Form990
Click to see attachment
Department of the TreasuryInternal Revenue Service
Return of Organization Exempt From Income Tax
Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private foundations)
MediumBullet Do not enter social security numbers on this form as it may be made public.
MediumBullet Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2020
Open to Public Inspection
A For the 2020 calendar year, or tax year beginning 01-01-2020 , and ending 12-31-2020
BCheck if applicable:
CName of organization
CROHN'S & COLITIS FOUNDATION INC
 
 
Doing business as
 
 
Number and street (or P.O. box if mail is not delivered to street address)
733 THIRD AVENUE 510
 
Room/suite
City or town, state or province, country, and ZIP or foreign postal code
NEW YORK, NY10017
D Employer identification number

13-6193105
E Telephone number

G Gross receipts $ 79,704,927
F Name and address of principal officer:
MICHAEL OSSO
733 THIRD AVENUE
NEW YORK,NY10017
I
Tax-exempt status: (   ) LeftBullet (insert no.) or
J
Website:MediumBullet
WWW.CROHNSCOLITISFOUNDATION.ORG
H(a)
Is this a group return for
subordinates?
H(b)
Are all subordinates
included?
If "No," attach a list. (see instructions)
H(c)
Group exemption number MediumBullet  
K Form of organization:  
L Year of formation: 1967
M State of legal domicile: NY
Part I
Summary
Activities & Governance 1 Briefly describe the organization’s mission or most significant activities: TO CURE CROHN'S DISEASE AND ULCERATIVE COLITIS (CONTINUED ON SCHEDULE O)
2 Check this box MediumBullet
3 Number of voting members of the governing body (Part VI, line 1a) ........ 3 28
4 Number of independent voting members of the governing body (Part VI, line 1b) ..... 4 28
5 Total number of individuals employed in calendar year 2020 (Part V, line 2a) ...... 5 350
6 Total number of volunteers (estimate if necessary) ............. 6 5,299
7a Total unrelated business revenue from Part VIII, column (C), line 12 ........ 7a 0
b Net unrelated business taxable income from Form 990-T, line 39 ......... 7b 0
Revenues Prior Year Current Year
8 Contributions and grants (Part VIII, line 1h) ......... 66,405,320 68,767,470
9 Program service revenue (Part VIII, line 2g) ......... 5,275,500 5,393,731
10 Investment income (Part VIII, column (A), lines 3, 4, and 7d ) .... 958,595 1,180,691
11 Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e) 1,285,835 878,150
12 Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12) 73,925,250 76,220,042
Expenses; 13 Grants and similar amounts paid (Part IX, column (A), lines 1–3 )... 25,099,238 27,621,536
14 Benefits paid to or for members (Part IX, column (A), line 4)..... 0 0
15 Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10) 31,959,212 32,264,832
16a Professional fundraising fees (Part IX, column (A), line 11e) ..... 463,544 467,660
b Total fundraising expenses (Part IX, column (D), line 25) MediumBullet4,954,085    
17 Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e).... 18,201,536 15,316,089
18 Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25) 75,723,530 75,670,117
19 Revenue less expenses. Subtract line 18 from line 12....... -1,798,280 549,925
Net Assets or Fund Balances; Beginning of Current Year End of Year
20 Total assets (Part X, line 16)............. 45,274,249 55,619,176
21 Total liabilities (Part X, line 26)............. 36,455,900 44,552,683
22 Net assets or fund balances. Subtract line 21 from line 20..... 8,818,349 11,066,493
Part II
Signature Block
Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it is true, correct, and complete. Declaration of preparer (other than officer) is based on all information of which preparer has any knowledge.
Sign Here
JumboBullet
Signature of officer Date
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Type or print name and title
Paid Preparer Use Only
Print/Type preparer's name
Preparer's signature
Date
PTIN
Firm's name MediumBullet

Firm's EIN MediumBullet
Firm's address MediumBullet



Phone no.
May the IRS discuss this return with the preparer shown above? (see instructions) ..........
For Paperwork Reduction Act Notice, see the separate instructions.
Cat. No. 11282Y Form 990 (2020)
Form 990 (2020)
Page 2
Part III
Statement of Program Service Accomplishments
Check if Schedule O contains a response or note to any line in this Part III..............
1
Briefly describe the organization’s mission: FOR MORE THAN FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. (SEE SCHED O).
2
Did the organization undertake any significant program services during the year which were not listed on
the prior Form 990 or 990-EZ? .....................
If "Yes," describe these new services on Schedule O.
3
Did the organization cease conducting, or make significant changes in how it conducts, any program
services? ...........................
If "Yes," describe these changes on Schedule O.
4
Describe the organization’s program service accomplishments for each of its three largest program services, as measured by expenses. Section 501(c)(3) and 501(c)(4) organizations are required to report the amount of grants and allocations to others, the total expenses, and revenue, if any, for each program service reported.
4a (Code:   ) (Expenses $ 32,960,260 including grants of $ 27,621,536 ) (Revenue $ 5,347,081 )
SINCE ITS INCEPTION, THE CROHN'S & COLITIS FOUNDATION HAS PROVIDED MORE THAN $400 MILLION FOR RESEARCH ON THE TREATMENT AND CURES OF IBD. THE FOUNDATION FUNDS A SET OF PRIORITY RESEARCH INITIATIVES: MULTI-INSTITUTIONAL, MULTI-DISCIPLINARY, COLLABORATIVE RESEARCH PROJECTS TARGETING AREAS OF SCIENCE WITH A HIGH PROBABILITY OF ADVANCING TREATMENT. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). THE FOUNDATION'S RESEARCH PORTFOLIO IS A COMBINATION OF BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH. DESIGNED TO CUT YEARS OFF THE RESEARCH PROCESS, IBD PLEXUS, THE FOUNDATION INNOVATIVE RESEARCH PLATFORM, IS THE SINGLE LARGEST IBD DATABASE IN THE US. IT CURRENTLY PROVIDES RESEARCHERS WITH DATA FROM OVER 25,000 PATIENTS, INCLUDING 160,000 BIOSAMPLES (BLOOD, STOOL, AND INTESTINAL TISSUE).THE FOUNDATION LEADS THE WAY IN NEW, CRITICALLY IMPORTANT AREAS OF IBD RESEARCH, AND ACCELERATING NOVEL THERAPIES AND INNOVATIVE PRODUCTS THAT ADDRESS UNMET PATIENT NEEDS. IN 2020, THE FOUNDATION LAUNCHED THE MOST EXTENSIVE IBD-FOCUSED PRECISION NUTRITION EFFORT, TO BETTER UNDERSTAND THE DIRECT IMPACT THAT FOOD MAY HAVE IN THE MANAGEMENT OF IBD AND ON PATIENT QUALITY OF LIFE. THE FOUNDATION ALSO LAUNCHED THE SURGICAL RESEARCH NETWORK, OUR FIRST-EVER COORDINATED-FUNDING EFFORT TO STUDY SURGICAL OUTCOMES IN IBD, WITH OVER 50 CENTERS PARTICIPATING.
4b (Code:   ) (Expenses $ 27,565,825 including grants of $ 0 ) (Revenue $ 279,130 )
THE CROHN'S & COLITIS FOUNDATION PROVIDES INFORMATION AND EDUCATION FOR THE ESTIMATED 3.1 MILLION IBD PATIENTS AND THEIR LOVED ONES THROUGH A VARIETY OF CHANNELS AT THE NATIONAL AND LOCAL LEVEL. WEBCASTS, SUPPORT GROUPS, IBD HELP CENTER, AND PRINTED MATERIALS PROVIDE ACCURATE AND UP-TO-DATE INFORMATION. THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION THROUGH OUR TWO SCIENTIFIC JOURNALS, INFLAMMATORY BOWEL DISEASES AND CROHN'S & COLITIS 360, AS WELL AS THROUGH HEALTH PROFESSIONAL WORKSHOPS, AND ITS ANNUAL CROHN'S & COLITIS CONGRESS CONFERENCE. IN A RECENT IMPACT STUDY, OVER 70% OF PATIENTS CONNECTED WITH THE FOUNDATION STATED THAT THE FOUNDATION HAS HAD A POSITIVE IMPACT ON THEIR IBD JOURNEY. THESE PATIENTS ALSO REPORTED BETTER SYMPTOM CONTROL THAN NON-FOUNDATION CONNECTED PATIENTS. IN THE PAST YEAR, THE FOUNDATION LAUNCHED A PUBLIC SERVICE AWARENESS CAMPAIGN TO INCREASE FAMILIARITY WITH IBD, AND EDUCATE PEOPLE EXPERIENCING SYMPTOMS ABOUT THE IMPORTANCE OF SEEING A SPECIALIST TO GET DIAGNOSED FASTER AND REDUCE SUFFERING.
4c (Code:   ) (Expenses $   including grants of $   ) (Revenue $   )
4d Other program services (Describe in Schedule O.)
(Expenses $   including grants of $   ) (Revenue $   )
4e Total program service expensesMediumBullet60,526,085
Form 990 (2020)
Form 990 (2020)
Page 3
Part IV
Checklist of Required Schedules
Yes
No
1
Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)? If "Yes," complete Schedule AClick to see attachment.....................
1
Yes
 
2
Is the organization required to complete Schedule B, Schedule of Contributors (see instructions)? Click to see attachment...
2
Yes
 
3
Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office? If "Yes," complete Schedule C, Part IClick to see attachment.............
3
 
No
4
Section 501(c)(3) organizations. Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year? If "Yes," complete Schedule C, Part IIClick to see attachment.........
4
Yes
 
5
Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Revenue Procedure 98-19? If "Yes," complete Schedule C, Part IIIClick to see attachment..
5
 
No
6
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts? If "Yes," complete Schedule D, Part IClick to see attachment.........................
6
 
No
7
Did the organization receive or hold a conservation easement, including easements to preserve open space,
the environment, historic land areas, or historic structures? If "Yes," complete Schedule D, Part IIClick to see attachment....
7
 
No
8
Did the organization maintain collections of works of art, historical treasures, or other similar assets? If "Yes,"
complete Schedule D, Part IIIClick to see attachment..............
8
 
No
9
Did the organization report an amount in Part X, line 21 for escrow or custodial account liability; serve as a custodian for amounts not listed in Part X; or provide credit counseling, debt management, credit repair, or debt negotiation services? If "Yes," complete Schedule D, Part IVClick to see attachment..............
9
 
No
10
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi endowments? If "Yes," complete Schedule D, Part V......
10
 
No
11
If the organization’s answer to any of the following questions is "Yes," then complete Schedule D, Parts VI, VII, VIII, IX, or X as applicable.
a
Did the organization report an amount for land, buildings, and equipment in Part X, line 10? If "Yes," complete
Schedule D, Part VI. Click to see attachment...................
11a
Yes
 
b
Did the organization report an amount for investments—other securities in Part X, line 12 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIClick to see attachment.......
11b
 
No
c
Did the organization report an amount for investments—program related in Part X, line 13 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIIClick to see attachment.......
11c
 
No
d
Did the organization report an amount for other assets in Part X, line 15 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part IXClick to see attachment............
11d
 
No
e
Did the organization report an amount for other liabilities in Part X, line 25? If "Yes," complete Schedule D, Part XClick to see attachment
11e
Yes
 
f
Did the organization’s separate or consolidated financial statements for the tax year include a footnote that addresses the organization’s liability for uncertain tax positions under FIN 48 (ASC 740)? If "Yes," complete Schedule D, Part XClick to see attachment
11f
Yes
 
12a
Did the organization obtain separate, independent audited financial statements for the tax year? If "Yes," complete
Schedule D, Parts XI and XIIClick to see attachment......................
12a
Yes
 
b
Was the organization included in consolidated, independent audited financial statements for the tax year? If "Yes," and if the organization answered "No" to line 12a, then completing Schedule D, Parts XI and XII is optional Click to see attachment
12b
 
No
13
Is the organization a school described in section 170(b)(1)(A)(ii)? If "Yes," complete Schedule E
13
 
No
14a
Did the organization maintain an office, employees, or agents outside of the United States? .....
14a
 
No
b
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more? If "Yes," complete Schedule F, Parts I and IV.........Click to see attachment
14b
Yes
 
15
Did the organization report on Part IX, column (A), line 3, more than $5,000 of grants or other assistance to or for any foreign organization? If “Yes,” complete Schedule F, Parts II and IV.....Click to see attachment
15
Yes
 
16
Did the organization report on Part IX, column (A), line 3, more than $5,000 of aggregate grants or other assistance to or for foreign individuals? If “Yes,” complete Schedule F, Parts III and IV...Click to see attachment
16
 
No
17
Did the organization report a total of more than $15,000 of expenses for professional fundraising services on Part IX, column (A), lines 6 and 11e? If "Yes," complete Schedule G, Part I(see instructions) ....Click to see attachment
17
Yes
 
18
Did the organization report more than $15,000 total of fundraising event gross income and contributions on Part VIII, lines 1c and 8a? If "Yes," complete Schedule G, Part II............ Click to see attachment
18
Yes
 
19
Did the organization report more than $15,000 of gross income from gaming activities on Part VIII, line 9a? If "Yes," complete Schedule G, Part III...................Click to see attachment
19
Yes
 
20a
Did the organization operate one or more hospital facilities? If "Yes," complete Schedule H....
20a
 
No
b
If "Yes" to line 20a, did the organization attach a copy of its audited financial statements to this return?
20b
 
 
21
Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government on Part IX, column (A), line 1? If “Yes,” complete Schedule I, Parts I and II.....Click to see attachment
21
Yes
 
Form 990 (2020)
Form 990 (2020)
Page 4
Part IV
Checklist of Required Schedules (continued)
Yes
No
22
Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals on Part IX, column (A), line 2? If “Yes,” complete Schedule I, Parts I and III........Click to see attachment
22
 
No
23
Did the organization answer "Yes" to Part VII, Section A, line 3, 4, or 5 about compensation of the organization’s current and former officers, directors, trustees, key employees, and highest compensated employees? If "Yes," complete Schedule J....................... Click to see attachment
23
Yes
 
24a
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002? If “Yes,” answer lines 24b through 24d and complete Schedule K. If “No,” go to line 25a...............
24a
 
No
b
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?...
24b
 
 
c
Did the organization maintain an escrow account other than a refunding escrow at any time during the year
to defease any tax-exempt bonds? ...............
24c
 
 
d
Did the organization act as an "on behalf of" issuer for bonds outstanding at any time during the year?...
24d
 
 
25a
Section 501(c)(3), 501(c)(4), and 501(c)(29) organizations. Did the organization engage in an excess benefit transaction with a disqualified person during the year? If "Yes," complete Schedule L, Part I ....
25a
 
No
b
Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization’s prior Forms 990 or 990-EZ? If "Yes," complete Schedule L, Part I.......................
25b
 
No
26
Did the organization report any amount on Part X, line 5 or 22 for receivables from or payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons? If "Yes," complete Schedule L, Part II...........
26
 
No
27
Did the organization provide a grant or other assistance to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or employee thereof, a grant selection committee member, or to a 35% controlled entity (including an employee thereof) or family member of any of these persons?
If "Yes," complete
Schedule L, Part III.........................
27
 
No
28
Was the organization a party to a business transaction with one of the following parties (see Schedule L, Part IV instructions for applicable filing thresholds, conditions, and exceptions):
a
A current or former officer, director, trustee, key employee, creator or founder, or substantial contributor? If "Yes," complete Schedule L, Part IV......................
28a
 
No
b
A family member of any individual described in line 28a? If "Yes," complete Schedule L, Part IV.....
28b
 
No
c
A 35% controlled entity of one or more individuals and/or organizations described in lines 28a or 28b? If "Yes," complete Schedule L, Part IV.....................
28c
 
No
29
Did the organization receive more than $25,000 in non-cash contributions? If "Yes," complete Schedule M..Click to see attachment
29
Yes
 
30
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions? If "Yes," complete Schedule M .................Click to see attachment
30
 
No
31
Did the organization liquidate, terminate, or dissolve and cease operations? If "Yes," complete Schedule N, Part I
31
 
No
32
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets? If "Yes," complete Schedule N, Part II........................
32
 
No
33
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3? If "Yes," complete Schedule R, Part I............
33
 
No
34
Was the organization related to any tax-exempt or taxable entity? If "Yes," complete Schedule R, Part II, III, or IV, and Part V, line 1.........................
34
 
No
35a
Did the organization have a controlled entity within the meaning of section 512(b)(13)?
35a
 
No
b
If ‘Yes’ to line 35a, did the organization receive any payment from or engage in any transaction with a controlled entity within the meaning of section 512(b)(13)? If "Yes," complete Schedule R, Part V, line 2 ...
35b
 
 
36
Section 501(c)(3) organizations. Did the organization make any transfers to an exempt non-charitable related organization? If "Yes," complete Schedule R, Part V, line 2.............
36
 
No
37
Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes? If "Yes," complete Schedule R, Part VI
37
 
No
38
Did the organization complete Schedule O and provide explanations in Schedule O for Part VI, lines 11b and 19? Note. All Form 990 filers are required to complete Schedule O. ............
38
Yes
 
Part V
Statements Regarding Other IRS Filings and Tax Compliance
Check if Schedule O contains a response or note to any line in this Part V...........
Yes
No
1a
Enter the number reported in Box 3 of Form 1096. Enter -0- if not applicable ..
1a
236
b
Enter the number of Forms W-2G included in line 1a. Enter -0- if not applicable .
1b
0
c
Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners? ..................
1c
Yes
 
Form 990 (2020)
Form 990 (2020)
Page 5
Part V
Statements Regarding Other IRS Filings and Tax Compliance (continued)
2a
Enter the number of employees reported on Form W-3, Transmittal of Wage and
Tax Statements, filed for the calendar year ending with or within the year covered by this return ..................
2a
350
b
If at least one is reported on line 2a, did the organization file all required federal employment tax returns?
Note. If the sum of lines 1a and 2a is greater than 250, you may be required to e-file (see instructions)
2b
Yes
 
3a
Did the organization have unrelated business gross income of $1,000 or more during the year?...
3a
 
No
b
If “Yes,” has it filed a Form 990-T for this year? If “No” to line 3b, provide an explanation in Schedule O...
3b
 
 
4a
At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)? ..
4a
 
No
b
If "Yes," enter the name of the foreign country: MediumBullet
See instructions for filing requirements for FinCEN Form 114, Report of Foreign Bank and Financial Accounts (FBAR).
5a
Was the organization a party to a prohibited tax shelter transaction at any time during the tax year? ..
5a
 
No
b
Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?
5b
 
No
c
If "Yes," to line 5a or 5b, did the organization file Form 8886-T? ............
5c
 
 
6a
Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions? ...
6a
 
No
b
If "Yes," did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible? ......................
6b
 
 
7
Organizations that may receive deductible contributions under section 170(c).
a
Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor? ....................
7a
Yes
 
b
If "Yes," did the organization notify the donor of the value of the goods or services provided? .....
7b
Yes
 
c
Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282? .........................
7c
 
No
d
If "Yes," indicate the number of Forms 8282 filed during the year ....
7d
 
e
Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?
7e
 
No
f
Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract? ..
7f
 
No
g
If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required? ......................
7g
 
 
h
If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C? ..........................
7h
 
 
8
Sponsoring organizations maintaining donor advised funds. Did a donor advised fund maintained by the sponsoring organization have excess business holdings at any time during the year? ........
8
 
 
9
Sponsoring organizations maintaining donor advised funds.
a
Did the sponsoring organization make any taxable distributions under section 4966?........
9a
 
 
b
Did the sponsoring organization make a distribution to a donor, donor advisor, or related person?...
9b
 
 
10
Section 501(c)(7) organizations. Enter:
a
Initiation fees and capital contributions included on Part VIII, line 12 ...
10a
 
b
Gross receipts, included on Form 990, Part VIII, line 12, for public use of club facilities
10b
 
11
Section 501(c)(12) organizations. Enter:
a
Gross income from members or shareholders .........
11a
 
b
Gross income from other sources (Do not net amounts due or paid to other sources against amounts due or received from them.) ..........
11b
 
12a
Section 4947(a)(1) non-exempt charitable trusts. Is the organization filing Form 990 in lieu of Form 1041?
12a
 
 
b
If "Yes," enter the amount of tax-exempt interest received or accrued during the year.
12b
 
13
Section 501(c)(29) qualified nonprofit health insurance issuers.
a
Is the organization licensed to issue qualified health plans in more than one state? .........
Note. See the instructions for additional information the organization must report on Schedule O.
13a
 
 
b
Enter the amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans ....
13b
 
c
Enter the amount of reserves on hand ............
13c
 
14a
Did the organization receive any payments for indoor tanning services during the tax year?.....
14a
 
No
b
If "Yes," has it filed a Form 720 to report these payments? If "No," provide an explanation in Schedule O..
14b
 
 
15
Is the organization subject to the section 4960 tax on payment(s) of more than $1,000,000 in remuneration or excess parachute payment(s) during the year? ....................
If "Yes," see instructions and file Form 4720, Schedule N.
15
 
No
16
Is the organization an educational institution subject to the section 4968 excise tax on net investment income? ..
If "Yes," complete Form 4720, Schedule O.
16
 
No
Form 990 (2020)
Form 990 (2020)
Page 6
Part VI
Governance, Management, and Disclosure For each "Yes" response to lines 2 through 7b below, and for a "No" response to lines 8a, 8b, or 10b below, describe the circumstances, processes, or changes in Schedule O. See instructions.
Check if Schedule O contains a response or note to any line in this Part VI..............
Section A. Governing Body and Management
Yes
No
1a
Enter the number of voting members of the governing body at the end of the tax year
1a
28
If there are material differences in voting rights among members of the governing body, or if the governing body delegated broad authority to an executive committee or similar committee, explain in Schedule O.
b
Enter the number of voting members included in line 1a, above, who are independent
1b
28
2
Did any officer, director, trustee, or key employee have a family relationship or a business relationship with any other officer, director, trustee, or key employee? .................
2
 
No
3
Did the organization delegate control over management duties customarily performed by or under the direct supervision of officers, directors or trustees, or key employees to a management company or other person? .
3
 
No
4
Did the organization make any significant changes to its governing documents since the prior Form 990 was filed? .
4
 
No
5
Did the organization become aware during the year of a significant diversion of the organization’s assets? .
5
 
No
6
Did the organization have members or stockholders? ................
6
 
No
7a
Did the organization have members, stockholders, or other persons who had the power to elect or appoint one or more members of the governing body? ....................
7a
 
No
b
Are any governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or persons other than the governing body? ...................
7b
 
No
8
Did the organization contemporaneously document the meetings held or written actions undertaken during the year by the following:
a
The governing body? .......................
8a
Yes
 
b
Each committee with authority to act on behalf of the governing body? ............
8b
Yes
 
9
Is there any officer, director, trustee, or key employee listed in Part VII, Section A, who cannot be reached at the organization’s mailing address? If "Yes," provide the names and addresses in Schedule O.......
9
 
No
Section B. Policies (This Section B requests information about policies not required by the Internal Revenue Code.)
Yes
No
10a
Did the organization have local chapters, branches, or affiliates? ............
10a
Yes
 
b
If "Yes," did the organization have written policies and procedures governing the activities of such chapters, affiliates, and branches to ensure their operations are consistent with the organization's exempt purposes?
10b
Yes
 
11a
Has the organization provided a complete copy of this Form 990 to all members of its governing body before filing the form? ............................
11a
Yes
 
b
Describe in Schedule O the process, if any, used by the organization to review this Form 990. .....
12a
Did the organization have a written conflict of interest policy? If "No," go to line 13.......
12a
Yes
 
b
Were officers, directors, or trustees, and key employees required to disclose annually interests that could give rise to conflicts? ..........................
12b
Yes
 
c
Did the organization regularly and consistently monitor and enforce compliance with the policy? If "Yes," describe in Schedule O how this was done...................
12c
Yes
 
13
Did the organization have a written whistleblower policy? ...............
13
Yes
 
14
Did the organization have a written document retention and destruction policy? .........
14
Yes
 
15
Did the process for determining compensation of the following persons include a review and approval by independent persons, comparability data, and contemporaneous substantiation of the deliberation and decision?
a
The organization’s CEO, Executive Director, or top management official ...........
15a
Yes
 
b
Other officers or key employees of the organization ................
15b
Yes
 
If "Yes" to line 15a or 15b, describe the process in Schedule O (see instructions).
16a
Did the organization invest in, contribute assets to, or participate in a joint venture or similar arrangement with a taxable entity during the year? ......................
16a
 
No
b
If "Yes," did the organization follow a written policy or procedure requiring the organization to evaluate its participation in joint venture arrangements under applicable federal tax law, and take steps to safeguard the organization’s exempt status with respect to such arrangements? ............
16b
 
 
Section C. Disclosure
17
List the states with which a copy of this Form 990 is required to be filedMediumBullet
AL , AK , AZ , AR , CA , CO , CT , DC , FL , HI , KS , LA , ME , MD , MA , MI , MN , MS , NH , NM , NY , OK , PA , TN , UT , VA , WA , WV , WI , DE
18
Section 6104 requires an organization to make its Form 1023 (or 1024-A if applicable), 990, and 990-T (501(c)(3)s only) available for public inspection. Indicate how you made these available. Check all that apply.
19
Describe in Schedule O whether (and if so, how) the organization made its governing documents, conflict of interest policy, and financial statements available to the public during the tax year.
20
State the name, address, and telephone number of the person who possesses the organization's books and records:
MediumBulletRONALD GOLDSMAN733 THIRD AVENUE   NEW YORK,NY100178804 (212) 685-3440
Form 990 (2020)
Form 990 (2020)
Page 7
Part VII
Compensation of Officers, Directors,Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors
Check if Schedule O contains a response or note to any line in this Part VII..............
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
1a Complete this table for all persons required to be listed. Report compensation for the calendar year ending with or within the organization’s tax year.
RoundBullet List all of the organization’s current officers, directors, trustees (whether individuals or organizations), regardless of amount
of compensation. Enter -0- in columns (D), (E), and (F) if no compensation was paid.

RoundBullet List all of the organization’s current key employees, if any. See instructions for definition of "key employee."
RoundBullet List the organization’s five current highest compensated employees (other than an officer, director, trustee or key employee)
who received reportable compensation (Box 5 of Form W-2 and/or Box 7 of Form 1099-MISC) of more than $100,000 from the
organization and any related organizations.

RoundBullet List all of the organization’s former officers, key employees, or highest compensated employees who received more than $100,000
of reportable compensation from the organization and any related organizations.

RoundBullet List all of the organization’s former directors or trustees that received, in the capacity as a former director or trustee of the
organization, more than $10,000 of reportable compensation from the organization and any related organizations.

See instructions for the order in which to list the persons above.
Check this box if neither the organization nor any related organization compensated any current officer, director, or trustee.
(A)
Name and title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W-2/1099-MISC) 		(E)
Reportable compensation from related organizations (W-2/1099-MISC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(1) MICHAEL OSSO......................................................................
PRESIDENT/CEO(NON-VOTING)
 35.00
.................
0.00 		X   X       456,915 0 90,818
(2) ALESSANDRO DINELLO......................................................................
TRUSTEE
 1.00
.................
0.00 		X           0 0 0
(3) ALEX FUNDERBURG......................................................................
TRUSTEE
 1.00
.................
0.00 		X           0 0 0
(4) AMBER BACKHAUS......................................................................
TRUSTEE
 1.00
.................
0.00 		X           0 0 0
(5) REP ANDER CRENSHAW......................................................................
TRUSTEE
 1.00
.................
0.00 		X           0 0 0
(6) ANDREW STERN ESQ......................................................................
SECRETARY
 1.00
.................
0.00 		X   X       0 0 0
(7) BRENT POLK MD......................................................................
TRUSTEE/NSAC CHAIR
 1.00
.................
0.00 		X   X       0 0 0
(8) CHRISTOPHER COLLETTE......................................................................
TRUSTEE
 1.00
.................
0.00 		X           0 0 0
(9) CINDI ROTH......................................................................
TRUSTEE (THRU 03/2020)
 1.00
.................
0.00 		X           0 0 0
(10) DAVID RUBIN MD......................................................................
TRUSTEE
 1.00
.................
0.00 		X           0 0 0
(11) DEB CRAWFORD......................................................................
TRUSTEE (AS OF 03/2020)
 1.00
.................
0.00 		X           0 0 0
(12) DONALD KORTZ......................................................................
TRUSTEE
 1.00
.................
0.00 		X           0 0 0
(13) ERIC STONE......................................................................
TRUSTEE (THRU 03/2020)
 1.00
.................
0.00 		X           0 0 0
(14) FRANK RUSSOMANO......................................................................
TRUSTEE
 1.00
.................
0.00 		X           0 0 0
(15) JASON BURR......................................................................
TRUSTEE
 1.00
.................
0.00 		X           0 0 0
(16) JENNIFER O'NEILL......................................................................
TRUSTEE
 1.00
.................
0.00 		X           0 0 0
(17) JODI YELLEN......................................................................
TRUSTEE
 1.00
.................
0.00 		X           0 0 0
Form 990 (2020)
Form 990 (2020)
Page 8
Part VII
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (continued)
(A)
Name and title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W-2/1099-MISC) 		(E)
Reportable compensation from related organizations (W-2/1099-MISC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(18) JOE MONK........................................................................
TRUSTEE
 1.00
.......................0.00 		X           0 0 0
(19) JOEL ROSH MD........................................................................
TRUSTEE
 1.00
.......................0.00 		X           0 0 0
(20) JOHN CROSSON........................................................................
CHAIRMAN
 1.00
.......................0.00 		X   X       0 0 0
(21) MARCY BETH NANUS........................................................................
TRUSTEE
 1.00
.......................0.00 		X           0 0 0
(22) MARIA OLIVA-HEMKER MD........................................................................
TRUSTEE (THRU 03/2020)
 1.00
.......................0.00 		X           0 0 0
(23) MARK MURRAY PHD........................................................................
TRUSTEE
 1.00
.......................0.00 		X           0 0 0
(24) MEENA BEWTRA........................................................................
TRUSTEE (AS OF 03/2020)
 1.00
.......................0.00 		X           0 0 0
(25) MICHELE KISSOUS-HUNT........................................................................
TRUSTEE
 1.00
.......................0.00 		X           0 0 0
(26) NOEL BROWN........................................................................
TRUSTEE
 1.00
.......................0.00 		X           0 0 0
(27) PAULA HILBERT........................................................................
TRUSTEE (THRU 03/2020)
 1.00
.......................0.00 		X           0 0 0
(28) RHONDA BOLDING........................................................................
TRUSTEE (AS OF 03/2020)
 1.00
.......................0.00 		X           0 0 0
(29) ROBERT VAN PULLEY........................................................................
TREASURER
 1.00
.......................0.00 		X   X       0 0 0
(30) SEAN KELLEY........................................................................
TRUSTEE (AS OF 03/2020)
 1.00
.......................0.00 		X           0 0 0
(31) TOLU FALAIYE........................................................................
TRUSTEE (AS OF 03/2020)
 1.00
.......................0.00 		X           0 0 0
(32) TROY VOLLERTSEN........................................................................
TRUSTEE
 1.00
.......................0.00 		X           0 0 0
(33) SHELBY MODELL........................................................................
CO-FOUNDER/TRUSTEE
 1.00
.......................0.00 		X           0 0 0
(34) ROBERT TERRITO........................................................................
CFO/COO
 35.00
.......................0.00 		    X       274,772 0 23,986
(35) CAREN HELLER........................................................................
CHIEF SCIENCE OFFICER
 35.00
.......................0.00 		      X     371,116 0 16,207
(36) ROHIT SURI........................................................................
CHIEF TECHNOLOGY OFFICER
 35.00
.......................0.00 		      X     257,632 0 21,807
(37) MICHAEL ELKOW........................................................................
CHIEF FIELD OFFICER
 35.00
.......................0.00 		      X     250,494 0 22,332
(38) ALLISON COFFEY........................................................................
CHIEF DEVELOPMENT OFFICER
 35.00
.......................0.00 		      X     216,215 0 12,701
(39) JOHN MICHAEL MIZE........................................................................
SENIOR VICE PRESIDENT, BUSINESS DEVELOPMENT
 35.00
.......................0.00 		      X     207,502 0 9,028
(40) JUDY HOFFSTEIN........................................................................
CHIEF MARKETING OFFICER
 35.00
.......................0.00 		      X     195,790 0 24,621
(41) JENNIFER FAGERSTROM........................................................................
VP, CHAPTER GROWTH AND DEV
 35.00
.......................0.00 		        X   193,037 0 17,484
(42) ANGELA DOBES........................................................................
VICE PRESIDENT, IBD PLEXUS
 35.00
.......................0.00 		        X   175,660 0 9,084
(43) KRISTIN KAPLAN........................................................................
SVP, SPECIAL EVENTS
 35.00
.......................0.00 		        X   173,508 0 19,856
(44) LAURA WINGATE........................................................................
EXECUTIVE VICE PRESIDENT, EDUCATION, SUPPORT & ADV
 35.00
.......................0.00 		        X   174,840 0 16,044
(45) JACK MATARASSO........................................................................
VP DIGITAL MARKETING
 35.00
.......................0.00 		        X   172,401 0 8,470
1b Sub-Total................MediumBullet
c Total from continuation sheets to Part VII, Section A....MediumBullet
d Total (add lines 1b and 1c)...........MediumBullet 3,119,882 0 292,438
2
Total number of individuals (including but not limited to those listed above) who received more than $100,000 of reportable compensation from the organization MediumBullet59
Yes
No
3
Did the organization list any former officer, director or trustee, key employee, or highest compensated employee on line 1a? If "Yes," complete Schedule J for such individual ..............
3
 
No
4
For any individual listed on line 1a, is the sum of reportable compensation and other compensation from the organization and related organizations greater than $150,000? If "Yes," complete Schedule J for such
individual...........................
4
Yes
 
5
Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services rendered to the organization? If "Yes," complete Schedule J for such person ........
5
 
No
Section B. Independent Contractors
1
Complete this table for your five highest compensated independent contractors that received more than $100,000 of compensation from the organization. Report compensation for the calendar year ending with or within the organization’s tax year.
(A)
Name and business address 		(B)
Description of services 		(C)
Compensation
DELOITTE CONSULTING LLP

4022 BELLE DRIVE
HERMITAGE,TN37076 		INFRASTRUCTURAL COSTS FOR IBD PLEXUS 2,315,386
SRIJAN TECHNOLOGIES USAINC

2430 HWY 34 BUILDING B SUITE 22
MANASQUAN,NJ08736 		WEBSITE DEVELOPMENT COSTS 1,017,424
GENEWIZ LLC

115 CORPORATE BOULEVARD
SOUTH PLAINFIELD,NJ07080 		IBD PLEXUS LABORATORY COSTS 922,627
BLACKBAUD

PO BOX 930256
ATLANTA,GA311930256 		DONOR DATABASE 908,396
DIVERSIGEN INC

2450 HOLCOMBE BLVD SUITE BCMA
HOUSTON,TX77021 		IBD PLEXUS DATA ANALYSIS 750,885
2
Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization MediumBullet28
Form 990 (2020)
Form 990 (2020)
Page 9
Part VIII
Statement of Revenue
Check if Schedule O contains a response or note to any line in this Part VIII.............
(A)
Total revenue 		(B)
Related or
exempt
function
revenue 		(C)
Unrelated
business
revenue 		(D)
Revenue
excluded from
tax under sections
512 - 514
Contributions, Gifts, GrantAmt and OtherAmt Similar Amounts 1a Federated campaigns..1a 1,148,015
b Membership dues..1b  
c Fundraising events..1c 22,172,765
d Related organizations1d  
e Government grants (contributions)1e 593,693
f All other contributions, gifts, grants, and similar amounts not included above1f 44,852,997
g Noncash contributions included in lines 1a - 1f:$ 1g 449,027
h Total. Add lines 1a-1f.......MediumBullet 68,767,470
Program Service RevenueAmt Business Code
2a IBD PLEXUS DATABASE AC 900099 5,347,081 5,347,081    
b EDUCATION & CAMP REGIS 900099 46,650 46,650    
c
d
e
f All other program service revenue.        
g Total. Add lines 2a–2f .....MediumBullet 5,393,731
OtherAmtRevenueAmt 3 Investment income (including dividends, interest, and othersimilar amounts) ......MediumBullet 576,560     576,560
4 Income from investment of tax-exempt bond proceedsMediumBullet        
5 Royalties...........MediumBullet 492,419     492,419
(ii) Personal (i) Real
6a Gross rents     6a
b Less: rental expenses     6b
c Rental income or (loss)     6c
d Net rental income or (loss).......MediumBullet        
(ii) Other (i) Securities
7a Gross amount from sales of assets other than inventory   1,620,768 7a
b Less: cost or other basis and sales expenses   1,016,637 7b
c Gain or (loss)   604,131 7c
d Net gain or (loss).........MediumBullet 604,131     604,131
8a Gross income from fundraising events (not including $ 22,172,765of contributions reported on line 1c). See Part IV, line 18 ....
8a 1,976,400
b Less: direct expenses ... 8b 2,369,878
c Net income or (loss) from fundraising events..MediumBullet -393,478   -393,478
9a Gross income from gaming activities.
See Part IV, line 19 ...
9a 491,848
b Less: direct expenses ... 9b 98,370
c Net income or (loss) from gaming activities..MediumBullet 393,478     393,478
10a Gross sales of inventory, less
returns and allowances ..
10a  
b Less: cost of goods sold .. 10b  
c Net income or (loss) from sales of inventory..MediumBullet        
Business Code Miscellaneous Revenue
11a IBD JOURNAL EDITORIAL 900099 232,480 232,480    
b REBATES/REFUNDS 900099 53,633     53,633
c VEHICLE DONATION PROGR 900099 23,225     23,225
d All other revenue .... 76,393     76,393
e Total. Add lines 11a–11d ...... MediumBullet 385,731
12 Total revenue. See instructions.....MediumBullet 76,220,042 5,626,211 0 1,826,361
Form 990 (2020)
Form 990 (2020)
Page 10
Part IX
Statement of Functional Expenses
Section 501(c)(3) and 501(c)(4) organizations must complete all columns. All other organizations must complete column (A).Check if Schedule O contains a response or note to any line in this Part IX..............
Do not include amounts reported on lines 6b,
7b, 8b, 9b, and 10b of Part VIII. 		(A)
Total expenses 		(B)
Program service expenses 		(C)
Management and general expenses 		(D)
Fundraising
expenses
1 Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 .... 26,180,290 26,180,290
2 Grants and other assistance to domestic individuals. See Part IV, line 22 ...........    
3 Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. ............. 1,441,246 1,441,246
4 Benefits paid to or for members .......    
5 Compensation of current officers, directors, trustees, and key employees ........... 2,451,934 1,682,087 518,006 251,841
6 Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .........        
7 Other salaries and wages........ 23,064,484 15,822,806 4,872,700 2,368,978
8 Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) .... 992,032 680,558 209,581 101,893
9 Other employee benefits ....... 3,867,452 2,653,168 817,054 397,230
10 Payroll taxes ........... 1,888,930 1,295,853 399,063 194,014
11 Fees for services (non-employees):        
a Management ......        
b Legal ......... 91,405 66,021 17,084 8,300
c Accounting ........... 127,305   127,305  
d Lobbying ........... 516,063 516,063    
e Professional fundraising services. See Part IV, line 17 467,660 467,660
f Investment management fees ......        
g Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O) 6,241,763 4,790,668 1,245,814 205,281
12 Advertising and promotion .... 572,291 348,317 150,705 73,269
13 Office expenses ....... 399,776 245,257 103,971 50,548
14 Information technology ...... 1,317,050 951,233 246,147 119,670
15 Royalties ..        
16 Occupancy ........... 1,939,113 1,180,215 510,639 248,259
17 Travel ............ 424,016 260,861 109,782 53,373
18 Payments of travel or entertainment expenses for any federal, state, or local public officials .        
19 Conferences, conventions, and meetings .... 295,202 295,032 114 56
20 Interest ...........        
21 Payments to affiliates .......        
22 Depreciation, depletion, and amortization .. 798,436 490,213 207,394 100,829
23 Insurance ... 417,200 262,156 104,324 50,720
24 Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a PUBLICATIONS 553,767 340,598 143,435 69,734
b LIST RENTAL FEES 30,777 19,339 7,696 3,742
c
d
e All other expenses 1,591,925 1,004,104 399,133 188,688
25 Total functional expenses. Add lines 1 through 24e 75,670,117 60,526,085 10,189,947 4,954,085
26 Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here MediumBullet if following SOP 98-2 (ASC 958-720).        
Form 990 (2020)
Form 990 (2020)
Page 11
Part X
Balance Sheet
Check if Schedule O contains a response or note to any line in this Part IX..............
(A)
Beginning of year 		(B)
End of year
Assets 1 Cash–non-interest-bearing ........   1  
2 Savings and temporary cash investments ......... 3,316,951 2 15,661,625
3 Pledges and grants receivable, net ...... 13,522,713 3 8,811,867
4 Accounts receivable, net .............   4  
5 Loans and other receivables from any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
  5  
6 Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
  6  
7 Notes and loans receivable, net ...........   7  
8 Inventories for sale or use ............ 744,033 8 935,112
9 Prepaid expenses and deferred charges ...... 3,600,532 9 2,657,962
10a Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D 10a 7,053,323
b Less: accumulated depreciation 10b 5,293,582 2,175,003 10c 1,759,741
11 Investments—publicly traded securities . 19,552,807 11 24,949,673
12 Investments—other securities. See Part IV, line 11 ..... 468,887 12 530,666
13 Investments—program-related. See Part IV, line 11 ..   13  
14 Intangible assets ...............   14  
15 Other assets. See Part IV, line 11 ........... 1,893,323 15 312,530
16 Total assets. Add lines 1 through 15 (must equal line 33)... 45,274,249 16 55,619,176
Liabilities 17 Accounts payable and accrued expenses ..... 4,791,819 17 5,978,234
18 Grants payable ... 25,547,248 18 26,005,220
19 Deferred revenue ......... 5,552,232 19 6,346,010
20 Tax-exempt bond liabilities .........   20  
21 Escrow or custodial account liability. Complete Part IV of Schedule D   21  
22 Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
  22  
23 Secured mortgages and notes payable to unrelated third parties ..   23  
24 Unsecured notes and loans payable to unrelated third parties ..   24  
25 Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D 564,601 25 6,223,219
26 Total liabilities. Add lines 17 through 25.. 36,455,900 26 44,552,683
Net Assets or Fund Balance Organizations that follow FASB ASC 958, check here MediumBullet and complete lines 27, 28, 32, and 33.
27 Net assets without donor restrictions .......... -5,307,068 27 408,647
28 Net assets with donor restrictions ........... 14,125,418 28 10,657,846
Organizations that do not follow FASB ASC 958, check here MediumBullet and complete lines 29 through 33.
29 Capital stock or trust principal, or current funds .....   29  
30 Paid-in or capital surplus, or land, building or equipment fund ...   30  
31 Retained earnings, endowment, accumulated income, or other funds   31  
32 Total net assets or fund balances ........... 8,818,349 32 11,066,493
33 Total liabilities and net assets/fund balances ........ 45,274,249 33 55,619,176
Form 990 (2020)
Form 990 (2020)
Page 12
Part XI
Reconcilliation of Net Assets
Check if Schedule O contains a response or note to any line in this Part XI..............
1
Total revenue (must equal Part VIII, column (A), line 12) ............
1
76,220,042
2
Total expenses (must equal Part IX, column (A), line 25) ............
2
75,670,117
3
Revenue less expenses. Subtract line 2 from line 1 ..............
3
549,925
4
Net assets or fund balances at beginning of year (must equal Part X, line 32, column (A)) ..
4
8,818,349
5
Net unrealized gains (losses) on investments ...............
5
1,621,801
6
Donated services and use of facilities .................
6
 
7
Investment expenses .....................
7
 
8
Prior period adjustments .....................
8
 
9
Other changes in net assets or fund balances (explain in Schedule O) ........
9
76,418
10
Net assets or fund balances at end of year. Combine lines 3 through 9 (must equal Part X, line 32, column (B))
10
11,066,493
Part XII
Financial Statements and Reporting
Check if Schedule O contains a response or note to any line in this Part XII.............
Yes
No
1
Accounting method used to prepare the Form 990:  
If the organization changed its method of accounting from a prior year or checked "Other," explain in
Schedule O.
2a
Were the organization’s financial statements compiled or reviewed by an independent accountant?
2a
 
No
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were compiled or reviewed on a separate basis, consolidated basis, or both:
b
Were the organization’s financial statements audited by an independent accountant?
2b
Yes
 
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were audited on a separate basis, consolidated basis, or both:
c
If "Yes," to line 2a or 2b, does the organization have a committee that assumes responsibility for oversight of the audit, review, or compilation of its financial statements and selection of an independent accountant?
2c
Yes
 
If the organization changed either its oversight process or selection process during the tax year, explain in Schedule O.
3a
As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Single Audit Act and OMB Circular A-133?
3a
 
No
b
If "Yes," did the organization undergo the required audit or audits? If the organization did not undergo the required audit or audits, explain why in Schedule O and describe any steps taken to undergo such audits.
3b
 
 
Form 990 (2020)
Form 990 (2020)
Additional Data


Software ID:  
Software Version:  
Form 990, Special Condition Description:
Special Condition Description
SCHEDULE A
(Form 990 or 990EZ)

Department of the Treasury
Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
right arrow Attach to Form 990 or Form 990-EZ.
right arrow Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2020
Open to Public
Inspection
Name of the organization
CROHN'S & COLITIS FOUNDATION INC
 
Employer identification number

13-6193105
Part I
Reason for Public Charity Status (All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)
1
2
3
4
5
6
7
8
9
10
11
12
a
b
c
d
e
f
Enter the number of supported organizations ...............................  
g
Provide the following information about the supported organization(s).
(i) Name of supported organization (ii) EIN (iii) Type of organization (described on lines 1- 10 above (see instructions)) (iv) Is the organization listed in your governing document? (v) Amount of monetary support (see instructions) (vi) Amount of other support (see instructions)
Yes No
Total
 
   
For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.
Cat. No. 11285F
Schedule A (Form 990 or 990-EZ) 2020

Schedule A (Form 990 or 990-EZ) 2020
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2016 (b) 2017 (c) 2018 (d) 2019 (e) 2020 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. 68,702,957 71,431,094 67,009,903 66,405,320 68,767,470 342,316,744
2 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....            
3 The value of services or facilities furnished by a governmental unit to the organization without charge..            
4 Total. Add lines 1 through 3 68,702,957 71,431,094 67,009,903 66,405,320 68,767,470 342,316,744
5 The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f).. 30,282,231
6 Public support. Subtract line 5 from line 4. 312,034,513
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2016 (b) 2017 (c) 2018 (d) 2019 (e) 2020 (f) Total
7 Amounts from line 4.. 68,702,957 71,431,094 67,009,903 66,405,320 68,767,470 342,316,744
8 Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... 718,756 685,976 615,382 729,709 1,068,979 3,818,802
9 Net income from unrelated business activities, whether or not the business is regularly carried on.. 295,805 0 0 0 0 295,805
10 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. 6,852,687 7,441,563 8,568,811 8,185,352 2,853,979 33,902,392
11 Total support. Add lines 7 through 10 380,333,743
12
12
17,729,831
13
First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here........................................right arrow
Section C. Computation of Public Support Percentage
14
14
82.040 %
15
15
78.920 %
16a
b
17a
b
18
Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow
Schedule A (Form 990 or 990-EZ) 2020

Schedule A (Form 990 or 990-EZ) 2020
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2016 (b) 2017 (c) 2018 (d) 2019 (e) 2020 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .            
2 Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose            
3 Gross receipts from activities that are not an unrelated trade or business under section 513 .....            
4 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...            
5 The value of services or facilities furnished by a governmental unit to the organization without charge            
6 Total. Add lines 1 through 5            
7a Amounts included on lines 1, 2, and 3 received from disqualified persons            
b Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.            
c Add lines 7a and 7b..            
8 Public support. (Subtract line 7c from line 6.)  
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2016 (b) 2017 (c) 2018 (d) 2019 (e) 2020 (f) Total
9 Amounts from line 6...            
10a Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..            
b Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.            
c Add lines 10a and 10b.            
11 Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on.            
12 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..            
13 Total support. (Add lines 9, 10c, 11, and 12.)..            
14
Section C. Computation of Public Support Percentage
15
15
 
16
16
 
Section D. Computation of Investment Income Percentage
17
17
 
18
18
 
19a
b
20
Schedule A (Form 990 or 990-EZ) 2020

Schedule A (Form 990 or 990-EZ) 2020
Page 4
Part IV
Supporting Organizations
(Complete only if you checked a box on line 12 of Part I. If you checked box 12a, of Part I, complete Sections A and B. If you checked box 12b, of Part I, complete Sections A and C. If you checked box 12c, of Part I, complete Sections A, D, and E. If you checked box12d, of Part I, complete Sections A and D, and complete Part V.)
Section A. All Supporting Organizations
Yes
No
1
Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.
1
 
 
2
Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).
2
 
 
3a
Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer lines 3b and 3c below.
3a
 
 
b
Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.
3b
 
 
c
Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.
3c
 
 
4a
Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked box 12a or 12b in Part I, answer lines 4b and 4c below.
4a
 
 
b
Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.
4b
 
 
c
Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.
4c
 
 
5a
Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer lines 5b and 5c below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).
5a
 
 
b
Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?
5b
 
 
c
Substitutions only. Was the substitution the result of an event beyond the organization's control?
5c
 
 
6
Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.
6
 
 
7
Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ) .
7
 
 
8
Did the organization make a loan to a disqualified person (as defined in section 4958) not described in line 7? If “Yes,” complete Part I of Schedule L (Form 990 or 990-EZ).
8
 
 
9a
Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons, as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.
9a
 
 
b
Did one or more disqualified persons (as defined in line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.
9b
 
 
c
Did a disqualified person (as defined in line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.
9c
 
 
10a
Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.
10a
 
 
b
Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).
10b
 
 
Schedule A (Form 990 or 990-EZ) 2020

Schedule A (Form 990 or 990-EZ) 2020
Page 5
Part IV
Supporting Organizations (continued)
Yes
No
11
Has the organization accepted a gift or contribution from any of the following persons?
a
A person who directly or indirectly controls, either alone or together with persons described in lines 11b and 11c below, the governing body of a supported organization?
11a
 
 
b
A family member of a person described in 11a above?
11b
 
 
c
A 35% controlled entity of a person described in line 11a or 11b above? If “Yes” to 11a, 11b, or 11c, provide detail in Part VI.
11c
 
 
Section B. Type I Supporting Organizations
Yes
No
1
Did the officers, directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.
1
 
 
2
Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.
2
 
 
Section C. Type II Supporting Organizations
Yes
No
1
Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).
1
 
 
Section D. All Type III Supporting Organizations
Yes
No
1
Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?
1
 
 
2
Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).
2
 
 
3
By reason of the relationship described in line 2 above, did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.
3
 
 
Section E. Type III Functionally-Integrated Supporting Organizations
1
Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):
a
b
c
2
Activities Test. Answer lines 2a and 2b below.
Yes
No
a
Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.
2a
 
 
b
Did the activities described in line 2a, above constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.
2b
 
 
3
Parent of Supported Organizations. Answer lines 3a and 3b below.
a
Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations?If "Yes" or "No", provide details in Part VI.
3a
 
 
b
Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.
3b
 
 
Schedule A (Form 990 or 990-EZ) 2020

Schedule A (Form 990 or 990-EZ) 2020
Page 6
Part V
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations
1
Section A - Adjusted Net Income (A) Prior Year (B) Current Year
(optional)
1 Net short-term capital gain 1    
2 Recoveries of prior-year distributions 2    
3 Other gross income (see instructions) 3    
4 Add lines 1 through 3 4    
5 Depreciation and depletion 5    
6 Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) 6    
7 Other expenses (see instructions) 7    
8 Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) 8    
Section B - Minimum Asset Amount (A) Prior Year (B) Current Year
(optional)
1 Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): 1
a Average monthly value of securities 1a    
b Average monthly cash balances 1b    
c Fair market value of other non-exempt-use assets 1c    
d Total (add lines 1a, 1b, and 1c) 1d    
e Discount claimed for blockage or other factors
(explain in detail in Part VI):  
2 Acquisition indebtedness applicable to non-exempt use assets 2    
3 Subtract line 2 from line 1d 3    
4 Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions). 4    
5 Net value of non-exempt-use assets (subtract line 4 from line 3) 5    
6 Multiply line 5 by 0.035 6    
7 Recoveries of prior-year distributions 7    
8 Minimum Asset Amount (add line 7 to line 6) 8    
Section C - Distributable Amount Current Year
1 Adjusted net income for prior year (from Section A, line 8, Column A) 1  
2 Enter 85% of line 1 2  
3 Minimum asset amount for prior year (from Section B, line 8, Column A) 3  
4 Enter greater of line 2 or line 3 4  
5 Income tax imposed in prior year 5  
6 Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) 6  
7
Schedule A (Form 990 or 990-EZ) 2020

Schedule A (Form 990 or 990-EZ) 2020
Page 7
Part V
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)
Section D - Distributions Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes 1  
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in
excess of income from activity 		2  
3 Administrative expenses paid to accomplish exempt purposes of supported organizations 3  
4 Amounts paid to acquire exempt-use assets 4  
5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI) 5  
6 Other distributions (describe in Part VI). See instructions 6  
7Total annual distributions. Add lines 1 through 6. 7  
8 Distributions to attentive supported organizations to which the organization is responsive (provide
details in Part VI). See instructions 		8  
9 Distributable amount for 2020 from Section C, line 6 9  
10 Line 8 amount divided by Line 9 amount 10  
Section E - Distribution Allocations (see instructions) (i)
Excess Distributions 		(ii)
Underdistributions
Pre-2020 		(iii)
Distributable
Amount for 2020
1 Distributable amount for 2020 from Section C, line 6  
2 Underdistributions, if any, for years prior to 2019 (reasonable cause required-- explain in Part VI).
See instructions.		  
3 Excess distributions carryover, if any, to 2020:
a From 2015.......  
b From 2016.......  
c From 2017.......  
d From 2018.......  
e From 2019.......  
fTotal of lines 3a through e  
g Applied to underdistributions of prior years  
h Applied to 2020 distributable amount  
i Carryover from 2015 not applied (see
instructions) 		 
j Remainder. Subtract lines 3g, 3h, and 3i from line 3f.  
4Distributions for 2020 from Section D, line 7:
$  
a Applied to underdistributions of prior years  
b Applied to 2020 distributable amount  
c Remainder. Subtract lines 4a and 4b from line 4.  
5 Remaining underdistributions for years prior to
2020, if any. Subtract lines 3g and 4a from line 2.
If the amount is greater than zero, explain in Part VI.
See instructions. 		 
6 Remaining underdistributions for 2020. Subtract
lines 3h and 4b from line 1. If the amount is greater
than zero, explain in Part VI. See instructions. 		 
7 Excess distributions carryover to 2021. Add lines
3j and 4c. 		 
8 Breakdown of line 7:
a Excess from 2016.....  
b Excess from 2017.....  
c Excess from 2018.....  
d Excess from 2019.....  
e Excess from 2020.....  
Schedule A (Form 990 or 990-EZ) (2020)

Schedule A (Form 990 or 990-EZ) 2020
Page 8
Part VI
Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
 
Return Reference Explanation
SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: GROSS INCOME FROM FUNDRAISING ACTIVITY - 2016 AMOUNT: $ 6,455,755. 2017 AMOUNT: $ 6,790,328. 2018 AMOUNT: $ 7,371,177. 2019 AMOUNT: $ 6,822,830. 2020 AMOUNT: $ 1,976,400. GROSS INCOME FROM GAMING ACTIVITY - 2016 AMOUNT: $ 341,557. 2017 AMOUNT: $ 335,533. 2018 AMOUNT: $ 245,140. 2019 AMOUNT: $ 493,196. 2020 AMOUNT: $ 491,848. MISCELLANEOUS - 2016 AMOUNT: $ 37,283. 2017 AMOUNT: $ 299,705. 2018 AMOUNT: $ 892,774. 2019 AMOUNT: $ 827,420. 2020 AMOUNT: $ 76,393. VEHICLE DONATION PROGRAM - 2016 AMOUNT: $ 12,744. 2017 AMOUNT: $ 13,497. 2018 AMOUNT: $ 57,422. 2019 AMOUNT: $ 41,745. 2020 AMOUNT: $ 23,225. CLUBS AND ORGANIZATIONS - 2016 AMOUNT: $ 5,348. 2017 AMOUNT: $ 2,500. 2018 AMOUNT: $ 2,298. 2019 AMOUNT: $ 161. 2020 AMOUNT: $ 0. IBD JOURNAL EDITORIAL STIPENDS - 2016 AMOUNT: $ 0. 2017 AMOUNT: $ 0. 2018 AMOUNT: $ 0. 2019 AMOUNT: $ 0. 2020 AMOUNT: $ 232,480. REBATES/REFUNDS - 2016 AMOUNT: $ 0. 2017 AMOUNT: $ 0. 2018 AMOUNT: $ 0. 2019 AMOUNT: $ 0. 2020 AMOUNT: $ 53,633.
Schedule A (Form 990 or 990-EZ) 2020


Additional Data


Software ID:  
Software Version:  
Schedule B
(Form 990, 990-EZ,
or 990-PF)
Department of the Treasury
Internal Revenue Service
Schedule of Contributors

Arrow Bullet Attach to Form 990, 990-EZ, or 990-PF.
Arrow Bullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2020
Name of the organization
CROHN'S & COLITIS FOUNDATION INC
 
Employer identification number

13-6193105
Organization type (check one):
Filers of:
Section:
Form 990 or 990-EZ






Form 990-PF




Check if your organization is covered by the General Rule or a Special Rule.  
Note: Only a section 501(c)(7), (8), or (10) organization can check boxes for both the General Rule and a Special Rule. See instructions.
General Rule
Special Rules
......... Arrow Bullet $  
Caution: An organization that isn't covered by the General Rule and/or the Special Rules doesn't file Schedule B (Form 990,
990-EZ, or 990-PF), but it must answer “No” on Part IV, line 2, of its Form 990; or check the box on line H of its Form 990-EZ
or on its Form 990PF, Part I, line 2, to certify that it doesn't meet the filing requirements of Schedule B (Form 990,
990-EZ, or 990-PF).
For Paperwork Reduction Act Notice, see the Instructions
for Form 990, 990-EZ, or 990-PF.
Cat. No. 30613XSchedule B (Form 990, 990-EZ, or 990-PF) (2020)
Schedule B (Form 990, 990-EZ, or 990-PF) (2020) Page 2
Name of organization
CROHN'S & COLITIS FOUNDATION INC
  		Employer identification number
13-6193105
Part I
Contributors
Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
RESTRICTED
 
 
 
 
  ,    

$ RESTRICTED


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
Schedule B (Form 990, 990-EZ, or 990-PF) (2020)
Schedule B (Form 990, 990-EZ, or 990-PF) (2020)
Page 3
Name of organization
CROHN'S & COLITIS FOUNDATION INC
  		Employer identification number

13-6193105
Part II
Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
(a)
No. from Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I		 (b)
Description of noncash property given		 (c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
Schedule B (Form 990, 990-EZ, or 990-PF) (2020)
Schedule B (Form 990, 990-EZ, or 990-PF) (2020)
Page 4
Name of organization
CROHN'S & COLITIS FOUNDATION INC
  		Employer identification number

13-6193105
Part III
Exclusively religious, charitable, etc., contributions to organizations described in section 501(c)(7), (8), or (10) that total more than $1,000 for the year from any one contributor. Complete columns (a) through (e) and the following line entry. For organizations completing Part III, enter the total of exclusively religious, charitable, etc., contributions of $1,000 or less for the year. (Enter this information once. See instructions.) Arrow Bullet$  
Use duplicate copies of Part III if additional space is needed.
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
Schedule B (Form 990, 990-EZ, or 990-PF) (2020)
Additional Data


Software ID:  
Software Version:  
SCHEDULE C
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service
Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527

SchCMd Bullet Complete if the organization is described below. SchCMd Bullet Attach to Form 990 or Form 990-EZ.
SchCMd BulletGo to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2020
Open to Public
Inspection
If the organization answered "Yes" on Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" on Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" on Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet Section 501(c)(4), (5), or (6) organizations: Complete Part III.
Name of the organization
CROHN'S & COLITIS FOUNDATION INC
 
Employer identification number

13-6193105
Part I-A
Complete if the organization is exempt under section 501(c) or is a section 527 organization.

1
Provide a description of the organization’s direct and indirect political campaign activities in Part IV (see instructions for definition of “political campaign activities")

2
Political campaign activity expenditures (see instructions) ....................................................................SchCMd Bullet
$  
3
Volunteer hours for political campaign activities (see instructions) ..................................................................
 

Part I-B
Complete if the organization is exempt under section 501(c)(3).
1
Enter the amount of any excise tax incurred by the organization under section 4955 ................................SchCMd Bullet
$  
2
Enter the amount of any excise tax incurred by organization managers under section 4955 .......................SchCMd Bullet
$  
3
If the organization incurred a section 4955 tax, did it file Form 4720 for this year? .........................................
4a
Was a correction made? ......................................................................................................................
b
If "Yes," describe in Part IV.
Part I-C
Complete if the organization is exempt under section 501(c), except section 501(c)(3).
1
Enter the amount directly expended by the filing organization for section 527 exempt function activities ..... SchCMd Bullet
$  
2
Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ............................................................................................................................SchCMd Bullet

$  
3
Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b...........SchCMd Bullet

$  
4
Did the filing organization file Form 1120-POL for this year? ...................................................................
5
Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.
(a) Name (b) Address (c) EIN (d) Amount paid from filing organization's funds. If none, enter -0-. (e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.
1
2
3
4
5
6
For Paperwork Reduction Act Notice, see the instructions for Form 990 or 990-EZ.
Cat. No. 50084S
Schedule C (Form 990 or 990-EZ) 2020

Schedule C (Form 990 or 990-EZ) 2020
Page 2
Part II-A
Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).
A Check SchCMd Bulletexpenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet
Limits on Lobbying Expenditures
(The term "expenditures" means amounts paid or incurred.) 		(a) Filing
organization's
totals 		(b) Affiliated group totals
1a Total lobbying expenditures to influence public opinion (grass roots lobbying) ......................    
b Total lobbying expenditures to influence a legislative body (direct lobbying) ........................    
c Total lobbying expenditures (add lines 1a and 1b) ............................................................    
d Other exempt purpose expenditures ...............................................................................    
e Total exempt purpose expenditures (add lines 1c and 1d) ..................................................    
f Lobbying nontaxable amount. Enter the amount from the following table in both
columns.		    
If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
Not over $500,00020% of the amount on line 1e.
Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
Over $17,000,000$1,000,000.
g Grassroots nontaxable amount (enter 25% of line 1f) .................................................    
h Subtract line 1g from line 1a. If zero or less, enter -0-. ................................................    
i Subtract line 1f from line 1c. If zero or less, enter -0-. ................................................    
j If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting
section 4911 tax for this year? ...................................................................................................................

4-Year Averaging Period Under Section 501(h)
(Some organizations that made a section 501(h) election do not have to complete all of the five
columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
Calendar year (or fiscal year
beginning in) 		(a) 2017 (b) 2018 (c) 2019 (d) 2020 (e) Total
2a Lobbying nontaxable amount          
b Lobbying ceiling amount
(150% of line 2a, column(e)) 		 
c Total lobbying expenditures          
d Grassroots nontaxable amount          
e Grassroots ceiling amount
(150% of line 2d, column (e))		  
f Grassroots lobbying expenditures          
Schedule C (Form 990 or 990-EZ) 2020


Schedule C (Form 990 or 990-EZ) 2020
Page 3
Part II-B
Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).
For each "Yes" response on lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.
(a)
Yes|No
(b)
Amount
1
During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:
a
Volunteers? ...........................................................................................................
 
No
b
Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ........
 
No
c
Media advertisements? ...................................................................................................
 
No
 
d
Mailings to members, legislators, or the public? .............................................................................
Yes
 
 
e
Publications, or published or broadcast statements? ...........................................................
 
No
 
f
Grants to other organizations for lobbying purposes? ..........................................................
 
No
 
g
Direct contact with legislators, their staffs, government officials, or a legislative body? .......................
Yes
 
169,970
h
Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ..................
 
No
 
i
Other activities? ...................................................................................................................
Yes
 
144,538
j
Total. Add lines 1c through 1i ....................................................................................................
314,508
2a
Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....
 
No
b
If "Yes," enter the amount of any tax incurred under section 4912 ...........................................
 
c
If "Yes," enter the amount of any tax incurred by organization managers under section 4912 ...................
 
d
If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? ........................
 
 
Part III-A
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).
Yes
No
1
Were substantially all (90% or more) dues received nondeductible by members? ...............................................
1
 
 
2
Did the organization make only in-house lobbying expenditures of $2,000 or less? ............................................
2
 
 
3
Did the organization agree to carry over lobbying and political expenditures from the prior year? .................................
3
 
 
Part III-B
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."
1
Dues, assessments and similar amounts from members ......................................................................
1
 
2
Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political expenses for which the section 527(f) tax was paid).
a
Current year .............................................................................................................................
2a
 
b
Carryover from last year ............................................................................................................
2b
 
c
Total ...........................................................................................................................................
2c
 
3
Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .
3
 
4
If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ......................................................................................................................
4
 
5
Taxable amount of lobbying and political expenditures (see instructions) .........................................
5
 
Part IV
Supplemental Information
Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.
Return Reference Explanation
PART II-B, LINE 1: (I) IN 2020, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") EMPLOYED THE SERVICES OF A PROFESSIONAL CONSULTANT TO KEEP THE ORGANIZATION UP-TO-DATE ON WHAT IS TRANSPIRING WITH FEDERAL LEGISLATION ON CAPITOL HILL CONCERNING HEALTH AND MEDICINE. DURING THE YEAR ENDED 2020, EXPENSES INCURRED TOTALLED $144,538. THE FOUNDATION ENGAGES IN STATE-BASED ADVOCACY CAMPAIGNS ENSURING THAT THE NEEDS OF PATIENTS ARE ADDRESSED THROUGH LEGISLATION THAT TARGETS THE COST OF HEALTH CARE AND ACCESS TO CARE. TOTAL PAYMENTS MADE IN CALENDAR YEAR 2020 WERE $121,942. THE FOUNDATION HOLDS A "DAY ON THE HILL" EVENT EVERY YEAR, IN WHICH PATIENTS SUFFERING WITH IBD VOLUNTEER TO TRAVEL TO WASHINGTON D.C. TO DISCUSS PROPOSED HEALTHCARE BILLS WITH LEGISLATORS. THE "DAY ON THE HILL" EVENT WAS CONDUCTED VIRTUALLY DURING THE CALENDAR YEAR 2020, FOR WHICH EXPENSES INCURRED WERE $40,500. EXPENDITURES OF $40,500 FOR THE DAY ON THE HILL EVENT HAVE BEEN REPORTED ON SCHEDULE C, PART II-B, 1(G). INCLUDED WITHIN THE $40,500 ARE EXPENSES INCURRED FOR MAILINGS MADE TO MEMBERS, LEGISLATORS OR THE PUBLIC (LINE 1(D)); ACCORDINGLY THE FOUNDATION HAS MARKED BOX 1(D) YES, BUT NOT REPORTED AN EXPENSE ON THAT LINE (TO AVOID DOUBLE-COUNTING).
Schedule C (Form 990 or 990EZ) 2020


Additional Data


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Software Version:  

SCHEDULE D
(Form 990)
Department of the Treasury
Internal Revenue Service
Supplemental Financial Statements
SchDMd Bullet Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
SchDMd Bullet Attach to Form 990.
SchDMd Bullet Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2020
Open to Public Inspection
Name of the organization
CROHN'S & COLITIS FOUNDATION INC
 
Employer identification number

13-6193105
Part I
Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.
(a) Donor advised funds (b) Funds and other accounts
1 Total number at end of year .........    
2 Aggregate value of contributions to (during year)    
3 Aggregate value of grants from (during year)    
4 Aggregate value at end of year ........    
5
Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............
6
Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................
Part II
Conservation Easements.
Complete if the organization answered "Yes" on Form 990, Part IV, line 7.
1
Purpose(s) of conservation easements held by the organization (check all that apply).
2
Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.
Held at the End of the Year
a Total number of conservation easements ...................... 2a  
b Total acreage restricted by conservation easements .................... 2b  
c Number of conservation easements on a certified historic structure included in (a) ..... 2c  
d Number of conservation easements included in (c) acquired after 7/25/06, and not on a historic structure listed in the National Register ... 2d  
3
Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year SchDMd Bullet  
4
Number of states where property subject to conservation easement is located SchDMd Bullet  
5
Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............
6
Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet  
7
Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet $  
8
Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................
9
In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.
1a
If the organization elected, as permitted under FASB ASC 958, not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.
b
If the organization elected, as permitted under FASB ASC 958, to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:
(i)
Revenue included on Form 990, Part VIII, line 1 .........................SchDMd Bullet $  
(ii)
Assets included in Form 990, Part X ...............................SchDMd Bullet $  
2
If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under FASB ASC 958 relating to these items:
a
Revenue included on Form 990, Part VIII, line 1 ..........................SchDMd Bullet $  
b
Assets included in Form 990, Part X ...............................SchDMd Bullet $  
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 52283D
Schedule D (Form 990) 2020

Schedule D (Form 990) 2020
Page 2
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)
3
Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):
a
d
b
e
 
c
4
Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.
5
During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...
Part IV
Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.
1a
Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................
b If "Yes," explain the arrangement in Part XIII and complete the following table: Amount
c Beginning balance ............................. 1c  
d Additions during the year ............................ 1d  
e Distributions during the year .......................... 1e  
f Ending balance ................................ 1f  
2a
Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...
b
If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....
Part V
Endowment Funds.
Complete if the organization answered "Yes" on Form 990, Part IV, line 10.
(a) Current year (b) Prior year (c) Two years back (d) Three years back (e) Four years back
1a Beginning of year balance ....          
b Contributions ...          
c Net investment earnings, gains, and losses          
d Grants or scholarships ...          
e Other expenditures for facilities
and programs ... 		         
f Administrative expenses ....          
g End of year balance ......          
2
Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:
a
Board designated or quasi-endowment SchDMd Bullet  
b
Permanent endowment SchDMd Bullet  
c
Term endowment SchDMd Bullet  
The percentages on lines 2a, 2b, and 2c should equal 100%.
3a
Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes
No
(i) Unrelated organizations .......................
3a(i)
 
 
(ii) Related organizations .......................
3a(ii)
 
 
b
If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........
3b
 
 
4
Describe in Part XIII the intended uses of the organization's endowment funds.
Part VI
Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.
Description of property (a) Cost or other basis
(investment) 		(b) Cost or other basis (other) (c) Accumulated depreciation (d) Book value
1a Land .....      
b Buildings ....        
c Leasehold improvements   486,754 322,612 164,142
d Equipment ....   2,130,823 1,846,834 283,989
e Other .....   4,435,746 3,124,136 1,311,610
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).)..SchDMdBullet 1,759,741
Schedule D (Form 990) 2020

Schedule D (Form 990) 2020
Page 3
Part VII
Investments - Other Securities.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.
(a) Description of security or category
(including name of security)		 (b) Book value (c) Method of valuation:
Cost or end-of-year market value
(1) Financial derivatives.........    
(2) Closely-held equity interests........    
(3)Other
(B)
(C)
(D)
(E)
(F)
(G)
(H)
(I)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)Small Bullet  
Part VIII
Investments - Program Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.
(a) Description of investment (b) Book value (c) Method of valuation:
Cost or end-of-year market value
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)Small Bullet  
Part IX
Other Assets.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.
(a) Description (b) Book value
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
(10)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........Small Bullet  
Part X
Other Liabilities.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.
1.(a) Description of liability (b) Book value
(1) Federal income taxes  
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)Small Bullet 6,223,219
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII
Schedule D (Form 990) 2020

Schedule D (Form 990) 2020
Page 4
Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1 Total revenue, gains, and other support per audited financial statements ....... 1 80,797,986
2 Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a Net unrealized gains (losses) on investments .... 2a 1,621,801
b Donated services and use of facilities ......... 2b 2,936,025
c Recoveries of prior year grants ........... 2c  
d Other (Describe in Part XIII.) ............ 2d 20,118
e Add lines 2a through 2d ..................... 2e 4,577,944
3 Subtract line 2e from line 1.................. 3 76,220,042
4 Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b . 4a  
b Other (Describe in Part XIII.) ........... 4b  
c Add lines 4a and 4b.................... 4c 0
5 Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ...... 5 76,220,042
Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1 Total expenses and losses per audited financial statements ........... 1 78,549,842
2 Amounts included on line 1 but not on Form 990, Part IX, line 25:
a Donated services and use of facilities ......... 2a 2,936,025
b Prior year adjustments ............ 2b  
c Other losses ................ 2c  
d Other (Describe in Part XIII.) ............ 2d -56,300
e Add lines 2a through 2d.................... 2e 2,879,725
3 Subtract line 2e from line 1................... 3 75,670,117
4 Amounts included on Form 990, Part IX, line 25, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b .. 4a  
b Other (Describe in Part XIII.) ............ 4b  
c Add lines 4a and 4b..................... 4c 0
5 Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ...... 5 75,670,117
Part XIII
Supplemental Information
Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.
Return Reference Explanation
PART X, LINE 2: THE FOUNDATION IS A NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE (THE "CODE") AND HAS BEEN CLASSIFIED AS A PUBLICLY SUPPORTED CHARITABLE ORGANIZATION UNDER SECTION 509(A)(1) OF THE CODE AND QUALIFIES FOR THE MAXIMUM CHARITABLE CONTRIBUTION DEDUCTION BY DONORS. CONTRIBUTIONS TO THE FOUNDATION ARE TAX DEDUCTIBLE WITHIN THE LIMITATIONS PRESCRIBED BY THE CODE. THE FOUNDATION IS ALSO EXEMPT FROM STATE AND LOCAL TAXES UNDER SIMILAR STATUTES. ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN, INCLUDING ISSUES RELATING TO FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT, PROVIDES THAT THE TAX EFFECTS FROM AN UNCERTAIN TAX POSITION CAN BE RECOGNIZED IN THE FINANCIAL STATEMENTS ONLY IF THE POSITION IS "MORE-LIKELY-THAN-NOT" TO BE SUSTAINED IF THE POSITION WERE TO BE CHALLENGED BY A TAXING AUTHORITY. THE ASSESSMENT OF THE TAX POSITION IS BASED SOLELY ON THE TECHNICAL MERITS OF THE POSITION, WITHOUT REGARD TO THE LIKELIHOOD THAT THE TAX POSITION MAY BE CHALLENGED. THE FOUNDATION IS EXEMPT FROM INCOME TAX UNDER THE CODE, HOWEVER, IS SUBJECT TO TAX ON INCOME UNRELATED TO ITS EXEMPT PURPOSES, UNLESS THAT INCOME IS OTHERWISE EXCLUDED UNDER THE CODE. THE FOUNDATION HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS. IN ADDITION, THE FOUNDATION HAS NOT RECORDED A PROVISION FOR INCOME TAXES AS IT HAS NO MATERIAL TAX LIABILITY FROM UNRELATED BUSINESS INCOME ACTIVITIES.
PART XI, LINE 2D - OTHER ADJUSTMENTS: CHANGES IN CHARITABLE REMAINDER TRUSTS VALUATIONS 20,118.
PART XII, LINE 2D - OTHER ADJUSTMENTS: UNCOLLECTIBLE PLEDGES 493,700. GRANTS REFUNDED/RESCINDED -550,000.
Schedule D (Form 990) 2020


Additional Data


Software ID:  
Software Version:  




SCHEDULE F(Form 990)
Department of the Treasury
Internal Revenue Service
Statement of Activities Outside the United States
Right pointing arrow large image Complete if the organization answered "Yes" to Form 990, Part IV, line 14b, 15, or 16.Right pointing arrow large image Attach to Form 990.Right pointing arrow large image Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2020
Open to Public Inspection
Name of the organization
CROHN'S & COLITIS FOUNDATION INC
 
Employer identification number

13-6193105
Part I
General Information on Activities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 14b.
1
For grantmakers. Does the organization maintain records to substantiate the amount of its grants and
other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used
to award the grants or assistance? . . . . . . . . . . . . . . . . . . . . . . . . .
2
For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.
3
Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)
(a) Region (b) Number of offices in the region (c) Number of employees, agents, and independent contractors in the region (d) Activities conducted in region (by type) (such as, fundraising, program services, investments, grants to recipients located in the region) (e) If activity listed in (d) is a program service, describe specific type of
service(s) in the region		 (f) Total expenditures
for and investments
in the region
EUROPE 0 0 GRANTMAKING RESEARCH 1,029,023
NORTH AMERICA 0 0 GRANTMAKING RESEARCH 285,308
MIDDLE EAST AND NORTH AFRICA 0 0 GRANTMAKING RESEARCH 87,915
EAST ASIA AND THE PACIFIC 0 0 GRANTMAKING RESEARCH 39,000
           
           
           
           
           
           
           
           
           
           
           
           
           
3a Sub-total .... 0 0 1,441,246
b Total from continuation sheets to Part I ... 0 0 0
c Totals (add lines 3a and 3b) 0 0 1,441,246
For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) 2020
Schedule F (Form 990) 2020
Page 2
Part II
Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.
1 (a) Name of organization (b) IRS code section
and EIN (if applicable)		 (c) Region (d) Purpose of
grant 		(e) Amount of
cash grant 		(f) Manner of
cash
disbursement 		(g) Amount
of noncash
assistance 		(h) Description
of noncash
assistance 		(i) Method of
valuation
(book, FMV,
appraisal, other)
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 129,870 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 25,323 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 57,114 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 23,964 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 16,680 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 30,113 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 55,278 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 58,671 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 81,000 BANK WIRE      
MIDDLE EAST AND NORTH AFRICA RESEARCH 87,915 BANK WIRE      
EAST ASIA AND THE PACIFIC RESEARCH 39,000 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 27,953 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 87,586 BANK WIRE      
NORTH AMERICA RESEARCH 79,639 BANK WIRE      
NORTH AMERICA RESEARCH 205,670 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 35,968 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 38,985 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 155,097 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 26,005 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 32,940 BANK WIRE      
EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 146,475 BANK WIRE      
2 Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter .......MediumBullet
21
3 Enter total number of other organizations or entities .......................MediumBullet
 
Schedule F (Form 990) 2020
Schedule F (Form 990) 2020Page 3
Part III
Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 16.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Region (c) Number of recipients (d) Amount of
cash grant 		(e) Manner of cash
disbursement 		(f) Amount of
noncash
assistance 		(g) Description
of noncash
assistance 		(h) Method of
valuation
(book, FMV,
appraisal, other)
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
Schedule F (Form 990) 2020
Schedule F (Form 990) 2020
Page 4
Part IV
Foreign Forms
1 Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
2 Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to separately file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A; don't file with Form 990). . . . . . . . . . . . . . . . . . . . . . . .
3 Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471). . . . . . . . . . . . . . . . . . . . . . . . . . . .
4 Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621) .
5 Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships (see Instructions for Form 8865). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
6 Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to separately file Form 5713, International Boycott Report (see Instructions for Form 5713; don't file with Form 990).. . . . . . . . . . . . . . . . . . . . . . . . . . . .
Schedule F (Form 990) 2020
Schedule F (Form 990) 2020
Page 5
Part V
Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information. See instructions.
ReturnReference Explanation
PART III ACCOUNTING METHOD:  
PART I, LINE 1: GRANTS THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") IS A NON-PROFIT ORGANIZATION DEDICATED TO FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS. TO ACCOMPLISH THIS, THE FOUNDATION SUBSIDIZES RESEARCH INTO BOTH DISEASES. GRANTS ARE AWARDED FOR SPECIFIC PROJECTS FOR SPECIFIC RESEARCH AND THE FOUNDATION REQUIRES THE RESEARCHER TO ISSUE PROGRESS REPORTS ANNUALLY AS THE PROJECT IS BEING COMPLETED. MOST AWARDS ARE GIFTED FOR A PERIOD OF 3 YEARS WITH AN ANNUAL PROGRESS REPORT PRESENTED TO THE CHIEF SCIENTIFIC OFFICER AND THE NATIONAL SCIENTIFIC ADVISORY COMMITTEE FOR REVIEW AND APPROVAL. IF THE PROGRESS REPORTS DO NOT SHOW SIGNIFICANT STRIDES IN THE RESEARCH, THE GRANT WILL NOT BE APPROVED FOR ADDITIONAL FUNDING AND WILL BE TERMINATED.
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
Schedule F (Form 990) 2020
Additional Data


Software ID:  
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SCHEDULE G (Form 990 or 990-EZ)
Department of the Treasury
Internal Revenue Service
Supplemental Information Regarding
Fundraising or Gaming Activities
Complete if the organization answered "Yes" on Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrowAttach to Form 990 or Form 990-EZ.
right arrowGo to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2020
Open to Public Inspection
Name of the organization
CROHN'S & COLITIS FOUNDATION INC
 
Employer identification number

13-6193105
Part I
Fundraising Activities.Complete if the organization answered "Yes" on Form 990, Part IV, line 17.
Form 990-EZ filers are not required to complete this part.
1
Indicate whether the organization raised funds through any of the following activities. Check all that apply.
a e
b f
c g
d
2a
Did the organization have a written or oral agreement with any individual (including officers, directors, trustees
or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?
b
If "Yes," list the 10 highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.


(i) Name and address of individual
or entity (fundraiser) 		(ii) Activity (iii) Did fundraiser have custody or control of contributions? (iv) Gross receipts
from activity 		(v) Amount paid to
(or retained by)
fundraiser listed in
col. (i) 		(vi) Amount paid to
(or retained by)
organization
Yes No
 
CHAPMAN CUBINE & HUSSEY INC
2000 15TH ST STE 550
 
ARLINGTON, VA22201 		DIRECT MAIL   No 5,566,041 467,660 5,098,381
             
             
             
             
             
             
             
             
             
Total . . . . . . . . . . . . . . . . . . . . right arrow 5,566,041 467,660 5,098,381
3
List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.
AK, AL, AR, AZ, CA, CO, CT, DE, FL, GA, HI, IA, IL, IN, KS, KY, LA, MA, MD, ME, MI, MN, MS, NC, ND, NE, NH, NJ, NM, NY, OH, OK, OR, PA, RI, SC, TN, TX, UT, VA, VT, WA, WI, WV, WY
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 50083H
Schedule G (Form 990 or 990-EZ) 2020
Schedule G (Form 990 or 990-EZ) 2020
Page 2
Part II
Fundraising Events. Complete if the organization answered "Yes" on Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.









VerticalRevenue
(a) Event #1

TAKE STEPS
(event type) 		(b) Event #2

TEAM CHALLENGE
(event type) 		(c) Other events

110
(total number) 		(d) Total events
(add col. (a) through col. (c))

1
Gross receipts . . . . .
7,478,062
1,472,395
15,198,708
24,149,165

2
Less: Contributions . . . .
7,061,657
1,247,643
13,863,465
22,172,765
3 Gross income (line 1 minus
line 2) . . . . . .
416,405
224,752
1,335,243
1,976,400



VerticalDirectExpenses
4 Cash prizes . . . . .        
5 Noncash prizes . . . .        
6 Rent/facility costs . . . . 88,361 17,362 1,021,907 1,127,630
7 Food and beverages . . .        
8 Entertainment . . . . 3,066 0 68,997 72,063
9 Other direct expenses . . . 324,977 207,391 637,817 1,170,185
10 Direct expense summary. Add lines 4 through 9 in column (d) . . . . . . . . . . right arrow 2,369,878
11 Net income summary. Subtract line 10 from line 3, column (d). . . . . . . . . . right arrow -393,478
Part III
Gaming. Complete if the organization answered "Yes" on Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.
VerticalRevenue
(a) Bingo (b) Pull tabs/Instant
bingo/progressive bingo 		(c) Other gaming (d) Total gaming (add col.(a) through col.(c))

1
Gross revenue . . . . .
 
 
491,848
491,848
VerticalDirectExpenses

2
Cash prizes . . . . .
 
 
 
 

3
Noncash prizes . . . .
 
 
 
 

4
Rent/facility costs . . . .
 
 
 
 

5
Other direct expenses . . .
 
 
98,370
98,370


6

Volunteer labor . . . .
%
%
%


7
Direct expense summary. Add lines 2 through 5 in column (d) . . . . . . . . . . right arrow
98,370

8
Net gaming income summary. Subtract line 7 from line 1, column (d). . . . . . . . . right arrow
393,478

9
Enter the state(s) in which the organization conducts gaming activities:
a
Is the organization licensed to conduct gaming activities in each of these states? . . . . . . . .
b
If "No," explain:
 
10a
Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? . . .
b
If "Yes," explain:
 
Schedule G (Form 990 or 990-EZ) 2020
Schedule G (Form 990 or 990-EZ) 2020
Page 3
11
Does the organization conduct gaming activities with nonmembers? . . . . . . . . . . .
12
Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity
formed to administer charitable gaming? . . . . . . . . . . . . . . . . .
13
Indicate the percentage of gaming activity conducted in:
a
The organization's facility . . . . . . . . . . . . . . . . . .
13a
%
b
An outside facility . . . . . . . . . . . . . . . . . . . .
13b
100.000 %
14
Enter the name and address of the person who prepares the organization's gaming/special events books and records:
Name right arrow
RONALD GOLDSMAN
Address right arrow
733 THIRD AVENUE SUITE 510   NEW YORK, NY10017
15a
Does the organization have a contract with a third party from whom the organization receives gaming
revenue? . . . . . . . . . . . . . . . . . . . . . . . .
b
If "Yes," enter the amount of gaming revenue received by the organization right arrow $   and the
amount of gaming revenue retained by the third party right arrow $   .
c
If "Yes," enter name and address of the third party:
Name right arrow
Address right arrow
16
Gaming manager information:
Name right arrow
SEE PART IV
Gaming manager compensation right arrow $  
Description of services provided right arrow
NONE
17
Mandatory distributions:
a
Is the organization required under state law to make charitable distributions from the gaming proceeds to
retain the state gaming license? . . . . . . . . . . . . . . . . . . .
b
Enter the amount of distributions required under state law distributed to other exempt organizations or spent
in the organization's own exempt activities during the tax year right arrow$  
Part IV
Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v); and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information. See instructions.
Return Reference Explanation
SCHEDULE G, PART III - GAMING ACTIVITIES THE CROHN'S & COLITIS FOUNDATION, INC. ONLY PARTAKES IN GAMING ACTIVITIES TO THE EXTENT THE ORGANIZATION HOLDS A RAFFLE OR GAME OF CHANCE DURING A GALA, DINNER OR OTHER SPECIAL EVENT. EACH CHAPTER IS RESPONSIBLE FOR CONDUCTING ITS OWN EVENT ACTIVITIES AND, AS SUCH, THE ORGANIZATION DOES NOT HAVE ONE PERSON WHO OVERSEES ALL GAMING ACTIVITIES FOR PURPOSES OF SCHEDULE G, PART III, LINES 14 & 16. RAFFLES ARE CONDUCTED AS PART OF SPECIAL EVENTS AND NOT AS SEPARATE FUNDRAISING ACTIVITIES. AS A RESULT OF THE PANDEMIC, TO ENGAGE WITH ITS DONORS, THE FOUNDATION VIRTUALIZED ITS SPECIAL EVENTS THROUGH THE USE OF A FUNDRAISING PLATFORM THAT OFFERED A WIDE ARRAY OF FUNDRAISING ACTIVITIES, INCLUDING RAFFLES AND AUCTIONS. CHAPTERS, IN COLLABORATION WITH NATIONAL STAFF, ARE RESPONSIBLE FOR SECURING APPLICABLE LICENSES AND COMPLYING WITH REPORTING REQUIREMENTS. FOR THE PERIOD COVERED BY THIS RETURN, ONLY 36 CHAPTERS HELD RAFFLES IN 25 STATES: ALABAMA, ARKANSAS, CALIFORNIA, COLORADO, CONNECTICUT, FLORIDA, GEORGIA, ILLINOIS, INDIANA, KANSAS, MARYLAND, MASSACHUSETTS, MICHIGAN, MINNESOTA, MISSOURI, NEBRASKA, NEW JERSEY, NEW YORK, NORTH CAROLINA, OHIO, PENNSYLVANIA, TEXAS, VIRGINIA, WASHINGTON, WISCONSIN.
Schedule G (Form 990 or 990-EZ) 2020
Additional Data


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Schedule I
(Form 990)
Department of the Treasury
Internal Revenue Service
Grants and Other Assistance to Organizations,
Governments and Individuals in the United States
Complete if the organization answered "Yes," on Form 990, Part IV, line 21 or 22.
lBullet Attach to Form 990.
lBullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2020
Open to Public
Inspection
Name of the organization
CROHN'S & COLITIS FOUNDATION INC
 
Employer identification number
13-6193105
Part I
General Information on Grants and Assistance
1
Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ........................
2
Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.
Part II
Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" on Form 990, Part IV, line 21, for any recipient
that received more than $5,000. Part II can be duplicated if additional space is needed.
(a) Name and address of organization
or government		 (b) EIN (c) IRC section
(if applicable)		 (d) Amount of cash grant (e) Amount of non-cash
assistance		 (f) Method of valuation
(book, FMV, appraisal,
other)		 (g) Description of
noncash assistance		 (h) Purpose of grant
or assistance
(1) ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVE
ALBANY,NY12208 		14-1338310 501(C)(3) 6,285       RESEARCH
(2) ARTIZAN BIOSCIENCES INC
150 MUNSON ST SUTIE 210
NEW HAVEN,CT06511 		81-3754450 501(C)(3) 177,975       RESEARCH
(3) AURORA RESEARCH INSTITUTELLC
PO BOX 341880
MILWAUKEE,WI53234 		46-4361213 501(C)(3) 70,418       RESEARCH
(4) BAYLOR RESEARCH INSTITUTE DBA BAYLOR SCOTT AND WHITE RESEARCH IN
2001 BRYAN STREET SUITE 2200
DALLAS,TX75201 		75-1921898 501(C)(3) 38,944       RESEARCH
(5) BETH ISRAEL DEACONESS MEDICAL CENTER
330 BROOKLINE AVENUE
BOSTON,MA02215 		04-2103881 501(C)(3) 50,458       RESEARCH
(6) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK STREET SUITE 6401
MADISON,WI53715 		39-6006492 501(C)(3) 84,200       RESEARCH
(7) BOARD OF TRUSTEES OF MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD ROOM 360
EAST LANSING,MI48824 		38-6005984 501(C)(3) 58,250       RESEARCH
(8) BOSTON MEDICAL CENTER
ONE BOSTON MEDICAL CENTER PLACE
BOSTON,MA02118 		04-3314093 501(C)(3) 88,870       RESEARCH
(9) CASE WESTERN RESERVE UNIVERSITY SCHOOL OF MEDICINE
10900 EUCLID AVENUE
CLEVELAND,OH44106 		34-1018992 501(C)(3) 293,446       RESEARCH
(10) CEDARS SINAI MEDICAL CENTER
8700 BEVERLY BLVD
LOS ANGELES,CA90048 		95-1644600 501(C)(3) 181,250       RESEARCH
(11) CHILDRENS HOSPITAL BOSTON
300 LONGWOOD AVENUE
BOSTON,MA02115 		04-2774441 501(C)(3) 252,088       RESEARCH
(12) CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BOULEVARD MAIL STOP 97
LOS ANGELES,CA90027 		19-5612191 501(C)(3) 178,888       RESEARCH
(13) CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE
CINCINNATI,OH45229 		31-0833936 501(C)(3) 272,689       RESEARCH
(14) CURATORS OF THE UNIVERSITY OF MISSOURI
118 UNIVERSITY HALL
COLUMBIA,MO65211 		43-6003859 501(C)(3) 56,415       RESEARCH
(15) CURTIS HUTTENHOWER
31 MT VERNON STREET 4
BOSTON,MA02108 		18-8625023 501(C)(3) 28,050       RESEARCH
(16) DANA-FARBER CANCER INSTITUTE INC
450 BROOKLINE AVENUE BP418
BOSTON,MA02215 		04-2263040 501(C)(3) 29,125       RESEARCH
(17) DARTMOUTH-HITCHCOCK CLINIC
ONE MEDICAL CENTER DRIVE
LEBANON,NH03756 		22-2519596 501(C)(3) 256,398       RESEARCH
(18) DUKE UNIVERSITY
BOX 104132
DURHAM,NC27708 		56-0532129 501(C)(3) 57,915       RESEARCH
(19) EMORY UNIVERSITY
1599 CLIFTON ROAD NE
ATLANTA,GA30322 		58-0566256 501(C)(3) 137,754       RESEARCH
(20) GEORGIA STATE UNIVERSITY RESEARCH FOUNDATION INC
30 COURTLAND STREET NE SUITE 217
ATLANTA,GA30303 		58-1845423 501(C)(3) 165,677       RESEARCH
(21) GLYCOMINDSLLC
4685 RUNWAY ST STE J
SIMI VALLEY,CA93063 		37-1762895 501(C)(3) 27,500       RESEARCH
(22) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
1 GUSTAVE L LEVY PLACE
NEW YORK,NY10029 		13-6171197 501(C)(3) 1,099,178       RESEARCH
(23) IMPROVECARENOW INC
N-213 GIVEN COURTYARD UVM COLLEGE
OF MEDICINE
BURLINGTON,VT05405 		20-3200488 501(C)(3) 20,000       RESEARCH
(24) INDIANA UNIVERSITY
400 E 7TH STREET POPLARS RM 501
BLOOMINGTON,IN47405 		35-6001673 501(C)(3) 33,594       RESEARCH
(25) JOAN & SANFORD I WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
1300 YORK AVENUE
NEW YORK,NY10065 		13-1623978 501(C)(3) 829,403       RESEARCH
(26) JOHNS HOPKINS UNIVERSITY
733 N BROADWAY SUITE 117
BALTIMORE,MD21211 		52-0595110 501(C)(3) 579,919       RESEARCH
(27) KOUTIF THERAPEUTICS LLC
20600 CHAGRIN BLVD STE 210
SHAKER HEIGHTS,OH44122 		82-1873076 501(C)(3) 125,000       RESEARCH
(28) LA JOLLA INSTITUTE FOR IMMUNOLOGY
9420 ATHENA CIRCLE
LA JOLLA,CA92037 		33-0328688 501(C)(3) 58,250       RESEARCH
(29) MASSACHUSETTS GENERAL HOSPITAL - BOSTON
300 LONGWOOD AVENUE
BOSTON,MA02115 		04-2774441 501(C)(3) 92,663       RESEARCH
(30) MASSACHUSETTS GENERAL HOSPITAL
7 CAMBRIDGE CENTER
CAMBRIDGE,MA02241 		04-2697983 501(C)(3) 1,491,090       RESEARCH
(31) MAYO CLINIC
200 FIRST STREET SW
ROCHESTER,MN55905 		41-6011702 501(C)(3) 152,392       RESEARCH
(32) MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROAD
MILWAUKEE,WI53226 		39-0806261 501(C)(3) 117,825       RESEARCH
(33) MEMORIAL SLOAN KETTERING CANCER CENTER
1275 YORK AVENUE
NEW YORK,NY10065 		13-1924236 501(C)(3) 28,958       RESEARCH
(34) NEW ENGLAND RESEARCH INSTITUTESINC
480 PLEASANT STREET SUITE A100
WATERTOWN,MA02472 		04-2919509 501(C)(3) 118,512       RESEARCH
(35) NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE
NEW YORK,NY10016 		13-3971298 501(C)(3) 555,785       RESEARCH
(36) NORTHWESTERN UNIVERSITY
633 CLARK STREET
EVANSTON,IL60208 		36-2167817 501(C)(3) 120,330       RESEARCH
(37) PRESIDENT AND FELLOWS OF HARVARD COLLEGEHARVARD UNIVERSITY
1033 MASSACHUSETTS AVE 2ND FLOOR
CAMBRIDGE,MA02138 		04-2103580 501(C)(3) 58,205       RESEARCH
(38) REGENTS OF THE UNIVERSITY OF COLORADO DENVER AMC AND DC
12631 EAST 17TH AVENUE C-305
AURORA,CO80045 		84-6000555 501(C)(3) 213,852       RESEARCH
(39) REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER 3003 SOUTH
STATE STREET
ANN ARBOR,MI48109 		38-6006309 501(C)(3) 781,737       RESEARCH
(40) RUTGERS THE STATE UNIVERSITY
33 KNIGHTSBRIDGE ROAD
PISCATAWAY,NJ08854 		22-6001086 501(C)(3) 22,500       RESEARCH
(41) STANFORD UNIVERSITY
485 BROADWAY 3RD FLOOR MAIL CODE
8838
REDWOOD CITY,CA94063 		94-1156365 501(C)(3) 27,000       RESEARCH
(42) STONY BROOK UNIVERSITY
PO BOX 9
ALBANY,NY122010009 		14-1368361 501(C)(3) 44,861       RESEARCH
(43) SYRACUSE UNIVERSITY
640 SKYTOP ROAD SKYTOP OFFICE
BUILDING ROOM 122
SYRACUSE,NY132445300 		15-0532081 501(C)(3) 88,000       RESEARCH
(44) TEMPLE UNIVERSITY
1852 NORTH 10TH STREET
PHILADELPHIA,PA19122 		23-1365971 501(C)(3) 34,218       RESEARCH
(45) THE ADMINISTRATORS OF THE TULANE EDUCATION FUND DBA TULANE UNIVERSITY
6823 ST CHARLES AVE
NEW ORLEANS,LA70118 		72-0423889 501(C)(3) 57,915       RESEARCH
(46) THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY 3RD FLOOR MAIL CODE
8838
REDWOOD CITY,CA94063 		94-1156365 501(C)(3) 57,575       RESEARCH
(47) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS
809 S MARSHFIELD AVENUE M/C 551
CHICAGO,IL60612 		37-6000511 501(C)(3) 115,830       RESEARCH
(48) THE BRIGHAM AND WOMEN'S HOSPITAL INC
75 FRANCIS STREET
BOSTON,MA02115 		04-2312909 501(C)(3) 529,589       RESEARCH
(49) THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104 		23-1352166 501(C)(3) 513,368       RESEARCH
(50) THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE
CLEVELAND,OH44195 		34-0714585 501(C)(3) 237,575       RESEARCH
(51) THE PENNSYLVANIA STATE UNIVERSITY
408 OLD MAIN
UNIVERSITY PARK,PA16802 		24-6000376 501(C)(3) 90,000       RESEARCH
(52) THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE
500 UNIVERSITY DRIVE
HERSHEY,PA17033 		24-6000376 501(C)(3) 45,000       RESEARCH
(53) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
OFFICE OF SPONSORED PROGRAMS PO BOX
400195
CHARLOTTESVILLE,VA22904 		54-6001796 501(C)(3) 41,822       RESEARCH
(54) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
10920 WHILSHIRE BOULEVARD 5TH FLOOR
FLOOR
LOS ANGELES,CA90024 		94-3067788 501(C)(3) 12,338       RESEARCH
(55) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
1855 FOLSOM STREET BOX 0815
SAN FRANCISCO,CA94143 		94-6036493 501(C)(3) 57,915       RESEARCH
(56) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
ONE SHIELDS AVENUE
DAVIS,CA95616 		94-6036494 501(C)(3) 150,579       RESEARCH
(57) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
11000 KINROSS AVENUE SUITE 211
LOS ANGELES,CA90095 		95-6006143 501(C)(3) 345,000       RESEARCH
(58) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA RIVERSIDE
200 UNIVERSITY OFFICE BUILDING
RIVERSIDE,CA92521 		95-6006142 501(C)(3) 48,600       RESEARCH
(59) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE
LA JOLLA,CA920930953 		95-6006144 501(C)(3) 238,296       RESEARCH
(60) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
3333 CALIFORNIA STREET SUITE 315
SAN FRANCISCO,CA94143 		94-6036493 501(C)(3) 294,451       RESEARCH
(61) THE RESEARCH FOUNDATION OF SUNY - SUNY AT STONY BROOK
PO BOX 9
ALBANY,NY12201 		14-1368361 501(C)(3) 18,400       RESEARCH
(62) THE SALK INSTITUTE FOR BIOLOGICAL STUDIES-SAN DIEGO-CALIFORNIA
10010 NORTH TORREY PINES ROAD
LA JOLLA,CA92037 		95-2160097 501(C)(3) 82,915       RESEARCH
(63) THE SCRIPPS RESEARCH INSTITUTE
10550 NORTH TORREY PINES ROAD
LA JOLLA,CA90237 		33-0435954 501(C)(3) 57,915       RESEARCH
(64) THE UNIVERSITY OF CHICAGO
5801 S ELLIS AVENUE
CHICAGO,IL60637 		36-2177139 501(C)(3) 161,582       RESEARCH
(65) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD MC 9029
DALLAS,TX75235 		75-6002868 501(C)(3) 58,250       RESEARCH
(66) THE UNIVERSITY OF TOLEDO
2801 WEST BANCROFT STREE
TOLEDO,OH43606 		34-6401483 501(C)(3) 55,674       RESEARCH
(67) THETIS PHARMACEUTICALS LLC
23 BUSINESS PARK DR
BRANFORD,CT06405 		27-4940990 501(C)(3) 76,500       RESEARCH
(68) TISSIUM SA
23 BUSINESS PARK DRIVE
BRANFORD,CT06405 		27-4940990 501(C)(3) 141,250       RESEARCH
(69) TRUSTEES OF DARTMOUTH COLLEGE
11 ROPE FERRY ROAD 6210
HANOVER,NH03755 		02-0222111 501(C)(3) 238,616       RESEARCH
(70) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET 5TH FLOOR
PHILADELPHIA,PA19104 		23-1352685 501(C)(3) 1,694,259       RESEARCH
(71) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH AB 990
BIRMINGHAM,AL35294 		63-6005396 501(C)(3) 361,671       RESEARCH
(72) UNIVERSITY OF CINCINNATI (SPARC IBD)
260 STETSON ST SUITE 4263
CINCINNATI,OH45267 		31-6000989 501(C)(3) 28,662       RESEARCH
(73) UNIVERSITY OF FLORIDA
720 SW 2ND AVENUE
GAINESVILLE,FL32601 		59-6002052 501(C)(3) 7,054       RESEARCH
(74) UNIVERSITY OF HOUSTON
PO BOX 988
HOUSTON,TX77001 		74-6001399 501(C)(3) 115,830       RESEARCH
(75) UNIVERSITY OF MARYLAND BALTIMORE
220 ARCH STREET 2ND LEVEL
BALTIMORE,MD21201 		52-6002033 501(C)(3) 63,379       RESEARCH
(76) UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH
WORCESTER,MA016550002 		04-3167352 501(C)(3) 29,125       RESEARCH
(77) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200 CB
1350
CHAPEL HILL,NC27599 		56-6001393 501(C)(3) 1,249,295       RESEARCH
(78) UNIVERSITY OF PITTSBURGH
200 LOTHROP STREET
PITTSBURGH,PA15213 		23-2919472 501(C)(3) 98,954       RESEARCH
(79) UNIVERSITY OF PITTSBURGH-COMMONWEALTH SYSTEM OF HIGHER EDUCATION
200 LOTHROP STREET
PITTSBURGH,PA15213 		25-0965591 501(C)(3) 111,366       RESEARCH
(80) UNIVERSITY OF SOUTHERN CALIFORNIA
UNIVERSITY GARDENS SUITE 205
LOS ANGELES,CA900898006 		95-1642394 501(C)(3) 140,689       RESEARCH
(81) UNIVERSITY OF TEXAS AT DALLAS
800 W CAMPBELL ROAD
RICHARDSON,TX75080 		75-1305566 501(C)(3) 125,000       RESEARCH
(82) UNIVERSITY OF TEXAS MEDICAL BRANCH AT GALVESTON
301 UNIVERSITY BLVD
GALVESTON,TX77555 		74-6000949 501(C)(3) 60,090       RESEARCH
(83) VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVENUE SOUTH D3300MCN
NASHVILLE,TN37232 		16-2047682 501(C)(3) 331,104       RESEARCH
(84) WASHINGTON UNIVERSITY IN ST LOUIS
660 S EUCLID AVENUE
ST LOUIS,MO63110 		43-0653611 501(C)(3) 680,095       RESEARCH
(85) YALE UNIVERSITY
2 WHITNEY AVENUE 6TH FLOOR
NEW HAVEN,CT06510 		06-0646973 501(C)(3) 45,000       RESEARCH
2
Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................. Bullet Image
85
3
Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image
 
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50055P
Schedule I (Form 990) 2020

Schedule I (Form 990) 2020
Page 2
Part III
Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" on Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Number of
recipients		 (c) Amount of
cash grant		 (d) Amount of
noncash assistance		 (e) Method of valuation (book,
FMV, appraisal, other)		 (f) Description of noncash assistance
(1)
(2)
(3)
(4)
(5)
(6)
(7)
Part IV
Supplemental Information. Provide the information required in Part I, line 2; Part III, column (b); and any other additional information.
Return Reference Explanation
PART I, LINE 2: THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") IS A NON-PROFIT ORGANIZATION DEDICATED TO FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS. TO ACCOMPLISH THIS, THE FOUNDATION SUBSIDIZES RESEARCH INTO BOTH DISEASES. GRANTS ARE AWARDED FOR SPECIFIC PROJECTS FOR SPECIFIC RESEARCH AND THE FOUNDATION REQUIRES THE RESEARCHER TO ISSUE PROGRESS REPORTS ANNUALLY AS THE PROJECT IS BEING COMPLETED. MOST AWARDS ARE GIFTED FOR A PERIOD OF 3 YEARS WITH AN ANNUAL PROGRESS REPORT PRESENTED TO THE CHIEF SCIENTIFIC OFFICER AND THE NATIONAL SCIENTIFIC ADVISORY COMMITTEE FOR REVIEW AND APPROVAL. IF THE PROGRESS REPORTS DO NOT SHOW THAT THE RESEARCH HAS MET ITS PROPOSED OBJECTIVES, THE GRANT WILL NOT BE APPROVED FOR ADDITIONAL FUNDING AND WILL BE TERMINATED. THE FOUNDATION ALSO SUPPORTS ORGANIZATIONS SEEKING TO ACCELERATE THE DEVELOPMENT OF RESEARCH-BASED PRODUCTS WITH POTENTIAL FOR POSITIVE IMPACT FOR PATIENTS. FUNDED PROJECTS ARE APPROXIMATELY 12 MONTHS IN DURATION, WITH SPECIFIC INTERMEDIATE AND FINAL MILESTONES IDENTIFIED AT PROJECT ONSET. PROJECT INVESTMENTS MAY BE RENEWED IN ADDITIONAL INCREMENTS IF MILESTONES ARE ACHIEVED AND IF THE APPLICANT SUBMITS A PROPOSAL FOR ADDITIONAL FUNDING.
Schedule I (Form 990) 2020



Additional Data


Software ID:  
Software Version:  


Schedule J
(Form 990)
Department of the Treasury
Internal Revenue Service
Compensation Information
For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
Graphic Arrow Complete if the organization answered "Yes" on Form 990, Part IV, line 23.
Graphic Arrow Attach to Form 990.
Graphic Arrow Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2020
Open to Public Inspection
Name of the organization
CROHN'S & COLITIS FOUNDATION INC
 
Employer identification number

13-6193105
Part I
Questions Regarding Compensation
Yes
No
1a
Check the appropiate box(es) if the organization provided any of the following to or for a person listed on Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.
b
If any of the boxes on Line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain .....
1b
 
 
2
Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked on Line 1a? ....
2
 
 
3
Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.
4
During the year, did any person listed on Form 990, Part VII, Section A, line 1a, with respect to the filing organization or a related organization:
a
Receive a severance payment or change-of-control payment? .............
4a
 
No
b
Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........
4b
Yes
 
c
Participate in, or receive payment from, an equity-based compensation arrangement? .........
4c
 
No
If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.
Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.
5
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:
a
The organization? ....................
5a
 
No
b
Any related organization? .......................
5b
 
No
If "Yes," on line 5a or 5b, describe in Part III.
6
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:
a
The organization? ..................
6a
 
No
b
Any related organization? ......................
6b
 
No
If "Yes," on line 6a or 6b, describe in Part III.
7
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization provide any nonfixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............
7
Yes
 
8
Were any amounts reported on Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III ..........................
8
 
No
9
If "Yes" on line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................
9
 
 
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50053T
Schedule J (Form 990) 2020

Schedule J (Form 990) 2020
Page 2
Part II
Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.
For each individual whose compensation must be reported on Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.
(A) Name and Title (B) Breakdown of W-2 and/or 1099-MISC compensation (C) Retirement and other deferred compensation (D) Nontaxable
benefits		 (E) Total of columns
(B)(i)-(D) 		(F) Compensation in column (B) reported as deferred on prior Form 990
(i) Base
compensation 		(ii) Bonus & incentive
compensation 		(iii) Other reportable compensation
1MICHAEL OSSO
PRESIDENT/CEO(NON-VOTING) 		(i)

(ii)		 431,915
-------------
0 		25,000
-------------
0 		0
-------------
0 		86,600
-------------
0 		4,218
-------------
0 		547,733
-------------
0 		0
-------------
0
2CAREN HELLER
CHIEF SCIENCE OFFICER 		(i)

(ii)		 364,116
-------------
0 		7,000
-------------
0 		0
-------------
0 		16,207
-------------
0 		0
-------------
0 		387,323
-------------
0 		0
-------------
0
3ROBERT TERRITO
CFO/COO 		(i)

(ii)		 269,772
-------------
0 		5,000
-------------
0 		0
-------------
0 		16,426
-------------
0 		7,560
-------------
0 		298,758
-------------
0 		0
-------------
0
4ROHIT SURI
CHIEF TECHNOLOGY OFFICER 		(i)

(ii)		 252,632
-------------
0 		5,000
-------------
0 		0
-------------
0 		10,938
-------------
0 		10,869
-------------
0 		279,439
-------------
0 		0
-------------
0
5MICHAEL ELKOW
CHIEF FIELD OFFICER 		(i)

(ii)		 247,994
-------------
0 		2,500
-------------
0 		0
-------------
0 		12,964
-------------
0 		9,368
-------------
0 		272,826
-------------
0 		0
-------------
0
6ALLISON COFFEY
CHIEF DEVELOPMENT OFFICER 		(i)

(ii)		 212,215
-------------
0 		4,000
-------------
0 		0
-------------
0 		12,701
-------------
0 		0
-------------
0 		228,916
-------------
0 		0
-------------
0
7JUDY HOFFSTEIN
CHIEF MARKETING OFFICER 		(i)

(ii)		 191,790
-------------
0 		4,000
-------------
0 		0
-------------
0 		7,071
-------------
0 		17,550
-------------
0 		220,411
-------------
0 		0
-------------
0
8JOHN MICHAEL MIZE
SENIOR VICE PRESIDENT, BUSINESS DEVE 		(i)

(ii)		 204,002
-------------
0 		3,500
-------------
0 		0
-------------
0 		2,625
-------------
0 		6,403
-------------
0 		216,530
-------------
0 		0
-------------
0
9JENNIFER FAGERSTROM
VP, CHAPTER GROWTH AND DEV 		(i)

(ii)		 191,037
-------------
0 		2,000
-------------
0 		0
-------------
0 		9,819
-------------
0 		7,665
-------------
0 		210,521
-------------
0 		0
-------------
0
10KRISTIN KAPLAN
SVP, SPECIAL EVENTS 		(i)

(ii)		 173,508
-------------
0 		0
-------------
0 		0
-------------
0 		10,899
-------------
0 		8,957
-------------
0 		193,364
-------------
0 		0
-------------
0
11LAURA WINGATE
EXECUTIVE VICE PRESIDENT, EDUCATION, 		(i)

(ii)		 170,840
-------------
0 		4,000
-------------
0 		0
-------------
0 		9,742
-------------
0 		6,302
-------------
0 		190,884
-------------
0 		0
-------------
0
12ANGELA DOBES
VICE PRESIDENT, IBD PLEXUS 		(i)

(ii)		 172,160
-------------
0 		3,500
-------------
0 		0
-------------
0 		9,084
-------------
0 		0
-------------
0 		184,744
-------------
0 		0
-------------
0
13JACK MATARASSO
VP DIGITAL MARKETING 		(i)

(ii)		 170,401
-------------
0 		2,000
-------------
0 		0
-------------
0 		8,470
-------------
0 		0
-------------
0 		180,871
-------------
0 		0
-------------
0
Schedule J (Form 990) 2020

Schedule J (Form 990) 2020
Page 3
Part III
Supplemental Information
Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II. Also complete this part for any additional information.
Return Reference Explanation
PART I, LINE 3 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, MISSION EXPENDITURES, GEOGRAPHIC LOCATION, TENURE, AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD WITH APPROVAL BY THE COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON BENCHMARKING SURVEYS AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION COMMISSIONED ITS NEXT STUDY IN 2021.
PART I, LINE 4B THE FOUNDATION INSTITUTED A SECTION 457(F) NONQUALIFIED DEFERRED COMPENSATION PLAN FOR THE BENEFIT OF THE PRESIDENT/CEO, MICHAEL OSSO, IN 2018. THE AGREEMENT ALLOWS FOR ANNUAL CONTRIBUTIONS TO BE MADE BASED ON MEETING PRE-DETERMINED OBJECTIVES. IN 2020, THE FOUNDATION CREDITED $50,000 TO THE PRESIDENT/CEO WHICH HAS BEEN REFLECTED IN SCHEDULE J, PART II, COLUMN C. NO AMOUNT WAS ACTUALLY PAID TO THE CEO DURING THE YEAR UNDER THIS AGREEMENT, AS THE TERMS OF THE AGREEMENT HAVE NOT YET BEEN SATISFIED.
PART I, LINE 7 THE PRESIDENT/CEO'S BONUS AND INCENTIVE COMPENSATION IS PREDICATED OFF OF A SET OF OBJECTIVES THAT ARE DEVELOPED AND UPDATED EACH YEAR. THESE OBJECTIVES INCLUDE RAISING REVENUES, MANAGEMENT OF EXPENSES, DEVELOPMENT OF REGIONS AND RELATED PERFORMANCE, BUILDING OF INFRASTRUCTURE AND MAXIMIZATION OF MISSION EXPENDITURES. RESULTS ARE EVALUATED BY THE COMPENSATION AND BENEFITS COMMITTEE AND THE INCENTIVE IS ULTIMATELY DETERMINED BASED ON RATINGS OF PERFORMANCE OF THESE OBJECTIVES. THE FOUNDATION ACKNOWLEDGES ALL OF ITS OTHER EMPLOYEES THROUGH ANNUAL LUMP-SUM INCENTIVE AWARDS BASED ON MEETING INDIVIDUAL, DEPARTMENTAL, AND OVERALL FOUNDATION PERFORMANCE GOALS.
Schedule J (Form 990) 2020

Additional Data


Software ID:  
Software Version:  
SCHEDULE M
(Form 990)

Department of the Treasury
Internal Revenue Service
Noncash Contributions
Right pointing arrow large imageComplete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image Attach to Form 990.
Right pointing arrow large imageGo to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2020
Open to Public Inspection
Name of the organization
CROHN'S & COLITIS FOUNDATION INC
 
Employer identification number

13-6193105
Part I
Types of Property
(a)
Check if applicable 		(b)
Number of contributions or items contributed 		(c)
Noncash contribution amounts reported on
Form 990, Part VIII, line 1g 		(d)
Method of determining
noncash contribution amounts
1 Art—Works of art ....        
2 Art—Historical treasures .        
3 Art—Fractional interests ..        
4 Books and publications ..      
5 Clothing and household
goods ....... 		     
6 Cars and other vehicles ..        
7 Boats and planes ....        
8 Intellectual property ...        
9 Securities—Publicly traded . X 85 449,027 MARKET PRICE
10 Securities—Closely held stock .        
11 Securities—Partnership, LLC,
or trust interests .... 		       
12 Securities—Miscellaneous ..        
13 Qualified conservation
contribution—Historic
structures ..... 		       
14 Qualified conservation
contribution—Other ... 		       
15 Real estate—Residential .        
16 Real estate—Commercial ..        
17 Real estate—Other ...        
18 Collectibles .....        
19 Food inventory ...        
20 Drugs and medical supplies .        
21 Taxidermy ......        
22 Historical artifacts ....        
23 Scientific specimens ..        
24 Archeological artifacts ...        
25 Other Right pointing arrow large image ( )
26 Other Right pointing arrow large image ( )
27 Other Right pointing arrow large image ( )
28 Other Right pointing arrow large image ( )
29
Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement
29
 
Yes
No
30a
During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that it must hold for at least three years from the date of the initial contribution, and which isn't required to be used for exempt purposes for the entire holding period? ...................
30a
 
No
b
If "Yes," describe the arrangement in Part II.
31
Does the organization have a gift acceptance policy that requires the review of any nonstandard contributions?
31
Yes
 
32a
Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash
contributions? ..........................
32a
Yes
 
b
If "Yes," describe in Part II.
33
If the organization didn't report an amount in column (c) for a type of property for which column (a) is checked,
describe in Part II.
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 51227J
Schedule M (Form 990) (2020)
Schedule M (Form 990) (2020)
Page 2
Part IISupplemental Information. Provide the information required by Part I, lines 30b, 32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.
Return Reference Explanation
Schedule M (Form 990) (2020)

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SCHEDULE O
(Form 990 or 990-EZ)

Department of the Treasury
Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet Attach to Form 990 or 990-EZ.
MediumBullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2020
Open to Public
Inspection
Name of the organization
CROHN'S & COLITIS FOUNDATION INC
 
Employer identification number

13-6193105
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IMPACT OF THE COVID-19 PANDEMIC ON THE CROHN'S & COLITIS FOUNDATION INC. IN EARLY 2020, AN OUTBREAK OF THE NOVEL STRAIN OF CORONAVIRUS ("COVID-19") EMERGED ON A GLOBAL SCALE. IN REACTION TO THE OUTBREAK, FEDERAL, STATE, AND LOCAL GOVERNMENTS ISSUED MANDATES THAT DISRUPTED NORMAL BUSINESS ACTIVITY IN EVERY SECTOR OF THE ECONOMY. DESPITE THE OPERATING CHALLENGES IT PRESENTED, THE FOUNDATION REMAINED FOCUSED ON DELIVERING ITS CORE MISSION. IN EARLY MARCH, THE PANDEMIC CAUSED THE FOUNDATION TO CLOSE OFFICES ACROSS THE COUNTRY AND SHIFT ITS OPERATIONS, SPECIAL EVENTS AND COMMUNITY-BASED PROGRAMS TO A VIRTUAL FORMAT, WHICH REMAINED IN EFFECT THROUGH THE END OF 2020 AND INTO 2021. THE FOUNDATION CONTINUES TO CLOSELY MONITOR THE ONGOING IMPACTS OF COVID-19 AND IS FOCUSED ON ENSURING A CAREFUL BALANCE BETWEEN DELIVERING ON ITS MISSION AND MAINTAINING A STRONG FINANCIAL POSITION. ACCORDINGLY, THE EXTENT TO WHICH COVID-19 MAY HAVE A FUTURE IMPACT ON THE FOUNDATION'S FINANCIAL POSITION IS UNCERTAIN. ON APRIL 22, 2020, THE FOUNDATION WAS GRANTED A LOAN IN THE AGGREGATE AMOUNT OF $5,721,600, PURSUANT TO THE SMALL BUSINESS ADMINISTRATION PAYCHECK PROTECTION PROGRAM (THE "PPP") UNDER DIVISION A, TITLE I OF THE CARES ACT, WHICH WAS ENACTED MARCH 27, 2020. THE LOAN MATURES ON APRIL 22, 2022 AND BEARS INTEREST AT A RATE OF ONE PERCENT PER ANNUM. PRINCIPAL PAYMENTS OF $322,157 WERE EXPECTED TO COMMENCE ON NOVEMBER 22, 2020. UNDER THE TERMS OF THE PPP, THE LOAN MAY BE FORGIVEN IF THE FUNDS ARE USED FOR QUALIFYING EXPENSES, CONSISTING OF PAYROLL COSTS, RENT, AND UTILITIES. ON DECEMBER 21, 2020, THE FOUNDATION APPLIED FOR LOAN FORGIVENESS; THE FOUNDATION RECEIVED FULL FORGIVENESS ON JUNE 25TH, 2021. THE PPP LOAN, RECORDED AS A LIABILITY ON THE CURRENT YEAR FORM 990 WILL BE RELEASED FROM DEBT AND RECORDED AS INCOME IN NEXT YEAR'S FORM 990.
FORM 990, PART I, LINE 1 ORGANIZATION'S MISSION (CONTINUED) AND TO IMPROVE THE QUALITY OF LIFE AND CHILDREN AND ADULTS AFFECTED BY THESE DISEASES.
FORM 990, PART III, LINE 1, DESCRIPTION OF ORGANIZATION MISSION: THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD").
FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY A NATIONAL ACCOUNTING FIRM IN CONJUNCTION WITH THE ORGANIZATION'S FINANCE DEPARTMENT. A COPY OF THE DRAFT FORM 990 WAS CIRCULATED AND REVIEWED WITH THE AUDIT COMMITTEE FOR DISCUSSION AND COMMENT. A COPY OF THE 990 IS DISTRIBUTED TO ALL BOARD OF TRUSTEES PRIOR TO FILING.
FORM 990, PART VI, SECTION B, LINE 12C ALL OFFICERS, DIRECTORS, TRUSTEES, AND KEY EMPLOYEES OF THE CROHN'S & COLITIS FOUNDATION ARE REQUIRED TO ANNUALLY DISCLOSE ANY CONFLICTS OF INTEREST THAT ARISE BY VIRTUE OF EMPLOYMENT, BOARD SERVICE, OR POSITION WITH THE FOUNDATION. THE FOUNDATION MONITORS COMPLIANCE WITH ITS CONFLICT OF INTEREST POLICY THROUGH AN ANNUAL QUESTIONNAIRE/DISCLOSURE STATEMENT THAT IS DISTRIBUTED TO THESE INDIVIDUALS. POTENTIAL CONFLICTS ARE INVESTIGATED IMMEDIATELY.
FORM 990, PART VI, SECTION B, LINE 15 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, MISSION EXPENDITURES, GEOGRAPHIC LOCATION, TENURE, AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD WITH APPROVAL BY THE COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON BENCHMARKING SURVEYS AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION COMMISSIONED ITS NEXT STUDY IN 2021.
FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION MAKES ITS FORM 990 AVAILABLE TO THE PUBLIC BY RETAINING A COPY AT ITS PLACE OF BUSINESS AND ON ITS WEBSITE AT WWW.CROHNSCOLITISFOUNDATION.ORG. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE POSTED ON ITS WEBSITE. GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY WILL BE PROVIDED UPON REQUEST AT MANAGEMENT'S DISCRETION.
PART VIII, LINE 1G, NONCASH CONTRIBUTIONS THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS UTILIZED THE SERVICES OF CAR PROGRAM, INC., AN ORGANIZATION THAT RECEIVES DONATED VEHICLES, SELLS THEM AND REMITS THE NET PROCEEDS TO SEVERAL CHARITABLE ORGANIZATIONS. THE VEHICLES ARE NOT DONATED DIRECTLY TO THE FOUNDATION NOR DOES THE FOUNDATION HAVE OWNERSHIP RIGHTS TO THEM. IN 2020, THE FOUNDATION RECEIVED $23,225 IN REVENUES FROM THIS PROGRAM. ADDITIONALLY, THE FOUNDATION RECEIVES CONSIDERABLE IN-KIND CONTRIBUTIONS IN THE FORM OF DONATED PUBLIC SERVICE ANNOUNCEMENTS ON TELEVISION AND RADIO STATEMENTS AND SERVICES RECEIVED FROM PHYSICIANS AND HEALTH PROFESSIONALS THAT HAVE MADE SIGNIFICANT CONTRIBUTIONS OF THEIR TIME IN FURTHERANCE OF THE FOUNDATION'S MISSION. THE FAIR VALUE OF SUCH IN-KIND CONTRIBUTIONS IS REFLECTED IN THE STATEMENT OF ACTIVITIES AS CONTRIBUTED SERVICES AND AIRTIME REVENUE AND HEALTH PROFESSIONAL EDUCATION AND PUBLIC INFORMATION PROGRAM SERVICE EXPENSE. SINCE DONATED SERVICES ARE NOT REPORTED ON THE FORM 990, THE FOUNDATION HAS NOT REPORTED THE CONTRIBUTED SERVICES AND AIRTIME ON SCHEDULE M OR PART VIII, LINE 1(G). FOR THE YEAR ENDING DECEMBER 31, 2020, CONTRIBUTED SERVICES AND AIRTIME AMOUNTED TO $2,936,025.
FORM 990, PART XI, LINE 9: CHANGES IN GIFT ANNUITIES 20,118. PROVISION FOR BAD DEBT -493,700. GRANTS REFUNDED/RESCINDED 550,000.
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 51056K
Schedule O (Form 990 or 990-EZ) 2020


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