Attach to Form 990 or Form 990-EZ.
Go to
www.irs.gov/Form990 for instructions and the latest information.
| (i) Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 10 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
|
Total |
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Calendar year (or fiscal year beginning in) ![]() |
(a) 2016 | (b) 2017 | (c) 2018 | (d) 2019 | (e) 2020 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. | 122,553,876 | 102,801,334 | 118,306,745 | 108,955,331 | 88,149,776 | 540,767,062 |
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.... | ||||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 4 | Total. Add lines 1 through 3 | 122,553,876 | 102,801,334 | 118,306,745 | 108,955,331 | 88,149,776 | 540,767,062 |
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f).. | 1,977,720 | |||||
| 6 | Public support. Subtract line 5 from line 4. | 538,789,342 | |||||
Calendar year
(or fiscal year beginning in) ![]() |
(a) 2016 | (b) 2017 | (c) 2018 | (d) 2019 | (e) 2020 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | 122,553,876 | 102,801,334 | 118,306,745 | 108,955,331 | 88,149,776 | 540,767,062 |
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | 4,337,308 | 4,063,059 | 4,492,015 | 3,352,336 | 2,566,585 | 18,811,303 |
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | 34,645 | 45,752 | 2,730 | 83,127 | ||
| 11 | Total support. Add lines 7 through 10 | 559,661,492 | |||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2016 | (b) 2017 | (c) 2018 | (d) 2019 | (e) 2020 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | ||||||
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose | ||||||
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513 ..... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge | ||||||
| 6 | Total. Add lines 1 through 5 | ||||||
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2016 | (b) 2017 | (c) 2018 | (d) 2019 | (e) 2020 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | ||||||
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | ||||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included in line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | ||||||
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
|||||
| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by 0.035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | 1 | |
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
2 | |
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | 3 | |
| 4 Amounts paid to acquire exempt-use assets | 4 | |
| 5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI) | 5 | |
| 6 Other distributions (describe in Part VI). See instructions | 6 | |
| 7Total annual distributions. Add lines 1 through 6. | 7 | |
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
8 | |
| 9 Distributable amount for 2020 from Section C, line 6 | 9 | |
| 10 Line 8 amount divided by Line 9 amount | 10 | |
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2020 |
(iii) Distributable Amount for 2020 |
|
|---|---|---|---|---|
| 1 Distributable amount for 2020 from Section C, line 6 | ||||
|
2
Underdistributions, if any, for years prior to 2019 (reasonable cause required-- explain in Part VI). See instructions. |
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| 3 Excess distributions carryover, if any, to 2020: | ||||
| a From 2015....... | ||||
| b From 2016....... | ||||
| c From 2017....... | ||||
| d From 2018....... | ||||
| e From 2019....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2020 distributable amount | ||||
|
i
Carryover from 2015 not applied (see instructions) |
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| j Remainder. Subtract lines 3g, 3h, and 3i from line 3f. | ||||
| 4Distributions for 2020 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2020 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from line 4. | ||||
|
5
Remaining underdistributions for years prior to 2020, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
6
Remaining underdistributions for 2020. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
7 Excess distributions carryover to 2021. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a Excess from 2016..... | ||||
| b Excess from 2017..... | ||||
| c Excess from 2018..... | ||||
| d Excess from 2019..... | ||||
| e Excess from 2020..... | ||||
| Facts And Circumstances Test |
|---|
| Return Reference | Explanation |
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| Software ID: | 20011406 |
| Software Version: | 20.0.2.0 |
Attach to Form 990 or 990-EZ.
Go to www.irs.gov/Form990 for the latest information.
| Return Reference | Explanation |
|---|---|
| Form 990, Part III, Line 4 | Connected for Life. Today, more than 122 million Americans in the United States have diabetes or prediabetes an invasive, unrelenting, and debilitating disease that spans all ages, geographic areas, and educational levels. This chronic disease targets children, the elderly, and minority populations more than others and costs the United States 327 billion each year in lost productivity. It is a global epidemic that contributes to heart disease, stroke, nerve and kidney disease, and vision loss. The American Diabetes Association is the only organization dedicated specifically to the research, education, and advocacy required to improve the lives of the 34 million adults and children in the U.S. with diabetes and the 88 million people with prediabetes. For 80 years, we have been working on the front lines to educate at risk populations protect the rights of people with diabetes at work, school, and other aspects of daily life pioneer clinical and research breakthroughs, and foster a pipeline of the best and brightest scientists. The COVID19 pandemic shined a very bright spotlight on diabetes as a public health crisis and on severe health inequities. For people with diabetes, COVID19 poses a much greater threat of severe complications, hospitalization, and even death. Throughout 2020, we adapted our resources, programs, and events in service to people living with diabetes and the health care professionals who treat them. |
| Form 990, Part III, Line 4 | From research labs to the halls of the Capitol to the offices of health care practitioners to communities nationwide, the ADA is there. We are bending the curve to help people living with diabetes and their families thrive. Why Because we envision a life free of diabetes and all its burdens, which is fueled by our mission to prevent and cure diabetes and to improve the lives of all people affected by diabetes. DIABETES RESEARCH. Diabetes is an extremely complex disease, caused by a combination of various genetic and environmental factors that progressively lead to an inability to produce or effectively utilize insulin. The complexity of causes conspiring to diminish the bodys production or response to insulin, leading to high blood glucose and eventual development of diabetes, makes finding a single cure particularly difficult. While a cure has been elusive, critical research efforts in recent decades have led to significantly improved patient care, resulting in fewer complications and better health outcomes for individuals with diabetes. As a leader in diabetes research, and the only organization dedicated specifically to the research, education, and advocacy required to improve the lives of all people with diabetes, the ADA funds critical, innovative diabetes research and invests in promising scientists early in their careers. Our direct involvement in diabetes research extends back to the 1940s when Dr. Charles H. Best, one of four scientists credited with discovering insulin, provided the ADA with the framework and early leadership for a formalized diabetes research program. |
| Form 990, Part III, Line 4 | Since the ADA started its Research Programs in 1952, we have invested 861 million in more than 4,800 diabetes research projects. In 2020 alone, the ADA supported 258 research projects at 123 leading research institutions across the U.S., all dedicated to progressing the fight against diabetes. Of these projects, 147 were led by in-training or early-career investigators. While we have learned much, there is so much left to discover about diabetes. The primary goals of the ADAs Research Program are to Support the highest-quality science across the broad spectrum of diabetes research. Support investigators early in their careers to encourage them to dedicate their efforts to diabetes research. Support innovative research with a high potential to have a significant impact for patients with diabetes. In 2020 we also awarded two Cardiovascular-Metabolic Fellowships to Layla A. Abushamat, MD, of the University of Colorado and Jacquelyn M. Walejko, PhD, at Duke University. Their two-year awards, supported by Pfizer, began Jan. 1, 2021. |
| Form 990, Part III, Line 4 | Peer Review Process. One of the factors that sets ADA funded research apart and ensures that we are supporting the very best science is peer review. Peer review is a process whereby grant applications are reviewed and evaluated by individuals who are experts in the field or peers of the individual submitting the grant. ADA grant applications undergo peer review by three or more volunteer experts who are themselves experienced researchers. Reviewers provide both a score and detailed comments regarding the strengths and weaknesses of each grant they review. Scores from all reviewers for each grant are averaged to arrive at a composite merit score that is then used to determine which grants to support. Research Approach. The ADAs research strategy is targeted and laser focused. This approach is helping us make meaningful, actionable change in specific areas that are highly relevant to the population. In 2020 we focused on COVID19 research and in 2021 we will be emphasizing health disparities and other key initiatives that are aligned with critical societal needs and for those living with diabetes. While we have a targeted approach to funding, we are also continuing to invest in our many career and training awards. Investing in early career diabetes professionals allows us to uplift, support, mentor, and secure the next generation of researchers as they prepare to care for the millions living with diabetes and prediabetes. |
| Form 990, Part III, Line 4 | ADAs research efforts fall broadly into two categories. Research and Innovation and Investing in the Future. This ensures we can make the biggest impacts through formative research and intervention development with real world, translational outcomes. COVID19 Research. COVID19 placed extraordinary demands on health care delivery and raised countless questions about the virus effect on people with diabetes. In 2020 the ADA launched a new, targeted research grant program specifically to address the pandemic. We funded 10 research projects from a pool of 212 proposals, awarding up to 100,000 for one year grants starting July 1, 2020. The COVID19 grants support basic, translational, and clinical studies that will be instrumental to better understanding the virus and its complications for those living with diabetes. 2020 Research Progress. This year ADA supported researchers made significant progress in understanding how diabetes develops and progresses, and in identifying new ways to combat the disease. |
| Form 990, Part III, Line 4 | Building a Healthy Temple through church based diabetes education. Researchers have long known that churches can be familiar, comfortable settings to deliver health education. In the African American community, studies suggest this approach improves adherence better than diabetes self management classes held at hospitals or doctors offices. ADA funded researcher Dr. Meizi He wondered if incorporating Christian themes into the intervention, and having church members teach the classes, might deliver more lasting results than traditional faith placed education for U.S. Latinos, 90 percent of whom are affiliated with a church. In 2020 Dr. He recruited and trained church members to deliver a diabetes self management support curriculum, along with a sermon on health and seven sessions of health oriented Bible study. Her initial results were encouraging. The groups run by church members lowered their A1Cs significantly after one year, and they kept their blood sugar blood glucose levels close to or within target range for a full year after the classes ended. The same benefit wasnt seen in those who took classes delivered by certified diabetes educators. Next, Dr. He will apply for funding to turn her research into a curriculum that could be adopted by churches nationwide and accredited by the ADA. |
| Form 990, Part III, Line 4 | Getting to the bottom of hypoglycemia unawareness. One of the most unpleasant, fearsome consequences of diabetes is hypoglycemia, when your blood sugar blood glucose drops dangerously low. Yet after frequent hypoglycemic episodes, some people particularly those with type 1 diabetes develop hypoglycemia unawareness. Without the telltale symptoms, people with diabetes dont know to treat hypoglycemia. With ADA research funding, Dr. Janice Hwang sought to determine whether the brains of people with hypoglycemia unawareness reacted differently to low blood sugar than those of people still sensitive to the bodys signals. The results of the brain scans were obvious In hypoglycemia sensitive brains, regions connected to cravings and the brains planning and control centers lit up in response to a drop in blood sugar levels. In people with hypoglycemia unawareness, no places in the brain lit up. Ultimately, Dr. Hwangs goal will be to see if hypoglycemia unawareness can be reversed, helping people with diabetes regain the warning systems so critical to glucose management. |
| Form 990, Part III, Line 4 | The next generation of glucose monitoring. When continuous glucose monitors CGM were introduced more than 20 years ago, they represented a huge leap forward in diabetes care, giving people with diabetes a way to monitor their glucose levels in near real time. Research soon showed that CGMs offered people with both type 1 and type 2 diabetes significantly improved blood sugar blood glucose management. Yet only 33 percent of Americans with type 1 diabetes use a CGM, along with just 10 percent of people with type 2. With the help of an ADA grant, Dr. Bing Wang is searching for ways to change that by making CGMs easier to use and less obtrusive. Specifically, he is working to tweak the newer optical sensors to require fewer, if any, finger sticks to calibrate the devices. Dr. Wangs work could be an important building block for future generations of sensors, and it could reduce the pain and fear associated with CGMs. Pathway to Stop Diabetes. The ADAs Pathway to Stop Diabetes is a groundbreaking research initiative that provides critical financial resources, professional mentorship, and scientific guidance to the nations highest impact investigative pioneers. Pathway has an ambitious goal of bringing 100 brilliant scientists to diabetes research, funding a human pathway, and launching the next generation of investigators inventive, interdisciplinary, progressive, and trailblazing. Pathway provides crucial support to individuals focusing on innovative ideas and transformational approaches that will lead to new discoveries in diabetes prevention and treatment. |
| Form 990, Part III, Line 4 | Since its inception, our Pathway researchers have collectively published 170 plus original publications in high impact scientific journals, filed 13 patent applications, protecting intellectual property to translate discoveries into tools and cures. Delivered 468 engaging and informative presentations and lectures. Founded 3 independent start ups. Two new Pathway awardees began their research projects in January 2020 Judith Agudo, PhD, Dana-Farber Cancer Institute, Boston, MA Harnessing Immune Privilege Mechanisms from Stem Cells to Protect Stem Cells from Immune Attack. Maxence V. Nachury, PhD, University of California, San Francisco Regulation of Body Weight Homeostasis and B Cell Function by Primary Cilia. Also in 2020, our third group of scientists completed their terms of Pathway funding Zhen Gu, PhD, of the University of California, Los Angeles Marie France Hivert, MD, of Harvard Pilgrim Health Care, and Stephen C.J. Parker, PhD, of the University of Michigan. Each of them has already added substantially to our understanding of diabetes and diabetes risk, and their contributions will continue throughout their careers in diabetes science, because they are now set up for success in conducting the kind of innovative, transformative research that holds promise to ultimately stop the health crisis that is diabetes. |
| Form 990, Part III, Line 4 | Scientific Sessions. Held annually, Scientific Sessions exemplifies the ADAs leadership role in the global diabetes community while providing a critical platform for driving diabetes awareness. Scientific Sessions is the worlds largest scientific and medical meeting focused on the latest basic and clinical science research related to diabetes and its complications. For the first time in the ADAs 80 year history, the Scientific Sessions was held online due to the COVID19 pandemic. By translating the in person meeting into an entirely virtual experience, we upheld the ADAs reputation for offering the latest advances in diabetes research, treatment, and care, and hosted a prime setting for researchers and health care professionals to exchange ideas. The virtual 80th Scientific Sessions by the numbers. 12,700 plus professionals. 850 plus presentations. 238 sessions, special lectures, and addresses. 2,409 published abstracts. More than 712 million media impressions generated worldwide through the Communication teams press program media engagement. More than 99 percent of surveyed attendees believed the program was independent, balanced, objective, and scientifically rigorous. Nearly 91 percent said the content gave them the necessary knowledge to enhance their clinical or research practice. |
| Form 990, Part III, Line 4 | INFORMATION Saving Lives through Knowledge. For people affected by or at risk for diabetes, having access to the most up to date tools and resources can literally make the difference between life and death. As a trusted leader, the ADA works hard to ensure that those affected by and at risk for diabetes, their health care team, as well as the general public receive targeted, timely, and accurate information. We deliver resources that people can access any time in multiple formats including our website for consumers and professionals, diabetes.org, our flagship social media channels, and our professional journals and publications. We focus our efforts on three areas. Raising awareness of diabetes as a serious disease. Ensuring patients, providers, and caregivers have tools and resources to effectively treat and manage diabetes. Reaching diverse groups of people who are at risk for or have diabetes, their families, and health care professionals, with the goal of reducing the incidence of diabetes and the impact of complications. In 2020, we augmented these efforts by developing a continual stream of evidence based resources to help our community respond to COVID19 and diabetes. This included launching a new COVID19 response section on our website complete with FAQs, a vaccination guide, resources for health care professionals, information for voting safely, and more. |
| Form 990, Part III, Line 4 | Center for Information. The ADAs Center for Information CFI at 1 800 DIABETES marks the very first stop for many of our constituents as they start their journey of living with diabetes. CFI helps to bend the curve every day by providing constituents with information and resources on prevention, nutrition, and diabetes management, help with medications and supplies discrimination issues, ADA events, assisting professional members and donors, and much more. In 2020, CFI supported ADAs mission by Processing nearly 64,000 contacts from constituents, professional members, and others. Collecting 164,210 in donations. Pointing constituents to our digital resources and, during the COVID19 pandemic, implementing a process that allowed CFI to manually process and mail 4,192 packets of literature to those without internet access. Processing 2,712 intakes for our Legal Advocacy team. Assisting 3,538 contacts with information and resources for assistance with medications and supplies. In addition, we established working relationships with Novo Nordisk and Eli Lilly to connect constituents who need financial assistance for their insulin directly to the Novo Nordisk Customer Care Center and the Lilly Diabetes Solution Center. Digital Engagement. We offer a variety of targeted and interactive online properties to connect with our consumer and professional audiences, while providing the latest diabetes-related information and news. From our website, diabetes.org to our blog diabetes.org/blog to our ever-growing presence on Facebook, Twitter, YouTube, and Instagram, the ADA is connected to its constituents 24 7. |
| Form 990, Part III, Line 4 | Diabetes.org. Our website for consumers and professionals, diabetes.org, is widely regarded as the most informative and credible diabetes and nutrition resource on the internet. In 2020, the site had 12.1 million sessions, 18.6 million unique pageviews, and 9.4 million new users. Social Media. The ADAs flagship social media channels continue to grow Facebook fan base is now more than 774,000. Twitter following is up to 144,000. Instagram following is now over 45,000. LinkedIn continues to be a dedicated marketing communications channel for the professional audience. Our company page has more than 61,000 followers. Facebook Fundraisers continue to be a major source of donations, accounting for more than 2 million in 2020. ADA supporters gave on Facebook to mark birthdays, dia versarys, ADM, and more. DiabetesPro. DiabetesPro at professional.diabetes.org provides the latest resources in diabetes care and research for health care professionals and scientists. Through this mobile friendly platform, the ADA delivers enhanced and customized content as well as access to members only benefits. DiabetesPro is the most advanced collection of resources available to professionals that have diabetes in the center of their careers, providing them a convenient way to stay informed. |
| Form 990, Part III, Line 4 | Featured content includes News via DiabetesPro SmartBrief, which has 56,000 subscribers. Diabetes meetings and continuing education opportunities, including ADAs Scientific Sessions. Social media, including Facebook 32,000 professional followers and Twitter more than 16,000 professional followers. Clinical practice recommendations, including the Standards of Medical Care in Diabetes. Webcasts and podcasts, including Diabetes Core Update. Journals and books. DiabetesPro Quarterly, our quarterly membership newsletter with about 16,000 subscribers. Professional Interest Group resources, including our Professional Member Community. This forum has more than 15,000 professional users. Research grant information, including funding cycle information and funded research. Diabetes Recognized Education Program information and resources. Youth, Young Adult, and Family Initiatives. Reaching Type 1 and Type 2 Diabetes Families ADA Camps. The ADA continues to be the worlds largest provider of camps for children with diabetes. ADA Imagine Camp was born in time for summer 2020 connecting kids with diabetes to adventure, education, mentorship, and each other virtually. |
| Form 990, Part III, Line 4 | Now a year round program, ADA Imagine Camp facilitates an at home, virtual experience for children, their caregivers, and their families. Kids from all 50 states and internationally from Canada, China, Ireland, New Zealand, South Africa, and the United Kingdom joined us in 2020. Like our in person programming, ADA Imagine Camp imparts tips and tools for living well with diabetes, reduces feelings of isolation, improves confidence and independence in diabetes management, and fosters lifelong friendships. 2020 ADA Imagine Camp by the numbers 2,912 campers. 41 percent first time campers. 147 volunteer counselors. 856 Zoom meetings. 0 cost to each participant ADA Imagine Camp is fully subsidized. Of campers assessed One-third increased their knowledge of proper diabetes management including when to check blood sugar, counting carbohydrates, and the effect of exercise on blood sugar. Meanwhile, 40 percent increased their confidence in trying new methods of diabetes management. Feelings of loneliness decreased among 23 percent of campers. ADA Imagine Camp would not be possible without the dedication and enthusiasm of our partner organizations, who help provide resources, training materials, support groups, video content, and more Beyond Type 1, College Diabetes Network, Riding On Insulin, and Children With Diabetes Moms of Friends for Life. Youth, Young Adult, and Family Initiatives were supported nationally by the generosity of Novo Nordisk, The Leona M. and Harry B. Helmsley Charitable Trust, and Lilly Diabetes. |
| Form 990, Part III, Line 4 | Project Power. The ADA continues to take on the growing rates of type 2 in youth with Project Power, our healthy lifestyle intervention program for children at risk for type 2 diabetes and their families. Project Power aims to slow the trajectory of childhood obesity and ultimately prevent type 2 diabetes and its complications. Created for elementary and middle school-aged youths, its evidenced-based curriculum is built on three pillars nutrition education, fitness education, and family engagement. In fall 2020, we delivered Project Power as a virtual after-school program to 1,465 participants, at no cost to families. Project Power assessments showed improvements across all knowledge areas, including 33 of participants were more confident in their ability to choose healthy snacks and exercise regularly. 16 increased their physical activity to the recommended five-plus days/week, ate more fruits and vegetables, and drank more water. Ask the Experts. To address issues commonly faced by people living with diabetes, the ADA developed a free education series focused on diabetes management. The wellness series includes live QA with diabetes experts to reinforce and increase participant knowledge of and engagement in healthy lifestyle behaviors, as well as provide a community where individuals can ask questions and hear from others who might share similar experiences. |
| Form 990, Part III, Line 4 | The series is delivered as part of the Know Diabetes by HeartTM initiative to help people living with type 2 diabetes learn how to reduce their risk of cardiovascular disease, and the Focus on DiabetesTM initiative to raise awareness of the link between diabetes and eye disease. Across 14 events held in 2020, experts connected with nearly 11,000 participants who engaged for 20 minutes on the phone or online.Know Diabetes by Heart sponsored event outcomes 17 of participants, on average, increased their diabetes knowledge from before an event to after an event. 22 of participants discussed their risk for cardiovascular disease with their health care provider within one month of an event among those who had not previously had a discussion. 91 intend to enroll in diabetes education after attending the event.Focus on Diabetes sponsored event outcomes 66 were aware that eye disease can have no visuals signs or symptoms, an increase of 21 from baseline. 95 were confident in their ability to reduce their risk for diabetes-related eye disease, a 12 increase from baseline. 98 intend to get eye exams regularly after attending the event. |
| Form 990, Part III, Line 4 | Diabetes Self-Management Support DSMS. ADA continues to the promote the Diabetes Support Initiative and ADA approved DSMS programs. ADA convened a subject matter expert workgroup to review, vet, and identify DSMS program curriculums and resources that meet the ADA criteria for support programming, align with the Standards of Care, and demonstrate significant positive outcomes. Learn more at professional.diabetes.org/dsi. In 2020 ADA developed additional DSMS resources including a new DSMS Toolkit and DSMS Plan. The Diabetes Self Management Support DSMS Toolkit provides information and guidance to help diabetes care providers and educators meet the National Standards for Diabetes Self-Management Education and Support, specifically Standard 8 Ongoing Support. The DSMS Plan provides a format through which diabetes care providers and educators can create personalized plans for participants and identify local resources and activities that may benefit them as part of ongoing diabetes support. ADA has developed a Community Grants process to offer financial support to deliver ADA approved diabetes support programs in high risk communities. ADA awarded 800,000 in grant funding through the Know Diabetes by Heart initiative to implement eight of the ADA approved diabetes support programs in high-risk communities nationwide. ADA was awarded 250,000 from The Pfizer Foundations Social Determinants of Health Grant to develop a Community Garden and implement an ADA approved diabetes support programs in Montgomery, Ala. |
| Form 990, Part III, Line 4 | Community Health Workers CHWs. To address ADAs Standards of Care highlighting the importance of CHWs in diabetes prevention and management, especially among underserved communities, our National Health Disparities Committee developed the new CHW webpage for COVID19 Community Health Worker Resources. The Health Disparities Committee, in collaboration with the National Association of Community Health Workers NACHW, participated in the ADAs COVID19 webcast The Role of Community Health Workers as First Responders in the COVID19 Outbreak. The Health Disparities Committee and ADAs Professional Membership team continued to promote the new 35 CHW Professional Membership for community health representatives, peer health educators, and other frontline public health workers. In 2020, there were a total of 126 CHW professional members. In 2020 the ADA also continued the Health Disparities Community Health Workers Resources continuing education webcast series developed by the Health Disparities Committee to provide professional education resources addressing various topics related to CHWs and social determinants of health. The webcasts series included Diabetes 101 Resources for Community Health Workers held in February 2020 with a total of 726 registrants, and What Health Care Professionals Need to Know About Addressing Diabetes and Food Insecurity. Resources for Communities in Need held in July 2020 with a total of 895 registrants. |
| Form 990, Part III, Line 4 | Professional Education. The primary goal of the ADAs professional education program is to affect the quality of treatment and improve patient outcomes for people with diabetes by providing quality education for those health care professionals who provide their care. We conduct professional education activities directed toward enhancing knowledge and competence, advancing skills, and apprising health care professionals of the latest developments in diabetes research and clinical practice. The ADA has been accredited to provide continuing education to health care professionals for more than 30 years and is a Joint Accredited Provider. The ADA remains in exemplary standing with each accrediting board proving our compliance with the continuing education guidelines. The ADA continues to be at the forefront of professional continuing education for the diabetes community as an accredited provider of continuing education credit for all health care professionals on the diabetes management team. Education Recognition Program. Since the ADA became a National Accrediting Organization NAO for Medicare in 1986, our Education Recognition Program ERP has recognized more than 6,600 diabetes self-management education and support DSMES services across the United States plus U.S territories including as far as Guam. |
| Form 990, Part III, Line 4 | The pandemic did not diminish the need for diabetes self-management education and support DSMES services, as organizations continued to apply for ERP recognition. We maintained 1,500 ERP programs and awarded recognition to 50 new ones in 2020. This included adding the fourth National Virtual Recognition for the U.S. Departments of Veteran Affairs and Defense, which will offer DSMES services to all members of the military and their dependents nationwide. We also introduced ERP University ERPU, a series of webinars providing practical solutions for each of the DSMES National Standards. ERPU is only available to ADA-recognized programs and has been in high demand since launching in September 2020. National Diabetes Prevention Program National DPP. The ADA continues to help Americans prevent or delay type 2 diabetes through our cooperative agreement with the Centers for Disease Control and Prevention CDC. In 2020, our National DPP affiliate sites enrolled 929 participants in this proven lifestyle change program. Due to the pandemic, 37 of the 70 new cohorts and 64 cohorts who were currently in progress were conducted or transitioned to distance-learning classes. Of the National DPP participants who completed core sessions and at least one core maintenance session, 95 lost weight and nearly half met the goal of losing at least 5 of their starting body weight. |
| Form 990, Part III, Line 4 | Professional Engagement. The pandemic challenged the ADA to connect with health care professionals in new ways. Across the board, our professional engagement programs pivoted to a deliver an innovative virtual experience. The newly minted COVID-19 Professional Leadership Team hosted nearly 20 webinars for professionals around the world as the pandemic evolved. More than 4,000 attendees participated in the live events, and the corresponding podcasts have been downloaded nearly 56,000 times. Our Professional Membership Interest Groups hosted 15 webinars and professional development programs to grow relationships, foster knowledge, and share research updates throughout the year. The Focus on Fellows program met every other week from June through November. A total of 208 endocrine fellows participated in 22 interactive sessions focused on practical issues such as resumes, career paths, and work-life balance. Under the banner of the Know Diabetes by HeartTM and Focus on DiabetesTM initiatives, we launched digital pocket guides, podcasts, webinars, and other continuing education CE and non-CE professional education activities. |
| Form 990, Part III, Line 4 | What Can I Eat Program. The number one question we hear from individuals recently diagnosed with diabetes is, What can I eat To address this, the ADA developed and conducted a pilot study for adults living with type 2 diabetes, their families, and caregivers. This in-person, community based, nutrition focused support program was launched as the What Can I Eat WCIE program in 2015. The curriculum consists of five interactive group sessions featuring goal setting, problem solving, storytelling, visuals, and demonstrations. It complements Diabetes Self Management Education and Support DSMES programs and is designed to promote and sustain positive behavior changes related to healthy food choices. According to a two-year pilot study, the five-session WCIE program significantly impacts a wide range of promoted dietary outcomes and leads to notably positive trends in health. Outcomes are sustained in the months following the intervention, such as Decreased A1C, weight, and blood pressure. Increased positive eating habits Consuming more non-starchy vegetables, lower fat meat, and water. Using the diabetes plate method. Using food labels. Purchasing healthy sides at restaurants. Decreased negative eating habits Consuming less red meat, sweets, salty snacks, and sugary drinks. Using less solid fats and frying when cooking. Eating at restaurants less frequently. Choosing fewer fried foods at restaurants. Improved food shopping behaviors. Improved cooking habits. Increased self-efficacy confidence to change |
| Form 990, Part III, Line 4 | Notably, 99 percent of WCIE participants reported making better dietary choices because of this program. The ADA will continue working to scale and expand the What Can I Eat program to reach diverse communities of people with diabetes where they are in their communities, in their life stage, and in their circumstances. Overcoming Therapeutic Inertia OTI. The average A1C for people with diabetes has remained unchanged last 20 years, despite advances in technology, education, and treatments. The root of this problem is therapeutic inertia, which is defined as a delay in starting or intensifying therapy when its appropriate to do so. If we can overcome therapeutic inertia and manage blood sugar blood glucose levels early in a persons diabetes journey, it will lead to better long term outcomes and reduce their chances of developing complications. Started in 2018, our OTI initiative marks an ambitious paradigm shift in type 2 diabetes care as we seek to better understand and address the factors that contribute to therapeutic inertia in diabetes care and help people with type 2 live longer, healthier lives. The OTI education and awareness campaign got underway in 2020 with a six module curriculum and other materials for clinicians and their patients. An average of 832 health care professionals registered for each of the corresponding educational webinars. The videos, fact sheets, self assessments, conversation guides, and other tools provide practical strategies and tips for identifying and overcoming therapeutic inertia in primary care. |
| Form 990, Part III, Line 4 | As of 2020 we have formed OTI alliance partnerships with AMGA formerly the American Medical Group Association. American Association of Nurse Practitioners AANP. American Association of Physician Assistants AAPA. American College of Osteopathic Family Physicians ACOFP. American Pharmacists Association APhA. American Society for Health-System Pharmacists ASHP. Association of Diabetes Care and Education Specialists ADCES. The Overcoming Therapeutic Inertia initiative is supported by Strategic Sponsors AstraZeneca and Sanofi, plus Supporting Sponsors Merck and Novo Nordisk. Learn more at therapeuticinertia.diabetes.org. Diabetes INSIDE. Despite COVID19s impact on health care systems, in 2020 Diabetes INSIDE continued to expand its regional collaboration of stakeholders in the Greater Philadelphia and mid Atlantic regions and improve care for people with diabetes and cardiovascular disease. Our network of partners now supports community health interventions that target high risk African American and Latino populations. Diabetes INSIDE has collected and analyzed data on over 300,000 patients over several million visits to identify trends and gaps in care and to monitor for change as we facilitate improvement projects across a wide range of clinical challenges. We are also initiating an expansion plan to launch Diabetes INSIDE in new markets, with a focus on Chicago. |
| Form 990, Part III, Line 4 | Professional Membership. COVID19 impacted ADAs ability to reach health care professionals to ask them to join or renew their membership. Consequently, all digital promotions were increased with geofencing being tested as a new option to reach researchers and clinicians.New membership levels continued to grow in 2020. Community Health Workers 126. Student 81. Early Career generated 175. Emeritus generated 1. Digital Clinical Diabetes Roundtable Discussions. In 2019, the ADA launched a new educational opportunity to facilitate dialogue and improve understanding with primary care audiences on important subjects related to diabetes prevention and treatment. The program consists of a panel of experts who are recruited to participate in a roundtable discussion on a diabetes related topic, which is video-recorded and posted on a landing page on the Clinical Diabetes website. A corresponding summary paper outlining the content is published in the journal. The landing page includes the roundtable discussion videos, speaker biographies, and funding information. The latest roundtable discussions include Effective Initiation and Treatment With Basal Insulin in People With Type 2 Diabetes Focus on Mitigating Hypoglycemia in Patients at Increased Risk released in October 2020. |
| Form 990, Part III, Line 4 | Diabetes Core Update Podcast. Diabetes Core Update is an audio podcast series devoted to presenting and discussing the latest clinically relevant articles from the ADAs four scholarly journals Diabetes, Diabetes Care, Clinical Diabetes, and Diabetes Spectrum, as well as related content from other sources. In addition to monthly episodes, in 2020 we produced themed podcast series on topics including therapeutic inertia, influenza, SGLT2 inhibitors, and COVID19. Each podcast episode can be accessed via Apple Podcasts, Google Play, RSS feed, or at diabetesjournals.org. PUBLICATIONS. ADA journals provide more than 40,000 researchers, physicians, and diabetes care specialists with the latest information on scientific research and clinical practice. The ADAs four highly respected professional journals, Diabetes, Diabetes Care, Clinical Diabetes, and Diabetes Spectrum, publish original research, consensus reports, scientific statements, and more, in addition to supplemental issues including the ADAs clinical practice guidelines the Standards of Medical Care in Diabetes. In 2020, our journals received more than 12 million visits and 25 million page views at diabetesjournals.org, and ADA-published studies were cited more than 130,000 times a 5 percent increase over 2019. Also this year, Diabetes Care achieved the highest Impact Factor ever recorded for an ADA journal 16.02. Diabetes Care and Diabetes are consistently ranked as the top two journals devoted to diabetes research, ranking second and third among the 145 journals in the field of endocrinology and metabolism. |
| Form 990, Part III, Line 4 | Standards of Care Guidelines. The Standards of Medical Care in Diabetes 2021 Standards of Care was developed throughout 2020 and is published as a supplement to Diabetes Care journal each December. Key changes for the 2021 edition include Simplified figures and tables that more easily guide providers through treatment options and individualized recommendations for treatment of cardiovascular disease based on patients pre existing conditions. Special considerations for older adults with type 1 diabetes to address the treatment of this growing population. Revised recommendations and additional supporting evidence in section 7, Diabetes Technology. The Standards of Medical Care in Diabetes 2021 is available online and in print. We also offer an abridged version for primary care providers, an interactive app, plus CE webcasts and a slide deck for professional use. The Standards of Care is a living document. It is published annually online and then updated throughout the year in the form of online annotations and published addenda. Reports, Reviews, and Consensus. In addition, in 2020 the ADA published several important reports, reviews, and consensus documents in the journal Diabetes Care. |
| Form 990, Part III, Line 4 | Diabetes Digital App Technology Benefits, Challenges, and Recommendations. A Consensus Report by the European Association for the Study of Diabetes EASD and the American Diabetes Association ADA Diabetes Technology Working Group January 2020. 2019 Update to Management of Hyperglycemia in Type 2 Diabetes, 2018. A Consensus Report by the American Diabetes Association ADA and the European Association for the Study of Diabetes EASD February 2020. Cost-effectiveness of Diabetes Prevention Interventions Targeting High-risk Individuals and Whole Populations A Systematic Review July 2020. Precision Medicine in Diabetes A Consensus Report From the American Diabetes Association ADA and the European Association for the Study of Diabetes EASD July 2020. Diabetes Self-management Education and Support in Adults With Type 2 Diabetes A Consensus Report of the American Diabetes Association, the Association of Diabetes Care Education Specialists, the Academy of Nutrition and Dietetics, the American Academy of Family Physicians, the American Academy of PAs, the American Association of Nurse Practitioners, and the American Pharmacists Association July 2020. Social Determinants of Health and Diabetes A Scientific Review online November 2020 |
| Form 990, Part III, Line 4 | Article Collections and Clinical Compendia. ADA journals also published several special article collections in 2020, including Diagnosis and Management of Diabetic Foot Infections January 2020. Nonalcoholic Fatty Liver Disease in Diabetes February 2020. Person Centered, Outcomes Driven Treatment A New Paradigm for Type 2 Diabetes in Primary Care April 2020. COVID19 and Diabetes May 2020. The Role of Blood Glucose Monitoring in Diabetes Management October 2020. Diabetes Technology in Primary Care December 2020. Compendia cover important topics of interest to health care providers who treat diabetes and concomitant conditions. Through sponsorship support of our industry partners, the ADA convenes a panel of experts who author individual sections of educational compendia with distribution implemented via direct mail to approximately 40,000 health care professionals who receive the ADAs four professional journals, Diabetes, Diabetes Care, Clinical Diabetes, and Diabetes Spectrum. The compendia are available on the ADAs professional membership website, professional.diabetes.org. Compendia published in 2020 include Diagnosis and Management of Diabetic Foot Infections January 2020. Person Centered, Outcomes Driven Treatment A New Paradigm for Type 2 Diabetes in Primary Care May 2020. The Role of Blood Glucose Monitoring in Diabetes Management October 2020 |
| Form 990, Part III, Line 4 | New Book Titles. In 2020, the ADA Books Department distributed 102,580 book units to physical booksellers, online resellers, international wholesalers, direct customers, and public libraries, where constituents can access our award winning materials free of charge. This is a 38 percent decrease over 2019. However, with the changes ADA Books experienced in 2020 in particular, the reduction of our Consumer Book list and our expanded focus on Professional Book content we feel that there will continue to be a strong interest in book content, and that ADA Books will remain the authoritative source for diabetes information. Consumer. Pocket Guide to Diabetic Food Choices, 5th edition. American Diabetes Association. Pregnancy and Diabetes. Marina Chapparo, RDN, CDE, MPH. Cocinando para Latinos con Diabetes, 3rd edition. Olga Fuste, MS, RD, CDE. Diabetic Cooking Made Easy. Jennifer Bucko Lamplough. The Create Your Plate Diabetes Cookbook. Tobi Amidor, MS, RD, CDN. What Do I Eat Now, 3rd edition. Tami Ross, RDN, LD, CDCES, MLDE. What Do I Cook Now. Tami Ross, RDN, LD, CDCES, MLDE. Clean and Simple Diabetes Cookbook. Jackie Newgent, RDN, CDN. Intimacy and Diabetes eBook only. Janis Roszler, LMFT, RD, LDN, CDE and Donna Rice, MBA, BSN, RN, CDE |
| Form 990, Part III, Line 4 | Professional. Annual Review of Diabetes 2020. American Diabetes Association. Medical Management of Type 2 Diabetes, 8th edition. Luigi Meneghini, MD, MBA. Life With Diabetes, 6th edition. Martha Funnell, MS, RN, CDCES. 2020 2021 Guide to Medications for the Treatment of Diabetes Mellitus. John White, Jr., PAC, PharmD. AWARENESS and EDUCATION American Diabetes Month ADM. From the nonstop bad news to the bleak forecasts, everything about 2020 seemed to conspire against us. People living with diabetes and those who love them felt powerless, afraid, and small. Thats why we embraced a message of hope for ADM in November. We sought to empower one another, regardless of background or circumstance, to conquer diabetes and all that comes with it. We Stand Greater Than became a powerful theme for encouraging action Equity Prejudice Holding elected officials accountable for health equity. Speaking Silence Expanding COVID19 care. Thriving Surviving Embracing diabetes wellness and management. Advancement Acceptance Donating to make a difference. National Strategic Partner CVS Pharmacy returned as a proud sponsor for the ADM campaign, which integrated organic, paid, partner, and influencer marketing strategies to build awareness. Throughout the month we hosted eight virtual events with our partners in the diabetes space, such as a cooking demo with JDRF and a live concert featuring some of our favorite musical artists. |
| Form 990, Part III, Line 4 | The ADM microsite at diabetes.org greaterthan earned 232.5K pageviews, accounting for 10.2 percent of all website traffic to diabetes.org in the month of November. More than 60 percent of this traffic came from social media. The campaign also generated more than 16 million social media impressions and 430 media articles for a total audience of over 127 million. Know Diabetes by Heart. Know Diabetes by Heart is our landmark partnership with the American Heart Association to reduce cardiovascular deaths, heart attacks, heart failure, and strokes in people with type 2 diabetes. This initiative focuses on improving outcomes through a long term consumer activation campaign, quality and systems improvement efforts, professional resources and education, and patient resources and support. With Know Diabetes by Heart, were driving important conversations between people with type 2 and their health care teams. In 2020 we Launched a campaign and companion website to reach Spanish-speaking audiences in culturally relevant ways. Recruited 10 community-based organizations to deliver DSMES services in high-need areas. Developed more than 25 new patient education materials, including content to address COVID19 and chronic kidney disease. Awarded the inaugural Target Type 2 Diabetes Recognition to 934 hospitals and 205 outpatient clinics that met core performance metrics. Secured over 1.09 billion media impressions, driving awareness of the link between type 2 diabetes and cardiovascular disease. |
| Form 990, Part III, Line 4 | Learn more about the Know Diabetes by Heart initiative at knowdiabetesbyheart.org and diabetesdecorazon.org.Diabetes Food Hub. Diabetes Food Hub continued to be a popular destination for people living with diabetes, caregivers, and health care professionals. In 2020, nearly 40,000 new people registered for the platform part recipe database, part grocery list builder, part meal planner, and 100 percent backed by the ADAs nutrition expertise. Its newsletter now reaches over 330,000 subscribers with healthy recipes, cooking tips, and special content to help people cook more meals at home and shop safely during lockdowns and quarantine. |
| Form 990, Part III, Line 4 | Better Choices for Life. Many consumer products and services make health claims, including preventing, managing, or even reversing diabetes. In 2020 we unveiled Better Choices for Life to inform consumers everyday purchases. The program brings science and evidence based approaches, including elements of the Standards of Medical Care in Diabetes, to consumers to help guide their life decisions and provide a simple way to identify products and services that are suitable for people with or at risk for diabetes. Signature Campaigns and Events. Our signature campaigns provide a great opportunity for the ADA to raise awareness about our mission and drive revenue. These campaigns are an integral part of our strategic vision. Tour de Cure is the ADAs premier cycling fundraising event and Step Out Walk to Stop Diabetes is our signature walk fundraising event. In 2020 we virtually engaged over 17,000 individuals nationwide and raised more than 9.4 million. |
| Form 990, Part III, Line 4 | ADVOCACY. Speaking Up for All People with Diabetes. The ADAs advocacy efforts and achievements are at the core of creating effective and lasting change for people living with and at risk for diabetes. Our advocacy work gives people with diabetes, their families, and health care professionals the power to influence public policy issues that affect people with diabetes at the local, state, and national levels. Our primary goals are to increase federal and state funding for diabetes prevention, treatment, and research. to prevent diabetes. to improve the availability of accessible, adequate, and affordable health care. to end the discrimination people with diabetes face at school, work, and elsewhere in their lives. Amid the global pandemic, the ADA sharpened our advocacy focus to one important goal ensuring that the diabetes community could not only live safely, but live well. Our work aimed to improve health equity and care for people with diabetes and prediabetes, particularly in the communities of color hit hardest by both diabetes and COVID19. |
| Form 990, Part III, Line 4 | The ADAs Diabetes Advocates more than 500,000 of them are the heart of our grassroots efforts. At the local, state, and federal levels, they speak up for key policies that support people affected by diabetes. In 2020, we also kicked off an ADA Influencers group to provide high-impact engagement opportunities. In any other year, our Advocates would be visiting Washington, D.C., and state capitals to meet with elected officials. We took those meetings online in 2020, holding eight virtual congressional townhalls where our Advocates could engage with their senators and representatives safely. We also launched our new digital Communication and Engagement Platform to help volunteers make their voices heard. Our Advocates used the platform to generate nearly 50,000 messages to congressional and state policymakers in support of COVID19 relief legislation, health equity, affordable insulin, research funding, and other critical issues facing the diabetes community. |
| Form 990, Part III, Line 4 | COVID19 Advocacy. The ADA is the loudest voice in the room when it comes to pushing for diabetes funding. In fiscal year 2021, we secured 2.6 billion in such funding, an increase of more than 60 million over 2020.Then there were the resources so desperately needed to fight COVID19. We secured 22.4 billion for testing and contact tracing and 8.75 billion for CDC vaccine distribution and infrastructure, money that went directly to states. Portions of these funds were targeted to high risk and medically underserved areas and communities of color most affected by the pandemic. We also worked with the Centers for Medicare and Medicaid Services CMS so seniors with diabetes could access important diabetes management tools without having to see a doctor in person and risk exposure to COVID19. Because of our advocacy, CMS changed several Medicare policies during the COVID19 pandemic, including waiving in person visit requirements for coverage of insulin pumps and continuous glucose monitors CGMs, permanently waiving Medicares blood sugar testing requirement for CGM coverage, and allowing seniors to use audio-only telehealth services. We also submitted comments to CMS and led a group of diabetes organizations in aligning on a proposed rule that would cut reimbursement for certain CGMs. The ADA also led 43 other patient organizations in urging insurance companies to continue covering patient out of pocket expenses for certain telehealth visits for the duration of the pandemic. |
| Form 990, Part III, Line 4 | Health Equity Now. The current health pandemic and its disproportionate toll on minority, low income, and historically underserved Americans shines a troubling light on historic, systemic inequities in American health care. Thats why we introduced our Health Equity Now platform in 2020. The ADAs Health Equity Bill of Rights envisions a future without unjust health disparities. It ensures the 122 million Americans living with diabetes and prediabetes, along with the millions more who are at high risk for diabetes no matter their race, income, Zip code, age, education, or gender get equal access to the most basic of human rights their health. Working with anchor partners Abbott, Baxter International Foundation, and Walmart, the ADA seeks to dismantle pervasive health inequities one by one so people living with diabetes can truly thrive. |
| Form 990, Part III, Line 4 | State-Level Wins. Additionally, the ADA secured 98 state-level legislative wins in 2020, achieving greater health equity from coast to coast. These victories improved access to affordable and adequate health care, food and nutrition policies, and diabetes prevention programs for a total of over 28.6 million Americans, a 30 increase over the previous year. Making Insulin Affordable. Insulin is essential to life, and the ADA has led the way to lower costs and increase access to this medication. In 2020 we helped launch the Medicare Part D Senior Savings Model that caps insulin at 35 per 30-day supply. The model became effective Jan. 1, 2021, a welcome relief for the more than 3.3 million Medicare beneficiaries who rely on insulin to treat their diabetes. We endorsed federal legislation to make insulin available to Medicare beneficiaries with no out-of-pocket costs during the public health emergency. We also sponsored or supported insulin co-pay caps that were approved in 13 states. These laws address insulin affordability by limiting monthly cost-sharing for this lifesaving medication. |
| Form 990, Part III, Line 4 | Dismantling Discrimination. For nearly two decades, the ADAs unique legal advocacy program has knocked down blanket bans and other unfair policies that discriminate against people with diabetes at work, at school, and in daily life. In 2020, that also meant working to ensure those with diabetes could vote safely in their elections, with options that protected them from unnecessary exposure to COVID19. Our team also broke barriers with the Federal Aviation Administration FAA to allow commercial pilots with insulin-treated diabetes to fly for the first time. |
| Form 990, Part III, Line 4 | Were Connected for Life. The American Diabetes Association is the nations leading voluntary health organization fighting to bend the curve on the diabetes epidemic to help people live a better life and thrive until we ultimately find a cure. The moving force behind the work of the ADA is a network of more than 526,000 volunteers, including our dedicated Board of Directors, a membership of more than 500,000 people with diabetes, their families, and caregivers, the hundreds of thousands of health care professionals we serve across the globe, over 2.7 million email subscribers, as well as nearly 250 staff members. Diabetes has brought us all together, what we do next makes us Connected for Life. Learn more about the American Diabetes Association at diabetes.org. |
| Form 990, Part III, Line 4 | Other Program Services revenue reported in Line 4d 1,626,611 relates to the investment in real estate. This investment represents a 1998 donor bequest that restricted the Association from selling the property for 25 years. A portion of the property is leased to corporations and derives monthly income that is reported in investment income. 188,974 relates to rental income received from tenants of subleased office space. |
| Form 990, Part VI, Section A, Line 6, 7a | The American Diabetes Association has established the voting membership of the Association as the Voting Members. The Voting Members are comprised of all of the members of the Board of Directors and additional delegates. The Voting Members vote on the election of the organizations governing body each year. No governance decisions are reserved to or subject to approval by the membership. |
| Form 990, Part VI, Section B, Line 11 | IRS Review Process by the Governing Body The American Diabetes Association Board of Directors assigns the Audit Committee the oversight responsibility of the IRS Form 990 and its supplemental schedules prior to completion. After review by management and BDO, the final signed 990 was provided to the Associations Board of Directors prior to filing with the IRS. |
| Form 990, Part VI, Section B, Line 12 | Managing Conflict of Interest To identify potential conflicts of interest with appropriate due diligence, Officers, Directors, and members of select Board appointed committees and their related subcommittees, journal/periodical editors, and senior staff of the Association must annually disclose any potential conflicts of interest. The American Diabetes Associations Audit Committee and senior staff in Legal Affairs manage the disclosure and monitoring processes. Through review of the annual disclosures and review of the agendas of the relevant Board ,Committee and other meetings, appropriate efforts are made in advance of the meetings to identify potential conflicts of interest. Each person also has the responsibility to report his/her own conflicts of interest actual or perceived as those conflicts may arise during a meeting. Based on the situation, senior volunteers and staff presiding over the discussion are responsible to ensure appropriate action is taken for the individual to publicly disclose the conflict, for the individual to recuse him or herself from the discussion, vote or room as appropriate and to ensure the disclosure and action is documented in the minutes of the meeting. |
| Form 990, Part VI, Section B, Line 15a | Compensation Process Annually, The American Diabetes Association Principal Officers Chair of the Board President, Medicine Science President, Health Care Education and Secretary/Treasurer are responsible for establishing executive compensation consistent with the guidelines approved by the Compensation Committee. The Principal Officers of the Association use a Compensation Committee, compensation studies and an in dependent consultant to establish the compensation of the Chief Executive Officer and other Key employees. The Chief Executive Officer is responsible for the individual performance evaluations of staff officers and key employees, and establishes the total compensation for key employees subject to the guidelines established by the Executive Compensation Committee. The Executive Compensation Committee develops guidelines for the key employee executive positions listed below following the process described in the IRS intermediate sanctions rules when determining compensation. Specifically, the Committee 1 Is composed entirely of non-employee volunteer leaders who have no familial, business or significant personal relationships with the American Diabetes Association or its executives 2 Assesses the short-term and long-term contribution and performance of CEO and other senior executive employees in meeting very definitive and quantifiable objectives focused on the Associations mission success 3 Engages an independent compensation consulting firm to compile appropriate comparability data including compensation market information for peers with whom the American Diabetes Association competes for executive talent. 4 The Committee reviews this data in detail for all elements of each executives total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executives hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executives entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions 5 Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting These minutes are reviewed, revised if necessary and approved at the following meeting of the Executive Compensation Committee. The process described above was used to establish compensation for the following positions Chief Executive Officer, Chief Field Development Officer, Chief Financial Officer, Chief Medical Officer, Chief Revenue Officer, Executive Vice President of Government Affairs Advocacy, Senior Vice President and Chief Technology Officer, Senior Vice President of Human Resources, Senior Vice President of Marketing Communications. The total compensation of executives at the American Diabetes Association is specifically designed to attract and retain the highest qualified executive talent to fulfill the critically important mission to prevent and cure diabetes and to improve the lives of all people affected by diabetes. |
| Form 990, Part VI, Section C, Line 17 | Filing Jurisdiction Registration Number Alabama-AL97-256, Alaska-N/A, Arizona-10145, Arkansas-N/A, California-CT81471, Colorado-2002-3003670, Connecticut-5084, District of Columbia-981855, Florida-CH1618, Georgia-CH-001422, Hawaii-N/A, Illinois-CO 01-025537, Indiana-000103829-000, Kansas- 177-257-3SO, Kentucky-45, Louisiana-N/A, Maine- CO-1247, Maryland-102, Massachusetts-029317, Michigan-MICS 10326, Minnesota-N/A, Mississippi- 100000294, Missouri- CO-021-87, New Hampshire-5006, New Jersey- CH-0581900, New Mexico-N/A, New York- 1/30/1965, North Carolina- SL000618, North Dakota-7894, Ohio- 01-0239, Oklahoma- N/A, Oregon- 16402, Pennsylvania- No. 21, Rhode Island-95-233, South Carolina-641, Tennessee-5104, Utah- 6536093-Char, Virginia-N/A, Washington-7664, West Virginia-N/A, Wisconsin- 3020-800. |
| Form 990, Part VI, Section C, Line 19 | The following information is available on the American Diabetes Associations website http//www.diabetes.org Board of Directors, Audited Consolidated Financial Statements, Latest 990 filed, Whistleblower policy. Available subject to request to the American Diabetes Association Legal Affairs department are the following Current Bylaws, Articles of Incorporation, Conflict of Interest Policy. |
| Form 990, Part VII, Section A, Line 1a1 | The Chief Executive Officer of the Association is a non-voting member of the Board of Directors. |
| Form 990, Part VI, Section A, Line 4 | The bylaws of the American Diabetes Association were revised in 2020. Changes to the bylaws include 1 Directors required to serve on at least one bylaws or standing committee, 2 Number of at-large directors reduced from six to five, 3 Board reduced to not more than 13 elected directors, 4 Board Development Committee and Executive Compensation Committee combined to form Talent, Composition Board Development Committee, 5 Audit Committee changed to Audit Governance Committee, and 6 Three new standing committees formed - Advocacy Committee, Fundraising Committee and Council for Medicine, Education, Science and Healthcare. |
| Form 990, Part VI, Section A, Line 9 | Employment term for Robert Gabbay, Chief Scientific and Medical Officer, started on July 1, 2020. Employment term for Eloise Scavella, Chief Operating and Strategy Officer, ended on October 30, 2020.Employment term for John Agos, Chief Strategic Development Officer, ended on July 1, 2020. Employment term for Charles Henderson, Chief Development Officer, started on January 6, 2020. Employment term for Jacqueline Sebany, Chief Marketing and Digital Officer, started on January 21, 2020. |
| Software ID: | 20011406 |
| Software Version: | 20.0.2.0 |