Attach to Form 990 or Form 990-EZ.
Go to
www.irs.gov/Form990 for instructions and the latest information.
| (i) Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 10 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
|
Total |
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Calendar year (or fiscal year beginning in) ![]() |
(a) 2015 | (b) 2016 | (c) 2017 | (d) 2018 | (e) 2019 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. | 1,376,982 | 2,365,343 | 1,707,471 | 2,594,708 | 2,235,980 | 10,280,484 |
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.... | ||||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 4 | Total. Add lines 1 through 3 | 1,376,982 | 2,365,343 | 1,707,471 | 2,594,708 | 2,235,980 | 10,280,484 |
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f).. | 969,008 | |||||
| 6 | Public support. Subtract line 5 from line 4. | 9,311,476 | |||||
Calendar year
(or fiscal year beginning in) ![]() |
(a) 2015 | (b) 2016 | (c) 2017 | (d) 2018 | (e) 2019 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | 1,376,982 | 2,365,343 | 1,707,471 | 2,594,708 | 2,235,980 | 10,280,484 |
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | 22,088 | 52,642 | 5,825 | 783 | 2,037 | 83,375 |
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | ||||||
| 11 | Total support. Add lines 7 through 10 | 10,363,859 | |||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2015 | (b) 2016 | (c) 2017 | (d) 2018 | (e) 2019 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | ||||||
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose | ||||||
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513 ..... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge | ||||||
| 6 | Total. Add lines 1 through 5 | ||||||
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2015 | (b) 2016 | (c) 2017 | (d) 2018 | (e) 2019 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | ||||||
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | ||||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | ||||||
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
||||
| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
||||
| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
|||||
| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by .035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | ||
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
||
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | ||
| 4 Amounts paid to acquire exempt-use assets | ||
| 5 Qualified set-aside amounts (prior IRS approval required) | ||
| 6 Other distributions (describe in Part VI). See instructions | ||
| 7Total annual distributions. Add lines 1 through 6. | ||
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
||
| 9 Distributable amount for 2019 from Section C, line 6 | ||
| 10 Line 8 amount divided by Line 9 amount | ||
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2019 |
(iii) Distributable Amount for 2019 |
|
|---|---|---|---|---|
| 1 Distributable amount for 2019 from Section C, line 6 | ||||
|
2
Underdistributions, if any, for years prior to 2019 (reasonable cause required-- explain in Part VI). See instructions. |
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| 3 Excess distributions carryover, if any, to 2019: | ||||
| a From 2014....... | ||||
| b From 2015....... | ||||
| c From 2016....... | ||||
| d From 2017....... | ||||
| e From 2018....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2019 distributable amount | ||||
|
i
Carryover from 2014 not applied (see instructions) |
||||
| j Remainder. Subtract lines 3g, 3h, and 3i from 3f. | ||||
| 4Distributions for 2019 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2019 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from 4. | ||||
|
5
Remaining underdistributions for years prior to 2019, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
6
Remaining underdistributions for 2019. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
7 Excess distributions carryover to 2020. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a Excess from 2015..... | ||||
| b Excess from 2016..... | ||||
| c Excess from 2017..... | ||||
| d Excess from 2018..... | ||||
| e Excess from 2019..... | ||||
| Facts And Circumstances Test |
|---|
| Return Reference | Explanation |
|---|
| Software ID: | 19009610 |
| Software Version: | 19.2.1.0 |
Attach to Form 990 or 990-EZ.
Go to www.irs.gov/Form990 for the latest information.
| Return Reference | Explanation |
|---|---|
| Form 990, Part XI, Line 8 | DURING THE YEAR ENDED JUNE 30, 2020, SMCI DETERMINED THAT IT HAD IMPROPERLY RECONCILED AND ACCOUNTED FOR THE BALANCE IN ITS PRIMARY CHECKING ACCOUNT AS OF JUNE 30, 2019. THE CORRECTION OF THIS ERROR DECREASED CASH AND NET ASSETS WITHOUT DONOR RESTRICTION AS OF JUNE 30, 2019 BY 65,682. |
| Form 990, Part III, Section 4A, Line 1 | The most important accomplishment of the year was the launch of the testing version of the You ME Registry. It was developed with input from members of the community and experts over the past couple of years. You ME collects health information from people living with ME/CFS and controls. The registry platform includes a web-based user portal that allows for easy data entry, while protecting participant privacy. After a person with ME/ CFS or someone without the disease a control registers on the website, they can complete surveys that capture their health history, quality of life, other diagnoses, treatments and outcomes. |
| Form 990, Part III, Section 4A, Line 2 | They can also use a tracking smartphone application app to capture their daily experience with the disease. The You ME registry is the first of its kind to be used specifically for ME/CFS and will provide an unparalleled research platform. This database may identify triggers or causes of the diseases, subgroups of patients and ultimately may be used to develop diagnostics and treatments. In Fall 2019, Solve M.E. announced it would fund seven studies in 2020 through the Ramsay program, welcoming over 30 investigators and collaborators, including a number of early career stage scientists. Over half of these research teams included a Principal Investigator PI leading an ME/CFS study for the first time. A Ramsay Network teleconference was hosted with presentations from National Institutes of Health NIH. The results of studies that received support from the Ramsay Grant Program were published in prestigious scientific journals. Bhupesh Prusty, PhD, Robert Naviaux, MD, PhD and an international team published findings in |
| Form 990, Part III, Section 4A, Line 3 | ImmunoHorizons that Human Herpesvirus 6 HHV-6 could be driving cellular energy production problems in at least some people with ME/CFS. Carmen Scheibenbogen, MD, PHD published a genetic association study that suggests an association between autoimmunity genetic risk variants and people with infectious onset ME/CFS in Frontiers in Immunology. Published ME/CFS Research Two grant applications were submitted through the Congressionally Directed Medical Research Program CDMRP to use the registry data for research and to study the emerging COVID-19 crisis. This funding mechanism was made available for ME/CFS research as a result of our advocacy work. |
| Form 990, Part III, Section 4A, Line 4 | Solve ME announced a partnership with the University of California, Los Angeles UCLA Iris Cantor Womens Health Center to issue an ME/CFS specific funding announcement through their Annual Health Pilot Program. They have a demonstrated record obtaining large NIH grans as follow on to the pilot projects. Approximately 27 million return on investment for 1 million invested. |
| Form 990, Part III, Section 4A, Line 5 | Solve M.E. Chief Scientific Officer Dr. Sadie Whittaker presented on the YOU M.E. Registry at the 6th Annual Science Conference held by the UK CFS/M.E. Research Collaborative CMRC. |
| Form 990, Part III, Section 4B, Line 1 | As part of our ongoing efforts to increase funding for ME/CFS at the federal level, Solve M.E. added five national coalition and advocacy partnerships designed to accelerate our strategies to appropriate funds for ME/CFS medical research. As part of our expanded advocacy impact, Solve M.E. worked with our ME/CFS constituents to deliver 5,031 online messages to Congress. Together with expanded coalitions and communication programs, Solve M.E. worked to influence congressional appropriations actions and educate regarding paid family leave and telehealth legislation and Coronavirus legislation including dedicated relief for federally funded research. |
| Form 990, Part III, Section 4B, Line 2 | The 4th Annual ME/CFS Advocacy week and Advocacy Day was moved to a virtual platform due to the coronavirus outbreak. 318 registered ME/CFS patient, caregivers, and supporters attended a record 245 meetings with members of U.S. Congress and their staff. In addition to sharing their personal experiences with ME/CFS, participants called on Congress to increase funding for biomedical research programs targeting COVID-19 patients who develop ME/CFS. |
| Form 990, Part III, Section 4B, Line 3 | Through Solve MEs new online action toolkit, 111 people took action on Twitter and the custom ME/CFS awareness GIF was viewed 109,846 times. As part of the weeks activities, Solve M.E. hosted the second annual EmPOWER M.E. patient education roundtable. This years there was How to Navigate Disability Insurance with ME/CFS. The webinar roundtable was livestreamed and is now available on the Solve M.E YouTube channel. This years event also featured online office hours afterwards where two EmPOWER M.E panelists answered specific questions regarding disability claims and other issues. |
| Form 990, Part III, Section 4B, Line 4 | Following advocacy educational presentations, community mobilization, and constituent meetings, several legislators took action to support people with ME/CFS, including Senator Ed Markey and Congressman Jamie Raskin |
| Form 990, Part III, Section 4B, Line 5 | Solve M.E. launched the inaugural cohort of the Community Advisory Council CAC with 14 community members and advocates from across the United States and Canada. The CAC is a volunteer working group that provides guidance and recommendations on numerous Solve M.E. programs. It serves as an inclusive partner platform to facilitate the input, dialogue, and collaborations with representatives of the ME/CFS community. |
| Form 990, Part III, Section 4B, Line 6 | In its first year, members of the CAC worked with Solve M.E. staff on issues related to ME/CFS advocacy, education, and engagement and were available to review applications for funding through the EmPOWER M.E. micro grant program. |
| Form 990, Part III, Section 4B, Line 7 | Expansion of Solve M.E.s advocacy education program continued by creating and staging 6 in-person and online medical and community education presentations designed to train the ME/CFS community on contacting representatives and effective modes of communicating key ME/CFS issues. Solve M.E. also created a new page on its website, COVID-19 and the ME/CFS Community, to provide updates. information and resources during the pandemic. |
| Form 990, Part VI, Section B, Line 11B | THE FINANCE COMMITTEE IS RESPONSIBLE FOR REVIEWING THE ORGANIZATIONS FORM 990 AND PROVIDING COMMENTS PRIOR TO IT BEING SUBMITTED TO THE INTERNAL REVENUE SERVICE. ALL MEMBERS OF THE BOARD OF DIRECTORS RECEIVE A COPY OF THE REVIEWED FORM 990 PRIOR TO ITS SUBMISSION TO THE IRS, BUT ARE NOT REQUIRED TO PROVIDE COMMENTS. |
| Form 990, Part V, Section C, Line 19 | THE ORGANIZATIONS FORM 990 AND ANNUAL REPORT ARE AVAILABLE ON ITS WEBSITE WWW.SOLVECFS.ORG. THE 990 IS ALSO AVAILABLE ON GUIDESTAR. UPON REQUEST THE ORGANIZATION WILL MAKE AVAILABLE COPIES OF ITS AUDITED FINANCIAL STATEMENTS, FORM 1023, GOVERNING BY-LAWS AND CONFLICTS OF INTEREST POLICY. |
| Form 990, Part VI, Section B, Line 15A | EMPLOYEES OF THE ORGANIZATION UNDERGO PERIODIC PERFORMANCE AND COMPENSATION REVIEWS. COMPENSATION LEVEL IS DETERMINED UPON PERFORMANCE, MARKET AND THE FINANCIAL POSITION OF THE ORGANIZATION. THE PRESIDENT PERFORMS ALL REVIEWS EXCEPT FOR THE POSITION OF PRESIDENT WHICHIS DONE BY MEMBERS OF THE PROFESSIONAL STAFF RECRUITING AND COMPENSATION COMMITTEE. THISCOMMITTEE IS COMPRISED OF THE EXECUTIVE COMMITTEE OF THE BOARD. TO ENSURE SALARY COMPENSATION IS COMPARABLE TO SIMILAR ORGANIZATIONS, THE COMMITTEE CONSULTS WITH PUBLISHED SALARY SURVEYS,. |
| Form 990, Part VI, Section B, Line 15B | THIS IS MARKED NO SINCE THERE WERE NO OTHER OFFICERS IN THE ORGANIZATION TO WHICH THIS APPLIES |
| Form 990, Part VI, Section B, Line 12C | DIRECTORS ARE REQUIRED TO SIGN ANNUAL CONFLICTS OF INTEREST FORMS, NOTIFY THE ORGANIZATION OF ANY CONFLICTS OF INTEREST AND RECUSE THEMSELVES FROM DISCUSSING OR VOTING ON ANY MATTERS WHICH ARE A CONFLICT FOR THEM. |
| Software ID: | 19009610 |
| Software Version: | 19.2.1.0 |