Attach to Form 990 or Form 990-EZ.
Go to
www.irs.gov/Form990 for instructions and the latest information.
| (i) Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 10 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
|
Total |
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Calendar year
(or fiscal year beginning in)
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(a) 2018 | (b) 2019 | (c) 2020 | (d) 2021 | (e) 2022 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. | 879,125 | 626,283 | 655,945 | 688,436 | 896,701 | 3,746,490 |
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf.... | ||||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 4 | Total. Add lines 1 through 3 | 879,125 | 626,283 | 655,945 | 688,436 | 896,701 | 3,746,490 |
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f) .. | 762,977 | |||||
| 6 | Public support. Subtract line 5 from line 4. | 2,983,513 | |||||
Calendar year
(or fiscal year beginning in)
![]() |
(a) 2018 | (b) 2019 | (c) 2020 | (d) 2021 | (e) 2022 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | 879,125 | 626,283 | 655,945 | 688,436 | 896,701 | 3,746,490 |
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | 1,250 | 7,442 | 1,079 | 358 | 2,160 | 12,289 |
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | 378 | 378 | ||||
| 11 | Total support. Add lines 7 through 10 | 3,759,157 | |||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2018 | (b) 2019 | (c) 2020 | (d) 2021 | (e) 2022 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | ||||||
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose | ||||||
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513 ..... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge | ||||||
| 6 | Total. Add lines 1 through 5 | ||||||
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | ||||||
Calendar year (or fiscal year beginning in) ![]() |
(a) 2018 | (b) 2019 | (c) 2020 | (d) 2021 | (e) 2022 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | ||||||
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | ||||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included on line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | ||||||
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
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| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by 0.035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | 1 | |
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
2 | |
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | 3 | |
| 4 Amounts paid to acquire exempt-use assets | 4 | |
| 5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI) | 5 | |
| 6 Other distributions (describe in Part VI). See instructions | 6 | |
| 7Total annual distributions. Add lines 1 through 6. | 7 | |
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
8 | |
| 9 Distributable amount for 2022 from Section C, line 6 | 9 | |
| 10 Line 8 amount divided by Line 9 amount | 10 | |
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2022 |
(iii) Distributable Amount for 2022 |
|
|---|---|---|---|---|
| 1 Distributable amount for 2022 from Section C, line 6 | ||||
|
2
Underdistributions, if any, for years prior to 2022 (reasonable cause required-- explain in Part VI).
See instructions. |
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| 3 Excess distributions carryover, if any, to 2022: | ||||
| a From 2017....... | ||||
| b From 2018....... | ||||
| c From 2019....... | ||||
| d From 2020....... | ||||
| e From 2021....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2022 distributable amount | ||||
|
i
Carryover from 2017 not applied (see instructions) |
||||
| j Remainder. Subtract lines 3g, 3h, and 3i from line 3f. | ||||
| 4Distributions for 2022 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2022 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from line 4. | ||||
|
5
Remaining underdistributions for years prior to 2022, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
6
Remaining underdistributions for 2022. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
7 Excess distributions carryover to 2023. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a Excess from 2018..... | ||||
| b Excess from 2019..... | ||||
| c Excess from 2020..... | ||||
| d Excess from 2021..... | ||||
| e Excess from 2022..... | ||||
| Facts And Circumstances Test |
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| Return Reference | Explanation |
|---|---|
| PART II, LINE 10 | MISCELLANEOUS 378 |
| Software ID: | |
| Software Version: |
Attach to Form 990 or 990-EZ.
Go to www.irs.gov/Form990 for the latest information.
| Return Reference | Explanation |
|---|---|
| FORM 990 - ORGANIZATION'S MISSION | THE MISSION OF COURAGEOUS PARENTS NETWORK IS TO SUPPORT PARENTS AND FAMILIES OF CHILDREN LIVING WITH LIFELIMITING ILLNESS WITH THE TOOLS THEY NEED AS THEY ADJUST TO THE PROGNOSIS AND THEN WHEN THEY CONTEMPLATE THEIR CHILDS TRANSITION TO ENDOFLIFE. |
| FORM 990, PAGE 2, PART III, LINE 4A | IN 2022, CPN PRIORITIZED: 1.DEVELOPMENT OF THE JOURNEY MAP FOR FAMILIES OF CHILDREN WITH SERIOUS NEUROLOGICAL IMPAIRMENT 2.DEVELOPMENT OF CONTENT FOCUSED ON ISSUES OF HEALTH EQUITY AND BIAS 3.OUTREACH TO PEDIATRIC PROVIDERS, PATIENT DISEASE GROUPS AND THE RARE DISEASE INDUSTRY 4.DEVELOPMENT AND PRODUCTION OF ORIGINAL CONTENT AND PROGRAMMING FOR CAREGIVERS AND CLINICIANS SERVING SERIOUSLY ILL CHILDREN 5.DEVELOPMENT AND LAUNCH OF THE NEW CLINICIAN PORTAL ACTIVITIES AND ACCOMPLISHMENTS DURING THIS TIME (1)DIGITAL JOURNEY MAP FOR PARENTS AND PROVIDERS OF CHILDREN WITH SNI CONTENT DEVELOPMENT: DURING THE PAST YEAR, CPN HAS COMPLETED CONTENT DEVELOPMENT OF JOURNEY MAP FOR PARENTS AND PROVIDERS OF CHILDREN WITH SERIOUS NEUROLOGICAL IMPAIRMENT. THE TWO LEAD AUTHORS OF THE MEDICAL TRACK - DR JULIE HAUER AND CPN'S SENIOR PRODUCER AND (EXPERIENCED) PARENT, JENNIFER SIEDMAN -- COLLABORATED TO SHAPE THE MEDICAL INFORMATION INTO PARENT-FORWARD LANGUAGE. NINE PALLIATIVE-MINDED SPECIALISTS FROM HOSPITALS ACROSS THE COUNTRY, AS WELL AS TWO PARENTS OF CHILDREN WITH SNI REVIEWED THE DRAFTS, AND IT WAS ALL EDITED BY CPN'S DIRECTOR OF COMMUNICATIONS FOR CONSISTENCY. TWO PARENTS - CPN'S BLYTH LORD AND CONTRIBUTING PARENT ADVISOR, SARAH CASEY - ADAPTED CPN CONTENT FOR THE SOCIAL-EMOTIONAL TRACK AND CAROL TRAGER REVIEWED FOR CONSISTENCY. PLATFORM DEVELOPMENT: CPN'S LEAD DEVELOPER COMPLETED THE PROGRAMMING OF THE PUBLISHING PLATFORM, AS WELL AS DESIGN. LOOKING AHEAD - MAY-JUNE: FOLLOWING A WELL-RECEIVED PRESENTATION ABOUT THE JOURNEY MAP AT AAHPM IN MARCH 2023, CPN WILL BE BETA-TESTING OF THE TOOL WITH VOLUNTEER PARENTS AND CLINICIANS. WE ANTICIPATE LAUNCHING THE JOURNEY MAP NATIONALLY IN SEPTEMBER 2023. (2) DIVERSITY AND INCLUSION CONTENT "IN SPRING 2022, WE CONDUCTED TWO FOCUS GROUPS WITH BLACK AND HISPANIC PARENTS (ALL MOTHERS) OF CHILDREN. "IN NOVEMBER-MARCH, WE VIDEO INTERVIEWED FOUR AFRICAN-AMERICAN PARENTS AND THREE CLINICIANS OF COLOR, AND ARE PUBLISHING THEIR VIDEOS TO THE CPN LIBRARY. WE ARE FEATURING THEM SPECIFICALLY IN MONTHLY COMMUNICATIONS TO PARENT AND CLINICIAN MEMBERS, AND IN SPECIFIC PRESENTATIONS TO CLINICIAN AUDIENCES. THE THEME OF PARENT AGENCY AND ADVOCACY FOR PARENTS OF COLOR IS AN IMPORTANT THEME THAT COMES THROUGH IN BOTH THE PARENT AND CLINICIAN INTERVIEWS, AND WHERE POSSIBLE, CPN IS CONNECTING THE TWO PERSPECTIVES. FOR EXAMPLE, A PARENT OF COLOR WILL ACKNOWLEDGE THAT SHE FEELS SHE HAS TO BEHAVE A CERTAIN WAY FOR CLINICIANS TO LISTEN TO HER AND PROVIDE GOOD CARE TO HER CHILD, AND A PHYSICIAN WILL OBSERVE THAT THIS IS AN UNFAIR, UNHEALTHY AND SHAMEFUL BURDEN TO PUT ON THESE PARENTS WHO ARE ALREADY IN A VULNERABLE SITUATION. "LOOKING AHEAD: CPN WILL MEET WITH ITS EQUITY AND INCLUSION ADVISORY BOARD TO CONSIDER HOW WE MIGHT ADAPT THE PARENT AND CLINICIAN VIDEOS FOR USE IN CLINICIAN TRAINING. (3) ONGOING OUTREACH AND COMMUNICATIONS THE PRIMARY CHANNELS TO REACH PARENTS AND CAREGIVERS OF CHILDREN LIVING WITH SERIOUS ILLNESS IS THROUGH LIVE PRESENTATIONS TO CLINICIANS AND TO PATIENT ORGANIZATIONS, AND DIRECT TO INDIVIDUALS THROUGH EMAIL COMMUNICATIONS TO MEMBERSHIP AND VIA SOCIAL MEDIA. "IN AUGUST 2022, PEDIATRIC PSYCHOLOGIST CHRISSY SALLEY JOINED AS CPN'S DIRECTOR OF CLINICIAN OUTREACH AND ENGAGEMENT TO REACH MORE NON-PALLIATIVE CLINICIANS WITH CPN AS A RESOURCE TO 'HELP THEM BE A BETTER RESOURCE TO THEIR PATIENT FAMILIES.' DR. SALLEY AND EXECUTIVE DIRECTOR BLYTH LORD ARE WORKING TO BUILD COLLABORATIONS WITH PROFESSIONAL ORGANIZATIONS AS A CHANNEL TO REACH PHYSICIANS, NURSES, NPS, SOCIAL WORKERS AND PEDIATRIC PSYCHOLOGISTS. IN 2023, CPN HAS BECOME AN OFFICIAL LIAISON TO THE AAP'S SECTION ON HOSPICE AND PALLIATIVE MEDICINE. CPN'S DIRECTOR OF FAMILY AND INDUSTRY ENGAGEMENT, JENNIFER SIEDMAN, CONTINUES TO NETWORK WITH PATIENT DISEASE GROUPS, POSITIONING CPN AS A RESOURCE TO HELP THEM FURTHER SUPPORT THEIR PATIENT FAMILIES. ?CPN'S MONTHLY SOCIAL MEDIA EFFORTS ACROSS TWITTER, FACEBOOK, INSTAGRAM AND LINKEDIN HAVE CONTINUED AS WE EVOLVE OUR VOICE FOR 'THOUGHT LEADERSHIP- AND ENGAGEMENT. LIVE PRESENTATIONS - IN-PERSON AND VIA ZOOM 2022 PARMENTER PARENT 10 PARMENTER CLINICIAN 12/7/2022 COLUMBIA CRITICAL CARE, HOSPITAL MED, PALL CARE 32 12/5/2022 MSK PSYCHOSOCIAL TEAM 12 11/29/2022 ST. MARY'S HOSPITAL (MD'S AND NURSES INVITE, ONLY PSYCHOSOCIAL ATTENDED) 7 11/29/2022 CLINICAL TRIAL GUIDE (WEBSITE) 11/29/2022 DUCHENNE PARENT COMMUNITY 20 GLOBAL GENES BLOGS - 2 11/21/2022 ST. MARY'S HOSPITAL (ALL) 15 11/17/2022 ASGCT 32 11/16/2022 NATIONAL SOCIETY GENETIC COUNSELORS 60 11/20/2022 DIV. 54 PALL CARE SIG NEWSLETTER 110 11/10/2022 INPCS 52 10/27/2022 PEDIATRIC RESIDENTS - HOLTZ, MIAMI 30 10/11/2022 BRIDGES PROGRAM (TRANSITIONS TO ADULHOOD)20 9/23/2022 PEDIATRIC PSYCHOLOGY WEBINAR 80 9/23/2022 SIRIUSXM DOCTOR RADIO: KIDS??? 9/13/2022 GLOBAL GENES 120 7/7/2022 CURE SANFILIPPO 118 6/23/2022 CDLS 14 |
| FORM 990, PAGE 6, PART VI, LINE 11B | THE FORM 990 AND STATE INFORMATION RETURN IS DISTRIBUTED TO THE BOARD, WHO REVIEWS AND APPROVES GIVES ITS APPROVAL TO FILE. |
| FORM 990, PAGE 6, PART VI, LINE 15A | COMPENSATION IS SET BY BOARD OF DIRECTORS. ENTIRE BOARD REVIEWED A COMPARATIVE STUDY OF COMPENSATION PACKAGES OF NON-PROFIT ORGANIZATIONS IN NEW ENGLAND AND APPROVED THE PACKAGE. |
| FORM 990, PAGE 6, PART VI, LINE 15B | COMPENSATION IS SET BY BOARD OF DIRECTORS. ENTIRE BOARD REVIEWED A COMPARATIVE STUDY OF COMPENSATION PACKAGES OF NON-PROFIT ORGANIZATIONS IN NEW ENGLAND AND APPROVED THE PACKAGE. |
| FORM 990, PAGE 6, PART VI, LINE 19 | GOVERNING DOCUMENTS, CONFLICT OF INTEREST, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. NO REQUESTS WERE RECEIVED DURING THE YEAR. |
| FORM 990, PART IX, LINE 11G | CONTENT DEVELOPMENT ADVISORS 170,959 0 2,228 MARKETING ADVIISORS 100,009 0 0 STRATEGIC ADVISORS 7,607 0 0 PARENT PROVIDER SURVEY 0 26,000 0 STATEGIC ADVISORS 0 31,975 0 OTHER CONTRACT SERVICES 0 1,268 0 TOTAL 278,575 59,243 2,228 |
| FORM 990, PART XI, LINE 9 | DIRECT EVENT EXPENSES 16,154 DIRECT EVENT EXPENSES -16,154 |
| Software ID: | |
| Software Version: |