TY 2021 Form 990

(A) Name and title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)
(1) CATHERINE C MCLOUD...................................................................... CHAIR	8.00 ................. 0.00	X
(2) JOHN S WEINBERG...................................................................... EXECUTIVE VICE CHAIR	6.50 ................. 0.00	X
(3) LOUIS A DEFALCO...................................................................... VICE CHAIR	5.00 ................. 0.00	X
(4) ROBERT H NIEHAUS...................................................................... VICE CHAIR	5.00 ................. 0.00	X
(5) ERIC R OLSON PHD...................................................................... VICE CHAIR	5.00 ................. 0.00	X
(6) THEODORE J TORPHY PHD...................................................................... VICE CHAIR	5.00 ................. 0.00	X
(7) DAVID A MOUNT...................................................................... TREASURER	3.00 ................. 0.00	X
(8) RICHARD J GRAY ESQ...................................................................... TRUSTEE	3.00 ................. 0.00	X
(9) CAROLE B GRIEGO MD...................................................................... TRUSTEE	3.00 ................. 0.00	X
(10) SUSAN L HOOK...................................................................... TRUSTEE (UNTIL 5/2021)	3.00 ................. 0.00	X
(11) CHAD T MOORE...................................................................... TRUSTEE	3.00 ................. 0.00	X
(12) DOMINIC J CARUSO...................................................................... TRUSTEE (AS OF 5/2021)	3.00 ................. 0.00	X
(13) PAUL A MOTENKO...................................................................... TRUSTEE (AS OF 5/2021)	3.00 ................. 0.00	X
(14) TERESA L ELDER...................................................................... TRUSTEE	3.00 ................. 0.00	X
(15) STEVEN SHAK MD...................................................................... TRUSTEE	3.00 ................. 0.00	X
(16) PAUL W WHETSELL...................................................................... TRUSTEE	3.00 ................. 0.00	X
(17) KC BRYAN WHITE...................................................................... TRUSTEE	3.00 ................. 0.00	X

(A) Name and title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)	(E) Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC)	(F) Estimated amount of other compensation from the organization and related organizations
(18) JESSICA H BOYD MD........................................................................ TRUSTEE	3.00 .......................0.00	X					0	0
(19) MICHAEL P BOYLE MD........................................................................ PRESIDENT & CEO	40.00 .......................0.00	X	X				744,103	447,890
(20) MARC S GINSKY........................................................................ COO (UNTIL 8/2021)	40.00 .......................1.00		X				1,245,811	68,450
(21) IRENA BARISIC AS OF 62021........................................................................ EVP, CFAO & ASST SEC. & ASST TRSR	40.00 .......................1.00		X				346,943	29,835
(22) VERA H TWIGG........................................................................ CFO (UNTIL 7/2021)	40.00 .......................1.00		X				616,739	110,081
(23) CHRIS GEGELYS........................................................................ CHIEF LEGAL OFFICER & SECRETARY	40.00 .......................1.00		X				465,159	120,691
(24) JACK MAHLER MD........................................................................ CHIEF INVESTMENT OFFICER	40.00 .......................0.00			X			1,401,121	657,424
(25) BRUCE MARSHALL MD........................................................................ EVP & CHIEF MEDICAL OFFICER	40.00 .......................0.00			X			578,644	136,453
(26) WILLIAM SKACH MD........................................................................ EVP & CHIEF SCIENTIFIC OFFICER	40.00 .......................0.00			X			653,362	176,897
(27) JOHN P CLANCY MD........................................................................ VP, CLINICAL RESEARCH	40.00 .......................0.00			X			485,245	122,358
(28) EARL LEE........................................................................ MANAGING DIRECTOR, INVESTMENTS	40.00 .......................0.00				X		724,883	190,323
(29) ERIC KOEHRSEN........................................................................ MANAGING DIRECTOR, INVESTMENTS	40.00 .......................0.00				X		796,581	216,856
(30) MAUREEN FRASER........................................................................ SVP, FIELD MNGMT (UNTIL 5/2021)	40.00 .......................0.00				X		485,415	75,342
(31) GENTIANA AROVAS........................................................................ INVESTMENT OPERATIONS DIRECTOR	40.00 .......................0.00				X		467,489	117,105
(32) ANTHONY DURMOWICZ MD........................................................................ VP, CLINICAL DEVELOPMENT	40.00 .......................0.00				X		485,873	80,791
(33) PRESTON CAMPBELL MD........................................................................ FORMER CEO & STRATEGIC ADVISOR	40.00 .......................0.00					X	399,495	201,352

(A) Name and business address	(B) Description of services	(C) Compensation
PIONEERING MEDICINE (CF) LLC 55 CAMBRIDGE PARKWAY STE 800E CAMBRIDGE,MA02142	CONTRACTED RESEARCH	12,000,000
VERTEX PHARMACEUTICALS INC 50 NORTHERN AVE BOSTON,MA02210	CONTRACTED RESEARCH	10,000,000
ICAGEN INC 4222 EMPEROR BLVD SUITE 350 DURHAM,NC27703	CONTRACTED RESEARCH	3,811,979
MICROBION CORPORATION 1102 WEST BABCOCK STREET SUITE B BOZEMAN,MT59715	CONTRACTED RESEARCH	3,395,005
MATINAS BIOPHARMA INC 1545 ROUTE 206 SOUTH SUITE 302 BEDMINSTER,NJ07921	CONTRACTED RESEARCH	3,176,058
2 Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization 89

- TIN:

SCHEDULE A
(Form 990)

Department of the Treasury
Internal Revenue Service

Public Charity Status and Public Support

Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
right arrow

Attach to Form 990 or Form 990-EZ.
right arrow

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2021

Open to Public
Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Reason for Public Charity Status (All organizations must complete this part.) See instructions.

The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)

A church, convention of churches, or association of churches described in section 170(b)(1)(A)(i).

A school described in section 170(b)(1)(A)(ii). (Attach Schedule E (Form 990).)

A hospital or a cooperative hospital service organization described in section 170(b)(1)(A)(iii).

A medical research organization operated in conjunction with a hospital described in section 170(b)(1)(A)(iii). Enter the hospital's name, city, and state:

An organization operated for the benefit of a college or university owned or operated by a governmental unit described in section 170(b)(1)(A)(iv). (Complete Part II.)

A federal, state, or local government or governmental unit described in section 170(b)(1)(A)(v).

An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi). (Complete Part II.)

A community trust described in section 170(b)(1)(A)(vi). (Complete Part II.)

An agricultural research organization described in 170(b)(1)(A)(ix) operated in conjunction with a land-grant college or university or a non-land grant college of agriculture. See instructions. Enter the name, city, and state of the college or university:

An organization that normally receives: (1) more than 33 1/3% of its support from contributions, membership fees, and gross receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 33 1/3% of its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)

An organization organized and operated exclusively to test for public safety. See section 509(a)(4).

An organization organized and operated exclusively for the benefit of, to perform the functions of, or to carry out the purposes of one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2). See section 509(a)(3). Check the box on lines 12a through 12d that describes the type of supporting organization and complete lines 12e, 12f, and 12g.

Type I. A supporting organization operated, supervised, or controlled by its supported organization(s), typically by giving the supported organization(s) the power to regularly appoint or elect a majority of the directors or trustees of the supporting organization. You must complete Part IV, Sections A and B.

Type II. A supporting organization supervised or controlled in connection with its supported organization(s), by having control or management of the supporting organization vested in the same persons that control or manage the supported organization(s). You must complete Part IV, Sections A and C.

Type III functionally integrated. A supporting organization operated in connection with, and functionally integrated with, its supported organization(s) (see instructions). You must complete Part IV, Sections A, D, and E.

Type III non-functionally integrated. A supporting organization operated in connection with its supported organization(s) that is not functionally integrated. The organization generally must satisfy a distribution requirement and an attentiveness requirement (see instructions). You must complete Part IV, Sections A and D, and Part V.

Check this box if the organization received a written determination from the IRS that it is a Type I, Type II, Type III functionally integrated, or Type III non-functionally integrated supporting organization.

Enter the number of supported organizations ...............................

Provide the following information about the supported organization(s).

(i) Name of supported organization	(ii) EIN	(iv) Is the organization listed in your governing document?		(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)
(i) Name of supported organization	(ii) EIN	Yes	No	(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)


Total

For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.

Cat. No. 11285F

Schedule A (Form 990) 2021

Page 2

Part II

Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2017	(b) 2018	(c) 2019	(d) 2020	(e) 2021	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") ..	110,650,273	108,058,591	108,894,890	73,199,355	86,536,159	487,339,268
2	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....
3	The value of services or facilities furnished by a governmental unit to the organization without charge..
4	Total. Add lines 1 through 3	110,650,273	108,058,591	108,894,890	73,199,355	86,536,159	487,339,268
5	The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f) ..
6	Public support. Subtract line 5 from line 4.						487,339,268

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2017	(b) 2018	(c) 2019	(d) 2020	(e) 2021	(f) Total
7	Amounts from line 4..	110,650,273	108,058,591	108,894,890	73,199,355	86,536,159	487,339,268
8	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...	67,686,719	66,681,682	95,519,254	95,019,118	74,598,441	399,505,214
9	Net income from unrelated business activities, whether or not the business is regularly carried on..
10	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.)..	15,116,982	15,369,965	15,976,419	9,386,514	6,491,042	62,340,922
11	Total support. Add lines 7 through 10						949,185,404

Gross receipts from related activities, etc. (see instructions) ..................

58,184,885

First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here ........................................ right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2021 (line 6, column (f) divided by line 11, column (f)) .........

51.340 %

Public support percentage for 2020 Schedule A, Part II, line 14 ...............

52.990 %

16a

33 1/3% support test—2021. If the organization did not check the box on line 13, and line 14 is 33 1/3 % or more, check this box
and stop here. The organization qualifies as a publicly supported organization ....................... right arrow

33 1/3% support test—2020. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization ..................... right arrow

17a

10%-facts-and-circumstances test—2021. If the organization did not check a box on line 13, 16a, or 16b, and line 14
is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain
in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported
organization ..................................................... right arrow

10%-facts-and-circumstances test—2020. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line
15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here.
Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly
supported organization ................................................ right arrow

Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow

Schedule A (Form 990) 2021

Page 3

Part III

Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2017	(b) 2018	(c) 2019	(d) 2020	(e) 2021	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2	Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose
3	Gross receipts from activities that are not an unrelated trade or business under section 513 .....
4	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5	The value of services or facilities furnished by a governmental unit to the organization without charge
6	Total. Add lines 1 through 5
7a	Amounts included on lines 1, 2, and 3 received from disqualified persons
b	Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c	Add lines 7a and 7b..
8	Public support. (Subtract line 7c from line 6.)

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2017	(b) 2018	(c) 2019	(d) 2020	(e) 2021	(f) Total
9	Amounts from line 6...
10a	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b	Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c	Add lines 10a and 10b.
11	Net income from unrelated business activities not included on line 10b, whether or not the business is regularly carried on.
12	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..
13	Total support. (Add lines 9, 10c, 11, and 12.)..

First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization,
check this box and stop here............................................. right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2021 (line 8, column (f) divided by line 13, column (f)) .........

Public support percentage from 2020 Schedule A, Part III, line 15 ...............

Section D. Computation of Investment Income Percentage

Investment income percentage for 2021 (line 10c, column (f) divided by line 13, column (f)) ......

Investment income percentage from 2020 Schedule A, Part III, line 17 .............

19a

331/3% support tests—2021. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ....... right arrow

33 1/3% support tests—2020. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization .... right arrow

Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions .... right arrow

Schedule A (Form 990) 2021

Page 4

Part IV

Supporting Organizations

(Complete only if you checked a box on line 12 of Part I. If you checked box 12a, of Part I, complete Sections A and B. If you checked box 12b, of Part I, complete Sections A and C. If you checked box 12c, of Part I, complete Sections A, D, and E. If you checked box12d, of Part I, complete Sections A and D, and complete Part V.)

Section A. All Supporting Organizations

Yes

Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.

Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).

Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer lines 3b and 3c below.

Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.

Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.

Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked box 12a or 12b in Part I, answer lines 4b and 4c below.

Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.

Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.

Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer lines 5b and 5c below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).

Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?

Substitutions only. Was the substitution the result of an event beyond the organization's control?

Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.

Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990) .

Did the organization make a loan to a disqualified person (as defined in section 4958) not described on line 7? If “Yes,” complete Part I of Schedule L (Form 990).

Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons, as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.

Did one or more disqualified persons (as defined on line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.

Did a disqualified person (as defined on line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.

10a

Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.

10a

Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).

10b

Schedule A (Form 990) 2021

Page 5

Part IV

Supporting Organizations (continued)

Yes

Has the organization accepted a gift or contribution from any of the following persons?

A person who directly or indirectly controls, either alone or together with persons described on lines 11b and 11c below, the governing body of a supported organization?

11a

A family member of a person described on 11a above?

11b

A 35% controlled entity of a person described on line 11a or 11b above? If “Yes” to 11a, 11b, or 11c, provide detail in Part VI.

11c

Section B. Type I Supporting Organizations

Yes

Did the officers, directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.

Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.

Section C. Type II Supporting Organizations

Yes

Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).

Section D. All Type III Supporting Organizations

Yes

Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?

Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).

By reason of the relationship described in line 2 above, did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.

Section E. Type III Functionally-Integrated Supporting Organizations

Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):

The organization satisfied the Activities Test. Complete line 2 below.

The organization is the parent of each of its supported organizations. Complete line 3 below.

The organization supported a governmental entity. Describe in Part VI how you supported a government entity (see instructions)

Activities Test. Answer lines 2a and 2b below.

Yes

Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.

Did the activities described on line 2a, above constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.

Parent of Supported Organizations. Answer lines 3a and 3b below.

Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations?If "Yes" or "No", provide details in Part VI.

Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.

Schedule A (Form 990) 2021

Page 6

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations

Check here if the organization satisfied the Integral Part Test as a qualifying trust on Nov. 20, 1970 (explain in Part VI). See instructions. All other Type III non-functionally integrated supporting organizations must complete Sections A through E.

	Section A - Adjusted Net Income		(A) Prior Year	(B) Current Year (optional)
1	Net short-term capital gain	1
2	Recoveries of prior-year distributions	2
3	Other gross income (see instructions)	3
4	Add lines 1 through 3	4
5	Depreciation and depletion	5
6	Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions)	6
7	Other expenses (see instructions)	7
8	Adjusted Net Income (subtract lines 5, 6 and 7 from line 4)	8

	Section B - Minimum Asset Amount		(A) Prior Year	(B) Current Year (optional)
1	Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year):	1
a	Average monthly value of securities	1a
b	Average monthly cash balances	1b
c	Fair market value of other non-exempt-use assets	1c
d	Total (add lines 1a, 1b, and 1c)	1d
e	Discount claimed for blockage or other factors (explain in detail in Part VI):
2	Acquisition indebtedness applicable to non-exempt use assets	2
3	Subtract line 2 from line 1d	3
4	Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions).	4
5	Net value of non-exempt-use assets (subtract line 4 from line 3)	5
6	Multiply line 5 by 0.035	6
7	Recoveries of prior-year distributions	7
8	Minimum Asset Amount (add line 7 to line 6)	8

	Section C - Distributable Amount		Current Year
1	Adjusted net income for prior year (from Section A, line 8, Column A)	1
2	Enter 85% of line 1	2
3	Minimum asset amount for prior year (from Section B, line 8, Column A)	3
4	Enter greater of line 2 or line 3	4
5	Income tax imposed in prior year	5
6	Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions)	6

Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (see instructions)

Schedule A (Form 990) 2021

Page 7

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)

Section D - Distributions		Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes	1
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity	2
3 Administrative expenses paid to accomplish exempt purposes of supported organizations	3
4 Amounts paid to acquire exempt-use assets	4
5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI)	5
6 Other distributions (describe in Part VI). See instructions	6
7Total annual distributions. Add lines 1 through 6.	7
8 Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions	8
9 Distributable amount for 2021 from Section C, line 6	9
10 Line 8 amount divided by Line 9 amount	10

Section E - Distribution Allocations (see instructions)		(i) Excess Distributions	(ii) Underdistributions Pre-2021	(iii) Distributable Amount for 2021
1 Distributable amount for 2021 from Section C, line 6
2 Underdistributions, if any, for years prior to 2021 (reasonable cause required-- explain in Part VI). See instructions.
3 Excess distributions carryover, if any, to 2021:
a From 2016.......
b From 2017.......
c From 2018.......
d From 2019.......
e From 2020.......
fTotal of lines 3a through e
g Applied to underdistributions of prior years
h Applied to 2021 distributable amount
i Carryover from 2016 not applied (see instructions)
j Remainder. Subtract lines 3g, 3h, and 3i from line 3f.
4Distributions for 2021 from Section D, line 7:
$
a Applied to underdistributions of prior years
b Applied to 2021 distributable amount
c Remainder. Subtract lines 4a and 4b from line 4.
5 Remaining underdistributions for years prior to 2021, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions.
6 Remaining underdistributions for 2021. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions.
7 Excess distributions carryover to 2022. Add lines 3j and 4c.
8 Breakdown of line 7:
a Excess from 2017.....
b Excess from 2018.....
c Excess from 2019.....
d Excess from 2020.....
e Excess from 2021.....

Schedule A (Form 990) (2021)

Schedule A (Form 990) 2021

Page 8

Part VI

Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).

Facts And Circumstances Test

Return Reference	Explanation
SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:	REIMBURSEMENT PROCEEDS - 2017 AMOUNT: $ 412,777. 2018 AMOUNT: $ 467,265. 2019 AMOUNT: $ 29,624. 2020 AMOUNT: $ 2,889,947. 2021 AMOUNT: $ 0. EMPLOYEE RETENTION CREDIT - 2020 AMOUNT: $ 2,653,151. 2021 AMOUNT: $ 3,032,541. GROSS FUNDRAISING REVENUE - 2017 AMOUNT: $ 14,552,162. 2018 AMOUNT: $ 14,774,450. 2019 AMOUNT: $ 15,811,603. 2020 AMOUNT: $ 3,754,416. 2021 AMOUNT: $ 3,443,701. GROSS GAMING REVENUE - 2017 AMOUNT: $ 152,043. 2018 AMOUNT: $ 128,250. 2019 AMOUNT: $ 135,192. 2020 AMOUNT: $ 89,000. 2021 AMOUNT: $ 14,800.
PART II, LINE 12	GROSS RECEIPTS FROM RELATED ACTIVITIES THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATION RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. REIMBURSEMENTS FOR DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE RELATED COSTS ARE REPORTED ON LINE 12.

Return Reference

Explanation

SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:

REIMBURSEMENT PROCEEDS - 2017 AMOUNT: $ 412,777. 2018 AMOUNT: $ 467,265. 2019 AMOUNT: $ 29,624. 2020 AMOUNT: $ 2,889,947. 2021 AMOUNT: $ 0. EMPLOYEE RETENTION CREDIT - 2020 AMOUNT: $ 2,653,151. 2021 AMOUNT: $ 3,032,541. GROSS FUNDRAISING REVENUE - 2017 AMOUNT: $ 14,552,162. 2018 AMOUNT: $ 14,774,450. 2019 AMOUNT: $ 15,811,603. 2020 AMOUNT: $ 3,754,416. 2021 AMOUNT: $ 3,443,701. GROSS GAMING REVENUE - 2017 AMOUNT: $ 152,043. 2018 AMOUNT: $ 128,250. 2019 AMOUNT: $ 135,192. 2020 AMOUNT: $ 89,000. 2021 AMOUNT: $ 14,800.

PART II, LINE 12

GROSS RECEIPTS FROM RELATED ACTIVITIES THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATION RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. REIMBURSEMENTS FOR DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE RELATED COSTS ARE REPORTED ON LINE 12.

Schedule A (Form 990) 2021

Additional Data

Software ID:
Software Version:

- TIN:

Schedule B
(Form 990)

Department of the Treasury
Internal Revenue Service

Schedule of Contributors

Attach to Form 990, 990-EZ, or 990-PF.

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2021

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Organization type (check one):

Filers of:

Section:

Form 990 or 990-EZ

501(c)( ) (enter number) organization

4947(a)(1) nonexempt charitable trust not treated as a private foundation

527 political organization

Form 990-PF

501(c)(3) exempt private foundation

4947(a)(1) nonexempt charitable trust treated as a private foundation

501(c)(3) taxable private foundation

Check if your organization is covered by the General Rule or a Special Rule.
Note: Only a section 501(c)(7), (8), or (10) organization can check boxes for both the General Rule and a Special Rule. See instructions.

General Rule

For an organization filing Form 990, 990-EZ, or 990-PF that received, during the year, contributions totaling $5,000 or more (in money or other property) from any one contributor. Complete Parts I and II. See instructions for determining a contributor's total contributions.

Special Rules

For an organization described in section 501(c)(3) filing Form 990 or 990-EZ that met the 33¹/3% support test of the regulations
under sections 509(a)(1) and 170(b)(1)(A)(vi), that checked Schedule A (Form 990 or 990-EZ), Part II, line 13, 16a, or 16b, and that received from any one contributor, during the year, total contributions of the greater of (1) $5,000 or (2) 2% of the amount on (i) Form 990, Part VIII, line 1h, or (ii) Form 990-EZ, line 1. Complete Parts I and II.

For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, total contributions of more than $1,000 exclusively for religious, charitable, scientific, literary, or educational purposes, or for the prevention of cruelty to children or animals. Complete Parts I, II, and III.

For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, contributions exclusively for religious, charitable, etc., purposes, but no such contributions totaled more than $1,000. If this box is checked, enter here the total contributions that were received during the year for an exclusively religious, charitable, etc., purpose. Don't complete any of the parts unless the General Rule applies to this organization because it received nonexclusively religious, charitable, etc., contributions totaling $5,000 or more during the year ......... Arrow Bullet

Caution: An organization that isn't covered by the General Rule and/or the Special Rules doesn't file Schedule B (Form 990,
990-EZ, or 990-PF), but it must answer “No” on Part IV, line 2, of its Form 990; or check the box on line H of its Form 990-EZ
or on its Form 990PF, Part I, line 2, to certify that it doesn't meet the filing requirements of Schedule B (Form 990,
990-EZ, or 990-PF).

For Paperwork Reduction Act Notice, see the Instructions
for Form 990, 990-EZ, or 990-PF.

Cat. No. 30613XSchedule B (Form 990) (2021)

Schedule B (Form 990) (2021) Page 2

Name of organization CYSTIC FIBROSIS FOUNDATION

Part I Contributors	Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
RESTRICTED	,	$ RESTRICTED	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
Schedule B (Form 990) (2021)

Schedule B (Form 990) (2021)

Page 3

Name of organization CYSTIC FIBROSIS FOUNDATION		Employer identification number 13-1930701

Part II	Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
Schedule B (Form 990) (2021)

Schedule B (Form 990) (2021)

Page 4


Name of organization CYSTIC FIBROSIS FOUNDATION			Employer identification number 13-1930701
Part III Exclusively religious, charitable, etc., contributions to organizations described in section 501(c)(7), (8), or (10) that total more than $1,000 for the year from any one contributor. Complete columns (a) through (e) and the following line entry. For organizations completing Part III, enter the total of exclusively religious, charitable, etc., contributions of $1,000 or less for the year. (Enter this information once. See instructions.) $ Use duplicate copies of Part III if additional space is needed.

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

Schedule B (Form 990) (2021)

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE C
(Form 990)

Department of the Treasury
Internal Revenue Service

Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527

SchCMd Bullet

Complete if the organization is described below. SchCMd Bullet

Attach to Form 990 or Form 990-EZ.
SchCMd Bullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2021

Open to Public
Inspection

If the organization answered "Yes" on Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet

Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet

Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet

Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" on Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet

Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet

Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" on Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet

Section 501(c)(4), (5), or (6) organizations: Complete Part III.

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I-A

Complete if the organization is exempt under section 501(c) or is a section 527 organization.

Provide a description of the organization’s direct and indirect political campaign activities in Part IV. See instructions for definition of “political campaign activities."

Political campaign activity expenditures. See instructions .................................................................... SchCMd Bullet

Volunteer hours for political campaign activities. See instructions ..................................................................

Part I-B

Complete if the organization is exempt under section 501(c)(3).

Enter the amount of any excise tax incurred by the organization under section 4955 ................................ SchCMd Bullet

Enter the amount of any excise tax incurred by organization managers under section 4955 ....................... SchCMd Bullet

If the organization incurred a section 4955 tax, did it file Form 4720 for this year? .........................................

Yes No

Was a correction made? ......................................................................................................................

Yes No

If "Yes," describe in Part IV.

Part I-C

Complete if the organization is exempt under section 501(c), except section 501(c)(3).

Enter the amount directly expended by the filing organization for section 527 exempt function activities ..... SchCMd Bullet

Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ............................................................................................................................ SchCMd Bullet

Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b........... SchCMd Bullet

Did the filing organization file Form 1120-POL for this year? ...................................................................

Yes No

Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.

(a) Name	(b) Address	(c) EIN	(d) Amount paid from filing organization's funds. If none, enter -0-.	(e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.
1
2
3
4
5
6

For Paperwork Reduction Act Notice, see the instructions for Form 990.

Cat. No. 50084S

Schedule C (Form 990) 2021

Page 2

Part II-A

Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).

A Check SchCMd Bullet

if the filing organization belongs to an affiliated group (and list in Part IV each affiliated group member's name, address, EIN, expenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet

if the filing organization checked box A and "limited control" provisions apply.

Limits on Lobbying Expenditures (The term "expenditures" means amounts paid or incurred.)		(b) Affiliated group totals
1a	Total lobbying expenditures to influence public opinion (grass roots lobbying) ......................
b	Total lobbying expenditures to influence a legislative body (direct lobbying) ........................
c	Total lobbying expenditures (add lines 1a and 1b) ............................................................
d	Other exempt purpose expenditures ...............................................................................
e	Total exempt purpose expenditures (add lines 1c and 1d) ..................................................
f	Lobbying nontaxable amount. Enter the amount from the following table in both columns.
	If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
	Not over $500,00020% of the amount on line 1e.
	Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
	Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
	Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
	Over $17,000,000$1,000,000.

g	Grassroots nontaxable amount (enter 25% of line 1f) .................................................
h	Subtract line 1g from line 1a. If zero or less, enter -0-. ................................................
i	Subtract line 1f from line 1c. If zero or less, enter -0-. ................................................
j	If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting section 4911 tax for this year? ...................................................................................................................	Yes No

4-Year Averaging Period Under Section 501(h) (Some organizations that made a section 501(h) election do not have to complete all of the five columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
	Calendar year (or fiscal year beginning in)	(a) 2018	(b) 2019	(c) 2020	(d) 2021	(e) Total

2a	Lobbying nontaxable amount

b	Lobbying ceiling amount (150% of line 2a, column(e))

c	Total lobbying expenditures

d	Grassroots nontaxable amount

e	Grassroots ceiling amount (150% of line 2d, column (e))

f	Grassroots lobbying expenditures

Schedule C (Form 990) 2021

Page 3

Part II-B

Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).

For each "Yes" response on lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.

(a)

Yes|No

(b)

Amount

During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:

Volunteers? ...........................................................................................................

Yes

Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ........

Yes

Media advertisements? ...................................................................................................

Mailings to members, legislators, or the public? .............................................................................

Yes

53,545

Publications, or published or broadcast statements? ...........................................................

Yes

2,264

Grants to other organizations for lobbying purposes? ..........................................................

Direct contact with legislators, their staffs, government officials, or a legislative body? .......................

Yes

1,003,055

Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ..................

Other activities? ...................................................................................................................

Yes

8,269

Total. Add lines 1c through 1i ....................................................................................................

1,067,133

Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....

If "Yes," enter the amount of any tax incurred under section 4912 ...........................................

If "Yes," enter the amount of any tax incurred by organization managers under section 4912 ...................

If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? ........................

Part III-A

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).

Yes

Were substantially all (90% or more) dues received nondeductible by members? ...............................................

Did the organization make only in-house lobbying expenditures of $2,000 or less? ............................................

Did the organization agree to carry over lobbying and political expenditures from the prior year? .................................

Part III-B

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."

Dues, assessments and similar amounts from members ......................................................................

Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political expenses for which the section 527(f) tax was paid).

Current year .............................................................................................................................

Carryover from last year ............................................................................................................

Total ...........................................................................................................................................

Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .

If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ......................................................................................................................

Taxable amount of lobbying and political expenditures. See Instructions .........................................

Part IV

Supplemental Information

Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.

Return Reference	Explanation
PART II-B, LINE 1:	LOBBYING ACTIVITY THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.

Return Reference

Explanation

PART II-B, LINE 1:

LOBBYING ACTIVITY THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.

Schedule C (Form 990) 2021

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE D
(Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Financial Statements

Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
SchDMd Bullet

Attach to Form 990.
SchDMd Bullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2021

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.

		(a) Donor advised funds	(b) Funds and other accounts
1	Total number at end of year .........
2	Aggregate value of contributions to (during year)
3	Aggregate value of grants from (during year)
4	Aggregate value at end of year ........

Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............

Yes No

Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................

Yes No

Part II

Conservation Easements.
Complete if the organization answered "Yes" on Form 990, Part IV, line 7.

Purpose(s) of conservation easements held by the organization (check all that apply).

Preservation of land for public use (e.g., recreation or education) Preservation of an historically important land area

Protection of natural habitat Preservation of a certified historic structure

Preservation of open space

Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.


a	Total number of conservation easements ......................	2a
b	Total acreage restricted by conservation easements ....................	2b
c	Number of conservation easements on a certified historic structure included in (a) .....	2c
d	Number of conservation easements included in (c) acquired after 7/25/06, and not on a historic structure listed in the National Register ...	2d

Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year SchDMd Bullet

Number of states where property subject to conservation easement is located SchDMd Bullet

Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............

Yes No

Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet

Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet

Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................

Yes No

In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.

If the organization elected, as permitted under FASB ASC 958, not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.

If the organization elected, as permitted under FASB ASC 958, to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:

(i)

Revenue included on Form 990, Part VIII, line 1 ......................... SchDMd Bullet

(ii)

Assets included in Form 990, Part X ............................... SchDMd Bullet

If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under FASB ASC 958 relating to these items:

Revenue included on Form 990, Part VIII, line 1 .......................... SchDMd Bullet

Assets included in Form 990, Part X ............................... SchDMd Bullet

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 52283D

Schedule D (Form 990) 2021

Page 2

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)

Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):

Public exhibition

Loan or exchange programs

Scholarly research

Other

Preservation for future generations

Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.

During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...

Yes No

Part IV

Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.

Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................

Yes No


b	If "Yes," explain the arrangement in Part XIII and complete the following table:		Amount
c	Beginning balance .............................	1c
d	Additions during the year ............................	1d
e	Distributions during the year ..........................	1e
f	Ending balance ................................	1f

Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...

Yes No

If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....

Part V

Endowment Funds.
Complete if the organization answered "Yes" on Form 990, Part IV, line 10.

		(a) Current year	(b) Prior year	(c) Two years back	(d) Three years back	(e) Four years back

1a	Beginning of year balance ....
b	Contributions ...
c	Net investment earnings, gains, and losses
d	Grants or scholarships ...
e	Other expenditures for facilities and programs ...
f	Administrative expenses ....
g	End of year balance ......

Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:

Board designated or quasi-endowment SchDMd Bullet

Permanent endowment SchDMd Bullet

Term endowment SchDMd Bullet

The percentages on lines 2a, 2b, and 2c should equal 100%.

Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes

(i) Unrelated organizations .................

3a(i)

(ii) Related organizations .................

3a(ii)

If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........

Describe in Part XIII the intended uses of the organization's endowment funds.

Part VI

Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.

Description of property		(a) Cost or other basis (investment)	(b) Cost or other basis (other)	(c) Accumulated depreciation	(d) Book value

1a	Land .....
b	Buildings ....
c	Leasehold improvements	5,525,259	2,324,645	3,200,614
d	Equipment ....	20,362,913	15,922,073	4,440,840
e	Other .....
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).)..				7,641,454

Schedule D (Form 990) 2021

Page 3

Part VII

Investments - Other Securities.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.

(a) Description of security or category (including name of security)	(b) Book value	(c) Method of valuation: Cost or end-of-year market value
(1) Financial derivatives.........
(2) Closely-held equity interests........
(3) Other (A) PVT EQTY & OTHR ILLIQUID	1,020,463,424	F
(B) GLOBAL PUBLIC EQUITY	427,949,533	F
(C) ABSOLUTE RETURN	122,285,560	F
(D) PERPETUAL TRUSTS & OTHER	5,579,643	F
(D)
(E)
(F)
(G)
(H)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)	1,576,278,160

Part VIII

Investments - Program Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.

(a) Description of investment	(b) Book value	(c) Method of valuation: Cost or end-of-year market value

(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)

Part IX

Other Assets.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.

(a) Description				(b) Book value

(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........

Part X

Other Liabilities.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.

1.(a) Description of liability	(b) Book value
(1) Federal income taxes

(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII

Schedule D (Form 990) 2021

Page 4

Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total revenue, gains, and other support per audited financial statements .......			1	682,712,678
2	Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a	Net unrealized gains (losses) on investments ....	2a	276,010,931
b	Donated services and use of facilities .........	2b
c	Recoveries of prior year grants ...........	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d .....................			2e	276,010,931
3	Subtract line 2e from line 1..................			3	406,701,747
4	Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b .	4a	10,535,804
b	Other (Describe in Part XIII.) ...........	4b
c	Add lines 4a and 4b....................			4c	10,535,804
5	Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ......			5	417,237,551

Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total expenses and losses per audited financial statements ...........			1	365,075,382
2	Amounts included on line 1 but not on Form 990, Part IX, line 25:
a	Donated services and use of facilities .........	2a
b	Prior year adjustments ............	2b
c	Other losses ................	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d....................			2e	0
3	Subtract line 2e from line 1...................			3	365,075,382
4	Amounts included on Form 990, Part IX, line 25, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b ..	4a	10,535,804
b	Other (Describe in Part XIII.) ............	4b
c	Add lines 4a and 4b.....................			4c	10,535,804
5	Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ......			5	375,611,186

Part XIII

Supplemental Information

Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.

Return Reference

Explanation

PART X, LINE 2:

THE FOUNDATION IS A NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2021 AND 2020. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.

Schedule D (Form 990) 2021

Additional Data

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Software Version:

- TIN:

SCHEDULE F(Form 990)

Department of the Treasury
Internal Revenue Service

Statement of Activities Outside the United States

Complete if the organization answered "Yes" to Form 990, Part IV, line 14b, 15, or 16. Right pointing arrow large image

Attach to Form 990. Right pointing arrow large image

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2021

Open to Public Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

General Information on Activities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 14b.

For grantmakers. Does the organization maintain records to substantiate the amount of its grants and

other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used

to award the grants or assistance? . . . . . . . . . . . . . . . . . . . . . . . . .

Yes

For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.

Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)

(a) Region		(b) Number of offices in the region	(c) Number of employees, agents, and independent contractors in the region	(d) Activities conducted in region (by type) (such as, fundraising, program services, investments, grants to recipients located in the region)	(e) If activity listed in (d) is a program service, describe specific type of service(s) in the region	(f) Total expenditures for and investments in the region
	EUROPE	0	0	GRANTMAKING	NONE	6,548,200
	NORTH AMERICA	0	0	GRANTMAKING	NONE	4,243,804
	EAST ASIA AND THE PACIFIC	0	0	GRANTMAKING	NONE	2,971,365
	MIDDLE EAST AND NORTH AFRICA	0	0	GRANTMAKING	NONE	274,002
	CENTRAL AMERICA & CARIBBEAN	0	0	INVESTMENTS		888,060,000
	EAST ASIA & PACIFIC	0	0	INVESTMENTS		183,767,000
	EUROPE	0	0	INVESTMENTS		387,207,000
	NORTH AMERICA	0	0	INVESTMENTS		68,076,000
	MIDDLE EAST AND NORTH AFRICA	0	0	INVESTMENTS		2,195,000
	NORTH AMERICA	0	0	PROGRAM SERVICES	CONTRACTED RESEARCH	1,255,502
	MIDDLE EAST AND NORTH AFRICA	0	0	PROGRAM SERVICES	CONTRACTED RESEARCH	688,716
	EUROPE	0	0	PROGRAM SERVICES	CONTRACTED RESEARCH	495,704
	EAST ASIA AND THE PACIFIC	0	0	PROGRAM SERVICES	CONTRACTED RESEARCH	200,000
	SOUTH ASIA	0	0	PROGRAM SERVICES	CONTRACTED RESEARCH	175,000



3a	Sub-total ....	0	0			1,541,147,371
b	Total from continuation sheets to Part I ...	0	0			5,009,922
c	Totals (add lines 3a and 3b)	0	0			1,546,157,293

For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) 2021

Schedule F (Form 990) 2021

Page 2

Part II

Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.

(c) Region	(d) Purpose of grant	(e) Amount of cash grant	(f) Manner of cash disbursement
EUROPE	RESEARCH	144,701	WIRE
NORTH AMERICA	CLINICAL RESEARCH STUDY	488,600	WIRE
NORTH AMERICA	THERAPEUTICS DISCOVERY RESEARCH	64,864	WIRE
EUROPE	CLINICAL RESEARCH CENTER	443,264	WIRE
EUROPE	QUALITY IMPROVEMENT	819,368	WIRE
EUROPE	THERAPEUTICS DISCOVERY RESEARCH	199,876	WIRE
EUROPE	CLINICAL RESEARCH CENTER	1,410,608	WIRE
EUROPE	PILOT STUDY	56,000	WIRE
EUROPE	PILOT STUDY	109,749	WIRE
EUROPE	RESEARCH	280,000	WIRE
EUROPE	CLINICAL RESEARCH STUDY	414,719	WIRE
EUROPE	RESEARCH	132,300	WIRE
EUROPE	RESEARCH	139,948	WIRE
EUROPE	CLINICAL RESEARCH STUDY	102,810	WIRE
NORTH AMERICA	RESEARCH	692,840	WIRE
EUROPE	PILOT STUDY	55,999	WIRE
MIDDLE EAST AND NORTH AFRICA	CLINICAL RESEARCH	52,920	WIRE
EUROPE	RESEARCH	140,000	WIRE
EUROPE	ADHERENCE	223,023	WIRE
EUROPE	THERAPEUTICS DISCOVERY RESEARCH	220,018	WIRE
EAST ASIA AND THE PACIFIC	RESEARCH	139,581	WIRE
NORTH AMERICA	CLINICAL RESEARCH	515,675	WIRE
NORTH AMERICA	CLINICAL RESEARCH STUDY	270,608	WIRE
NORTH AMERICA	RESEARCH STUDY	63,350	WIRE
MIDDLE EAST AND NORTH AFRICA	CLINICAL RESEARCH	81,189	WIRE
MIDDLE EAST AND NORTH AFRICA	RESEARCH	139,893	WIRE
NORTH AMERICA	CLINICAL RESEARCH CENTER	149,365	WIRE
NORTH AMERICA	CLINICAL RESEARCH STUDY	377,654	WIRE
NORTH AMERICA	RESEARCH	139,946	WIRE
NORTH AMERICA	THERAPEUTICS DISCOVERY RESEARCH	120,500	WIRE
EUROPE	RESEARCH	45,000	WIRE
NORTH AMERICA	PILOT STUDY	56,000	WIRE
EUROPE	CLINICAL RESEARCH	782,469	WIRE
EUROPE	RESEARCH	229,729	WIRE
EAST ASIA AND THE PACIFIC	RESEARCH	139,977	WIRE
EAST ASIA AND THE PACIFIC	PILOT STUDY	89,583	WIRE
EAST ASIA AND THE PACIFIC	CLINICAL RESEARCH	651,209	WIRE
EAST ASIA AND THE PACIFIC	CLINICAL RESEARCH STUDY	1,672,505	WIRE
EAST ASIA AND THE PACIFIC	PILOT STUDY	55,442	WIRE
NORTH AMERICA	CLINICAL RESEARCH STUDY	164,074	WIRE
EUROPE	RESEARCH	119,850	WIRE
EUROPE	RESEARCH	278,976	WIRE
NORTH AMERICA	CLINICAL CARE RESEARCH	829,440	WIRE
NORTH AMERICA	CLINICAL RESEARCH STUDY	168,000	WIRE
NORTH AMERICA	RESEARCH	139,888	WIRE
EUROPE	PILOT STUDY	82,901	WIRE
EAST ASIA AND THE PACIFIC	CLINICAL RESEARCH	223,068	WIRE

2	Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter .......	33
3	Enter total number of other organizations or entities .......................	0

Schedule F (Form 990) 2021

Schedule F (Form 990) 2021Page 3

Part III

Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 16.

Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance		(b) Region	(c) Number of recipients	(d) Amount of cash grant	(e) Manner of cash disbursement	(f) Amount of noncash assistance	(g) Description of noncash assistance	(h) Method of valuation (book, FMV, appraisal, other)

Schedule F (Form 990) 2021

Page 4

Part IV

Foreign Forms

Schedule F (Form 990) 2021

Page 5

Part V

Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information. See instructions.

ReturnReference	Explanation
PART III ACCOUNTING METHOD:
SCHEDULE F, PART IV:	PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S. THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES AND THE FINAL SCIENTIFIC REPORT. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE GRANTS TO THE MIDDLE EAST/NORTH AFRICA REGION WERE MADE TO THE RESEARCH FUND OF THE HADASSAH MEDICAL ORGANIZATION AND THE HEBREW UNIVERSITY OF JERUSALEM IN ISRAEL. FOREIGN FORMS - INVESTMENTS THE ACTIVITIES REFERENCED IN SCHEDULE F, PART IV ARE LIMITED TO CERTAIN OF THE FOUNDATION'S INVESTMENTS.

Schedule F (Form 990) 2021

Additional Data

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Software Version:

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SCHEDULE G (Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Information Regarding
Fundraising or Gaming Activities

Complete if the organization answered "Yes" on Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrow

Attach to Form 990 or Form 990-EZ.
right arrow

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2021

Open to Public Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Fundraising Activities.Complete if the organization answered "Yes" on Form 990, Part IV, line 17.

Form 990-EZ filers are not required to complete this part.

Indicate whether the organization raised funds through any of the following activities. Check all that apply.

a	Mail solicitations	e	Solicitation of non-government grants
b	Internet and email solicitations	f	Solicitation of government grants
c	Phone solicitations	g	Special fundraising events
d	In-person solicitations

Did the organization have a written or oral agreement with any individual (including officers, directors, trustees

or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?

YesNo

If "Yes," list the 10 highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.

(i) Name and address of individual or entity (fundraiser)		(ii) Activity	(iii) Did fundraiser have custody or control of contributions?		(iv) Gross receipts from activity	(v) Amount paid to (or retained by) fundraiser listed in col. (i)	(vi) Amount paid to (or retained by) organization
			Yes	No
	LAUTMAN MASKA NEILL & COMPANY 1730 RHODE ISLAND AVE NW WASHINGTON, DC20036	MAIL COUNSEL		No	12,423,334	176,400	12,246,934









Total . . . . . . . . . . . . . . . . . . . .					12,423,334	176,400	12,246,934

List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.

AL, AK, AZ, AR, CA, CO, CT, DE, FL, GA, HI, ID, IL, IN, IA, KS, KY, LA, ME, MD, MA, MI, MN, MS, MO, MT, NE, NV, NH, NJ, NM, NY, NC, ND, OH, OK, OR, PA, RI, SC, SD, TN, TX, UT, VT, VA, WA, WV, WI, WY

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 50083H

Schedule G (Form 990) 2021

Page 2

Part II

Fundraising Events. Complete if the organization answered "Yes" on Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.

		(a) Event #1 FILM PREMIERE (event type)	(b) Event #2 ATLANTA WALK (event type)	(c) Other events 587 (total number)	(d) Total events (add col. (a) through col. (c))
1	Gross receipts . . . . .	950,743	1,791,886	46,543,058	49,285,687
2	Less: Contributions . . . .	919,437	1,764,040	43,158,509	45,841,986
3	Gross income (line 1 minus line 2) . . . . . .	31,306	27,846	3,384,549	3,443,701

4	Cash prizes . . . . .
5	Noncash prizes . . . .	15,556	8,421	413,873	437,850
6	Rent/facility costs . . . .	15,750	533	1,672,907	1,689,190
7	Food and beverages . . .		14,098	765,197	779,295
8	Entertainment . . . .		600	76,363	76,963
9	Other direct expenses . . .		4,194	456,209	460,403
10	Direct expense summary. Add lines 4 through 9 in column (d) . . . . . . . . . .				3,443,701
11	Net income summary. Subtract line 10 from line 3, column (d). . . . . . . . . .				0

Part III

Gaming. Complete if the organization answered "Yes" on Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.

		(a) Bingo	(b) Pull tabs/Instant bingo/progressive bingo	(c) Other gaming	(d) Total gaming (add col.(a) through col.(c))
1	Gross revenue . . . . .

2	Cash prizes . . . . .
3	Noncash prizes . . . .
4	Rent/facility costs . . . .
5	Other direct expenses . . .

Volunteer labor . . . .

	Yes %
	No

	Yes %
	No

	Yes %
	No

Direct expense summary. Add lines 2 through 5 in column (d) . . . . . . . . . . right arrow

Net gaming income summary. Subtract line 7 from line 1, column (d). . . . . . . . . right arrow

Enter the state(s) in which the organization conducts gaming activities:

Is the organization licensed to conduct gaming activities in each of these states? . . . . . . . .

YesNo

If "No," explain:

10a

Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? . . .

YesNo

If "Yes," explain:

Schedule G (Form 990) 2021

Page 3

Does the organization conduct gaming activities with nonmembers? . . . . . . . . . . .

YesNo

Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity

formed to administer charitable gaming? . . . . . . . . . . . . . . . . .

YesNo

Indicate the percentage of gaming activity conducted in:

The organization's facility . . . . . . . . . . . . . . . . . .

13a

An outside facility . . . . . . . . . . . . . . . . . . . .

13b

Enter the name and address of the person who prepares the organization's gaming/special events books and records:

Name

Address

15a

Does the organization have a contract with a third party from whom the organization receives gaming

revenue? . . . . . . . . . . . . . . . . . . . . . . . .

YesNo

If "Yes," enter the amount of gaming revenue received by the organization right arrow

$ and the

amount of gaming revenue retained by the third party right arrow

$ .

If "Yes," enter name and address of the third party:

Name

Address

Gaming manager information:

Name

Gaming manager compensation right arrow

Description of services provided right arrow

Director/officer Employee Independent contractor

Mandatory distributions:

Is the organization required under state law to make charitable distributions from the gaming proceeds to

retain the state gaming license? . . . . . . . . . . . . . . . . . . .

YesNo

Enter the amount of distributions required under state law distributed to other exempt organizations or spent

in the organization's own exempt activities during the tax year right arrow

Part IV

Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v); and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information. See instructions.

Return Reference

Explanation

PART IV:

PROFESSIONAL FUNDRAISING SERVICES CFF HAD A WRITTEN CONTRACT WITH LAUTMAN MASKA NEILL & COMPANY TO CONSULT ON ITS DIRECT MAIL AND ANNUAL FUND EFFORTS DURING 2021. THE EXPENSE FOR THE PROJECT IS $14,700 PER MONTH OR $176,400 FOR THE ENTIRE YEAR OF SERVICES. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED LAUTMAN MASKA NEILL & COMPANY FOR CREATIVE DEVELOPMENT. LAUTMAN MASKA NEILL & COMPANY DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM MAILINGS WITH WHICH LAUTMAN MASKA NEILL & COMPANY ASSISTS ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION.

Schedule G (Form 990) 2021

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Schedule I
(Form 990)

Department of the Treasury
Internal Revenue Service

Grants and Other Assistance to Organizations,
Governments and Individuals in the United States

Complete if the organization answered "Yes," on Form 990, Part IV, line 21 or 22.
lBullet

Attach to Form 990.
lBullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2021

Open to Public
Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number
13-1930701

Part I

General Information on Grants and Assistance

Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ........................

Yes No

Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.

Part II

Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" on Form 990, Part IV, line 21, for any recipient

that received more than $5,000. Part II can be duplicated if additional space is needed.

(a) Name and address of organization or government	(b) EIN	(c) IRC section (if applicable)	(d) Amount of cash grant	(h) Purpose of grant or assistance
(1) ADVOCATE CHARITABLE FOUNDATION 3075 HIGHLAND PARKWAY SUITE 600 DOWNERS GROVE,IL60515	36-3297360	501C(3)	147,560	CF CARE CENTER
(2) ADVOCATE HEALTH AND HOSPITALS CORPORATION 3075 HIGHLAND PARKWAY DOWNERS GROVE,IL695151288	36-2169147	501C(3)	45,360	CF CARE CENTER
(3) ALBANY MEDICAL COLLEGE 47 NEW SCOTLAND AVENUE ALBANY,NY12298	14-1338310	501C(3)	115,224	CLINICAL RESEARCH CENTER
(4) ALBANY MEDICAL COLLEGE 47 NEW SCOTLAND AVENUE ALBANY,NY12298	14-1338310	501C(3)	178,415	CF CARE CENTER
(5) ALL CHILDREN'S HOSPITAL INC 501 SIXTH AVENUE SOUND ST PETERSBURG,FL33701	59-0683252	501C(3)	133,918	CLINICAL RESEARCH CENTER
(6) ALL CHILDREN'S HOSPITAL INC 501 SIXTH AVENUE SOUND ST PETERSBURG,FL33701	59-0683252	501C(3)	187,590	CF CARE CENTER
(7) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO 225 E CHICAGO AVE CHICAGO,IL606112991	36-2170833	501C(3)	116,842	CLINICAL RESEARCH CENTER
(8) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO 225 E CHICAGO AVE CHICAGO,IL606112991	36-2170833	501C(3)	128,976	TRAINING
(9) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO 225 E CHICAGO AVE CHICAGO,IL606112991	36-2170833	501C(3)	193,660	CLINICAL RESEARCH STUDY
(10) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO 225 E CHICAGO AVE CHICAGO,IL606112991	36-2170833	501C(3)	262,745	CF CARE CENTER
(11) ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO 225 E CHICAGO AVE CHICAGO,IL606112991	36-2170833	501C(3)	358,517	QUALITY IMPROVEMENT
(12) ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 888 N EUCLID AVENUE TUCSON,AZ85721	74-2652689	IRC 115	34,720	ADHERENCE
(13) ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 888 N EUCLID AVENUE TUCSON,AZ85721	74-2652689	IRC 115	166,425	CF CARE CENTER
(14) ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 888 N EUCLID AVENUE TUCSON,AZ85721	74-2652689	IRC 115	181,638	CLINICAL RESEARCH CENTER
(15) ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 888 N EUCLID AVENUE TUCSON,AZ85721	74-2652689	IRC 115	397,195	CLINICAL RESEARCH STUDY
(16) ARKANSAS CHILDREN'S HOSPITAL RESEARCH INSTITUTE INC 13 CHILDRENS WAY LITTLE ROCK,AR72202	71-0694931	501C(3)	154,910	CF CARE CENTER
(17) ASCENSION SETON 1345 PHILOMENA STREET AUSTIN,TX78723	74-1109643	501C(3)	111,697	CLINICAL RESEARCH CENTER
(18) ASCENSION SETON 1345 PHILOMENA STREET AUSTIN,TX78723	74-1109643	501C(3)	269,985	CF CARE CENTER
(19) ATLANTIC HEALTH SYSTEM 475 SOUTH STREET MORRISTON,NJ07960	52-1958352	501C(3)	88,335	CLINICAL RESEARCH CENTER
(20) ATLANTIC HEALTH SYSTEM 475 SOUTH STREET MORRISTON,NJ07960	52-1958352	501C(3)	163,050	CF CARE CENTER
(21) AUGUSTA UNIVERSITY 1120 FIFTEENTH STREET AUGUSTA,GA30912	58-6002053	IRC 115	34,393	ADULT CARE
(22) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC 1120 15TH STREET AUGUSTA,GA30912	58-1418202	501C(3)	103,384	CLINICAL RESEARCH CENTER
(23) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC 1120 15TH STREET AUGUSTA,GA30912	58-1418202	501C(3)	369,393	CF CARE CENTER
(24) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC 1120 15TH STREET AUGUSTA,GA30912	58-1418202	501C(3)	406,388	CLINICAL RESEARCH STUDY
(25) BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA HOUSTON,TX77030	74-1613878	501C(3)	40,035	ADULT CARE
(26) BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA HOUSTON,TX77030	74-1613878	501C(3)	235,789	CLINICAL RESEARCH CENTER
(27) BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA HOUSTON,TX77030	74-1613878	501C(3)	517,974	CF CARE CENTER
(28) BAYLOR SCOTT & WHITE HEALTH 2401 S 31ST STREET TEMPLE,TX76508	46-3131350	501C(3)	110,970	CF CARE CENTER
(29) BAYSTATE MEDICAL CENTER INC 759 CHESNUT STREET SPRINGFIELD,MA01199	04-2790311	501C(3)	60,180	CF CARE CENTER
(30) BETH ISRAEL DEACONESS MEDICAL CENTER 330 BROOKLINE AVENUE BOSTON,MA022155491	04-2103881	501C(3)	56,320	CLINICAL RESEARCH
(31) BETH ISRAEL MEDICAL CENTER FIRST AVENUE AT 16TH STREET NEW YORK,NY10003	13-5564934	501C(3)	172,061	CLINICAL RESEARCH CENTER
(32) BETH ISRAEL MEDICAL CENTER FIRST AVENUE AT 16TH STREET NEW YORK,NY10003	13-5564934	501C(3)	190,410	CF CARE CENTER
(33) BILLINGS CLINIC FOUNDATION 2917 TENTH AVE NORTH BILLINGS,MT59101	81-0407289	501C(3)	43,000	ADULT CARE
(34) BILLINGS CLINIC FOUNDATION 2917 TENTH AVE NORTH BILLINGS,MT59101	81-0407289	501C(3)	111,515	CLINICAL RESEARCH CENTER
(35) BILLINGS CLINIC FOUNDATION 2917 TENTH AVE NORTH BILLINGS,MT59101	81-0407289	501C(3)	261,980	CF CARE CENTER
(36) BOARD OF REGENTS NEVADA SYSTEM OF HIGHER EDUCATION 4505 SOUTH MARYLAND PARKWAY LAS VEGAS,NV89154	88-6000024	IRC 115	75,955	PILOT STUDY
(37) BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER PO BOX 26901 OKLAHOMA CITY,OK731260901	73-1563627	501C(3)	120,622	CLINICAL RESEARCH CENTER
(38) BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER PO BOX 26901 OKLAHOMA CITY,OK731260901	73-1563627	501C(3)	388,782	CF CARE CENTER
(39) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET MADISON,WI537151218	39-6006492	501C(3)	65,000	TRAINING
(40) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET MADISON,WI537151218	39-6006492	501C(3)	168,751	CLINICAL RESEARCH CENTER
(41) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET MADISON,WI537151218	39-6006492	501C(3)	298,460	CF CARE CENTER
(42) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET MADISON,WI537151218	39-6006492	501C(3)	379,645	CLINICAL RESEARCH STUDY
(43) BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY PO BOX 19616 SPRINGFIELD,IL627949616	37-6005961	501C(3)	43,250	CF CARE CENTER
(44) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 455 BROADWAY DISCOVERY HALL 2ND FLOOR REDWOOD CITY,CA940623126	94-1156365	501C(3)	34,720	ADHERENCE
(45) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 455 BROADWAY DISCOVERY HALL 2ND FLOOR REDWOOD CITY,CA940623126	94-1156365	501C(3)	69,500	TRAINING
(46) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 455 BROADWAY DISCOVERY HALL 2ND FLOOR REDWOOD CITY,CA940623126	94-1156365	501C(3)	71,280	ADULT CARE
(47) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 455 BROADWAY DISCOVERY HALL 2ND FLOOR REDWOOD CITY,CA940623126	94-1156365	501C(3)	89,999	CLINICAL RESEARCH STUDY
(48) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 455 BROADWAY DISCOVERY HALL 2ND FLOOR REDWOOD CITY,CA940623126	94-1156365	501C(3)	164,845	CLINICAL RESEARCH CENTER
(49) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 455 BROADWAY DISCOVERY HALL 2ND FLOOR REDWOOD CITY,CA940623126	94-1156365	501C(3)	194,750	RESEARCH STUDY
(50) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 455 BROADWAY DISCOVERY HALL 2ND FLOOR REDWOOD CITY,CA940623126	94-1156365	501C(3)	287,196	CLINICAL CARE RESEARCH
(51) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 455 BROADWAY DISCOVERY HALL 2ND FLOOR REDWOOD CITY,CA940623126	94-1156365	501C(3)	436,450	CF CARE CENTER
(52) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 455 BROADWAY DISCOVERY HALL 2ND FLOOR REDWOOD CITY,CA940623126	94-1156365	501C(3)	446,600	RESEARCH
(53) BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS 809 S MARSHFIELD AVE CHICAGO,IL606124305	37-6000511	501C(3)	15,000	COMMUNITY IMPACT
(54) BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS 809 S MARSHFIELD AVE CHICAGO,IL606124305	37-6000511	501C(3)	84,000	PILOT STUDY
(55) BOSTON CHILDREN'S HEALTH PHYSICIANS LLP 40 SUNSHINE COTTAGE ROAD VALHALLA,NY10595	13-3956599	LLP	76,531	ADULT CARE
(56) BOSTON CHILDREN'S HEALTH PHYSICIANS LLP 40 SUNSHINE COTTAGE ROAD VALHALLA,NY10595	13-3956599	LLP	143,327	CLINICAL RESEARCH CENTER
(57) BOSTON CHILDREN'S HEALTH PHYSICIANS LLP 40 SUNSHINE COTTAGE ROAD VALHALLA,NY10595	13-3956599	LLP	218,605	CF CARE CENTER
(58) BREATHE BRAVELY INC 505 EAST SUNNYBROOK DRIVE SIOUX FALLS,SD571057138	47-5334258	501C(3)	9,575	COMMUNITY IMPACT
(59) CAMC HEALTH EDUCATION AND RESEARCH INSTITUTE PO BOX 1547 CHARLESTON,WV253261547	55-0753754	501C(3)	97,410	CF CARE CENTER
(60) CARLE FOUNDATION HOSPITAL 611 WEST PARK URBANA,IL61801	37-1119538	501C(3)	69,250	CF CARE CENTER
(61) CAROLINAS HEALTHCARE FOUNDATION PO BOX 32861 CHARLOTTE,NC282322861	56-6060481	501C(3)	188,105	CF CARE CENTER
(62) CAROLINAS HEALTHCARE FOUNDATION PO BOX 32861 CHARLOTTE,NC282322861	56-6060481	501C(3)	210,324	CLINICAL RESEARCH STUDY
(63) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	24,369	ADULT CARE
(64) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	65,450	RESEARCH STUDY
(65) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	168,000	PILOT STUDY
(66) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	370,866	CLINICAL RESEARCH CENTER
(67) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	565,823	THERAPEUTICS DISCOVERY RESEARCH
(68) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	949,948	RESEARCH
(69) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	1,476,151	RESEARCH CENTER
(70) CEDARS-SINAI MEDICAL CENTER 8700 BEVERLY BLVD LOS ANGELES,CA90048	95-1644600	501C(3)	88,029	RESEARCH STUDY
(71) CENTRAL FLORIDA PULMONARY GROUP PA 1115 EAST RIDGEWOOD STREET ORLANDO,FL32803	59-1760017	C CORP	144,150	CF CARE CENTER
(72) CHATTANOOGA HAMILTON COUNTY HOSPITAL AUTHORITY (DBA ERLANGER MEDICAL CENTER 975 EAST THIRD STREET CHATTANOOGA,TN37403	62-6000101	501C(3)	110,870	CF CARE CENTER
(73) CHILDREN'S HEALTH CARE 2525 CHICAGO AVENUE SOUTH MINNEAPOLIS,MN554041844	41-1754276	501C(3)	45,587	ADHERENCE
(74) CHILDREN'S HEALTH CARE 2525 CHICAGO AVENUE SOUTH MINNEAPOLIS,MN554041844	41-1754276	501C(3)	120,084	CLINICAL RESEARCH CENTER
(75) CHILDREN'S HEALTH CARE 2525 CHICAGO AVENUE SOUTH MINNEAPOLIS,MN554041844	41-1754276	501C(3)	149,195	CF CARE CENTER
(76) CHILDREN'S HEALTHCARE OF ATLANTA 1575 NORTHEAST EXPRESSWAY ATLANTA,GA30329	58-2367819	501C(3)	36,761	CF CARE CENTER
(77) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S) 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	54,929	ADULT CARE
(78) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S) 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	56,000	PILOT STUDY
(79) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S) 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	63,349	RESEARCH STUDY
(80) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S) 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	145,073	CLINICAL RESEARCH STUDY
(81) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S) 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	229,000	TRAINING
(82) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S) 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	270,435	RESEARCH
(83) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S) 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	361,330	CLINICAL RESEARCH CENTER
(84) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S) 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	393,315	CF CARE CENTER
(85) CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S) 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	1,057,411	ADHERENCE
(86) CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BOULEVARD LOS ANGELES,CA900270982	95-1690977	501C(3)	99,923	TRAINING
(87) CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BOULEVARD LOS ANGELES,CA900270982	95-1690977	501C(3)	111,099	CLINICAL RESEARCH CENTER
(88) CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BOULEVARD LOS ANGELES,CA900270982	95-1690977	501C(3)	217,225	CF CARE CENTER
(89) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	34,720	ADHERENCE
(90) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	107,362	QUALITY IMPROVEMENT
(91) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	152,937	RESEARCH STUDY
(92) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	174,078	CF CARE CENTER
(93) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	285,930	CLINICAL RESEARCH CENTER
(94) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	371,000	TRAINING
(95) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	600,000	RESEARCH CENTER
(96) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	744,398	CLINICAL RESEARCH
(97) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	825,302	CLINICAL RESEARCH STUDY
(98) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH45229	31-0833936	501C(3)	3,009,161	CLINICAL CARE RESEARCH
(99) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON ONE PERKINS SQUARE AKRON,OH44308	34-0714357	501C(3)	117,523	CLINICAL RESEARCH CENTER
(100) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON ONE PERKINS SQUARE AKRON,OH44308	34-0714357	501C(3)	244,420	CF CARE CENTER
(101) CHILDREN'S HOSPITAL OF ORANGE COUNTY 1201 WEST LA VETA AVENUE ORANGE,CA92868	95-2321786	501C(3)	72,971	CLINICAL RESEARCH CENTER
(102) CHILDREN'S HOSPITAL OF ORANGE COUNTY 1201 WEST LA VETA AVENUE ORANGE,CA92868	95-2321786	501C(3)	103,765	CF CARE CENTER
(103) CHILDREN'S HOSPITAL OF PITTSBURGH FOUNDATION 4401 PENN AVENUE PITTSBURGH,PA15224	25-1865744	501C(3)	350,150	CF CARE CENTER
(104) CHILDREN'S HOSPITAL OF PITTSBURGH OF UPMC HEALTH SYSTEM 4401 PENN AVENUE PITTSBURGH,PA15224	25-0402510	501C(3)	54,000	CF CARE CENTER
(105) CHILDREN'S HOSPITAL OF PITTSBURGH OF UPMC HEALTH SYSTEM 4401 PENN AVENUE PITTSBURGH,PA15224	25-0402510	501C(3)	66,750	TRAINING
(106) CHILDREN'S LUNG SPECIALISTS 3006 S MARYLAND PKWY LAS VEGAS,NV89109	88-0271963	501C(3)	220,140	CF CARE CENTER
(107) CHILDREN'S MEDICAL CENTER ONE CHILDRENS PLAZA DAYTON,OH454041815	31-0672132	501C(3)	91,664	CLINICAL RESEARCH CENTER
(108) CHILDREN'S MEDICAL CENTER ONE CHILDRENS PLAZA DAYTON,OH454041815	31-0672132	501C(3)	233,410	CF CARE CENTER
(109) CHILDREN'S NATIONAL MEDICAL CENTER 111 MICHIGAN AVENUE NW WASHINGTON,DC20010	52-1640403	501C(3)	44,797	ADULT CARE
(110) CHILDREN'S RESEARCH INSTITUTE (AT CNMC) 111 MICHIGAN AVENUE NW WASHINGTON,DC20010	52-1654453	501C(3)	139,091	CLINICAL RESEARCH STUDY
(111) CHILDREN'S RESEARCH INSTITUTE (AT CNMC) 111 MICHIGAN AVENUE NW WASHINGTON,DC20010	52-1654453	501C(3)	140,000	RESEARCH
(112) CHILDREN'S RESEARCH INSTITUTE (AT CNMC) 111 MICHIGAN AVENUE NW WASHINGTON,DC20010	52-1654453	501C(3)	193,655	CF CARE CENTER
(113) CHILDREN'S SPECIALTY GROUP PLLC 811 REDGATE AVENUE NORFOLK,VA23507	54-1871633	LLC	161,620	CF CARE CENTER
(114) CHRISTIANA CARE HEALTH SERVICES INC PO BOX 2653 WILMINGTON,DE198050653	51-0103684	501C(3)	27,067	CF CARE CENTER
(115) CHRISTUS SANTA ROSA HEALTH SYSTEM 333 N SANTA ROSA STREET SAN ANTONIO,TX78207	74-1109665	501C(3)	49,520	CF CARE CENTER
(116) CLAIRE'S PLACE FOUNDATION INC 2110 ARTESIA BLVD B REDONDO BEACH,CA90278	45-2453459	501C(3)	10,000	COMMUNITY IMPACT
(117) COACH-ED INC 1430 SUGARTOWN ROAD BERWYN,PA19312	45-3399942	501C(3)	10,000	COMMUNITY IMPACT
(118) COLORADO STATE UNIVERSITY 555 SOUTH HOWES FORT COLLINS,CO805232002	84-6000545	IRC 115	143,000	RESEARCH
(119) CONNECTICUT CHILDREN'S MEDICAL CENTER 202 WASHINGTON STREET HARTFORD,CT061063322	06-0646755	501C(3)	93,210	CF CARE CENTER
(120) COOK CHILDREN'S MEDICAL CENTER CF CENTER 801 SEVENTH AVENUE FORT WORTH,TX76104	75-2051646	501C(3)	115,044	CLINICAL RESEARCH CENTER
(121) COOK CHILDREN'S MEDICAL CENTER CF CENTER 801 SEVENTH AVENUE FORT WORTH,TX76104	75-2051646	501C(3)	355,720	CF CARE CENTER
(122) CYSTIC FIBROSIS LIFESTYLE FOUNDATION 300 71SR ST MIAMI,FL33141	57-1163801	501C(3)	10,000	COMMUNITY IMPACT
(123) DARTMOUTH-HITCHCOCK CLINIC ONE MEDICAL CENTER DRIVE LEBANON,NH03756	22-2519596	501C(3)	39,379	CLINICAL RESEARCH
(124) DARTMOUTH-HITCHCOCK CLINIC ONE MEDICAL CENTER DRIVE LEBANON,NH03756	22-2519596	501C(3)	56,000	PILOT STUDY
(125) DARTMOUTH-HITCHCOCK CLINIC ONE MEDICAL CENTER DRIVE LEBANON,NH03756	22-2519596	501C(3)	103,579	CLINICAL RESEARCH STUDY
(126) DARTMOUTH-HITCHCOCK CLINIC ONE MEDICAL CENTER DRIVE LEBANON,NH03756	22-2519596	501C(3)	442,246	RESEARCH
(127) DRISCOLL CHILDREN'S HOSPITAL 3533 SOUTH ALAMEDA CORPUS CHRISTI,TX78411	74-2577746	501C(3)	121,925	CF CARE CENTER
(128) DUKE UNIVERSITY 324 BLACKWELL ST DURHAM,NC27701	56-0532129	501C(3)	13,880	THERAPEUTICS DISCOVERY RESEARCH
(129) DUKE UNIVERSITY 324 BLACKWELL ST DURHAM,NC27701	56-0532129	501C(3)	255,373	CF CARE CENTER
(130) DUKE UNIVERSITY 324 BLACKWELL ST DURHAM,NC27701	56-0532129	501C(3)	707,304	CLINICAL CARE RESEARCH
(131) EAST CAROLINA UNIVERSITY GREENVILLE CENTRE SUITE 2900 GREENVILLE,NC278584353	56-6000403	IRC 115	44,900	CF CARE CENTER
(132) EAST TENNESSEE CHILDREN'S HOSPITAL ASSOCIATION INC PO BOX 15010 KNOXVILLE,TN379015010	62-6002604	501C(3)	142,765	CF CARE CENTER
(133) EASTERN MAINE MEDICAL CENTER 489 STATE STREET BANGOR,ME04402	01-0211501	501C(3)	65,325	CF CARE CENTER
(134) EMORY UNIVERSITY 1599 CLIFTON ROAD ATLANTA,GA30322	58-0566256	501C(3)	128,794	RESEARCH STUDY
(135) EMORY UNIVERSITY 1599 CLIFTON ROAD ATLANTA,GA30322	58-0566256	501C(3)	132,964	PILOT STUDY
(136) EMORY UNIVERSITY 1599 CLIFTON ROAD ATLANTA,GA30322	58-0566256	501C(3)	201,532	TRAINING
(137) EMORY UNIVERSITY 1599 CLIFTON ROAD ATLANTA,GA30322	58-0566256	501C(3)	265,209	CLINICAL RESEARCH CENTER
(138) EMORY UNIVERSITY 1599 CLIFTON ROAD ATLANTA,GA30322	58-0566256	501C(3)	450,615	CF CARE CENTER
(139) EMORY UNIVERSITY 1599 CLIFTON ROAD ATLANTA,GA30322	58-0566256	501C(3)	664,479	RESEARCH
(140) EMORY UNIVERSITY 1599 CLIFTON ROAD ATLANTA,GA30322	58-0566256	501C(3)	884,390	CLINICAL RESEARCH STUDY
(141) EMORY UNIVERSITY 1599 CLIFTON ROAD ATLANTA,GA30322	58-0566256	501C(3)	1,000,000	THERAPEUTICS DISCOVERY RESEARCH
(142) EMORY UNIVERSITY 1599 CLIFTON ROAD ATLANTA,GA30322	58-0566256	501C(3)	1,057,707	QUALITY IMPROVEMENT
(143) FAIRFAX NEONATAL ASSOCIATES PC DBAPEDIATRIC LUNG CENTER 2730-B PROSPERITY AVENUE FAIRFAX,VA22031	54-1110106	C CORP	82,080	CF CARE CENTER
(144) FRED HUTCHINSON CANCER RESEARCH CENTER 1100 FAIRVIEW AVENUE N SEATTLE,WA98109	23-7156071	501C(3)	62,618	RESEARCH STUDY
(145) GEISINGER CLINIC 100 N ACADEMY AVE DANVILLE,PA178229800	23-6291113	501C(3)	176,960	CF CARE CENTER
(146) GEORGIA TECH RESEARCH CORPORATION 505 TENTH ST NW ATLANTA,GA30318	58-0603146	501C(3)	261,800	RESEARCH STUDY
(147) GEORGIA TECH RESEARCH CORPORATION 505 TENTH ST NW ATLANTA,GA30318	58-0603146	501C(3)	265,588	RESEARCH
(148) GEORGIA TECH RESEARCH CORPORATION 505 TENTH ST NW ATLANTA,GA30318	58-0603146	501C(3)	868,000	CLINICAL RESEARCH STUDY
(149) GUNDERSEN LUTHERAN MEDICAL FOUNDATION 1836 SOUTH AVENUE LA CROSSE,WI54601	39-1249705	501C(3)	45,460	CF CARE CENTER
(150) HARTFORD HOSPITAL 80 SEYMOUR STREET HARTFORD,CT061025037	06-0646668	501C(3)	93,760	CF CARE CENTER
(151) HARVARD MEDICAL SCHOOL 1033 MASSACHUSETTS AVENUE CAMBRIDGE,MA02138	04-2103580	501C(3)	63,350	RESEARCH STUDY
(152) HARVARD MEDICAL SCHOOL 1033 MASSACHUSETTS AVENUE CAMBRIDGE,MA02138	04-2103580	501C(3)	82,970	PILOT STUDY
(153) HARVARD MEDICAL SCHOOL 1033 MASSACHUSETTS AVENUE CAMBRIDGE,MA02138	04-2103580	501C(3)	839,989	CLINICAL RESEARCH STUDY
(154) HEALTH RESEARCH INC NEW YORK STATE DEPARTMENT OF HEALTH 150 BROADWAY MENANDS,NY122042893	14-1402155	170(B)(1)(A)(VI)	138,257	RESEARCH
(155) HEALTHWELL FOUNDATION PO BOX 4133 GAITHERSBURG,MD20885	20-0413676	501C(3)	4,800,000	PATIENT ASSISTANCE
(156) HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF MILITARY MEDICINE INC 6720A ROCKLEDGE DRIVE BETHESDA,MD20817	52-1317896	501C(3)	47,500	CF CARE CENTER
(157) HMH HOSPITALS CORPORATION 343 THORNALL STREET EDISON,NJ08837	22-1487576	501C(3)	140,000	RESEARCH
(158) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ONE GUSTAVE L LEVY PLACE NEW YORK,NY10029	13-6171197	501C(3)	99,996	TRAINING
(159) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ONE GUSTAVE L LEVY PLACE NEW YORK,NY10029	13-6171197	501C(3)	112,000	RESEARCH
(160) INOVA HEALTH CARE SERVICES 8110 GATEHOUSE ROAD FALLS CHURCH,VA22042	54-0620889	501C(3)	81,069	ADULT CARE
(161) INOVA HEALTH CARE SERVICES 8110 GATEHOUSE ROAD FALLS CHURCH,VA22042	54-0620889	501C(3)	95,301	CF CARE CENTER
(162) IOM HEALTH SYSTEM LP 7950 W JEFFERSON FORT WAYNE,IN46804	35-1963748	C CORP	70,967	CF CARE CENTER
(163) IOWA HEALTH FOUNDATION 1415 WOODLAND AVENUE DES MOINES,IA50309	42-1467682	501C(3)	105,655	CF CARE CENTER
(164) JAEB CENTER FOR HEALTH RESEARCH FOUNDATION INC 15310 AMBERLY DRIVE SUITE 350 TAMPA,FL33647	59-3187624	501C(3)	329,645	CLINICAL RESEARCH STUDY
(165) JOE DIMAGGIO CHILDREN'S HOSPITAL FOUNDATION INC 3329 JOHNSON STREET HOLLYWOOD,FL33021	65-0492343	501C(3)	97,458	CLINICAL RESEARCH CENTER
(166) KAISER FOUNDATION RESEARCH INSTITUTE A DIVIDISION OF KAISER FOUNDATION HOS ONE KAISER PLAZA OAKLAND,CA94612	94-1105628	501C(3)	446,221	CF CARE CENTER
(167) KANSAS STATE UNIVERSITY 2 FAIRCHILD HALL 1601 VATTIER MANHATTAN,KS66506	48-0771751	GOVERNMENT ENTITY	140,000	THERAPEUTICS DISCOVERY RESEARCH
(168) KID LOGISTICS 470 ARUNDEL DRIVE BRANDON,MS390478104	81-3019912	501C(3)	7,846	COMMUNITY IMPACT
(169) LANDON PEDIATRIC FOUNDATION 3291 LOMA VISTA RD VENTURA,CA93003	93-1097216	501C(3)	47,765	CF CARE CENTER
(170) LEE MEMORIAL HEALTH SYSTEM FOUNDATION INC 9800 SOUTH HEALTHPARK DRIVE FORT MYERS,FL33908	65-0645343	501C(3)	52,615	CF CARE CENTER
(171) LEHIGH VALLEY HOSPITAL 2100 MACK BLVD ALLENTOWN,PA181035622	23-1689692	501C(3)	121,932	CF CARE CENTER
(172) LOMA LINDA UNIVERSITY 11145 ANDERSON STREET LOMA LINDA,CA92354	95-1816009	501C(3)	91,625	CF CARE CENTER
(173) LONG ISLAND JEWISH MEDICAL CENTER 270-05 76TH AVENUE NEW HYDE PARK,NY11040	11-2241326	501C(3)	330,546	CF CARE CENTER
(174) LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER PO BOX 33932 SHREVEPORT,LA71130	72-0702002	501C(3)	151,291	CF CARE CENTER
(175) LOYOLA UNIVERSITY CHICAGO 820 NORTH MICHIGAN AVENUE CHICAGO,IL606112147	36-1408475	501C(3)	68,474	CF CARE CENTER
(176) LOYOLA UNIVERSITY CHICAGO 820 NORTH MICHIGAN AVENUE CHICAGO,IL606112147	36-1408475	501C(3)	291,200	CLINICAL CARE RESEARCH
(177) MAGEE-WOMEN'S RESEARCH INSTITUTE AND FOUNDATION 3240 CRAFT PLACE PITTSBURGH,PA15213	25-1462312	501C(3)	83,063	CLINICAL RESEARCH STUDY
(178) MAINE MEDICAL CENTER 22 BRAMHALL STREET PORTLAND,ME041023175	01-0238552	501C(3)	45,993	ADULT CARE
(179) MAINE MEDICAL CENTER 22 BRAMHALL STREET PORTLAND,ME041023175	01-0238552	501C(3)	133,111	CLINICAL RESEARCH CENTER
(180) MAINE MEDICAL CENTER 22 BRAMHALL STREET PORTLAND,ME041023175	01-0238552	501C(3)	229,660	CF CARE CENTER
(181) MARSHFIELD CLINIC RESEARCH FOUNDATION 1000 N OAK AVENUE MARSHFIELD,WI54449	39-0452970	501C(3)	66,720	CF CARE CENTER
(182) MARY BRIDGE CHILDREN'S FOUNDATION PO BOX 5299 TACOMA,WA98415	94-3030039	501C(3)	82,485	CF CARE CENTER
(183) MASSACHUSETTS INSTITUTE OF TECHNOLOGY 77 MASSACHUSETTS AVENUE CAMBRIDGE,MA02139	04-2103594	501C(3)	63,350	RESEARCH STUDY
(184) MASSACHUSETTS INSTITUTE OF TECHNOLOGY 77 MASSACHUSETTS AVENUE CAMBRIDGE,MA02139	04-2103594	501C(3)	489,629	THERAPEUTICS DISCOVERY RESEARCH
(185) MAYO CLINIC 200 FIRST STREET SW ROCHESTER,MN55905	41-6011702	501C(3)	125,960	CF CARE CENTER
(186) MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE,FL32224	59-3337028	501C(3)	73,050	CF CARE CENTER
(187) MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE,FL32224	59-3337028	501C(3)	82,284	ADULT CARE
(188) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	29,866	CLINICAL CARE RESEARCH
(189) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	39,608	ADULT CARE
(190) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	284,575	CF CARE CENTER
(191) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	286,729	CLINICAL RESEARCH CENTER
(192) MEMORIAL HEALTH SERVICES 17360 BROOKHURST STREET FOUNTAIN VALLEY,CA92708	95-1643381	501C(3)	144,182	CLINICAL RESEARCH CENTER
(193) MEMORIAL MEDICAL CENTER FOUNDATION (ON BEHALF OF LONG BEACH MEMORIAL MEDICA 2801 ATLANTIC AVENUE LONG BEACH,CA90806	95-6105984	501C(3)	198,035	CF CARE CENTER
(194) MH MISSION HOSPITAL LLLP PO BOX 550 NASHVILLE TN,MD372020550	83-2048706	LLP	49,850	CF CARE CENTER
(195) MICHIGAN STATE UNIVERSITY 426 AUDITORIUM ROAD EAST LANSING,MI48824	38-6005984	501C(3)	79,150	CF CARE CENTER
(196) MICHIGAN STATE UNIVERSITY 426 AUDITORIUM ROAD EAST LANSING,MI48824	38-6005984	501C(3)	324,200	THERAPEUTICS DISCOVERY RESEARCH
(197) MIDDLE EAST CYSTIC FIBROSIS ASSOCIATION 675 VFW PARKWAY SUITE 226 CHESTNUT HILL,MA024673656	85-1096028	170(B)(1)(A)(VI)	60,660	QUALITY IMPROVEMENT
(198) MONMOUTH MEDICAL CENTER FOUNDATION 300 SECOND AVENUE LONG BRANCH,NJ07740	22-2456079	501C(3)	67,474	CLINICAL RESEARCH CENTER
(199) MONMOUTH MEDICAL CENTER FOUNDATION 300 SECOND AVENUE LONG BRANCH,NJ07740	22-2456079	501C(3)	161,035	CF CARE CENTER
(200) NATIONAL DISEASE RESEARCH INTERCHANGE 1628 JOHN F KENNEDY BLVD PHILADELPHIA,PA19103	23-2213205	509(A)(2)	294,954	THERAPEUTICS DISCOVERY RESEARCH
(201) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	27,140	ADHERENCE
(202) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	35,640	ADULT CARE
(203) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	38,413	CLINICAL RESEARCH CENTER
(204) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	120,669	PILOT STUDY
(205) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	150,827	RESEARCH CENTER
(206) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	290,365	CF CARE CENTER
(207) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	340,596	CLINICAL RESEARCH
(208) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	389,719	RESEARCH
(209) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	575,447	CLINICAL RESEARCH CENTER
(210) NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	1,148,524	CLINICAL RESEARCH STUDY
(211) NATIONAL ORGANIZATION OF AFRICAN AMERICANS WITH CYSTIC FIBROSIS 6001 SOUTHWIND DRIVE NORTH LITTLE ROCK,AR72118	85-2269576	501C(3)	10,000	COMMUNITY IMPACT
(212) NEMOURS CHILDREN'S HEALTH SYSTEM 1600 ROCKLAND ROAD WILMINGTON,DE198033607	59-0634433	501C(3)	89,600	CLINICAL RESEARCH STUDY
(213) NEMOURS CHILDREN'S HEALTH SYSTEM 1600 ROCKLAND ROAD WILMINGTON,DE198033607	59-0634433	501C(3)	210,571	CLINICAL RESEARCH CENTER
(214) NEMOURS CHILDREN'S HEALTH SYSTEM 1600 ROCKLAND ROAD WILMINGTON,DE198033607	59-0634433	501C(3)	477,020	CF CARE CENTER
(215) NEW YORK UNIVERSITY ONE FIRST AVENUE NEW YORK,NY10016	13-5562308	501C(3)	68,050	RESEARCH STUDY
(216) NEW YORK UNIVERSITY ONE FIRST AVENUE NEW YORK,NY10016	13-5562308	501C(3)	150,330	CF CARE CENTER
(217) NORTH SUBURBAN PULMONARY AND CRITICAL CARE CONSULTANTS SC 9201N WAUKEGAN ROAD MORTON GROVE,IL60053	36-4393017	C CORP	54,400	CF CARE CENTER
(218) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	28,393	ADHERENCE
(219) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	41,055	CLINICAL RESEARCH STUDY
(220) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	104,920	CLINICAL RESEARCH CENTER
(221) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	123,810	CF CARE CENTER
(222) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND,OR97239	93-1176109	501C(3)	7,459	ADHERENCE
(223) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND,OR97239	93-1176109	501C(3)	82,564	ADULT CARE
(224) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND,OR97239	93-1176109	501C(3)	101,566	QUALITY IMPROVEMENT
(225) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND,OR97239	93-1176109	501C(3)	201,843	CLINICAL RESEARCH CENTER
(226) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND,OR97239	93-1176109	501C(3)	377,751	CLINICAL RESEARCH STUDY
(227) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND,OR97239	93-1176109	501C(3)	427,733	CF CARE CENTER
(228) OREGON STATE UNIVERSITY PO BOX 1086 CORVALLIS,OR973391086	61-1730890	IRC 115	63,350	RESEARCH STUDY
(229) ORLANDO HEALTH FOUNDATION 3160 SOUTHGATE COMMERCE BLVD 50 ORLANDO,FL32806	59-2244943	501C(3)	117,705	CF CARE CENTER
(230) OSF SAINT FRANCIS MEDICAL CENTER 530 NE GLEN OAK AVE PEORIA,IL61637	37-0662569	501C(3)	85,893	CLINICAL RESEARCH CENTER
(231) OSF SAINT FRANCIS MEDICAL CENTER 530 NE GLEN OAK AVE PEORIA,IL61637	37-0662569	501C(3)	156,680	CF CARE CENTER
(232) PENNSYLVANIA STATE UNIVERSITY 500 UNIVERSITY DRIVE HERSHEY,PA17033	24-6000376	IRC 115	104,189	CLINICAL RESEARCH CENTER
(233) PENNSYLVANIA STATE UNIVERSITY 500 UNIVERSITY DRIVE HERSHEY,PA17033	24-6000376	IRC 115	235,580	CF CARE CENTER
(234) PENSACOLA LUNG GROUP MDS PA 4700 BAYOU BOULEVARD PENSACOLA,FL32503	59-2313481	501C(3)	60,220	CF CARE CENTER
(235) PHOENIX CHILDREN'S HOSPITAL FOUNDATION 2929 CAMELBACK ROAD PHOENIX,AZ85016	74-2421549	501C(3)	341,270	CF CARE CENTER
(236) PROVIDENCE HEALTH & SERVICES WASHINGTON PO BOX 389672 SEATTLE,WA981389672	51-0216586	170(B)(1)(A)(III)	41,136	ADULT CARE
(237) PROVIDENCE HEALTH & SERVICES WASHINGTON PO BOX 389672 SEATTLE,WA981389672	51-0216586	170(B)(1)(A)(III)	143,398	CLINICAL RESEARCH CENTER
(238) PROVIDENCE HEALTH & SERVICES WASHINGTON PO BOX 389672 SEATTLE,WA981389672	51-0216586	170(B)(1)(A)(III)	302,070	CF CARE CENTER
(239) REGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE OFFICE OF RESEARCH IRVINE,CA926977600	95-2226406	501C(3)	133,876	RESEARCH
(240) REGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE OFFICE OF RESEARCH IRVINE,CA926977600	95-2226406	501C(3)	145,600	CLINICAL CARE RESEARCH
(241) REGENTS OF THE UNIVERSITY OF CALIFORNIA BERKELEY 2195 HEARST AVE BERKELEY,CA94720	94-6002123	U.S. STATE	587,688	THERAPEUTICS DISCOVERY RESEARCH
(242) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	55,928	PILOT STUDY
(243) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	57,545	ADHERENCE
(244) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	65,450	RESEARCH STUDY
(245) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	183,449	CLINICAL RESEARCH STUDY
(246) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	256,230	CF CARE CENTER
(247) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	274,925	RESEARCH
(248) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	357,959	TRAINING
(249) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	606,447	CLINICAL RESEARCH CENTER
(250) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	877,690	CLINICAL CARE RESEARCH
(251) REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	1,083,149	CLINICAL RESEARCH
(252) RENOWN HEALTH FOUNDATION 1155 MILL ST RENO,NV89502	94-2972749	501C(3)	60,470	CF CARE CENTER
(253) RHODE ISLAND HOSPITAL 593 EDDY STREET PROVIDENCE,RI02903	05-0258954	501C(3)	35,640	ADULT CARE
(254) RHODE ISLAND HOSPITAL 593 EDDY STREET PROVIDENCE,RI02903	05-0258954	501C(3)	162,585	CF CARE CENTER
(255) ROSALIND FRANKLIN UNIVERSITY OF MEDICINE AND SCIENCE 3333 GREEN BAY RD NORTH CHICAGO,IL60064	36-2181973	501C(3)	65,450	RESEARCH STUDY
(256) ROSALIND FRANKLIN UNIVERSITY OF MEDICINE AND SCIENCE 3333 GREEN BAY RD NORTH CHICAGO,IL60064	36-2181973	501C(3)	139,994	RESEARCH
(257) ROSALIND FRANKLIN UNIVERSITY OF MEDICINE AND SCIENCE 3333 GREEN BAY RD NORTH CHICAGO,IL60064	36-2181973	501C(3)	263,457	THERAPEUTICS DISCOVERY RESEARCH
(258) RUSH UNIVERSITY MEDICAL CENTER 1653 W CONGRESS PARKWAY CHICAGO,IL60612	36-2174823	501C(3)	113,070	CF CARE CENTER
(259) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 65 BERGEN STREET NEWARK,NJ07107	46-2354111	IRC 115	126,124	CLINICAL RESEARCH CENTER
(260) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 65 BERGEN STREET NEWARK,NJ07107	46-2354111	IRC 115	152,311	CF CARE CENTER
(261) SAINT BARNABAS MEDICAL CENTER 94 OLD SHORT HILLS ROAD LIVINGSTON,NJ07039	22-1494440	501C(3)	52,145	CF CARE CENTER
(262) SAINT JOSEPH REGIONAL MEDICAL CENTER - SOUTH BEND CAMPUS INC 5215 HOLY CROSS PARKWAY MISHAWAKA,IN465451469	35-0868157	501C(3)	112,675	CF CARE CENTER
(263) SAINT JOSEPH'S HOSPITAL AND MEDICAL CENTER 703 MAIN STREET PATERSON,NJ07503	22-1487602	501C(3)	53,805	CF CARE CENTER
(264) SANFORD CLINIC PO BOX 5039 SIOUX FALLS,SD571175039	46-0447693	501C(3)	109,686	CLINICAL RESEARCH CENTER
(265) SANFORD CLINIC PO BOX 5039 SIOUX FALLS,SD571175039	46-0447693	501C(3)	175,000	CF CARE CENTER
(266) SANFORD MEDICAL CENTER FARGO PO BOX 2010 FARGO,ND581222206	45-0226909	501C(3)	53,475	CF CARE CENTER
(267) SANTA BARBARA COTTAGE HOSPITAL 400 WEST PUEBLO STREET SANTA BARBARA,CA93105	95-1644629	501C(3)	84,900	CF CARE CENTER
(268) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	127,817	ADULT CARE
(269) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	138,993	TRAINING
(270) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	266,360	CF CARE CENTER
(271) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	2,560,430	CLINICAL RESEARCH STUDY
(272) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	6,361,303	CLINICAL RESEARCH CENTER
(273) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	8,041,150	CLINICAL RESEARCH
(274) SEATTLE INSTITUTE FOR BIOMEDICAL AND CLINICAL RESEARCH 1660 S COLUMBIAN WAY SEATTLE,WA98108	91-1452438	501C(3)	55,592	PILOT STUDY
(275) SEATTLE INSTITUTE FOR BIOMEDICAL AND CLINICAL RESEARCH 1660 S COLUMBIAN WAY SEATTLE,WA98108	91-1452438	501C(3)	125,000	RESEARCH
(276) SOCIAL GOOD FUND 12651 SAN PABLO AVE RICHMOND,CA94805	46-1323531	501C(3)	15,000	COMMUNITY IMPACT
(277) SOUTH BROWARD HOSPITAL DISTRICT 3501 JOHNSON STREET HOLLYWOOD,FL33021	59-6014973	501C(3)	188,930	CF CARE CENTER
(278) SPECTRUM HEALTH FOUNDATION 100 MICHIGAN ST NE GRAND RAPIDS,MI49503	38-2752328	501C(3)	77,939	ADULT CARE
(279) SPECTRUM HEALTH FOUNDATION 100 MICHIGAN ST NE GRAND RAPIDS,MI49503	38-2752328	501C(3)	120,028	CLINICAL RESEARCH CENTER
(280) SPECTRUM HEALTH FOUNDATION 100 MICHIGAN ST NE GRAND RAPIDS,MI49503	38-2752328	501C(3)	394,220	CF CARE CENTER
(281) ST ALEXIUS MEDICAL CENTER 900 EAST BROADWAY AVENUE BISMARCK,ND585014520	45-0226711	501C(3)	53,455	CF CARE CENTER
(282) ST LOUIS UNIVERSITY 221 NORTH GRAND BLVD ST LOUIS,MO63103	43-0654872	501C(3)	56,207	CLINICAL RESEARCH STUDY
(283) ST LOUIS UNIVERSITY 221 NORTH GRAND BLVD ST LOUIS,MO63103	43-0654872	501C(3)	87,490	CLINICAL RESEARCH CENTER
(284) ST LOUIS UNIVERSITY 221 NORTH GRAND BLVD ST LOUIS,MO63103	43-0654872	501C(3)	107,008	ADULT CARE
(285) ST LOUIS UNIVERSITY 221 NORTH GRAND BLVD ST LOUIS,MO63103	43-0654872	501C(3)	195,325	CF CARE CENTER
(286) ST LUKE'S REGIONAL MEDICAL CENTER LTD 190 E BANNOCK BOISE,ID83712	82-0161600	501C(3)	108,645	CLINICAL RESEARCH CENTER
(287) ST LUKE'S REGIONAL MEDICAL CENTER LTD 190 E BANNOCK BOISE,ID83712	82-0161600	501C(3)	367,799	CF CARE CENTER
(288) ST VINCENT HOSPITAL OF THE HOSPITAL SISTERS OF THE THIRD ORDER OF ST FRAN 835 S VAN BUREN GREEN BAY,WI543013256	39-0817529	501C(3)	79,090	CF CARE CENTER
(289) STATE OF ARIZONA 150 N 18TH AVE PHOENIX,AZ85007	86-6004791	U.S. STATE	32,589	QUALITY IMPROVEMENT
(290) STATE OF MISSISSIPPIUNIVERSITY OF MISSISSIPPI MEDICAL CENTER 2500 NORTH STATE STREET JACKSON,MS392164505	64-6008520	501C(3)	179,925	CF CARE CENTER
(291) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICINE PO BOX 9 ALBANY,NY12201	14-1368361	501C(3)	34,716	ADHERENCE
(292) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICINE PO BOX 9 ALBANY,NY12201	14-1368361	501C(3)	71,517	CLINICAL RESEARCH
(293) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICINE PO BOX 9 ALBANY,NY12201	14-1368361	501C(3)	128,499	ADULT CARE
(294) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICINE PO BOX 9 ALBANY,NY12201	14-1368361	501C(3)	213,550	CLINICAL RESEARCH CENTER
(295) SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICINE PO BOX 9 ALBANY,NY12201	14-1368361	501C(3)	579,467	CF CARE CENTER
(296) SUTTER BAY HOSPITALS 475 BRANNAN STREET SAN FRANCISCO,CA941075419	94-0562680	501C(3)	40,340	CF CARE CENTER
(297) SUTTER MEDICAL CENTER SACRAMENTO PO BOX 160727 SACRAMENTO,CA95833	94-1156621	501C(3)	101,700	CF CARE CENTER
(298) TAMPA GENERAL HOSPITAL FOUNDATION INC PO BOX 1289 TAMPA,FL33601	23-7354477	501C(3)	176,200	CF CARE CENTER
(299) TEMPLE UNIVERSITY OF THE COMMONWEALTH SYSTEM OF HIGHER EDUCATION 1852 N 10TH STREET PHILADELPHIA,PA19122	23-1365971	501C(3)	65,577	RESEARCH
(300) TEXAS A&M AGRILIFE RESEARCH PO BOX 10420 COLLEGE STATION,TX77842	74-6000541	501C(3)	140,000	RESEARCH
(301) TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER 3601 4TH STREET LUBBOCK,TX794306209	75-2668014	501C(3)	77,503	CF CARE CENTER
(302) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 6823 ST CHARLES AVENUE NEW ORLEANS,LA70118	72-0423889	501C(3)	32,746	ADULT CARE
(303) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 6823 ST CHARLES AVENUE NEW ORLEANS,LA70118	72-0423889	501C(3)	55,890	PILOT STUDY
(304) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 6823 ST CHARLES AVENUE NEW ORLEANS,LA70118	72-0423889	501C(3)	108,329	CLINICAL RESEARCH CENTER
(305) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 6823 ST CHARLES AVENUE NEW ORLEANS,LA70118	72-0423889	501C(3)	224,060	CF CARE CENTER
(306) THE AMERICAN SOCIETY OF GENE AND CELL THERAPY 20800 SWENSON DRIVE SUITE 300 WAUKESHA,WI53186	91-1766321	C CORP	300,000	THERAPEUTICS DISCOVERY RESEARCH
(307) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ALABAMA BOX 870136 TUSCALOOSA,AL35487	63-6001138	501C(3)	63,732	PILOT STUDY
(308) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF AR ACTING FOR AND ON BEHALF OF T 4301 WEST MARKHAM ST LITTLE ROCK,AR72205	71-6046242	U.S. STATE	42,419	ADULT CARE
(309) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF AR ACTING FOR AND ON BEHALF OF T 4301 WEST MARKHAM ST LITTLE ROCK,AR72205	71-6046242	U.S. STATE	138,500	CLINICAL RESEARCH CENTER
(310) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF AR ACTING FOR AND ON BEHALF OF T 4301 WEST MARKHAM ST LITTLE ROCK,AR72205	71-6046242	U.S. STATE	183,079	CF CARE CENTER
(311) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	93,880	CLINICAL RESEARCH
(312) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	96,776	CLINICAL RESEARCH STUDY
(313) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	101,735	TRAINING
(314) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	131,015	RESEARCH
(315) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	207,044	CLINICAL RESEARCH CENTER
(316) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	238,395	CF CARE CENTER
(317) THE CHILDREN'S MERCY HOSPITAL 2401 GILLHAM ROAD KANSAS CITY,MO64108	44-0605373	501C(3)	193,290	CF CARE CENTER
(318) THE CHILDREN'S MERCY HOSPITAL 2401 GILLHAM ROAD KANSAS CITY,MO64108	44-0605373	501C(3)	200,593	CLINICAL RESEARCH CENTER
(319) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND,OH44131	34-0714585	501C(3)	46,440	ADULT CARE
(320) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND,OH44131	34-0714585	501C(3)	72,712	CLINICAL RESEARCH CENTER
(321) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND,OH44131	34-0714585	501C(3)	128,350	CF CARE CENTER
(322) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND,OH44131	34-0714585	501C(3)	332,500	RESEARCH
(323) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND,OH44131	34-0714585	501C(3)	1,009,944	CLINICAL CARE RESEARCH
(324) THE CURATORS OF THE UNIVERSITY OF MISSOURI 115 BUSINESS LOOP 70 WEST COLUMBIA,MO652118230	43-6003859	501C(3)	81,820	ADULT CARE
(325) THE CURATORS OF THE UNIVERSITY OF MISSOURI 115 BUSINESS LOOP 70 WEST COLUMBIA,MO652118230	43-6003859	501C(3)	140,000	RESEARCH
(326) THE CURATORS OF THE UNIVERSITY OF MISSOURI 115 BUSINESS LOOP 70 WEST COLUMBIA,MO652118230	43-6003859	501C(3)	176,240	CF CARE CENTER
(327) THE DISTRACTORS 4208 1/2 INGRAHAM ST SAN DIEGO,CA92109	85-4369229	501C(3)	10,000	COMMUNITY IMPACT
(328) THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH 972 BRUSH HOLLOW ROAD WESTBURY,NY11590	11-2673595	501C(3)	159,860	CLINICAL RESEARCH CENTER
(329) THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH 972 BRUSH HOLLOW ROAD WESTBURY,NY11590	11-2673595	501C(3)	165,592	CLINICAL RESEARCH
(330) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL) 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	63,800	RESEARCH STUDY
(331) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL) 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	131,500	TRAINING
(332) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL) 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	152,757	ADULT CARE
(333) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL) 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	167,400	THERAPEUTICS DISCOVERY RESEARCH
(334) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL) 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	183,730	CLINICAL RESEARCH CENTER
(335) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL) 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	229,300	CF CARE CENTER
(336) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL) 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	311,920	CLINICAL CARE RESEARCH
(337) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL) 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	414,452	CLINICAL RESEARCH STUDY
(338) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL) 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	456,888	RESEARCH
(339) THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL) 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	1,023,760	QUALITY IMPROVEMENT
(340) THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON,NH03756	02-0222139	501C(3)	35,400	ADULT CARE
(341) THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON,NH03756	02-0222139	501C(3)	156,849	CLINICAL RESEARCH CENTER
(342) THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON,NH03756	02-0222139	501C(3)	224,515	CF CARE CENTER
(343) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	28,511	TRAINING
(344) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	34,418	ADHERENCE
(345) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	127,298	PILOT STUDY
(346) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	440,085	CF CARE CENTER
(347) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	499,999	THERAPEUTICS DISCOVERY RESEARCH
(348) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	539,036	RESEARCH
(349) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	927,550	CLINICAL RESEARCH STUDY
(350) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	1,178,428	CLINICAL RESEARCH CENTER
(351) THE JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	1,597,591	CLINICAL CARE RESEARCH
(352) THE MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD MILWAUKEE,WI532263548	39-0806261	501C(3)	124,983	CLINICAL RESEARCH CENTER
(353) THE MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD MILWAUKEE,WI532263548	39-0806261	501C(3)	360,561	CF CARE CENTER
(354) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH432101016	31-6025986	IRC 115	27,295	RESEARCH
(355) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH432101016	31-6025986	IRC 115	110,000	RESEARCH STUDY
(356) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH432101016	31-6025986	IRC 115	112,000	PILOT STUDY
(357) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH432101016	31-6025986	IRC 115	200,000	RESEARCH CENTER
(358) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA 1001 NORTH EMMET STREET CHARLOTTESVILLE,VA229044195	54-6001796	501C(3)	74,703	ADULT CARE
(359) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA 1001 NORTH EMMET STREET CHARLOTTESVILLE,VA229044195	54-6001796	501C(3)	120,897	CLINICAL RESEARCH CENTER
(360) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA 1001 NORTH EMMET STREET CHARLOTTESVILLE,VA229044195	54-6001796	501C(3)	264,930	CF CARE CENTER
(361) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS ONE SHIELDS AVENUE DAVIS,CA95618	94-6036494	501C(3)	41,100	ADULT CARE
(362) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS ONE SHIELDS AVENUE DAVIS,CA95618	94-6036494	501C(3)	56,000	PILOT STUDY
(363) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS ONE SHIELDS AVENUE DAVIS,CA95618	94-6036494	501C(3)	109,152	CLINICAL RESEARCH CENTER
(364) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS ONE SHIELDS AVENUE DAVIS,CA95618	94-6036494	501C(3)	160,520	CF CARE CENTER
(365) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10889 WILSHIRE BOULEVARD LOS ANGELES,CA900951406	95-6006143	501C(3)	46,440	ADULT CARE
(366) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10889 WILSHIRE BOULEVARD LOS ANGELES,CA900951406	95-6006143	501C(3)	168,000	CLINICAL CARE RESEARCH
(367) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10889 WILSHIRE BOULEVARD LOS ANGELES,CA900951406	95-6006143	501C(3)	187,750	CF CARE CENTER
(368) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10889 WILSHIRE BOULEVARD LOS ANGELES,CA900951406	95-6006143	501C(3)	502,100	THERAPEUTICS DISCOVERY RESEARCH
(369) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA,CA920930934	95-6006144	501C(3)	63,350	RESEARCH STUDY
(370) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA,CA920930934	95-6006144	501C(3)	84,000	PILOT STUDY
(371) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA,CA920930934	95-6006144	501C(3)	89,600	CLINICAL RESEARCH STUDY
(372) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA,CA920930934	95-6006144	501C(3)	94,613	CLINICAL RESEARCH CENTER
(373) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA,CA920930934	95-6006144	501C(3)	325,275	CF CARE CENTER
(374) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	63,350	RESEARCH STUDY
(375) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	89,634	CLINICAL RESEARCH CENTER
(376) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	100,000	CLINICAL RESEARCH STUDY
(377) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	195,190	PILOT STUDY
(378) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	201,500	TRAINING
(379) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	313,600	CLINICAL CARE RESEARCH
(380) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	375,815	CF CARE CENTER
(381) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	675,312	RESEARCH
(382) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	22,928	ADHERENCE
(383) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	41,377	PILOT STUDY
(384) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	46,440	ADULT CARE
(385) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	63,350	RESEARCH STUDY
(386) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	142,600	TRAINING
(387) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	236,339	CLINICAL RESEARCH CENTER
(388) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	356,000	THERAPEUTICS DISCOVERY RESEARCH
(389) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	529,644	CF CARE CENTER
(390) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	564,029	CLINICAL RESEARCH STUDY
(391) THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	584,253	CLINICAL CARE RESEARCH
(392) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 BAGLEY,MN56621	41-6007513	501C(3)	32,039	ADHERENCE
(393) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 BAGLEY,MN56621	41-6007513	501C(3)	34,059	CLINICAL RESEARCH
(394) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 BAGLEY,MN56621	41-6007513	501C(3)	55,922	PILOT STUDY
(395) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 BAGLEY,MN56621	41-6007513	501C(3)	61,566	CLINICAL RESEARCH STUDY
(396) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 BAGLEY,MN56621	41-6007513	501C(3)	83,024	RESEARCH STUDY
(397) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 BAGLEY,MN56621	41-6007513	501C(3)	141,219	TRAINING
(398) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 BAGLEY,MN56621	41-6007513	501C(3)	201,855	CLINICAL RESEARCH CENTER
(399) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 BAGLEY,MN56621	41-6007513	501C(3)	237,088	CLINICAL CARE RESEARCH
(400) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 BAGLEY,MN56621	41-6007513	501C(3)	301,870	ADULT CARE
(401) THE REGENTS OF THE UNIVERSITY OF MINNESOTA COURTHOUSE DEPT 106 BAGLEY,MN56621	41-6007513	501C(3)	538,911	CF CARE CENTER
(402) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	56,000	PILOT STUDY
(403) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	61,235	RESEARCH
(404) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	61,990	TRAINING
(405) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	179,389	THERAPEUTICS DISCOVERY RESEARCH
(406) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	247,374	CLINICAL RESEARCH CENTER
(407) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	428,096	CF CARE CENTER
(408) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	500,000	RESEARCH CENTER
(409) THE ROCKEFELLER UNIVERSITY 1230 YORK AVENUE NEW YORK,NY10065	13-1624158	501C(3)	68,050	RESEARCH STUDY
(410) THE ROCKEFELLER UNIVERSITY 1230 YORK AVENUE NEW YORK,NY10065	13-1624158	501C(3)	137,150	RESEARCH
(411) THE SCRIPPS RESEARCH INSTITUTE 10550 N TORREY PINES ROAD LA JOLLA,CA92307	33-0435954	501C(3)	34,025	RESEARCH STUDY
(412) THE TOLEDO HOSPITAL 2142 N COVE BLVD TOLEDO,OH43606	34-4428256	501C(3)	116,895	CLINICAL RESEARCH CENTER
(413) THE TOLEDO HOSPITAL 2142 N COVE BLVD TOLEDO,OH43606	34-4428256	501C(3)	182,895	CF CARE CENTER
(414) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 630 WEST 168TH STREET NEW YORK,NY100323702	13-5598093	501C(3)	37,828	ADULT CARE
(415) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 630 WEST 168TH STREET NEW YORK,NY100323702	13-5598093	501C(3)	56,000	PILOT STUDY
(416) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 630 WEST 168TH STREET NEW YORK,NY100323702	13-5598093	501C(3)	65,000	TRAINING
(417) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 630 WEST 168TH STREET NEW YORK,NY100323702	13-5598093	501C(3)	142,040	RESEARCH
(418) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 630 WEST 168TH STREET NEW YORK,NY100323702	13-5598093	501C(3)	145,600	CLINICAL CARE RESEARCH
(419) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 630 WEST 168TH STREET NEW YORK,NY100323702	13-5598093	501C(3)	295,328	CLINICAL RESEARCH CENTER
(420) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 630 WEST 168TH STREET NEW YORK,NY100323702	13-5598093	501C(3)	411,415	CF CARE CENTER
(421) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	34,714	ADHERENCE
(422) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	70,558	CLINICAL RESEARCH
(423) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	161,166	TRAINING
(424) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	183,468	RESEARCH STUDY
(425) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	306,879	PILOT STUDY
(426) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	375,729	CF CARE CENTER
(427) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	414,173	CLINICAL RESEARCH CENTER
(428) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	665,354	THERAPEUTICS DISCOVERY RESEARCH
(429) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	750,000	RESEARCH CENTER
(430) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	951,100	RESEARCH
(431) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	1,391,971	CLINICAL RESEARCH STUDY
(432) THE UNIVERSITY OF CENTRAL FLORIDA BOARD OF TRUSTEES 12201 RESEARCH PARKWAY ORLANDO,FL32826	59-2924021	170(B)(1)(A)(II)	56,000	PILOT STUDY
(433) THE UNIVERSITY OF CENTRAL FLORIDA BOARD OF TRUSTEES 12201 RESEARCH PARKWAY ORLANDO,FL32826	59-2924021	170(B)(1)(A)(II)	125,000	RESEARCH
(434) THE UNIVERSITY OF CHICAGO 225 EAST CHICAGO AVENUE CHICAGO,IL606112991	36-2177139	501C(3)	175,230	CF CARE CENTER
(435) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	39,315	QUALITY IMPROVEMENT
(436) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	41,139	ADULT CARE
(437) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	96,073	CLINICAL RESEARCH
(438) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	222,349	RESEARCH STUDY
(439) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	325,000	TRAINING
(440) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	333,170	PILOT STUDY
(441) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	550,000	RESEARCH CENTER
(442) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	551,559	CF CARE CENTER
(443) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	616,873	CLINICAL RESEARCH STUDY
(444) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	633,435	CLINICAL RESEARCH CENTER
(445) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	1,060,800	RESEARCH
(446) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	2,522,746	THERAPEUTICS DISCOVERY RESEARCH
(447) THE UNIVERSITY OF TENNESSEE 63 SOUTH DUNLAP STREET MEMPHIS,TN38163	62-6001636	IRC 115	55,996	PILOT STUDY
(448) THE UNIVERSITY OF TENNESSEE 63 SOUTH DUNLAP STREET MEMPHIS,TN38163	62-6001636	IRC 115	181,075	CF CARE CENTER
(449) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON 7000 FANNIN STREET HOUSTON,TX77030	74-1761309	501C(3)	240,593	CLINICAL RESEARCH STUDY
(450) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON 7000 FANNIN STREET HOUSTON,TX77030	74-1761309	501C(3)	1,066,172	THERAPEUTICS DISCOVERY RESEARCH
(451) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO 7703 FLOYD CURL DRIVE SAN ANTONIO,TX782293900	74-1586031	501C(3)	185,266	CLINICAL RESEARCH STUDY
(452) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO 7703 FLOYD CURL DRIVE SAN ANTONIO,TX782293900	74-1586031	501C(3)	304,258	CF CARE CENTER
(453) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS,TX753909020	75-6002868	170(B)(1)(A)(V)	28,144	ADHERENCE
(454) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS,TX753909020	75-6002868	170(B)(1)(A)(V)	41,142	ADULT CARE
(455) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS,TX753909020	75-6002868	170(B)(1)(A)(V)	131,243	TRAINING
(456) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS,TX753909020	75-6002868	170(B)(1)(A)(V)	249,967	THERAPEUTICS DISCOVERY RESEARCH
(457) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS,TX753909020	75-6002868	170(B)(1)(A)(V)	339,524	CLINICAL RESEARCH CENTER
(458) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS,TX753909020	75-6002868	170(B)(1)(A)(V)	486,570	CF CARE CENTER
(459) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS,TX753909020	75-6002868	170(B)(1)(A)(V)	587,842	CLINICAL RESEARCH STUDY
(460) THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL COLLEGE 85 SOUTH PROSPECT STREET BURLINGTON,VT05405	03-0179440	501C(3)	40,072	ADULT CARE
(461) THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL COLLEGE 85 SOUTH PROSPECT STREET BURLINGTON,VT05405	03-0179440	501C(3)	112,422	CLINICAL RESEARCH CENTER
(462) THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL COLLEGE 85 SOUTH PROSPECT STREET BURLINGTON,VT05405	03-0179440	501C(3)	138,767	RESEARCH
(463) THOMAS JEFFERSON UNIVERSITY 33 S 9TH STREET PHILADELPHIA,PA19107	23-1352651	501C(3)	56,539	CF CARE CENTER
(464) TRUSTEES OF BOSTON UNIVERSITY 881 COMMONWEALTH AVENUE BOSTON,MA02215	04-2103547	501C(3)	56,000	PILOT STUDY
(465) TRUSTEES OF BOSTON UNIVERSITY 881 COMMONWEALTH AVENUE BOSTON,MA02215	04-2103547	501C(3)	131,576	RESEARCH
(466) TRUSTEES OF DARTMOUTH COLLEGE OFFICE OF SPONSORED PROJECTS HANOVER,NH037551421	02-0222111	501C(3)	78,555	PILOT STUDY
(467) TRUSTEES OF DARTMOUTH COLLEGE OFFICE OF SPONSORED PROJECTS HANOVER,NH037551421	02-0222111	501C(3)	126,700	RESEARCH STUDY
(468) TRUSTEES OF DARTMOUTH COLLEGE OFFICE OF SPONSORED PROJECTS HANOVER,NH037551421	02-0222111	501C(3)	270,923	RESEARCH
(469) TRUSTEES OF DARTMOUTH COLLEGE OFFICE OF SPONSORED PROJECTS HANOVER,NH037551421	02-0222111	501C(3)	308,966	QUALITY IMPROVEMENT
(470) TRUSTEES OF DARTMOUTH COLLEGE OFFICE OF SPONSORED PROJECTS HANOVER,NH037551421	02-0222111	501C(3)	350,000	THERAPEUTICS DISCOVERY RESEARCH
(471) TRUSTEES OF DARTMOUTH COLLEGE OFFICE OF SPONSORED PROJECTS HANOVER,NH037551421	02-0222111	501C(3)	720,000	RESEARCH CENTER
(472) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN47401	35-6001673	501C(3)	46,440	ADULT CARE
(473) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN47401	35-6001673	501C(3)	83,930	QUALITY IMPROVEMENT
(474) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN47401	35-6001673	501C(3)	149,965	TRAINING
(475) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN47401	35-6001673	501C(3)	264,651	CLINICAL RESEARCH CENTER
(476) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN47401	35-6001673	501C(3)	468,538	CF CARE CENTER
(477) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN47401	35-6001673	501C(3)	1,079,815	CLINICAL CARE RESEARCH
(478) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN47401	35-6001673	501C(3)	1,374,272	CLINICAL RESEARCH STUDY
(479) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA19104	23-1352685	501C(3)	61,856	PILOT STUDY
(480) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA19104	23-1352685	501C(3)	64,535	CLINICAL RESEARCH
(481) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA19104	23-1352685	501C(3)	88,308	CLINICAL RESEARCH STUDY
(482) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA19104	23-1352685	501C(3)	145,600	CLINICAL CARE RESEARCH
(483) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA19104	23-1352685	501C(3)	158,594	ADULT CARE
(484) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA19104	23-1352685	501C(3)	214,511	THERAPEUTICS DISCOVERY RESEARCH
(485) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA19104	23-1352685	501C(3)	280,000	RESEARCH
(486) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA19104	23-1352685	501C(3)	326,700	CF CARE CENTER
(487) TUFTS MEDICAL CENTER 800 WASHINGTON STREET BOSTON,MA02111	04-3400617	501C(3)	38,300	CF CARE CENTER
(488) UNITED STATES ADULT CYSTIC FIBROSIS ASSOCIATION 9450 SOUTHWEST GEMINI DRIVE BEAVERTON,OR970087105	93-1036770	501C(3)	10,000	COMMUNITY IMPACT
(489) UNIVERSITY AT BUFFALO PEDIATRIC ASSOCIATES 1001 MAIN ST BUFFALO,NY14203	16-1238821	501C(3)	201,165	CF CARE CENTER
(490) UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES 11100 EUCLID AVENUE CLEVELAND,OH44106	34-1567805	501C(3)	106,424	ADULT CARE
(491) UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES 11100 EUCLID AVENUE CLEVELAND,OH44106	34-1567805	501C(3)	274,975	CF CARE CENTER
(492) UNIVERSITY OF CINCINNATI 51 GOODMAN DR CINCINNATI,OH452210222	31-6000989	501C(3)	50,000	CLINICAL RESEARCH STUDY
(493) UNIVERSITY OF CINCINNATI 51 GOODMAN DR CINCINNATI,OH452210222	31-6000989	501C(3)	78,898	CLINICAL RESEARCH CENTER
(494) UNIVERSITY OF CINCINNATI 51 GOODMAN DR CINCINNATI,OH452210222	31-6000989	501C(3)	227,843	CF CARE CENTER
(495) UNIVERSITY OF CONNECTICUT HEALTH CENTER 263 FARMINGTON AVENUE FARMINGTON,CT06032	52-1725543	501C(3)	56,000	PILOT STUDY
(496) UNIVERSITY OF FLORIDA SUITE 1250 EAST CAMPUS OFFICE BUILDING GAINESVILLE,FL326115500	59-6002052	IRC 115	35,640	ADULT CARE
(497) UNIVERSITY OF FLORIDA SUITE 1250 EAST CAMPUS OFFICE BUILDING GAINESVILLE,FL326115500	59-6002052	IRC 115	112,000	PILOT STUDY
(498) UNIVERSITY OF FLORIDA SUITE 1250 EAST CAMPUS OFFICE BUILDING GAINESVILLE,FL326115500	59-6002052	IRC 115	133,634	CLINICAL RESEARCH CENTER
(499) UNIVERSITY OF FLORIDA SUITE 1250 EAST CAMPUS OFFICE BUILDING GAINESVILLE,FL326115500	59-6002052	IRC 115	268,785	CF CARE CENTER
(500) UNIVERSITY OF GEORGIA RESEARCH FOUNDATION INC DEPARTMENT OF INFECTIOUS DI 310 EAST CAMPUS ROAD ATHENS,GA30602	58-1353149	501C(3)	56,000	PILOT STUDY
(501) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	50,000	CLINICAL RESEARCH STUDY
(502) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	56,000	PILOT STUDY
(503) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	72,500	TRAINING
(504) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	110,000	RESEARCH STUDY
(505) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	123,177	CLINICAL RESEARCH CENTER
(506) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	228,207	CF CARE CENTER
(507) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	512,000	RESEARCH
(508) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	800,000	RESEARCH CENTER
(509) UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	1,977,074	THERAPEUTICS DISCOVERY RESEARCH
(510) UNIVERSITY OF KANSAS CENTER FOR RESEARCH INC 2385 IRVING HILL ROAD LAWRENCE,KS66045	48-0680117	170(B)(1)(A)(II)	200,000	CLINICAL RESEARCH STUDY
(511) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC 3901 RAINBOW BLVD KANSAS CITY,KS66160	48-1108830	501C(3)	32,038	RESEARCH STUDY
(512) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC 3901 RAINBOW BLVD KANSAS CITY,KS66160	48-1108830	501C(3)	55,797	ADHERENCE
(513) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC 3901 RAINBOW BLVD KANSAS CITY,KS66160	48-1108830	501C(3)	75,041	TRAINING
(514) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC 3901 RAINBOW BLVD KANSAS CITY,KS66160	48-1108830	501C(3)	76,440	ADULT CARE
(515) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC 3901 RAINBOW BLVD KANSAS CITY,KS66160	48-1108830	501C(3)	164,492	CLINICAL RESEARCH CENTER
(516) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC 3901 RAINBOW BLVD KANSAS CITY,KS66160	48-1108830	501C(3)	265,455	CF CARE CENTER
(517) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 109 KINKEAD HALL LEXINGTON,KY40506	61-6033693	501C(3)	144,195	CLINICAL RESEARCH CENTER
(518) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 109 KINKEAD HALL LEXINGTON,KY40506	61-6033693	501C(3)	288,970	CF CARE CENTER
(519) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC 300 E MARKET STREET LOUISVILLE,KY402021959	61-1029626	501C(3)	10,800	PILOT STUDY
(520) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC 300 E MARKET STREET LOUISVILLE,KY402021959	61-1029626	501C(3)	86,101	CLINICAL RESEARCH CENTER
(521) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC 300 E MARKET STREET LOUISVILLE,KY402021959	61-1029626	501C(3)	229,130	CF CARE CENTER
(522) UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER 55 NORTH LAKE AVENUE WORCESTER,MA01655	04-3167352	IRC 115	42,630	ADULT CARE
(523) UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER 55 NORTH LAKE AVENUE WORCESTER,MA01655	04-3167352	IRC 115	86,797	CLINICAL RESEARCH CENTER
(524) UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER 55 NORTH LAKE AVENUE WORCESTER,MA01655	04-3167352	IRC 115	154,345	CF CARE CENTER
(525) UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER 55 NORTH LAKE AVENUE WORCESTER,MA01655	04-3167352	IRC 115	216,000	THERAPEUTICS DISCOVERY RESEARCH
(526) UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER 55 NORTH LAKE AVENUE WORCESTER,MA01655	04-3167352	IRC 115	280,000	RESEARCH
(527) UNIVERSITY OF MIAMI PO BOX 248106 CONTROLLERS OFFICE CORAL GABLES,FL331242912	59-0624458	501C(3)	76,064	ADULT CARE
(528) UNIVERSITY OF MIAMI PO BOX 248106 CONTROLLERS OFFICE CORAL GABLES,FL331242912	59-0624458	501C(3)	130,118	CLINICAL RESEARCH CENTER
(529) UNIVERSITY OF MIAMI PO BOX 248106 CONTROLLERS OFFICE CORAL GABLES,FL331242912	59-0624458	501C(3)	239,050	CF CARE CENTER
(530) UNIVERSITY OF NEBRASKA MEDICAL CENTER 987835 NEBRASKA MEDICAL CENTER OMAHA,NE681987835	47-0049123	501C(3)	94,513	CLINICAL RESEARCH CENTER
(531) UNIVERSITY OF NEBRASKA MEDICAL CENTER 987835 NEBRASKA MEDICAL CENTER OMAHA,NE681987835	47-0049123	501C(3)	384,755	CF CARE CENTER
(532) UNIVERSITY OF NEW MEXICO 1 UNIVERSITY OF NEW MEXICO ALBUQUERQUE,NM87131	85-6000642	IRC 115	174,540	CF CARE CENTER
(533) UNIVERSITY OF NOTRE DAME DU LAC 731 GRACE HALL NOTRE DAME,IN46556	35-0868188	501C(3)	215,600	CLINICAL RESEARCH STUDY
(534) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET PITTSBURGH,PA15260	25-0965591	501C(3)	56,000	PILOT STUDY
(535) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET PITTSBURGH,PA15260	25-0965591	501C(3)	188,791	CLINICAL CARE RESEARCH
(536) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET PITTSBURGH,PA15260	25-0965591	501C(3)	196,850	RESEARCH STUDY
(537) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET PITTSBURGH,PA15260	25-0965591	501C(3)	280,556	CLINICAL RESEARCH CENTER
(538) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET PITTSBURGH,PA15260	25-0965591	501C(3)	435,695	TRAINING
(539) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET PITTSBURGH,PA15260	25-0965591	501C(3)	585,782	CLINICAL RESEARCH STUDY
(540) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET PITTSBURGH,PA15260	25-0965591	501C(3)	678,916	RESEARCH CENTER
(541) UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET PITTSBURGH,PA15260	25-0965591	501C(3)	949,921	RESEARCH
(542) UNIVERSITY OF PITTSBURGH PHYSICIANS CLINICAL TRAIL RECEIPTS MAIL STOP UST 015801 600 GRANT ST PITTSBURGH,PA152192739	23-2919472	501C(3)	49,879	ADULT CARE
(543) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	39,805	ADULT CARE
(544) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	65,451	RESEARCH STUDY
(545) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	79,410	CLINICAL RESEARCH CENTER
(546) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	246,001	CF CARE CENTER
(547) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	280,000	THERAPEUTICS DISCOVERY RESEARCH
(548) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	560,000	RESEARCH
(549) UNIVERSITY OF SOUTH CAROLINA 1600 HAMPTON STREET COLUMBIA,SC29208	57-6001153	IRC 115	97,770	CF CARE CENTER
(550) UNIVERSITY OF SOUTH FLORIDA 4202 EAST FOWLER AVENUE TAMPA,FL336205800	59-3102112	IRC 115	76,400	CF CARE CENTER
(551) UNIVERSITY OF SOUTHERN CALIFORNIA DEPARTMENT OF CONTRACTS AND GRANTS LOS ANGELES,CA900890701	95-1642394	501C(3)	27,775	CLINICAL RESEARCH CENTER
(552) UNIVERSITY OF SOUTHERN CALIFORNIA DEPARTMENT OF CONTRACTS AND GRANTS LOS ANGELES,CA900890701	95-1642394	501C(3)	151,350	CF CARE CENTER
(553) UNIVERSITY OF SOUTHERN CALIFORNIA DEPARTMENT OF CONTRACTS AND GRANTS LOS ANGELES,CA900890701	95-1642394	501C(3)	167,318	CLINICAL RESEARCH STUDY
(554) UNIVERSITY OF SOUTHERN CALIFORNIA DEPARTMENT OF CONTRACTS AND GRANTS LOS ANGELES,CA900890701	95-1642394	501C(3)	224,000	THERAPEUTICS DISCOVERY RESEARCH
(555) UNIVERSITY OF TENNESSE MEDICAL CENTER 1924 ALCOA HIGHWAY KNOXVILLE,TN37920	31-1626179	501C(3)	154,055	CF CARE CENTER
(556) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER 11937 US HIGHWAY 271 TYLER,TX757083154	75-6001354	501C(3)	54,369	CF CARE CENTER
(557) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER 11937 US HIGHWAY 271 TYLER,TX757083154	75-6001354	501C(3)	73,875	CLINICAL RESEARCH CENTER
(558) UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE SALT LAKE CITY,UT841120922	87-6000525	501C(3)	61,999	TRAINING
(559) UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE SALT LAKE CITY,UT841120922	87-6000525	501C(3)	86,401	CLINICAL RESEARCH STUDY
(560) UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE SALT LAKE CITY,UT841120922	87-6000525	501C(3)	233,857	CLINICAL RESEARCH CENTER
(561) UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE SALT LAKE CITY,UT841120922	87-6000525	501C(3)	495,605	CF CARE CENTER
(562) UNIVERSITY OF VERMONT MEDICAL CENTER INC 111 COLCHESTER AVENUE BURLINGTON,VT05401	03-0219309	501C(3)	184,065	CF CARE CENTER
(563) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA98195	91-6001537	IRC 115	82,080	ADULT CARE
(564) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA98195	91-6001537	IRC 115	85,600	TRAINING
(565) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA98195	91-6001537	IRC 115	111,486	CF CARE CENTER
(566) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA98195	91-6001537	IRC 115	194,530	CLINICAL CARE RESEARCH
(567) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA98195	91-6001537	IRC 115	228,270	PILOT STUDY
(568) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA98195	91-6001537	IRC 115	279,983	RESEARCH
(569) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA98195	91-6001537	IRC 115	293,725	RESEARCH STUDY
(570) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA98195	91-6001537	IRC 115	365,369	CLINICAL RESEARCH CENTER
(571) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA98195	91-6001537	IRC 115	503,870	CLINICAL RESEARCH
(572) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA98195	91-6001537	IRC 115	534,681	THERAPEUTICS DISCOVERY RESEARCH
(573) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA98195	91-6001537	IRC 115	550,000	RESEARCH CENTER
(574) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA98195	91-6001537	IRC 115	1,115,469	CLINICAL RESEARCH STUDY
(575) UNIVERSITY PSYCHIATRIC PRACTICE INC 462 GRIDER STREET BUFFALO,NY14215	16-1426208	501C(3)	26,043	CF CARE CENTER
(576) UNIVERSITY SYSTEM OF NEW HAMPSHIRE 51 COLLEGE ROAD DURHAM,NH03824	02-6000937	501C(3)	3,531,889	QUALITY IMPROVEMENT
(577) UPSTATE AFFILIATE ORGANIZATION 300 E MCBEE AVE GREENVILLE,SC29601	81-1723202	501C(3)	104,275	CF CARE CENTER
(578) VALLEY CHILDREN'S HOSPITAL 9300 VALLEY CHILDRENS PLACE MADERA,CA93636	94-1294954	501C(3)	90,275	CLINICAL RESEARCH CENTER
(579) VALLEY CHILDREN'S HOSPITAL 9300 VALLEY CHILDRENS PLACE MADERA,CA93636	94-1294954	501C(3)	193,019	CF CARE CENTER
(580) VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVE SOUTH NASHVILLE,TN37232	35-2528741	501C(3)	75,000	RESEARCH
(581) VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVE SOUTH NASHVILLE,TN37232	35-2528741	501C(3)	134,890	CLINICAL RESEARCH CENTER
(582) VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVE SOUTH NASHVILLE,TN37232	35-2528741	501C(3)	378,136	CF CARE CENTER
(583) VARIETY CHILDREN'S HOSPITAL 3100 SW 62ND AVENUE MIAMI,FL331553009	59-0638499	501C(3)	54,150	CF CARE CENTER
(584) VHS CHILDREN'S HOSPITAL OF MICHIGAN INC 8663 WOODWARD AVE DETROIT,MI48201	27-2845064	C CORP	108,840	CF CARE CENTER
(585) VIA CHRISTI HOSPITAL WICHITA INC 929 N SAINT FRANCIS WICHITA,KS67214	48-1172106	501C(3)	199,639	CF CARE CENTER
(586) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	34,720	ADHERENCE
(587) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	35,640	ADULT CARE
(588) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	122,583	CLINICAL RESEARCH CENTER
(589) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	133,000	RESEARCH
(590) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	257,242	CF CARE CENTER
(591) WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM,NC27157	22-3849199	501C(3)	83,763	CLINICAL RESEARCH CENTER
(592) WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM,NC27157	22-3849199	501C(3)	177,415	CF CARE CENTER
(593) WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE ST LOUIS,MO631121408	43-0653611	501C(3)	62,500	RESEARCH
(594) WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE ST LOUIS,MO631121408	43-0653611	501C(3)	69,500	TRAINING
(595) WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE ST LOUIS,MO631121408	43-0653611	501C(3)	110,000	RESEARCH STUDY
(596) WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE ST LOUIS,MO631121408	43-0653611	501C(3)	145,600	CLINICAL CARE RESEARCH
(597) WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE ST LOUIS,MO631121408	43-0653611	501C(3)	253,579	CLINICAL RESEARCH CENTER
(598) WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE ST LOUIS,MO631121408	43-0653611	501C(3)	479,160	CF CARE CENTER
(599) WAYNE STATE UNIVERSITY 5057 WOODWARD AVENUE DETROIT,MI48202	38-6028429	501C(3)	12,389	ADULT CARE
(600) WAYNE STATE UNIVERSITY 5057 WOODWARD AVENUE DETROIT,MI48202	38-6028429	501C(3)	96,610	CF CARE CENTER
(601) WAYNE STATE UNIVERSITY 5057 WOODWARD AVENUE DETROIT,MI48202	38-6028429	501C(3)	123,159	CLINICAL RESEARCH CENTER
(602) WEST CHESTER UNIVERSITY 700 S HIGH STREET WEST CHESTER,PA19383	23-2417773	U.S. STATE	104,308	CLINICAL RESEARCH STUDY
(603) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION 886 CHESTNUT RIDGE ROAD MORGANTOWN,WV26506	55-0665758	501C(3)	33,360	ADHERENCE
(604) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION 886 CHESTNUT RIDGE ROAD MORGANTOWN,WV26506	55-0665758	501C(3)	85,148	CLINICAL RESEARCH CENTER
(605) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION 886 CHESTNUT RIDGE ROAD MORGANTOWN,WV26506	55-0665758	501C(3)	241,395	CF CARE CENTER
(606) WESTERN MICHIGAN UNIVERSITY SCHOOL OF MEDICINE 1000 OAKLAND DRIVE KALAMAZOO,MI49008	45-4135256	501C(3)	56,108	CF CARE CENTER
(607) WILLIAM MARSH RICE UNIVERSITY 6100 S MAIN MS-16 HOUSTON,TX770051892	74-1109620	170(B)(1)(A)(II)	6,000	TRAINING
(608) WILLIAM MARSH RICE UNIVERSITY 6100 S MAIN MS-16 HOUSTON,TX770051892	74-1109620	170(B)(1)(A)(II)	53,000	RESEARCH CENTER
(609) WILLIAM MARSH RICE UNIVERSITY 6100 S MAIN MS-16 HOUSTON,TX770051892	74-1109620	170(B)(1)(A)(II)	54,907	PILOT STUDY
(610) WILLIAM MARSH RICE UNIVERSITY 6100 S MAIN MS-16 HOUSTON,TX770051892	74-1109620	170(B)(1)(A)(II)	280,000	THERAPEUTICS DISCOVERY RESEARCH
(611) WRIGHT STATE UNIVERSITY 3640 COLONEL GLENN HIGHWAY DAYTON,OH45435	31-0732831	U.S. STATE	41,110	ADULT CARE
(612) YALE UNIVERSITY 150 MUNSON STREET NEW HAVEN,CT065208327	06-0646973	501C(3)	26,794	CLINICAL RESEARCH STUDY
(613) YALE UNIVERSITY 150 MUNSON STREET NEW HAVEN,CT065208327	06-0646973	501C(3)	75,990	RESEARCH STUDY
(614) YALE UNIVERSITY 150 MUNSON STREET NEW HAVEN,CT065208327	06-0646973	501C(3)	92,027	CLINICAL RESEARCH CENTER
(615) YALE UNIVERSITY 150 MUNSON STREET NEW HAVEN,CT065208327	06-0646973	501C(3)	112,000	PILOT STUDY
(616) YALE UNIVERSITY 150 MUNSON STREET NEW HAVEN,CT065208327	06-0646973	501C(3)	140,000	RESEARCH
(617) YALE UNIVERSITY 150 MUNSON STREET NEW HAVEN,CT065208327	06-0646973	501C(3)	172,000	TRAINING
(618) YALE UNIVERSITY 150 MUNSON STREET NEW HAVEN,CT065208327	06-0646973	501C(3)	181,735	CF CARE CENTER
(619) YALE UNIVERSITY 150 MUNSON STREET NEW HAVEN,CT065208327	06-0646973	501C(3)	810,000	THERAPEUTICS DISCOVERY RESEARCH

Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................. Bullet Image

228

Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50055P

Schedule I (Form 990) 2021

Page 2

Part III

Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" on Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance	(b) Number of recipients	(c) Amount of cash grant	(d) Amount of noncash assistance	(e) Method of valuation (book, FMV, appraisal, other)	(f) Description of noncash assistance

(1) FELLOWSHIPS	26	459,523
(2) COMMUNITY IMPACT	3	29,689
(2)
(3)
(4)
(5)
(6)
(7)

Part IV

Supplemental Information. Provide the information required in Part I, line 2; Part III, column (b); and any other additional information.

Return Reference

Explanation

PART I, LINE 2:

THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES AND THE FINAL SCIENTIFIC REPORT. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. FOR GRANTS TO FOR-PROFIT ORGANIZATIONS THE CF FOUNDATION HAS PROCEDURES IN PLACE TO 1) SEE THAT THE GRANT FUNDS AWARDED ARE SPENT ONLY FOR THE PURPOSE FOR WHICH THE GRANT IS MADE AND 2) OBTAIN FULL AND COMPLETE REPORTS FROM THE GRANTEE ORGANIZATION ON HOW THE FUNDS ARE SPENT CONSISTENT WITH IRS GUIDELINES FOR EXPENDITURE RESPONSIBILITY. THE ORGANIZATION PERFORMS PRE-GRANT INQUIRIES DEALING WITH MATTERS SUCH AS THE IDENTITY, HISTORY, ACTIVITIES, AND PRACTICES OF THE GRANTEE TO GAIN REASONABLE ASSURANCE THAT THEY WILL USE THE GRANT FUNDS FOR THE PURPOSE FOR WHICH RECEIVED. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE THAT INCLUDES THE FOLLOWING AGREEMENTS: ANY AMOUNTS NOT USED FOR PURPOSES OF THE GRANT WILL BE REPAID, THE GRANTEE WILL KEEP RECORDS OF RECEIPTS AND EXPENDITURES AND MAKE THEM AVAILABLE TO THE GRANTOR AT REASONABLE TIMES, AND FUNDS CANNOT BE USED TO INFLUENCE LEGISLATION OR UNDERTAKE ANY NONEXEMPT ACTIVITY.

SCHEDULE I, PART III:

SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS.

Schedule I (Form 990) 2021

Additional Data

Software ID:
Software Version:

- TIN:

Schedule J
(Form 990)

Department of the Treasury
Internal Revenue Service

Compensation Information

For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
SchJMediumBullet

Complete if the organization answered "Yes" on Form 990, Part IV, line 23.
SchJMediumBullet

Attach to Form 990.
SchJMediumBullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2021

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Questions Regarding Compensation

Yes

Check the appropiate box(es) if the organization provided any of the following to or for a person listed on Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.

First-class or charter travel Housing allowance or residence for personal use

Travel for companions Payments for business use of personal residence

Tax idemnification and gross-up payments Health or social club dues or initiation fees

Discretionary spending account Personal services (e.g., maid, chauffeur, chef)

If any of the boxes on Line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain .....

Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked on Line 1a? ....

Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.

Compensation committee Written employment contract

Independent compensation consultant Compensation survey or study

Form 990 of other organizations Approval by the board or compensation committee

During the year, did any person listed on Form 990, Part VII, Section A, line 1a, with respect to the filing organization or a related organization:

Receive a severance payment or change-of-control payment? .............

Yes

Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........

Yes

Participate in, or receive payment from, an equity-based compensation arrangement? .........

If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.

Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:

The organization? ....................

Any related organization? .......................

If "Yes," on line 5a or 5b, describe in Part III.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:

The organization? ..................

Any related organization? ......................

If "Yes," on line 6a or 6b, describe in Part III.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization provide any nonfixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............

Yes

Were any amounts reported on Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III ..........................

If "Yes" on line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50053T

Schedule J (Form 990) 2021

Page 2

Part II

Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.

For each individual whose compensation must be reported on Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.

(A) Name and Title		(B) Breakdown of W-2, 1099-MISC compensation, and/or 1099-NEC			(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)	(F) Compensation in column (B) reported as deferred on prior Form 990
(A) Name and Title		(i) Base compensation	(ii) Bonus & incentive compensation	(iii) Other reportable compensation	(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)
1JACK MAHLER MD CHIEF INVESTMENT OFFICER	(i) (ii)	591,799 ------------- 0	801,723 ------------- 0	7,599 ------------- 0	625,413 ------------- 0	32,011 ------------- 0	2,058,545 ------------- 0	349,170 ------------- 0
2MARC S GINSKY COO (UNTIL 8/2021)	(i) (ii)	307,612 ------------- 0	182,760 ------------- 0	755,439 ------------- 0	29,088 ------------- 0	39,362 ------------- 0	1,314,261 ------------- 0	208,550 ------------- 0
3MICHAEL P BOYLE MD PRESIDENT & CEO	(i) (ii)	544,205 ------------- 0	194,921 ------------- 0	4,977 ------------- 0	404,233 ------------- 0	43,657 ------------- 0	1,191,993 ------------- 0	67,071 ------------- 0
4ERIC KOEHRSEN MANAGING DIRECTOR, INVESTMENTS	(i) (ii)	366,062 ------------- 0	429,351 ------------- 0	1,168 ------------- 0	174,199 ------------- 0	42,657 ------------- 0	1,013,437 ------------- 0	136,176 ------------- 0
5EARL LEE MANAGING DIRECTOR, INVESTMENTS	(i) (ii)	415,733 ------------- 0	308,053 ------------- 0	1,097 ------------- 0	175,456 ------------- 0	14,867 ------------- 0	915,206 ------------- 0	0 ------------- 0
6WILLIAM SKACH MD EVP & CHIEF SCIENTIFIC OFFICER	(i) (ii)	513,545 ------------- 0	135,245 ------------- 0	4,572 ------------- 0	141,077 ------------- 0	35,820 ------------- 0	830,259 ------------- 0	44,369 ------------- 0
7VERA H TWIGG CFO (UNTIL 7/2021)	(i) (ii)	240,543 ------------- 0	107,550 ------------- 0	268,646 ------------- 0	95,878 ------------- 0	14,203 ------------- 0	726,820 ------------- 0	107,439 ------------- 0
8BRUCE MARSHALL MD EVP & CHIEF MEDICAL OFFICER	(i) (ii)	500,000 ------------- 0	74,072 ------------- 0	4,572 ------------- 0	136,453 ------------- 0	0 ------------- 0	715,097 ------------- 0	0 ------------- 0
9JOHN P CLANCY MD VP, CLINICAL RESEARCH	(i) (ii)	407,258 ------------- 0	73,952 ------------- 0	4,035 ------------- 0	82,642 ------------- 0	39,716 ------------- 0	607,603 ------------- 0	0 ------------- 0
10PRESTON CAMPBELL MD FORMER CEO & STRATEGIC ADVISOR	(i) (ii)	291,363 ------------- 0	105,144 ------------- 0	2,988 ------------- 0	171,210 ------------- 0	30,142 ------------- 0	600,847 ------------- 0	105,144 ------------- 0
11CHRIS GEGELYS CHIEF LEGAL OFFICER & SECRETARY	(i) (ii)	400,966 ------------- 0	60,199 ------------- 0	3,994 ------------- 0	77,034 ------------- 0	43,657 ------------- 0	585,850 ------------- 0	0 ------------- 0
12GENTIANA AROVAS INVESTMENT OPERATIONS DIRECTOR	(i) (ii)	360,205 ------------- 0	105,840 ------------- 0	1,444 ------------- 0	74,448 ------------- 0	42,657 ------------- 0	584,594 ------------- 0	0 ------------- 0
13ANTHONY DURMOWICZ MD VP, CLINICAL DEVELOPMENT	(i) (ii)	424,420 ------------- 0	55,093 ------------- 0	6,360 ------------- 0	78,791 ------------- 0	2,000 ------------- 0	566,664 ------------- 0	0 ------------- 0
14MAUREEN FRASER SVP, FIELD MNGMT (UNTIL 5/2021)	(i) (ii)	119,965 ------------- 0	34,141 ------------- 0	331,309 ------------- 0	49,794 ------------- 0	25,548 ------------- 0	560,757 ------------- 0	0 ------------- 0
15IRENA BARISIC AS OF 62021 EVP, CFAO & ASST SEC. & ASST TRSR	(i) (ii)	286,373 ------------- 0	60,000 ------------- 0	570 ------------- 0	28,569 ------------- 0	1,266 ------------- 0	376,778 ------------- 0	0 ------------- 0

Schedule J (Form 990) 2021

Page 3

Part III

Supplemental Information

Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II. Also complete this part for any additional information.

Return Reference	Explanation
PART I, LINE 7	SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, PARTICIPATED IN THE FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENTS OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS.
PART I, LINE 4A:	A FORMER OFFICER LISTED ON THE FORM 990, PART VII, SECTION A RECEIVED PAYMENTS UNDER A SEVERANCE ARRANGEMENT, AS DESCRIBED IN FURTHER DETAIL IN SCHEDULE J, PART III, FOOTNOTE 10, BELOW.
PART I, LINE 4B:	SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN: CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE, INCLUDING THE AMOUNT OF ANY PAYMENT MADE BY THE PLAN DURING THE REPORTING YEAR, IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW. A) NAME: M. BOYLE, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $544,205; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $127,850, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $67,071; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM AND OTHER TAXABLE BENEFITS- $4,977,; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $29,088, SERP (4) - $100,000, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $275,145; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $32,862, EMPLOYEE CONTRIBUTION TO HEALTH SAVINGS ACCOUNT BENEFIT - $6,200, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $4,595; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $67,071. CYSTIC FIBROSIS FOUNDATION. (A) NAME: M. GINSKY.; (B)(I) BASE COMPENSATION: BASE SALARY - $307,613; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $94,205, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $88,555; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $2,828, SECTION 457(B) PLAN (5) - $19,500, VESTED SERP ACCOUNT (7) - $189,841, SEVERANCE (10) - $523,362, PTO PAYOUT - $19,908; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $29,088; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $32,958, EMPLOYEE CONTRIBUTION TO HEALTH SAVINGS ACCOUNT BENEFIT - $3,577, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $2,828; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $208,550. CYSTIC FIBROSIS FOUNDATION. (A) NAME: I. BARISIC; (B)(I) BASE COMPENSATION: BASE SALARY - $286,373; (B)(II) BONUS & INCENTIVE COMPENSATION: BONUS - $60,000; (B)(III) GROUP TERM LIFE INSURANCE PREMIUM - $570; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $28,569; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $1,101, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $165. CYSTIC FIBROSIS FOUNDATION. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $240,543; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $69,895, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $37,655; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $19,500, SECTION 457(B) PLAN DISTRIBUTION (11) - $154,180, VESTED SERP ACCOUNT (8) - $94,966; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $29,088, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $66,790; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $10,526, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $507, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $3,170; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) $107,439.
CYSTIC FIBROSIS FOUNDATION. (A) NAME: J. MAHLER; (B)(I)	BASE COMPENSATION: BASE SALARY - $591,799; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (9) - $801,723; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $7,523; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $29,088, SERP (4) - $100,000, DEFERRED RETENTION INCENTIVE (9) $496,325; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $22,810, EMPLOYEE CONTRIBUTION TO HEALTH SAVINGS ACCOUNT BENEFIT - $6,200, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $3,001; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $349,170. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $291,363; (B)(II) BONUS & INCENTIVE COMPENSATION: LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $105,144; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM AND OTHER - $2,988; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $29,088, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $142,122; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT -$21,505, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,750, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,887; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $105,144. (1) THIS IS AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2021 PLAN YEAR. (3) THIS AMOUNT IS INCLUDED IN COLUMN B OF THIS FORM 990 AND HAS ALREADY BEEN PREVIOUSLY REPORTED AS COMPENSATION ON PRIOR YEARS' FORM 990S, AND THEREFORE (AS REQUIRED BY THE INSTRUCTIONS) IS DOUBLE-REPORTED. (4) A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING THE VESTING DATE DESIGNATED BY CFF (WHICH IS EITHER A SPECIFIED AGE OR DATE, DEPENDING ON THE PARTICIPANT). C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5) A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE ROLLED-OVER TO ANOTHER 457(B) PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS ($19,500 FOR 2021). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C) ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2021 (I.E., WITH RESPECT TO THE 2019-2021, 2020-2022 AND 2021-2023 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/21, 12/31/22 AND 12/31/23 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2019-2021, 2020-2022 AND 2021-2023 PERFORMANCE PERIODS, RESPECTIVELY. THE AWARD RELATING TO THE 3-YEAR PERFORMANCE PERIOD ENDING 12/31/20 WAS PAID IN 2021, AND IS PROPERLY REPORTED AGAIN (AS COMPENSATION IN COLUMN (B)(II)) ON THIS FORM 990 (EVEN THOUGH AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2020, 2019 AND 2018 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS). (7) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2021 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH THE INDIVIDUAL RECEIVED CONTRIBUTIONS FROM 2017-2021. AS REQUIRED, A PORTION OF THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B (III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (C). THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (8) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2021 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH THE INDIVIDUAL RECEIVED CONTRIBUTIONS FROM 2019-2021. AS REQUIRED, A PORTION OF THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B (III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (C). THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. A PORTION OF THIS AMOUNT ALSO REFLECTS A DISTRIBUTION OF POST-VESTING DATE EARNINGS GENERATED ON AMOUNTS THAT PREVIOUSLY BECAME VESTED AND WERE REPORTED AS TAXABLE COMPENSATION ON A PRIOR YEAR'S FORM 990. (9) A. THE INVESTMENT DEPARTMENT INCENTIVE AND RETENTION PLAN PROVIDES AN AWARD THAT MAY BE EARNED SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. UNTIL A PARTICIPANT REACHES AGE 63, 50% OF THE ANNUAL AWARD IS PAID FOLLOWING THE COMPLETION OF THE PERFORMANCE YEAR AND THE REMAINING 50% IS PAID AS DESCRIBED BELOW. AFTER A PARTICIPANT REACHES AGE 63, 100% OF THE ANNUAL AWARD IS PAID FOLLOWING THE COMPLETION OF THE PERFORMANCE YEAR. B. UNDER THE PLAN, UNTIL THE PARTICIPANT REACHES AGE 63, THE REMAINING 50% OF THE EARNED AWARD IS A DEFERRED RETENTION INCENTIVE. THIS DEFERRED RETENTION INCENTIVE IS SUBJECT TO A SUBSTANTIAL RISK OF FORFEITURE. THE DEFERRED RETENTION INCENTIVE BECOMES VESTED ON MARCH 31 TWO YEARS AFTER IT IS DETERMINED THE AWARD HAS BEEN EARNED AND IS PAID IMMEDIATELY THEREAFTER. THE DEFERRED RETENTION INCENTIVE IS FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT OR IS TERMINATED FOR CAUSE PRIOR TO ATTAINING THE VESTNG DATE. DEFERRED INTERESTS ARE SUBJECT TO THE CLAIMS OF CFF'S BAKRPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, THE PARTICIPANT WOULD BECOME A GENERAL UNSECURED CREDITOR OF CFF. C. THE PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. D. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE PLAN AT ANY TIME. (10) AS PART OF A SEVERANCE AGREEMENT, THE EXECUTIVE RECEIVED THIS AMOUNT, THE SEVERANCE AMOUNT WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT AND APPROVED BY THE ORGANIZATION'S COMPENSATION COMMITTEE IN ACCORDANCE WITH THE IRS'S INTERMEDIATE SANCTIONS RULES. (11) THIS AMOUNT WAS DISTRIBUTED AND TAXABLE IN 2021 UNDER THE 457(B) PLAN DESCRIBED IN FOOTNOTE (5) ABOVE. A PORTION OF THE CONTRIBUTIONS TO THIS 457(B) PLAN THAT GENERATED THE AMOUNT REPORTED IN COLUMN B (III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (B). THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990.

Schedule J (Form 990) 2021

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE M
(Form 990)

Department of the Treasury

Internal Revenue Service

Noncash Contributions

Complete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image

Attach to Form 990.
Right pointing arrow large image

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2021

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Types of Property

	(a) Check if applicable	(b) Number of contributions or items contributed	(c) Noncash contribution amounts reported on Form 990, Part VIII, line 1g	(d) Method of determining noncash contribution amounts
1 Art—Works of art ....
2 Art—Historical treasures .
3 Art—Fractional interests ..
4 Books and publications ..
5 Clothing and household goods .......
6 Cars and other vehicles ..	X	44	55,288	NET CASH RECEIPTS
7 Boats and planes ....
8 Intellectual property ...
9 Securities—Publicly traded .	X	99	1,653,343	NET CASH RECEIPTS
10 Securities—Closely held stock .
11 Securities—Partnership, LLC, or trust interests ....
12 Securities—Miscellaneous ..
13 Qualified conservation contribution—Historic structures .....
14 Qualified conservation contribution—Other ...
15 Real estate—Residential .
16 Real estate—Commercial ..
17 Real estate—Other ...
18 Collectibles .....
19 Food inventory ...
20 Drugs and medical supplies .
21 Taxidermy ......
22 Historical artifacts ....
23 Scientific specimens ..
24 Archeological artifacts ...
25 Other ( TANGIBLE AUCTION ITEMS )	X	5,952	2,609,935	NET CASH RECEIPTS
26 Other ( )
27 Other ( )
28 Other ( )

Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement

Yes

30a

During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that it must hold for at least three years from the date of the initial contribution, and which isn't required to be used for exempt purposes for the entire holding period? ...................

30a

If "Yes," describe the arrangement in Part II.

Does the organization have a gift acceptance policy that requires the review of any nonstandard contributions?

Yes

32a

Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash

contributions? ..........................

32a

Yes

If "Yes," describe in Part II.

If the organization didn't report an amount in column (c) for a type of property for which column (a) is checked,

describe in Part II.

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 51227J

Schedule M (Form 990) (2021)

Page 2

Part IISupplemental Information. Provide the information required by Part I, lines 30b, 32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.

Return Reference	Explanation
SCHEDULE M, PART I, LINE 6:	THIRD PARTY SELLER CYSTIC FIBROSIS FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS.

Schedule M (Form 990) (2021)

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE O
(Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet

Attach to Form 990 or 990-EZ.
MediumBullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2021

Open to Public
Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Return Reference	Explanation
FORM 990, PART III, LINE 1:	THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION IS TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH QUALITY, SPECIALIZED CARE.
FORM 990, PART III, LINE 4A:	MEDICAL PROGRAMS - SINCE 1955, THE CYSTIC FIBROSIS FOUNDATION HAS BEEN DEDICATED TO CURING AND CONTROLLING CYSTIC FIBROSIS (CF). THE CYSTIC FIBROSIS FOUNDATION IS THE WORLD'S LEADER IN THE SEARCH FOR A CURE FOR CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE THAT AFFECTS MORE THAN 32,100 PEOPLE IN THE UNITED STATES, AND 70,000 WORLDWIDE. THE CF FOUNDATION HAS AND CONTINUES TO FUND HUNDREDS OF MILLIONS OF DOLLARS IN RESEARCH COSTS TO HELP DISCOVER/DEVELOP EFFECTIVE CF DRUGS AND THERAPIES. IN 2021, THE CF FOUNDATION INVESTED $266 MILLION INTO RESEARCH AND CARE. DUE IN PART TO THE FOUNDATION'S EFFORTS, THE LIFE EXPECTANCY OF PEOPLE WITH CF HAS MORE THAN DOUBLED IN THE LAST 30 YEARS, AND RESEARCH TO FIND A CURE IS MORE PROMISING THAN EVER BEFORE. THE CF FOUNDATION HAS ATTRACTED INDUSTRY TO JOIN ITS MISSION BY FUNDING DRUG DISCOVERY AND DEVELOPMENT RESEARCH CONDUCTED BY BIOTECHNOLOGY COMPANIES. IT ALSO PROVIDES MATCHING AWARDS TO CF DRUG DEVELOPERS FOR CF RESEARCH AND FUNDS A SPECIALIZED CF CLINICAL TRIALS NETWORK OF NEARLY 90 FOUNDATION-ACCREDITED CARE CENTERS. AS A RESULT OF THIS FUNDING, IN 2021 THE CF DRUG DEVELOPMENT PIPELINE HAD 42 THERAPIES IN DEVELOPMENT IN ADDITION TO 16 FDA APPROVED TREATMENTS THAT ADDRESS COMPLICATIONS LIKE INFECTIONS AND A POTENTIAL CURE. THE TREATMENT AND CARE PROTOCOLS DEVELOPED BY THE CF FOUNDATION ARE HELPING TENS OF THOUSANDS OF PEOPLE WITH THE DISEASE LIVE LONGER, HEALTHIER LIVES. TO SUPPORT ITS MISSION, THE FOUNDATION ALSO FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF MORE THAN 130 CARE CENTERS. THIS NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. IN 2021, THE FOUNDATION PROVIDED MORE THAN $47 MILLION OF SUPPORT FOR CARE CENTERS AND CLINICIANS. THE FOUNDATION ALSO MANAGES A PATIENT REGISTRY OF PEOPLE WITH CF, COLLECTING INFORMATION ON THE HEALTH STATUS OF MORE THAN 31,411 PEOPLE WITH CF AND PROVIDING CAREGIVERS AND RESEARCHERS CRITICAL INFORMATION. THIS INVALUABLE TOOL HELPS IDENTIFY NEW HEALTH TRENDS AND EFFECTIVE TREATMENTS AND IMPROVE THE QUALITY OF CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR OTHER NONPROFIT HEALTH ORGANIZATIONS, INCLUDING OTHER CF ADVOCACY GROUPS.
FORM 990, PART III, LINE 4B:	COMMUNITY SERVICES - THE FOUNDATION PROVIDES MUCH-NEEDED SUPPORT FOR PATIENTS AND THEIR FAMILIES AS THEY MANAGE THE PHYSICAL, EMOTIONAL, AND FINANCIAL CHALLENGES OF LIVING WITH CF FROM SUPPORTING SPECIALIZED QUALITY CF CARE, TO PROVIDING INFORMATION AND RESOURCES TO HELP PEOPLE WITH CF BECOME EFFECTIVE PARTNERS IN THEIR CARE, TO DEVELOPING PROGRAMS TO HELP CONNECT PEOPLE WITH CF AND THEIR LOVED ONES WITH OTHERS IN THE CF COMMUNITY SO THEY FEEL LESS ALONE. APPROXIMATELY 32,100 PEOPLE WITH CF WERE SERVED IN 2021, INCLUDING APPROXIMATELY 779 INDIVIDUALS WHO WERE NEWLY DIAGNOSED. LACK OF ADEQUATE INSURANCE COVERAGE FOR CF THERAPIES HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. COMPASS IS A HIGHLY PERSONALIZED SERVICE TAILORED TO AN INDIVIDUAL'S CIRCUMSTANCES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TO MUCH-NEEDED CF THERAPIES AND CARE. IN 2021, SKILLED COMPASS CASE MANAGERS FIELDED MORE THAN 10,000 REQUESTS FROM PEOPLE WITH CF, THEIR FAMILIES, AND THEIR PROVIDER NETWORK, HELPING PEOPLE BETTER UNDERSTAND AND MAXIMIZE THEIR INSURANCE COVERAGE AND BENEFITS, AND GET HELP WITH OTHER NEEDS RELATED TO DAILY LIFE WITH CF. CASE MANAGERS ALSO ASSISTED WITH FINDING RESOURCES FOR ISSUES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. TODAY, MORE THAN HALF OF ALL PEOPLE WITH CF ARE AGE 18 OR OLDER. IN 2021, APPROXIMATELY 1,175 PEOPLE WITH CF AND THEIR FAMILY MEMBERS JOINED VIRTUAL EVENTS, INCLUDING BREATHECON, RESEARCHCON, AND CF MINICON: TRANSPLANT, DESIGNED BY AND FOR ADULTS WITH CF, THEIR FAMILIES, CLINICIANS, AND RESEARCHERS. THESE GATHERINGS PROVIDED AN OPPORTUNITY FOR THE CF COMMUNITY TO CONNECT, SHARE, AND LEARN FROM PEERS THROUGH OPEN AND HONEST DIALOGUE.
FORM 990, PART III, LINE 4C:	PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION - TO SUPPORT ITS MISSION, THE CF FOUNDATION CREATED EDUCATIONAL CONTENT DESIGNED TO INFORM AND SUPPORT PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS, AND THE GENERAL PUBLIC ABOUT THE DISEASE. IN 2021, THERE WERE 289 PUBLICATIONS AND 32 VIDEOS PRODUCED AND MADE AVAILABLE TO SUPPORT EDUCATION AND AWARENESS. YEAR-ROUND MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS, AND ALLIED HEALTH PROFESSIONALS AND CREATE OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2021, OVER 3,033,553 UNIQUE VISITORS CAME TO THE CF FOUNDATION'S WEBSITE. THE FOUNDATION LAUNCHED A NEW WEBSITE IN 2021 TO BETTER SUPPORT AND INFORM PEOPLE WITH CF AND THEIR FAMILIES, CLINICIANS, AND RESEARCHERS. IN ADDITION TO MANY UPDATED ARTICLES AND CONTENT SECTIONS BUILT FOR THE NEW WEBSITE, THE FOUNDATION PUBLISHED 98 BLOG POSTS.
FORM 990, PART VI, SECTION B, LINE 11B	REVIEW OF 990 BY GOVERNING BODY THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A DRAFT OF THE FORM 990 PRIOR TO ITS BEING FILED, WITH SUFFICIENT TIME FOR REVIEW AND COMMENT ALLOWED. THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES AND THE FOUNDATION'S ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. THE AUDIT COMMITTEE OF THE BOARD OF TRUSTEES ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. IN ALL CASES THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED.
FORM 990, PART VI, SECTION B, LINE 12C	CONFLICT OF INTEREST MONITORING A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. POTENTIAL CONFLICTS ARE REPORTED TO THE GOVERNANCE COMMITTEE OR THE BOARD OF TRUSTEES. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF TRUSTEES, THE INTERESTED TRUSTEE OR OFFICER IS REQUIRED TO BE EXCUSED FROM THE ROOM IN WHICH THE BOARD OR ITS COMMITTEE IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2021 AND HAD NO UNRESOLVED CONFLICTS OF INTEREST.
FORM 990, PART VI, SECTION B, LINE 15	DETERMINING COMPENSATION: LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE AND MEDICAL TALENT TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE CF FOUNDATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. (4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVE'S HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVE'S ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. (5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEE'S COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT, COO AND SECRETARY EXECUTIVE VICE PRESIDENT AND CFAO CHIEF INVESTMENT OFFICER SENIOR VP, THERAPEUTICS DEVELOPMENT EXECUTIVE VICE PRESIDENT & CHIEF SCIENTIFIC OFFICER EXECUTIVE VICE PRESIDENT & CHIEF MEDICAL OFFICER THE PROCESS WAS LAST UNDERTAKEN IN 2020 WITH RESPECT TO COMPENSATION TO BE PAID IN 2021 TO ALL THE OFFICERS/KEY EMPLOYEES NAMED ABOVE.
FORM 990, PART VI, SECTION C, LINE 19	PUBLIC INSPECTION FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG AND THE ORGANIZATION'S WEBSITE PROVIDED A DIRECT LINK TO ITS FORM 990 ON GUIDESTAR.ORG. THE FOUNDATION'S GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE NATIONAL OFFICE OF THE CYSTIC FIBROSIS FOUNDATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2021. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2021.
FORM 990, PART VI, LINE 10B:	CYSTIC FIBROSIS FOUNDATION HAS NUMEROUS OFFICES LOCATED ACROSS THE UNITED STATES WHICH ADHERE TO THE POLICIES AND PROCEDURES OF THE ORGANIZATION.

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 51056K

Schedule O (Form 990) 2021

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE R
(Form 990)

Department of the Treasury
Internal Revenue Service

Related Organizations and Unrelated Partnerships

Complete if the organization answered "Yes" on Form 990, Part IV, line 33, 34, 35b, 36, or 37.
MediumBullet

Attach to Form 990.
MediumBullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2021

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Identification of Disregarded Entities. Complete if the organization answered "Yes" on Form 990, Part IV, line 33.

(a) Name, address, and EIN (if applicable) of disregarded entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Total income	(e) End-of-year assets	(f) Direct controlling entity

Part II

Identification of Related Tax-Exempt Organizations. Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related tax-exempt organizations during the tax year.

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Exempt Code section	(e) Public charity status (if section 501(c)(3))	(f) Direct controlling entity	(g) Section 512(b)(13) controlled entity?
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Exempt Code section	(e) Public charity status (if section 501(c)(3))	(f) Direct controlling entity	Yes	No
(1)CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC 4550 MONTGOMERY AVE STE 110 BETHESDA,MD20814 91-2059167	RESEARCH	MD	501(C)(3)	LINE 12A, I	CFF	Yes

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50135Y

Schedule R (Form 990) 2021

Page 2

Part III

Identification of Related Organizations Taxable as a Partnership. Complete if the organization answered "Yes" on Form 990, Part IV, line 34, because it had one or more related organizations treated as a partnership during the tax year.

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(e) Predominant income(related, unrelated, excluded from tax under sections 512-514)	(f) Share of total income	(g) Share of end-of-year assets	(h) Disproprtionate allocations?		(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	(j) General or managing partner?		(k) Percentage ownership
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity		(f) Share of total income	(g) Share of end-of-year assets	Yes	No	(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	Yes	No	(k) Percentage ownership
(1) NANTAHALA CAPITAL PARTNERS QR LP 130 MAIN ST 2ND FLOOR NEW CANNAN,CT06840	INVESTMENTS	CT		EXCLUDED	-8,814,871	74,703,104		No			No	98.210 %
(2) LF-CFF INCUBATOR FUND LP 800 BOYLSTON STREET SUITE 1555 BOSTON,MA02199	INVESTMENTS	DE		EXCLUDED	-393,812	800,795		No			No	100.000 %
(3) SAGACIA FUND LP 2777 SUMMER STREET SUITE 301 STAMFORD,CT06905	INVESTMENTS	DE		EXCLUDED	-7,526,501	147,956,206		No			No	56.360 %

Part IV

Identification of Related Organizations Taxable as a Corporation or Trust. Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related organizations treated as a corporation or trust during the tax year.

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(e) Type of entity (C corp, S corp, or trust)	(f) Share of total income	(g) Share of end-of-year assets	(h) Percentage ownership	(i) Section 512(b)(13) controlled entity?
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(e) Type of entity (C corp, S corp, or trust)	(f) Share of total income	(g) Share of end-of-year assets	(h) Percentage ownership	Yes	No
(1) TSSP ROTATIONAL CREDIT FEEDER LP UGLAND HOUSE SOUTH CHURCH ST GEORGE TOWN KY1-1104 CJ	INVESTMENTS	CJ	N/A	C	5,734,034	384,237	100.000 %	Yes
(2) CHARITABLE REMAINDER TRUST (2)	FIDUCIARY	CA	N/A	T					No
(3) CHARITABLE REMAINDER TRUST	FIDUCIARY	TN	N/A	T					No
(4) CHARITABLE REMAINDER TRUST	FIDUCIARY	NM	N/A	T					No
(5) PERPETUAL TRUST	FIDUCIARY	MA	N/A	T					No

Schedule R (Form 990) 2021

Page 3

Part V

Transactions With Related Organizations. Complete if the organization answered "Yes" on Form 990, Part IV, line 34, 35b, or 36.

Note. Complete line 1 if any entity is listed in Parts II, III, or IV of this schedule.

Yes

1 During the tax year, did the orgranization engage in any of the following transactions with one or more related organizations listed in Parts II-IV?

a Receipt of (i) interest, (ii) annuities, (iii) royalties, or (iv) rent from a controlled entity .....................

b Gift, grant, or capital contribution to related organization(s) ............................

Yes

c Gift, grant, or capital contribution from related organization(s) ............................

d Loans or loan guarantees to or for related organization(s) ............................

e Loans or loan guarantees by related organization(s) ............................

f Dividends from related organization(s) ............................

g Sale of assets to related organization(s) ............................

h Purchase of assets from related organization(s) ............................

i Exchange of assets with related organization(s) ............................

j Lease of facilities, equipment, or other assets to related organization(s) .......................

k Lease of facilities, equipment, or other assets from related organization(s) ......................

l Performance of services or membership or fundraising solicitations for related organization(s) .....................

m Performance of services or membership or fundraising solicitations by related organization(s) .................

n Sharing of facilities, equipment, mailing lists, or other assets with related organization(s) ...................

o Sharing of paid employees with related organization(s) ............................

p Reimbursement paid to related organization(s) for expenses ............................

q Reimbursement paid by related organization(s) for expenses ............................

r Other transfer of cash or property to related organization(s) ............................

s Other transfer of cash or property from related organization(s) ............................

Yes

If the answer to any of the above is "Yes," see the instructions for information on who must complete this line, including covered relationships and transaction thresholds.

(a) Name of related organization	(b) Transaction type (a-s)	(c) Amount involved	(d) Method of determining amount involved
(1) TSSP ROTATIONAL CREDIT FEEDER LP	S	139,975,845	CASH
(2) SAGACIA FUND LP	B	10,000,000	CASH
(3) LF-CFF INCUBATOR FUND LP	B	1,194,607	CASH

Schedule R (Form 990) 2021

Page 4

Part VI

Unrelated Organizations Taxable as a Partnership. Complete if the organization answered "Yes" on Form 990, Part IV, line 37.

Provide the following information for each entity taxed as a partnership through which the organization conducted more than five percent of its activities (measured by total assets or gross revenue) that was not a related organization. See instructions regarding exclusion for certain investment partnerships.

(a) Name, address, and EIN of entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	(e) Are all partners section 501(c)(3) organizations?		(f) Share of total income	(g) Share of end-of-year assets	(h) Disproprtionate allocations?		(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	(j) General or managing partner?		(k) Percentage ownership
(a) Name, address, and EIN of entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	Yes	No	(f) Share of total income	(g) Share of end-of-year assets	Yes	No	(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	Yes	No	(k) Percentage ownership

Schedule R (Form 990) 2021

Page 5

Part VII

Supplemental Information

Provide additional information for responses to questions on Schedule R. See instructions.

Return Reference	Explanation

Schedule R (Form 990) 2021

Additional Data

Software ID:
Software Version:

1	Briefly describe the organization’s mission or most significant activities: TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE (CONTINUED ON SCH O) OPPORTUNITY TO LEAD LONG, FULFILLING LIVES.
2	Check this box
3	Number of voting members of the governing body (Part VI, line 1a) ........	3	17
4	Number of independent voting members of the governing body (Part VI, line 1b) .....	4	16
5	Total number of individuals employed in calendar year 2021 (Part V, line 2a) ......	5	788
6	Total number of volunteers (estimate if necessary) .............	6	17,000
7a	Total unrelated business revenue from Part VIII, column (C), line 12 ........	7a	-1,752,749
b	Net unrelated business taxable income from Form 990-T, Part I, line 11 .........	7b	0

		Prior Year	Current Year
8	Contributions and grants (Part VIII, line 1h) .........	73,199,355	86,536,159
9	Program service revenue (Part VIII, line 2g) .........	1,666,083	1,263,333
10	Investment income (Part VIII, column (A), lines 3, 4, and 7d ) ....	681,199,107	306,161,908
11	Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e)	44,565,408	23,276,151
12	Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)	800,629,953	417,237,551
13	Grants and similar amounts paid (Part IX, column (A), lines 1–3 )...	187,172,342	178,329,656
14	Benefits paid to or for members (Part IX, column (A), line 4).....	0	0
15	Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10)	103,110,573	107,679,100
16a	Professional fundraising fees (Part IX, column (A), line 11e) .....	179,250	176,400
b	Total fundraising expenses (Part IX, column (D), line 25) 20,846,911
17	Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e)....	90,918,826	89,426,030
18	Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25)	381,380,991	375,611,186
19	Revenue less expenses. Subtract line 18 from line 12.......	419,248,962	41,626,365
		Beginning of Current Year	End of Year
20	Total assets (Part X, line 16).............	5,369,999,661	5,691,109,976
21	Total liabilities (Part X, line 26).............	271,006,647	274,479,667
22	Net assets or fund balances. Subtract line 21 from line 20.....	5,098,993,014	5,416,630,309

Sign Here

	Signature of officer	Date

	Type or print name and title


4a	(Code: ) (Expenses $ 276,420,200 including grants of $ 173,388,546 ) (Revenue $ 9,089,953 )
	SEE SCHEDULE O

4b	(Code: ) (Expenses $ 19,555,794 including grants of $ 4,941,110 ) (Revenue $ )
	SEE SCHEDULE O

4c	(Code: ) (Expenses $ 23,518,542 including grants of $ ) (Revenue $ )
	SEE SCHEDULE O

4d	Other program services (Describe in Schedule O.)
	(Expenses $ including grants of $ ) (Revenue $ )
4e	Total program service expenses319,494,536

1b	Sub-Total................
c	Total from continuation sheets to Part VII, Section A....
d	Total (add lines 1b and 1c)...........	9,896,863	0	2,751,848

1a	Federated campaigns..		1a	362,626
b	Membership dues..		1b
c	Fundraising events..		1c	45,841,986
d	Related organizations		1d
e	Government grants (contributions)		1e

f	All other contributions, gifts, grants, and similar amounts not included above		1f	40,331,547

g	Noncash contributions included in lines 1a - 1f:$		1g	4,318,566

h Total. Add lines 1a-1f.......		86,536,159

		Business Code
2a	SCIENTIFIC CONFERENCE	611600	1,004,333	990,333	14,000
b	DATA SAFETY MONITORING	541900	259,000	259,000
c
d
e
f	All other program service revenue.
g	Total. Add lines 2a–2f .....		1,263,333

3 Investment income (including dividends, interest, and othersimilar amounts) ......			62,205,751		-1,766,749	63,972,500
4 Income from investment of tax-exempt bond proceeds
5 Royalties...........			12,463,153	70,463		12,392,690
		(ii) Personal	(i) Real
6a	Gross rents			6a
b	Less: rental expenses			6b
c	Rental income or (loss)			6c
d	Net rental income or (loss).......
		(ii) Other	(i) Securities
7a	Gross amount from sales of assets other than inventory		1,787,567,438	7a
b	Less: cost or other basis and sales expenses		1,543,611,281	7b
c	Gain or (loss)		243,956,157	7c
d	Net gain or (loss).........			243,956,157			243,956,157
8a	Gross income from fundraising events (not including $ 45,841,986of contributions reported on line 1c). See Part IV, line 18 ....
			8a	3,443,701
b	Less: direct expenses ...		8b	3,443,701
c	Net income or (loss) from fundraising events..			0
9a	Gross income from gaming activities. See Part IV, line 19 ...
			9a	14,800
b	Less: direct expenses ...		9b	4,500
c	Net income or (loss) from gaming activities..			10,300			10,300
10a	Gross sales of inventory, less returns and allowances ..
			10a
b	Less: cost of goods sold ..		10b
c	Net income or (loss) from sales of inventory..
Business Code			Miscellaneous Revenue
11a	REFUNDED/CANCELLED GRA		900099	7,770,157	7,770,157
b	OTHER MISC. REVENUE		900099	3,032,541			3,032,541
c
d	All other revenue ....
e	Total. Add lines 11a–11d ......			10,802,698
12	Total revenue. See instructions.....			417,237,551	9,089,953	-1,752,749	323,364,188

1	Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 ....	163,803,073	163,803,073
2	Grants and other assistance to domestic individuals. See Part IV, line 22 ...........	489,212	489,212
3	Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. .............	14,037,371	14,037,371
4	Benefits paid to or for members .......
5	Compensation of current officers, directors, trustees, and key employees ...........	8,407,208	5,032,045	2,077,107	1,298,056
6	Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .........	600,848	359,631	148,447	92,770
7	Other salaries and wages........	75,118,912	44,961,629	18,559,077	11,598,206
8	Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) ....	5,487,947	3,284,751	1,355,868	847,328
9	Other employee benefits .......	12,664,337	7,580,104	3,128,885	1,955,348
10	Payroll taxes ...........	5,399,848	3,311,695	1,193,418	894,735
11	Fees for services (non-employees):
a	Management ......
b	Legal .........	429,465	289,891	139,297	277
c	Accounting ...........	217,841		217,841
d	Lobbying ...........	682,260	682,260
e	Professional fundraising services. See Part IV, line 17	176,400			176,400
f	Investment management fees ......	2,643,636		2,643,636
g	Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O)	4,607,104	3,901,716	521,345	184,043
12	Advertising and promotion ....	12,260	5,517	2,084	4,659
13	Office expenses .......	3,658,046	2,523,092	195,409	939,545
14	Information technology ......	11,232,026	7,732,325	2,309,811	1,189,890
15	Royalties ..
16	Occupancy ...........	6,373,917	4,087,331	1,143,533	1,143,053
17	Travel ............	174,212	100,699	28,966	44,547
18	Payments of travel or entertainment expenses for any federal, state, or local public officials .
19	Conferences, conventions, and meetings ....	1,967,221	1,747,713	72,773	146,735
20	Interest ...........
21	Payments to affiliates .......
22	Depreciation, depletion, and amortization ..	2,726,418	2,314,268	227,062	185,088
23	Insurance ...	725,795	501,925	188,471	35,399
24	Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a	CONTRACTED RESEARCH	51,177,870	51,177,870
b	SPIROMETERS	542,770	542,770
c	MEDICAL QUALITY IMPROVE	410,501	410,501
d	TRAINING	341,973	239,386	79,628	22,959
e	All other expenses	1,502,715	377,761	1,037,081	87,873
25	Total functional expenses. Add lines 1 through 24e	375,611,186	319,494,536	35,269,739	20,846,911
26	Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here if following SOP 98-2 (ASC 958-720).

1	Cash–non-interest-bearing ........			35,549	1	9,916
2	Savings and temporary cash investments .........			69,522,190	2	70,751,911
3	Pledges and grants receivable, net ......			4,506,399	3	8,629,010
4	Accounts receivable, net .............			39,442,408	4	23,159,403
5	Loans and other receivables from any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
					5
6	Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
					6
7	Notes and loans receivable, net ...........				7
8	Inventories for sale or use ............			303,834	8	305,397
9	Prepaid expenses and deferred charges ......			5,361,744	9	7,623,850
10a	Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D	10a	25,888,172
b	Less: accumulated depreciation	10b	18,246,718	7,848,712	10c	7,641,454
11	Investments—publicly traded securities .			3,627,909,660	11	3,935,176,433
12	Investments—other securities. See Part IV, line 11 .....			1,573,550,755	12	1,576,278,160
13	Investments—program-related. See Part IV, line 11 ..			30,228,638	13	50,147,851
14	Intangible assets ...............				14
15	Other assets. See Part IV, line 11 ...........			11,289,772	15	11,386,591
16	Total assets. Add lines 1 through 15 (must equal line 33)...			5,369,999,661	16	5,691,109,976

17	Accounts payable and accrued expenses .....	31,173,557	17	40,322,607
18	Grants payable ...	236,465,610	18	231,895,234
19	Deferred revenue .........	3,367,480	19	2,261,826
20	Tax-exempt bond liabilities .........		20
21	Escrow or custodial account liability. Complete Part IV of Schedule D		21
22	Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
			22
23	Secured mortgages and notes payable to unrelated third parties ..		23
24	Unsecured notes and loans payable to unrelated third parties ..		24
25	Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D		25
26	Total liabilities. Add lines 17 through 25..	271,006,647	26	274,479,667

	Organizations that follow FASB ASC 958, check here and complete lines 27, 28, 32, and 33.
27	Net assets without donor restrictions ..........	5,089,568,156	27	5,398,556,832
28	Net assets with donor restrictions ...........	9,424,858	28	18,073,477
	Organizations that do not follow FASB ASC 958, check here and complete lines 29 through 33.
29	Capital stock or trust principal, or current funds .....		29
30	Paid-in or capital surplus, or land, building or equipment fund ...		30
31	Retained earnings, endowment, accumulated income, or other funds		31
32	Total net assets or fund balances ...........	5,098,993,014	32	5,416,630,309
33	Total liabilities and net assets/fund balances ........	5,369,999,661	33	5,691,109,976

1	Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
2	Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to separately file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A; don't file with Form 990). . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
3	Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471). . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
4	Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621) .	Yes	No
5	Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships (see Instructions for Form 8865). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
6	Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to separately file Form 5713, International Boycott Report (see Instructions for Form 5713; don't file with Form 990).. . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No