TY 2022 Form 990

(A) Name and title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)	(E) Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC)
(1) MICHAEL P BOYLE MD...................................................................... PRESIDENT & CEO	40.00 ................. 1.00	X	X	950,256	399,526
(2) LOUIS A DEFALCO...................................................................... VICE CHAIR	5.00 ................. 0.00	X		0	0
(3) CAROLE B GRIEGO MD...................................................................... TRUSTEE	3.00 ................. 0.00	X		0	0
(4) CATHERINE C MCLOUD...................................................................... TRUSTEE	3.00 ................. 0.00	X		0	0
(5) CHAD T MOORE...................................................................... TRUSTEE	3.00 ................. 0.00	X		0	0
(6) DAVID A MOUNT...................................................................... TREASURER	3.00 ................. 0.00	X		0	0
(7) ROBERT H NIEHAUS...................................................................... VICE CHAIR	5.00 ................. 0.00	X		0	0
(8) ERIC R OLSON PHD...................................................................... VICE CHAIR	5.00 ................. 0.00	X		0	0
(9) DOMINIC J CARUSO...................................................................... TRUSTEE	3.00 ................. 0.00	X		0	0
(10) PAUL A MOTENKO...................................................................... TRUSTEE	3.00 ................. 0.00	X		0	0
(11) TERESA L ELDER...................................................................... VICE CHAIR	5.00 ................. 0.00	X		0	0
(12) ERIC SCHNEIDER MD...................................................................... TRUSTEE	3.00 ................. 0.00	X		0	0
(13) STEVEN SHAK MD...................................................................... TRUSTEE	3.00 ................. 0.00	X		0	0
(14) JOHN S WEINBERG...................................................................... EXECUTIVE VICE CHAIR	5.00 ................. 0.00	X		0	0
(15) PAUL W WHETSELL...................................................................... TRUSTEE	3.00 ................. 0.00	X		0	0
(16) KC BRYAN WHITE...................................................................... CHAIR	8.00 ................. 0.00	X		0	0
(17) JESSICA H BOYD MD...................................................................... TRUSTEE	3.00 ................. 0.00	X		0	0

(A) Name and title	(B) Average hours per week (list any hours for related organizations below dotted line)	(E) Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC)	(F) Estimated amount of other compensation from the organization and related organizations
(18) IRENA BARISIC........................................................................ EVP, CFAO, ASST. SEC. & ASST. TRSR.	40.00 .......................1.00	X				557,940	71,381
(19) MICHAEL B CAVADEL........................................................................ SVP, CHIEF LEGAL OFFICER, & SEC.	40.00 .......................1.00	X				194,080	28,360
(20) JACK MAHLER MD........................................................................ CHIEF INVESTMENT OFFICER	40.00 .......................0.00		X			2,463,847	230,935
(21) BRUCE MARSHALL MD........................................................................ EVP & CHIEF MEDICAL OFFICER	40.00 .......................0.00		X			692,205	104,713
(22) JOHN P CLANCY MD........................................................................ SVP, CLINICAL RESEARCH	40.00 .......................0.00		X			551,336	154,612
(23) WILLIAM SKACH MD........................................................................ EVP & CHIEF SCIENTIFIC OFFICER	40.00 .......................0.00		X			455,835	61,418
(24) EARL LEE........................................................................ MANAGING DIRECTOR, INVESTMENTS	40.00 .......................0.00			X		1,023,013	234,362
(25) ERIC KOEHRSEN........................................................................ MANAGING DIRECTOR, INVESTMENTS	40.00 .......................0.00			X		921,034	248,237
(26) MARY DWIGHT........................................................................ CHIEF POLICY & ADVOCACY OFFICER	40.00 .......................0.00			X		543,012	129,909
(27) ANTHONY DURMOWICZ MD........................................................................ VP, CLINICAL DEVELOPMENT	40.00 .......................0.00			X		574,023	64,672
(28) MARYBETH MCMAHON........................................................................ CHIEF OF STAFF	40.00 .......................0.00			X		552,564	92,779
(29) PRESTON CAMPBELL MD........................................................................ FORMER CEO & STRATEGIC ADVISOR	40.00 .......................0.00				X	393,943	62,168
(30) CHRIS GEGELYS........................................................................ FORMER CHIEF LEGAL OFFICER	0.00 .......................0.00				X	176,462	0
(31) MARC S GINSKY........................................................................ FORMER COO	0.00 .......................0.00				X	160,000	0
(32) VERA H TWIGG........................................................................ FORMER EVP, CFO	0.00 .......................0.00				X	103,286	0

(A) Name and business address	(B) Description of services	(C) Compensation
VERTEX PHARMACEUTICALS INC 50 NORTHERN AVENUE BOSTON,MA02210	CONTRACTED RESEARCH	10,000,000
ELOXX PHARMACEUTICALS 950 WINTER STREET WALTHAM,MA02451	CONTRACTED RESEARCH	8,811,900
PIONEERING MEDICINE (CF) LLC 55 CAMBRIDGE PARKWAY STE 800E CAMBRIDGE,MA02142	CONTRACTED RESEARCH	8,000,000
SYNSPIRA THERAPEUTICS INC 100 SPEEN STREET FRAMINGHAM,MA01701	CONTRACTED RESEARCH	5,450,000
ARMATA PHARMACEUTICALS INC 4503 GLENCOE AVENUE MARINA DEL RAY,CA90292	CONTRACTED RESEARCH	2,500,000
2 Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization 118

- TIN:

SCHEDULE A
(Form 990)

Department of the Treasury
Internal Revenue Service

Public Charity Status and Public Support

Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
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Attach to Form 990 or Form 990-EZ.
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Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2022

Open to Public
Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Reason for Public Charity Status (All organizations must complete this part.) See instructions.

The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)

A church, convention of churches, or association of churches described in section 170(b)(1)(A)(i).

A school described in section 170(b)(1)(A)(ii). (Attach Schedule E (Form 990).)

A hospital or a cooperative hospital service organization described in section 170(b)(1)(A)(iii).

A medical research organization operated in conjunction with a hospital described in section 170(b)(1)(A)(iii). Enter the hospital's name, city, and state:

An organization operated for the benefit of a college or university owned or operated by a governmental unit described in section 170(b)(1)(A)(iv). (Complete Part II.)

A federal, state, or local government or governmental unit described in section 170(b)(1)(A)(v).

An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi). (Complete Part II.)

A community trust described in section 170(b)(1)(A)(vi). (Complete Part II.)

An agricultural research organization described in 170(b)(1)(A)(ix) operated in conjunction with a land-grant college or university or a non-land grant college of agriculture. See instructions. Enter the name, city, and state of the college or university:

An organization that normally receives: (1) more than 33 1/3% of its support from contributions, membership fees, and gross receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 33 1/3% of its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)

An organization organized and operated exclusively to test for public safety. See section 509(a)(4).

An organization organized and operated exclusively for the benefit of, to perform the functions of, or to carry out the purposes of one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2). See section 509(a)(3). Check the box on lines 12a through 12d that describes the type of supporting organization and complete lines 12e, 12f, and 12g.

Type I. A supporting organization operated, supervised, or controlled by its supported organization(s), typically by giving the supported organization(s) the power to regularly appoint or elect a majority of the directors or trustees of the supporting organization. You must complete Part IV, Sections A and B.

Type II. A supporting organization supervised or controlled in connection with its supported organization(s), by having control or management of the supporting organization vested in the same persons that control or manage the supported organization(s). You must complete Part IV, Sections A and C.

Type III functionally integrated. A supporting organization operated in connection with, and functionally integrated with, its supported organization(s) (see instructions). You must complete Part IV, Sections A, D, and E.

Type III non-functionally integrated. A supporting organization operated in connection with its supported organization(s) that is not functionally integrated. The organization generally must satisfy a distribution requirement and an attentiveness requirement (see instructions). You must complete Part IV, Sections A and D, and Part V.

Check this box if the organization received a written determination from the IRS that it is a Type I, Type II, Type III functionally integrated, or Type III non-functionally integrated supporting organization.

Enter the number of supported organizations ...............................

Provide the following information about the supported organization(s).

(i) Name of supported organization	(ii) EIN	(iv) Is the organization listed in your governing document?		(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)
(i) Name of supported organization	(ii) EIN	Yes	No	(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)


Total

For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.

Cat. No. 11285F

Schedule A (Form 990) 2022

Page 2

Part II

Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2018	(b) 2019	(c) 2020	(d) 2021	(e) 2022	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") ..	108,058,591	108,894,890	73,199,355	86,536,159	97,948,958	474,637,953
2	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....
3	The value of services or facilities furnished by a governmental unit to the organization without charge..
4	Total. Add lines 1 through 3	108,058,591	108,894,890	73,199,355	86,536,159	97,948,958	474,637,953
5	The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f) ..
6	Public support. Subtract line 5 from line 4.						474,637,953

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2018	(b) 2019	(c) 2020	(d) 2021	(e) 2022	(f) Total
7	Amounts from line 4..	108,058,591	108,894,890	73,199,355	86,536,159	97,948,958	474,637,953
8	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...	66,681,682	95,519,254	95,019,118	74,598,441	75,903,369	407,721,864
9	Net income from unrelated business activities, whether or not the business is regularly carried on..
10	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.)..	15,369,965	15,976,419	9,386,514	6,491,042	12,503,243	59,727,183
11	Total support. Add lines 7 through 10						942,087,000

Gross receipts from related activities, etc. (see instructions) ..................

69,884,503

First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here ........................................ right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2022 (line 6, column (f) divided by line 11, column (f)) .........

50.380 %

Public support percentage for 2020 Schedule A, Part II, line 14 ...............

51.340 %

16a

33 1/3% support test—2022. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization ....................... right arrow

33 1/3% support test—2021. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization ..................... right arrow

17a

10%-facts-and-circumstances test—2022. If the organization did not check a box on line 13, 16a, or 16b, and line 14 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ............ right arrow

10%-facts-and-circumstances test—2021. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line 15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ............ right arrow

Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow

Schedule A (Form 990) 2022

Page 3

Part III

Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2018	(b) 2019	(c) 2020	(d) 2021	(e) 2022	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2	Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose
3	Gross receipts from activities that are not an unrelated trade or business under section 513 .....
4	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5	The value of services or facilities furnished by a governmental unit to the organization without charge
6	Total. Add lines 1 through 5
7a	Amounts included on lines 1, 2, and 3 received from disqualified persons
b	Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c	Add lines 7a and 7b..
8	Public support. (Subtract line 7c from line 6.)

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2018	(b) 2019	(c) 2020	(d) 2021	(e) 2022	(f) Total
9	Amounts from line 6...
10a	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b	Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c	Add lines 10a and 10b.
11	Net income from unrelated business activities not included on line 10b, whether or not the business is regularly carried on.
12	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..
13	Total support. (Add lines 9, 10c, 11, and 12.)..

First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here................................................. right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2022 (line 8, column (f) divided by line 13, column (f)) .........

Public support percentage from 2021 Schedule A, Part III, line 15 ...............

Section D. Computation of Investment Income Percentage

Investment income percentage for 2022 (line 10c, column (f) divided by line 13, column (f)) ......

Investment income percentage from 2021 Schedule A, Part III, line 17 .............

19a

33 1/3% support tests-2022. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ....... right arrow

33 1/3% support tests—2021. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ..... right arrow

Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions .... right arrow

Schedule A (Form 990) 2022

Page 4

Part IV

Supporting Organizations

(Complete only if you checked a box on line 12 of Part I. If you checked box 12a, of Part I, complete Sections A and B. If you checked box 12b, of Part I, complete Sections A and C. If you checked box 12c, of Part I, complete Sections A, D, and E. If you checked box12d, of Part I, complete Sections A and D, and complete Part V.)

Section A. All Supporting Organizations

Yes

Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.

Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).

Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer lines 3b and 3c below.

Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.

Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.

Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked box 12a or 12b in Part I, answer lines 4b and 4c below.

Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.

Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.

Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer lines 5b and 5c below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).

Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?

Substitutions only. Was the substitution the result of an event beyond the organization's control?

Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.

Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990) .

Did the organization make a loan to a disqualified person (as defined in section 4958) not described on line 7? If “Yes,” complete Part I of Schedule L (Form 990).

Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons, as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.

Did one or more disqualified persons (as defined on line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.

Did a disqualified person (as defined on line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.

10a

Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.

10a

Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).

10b

Schedule A (Form 990) 2022

Page 5

Part IV

Supporting Organizations (continued)

Yes

Has the organization accepted a gift or contribution from any of the following persons?

A person who directly or indirectly controls, either alone or together with persons described on lines 11b and 11c below, the governing body of a supported organization?

11a

A family member of a person described on 11a above?

11b

A 35% controlled entity of a person described on line 11a or 11b above? If “Yes” to 11a, 11b, or 11c, provide detail in Part VI.

11c

Section B. Type I Supporting Organizations

Yes

Did the officers, directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.

Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.

Section C. Type II Supporting Organizations

Yes

Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).

Section D. All Type III Supporting Organizations

Yes

Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?

Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).

By reason of the relationship described in line 2 above, did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.

Section E. Type III Functionally-Integrated Supporting Organizations

Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):

The organization satisfied the Activities Test. Complete line 2 below.

The organization is the parent of each of its supported organizations. Complete line 3 below.

The organization supported a governmental entity. Describe in Part VI how you supported a government entity (see instructions)

Activities Test. Answer lines 2a and 2b below.

Yes

Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.

Did the activities described on line 2a, above constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.

Parent of Supported Organizations. Answer lines 3a and 3b below.

Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations?If "Yes" or "No", provide details in Part VI.

Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.

Schedule A (Form 990) 2022

Page 6

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations

Check here if the organization satisfied the Integral Part Test as a qualifying trust on Nov. 20, 1970 (explain in Part VI). See instructions. All other Type III non-functionally integrated supporting organizations must complete Sections A through E.

	Section A - Adjusted Net Income		(A) Prior Year	(B) Current Year (optional)
1	Net short-term capital gain	1
2	Recoveries of prior-year distributions	2
3	Other gross income (see instructions)	3
4	Add lines 1 through 3	4
5	Depreciation and depletion	5
6	Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions)	6
7	Other expenses (see instructions)	7
8	Adjusted Net Income (subtract lines 5, 6 and 7 from line 4)	8

	Section B - Minimum Asset Amount		(A) Prior Year	(B) Current Year (optional)
1	Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year):	1
a	Average monthly value of securities	1a
b	Average monthly cash balances	1b
c	Fair market value of other non-exempt-use assets	1c
d	Total (add lines 1a, 1b, and 1c)	1d
e	Discount claimed for blockage or other factors (explain in detail in Part VI):
2	Acquisition indebtedness applicable to non-exempt use assets	2
3	Subtract line 2 from line 1d	3
4	Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions).	4
5	Net value of non-exempt-use assets (subtract line 4 from line 3)	5
6	Multiply line 5 by 0.035	6
7	Recoveries of prior-year distributions	7
8	Minimum Asset Amount (add line 7 to line 6)	8

	Section C - Distributable Amount		Current Year
1	Adjusted net income for prior year (from Section A, line 8, Column A)	1
2	Enter 85% of line 1	2
3	Minimum asset amount for prior year (from Section B, line 8, Column A)	3
4	Enter greater of line 2 or line 3	4
5	Income tax imposed in prior year	5
6	Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions)	6

Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (see instructions)

Schedule A (Form 990) 2022

Page 7

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)

Section D - Distributions		Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes	1
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity	2
3 Administrative expenses paid to accomplish exempt purposes of supported organizations	3
4 Amounts paid to acquire exempt-use assets	4
5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI)	5
6 Other distributions (describe in Part VI). See instructions	6
7Total annual distributions. Add lines 1 through 6.	7
8 Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions	8
9 Distributable amount for 2022 from Section C, line 6	9
10 Line 8 amount divided by Line 9 amount	10

Section E - Distribution Allocations (see instructions)		(i) Excess Distributions	(ii) Underdistributions Pre-2022	(iii) Distributable Amount for 2022
1 Distributable amount for 2022 from Section C, line 6
2 Underdistributions, if any, for years prior to 2022 (reasonable cause required-- explain in Part VI). See instructions.
3 Excess distributions carryover, if any, to 2022:
a From 2017.......
b From 2018.......
c From 2019.......
d From 2020.......
e From 2021.......
fTotal of lines 3a through e
g Applied to underdistributions of prior years
h Applied to 2022 distributable amount
i Carryover from 2017 not applied (see instructions)
j Remainder. Subtract lines 3g, 3h, and 3i from line 3f.
4Distributions for 2022 from Section D, line 7:
$
a Applied to underdistributions of prior years
b Applied to 2022 distributable amount
c Remainder. Subtract lines 4a and 4b from line 4.
5 Remaining underdistributions for years prior to 2022, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions.
6 Remaining underdistributions for 2022. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions.
7 Excess distributions carryover to 2023. Add lines 3j and 4c.
8 Breakdown of line 7:
a Excess from 2018.....
b Excess from 2019.....
c Excess from 2020.....
d Excess from 2021.....
e Excess from 2022.....

Schedule A (Form 990) (2022)

Schedule A (Form 990) 2022

Page 8

Part VI

Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).

Facts And Circumstances Test

Return Reference	Explanation
SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:	REIMBURSEMENT PROCEEDS - 2018 AMOUNT: $ 467,265. 2019 AMOUNT: $ 29,624. 2020 AMOUNT: $ 2,889,947. 2021 AMOUNT: $ 0. 2022 AMOUNT: $ 58,990. EMPLOYEE RETENTION CREDIT - 2020 AMOUNT: $ 2,653,151. 2021 AMOUNT: $ 3,032,541. 2022 AMOUNT: $ 0. GROSS FUNDRAISING REVENUE - 2018 AMOUNT: $ 14,774,450. 2019 AMOUNT: $ 15,811,603. 2020 AMOUNT: $ 3,754,416. 2021 AMOUNT: $ 3,443,701. 2022 AMOUNT: $ 12,338,183. GROSS GAMING REVENUE - 2018 AMOUNT: $ 128,250. 2019 AMOUNT: $ 135,192. 2020 AMOUNT: $ 89,000. 2021 AMOUNT: $ 14,800. 2022 AMOUNT: $ 106,070.
PART II, LINE 12	GROSS RECEIPTS FROM RELATED ACTIVITIES THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE THAT PROVIDES A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATION RESULTS WITH ONE ANOTHER. REGISTRATION FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. REIMBURSEMENTS FOR DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE RELATED COSTS ARE REPORTED ON LINE 12.

Return Reference

Explanation

SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:

REIMBURSEMENT PROCEEDS - 2018 AMOUNT: $ 467,265. 2019 AMOUNT: $ 29,624. 2020 AMOUNT: $ 2,889,947. 2021 AMOUNT: $ 0. 2022 AMOUNT: $ 58,990. EMPLOYEE RETENTION CREDIT - 2020 AMOUNT: $ 2,653,151. 2021 AMOUNT: $ 3,032,541. 2022 AMOUNT: $ 0. GROSS FUNDRAISING REVENUE - 2018 AMOUNT: $ 14,774,450. 2019 AMOUNT: $ 15,811,603. 2020 AMOUNT: $ 3,754,416. 2021 AMOUNT: $ 3,443,701. 2022 AMOUNT: $ 12,338,183. GROSS GAMING REVENUE - 2018 AMOUNT: $ 128,250. 2019 AMOUNT: $ 135,192. 2020 AMOUNT: $ 89,000. 2021 AMOUNT: $ 14,800. 2022 AMOUNT: $ 106,070.

PART II, LINE 12

GROSS RECEIPTS FROM RELATED ACTIVITIES THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE THAT PROVIDES A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATION RESULTS WITH ONE ANOTHER. REGISTRATION FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. REIMBURSEMENTS FOR DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE RELATED COSTS ARE REPORTED ON LINE 12.

Schedule A (Form 990) 2022

Additional Data

Software ID:
Software Version:

- TIN:

Schedule B
(Form 990)

Department of the Treasury
Internal Revenue Service

Schedule of Contributors

Attach to Form 990, 990-EZ, or 990-PF.

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2022

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Organization type (check one):

Filers of:

Section:

Form 990 or 990-EZ

501(c)( ) (enter number) organization

4947(a)(1) nonexempt charitable trust not treated as a private foundation

527 political organization

Form 990-PF

501(c)(3) exempt private foundation

4947(a)(1) nonexempt charitable trust treated as a private foundation

501(c)(3) taxable private foundation

Check if your organization is covered by the General Rule or a Special Rule.
Note: Only a section 501(c)(7), (8), or (10) organization can check boxes for both the General Rule and a Special Rule. See instructions.

General Rule

For an organization filing Form 990, 990-EZ, or 990-PF that received, during the year, contributions totaling $5,000 or more (in money or other property) from any one contributor. Complete Parts I and II. See instructions for determining a contributor's total contributions.

Special Rules

For an organization described in section 501(c)(3) filing Form 990 or 990-EZ that met the 33¹/3% support test of the regulations
under sections 509(a)(1) and 170(b)(1)(A)(vi), that checked Schedule A (Form 990 or 990-EZ), Part II, line 13, 16a, or 16b, and that received from any one contributor, during the year, total contributions of the greater of (1) $5,000 or (2) 2% of the amount on (i) Form 990, Part VIII, line 1h, or (ii) Form 990-EZ, line 1. Complete Parts I and II.

For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, total contributions of more than $1,000 exclusively for religious, charitable, scientific, literary, or educational purposes, or for the prevention of cruelty to children or animals. Complete Parts I, II, and III.

For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, contributions exclusively for religious, charitable, etc., purposes, but no such contributions totaled more than $1,000. If this box is checked, enter here the total contributions that were received during the year for an exclusively religious, charitable, etc., purpose. Don't complete any of the parts unless the General Rule applies to this organization because it received nonexclusively religious, charitable, etc., contributions totaling $5,000 or more during the year ......... Arrow Bullet

Caution: An organization that isn't covered by the General Rule and/or the Special Rules doesn't file Schedule B (Form 990,
990-EZ, or 990-PF), but it must answer “No” on Part IV, line 2, of its Form 990; or check the box on line H of its Form 990-EZ
or on its Form 990PF, Part I, line 2, to certify that it doesn't meet the filing requirements of Schedule B (Form 990,
990-EZ, or 990-PF).

For Paperwork Reduction Act Notice, see the Instructions
for Form 990, 990-EZ, or 990-PF.

Cat. No. 30613XSchedule B (Form 990) (2022)

Schedule B (Form 990) (2022) Page 2

Name of organization CYSTIC FIBROSIS FOUNDATION

Part I Contributors	Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
RESTRICTED	,	$ RESTRICTED	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
Schedule B (Form 990) (2022)

Schedule B (Form 990) (2022)

Page 3

Name of organization CYSTIC FIBROSIS FOUNDATION		Employer identification number 13-1930701

Part II	Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
Schedule B (Form 990) (2022)

Schedule B (Form 990) (2022)

Page 4


Name of organization CYSTIC FIBROSIS FOUNDATION			Employer identification number 13-1930701
Part III Exclusively religious, charitable, etc., contributions to organizations described in section 501(c)(7), (8), or (10) that total more than $1,000 for the year from any one contributor. Complete columns (a) through (e) and the following line entry. For organizations completing Part III, enter the total of exclusively religious, charitable, etc., contributions of $1,000 or less for the year. (Enter this information once. See instructions.) $ Use duplicate copies of Part III if additional space is needed.

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

Schedule B (Form 990) (2022)

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE C
(Form 990)

Department of the Treasury
Internal Revenue Service

Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527

SchCMd Bullet

Complete if the organization is described below. SchCMd Bullet

Attach to Form 990 or Form 990-EZ.
SchCMd Bullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2021

Open to Public
Inspection

If the organization answered "Yes" on Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet

Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet

Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet

Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" on Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet

Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet

Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" on Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet

Section 501(c)(4), (5), or (6) organizations: Complete Part III.

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I-A

Complete if the organization is exempt under section 501(c) or is a section 527 organization.

Provide a description of the organization’s direct and indirect political campaign activities in Part IV. See instructions for definition of “political campaign activities."

Political campaign activity expenditures. See instructions .................................................................... SchCMd Bullet

Volunteer hours for political campaign activities. See instructions ..................................................................

Part I-B

Complete if the organization is exempt under section 501(c)(3).

Enter the amount of any excise tax incurred by the organization under section 4955 ................................ SchCMd Bullet

Enter the amount of any excise tax incurred by organization managers under section 4955 ....................... SchCMd Bullet

If the organization incurred a section 4955 tax, did it file Form 4720 for this year? .........................................

Yes No

Was a correction made? ......................................................................................................................

Yes No

If "Yes," describe in Part IV.

Part I-C

Complete if the organization is exempt under section 501(c), except section 501(c)(3).

Enter the amount directly expended by the filing organization for section 527 exempt function activities ..... SchCMd Bullet

Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ............................................................................................................................ SchCMd Bullet

Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b........... SchCMd Bullet

Did the filing organization file Form 1120-POL for this year? ...................................................................

Yes No

Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.

(a) Name	(b) Address	(c) EIN	(d) Amount paid from filing organization's funds. If none, enter -0-.	(e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.
1
2
3
4
5
6

For Paperwork Reduction Act Notice, see the instructions for Form 990.

Cat. No. 50084S

Schedule C (Form 990) 2021

Page 2

Part II-A

Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).

A Check SchCMd Bullet

if the filing organization belongs to an affiliated group (and list in Part IV each affiliated group member's name, address, EIN, expenses, and share of excess lobbying expenditures).
B Check SchCMd Bullet

if the filing organization checked box A and "limited control" provisions apply.

Limits on Lobbying Expenditures (The term "expenditures" means amounts paid or incurred.)		(b) Affiliated group totals
1a	Total lobbying expenditures to influence public opinion (grass roots lobbying) ......................
b	Total lobbying expenditures to influence a legislative body (direct lobbying) ........................
c	Total lobbying expenditures (add lines 1a and 1b) ............................................................
d	Other exempt purpose expenditures ...............................................................................
e	Total exempt purpose expenditures (add lines 1c and 1d) ..................................................
f	Lobbying nontaxable amount. Enter the amount from the following table in both columns.
	If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
	Not over $500,00020% of the amount on line 1e.
	Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
	Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
	Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
	Over $17,000,000$1,000,000.

g	Grassroots nontaxable amount (enter 25% of line 1f) .................................................
h	Subtract line 1g from line 1a. If zero or less, enter -0-. ................................................
i	Subtract line 1f from line 1c. If zero or less, enter -0-. ................................................
j	If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting section 4911 tax for this year? ...................................................................................................................	Yes No

4-Year Averaging Period Under Section 501(h) (Some organizations that made a section 501(h) election do not have to complete all of the five columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
	Calendar year (or fiscal year beginning in)	(a) 2018	(b) 2019	(c) 2020	(d) 2021	(e) Total

2a	Lobbying nontaxable amount

b	Lobbying ceiling amount (150% of line 2a, column(e))

c	Total lobbying expenditures

d	Grassroots nontaxable amount

e	Grassroots ceiling amount (150% of line 2d, column (e))

f	Grassroots lobbying expenditures

Schedule C (Form 990) 2021

Page 3

Part II-B

Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).

For each "Yes" response on lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.

(a)

Yes|No

(b)

Amount

During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:

Volunteers? ...........................................................................................................

Yes

Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ........

Yes

Media advertisements? ...................................................................................................

Mailings to members, legislators, or the public? .............................................................................

Yes

27,852

Publications, or published or broadcast statements? ...........................................................

Yes

2,970

Grants to other organizations for lobbying purposes? ..........................................................

Direct contact with legislators, their staffs, government officials, or a legislative body? .......................

Yes

1,196,042

Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ..................

Other activities? ...................................................................................................................

Yes

813

Total. Add lines 1c through 1i ....................................................................................................

1,227,677

Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....

If "Yes," enter the amount of any tax incurred under section 4912 ...........................................

If "Yes," enter the amount of any tax incurred by organization managers under section 4912 ...................

If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? ........................

Part III-A

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).

Yes

Were substantially all (90% or more) dues received nondeductible by members? ...............................................

Did the organization make only in-house lobbying expenditures of $2,000 or less? ............................................

Did the organization agree to carry over lobbying and political expenditures from the prior year? .................................

Part III-B

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."

Dues, assessments and similar amounts from members ......................................................................

Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political expenses for which the section 527(f) tax was paid).

Current year .............................................................................................................................

Carryover from last year ............................................................................................................

Total ...........................................................................................................................................

Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .

If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ......................................................................................................................

Taxable amount of lobbying and political expenditures. See Instructions .........................................

Part IV

Supplemental Information

Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.

Return Reference	Explanation
PART II-B, LINE 1:	LOBBYING ACTIVITY THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.

Return Reference

Explanation

PART II-B, LINE 1:

LOBBYING ACTIVITY THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.

Schedule C (Form 990) 2021

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE D
(Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Financial Statements

Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
SchDMd Bullet

Attach to Form 990.
SchDMd Bullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2021

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.

		(a) Donor advised funds	(b) Funds and other accounts
1	Total number at end of year .........
2	Aggregate value of contributions to (during year)
3	Aggregate value of grants from (during year)
4	Aggregate value at end of year ........

Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............

Yes No

Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................

Yes No

Part II

Conservation Easements.
Complete if the organization answered "Yes" on Form 990, Part IV, line 7.

Purpose(s) of conservation easements held by the organization (check all that apply).

Preservation of land for public use (e.g., recreation or education) Preservation of an historically important land area

Protection of natural habitat Preservation of a certified historic structure

Preservation of open space

Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.


a	Total number of conservation easements ......................	2a
b	Total acreage restricted by conservation easements ....................	2b
c	Number of conservation easements on a certified historic structure included in (a) .....	2c
d	Number of conservation easements included in (c) acquired after 7/25/06, and not on a historic structure listed in the National Register ...	2d

Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year SchDMd Bullet

Number of states where property subject to conservation easement is located SchDMd Bullet

Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............

Yes No

Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet

Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
SchDMd Bullet

Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................

Yes No

In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.

If the organization elected, as permitted under FASB ASC 958, not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.

If the organization elected, as permitted under FASB ASC 958, to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:

(i)

Revenue included on Form 990, Part VIII, line 1 ......................... SchDMd Bullet

(ii)

Assets included in Form 990, Part X ............................... SchDMd Bullet

If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under FASB ASC 958 relating to these items:

Revenue included on Form 990, Part VIII, line 1 .......................... SchDMd Bullet

Assets included in Form 990, Part X ............................... SchDMd Bullet

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 52283D

Schedule D (Form 990) 2021

Page 2

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)

Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):

Public exhibition

Loan or exchange programs

Scholarly research

Other

Preservation for future generations

Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.

During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...

Yes No

Part IV

Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.

Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................

Yes No


b	If "Yes," explain the arrangement in Part XIII and complete the following table:		Amount
c	Beginning balance .............................	1c
d	Additions during the year ............................	1d
e	Distributions during the year ..........................	1e
f	Ending balance ................................	1f

Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...

Yes No

If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....

Part V

Endowment Funds.
Complete if the organization answered "Yes" on Form 990, Part IV, line 10.

		(a) Current year	(b) Prior year	(c) Two years back	(d) Three years back	(e) Four years back

1a	Beginning of year balance ....
b	Contributions ...
c	Net investment earnings, gains, and losses
d	Grants or scholarships ...
e	Other expenditures for facilities and programs ...
f	Administrative expenses ....
g	End of year balance ......

Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:

Board designated or quasi-endowment SchDMd Bullet

Permanent endowment SchDMd Bullet

Term endowment SchDMd Bullet

The percentages on lines 2a, 2b, and 2c should equal 100%.

Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes

(i) Unrelated organizations .................

3a(i)

(ii) Related organizations .................

3a(ii)

If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........

Describe in Part XIII the intended uses of the organization's endowment funds.

Part VI

Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.

Description of property		(a) Cost or other basis (investment)	(b) Cost or other basis (other)	(c) Accumulated depreciation	(d) Book value

1a	Land .....
b	Buildings ....
c	Leasehold improvements	6,367,095	2,930,086	3,437,009
d	Equipment ....	24,547,973	17,555,014	6,992,959
e	Other .....
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).)..				10,429,968

Schedule D (Form 990) 2021

Page 3

Part VII

Investments - Other Securities.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.

(a) Description of security or category (including name of security)	(b) Book value	(c) Method of valuation: Cost or end-of-year market value
(1) Financial derivatives.........
(2) Closely-held equity interests........
(3) Other (A) PVT EQTY & OTHR ILLIQUID	1,067,097,065	F
(B) GLOBAL PUBLIC EQUITY	219,592,042	F
(C) OPPORTUNISTIC	443,859,465	F
(D) PERPETUAL TRUSTS & OTHER	3,780,987	F
(D)
(E)
(F)
(G)
(H)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)	1,734,329,559

Part VIII

Investments - Program Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.

(a) Description of investment	(b) Book value	(c) Method of valuation: Cost or end-of-year market value

(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)

Part IX

Other Assets.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.

(a) Description				(b) Book value

(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........

Part X

Other Liabilities.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.

1.(a) Description of liability	(b) Book value
(1) Federal income taxes
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)	30,612,220
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII

Schedule D (Form 990) 2021

Page 4

Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total revenue, gains, and other support per audited financial statements .......			1	-589,442,651
2	Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a	Net unrealized gains (losses) on investments ....	2a	-824,877,531
b	Donated services and use of facilities .........	2b
c	Recoveries of prior year grants ...........	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d .....................			2e	-824,877,531
3	Subtract line 2e from line 1..................			3	235,434,880
4	Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b .	4a	13,195,472
b	Other (Describe in Part XIII.) ...........	4b
c	Add lines 4a and 4b....................			4c	13,195,472
5	Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ......			5	248,630,352

Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total expenses and losses per audited financial statements ...........			1	383,468,642
2	Amounts included on line 1 but not on Form 990, Part IX, line 25:
a	Donated services and use of facilities .........	2a
b	Prior year adjustments ............	2b
c	Other losses ................	2c
d	Other (Describe in Part XIII.) ............	2d
e	Add lines 2a through 2d....................			2e	0
3	Subtract line 2e from line 1...................			3	383,468,642
4	Amounts included on Form 990, Part IX, line 25, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b ..	4a	13,195,472
b	Other (Describe in Part XIII.) ............	4b
c	Add lines 4a and 4b.....................			4c	13,195,472
5	Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ......			5	396,664,114

Part XIII

Supplemental Information

Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.

Return Reference

Explanation

PART X, LINE 2:

THE FOUNDATION IS A NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2022 AND 2021. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.

Schedule D (Form 990) 2021

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE F(Form 990)

Department of the Treasury
Internal Revenue Service

Statement of Activities Outside the United States

Complete if the organization answered "Yes" to Form 990, Part IV, line 14b, 15, or 16. Right pointing arrow large image

Attach to Form 990. Right pointing arrow large image

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2022

Open to Public Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

General Information on Activities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 14b.

For grantmakers. Does the organization maintain records to substantiate the amount of its grants and

other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used

to award the grants or assistance? . . . . . . . . . . . . . . . . . . . . . . . . .

Yes

For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.

Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)

(a) Region		(b) Number of offices in the region	(c) Number of employees, agents, and independent contractors in the region	(d) Activities conducted in region (by type) (such as, fundraising, program services, investments, grants to recipients located in the region)	(e) If activity listed in (d) is a program service, describe specific type of service(s) in the region	(f) Total expenditures for and investments in the region
	EUROPE			GRANTMAKING	NONE	7,054,422
	NORTH AMERICA			GRANTMAKING	NONE	2,779,771
	EAST ASIA AND THE PACIFIC			GRANTMAKING	NONE	451,861
	MIDDLE EAST AND NORTH AFRICA			GRANTMAKING	NONE	220,483
	CENTRAL AMERICA & CARIBBEAN			INVESTMENTS		971,796,155
	EAST ASIA & PACIFIC			INVESTMENTS		128,313,887
	EUROPE			INVESTMENTS		220,162,836
	NORTH AMERICA			INVESTMENTS		47,459,977
	MIDDLE EAST AND NORTH AFRICA			INVESTMENTS		6,680,008
	NORTH AMERICA			PROGRAM SERVICES	CONTRACTED RESEARCH	450,000
	EUROPE			PROGRAM SERVICES	CONTRACTED RESEARCH	669,229
	EAST ASIA AND THE PACIFIC			PROGRAM SERVICES	CONTRACTED RESEARCH	200,000
	SOUTH ASIA			PROGRAM SERVICES	CONTRACTED RESEARCH	100,000




3a	Sub-total ....	0	0			1,378,239,392
b	Total from continuation sheets to Part I ...	0	0			8,099,237
c	Totals (add lines 3a and 3b)	0	0			1,386,338,629

For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) 2022

Schedule F (Form 990) 2022

Page 2

Part II

Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.

(c) Region	(d) Purpose of grant	(e) Amount of cash grant	(f) Manner of cash disbursement
EUROPE	CLINICAL CARE RESEARCH	151,439	WIRE
NORTH AMERICAN	CLINICAL CARE RESEARCH	705,294	WIRE
EUROPE	CLINICAL RESEARCH	2,002,437	WIRE
EUROPE	CLINICAL RESEARCH	328,473	WIRE
EUROPE	CLINICAL RESEARCH	286,686	WIRE
NORTH AMERICA	CLINICAL RESEARCH	473,040	WIRE
MIDDLE EAST AND NORTH AFRICA	CLINICAL RESEARCH	81,189	WIRE
EUROPE	CLINICAL RESEARCH	719,916	WIRE
EUROPE	CLINICAL RESEARCH CENTER	1,221,205	WIRE
NORTH AMERICA	CLINICAL RESEARCH CENTER	49,860	WIRE
NORTH AMERICA	CLINICAL RESEARCH CENTER	143,605	WIRE
EUROPE	CLINICAL RESEARCH STUDY	156,570	WIRE
EUROPE	CLINICAL RESEARCH STUDY	75,861	WIRE
NORTH AMERICA	CLINICAL RESEARCH STUDY	182,606	WIRE
NORTH AMERICA	CLINICAL RESEARCH STUDY	87,539	WIRE
EAST ASIA AND THE PACIFIC	CLINICAL RESEARCH STUDY	89,450	WIRE
NORTH AMERICAN	CLINICAL RESEARCH STUDY	168,000	WIRE
NORTH AMERICA	CLINICAL RESEARCH STUDY	301,170	WIRE
EUROPE	CLINICAL RESEARCH STUDY	120,000	WIRE
NORTH AMERICA	PILOT STUDY	55,993	WIRE
EUROPE	PILOT STUDY	56,000	WIRE
EUROPE	PILOT STUDY	56,000	WIRE
EUROPE	PILOT STUDY	55,942	WIRE
NORTH AMERICA	PILOT STUDY	56,000	WIRE
NORTH AMERICA	PILOT STUDY	56,000	WIRE
EAST ASIA AND THE PACIFIC	PILOT STUDY	55,688	WIRE
EUROPE	PILOT STUDY	56,000	WIRE
NORTH AMERICA	PILOT STUDY	56,000	WIRE
NORTH AMERICA	QUALITY IMPROVEMENT	10,270	WIRE
EUROPE	RESEARCH	151,312	WIRE
NORTH AMERICA	RESEARCH	45,900	WIRE
EUROPE	RESEARCH	140,000	WIRE
EAST ASIA AND THE PACIFIC	RESEARCH	139,188	WIRE
MIDDLE EAST AND NORTH AFRICA	RESEARCH	139,294	WIRE
EUROPE	RESEARCH	226,891	WIRE
EAST ASIA AND THE PACIFIC	RESEARCH	167,535	WIRE
NORTH AMERICA	RESEARCH	145,740	WIRE
EUROPE	RESEARCH	104,770	WIRE
EUROPE	RESEARCH	139,583	WIRE
NORTH AMERICAN	RESEARCH	139,597	WIRE
EUROPE	THERAPEUTICS DISCOVERY RESEARCH	463,900	WIRE
EUROPE	THERAPEUTICS DISCOVERY RESEARCH	221,496	WIRE
NORTH AMERICA	THERAPEUTICS DISCOVERY RESEARCH	101,157	WIRE
EUROPE	THERAPEUTICS DISCOVERY RESEARCH	319,941	WIRE

2	Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter .......	35
3	Enter total number of other organizations or entities .......................	0

Schedule F (Form 990) 2022

Schedule F (Form 990) 2022Page 3

Part III

Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 16.

Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance		(b) Region	(c) Number of recipients	(d) Amount of cash grant	(e) Manner of cash disbursement	(f) Amount of noncash assistance	(g) Description of noncash assistance	(h) Method of valuation (book, FMV, appraisal, other)

Schedule F (Form 990) 2022

Page 4

Part IV

Foreign Forms

Schedule F (Form 990) 2022

Page 5

Part V

Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information. See instructions.

ReturnReference	Explanation
PART III ACCOUNTING METHOD:
SCHEDULE F, PART IV:	PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S. THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES AS WELL AS APPLICABLE PUBLICATIONS OF THE U.S. INTERNAL REVENUE SERVICE, INCLUDING BUT NOT LIMITED TO PUBLICATION 515: WITHHOLDING OF TAX ON NONRESIDENT ALIENS AND FOREIGN ENTITIES AND PUBLICATION 557: TAX-EXEMPT STATUS FOR YOUR ORGANIZATION. IN COMPLIANCE WITH THE BEST PRACTICES AND IRS PUBLICATIONS INTERPRETING APPLICABLE LAWS AND REGULATIONS, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES TO CONDUCT A VETTING PROCESS THAT WILL PROTECT CFF FUNDS FROM DIVERSION FOR TERRORISM, OTHER PROHIBITED ACTIVITIES UNDER APPLICABLE LAWS, OR THE FURTHERANCE OF PRIVATE INTERESTS. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE.FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT REGULAR REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES AND THE FINAL SCIENTIFIC REPORT. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE.

Schedule F (Form 990) 2022

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE G (Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Information Regarding
Fundraising or Gaming Activities

Complete if the organization answered "Yes" on Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrow

Attach to Form 990 or Form 990-EZ.
right arrow

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2022

Open to Public Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Fundraising Activities.Complete if the organization answered "Yes" on Form 990, Part IV, line 17.

Form 990-EZ filers are not required to complete this part.

Indicate whether the organization raised funds through any of the following activities. Check all that apply.

a	Mail solicitations	e	Solicitation of non-government grants
b	Internet and email solicitations	f	Solicitation of government grants
c	Phone solicitations	g	Special fundraising events
d	In-person solicitations

Did the organization have a written or oral agreement with any individual (including officers, directors, trustees

or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?

YesNo

If "Yes," list the 10 highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.

(i) Name and address of individual or entity (fundraiser)		(ii) Activity	(iii) Did fundraiser have custody or control of contributions?		(iv) Gross receipts from activity	(v) Amount paid to (or retained by) fundraiser listed in col. (i)	(vi) Amount paid to (or retained by) organization
			Yes	No
	LAUTMAN MASKA NEILL & COMPANY 1730 RHODE ISLAND AVE NW WASHINGTON, DC20036	MAIL COUNSEL		No	12,208,341	176,400	12,031,941









Total . . . . . . . . . . . . . . . . . . . .					12,208,341	176,400	12,031,941

List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.

AL, AK, AZ, AR, CA, CO, CT, DE, FL, GA, HI, ID, IL, IN, IA, KS, KY, LA, ME, MD, MA, MI, MN, MS, MO, MT, NE, NV, NH, NJ, NM, NY, NC, ND, OH, OK, OR, PA, RI, SC, SD, TN, TX, UT, VT, VA, WA, WV, WI, WY

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 50083H

Schedule G (Form 990) 2022

Page 2

Part II

Fundraising Events. Complete if the organization answered "Yes" on Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.

		(a) Event #1 ATLANTA WALK (event type)	(b) Event #2 SKI EVENT (event type)	(c) Other events 565 (total number)	(d) Total events (add col. (a) through col. (c))
1	Gross receipts . . . . .	3,415,053	2,404,882	62,669,287	68,489,222
2	Less: Contributions . . . .	3,163,524	717,500	52,270,015	56,151,039
3	Gross income (line 1 minus line 2) . . . . . .	251,529	1,687,382	10,399,272	12,338,183

4	Cash prizes . . . . .	0	0	0
5	Noncash prizes . . . .	19,651	127,727	894,677	1,042,055
6	Rent/facility costs . . . .	66,437	900,497	5,060,144	6,027,078
7	Food and beverages . . .	101,244	543,790	2,924,007	3,569,041
8	Entertainment . . . .	13,200		374,296	387,496
9	Other direct expenses . . .	50,997	115,368	1,146,148	1,312,513
10	Direct expense summary. Add lines 4 through 9 in column (d) . . . . . . . . . .				12,338,183
11	Net income summary. Subtract line 10 from line 3, column (d). . . . . . . . . .				0

Part III

Gaming. Complete if the organization answered "Yes" on Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.

		(a) Bingo	(b) Pull tabs/Instant bingo/progressive bingo	(c) Other gaming	(d) Total gaming (add col.(a) through col.(c))
1	Gross revenue . . . . .			106,070	106,070

2	Cash prizes . . . . .
3	Noncash prizes . . . .	67,014	67,014
4	Rent/facility costs . . . .
5	Other direct expenses . . .

Volunteer labor . . . .

	Yes %
	No

	Yes %
	No

	Yes85.000 %
	No

Direct expense summary. Add lines 2 through 5 in column (d) . . . . . . . . . . right arrow

67,014

Net gaming income summary. Subtract line 7 from line 1, column (d). . . . . . . . . right arrow

39,056

Enter the state(s) in which the organization conducts gaming activities: NH , CO

Is the organization licensed to conduct gaming activities in each of these states? . . . . . . . .

YesNo

If "No," explain:

LICENSING FOR THESE GAMING ACTIVITIES IN NH AND CO WAS NOT REQUIRED.

10a

Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? . . .

YesNo

If "Yes," explain:

Schedule G (Form 990) 2022

Page 3

Does the organization conduct gaming activities with nonmembers? . . . . . . . . . . .

YesNo

Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity

formed to administer charitable gaming? . . . . . . . . . . . . . . . . .

YesNo

Indicate the percentage of gaming activity conducted in:

The organization's facility . . . . . . . . . . . . . . . . . .

13a

0 %

An outside facility . . . . . . . . . . . . . . . . . . . .

13b

100.000 %

Enter the name and address of the person who prepares the organization's gaming/special events books and records:

Name

THE ORGANIZATION

Address

4550 MONTGOMERY AVE SUITE 1100N BETHESDA, MD20814

15a

Does the organization have a contract with a third party from whom the organization receives gaming

revenue? . . . . . . . . . . . . . . . . . . . . . . . .

YesNo

If "Yes," enter the amount of gaming revenue received by the organization right arrow

$ and the

amount of gaming revenue retained by the third party right arrow

$ .

If "Yes," enter name and address of the third party:

Name

Address

Gaming manager information:

Name

Gaming manager compensation right arrow

Description of services provided right arrow

Director/officer Employee Independent contractor

Mandatory distributions:

Is the organization required under state law to make charitable distributions from the gaming proceeds to

retain the state gaming license? . . . . . . . . . . . . . . . . . . .

YesNo

Enter the amount of distributions required under state law distributed to other exempt organizations or spent

in the organization's own exempt activities during the tax year right arrow

Part IV

Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v); and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information. See instructions.

Return Reference

Explanation

PART IV:

PROFESSIONAL FUNDRAISING SERVICES CFF HAD A WRITTEN CONTRACT WITH LAUTMAN MASKA NEILL & COMPANY TO CONSULT ON ITS DIRECT MAIL AND ANNUAL FUND EFFORTS DURING 2022. THE EXPENSE FOR THE PROJECT IS $14,700 PER MONTH OR $176,400 FOR THE ENTIRE YEAR OF SERVICES. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED LAUTMAN MASKA NEILL & COMPANY FOR CREATIVE DEVELOPMENT. LAUTMAN MASKA NEILL & COMPANY DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM MAILINGS WITH WHICH LAUTMAN MASKA NEILL & COMPANY ASSISTS ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION.

Schedule G (Form 990) 2022

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Schedule I
(Form 990)

Department of the Treasury
Internal Revenue Service

Grants and Other Assistance to Organizations,
Governments and Individuals in the United States

Complete if the organization answered "Yes," on Form 990, Part IV, line 21 or 22.
lBullet

Attach to Form 990.
lBullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2022

Open to Public
Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number
13-1930701

Part I

General Information on Grants and Assistance

Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ........................

Yes No

Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.

Part II

Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" on Form 990, Part IV, line 21, for any recipient

that received more than $5,000. Part II can be duplicated if additional space is needed.

(a) Name and address of organization or government	(b) EIN	(c) IRC section (if applicable)	(d) Amount of cash grant	(h) Purpose of grant or assistance
(1) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 65 BERGEN STREET NEWARK,NJ07103	46-2354111	IRC 115	3,000	TRAINING
(2) UNIVERSITY OF GEORGIA RESEARCH FOUNDATION INC 310 EAST CAMPUS ROAD ATHENS,GA30602	58-1353149	501C(3)	3,000	TRAINING
(3) UNIVERSITY OF SOUTH FLORIDA 4202 EAST FOWLER AVENUE TAMPA,FL336205800	59-3102112	IRC 115	3,000	TRAINING
(4) UNIVERSITY OF SOUTH ALABAMA 307 UNIVERSITY BLVD MOBILE,AL36688	63-0477348	501C(3)	6,000	TRAINING
(5) CODY DIERUF BENEFIT FOUNDATION PO BOX 7361 BOZEMAN,MT59771	20-4498266	501C(3)	8,300	COMMUNITY IMPACT
(6) THE BONNELL FOUNDATION LIVING WITH CYSTIC FIBROSIS PO BOX 1215 ROYAL OAK MI,MI48068	80-0631159	501C(3)	9,310	COMMUNITY IMPACT
(7) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET MADISON,WI537151218	39-6006492	501C(3)	9,985	COMMUNITY IMPACT
(8) KID LOGISTICS 470 ARUNDEL DRIVE BRANDON,MS390478104	81-3019912	501C(3)	9,994	COMMUNITY IMPACT
(9) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS 809 S MARSHFIELD AVENUE CHICAGO,IL606124305	37-6000511	501C(3)	9,999	COMMUNITY IMPACT
(10) UNITED STATES ADULT CYSTIC FIBROSIS ASSOCIATION 9450 SOUTHWEST GEMINI DRIVE BEAVERTON,OR970087105	93-1036770	501C(3)	10,000	COMMUNITY IMPACT
(11) THE DISTRACTORS 6922 GLIDDEN ST SAN DIEGO,CA92111	85-4369229	501C(3)	10,000	COMMUNITY IMPACT
(12) NATIONAL ORGANIZATION OF AFRICAN AMERICANS WITH CYSTIC FIBROSIS 6001 SOUTHWIND DRIVE NORTH LITTLE ROCK,AR72118	85-2269576	501C(3)	10,000	COMMUNITY IMPACT
(13) COLIE CREATIONS INC 3117 JOHN WILLIS ROAD NEW BERN,NC28562	87-2622612	501C(3)	10,000	COMMUNITY IMPACT
(14) COACH-ED INC 1430 SUGARTOWN ROAD BERWYN,PA19312	45-3399942	501C(3)	10,000	COMMUNITY IMPACT
(15) CLAIRE'S PLACE FOUNDATION INC 2110 ARTESIA BLVD B REDONDO BEACH,CA90278	45-2453459	501C(3)	10,000	COMMUNITY IMPACT
(16) CYSTIC FIBROSIS LIFESTYLE FOUNDATION 936 SOUTHWEST 1ST AVENUE MIAMI,FL33130	57-1163801	501C(3)	10,000	COMMUNITY IMPACT
(17) BOARD OF TRUSTEES OF MICHIGAN STATE UNIVERSITY 426 AUDITORIUM ROAD EAST LANSING,MI48824	38-6005984	501C(3)	12,177	ADULT CARE
(18) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	12,185	ADULT CARE
(19) REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	12,793	ADHERENCE
(20) THE RESEARCH FOUNDATION FOR STATE UNIVERSITY OF NEW YORK PO BOX 9 ALBANY,NY122010009	14-1368361	501C(3)	16,200	ADHERENCE
(21) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN474013654	35-6001673	501C(3)	17,659	ADULT CARE
(22) UNIVERSITY HOSPITALS CLEVELAND MEDICAL CENTER 11100 EUCLID AVENUE CLEVELAND,OH44106	34-1567805	501C(3)	18,085	CLINICAL RESEARCH STUDY
(23) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 615 WEST 131ST STREET NEW YORK,NY100277922	13-5598093	501C(3)	18,914	ADULT CARE
(24) BREATHE BRAVELY INC 505 EAST SUNNYBROOK DRIVE SIOUX FALLS,SD571057138	47-5334258	501C(3)	19,275	COMMUNITY IMPACT
(25) UPMC CHILDREN'S HOSPITAL OF PITTSBURGH 4401 PENN AVENUE PITTSBURGH,PA15224	25-0402510	501C(3)	19,443	CF CARE CENTER
(26) SPECTRUM HEALTH FOUNDATION 100 MICHIGAN ST NE GRAND RAPIDS,MI49503	38-2752328	501C(3)	20,061	ADULT CARE
(27) UNIVERSITY OF MASSACHUSETTS WORCESTER 55 NORTH LAKE AVENUE WORCESTER,MA01655	04-3167352	IRC 115	21,315	ADULT CARE
(28) BILLINGS CLINIC FOUNDATION 2917 TENTH AVE NORTH BILLINGS,MT59101	81-0407289	501C(3)	21,500	ADULT CARE
(29) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND,OR97239	93-1176109	501C(3)	21,619	ADULT CARE
(30) UNIVERSITY OF SOUTHERN CALIFORNIA 3720 S FLOWER STREET LOS ANGELES,CA900890701	95-1642394	501C(3)	22,400	CLINICAL RESEARCH CENTER
(31) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA191046284	23-1352685	501C(3)	23,092	ADULT CARE
(32) THE RESEARCH FOUNDATION FOR STATE UNIVERSITY OF NEW YORK PO BOX 9 ALBANY,NY122010009	14-1368361	501C(3)	23,191	ADULT CARE
(33) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	23,199	ADULT CARE
(34) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA 1001 NORTH EMMET STREET CHARLOTTESVILLE,VA229044195	54-6001796	501C(3)	23,220	ADULT CARE
(35) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA981959472	91-6001537	IRC 115	23,220	ADULT CARE
(36) UNIVERSITY OF PITTSBURGH PHYSICIANS CLINICAL TRAIL RECEIPTS MAIL STOP UST 015801 600 GRANT ST PITTSBURGH,PA152192739	23-2919472	501C(3)	24,940	ADULT CARE
(37) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	27,388	ADHERENCE
(38) BETH ISRAEL DEACONESS MEDICAL CENTER INC 330 BROOKLINE AVENUE BOSTON,MA022155491	04-2103881	501C(3)	28,240	CLINICAL RESEARCH
(39) THE UNIVERSITY OF ARIZONA 845 NORTH PARK AVENUE TUCSON,AZ85721	74-2652689	IRC 115	28,350	ADHERENCE
(40) BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER PO BOX 26901 OKLAHOMA CITY,OK731260901	73-1563627	501C(3)	28,745	ADULT CARE
(41) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BVD DALLAS,TX753909020	75-6002868	170(B)(1)(A)(V)	29,689	ADHERENCE
(42) NATIONAL JEWISH HEALTH 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	31,348	ADHERENCE
(43) REGENTS OF THE UNIVERSITY OF MINNESOTA 450 MCNAMARA ALUMNI CTR 200 OAK ST SE MINNEAPOLIS,MN554552070	41-6007513	501C(3)	32,039	ADHERENCE
(44) STATE OF ARIZONA 150 N 18TH AVE PHOENIX,AZ85007	86-6004791	U.S. STATE	32,589	QUALITY IMPROVEMENT
(45) BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA HOUSTON,TX77030	74-1613878	501C(3)	32,770	ADHERENCE
(46) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	32,898	ADHERENCE
(47) WESTERN MICHIGAN UNIVERSITY SCHOOL OF MEDICINE 1000 OAKLAND DRIVE KALAMAZOO,MI49008	45-4135256	501C(3)	33,786	CF CARE CENTER
(48) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN474013654	35-6001673	501C(3)	33,846	QUALITY IMPROVEMENT
(49) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION 886 CHESTNUT RIDGE ROAD MORGANTOWN,WV26506	55-0665758	501C(3)	34,672	ADHERENCE
(50) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	34,715	ADHERENCE
(51) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 485 BROADWAY REDWOOD CITY,CA940623126	94-1156365	501C(3)	34,720	ADHERENCE
(52) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	34,720	ADHERENCE
(53) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC MSN 1039 KANSAS CITY,KS66160	48-1108830	501C(3)	35,601	ADHERENCE
(54) THE REGENTS OF THE UNIVERSITY OF COLORADO 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	35,640	ADULT CARE
(55) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	35,720	ADHERENCE
(56) BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY PO BOX 19616 SPRINGFIELD,IL627949616	37-6005961	501C(3)	35,821	CF CARE CENTER
(57) REGENTS OF THE UNIVERSITY OF MINNESOTA 450 MCNAMARA ALUMNI CTR 200 OAK ST SE MINNEAPOLIS,MN554552070	41-6007513	501C(3)	35,876	CLINICAL RESEARCH
(58) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC 300 E MARKET STREET LOUISVILLE,KY402021959	61-1029626	501C(3)	36,597	ADULT CARE
(59) THE REGENTS OF THE UNIVERSITY OF COLORADO 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	36,932	ADHERENCE
(60) EMORY UNIVERSITY 1599 CLIFTON RD ATLANTA,GA30322	58-0566256	501C(3)	36,942	ADULT CARE
(61) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH432101016	31-6025986	IRC 115	36,956	ADULT CARE
(62) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 65 BERGEN STREET NEWARK,NJ07103	46-2354111	IRC 115	36,960	ADULT CARE
(63) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	36,960	ADULT CARE
(64) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	36,960	ADULT CARE
(65) YALE UNIVERSITY 150 MUNSON ST PO BOX 208327 NEW HAVEN,CT065208327	06-0646973	501C(3)	38,605	RESEARCH STUDY
(66) LANDON PEDIATRIC FOUNDATION 3291 LOMA VISTA RD VENTURA,CA93003	93-1097216	501C(3)	38,632	CF CARE CENTER
(67) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	39,389	THERAPEUTICS DISCOVERY RESEARCH
(68) CHILDREN'S HEALTHCARE OF ATLANTA 1575 NORTHEAST EXPRESSWAY ATLANTA,GA30329	58-2367819	501C(3)	39,795	CF CARE CENTER
(69) BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA HOUSTON,TX77030	74-1613878	501C(3)	40,276	ADULT CARE
(70) WRIGHT STATE UNIVERSITY 3640 COLONEL GLENN HIGHWAY DAYTON,OH45435	31-0732831	IRC 115	41,110	ADULT CARE
(71) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF AR ACTING FOR AND BEHALF OF THE 4301 WEST MARKHAM ST LITTLE ROCK,AR72205	71-6046242	U.S. STATE	42,419	ADULT CARE
(72) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA191046284	23-1352685	501C(3)	42,454	CLINICAL RESEARCH CENTER
(73) SUTTER BAY HOSPITALS 475 BRANNAN STREET SAN FRANCISCO,CA941075419	94-0562680	501C(3)	43,340	CF CARE CENTER
(74) THE REGENTS OF THE UNIVERSITY OF COLORADO 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	43,537	QUALITY IMPROVEMENT
(75) CHILDREN'S HOSPITAL CORPORATION 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	44,700	QUALITY IMPROVEMENT
(76) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	44,759	QUALITY IMPROVEMENT
(77) THE UNIVERSITY OF VERMONT MEDICAL CENTER INC 111 COLCHESTER AVENUE BURLINGTON,VT05401	03-0219309	501C(3)	44,874	ADHERENCE
(78) EAST CAROLINA UNIVERSITY GREENVILLE CTR STE 2900 2200 S CHARLES BLVD GREENVILLE,NC278584353	56-6000403	IRC 115	44,900	CF CARE CENTER
(79) MAINE MEDICAL CENTER 22 BRAMHALL STREET PORTLAND,ME041023175	01-0238552	501C(3)	45,993	ADULT CARE
(80) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	46,079	ADULT CARE
(81) REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA,CA920930934	95-6006144	501C(3)	46,079	ADULT CARE
(82) HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF MILITARY MEDICINE INC 6720A ROCKLEDGE DRIVE BETHESDA,MD20817	52-1317896	501C(3)	47,500	CF CARE CENTER
(83) ST ALEXIUS MEDICAL CENTER 900 EAST BROADWAY AVENUE BISMARCK,ND585014520	45-0226711	501C(3)	47,840	CF CARE CENTER
(84) CHRISTIANA CARE HEALTH SERVICES INC PO BOX 2653 WILMINGTON,DE198050653	51-0103684	501C(3)	48,130	CF CARE CENTER
(85) CHRISTUS SANTA ROSE HEALTH SYSTEMS 333 N SANTA ROSA STREET SAN ANTONIO,TX78207	74-1109665	501C(3)	49,520	CF CARE CENTER
(86) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	49,911	CLINICAL RESEARCH
(87) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	50,000	CLINICAL RESEARCH STUDY
(88) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	50,000	CLINICAL RESEARCH STUDY
(89) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND,OH44131	34-0714585	501C(3)	50,000	CLINICAL RESEARCH STUDY
(90) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	50,384	CLINICAL RESEARCH
(91) THE GENERAL HOSPITAL CORPORATION 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	51,883	ADULT CARE
(92) PRISMA HEALTHMIDLANDS 200 PATEWOOD DR GREENVILLE,SC29607	58-2296052	501C(3)	52,480	CLINICAL RESEARCH CENTER
(93) LEE MEMORIAL HEALTH SYSTEM FOUNDATION INC 9800 SOUTH HEALTHPARK DRIVE FORT MYERS,FL33908	65-0645343	501C(3)	52,615	CF CARE CENTER
(94) UNIVERSITY PSYCHIATRIC PRACTICE INC 462 GRIDER STREET BUFFALO,NY14215	16-1426208	501C(3)	53,196	CF CARE CENTER
(95) THE UNIVERSITY OF TENNESSEE 63 SOUTH DUNLAP STREET MEMPHIS,TN38163	62-6001636	IRC 115	53,596	PILOT STUDY
(96) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON ONE PERKINS SQUARE AKRON,OH44308	34-0714357	501C(3)	54,349	ADULT CARE
(97) NORTH SUBURBAN PULMONARY AND CRITICAL CARE CONSULTANTS SC 9201N WAUKEGAN ROAD MORTON GROVE,IL60053	36-4393017	C CORP	54,400	CF CARE CENTER
(98) ST JOSEPH'S HOSPITAL AND MEDICAL CENTER 703 MAIN STREET PETERSON,NJ07503	22-1487602	501C(3)	54,705	CF CARE CENTER
(99) UNIVERSITY OF FLORIDA STE 1250 EAST CAMPUS OFFICE BLDG PO BOX 113201 GAINESVILLE,FL326115500	59-6002052	IRC 115	54,968	PILOT STUDY
(100) UNIVERSITY OF CONNECTICUT HEALTH CENTER 263 FARMINGTON AVENUE FARMINGTON,CT06030	52-1725543	501C(3)	54,968	PILOT STUDY
(101) MH MISSION HOSPITAL LLLP PO BOX 550 NASHVILLE TN,MD372020550	83-2048706	LLP	55,150	CF CARE CENTER
(102) VARIETY CHILDREN'S HOSPITAL 3100 SW 62ND AVENUE MIAMI,FL331553009	59-0638499	501C(3)	55,150	CF CARE CENTER
(103) SAINT BARNABAS MEDICAL CENTER 94 OLD SHORT HILLS ROAD LIVINGSTON,NJ07039	22-1494440	501C(3)	55,540	CF CARE CENTER
(104) BOARD OF REGENTS NEVADA SYSTEM OF HIGHER EDUCATION 4505 SOUTH MARYLAND PARKWAY LAS VEGAS,NV89154	88-6000024	IRC 115	55,560	PILOT STUDY
(105) THE REGENTS OF THE UNIVERSITY OF COLORADO 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	55,867	PILOT STUDY
(106) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 6823 ST CHARLES AVENUE NEW ORLEANS,LA70118	72-0423889	501C(3)	55,890	PILOT STUDY
(107) REGENTS OF THE UNIVERSITY OF MINNESOTA 450 MCNAMARA ALUMNI CTR 200 OAK ST SE MINNEAPOLIS,MN554552070	41-6007513	501C(3)	55,922	PILOT STUDY
(108) EMORY UNIVERSITY 1599 CLIFTON RD ATLANTA,GA30322	58-0566256	501C(3)	55,964	PILOT STUDY
(109) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	55,999	PILOT STUDY
(110) REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS ONE SHIELDS AVENUE DAVIS,CA95618	94-6036494	501C(3)	56,000	PILOT STUDY
(111) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	56,000	PILOT STUDY
(112) UNIVERSITY OF GEORGIA RESEARCH FOUNDATION INC 310 EAST CAMPUS ROAD ATHENS,GA30602	58-1353149	501C(3)	56,000	PILOT STUDY
(113) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	56,000	PILOT STUDY
(114) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 615 WEST 131ST STREET NEW YORK,NY100277922	13-5598093	501C(3)	56,000	PILOT STUDY
(115) DARTMOUTH-HITCHCOCK CLINIC ONE MEDICAL CENTER DRIVE LEBANON,NH03756	22-2519596	501C(3)	56,000	PILOT STUDY
(116) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	56,000	PILOT STUDY
(117) UNIVERSITY OF PITTSBURGH 300 MURDOCH BUILDING PITTSBURGH,PA152603203	25-0965591	501C(3)	56,000	PILOT STUDY
(118) NATIONAL JEWISH HEALTH 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	56,000	PILOT STUDY
(119) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND,OR97239	93-1176109	501C(3)	56,580	QUALITY IMPROVEMENT
(120) SANFORD MEDICAL CENTER FARGO PO BOX 2010 FARGO,ND581222206	45-0226909	501C(3)	56,860	CF CARE CENTER
(121) THOMAS JEFFERSON UNIVERSITY 1020 WALNUT STREET PHILADELPHIA,PA19107	23-1352651	501C(3)	58,493	CLINICAL RESEARCH CENTER
(122) BAYSTATE MEDICAL CENTER INC 759 CHESNUT STREET SPRINGFIELD,MA01199	04-2790311	501C(3)	60,180	CF CARE CENTER
(123) RENOWN HEALTH FOUNDATION 1155 MILL ST RENO,NV89502	94-2972749	501C(3)	61,370	CF CARE CENTER
(124) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN474013654	35-6001673	501C(3)	61,996	TRAINING
(125) THE GENERAL HOSPITAL CORPORATION 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	62,000	TRAINING
(126) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 615 WEST 131ST STREET NEW YORK,NY100277922	13-5598093	501C(3)	62,000	TRAINING
(127) GUNDERSEN LUTHERAN MEDICAL FOUNDATION INC 1836 SOUTH AVENUE LA CROSSE,WI54601	39-1249705	501C(3)	62,298	CF CARE CENTER
(128) THE UNIVERSITY OF CENTRAL FLORIDA BOARD OF TRUSTEES 12201 RESEARCH PARKWAY ORLANDO,FL32826	59-2924021	170(B)(1)(A)(II)	62,500	RESEARCH
(129) CURATORS OF THE UNIVERSITY OF MISSOURI 601 TURNER AVENUE COLUMBIA,MO652110001	43-6003859	501C(3)	63,349	RESEARCH STUDY
(130) SAN DIEGO STATE UNIVERSITY FOUNDATION 5250 CAMPANILE DRIVE MC 1947 SAN DIEGO,CA921821947	95-6042721	501C(3)	63,350	RESEARCH STUDY
(131) REGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE OFFICE OF RESEARCH IRVINE,CA926977600	95-2226406	501C(3)	63,350	RESEARCH STUDY
(132) OREGON STATE UNIVERSITY PO BOX 1086 CORVALLIS,OR973391086	61-1730890	IRC 115	63,350	RESEARCH STUDY
(133) JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	63,350	RESEARCH STUDY
(134) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10889 WILSHIRE BLVD STE 700 PO BOX 951406 LOS ANGELES,CA900951406	95-6006143	501C(3)	65,206	CLINICAL RESEARCH CENTER
(135) CEDARS SINAI MEDICAL CENTER 8700 BEVERLY BLVD LOS ANGELES,CA90048	95-1644600	501C(3)	65,699	RESEARCH STUDY
(136) REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA,CA920930934	95-6006144	501C(3)	65,700	RESEARCH STUDY
(137) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA191046284	23-1352685	501C(3)	66,329	CLINICAL RESEARCH STUDY
(138) PENSACOLA LUNG GROUP MDS PA 4700 BAYOU BLVD PENSACOLA,FL32503	59-2313481	501C(3)	66,380	CF CARE CENTER
(139) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND,OH44131	34-0714585	501C(3)	66,903	ADULT CARE
(140) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET MADISON,WI537151218	39-6006492	501C(3)	67,000	TRAINING
(141) MARSHFIELD CLINIC INC 1000 N OAK AVENUE MARSHFIELD,WI54449	39-0452970	501C(3)	67,020	CF CARE CENTER
(142) THE RESEARCH FOUNDATION FOR STATE UNIVERSITY OF NEW YORK PO BOX 9 ALBANY,NY122010009	14-1368361	501C(3)	67,272	CLINICAL RESEARCH
(143) THE REGENTS OF THE UNIVERSITY OF COLORADO 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	68,050	RESEARCH STUDY
(144) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	68,050	RESEARCH STUDY
(145) THE CARLE FOUNDATION 611 WEST PARK URBANA,IL61801	37-1119538	501C(3)	69,250	CF CARE CENTER
(146) REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	69,298	ADULT CARE
(147) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10889 WILSHIRE BOULEVARD SUITE 700 PO BOX 951406 LOS ANGELES,CA900951406	95-6006143	501C(3)	69,299	ADULT CARE
(148) DRISCOLL CHILDREN'S HOSPITAL 3533 SOUTH ALAMEDA CORPUS CHRISTI,TX78411	74-2577746	501C(3)	69,363	CF CARE CENTER
(149) UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE SALT LAKE CITY,UT841120922	87-6000525	501C(3)	69,500	TRAINING
(150) MERCY MEDICAL CENTER 301 SAINT PAUL PLACE BALTIMORE,MD21202	52-0591658	501C(3)	69,660	ADULT CARE
(151) EASTERN MAINE MEDICAL CENTER 489 STATE STREET PO BOX 404 BANGOR,ME04402	01-0211501	501C(3)	70,160	CF CARE CENTER
(152) UNIVERSITY OF MIAMI PO BOX 248106 CONTROLLERS OFFICE CORAL GABLES,FL331242912	59-0624458	501C(3)	70,184	ADULT CARE
(153) IOM HEALTH SYSTEMS LP 7950 W JEFFERSON FORT WAYNE,IN46804	35-1963748	C CORP	70,967	CF CARE CENTER
(154) TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER 3601 4TH STREET LUBBOCK,TX794306209	75-2668014	501C(3)	71,173	CF CARE CENTER
(155) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER 11937 US HIGHWAY 271 TYLER,TX757083154	75-6001354	501C(3)	71,696	CLINICAL RESEARCH CENTER
(156) UNIVERSITY OF CINCINNATI 51 GOODMAN DR CINCINNATI,OH452210222	31-6000989	501C(3)	71,724	CLINICAL RESEARCH CENTER
(157) YALE UNIVERSITY 150 MUNSON STREET PO BOX 208327 NEW HAVEN,CT065208327	06-0646973	501C(3)	74,584	ADULT CARE
(158) REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	75,600	TRAINING
(159) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC MSN 1039 KANSAS CITY,KS66160	48-1108830	501C(3)	75,600	TRAINING
(160) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	76,171	ADULT CARE
(161) LEHIGH VALLEY HOSPITAL INC 2100 MACK BLVD ALLENTOWN,PA181035622	23-1689692	501C(3)	76,510	CF CARE CENTER
(162) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO 7703 FLOYD CURL DRIVE SAN ANTONIO,TX782293900	74-1586031	501C(3)	78,184	ADULT CARE
(163) NATIONAL JEWISH HEALTH 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	79,271	RESEARCH CENTER
(164) UNIVERSITY OF MASSACHUSETTS WORCESTER 55 NORTH LAKE AVENUE WORCESTER,MA01655	04-3167352	IRC 115	81,011	CLINICAL RESEARCH CENTER
(165) SAINT FRANCIS MEDICAL CENTER 530 NE GLEN OAK AVE PEORIA,IL61637	37-0662569	501C(3)	81,514	CLINICAL RESEARCH CENTER
(166) BOARD OF TRUSTEES OF MICHIGAN STATE UNIVERSITY 426 AUDITORIUM ROAD EAST LANSING,MI48824	38-6005984	501C(3)	81,550	CF CARE CENTER
(167) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	81,990	CLINICAL RESEARCH CENTER
(168) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND,OH44131	34-0714585	501C(3)	83,440	CLINICAL RESEARCH CENTER
(169) ATLANTIC HEALTH SYSTEM INC 475 SOUTH STREET MORRISTON,NJ07960	52-1958352	501C(3)	83,597	CLINICAL RESEARCH CENTER
(170) ST VINCENT HOSPITAL OF THE HOSPITAL SISTERS OF THE THIRD ORDER OF ST FRAN 835 S VAN BUREN GREEN BAY,WI543013256	39-0817529	501C(3)	83,720	CF CARE CENTER
(171) DEPARTMENT OF GENERAL SERVICES 1100 BANK STREET RICHMOND,VA23219	54-1056975	GOVERNMENT ENTITY	83,958	QUALITY IMPROVEMENT
(172) MICHIGAN DEPARTMENT OF HEALTH AND HUMAN SERVICES 235 SOUTH GRAND AVENUE LANSING,MI489331805	38-6000134	GOVERNMENT ENTITY	84,000	QUALITY IMPROVEMENT
(173) YALE UNIVERSITY 150 MUNSON STREET PO BOX 208327 NEW HAVEN,CT065208327	06-0646973	501C(3)	84,000	PILOT STUDY
(174) INOVA HEALTH CARE SERVICES 8110 GATEHOUSE ROAD FALLS CHURCH,VA22042	54-0620889	501C(3)	84,769	ADULT CARE
(175) DAYTON CHILDRENS HOSPITAL ONE CHILDRENS PLAZA DAYTON,OH454041815	31-0672132	501C(3)	85,553	CLINICAL RESEARCH CENTER
(176) UNIVERSITY OF SOUTH FLORIDA 4202 EAST FOWLER AVENUE TAMPA,FL336205800	59-3102112	IRC 115	85,730	CF CARE CENTER
(177) CHILDREN'S HOSPITAL CORPORATION 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	86,454	ADULT CARE
(178) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER 11937 US HIGHWAY 271 TYLER,TX757083154	75-6001354	501C(3)	87,050	CF CARE CENTER
(179) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	87,221	ADULT CARE
(180) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC 300 E MARKET STREET LOUISVILLE,KY402021959	61-1029626	501C(3)	89,077	CLINICAL RESEARCH CENTER
(181) ASCENSION SETON 1345 PHILOMENA STREET AUSTIN,TX78723	74-1109643	501C(3)	89,331	CLINICAL RESEARCH CENTER
(182) SANTA BARBARA COTTAGE HOSPITAL 400 WEST PUEBLO STREET SANTA BARBARA,CA93105	95-1644629	501C(3)	89,400	CF CARE CENTER
(183) THE NEMOURS FOUNDATION 1701 ROCKLAND ROAD WILMINGTON,DE198033607	59-0634433	501C(3)	89,599	CLINICAL RESEARCH STUDY
(184) THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH 350 COMMUNITY DRIVE MANHASSET,NY11030	11-2673595	501C(3)	89,807	QUALITY IMPROVEMENT
(185) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 485 BROADWAY REDWOOD CITY,CA940623126	94-1156365	501C(3)	90,000	CLINICAL RESEARCH STUDY
(186) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 485 BROADWAY REDWOOD CITY,CA940623126	94-1156365	501C(3)	90,412	ADULT CARE
(187) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 6823 ST CHARLES AVENUE NEW ORLEANS,LA70118	72-0423889	501C(3)	90,454	CLINICAL RESEARCH CENTER
(188) JOE DIMAGGIO CHILDREN'S HOSPITAL FOUNDATION INC 3329 JOHNSON STREET HOLLYWOOD,FL33021	65-0492343	501C(3)	90,961	CLINICAL RESEARCH CENTER
(189) MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE,FL32224	59-3337028	501C(3)	91,580	CF CARE CENTER
(190) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC MSN 1039 KANSAS CITY,KS66160	48-1108830	501C(3)	91,683	CLINICAL RESEARCH STUDY
(191) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION 886 CHESTNUT RIDGE ROAD MORGANTOWN,WV26506	55-0665758	501C(3)	92,395	CLINICAL RESEARCH CENTER
(192) WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM,NC27157	22-3849199	501C(3)	92,752	CLINICAL RESEARCH CENTER
(193) CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BOULEVARD LOS ANGELES,CA900270982	95-1690977	501C(3)	92,815	CLINICAL RESEARCH CENTER
(194) LOMA LINDA UNIVERSITY 11145 ANDERSON STREET LOMA LINDA,CA92354	95-1816009	501C(3)	93,125	CF CARE CENTER
(195) CONNECTICUT CHILDREN'S MEDICAL CENTER 202 WASHINGTON STREET HARTFORD,CT061063322	06-0646755	501C(3)	93,210	CF CARE CENTER
(196) UNIVERSITY OF FLORIDA STE 1250 EAST CAMPUS OFFICE BLDG PO BOX 113201 GAINESVILLE,FL326115500	59-6002052	IRC 115	93,448	CLINICAL RESEARCH STUDY
(197) HARTFORD HOSPITAL 80 SEYMOUR STREET PO BOX 5037 HARTFORD,CT061025037	06-0646668	501C(3)	93,760	CF CARE CENTER
(198) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	93,939	CLINICAL RESEARCH STUDY
(199) YALE UNIVERSITY 150 MUNSON STREET PO BOX 208327 NEW HAVEN,CT065208327	06-0646973	501C(3)	94,718	CLINICAL RESEARCH CENTER
(200) REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA,CA920930934	95-6006144	501C(3)	96,358	CLINICAL RESEARCH CENTER
(201) CAMC HEALTH EDUCATION AND RESEARCH INSTITUTE INC PO BOX 1547 CHARLESTON,WV253261547	55-0753754	501C(3)	97,410	CF CARE CENTER
(202) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC 1120 15TH STREET CJ3301 AUGUSTA,GA309124810	58-1418202	501C(3)	97,451	CLINICAL RESEARCH CENTER
(203) CHILDREN'S RESEARCH INSTITUTE 111 MICHIGAN AVENUE NW WASHINGTON,DC20010	52-1654453	501C(3)	99,580	CLINICAL RESEARCH CENTER
(204) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	99,703	CLINICAL RESEARCH STUDY
(205) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ONE GUSTAVE L LEVY PLACE NEW YORK,NY10029	13-6171197	501C(3)	99,979	TRAINING
(206) YALE UNIVERSITY 150 MUNSON STREET PO BOX 208327 NEW HAVEN,CT065208327	06-0646973	501C(3)	99,999	TRAINING
(207) WASHINGTON UNIVERSITY 1 BROOKINGS DRIVE ST LOUIS,MO63130	43-0653611	501C(3)	100,000	TRAINING
(208) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	100,000	TRAINING
(209) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	100,000	TRAINING
(210) VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVE SOUTH NASHVILLE,TN37232	35-2528741	501C(3)	100,000	RESEARCH
(211) MEMORIAL HEALTH SERVICES 17360 BROOKHURST STREET FOUNTAIN VALLEY,CA92708	95-1643381	501C(3)	100,384	CLINICAL RESEARCH CENTER
(212) LOYOLA UNIVERSITY CHICAGO 820 NORTH MICHIGAN AVENUE CHICAGO,IL606112147	36-1408475	501C(3)	100,399	CF CARE CENTER
(213) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	100,644	CLINICAL RESEARCH CENTER
(214) UNIVERSITY OF SOUTH CAROLINA 1600 HAMPTON STREET COLUMBIA,SC29208	57-6001153	IRC 115	101,400	CF CARE CENTER
(215) WAYNE STATE UNIVERSITY 5057 WOODWARD AVENUE DETROIT,MI48202	38-6028429	501C(3)	101,710	CF CARE CENTER
(216) BILLINGS CLINIC FOUNDATION 2917 TENTH AVE NORTH BILLINGS,MT59101	81-0407289	501C(3)	102,249	CLINICAL RESEARCH CENTER
(217) SANFORD CLINIC PO BOX 5039 SIOUX FALLS,SD571175039	46-0447693	501C(3)	102,373	CLINICAL RESEARCH CENTER
(218) REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS ONE SHIELDS AVENUE DAVIS,CA95618	94-6036494	501C(3)	102,621	CLINICAL RESEARCH CENTER
(219) CHILDREN'S HOSPITAL OF ORANGE COUNTY 1201 WEST LA VETA AVENUE ORANGE,CA92868	95-2321786	501C(3)	105,140	CF CARE CENTER
(220) UPSTATE AFFILIATE ORGANIZATION 300 E MCBEE AVE GREENVILLE,SC29601	81-1723202	501C(3)	107,100	CF CARE CENTER
(221) IOWA HEALTH FOUNDATION 1415 WOODLAND AVENUE DES MOINES,IA50309	42-1467682	501C(3)	107,450	CF CARE CENTER
(222) CHILDREN'S HEALTH CARE 2525 CHICAGO AVENUE SOUTH MINNEAPOLIS,MN554041844	41-1754276	501C(3)	108,193	CLINICAL RESEARCH CENTER
(223) THE TOLEDO HOSPITAL 2142 N COVE BLVD TOLEDO,OH43606	34-4428256	501C(3)	109,102	CLINICAL RESEARCH CENTER
(224) WASHINGTON UNIVERSITY 1 BROOKINGS DRIVE ST LOUIS,MO63130	43-0653611	501C(3)	110,000	RESEARCH STUDY
(225) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN474013654	35-6001673	501C(3)	110,000	RESEARCH STUDY
(226) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH432101016	31-6025986	IRC 115	110,000	RESEARCH STUDY
(227) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	110,000	RESEARCH STUDY
(228) VHS CHILDREN'S HOSPITAL OF MICHIGAN INC 3901 BEAUBIEN BOULEVARD DETROIT,MI482012196	27-2845064	C CORP	110,540	CF CARE CENTER
(229) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE PO BOX 359472 SEATTLE,WA981959472	91-6001537	IRC 115	110,655	PILOT STUDY
(230) CHATTANOOGA HAMILTON COUNTY HOSPITAL AUTHORITY 975 EAST THIRD STREET CHATTANOOGA,TN37403	62-6000101	501C(3)	110,870	CF CARE CENTER
(231) STATE UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	111,249	PILOT STUDY
(232) CLEVENLAND CLINIC FLORIDA 2950 CLEVELAND CLINIC BOULEVARD WESTON,FL33331	65-0003177	501C(3)	112,000	RESEARCH
(233) ST LOUIS UNIVERSITY 221 NORTH GRAND BLVD ST LOUIS,MO63103	43-0654872	501C(3)	112,181	CLINICAL RESEARCH CENTER
(234) BAYLOR SCOTT & WHITE HEALTH 2401 S 31ST STREET TEMPLE,TX76508	46-3131350	501C(3)	112,215	CF CARE CENTER
(235) CHILDREN'S HOSPITAL OF ORANGE COUNTY 1201 WEST LA VETA AVENUE ORANGE,CA92868	95-2321786	501C(3)	112,653	CLINICAL RESEARCH CENTER
(236) PARKVIEW HOSPITAL INC 10501 CORPORATE DRIVE FORT WAYNE,IN468451700	35-0868085	501C(3)	114,237	CF CARE CENTER
(237) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	114,411	CLINICAL RESEARCH CENTER
(238) THE PENNSYLVANIA STATE UNIVERSITY 500 UNIVERSITY DRIVE HERSHEY,PA17033	24-6000376	IRC 115	115,492	CLINICAL RESEARCH CENTER
(239) BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER PO BOX 26901 OKLAHOMA CITY,OK731260901	73-1563627	501C(3)	117,208	CLINICAL RESEARCH CENTER
(240) ORLANDO HEALTH FOUNDATION INC 3160 SOUTHGATE COMMERCE BLVD SUITE ORLANDO,FL32806	59-2244943	501C(3)	117,705	CF CARE CENTER
(241) THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL COLLEGE 85 SOUTH PROSPECT TREET BURLINGTON,VT05405	03-0179440	501C(3)	118,188	CLINICAL RESEARCH CENTER
(242) ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO 225 E CHICAGO AVE CHICAGO,IL606112991	36-2170833	501C(3)	118,461	CLINICAL RESEARCH CENTER
(243) NATIONAL HEART LUNG & BLOOD INSTITUTE NATIONAL INSTITUTES OF HEALTH DHH 31 CENTER DRIVE BETHESDA,MD20892	52-0858115	GOVERNMENT ENTITY	119,195	QUALITY IMPROVEMENT
(244) ALBANY MEDICAL COLLEGE 47 NEW SCOTLAND AVENUE ALBANY,NY122083479	14-1338310	501C(3)	119,770	CLINICAL RESEARCH CENTER
(245) WAYNE STATE UNIVERSITY 5057 WOODWARD AVENUE DETROIT,MI48202	38-6028429	501C(3)	120,904	CLINICAL RESEARCH CENTER
(246) TRUSTEES OF DARTMOUTH COLLEGE OFFICE OF SPONSORED PROJECTS HANOVER,NH037551421	02-0222111	501C(3)	122,207	CLINICAL RESEARCH STUDY
(247) THE MEDICAL COLLEGE OF WISCONSIN INC 8701 WATERTOWN PLANK ROAD MILWAUKEE,WI532263548	39-0806261	501C(3)	124,708	RESEARCH
(248) YALE UNIVERSITY 150 MUNSON STREET PO BOX 208327 NEW HAVEN,CT065208327	06-0646973	501C(3)	125,000	RESEARCH
(249) UNIVERSITY OF SOUTH FLORIDA 4202 EAST FOWLER AVENUE TAMPA,FL336205800	59-3102112	IRC 115	125,000	RESEARCH
(250) NEW YORK UNIVERSITY 1 PARK AVENUE NEW YORK,NY100165802	13-5562308	501C(3)	126,945	CF CARE CENTER
(251) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	127,002	TRAINING
(252) UNIVERSITY OF MIAMI PO BOX 248106 CONTROLLERS OFFICE CORAL GABLES,FL331242912	59-0624458	501C(3)	127,036	CLINICAL RESEARCH CENTER
(253) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	127,280	RESEARCH
(254) VALLEY CHILDREN'S HOSPITAL 9300 VALLEY CHILDRENS PLACE MADERA,CA93636	94-1294954	501C(3)	128,165	CF CARE CENTER
(255) ALL CHILDREN'S RESEARCH INSTITUTE INC 501 6TH AVE S DEPT 9581 ST PETERSBURG,FL337014634	59-2481742	501C(3)	128,901	CLINICAL RESEARCH CENTER
(256) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	129,000	TRAINING
(257) ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO 225 E CHICAGO AVE CHICAGO,IL606112991	36-2170833	501C(3)	129,000	TRAINING
(258) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 485 BROADWAY REDWOOD CITY,CA940623126	94-1156365	501C(3)	129,050	RESEARCH STUDY
(259) EMORY UNIVERSITY 1599 CLIFTON RD ATLANTA,GA30322	58-0566256	501C(3)	129,050	RESEARCH STUDY
(260) TRUSTEES OF DARTMOUTH COLLEGE 11 ROPE FERRY ROAD HANOVER,NH037551421	02-0222111	501C(3)	129,050	RESEARCH STUDY
(261) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO 7703 FLOYD CURL DRIVE SAN ANTONIO,TX782293900	74-1586031	501C(3)	129,994	RESEARCH
(262) RHODE ISLAND HOSPITAL 593 EDDY STREET PROVIDENCE,RI02903	05-0258954	501C(3)	129,998	RESEARCH
(263) LOYOLA UNIVERSITY CHICAGO 820 NORTH MICHIGAN AVENUE CHICAGO,IL606112147	36-1408475	501C(3)	130,000	CLINICAL CARE RESEARCH
(264) TRUSTEES OF BOSTON UNIVERSITY 881 COMMONWEALTH AVENUE BOSTON,MA02215	04-2103547	501C(3)	130,000	RESEARCH
(265) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	130,000	RESEARCH
(266) REGENTS OF THE UNIVERSITY OF MINNESOTA 450 MCNAMARA ALUMNI CTR 200 OAK ST SE MINNEAPOLIS,MN554552070	41-6007513	501C(3)	130,000	CLINICAL CARE RESEARCH
(267) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA981959472	91-6001537	IRC 115	130,000	RESEARCH
(268) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA191046284	23-1352685	501C(3)	130,000	CLINICAL CARE RESEARCH
(269) ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO 225 E CHICAGO AVE CHICAGO,IL606112991	36-2170833	501C(3)	130,000	RESEARCH
(270) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 485 BROADWAY REDWOOD CITY,CA940623126	94-1156365	501C(3)	130,000	CLINICAL CARE RESEARCH
(271) BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA HOUSTON,TX77030	74-1613878	501C(3)	130,000	RESEARCH
(272) BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA 987835 NEBRASKA MEDICAL CENTER OMAHA,NE681987835	47-0049123	501C(3)	130,803	CLINICAL RESEARCH CENTER
(273) REGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE 160 ALDRICH HALL OFFICE OF RESEARCH IRVINE,CA926977600	95-2226406	501C(3)	130,876	RESEARCH
(274) NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON,IL60208	36-2167817	501C(3)	131,280	CF CARE CENTER
(275) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA981959472	91-6001537	IRC 115	131,400	RESEARCH STUDY
(276) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ARKANSAS ACTING FOR AND BEHALF O 4301 WEST MARKHAM ST LITTLE ROCK,AR72205	71-6046242	U.S. STATE	131,509	CLINICAL RESEARCH CENTER
(277) MAYO CLINIC 200 FIRST STREET SW ROCHESTER,MN55905	41-6011702	501C(3)	132,170	CF CARE CENTER
(278) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON ONE PERKINS SQUARE AKRON,OH44308	34-0714357	501C(3)	132,616	CLINICAL RESEARCH CENTER
(279) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	134,000	TRAINING
(280) BOSTON CHILDREN'S HEALTH PHYSICIANS LLP 40 SUNSHINE COTTAGE ROAD VALHALLA,NY06488	13-3956599	LLP	134,477	CLINICAL RESEARCH CENTER
(281) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA 1001 NORTH EMMET ST PO BOX 400195 CHARLOTTESVILLE,VA229044195	54-6001796	501C(3)	134,870	CLINICAL RESEARCH CENTER
(282) UNIVERSITY OF FLORIDA SUITE 1250 EAST CAMPUS OFFICE BUILDING GAINESVILLE,FL326115500	59-6002052	IRC 115	135,229	CLINICAL RESEARCH CENTER
(283) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA 1001 NORTH EMMET ST PO BOX 400195 CHARLOTTESVILLE,VA229044195	54-6001796	501C(3)	137,202	QUALITY IMPROVEMENT
(284) UNIVERSITY HEALTH SYSTEM INC 1924 ALCOA HIGHWAY KNOXVILLE,TN37920	31-1626179	501C(3)	137,640	CF CARE CENTER
(285) HEALTH RESEARCH INC NEW YORK STATE DEPARTMENT OF HEALTH 150 BROADWAY MENANDS,NY122042893	14-1402155	170(B)(1)(A)(VI)	138,495	RESEARCH
(286) UTAH STATE UNIVERSITY 1415 OLD MAIN HILL LOGAN,UT843222400	87-6000528	501C(3)	139,997	RESEARCH
(287) COLORADO STATE UNIVERSITY 555 SOUTH HOWES FORT COLLINS,CO805232002	84-6000545	IRC 115	140,000	RESEARCH
(288) KANSAS STATE UNIVERSITY 1601 VATTIER STREET MANHATTAN,KS665061103	48-0771751	GOVERNMENT ENTITY	140,000	THERAPEUTICS DISCOVERY RESEARCH
(289) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND,OH44131	34-0714585	501C(3)	140,200	CF CARE CENTER
(290) ST LUKE'S REGIONAL MEDICAL CENTER LTD 190 E BANNOCK BOISE,ID83712	82-0161600	501C(3)	142,975	CLINICAL RESEARCH CENTER
(291) STATE OF MISSISSIPPI - UNIVERSITY OF MISSISSIPPI MEDICAL CENTER 2500 NORTH STATE STREET JACKSON,MS392164505	64-6008520	501C(3)	143,473	CF CARE CENTER
(292) THE UNIVERSITY OF CHICAGO 5801 SOUTH ELLIS AVENUE CHICAGO,IL606375418	36-2177139	501C(3)	143,642	CF CARE CENTER
(293) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF AR ACTING FOR AND BEHALF OF THE 4301 WEST MARKHAM ST LITTLE ROCK,AR72205	71-6046242	U.S. STATE	143,760	CF CARE CENTER
(294) CENTRAL FLORIDA PULMONARY GROUP PA 1115 EAST RIDGEWOOD STREET ORLANDO,FL32803	59-1760017	C CORP	144,150	CF CARE CENTER
(295) EAST TENNESSEE CHILDREN'S HOSPITAL ASSOCIATION INC PO BOX 15010 KNOXVILLE,TN379015010	62-6002604	501C(3)	144,265	CF CARE CENTER
(296) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 615 WEST 131ST STREET NEW YORK,NY100277922	13-5598093	501C(3)	145,600	CLINICAL CARE RESEARCH
(297) THE MEDICAL COLLEGE OF WISCONSIN INC 8701 WATERTOWN PLANK ROAD MILWAUKEE,WI532263548	39-0806261	501C(3)	145,713	CLINICAL RESEARCH CENTER
(298) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 109 KINKEAD HALL LEXINGTON,KY40506	61-6033693	501C(3)	146,630	CLINICAL RESEARCH CENTER
(299) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 65 BERGEN STREET NEWARK,NJ07103	46-2354111	IRC 115	147,692	CLINICAL RESEARCH CENTER
(300) ADVOCATE CHARITABLE FOUNDATION 3075 HIGHLAND PARKWAY SUITE 600 DOWNERS GROVE,IL60515	36-3297360	501C(3)	148,855	CF CARE CENTER
(301) CHILDREN'S HEALTH CARE 2525 CHICAGO AVENUE SOUTH MINNEAPOLIS,MN554041844	41-1754276	501C(3)	149,795	CF CARE CENTER
(302) RUSH UNIVERSITY MEDICAL CENTER 1653 W CONGRESS PARKWAY CHICAGO,IL60612	36-2174823	501C(3)	150,850	CF CARE CENTER
(303) UNIVERSITY OF MASSACHUSETTS WORCESTER 55 NORTH LAKE AVENUE WORCESTER,MA01655	04-3167352	IRC 115	152,603	CF CARE CENTER
(304) CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BOULEVARD LOS ANGELES,CA900270982	95-1690977	501C(3)	153,525	CF CARE CENTER
(305) THE UNIVERSITY OF ARIZONA 845 NORTH PARK AVENUE TUCSON,AZ85721	74-2652689	IRC 115	157,737	CLINICAL RESEARCH CENTER
(306) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC MSN 1039 KANSAS CITY,KS66160	48-1108830	501C(3)	157,790	CLINICAL RESEARCH CENTER
(307) VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVE SOUTH NASHVILLE,TN37232	35-2528741	501C(3)	159,808	CLINICAL RESEARCH CENTER
(308) COOK CHILDREN'S MEDICAL CENTER 801 SEVENTH AVENUE FORT WORTH,TX76104	75-2051646	501C(3)	159,869	CLINICAL RESEARCH CENTER
(309) REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS ONE SHIELDS AVENUE DAVIS,CA95618	94-6036494	501C(3)	160,520	CF CARE CENTER
(310) THE GENERAL HOSPITAL CORPORATION 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	161,067	CLINICAL RESEARCH CENTER
(311) ROSALIND FRANKLIN UNIVERSITY OF MEDICINE AND SCIENCE 3333 GREEN BAY RD NORTH CHICAGO,IL60064	36-2181973	501C(3)	161,331	RESEARCH
(312) CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BOULEVARD LOS ANGELES,CA900270982	95-1690977	501C(3)	161,658	TRAINING
(313) ARKANSAS CHILDREN'S HOSPITAL RESEARCH INSTITUTE INC 13 CHILDRENS WAY LITTLE ROCK,AR72202	71-0694931	501C(3)	162,090	CF CARE CENTER
(314) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 65 BERGEN STREET NEWARK,NJ07103	46-2354111	IRC 115	162,260	CF CARE CENTER
(315) UNIVERSITY OF MARYLAND - COLLEGE PARKBALTIMORE 620 WEST LEXINGTON STREET BALTIMORE,MD212011508	52-6002033	IRC 115	162,600	RESEARCH
(316) MARY BRIDGE CHILDREN'S FOUNDATION PO BOX 5299 TACOMA,WA98415	94-3030039	501C(3)	162,765	CF CARE CENTER
(317) SAINT FRANCIS MEDICAL CENTER 530 NE GLEN OAK AVE PEORIA,IL61637	37-0662569	501C(3)	163,275	CF CARE CENTER
(318) MONMOUTH MEDICAL CENTER FOUNDATION 300 SECOND AVENUE LONG BRANCH,NJ07740	22-2456079	501C(3)	163,335	CF CARE CENTER
(319) LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER PO BOX 33932 SHREVEPORT,LA71130	72-0702002	501C(3)	163,800	CF CARE CENTER
(320) THE RESEARCH FOUNDATION FOR STATE UNIVERSITY OF NEW YORK PO BOX 9 ALBANY,NY122010009	14-1368361	501C(3)	164,243	CLINICAL RESEARCH STUDY
(321) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH432101016	31-6025986	IRC 115	164,549	RESEARCH
(322) THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON,NH03756	02-0222139	501C(3)	164,740	CLINICAL RESEARCH CENTER
(323) DREXEL UNIVERSITY 3201 ARCH STREET SUITE 420 PHILADELPHIA,PA19104	23-1352630	501C(3)	165,410	CF CARE CENTER
(324) THE UNIVERSITY OF TENNESSEE 63 SOUTH DUNLAP STREET MEMPHIS,TN38163	62-6001636	IRC 115	165,950	CF CARE CENTER
(325) BENAROYA RESEARCH INSTITUTE AT VIRGINIA MASON 1201 9TH AVE SEATTLE,WA981012795	91-0653422	501C(3)	166,338	RESEARCH
(326) BILLINGS CLINIC FOUNDATION 2917 TENTH AVE NORTH BILLINGS,MT59101	81-0407289	501C(3)	166,360	CF CARE CENTER
(327) GEORGIA TECH RESEARCH CORPORATION 926 DALNEY STREET NW ATLANTA,GA30332	58-0603146	501C(3)	166,800	RESEARCH
(328) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	166,968	PILOT STUDY
(329) LONG ISLAND JEWISH MEDICAL CENTER 270-05 76TH AVENUE NEW HYDE PARK,NY11040	11-2241326	501C(3)	167,526	CLINICAL RESEARCH CENTER
(330) UNIVERSITY OF SOUTHERN CALIFORNIA 3720 S FLOWER STREET THIRD FLOOR LOS ANGELES,CA900890701	95-1642394	501C(3)	167,731	CLINICAL RESEARCH STUDY
(331) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10889 WILSHIRE BOULEVARD SUITE 700 PO BOX 951406 LOS ANGELES,CA900951406	95-6006143	501C(3)	168,000	RESEARCH
(332) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC MSN 1039 KANSAS CITY,KS66160	48-1108830	501C(3)	168,000	RESEARCH
(333) CURATORS OF THE UNIVERSITY OF MISSOURI 601 TURNER AVENUE COLUMBIA,MO652110001	43-6003859	501C(3)	168,000	RESEARCH
(334) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH432101016	31-6025986	IRC 115	168,000	PILOT STUDY
(335) REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA,CA920930934	95-6006144	501C(3)	168,000	RESEARCH
(336) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND,OH44131	34-0714585	501C(3)	168,000	RESEARCH
(337) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	168,000	THERAPEUTICS DISCOVERY RESEARCH
(338) SPECTRUM HEALTH FOUNDATION 100 MICHIGAN ST NE GRAND RAPIDS,MI49503	38-2752328	501C(3)	171,024	CLINICAL RESEARCH CENTER
(339) CHILDREN'S SPECIALTY GROUP PLLC 811 REDGATE AVENUE NORFOLK,VA23507	54-1871633	LLC	171,185	CF CARE CENTER
(340) ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO 225 E CHICAGO AVE CHICAGO,IL606112991	36-2170833	501C(3)	172,325	CF CARE CENTER
(341) UNIVERSITY OF SOUTHERN CALIFORNIA 3720 S FLOWER STREET THIRD FLOOR LOS ANGELES,CA900890701	95-1642394	501C(3)	172,350	CF CARE CENTER
(342) THE UNIVERSITY OF ARIZONA 845 NORTH PARK AVENUE TUCSON,AZ85721	74-2652689	IRC 115	172,560	CF CARE CENTER
(343) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA981959472	91-6001537	IRC 115	172,566	THERAPEUTICS DISCOVERY RESEARCH
(344) CHILDREN'S HOSPITAL OF ORANGE COUNTY 1201 WEST LA VETA AVENUE ORANGE,CA92868	95-2321786	501C(3)	173,344	CLINICAL RESEARCH STUDY
(345) NATIONAL DISEASE RESEARCH INTERCHANGE 1601 CHERRY ST PHILADELPHIA,PA191021325	23-2213205	509(A)(2)	173,763	THERAPEUTICS DISCOVERY RESEARCH
(346) ATLANTIC HEALTH SYSTEM INC 475 SOUTH STREET MORRISTON,NJ07960	52-1958352	501C(3)	174,110	CF CARE CENTER
(347) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA981959472	91-6001537	IRC 115	175,600	TRAINING
(348) SUTTER MEDICAL CENTER SACRAMENTO PO BOX 160727 SACRAMENTO,CA95833	94-1156621	501C(3)	175,710	CF CARE CENTER
(349) REGENTS OF THE UNIVERSITY OF MINNESOTA 450 MCNAMARA ALUMNI CTR 200 OAK ST SE MINNEAPOLIS,MN554552070	41-6007513	501C(3)	179,200	CLINICAL RESEARCH STUDY
(350) WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM,NC27157	22-3849199	501C(3)	180,115	CF CARE CENTER
(351) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC 1120 15TH STREET CJ3301 AUGUSTA,GA309124810	58-1418202	501C(3)	180,192	CF CARE CENTER
(352) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION 886 CHESTNUT RIDGE ROAD MORGANTOWN,WV26506	55-0665758	501C(3)	180,390	CF CARE CENTER
(353) SANFORD CLINIC PO BOX 5039 SIOUX FALLS,SD571175039	46-0447693	501C(3)	181,710	CF CARE CENTER
(354) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 485 BROADWAY REDWOOD CITY,CA940623126	94-1156365	501C(3)	183,656	CLINICAL RESEARCH CENTER
(355) RHODE ISLAND HOSPITAL 593 EDDY STREET PROVIDENCE,RI02903	05-0258954	501C(3)	183,904	CF CARE CENTER
(356) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	185,436	RESEARCH STUDY
(357) THE TOLEDO HOSPITAL 2142 N COVE BLVD TOLEDO,OH43606	34-4428256	501C(3)	185,610	CF CARE CENTER
(358) MAINE MEDICAL CENTER 22 BRAMHALL STREET PORTLAND,ME041023175	01-0238552	501C(3)	188,096	CLINICAL RESEARCH CENTER
(359) YALE UNIVERSITY 150 MUNSON STREET PO BOX 208327 NEW HAVEN,CT065208327	06-0646973	501C(3)	188,935	CF CARE CENTER
(360) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	188,977	CLINICAL RESEARCH CENTER
(361) JOHNS HOPKINS ALL CHILDREN'S HOSPITAL INC 501 SIXTH AVENUE SOUND ST PETERSBURG,FL33701	59-0683252	501C(3)	189,390	CF CARE CENTER
(362) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	189,412	CF CARE CENTER
(363) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	189,500	CF CARE CENTER
(364) ALBANY MEDICAL COLLEGE 47 NEW SCOTLAND AVENUE ALBANY,NY122083479	14-1338310	501C(3)	189,700	CF CARE CENTER
(365) THE TAMPA GENERAL HOSPITAL FOUNDATION PO BOX 1289 TAMPA,FL33601	23-7354477	501C(3)	191,970	CF CARE CENTER
(366) CHILDREN'S LUNG SPECIALISTS CRAIG NAKAMURA MD LTD 3196 S MARYLAND PARKWAY LAS VEGAS,NV89109	88-0271963	501C(3)	192,110	CF CARE CENTER
(367) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	192,400	RESEARCH STUDY
(368) UNIVERSITY OF MIAMI PO BOX 248106 CONTROLLERS OFFICE CORAL GABLES,FL331242912	59-0624458	501C(3)	192,965	CF CARE CENTER
(369) THE UNIVERSITY OF VERMONT MEDICAL CENTER INC 111 COLCHESTER AVENUE BURLINGTON,VT05401	03-0219309	501C(3)	193,365	CF CARE CENTER
(370) THE CHILDREN'S MERCY HOSPITAL 2401 GILLHAM ROAD KANSAS CITY,MO64108	44-0605373	501C(3)	194,790	CF CARE CENTER
(371) THE REGENTS OF THE UNIVERSITY OF COLORADO 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	195,998	TRAINING
(372) CHILDREN'S RESEARCH INSTITUTE 111 MICHIGAN AVENUE NW WASHINGTON,DC20010	52-1654453	501C(3)	196,965	CF CARE CENTER
(373) ST LOUIS UNIVERSITY 221 NORTH GRAND BLVD ST LOUIS,MO63103	43-0654872	501C(3)	197,365	CF CARE CENTER
(374) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	197,640	CF CARE CENTER
(375) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 6823 ST CHARLES AVENUE NEW ORLEANS,LA70118	72-0423889	501C(3)	199,476	CF CARE CENTER
(376) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	199,924	CLINICAL RESEARCH STUDY
(377) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH432101016	31-6025986	IRC 115	200,000	RESEARCH CENTER
(378) UNIVERSITY AT BUFFALO PEDIATRIC ASSOCIATES 1001 MAIN ST BUFFALO,NY14203	16-1238821	501C(3)	200,055	CF CARE CENTER
(379) CHILDREN'S HOSPITAL CORPORATION BOSTON CHILDRENS HOSPITAL BOSTON,MA02115	04-2774441	501C(3)	200,321	CLINICAL RESEARCH STUDY
(380) ST LUKE'S REGIONAL MEDICAL CENTER LTD 190 E BANNOCK BOISE,ID83712	82-0161600	501C(3)	200,700	CF CARE CENTER
(381) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET MADISON,WI537151218	39-6006492	501C(3)	200,756	CLINICAL RESEARCH CENTER
(382) WASHINGTON UNIVERSITY 1 BROOKINGS DRIVE ST LOUIS,MO63130	43-0653611	501C(3)	201,152	CLINICAL CARE RESEARCH
(383) MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON,SC294258908	57-6000722	501C(3)	201,272	CLINICAL RESEARCH CENTER
(384) CENTRAL FLORIDA PULMONARY GROUP PA 1115 EAST RIDGEWOOD STREET ORLANDO,FL32803	59-1760017	C CORP	201,702	CLINICAL RESEARCH CENTER
(385) REGENTS OF THE UNIVERSITY OF MINNESOTA 450 MCNAMARA ALUMNI CTR 200 OAK ST SE MINNEAPOLIS,MN554552070	41-6007513	501C(3)	202,255	ADULT CARE
(386) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA981959472	91-6001537	IRC 115	203,537	CF CARE CENTER
(387) GEORGIA TECH RESEARCH CORPORATION 926 DALNEY STREET NW ATLANTA,GA30332	58-0603146	501C(3)	204,150	RESEARCH STUDY
(388) REGENTS OF THE UNIVERSITY OF MINNESOTA 450 MCNAMARA ALUMNI CENTER MINNEAPOLIS,MN554552070	41-6007513	501C(3)	204,724	CLINICAL RESEARCH CENTER
(389) MEMORIAL MEDICAL CENTER FOUNDATION 2801 ATLANTIC AVENUE LONG BEACH,CA90806	95-6105984	501C(3)	204,765	CF CARE CENTER
(390) DAYTON CHILDRENS HOSPITAL ONE CHILDRENS PLAZA DAYTON,OH454041815	31-0672132	501C(3)	204,853	CF CARE CENTER
(391) UNIVERSITY OF PITTSBURGH 300 MURDOCH BUILDING PITTSBURGH,PA152603203	25-0965591	501C(3)	205,040	RESEARCH STUDY
(392) SOUTH BROWARD HOSPITAL DISTRICT 3501 JOHNSON STREET HOLLYWOOD,FL33021	59-6014973	501C(3)	205,760	CF CARE CENTER
(393) UNIVERSITY OF NEW MEXICO 1 UNIVERSITY OF NEW MEXICO ALBUQUERQUE,NM87131	85-6000642	IRC 115	207,557	CF CARE CENTER
(394) UNIVERSITY OF CINCINNATI 51 GOODMAN DR CINCINNATI,OH452210222	31-6000989	501C(3)	207,923	CF CARE CENTER
(395) MAINE MEDICAL CENTER 22 BRAMHALL STREET PORTLAND,ME041023175	01-0238552	501C(3)	212,035	CF CARE CENTER
(396) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	212,193	CLINICAL RESEARCH CENTER
(397) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	214,507	CLINICAL RESEARCH CENTER
(398) VIA CHRISTI HOSPITALS WICHITA INC 929 N SAINT FRANCIS WICHITA,KS67214	48-1172106	501C(3)	214,939	CF CARE CENTER
(399) CURATORS OF THE UNIVERSITY OF MISSOURI 601 TURNER AVENUE COLUMBIA,MO652110001	43-6003859	501C(3)	215,885	CF CARE CENTER
(400) UNIVERSITY OF MASSACHUSETTS WORCESTER 55 NORTH LAKE AVENUE WORCESTER,MA01655	04-3167352	IRC 115	216,000	THERAPEUTICS DISCOVERY RESEARCH
(401) STATE UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	216,930	CLINICAL RESEARCH CENTER
(402) EMORY UNIVERSITY 1599 CLIFTON RD ATLANTA,GA30322	58-0566256	501C(3)	218,451	TRAINING
(403) DUKE UNIVERSITY 324 BLACKWELL ST DURHAM,NC27701	56-0532129	501C(3)	219,025	CF CARE CENTER
(404) BOSTON CHILDREN'S HEALTH PHYSICIANS LLP 40 SUNSHINE COTTAGE ROAD VALHALLA,NY06488	13-3956599	LLP	222,750	CF CARE CENTER
(405) REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	222,873	THERAPEUTICS DISCOVERY RESEARCH
(406) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	223,135	CLINICAL RESEARCH STUDY
(407) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	223,590	CF CARE CENTER
(408) CEDARS SINAI MEDICAL CENTER 8700 BEVERLY BLVD LOS ANGELES,CA90048	95-1644600	501C(3)	224,000	THERAPEUTICS DISCOVERY RESEARCH
(409) BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA HOUSTON,TX77030	74-1613878	501C(3)	225,960	CLINICAL RESEARCH CENTER
(410) REGENTS OF UNIVERSITY OF CALIFORNIA SANTA BARBARA 3227 CHEADLE HALL 3RD FLOOR SANTA BARBARA,CA93106	95-6006145	501C(3)	226,177	RESEARCH
(411) EMORY UNIVERSITY 1599 CLIFTON RD ATLANTA,GA30322	58-0566256	501C(3)	228,945	CLINICAL RESEARCH CENTER
(412) THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON,NH03756	02-0222139	501C(3)	229,315	CF CARE CENTER
(413) BOARD OF TRUSTEES OF MICHIGAN STATE UNIVERSITY 426 AUDITORIUM ROAD EAST LANSING,MI48824	38-6005984	501C(3)	234,210	THERAPEUTICS DISCOVERY RESEARCH
(414) STATE UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	235,741	CF CARE CENTER
(415) THE PENNSYLVANIA STATE UNIVERSITY 500 UNIVERSITY DRIVE HERSHEY,PA17033	24-6000376	IRC 115	238,100	CF CARE CENTER
(416) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	239,041	CF CARE CENTER
(417) DARTMOUTH-HITCHCOCK CLINIC ONE MEDICAL CENTER DRIVE LEBANON,NH03756	22-2519596	501C(3)	239,362	RESEARCH
(418) WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY 1300 YORK AVENUE NEW YORK,NY10065	13-1623978	501C(3)	239,760	TRAINING
(419) THE GENERAL HOSPITAL CORPORATION 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	241,000	CF CARE CENTER
(420) THE NEMOURS FOUNDATION 1701 ROCKLAND ROAD WILMINGTON,DE198033607	59-0634433	501C(3)	241,062	CLINICAL RESEARCH CENTER
(421) LONG ISLAND JEWISH MEDICAL CENTER 270-05 76TH AVENUE NEW HYDE PARK,NY11040	11-2241326	501C(3)	241,950	CF CARE CENTER
(422) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10889 WILSHIRE BOULEVARD SUITE 700 PO BOX 951406 LOS ANGELES,CA900951406	95-6006143	501C(3)	246,693	CF CARE CENTER
(423) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON 7000 FANNIN STREET HOUSTON,TX77030	74-1761309	501C(3)	246,715	CLINICAL RESEARCH STUDY
(424) THOMAS JEFFERSON UNIVERSITY 1020 WALNUT STREET PHILADELPHIA,PA19107	23-1352651	501C(3)	248,257	CF CARE CENTER
(425) REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	249,292	CLINICAL RESEARCH CENTER
(426) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BVD DALLAS,TX753909020	75-6002868	170(B)(1)(A)(V)	250,000	THERAPEUTICS DISCOVERY RESEARCH
(427) UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE SALT LAKE CITY,UT841120922	87-6000525	501C(3)	250,487	CLINICAL RESEARCH CENTER
(428) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BVD DALLAS,TX753909020	75-6002868	170(B)(1)(A)(V)	253,928	CLINICAL RESEARCH STUDY
(429) THE CHILDREN'S MERCY HOSPITAL 2401 GILLHAM ROAD KANSAS CITY,MO64108	44-0605373	501C(3)	254,699	CLINICAL RESEARCH CENTER
(430) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 615 WEST 131ST STREET NEW YORK,NY100277922	13-5598093	501C(3)	254,772	CLINICAL RESEARCH CENTER
(431) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON ONE PERKINS SQUARE AKRON,OH44308	34-0714357	501C(3)	255,720	CF CARE CENTER
(432) DARTMOUTH-HITCHCOCK CLINIC ONE MEDICAL CENTER DRIVE LEBANON,NH03756	22-2519596	501C(3)	255,727	CLINICAL RESEARCH STUDY
(433) STATE UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	256,792	TRAINING
(434) THE REGENTS OF THE UNIVERSITY OF COLORADO 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	257,130	CF CARE CENTER
(435) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA 1001 NORTH EMMET STREET CHARLOTTESVILLE,VA229044195	54-6001796	501C(3)	258,492	CF CARE CENTER
(436) PROVIDENCE HEALTH & SERVICES - WASHINGTON 101 W EIGHTH STREET SPOKANE,WA99204	51-0216586	170(B)(1)(A)(III)	259,319	CLINICAL RESEARCH CENTER
(437) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	261,000	TRAINING
(438) GEISINGER CLINIC 100 N ACADEMY AVE DANVILLE,PA178229800	23-6291113	501C(3)	263,293	CF CARE CENTER
(439) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND,OR97239	93-1176109	501C(3)	264,125	CLINICAL RESEARCH CENTER
(440) INOVA HEALTH CARE SERVICES 8110 GATEHOUSE ROAD FALLS CHURCH,VA22042	54-0620889	501C(3)	266,179	CF CARE CENTER
(441) JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	266,834	CLINICAL RESEARCH CENTER
(442) UNIVERSITY OF FLORIDA STE 1250 EAST CAMPUS OFFICE BLDG PO BOX 113201 GAINESVILLE,FL326115500	59-6002052	IRC 115	275,783	CF CARE CENTER
(443) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	276,319	QUALITY IMPROVEMENT
(444) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 485 BROADWAY REDWOOD CITY,CA940623126	94-1156365	501C(3)	276,499	TRAINING
(445) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO 7703 FLOYD CURL DRIVE SAN ANTONIO,TX782293900	74-1586031	501C(3)	276,806	CF CARE CENTER
(446) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10889 WILSHIRE BOULEVARD SUITE 700 PO BOX 951406 LOS ANGELES,CA900951406	95-6006143	501C(3)	278,100	THERAPEUTICS DISCOVERY RESEARCH
(447) UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER,NY14627	16-0743209	501C(3)	280,000	THERAPEUTICS DISCOVERY RESEARCH
(448) ASCENSION SETON 1345 PHILOMENA STREET AUSTIN,TX78723	74-1109643	501C(3)	281,927	CF CARE CENTER
(449) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA191046284	23-1352685	501C(3)	282,000	CF CARE CENTER
(450) COOK CHILDREN'S MEDICAL CENTER 801 SEVENTH AVENUE FORT WORTH,TX76104	75-2051646	501C(3)	282,113	CF CARE CENTER
(451) SEATTLE INSTITUTE FOR BIOMEDICAL AND CLINICAL RESEARCH 1660 S COLUMBIAN WAY SEATTLE,WA98108	91-1452438	501C(3)	288,422	RESEARCH
(452) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC MSN 1039 KANSAS CITY,KS66160	48-1108830	501C(3)	288,729	CF CARE CENTER
(453) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	290,996	TRAINING
(454) REGENTS OF THE UNIVERSITY OF MINNESOTA 450 MCNAMARA ALUMNI CTR 200 OAK ST SE MINNEAPOLIS,MN554552070	41-6007513	501C(3)	291,800	RESEARCH
(455) EMORY UNIVERSITY 1599 CLIFTON RD ATLANTA,GA30322	58-0566256	501C(3)	292,413	RESEARCH
(456) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA981959472	91-6001537	IRC 115	293,359	CLINICAL CARE RESEARCH
(457) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	295,355	CF CARE CENTER
(458) UNIVERSITY OF PITTSBURGH 300 MURDOCH BUILDING PITTSBURGH,PA152603203	25-0965591	501C(3)	297,594	CLINICAL RESEARCH CENTER
(459) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 485 BROADWAY REDWOOD CITY,CA940623126	94-1156365	501C(3)	297,923	RESEARCH
(460) JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	298,994	QUALITY IMPROVEMENT
(461) THE GENERAL HOSPITAL CORPORATION 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	302,883	CLINICAL CARE RESEARCH
(462) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC 300 E MARKET STREET LOUISVILLE,KY402021959	61-1029626	501C(3)	305,429	CF CARE CENTER
(463) THE RESEARCH FOUNDATION FOR STATE UNIVERSITY OF NEW YORK PO BOX 9 ALBANY,NY122010009	14-1368361	501C(3)	305,588	CLINICAL RESEARCH CENTER
(464) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA,PA191046284	23-1352685	501C(3)	308,000	RESEARCH
(465) STATE UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	308,250	CLINICAL RESEARCH STUDY
(466) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 109 KINKEAD HALL LEXINGTON,KY40506	61-6033693	501C(3)	308,655	CF CARE CENTER
(467) UNIVERSITY HOSPITALS CLEVELAND MEDICAL CENTER 11100 EUCLID AVENUE CLEVELAND,OH44106	34-1567805	501C(3)	311,545	CF CARE CENTER
(468) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	313,600	CLINICAL CARE RESEARCH
(469) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	313,635	QUALITY IMPROVEMENT
(470) NATIONAL JEWISH HEALTH 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	317,998	RESEARCH
(471) VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843035 RICHMOND,VA232843035	54-6001758	IRC 115	320,926	CF CARE CENTER
(472) WASHINGTON UNIVERSITY 1 BROOKINGS DRIVE ST LOUIS,MO63130	43-0653611	501C(3)	323,006	CLINICAL RESEARCH CENTER
(473) BETH ISRAEL DEACONESS MEDICAL CENTER INC 330 BROOKLINE AVENUE BOSTON,MA022155491	04-2103881	501C(3)	326,464	ADULT CARE
(474) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	327,995	TRAINING
(475) CHILDREN'S HOSPITAL CORPORATION 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	329,000	TRAINING
(476) PROVIDENCE HEALTH & SERVICES - WASHINGTON 101 W EIGHTH STREET SPOKANE,WA99204	51-0216586	170(B)(1)(A)(III)	329,060	CF CARE CENTER
(477) UNIVERSITY OF PITTSBURGH 300 MURDOCH BUILDING PITTSBURGH,PA152603203	25-0965591	501C(3)	329,522	CLINICAL RESEARCH STUDY
(478) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND,OR97239	93-1176109	501C(3)	334,594	RESEARCH
(479) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	335,023	CLINICAL RESEARCH CENTER
(480) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 615 WEST 131ST STREET NEW YORK,NY100277922	13-5598093	501C(3)	336,000	RESEARCH
(481) CEDARS SINAI MEDICAL CENTER 8700 BEVERLY BLVD LOS ANGELES,CA90048	95-1644600	501C(3)	336,000	RESEARCH
(482) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN474013654	35-6001673	501C(3)	338,235	CLINICAL RESEARCH CENTER
(483) THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA,PA19104	23-1352166	501C(3)	341,125	QUALITY IMPROVEMENT
(484) THE MEDICAL COLLEGE OF WISCONSIN INC 8701 WATERTOWN PLANK ROAD MILWAUKEE,WI532263548	39-0806261	501C(3)	345,020	CF CARE CENTER
(485) REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA,CA920930934	95-6006144	501C(3)	350,870	CF CARE CENTER
(486) ATRIUM HEALTH FOUNDATION 208 EAST BOULEVARD CHARLOTTE,NC28203	56-6060481	501C(3)	357,835	CF CARE CENTER
(487) THE GENERAL HOSPITAL CORPORATION 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	359,388	RESEARCH
(488) UNIVERSITY OF PITTSBURGH 300 MURDOCH BUILDING PITTSBURGH,PA152603203	25-0965591	501C(3)	360,500	TRAINING
(489) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET MADISON,WI537151218	39-6006492	501C(3)	361,593	CF CARE CENTER
(490) CHILDREN'S HOSPITAL CORPORATION 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	363,012	CLINICAL RESEARCH CENTER
(491) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	377,345	CLINICAL RESEARCH CENTER
(492) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND,OR97239	93-1176109	501C(3)	377,364	CLINICAL RESEARCH STUDY
(493) PHOENIX CHILDREN'S HOSPITAL FOUNDATION 2929 CAMELBACK ROAD PHOENIX,AZ85016	74-2421549	501C(3)	379,150	CF CARE CENTER
(494) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET MADISON,WI537151218	39-6006492	501C(3)	379,439	CLINICAL RESEARCH STUDY
(495) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 615 WEST 131ST STREET NEW YORK,NY100277922	13-5598093	501C(3)	381,972	CF CARE CENTER
(496) SPECTRUM HEALTH FOUNDATION 100 MICHIGAN ST NE GRAND RAPIDS,MI49503	38-2752328	501C(3)	382,170	CF CARE CENTER
(497) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 485 BROADWAY REDWOOD CITY,CA940623126	94-1156365	501C(3)	383,530	CF CARE CENTER
(498) NATIONAL JEWISH HEALTH 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	384,717	CF CARE CENTER
(499) NATIONAL JEWISH HEALTH 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	392,074	CLINICAL RESEARCH
(500) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	393,570	CF CARE CENTER
(501) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	395,000	CLINICAL RESEARCH STUDY
(502) VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVE SOUTH NASHVILLE,TN37232	35-2528741	501C(3)	395,855	CF CARE CENTER
(503) JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	399,183	CLINICAL RESEARCH STUDY
(504) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND,OR97239	93-1176109	501C(3)	403,447	CF CARE CENTER
(505) WASHINGTON UNIVERSITY 1 BROOKINGS DRIVE ST LOUIS,MO63130	43-0653611	501C(3)	407,467	CF CARE CENTER
(506) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	407,568	QUALITY IMPROVEMENT
(507) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA981959472	91-6001537	IRC 115	415,608	CLINICAL RESEARCH CENTER
(508) BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER PO BOX 26901 OKLAHOMA CITY,OK731260901	73-1563627	501C(3)	416,132	CF CARE CENTER
(509) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	416,401	CF CARE CENTER
(510) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS,TX753909020	75-6002868	170(B)(1)(A)(V)	420,438	CLINICAL RESEARCH CENTER
(511) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10889 WILSHIRE BOULEVARD SUITE 700 PO BOX 951406 LOS ANGELES,CA900951406	95-6006143	501C(3)	425,599	CLINICAL CARE RESEARCH
(512) JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	427,917	RESEARCH
(513) DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CENTER 350 W THOMAS ROAD PHOENIX,AZ85013	94-1196203	501C(3)	431,020	CLINICAL CARE RESEARCH
(514) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	434,816	QUALITY IMPROVEMENT
(515) REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	442,861	CLINICAL RESEARCH STUDY
(516) THE NEMOURS FOUNDATION 1701 ROCKLAND ROAD WILMINGTON,DE198033607	59-0634433	501C(3)	446,120	CF CARE CENTER
(517) TRUSTEES OF BOSTON UNIVERSITY 881 COMMONWEALTH AVENUE BOSTON,MA02215	04-2103547	501C(3)	448,000	THERAPEUTICS DISCOVERY RESEARCH
(518) THE GENERAL HOSPITAL CORPORATION 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	450,599	CLINICAL RESEARCH
(519) JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	455,505	CF CARE CENTER
(520) BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA HOUSTON,TX77030	74-1613878	501C(3)	462,950	CF CARE CENTER
(521) STATE UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	475,473	RESEARCH
(522) BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA 987835 NEBRASKA MEDICAL CENTER OMAHA,NE681987835	47-0049123	501C(3)	476,050	CF CARE CENTER
(523) JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	476,371	THERAPEUTICS DISCOVERY RESEARCH
(524) CHILDREN'S HOSPITAL OF PITTSBURGH FOUNDATION 4401 PENN AVENUE PITTSBURGH,PA15224	25-1865744	501C(3)	476,820	CF CARE CENTER
(525) THE UNIVERSITY OF ARIZONA 845 NORTH PARK AVENUE TUCSON,AZ85721	74-2652689	IRC 115	483,659	CLINICAL RESEARCH STUDY
(526) CHILDREN'S HOSPITAL CORPORATION 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	494,940	CF CARE CENTER
(527) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS,OH432052664	31-6056230	501C(3)	500,000	RESEARCH CENTER
(528) THE REGENTS OF THE UNIVERSITY OF COLORADO 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	504,641	RESEARCH
(529) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	507,092	CLINICAL RESEARCH
(530) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10889 WILSHIRE BOULEVARD SUITE 700 PO BOX 951406 LOS ANGELES,CA900951406	95-6006143	501C(3)	508,778	CLINICAL RESEARCH STUDY
(531) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN474013654	35-6001673	501C(3)	509,328	CLINICAL RESEARCH STUDY
(532) THE RESEARCH FOUNDATION FOR STATE UNIVERSITY OF NEW YORK PO BOX 9 ALBANY,NY122010009	14-1368361	501C(3)	509,525	CF CARE CENTER
(533) THE GENERAL HOSPITAL CORPORATION 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	511,734	QUALITY IMPROVEMENT
(534) REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	515,724	CF CARE CENTER
(535) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS,TX753909020	75-6002868	170(B)(1)(A)(V)	518,085	CF CARE CENTER
(536) REGENTS OF THE UNIVERSITY OF MINNESOTA 450 MCNAMARA ALUMNI CTR 200 OAK ST SE MINNEAPOLIS,MN554552070	41-6007513	501C(3)	529,344	CF CARE CENTER
(537) YALE UNIVERSITY 150 MUNSON STREET PO BOX 208327 NEW HAVEN,CT065208327	06-0646973	501C(3)	534,290	CLINICAL RESEARCH STUDY
(538) OREGON STATE UNIVERSITY PO BOX 1086 CORVALLIS,OR973391086	61-1730890	IRC 115	537,911	THERAPEUTICS DISCOVERY RESEARCH
(539) UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE SALT LAKE CITY,UT841120922	87-6000525	501C(3)	539,770	CF CARE CENTER
(540) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	542,523	RESEARCH CENTER
(541) MASSACHUSETTS INSTITUTE OF TECHNOLOGY 77 MASSACHUSETTS AVENUE CAMBRIDGE,MA021394307	04-2103594	501C(3)	544,279	THERAPEUTICS DISCOVERY RESEARCH
(542) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA981959472	91-6001537	IRC 115	550,000	RESEARCH CENTER
(543) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	550,000	RESEARCH CENTER
(544) KAISER FOUNDATION RESEARCH INSTITUTE A DIVISION OF KAISER FOUNDATION HOSPI 1800 HARRISON STREET OAKLAND,CA94612	94-1105628	501C(3)	554,339	CF CARE CENTER
(545) THE UNIVERSITY OF TEXAS AT AUSTIN 3925 WEST BRAKER LANE AUSTIN,TX787595316	74-6000203	501C(3)	557,317	THERAPEUTICS DISCOVERY RESEARCH
(546) EMORY UNIVERSITY 1599 CLIFTON RD ATLANTA,GA30322	58-0566256	501C(3)	559,060	CF CARE CENTER
(547) THE REGENTS OF THE UNIVERSITY OF COLORADO 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	579,664	CLINICAL CARE RESEARCH
(548) REGENTS OF THE UNIVERSITY OF CALIFORNIA BERKELEY 1608 FOURTH STREET SUITE 201 BERKELEY,CA947201749	94-6002123	501C(3)	585,312	THERAPEUTICS DISCOVERY RESEARCH
(549) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN474013654	35-6001673	501C(3)	597,413	CF CARE CENTER
(550) STATE UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	600,000	RESEARCH CENTER
(551) THE REGENTS OF THE UNIVERSITY OF COLORADO 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	603,915	CLINICAL RESEARCH
(552) TRUSTEES OF DARTMOUTH COLLEGE 11 ROPE FERRY ROAD HANOVER,NH037551421	02-0222111	501C(3)	672,000	RESEARCH
(553) UNIVERSITY OF PITTSBURGH 300 MURDOCH BUILDING PITTSBURGH,PA152603203	25-0965591	501C(3)	676,664	RESEARCH CENTER
(554) NATIONAL JEWISH HEALTH 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	700,038	CLINICAL RESEARCH CENTER
(555) TRUSTEES OF INDIANA UNIVERSITY 509 EAST 3RD STREET BLOOMINGTON,IN474013654	35-6001673	501C(3)	700,861	CLINICAL CARE RESEARCH
(556) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	703,473	CLINICAL RESEARCH CENTER
(557) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	710,356	CLINICAL RESEARCH
(558) TRUSTEES OF DARTMOUTH COLLEGE 11 ROPE FERRY ROAD HANOVER,NH037551421	02-0222111	501C(3)	720,000	RESEARCH CENTER
(559) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	720,229	CF CARE CENTER
(560) THE REGENTS OF THE UNIVERSITY OF COLORADO 1800 GRANT STREET DENVER,CO80203	84-6000555	501C(3)	729,908	CLINICAL RESEARCH CENTER
(561) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	739,417	CLINICAL RESEARCH STUDY
(562) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	750,000	RESEARCH CENTER
(563) UNIVERSITY OF PITTSBURGH 300 MURDOCH BUILDING PITTSBURGH,PA152603203	25-0965591	501C(3)	753,754	RESEARCH
(564) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON 7000 FANNIN STREET HOUSTON,TX77030	74-1761309	501C(3)	786,172	THERAPEUTICS DISCOVERY RESEARCH
(565) THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS,OH432101016	31-6025986	IRC 115	801,901	THERAPEUTICS DISCOVERY RESEARCH
(566) UNIVERSITY OF PITTSBURGH 300 MURDOCH BUILDING PITTSBURGH,PA152603203	25-0965591	501C(3)	806,184	CLINICAL CARE RESEARCH
(567) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	814,975	THERAPEUTICS DISCOVERY RESEARCH
(568) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO,CA94143	94-6036493	501C(3)	833,986	RESEARCH
(569) PRESIDENT AND FELLOWS OF HARVARD COLLEGE 1033 MASSACHUSETTS AVENUE CAMBRIDGE,MA02138	04-2103580	501C(3)	839,989	CLINICAL RESEARCH STUDY
(570) GEORGIA TECH RESEARCH CORPORATION 926 DALNEY STREET NW ATLANTA,GA30332	58-0603146	501C(3)	868,000	CLINICAL RESEARCH STUDY
(571) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	891,775	THERAPEUTICS DISCOVERY RESEARCH
(572) DUKE UNIVERSITY 324 BLACKWELL ST DURHAM,NC27701	56-0532129	501C(3)	920,072	CLINICAL CARE RESEARCH
(573) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	945,824	CLINICAL RESEARCH STUDY
(574) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	959,498	CLINICAL RESEARCH CENTER
(575) CHILDREN'S HOSPITAL CORPORATION 300 LONGWOOD AVE BOSTON,MA02115	04-2774441	501C(3)	990,102	ADHERENCE
(576) EMORY UNIVERSITY 1599 CLIFTON RD ATLANTA,GA30322	58-0566256	501C(3)	992,455	CLINICAL RESEARCH STUDY
(577) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA981959472	91-6001537	IRC 115	1,028,267	CLINICAL RESEARCH STUDY
(578) THE GENERAL HOSPITAL CORPORATION 55 FRUIT STREET BOSTON,MA02114	04-2697983	501C(3)	1,036,169	CLINICAL RESEARCH STUDY
(579) UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM,AL352940111	63-6005396	501C(3)	1,050,917	RESEARCH
(580) EMORY UNIVERSITY 1599 CLIFTON RD ATLANTA,GA30322	58-0566256	501C(3)	1,116,817	QUALITY IMPROVEMENT
(581) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON 7000 FANNIN STREET HOUSTON,TX77030	74-1761309	501C(3)	1,208,505	RESEARCH
(582) THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND,OH44131	34-0714585	501C(3)	1,213,858	CLINICAL CARE RESEARCH
(583) REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR,MI481091274	38-6006309	501C(3)	1,240,650	CLINICAL CARE RESEARCH
(584) ST LOUIS UNIVERSITY 221 NORTH GRAND BLVD ST LOUIS,MO63103	43-0654872	501C(3)	1,259,760	CLINICAL RESEARCH STUDY
(585) JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	1,266,451	ADHERENCE
(586) UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE,WA981959472	91-6001537	IRC 115	1,304,011	CLINICAL RESEARCH
(587) NATIONAL JEWISH HEALTH 1400 JACKSON STREET DENVER,CO80206	74-2044647	501C(3)	1,392,651	CLINICAL RESEARCH STUDY
(588) JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE,MD21211	52-0595110	501C(3)	1,456,376	CLINICAL CARE RESEARCH
(589) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	1,571,922	RESEARCH CENTER
(590) CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND,OH44106	34-1018992	501C(3)	2,023,661	RESEARCH
(591) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL,NC275991350	56-6001393	501C(3)	2,333,367	RESEARCH
(592) CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI,OH452293039	31-0833936	501C(3)	2,621,214	CLINICAL CARE RESEARCH
(593) UNIVERSITY SYSTEM OF NEW HAMPSHIRE 51 COLLEGE ROAD DURHAM,NH03824	02-6000937	501C(3)	2,777,411	QUALITY IMPROVEMENT
(594) JAEB CENTER FOR HEALTH RESEARCH FOUNDATION INC 15310 AMBERLY DRIVE SUITE 350 TAMPA,FL33647	59-3187624	501C(3)	3,232,069	CLINICAL RESEARCH STUDY
(595) STATE UNIVERSITY OF IOWA 105 JESSUP HALL IOWA CITY,IA52242	42-6004813	501C(3)	3,706,113	THERAPEUTICS DISCOVERY RESEARCH
(596) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	5,555,719	CLINICAL RESEARCH
(597) HEALTHWELL FOUNDATION PO BOX 4133 GAITHERSBURG,MD208854122	20-0413676	501C(3)	5,600,000	PATIENT ASSISTANCE
(598) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	6,399,823	CLINICAL RESEARCH STUDY
(599) SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE,WA98105	91-0564748	501C(3)	7,610,499	CLINICAL RESEARCH CENTER

Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................. Bullet Image

230

Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50055P

Schedule I (Form 990) 2022

Page 2

Part III

Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" on Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance	(b) Number of recipients	(c) Amount of cash grant	(d) Amount of noncash assistance	(e) Method of valuation (book, FMV, appraisal, other)	(f) Description of noncash assistance

(1) FELLOWSHIPS	56	480,434
(2) COMMUNITY IMPACT	3	29,997
(2)
(3)
(4)
(5)
(6)
(7)

Part IV

Supplemental Information. Provide the information required in Part I, line 2; Part III, column (b); and any other additional information.

Return Reference

Explanation

PART I, LINE 2:

THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES AND THE FINAL SCIENTIFIC REPORT. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. FOR GRANTS TO FOR-PROFIT ORGANIZATIONS THE CF FOUNDATION HAS PROCEDURES IN PLACE TO 1) SEE THAT THE GRANT FUNDS AWARDED ARE SPENT FOR THE PURPOSE FOR WHICH THE GRANT IS MADE AND 2) OBTAIN FULL AND COMPLETE REPORTS FROM THE GRANTEE ORGANIZATION ON HOW THE FUNDS ARE SPENT CONSISTENT WITH IRS GUIDELINES FOR EXPENDITURE RESPONSIBILITY. THE ORGANIZATION PERFORMS PRE-GRANT INQUIRIES DEALING WITH MATTERS SUCH AS THE IDENTITY, HISTORY, ACTIVITIES, AND PRACTICES OF THE GRANTEE TO GAIN REASONABLE ASSURANCE THAT THEY WILL USE THE GRANT FUNDS FOR THE PURPOSE FOR WHICH RECEIVED. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE THAT INCLUDES THE FOLLOWING AGREEMENTS: ANY AMOUNTS NOT USED FOR PURPOSES OF THE GRANT WILL BE REPAID, THE GRANTEE WILL KEEP RECORDS OF RECEIPTS AND EXPENDITURES AND MAKE THEM AVAILABLE TO THE GRANTOR AT REASONABLE TIMES, AND FUNDS CANNOT BE USED TO INFLUENCE LEGISLATION OR UNDERTAKE ANY NONEXEMPT ACTIVITY.

SCHEDULE I, PART III:

SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS.

Schedule I (Form 990) 2022

Additional Data

Software ID:
Software Version:

- TIN:

Schedule J
(Form 990)

Department of the Treasury
Internal Revenue Service

Compensation Information

For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
SchJMediumBullet

Complete if the organization answered "Yes" on Form 990, Part IV, line 23.
SchJMediumBullet

Attach to Form 990.
SchJMediumBullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2022

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Questions Regarding Compensation

Yes

Check the appropiate box(es) if the organization provided any of the following to or for a person listed on Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.

First-class or charter travel Housing allowance or residence for personal use

Travel for companions Payments for business use of personal residence

Tax idemnification and gross-up payments Health or social club dues or initiation fees

Discretionary spending account Personal services (e.g., maid, chauffeur, chef)

If any of the boxes on Line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain .....

Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked on Line 1a? ....

Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.

Compensation committee Written employment contract

Independent compensation consultant Compensation survey or study

Form 990 of other organizations Approval by the board or compensation committee

During the year, did any person listed on Form 990, Part VII, Section A, line 1a, with respect to the filing organization or a related organization:

Receive a severance payment or change-of-control payment? .............

Yes

Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........

Yes

Participate in, or receive payment from, an equity-based compensation arrangement? .........

If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.

Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:

The organization? ....................

Any related organization? .......................

If "Yes," on line 5a or 5b, describe in Part III.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:

The organization? ..................

Any related organization? ......................

If "Yes," on line 6a or 6b, describe in Part III.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization provide any nonfixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............

Yes

Were any amounts reported on Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III ..........................

If "Yes" on line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50053T

Schedule J (Form 990) 2022

Page 2

Part II

Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.

For each individual whose compensation must be reported on Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.

(A) Name and Title		(B) Breakdown of W-2, 1099-MISC compensation, and/or 1099-NEC			(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)	(F) Compensation in column (B) reported as deferred on prior Form 990
(A) Name and Title		(i) Base compensation	(ii) Bonus & incentive compensation	(iii) Other reportable compensation	(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)
1JACK MAHLER MD CHIEF INVESTMENT OFFICER	(i) (ii)	695,940 ------------- 0	1,760,233 ------------- 0	7,674 ------------- 0	193,597 ------------- 0	37,338 ------------- 0	2,694,782 ------------- 0	446,250 ------------- 0
2MICHAEL P BOYLE MD PRESIDENT & CEO	(i) (ii)	647,211 ------------- 0	297,943 ------------- 0	5,102 ------------- 0	350,116 ------------- 0	49,410 ------------- 0	1,349,782 ------------- 0	159,687 ------------- 0
3EARL LEE MANAGING DIRECTOR, INVESTMENTS	(i) (ii)	439,904 ------------- 0	581,475 ------------- 0	1,634 ------------- 0	217,912 ------------- 0	16,450 ------------- 0	1,257,375 ------------- 0	126,945 ------------- 0
4ERIC KOEHRSEN MANAGING DIRECTOR, INVESTMENTS	(i) (ii)	407,807 ------------- 0	512,092 ------------- 0	1,135 ------------- 0	199,727 ------------- 0	48,510 ------------- 0	1,169,271 ------------- 0	106,470 ------------- 0
5BRUCE MARSHALL MD EVP & CHIEF MEDICAL OFFICER	(i) (ii)	529,980 ------------- 0	154,312 ------------- 0	7,913 ------------- 0	104,713 ------------- 0	0 ------------- 0	796,918 ------------- 0	82,365 ------------- 0
6JOHN P CLANCY MD SVP, CLINICAL RESEARCH	(i) (ii)	449,033 ------------- 0	97,886 ------------- 0	4,417 ------------- 0	113,030 ------------- 0	41,582 ------------- 0	705,948 ------------- 0	32,768 ------------- 0
7MARY DWIGHT CHIEF POLICY & ADVOCACY OFFICER	(i) (ii)	353,157 ------------- 0	121,692 ------------- 0	68,163 ------------- 0	82,515 ------------- 0	47,394 ------------- 0	672,921 ------------- 0	0 ------------- 0
8MARYBETH MCMAHON CHIEF OF STAFF	(i) (ii)	318,947 ------------- 0	138,066 ------------- 0	95,551 ------------- 0	75,625 ------------- 0	17,154 ------------- 0	645,343 ------------- 0	0 ------------- 0
9ANTHONY DURMOWICZ MD VP, CLINICAL DEVELOPMENT	(i) (ii)	454,590 ------------- 0	101,908 ------------- 0	17,525 ------------- 0	62,272 ------------- 0	2,400 ------------- 0	638,695 ------------- 0	38,627 ------------- 0
10IRENA BARISIC EVP, CFAO, ASST. SEC. & ASST. TRSR.	(i) (ii)	513,800 ------------- 0	43,000 ------------- 0	1,140 ------------- 0	69,210 ------------- 0	2,171 ------------- 0	629,321 ------------- 0	0 ------------- 0
11WILLIAM SKACH MD EVP & CHIEF SCIENTIFIC OFFICER	(i) (ii)	279,431 ------------- 0	172,324 ------------- 0	4,080 ------------- 0	30,720 ------------- 0	30,698 ------------- 0	517,253 ------------- 0	79,221 ------------- 0
12PRESTON CAMPBELL MD FORMER CEO & STRATEGIC ADVISOR	(i) (ii)	245,604 ------------- 0	144,735 ------------- 0	3,604 ------------- 0	30,720 ------------- 0	31,448 ------------- 0	456,111 ------------- 0	144,735 ------------- 0
13MICHAEL B CAVADEL SVP, CHIEF LEGAL OFFICER, & SEC.	(i) (ii)	193,704 ------------- 0	0 ------------- 0	376 ------------- 0	16,543 ------------- 0	11,817 ------------- 0	222,440 ------------- 0	0 ------------- 0
14CHRIS GEGELYS FORMER CHIEF LEGAL OFFICER	(i) (ii)	7,918 ------------- 0	148,798 ------------- 0	19,746 ------------- 0	0 ------------- 0	0 ------------- 0	176,462 ------------- 0	0 ------------- 0
15MARC S GINSKY FORMER COO	(i) (ii)	0 ------------- 0	0 ------------- 0	160,000 ------------- 0	0 ------------- 0	0 ------------- 0	160,000 ------------- 0	0 ------------- 0
16VERA H TWIGG FORMER EVP, CFO	(i) (ii)	0 ------------- 0	103,286 ------------- 0	0 ------------- 0	0 ------------- 0	0 ------------- 0	103,286 ------------- 0	0 ------------- 0

Schedule J (Form 990) 2022

Page 3

Part III

Supplemental Information

Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II. Also complete this part for any additional information.

Return Reference	Explanation
PART I, LINE 4A:	AS PART OF A SEVERANCE AGREEMENT, THE EXECUTIVE RECEIVED THE BELOW INDICATED AMOUNT IN 2022. THE SEVERANCE AMOUNT WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT AND APPROVED BY THE ORGANIZATION'S COMPENSATION COMMITTEE IN ACCORDANCE WITH THE IRS'S INTERMEDIATE SANCTIONS RULES. NAME: MARC S. GINSKY AMOUNT: $160,000
PART I, LINE 4B:	THE TWO EXECUTIVES LISTED BELOW PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. INFORMATION REGARDING THE AMOUNT OF PAYMENTS MADE BY THE PLAN DURING THE REPORTING YEAR IS PROVIDED BELOW. NAME: JOHN C. MAHLER JR AMOUNT: $100,000 NAME: MICHAEL P. BOYLE, M.D. AMOUNT: $100,000
PART I, LINE 7:	SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, PARTICIPATED IN THE FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENTS OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS.

Schedule J (Form 990) 2022

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE M
(Form 990)

Department of the Treasury

Internal Revenue Service

Noncash Contributions

Complete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image

Attach to Form 990.
Right pointing arrow large image

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2022

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Types of Property

	(a) Check if applicable	(b) Number of contributions or items contributed	(c) Noncash contribution amounts reported on Form 990, Part VIII, line 1g	(d) Method of determining noncash contribution amounts
1 Art—Works of art ....
2 Art—Historical treasures .
3 Art—Fractional interests ..
4 Books and publications ..
5 Clothing and household goods .......
6 Cars and other vehicles ..	X	31	44,951	NET CASH RECEIPTS
7 Boats and planes ....
8 Intellectual property ...
9 Securities—Publicly traded .	X	94	1,033,292	NET CASH RECEIPTS
10 Securities—Closely held stock .
11 Securities—Partnership, LLC, or trust interests ....
12 Securities—Miscellaneous ..
13 Qualified conservation contribution—Historic structures .....
14 Qualified conservation contribution—Other ...
15 Real estate—Residential .	X	1	2,734,708	NET CASH RECEIPTS
16 Real estate—Commercial ..
17 Real estate—Other ...
18 Collectibles .....
19 Food inventory ...
20 Drugs and medical supplies .
21 Taxidermy ......
22 Historical artifacts ....
23 Scientific specimens ..
24 Archeological artifacts ...
25 Other ( TANGIBLE AUCTION ITEMS )	X	9,845	6,080,579	NET CASH RECEIPTS
26 Other ( )
27 Other ( )
28 Other ( )

Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement

Yes

30a

During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that it must hold for at least three years from the date of the initial contribution, and which isn't required to be used for exempt purposes for the entire holding period? ...................

30a

If "Yes," describe the arrangement in Part II.

Does the organization have a gift acceptance policy that requires the review of any nonstandard contributions?

Yes

32a

Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash

contributions? ..........................

32a

Yes

If "Yes," describe in Part II.

If the organization didn't report an amount in column (c) for a type of property for which column (a) is checked,

describe in Part II.

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 51227J

Schedule M (Form 990) (2022)

Page 2

Part IISupplemental Information. Provide the information required by Part I, lines 30b, 32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.

Return Reference	Explanation
SCHEDULE M, PART I, LINE 6:	THIRD PARTY SELLER CYSTIC FIBROSIS FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS.

Schedule M (Form 990) (2022)

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE O
(Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet

Attach to Form 990 or 990-EZ.
MediumBullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2021

Open to Public
Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Return Reference	Explanation
FORM 990, PART III, LINE 1:	THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION IS TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH QUALITY, SPECIALIZED CARE.
FORM 990, PART III, LINE 4A:	MEDICAL (AND RESEARCH) PROGRAMS - THE CYSTIC FIBROSIS FOUNDATION IS THE WORLD'S LEADER IN THE SEARCH FOR A CURE FOR CYSTIC FIBROSIS, A PROGRESSIVE, GENETIC DISEASE THAT AFFECTS CLOSE TO 40,000 PEOPLE IN THE UNITED STATES, AND MORE THAN 100,000 WORLDWIDE, WHICH INCLUDES PEOPLE FROM EVERY RACIAL AND ETHNIC GROUP. THE CF FOUNDATION HAS AND CONTINUES TO FUND HUNDREDS OF MILLIONS OF DOLLARS IN RESEARCH TO HELP DISCOVER/DEVELOP EFFECTIVE CF THERAPIES AND HIGHLY SPECIALIZED CARE. IN 2022, THE CF FOUNDATION INVESTED $265 MILLION INTO RESEARCH AND CARE. DUE IN PART TO THE FOUNDATION'S EFFORTS IN RESEARCH, CARE, AND TREATMENTS, THE LIFE EXPECTANCY OF PEOPLE WITH CF HAS MORE THAN DOUBLED IN THE LAST 30 YEARS. RESEARCH TO FIND A CURE IS MORE PROMISING THAN EVER BEFORE. THE CF FOUNDATION HAS ATTRACTED INDUSTRY TO JOIN ITS MISSION BY FUNDING DRUG DISCOVERY AND DEVELOPMENT RESEARCH CONDUCTED BY BIOTECHNOLOGY COMPANIES. IT ALSO PROVIDES MATCHING AWARDS TO CF DRUG DEVELOPERS FOR CF RESEARCH AND FUNDS A SPECIALIZED CF CLINICAL TRIALS NETWORK OF 91 FOUNDATION-ACCREDITED CARE CENTERS. AS OF DECEMBER 2022,THE CF DRUG DEVELOPMENT PIPELINE HAD 42 THERAPIES IN DEVELOPMENT INCLUDING TREATMENTS THAT ADDRESS COMPLICATIONS, LIKE INFECTIONS, AND GENETIC THERAPIES THAT COULD ONE DAY LEAD TO A CURE FOR ALL PEOPLE WITH CYSTIC FIBROSIS, INCLUDING THOSE WITH RARE AND NONSENSE DISEASE-CAUSING MUTATIONS. TO SUPPORT ITS MISSION, THE FOUNDATION ALSO FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF MORE THAN 130 CARE CENTERS. THIS NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. IN 2022, THE FOUNDATION PROVIDED MORE THAN $46 MILLION OF SUPPORT FOR CARE CENTERS AND CLINICIANS AND CONTINUES TO DEVELOP CARE GUIDELINES FOR CARE TEAMS TO PROVIDE THE HIGHLY SPECIALIZED CARE NEEDED TO LIVE WITH THE DISEASE. THE FOUNDATION ALSO MANAGES A PATIENT REGISTRY OF PEOPLE WITH CF, COLLECTING INFORMATION ON THE HEALTH STATUS OF APPROXIMATELY 32,100 PEOPLE WITH CF, INCUDING 779 NEWLY DIAGNOSED INDIVIDUALS, AND PROVIDING CAREGIVERS AND RESEARCHERS CRITICAL INFORMATION. THIS INVALUABLE TOOL HELPS IDENTIFY NEW HEALTH TRENDS AND EFFECTIVE TREATMENTS AND IMPROVE THE QUALITY OF CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR OTHER NONPROFIT HEALTH ORGANIZATIONS, INCLUDING OTHER CF ADVOCACY GROUPS.
FORM 990, PART III, LINE 4B:	COMMUNITY SERVICES - THE FOUNDATION PROVIDES MUCH-NEEDED SUPPORT FOR PATIENTS AND THEIR FAMILIES AS THEY MANAGE THE PHYSICAL, EMOTIONAL, AND FINANCIAL CHALLENGES OF LIVING WITH CF. THE FOUNDATION DOES THIS THROUGH SUPPORTING SPECIALIZED QUALITY CF CARE, PROVIDING INFORMATION AND TOOLS TO HELP PEOPLE DIRECT THEIR OWN CARE, AND DEVELOPING PROGRAMS TO HELP PEOPLE WITH CF AND THEIR LOVED ONES CONNECT WITH OTHERS IN THE CF COMMUNITY SO THEY CAN LEARN FROM AND CELEBRATE EACH OTHER. LACK OF ADEQUATE INSURANCE COVERAGE FOR CF THERAPIES HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. CF FOUNDATION COMPASS IS A HIGHLY PERSONALIZED SERVICE TAILORED TO AN INDIVIDUAL'S CIRCUMSTANCES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TO MUCH-NEEDED CF THERAPIES AND CARE. IN 2022, SKILLED COMPASS CASE MANAGERS ANSWERED MORE THAN 8,600 CALLS FROM PEOPLE WITH CF, THEIR FAMILIES, AND THEIR PROVIDER NETWORK, HELPING PEOPLE BETTER UNDERSTAND AND MAXIMIZE THEIR INSURANCE COVERAGE AND BENEFITS, AND GET HELP WITH OTHER NEEDS RELATED TO DAILY LIFE WITH CF. CASE MANAGERS ALSO ASSISTED WITH FINDING RESOURCES FOR ISSUES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. BY CONNECTING PEOPLE WITH CF TO RESOURCES TO HELP THEM PAY BILLS OR OTHER SERVICES, THE CF FOUNDATION SAVED CLIENTS MORE THAN $1.3 MILLION. THE FOUNDATION HELD MORE THAN 1,000 NATIONAL AND CHAPTER EVENTS IN 2022 FOR PEOPLE WITH CF AND THEIR FAMILY MEMBERS. VIRTUAL EVENTS, INCLUDING BREATHECON, RESEARCHCON, AND NEXTBREATH, WERE DESIGNED BY AND FOR ADULTS WITH CF, THEIR FAMILIES, CLINICIANS, AND RESEARCHERS. THESE GATHERINGS PROVIDED AN OPPORTUNITY FOR THE CF COMMUNITY TO CONNECT, SHARE, AND LEARN FROM PEERS THROUGH OPEN AND HONEST DIALOGUE.
FORM 990, PART III, LINE 4C:	PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION - TO SUPPORT ITS MISSION, THE CF FOUNDATION CREATED EDUCATIONAL CONTENT DESIGNED TO INFORM AND SUPPORT PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS, AND THE GENERAL PUBLIC ABOUT THE DISEASE. IN 2022, THERE WERE 185 PUBLICATIONS AND 48 VIDEOS PRODUCED AND MADE AVAILABLE TO SUPPORT EDUCATION AND AWARENESS. YEAR-ROUND MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS, AND ALLIED HEALTH PROFESSIONALS AND CREATE OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2022, OVER 1,7980,000 UNIQUE VISITORS CAME TO THE CF FOUNDATION'S WEBSITE. THE FOUNDATION PUBLISHED 65 NEW CONTENT PAGES, MADE 284 CONTENT UPDATES, AND PUBLISHED 90 CF COMMUNITY BLOG POSTS.
FORM 990, PART VI, LINE 4:	THE CF FOUNDATION UPDATED ITS BYLAWS IN 2022 TO INCLUDE AN ADDITIONAL NON-VOTING TRUSTEE POSITION.
FORM 990, PART VI, SECTION B, LINE 11B	REVIEW OF 990 BY GOVERNING BODY THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A DRAFT OF THE FORM 990 PRIOR TO IT BEING FILED, WITH TIME FOR REVIEW AND COMMENT. THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES AND THE FOUNDATION'S ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. THE AUDIT COMMITTEE OF THE BOARD OF TRUSTEES ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED.
FORM 990, PART VI, SECTION B, LINE 12C	CONFLICT OF INTEREST MONITORING A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. POTENTIAL CONFLICTS FOR BOARD MEMBERS AND OFFICERS ARE REPORTED TO THE GOVERNANCE COMMITTEE OR THE BOARD OF TRUSTEES. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF TRUSTEES, THE INTERESTED TRUSTEE OR OFFICER IS REQUIRED TO BE EXCUSED FROM THE ROOM IN WHICH THE BOARD OR ITS COMMITTEE IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2022 AND HAD NO UNRESOLVED CONFLICTS OF INTEREST.
FORM 990, PART VI, SECTION B, LINE 15	DETERMINING COMPENSATION: LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE AND MEDICAL TALENT TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE CF FOUNDATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. (4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVE'S HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVE'S ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. (5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEE'S COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT, CHIEF FINANCIAL AND ADMINISTRATIVE OFFICER CHIEF INVESTMENT OFFICER SENIOR VP, CLINICAL RESEARCH EXECUTIVE VICE PRESIDENT & CHIEF SCIENTIFIC OFFICER EXECUTIVE VICE PRESIDENT & CHIEF MEDICAL OFFICER THE PROCESS WAS LAST UNDERTAKEN IN 2021 WITH RESPECT TO COMPENSATION TO BE PAID IN 2022 TO THE OFFICERS/KEY EMPLOYEES NAMED ABOVE.
FORM 990, PART VI, SECTION C, LINE 19	PUBLIC INSPECTION FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG. THE FOUNDATION'S GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE NATIONAL OFFICE OF THE CYSTIC FIBROSIS FOUNDATION IN WRITING. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2022. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2022.
FORM 990, PART VI, LINE 10B:	CYSTIC FIBROSIS FOUNDATION HAS NUMEROUS OFFICES LOCATED ACROSS THE UNITED STATES WHICH ADHERE TO THE POLICIES AND PROCEDURES OF THE ORGANIZATION.

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 51056K

Schedule O (Form 990) 2021

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE R
(Form 990)

Department of the Treasury
Internal Revenue Service

Related Organizations and Unrelated Partnerships

Complete if the organization answered "Yes" on Form 990, Part IV, line 33, 34, 35b, 36, or 37.
MediumBullet

Attach to Form 990.
MediumBullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2021

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Identification of Disregarded Entities. Complete if the organization answered "Yes" on Form 990, Part IV, line 33.

(a) Name, address, and EIN (if applicable) of disregarded entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Total income	(e) End-of-year assets	(f) Direct controlling entity

Part II

Identification of Related Tax-Exempt Organizations. Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related tax-exempt organizations during the tax year.

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Exempt Code section	(e) Public charity status (if section 501(c)(3))	(f) Direct controlling entity	(g) Section 512(b)(13) controlled entity?
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Exempt Code section	(e) Public charity status (if section 501(c)(3))	(f) Direct controlling entity	Yes	No
(1)CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC 4550 MONTGOMERY AVE STE 110 BETHESDA,MD20814 91-2059167	RESEARCH	MD	501(C)(3)	LINE 12A, I	CFF	Yes

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50135Y

Schedule R (Form 990) 2021

Page 2

Part III

Identification of Related Organizations Taxable as a Partnership. Complete if the organization answered "Yes" on Form 990, Part IV, line 34, because it had one or more related organizations treated as a partnership during the tax year.

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(e) Predominant income(related, unrelated, excluded from tax under sections 512-514)	(f) Share of total income	(g) Share of end-of-year assets	(h) Disproprtionate allocations?		(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	(j) General or managing partner?		(k) Percentage ownership
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity		(f) Share of total income	(g) Share of end-of-year assets	Yes	No	(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	Yes	No	(k) Percentage ownership
(1) NANTAHALA CAPITAL PARTNERS QR LP 130 MAIN ST 2ND FLOOR NEW CANNAN,CT06840	INVESTMENTS	CT		EXCLUDED	-3,131,489	19,198,651		No			No	98.210 %
(2) LF-CFF INCUBATOR FUND LP 800 BOYLSTON STREET SUITE 1555 BOSTON,MA02199 85-1584805	INVESTMENTS	DE		EXCLUDED	-521,504	7,510,340		No			No	100.000 %
(3) LONGWOOD - LF CFF INCUBATOR FND II 800 BOYLSTON STREET SUITE 1715 BOSTON,MA02199 87-3507143	INVESTMENTS	DE		EXCLUDED	-541,946	168,924		No			No	100.000 %

Part IV

Identification of Related Organizations Taxable as a Corporation or Trust. Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related organizations treated as a corporation or trust during the tax year.

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(e) Type of entity (C corp, S corp, or trust)	(f) Share of total income	(g) Share of end-of-year assets	(h) Percentage ownership	(i) Section 512(b)(13) controlled entity?
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(e) Type of entity (C corp, S corp, or trust)	(f) Share of total income	(g) Share of end-of-year assets	(h) Percentage ownership	Yes	No
(1) TSSP ROTATIONAL CREDIT FEEDER LP UGLAND HOUSE SOUTH CHURCH ST GEORGE TOWN KY1-1104 CJ	INVESTMENTS	CJ	N/A	C					No
(2) CHARITABLE REMAINDER TRUST (2)	FIDUCIARY	CA	N/A	T					No
(3) CHARITABLE REMAINDER TRUST	FIDUCIARY	TN	N/A	T					No
(4) CHARITABLE REMAINDER TRUST	FIDUCIARY	NM	N/A	T					No
(5) PERPETUAL TRUST	FIDUCIARY	MA	N/A	T					No

Schedule R (Form 990) 2021

Page 3

Part V

Transactions With Related Organizations. Complete if the organization answered "Yes" on Form 990, Part IV, line 34, 35b, or 36.

Note. Complete line 1 if any entity is listed in Parts II, III, or IV of this schedule.

Yes

1 During the tax year, did the orgranization engage in any of the following transactions with one or more related organizations listed in Parts II-IV?

a Receipt of (i) interest, (ii) annuities, (iii) royalties, or (iv) rent from a controlled entity .....................

b Gift, grant, or capital contribution to related organization(s) ............................

Yes

c Gift, grant, or capital contribution from related organization(s) ............................

d Loans or loan guarantees to or for related organization(s) ............................

e Loans or loan guarantees by related organization(s) ............................

f Dividends from related organization(s) ............................

g Sale of assets to related organization(s) ............................

h Purchase of assets from related organization(s) ............................

i Exchange of assets with related organization(s) ............................

j Lease of facilities, equipment, or other assets to related organization(s) .......................

k Lease of facilities, equipment, or other assets from related organization(s) ......................

l Performance of services or membership or fundraising solicitations for related organization(s) .....................

m Performance of services or membership or fundraising solicitations by related organization(s) .................

n Sharing of facilities, equipment, mailing lists, or other assets with related organization(s) ...................

o Sharing of paid employees with related organization(s) ............................

p Reimbursement paid to related organization(s) for expenses ............................

q Reimbursement paid by related organization(s) for expenses ............................

r Other transfer of cash or property to related organization(s) ............................

s Other transfer of cash or property from related organization(s) ............................

Yes

If the answer to any of the above is "Yes," see the instructions for information on who must complete this line, including covered relationships and transaction thresholds.

(a) Name of related organization	(b) Transaction type (a-s)	(c) Amount involved	(d) Method of determining amount involved
(1) TSSP ROTATIONAL CREDIT FEEDER LP	S	384,237	CASH
(2) LF-CFF INCUBATOR FUND LP	B	7,195,526	CASH
(3) LF-CFF INCUBATOR FUND II LP	B	710,870	CASH

Schedule R (Form 990) 2021

Page 4

Part VI

Unrelated Organizations Taxable as a Partnership. Complete if the organization answered "Yes" on Form 990, Part IV, line 37.

Provide the following information for each entity taxed as a partnership through which the organization conducted more than five percent of its activities (measured by total assets or gross revenue) that was not a related organization. See instructions regarding exclusion for certain investment partnerships.

(a) Name, address, and EIN of entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	(e) Are all partners section 501(c)(3) organizations?		(f) Share of total income	(g) Share of end-of-year assets	(h) Disproprtionate allocations?		(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	(j) General or managing partner?		(k) Percentage ownership
(a) Name, address, and EIN of entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	Yes	No	(f) Share of total income	(g) Share of end-of-year assets	Yes	No	(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	Yes	No	(k) Percentage ownership

Schedule R (Form 990) 2021

Page 5

Part VII

Supplemental Information

Provide additional information for responses to questions on Schedule R. See instructions.

Return Reference	Explanation

Schedule R (Form 990) 2021

Additional Data

Software ID:
Software Version:

1	Briefly describe the organization’s mission or most significant activities: TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE (CONTINUED ON SCH O) OPPORTUNITY TO LEAD LONG, FULFILLING LIVES.
2	Check this box
3	Number of voting members of the governing body (Part VI, line 1a) ........	3	17
4	Number of independent voting members of the governing body (Part VI, line 1b) .....	4	16
5	Total number of individuals employed in calendar year 2021 (Part V, line 2a) ......	5	890
6	Total number of volunteers (estimate if necessary) .............	6	54,572
7a	Total unrelated business revenue from Part VIII, column (C), line 12 ........	7a	7,323,291
b	Net unrelated business taxable income from Form 990-T, Part I, line 11 .........	7b	1,108,726

		Prior Year	Current Year
8	Contributions and grants (Part VIII, line 1h) .........	86,536,159	97,948,958
9	Program service revenue (Part VIII, line 2g) .........	1,263,333	2,555,705
10	Investment income (Part VIII, column (A), lines 3, 4, and 7d ) ....	306,161,908	128,066,687
11	Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e)	23,276,151	20,059,002
12	Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)	417,237,551	248,630,352
13	Grants and similar amounts paid (Part IX, column (A), lines 1–3 )...	178,329,656	184,032,962
14	Benefits paid to or for members (Part IX, column (A), line 4).....	0	0
15	Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10)	107,679,100	116,829,042
16a	Professional fundraising fees (Part IX, column (A), line 11e) .....	176,400	176,400
b	Total fundraising expenses (Part IX, column (D), line 25) 30,435,741
17	Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e)....	89,426,030	95,625,710
18	Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25)	375,611,186	396,664,114
19	Revenue less expenses. Subtract line 18 from line 12.......	41,626,365	-148,033,762
		Beginning of Current Year	End of Year
20	Total assets (Part X, line 16).............	5,691,109,976	4,735,058,992
21	Total liabilities (Part X, line 26).............	274,479,667	291,339,976
22	Net assets or fund balances. Subtract line 21 from line 20.....	5,416,630,309	4,443,719,016

Sign Here

	Signature of officer	Date

	Type or print name and title


4a	(Code: ) (Expenses $ 282,331,775 including grants of $ 178,261,101 ) (Revenue $ 10,366,808 )
	SEE SCHEDULE O

4b	(Code: ) (Expenses $ 21,891,088 including grants of $ 5,771,860 ) (Revenue $ )
	SEE SCHEDULE O

4c	(Code: ) (Expenses $ 19,125,953 including grants of $ ) (Revenue $ )
	SEE SCHEDULE O

4d	Other program services (Describe in Schedule O.)
	(Expenses $ including grants of $ ) (Revenue $ )
4e	Total program service expenses323,348,816

1b	Sub-Total................
c	Total from continuation sheets to Part VII, Section A....
d	Total (add lines 1b and 1c)...........	10,312,836	0	1,883,072

1a	Federated campaigns..		1a	303,736
b	Membership dues..		1b
c	Fundraising events..		1c	56,151,039
d	Related organizations		1d
e	Government grants (contributions)		1e

f	All other contributions, gifts, grants, and similar amounts not included above		1f	41,494,183

g	Noncash contributions included in lines 1a - 1f:$		1g	9,893,530

h Total. Add lines 1a-1f.......		97,948,958

		Business Code
2a	SCIENTIFIC CONFERENCE	611600	2,290,846	2,290,846
b	DATA SAFETY MONITORING	541900	264,859	264,859
c
d
e
f	All other program service revenue.
g	Total. Add lines 2a–2f .....		2,555,705

3 Investment income (including dividends, interest, and othersimilar amounts) ......			63,753,516		7,323,291	56,430,225
4 Income from investment of tax-exempt bond proceeds
5 Royalties...........			14,016,961	1,867,108		12,149,853
		(ii) Personal	(i) Real
6a	Gross rents			6a
b	Less: rental expenses			6b
c	Rental income or (loss)			6c
d	Net rental income or (loss).......
		(ii) Other	(i) Securities
7a	Gross amount from sales of assets other than inventory		1,153,650,164	7a
b	Less: cost or other basis and sales expenses		1,089,336,993	7b
c	Gain or (loss)		64,313,171	7c
d	Net gain or (loss).........			64,313,171			64,313,171
8a	Gross income from fundraising events (not including $ 56,151,039of contributions reported on line 1c). See Part IV, line 18 ....
			8a	12,338,183
b	Less: direct expenses ...		8b	12,338,183
c	Net income or (loss) from fundraising events..			0
9a	Gross income from gaming activities. See Part IV, line 19 ...
			9a	106,070
b	Less: direct expenses ...		9b	67,014
c	Net income or (loss) from gaming activities..			39,056			39,056
10a	Gross sales of inventory, less returns and allowances ..
			10a
b	Less: cost of goods sold ..		10b
c	Net income or (loss) from sales of inventory..
Business Code			Miscellaneous Revenue
11a	REFUNDED/CANCELLED GRA		900099	5,943,995	5,943,995
b	REIMBURSEMENT PROCEEDS		900099	58,990			58,990
c
d	All other revenue ....
e	Total. Add lines 11a–11d ......			6,002,985
12	Total revenue. See instructions.....			248,630,352	10,366,808	7,323,291	132,991,295

1	Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 ....	173,015,994	173,015,994
2	Grants and other assistance to domestic individuals. See Part IV, line 22 ...........	510,431	510,431
3	Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. .............	10,506,537	10,506,537
4	Benefits paid to or for members .......
5	Compensation of current officers, directors, trustees, and key employees ...........	6,916,442	3,669,840	1,915,873	1,330,729
6	Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .........	895,859	475,340	248,155	172,364
7	Other salaries and wages........	84,064,519	44,604,339	23,286,099	16,174,081
8	Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) ....	6,044,963	3,207,436	1,674,471	1,163,056
9	Other employee benefits .......	13,002,247	6,898,946	3,601,658	2,501,643
10	Payroll taxes ...........	5,905,012	3,199,151	1,475,098	1,230,763
11	Fees for services (non-employees):
a	Management ......
b	Legal .........	272,819	126,112	146,707
c	Accounting ...........	362,937		362,937
d	Lobbying ...........	724,854	724,854
e	Professional fundraising services. See Part IV, line 17	176,400			176,400
f	Investment management fees ......	2,418,459		2,418,459
g	Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O)	5,338,970	4,490,002	817,253	31,715
12	Advertising and promotion ....	20,290	6,696	3,449	10,145
13	Office expenses .......	5,955,346	3,598,398	483,925	1,873,023
14	Information technology ......	13,411,352	7,861,341	2,927,348	2,622,663
15	Royalties ..
16	Occupancy ...........	7,346,178	4,569,675	1,239,716	1,536,787
17	Travel ............	1,482,316	964,156	210,149	308,011
18	Payments of travel or entertainment expenses for any federal, state, or local public officials .
19	Conferences, conventions, and meetings ....	7,899,087	6,717,968	408,670	772,449
20	Interest ...........
21	Payments to affiliates .......
22	Depreciation, depletion, and amortization ..	2,238,383	1,759,128	203,541	275,714
23	Insurance ...	819,709	565,989	217,511	36,209
24	Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a	CONTRACTED RESEARCH	44,542,945	44,542,945
b	TRAINING	467,112	251,740	170,727	44,645
c	MEDICAL QUALITY IMPROVE	184,481	184,481
d	SPIROMETERS	107,900	107,900
e	All other expenses	2,032,572	789,417	1,067,811	175,344
25	Total functional expenses. Add lines 1 through 24e	396,664,114	323,348,816	42,879,557	30,435,741
26	Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here if following SOP 98-2 (ASC 958-720).

1	Cash–non-interest-bearing ........			9,916	1	825
2	Savings and temporary cash investments .........			70,751,911	2	89,344,692
3	Pledges and grants receivable, net ......			8,629,010	3	16,374,636
4	Accounts receivable, net .............			23,159,403	4	23,189,779
5	Loans and other receivables from any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
					5
6	Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
					6
7	Notes and loans receivable, net ...........				7
8	Inventories for sale or use ............			305,397	8	209,153
9	Prepaid expenses and deferred charges ......			7,623,850	9	5,923,684
10a	Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D	10a	30,915,068
b	Less: accumulated depreciation	10b	20,485,100	7,641,454	10c	10,429,968
11	Investments—publicly traded securities .			3,935,176,433	11	2,713,899,331
12	Investments—other securities. See Part IV, line 11 .....			1,576,278,160	12	1,734,329,559
13	Investments—program-related. See Part IV, line 11 ..			50,147,851	13	75,899,728
14	Intangible assets ...............				14
15	Other assets. See Part IV, line 11 ...........			11,386,591	15	65,457,637
16	Total assets. Add lines 1 through 15 (must equal line 33)...			5,691,109,976	16	4,735,058,992

17	Accounts payable and accrued expenses .....	40,322,607	17	32,393,816
18	Grants payable ...	231,895,234	18	226,137,686
19	Deferred revenue .........	2,261,826	19	2,196,254
20	Tax-exempt bond liabilities .........		20
21	Escrow or custodial account liability. Complete Part IV of Schedule D		21
22	Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
			22
23	Secured mortgages and notes payable to unrelated third parties ..		23
24	Unsecured notes and loans payable to unrelated third parties ..		24
25	Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D	0	25	30,612,220
26	Total liabilities. Add lines 17 through 25..	274,479,667	26	291,339,976

	Organizations that follow FASB ASC 958, check here and complete lines 27, 28, 32, and 33.
27	Net assets without donor restrictions ..........	5,398,556,832	27	4,421,196,361
28	Net assets with donor restrictions ...........	18,073,477	28	22,522,655
	Organizations that do not follow FASB ASC 958, check here and complete lines 29 through 33.
29	Capital stock or trust principal, or current funds .....		29
30	Paid-in or capital surplus, or land, building or equipment fund ...		30
31	Retained earnings, endowment, accumulated income, or other funds		31
32	Total net assets or fund balances ...........	5,416,630,309	32	4,443,719,016
33	Total liabilities and net assets/fund balances ........	5,691,109,976	33	4,735,058,992

1	Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
2	Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to separately file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A; don't file with Form 990). . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
3	Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471). . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
4	Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621) .	Yes	No
5	Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships (see Instructions for Form 8865). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
6	Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to separately file Form 5713, International Boycott Report (see Instructions for Form 5713; don't file with Form 990).. . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No