Attach to Form 990 or Form 990-EZ.
Go to
www.irs.gov/Form990 for instructions and the latest information.
| (i) Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 10 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
|
Total |
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Calendar year (or fiscal year beginning in) ![]() |
(a) 2016 | (b) 2017 | (c) 2018 | (d) 2019 | (e) 2020 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. | 1,530,367 | 1,657,120 | 1,666,498 | 1,870,915 | 1,282,768 | 8,007,668 |
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.... | ||||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 4 | Total. Add lines 1 through 3 | 1,530,367 | 1,657,120 | 1,666,498 | 1,870,915 | 1,282,768 | 8,007,668 |
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f).. | 494,291 | |||||
| 6 | Public support. Subtract line 5 from line 4. | 7,513,377 | |||||
Calendar year
(or fiscal year beginning in) ![]() |
(a) 2016 | (b) 2017 | (c) 2018 | (d) 2019 | (e) 2020 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | 1,530,367 | 1,657,120 | 1,666,498 | 1,870,915 | 1,282,768 | 8,007,668 |
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | 1,361 | 1,568 | 7,642 | 10,830 | 6,090 | 27,491 |
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | 64 | 76 | 3,729 | 3,869 | ||
| 11 | Total support. Add lines 7 through 10 | 8,039,028 | |||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2016 | (b) 2017 | (c) 2018 | (d) 2019 | (e) 2020 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | ||||||
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose | ||||||
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513 ..... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge | ||||||
| 6 | Total. Add lines 1 through 5 | ||||||
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2016 | (b) 2017 | (c) 2018 | (d) 2019 | (e) 2020 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | ||||||
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | ||||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | ||||||
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
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| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by 0.035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | 1 | |
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
2 | |
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | 3 | |
| 4 Amounts paid to acquire exempt-use assets | 4 | |
| 5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI) | 5 | |
| 6 Other distributions (describe in Part VI). See instructions | 6 | |
| 7Total annual distributions. Add lines 1 through 6. | 7 | |
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
8 | |
| 9 Distributable amount for 2020 from Section C, line 6 | 9 | |
| 10 Line 8 amount divided by Line 9 amount | 10 | |
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2020 |
(iii) Distributable Amount for 2020 |
|
|---|---|---|---|---|
| 1 Distributable amount for 2020 from Section C, line 6 | ||||
|
2
Underdistributions, if any, for years prior to 2019 (reasonable cause required-- explain in Part VI). See instructions. |
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| 3 Excess distributions carryover, if any, to 2020: | ||||
| a From 2015....... | ||||
| b From 2016....... | ||||
| c From 2017....... | ||||
| d From 2018....... | ||||
| e From 2019....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2020 distributable amount | ||||
|
i
Carryover from 2015 not applied (see instructions) |
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| j Remainder. Subtract lines 3g, 3h, and 3i from line 3f. | ||||
| 4Distributions for 2020 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2020 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from line 4. | ||||
|
5
Remaining underdistributions for years prior to 2020, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
6
Remaining underdistributions for 2020. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
7 Excess distributions carryover to 2021. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a Excess from 2016..... | ||||
| b Excess from 2017..... | ||||
| c Excess from 2018..... | ||||
| d Excess from 2019..... | ||||
| e Excess from 2020..... | ||||
| Facts And Circumstances Test |
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| Return Reference | Explanation |
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| Software ID: | |
| Software Version: |
Attach to Form 990 or 990-EZ.
Go to www.irs.gov/Form990 for the latest information.
| Return Reference | Explanation |
|---|---|
| FORM 990, PART I, LINE 1: | THE ORGANIZATION'S VISION IS TO CREATE A WORLD WITHOUT ALS. THE ORGANIZATION OFFERS ONE-ON-ONE PATIENT CONSULTATION AND MEDICAL EQUIPMENT AS WELL AS SUPPORT GROUPS, CARE GRANTS, CLINICS, AN ANNUAL SYMPOSIUM, AND RESEARCH FUNDING. |
| FORM 990, PART III, LINE 1: | THE PRIMARY MISSION OF THE ALS ASSOCIATION IS TO LEAD THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. |
| FORM 990, PART III, LINE 4A | PATIENT SERVICES - THE RELATIONSHIP BETWEEN THE CARE SERVICES TEAM AND THE PERSONS DIAGNOSED WITH ALS (PALS) AND THEIR FAMILY MEMBERS COMMENCE UPON DIAGNOSIS. THE GOAL OF THE PROGRAM IS TO ENSURE THAT INDIVIDUALS AND THEIR FAMILIES EXPERIENCE OPTIMAL EMOTIONAL FUNCTIONING GIVEN THE DEVASTATION OF THE DISEASE. OUR ATTEMPT TO SUCCESSFULLY IMPACT FAMILIES CAN BE OUTLINED WITHIN OUR EXISTING PROGRAMS: EDUCATION, CARE GRANT, SUPPORT GROUPS, EQUIPMENT LOANER PROGRAM, SALLY PANFEL IN-HOME CARE AND RESPITE PROGRAM, PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM, AND PATIENT CONSULTATIONS. INDIVIDUALS WHO ARE NEWLY DIAGNOSED OFTEN NEED TIME TO ABSORB THE IMPACT OF THEIR DIAGNOSIS, THEREFORE BASIC INFORMATION AND EDUCATION IS PROVIDED IMMEDIATELY BY THE ALS ASSOCIATION OF GA. THIS INFORMATION INCLUDES BUT IS NOT LIMITED TO THE DIAGNOSIS ITSELF, DISEASE TRAJECTORY, SUPPORT AND ONGOING RESEARCH. ANNUALLY THE ASSOCIATION PROVIDES AN EDUCATIONAL SYMPOSIUM WHICH HIGHLIGHTS RESEARCH, SUPPORT AND EDUCATIONAL OPPORTUNITIES FOR PERSONS WITH ALS, COMMUNITY PROVIDERS AND SUPPORTERS. ALTHOUGH TO DATE THERE IS NO CURE FOR THIS DISEASE, THE ALS ASSOCIATION IS PASSIONATE ABOUT THE MISSION OF ONE DAY FINDING A TREATMENT AND ULTIMATELY A CURE. THE FINANCIAL HARDSHIP THAT FAMILIES INCUR AS THE RESULT OF AN ALS DIAGNOSIS CAN IMPACT THEIR QUALITY OF LIFE TREMENDOUSLY. FOR THOSE THAT MAY NEED ADDITIONAL HELP, THE CARE GRANT PROGRAM STRIVES TO PROVIDE SOME RELIEF. THIS PROGRAM IS A REIMBURSEMENT PROGRAM THAT ASSISTS FAMILIES WITH EXPENSES THAT ARE NOT TRADITIONALLY COVERED BY PRIVATE INSURANCES, MEDICAID OR MEDICARE. IT WILL COVER EXPENSES RELATED TO HOME CARE ASSISTANCE (RESPITE), TRAVEL COSTS FOR ATTENDANCE TO AND FROM THE ALS CLINICS, HOME MODIFICATIONS, AUTO MODIFICATIONS AND COMMUNICATION DEVICES. RECIPIENTS MAY APPLY FOR AND RECEIVE TWO GRANTS PER YEAR IN THE AMOUNT OF $750 PER GRANT REQUEST. GRANTS ARE AWARDED TWICE A YEAR ON A FIRST COME FIRST SERVE BASIS AND WILL BE BASED ON AVAILABILITY OF FUNDS. DURING FYE 2021, 161 INDIVIDUALS RECEIVED CARE GRANTS. THE SUPPORT GROUP PROGRAM PROVIDES PERSONS WITH ALS AND THEIR FAMILIES THE OPPORTUNITY TO CONNECT WITH OTHERS IN THE COMMUNITY WHO SHARE SIMILAR CHALLENGES AND NEEDS. THE GROUPS ARE DESIGNED TO PROVIDE EMOTIONAL AND PSYCHOSOCIAL SUPPORT AS WELL AS RESOURCES AND EDUCATION. KNOWING WHAT QUESTIONS TO ASK AND WHERE TO LOOK FOR RESOURCES IS VITAL. THE ASSOCIATION CURRENTLY CONDUCTS MONTHLY SUPPORT GROUPS THAT MEET THE NEEDS OF 159 COUNTIES IN THE STATE OF GEORGIA. THESE GROUPS ARE FACILITATED BY PROFESSIONALS AND COMMUNITY PARTNERS TO ENSURE MAXIMUM RESULTS. BECAUSE THE NEEDS OF CAREGIVERS AND CHILDREN CAN BE VERY SENSITIVE, THE ASSOCIATION HAS DEVELOPED SPECIFIC GROUPS TO ADDRESS THOSE NEEDS. AS THE DISEASE PROGRESSES, INDIVIDUALS WILL EXPERIENCE A DECLINE IN FUNCTIONING AS IT RELATES TO MOBILITY AND SPEECH. THESE CHALLENGES CAN IMPACT INDEPENDENCE AND QUALITY OF LIFE. IN SOME SITUATIONS, SPECIFIC MEDICAL AND COMMUNICATION DEVICES ARE REQUIRED BUT NOT COVERED BY PRIVATE INSURANCE, MEDICAID OR MEDICARE. THE EQUIPMENT LOANER PROGRAM PROVIDES SUCH EQUIPMENT TO PERSONS WITH ALS AT NO COST. THIS PROGRAM WORKS DILIGENTLY TO OBTAIN THROUGH GRANT FUNDING OR PRIVATE DONATIONS SUCH ITEMS THAT CAN ENSURE INCREASED INDEPENDENCE. THE ASSOCIATION IN PARTNERSHIP WITH COMMUNITY PROVIDERS COLLABORATE ON THE MAINTENANCE AND STORAGE OF ALL EQUIPMENT. 90% OF THE CURRENT ALS COMMUNITY IN GEORGIA CONTINUES TO REMAIN IN THEIR HOME THROUGHOUT THE DISEASE PROCESS. THIS BECOMES INCREASINGLY DIFFICULT BECAUSE THEY WILL REQUIRE TOTAL ADL CARE FROM ADDITIONAL PROVIDERS. THIS SERVICE IS NOT COVERED BY MEDICARE OR PRIVATE INSURANCE COMPANIES. THE SALLY PANFEL IN-HOME CARE AND RESPITE PROGRAM PROVIDES PALS WITH UP TO 12 HOURS OF IN-HOME CARE PER WEEK. THE CARE IS PROVIDED BY LICENSED COMMUNITY PARTNERS OF THE ALSAGA ASSOCIATION AND ELIGIBILITY IS BASED ON A NEEDS ASSESSMENT. DURING FYE 2021, 40 FAMILIES WERE HELPED BY THIS PROGRAM. ACCESS TO QUALITY CARE AND RESEARCH CAN BE CHALLENGING FOR THOSE IMPACTED BY ALS. AS MOBILITY DECLINES AND THE NEED FOR ASSISTIVE TECHNOLOGY INCREASE, PERSONS WITH ALS FIND IT DIFFICULT TO ATTEND NEEDED APPOINTMENTS VIA TRADITIONAL MODES OF TRANSPORTATION. MEDICARE AND MEDICAID ARE VERY LIMITED REGARDING THE COVERAGE OF NON-EMERGENCY TRANSPORTATION. THE PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM IS FOCUSED ON ADDRESSING TRANSPORTATION NEEDS VIA: NON-EMERGENCY TRANSPORTATION, VAN RENTALS, VEHICLE MODIFICATION AND VOUCHERS. DURING FYE 2021, 58 INDIVIDUALS RECEIVED SPECIFIC TRANSPORTATION ASSISTANCE THROUGH THIS PROGRAM. INFORMATION IS VITAL TO PERSONS WITH ALS. AS THE BODY DECLINES IT IS VERY IMPORTANT TO BE PRESENTED WITH REALISTIC EXPECTATIONS REGARDING THE DISEASE TRAJECTORY. SKILLED CARE SERVICE COORDINATORS ARE AVAILABLE TO PROVIDE ONGOING CONSULTATIONS THROUGH OUR CARE SERVICES CONSULTATION PROGRAM. THE ONGOING CONSULTATIONS PROVIDE THE OPPORTUNITY TO ASSESS, EDUCATE AND EMPOWER INDIVIDUALS AND THEIR FAMILIES TO MAKE INFORMED DECISIONS. THE COORDINATORS ARE ALSO VERY INSTRUMENTAL IN IDENTIFYING AND MAKING COMMUNITY REFERRALS. THE ALS ASSOCIATION IS THE CONNECTION BETWEEN WHAT IS NEEDED AND WHAT IS AVAILABLE FOR PERSONS WITH ALS, THEIR FAMILIES AND CAREGIVERS. |
| FORM 990, PART III, LINE 4B: | GLOBAL RESEARCH EFFORTS, IN PARTNERSHIP WITH THE ALS ASSOCIATION, NATIONALLY, ARE ON-GOING TO INCREASE THE NUMBER OF SCIENTISTS WORKING ON ALS AND ADVANCE NEW DISCOVERIES AND TREATMENTS. |
| FORM 990, PART VI, SECTION B, LINE 11B | A DRAFT OF FORM 990, WITH ALL APPLICABLE SCHEDULES, IS REVIEWED BY THE FINANCE COMMITTEE. AFTER ALL QUESTIONS AND COMMENTS HAVE BEEN ADDRESSED TO THE SATISFACTION OF THE COMMITTEE, THE FULL RETURN IS PRESENTED TO THE ENTIRE BOARD OF DIRECTORS PRIOR TO FILING. |
| FORM 990, PART VI, SECTION B, LINE 12C | EMPLOYEES AND DIRECTORS ARE REQUIRED TO ANNUALLY DISCLOSE ANY RELATED PARTY RELATIONSHIPS AND/OR CONFLICTS OF INTEREST. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE FINANCE AND EXECUTIVE COMMITTEE OF THE BOARD UTILIZES SALARY COMPARISON DATA PROVIDED BY THE NON PROFIT RESOURCE CENTER TO EVALUATE THE REASONABLENESS OF THE EXECUTIVE DIRECTOR'S COMPENSATION AND TO MAKE ANY RECOMMENDATIONS TO THE BOARD FOR POSSIBLE MODIFICATIONS IN PAY. |
| FORM 990, PART VI, SECTION C, LINE 18 | THESE DOCUMENTS ARE KEPT ON-HAND IN THE CORPORATE OFFICE AND ARE AVAILABLE UPON REQUEST. |
| FORM 990, PART VI, SECTION C, LINE 19 | THESE DOCUMENTS ARE KEPT ON-HAND IN THE CORPORATE OFFICE AND ARE AVAILABLE UPON REQUEST. |
| FORM 990, PART XII, LINE 2C: | THERE ARE NO CHANGES IN PROCESS FROM THE PRIOR YEAR. |
| Software ID: | |
| Software Version: |