Form990


Department of the TreasuryInternal Revenue Service
Return of Organization Exempt From Income Tax
Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private foundations)
MediumBullet Do not enter social security numbers on this form as it may be made public.
MediumBullet Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2021
Open to Public Inspection
A For the 2021 calendar year, or tax year beginning 02-01-2022 , and ending 01-31-2023
BCheck if applicable:
CName of organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
 
Doing business as
THE ALS ASSOCIATION
 
Number and street (or P.O. box if mail is not delivered to street address)
1300 WILSON BLVD 600
 
Room/suite
City or town, state or province, country, and ZIP or foreign postal code
ARLINGTON, VA22209
D Employer identification number

13-3271855
E Telephone number

G Gross receipts $ 77,468,178
F Name and address of principal officer:
CALANEET BALAS
1300 WILSON BLVD 600
ARLINGTON,VA22209
I
Tax-exempt status: (   ) LeftBullet (insert no.) or
J
Website:MediumBullet
WWW.ALS.ORG
H(a)
Is this a group return for
subordinates?
H(b)
Are all subordinates
included?
If "No," attach a list. See instructions.
H(c)
Group exemption number MediumBullet4119
K Form of organization:  
L Year of formation: 1985
M State of legal domicile: DE
Part I
Summary
Activities & Governance 1 Briefly describe the organization’s mission or most significant activities: LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES.
2 Check this box MediumBullet
3 Number of voting members of the governing body (Part VI, line 1a) ........ 3 31
4 Number of independent voting members of the governing body (Part VI, line 1b) ..... 4 31
5 Total number of individuals employed in calendar year 2021 (Part V, line 2a) ...... 5 547
6 Total number of volunteers (estimate if necessary) ............. 6 31
7a Total unrelated business revenue from Part VIII, column (C), line 12 ........ 7a 0
b Net unrelated business taxable income from Form 990-T, Part I, line 11 ......... 7b 0
Revenues Prior Year Current Year
8 Contributions and grants (Part VIII, line 1h) ......... 37,557,524 53,676,289
9 Program service revenue (Part VIII, line 2g) ......... 0 0
10 Investment income (Part VIII, column (A), lines 3, 4, and 7d ) .... 2,213,860 1,771,537
11 Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e) 21,419 119,782
12 Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12) 39,792,803 55,567,608
Expenses; 13 Grants and similar amounts paid (Part IX, column (A), lines 1–3 )... 15,323,942 18,722,140
14 Benefits paid to or for members (Part IX, column (A), line 4)..... 0 0
15 Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10) 13,877,954 36,210,639
16a Professional fundraising fees (Part IX, column (A), line 11e) ..... 333,300 648,986
b Total fundraising expenses (Part IX, column (D), line 25) MediumBullet22,059,606    
17 Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e).... 15,317,102 28,618,054
18 Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25) 44,852,298 84,199,819
19 Revenue less expenses. Subtract line 18 from line 12....... -5,059,495 -28,632,211
Net Assets or Fund Balances; Beginning of Current Year End of Year
20 Total assets (Part X, line 16)............. 98,343,083 94,445,022
21 Total liabilities (Part X, line 26)............. 7,253,250 30,210,557
22 Net assets or fund balances. Subtract line 21 from line 20..... 91,089,833 64,234,465
Part II
Signature Block
Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it is true, correct, and complete. Declaration of preparer (other than officer) is based on all information of which preparer has any knowledge.
Sign Here
JumboBullet
Signature of officer Date
JumboBullet
Type or print name and title
Paid Preparer Use Only
Print/Type preparer's name
Preparer's signature
Date
PTIN
Firm's name MediumBullet

Firm's EIN MediumBullet
Firm's address MediumBullet



Phone no.
May the IRS discuss this return with the preparer shown above? (see instructions) ..........
For Paperwork Reduction Act Notice, see the separate instructions.
Cat. No. 11282Y Form 990 (2021)
Form 990 (2021)
Page 2
Part III
Statement of Program Service Accomplishments
Check if Schedule O contains a response or note to any line in this Part III..............
1
Briefly describe the organization’s mission: SEE SCHEDULE O FOR THE ASSOCIATION'S MISSION. ALSO SEE SCHEDULE O FOR DISCUSSION ON HOW THE ASSOCIATION RESTRUCTURED INTO A SINGLE CORPORATION. THE ALS ASSOCIATION LEADS THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
2
Did the organization undertake any significant program services during the year which were not listed on
the prior Form 990 or 990-EZ? .....................
If "Yes," describe these new services on Schedule O.
3
Did the organization cease conducting, or make significant changes in how it conducts, any program
services? ...........................
If "Yes," describe these changes on Schedule O.
4
Describe the organization’s program service accomplishments for each of its three largest program services, as measured by expenses. Section 501(c)(3) and 501(c)(4) organizations are required to report the amount of grants and allocations to others, the total expenses, and revenue, if any, for each program service reported.
4a (Code:   ) (Expenses $ 26,960,747 including grants of $ 4,405,372 ) (Revenue $   )
PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES.
4b (Code:   ) (Expenses $ 15,622,467 including grants of $ 14,316,768 ) (Revenue $   )
RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS).
4c (Code:   ) (Expenses $ 10,549,879 including grants of $   ) (Revenue $   )
PUBLIC AND PROFESSIONAL EDUCATION: THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY, AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31, 2023, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH. IN ADDITION, THE ADVOCACY DEPARTMENT SECURED FUNDING FROM STATE GOVERNMENTS FOR CARE AND SUPPORT OF PEOPLE LIVING WITH ALS.
4d Other program services (Describe in Schedule O.)
(Expenses $   including grants of $   ) (Revenue $   )
4e Total program service expensesMediumBullet53,133,093
Form 990 (2021)
Form 990 (2021)
Page 3
Part IV
Checklist of Required Schedules
Yes
No
1
Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)? If "Yes," complete Schedule AClick to see attachment
List of Attached Documents:
// Content
.....................
1
Yes
 
2
Is the organization required to complete Schedule B, Schedule of Contributors? See instructions. Click to see attachment
List of Attached Documents:
// Content
...
2
Yes
 
3
Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office? If "Yes," complete Schedule C, Part IClick to see attachment
List of Attached Documents:
// Content
.............
3
 
No
4
Section 501(c)(3) organizations. Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year? If "Yes," complete Schedule C, Part IIClick to see attachment
List of Attached Documents:
// Content
.........
4
Yes
 
5
Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Rev. Proc. 98-19? If "Yes," complete Schedule C, Part IIIClick to see attachment
List of Attached Documents:
// Content
..
5
 
No
6
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts? If "Yes," complete Schedule D, Part IClick to see attachment
List of Attached Documents:
// Content
.........................
6
 
No
7
Did the organization receive or hold a conservation easement, including easements to preserve open space,
the environment, historic land areas, or historic structures? If "Yes," complete Schedule D, Part IIClick to see attachment
List of Attached Documents:
// Content
....
7
 
No
8
Did the organization maintain collections of works of art, historical treasures, or other similar assets? If "Yes,"
complete Schedule D, Part IIIClick to see attachment
List of Attached Documents:
// Content
..............
8
 
No
9
Did the organization report an amount in Part X, line 21 for escrow or custodial account liability; serve as a custodian for amounts not listed in Part X; or provide credit counseling, debt management, credit repair, or debt negotiation services? If "Yes," complete Schedule D, Part IVClick to see attachment
List of Attached Documents:
// Content
..............
9
 
No
10
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi endowments? If "Yes," complete Schedule D, Part V......
10
Yes
 
11
If the organization’s answer to any of the following questions is "Yes," then complete Schedule D, Parts VI, VII, VIII, IX, or X, as applicable.
a
Did the organization report an amount for land, buildings, and equipment in Part X, line 10? If "Yes," complete
Schedule D, Part VI. Click to see attachment
List of Attached Documents:
// Content
...................
11a
Yes
 
b
Did the organization report an amount for investments—other securities in Part X, line 12 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIClick to see attachment
List of Attached Documents:
// Content
.......
11b
 
No
c
Did the organization report an amount for investments—program related in Part X, line 13 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIIClick to see attachment
List of Attached Documents:
// Content
.......
11c
 
No
d
Did the organization report an amount for other assets in Part X, line 15 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part IXClick to see attachment
List of Attached Documents:
// Content
............
11d
Yes
 
e
Did the organization report an amount for other liabilities in Part X, line 25? If "Yes," complete Schedule D, Part XClick to see attachment
List of Attached Documents:
// Content
11e
Yes
 
f
Did the organization’s separate or consolidated financial statements for the tax year include a footnote that addresses the organization’s liability for uncertain tax positions under FIN 48 (ASC 740)? If "Yes," complete Schedule D, Part XClick to see attachment
List of Attached Documents:
// Content
11f
Yes
 
12a
Did the organization obtain separate, independent audited financial statements for the tax year? If "Yes," complete
Schedule D, Parts XI and XIIClick to see attachment
List of Attached Documents:
// Content
......................
12a
Yes
 
b
Was the organization included in consolidated, independent audited financial statements for the tax year? If "Yes," and if the organization answered "No" to line 12a, then completing Schedule D, Parts XI and XII is optional Click to see attachment
List of Attached Documents:
// Content
12b
 
No
13
Is the organization a school described in section 170(b)(1)(A)(ii)? If "Yes," complete Schedule E
13
 
No
14a
Did the organization maintain an office, employees, or agents outside of the United States? .....
14a
 
No
b
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more? If "Yes," complete Schedule F, Parts I and IV.........Click to see attachment
List of Attached Documents:
// Content
14b
Yes
 
15
Did the organization report on Part IX, column (A), line 3, more than $5,000 of grants or other assistance to or for any foreign organization? If “Yes,” complete Schedule F, Parts II and IV.....Click to see attachment
List of Attached Documents:
// Content
15
Yes
 
16
Did the organization report on Part IX, column (A), line 3, more than $5,000 of aggregate grants or other assistance to or for foreign individuals? If “Yes,” complete Schedule F, Parts III and IV...Click to see attachment
List of Attached Documents:
// Content
16
 
No
17
Did the organization report a total of more than $15,000 of expenses for professional fundraising services on Part IX, column (A), lines 6 and 11e? If "Yes," complete Schedule G, Part I. See instructions. ....Click to see attachment
List of Attached Documents:
// Content
17
Yes
 
18
Did the organization report more than $15,000 total of fundraising event gross income and contributions on Part VIII, lines 1c and 8a? If "Yes," complete Schedule G, Part II............ Click to see attachment
List of Attached Documents:
// Content
18
Yes
 
19
Did the organization report more than $15,000 of gross income from gaming activities on Part VIII, line 9a? If "Yes," complete Schedule G, Part III...................Click to see attachment
List of Attached Documents:
// Content
19
 
No
20a
Did the organization operate one or more hospital facilities? If "Yes," complete Schedule H....
20a
 
No
b
If "Yes" to line 20a, did the organization attach a copy of its audited financial statements to this return?
20b
 
 
21
Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government on Part IX, column (A), line 1? If “Yes,” complete Schedule I, Parts I and II.....Click to see attachment
List of Attached Documents:
// Content
21
Yes
 
Form 990 (2021)
Form 990 (2021)
Page 4
Part IV
Checklist of Required Schedules (continued)
Yes
No
22
Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals on Part IX, column (A), line 2? If “Yes,” complete Schedule I, Parts I and III........Click to see attachment
List of Attached Documents:
// Content
22
Yes
 
23
Did the organization answer "Yes" to Part VII, Section A, line 3, 4, or 5, about compensation of the organization’s current and former officers, directors, trustees, key employees, and highest compensated employees? If "Yes," complete Schedule J....................... Click to see attachment
List of Attached Documents:
// Content
23
Yes
 
24a
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002? If “Yes,” answer lines 24b through 24d and complete Schedule K. If “No,” go to line 25a...............
24a
 
No
b
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?...
24b
 
 
c
Did the organization maintain an escrow account other than a refunding escrow at any time during the year
to defease any tax-exempt bonds? ...............
24c
 
 
d
Did the organization act as an "on behalf of" issuer for bonds outstanding at any time during the year?...
24d
 
 
25a
Section 501(c)(3), 501(c)(4), and 501(c)(29) organizations. Did the organization engage in an excess benefit transaction with a disqualified person during the year? If "Yes," complete Schedule L, Part I ....
25a
 
No
b
Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization’s prior Forms 990 or 990-EZ? If "Yes," complete Schedule L, Part I.......................
25b
 
No
26
Did the organization report any amount on Part X, line 5 or 22 for receivables from or payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons? If "Yes," complete Schedule L, Part II...........
26
 
No
27
Did the organization provide a grant or other assistance to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or employee thereof, a grant selection committee member, or to a 35% controlled entity (including an employee thereof) or family member of any of these persons?
If "Yes," complete
Schedule L, Part III.........................
27
 
No
28
Was the organization a party to a business transaction with one of the following parties (see the Schedule L, Part IV instructions for applicable filing thresholds, conditions, and exceptions):
a
A current or former officer, director, trustee, key employee, creator or founder, or substantial contributor? If "Yes," complete Schedule L, Part IV......................
28a
 
No
b
A family member of any individual described in line 28a? If "Yes," complete Schedule L, Part IV.....
28b
 
No
c
A 35% controlled entity of one or more individuals and/or organizations described in line 28a or 28b? If "Yes," complete Schedule L, Part IV.....................
28c
 
No
29
Did the organization receive more than $25,000 in non-cash contributions? If "Yes," complete Schedule M..Click to see attachment
List of Attached Documents:
// Content
29
Yes
 
30
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions? If "Yes," complete Schedule M .................Click to see attachment
List of Attached Documents:
// Content
30
Yes
 
31
Did the organization liquidate, terminate, or dissolve and cease operations? If "Yes," complete Schedule N, Part I
31
 
No
32
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets? If "Yes," complete Schedule N, Part II........................
32
 
No
33
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3? If "Yes," complete Schedule R, Part I............
33
 
No
34
Was the organization related to any tax-exempt or taxable entity? If "Yes," complete Schedule R, Part II, III, or IV, and Part V, line 1.........................
34
 
No
35a
Did the organization have a controlled entity within the meaning of section 512(b)(13)?
35a
 
No
b
If ‘Yes’ to line 35a, did the organization receive any payment from or engage in any transaction with a controlled entity within the meaning of section 512(b)(13)? If "Yes," complete Schedule R, Part V, line 2 ...
35b
 
 
36
Section 501(c)(3) organizations. Did the organization make any transfers to an exempt non-charitable related organization? If "Yes," complete Schedule R, Part V, line 2.............
36
 
No
37
Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes? If "Yes," complete Schedule R, Part VI
37
 
No
38
Did the organization complete Schedule O and provide explanations on Schedule O for Part VI, lines 11b and 19? Note. All Form 990 filers are required to complete Schedule O. ............
38
Yes
 
Part V
Statements Regarding Other IRS Filings and Tax Compliance
Check if Schedule O contains a response or note to any line in this Part V...........
Yes
No
1a
Enter the number reported in box 3 of Form 1096. Enter -0- if not applicable ..
1a
281
b
Enter the number of Forms W-2G included on line 1a. Enter -0- if not applicable .
1b
0
c
Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners? ..................
1c
Yes
 
Form 990 (2021)
Form 990 (2021)
Page 5
Part V
Statements Regarding Other IRS Filings and Tax Compliance (continued)
2a
Enter the number of employees reported on Form W-3, Transmittal of Wage and
Tax Statements, filed for the calendar year ending with or within the year covered by this return ..................
2a
547
b
If at least one is reported on line 2a, did the organization file all required federal employment tax returns?
Note. If the sum of lines 1a and 2a is greater than 250, you may be required to e-file. See instructions.
2b
Yes
 
3a
Did the organization have unrelated business gross income of $1,000 or more during the year?...
3a
 
No
b
If “Yes,” has it filed a Form 990-T for this year? If “No” to line 3b, provide an explanation in Schedule O...
3b
 
 
4a
At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)? ..
4a
 
No
b
If "Yes," enter the name of the foreign country: MediumBullet
See instructions for filing requirements for FinCEN Form 114, Report of Foreign Bank and Financial Accounts (FBAR).
5a
Was the organization a party to a prohibited tax shelter transaction at any time during the tax year? ..
5a
 
No
b
Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?
5b
 
No
c
If "Yes," to line 5a or 5b, did the organization file Form 8886-T? ............
5c
 
 
6a
Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions? ...
6a
 
No
b
If "Yes," did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible? ......................
6b
 
 
7
Organizations that may receive deductible contributions under section 170(c).
a
Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor? ....................
7a
Yes
 
b
If "Yes," did the organization notify the donor of the value of the goods or services provided? .....
7b
 
No
c
Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282? .........................
7c
 
No
d
If "Yes," indicate the number of Forms 8282 filed during the year ....
7d
 
e
Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?
7e
 
No
f
Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract? ..
7f
 
No
g
If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required? ......................
7g
 
 
h
If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C? ..........................
7h
Yes
 
8
Sponsoring organizations maintaining donor advised funds. Did a donor advised fund maintained by the sponsoring organization have excess business holdings at any time during the year? ........
8
 
 
9
Sponsoring organizations maintaining donor advised funds.
a
Did the sponsoring organization make any taxable distributions under section 4966?........
9a
 
 
b
Did the sponsoring organization make a distribution to a donor, donor advisor, or related person?...
9b
 
 
10
Section 501(c)(7) organizations. Enter:
a
Initiation fees and capital contributions included on Part VIII, line 12 ...
10a
 
b
Gross receipts, included on Form 990, Part VIII, line 12, for public use of club facilities
10b
 
11
Section 501(c)(12) organizations. Enter:
a
Gross income from members or shareholders .........
11a
 
b
Gross income from other sources. (Do not net amounts due or paid to other sources against amounts due or received from them.) ..........
11b
 
12a
Section 4947(a)(1) non-exempt charitable trusts. Is the organization filing Form 990 in lieu of Form 1041?
12a
 
 
b
If "Yes," enter the amount of tax-exempt interest received or accrued during the year.
12b
 
13
Section 501(c)(29) qualified nonprofit health insurance issuers.
a
Is the organization licensed to issue qualified health plans in more than one state? .........
Note. See the instructions for additional information the organization must report on Schedule O.
13a
 
 
b
Enter the amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans ....
13b
 
c
Enter the amount of reserves on hand ............
13c
 
14a
Did the organization receive any payments for indoor tanning services during the tax year?.....
14a
 
No
b
If "Yes," has it filed a Form 720 to report these payments? If "No," provide an explanation in Schedule O..
14b
 
 
15
Is the organization subject to the section 4960 tax on payment(s) of more than $1,000,000 in remuneration or excess parachute payment(s) during the year? ....................
If "Yes," see the instructions and file Form 4720, Schedule N.
15
 
No
16
Is the organization an educational institution subject to the section 4968 excise tax on net investment income? ..
If "Yes," complete Form 4720, Schedule O.
16
 
No
17
Section 501(c)(21) organizations. Did the trust, any disqualified person, or mine operator engage in any activities that would result in the imposition of an excise tax under section 4951, 4952, or 4953? ..
If "Yes," complete Form 6069.
17
 
 
Form 990 (2021)
Form 990 (2021)
Page 6
Part VI
Governance, Management, and Disclosure. For each "Yes" response to lines 2 through 7b below, and for a "No" response to lines 8a, 8b, or 10b below, describe the circumstances, processes, or changes in Schedule O. See instructions.
Check if Schedule O contains a response or note to any line in this Part VI..............
Section A. Governing Body and Management
Yes
No
1a
Enter the number of voting members of the governing body at the end of the tax year
1a
31
If there are material differences in voting rights among members of the governing body, or if the governing body delegated broad authority to an executive committee or similar committee, explain in Schedule O.
b
Enter the number of voting members included in line 1a, above, who are independent
1b
31
2
Did any officer, director, trustee, or key employee have a family relationship or a business relationship with any other officer, director, trustee, or key employee? .................
2
 
No
3
Did the organization delegate control over management duties customarily performed by or under the direct supervision of officers, directors or trustees, or key employees to a management company or other person? .
3
 
No
4
Did the organization make any significant changes to its governing documents since the prior Form 990 was filed? .
4
 
No
5
Did the organization become aware during the year of a significant diversion of the organization’s assets? .
5
 
No
6
Did the organization have members or stockholders? ................
6
Yes
 
7a
Did the organization have members, stockholders, or other persons who had the power to elect or appoint one or more members of the governing body? ....................
7a
Yes
 
b
Are any governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or persons other than the governing body? ...................
7b
 
No
8
Did the organization contemporaneously document the meetings held or written actions undertaken during the year by the following:
a
The governing body? .......................
8a
Yes
 
b
Each committee with authority to act on behalf of the governing body? ............
8b
Yes
 
9
Is there any officer, director, trustee, or key employee listed in Part VII, Section A, who cannot be reached at the organization’s mailing address? If "Yes," provide the names and addresses in Schedule O.......
9
 
No
Section B. Policies (This Section B requests information about policies not required by the Internal Revenue Code.)
Yes
No
10a
Did the organization have local chapters, branches, or affiliates? ............
10a
Yes
 
b
If "Yes," did the organization have written policies and procedures governing the activities of such chapters, affiliates, and branches to ensure their operations are consistent with the organization's exempt purposes?
10b
Yes
 
11a
Has the organization provided a complete copy of this Form 990 to all members of its governing body before filing the form? ............................
11a
Yes
 
b
Describe on Schedule O the process, if any, used by the organization to review this Form 990. .....
12a
Did the organization have a written conflict of interest policy? If "No," go to line 13.......
12a
Yes
 
b
Were officers, directors, or trustees, and key employees required to disclose annually interests that could give rise to conflicts? ..........................
12b
Yes
 
c
Did the organization regularly and consistently monitor and enforce compliance with the policy? If "Yes," describe on Schedule O how this was done...................
12c
Yes
 
13
Did the organization have a written whistleblower policy? ...............
13
Yes
 
14
Did the organization have a written document retention and destruction policy? .........
14
Yes
 
15
Did the process for determining compensation of the following persons include a review and approval by independent persons, comparability data, and contemporaneous substantiation of the deliberation and decision?
a
The organization’s CEO, Executive Director, or top management official ...........
15a
Yes
 
b
Other officers or key employees of the organization ................
15b
Yes
 
If "Yes" to line 15a or 15b, describe the process on Schedule O. See instructions.
16a
Did the organization invest in, contribute assets to, or participate in a joint venture or similar arrangement with a taxable entity during the year? ......................
16a
 
No
b
If "Yes," did the organization follow a written policy or procedure requiring the organization to evaluate its participation in joint venture arrangements under applicable federal tax law, and take steps to safeguard the organization’s exempt status with respect to such arrangements? ............
16b
 
 
Section C. Disclosure
17
List the states with which a copy of this Form 990 is required to be filedMediumBullet
AK , AL , AR , AZ , CA , CO , CT , DC , DE , FL , GA , HI , IA , ID , IL , IN , KS , KY , LA , MA , MD , ME , MI , MN , MO , MS , MT , NC , ND , NE , NH , NJ , NM , NV , NY , OH , OK , OR , PA , RI , SC , SD , TN , TX , UT , VA , VT , WA , WV , WY
18
Section 6104 requires an organization to make its Form 1023 (1024 or 1024-A, if applicable), 990, and 990-T (section 501(c)(3)s only) available for public inspection. Indicate how you made these available. Check all that apply.
19
Describe in Schedule O whether (and if so, how) the organization made its governing documents, conflict of interest policy, and financial statements available to the public during the tax year.
20
State the name, address, and telephone number of the person who possesses the organization's books and records:
MediumBulletGREGORY MITCHELL CHIEF FINANCIAL OFFICER1300 WILSON BLVD 600   ARLINGTON,VA22209 (202) 407-8580
Form 990 (2021)
Form 990 (2021)
Page 7
Part VII
Compensation of Officers, Directors,Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors
Check if Schedule O contains a response or note to any line in this Part VII..............
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
1a Complete this table for all persons required to be listed. Report compensation for the calendar year ending with or within the organization’s tax year.
RoundBullet List all of the organization’s current officers, directors, trustees (whether individuals or organizations), regardless of amount
of compensation. Enter -0- in columns (D), (E), and (F) if no compensation was paid.

RoundBullet List all of the organization’s current key employees, if any. See the instructions for definition of "key employee."
RoundBullet List the organization’s five current highest compensated employees (other than an officer, director, trustee or key employee)
who received reportable compensation (box 5 of Form W-2, Form 1099-MISC, and/or box 1 of Form 1099-NEC) of more than $100,000 from the
organization and any related organizations.

RoundBullet List all of the organization’s former officers, key employees, or highest compensated employees who received more than $100,000
of reportable compensation from the organization and any related organizations.

RoundBullet List all of the organization’s former directors or trustees that received, in the capacity as a former director or trustee of the
organization, more than $10,000 of reportable compensation from the organization and any related organizations.

See the instructions for the order in which to list the persons above.
Check this box if neither the organization nor any related organization compensated any current officer, director, or trustee.
(A)
Name and title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W-2/1099-MISC/1099-NEC) 		(E)
Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(1) CALANEET BALAS......................................................................
PRESIDENT AND CEO
 37.50
.................
  		    X       456,666 0 41,099
(2) TINA ZEFF......................................................................
CHIEF OPERATIONS OFFICER
 37.50
.................
  		      X     308,028 0 41,556
(3) GREG MITCHELL......................................................................
CHIEF FINANCIAL OFFICER
 37.50
.................
  		    X       306,968 0 14,816
(4) NEIL THAKUR......................................................................
CHIEF MISSION OFFICER
 37.50
.................
  		      X     275,627 0 44,984
(5) DEAN FEENER......................................................................
CHIEF INFORMATION AND MARKETING OFFICER
 37.50
.................
  		      X     247,460 0 12,356
(6) MONICA SANTA CRUZ......................................................................
CHIEF PEOPLE OFFICER
 37.50
.................
  		      X     247,360 0 12,615
(7) LANCE SLAUGHTER......................................................................
SVP STRATEGIC ALLIANCES AND GOVERNANCE
 37.50
.................
  		        X   241,396 0 22,878
(8) VICKIE LOBELLO......................................................................
SENIOR VICE PRESIDENT ORGANIZATIONAL CHANGE
 37.50
.................
  		        X   228,324 0 19,143
(9) BRIAN FREDERICK......................................................................
SENIOR VICE PRESIDENT STRATEGIC COMMUNICATIONS
 37.50
.................
  		        X   224,926 0 10,962
(10) KULDIP DAVE......................................................................
SENIOR VICE PRESIDENT RESEARCH
 37.50
.................
  		        X   222,758 0 49,556
(11) KEITH GARY......................................................................
VICE PRESIDENT MISSION ACCELERATION
 37.50
.................
  		        X   214,098 0 33,590
(12) SCOTT KAUFFMAN......................................................................
CHAIR
 5.00
.................
  		X   X       0 0 0
(13) FRED M DEGRANDIS......................................................................
VICE-CHAIR
 5.00
.................
  		X   X       0 0 0
(14) SUE GORMAN......................................................................
IMMEDIATE PAST CHAIR
 5.00
.................
  		X   X       0 0 0
(15) CONNIE HOUSTON......................................................................
TREASURER
 4.00
.................
  		X   X       0 0 0
(16) SANDRA PIERSOL......................................................................
SECRETARY
 5.00
.................
  		X   X       0 0 0
(17) JINSY ANDREWS......................................................................
TRUSTEE
 2.00
.................
  		X           0 0 0
Form 990 (2021)
Form 990 (2021)
Page 8
Part VII
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (continued)
(A)
Name and title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W-2/1099-MISC/1099-NEC) 		(E)
Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(18) EUGENE BRANDON PHD........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(19) DAVID VAN DE RIET........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(20) CLIFTON GOOCH MD........................................................................
TRUSTEE (THRU 02/22)
 2.00
.......................   		X           0 0 0
(21) CHRISTI L KOLARCIK PHD........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(22) CHARLIE ROBINSON D SC PE........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(23) J THOMAS MAY........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(24) JOHN P KRAVE JD........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(25) JOHN ROBINSON........................................................................
TRUSTEE (THRU 02/22)
 2.00
.......................   		X           0 0 0
(26) JUDY PRATT DMD........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(27) KENNETH MENKHAUS........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(28) KEVIN SPINELLA........................................................................
TRUSTEE (THRU 12/22)
 2.00
.......................   		X           0 0 0
(29) LARRY FALIVENA........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(30) LOU LIBBY MD........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(31) MARK CALMES........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(32) MARK STANCIL........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(33) MILLIE ARNOLD........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(34) NANCY LEAMOND........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(35) PAUL INGHOLT........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(36) TOBIN M KUCHARSKI........................................................................
TRUSTEE (THRU 02/22)
 2.00
.......................   		X           0 0 0
(37) TOM CARROLL........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(38) WARREN NELSON........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(39) WENDY J SCHRIBER........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(40) KEN BALTES........................................................................
TRUSTEE (THRU 09/22)
 2.00
.......................   		X           0 0 0
(41) MICHAEL BENATAR........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(42) KATHLEEN BOYCE........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(43) AMY BRACHIO........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(44) JOHN ROCKY DALLUM........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(45) PETER MCKOWN........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(46) REBECCA MOSS........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
(47) KENTON VAN HARTEN........................................................................
TRUSTEE
 2.00
.......................   		X           0 0 0
1b Sub-Total................MediumBullet
c Total from continuation sheets to Part VII, Section A....MediumBullet
d Total (add lines 1b and 1c)...........MediumBullet 2,973,611 0 303,555
2
Total number of individuals (including but not limited to those listed above) who received more than $100,000 of reportable compensation from the organization MediumBullet28
Yes
No
3
Did the organization list any former officer, director or trustee, key employee, or highest compensated employee on line 1a? If "Yes," complete Schedule J for such individual ..............
3
 
No
4
For any individual listed on line 1a, is the sum of reportable compensation and other compensation from the organization and related organizations greater than $150,000? If "Yes," complete Schedule J for such
individual...........................
4
Yes
 
5
Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services rendered to the organization? If "Yes," complete Schedule J for such person ........
5
 
No
Section B. Independent Contractors
1
Complete this table for your five highest compensated independent contractors that received more than $100,000 of compensation from the organization. Report compensation for the calendar year ending with or within the organization’s tax year.
(A)
Name and business address 		(B)
Description of services 		(C)
Compensation
MCDERMOTT WILL & EMERY

PO BOX 1675
CAROL STREAM,IL601321675 		ATTORNEY (LEGAL SERVICES) 868,347
BARNES & THORNBURG LLP

11 SOUTH MERIDIAN ST
INDIANAPOLIS,IN46204 		ATTORNEY (LEGAL SERVICES) 792,577
MCCORMICK GROUP

20 MAPLE ST
LEXINGTON,MA02420 		CONSULTING SERVICES 404,394
THROUGHCO COMMUNICATIONS

2109 BROADWAY 10-18
NEW YORK,NY10023 		MARKETING & COMMUNICATIONS SERVICES 275,637
FAEGRE DRINKER BIDDLE & REATH LLP

PO BOX 536777
PITTSBURGH,PA152535909 		PROFESSIONAL SERVICES FOR LEGISLATIVE PU 161,241
2
Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization MediumBullet12
Form 990 (2021)
Form 990 (2021)
Page 9
Part VIII
Statement of Revenue
Check if Schedule O contains a response or note to any line in this Part VIII.............
(A)
Total revenue 		(B)
Related or
exempt
function
revenue 		(C)
Unrelated
business
revenue 		(D)
Revenue
excluded from
tax under sections
512 - 514
Contributions, Gifts, Grants, and OtherAmt Similar Amounts 1a Federated campaigns..1a 1,198,414
b Membership dues..1b  
c Fundraising events..1c 7,846,854
d Related organizations1d  
e Government grants (contributions)1e 1,976,304
f All other contributions, gifts, grants, and similar amounts not included above1f 42,654,717
g Noncash contributions included in lines 1a - 1f:$ 1g 542,107
h Total. Add lines 1a-1f.......MediumBullet 53,676,289
Program Service RevenueAmt Business Code
2a
b
c
d
e
f All other program service revenue.        
g Total. Add lines 2a–2f .....MediumBullet  
OtherAmtRevenueAmt 3 Investment income (including dividends, interest, and othersimilar amounts) ......MediumBullet 1,849,992     1,849,992
4 Income from investment of tax-exempt bond proceedsMediumBullet        
5 Royalties...........MediumBullet 83     83
(ii) Personal (i) Real
6a Gross rents     6a
b Less: rental expenses     6b
c Rental income or (loss)     6c
d Net rental income or (loss).......MediumBullet        
(ii) Other (i) Securities
7a Gross amount from sales of assets other than inventory   19,066,395 7a
b Less: cost or other basis and sales expenses   19,144,850 7b
c Gain or (loss)   -78,455 7c
d Net gain or (loss).........MediumBullet -78,455     -78,455
8a Gross income from fundraising events (not including $ 7,846,854of contributions reported on line 1c). See Part IV, line 18 ....
8a 2,755,720
b Less: direct expenses ... 8b 2,755,720
c Net income or (loss) from fundraising events..MediumBullet 0    
9a Gross income from gaming activities.
See Part IV, line 19 ...
9a  
b Less: direct expenses ... 9b  
c Net income or (loss) from gaming activities..MediumBullet        
10a Gross sales of inventory, less
returns and allowances ..
10a  
b Less: cost of goods sold .. 10b  
c Net income or (loss) from sales of inventory..MediumBullet        
Business Code Miscellaneous Revenue
11a            
b            
c            
d All other revenue .... 119,699     119,699
e Total. Add lines 11a–11d ...... MediumBullet 119,699
12 Total revenue. See instructions.....MediumBullet 55,567,608 0 0 1,891,319
Form 990 (2021)
Form 990 (2021)
Page 10
Part IX
Statement of Functional Expenses
Section 501(c)(3) and 501(c)(4) organizations must complete all columns. All other organizations must complete column (A).Check if Schedule O contains a response or note to any line in this Part IX..............
Do not include amounts reported on lines 6b,
7b, 8b, 9b, and 10b of Part VIII. 		(A)
Total expenses 		(B)
Program service expenses 		(C)
Management and general expenses 		(D)
Fundraising
expenses
1 Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 .... 14,641,389 14,641,389
2 Grants and other assistance to domestic individuals. See Part IV, line 22 ........... 2,012,096 2,012,096
3 Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. ............. 2,068,655 2,068,655
4 Benefits paid to or for members .......    
5 Compensation of current officers, directors, trustees, and key employees ........... 2,009,534 655,782 1,262,342 91,410
6 Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .........        
7 Other salaries and wages........ 27,608,816 15,966,274 2,013,950 9,628,592
8 Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) .... 1,706,558 945,498 205,493 555,567
9 Other employee benefits ....... 2,683,237 1,535,337 199,699 948,201
10 Payroll taxes ........... 2,202,494 1,251,771 212,462 738,261
11 Fees for services (non-employees):        
a Management ......        
b Legal ......... 1,998,496 11,325 1,987,171  
c Accounting ........... 215,467 4,663 88,147 122,657
d Lobbying ........... 172,117 172,117    
e Professional fundraising services. See Part IV, line 17 648,986 648,986
f Investment management fees ...... 180,821   180,821  
g Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O) 4,511,839 2,470,962 1,175,069 865,808
12 Advertising and promotion .... 2,043,993 694,580 28,220 1,321,193
13 Office expenses ....... 2,070,747 546,300 71,601 1,452,846
14 Information technology ...... 5,455,057 2,207,417 541,600 2,706,040
15 Royalties ..        
16 Occupancy ........... 1,541,161 817,587 132,799 590,775
17 Travel ............ 2,549,205 1,256,172 474,205 818,828
18 Payments of travel or entertainment expenses for any federal, state, or local public officials .        
19 Conferences, conventions, and meetings .... 227,710 128,857 41,311 57,542
20 Interest ........... 28,346   28,346  
21 Payments to affiliates .......        
22 Depreciation, depletion, and amortization .. 1,924,151 960,944 184,623 778,584
23 Insurance ... 185,917 85,629 34,450 65,838
24 Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a CHAPTER SUPPORT 3,534,121 3,534,121    
b TELECOMMUNICATIONS 483,048 245,266 35,653 202,129
c PRINTING AND PUBLICATIO 421,025 225,737 14,108 181,180
d DUES AND SUBSCRIPTIONS 295,805 101,526 58,911 135,368
e All other expenses 779,028 593,088 36,139 149,801
25 Total functional expenses. Add lines 1 through 24e 84,199,819 53,133,093 9,007,120 22,059,606
26 Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here MediumBullet if following SOP 98-2 (ASC 958-720). 2,978,000 441,000 0 2,537,000
Form 990 (2021)
Form 990 (2021)
Page 11
Part X
Balance Sheet
Check if Schedule O contains a response or note to any line in this Part IX..............
(A)
Beginning of year 		(B)
End of year
Assets 1 Cash–non-interest-bearing ........ 5,640,945 1 4,617,066
2 Savings and temporary cash investments ......... 924,888 2 732,559
3 Pledges and grants receivable, net ...... 4,188,908 3 13,399,732
4 Accounts receivable, net ............. 2,518,929 4 2,928,243
5 Loans and other receivables from any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
  5  
6 Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
  6  
7 Notes and loans receivable, net ...........   7  
8 Inventories for sale or use ............   8  
9 Prepaid expenses and deferred charges ...... 1,639,445 9 1,909,791
10a Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D 10a 16,476,709
b Less: accumulated depreciation 10b 11,877,931 3,378,855 10c 4,598,778
11 Investments—publicly traded securities . 78,900,690 11 58,740,613
12 Investments—other securities. See Part IV, line 11 .....   12  
13 Investments—program-related. See Part IV, line 11 ..   13  
14 Intangible assets ...............   14  
15 Other assets. See Part IV, line 11 ........... 1,150,423 15 7,518,240
16 Total assets. Add lines 1 through 15 (must equal line 33)... 98,343,083 16 94,445,022
Liabilities 17 Accounts payable and accrued expenses ..... 3,519,829 17 13,447,062
18 Grants payable ... 1,150,000 18 3,462,525
19 Deferred revenue ......... 0 19 240,955
20 Tax-exempt bond liabilities .........   20  
21 Escrow or custodial account liability. Complete Part IV of Schedule D   21  
22 Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
  22  
23 Secured mortgages and notes payable to unrelated third parties ..   23  
24 Unsecured notes and loans payable to unrelated third parties .. 0 24 3,396,470
25 Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D 2,583,421 25 9,663,545
26 Total liabilities. Add lines 17 through 25.. 7,253,250 26 30,210,557
Net Assets or Fund Balance Organizations that follow FASB ASC 958, check here MediumBullet and complete lines 27, 28, 32, and 33.
27 Net assets without donor restrictions .......... 79,396,160 27 52,105,755
28 Net assets with donor restrictions ........... 11,693,673 28 12,128,710
Organizations that do not follow FASB ASC 958, check here MediumBullet and complete lines 29 through 33.
29 Capital stock or trust principal, or current funds .....   29  
30 Paid-in or capital surplus, or land, building or equipment fund ...   30  
31 Retained earnings, endowment, accumulated income, or other funds   31  
32 Total net assets or fund balances ........... 91,089,833 32 64,234,465
33 Total liabilities and net assets/fund balances ........ 98,343,083 33 94,445,022
Form 990 (2021)
Form 990 (2021)
Page 12
Part XI
Reconcilliation of Net Assets
Check if Schedule O contains a response or note to any line in this Part XI..............
1
Total revenue (must equal Part VIII, column (A), line 12) ............
1
55,567,608
2
Total expenses (must equal Part IX, column (A), line 25) ............
2
84,199,819
3
Revenue less expenses. Subtract line 2 from line 1 ..............
3
-28,632,211
4
Net assets or fund balances at beginning of year (must equal Part X, line 32, column (A)) ..
4
91,089,833
5
Net unrealized gains (losses) on investments ...............
5
-6,798,204
6
Donated services and use of facilities .................
6
 
7
Investment expenses .....................
7
 
8
Prior period adjustments .....................
8
 
9
Other changes in net assets or fund balances (explain in Schedule O) ........
9
8,575,047
10
Net assets or fund balances at end of year. Combine lines 3 through 9 (must equal Part X, line 32, column (B))
10
64,234,465
Part XII
Financial Statements and Reporting
Check if Schedule O contains a response or note to any line in this Part XII.............
Yes
No
1
Accounting method used to prepare the Form 990:  
If the organization changed its method of accounting from a prior year or checked "Other," explain on
Schedule O.
2a
Were the organization’s financial statements compiled or reviewed by an independent accountant?
2a
 
No
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were compiled or reviewed on a separate basis, consolidated basis, or both:
b
Were the organization’s financial statements audited by an independent accountant?
2b
Yes
 
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were audited on a separate basis, consolidated basis, or both:
c
If "Yes," to line 2a or 2b, does the organization have a committee that assumes responsibility for oversight of the audit, review, or compilation of its financial statements and selection of an independent accountant?
2c
Yes
 
If the organization changed either its oversight process or selection process during the tax year, explain in Schedule O.
3a
As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Single Audit Act and OMB Circular A-133?
3a
 
No
b
If "Yes," did the organization undergo the required audit or audits? If the organization did not undergo the required audit or audits, explain why in Schedule O and describe any steps taken to undergo such audits.
3b
 
 
Form 990 (2021)
Form 990 (2021)
Additional Data


Software ID:  
Software Version:  
Form 990, Special Condition Description:
Special Condition Description
SCHEDULE A
(Form 990)

Department of the Treasury
Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
right arrow Attach to Form 990 or Form 990-EZ.
right arrow Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2022
Open to Public
Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
Reason for Public Charity Status (All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)
1
2
3
4
5
6
7
8
9
10
11
12
a
b
c
d
e
f
Enter the number of supported organizations ...............................  
g
Provide the following information about the supported organization(s).
(i) Name of supported organization (ii) EIN (iii) Type of organization (described on lines 1- 10 above (see instructions)) (iv) Is the organization listed in your governing document? (v) Amount of monetary support (see instructions) (vi) Amount of other support (see instructions)
Yes No
Total
 
   
For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.
Cat. No. 11285F
Schedule A (Form 990) 2022

Schedule A (Form 990) 2022
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2018 (b) 2019 (c) 2020 (d) 2021 (e) 2022 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. 29,429,700 34,202,008 33,002,036 37,557,524 53,676,289 187,867,557
2 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....            
3 The value of services or facilities furnished by a governmental unit to the organization without charge..            
4 Total. Add lines 1 through 3 29,429,700 34,202,008 33,002,036 37,557,524 53,676,289 187,867,557
5 The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f) .. 503,060
6 Public support. Subtract line 5 from line 4. 187,364,497
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2018 (b) 2019 (c) 2020 (d) 2021 (e) 2022 (f) Total
7 Amounts from line 4.. 29,429,700 34,202,008 33,002,036 37,557,524 53,676,289 187,867,557
8 Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... 2,641,824 2,782,381 1,985,828 2,158,934 1,850,075 11,419,042
9 Net income from unrelated business activities, whether or not the business is regularly carried on..            
10 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. 56,636 57,282 18,824 21,419 119,699 273,860
11 Total support. Add lines 7 through 10 199,560,459
12
12
293,362
13
First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here ........................................right arrow
Section C. Computation of Public Support Percentage
14
14
93.890 %
15
15
92.300 %
16a
33 1/3% support test—2022. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization .......................right arrow
b
33 1/3% support test—2021. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization ..................... right arrow
17a
10%-facts-and-circumstances test—2022. If the organization did not check a box on line 13, 16a, or 16b, and line 14 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ............ right arrow
b
10%-facts-and-circumstances test—2021. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line 15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ............ right arrow
18
Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow
Schedule A (Form 990) 2022

Schedule A (Form 990) 2022
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2018 (b) 2019 (c) 2020 (d) 2021 (e) 2022 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .            
2 Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose            
3 Gross receipts from activities that are not an unrelated trade or business under section 513 .....            
4 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...            
5 The value of services or facilities furnished by a governmental unit to the organization without charge            
6 Total. Add lines 1 through 5            
7a Amounts included on lines 1, 2, and 3 received from disqualified persons            
b Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.            
c Add lines 7a and 7b..            
8 Public support. (Subtract line 7c from line 6.)  
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2018 (b) 2019 (c) 2020 (d) 2021 (e) 2022 (f) Total
9 Amounts from line 6...            
10a Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..            
b Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.            
c Add lines 10a and 10b.            
11 Net income from unrelated business activities not included on line 10b, whether or not the business is regularly carried on.            
12 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..            
13 Total support. (Add lines 9, 10c, 11, and 12.)..            
14
First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here................................................. right arrow
Section C. Computation of Public Support Percentage
15
15
 
16
16
 
Section D. Computation of Investment Income Percentage
17
17
 
18
18
 
19a
33 1/3% support tests-2022. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ....... right arrow
b
33 1/3% support tests—2021. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ..... right arrow
20
Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions .... right arrow
Schedule A (Form 990) 2022

Schedule A (Form 990) 2022
Page 4
Part IV
Supporting Organizations
(Complete only if you checked a box on line 12 of Part I. If you checked box 12a, of Part I, complete Sections A and B. If you checked box 12b, of Part I, complete Sections A and C. If you checked box 12c, of Part I, complete Sections A, D, and E. If you checked box12d, of Part I, complete Sections A and D, and complete Part V.)
Section A. All Supporting Organizations
Yes
No
1
Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.
1
 
 
2
Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).
2
 
 
3a
Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer lines 3b and 3c below.
3a
 
 
b
Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.
3b
 
 
c
Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.
3c
 
 
4a
Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked box 12a or 12b in Part I, answer lines 4b and 4c below.
4a
 
 
b
Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.
4b
 
 
c
Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.
4c
 
 
5a
Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer lines 5b and 5c below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).
5a
 
 
b
Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?
5b
 
 
c
Substitutions only. Was the substitution the result of an event beyond the organization's control?
5c
 
 
6
Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.
6
 
 
7
Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990) .
7
 
 
8
Did the organization make a loan to a disqualified person (as defined in section 4958) not described on line 7? If “Yes,” complete Part I of Schedule L (Form 990).
8
 
 
9a
Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons, as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.
9a
 
 
b
Did one or more disqualified persons (as defined on line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.
9b
 
 
c
Did a disqualified person (as defined on line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.
9c
 
 
10a
Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.
10a
 
 
b
Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).
10b
 
 
Schedule A (Form 990) 2022

Schedule A (Form 990) 2022
Page 5
Part IV
Supporting Organizations (continued)
Yes
No
11
Has the organization accepted a gift or contribution from any of the following persons?
a
A person who directly or indirectly controls, either alone or together with persons described on lines 11b and 11c below, the governing body of a supported organization?
11a
 
 
b
A family member of a person described on 11a above?
11b
 
 
c
A 35% controlled entity of a person described on line 11a or 11b above? If “Yes” to 11a, 11b, or 11c, provide detail in Part VI.
11c
 
 
Section B. Type I Supporting Organizations
Yes
No
1
Did the officers, directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.
1
 
 
2
Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.
2
 
 
Section C. Type II Supporting Organizations
Yes
No
1
Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).
1
 
 
Section D. All Type III Supporting Organizations
Yes
No
1
Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?
1
 
 
2
Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).
2
 
 
3
By reason of the relationship described in line 2 above, did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.
3
 
 
Section E. Type III Functionally-Integrated Supporting Organizations
1
Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):
a
b
c
2
Activities Test. Answer lines 2a and 2b below.
Yes
No
a
Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.
2a
 
 
b
Did the activities described on line 2a, above constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.
2b
 
 
3
Parent of Supported Organizations. Answer lines 3a and 3b below.
a
Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations?If "Yes" or "No", provide details in Part VI.
3a
 
 
b
Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.
3b
 
 
Schedule A (Form 990) 2022

Schedule A (Form 990) 2022
Page 6
Part V
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations
1
Section A - Adjusted Net Income (A) Prior Year (B) Current Year
(optional)
1 Net short-term capital gain 1    
2 Recoveries of prior-year distributions 2    
3 Other gross income (see instructions) 3    
4 Add lines 1 through 3 4    
5 Depreciation and depletion 5    
6 Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) 6    
7 Other expenses (see instructions) 7    
8 Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) 8    
Section B - Minimum Asset Amount (A) Prior Year (B) Current Year
(optional)
1 Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): 1
a Average monthly value of securities 1a    
b Average monthly cash balances 1b    
c Fair market value of other non-exempt-use assets 1c    
d Total (add lines 1a, 1b, and 1c) 1d    
e Discount claimed for blockage or other factors
(explain in detail in Part VI):  
2 Acquisition indebtedness applicable to non-exempt use assets 2    
3 Subtract line 2 from line 1d 3    
4 Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions). 4    
5 Net value of non-exempt-use assets (subtract line 4 from line 3) 5    
6 Multiply line 5 by 0.035 6    
7 Recoveries of prior-year distributions 7    
8 Minimum Asset Amount (add line 7 to line 6) 8    
Section C - Distributable Amount Current Year
1 Adjusted net income for prior year (from Section A, line 8, Column A) 1  
2 Enter 85% of line 1 2  
3 Minimum asset amount for prior year (from Section B, line 8, Column A) 3  
4 Enter greater of line 2 or line 3 4  
5 Income tax imposed in prior year 5  
6 Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) 6  
7
Schedule A (Form 990) 2022

Schedule A (Form 990) 2022
Page 7
Part V
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)
Section D - Distributions Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes 1  
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in
excess of income from activity 		2  
3 Administrative expenses paid to accomplish exempt purposes of supported organizations 3  
4 Amounts paid to acquire exempt-use assets 4  
5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI) 5  
6 Other distributions (describe in Part VI). See instructions 6  
7Total annual distributions. Add lines 1 through 6. 7  
8 Distributions to attentive supported organizations to which the organization is responsive (provide
details in Part VI). See instructions 		8  
9 Distributable amount for 2022 from Section C, line 6 9  
10 Line 8 amount divided by Line 9 amount 10  
Section E - Distribution Allocations (see instructions) (i)
Excess Distributions 		(ii)
Underdistributions
Pre-2022 		(iii)
Distributable
Amount for 2022
1 Distributable amount for 2022 from Section C, line 6  
2 Underdistributions, if any, for years prior to 2022 (reasonable cause required-- explain in Part VI).
See instructions.		  
3 Excess distributions carryover, if any, to 2022:
a From 2017.......  
b From 2018.......  
c From 2019.......  
d From 2020.......  
e From 2021.......  
fTotal of lines 3a through e  
g Applied to underdistributions of prior years  
h Applied to 2022 distributable amount  
i Carryover from 2017 not applied (see
instructions) 		 
j Remainder. Subtract lines 3g, 3h, and 3i from line 3f.  
4Distributions for 2022 from Section D, line 7:
$  
a Applied to underdistributions of prior years  
b Applied to 2022 distributable amount  
c Remainder. Subtract lines 4a and 4b from line 4.  
5 Remaining underdistributions for years prior to
2022, if any. Subtract lines 3g and 4a from line 2.
If the amount is greater than zero, explain in Part VI.
See instructions. 		 
6 Remaining underdistributions for 2022. Subtract
lines 3h and 4b from line 1. If the amount is greater
than zero, explain in Part VI. See instructions. 		 
7 Excess distributions carryover to 2023. Add lines
3j and 4c. 		 
8 Breakdown of line 7:
a Excess from 2018.....  
b Excess from 2019.....  
c Excess from 2020.....  
d Excess from 2021.....  
e Excess from 2022.....  
Schedule A (Form 990) (2022)

Schedule A (Form 990) 2022
Page 8
Part VI
Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
 
Return Reference Explanation
SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER INCOME - 2018 AMOUNT: $ 56,636. 2019 AMOUNT: $ 57,282. 2020 AMOUNT: $ 18,824. 2021 AMOUNT: $ 21,419. 2022 AMOUNT: $ 119,699.
Schedule A (Form 990) 2022


Additional Data


Software ID:  
Software Version:  
Schedule B
(Form 990)
Department of the Treasury
Internal Revenue Service
Schedule of Contributors

Arrow Bullet Attach to Form 990, 990-EZ, or 990-PF.
Arrow Bullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2022
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Organization type (check one):
Filers of:
Section:
Form 990 or 990-EZ






Form 990-PF




Check if your organization is covered by the General Rule or a Special Rule.  
Note: Only a section 501(c)(7), (8), or (10) organization can check boxes for both the General Rule and a Special Rule. See instructions.
General Rule
Special Rules
......... Arrow Bullet $  
Caution: An organization that isn't covered by the General Rule and/or the Special Rules doesn't file Schedule B (Form 990,
990-EZ, or 990-PF), but it must answer “No” on Part IV, line 2, of its Form 990; or check the box on line H of its Form 990-EZ
or on its Form 990PF, Part I, line 2, to certify that it doesn't meet the filing requirements of Schedule B (Form 990,
990-EZ, or 990-PF).
For Paperwork Reduction Act Notice, see the Instructions
for Form 990, 990-EZ, or 990-PF.
Cat. No. 30613XSchedule B (Form 990) (2022)
Schedule B (Form 990) (2022) Page 2
Name of organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
  		Employer identification number
13-3271855
Part I
Contributors
Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
RESTRICTED
 
 
 
 
  ,    

$ RESTRICTED


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
Schedule B (Form 990) (2022)
Schedule B (Form 990) (2022)
Page 3
Name of organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
  		Employer identification number

13-3271855
Part II
Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
(a)
No. from Part I 		(b)
Description of noncash property given 		(c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I 		(b)
Description of noncash property given 		(c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I 		(b)
Description of noncash property given 		(c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I 		(b)
Description of noncash property given 		(c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I 		(b)
Description of noncash property given 		(c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I 		(b)
Description of noncash property given 		(c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
Schedule B (Form 990) (2022)
Schedule B (Form 990) (2022)
Page 4
Name of organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
  		Employer identification number

13-3271855
Part III
Exclusively religious, charitable, etc., contributions to organizations described in section 501(c)(7), (8), or (10) that total more than $1,000 for the year from any one contributor. Complete columns (a) through (e) and the following line entry. For organizations completing Part III, enter the total of exclusively religious, charitable, etc., contributions of $1,000 or less for the year. (Enter this information once. See instructions.) Arrow Bullet$  
Use duplicate copies of Part III if additional space is needed.
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
Schedule B (Form 990) (2022)
Additional Data


Software ID:  
Software Version:  
SCHEDULE C
(Form 990)

Department of the Treasury
Internal Revenue Service
Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527

SchCMd Bullet Complete if the organization is described below. SchCMd Bullet Attach to Form 990 or Form 990-EZ.
SchCMd BulletGo to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2021
Open to Public
Inspection
If the organization answered "Yes" on Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" on Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" on Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet Section 501(c)(4), (5), or (6) organizations: Complete Part III.
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I-A
Complete if the organization is exempt under section 501(c) or is a section 527 organization.

1
Provide a description of the organization’s direct and indirect political campaign activities in Part IV. See instructions for definition of “political campaign activities."

2
Political campaign activity expenditures. See instructions ....................................................................SchCMd Bullet
$  
3
Volunteer hours for political campaign activities. See instructions ..................................................................
 

Part I-B
Complete if the organization is exempt under section 501(c)(3).
1
Enter the amount of any excise tax incurred by the organization under section 4955 ................................SchCMd Bullet
$  
2
Enter the amount of any excise tax incurred by organization managers under section 4955 .......................SchCMd Bullet
$  
3
If the organization incurred a section 4955 tax, did it file Form 4720 for this year? .........................................
4a
Was a correction made? ......................................................................................................................
b
If "Yes," describe in Part IV.
Part I-C
Complete if the organization is exempt under section 501(c), except section 501(c)(3).
1
Enter the amount directly expended by the filing organization for section 527 exempt function activities ..... SchCMd Bullet
$  
2
Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ............................................................................................................................SchCMd Bullet

$  
3
Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b...........SchCMd Bullet

$  
4
Did the filing organization file Form 1120-POL for this year? ...................................................................
5
Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.
(a) Name (b) Address (c) EIN (d) Amount paid from filing organization's funds. If none, enter -0-. (e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.
1
2
3
4
5
6
For Paperwork Reduction Act Notice, see the instructions for Form 990.
Cat. No. 50084S
Schedule C (Form 990) 2021

Schedule C (Form 990) 2021
Page 2
Part II-A
Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).
A Check SchCMd Bulletexpenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet
Limits on Lobbying Expenditures
(The term "expenditures" means amounts paid or incurred.) 		(a) Filing
organization's
totals 		(b) Affiliated group totals
1a Total lobbying expenditures to influence public opinion (grass roots lobbying) ...................... 183,829  
b Total lobbying expenditures to influence a legislative body (direct lobbying) ........................ 688,506  
c Total lobbying expenditures (add lines 1a and 1b) ............................................................ 872,335  
d Other exempt purpose expenditures ............................................................................... 52,260,758  
e Total exempt purpose expenditures (add lines 1c and 1d) .................................................. 53,133,093  
f Lobbying nontaxable amount. Enter the amount from the following table in both
columns.		 1,000,000  
If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
Not over $500,00020% of the amount on line 1e.
Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
Over $17,000,000$1,000,000.
g Grassroots nontaxable amount (enter 25% of line 1f) ................................................. 250,000  
h Subtract line 1g from line 1a. If zero or less, enter -0-. ................................................ 0  
i Subtract line 1f from line 1c. If zero or less, enter -0-. ................................................ 0  
j If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting
section 4911 tax for this year? ...................................................................................................................

4-Year Averaging Period Under Section 501(h)
(Some organizations that made a section 501(h) election do not have to complete all of the five
columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
Calendar year (or fiscal year
beginning in) 		(a) 2018 (b) 2019 (c) 2020 (d) 2021 (e) Total
2a Lobbying nontaxable amount 1,000,000 1,000,000 1,000,000 1,000,000 4,000,000
b Lobbying ceiling amount
(150% of line 2a, column(e)) 		6,000,000
c Total lobbying expenditures 565,604 220,698 177,409 872,335 1,836,046
d Grassroots nontaxable amount 250,000 250,000 250,000 250,000 1,000,000
e Grassroots ceiling amount
(150% of line 2d, column (e))		 1,500,000
f Grassroots lobbying expenditures 64,007 7,109   183,829 254,945
Schedule C (Form 990) 2021


Schedule C (Form 990) 2021
Page 3
Part II-B
Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).
For each "Yes" response on lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.
(a)
Yes|No
(b)
Amount
1
During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:
a
Volunteers? ...........................................................................................................
 
 
b
Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ........
 
 
c
Media advertisements? ...................................................................................................
 
 
 
d
Mailings to members, legislators, or the public? .............................................................................
 
 
 
e
Publications, or published or broadcast statements? ...........................................................
 
 
 
f
Grants to other organizations for lobbying purposes? ..........................................................
 
 
 
g
Direct contact with legislators, their staffs, government officials, or a legislative body? .......................
 
 
 
h
Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ..................
 
 
 
i
Other activities? ...................................................................................................................
 
 
 
j
Total. Add lines 1c through 1i ....................................................................................................
 
2a
Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....
 
 
b
If "Yes," enter the amount of any tax incurred under section 4912 ...........................................
 
c
If "Yes," enter the amount of any tax incurred by organization managers under section 4912 ...................
 
d
If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? ........................
 
 
Part III-A
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).
Yes
No
1
Were substantially all (90% or more) dues received nondeductible by members? ...............................................
1
 
 
2
Did the organization make only in-house lobbying expenditures of $2,000 or less? ............................................
2
 
 
3
Did the organization agree to carry over lobbying and political expenditures from the prior year? .................................
3
 
 
Part III-B
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."
1
Dues, assessments and similar amounts from members ......................................................................
1
 
2
Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political expenses for which the section 527(f) tax was paid).
a
Current year .............................................................................................................................
2a
 
b
Carryover from last year ............................................................................................................
2b
 
c
Total ...........................................................................................................................................
2c
 
3
Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .
3
 
4
If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ......................................................................................................................
4
 
5
Taxable amount of lobbying and political expenditures. See Instructions .........................................
5
 
Part IV
Supplemental Information
Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.
Return Reference Explanation
Schedule C (Form 990) 2021


Additional Data


Software ID:  
Software Version:  

SCHEDULE D
(Form 990)
Department of the Treasury
Internal Revenue Service
Supplemental Financial Statements
SchDMd Bullet Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
SchDMd Bullet Attach to Form 990.
SchDMd Bullet Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2021
Open to Public Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.
(a) Donor advised funds (b) Funds and other accounts
1 Total number at end of year .........    
2 Aggregate value of contributions to (during year)    
3 Aggregate value of grants from (during year)    
4 Aggregate value at end of year ........    
5
Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............
6
Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................
Part II
Conservation Easements.
Complete if the organization answered "Yes" on Form 990, Part IV, line 7.
1
Purpose(s) of conservation easements held by the organization (check all that apply).
2
Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.
Held at the End of the Year
a Total number of conservation easements ...................... 2a  
b Total acreage restricted by conservation easements .................... 2b  
c Number of conservation easements on a certified historic structure included in (a) ..... 2c  
d Number of conservation easements included in (c) acquired after 7/25/06, and not on a historic structure listed in the National Register ... 2d  
3
Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year SchDMd Bullet  
4
Number of states where property subject to conservation easement is located SchDMd Bullet  
5
Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............
6
Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet  
7
Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet $  
8
Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................
9
In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.
1a
If the organization elected, as permitted under FASB ASC 958, not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.
b
If the organization elected, as permitted under FASB ASC 958, to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:
(i)
Revenue included on Form 990, Part VIII, line 1 .........................SchDMd Bullet $  
(ii)
Assets included in Form 990, Part X ...............................SchDMd Bullet $  
2
If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under FASB ASC 958 relating to these items:
a
Revenue included on Form 990, Part VIII, line 1 ..........................SchDMd Bullet $  
b
Assets included in Form 990, Part X ...............................SchDMd Bullet $  
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 52283D
Schedule D (Form 990) 2021

Schedule D (Form 990) 2021
Page 2
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)
3
Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):
a
d
b
e
 
c
4
Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.
5
During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...
Part IV
Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.
1a
Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................
b If "Yes," explain the arrangement in Part XIII and complete the following table: Amount
c Beginning balance ............................. 1c  
d Additions during the year ............................ 1d  
e Distributions during the year .......................... 1e  
f Ending balance ................................ 1f  
2a
Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...
b
If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....
Part V
Endowment Funds.
Complete if the organization answered "Yes" on Form 990, Part IV, line 10.
(a) Current year (b) Prior year (c) Two years back (d) Three years back (e) Four years back
1a Beginning of year balance .... 6,509,730 6,516,315 6,516,315 6,454,731 6,516,315
b Contributions ...          
c Net investment earnings, gains, and losses -503,564 429,109 669,572 587,974 -61,584
d Grants or scholarships ...          
e Other expenditures for facilities
and programs ... 		5,305,205 435,694 669,572 526,390  
f Administrative expenses ....          
g End of year balance ...... 700,961 6,509,730 6,516,315 6,516,315 6,454,731
2
Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:
a
Board designated or quasi-endowment SchDMd Bullet  
b
Permanent endowment SchDMd Bullet30.723 %
c
Term endowment SchDMd Bullet69.277 %
The percentages on lines 2a, 2b, and 2c should equal 100%.
3a
Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes
No
(i) Unrelated organizations .................
3a(i)
 
No
(ii) Related organizations .................
3a(ii)
 
No
b
If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........
3b
 
 
4
Describe in Part XIII the intended uses of the organization's endowment funds.
Part VI
Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.
Description of property (a) Cost or other basis
(investment) 		(b) Cost or other basis (other) (c) Accumulated depreciation (d) Book value
1a Land .....      
b Buildings ....        
c Leasehold improvements   1,327,429 273,078 1,054,351
d Equipment ....   979,173 630,086 349,087
e Other .....   14,170,107 10,974,767 3,195,340
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).)..SchDMdBullet 4,598,778
Schedule D (Form 990) 2021

Schedule D (Form 990) 2021
Page 3
Part VII
Investments - Other Securities.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.
(a) Description of security or category
(including name of security)		 (b) Book value (c) Method of valuation:
Cost or end-of-year market value
(1) Financial derivatives.........    
(2) Closely-held equity interests........    
(3)Other
(A)
(B)
(C)
(D)
(E)
(F)
(G)
(H)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)Small Bullet  
Part VIII
Investments - Program Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.
(a) Description of investment (b) Book value (c) Method of valuation:
Cost or end-of-year market value
(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)Small Bullet  
Part IX
Other Assets.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.
(a) Description (b) Book value
(1)BENEFICIAL INTEREST IN PERPETUAL TRUSTS 763,677
(2)CONTRIBUTIONS RECEIVABLE FROM REMAINDER TRUSTS 103,853
(3)RIGHT OF USE ASSET 6,650,710
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........Small Bullet 7,518,240
Part X
Other Liabilities.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.
1.(a) Description of liability (b) Book value
(1) Federal income taxes  
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)Small Bullet 9,663,545
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII
Schedule D (Form 990) 2021

Schedule D (Form 990) 2021
Page 4
Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1 Total revenue, gains, and other support per audited financial statements ....... 1 70,288,037
2 Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a Net unrealized gains (losses) on investments .... 2a -6,798,204
b Donated services and use of facilities ......... 2b 13,105,854
c Recoveries of prior year grants ........... 2c  
d Other (Describe in Part XIII.) ............ 2d -282,893
e Add lines 2a through 2d ..................... 2e 6,024,757
3 Subtract line 2e from line 1.................. 3 64,263,280
4 Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b . 4a 180,821
b Other (Describe in Part XIII.) ........... 4b -8,876,493
c Add lines 4a and 4b.................... 4c -8,695,672
5 Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ...... 5 55,567,608
Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1 Total expenses and losses per audited financial statements ........... 1 97,143,405
2 Amounts included on line 1 but not on Form 990, Part IX, line 25:
a Donated services and use of facilities ......... 2a 13,105,854
b Prior year adjustments ............ 2b  
c Other losses ................ 2c  
d Other (Describe in Part XIII.) ............ 2d 18,553
e Add lines 2a through 2d.................... 2e 13,124,407
3 Subtract line 2e from line 1................... 3 84,018,998
4 Amounts included on Form 990, Part IX, line 25, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b .. 4a 180,821
b Other (Describe in Part XIII.) ............ 4b  
c Add lines 4a and 4b..................... 4c 180,821
5 Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ...... 5 84,199,819
Part XIII
Supplemental Information
Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.
Return Reference Explanation
PART V, LINE 4: EARNINGS FROM THE ENDOWMENT MUST BE USED TO SUPPORT RESEARCH ACTIVITIES. UPON EXPIRATION OF THE TERM ENDOWMENT, THE CORPUS MAY ALSO BE USED TO SUPPORT RESEARCH ACTIVITIES.
PART X, LINE 2: THE ASSOCIATION DID NOT HAVE ANY UNRELATED TAXABLE INCOME FOR THE YEARS ENDED JANUARY 31, 2023 AND 2022. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN PROVIDED IN THE FINANCIAL STATEMENTS. THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED THAT ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION. THE ASSOCIATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES.
PART XI, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS -110,870. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -172,023.
PART XI, LINE 4B - OTHER ADJUSTMENTS: EVENTS, NET OF EXPENSES NOT ON AUDITED FINANCIAL STATEMENT -2,755,720. EXCESS FAIR VALUE OF ASSETS ACQUIRED -6,120,773.
PART XII, LINE 2D - OTHER ADJUSTMENTS: UNUSED GRANTS 18,553.
Schedule D (Form 990) 2021


Additional Data


Software ID:  
Software Version:  




SCHEDULE F(Form 990)
Department of the Treasury
Internal Revenue Service
Statement of Activities Outside the United States
Right pointing arrow large image Complete if the organization answered "Yes" to Form 990, Part IV, line 14b, 15, or 16.Right pointing arrow large image Attach to Form 990.Right pointing arrow large image Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2022
Open to Public Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
General Information on Activities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 14b.
1
For grantmakers. Does the organization maintain records to substantiate the amount of its grants and
other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used
to award the grants or assistance? . . . . . . . . . . . . . . . . . . . . . . . . .
2
For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.
3
Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)
(a) Region (b) Number of offices in the region (c) Number of employees, agents, and independent contractors in the region (d) Activities conducted in region (by type) (such as, fundraising, program services, investments, grants to recipients located in the region) (e) If activity listed in (d) is a program service, describe specific type of
service(s) in the region		 (f) Total expenditures
for and investments
in the region
EAST ASIA & THE PACIFIC 0 0 GRANTS RESEARCH 224,843
NORTH AMERICA 0 0 GRANTS RESEARCH 550,000
EUROPE 0 0 GRANTS RESEARCH 1,262,365
SUB-SAHARAN AFRICA 0 0 GRANTS RESEARCH 50,000
           
           
           
           
           
           
           
           
           
           
           
           
           
3a Sub-total .... 0 0 2,087,208
b Total from continuation sheets to Part I ... 0 0 0
c Totals (add lines 3a and 3b) 0 0 2,087,208
For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) 2022
Schedule F (Form 990) 2022
Page 2
Part II
Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.
1 (a) Name of organization (b) IRS code section
and EIN (if applicable)		 (c) Region (d) Purpose of
grant 		(e) Amount of
cash grant 		(f) Manner of
cash
disbursement 		(g) Amount
of noncash
assistance 		(h) Description
of noncash
assistance 		(i) Method of
valuation
(book, FMV,
appraisal, other)
SUB-SAHARAN AFRICA SEED GRANTS PROGRAM 50,000 WIRE TRANSFER 0 N/A N/A
EAST ASIA AND THE PACIFIC SEED GRANTS PROGRAM 49,843 WIRE TRANSFER 0 N/A N/A
EAST ASIA AND THE PACIFIC CLINICAL TRIAL AWARD 125,000 WIRE TRANSFER 0 N/A N/A
EAST ASIA AND THE PACIFIC SEED GRANTS PROGRAM 50,000 WIRE TRANSFER 0 N/A N/A
EUROPE DRUG DEVELOPMENT CONTRACT 300,000 CHECK 0 N/A N/A
EUROPE PREVENTION PROGRAM 200,000 WIRE TRANSFER 0 N/A N/A
EUROPE STRATEGIC INITIATIVE 100,000 WIRE TRANSFER 0 N/A N/A
EUROPE POST DOCTORAL FELLOWSHIP 75,000 CHECK 0 N/A N/A
EUROPE SEED GRANTS PROGRAM 50,000 WIRE TRANSFER 0 N/A N/A
EUROPE INVESTIGATOR INITIATED AWARD MULTI-YEAR 42,223 WIRE TRANSFER 0 N/A N/A
EUROPE PREVENTION PROGRAM 200,000 WIRE TRANSFER 0 N/A N/A
EUROPE INVESTIGATOR INITIATED AWARD MULTI-YEAR 75,000 CHECK 0 N/A N/A
EUROPE POST DOCTORAL FELLOWSHIP 75,000 CHECK 0 N/A N/A
EUROPE SEED GRANTS PROGRAM 49,987 WIRE TRANSFER 0 N/A N/A
EUROPE INVESTIGATOR INITIATED AWARD MULTI-YEAR 45,155 WIRE TRANSFER 0 N/A N/A
EUROPE SEED GRANTS PROGRAM 50,000 WIRE TRANSFER 0 N/A N/A
NORTH AMERICA DRUG DEVELOPMENT CONTRACT 100,000 WIRE TRANSFER 0 N/A N/A
NORTH AMERICA PREVENTION PROGRAM 200,000 WIRE TRANSFER 0 N/A N/A
NORTH AMERICA INVESTIGATOR INITIATED AWARD MULTI-YEAR 50,000 CHECK 0 N/A N/A
NORTH AMERICA TRIAL CAPACITY PROGRAM 200,000 CHECK 0 N/A N/A
2 Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter .......MediumBullet
20
3 Enter total number of other organizations or entities .......................MediumBullet
0
Schedule F (Form 990) 2022
Schedule F (Form 990) 2022Page 3
Part III
Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 16.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Region (c) Number of recipients (d) Amount of
cash grant 		(e) Manner of cash
disbursement 		(f) Amount of
noncash
assistance 		(g) Description
of noncash
assistance 		(h) Method of
valuation
(book, FMV,
appraisal, other)
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
Schedule F (Form 990) 2022
Schedule F (Form 990) 2022
Page 4
Part IV
Foreign Forms
1 Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
2 Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to separately file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A; don't file with Form 990). . . . . . . . . . . . . . . . . . . . . . . .
3 Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471). . . . . . . . . . . . . . . . . . . . . . . . . . . .
4 Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621) .
5 Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships (see Instructions for Form 8865). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
6 Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to separately file Form 5713, International Boycott Report (see Instructions for Form 5713; don't file with Form 990).. . . . . . . . . . . . . . . . . . . . . . . . . . . .
Schedule F (Form 990) 2022
Schedule F (Form 990) 2022
Page 5
Part V
Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information. See instructions.
ReturnReference Explanation
PART I, LINE 2: FOREIGN RESEARCHERS, SIMILAR TO U.S. RESEARCHERS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH DEPARTMENT.
PART III ACCOUNTING METHOD:  
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
Schedule F (Form 990) 2022
Additional Data


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SCHEDULE G (Form 990)
Department of the Treasury
Internal Revenue Service
Supplemental Information Regarding
Fundraising or Gaming Activities
Complete if the organization answered "Yes" on Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrowAttach to Form 990 or Form 990-EZ.
right arrowGo to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2022
Open to Public Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
Fundraising Activities.Complete if the organization answered "Yes" on Form 990, Part IV, line 17.
Form 990-EZ filers are not required to complete this part.
1
Indicate whether the organization raised funds through any of the following activities. Check all that apply.
a e
b f
c g
d
2a
Did the organization have a written or oral agreement with any individual (including officers, directors, trustees
or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?
b
If "Yes," list the 10 highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.


(i) Name and address of individual
or entity (fundraiser) 		(ii) Activity (iii) Did fundraiser have custody or control of contributions? (iv) Gross receipts
from activity 		(v) Amount paid to
(or retained by)
fundraiser listed in
col. (i) 		(vi) Amount paid to
(or retained by)
organization
Yes No
 
LAUTMAN MASKA NEILL & COMPANY
1730 RHODE ISLAND AVE NW SUITE 301
 
WASHINGTON, DC20036 		FUNDRAISING COUNSEL   No 4,586,736 366,850 4,219,886
 
CREATIVE DIRECT RESPONSE INC
16900 SCIENCE DR SUITE 210
 
BOWIE, MD20715 		FUNDRAISING COUNSEL   No 0 282,136 -282,136
             
             
             
             
             
             
             
             
Total . . . . . . . . . . . . . . . . . . . . right arrow 4,586,736 648,986 3,937,750
3
List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.
AL, AK, AZ, AR, CA, CO, CT, DE, FL, GA, HI, ID, IL, IN, IA, KS, KY, LA, ME, MD, MA, MI, MN, MS, MO, MT, NE, NV, NH, NJ, NM, NY, NC, ND, OH, OK, OR, PA, RI, SC, SD, TN, TX, UT, VT, VA, WA, WV, WI, WY, DC
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 50083H
Schedule G (Form 990) 2022
Schedule G (Form 990) 2022
Page 2
Part II
Fundraising Events. Complete if the organization answered "Yes" on Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.









VerticalRevenue
(a) Event #1

KANSAS CITY WALK
(event type) 		(b) Event #2

WASHINGTON WALK
(event type) 		(c) Other events

4
(total number) 		(d) Total events
(add col. (a) through col. (c))

1
Gross receipts . . . . .
695,373
519,377
9,387,824
10,602,574

2
Less: Contributions . . . .
666,883
477,341
6,702,630
7,846,854
3 Gross income (line 1 minus
line 2) . . . . . .
28,490
42,036
2,685,194
2,755,720



VerticalDirectExpenses
4 Cash prizes . . . . .        
5 Noncash prizes . . . . 9,907 2,486 169,268 181,661
6 Rent/facility costs . . . . 3,966 20,184 597,217 621,367
7 Food and beverages . . . 460 178 109,263 109,901
8 Entertainment . . . . 135 2,125 79,775 82,035
9 Other direct expenses . . . 14,022 17,063 1,729,671 1,760,756
10 Direct expense summary. Add lines 4 through 9 in column (d) . . . . . . . . . . right arrow 2,755,720
11 Net income summary. Subtract line 10 from line 3, column (d). . . . . . . . . . right arrow 0
Part III
Gaming. Complete if the organization answered "Yes" on Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.
VerticalRevenue
(a) Bingo (b) Pull tabs/Instant
bingo/progressive bingo 		(c) Other gaming (d) Total gaming (add col.(a) through col.(c))

1
Gross revenue . . . . .
 
 
 
 
VerticalDirectExpenses

2
Cash prizes . . . . .
 
 
 
 

3
Noncash prizes . . . .
 
 
 
 

4
Rent/facility costs . . . .
 
 
 
 

5
Other direct expenses . . .
 
 
 
 


6

Volunteer labor . . . .
%
%
%


7
Direct expense summary. Add lines 2 through 5 in column (d) . . . . . . . . . . right arrow
 

8
Net gaming income summary. Subtract line 7 from line 1, column (d). . . . . . . . . right arrow
 

9
Enter the state(s) in which the organization conducts gaming activities:
a
Is the organization licensed to conduct gaming activities in each of these states? . . . . . . . .
b
If "No," explain:
 
10a
Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? . . .
b
If "Yes," explain:
 
Schedule G (Form 990) 2022
Schedule G (Form 990) 2022
Page 3
11
Does the organization conduct gaming activities with nonmembers? . . . . . . . . . . .
12
Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity
formed to administer charitable gaming? . . . . . . . . . . . . . . . . .
13
Indicate the percentage of gaming activity conducted in:
a
The organization's facility . . . . . . . . . . . . . . . . . .
13a
%
b
An outside facility . . . . . . . . . . . . . . . . . . . .
13b
%
14
Enter the name and address of the person who prepares the organization's gaming/special events books and records:
Name right arrow
Address right arrow
15a
Does the organization have a contract with a third party from whom the organization receives gaming
revenue? . . . . . . . . . . . . . . . . . . . . . . . .
b
If "Yes," enter the amount of gaming revenue received by the organization right arrow $   and the
amount of gaming revenue retained by the third party right arrow $   .
c
If "Yes," enter name and address of the third party:
Name right arrow
Address right arrow
16
Gaming manager information:
Name right arrow
Gaming manager compensation right arrow $  
Description of services provided right arrow
 
17
Mandatory distributions:
a
Is the organization required under state law to make charitable distributions from the gaming proceeds to
retain the state gaming license? . . . . . . . . . . . . . . . . . . .
b
Enter the amount of distributions required under state law distributed to other exempt organizations or spent
in the organization's own exempt activities during the tax year right arrow$  
Part IV
Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v); and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information. See instructions.
Return Reference Explanation
SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE ASSOCIATION RECEIVES ALL PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS.
Schedule G (Form 990) 2022
Additional Data


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Schedule I
(Form 990)
Department of the Treasury
Internal Revenue Service
Grants and Other Assistance to Organizations,
Governments and Individuals in the United States
Complete if the organization answered "Yes," on Form 990, Part IV, line 21 or 22.
lBullet Attach to Form 990.
lBullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2022
Open to Public
Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number
13-3271855
Part I
General Information on Grants and Assistance
1
Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ........................
2
Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.
Part II
Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" on Form 990, Part IV, line 21, for any recipient
that received more than $5,000. Part II can be duplicated if additional space is needed.
(a) Name and address of organization
or government		 (b) EIN (c) IRC section
(if applicable)		 (d) Amount of cash grant (e) Amount of non-cash
assistance		 (f) Method of valuation
(book, FMV, appraisal,
other)		 (g) Description of
noncash assistance		 (h) Purpose of grant
or assistance
(1) ALABAMA NEUROLOGY ASSOCIATES
3105 INDEPENDENCE DR STE 105
BIRMINGHAM,AL35209 		63-0976742 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(2) ALLEGHENY HEALTH NETWORK
490 E NORTH AVE STE 500
PITTSBURGH,PA15212 		45-3674924 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(3) ATRIUM HEALTH FOUNDATION
2709 WATER RIDGE PARKWAY STE 300
CHARLOTTE,NC28217 		56-6060481 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(4) AVERA MCKENNAN
1301 S CLIFF AVE STE 506
SIOUX FALLS,SD57105 		46-0224743 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(5) BAYLOR COLLEGE OF MEDICINE
PO BOX 301207
DALLAS,TX75303 		74-1613878 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(6) BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA
HOUSTON,TX77030 		74-1613878 501(C)3 25,000 0 N/A N/A ANNUAL GRANT
(7) BAYLOR SCOTT & WHITE MEDICAL CENTER - ROUND ROCK
300 A UNIVERSITY BLVD 4TH FL
NEUROLOGY
ROUND ROCK,TX78665 		20-3749695 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(8) BAYLOR SCOTT & WHITE MEDICAL CENTER - ROUND ROCK
300 UNIVERSITY BLVD
ROUND ROCK,TX78665 		20-3749695 501(C)3 10,000 0 N/A N/A ANNUAL GRANT
(9) BROWN NEUROLOGY
593 EDDY ST APC 5
PROVIDENCE,RI02903 		05-0448314 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(10) CEDARS SINAI MEDICAL CENTER
127 S SAN VICENTE BLVD A6600
LOS ANGELES,CA90048 		95-1644600 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(11) CLEVELAND CLINIC
9500 EUCLID AVE DESK S90
CLEVELAND,OH44195 		34-0714585 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(12) COMMUNITY FOUNDATION OF GREATER HUNTSVILLE
610 AIRPORT RD SUITE 100
HUNTSVILLE,AL35801 		26-3750673 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(13) COREWELL HEALTH
2750 E BELTLINE AVE NE
GRAND RAPIDS,MI49525 		38-3382353 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(14) COXHEALTH FOUNDATION
3525 S NATIONAL AVE STE 204
SPRINGFIELD,MO65807 		43-6810485 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(15) COXHEALTH FOUNDATION
PO BOX 8131
SPRINGFIELD,MO65890 		43-6810485 501(C)3 5,500 0 N/A N/A MONTHLY GRANT
(16) CURATORS OF THE UNIVERSITY OF MISSOURI
PO BOX 807012
KANSAS CITY,MO64180 		43-6003859 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(17) DARTMOUTH HITCHCOCK CLINIC
ONE MEDICAL CENTER DR
LEBANON,NH03756 		22-2519596 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(18) DUKE UNIVERSITY
PO BOX 602651
CHARLOTE,NC28260 		56-0532129 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(19) ECU HEALTH MEDICAL CENTER
2100 STANTONSBURG RD
GREENVILLE,NC27834 		56-0585243 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(20) ESSENTIA HEALTH FOUNDATION
400 EAST THIRD STREET
DULUTH,MN55805 		27-1984704 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(21) GEISINGER HEALTH FOUNDATION
100 N ACADEMY AVE MC 40-36
DANVILLE,PA17822 		23-1995911 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(22) GEORGIA HEALTH SCIENCES FOUNDATION INC
1120 15TH ST EMG LAB BP-4390
AUGUSTA,GA30912 		35-2310573 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(23) HENNEPIN HEALTHCARE ALS CLINIC
701 PARK AVENUE
MINNEAPOLIS,MN55415 		42-1707837 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(24) HENRY FORD HEALTH SYSTEM
1414 E MAPLE RD STE 2N
TROY,MI48083 		38-1357020 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(25) HMH HOSPITALS CORPORATION
1945 ROUTE 33
NEPTUNE,NJ07753 		22-1487576 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(26) HOLY CROSS HOSPITAL
4725 NORTH FEDERAL HIGHWAY
FT LAUDERDALE,FL33308 		59-0791028 501(C)3 51,960 0 N/A N/A BITNER PLANTE QUARTERLY GRANT
(27) HOLY CROSS HOSPITAL PHIL SMITH ALS CLINIC PROGRAM
4725 N FEDERAL HIGHWAY
FT LAUDERDALE,FL33308 		59-0791028 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(28) HONORHEALTH AMBULATORY
7242 E OSBORN RD SUITE 400
SCOTTSDALE,AZ85251 		94-2735850 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(29) HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVE
NEW BRITAIN,CT06053 		06-0646766 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(30) HOSPITAL FOR SPECIAL SURGERY
525 EAST 71ST ST BELAIRE BLDG 5TH
FL
NEW YORK,NY10021 		13-1624135 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(31) HOUSTON METHODIST HOSPITAL FOUNDATION
6560 FANNIN STREET SUITE 802
HOUSTON,TX77030 		76-0094743 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(32) HOUSTON METHODIST HOSPITAL FOUNDATION
6565 FANNIN ST
HOUSTON,TX77030 		76-0094743 501(C)3 25,000 0 N/A N/A ANNUAL GRANT
(33) INDIANA UNIVERSITY
355 W 16TH ST ROOM 3222
INDIANAPOLIS,IN46202 		35-6001673 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(34) JEFFERSON WEINBERG ALS CENTER
900 WALNUT STREET JHN SUITE 409
PHILADELPHIA,PA19107 		23-2829095 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(35) KANSAS UNIVERSITY ENDOWMENT ASSOCIATION
3599 RAINBOW BLVD MS 2012
KANSAS CITY,KS66160 		48-0547734 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(36) KECK MEDICINE OF USC ALS CLINIC
1520 SAN PABLO ST STE 3000
LOS ANGELES,CA90033 		95-1642394 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(37) LAHEY CLINIC INC
41 MALL ROAD
BURLINGTON,MA01805 		04-2704683 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(38) LAHEY CLINIC FOUNDATION INC
41 MALL RD
BURLINGTON,MA01805 		04-2323457 501(C)3 12,000 0 N/A N/A MONTHLY GRANT
(39) LEHIGH VALLEY HEALTH NETWORK
1250 S CEDAR CREST BLVD STE 405
ALLENTOWN,PA18103 		23-1689692 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(40) LOMA LINDA UNIVERSITY FACULTY MEDICAL GROUP
11370 ANDERSON ST SUITE B-100
LOMA LINDA,CA92534 		33-0672915 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(41) LSU HEALTH SCIENCES CENTER NEW ORLEANS
2021 PERDIDO ST
NEW ORLEANS,LA70112 		72-6087770 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(42) MAYO CLINIC
200 FIRST ST SW 8TH FL MAYO BLDG
ROCHESTER,MN55905 		41-6011702 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(43) MAYO CLINIC ARIZONA
13400 E SHEA BLVD
SCOTTSDALE,AZ85259 		86-0800150 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(44) MAYO CLINIC FLORIDA
4500 SAN PABLO RD S
JACKSONVILLE,FL32224 		59-3337028 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(45) MAYO CLINIC FLORIDA
200 FIRST ST SW
ROCHESTER,MN55905 		59-0714831 501(C)3 49,839 0 N/A N/A BITNER PLANTE QUARTERLY GRANT
(46) MEDICAL UNIVERSITY OF SOUTH CAROLINA
96 JONATHAN LUCAS ST CSB STE 301 -
MSC 606
CHARLESTON,SC29425 		57-6000722 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(47) MOUNT SINAI BETH ISRAEL
10 UNION SQUARE EAST SUITE 5D
NEW YORK,NY10003 		13-5564934 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(48) NEBRASKA MEDICINE
988435 NEBRASKA MEDICAL CENTER
OMAHA,NE68198 		91-1858433 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(49) NEUROLOGY ASSOCIATES OF STONY BROOK
181 NORTH BELLE MEAD RD STE 5
EAST SETAUKET,NY11733 		11-2587430 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(50) OCHSNER CLINIC FOUNDATION
1514 JEFFERSON HWY 7TH FL CLINIC
TOWER
NEW ORLEANS,LA70121 		72-0502505 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(51) OHIOHEALTH FOUNDATION INC
300 POLARIS PARKWAY STE 210
WESTERVILLE,OH43082 		23-7446919 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(52) OREGON HEALTH AND SCIENCE UNIVERSITY
3303 S BOND AVE BLDG 1 8TH FL
PORTLAND,OR97239 		93-1176109 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(53) PRISMA HEALTH PARTNERS IN HEALTH INC
200 PATEWOOD DR SUITE B350
GREENVILLE,SC29615 		57-1004971 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(54) PROVIDENCE HEALTH & SERVICES - OREGON
9135 SW BARNES RD STE 363
PORTLAND,OR97225 		93-0386929 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(55) RUTGERS HEALTH-RWJ SCLERODERMA PROGRAM
125 PATERSON ST CAB-SUITE 6200
NEW BRUNSWICK,NJ08901 		22-3371727 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(56) SENTARA DEPARTMENT OF NEUROLOGY
1950 GLENN MITCHELL DR SUITE 200
VIRGINIA BEACH,VA23456 		54-1547408 501(C)3 7,500 0 N/A N/A QUARTERLY GRANT
(57) SOUTHERN CALIFORNIA PERMANENTE MEDICAL GROUP - HARBOR CITY
1050 PACIFIC COAST HWY 3RD FLOOR
HARBOR CITY,CA90710 		95-1750445 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(58) SOUTHERN CALIFORNIA PERMANENTE MEDICAL GROUP - LOS ANGELES
1505 N EDGEMONT ST 5TH FLOOR DEPT
OF NEUROLOGY
LOS ANGELES,CA90027 		95-1750445 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(59) ST JOSEPH'S HOSPITAL AND MEDICAL CENTER
FILE 57431
LOS ANGELES,CA90074 		94-1196203 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(60) ST LOUIS UNIVERSITY
1402 S GRAND 218B SCHWITALLA HALL
ST LOUIS,MO63104 		43-0654872 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(61) SUTTER WEST BAY HOSPITALS DBA CALIFORNIA PACIFIC MEDICAL CEN
1100 VAN NESS AVE 6TH FLOOR
SAN FRANCISCO,CA94109 		94-2948131 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(62) SWEDISH HEALTH SERVICES
747 BROADWAY
SEATTLE,WA98122 		91-0433740 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(63) TEXAS NEUROLOGY
6080 N CENTRAL EXPRESSWAY
DALLAS,TX75206 		75-2654757 501(C)3 25,000 0 N/A N/A ANNUAL GRANT
(64) TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER AT EL PASO
5001 EL PASO DR
EL PASO,TX79905 		75-2660818 501(C)3 10,000 0 N/A N/A ANNUAL GRANT
(65) THE CURATORS OF THE UNIVERSITY OF MISSOURI
115 BUSINESS LOOP 70 WEST
COLUMBIA,MO65211 		43-6003859 501(C)3 10,500 0 N/A N/A MONTHLY GRANT
(66) THE EMORY CLINIC INC
12 EXECUTIVE PARK DR NE STE 276
ATLANTA,GA30329 		58-2030692 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(67) THE GEORGE WASHINGTON UNIVERSITY
PO BOX 98131
WASHINGTON,DC20077 		53-0196584 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(68) THE GEORGE WASHINGTON UNIVERSITY
PO BOX 98131
WASHINGTON,DC20077 		53-0196584 501(C)3 18,750 0 N/A N/A QUARTERLY GRANT
(69) THE JOHNS HOPKINS UNIVERSITY
12529 COLLECTIONS CENTER DR
CHICAGO,IL60693 		52-0595110 501(C)3 90,000 0 N/A N/A QUARTERLY GRANT
(70) THE MEDICAL COLLEGE OF WISCONSIN INC
8701 WATERTOWN PLANK RD
MILWAUKEE,WI53226 		39-0806261 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(71) THE PENNSYLVANIA STATE UNIVERSITY
30 HOPE DRIVE EC 037
HERSHEY,PA17033 		24-6000376 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(72) THE PERMANENTE MEDICAL GROUP INC - SAN FRANCISCO
350 ST JOSEPHS AVE 1ST FL
SAN FRANCISCO,CA94115 		94-2728480 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(73) THE PERMANENTE MEDICAL GROUP INC - SAN RAFAEL
99 MONTECILLO ROAD
SAN RAFAEL,CA94903 		94-2728480 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(74) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
200 S MANCHESTER AVE SUITE 110
ORANGE,CA92868 		95-2226406 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(75) THE RESEARCH FOUNDATION FOR THE STATE UNIVERSITY OF NEW YORK
750 EAST ADAMS ST
SYRACUSE,NY13210 		14-1368361 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(76) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
516 WEST 168TH ST
NEW YORK,NY10032 		13-5598093 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(77) THE UNIVERSITY OF CHICAGO
5841 S MARYLAND AVE
CHICAGO,IL60637 		36-2177139 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(78) TIDALHEALTH PENINSULA REGIONAL INC
100 E CARROLL ST
SALISBURY,MD21801 		52-0591628 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(79) TIDAL HEALTH ALS CLINIC
100 E CARROLL ST
SALISBURY,MD21801 		51-1851935 501(C)3 5,625 0 N/A N/A QUARTERLY GRANT
(80) TRINITY HEALTH GRAND RAPIDS HOSPITAL
220 CHERRY ST SE
GRAND RAPIDS,MI49503 		38-2113393 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(81) UC REGENTS - LOS ANGELES
PO BOX 748872
LOS ANGELES,CA90074 		94-6036493 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(82) UNIVERSITY MEDICAL SERVICE ASSOCIATION INC
PO BOX 917492
ORLANDO,FL32891 		23-7313346 501(C)3 55,141 0 N/A N/A BITNER PLANTE QUARTERLY GRANT
(83) UNIVERSITY OF CALIFORNIA DAVIS
4860 Y ST STE 1700 LAWRENCE J
ELLISON CARE CTR
SACRAMENTO,CA94817 		94-6036494 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(84) UNIVERSITY OF CALIFORNIA SAN DIEGO
200 W ARBOR DR MC 8465
SAN DIEGO,CA92103 		95-6006144 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(85) UNIVERSITY OF FLORIDA JACKSONVILLE PHYSICIANS INC
PO BOX 743651
ATLANTA,GA30374 		59-1867557 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(86) UNIVERSITY OF FLORIDA
33 TIGERT HALL PO BOX 113001
GAINESVILLE,FL32611 		59-6002052 501(C)3 13,785 0 N/A N/A BITNER PLANTE QUARTERLY GRANT
(87) UNIVERSITY OF ILLINOIS AT CHICAGO ALS CLINIC
912 S WOOD ST MC 796
CHICAGO,IL60612 		37-6000511 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(88) UNIVERSITY OF KANSAS ENDOWMENT
3599 RAINBOW BLVD
KANSAS CITY,KS66160 		48-0547734 501(C)3 59,587 0 N/A N/A MONTHLY GRANT
(89) UNIVERSITY OF KENTUCKY
740 S LIMESTONE ST STE J401
LEXINGTON,KY40536 		61-6001218 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(90) UNIVERSITY OF LOUISVILLE PHYSICIANS
300 E MARKET ST STE 400C
LOUISVILLE,KY40202 		27-3645560 501(C)3 10,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER
(91) UNIVERSITY OF MARYLAND
110 S PACA ST 3RD FL
BALTIMORE,MD21201 		52-6002033 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(92) UNIVERSITY OF MARYLAND SCHOOL OF MEDICINE
PO BOX 41428
BALTIMORE,MD21203 		52-6002033 501(C)3 18,750 0 N/A N/A QUARTERLY GRANT
(93) UNIVERSITY OF MIAMI
1120 NW 14TH ST SUITE 1373
MIAMI,FL33144 		59-0624458 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(94) UNIVERSITY OF MIAMI
1120 NW 14 ST RM 1373
MIAMI,FL33136 		59-0624458 501(C)3 57,262 0 N/A N/A BITNER PLANTE QUARTERLY GRANT
(95) UNIVERSITY OF MICHIGAN
1500 E MEDICAL CENTER DR BSRB 4029
ANN ARBOR,MI48109 		38-6006309 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(96) UNIVERSITY OF MINNESOTA FOUNDATION
PO BOX 860266
MINNEAPOLIS,MN55486 		41-6042488 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(97) UNIVERSITY OF NEW MEXICO HEALTH SCIENCES CENTER
MSC10 5620 1 UNIV OF NM
ALBUQUERQUE,NM87131 		85-6000642 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(98) UNIVERSITY OF SOUTH FLORIDA FOUNDATION INC
4202 E FOWLER AVE ALC 100
TAMPA,FL33620 		59-0879015 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(99) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DR MSC 7883
SAN ANTONIO,TX78229 		74-1586031 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(100) UNIVERSITY OF UTAH
175 NORTH MEDICAL DR
SALT LAKE CITY,UT84132 		87-6000525 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(101) UNIVERSITY OF VERMONT
149 BEAUMONT AVE HSRF 426
BURLINGTON,VT05405 		45-1556038 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(102) UNIVERSITY OF VIRGINIA RICHARD R DART ALS CLINIC
BOX 800-394
CHARLOTTESVILLE,VA22908 		54-6001796 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(103) UNIVERSITY OF VIRGINIA RICHARD R DART ALS CLINIC
BOX 800-394
CHARLOTTESVILLE,VA22908 		54-6001796 501(C)3 18,750 0 N/A N/A QUARTERLY GRANT
(104) UNMC PHYSICIANS DEPT OF NEUROLOGY
988145 NEBRASKA MEDICAL CTR
OMAHA,NE68198 		47-0049123 501(C)3 22,000 0 N/A N/A MONTHLY GRANT
(105) VIRGINIA MASON MEDICAL CENTER
1100 9TH AVE MAILSTOP X7-NEU
SEATTLE,WA98101 		91-0565539 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(106) WAKE FOREST UNIVERSITY HEALTH SCIENCES
1 MEDICAL CENTER BLVD
WINSTONSALEM,NC27157 		22-3849199 501(C)3 25,000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH
(107) ALS FINDING A CURE - LEANDRO P RIZZUTO FOUNDATION
1014 GATEWAY BLVD SUITE 105
BOYNTON BEACH,FL33426 		30-6068334 501(C)3 100,000 0 N/A N/A PARTNERSHIP PROGRAM GRANT
(108) ALS NEVERSURRENDER FOUNDATION
PO BOX 3187
BRECKENRIDGE,CO80424 		47-4746935 501(C)3 50,000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(109) AMERICAN BRAIN FOUNDATION
201 CHICAGO AVENUE
MINNEAPOLIS,MN55415 		41-1717098 501(C)3 56,000 0 N/A N/A CLINICAL SCIENTIST DEVELOPMENT AWARD
(110) AMERICAN BRAIN FOUNDATION
201 CHICAGO AVENUE
MINNEAPOLIS,MN55415 		41-1717098 501(C)3 52,500 0 N/A N/A CLINICAL RESEARCH TRAINING FELLOWSHIP
(111) AMERICAN BRAIN FOUNDATION
201 CHICAGO AVENUE
MINNEAPOLIS,MN55415 		41-1717098 501(C)3 56,000 0 N/A N/A CLINICAL SCIENTIST DEVELOPMENT AWARD
(112) AMERICAN BRAIN FOUNDATION
201 CHICAGO AVENUE
MINNEAPOLIS,MN55415 		41-1717098 501(C)3 52,500 0 N/A N/A CLINICAL RESEARCH TRAINING FELLOWSHIP
(113) AMERICAN BRAIN FOUNDATION
201 CHICAGO AVENUE
MINNEAPOLIS,MN55415 		41-1717098 501(C)3 56,000 0 N/A N/A CLINICAL SCIENTIST DEVELOPMENT AWARD
(114) AMERICAN BRAIN FOUNDATION
201 CHICAGO AVENUE
MINNEAPOLIS,MN55415 		41-1717098 501(C)3 50,000 0 N/A N/A SHELIA ESSEY AWARD
(115) AQUILUS PHARMACEUTICALS INC
225 MYSTIC VALLEY PARKWAY
WINCHESTER,MA01890 		26-4765079 501(C)3 100,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(116) AQUILUS PHARMACEUTICALS INC
225 MYSTIC VALLEY PARKWAY
WINCHESTER,MA01890 		26-4765079 501(C)3 100,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(117) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY MAIL CODE 8838
REDWOOD CITY,CA95063 		94-1156365 501(C)3 75,000 0 N/A N/A POST DOCTORAL FELLOWSHIP
(118) BRAINSTORM CELL THERAPEUTICS INC
1325 AVENUE OF AMERICAS 28TH FL
NEW YORK,NY10019 		20-7273918 501(C)3 200,000 0 N/A N/A STRATEGIC INITIATIVE
(119) BROWN UNIVERSITY
OFFICE SPONSORED PROJECTS BOX 1929
PROVIDENCE,RI02912 		05-0258809 501(C)3 75,000 0 N/A N/A POST DOCTORAL FELLOWSHIP
(120) CEDARS SINAI MEDICAL CENTER
8700 BEVERLY BLVD
LOS ANGELES,CA90048 		95-1644600 501(C)3 49,995 0 N/A N/A SEED GRANTS PROGRAM
(121) DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR
350 WEST THOMAS ROAD
PHOENIX,AZ85013 		94-1196203 501(C)3 57,443 0 N/A N/A STRATEGIC INITIATIVE
(122) DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR
350 WEST THOMAS ROAD
PHOENIX,AZ85013 		94-1196203 501(C)3 75,000 0 N/A N/A POST DOCTORAL FELLOWSHIP
(123) DUKE UNIVERSITY
PO BOX 602651
CHARLOTTE,NC28260 		56-0532129 501(C)3 21,667 0 N/A N/A STRATEGIC INITIATIVE
(124) EMORY UNIVERSITY
P O BOX 935084
ATLANTA,GA31193 		58-0566256 501(C)3 49,996 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(125) EMORY UNIVERSITY
P O BOX 935084
ATLANTA,GA31193 		58-0566256 501(C)3 49,997 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(126) EMORY UNIVERSITY
P O BOX 935084
ATLANTA,GA31193 		58-0566256 501(C)3 75,000 0 N/A N/A POST DOCTORAL FELLOWSHIP
(127) FOCUSED ULTRASOUND FOUNDATION
1230 CEDARS COURT SUITE 206
CHARLOTTESVILLE,VA22903 		20-5744808 501(C)3 500,000 0 N/A N/A PARTNERSHIP PROGRAM GRANT
(128) FOUNDATION FOR THE NATIONAL INSTITUTE OF HEALTH INC
11400 ROCKVILLE PIKE SUITE 600
NORTH BETHESDA,MD20852 		52-1986675 501(C)3 60,449 0 N/A N/A STRATEGIC INITIATIVE
(129) FOUNDATION FOR THE NATIONAL INSTITUTE OF HEALTH INC
11400 ROCKVILLE PIKE SUITE 600
NORTH BETHESDA,MD20852 		52-1986675 501(C)3 32,534 0 N/A N/A STRATEGIC INITIATIVE
(130) GLADSTONE INSTITUTES
1650 OWENS STREET
SAN FRANCISCO,CA94158 		23-7203666 501(C)3 50,000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(131) GLADSTONE INSTITUTES
1650 OWENS STREET
SAN FRANCISCO,CA94158 		23-7203666 501(C)3 50,000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(132) GLADSTONE INSTITUTES
1650 OWENS STREET
SAN FRANCISCO,CA94158 		23-7203666 501(C)3 50,000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(133) HENRY FORD HEALTH SYSTEM
2799 WEST GRAND BOULEVARD
DETROIT,MI48202 		38-1357020 501(C)3 200,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(134) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE
NEW YORK,NY10029 		13-6171197 501(C)3 49,974 0 N/A N/A SEED GRANTS PROGRAM
(135) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD
BALTIMORE,MD21211 		52-0595110 501(C)3 50,000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(136) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD
BALTIMORE,MD21211 		52-0595110 501(C)3 60,351 0 N/A N/A STRATEGIC INITIATIVE
(137) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD
BALTIMORE,MD21211 		52-0595110 501(C)3 100,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(138) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD
BALTIMORE,MD21211 		52-0595110 501(C)3 94,444 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(139) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD
BALTIMORE,MD21211 		52-0595110 501(C)3 200,000 0 N/A N/A STRATEGIC INITIATIVE
(140) KAISER FOUNDATION RESEARCH INSTITUTE
1800 HARRISON ST 16TH FLOOR
OAKLAND,CA94612 		94-1105628 501(C)3 200,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(141) LIBRA THERAPEUTICS
3210 MERRYFIELD ROW
LA JOLLA,CA92121 		84-5010331 501(C)3 300,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(142) MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
55 FRUIT STREET
BOSTON,MA02114 		04-2697983 501(C)3 500,000 0 N/A N/A STRATEGIC INITIATIVE
(143) MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
55 FRUIT STREET
BOSTON,MA02114 		04-2697983 501(C)3 49,995 0 N/A N/A SEED GRANTS PROGRAM
(144) MAYO CLINIC
PO BOX 860334
MINNEAPOLIS,MN55486 		41-6011702 501(C)3 50,000 0 N/A N/A STRATEGIC INITIATIVE
(145) MAYO CLINIC ARIZONA
PO BOX 860334
MINNEAPOLIS,MN55486 		86-0800150 501(C)3 200,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(146) NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE
PO BOX 5801
BETHESDA,MD20824 		52-0858115 501(C)3 43,570 0 N/A N/A STRATEGIC INITIATIVE
(147) NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE
PO BOX 5801
BETHESDA,MD20824 		52-0858115 501(C)3 22,615 0 N/A N/A STRATEGIC INITIATIVE
(148) NORTHEAST ALS CONSORTIUM
200 PORTLAND ST FLOOR 5
BOSTON,MA02114 		56-2547779 501(C)3 82,470 0 N/A N/A STRATEGIC INITIATIVE
(149) NORTHEAST ALS CONSORTIUM
200 PORTLAND ST FLOOR 5
BOSTON,MA02114 		56-2547779 501(C)3 450,000 0 N/A N/A STRATEGIC INITIATIVE
(150) NOVA SOUTHEASTERN UNIVERSITY
3100 SW 9TH AVE NSU EAST CAMPUS 5TH
FL
FT LAUDERDALE,FL33315 		59-1083502 501(C)3 200,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(151) NYU GROSSMAN SCHOOL OF MEDICINE
PO BOX 415026
BOSTON,MA02241 		13-5562308 501(C)3 100,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(152) NYU GROSSMAN SCHOOL OF MEDICINE
PO BOX 415026
BOSTON,MA02241 		13-5562308 501(C)3 50,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(153) QURALIS CORPORATION
100 CAMBRIDGEPARK DR SUITE 500
CAMBRIDGE,MA02140 		81-4722156 501(C)3 250,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(154) QURALIS CORPORATION
100 CAMBRIDGEPARK DR SUITE 500
CAMBRIDGE,MA02140 		81-4722156 501(C)3 50,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(155) RAPA THERAPEUTICS LLC
12712 ROCK CREEK MILL RD SUITE 5B
ROCKVILLE,MD20852 		81-2644177 501(C)3 250,000 0 N/A N/A CLINICAL TRIAL AWARD
(156) REGENTS OF THE UNIVERSITY OF CALIFORNIA - DAVIS
ONE SHIELDS AVENUE
DAVIS,CA95616 		94-6036494 501(C)3 50,000 0 N/A N/A SEED GRANTS PROGRAM
(157) REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DR
LA JOLLA,CA92093 		95-6006144 501(C)3 75,000 0 N/A N/A POST DOCTORAL FELLOWSHIP
(158) REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DR
LA JOLLA,CA92093 		95-6006144 501(C)3 50,000 0 N/A N/A SEED GRANTS PROGRAM
(159) REGENTS OF THE UNIVERSITY OF COLORADO - BOULDER
1800 GRANT ST SUITE 600
DENVER,CO80203 		84-6000555 501(C)3 75,000 0 N/A N/A STRATEGIC INITIATIVE
(160) REGENTS OF THE UNIVERSITY OF COLORADO - DENVER
1800 GRANT ST SUITE 600
DENVER,CO80203 		84-6000555 501(C)3 200,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(161) REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER 3003 SOUTH
STATE ST
ANN ARBOR,MI48109 		38-6006309 501(C)3 50,000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(162) REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER 3003 SOUTH
STATE ST
ANN ARBOR,MI48109 		38-6006309 501(C)3 49,405 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(163) REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER 3003 SOUTH
STATE ST
ANN ARBOR,MI48109 		38-6006309 501(C)3 50,000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(164) REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER 3003 SOUTH
STATE ST
ANN ARBOR,MI48109 		38-6006309 501(C)3 200,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(165) REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER 3003 SOUTH
STATE ST
ANN ARBOR,MI48109 		38-6006309 501(C)3 200,000 0 N/A N/A PREVENTION PROGRAM
(166) ROCKEFELLER UNIVERSITY
1230 YORK AVE
NEW YORK,NY10065 		13-1624158 501(C)3 50,000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(167) SAINT ALPHONSUS REGIONAL MEDICAL CENTER
1055 N CURTIS RD
BOISE,ID83706 		82-0200895 501(C)3 80,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(168) SOLA BIOSCIENCES LLC
27 STRATHMORE ROAD ABI LAB
NATICK,MA01760 		81-1222727 501(C)3 100,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(169) SOLA BIOSCIENCES LLC
27 STRATHMORE ROAD ABI LAB
NATICK,MA01760 		81-1222727 501(C)3 50,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(170) STANFORD UNIVERSITY
PO BOX 44253
SAN FRANCISCO,CA94144 		94-1156365 501(C)3 75,000 0 N/A N/A POST DOCTORAL FELLOWSHIP
(171) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 15,243 0 N/A N/A STRATEGIC INITIATIVE
(172) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 20,801 0 N/A N/A STRATEGIC INITIATIVE
(173) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 19,342 0 N/A N/A STRATEGIC INITIATIVE
(174) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 16,317 0 N/A N/A STRATEGIC INITIATIVE
(175) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 11,252 0 N/A N/A STRATEGIC INITIATIVE
(176) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 10,981 0 N/A N/A STRATEGIC INITIATIVE
(177) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 15,344 0 N/A N/A STRATEGIC INITIATIVE
(178) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 11,988 0 N/A N/A STRATEGIC INITIATIVE
(179) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 12,886 0 N/A N/A STRATEGIC INITIATIVE
(180) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 17,218 0 N/A N/A STRATEGIC INITIATIVE
(181) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 14,809 0 N/A N/A STRATEGIC INITIATIVE
(182) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 17,923 0 N/A N/A STRATEGIC INITIATIVE
(183) TACONIC BIOSCIENCES INC
273 HOVER AVE
GERMANTOWN,NY12526 		14-1381104 501(C)3 24,119 0 N/A N/A STRATEGIC INITIATIVE
(184) TARGET ALS FOUNDATION
PO BOX 1598
NEW YORK,NY10101 		81-0756743 501(C)3 500,000 0 N/A N/A PARTNERSHIP PROGRAM GRANT
(185) TEMPLE UNIVERSITY
1852 N 10TH ST
PHILADELPHIA,PA19122 		23-1365971 501(C)3 200,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(186) THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION (AFTD)
2700 HORIZON DR SUITE 120
KING OF PRUSSIA,PA19406 		41-2073220 501(C)3 500,000 0 N/A N/A PARTNERSHIP PROGRAM GRANT
(187) THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION (AFTD)
2700 HORIZON DR SUITE 120
KING OF PRUSSIA,PA19406 		41-2073220 501(C)3 30,000 0 N/A N/A STRATEGIC INITIATIVE
(188) THE CURATORS OF THE UNIVERSITY OF MISSOURI
PO BOX 807012
KANSAS CITY,MO64180 		43-6003859 501(C)3 50,000 0 N/A N/A SEED GRANTS PROGRAM
(189) THE GENERAL HOSPITAL CORP DBA MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET
BOSTON,MA02114 		04-2697983 501(C)3 70,710 0 N/A N/A STRATEGIC INITIATIVE
(190) THE GENERAL HOSPITAL CORP DBA MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET
BOSTON,MA02114 		04-2697983 501(C)3 70,709 0 N/A N/A STRATEGIC INITIATIVE
(191) THE GENERAL HOSPITAL CORP DBA MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET
BOSTON,MA02114 		04-2697983 501(C)3 63,525 0 N/A N/A STRATEGIC INITIATIVE
(192) THE GENERAL HOSPITAL CORP DBA MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET
BOSTON,MA02114 		04-2697983 501(C)3 63,525 0 N/A N/A STRATEGIC INITIATIVE
(193) THE OHIO STATE UNIVERSITY
901 WOODY HAYES DR 2020 BLANKENSHIP
HALL
COLUMBUS,OH43210 		31-6025986 501(C)3 71,000 0 N/A N/A STRATEGIC INITIATIVE
(194) THE OHIO STATE UNIVERSITY
901 WOODY HAYES DR 2020 BLANKENSHIP
HALL
COLUMBUS,OH43210 		31-6025986 501(C)3 200,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(195) THE OHIO STATE UNIVERSITY
901 WOODY HAYES DR 2020 BLANKENSHIP
HALL
COLUMBUS,OH43210 		31-6025986 501(C)3 49,442 0 N/A N/A SEED GRANTS PROGRAM
(196) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 3RD FL
NEW YORK,NY10027 		13-5598093 501(C)3 55,000 0 N/A N/A STRATEGIC INITIATIVE
(197) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 3RD FL
NEW YORK,NY10027 		13-5598093 501(C)3 50,000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(198) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 3RD FL
NEW YORK,NY10027 		13-5598093 501(C)3 75,000 0 N/A N/A POST DOCTORAL FELLOWSHIP
(199) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 3RD FL
NEW YORK,NY10027 		13-5598093 501(C)3 200,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(200) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 3RD FL
NEW YORK,NY10027 		13-5598093 501(C)3 200,000 0 N/A N/A PREVENTION PROGRAM
(201) THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3400 SPRUCE ST 8 W GATES
PHILADELPHIA,PA19104 		23-1352685 501(C)3 50,000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(202) THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3400 SPRUCE ST 8 W GATES
PHILADELPHIA,PA19104 		23-1352685 501(C)3 100,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(203) THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3400 SPRUCE ST 8 W GATES
PHILADELPHIA,PA19104 		23-1352685 501(C)3 50,000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(204) THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3400 SPRUCE ST 8 W GATES
PHILADELPHIA,PA19104 		23-1352685 501(C)3 75,000 0 N/A N/A POST DOCTORAL FELLOWSHIP
(205) THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3400 SPRUCE ST 8 W GATES
PHILADELPHIA,PA19104 		23-1352685 501(C)3 50,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(206) THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3400 SPRUCE ST 8 W GATES
PHILADELPHIA,PA19104 		23-1352685 501(C)3 49,995 0 N/A N/A SEED GRANTS PROGRAM
(207) THOMAS JEFFERSON UNIVERSITY
125 SOUTH 9TH ST STE 600
PHILADELPHIA,PA19107 		23-1352651 501(C)3 200,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(208) UNIVERSITY OF ALABAMA AT BIRMINGHAM
801 5TH AVE SOUTH
BIRMINGHAM,AL35233 		63-6005396 501(C)3 50,000 0 N/A N/A STRATEGIC INITIATIVE
(209) UNIVERSITY OF FLORIDA
1523 UNION RDRM 207
GAINESVILLE,FL32611 		59-6002052 501(C)3 300,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(210) UNIVERSITY OF FLORIDA
1523 UNION RDRM 207
GAINESVILLE,FL32611 		59-6002052 501(C)3 190,413 0 N/A N/A CLINICAL TRIAL AWARD
(211) UNIVERSITY OF KANSAS MEDICAL RESEARCH INSTITUTE INC
3901 RAINBOW BLVD MAILSTOP 1039
KANSAS CITY,KS66103 		48-1108830 501(C)3 200,000 0 N/A N/A TRIAL CAPACITY PROGRAM
(212) UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH
WORCESTER,MA01655 		04-3167352 501(C)3 554,508 0 N/A N/A STRATEGIC INITIATIVE
(213) UNIVERSITY OF MIAMI
PO BOX 405803
ATLANTA,GA30384 		59-0624458 501(C)3 256,057 0 N/A N/A PREVENTION PROGRAM
(214) UNIVERSITY OF PITTSBURGH
500 ROSS ST 154-0455
PITTSBURGH,PA15262 		25-0965591 501(C)3 50,000 0 N/A N/A SEED GRANTS PROGRAM
(215) UNIVERSITY OF SOUTHERN CALIFORNIA
3500 S FIGUEROA STREET STE 102
LOS ANGELES,CA90089 		95-1642394 501(C)3 75,000 0 N/A N/A POST DOCTORAL FELLOWSHIP
(216) UNIVERSITY OF SOUTHERN CALIFORNIA
3500 S FIGUEROA STREET STE 102
LOS ANGELES,CA90089 		95-1642394 501(C)3 300,000 0 N/A N/A DRUG DEVELOPMENT CONTRACT
(217) WASHINGTON UNIVERSITY IN ST LOUIS
700 ROSEDALE AVE
ST LOUIS,MO63112 		43-0653611 501(C)3 50,000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR
(218) WASHINGTON UNIVERSITY IN ST LOUIS
700 ROSEDALE AVE
ST LOUIS,MO63112 		43-0653611 501(C)3 75,000 0 N/A N/A POST DOCTORAL FELLOWSHIP
(219) YALE UNIVERSITY
P O BOX 1873
NEW HAVEN,CT06508 		06-0646973 501(C)3 49,999 0 N/A N/A SEED GRANTS PROGRAM
2
Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................. Bullet Image
243
3
Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image
0
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50055P
Schedule I (Form 990) 2022

Schedule I (Form 990) 2022
Page 2
Part III
Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" on Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Number of
recipients		 (c) Amount of
cash grant		 (d) Amount of
noncash assistance		 (e) Method of valuation (book,
FMV, appraisal, other)		 (f) Description of noncash assistance
(1) PATIENT GRANTS 2159 2,012,096   COST TO SUPPORT PATIENTS
(1)
(2)
(3)
(4)
(5)
(6)
(7)
Part IV
Supplemental Information. Provide the information required in Part I, line 2; Part III, column (b); and any other additional information.
Return Reference Explanation
PART I, LINE 2: GRANT APPLICATIONS ARE REVIEWED BY COMMITTEES AND STAFF FOR APPROVAL. ALL GRANT AWARDED RESEARCHERS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH DEPARTMENT. THE ASSOCIATION REQUIRES PROGRESS REPORTS THROUGHOUT THE AWARD TO CONTINUE TO RECEIVE FUNDS.
Schedule I (Form 990) 2022



Additional Data


Software ID:  
Software Version:  


Schedule J
(Form 990)
Department of the Treasury
Internal Revenue Service
Compensation Information
For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
SchJMediumBullet Complete if the organization answered "Yes" on Form 990, Part IV, line 23.
SchJMediumBullet Attach to Form 990.
SchJMediumBullet Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2022
Open to Public Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
Questions Regarding Compensation
Yes
No
1a
Check the appropiate box(es) if the organization provided any of the following to or for a person listed on Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.
b
If any of the boxes on Line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain .....
1b
 
 
2
Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked on Line 1a? ....
2
 
 
3
Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.
4
During the year, did any person listed on Form 990, Part VII, Section A, line 1a, with respect to the filing organization or a related organization:
a
Receive a severance payment or change-of-control payment? .............
4a
 
No
b
Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........
4b
 
No
c
Participate in, or receive payment from, an equity-based compensation arrangement? .........
4c
 
No
If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.
Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.
5
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:
a
The organization? ....................
5a
 
No
b
Any related organization? .......................
5b
 
No
If "Yes," on line 5a or 5b, describe in Part III.
6
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:
a
The organization? ..................
6a
 
No
b
Any related organization? ......................
6b
 
No
If "Yes," on line 6a or 6b, describe in Part III.
7
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization provide any nonfixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............
7
 
No
8
Were any amounts reported on Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III ..........................
8
 
No
9
If "Yes" on line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................
9
 
 
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50053T
Schedule J (Form 990) 2022

Schedule J (Form 990) 2022
Page 2
Part II
Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.
For each individual whose compensation must be reported on Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.
(A) Name and Title (B) Breakdown of W-2, 1099-MISC compensation, and/or 1099-NEC (C) Retirement and other deferred compensation (D) Nontaxable
benefits		 (E) Total of columns
(B)(i)-(D) 		(F) Compensation in column (B) reported as deferred on prior Form 990
(i) Base
compensation 		(ii) Bonus & incentive
compensation 		(iii) Other reportable compensation
1CALANEET BALAS
PRESIDENT AND CEO 		(i)

(ii)		 404,213
-------------
0 		50,000
-------------
0 		2,453
-------------
0 		19,051
-------------
0 		22,048
-------------
0 		497,765
-------------
0 		0
-------------
0
2TINA ZEFF
CHIEF OPERATIONS OFFICER 		(i)

(ii)		 268,389
-------------
0 		37,500
-------------
0 		2,139
-------------
0 		14,818
-------------
0 		26,738
-------------
0 		349,584
-------------
0 		0
-------------
0
3GREG MITCHELL
CHIEF FINANCIAL OFFICER 		(i)

(ii)		 272,824
-------------
0 		32,000
-------------
0 		2,144
-------------
0 		14,816
-------------
0 		0
-------------
0 		321,784
-------------
0 		0
-------------
0
4NEIL THAKUR
CHIEF MISSION OFFICER 		(i)

(ii)		 242,988
-------------
0 		30,500
-------------
0 		2,139
-------------
0 		18,246
-------------
0 		26,738
-------------
0 		320,611
-------------
0 		0
-------------
0
5DEAN FEENER
CHIEF INFORMATION AND MARKETING OFFI 		(i)

(ii)		 245,451
-------------
0 		0
-------------
0 		2,009
-------------
0 		12,356
-------------
0 		0
-------------
0 		259,816
-------------
0 		0
-------------
0
6MONICA SANTA CRUZ
CHIEF PEOPLE OFFICER 		(i)

(ii)		 244,142
-------------
0 		0
-------------
0 		3,218
-------------
0 		12,530
-------------
0 		85
-------------
0 		259,975
-------------
0 		0
-------------
0
7LANCE SLAUGHTER
SVP STRATEGIC ALLIANCES AND GOVERNAN 		(i)

(ii)		 237,763
-------------
0 		0
-------------
0 		3,633
-------------
0 		13,169
-------------
0 		9,709
-------------
0 		264,274
-------------
0 		0
-------------
0
8VICKIE LOBELLO
SENIOR VICE PRESIDENT ORGANIZATIONAL 		(i)

(ii)		 223,885
-------------
0 		0
-------------
0 		4,439
-------------
0 		8,774
-------------
0 		10,369
-------------
0 		247,467
-------------
0 		0
-------------
0
9BRIAN FREDERICK
SENIOR VICE PRESIDENT STRATEGIC COMM 		(i)

(ii)		 222,913
-------------
0 		0
-------------
0 		2,013
-------------
0 		10,962
-------------
0 		0
-------------
0 		235,888
-------------
0 		0
-------------
0
10KULDIP DAVE
SENIOR VICE PRESIDENT RESEARCH 		(i)

(ii)		 220,727
-------------
0 		0
-------------
0 		2,031
-------------
0 		13,643
-------------
0 		35,913
-------------
0 		272,314
-------------
0 		0
-------------
0
11KEITH GARY
VICE PRESIDENT MISSION ACCELERATION 		(i)

(ii)		 209,709
-------------
0 		0
-------------
0 		4,389
-------------
0 		11,542
-------------
0 		22,048
-------------
0 		247,688
-------------
0 		0
-------------
0
Schedule J (Form 990) 2022

Schedule J (Form 990) 2022
Page 3
Part III
Supplemental Information
Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II. Also complete this part for any additional information.
Return Reference Explanation
PART I, LINE 3 THE EXECUTIVE COMPENSATION COMMITTEE PERFORMS THE ANNUAL REVIEW OF THE PRESIDENT AND CEO AND DETERMINES THE SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THIS IS REVIEWED AND COMPARED WITH MARKET DATA FROM ORGANIZATIONS OF A SIMILAR SIZE AND IN THE SAME INDUSTRY. THIS PROCESS RECENTLY TOOK PLACE IN 2023.
Schedule J (Form 990) 2022

Additional Data


Software ID:  
Software Version:  
SCHEDULE M
(Form 990)

Department of the Treasury
Internal Revenue Service
Noncash Contributions
Right pointing arrow large image Complete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image Attach to Form 990.
Right pointing arrow large image Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2022
Open to Public Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Part I
Types of Property
(a)
Check if applicable 		(b)
Number of contributions or items contributed 		(c)
Noncash contribution amounts reported on
Form 990, Part VIII, line 1g 		(d)
Method of determining
noncash contribution amounts
1 Art—Works of art ....        
2 Art—Historical treasures .        
3 Art—Fractional interests ..        
4 Books and publications ..      
5 Clothing and household
goods ....... 		     
6 Cars and other vehicles .. X 72 120,465 NET PROCEEDS
7 Boats and planes ....        
8 Intellectual property ...        
9 Securities—Publicly traded . X 46 245,957 AVG HIGH/LOW AT DATE
10 Securities—Closely held stock .        
11 Securities—Partnership, LLC,
or trust interests .... 		       
12 Securities—Miscellaneous ..        
13 Qualified conservation
contribution—Historic
structures ..... 		       
14 Qualified conservation
contribution—Other ... 		       
15 Real estate—Residential . X 2 174,793 NET PROCEEDS
16 Real estate—Commercial ..        
17 Real estate—Other ...        
18 Collectibles .....        
19 Food inventory ...        
20 Drugs and medical supplies .        
21 Taxidermy ......        
22 Historical artifacts ....        
23 Scientific specimens ..        
24 Archeological artifacts ...        
25 Other Right pointing arrow large image ( CRYPTO CURRENCY ) X 4 892 NET PROCEEDS
26 Other Right pointing arrow large image ( )
27 Other Right pointing arrow large image ( )
28 Other Right pointing arrow large image ( )
29
Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement
29
0
Yes
No
30a
During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that it must hold for at least three years from the date of the initial contribution, and which isn't required to be used for exempt purposes for the entire holding period? ...................
30a
 
No
b
If "Yes," describe the arrangement in Part II.
31
Does the organization have a gift acceptance policy that requires the review of any nonstandard contributions?
31
Yes
 
32a
Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash
contributions? ..........................
32a
Yes
 
b
If "Yes," describe in Part II.
33
If the organization didn't report an amount in column (c) for a type of property for which column (a) is checked,
describe in Part II.
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 51227J
Schedule M (Form 990) (2022)
Schedule M (Form 990) (2022)
Page 2
Part IISupplemental Information. Provide the information required by Part I, lines 30b, 32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.
Return Reference Explanation
PART I, COLUMN (B): COLUMN B REPRESENTS THE NUMBER OF CONTRIBUTIONS
PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, ADVANCED REMARKETING SERVICES INC., TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. THE ASSOCIATION USES THE SERVICES OF THE GIVING BLOCK TO ACCEPT, PROCESS AND SELL CRYPTO CURRENCY DONATIONS. THE ASSOCIATION USES BANK OF AMERICA MERRILL LYNCH TO ACCEPT, PROCESS AND SELL STOCK DONATIONS.
Schedule M (Form 990) (2022)

Additional Data


Software ID:  
Software Version:  
SCHEDULE O
(Form 990)

Department of the Treasury
Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet Attach to Form 990 or 990-EZ.
MediumBullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2021
Open to Public
Inspection
Name of the organization
AMYOTROPHIC LATERAL SCLEROSIS ASSN
 
Employer identification number

13-3271855
Return Reference Explanation
FORM 990, PART III - RESTRUCTURING & UNIFICATION OF AFFILIATED CHAPTERS BEGINNING FEBRUARY 1, 2022, THE ASSOCIATION RESTRUCTURED TO A SINGLE CORPORATION. AS OF JANUARY 31, 2023, THE ASSOCIATION ASSUMED THE OPERATING ACTIVITY OF 17 OF ITS AFFILIATED CHAPTERS WHICH AGREED TO MERGE INTO THE ASSOCIATION. THIS MEANS THAT FORMER CHAPTER EMPLOYEES ARE NOW EMPLOYEES OF THE ASSOCIATION AND ALL NEW REVENUE AND EXPENSE ACTIVITY FORMERLY ASSOCIATED WITH THE 17 AFFILIATED CHAPTERS ARE RECORDED BY THE ASSOCIATION AND INCLUDED IN THIS TAX RETURN. TWO ADDITIONAL CHAPTERS HAVE MERGED INTO THE ASSOCIATION POST JANUARY 31, 2023. EFFECTIVE SEPTEMBER 1, 2023, 18 OF THE MERGED CHAPTERS COMPLETED THE MERGER PROCESS WITH THE ASSOCIATION. THE MERGED CHAPTERS ARE NO LONGER OPERATING AND HAVE TERMINATED THEIR BOARDS, CORPORATE STATUS AND CHARTER AGREEMENTS. THEY HAVE SUBSEQUENTLY TRANSFERRED ANY UNSPENT RESERVES TO THE ASSOCIATION AS PART OF COMPLETING THE MERGER. THE REMAINING CHAPTERS WHO DID NOT UNIFY FILED A LAWSUIT AGAINST ASSOCIATION IN JANUARY 2023 TO KEEP THE ASSOCIATION FROM MOVING FORWARD WITH UNIFICATION. THE ASSOCIATION ULTIMATELY SETTLED THE CLAIM WITH THIS GROUP. EFFECTIVE SEPTEMBER 1, 2023, THESE CHAPTERS ARE NO LONGER AFFILIATED WITH THE ASSOCIATION AS PART OF THE EXECUTED SETTLEMENT AGREEMENT.
FORM 990, PART VI, SECTION A, LINE 1A BOARD OFFICERS AND CHAIRS OF STANDING COMMITTEES UP TO 10 MEMBERS
FORM 990, PART VI, SECTION A, LINE 6 MEMBERS. THE MEMBERS OF THE ASSOCIATION (THE "MEMBERS AND EACH, A "MEMBER") SHALL BE CHARTERED CHAPTERS OF THE ASSOCIATION (THE "CHAPTERS AND EACH, A "CHAPTER"). CHAPTERS WITHOUT A CHARTER OR OTHER ENTITIES OR ORGANIZATIONS MAY BE AFFILIATED WITH AND/OR MANAGED BY THE ASSOCIATION, BUT ARE NOT ENTITLED TO ALL OF THE RIGHTS OF CHAPTERS AS PROVIDED BY THESE BYLAWS AND THE CHAPTER CHARTER AGREEMENT. CHAPTERS SHALL BE ADMITTED TO MEMBERSHIP BY THE BOT BASED ON CRITERIA CONSISTENT WITH THESE BYLAWS AS ADOPTED BY THE BOT.
FORM 990, PART VI, SECTION A, LINE 7A BOARD OF REPRESENTATIVES ELECTS THE MEMBERS OF THE BOARD OF TRUSTEES. BOT IS COMPOSED OF A REPRESENTATIVE FROM EACH MEMBER/CHAPTER.
FORM 990, PART VI, SECTION B, LINE 11B THE 990 IS REVIEWED IN ITS ENTIRETY BY THE FINANCE COMMITTEE OF THE BOARD OF TRUSTEES AND ONCE ACCEPTED AND APPROVED, FULL RETURN IS PRESENTED TO ENTIRE BOARD OF TRUSTEES PRIOR TO THE SUBMISSION TO THE INTERNAL REVENUE SERVICE.
FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY BOARD MEMBERS SIGN A NEW CONFLICT OF INTEREST STATEMENT AS WELL AS ALL STAFF. MANAGEMENT TRACKS THE CONFLICT OF INTEREST STATEMENTS FOR ALL BOARD AND COMMITTEE MEMBERS AS WELL AS STAFF. WHERE IT IS DETERMINED THAT AN ACTUAL CONFLICT OF INTEREST EXITS, THE RESPONSIBLE PERSON HAVING THE CONFLICT OF INTEREST SHALL NOT BE COUNTED IN DETERMINING THE PRESENCE OF A QUORUM FOR PURPOSES OF THE VOTE ON THAT CONTRACT OR TRANSACTION. SUCH RESPONSIBLE PERSON MAY MAKE A STATEMENT OR PRESENTATION REGARDING THE MATTER OR RESPOND TO QUESTIONS, BUT SUCH RESPONSIBLE PERSON (I) SHALL NOT PARTICIPATE IN OR BE PERMITTED TO HEAR THE BOARD'S OR ASSOCIATION COMMITTEE'S DISCUSSION OF THE MATTER; (II) SHALL NOT ATTEMPT TO EXERT HIS OR HER PERSONAL INFLUENCE WITH RESPECT TO THE MATTER, EITHER AT OR OUTSIDE THE MEETING; (III) SHALL NOT VOTE ON THE CONTRACT OR TRANSACTION; AND (IV) SHALL NOT BE PRESENT IN THE MEETING ROOM WHEN THE VOTE IS TAKEN.
FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMPENSATION COMMITTEE PERFORMS THE ANNUAL REVIEW OF THE PRESIDENT AND CEO AND DETERMINES SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THIS IS REVIEWED AND COMPARED WITH MARKET DATA FROM ORGANIZATIONS OF A SIMILAR SIZE AND IN THE SAME INDUSTRY. THE PROCESS DESCRIBED HERE WAS LAST COMPLETED FOR THE FISCAL YEAR 01/31/23 THE PRESIDENT AND CEO REVIEWS ALL SENIOR LEVEL MANAGEMENT AND DETERMINES SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THIS IS REVIEWED AND COMPARED WITH MARKET DATA FROM ORGANIZATIONS OF A SIMILAR SIZE AND IN THE SAME INDUSTRY. THE PROCESS DESCRIBED HERE WAS LAST COMPLETED FOR THE FISCAL YEAR 01/31/23
FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION'S FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT ITS OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL.
FORM 990, PART XI, LINE 9: CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -172,023. GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS -110,870. EXCESS FAIR VALUE OF ASSETS ACQUIRED OVER LIABILITIES ASSUMED 6,120,773. SPECIAL EVENT EXPENSES 2,755,720. UNUSED GRANTS -18,553.
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 51056K
Schedule O (Form 990) 2021


Additional Data


Software ID:  
Software Version: