Attach to Form 990 or Form 990-EZ.
Go to
www.irs.gov/Form990 for instructions and the latest information.
| (i) Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 10 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
|
Total |
||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2016 | (b) 2017 | (c) 2018 | (d) 2019 | (e) 2020 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. | 165,519 | 160,558 | 210,723 | 245,068 | 269,698 | 1,051,566 |
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.... | 0 | |||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | 0 | |||||
| 4 | Total. Add lines 1 through 3 | 165,519 | 160,558 | 210,723 | 245,068 | 269,698 | 1,051,566 |
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f).. | 458,767 | |||||
| 6 | Public support. Subtract line 5 from line 4. | 592,799 | |||||
Calendar year
(or fiscal year beginning in) ![]() |
(a) 2016 | (b) 2017 | (c) 2018 | (d) 2019 | (e) 2020 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | 165,519 | 160,558 | 210,723 | 245,068 | 269,698 | 1,051,566 |
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | 16 | 79 | 99 | 83 | 345 | 622 |
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | 0 | |||||
| 11 | Total support. Add lines 7 through 10 | 1,052,188 | |||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2016 | (b) 2017 | (c) 2018 | (d) 2019 | (e) 2020 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | ||||||
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose | ||||||
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513 ..... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge | ||||||
| 6 | Total. Add lines 1 through 5 | ||||||
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2016 | (b) 2017 | (c) 2018 | (d) 2019 | (e) 2020 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | ||||||
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | ||||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | ||||||
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
||||
| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
||||
| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
|||||
| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by 0.035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | 1 | |
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
2 | |
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | 3 | |
| 4 Amounts paid to acquire exempt-use assets | 4 | |
| 5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI) | 5 | |
| 6 Other distributions (describe in Part VI). See instructions | 6 | |
| 7Total annual distributions. Add lines 1 through 6. | 7 | |
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
8 | |
| 9 Distributable amount for 2020 from Section C, line 6 | 9 | |
| 10 Line 8 amount divided by Line 9 amount | 10 | |
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2020 |
(iii) Distributable Amount for 2020 |
|
|---|---|---|---|---|
| 1 Distributable amount for 2020 from Section C, line 6 | ||||
|
2
Underdistributions, if any, for years prior to 2019 (reasonable cause required-- explain in Part VI). See instructions. |
||||
| 3 Excess distributions carryover, if any, to 2020: | ||||
| a From 2015....... | ||||
| b From 2016....... | ||||
| c From 2017....... | ||||
| d From 2018....... | ||||
| e From 2019....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2020 distributable amount | ||||
|
i
Carryover from 2015 not applied (see instructions) |
||||
| j Remainder. Subtract lines 3g, 3h, and 3i from line 3f. | ||||
| 4Distributions for 2020 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2020 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from line 4. | ||||
|
5
Remaining underdistributions for years prior to 2020, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
6
Remaining underdistributions for 2020. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
7 Excess distributions carryover to 2021. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a Excess from 2016..... | ||||
| b Excess from 2017..... | ||||
| c Excess from 2018..... | ||||
| d Excess from 2019..... | ||||
| e Excess from 2020..... | ||||
| Facts And Circumstances Test |
|---|
| Return Reference | Explanation |
|---|
| Software ID: | 20011566 |
| Software Version: | 2020v4.0 |
Attach to Form 990 or 990-EZ.
Go to www.irs.gov/Form990 for the latest information.
| Return Reference | Explanation |
|---|---|
| Form 990, Part III, Line 4d: Other Program Services Description | OTHER PROGRAM SERVICES 4: National Annual Meeting Education and Research Support As a chapter of the National Hemophilia Foundation, and a member organization of Hemophilia Federation of America we encourage our community members to attend the Annual Meeting of these important national organizations. We provide direct financial assistance to individuals and their families to attend. This year due to COVID-19, we were not able to support families and / or individuals affected to attend national meetings in person, however we did encourage participation virtually. In a normal year, this financial support provides community members the opportunity to learn about bleeding disorders at the national level, network with individuals around the nation and receive many national support services. We supported direct financial support for research, and the global support initiatives of the National World Hemophilia Foundations. OTHER PROGRAM SERVICES 5: Washington Days: Members of HSC advocated with 450 members of the national community at the Nations Capital in March. Our Chapter sent 7 individuals free of charge to attend and represent South Carolina in advocacy to address continued access to care and treatment. We participated in seven meetings with our US Congressmen OTHER PROGRAM SERVICES 6: Educational Conference & Events OTHER PROGRAM SERVICES 7: Mens, Womens, Young Families Support Groups: We provide sub-group support and educational programs to young families, men, and women located in all regions of the state. These programs foster educational support, empowerment, and friendship while living with a bleeding disorder. Most the events were available virtually this year due to COVID-19. OTHER PROGRAM SERVICES 8: Outreach Support: In 2020, we supported over 17 virtual educational outreach programs throughout the state; to include the Upstate, Midlands and Lowcountry. These educational events can ease the need for long distance travel for our community. Education included various topics such as scholarship assistance, camps, insurance, healthcare policies, and advocacy seminars. This year we provided educational and networking support to hundreds of families virtually. The chapter supported outreach education and awareness campaigns during the National Bleeding Disorders Awareness Month of March and supported 30 state county and city proclamations OTHER PROGRAM SERVICES 9: Winter Year-End State Meeting and Holiday Celebration: The winter state-wide meeting is Hemophilia of South Carolinas year-end meeting of the Chapter and the attendance was over 220 participants; adults, children and teens. This year due to COVID-19, we provided this event virtually with a week worth of sessions and community engagements. We also highlighted the chapters accomplishments. A virtual visit from Santa Claus and box mailings were supplied to include gifts for children and teens. . OTHER PROGRAM SERVICES 10: Hemophilia of South Carolina Teen Retreat: The teen retreat allowed teens ages 13-18 years with a bleeding disorder, or who have a sibling or parent with a bleeding disorder to come together for a four day weekend to build friendships, independence, learn self-advocacy skills and provide mentoring opportunities. Teens benefited by attending educational programs along with outdoor activities to promote friendships and build of a support system. Our program this year was specifically designed to provide encouragement in difficult situations which is sometimes a result of living with a bleeding disorder. The event was provided virtually due to COVID-19. This year we provided this opportunity to 20 teens OTHER PROGRAM SERVICES 11: Hemophilia of South Carolina Chapter Day at Camp Burnt Gin: HSC partners at camp each year with the South Carolina Hemophilia Treatment Center and the States Department of Health and Environmental Control. Our goal is to provide a special Chapter day and activity event for kids with Bleeding Disorders from around the state and patients of the Palmetto Health Cancer and Blood Disorders Clinic. We provided travel assistance for families that requested financial assistance with transportation to and from camp. We provided a Chapter Camp t-shirt and box f goodies this year as the camp was virtual due to COVID-19. Kids at camp make great strides in learning self-independence. We also supported the same activities for kids at Camp Courage from the BILO Cancer Center in Greenville OTHER PROGRAM SERVICES 12: National Organizational Support OTHER PROGRAM SERVICES 13: Public Awareness OTHER PROGRAM SERVICES 14: Emergency Assistance Program/Scholarships HSC provides a financial assistance program to families and individuals affected by bleeding disorders. This year we provide assistance to 46 individuals and families. This includes providing college scholarship funding. . OTHER PROGRAM SERVICES 15: Newsletter/ Website/ E-blasts: We provide a quarterly newsletter which contains information on the Chapter, national articles and education, products for treatment, research article, and community news from members within our chapter. The newsletter provides a vital source of communication for our members. Our website provides a wealth of supportive information. We provided monthly and by-monthly constant contact e-blast newsletters to over 900 members of the bleeding disorders community nationally with up to date information on events and educational materials. OTHER PROGRAM SERVICES 16: Par for the Clot Charity Golf Tournament Fund This charity event is an annual fundraiser to help support the Chapters overall programs and services. The revenue raised are used to support the educational programs and services, advocacy initiatives, and national research support we provide to the Bleeding Disorders community. The charity event also serves as an awareness campaign for bleeding disorders and the affects a diagnosis has individuals and their families. We had 150 participants with volunteers and community members in participation. OTHER PROGRAM SERVICES 17: HSCs Turkey Trot Walk for Hemophilia and Bleeding Disorders The walk fundraiser is one of Hemophilia of South Carolinas primary revenue sources to fund the Chapters mission to support the programs and services of Hemophilia of South Carolina. This fundraiser is open to the entire membership and general public statewide. This fitness walk helps to promote education on staying healthy for individuals with hemophilia and also serves as the Chapters public awareness campaign allowing us to reach a broader base of the general public education on bleeding disorders. Due to COVID-19 and the pandemic, this year we provided this event virtually. We had over 200 individuals in participation throughout the nation participating virtually. OTHER PROGRAM SERVICES 18: Annual Von Willebrand Disease Educational Retreat Provided an educational and support weekend to 40 individuals and families who are affected by von Willebrand Disease. Treatment therapies education for doctors in the field we on hand to provide additional medical support and education. OTHER PROGRAM SERVICES 19: Virtual Innovation Program (VIP): In response to the COVID -19 pandemic, Hemophilia of South Carolina launched a new initiative in 2020, our Virtual Innovation Program (VIP). The mission of the VIP program is to provide continuing education, support services, and to connect with members with the use of managed educational tools, such as I-Pads. Enrolled with the service of a Mobile Device Management we can provide virtual connections to web clips, videos, apps, and URLs, all of our choosing, and provide zoom virtual meeting capabilities. The program has been well embraced by the 70 families or individuals enrolled. With the huge success of this educational pilot program, we will continue to provide this opportunity to all members as funding for additional educational tools become available |
| Form 990, Part VI, Line 11b: Form 990 Review Process | ONCE THE FORM 990 IS COMPLETED, IT IS PRESNTED AT THE FIRST SCHEDULED BOARD MEETING FOR ALL BOARD MEMBERS TO REVIRW AND APPROVE |
| Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management | THE BOARD OF DIRECTORS DETERMINES EXECUTIVE DIRECTOR COMPENSTION BASED ON COMPARABLE COMPENSATION PAID FOR SIMILIAR POSITIONS AT OTHER STATE HEMOPHILIA CHAPTERS |
| Form 990, Part VI, Line 19: Other Organization Documents Publicly Available | HEMOPHILIA OF SOUTH CAROLINA MAINTAINS A WEB SITE WHEREBY MOST RELEVANT DOCUMENTS ARE AVAILABLE TO THE GENERAL PUBLIC. INTERESTED PARTIES MAY CONTACT THE CHAPTER AND REQUEST OTHER DOCUMENTS AS APPROPRIATE. CONTACT NUMBERS AND ADDRESSES ARE POSTED ON THE WEB SITE. |
| Software ID: | 20011566 |
| Software Version: | 2020v4.0 |