TY 2019 Form 990

(A) Name and title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)	(E) Reportable compensation from related organizations (W-2/1099-MISC)
(1) William Neal...................................................................... Chair	1.00 .................	X	X		0	0	0
(2) Stacey Lane...................................................................... Chair Elect	1.00 .................	X	X		0	0	0
(3) Michael Shapiro...................................................................... Secretary	1.00 .................	X	X		0	0	0
(4) Seth Baum...................................................................... Treasurer (Term end May)	1.00 .................	X	X		0	0	0
(5) Mary McGowan...................................................................... Interim Treasurer (Term start May)	1.00 .................	X	X		0	0	0
(6) Katherine Wilemon...................................................................... CEO/Board Member	40.00 .................	X	X		328,029	0	10,336
(7) Barry Brooks...................................................................... Board Member	1.00 .................	X			0	0	0
(8) Joshua Knowles...................................................................... Board Member	1.00 .................	X			0	0	0
(9) Dan Rader...................................................................... Board Member	1.00 .................	X			0	0	0
(10) Maria Sophocles...................................................................... Board Member	1.00 .................	X			0	0	0
(11) Allison Jamison...................................................................... Board Member	1.00 .................	X			0	0	0
(12) A Sheldon...................................................................... VP of Marketing	40.00 .................			X	168,736	0	7,373
(13) Catherine Ahmed...................................................................... VP of Policy	40.00 .................			X	156,478	0	0
(14) S Gidding MD...................................................................... CMedO (Term end Dec.)	40.00 .................			X	143,716	0	9,698
(15) E Fennell...................................................................... Development Director	40.00 .................			X	109,654	0	6,772

(A) Name and business address	(B) Description of services	(C) Compensation
Atomo 1603 Falcon Ledge Dr Austin,TX78746	Consulting	710,468
DCRI PO Box 602651 Charlotte,NC28260	Data Management	581,950
Zilker Technology LLC 200 East 6th Street Ste 201 Austin,TX78701	Website and S.E.O.	145,200
Emory Conference Center Hotel 1615 Clifton Rd Atlanta,GA30329	Summit 2019 Venue	113,514
McAllister and Quinn LLC 1030 15th St NW Suite 590W Washington,DC20005	Washington D.C. Advocates	104,300
2 Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization 5

- TIN:

SCHEDULE A
(Form 990 or 990EZ)

Department of the Treasury
Internal Revenue Service

Public Charity Status and Public Support

Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
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Attach to Form 990 or Form 990-EZ.
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Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public
Inspection

Name of the organization

The Familial Hypercholesterolemia
Foundation

Employer identification number

45-4597425

Part I

Reason for Public Charity Status (All organizations must complete this part.) See instructions.

The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)

A church, convention of churches, or association of churches described in section 170(b)(1)(A)(i).

A school described in section 170(b)(1)(A)(ii). (Attach Schedule E (Form 990 or 990-EZ).)

A hospital or a cooperative hospital service organization described in section 170(b)(1)(A)(iii).

A medical research organization operated in conjunction with a hospital described in section 170(b)(1)(A)(iii). Enter the hospital's name, city, and state:

An organization operated for the benefit of a college or university owned or operated by a governmental unit described in section 170(b)(1)(A)(iv). (Complete Part II.)

A federal, state, or local government or governmental unit described in section 170(b)(1)(A)(v).

An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi). (Complete Part II.)

A community trust described in section 170(b)(1)(A)(vi). (Complete Part II.)

An agricultural research organization described in 170(b)(1)(A)(ix) operated in conjunction with a land-grant college or university or a non-land grant college of agriculture. See instructions. Enter the name, city, and state of the college or university:

An organization that normally receives: (1) more than 331/3% of its support from contributions, membership fees, and gross receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 331/3% of its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)

An organization organized and operated exclusively to test for public safety. See section 509(a)(4).

An organization organized and operated exclusively for the benefit of, to perform the functions of, or to carry out the purposes of one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2). See section 509(a)(3). Check the box in lines 12a through 12d that describes the type of supporting organization and complete lines 12e, 12f, and 12g.

Type I. A supporting organization operated, supervised, or controlled by its supported organization(s), typically by giving the supported organization(s) the power to regularly appoint or elect a majority of the directors or trustees of the supporting organization. You must complete Part IV, Sections A and B.

Type II. A supporting organization supervised or controlled in connection with its supported organization(s), by having control or management of the supporting organization vested in the same persons that control or manage the supported organization(s). You must complete Part IV, Sections A and C.

Type III functionally integrated. A supporting organization operated in connection with, and functionally integrated with, its supported organization(s) (see instructions). You must complete Part IV, Sections A, D, and E.

Type III non-functionally integrated. A supporting organization operated in connection with its supported organization(s) that is not functionally integrated. The organization generally must satisfy a distribution requirement and an attentiveness requirement (see instructions). You must complete Part IV, Sections A and D, and Part V.

Check this box if the organization received a written determination from the IRS that it is a Type I, Type II, Type III functionally integrated, or Type III non-functionally integrated supporting organization.

Enter the number of supported organizations ...............................

Provide the following information about the supported organization(s).

(i) Name of supported organization	(ii) EIN	(iv) Is the organization listed in your governing document?		(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)
(i) Name of supported organization	(ii) EIN	Yes	No	(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)


Total

For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.

Cat. No. 11285F

Schedule A (Form 990 or 990-EZ) 2019

Page 2

Part II

Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2015	(b) 2016	(c) 2017	(d) 2018	(e) 2019	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") ..	2,948,133	3,993,797	4,249,484	1,820,693	1,848,898	14,861,005
2	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....
3	The value of services or facilities furnished by a governmental unit to the organization without charge..
4	Total. Add lines 1 through 3	2,948,133	3,993,797	4,249,484	1,820,693	1,848,898	14,861,005
5	The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f)..						11,656,570
6	Public support. Subtract line 5 from line 4.						3,204,435

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2015	(b) 2016	(c) 2017	(d) 2018	(e) 2019	(f) Total
7	Amounts from line 4..	2,948,133	3,993,797	4,249,484	1,820,693	1,848,898	14,861,005
8	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...	1,439	2,796	3,464	9,206	6,761	23,666
9	Net income from unrelated business activities, whether or not the business is regularly carried on..
10	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.)..			6,675	149	8,243	15,067
11	Total support. Add lines 7 through 10						14,899,738

Gross receipts from related activities, etc. (see instructions) ..................

7,801,578

First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here........................................ right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2019 (line 6, column (f) divided by line 11, column (f)) .........

21.510 %

Public support percentage for 2018 Schedule A, Part II, line 14 ...............

18.260 %

16a

33 1/3% support test—2019. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization ....................... right arrow

33 1/3% support test—2018. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization ..................... right arrow

17a

10%-facts-and-circumstances test—2019. If the organization did not check a box on line 13, 16a, or 16b, and line 14
is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain
in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported
organization ..................................................... right arrow

10%-facts-and-circumstances test—2018. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line
15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here.
Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly
supported organization ................................................ right arrow

Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow

Schedule A (Form 990 or 990-EZ) 2019

Page 3

Part III

Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2015	(b) 2016	(c) 2017	(d) 2018	(e) 2019	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2	Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose
3	Gross receipts from activities that are not an unrelated trade or business under section 513 .....
4	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5	The value of services or facilities furnished by a governmental unit to the organization without charge
6	Total. Add lines 1 through 5
7a	Amounts included on lines 1, 2, and 3 received from disqualified persons
b	Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c	Add lines 7a and 7b..
8	Public support. (Subtract line 7c from line 6.)

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2015	(b) 2016	(c) 2017	(d) 2018	(e) 2019	(f) Total
9	Amounts from line 6...
10a	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b	Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c	Add lines 10a and 10b.
11	Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.
12	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..
13	Total support. (Add lines 9, 10c, 11, and 12.)..

First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization,
check this box and stop here............................................. right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2019 (line 8, column (f) divided by line 13, column (f)) .........

Public support percentage from 2018 Schedule A, Part III, line 15 ...............

Section D. Computation of Investment Income Percentage

Investment income percentage for 2019 (line 10c, column (f) divided by line 13, column (f)) ......

Investment income percentage from 2018 Schedule A, Part III, line 17 .............

19a

331/3% support tests—2019. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ....... right arrow

33 1/3% support tests—2018. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization .... right arrow

Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions .... right arrow

Schedule A (Form 990 or 990-EZ) 2019

Page 4

Part IV

Supporting Organizations

(Complete only if you checked a box on line 12 of Part I. If you checked 12a of Part I, complete Sections A and B. If you checked 12b of Part I, complete Sections A and C. If you checked 12c of Part I, complete Sections A, D, and E. If you checked 12d of Part I, complete Sections A and D, and complete Part V.)

Section A. All Supporting Organizations

Yes

Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.

Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).

Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer (b) and (c) below.

Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.

Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.

Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked 12a or 12b in Part I, answer (b) and (c) below.

Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.

Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.

Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer (b) and (c) below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).

Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?

Substitutions only. Was the substitution the result of an event beyond the organization's control?

Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.

Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ) .

Did the organization make a loan to a disqualified person (as defined in section 4958) not described in line 7? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ).

Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.

Did one or more disqualified persons (as defined in line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.

Did a disqualified person (as defined in line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.

10a

Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.

10a

Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).

10b

Schedule A (Form 990 or 990-EZ) 2019

Page 5

Part IV

Supporting Organizations (continued)

Yes

Has the organization accepted a gift or contribution from any of the following persons?

A person who directly or indirectly controls, either alone or together with persons described in (b) and (c) below, the governing body of a supported organization?

11a

A family member of a person described in (a) above?

11b

A 35% controlled entity of a person described in (a) or (b) above? If “Yes” to a, b, or c, provide detail in Part VI.

11c

Section B. Type I Supporting Organizations

Yes

Did the directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.

Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.

Section C. Type II Supporting Organizations

Yes

Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).

Section D. All Type III Supporting Organizations

Yes

Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?

Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).

By reason of the relationship described in (2), did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.

Section E. Type III Functionally-Integrated Supporting Organizations

Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):

The organization satisfied the Activities Test. Complete line 2 below.

The organization is the parent of each of its supported organizations. Complete line 3 below.

The organization supported a governmental entity. Describe in Part VI how you supported a government entity (see instructions)

Activities Test. Answer (a) and (b) below.

Yes

Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.

Did the activities described in (a) constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.

Parent of Supported Organizations. Answer (a) and (b) below.

Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations? Provide details in Part VI.

Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.

Schedule A (Form 990 or 990-EZ) 2019

Page 6

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations

Check here if the organization satisfied the Integral Part Test as a qualifying trust on Nov. 20, 1970 (explain in Part VI). See instructions. All other Type III non-functionally integrated supporting organizations must complete Sections A through E.

	Section A - Adjusted Net Income		(A) Prior Year	(B) Current Year (optional)
1	Net short-term capital gain	1
2	Recoveries of prior-year distributions	2
3	Other gross income (see instructions)	3
4	Add lines 1 through 3	4
5	Depreciation and depletion	5
6	Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions)	6
7	Other expenses (see instructions)	7
8	Adjusted Net Income (subtract lines 5, 6 and 7 from line 4)	8

	Section B - Minimum Asset Amount		(A) Prior Year	(B) Current Year (optional)
1	Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year):	1
a	Average monthly value of securities	1a
b	Average monthly cash balances	1b
c	Fair market value of other non-exempt-use assets	1c
d	Total (add lines 1a, 1b, and 1c)	1d
e	Discount claimed for blockage or other factors (explain in detail in Part VI):
2	Acquisition indebtedness applicable to non-exempt use assets	2
3	Subtract line 2 from line 1d	3
4	Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions).	4
5	Net value of non-exempt-use assets (subtract line 4 from line 3)	5
6	Multiply line 5 by .035	6
7	Recoveries of prior-year distributions	7
8	Minimum Asset Amount (add line 7 to line 6)	8

	Section C - Distributable Amount		Current Year
1	Adjusted net income for prior year (from Section A, line 8, Column A)	1
2	Enter 85% of line 1	2
3	Minimum asset amount for prior year (from Section B, line 8, Column A)	3
4	Enter greater of line 2 or line 3	4
5	Income tax imposed in prior year	5
6	Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions)	6

Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (see instructions)

Schedule A (Form 990 or 990-EZ) 2019

Page 7

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)

Section D - Distributions		Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity
3 Administrative expenses paid to accomplish exempt purposes of supported organizations
4 Amounts paid to acquire exempt-use assets
5 Qualified set-aside amounts (prior IRS approval required)
6 Other distributions (describe in Part VI). See instructions
7Total annual distributions. Add lines 1 through 6.
8 Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions
9 Distributable amount for 2019 from Section C, line 6
10 Line 8 amount divided by Line 9 amount

Section E - Distribution Allocations (see instructions)		(i) Excess Distributions	(ii) Underdistributions Pre-2019	(iii) Distributable Amount for 2019
1 Distributable amount for 2019 from Section C, line 6
2 Underdistributions, if any, for years prior to 2019 (reasonable cause required-- explain in Part VI). See instructions.
3 Excess distributions carryover, if any, to 2019:
a From 2014.......
b From 2015.......
c From 2016.......
d From 2017.......
e From 2018.......
fTotal of lines 3a through e
g Applied to underdistributions of prior years
h Applied to 2019 distributable amount
i Carryover from 2014 not applied (see instructions)
j Remainder. Subtract lines 3g, 3h, and 3i from 3f.
4Distributions for 2019 from Section D, line 7:
$
a Applied to underdistributions of prior years
b Applied to 2019 distributable amount
c Remainder. Subtract lines 4a and 4b from 4.
5 Remaining underdistributions for years prior to 2019, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions.
6 Remaining underdistributions for 2019. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions.
7 Excess distributions carryover to 2020. Add lines 3j and 4c.
8 Breakdown of line 7:
a Excess from 2015.....
b Excess from 2016.....
c Excess from 2017.....
d Excess from 2018.....
e Excess from 2019.....

Schedule A (Form 990 or 990-EZ) (2019)

Schedule A (Form 990 or 990-EZ) 2019

Page 8

Part VI

Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).

Facts And Circumstances Test

Return Reference	Explanation
Part II, Section C, line 17a:	THE FOUNDATION SATISFIES THE 10% FACTS AND CIRCUMSTANCES TEST TO BE A PUBLICLY SUPPORTED 501(c)(3) ORGANIZATION. (1) Summary and Conclusion. The FH Foundation qualifies as a publicly supported 501(c)(3) charitable and educational nonprofit organization. It received greater than 10% of its support from public sources, it is organized and operated as a publicly supported charitable entity, and, explained in detail below, it satisfies the facts and circumstances test as set forth in the Regulations. (2) The FH Foundation serves a critical public purpose. It saves lives by informing doctors, assisting public health officials, and educating the general public about Familial Hypercholesterolemia ("FH"), an inherited disorder that leads to aggressive and premature cardiovascular disease, if it's not properly diagnosed and treated. The Foundation works to save the lives of people with a life-threatening type of high cholesterol called Familial Hypercholesterolemia (referred to as "FH"). Heart disease is the number one cause of morbidity and mortality in the U.S., and is linked to high cholesterol, affecting 72 million Americans. FH is a genetic condition that causes high cholesterol and early heart disease. People with FH who are diagnosed can be helped if FH is diagnosed early and treated. FH is as prevalent as Type 1 diabetes and is twenty times more prevalent than Cystic Fibrosis. Approximately 1 out of every 250 people, equally at least 1.3 million people in the United States and about 30 million people worldwide have Familial Hypercholesterolemia. If untreated, a man with FH has a 50% chance of having a heart attack before the age of 50 and a woman with FH has a 30% chance of having a heart attack before the age of 60. Children who have inherited FH from two parents, most often do not live to 20 years old without the appropriate care. Effective therapies exist to manage the condition, but FH must be diagnosed and treated appropriately from childhood. Tragically, 85% of the people with FH are never accurately diagnosed or appropriately managed. As recently as 2011, a study showed that fewer than 30% of the cardiologists were able to diagnose a case of FH. That is why people with FH and doctors who understand FH created the FH Foundation, and provided its initial funding. The FH Foundation was formed in late 2011 and incorporated in April 2012. The organization's mission is to raise awareness and save lives by increasing the rate of early diagnosis and encouraging proactive treatment. As noted, if left untreated, FH leads to aggressive and premature heart disease in women, men and children of all racial and ethnic backgrounds. In just nine years, the FH Foundation has made an astounding amount of progress in increasing FH awareness, amassing global information about patients, and bringing together doctors, patients, public health officials, and government leaders to discover and disseminate information about diagnosis and treatment options. In fact, we believe our work helped reduce the number of people who have undiagnosed FH from 90% to 85%. Part of this effort was assisted by the Foundation advocating for and achieving a separate IDC-10 code specific for clinicians to identify FH. (3) As part of its educational mission, the Foundation regularly publishes medical and scientific information that is widely used by physicians and is a key free resource for patients with FH. - The FH Foundation has led the publication of 25 peer-reviewed articles in scientific journals since 2014, including four in 2019. It is the leader in advancing scientific and medical understanding of FH. - The FH Foundation publishes medical information in 11 different languages, providing doctors and patients with information essential to understanding and treating FH. - The Foundation convenes the annual FH Global Summit, which produces medical and scientific information to educate doctors and other medical professionals about FH. It is the only educational conference dedicated to solving global challenges in the care and treatment of familial hypercholesterolemia through a multi-stakeholder and interdisciplinary approach. It brings together speakers and panelists who are experts in FH, genomics, precision medicine, alongside leading healthcare practitioners, individuals with FH and industry. Specifically, the 2019 FH Global Summit brought together 287 world-renowned experts in FH, cardiology, public health, advocacy, as well as families living with FH to accelerate best practices for FH care. During the 2019 Summit, Dr. Muin Khoury, founding director of the Office of Genomics and Precision Public Health at the Centers for Disease Control and Prevention, discussed how familial hypercholesterolemia (FH) sets the stage for precision public health for other inherited conditions and the progress we have made identifying and treating individuals with FH. Khoury underscored the importance of data for more precisely developing and delivering public health programs to sub-populations: "Families live across states and healthcare systems. We can't do this without precision." . - The FH Foundation has had more than 200 articles about FH appear in the media, including Wall Street Journal, US News and World Report, Medscape, Women's Health, and more, reaching a potential audience of more than 200 million people. (4) The Foundation participates in and sponsors programs and efforts by
members of the public having special knowledge or expertise,	officials, or civic or community leaders. - The Foundation works with officials from the U.S. Centers for Disease Control and Prevention, the National Institutes of Health, the National Heart, Lung, and Blood Institute, the Centers for Medicare and Medicaid Services, the Food and Drug Administration (FDA), and national/international organizations like the World Health Organization. - The Foundation's President, Katherine Wilemon, works closely with key government health officials, including with the head of genomics at the Centers for Disease Control and Prevention and with the National Academies- Genomic Public Health Action Collaborative Working Group. - A bedrock of the FH Foundation's work has been the establishment of a national familial hypercholesterolemia CASCADE FH Registry. Launched in September 2013, by December 2019 over 6,000 individuals have been entered in the Registry at 40 clinical sites across the United States at many major academic medical institutions. As a patient centric organization, the Foundation designed the CASCADE FH Registry to include physician entered and patient entered data with learnings and data returned to both stakeholder groups. - Senior officials at both the CDC and National Institutes of Health (NIH) - National Heart, Lung and Blood Institute (NHLBI) have been consulted on how to sustain and grow the CASCADE FH Registry because it is of such value to public health and the clinical research community. The Registry by design will advance the scientific understanding of FH, increase the rate of FH diagnosis, improve the quality of care for individuals living with FH, and enable additional education of the public and health officials about FH and the need for additional research and information about effective care. - The FH Foundation succeeded in having FH classified within the International Classification of Diseases (the "ICD"), following three years of focused effort. This was a great advance for the general public as the ICD holds critical information about epidemiology, managing health, and treating conditions and is used by healthcare professionals to code and identify health conditions. This will bring much-needed visibility to the FH diagnosed population. Public health workers and insurers use the recording of ICD codes to see trends in health, to track morbidity and mortality and to classify conditions and determine reimbursement. As of December 2019, 197,000 individuals had been diagnosed using the FH diagnosis code (E78.01). - The FH Foundation created the FH Specialists Network identifying over 540 healthcare providers across 35 countries who specialize in FH. The FH Foundation provides educational materials to these clinicians to provide to their patients. The FH Foundation's Specialist Network is easily assessible on the FH Foundation's website. - In addition to a number of community volunteers, one hundred and fifteen people have been trained to be FH Advocates who raise awareness by sharing their FH stories, support others through their own journeys, and inform the work of the FH Foundation to ensure the Foundation is addressing what matters most to FH patients. FH Advocates educate their elected representatives and medical professionals to help them to better understand FH. The FH Advocates educate the public directly by participating in health fairs, speaking at service clubs and their workplaces, and speaking directly with newly diagnosed patients. The FH Foundation helps to share their stories via its website, social media, and news media outreach. FH Advocates also reach out to their network of family and friends to raise awareness and funding for the FH Foundation. (5) The Foundation provides continuous and definitive programs and direct services to the general public to accomplish its charitable work. - The Foundation is the only research and advocacy organization dedicated to increasing scientific understanding and public awareness of this condition. It operates a website with extensive information and distributes educational materials about FH. - The FH Foundation's CASCADE FH Registry provides information available to the general public about issues regarding care, medical needs, observational and implementation research studies that are being conducted, and a research study that aims to understand the willingness for individuals with a clinical diagnosis of FH and their family members to undergo confirmatory genetic testing. - The FH Foundation's national CASCADE FH Registry and its related global Patient Portal provide comprehensive longitudinal data that fills gaps in FH diagnosis and treatment, including disparities in care. The Registry's data is available to researchers, public health officials (CDC, FDA), clinicians, patients, and other decision makers. The Foundation also disseminates this data in presentations to medical conferences, in the news media, and on social media. - The FH Foundation offers financial support to patients and to parents whose children have FH to attend the annual FH Global Summit so they can learn more about the disease, medical advances, and treatment options. - The Foundation provides families with the essential service of helping patients find physicians who understand and specialize in the treatment of FH. - The Foundation works with payers and providers directly to educate them about diagnosis and treatment of FH. - The Foundation provides the public with online and print tools to help patients navigate their own diagnosis, treatment, and access issues. - The Foundation hosts in-person events where FH families connect with each other, the work of the FH Foundation, and directly with FH medical experts. When needed, it financially supports the participation of individuals in these in-person events. It also supports the participation of its FH Advocates in medical meetings. It manages an online discussion group where people can go for reliable information about FH diagnosis and management and connect with each other. It answers questions by email and phone from people who contact it directly. - The Foundation maintains a list of clinical research studies on the website that is searchable so that patients or parents with children with FH can find medical resources or research studies. - The Foundation provides regular email updates on clinical trial research. - In 2012, the FH Foundation created the National FH Awareness Day as September 24. Today, this is a worldwide event, adopted by individuals and organizations. Its month-long campaign leading up to FH Awareness Day on September 24, 2019, reached an audience of 25 million people through social media around the world. - With its FH advocates, it has succeeded in getting governors in Kansas, Oregon, Colorado, New Hampshire, Louisiana, South Dakota, Florida, Indiana, Arkansas and Wisconsin to have FH Awareness Day in their states. - The FH Foundation engages in educational and outreach work to advance the awareness and interests of the general public about FH. With its educational outreach, FH Foundation has - Over 7.300 people following it on Twitter Over 2,2000 people in an online Facebook discussion group from 54 countries around the globe Over 12,500 Likes" on Facebook and 6,600 follow it on Twitter Over 540 FH specialists featured in its Global Specialist Network Over 280 people attending the FH Global Summit each year Over 115 volunteer FH Advocates for Awareness Over 6,200 enrolled in CASCADE FH Registry Clinical Sites Over 500 enrolled in CASCADE FH Registry Patient Portal Over 7,000 people receive its newsletter In-person events for FH families held in Boston, Rochester MN, Portland OR, Dallas/Ft Worth, Northern CA, Southern CA, Miami, Dallas, Pasadena (x2), Arlington (x3), Rockville, Philadelphia, Maine, Kansas
City.	(6) The Foundation began by raising financial support from among the few patients and health-care professionals who knew about Familial Hypercholesterolemia. The Foundation is organized and operated to attract new and additional public or governmental support on a continuous basis. -Our percentage of public support continues to increase. In 2017, we calculated our public support at 15.33%, in 2018, we calculated our public support at 18.26%, and now in 2019, we calculate our public support at 21.51%. - In its initial years of existence, the FH Foundation was able to generate financial support from among the small group of people aware of FH and deemed most likely to provide seed money. It received an amount sufficient to enable it to begin its charitable activities and undertake an expanded solicitation program. In those early years, by necessity it focused on building a credible reputation so that it can be successful in its research and educational efforts. - Through initial successful educational efforts, the Foundation increased awareness and knowledge about FH among doctors, public health officials, patients, families, and policymakers. It later began receiving support from the larger group of people learning about, or directly affected by, the disease. - Given that the Foundation's mission relates to a specific group of people affected by or concerned with the disease, and with the relatively short time the Foundation has been in existence, its fundraising efforts have been successful. - With our deep connections to the research community, with strong partnerships and collaborations with an academic research facility and another with a community-based research health system, we successfully secured sub-award agreements on two federal research grants that have diversified our funding streams. We are fulfilling our mission by participating in important research to improve the diagnosis rates of those with FH, their care and outcomes. - In 2019, the Foundation had several fundraising successes that included: Corporate Advisory Council - $150,000 FH Global Summit - requested sponsorships from 27 prospects, raised $505,534 FH Community in Action - $370,550 The Foundation received $1,527,884 in corporate support. The Foundation requested support from 10 companies on the Corporate Advisory Council. The Foundation solicited 27 prospective sponsors to support the FH Global Summit. The Foundation solicited six companies involved in the Foundation's Community in Action. The Foundation engaged in multi-channel direct marketing, raising $151,136 from individual giving donors (peer to peer fundraising, direct mail appeals, 4 email appeals, Giving Tuesday, 2 End of Year appeals, memorial and tribute gifts, etc.) The Foundation engaged a family member of someone where the parent and children have either FH or HoFH. This family member created a fundraising event around his 40th birthday and raised more than $50,000. He will do another event in 2020 and hopes to raise at least this same. The Foundation now maintains a continuous and significant program for solicitation of funds from the general public. Its activities are designed to attract support from interested segments of the general public. The Foundation expects its public support to increase in 2020. (7) The Foundation's governing body represents the broad interests of the public, rather than the personal or private interests of a limited number of donors. Its Directors represent a broad cross-section of the views and interests of the community affected by FH and have special knowledge and expertise about FH disease. - The Board of Directors consists of approximately 50% patients and 50% clinical experts. Five members of the board are physicians who treat FH patients and/or conduct FH clinical research studies without benefiting financially from the FH Foundation. - It has leaders in medicine as well as those who have played key roles in the public health fields advocating for others, such as its Chair emeritus Dr. Bill Neal. Dr. Neal has been widely recognized for his public health leadership on behalf of children nationally and especially in his home state of West Virginia. Its Vice Chair & Chief Scientific Officer, Dr. Dan Rader, has long worked with the NIH and in his position at the University of Pennsylvania on behalf of those born with the most devastating genetic conditions. - A biosketch of each of the 2019 board members is below. William A. Neal, MD Chairman of the Board William A. Neal, MD, a native of Huntington, WV, earned his undergraduate degree from Xavier University in Cincinnati, Ohio in 1962. His medical degree was awarded by West Virginia University in 1966, where he was the first recipient of the Edward J. Van Liere Award for medical student research. From 1985 to 1998 he served as Chair of the WVU Department of Pediatrics. Dr. Neal was instrumental in the conceptualization and development of WVU Children's Hospital and served as its first Medical Director. Dr. Neal is currently James H. Walker Professor of Preventive Cardiology in the Department of Pediatrics at West Virginia University. Upon graduation from medical school, Dr. Neal continued training as a rotating intern at the Milwaukee County General Hospital, Marquette University, 1966-'67. He was then commissioned in the U.S. Navy, where after graduation from the Naval Aerospace Medical Institute, he was assigned as Flight Surgeon aboard the USS Constellation. He made two combat tours to Vietnam. Postgraduate education in his chosen specialty of pediatric cardiology was accomplished at the University of Minnesota 1970-74. Dr. Neal then joined the faculty at WVU. He was awarded Emeritus status July 1, 2014 after forty years of service to the University and State. Neal's clinical career at WVU focused on development and regionalization of newborn intensive care, establishment of a statewide system of outreach clinics in pediatric cardiology, and founding of the Coronary Artery Risk Detection In Appalachian Communities (CARDIAC) Project. CARDIAC has provided risk factor surveillance, intervention, and research for over 150,000 school-age children from every West Virginia Community over the past sixteen years. As the largest comprehensive accumulation of health status data on children in the nation it has strongly influenced policy guidelines of the American Academy of Pediatrics regarding blood cholesterol screening and treatment for children at risk for premature heart disease and diabetes. He currently serves on the Board of Directors of the Familial Hypercholesterolemia Foundation. He was named Distinguished Alumnus of the WVU School of Medicine in 2006. Stacey R. Lane, JD, MBE Vice Chair Stacey Lane is a graduate of the University of Pennsylvania and received her J.D. from Fordham University School of Law. Additionally, she received a Master's Degree in Bioethics from Penn, with a concentration in public policy and regulation of new medical technologies. In addition to her work with the FH Foundation, Stacey is a member of the Board of Trustees of Montefiore Hospital in the Bronx, and is working on several bioethics initiatives in the New York area. She is also on the Advisory Council of the Hastings Center and is a member of the Advisory Board of the Bioethics Masters Program at Columbia University. Having been diagnosed with FH when she was 8, Stacey was originally treated at Rockefeller University in New York in the 1960s in some of the first cholesterol studies and has been monitored consistently since that time. She is the mother of three sons, two of whom also have FH. Mary P. McGowan, MD Secretary Treasurer Mary McGowan received her medical degree from the University of Massachusetts. She remained at the University of Massachusetts Medical Center for both intern- ship and residency. She completed her fellowship at Johns Hopkins Hospital. Dr. McGowan is the Co-Director of the Lipid Clinic at Dartmouth Hitchcock Heart and Vascular Center. She is the author of numerous articles and five books. She has been the principal investigator on over 30 national and international clinical trials and has lectured widely in the United States, Canada, Europe and Asia on cholesterol metabolism. Dr. McGowan serves on the alumni board at the University of Massachusetts Medical Center and the National Lipid Association Foundation Board. She has previously served on the National Lipid Association Board of Di- rectors, the NH Affiliate of the American Heart Association Board and was the first Chief Medical Officer of the Familial Hypercholesterolemia Foundation. Dr. McGowan lives in Bedford, NH with her husband. They have three children. Barry A. Brooks, JD
Board Member	Barry Brooks is a partner of Paul Hastings, LLP, an international law firm with approximately 1,000 attorneys, and has practiced with that firm for 35 years, starting in the Los Angeles and Santa Monica, California offices, and moving to New York City in 1990. Mr. Brooks is currently the Chair the New York Office of the Firm - which at 275 attorneys is the Firm's largest. Mr. Brooks represents parties in a variety of complex transactions and is the chair of the firm's New York office and a partner in its Corporate Department. He represents parties in a broad range of public and private domestic and international mergers and acquisitions, private equity, corporate finance and joint venture transactions. Mr. Brooks represents private equity funds, hedge funds and other private investment funds and institutional investors and private and public operating companies in various industries. Mr. Brooks also advises public companies and their boards and committees in connection with corporate responsibility, fiduciary duty, disclosure and executive employment matters. Mr. Brooks is the Vice Chair and a board member of the Tennis Foundation Of Connecticut, which has sponsored the annual Connecticut Open tennis tournament since 1989 and sponsors multiple programs to promote women's causes and local youth access to tennis and other sports programs. Mr. Brooks is a member of the State Bars of New York and California and of the American Bar Association. Mr. Brooks received his A.B. degree, summa cum laude, Phi Beta Kappa, in 1978 from the University of California at Los Angeles and his J.D. degree, cum laude, in 1981 from Harvard Law School, cum laude. Allison Jamison Board Member Allison serves the FH Foundation as a volunteer FH Advocate for Awareness and as a Board Member. She earned her BS in Commerce from the University of Virginia, and her MBA from the University of Texas at Austin. She currently works as the director of recruitment and marketing for the Daytime MBA and MMS programs at Duke Fuqua School of business. Joshua W. Knowles, MD, PhD Chief Research Advisor Dr. Joshua W. Knowles is an Attending Physician in the Stanford Center for Inherited Cardiovascular Disease where he treats patients with Familial Hypercholesterolemia (FH). He has had a longstanding interest in the genetic (inherited) basis of cardiovascular disease and in particular the use modern genetic techniques to improve our ability to diagnose and treat patients at risk of heart disease. Dr. Knowles completed his MD-PhD at the University of North Carolina at Chapel Hill where he worked in the lab of Prof. Nobuyo Maeda and Nobel Laureate Oliver Smithies studying animal models of atherosclerosis and lipid metabolism. He then completed his Internal Medicine residency and Cardiovascular Medicine fellowship training at Stanford University working in the lab of Dr. Thomas Quertermous. He has published over 35 papers focused on heart disease with research projects currently funded by the National Institutes of Health and the American Heart Association. He is particularly excited to be involved with the FH Foundation in their mission to increase awareness of this condition, identify patients with FH, encourage screening of family members of those with FH and facilitate treatment of FH patients. He views FH as a "winnable battle" because once FH is identified, it can be usually be treated quite effectively. Josh and his wife Juliet live in Palo Alto with their daughter. Daniel J. Rader, MD Chief Scientific Advisor Dr. Rader is the Seymour Gray Professor of Molecular Medicine at the Perelman School of Medicine at the University of Pennsylvania. He serves as the Chair of the Department of Genetics as well as the Chief of the Division of Translational Medicine and Human Genetics in the Department of Medicine. He is also Associate Director of Penn's Institute for Translational Medicine and Therapeutics. Dr. Rader's research focuses on the human genetics and functional genomics of lipoprotein metabolism and atherosclerosis, as well as the translational implications for novel therapeutic approaches. He led the scientific and clinical development of a first-in-class inhibitor of microsomal transfer protein for the treatment of severe hypercholesterolemia, which is now on the market. He has a particular interest in HDL metabolism and function, and novel approaches to targeting HDL metabolism and reverse cholesterol transport in the treatment, prevention, and regression of atherosclerosis. Dr Rader trained in internal medicine at Yale-New Haven Hospital and in human genetics and physiology of lipoprotein metabolism at the National Institutes of Health. He has been on the Penn faculty since 1994. Dr. Rader is a member of the American Society of Clinical Investigation, the Association of American Physicians, and the Institute of Medicine of the National Academy of Sciences. He is a recipient of several awards including the Clinical Research Award from the American Heart Association. Michael D. Shapiro, DO Board Member Dr. Shapiro is currently an Associate Professor of Medicine and Radiology at Oregon Health & Science University where he is on faculty in the Knight Cardiovascular Institute. After completing a cardiology fellowship, Michael spent two additional years in a clinical and research fellowship focused on advanced cardiovascular imaging at Massachusetts General Hospital. At OHSU, he's been able to combine his interests in atherosclerosis imaging and prevention of cardiovascular disease. He is Director of the Cardiac MR CT Program, Director of Atherosclerosis imaging, and Associate Director of the Center for Preventive Cardiology. His clinical practice is dedicated to the evaluation and management of patients with or at risk for atherosclerotic cardiovascular disease, with a specific focus on Familial Hypercholesterolemia. Michael has published extensively in the areas of atherosclerosis imaging, lipid disorders, and preventive cardiology. Additionally, he is engaged in clinical trials testing novel lipid modulating therapeutics. His current investigative research focuses on PCSK9 physiology and its impact on lipoprotein metabolism and he directs a large registry and biorepository at the OHSU's Center for Preventive Cardiology. He has enjoyed working with the FH Foundation since its inception and is deeply committed to its mission. Michael and his wife, Grace, live in Portland, OR with their two children. Maria E. Sophocles, MD Board Member Maria Sophocles is a board-certified ob/gyn in practice since 1995. She is currently the Medical Director of Women's Healthcare of Princeton, a progressive practice she founded in 2007. She is a Sexual Medicine specialist who pioneered the use of Co2 laser for vaginal and vulvar applications. She has introduced the technology on five continents and advocates for women's health issues through teaching and lecturing lay public and clinicians nationally and internationally. As an Ob/Gyn and one of 15 members of her family with FH, she hopes to see FH diagnosed more in adult and adolescent women. She believes there is an as yet untapped opportunity to increase awareness and diagnosis of FH through Ob/Gyns since 25% of women use an Ob/Gyn as their sole clinical provider, and women are the primary gatherers for clinical information in the family unit. Katherine A. Wilemon Founder, CEO Katherine's own journey to receive an accurate diagnosis and appropriate care for Familial Hypercholesterolemia (FH) urged her to devote her life to this cause. After being turned away from the ER several times and having a heart attack at 38, Katherine set out to raise awareness of FH and save lives. Katherine has spoken to thousands of people across the US and Europe in her effort to bring FH into focus, both for the public and the medical community. In the U.S. alone there are more than 1.3 million people affected by FH, yet 90% of them are undiagnosed. With the formation of The FH Foundation in 2011, Katherine's goals are to reverse the shocking statistics and empower people with FH to have longer, healthier lives.

Schedule A (Form 990 or 990-EZ) 2019

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Schedule B
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Schedule of Contributors

Attach to Form 990, 990-EZ, or 990-PF.

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2019

Name of the organization

The Familial Hypercholesterolemia
Foundation

Employer identification number

45-4597425

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Cat. No. 30613XSchedule B (Form 990, 990-EZ, or 990-PF) (2019)

Schedule B (Form 990, 990-EZ, or 990-PF) (2019) Page 2

Name of organization The Familial Hypercholesterolemia Foundation

Part I Contributors	Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
RESTRICTED	,	$ RESTRICTED	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
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		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
Schedule B (Form 990, 990-EZ, or 990-PF) (2019)

Schedule B (Form 990, 990-EZ, or 990-PF) (2019)

Page 3

Name of organization The Familial Hypercholesterolemia Foundation		Employer identification number 45-4597425

Part II	Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
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(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
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(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
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(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
Schedule B (Form 990, 990-EZ, or 990-PF) (2019)

Schedule B (Form 990, 990-EZ, or 990-PF) (2019)

Page 4


Name of organization The Familial Hypercholesterolemia Foundation			Employer identification number 45-4597425
Part III Exclusively religious, charitable, etc., contributions to organizations described in section 501(c)(7), (8), or (10) that total more than $1,000 for the year from any one contributor. Complete columns (a) through (e) and the following line entry. For organizations completing Part III, enter the total of exclusively religious, charitable, etc., contributions of $1,000 or less for the year. (Enter this information once. See instructions.) $ Use duplicate copies of Part III if additional space is needed.

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(a)
No. from Part I

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(e) Transfer of gift
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(a)
No. from Part I

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(e) Transfer of gift
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(a)
No. from Part I

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Schedule B (Form 990, 990-EZ, or 990-PF) (2019)

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SCHEDULE C
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SchCMd Bullet

Complete if the organization is described below. SchCMd Bullet

Attach to Form 990 or Form 990-EZ.
SchCMd Bullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public
Inspection

If the organization answered "Yes" on Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet

Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet

Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet

Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" on Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet

Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet

Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" on Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet

Section 501(c)(4), (5), or (6) organizations: Complete Part III.

Name of the organization

The Familial Hypercholesterolemia
Foundation

Employer identification number

45-4597425

Part I-A

Complete if the organization is exempt under section 501(c) or is a section 527 organization.

Provide a description of the organization’s direct and indirect political campaign activities in Part IV (see instructions for definition of “political campaign activities")

Political campaign activity expenditures (see instructions) .................................................................... SchCMd Bullet

Volunteer hours for political campaign activities (see instructions) ..................................................................

Part I-B

Complete if the organization is exempt under section 501(c)(3).

Enter the amount of any excise tax incurred by the organization under section 4955 ................................ SchCMd Bullet

Enter the amount of any excise tax incurred by organization managers under section 4955 ....................... SchCMd Bullet

If the organization incurred a section 4955 tax, did it file Form 4720 for this year? .........................................

Yes No

Was a correction made? ......................................................................................................................

Yes No

If "Yes," describe in Part IV.

Part I-C

Complete if the organization is exempt under section 501(c), except section 501(c)(3).

Enter the amount directly expended by the filing organization for section 527 exempt function activities ..... SchCMd Bullet

Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ............................................................................................................................ SchCMd Bullet

Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b........... SchCMd Bullet

Did the filing organization file Form 1120-POL for this year? ...................................................................

Yes No

Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.

(a) Name	(b) Address	(c) EIN	(d) Amount paid from filing organization's funds. If none, enter -0-.	(e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.
1
2
3
4
5
6

For Paperwork Reduction Act Notice, see the instructions for Form 990 or 990-EZ.

Cat. No. 50084S

Schedule C (Form 990 or 990-EZ) 2019

Page 2

Part II-A

Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).

A Check SchCMd Bullet

if the filing organization belongs to an affiliated group (and list in Part IV each affiliated group member's name, address, EIN, expenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet

if the filing organization checked box A and "limited control" provisions apply.

Limits on Lobbying Expenditures (The term "expenditures" means amounts paid or incurred.)		(b) Affiliated group totals
1a	Total lobbying expenditures to influence public opinion (grass roots lobbying) ......................
b	Total lobbying expenditures to influence a legislative body (direct lobbying) ........................
c	Total lobbying expenditures (add lines 1a and 1b) ............................................................
d	Other exempt purpose expenditures ...............................................................................
e	Total exempt purpose expenditures (add lines 1c and 1d) ..................................................
f	Lobbying nontaxable amount. Enter the amount from the following table in both columns.
	If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
	Not over $500,00020% of the amount on line 1e.
	Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
	Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
	Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
	Over $17,000,000$1,000,000.

g	Grassroots nontaxable amount (enter 25% of line 1f) .................................................
h	Subtract line 1g from line 1a. If zero or less, enter -0-. ................................................
i	Subtract line 1f from line 1c. If zero or less, enter -0-. ................................................
j	If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting section 4911 tax for this year? ...................................................................................................................	Yes No

4-Year Averaging Period Under Section 501(h) (Some organizations that made a section 501(h) election do not have to complete all of the five columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
	Calendar year (or fiscal year beginning in)	(a) 2016	(b) 2017	(c) 2018	(d) 2019	(e) Total

2a	Lobbying nontaxable amount

b	Lobbying ceiling amount (150% of line 2a, column(e))

c	Total lobbying expenditures

d	Grassroots nontaxable amount

e	Grassroots ceiling amount (150% of line 2d, column (e))

f	Grassroots lobbying expenditures

Schedule C (Form 990 or 990-EZ) 2019

Page 3

Part II-B

Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).

For each "Yes" response on lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.

(a)

Yes|No

(b)

Amount

During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:

Volunteers? ...........................................................................................................

Yes

Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ........

Yes

Media advertisements? ...................................................................................................

Mailings to members, legislators, or the public? .............................................................................

Publications, or published or broadcast statements? ...........................................................

Grants to other organizations for lobbying purposes? ..........................................................

Direct contact with legislators, their staffs, government officials, or a legislative body? .......................

Yes

132,556

Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ..................

Other activities? ...................................................................................................................

Total. Add lines 1c through 1i ....................................................................................................

132,556

Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....

If "Yes," enter the amount of any tax incurred under section 4912 ...........................................

If "Yes," enter the amount of any tax incurred by organization managers under section 4912 ...................

If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? ........................

Part III-A

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).

Yes

Were substantially all (90% or more) dues received nondeductible by members? ...............................................

Did the organization make only in-house lobbying expenditures of $2,000 or less? ............................................

Did the organization agree to carry over lobbying and political expenditures from the prior year? .................................

Part III-B

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."

Dues, assessments and similar amounts from members ......................................................................

Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political expenses for which the section 527(f) tax was paid).

Current year .............................................................................................................................

Carryover from last year ............................................................................................................

Total ...........................................................................................................................................

Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .

If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ......................................................................................................................

Taxable amount of lobbying and political expenditures (see instructions) .........................................

Part IV

Supplemental Information

Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.

Return Reference	Explanation
Part II-B, Line 1:	The FH Foundation hired the firm McAllister & Quinn to help us advance our efforts in educating Members of Congress on the need to find, screen, diagnose and treat individuals with familial hypercholesterolemia (FH) - approximately 1.3 million Americans and only 15% of them know they have FH. McAllister & Quinn developed a strategy with us to advocate to Members of Congress for specific funding to address this unmet need. The strategy began with McAllister & Quinn attending a volunteer education seminar in January 2019 where they trained 22 volunteers (Advocates) and FH Foundation staff members about the Congressional appropriations process and how to ask Members for their support. Prior to this Advocates and staff training, FH Foundation staff drafted a letter of request asking for a specific amount of funds to be added to the Centers for Disease Control and Prevention (CDC) budget to address FH. Another letter of request was drafted asking for FH to be added to the eligible topics for research funding in the Peer Reviewed Medical Research Program of the Department of Defense. FH staff members set up Congressional visits with Members or their staff for the Advocates and FH staff members, with the help of McAllister & Quinn. Twenty-eight meetings were held with Members of Congress in January 2019 and approximately 10 additional meetings were held throughout the year. After these meetings, the Advocates and FH staff members followed up by email with the Members throughout the FY20 appropriations process. The lobbying resulted in CDC being appropriated $100,000 for the first time to specifically address familial hypercholesterolemia. In addition, familial hypercholesterolemia was included as an eligible research topic in the DoD Peer Reviewed Medical Research Program.

Return Reference

Explanation

Part II-B, Line 1:

The FH Foundation hired the firm McAllister & Quinn to help us advance our efforts in educating Members of Congress on the need to find, screen, diagnose and treat individuals with familial hypercholesterolemia (FH) - approximately 1.3 million Americans and only 15% of them know they have FH. McAllister & Quinn developed a strategy with us to advocate to Members of Congress for specific funding to address this unmet need. The strategy began with McAllister & Quinn attending a volunteer education seminar in January 2019 where they trained 22 volunteers (Advocates) and FH Foundation staff members about the Congressional appropriations process and how to ask Members for their support. Prior to this Advocates and staff training, FH Foundation staff drafted a letter of request asking for a specific amount of funds to be added to the Centers for Disease Control and Prevention (CDC) budget to address FH. Another letter of request was drafted asking for FH to be added to the eligible topics for research funding in the Peer Reviewed Medical Research Program of the Department of Defense. FH staff members set up Congressional visits with Members or their staff for the Advocates and FH staff members, with the help of McAllister & Quinn. Twenty-eight meetings were held with Members of Congress in January 2019 and approximately 10 additional meetings were held throughout the year. After these meetings, the Advocates and FH staff members followed up by email with the Members throughout the FY20 appropriations process. The lobbying resulted in CDC being appropriated $100,000 for the first time to specifically address familial hypercholesterolemia. In addition, familial hypercholesterolemia was included as an eligible research topic in the DoD Peer Reviewed Medical Research Program.

Schedule C (Form 990 or 990EZ) 2019

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE D
(Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Financial Statements

Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
SchDMd Bullet

Attach to Form 990.
SchDMd Bullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public Inspection

Name of the organization

The Familial Hypercholesterolemia
Foundation

Employer identification number

45-4597425

Part I

Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.

		(a) Donor advised funds	(b) Funds and other accounts
1	Total number at end of year .........
2	Aggregate value of contributions to (during year)
3	Aggregate value of grants from (during year)
4	Aggregate value at end of year ........

Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............

Yes No

Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................

Yes No

Part II

Conservation Easements.
Complete if the organization answered "Yes" on Form 990, Part IV, line 7.

Purpose(s) of conservation easements held by the organization (check all that apply).

Preservation of land for public use (e.g., recreation or education) Preservation of an historically important land area

Protection of natural habitat Preservation of a certified historic structure

Preservation of open space

Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.


a	Total number of conservation easements ......................	2a
b	Total acreage restricted by conservation easements ....................	2b
c	Number of conservation easements on a certified historic structure included in (a) .....	2c
d	Number of conservation easements included in (c) acquired after 7/25/06, and not on a historic structure listed in the National Register ...	2d

Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year SchDMd Bullet

Number of states where property subject to conservation easement is located SchDMd Bullet

Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............

Yes No

Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet

Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet

Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................

Yes No

In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.

If the organization elected, as permitted under FASB ASC 958, not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.

If the organization elected, as permitted under FASB ASC 958, to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:

(i)

Revenue included on Form 990, Part VIII, line 1 ......................... SchDMd Bullet

(ii)

Assets included in Form 990, Part X ............................... SchDMd Bullet

If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under FASB ASC 958 relating to these items:

Revenue included on Form 990, Part VIII, line 1 .......................... SchDMd Bullet

Assets included in Form 990, Part X ............................... SchDMd Bullet

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 52283D

Schedule D (Form 990) 2019

Page 2

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)

Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):

Public exhibition

Loan or exchange programs

Scholarly research

Other

Preservation for future generations

Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.

During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...

Yes No

Part IV

Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.

Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................

Yes No


b	If "Yes," explain the arrangement in Part XIII and complete the following table:		Amount
c	Beginning balance .............................	1c
d	Additions during the year ............................	1d
e	Distributions during the year ..........................	1e
f	Ending balance ................................	1f

Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...

Yes No

If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....

Part V

Endowment Funds.
Complete if the organization answered "Yes" on Form 990, Part IV, line 10.

		(a) Current year	(b) Prior year	(c) Two years back	(d) Three years back	(e) Four years back

1a	Beginning of year balance ....
b	Contributions ...
c	Net investment earnings, gains, and losses
d	Grants or scholarships ...
e	Other expenditures for facilities and programs ...
f	Administrative expenses ....
g	End of year balance ......

Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:

Board designated or quasi-endowment SchDMd Bullet

Permanent endowment SchDMd Bullet

Term endowment SchDMd Bullet

The percentages on lines 2a, 2b, and 2c should equal 100%.

Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes

(i) Unrelated organizations .................

3a(i)

(ii) Related organizations .................

3a(ii)

If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........

Describe in Part XIII the intended uses of the organization's endowment funds.

Part VI

Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.

Description of property		(a) Cost or other basis (investment)	(b) Cost or other basis (other)	(c) Accumulated depreciation	(d) Book value

1a	Land .....
b	Buildings ....
c	Leasehold improvements	12,496	10,234	2,262
d	Equipment ....	45,049	20,197	24,852
e	Other .....
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).)..				27,114

Schedule D (Form 990) 2019

Page 3

Part VII

InvestmentsOther Securities.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.

(a) Description of security or category (including name of security)	(b) Book value	(c) Method of valuation: Cost or end-of-year market value
(1) Financial derivatives.........
(2) Closely-held equity interests........
(3)Other
(B)
(C)
(D)
(E)
(F)
(G)
(H)
(I)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)

Part VIII

InvestmentsProgram Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.

(a) Description of investment	(b) Book value	(c) Method of valuation: Cost or end-of-year market value

(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)

Part IX

Other Assets.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.

(a) Description				(b) Book value

(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........

Part X

Other Liabilities.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.

1.(a) Description of liability	(b) Book value
(1) Federal income taxes

(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII

Schedule D (Form 990) 2019

Page 4

Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total revenue, gains, and other support per audited financial statements .......			1	3,557,190
2	Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a	Net unrealized gains (losses) on investments ....	2a	97,183
b	Donated services and use of facilities .........	2b	531
c	Recoveries of prior year grants ...........	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d .....................			2e	97,714
3	Subtract line 2e from line 1..................			3	3,459,476
4	Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b .	4a
b	Other (Describe in Part XIII.) ...........	4b
c	Add lines 4a and 4b....................			4c	0
5	Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ......			5	3,459,476

Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total expenses and losses per audited financial statements ...........		1	5,012,467
2	Amounts included on line 1 but not on Form 990, Part IX, line 25:
a	Donated services and use of facilities .........	2a
b	Prior year adjustments ............	2b
c	Other losses ................	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d....................		2e	0
3	Subtract line 2e from line 1...................		3	5,012,467
4	Amounts included on Form 990, Part IX, line 25, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b ..	4a
b	Other (Describe in Part XIII.) ............	4b
c	Add lines 4a and 4b.....................		4c	0
5	Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ......		5	5,012,467

Part XIII

Supplemental Information

Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.

Return Reference

Explanation

Part X, Line 2:

The FH Foundation is exempt from taxation under Internal Revenue Code Section 501(c)(3) and California Revenue and Taxation Code Section 23701d. Generally accepted accounting principles provide accounting and disclosure guidance about positions taken by an organization in its tax returns that might be uncertain. Management has considered its tax positions and believes that all of the positions taken by The FH Foundation in its federal and state exempt organization tax returns are more likely than not to be sustained upon examination. The FH Foundation's returns are subject to examination by federal and state taxing authorities, generally for three and four years, respectively, after they are filed.

Schedule D (Form 990) 2019

Additional Data

Software ID:
Software Version:

- TIN:

Schedule J
(Form 990)

Department of the Treasury
Internal Revenue Service

Compensation Information

For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
SchJMediumBullet

Complete if the organization answered "Yes" on Form 990, Part IV, line 23.
SchJMediumBullet

Attach to Form 990.
SchJMediumBullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2019

Open to Public Inspection

Name of the organization

The Familial Hypercholesterolemia
Foundation

Employer identification number

45-4597425

Part I

Questions Regarding Compensation

Yes

Check the appropiate box(es) if the organization provided any of the following to or for a person listed on Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.

First-class or charter travel Housing allowance or residence for personal use

Travel for companions Payments for business use of personal residence

Tax idemnification and gross-up payments Health or social club dues or initiation fees

Discretionary spending account Personal services (e.g., maid, chauffeur, chef)

If any of the boxes on Line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain .........

Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked on Line 1a? ..

Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.

Compensation committee Written employment contract

Independent compensation consultant Compensation survey or study

Form 990 of other organizations Approval by the board or compensation committee

During the year, did any person listed on Form 990, Part VII, Section A, line 1a, with respect to the filing organization or a related organization:

Receive a severance payment or change-of-control payment? .............

Yes

Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........

Participate in, or receive payment from, an equity-based compensation arrangement? .........

If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.

Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:

The organization? ....................

Any related organization? .......................

If "Yes," on line 5a or 5b, describe in Part III.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:

The organization? ..................

Any related organization? ......................

If "Yes," on line 6a or 6b, describe in Part III.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization provide any nonfixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............

Were any amounts reported on Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III ..........................

If "Yes" on line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50053T

Schedule J (Form 990) 2019

Page 2

Part II

Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.

For each individual whose compensation must be reported on Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.

(A) Name and Title		(B) Breakdown of W-2 and/or 1099-MISC compensation			(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)	(F) Compensation in column (B) reported as deferred on prior Form 990
(A) Name and Title		(i) Base compensation	(ii) Bonus & incentive compensation	(iii) Other reportable compensation	(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)
1Katherine Wilemon CEO/Board Member	(i) (ii)	265,529 ------------- 0	62,500 ------------- 0	0 ------------- 0	0 ------------- 0	10,336 ------------- 0	338,365 ------------- 0	0 ------------- 0
2A Sheldon VP of Marketing	(i) (ii)	161,136 ------------- 0	7,600 ------------- 0	0 ------------- 0	0 ------------- 0	7,373 ------------- 0	176,109 ------------- 0	0 ------------- 0
3Catherine Ahmed VP of Policy	(i) (ii)	149,478 ------------- 0	7,000 ------------- 0	0 ------------- 0	0 ------------- 0	0 ------------- 0	156,478 ------------- 0	0 ------------- 0
4S Gidding MD CMedO (Term end Dec.)	(i) (ii)	113,716 ------------- 0	30,000 ------------- 0	0 ------------- 0	0 ------------- 0	9,698 ------------- 0	153,414 ------------- 0	0 ------------- 0

Schedule J (Form 990) 2019

Page 3

Part III

Supplemental Information

Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II. Also complete this part for any additional information.

Return Reference	Explanation
Part I, Line 4a	S. Gidding, MD received severance payment of $30,000 during the reporting period.

Schedule J (Form 990) 2019

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE O
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service

Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet

Attach to Form 990 or 990-EZ.
MediumBullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2019

Open to Public
Inspection

Name of the organization

The Familial Hypercholesterolemia
Foundation

Employer identification number

45-4597425

Return Reference	Explanation
Form 990, Part I, line 1, Description of Organization MIssion:	advocacy, and education of familial hypercholesterolemia (FH). Our mission is to raise awareness of FH in order to increase the rate of early diagnosis and encouraging proactive treatment. If left untreated, FH leads to aggressive and premature heart disease in women, men and children of all racial and ethnic backgrounds. The FH Foundation is the result of the team effort of patients and healthcare practitioners who have joined their knowledge and passion for helping others in changing the status quo for FH. We are honored to have key FH opinion leaders, both from the U.S. and international arena, sharing their expertise and research insight with The FH Foundation. Our success is rooted in collaboration, innovation, and commitment. With the help of a dedicated group of physicians and nurse practitioners, professional organizations, governmental representatives, and volunteers, The FH Foundation takes pride in its forward-thinking and versatile approach to making a real change in the world of FH. Programs and Initiatives are: CASCADE FH Registry FIND FH FH Global Summit FH Awareness Day FH Patient Speakers Bureau Grand Rounds & Family Forum HoFH Community
Form 990, Part VI, Section B, line 11b	The Form 990 is e-mailed to each member and reviewed via electronic media prior to filing.
Form 990, Part VI, Section B, line 12c	Conflicts of interest are monitored annually and reviewed by the governing body prior to approval or determination of action.
Form 990, Part VI, Section B, line 15a	The CEO's salary is reviewed on an annual basis by the Board of Directors and then approved by the Executive Committee. Part VI, line 15(b) was answered "no" as there were no other officers or key employees as defined in Form 990 instructions who received compensation.
Form 990, Part VI, Section C, line 19	All documents are available to the public upon request.

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 51056K

Schedule O (Form 990 or 990-EZ) 2019

Additional Data

Software ID:
Software Version:

1	Briefly describe the organization’s mission or most significant activities: The FH Foundation is a patient-centered nonprofit organization dedicated to research,
2	Check this box
3	Number of voting members of the governing body (Part VI, line 1a) ........	3	10
4	Number of independent voting members of the governing body (Part VI, line 1b) .....	4	9
5	Total number of individuals employed in calendar year 2019 (Part V, line 2a) ......	5	16
6	Total number of volunteers (estimate if necessary) .............	6	9
7a	Total unrelated business revenue from Part VIII, column (C), line 12 ........	7a	0
b	Net unrelated business taxable income from Form 990-T, line 39 .........	7b	0

		Prior Year	Current Year
8	Contributions and grants (Part VIII, line 1h) .........	1,820,693	1,848,898
9	Program service revenue (Part VIII, line 2g) .........	1,245,585	1,569,593
10	Investment income (Part VIII, column (A), lines 3, 4, and 7d ) ....	32,385	32,742
11	Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e)	149	8,243
12	Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)	3,098,812	3,459,476
13	Grants and similar amounts paid (Part IX, column (A), lines 1–3 )...	0	0
14	Benefits paid to or for members (Part IX, column (A), line 4).....	0	0
15	Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10)	1,781,345	1,873,673
16a	Professional fundraising fees (Part IX, column (A), line 11e) .....	0	0
b	Total fundraising expenses (Part IX, column (D), line 25) 393,097
17	Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e)....	3,904,441	3,138,794
18	Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25)	5,685,786	5,012,467
19	Revenue less expenses. Subtract line 18 from line 12.......	-2,586,974	-1,552,991
		Beginning of Current Year	End of Year
20	Total assets (Part X, line 16).............	5,284,854	3,585,638
21	Total liabilities (Part X, line 26).............	463,353	219,414
22	Net assets or fund balances. Subtract line 21 from line 20.....	4,821,501	3,366,224

Sign Here

	Signature of officer	Date

	Type or print name and title


4a	(Code: ) (Expenses $ 1,275,946 including grants of $ ) (Revenue $ )
	CASCADE FH Registry - To address gaps in FH diagnosis and treatment, in 2013, the FH Foundation launched and now maintains a national FH patient registry. The Cascade Screening for Awareness and Detection of Familial Hypercholesterolemia (CASCADE FH Registry) collects comprehensive longitudinal data on individuals with confirmed or suspected FH. The CASCADE FH Registry serves as a key instrument to support health service planning, increase knowledge on the disease, and pool data for epidemiological, clinical and outcomes research, as well as for therapy effectiveness. The CASCADE FH Registry employs an innovative hybrid design to maximize data collection: (A) data is collected from partnering clinical sites, and (B) patients can directly enter their data via a user-friendly patient portal hosted on the FH Foundation website. This dual-pathway enrollment design maximizes outreach and provides both the clinical and patient perspective. Data entered through both methods are secure and can be accessed through queries. Data includes baseline and follow-up information on demographics, laboratory values, treatment, and clinical events.

4b	(Code: ) (Expenses $ 1,103,130 including grants of $ ) (Revenue $ 1,499,000 )
	FIND FH - Flag/Identify/Network/Deliver - is a national initiative that utilizes machine learning, natural language processing, and data mining techniques to identify individuals whose profiles are consistent with FH patients. FIND FH directly addresses the fact that an estimated 90% of patients with FH are currently undiagnosed and do not have the opportunity to reduce their risk of early and aggressive cardiovascular disease. FIND FH includes the development, validation, and implementation of algorithms to flag individuals who need to be screened by a clinician for a possible FH diagnosis. The algorithms search healthcare encounter data sets including lab results, claims data, and electronic health record systems. With the results, The FH Foundation identifies healthcare providers (HCPs) with patients who have medical records containing key features consistent with a person having FH and reaches out to those HCPs to help them find the patients to be screened.

4c	(Code: ) (Expenses $ 632,307 including grants of $ ) (Revenue $ )
	FOCUS - FH Optimal Care in the US (FOCUS) creates and disseminates effective tools for patients, healthcare providers, policy makers, payers, and other partners to be used throughout the diagnosis, treatment, and long-term management phases of FH. FOCUS provides data-backed assistance utilizing clinical, economic, and humanistic outcomes to better inform the path forward. This work quantifies the challenges that individuals with FH have in gaining access to important new therapies. The FH Foundation addresses these challenges through data insights, awareness-raising efforts, educational tools (including the FOCUS Multimedia Toolkit and a mobile diagnostic app), and engagement of health plans and systems.

	(Code: ) (Expenses $ 554,775 including grants of $ ) (Revenue $ )
	FH Global Summit - The FH Foundation's FH Global Summit is an invitation-only conference bringing together world-renowned experts in FH, genetics, and healthcare policy to improve the awareness, diagnosis and management of FH. This two-day event features compelling and cutting edge presentations that share insights and research to enhance the scientific understanding of FH. Presenters and guests include leading cardiologists, lipidologists, researchers, physicians, and patients. The event provides a grand platform to share insights and practices underline for concerted and urgent action on behalf of those living with FH.

	(Code: ) (Expenses $ 477,427 including grants of $ ) (Revenue $ )
	FH Awareness - The FH Awareness Campaign is an annual international health awareness and educational campaign that raises awareness of FH, bringing worldwide attention to its diagnosis and treatment throughout the month of September. As a key part of the campaign's development, the FH Foundation established FH Awareness Day on September 24th, which is now strengthened by multiple state proclamations and celebrated on a global scale.Since 2012, the FH Awareness Campaign has resulted in a potential reach of more than 80 million through its strategic use of news releases and PSAs, outdoor media, podcasts, and social media, including an annual "Tweet-a-thon."

	(Code: ) (Expenses $ 131,778 including grants of $ ) (Revenue $ 70,593 )
	Global Network - The Global Network is an effort to build an international collaborative community to address gaps in care for individuals with FH. The FH Foundation convenes stakeholders from around the world and acts as an honest broker for data driven solutions to improve outcomes for those living with FH. The Global Network is our effort to extend our mission and impact on a broader stage. This program includes the translation and delivery of our printed and online materials into many languages. Our website and social media platforms are often the first line of communication and the Global Network manages this outreach outside of the United States. In addition to the FH Foundation Staff, the members of the FH Foundation Scientific Advisory Board serve as ambassadors for our mission at international conferences, as leaders of professional organizations, and as principal investigators of scientific projects at major universities - key initiatives that extend our Global Network and accelerate our outreach.

	(Code: ) (Expenses $ 10,460 including grants of $ ) (Revenue $ )
	The FH Foundation's Corporate Advisory Council (CAC) offers companies the opportunity to invest in the continued growth and success of the Familial Hypercholesterolemia (FH) Foundation by providing counsel and support to the leadership of the FH Foundation. The CAC is a unique forum for leaders in the pharmaceutical and biopharmaceutical industries, payers, communications sectors, bioinformatics, genomics, and healthcare institutions to engage in a bi-directional conversation aimed at positively impacting the FH community. The FH Foundation relies on the collective experience of CAC members to empower and activate our mission.

	(Code: ) (Expenses $ 44,357 including grants of $ ) (Revenue $ )
	The FH Foundation conducted other smaller program activities throughout the year.

4d	Other program services (Describe in Schedule O.)
	(Expenses $ 1,218,797 including grants of $ ) (Revenue $ 70,593 )
4e	Total program service expenses4,230,180

1b	Sub-Total................
c	Total from continuation sheets to Part VII, Section A....
d	Total (add lines 1b and 1c)...........	906,613	0	34,179

1a	Federated campaigns..		1a
b	Membership dues..		1b
c	Fundraising events..		1c
d	Related organizations		1d
e	Government grants (contributions)		1e

f	All other contributions, gifts, grants, and similar amounts not included above		1f	1,848,898

g	Noncash contributions included in lines 1a - 1f:$		1g

h Total. Add lines 1a-1f.......		1,848,898

		Business Code
2a	Contract fees	900099	1,513,161	1,513,161
b	Conference fees	900099	56,432	56,432
c
d
e
f	All other program service revenue.
g	Total. Add lines 2a–2f .....		1,569,593

3 Investment income (including dividends, interest, and othersimilar amounts) ......			6,761			6,761
4 Income from investment of tax-exempt bond proceeds
5 Royalties...........
		(ii) Personal	(i) Real
6a	Gross rents			6a
b	Less: rental expenses			6b
c	Rental income or (loss)			6c
d	Net rental income or (loss).......
		(ii) Other	(i) Securities
7a	Gross amount from sales of assets other than inventory		75,000	7a
b	Less: cost or other basis and sales expenses		49,019	7b
c	Gain or (loss)		25,981	7c
d	Net gain or (loss).........			25,981			25,981
8a	Gross income from fundraising events (not including $ of contributions reported on line 1c). See Part IV, line 18 ....
			8a
b	Less: direct expenses ...		8b
c	Net income or (loss) from fundraising events..
9a	Gross income from gaming activities. See Part IV, line 19 ...
			9a
b	Less: direct expenses ...		9b
c	Net income or (loss) from gaming activities..
10a	Gross sales of inventory, less returns and allowances ..
			10a
b	Less: cost of goods sold ..		10b
c	Net income or (loss) from sales of inventory..
Business Code			Miscellaneous Revenue
11a	Other income		900099	8,243			8,243
b
c
d	All other revenue ....
e	Total. Add lines 11a–11d ......			8,243
12	Total revenue. See instructions.....			3,459,476	1,569,593	0	40,985

1	Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 ....
2	Grants and other assistance to domestic individuals. See Part IV, line 22 ...........
3	Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. .............
4	Benefits paid to or for members .......
5	Compensation of current officers, directors, trustees, and key employees ...........	338,365	321,447	16,918
6	Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .........
7	Other salaries and wages........	1,345,549	1,130,241	90,722	124,586
8	Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) ....
9	Other employee benefits .......	78,216	60,845	8,696	8,675
10	Payroll taxes ...........	111,543	89,011	11,604	10,928
11	Fees for services (non-employees):
a	Management ......
b	Legal .........	41,997	13,019	10,919	18,059
c	Accounting ...........	18,362	5,692	4,774	7,896
d	Lobbying ...........
e	Professional fundraising services. See Part IV, line 17
f	Investment management fees ......
g	Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O)	365,771	100,438	96,599	168,734
12	Advertising and promotion ....	270,501	257,632	1,266	11,603
13	Office expenses .......	102,107	58,211	29,323	14,573
14	Information technology ......	8,781	2,722	2,283	3,776
15	Royalties ..
16	Occupancy ...........	72,426	57,168	8,871	6,387
17	Travel ............	257,519	162,259	86,997	8,263
18	Payments of travel or entertainment expenses for any federal, state, or local public officials .
19	Conferences, conventions, and meetings ....	22,119	10,841	10,517	761
20	Interest ...........
21	Payments to affiliates .......
22	Depreciation, depletion, and amortization ..	11,067	8,301	1,106	1,660
23	Insurance ...	5,374	4,028	539	807
24	Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a	Data & Research	1,678,253	1,677,443	810
b	Events	231,789	224,828	1,300	5,661
c	Membership/subscription	47,521	45,620	1,173	728
d	Miscellaneous	4,449		4,449
e	All other expenses	758	434	324
25	Total functional expenses. Add lines 1 through 24e	5,012,467	4,230,180	389,190	393,097
26	Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here if following SOP 98-2 (ASC 958-720).

1	Cash–non-interest-bearing ........			387,359	1	927,955
2	Savings and temporary cash investments .........			2,321,018	2	1,622,629
3	Pledges and grants receivable, net ......			1,742,500	3	178,715
4	Accounts receivable, net .............			54,449	4	0
5	Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
					5
6	Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
					6
7	Notes and loans receivable, net ...........				7
8	Inventories for sale or use ............				8
9	Prepaid expenses and deferred charges ......			3,884	9	27,819
10a	Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D	10a	57,545
b	Less: accumulated depreciation	10b	30,431	19,554	10c	27,114
11	Investments—publicly traded securities .			750,313	11	795,629
12	Investments—other securities. See Part IV, line 11 .....				12
13	Investments—program-related. See Part IV, line 11 ..				13
14	Intangible assets ...............				14
15	Other assets. See Part IV, line 11 ...........			5,777	15	5,777
16	Total assets. Add lines 1 through 15 (must equal line 33)...			5,284,854	16	3,585,638

17	Accounts payable and accrued expenses .....	456,413	17	219,414
18	Grants payable ...		18
19	Deferred revenue .........	6,940	19	0
20	Tax-exempt bond liabilities .........		20
21	Escrow or custodial account liability. Complete Part IV of Schedule D		21
22	Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
			22
23	Secured mortgages and notes payable to unrelated third parties ..		23
24	Unsecured notes and loans payable to unrelated third parties ..		24
25	Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D		25
26	Total liabilities. Add lines 17 through 25..	463,353	26	219,414

	Organizations that follow FASB ASC 958, check here and complete lines 27, 28, 32, and 33.
27	Net assets without donor restrictions ..........	2,920,652	27	2,412,570
28	Net assets with donor restrictions ...........	1,900,849	28	953,654
	Organizations that do not follow FASB ASC 958, check here and complete lines 29 through 33.
29	Capital stock or trust principal, or current funds .....		29
30	Paid-in or capital surplus, or land, building or equipment fund ...		30
31	Retained earnings, endowment, accumulated income, or other funds		31
32	Total net assets or fund balances ...........	4,821,501	32	3,366,224
33	Total liabilities and net assets/fund balances ........	5,284,854	33	3,585,638