIS FREE, DAY-LONG SEMINAR FOCUSES ON EPILEPSY AND ITS TREATMENTS FROM BOTH DOCTOR AND PATIENT PERSPECTIVES. THE CONFERENCE WAS ONCE AGAIN GEARED TOWARD PROVIDING INDIVIDUALS WITH EPILEPSY, THEIR FAMILIES, AND THE GENERAL COMMUNITY WITH THE LATEST INFORMATION ABOUT EPILEPSY. IT AGAIN INCLUDED "ASK THE DOC" SESSIONS, WHICH PROVIDED PARTICIPANTS THE OPPORTUNITY TO SPEAK ONE-ON-ONE WITH RENOWNED NEUROLOGISTS ON ISSUES REGARDING THEIR HEALTH. IN FY20, OVER 200 PARTICIPANTS ATTENDED THE EPILEPSY CONSUMER CONFERENCE. DUE TO THE RESTRICTIONS PLACED ON EDUCATION BY THE COVID-19 PANDEMIC, THE EFGC EDUCATION TEAM BEGAN A NEW ONLINE EDUCATION INITIATIVE IN MARCH OF 2020. THROUGH REGULARLY AIRED VIDEOS, THE DIRECTOR OF EDUCATION AYESHA AKHTAR, HAS REMOTELY INTERVIEWED A VARIETY OF PEOPLE IN THE HEALTHCARE AND ADVOCACY FIELD. RANGING FROM DOCTORS AND SOCIAL WORKERS TO SCHOOL HEALTH OFFICIALS AND PUBLIC POLICY EXPERTS, THESE INTERVIEWS HAVE FOCUSED NOT ONLY ON HOW PEOPLE WITH EPILEPSY CAN STAY HEALTHY DURING THE COVID-19 PANDEMIC, BUT ALSO HOW THEY CAN CONTINUE TO ADVOCATE FOR THEMSELVES THE EPILEPSY COMMUNITY DURING THESE CHALLENGING TIMES. THESE 14 INTERVIEW VIDEOS HAVE BEEN VIEWED NEARLY 9,500 TIMES ON THE EFGC FACEBOOK PAGE. IN ADDITION TO THE ONLINE INTERVIEWS, EFGC HAS ALSO BEGUN HOSTING AN ONLINE CAREGIVER EDUCATION SERIES. THIS SERIES LASTS 4 WEEKS AND OFFERS DIFFERENT WEEKLY TOPICS SUCH AS SEIZURE EDUCATION AND FIRST AID, ADVOCACY, TRANSITIONING FROM CHILDHOOD, AND CAREGIVER SUPPORT. THIS GROUP IS BROKEN INTO TWO DIFFERENT COHORTS TO INCREASE INTERACTION BETWEEN THE ATTENDEES AND 4 EFGC STAFF LEADING THE SESSIONS. IN JUNE OF 2020, 23 INDIVIDUALS ATTENDED THIS 4 SESSION SERIES.
FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION REVIEWS THE TAX RETURN FOR COMPLETENESS AND ACCURACY PRIOR TO HAVING IT FILED WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12C MANAGEMENT MUST FILL OUT A CONFLICT OF INTEREST FORM YEARLY TO ENSURE THERE ARE NO NEW CONFLICTS THAT AROSE DURING THE PAST YEAR.
FORM 990, PART VI, SECTION B, LINE 15A TOP MANAGEMENTS COMPENSATION IS DETERMINED BY THE BOARD OF DIRECTORS BASED ON PERFORMANCE AND MARKET CONDITIONS.
FORM 990, PART VI, SECTION C, LINE 19 ALL POLICIES AND DOCUMENTS ARE AVAILABLE FOR PUBLIC VIEWING UPON REQUEST.
FORM 990, PART IX, LINE 11G CONSULTANTS: PROGRAM SERVICE EXPENSES 28,615. MANAGEMENT AND GENERAL EXPENSES 12,942. FUNDRAISING EXPENSES 14,379. TOTAL EXPENSES 55,936.
FORM 990, PART IX, LINE 24E EDUCATIONAL SUPPLIES: PROGRAM SERVICE EXPENSES 2,797. MANAGEMENT AND GENERAL EXPENSES 216. FUNDRAISING EXPENSES 355. TOTAL EXPENSES 3,368. EMERGENCY CLIENT NEEDS: PROGRAM SERVICE EXPENSES 2,349. MANAGEMENT AND GENERAL EXPENSES 181. FUNDRAISING EXPENSES 298. TOTAL EXPENSES 2,828. AWARDS: PROGRAM SERVICE EXPENSES 375. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 104. TOTAL EXPENSES 479.
FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM PREVIOUS YEARS
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 51056K
Schedule O (Form 990 or 990-EZ) 2019


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SCHEDULE R
(Form 990)
Department of the Treasury
Internal Revenue Service
Related Organizations and Unrelated Partnerships
MediumBulletComplete if the organization answered "Yes" on Form 990, Part IV, line 33, 34, 35b, 36, or 37.
MediumBulletAttach to Form 990.
MediumBullet Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047
2019
Open to Public Inspection
Name of the organization
EPILEPSY FOUNDATION OF GREATER CHICAGO
 
Employer identification number

36-2317619
Part I
Identification of Disregarded Entities. Complete if the organization answered "Yes" on Form 990, Part IV, line 33.
(a)
Name, address, and EIN (if applicable) of disregarded entity


(b)
Primary activity


 		(c)
Legal domicile (state
or foreign country)

 		(d)
Total income


 		(e)
End-of-year assets


 		(f)
Direct controlling
entity










Part II
Identification of Related Tax-Exempt Organizations. Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related tax-exempt organizations during the tax year.
(a)
Name, address, and EIN of related organization


(b)
Primary activity


 		(c)
Legal domicile (state
or foreign country)

 		(d)
Exempt Code section


 		(e)
Public charity status
(if section 501(c)(3))

 		(f)
Direct controlling
entity

 		(g)
Section 512(b)(13) controlled entity?
Yes No
(1)FRIENDS OF THE EPILEPSY FOUNDATION OF GREATER CHICAGO
17 N STATE STREET STE 650

CHICAGO,IL60602
27-3778891 		RESALE OF DONATED CLOTHING IL 501(C)(3) LINE 7  
 
No












For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50135Y
Schedule R (Form 990) 2019
Schedule R (Form 990) 2019
Page 2
Part III
Identification of Related Organizations Taxable as a Partnership. Complete if the organization answered "Yes" on Form 990, Part IV, line 34, because it had one or more related organizations treated as a partnership during the tax year.
(a)
Name, address, and EIN of
related organization



 		(b)
Primary activity




 		(c)
Legal
domicile
(state or foreign
country)


 		(d)
Direct controlling
entity



 		(e)
Predominant income(related, unrelated, excluded from tax under sections 512-514)

(f)
Share of total income




 		(g)
Share of end-of-year
assets



 		(h)
Disproprtionate allocations?




 		(i)
Code V-UBI
amount in box 20 of
Schedule K-1
(Form 1065)
 		(j)
General or
managing
partner?



 		(k)
Percentage
ownership
Yes No Yes No












Part IV
Identification of Related Organizations Taxable as a Corporation or Trust. Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related organizations treated as a corporation or trust during the tax year.
(a)
Name, address, and EIN of
related organization
 		(b)
Primary activity
 		(c)
Legal
domicile
(state or foreign
country)
 		(d)
Direct controlling
entity
 		(e)
Type of entity
(C corp, S corp,
or trust) 		(f)
Share of total income
 		(g)
Share of end-of-year
assets
 		(h)
Percentage
ownership
 		(i)
Section 512(b)(13) controlled entity?
Yes No












Schedule R (Form 990) 2019
Schedule R (Form 990) 2019
Page 3
Part V
Transactions With Related Organizations. Complete if the organization answered "Yes" on Form 990, Part IV, line 34, 35b, or 36.
Note. Complete line 1 if any entity is listed in Parts II, III, or IV of this schedule.
Yes
No
1 During the tax year, did the orgranization engage in any of the following transactions with one or more related organizations listed in Parts II-IV?
a Receipt of (i) interest, (ii) annuities, (iii) royalties, or (iv) rent from a controlled entity .....................
1a
 
No
b Gift, grant, or capital contribution to related organization(s) ............................
1b
 
No
c Gift, grant, or capital contribution from related organization(s) ............................
1c
Yes
 
d Loans or loan guarantees to or for related organization(s) ............................
1d
 
No
e Loans or loan guarantees by related organization(s) ............................
1e
 
No
f Dividends from related organization(s) ............................
1f
 
No
g Sale of assets to related organization(s) ............................
1g
 
No
h Purchase of assets from related organization(s) ............................
1h
 
No
i Exchange of assets with related organization(s) ............................
1i
 
No
j Lease of facilities, equipment, or other assets to related organization(s) .......................
1j
 
No
k Lease of facilities, equipment, or other assets from related organization(s) ......................
1k
 
No
l Performance of services or membership or fundraising solicitations for related organization(s) .....................
1l
Yes
 
m Performance of services or membership or fundraising solicitations by related organization(s) .................
1m
 
No
n Sharing of facilities, equipment, mailing lists, or other assets with related organization(s) ...................
1n
Yes
 
o Sharing of paid employees with related organization(s) ............................
1o
Yes
 
p Reimbursement paid to related organization(s) for expenses ............................
1p
 
No
q Reimbursement paid by related organization(s) for expenses ............................
1q
 
No
r Other transfer of cash or property to related organization(s) ............................
1r
 
No
s Other transfer of cash or property from related organization(s) ............................
1s
 
No
2
If the answer to any of the above is "Yes," see the instructions for information on who must complete this line, including covered relationships and transaction thresholds.
(a)
Name of related organization 		(b)
Transaction
type (a-s) 		(c)
Amount involved 		(d)
Method of determining amount involved





Schedule R (Form 990) 2019
Schedule R (Form 990) 2019
Page 4
Part VI
Unrelated Organizations Taxable as a Partnership. Complete if the organization answered "Yes" on Form 990, Part IV, line 37.
Provide the following information for each entity taxed as a partnership through which the organization conducted more than five percent of its activities (measured by total assets or gross revenue) that was not a related organization. See instructions regarding exclusion for certain investment partnerships.
(a)
Name, address, and EIN of entity 		(b)
Primary activity 		(c)
Legal domicile
(state or foreign
country) 		(d)
Predominant income (related, unrelated, excluded from tax under sections 512-514)

(e)
Are all partners
section
501(c)(3)
organizations? 		(f)
Share of total income




 		(g)
Share of
end-of-year
assets 		(h)
Disproprtionate allocations? 		(i)
Code V-UBI
amount in box 20
of Schedule K-1
(Form 1065) 		(j)
General or
managing
partner? 		(k)
Percentage
ownership
Yes No Yes No Yes No






























Schedule R (Form 990) 2019
Schedule R (Form 990) 2019
Page 5
Part VII
Supplemental Information
Provide additional information for responses to questions on Schedule R. (see instructions).
Return Reference Explanation
Schedule R (Form 990) 2019

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