Attach to Form 990 or Form 990-EZ.
Go to
www.irs.gov/Form990 for instructions and the latest information.
| (i) Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 10 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
|
Total |
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Calendar year
(or fiscal year beginning in)
![]() |
(a) 2017 | (b) 2018 | (c) 2019 | (d) 2020 | (e) 2021 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. | 3,014,974 | 1,731,076 | 1,545,921 | 1,867,379 | 1,916,963 | 10,076,313 |
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.... | 0 | |||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | 0 | |||||
| 4 | Total. Add lines 1 through 3 | 3,014,974 | 1,731,076 | 1,545,921 | 1,867,379 | 1,916,963 | 10,076,313 |
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f) .. | 1,741,925 | |||||
| 6 | Public support. Subtract line 5 from line 4. | 8,334,388 | |||||
Calendar year
(or fiscal year beginning in)
![]() |
(a) 2017 | (b) 2018 | (c) 2019 | (d) 2020 | (e) 2021 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | 3,014,974 | 1,731,076 | 1,545,921 | 1,867,379 | 1,916,963 | 10,076,313 |
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | 5,350 | 10,807 | 3,684 | 2,010 | 5,085 | 26,936 |
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | 37,350 | 5,250 | 27,750 | 0 | 0 | 70,350 |
| 11 | Total support. Add lines 7 through 10 | 10,173,599 | |||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2017 | (b) 2018 | (c) 2019 | (d) 2020 | (e) 2021 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | ||||||
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose | ||||||
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513 ..... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge | ||||||
| 6 | Total. Add lines 1 through 5 | ||||||
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2017 | (b) 2018 | (c) 2019 | (d) 2020 | (e) 2021 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | ||||||
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | ||||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included on line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | ||||||
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
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| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by 0.035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | 1 | |
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
2 | |
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | 3 | |
| 4 Amounts paid to acquire exempt-use assets | 4 | |
| 5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI) | 5 | |
| 6 Other distributions (describe in Part VI). See instructions | 6 | |
| 7Total annual distributions. Add lines 1 through 6. | 7 | |
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
8 | |
| 9 Distributable amount for 2021 from Section C, line 6 | 9 | |
| 10 Line 8 amount divided by Line 9 amount | 10 | |
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2021 |
(iii) Distributable Amount for 2021 |
|
|---|---|---|---|---|
| 1 Distributable amount for 2021 from Section C, line 6 | ||||
|
2
Underdistributions, if any, for years prior to 2021 (reasonable cause required-- explain in Part VI). See instructions. |
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| 3 Excess distributions carryover, if any, to 2021: | ||||
| a From 2016....... | ||||
| b From 2017....... | ||||
| c From 2018....... | ||||
| d From 2019....... | ||||
| e From 2020....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2021 distributable amount | ||||
|
i
Carryover from 2016 not applied (see instructions) |
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| j Remainder. Subtract lines 3g, 3h, and 3i from line 3f. | ||||
| 4Distributions for 2021 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2021 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from line 4. | ||||
|
5
Remaining underdistributions for years prior to 2021, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
6
Remaining underdistributions for 2021. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
7 Excess distributions carryover to 2022. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a Excess from 2017..... | ||||
| b Excess from 2018..... | ||||
| c Excess from 2019..... | ||||
| d Excess from 2020..... | ||||
| e Excess from 2021..... | ||||
| Facts And Circumstances Test |
|---|
| Return Reference | Explanation |
|---|---|
| Schedule A, Part II, Line 10 Other Income | DESCRIPTION - GROSS FUNDRAISING INCOME, COLUMN A - 37350.0, COLUMN B - 5250.0, COLUMN C - 27750.0, COLUMN D - 0.0, COLUMN E - 0.0, COLUMN F - 70350.0; |
| Software ID: | 21014044 |
| Software Version: | 2021v4.2 |
Attach to Form 990 or 990-EZ.
Go to www.irs.gov/Form990 for the latest information.
| Return Reference | Explanation |
|---|---|
| Form 990, Part III, Line 1 ORGANIZATION'S MISSION | SINCE OUR FOUNDING IN 1955, THE FOUNDATION HAS CONTRIBUTED MORE THAN $40 MILLION FOR RESEARCH GRANTS TO SUPPORT APPROXIMATELY 500 RESEARCH PROJECTS IN THE BIOMEDICAL AND CLINICAL SCIENCES AND IN BIOENGINEERING. THE FOUNDATION HAS PROVIDED GUIDANCE, FUNDS AND OTHER RESOURCES TO RESEARCH PROGRAMS IN THE UNITED STATES, THE MIDDLE EAST, CANADA, THE UK, AUSTRALIA, AND GREECE AS PART OF ITS GLOBAL COMMITMENT TO RESEARCH AND MEDICAL DISCOVERIES. OUR WEBSITE OFFERS ACCESS TO OVER 160 "RESEARCH FACT SHEETS", WEB CASTS OF SCIENTIFIC WORKSHOPS, CURRENT AND PAST RESEARCH PROJECTS AS WELL AS DISCUSSION FORUMS REGARDING TREATMENTS CURRENTLY AVAILABLE FOR CP. THE FOUNDATION ALSO CONTRIBUTES TO NATIONAL AND INTERNATIONAL MEETING AND ORGANIZES SCIENTIFIC WORKSHOPS DESIGNED TO IDENTIFY RESEARCH OPPORTUNITIES AND PROVIDE STATE OF THE ART KNOWLEDGE CONCERNING CP PREVENTION, CURE AND CARE. |
| Form 990, Part VI, Line 15b Compensation of Officers or Key Employees | This is answered "no" in accordance with the instructions since there are no other officers or key employees. |
| Form 990, Part VI, Line 1a Delegate broad authority to a committee | The Executive Committee is made up of the Chairman, V.P/Secretary, Treasurer, and a director. All Executive Committee members are members of the organization who are authorized to appoint individuals to the Board of Directors. During the intervals between meetings of the Board of Directors, the Executive Committee shall have and exercise the powers and functions of the Board of Directors in the management and direction of the affairs of the Corporation. Notwithstanding the foregoing, the Executive Committee shall have no authority to (i) take any action which is prohibited by Section 712 of the Not-for- Profit Corporation Law, (ii) hire or terminate the President, any executive officer or the medical director of the Corporation, (iii) approve the merger of or sale or transfer of all or substantially all of the assets of the Corporation, (iv) approve the liquidation or dissolution of the Corporation, or (v) appoint or remove any member of the Executive Committee. |
| Form 990, Part VI, Line 6 Classes of members or stockholders | THE FOUNDATION IS COMPRISED OF MEMBERS WHO ARE AUTHORIZED TO APPOINT INDIVIDUALS TO THE BOARD OF DIRECTORS. THE FOUNDATION'S MEMBERS DO NOT HAVE THE AUTHORITY TO OVERSEE, SUPERVISE OR CHANGE ANY GOVERNING DECISIONS MADE BY THE BOARD OF DIRECTORS. |
| Form 990, Part VI, Line 7a Members or stockholders electing members of governing body | THE FOUNDATION IS COMPRISED OF MEMBERS WHO ARE AUTHORIZED TO APPOINT INDIVIDUALS TO THE BOARD OF DIRECTORS. THE FOUNDATION'S MEMBERS DO NOT HAVE THE AUTHORITY TO OVERSEE, SUPERVISE OR CHANGE ANY GOVERNING DECISIONS MADE BY THE BOARD OF DIRECTORS. |
| Form 990, Part VI, Line 11b Review of form 990 by governing body | THE FOUNDATION'S FORM 990 WAS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM IN CONJUNCTION WITH THE ORGANIZATION'S FINANCIAL CONSULTANTS. A COPY OF THE DRAFT FORM 990 WAS CIRCULATED TO THE BOARD OF DIRECTOR'S AUDIT AND FINANCE COMMITTEES BY THE EXECUTIVE OFFICER FOR DISCUSSION AND COMMENT AND THEN SUBSEQUENTLY DISTRIBUTED TO THE BOARD PRIOR TO FILING. EACH BOARD MEMBER WAS PROVIDED AMPLE OPPORTUNITY TO COMMENT ON THE INFORMATION CONTAINED IN THE 990 PRIOR TO ITS FILING WITH THE INTERNAL REVENUE SERVICE. |
| Form 990, Part VI, Line 12c Conflict of interest policy | EACH OFFICER, DIRECTOR, TRUSTEE AND KEY EMPLOYEE OF THE ORGANIZATION IS REQUIRED TO ANNUALLY DISCLOSE ANY CONFLICTS OF INTEREST THAT ARISE BY VIRTUE OF EMPLOYMENT, BOARD SERVICE, OR POSITION WITH THE ORGANIZATION. THE ORGANIZATION MONITORS COMPLIANCE WITH ITS CONFLICT OF INTEREST POLICY THROUGH AN ANNUAL QUESTIONNAIRE/DISCLOSURE STATEMENT THAT IS DISTRIBUTED TO THESE INDIVIDUALS. POTENTIAL CONFLICTS ARE INVESTIGATED IMMEDIATELY. |
| Form 990, Part VI, Line 15a Process to establish compensation of top management official | THE EXECUTIVE DIRECTOR'S COMPENSATION WAS DETERMINED BY THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS. RESEARCH WAS DONE TO COMPARE SALARY TO INDUSTRY STANDARDS. COMPENSATION IS REVIEWED ANNUALLY BY THE EXECUTIVE COMMITTEE AND DOCUMENTED. |
| Form 990, Part VI, Line 19 Required documents available to the public | The Audited Financial Statements and Form 990 are available ON THE FOUNDATION'S OWN WEBSITE, HTTP://YOURCPF.ORG/. THE FOUNDATION'S GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE NOT ORDINARILY MADE AVAILABLE TO THE PUBLIC, BUT, IF REQUESTED WILL BE PROVIDED AT MANAGEMENT'S DISCRETION. |
| Form 990, Part XI, Line 9 Other changes in net assets or fund balances | Change in Fair Value of beneficial interest in trusts held by third-parties - -170104; |
| Software ID: | 21014044 |
| Software Version: | 2021v4.2 |