TY 2022 Form 990

(A)
Name and title

(B)
Average hours per week (list any hours for related organizations below dotted line)

(D)
Reportable compensation from the organization (W-2/1099-MISC/1099-NEC)

(E)
Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC)

(F)
Estimated amount of other compensation from the organization and related organizations

(1) DAVID BAMMERT......................................................................
PRESIDENT

30.00
.................

100,000

(2) DAVID DEROSA......................................................................
SECRETARY/TR

6.00
.................

(3) MICHAEL LINN......................................................................
DIRECTOR/VIC

8.00
.................

(4) NANCY LINN......................................................................
DIRECTOR/CHA

6.00
.................

(5) FRANCIS SWEENEY......................................................................
DIRECTOR

6.00
.................

(A)
Name and title

(B)
Average hours per week (list any hours for related organizations below dotted line)

(D)
Reportable compensation from the organization (W-2/1099-MISC/1099-NEC)

(E)
Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC)

(F)
Estimated amount of other compensation from the organization and related organizations

(A)
Name and business address

(B)
Description of services

FERRARI NORTH AMERICA

250 SYLVAN AVE
ENGLEWOOD CLIFFS,NJ07632

PUB AWARENESS

230,000

JACKSON LEE RACING

6860 ROUNDROCK CT
AVON,IN46123

BRANDAMBASSADOR

141,222

Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization MediumBullet

- TIN:

SCHEDULE A
(Form 990)

Department of the Treasury
Internal Revenue Service

Public Charity Status and Public Support

Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
right arrow

Attach to Form 990 or Form 990-EZ.
right arrow

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2022

Open to Public
Inspection

Name of the organization

RELAPSING POLYCHONDRITIS AWARENESS
AND SUPPORT FOUNDATION INC

Employer identification number

46-2458916

Part I

Reason for Public Charity Status (All organizations must complete this part.) See instructions.

The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)

A church, convention of churches, or association of churches described in section 170(b)(1)(A)(i).

A school described in section 170(b)(1)(A)(ii). (Attach Schedule E (Form 990).)

A hospital or a cooperative hospital service organization described in section 170(b)(1)(A)(iii).

A medical research organization operated in conjunction with a hospital described in section 170(b)(1)(A)(iii). Enter the hospital's name, city, and state:

An organization operated for the benefit of a college or university owned or operated by a governmental unit described in section 170(b)(1)(A)(iv). (Complete Part II.)

A federal, state, or local government or governmental unit described in section 170(b)(1)(A)(v).

An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi). (Complete Part II.)

A community trust described in section 170(b)(1)(A)(vi). (Complete Part II.)

An agricultural research organization described in 170(b)(1)(A)(ix) operated in conjunction with a land-grant college or university or a non-land grant college of agriculture. See instructions. Enter the name, city, and state of the college or university:

An organization that normally receives: (1) more than 33 1/3% of its support from contributions, membership fees, and gross receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 33 1/3% of its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)

An organization organized and operated exclusively to test for public safety. See section 509(a)(4).

An organization organized and operated exclusively for the benefit of, to perform the functions of, or to carry out the purposes of one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2). See section 509(a)(3). Check the box on lines 12a through 12d that describes the type of supporting organization and complete lines 12e, 12f, and 12g.

Type I. A supporting organization operated, supervised, or controlled by its supported organization(s), typically by giving the supported organization(s) the power to regularly appoint or elect a majority of the directors or trustees of the supporting organization. You must complete Part IV, Sections A and B.

Type II. A supporting organization supervised or controlled in connection with its supported organization(s), by having control or management of the supporting organization vested in the same persons that control or manage the supported organization(s). You must complete Part IV, Sections A and C.

Type III functionally integrated. A supporting organization operated in connection with, and functionally integrated with, its supported organization(s) (see instructions). You must complete Part IV, Sections A, D, and E.

Type III non-functionally integrated. A supporting organization operated in connection with its supported organization(s) that is not functionally integrated. The organization generally must satisfy a distribution requirement and an attentiveness requirement (see instructions). You must complete Part IV, Sections A and D, and Part V.

Check this box if the organization received a written determination from the IRS that it is a Type I, Type II, Type III functionally integrated, or Type III non-functionally integrated supporting organization.

Enter the number of supported organizations ...............................

Provide the following information about the supported organization(s).

(i) Name of supported organization	(ii) EIN	(iv) Is the organization listed in your governing document?		(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)
(i) Name of supported organization	(ii) EIN	Yes	No	(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)


Total

For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.

Cat. No. 11285F

Schedule A (Form 990) 2022

Page 2

Part II

Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2018	(b) 2019	(c) 2020	(d) 2021	(e) 2022	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") ..
2	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf....
3	The value of services or facilities furnished by a governmental unit to the organization without charge..
4	Total. Add lines 1 through 3
5	The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f) ..
6	Public support. Subtract line 5 from line 4.

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2018	(b) 2019	(c) 2020	(d) 2021	(e) 2022	(f) Total
7	Amounts from line 4..
8	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...
9	Net income from unrelated business activities, whether or not the business is regularly carried on..
10	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.)..
11	Total support. Add lines 7 through 10

Gross receipts from related activities, etc. (see instructions) ..................

First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here ........................................ right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2022 (line 6, column (f) divided by line 11, column (f)) .........

Public support percentage for 2020 Schedule A, Part II, line 14 ...............

16a

33 1/3% support test—2022. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization ....................... right arrow

33 1/3% support test—2021. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization ..................... right arrow

17a

10%-facts-and-circumstances test—2022. If the organization did not check a box on line 13, 16a, or 16b, and line 14 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ............ right arrow

10%-facts-and-circumstances test—2021. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line 15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ............ right arrow

Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow

Schedule A (Form 990) 2022

Page 3

Part III

Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2018	(b) 2019	(c) 2020	(d) 2021	(e) 2022	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .	99,437	847,506	2,118,700	1,004,262	982,259	5,052,164
2	Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose
3	Gross receipts from activities that are not an unrelated trade or business under section 513 .....
4	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5	The value of services or facilities furnished by a governmental unit to the organization without charge
6	Total. Add lines 1 through 5	99,437	847,506	2,118,700	1,004,262	982,259	5,052,164
7a	Amounts included on lines 1, 2, and 3 received from disqualified persons
b	Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c	Add lines 7a and 7b..
8	Public support. (Subtract line 7c from line 6.)						5,052,164

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2018	(b) 2019	(c) 2020	(d) 2021	(e) 2022	(f) Total
9	Amounts from line 6...	99,437	847,506	2,118,700	1,004,262	982,259	5,052,164
10a	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..	1	8	1,157	2,348	5,456	8,970
b	Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c	Add lines 10a and 10b.	1	8	1,157	2,348	5,456	8,970
11	Net income from unrelated business activities not included on line 10b, whether or not the business is regularly carried on.	4,347					4,347
12	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..
13	Total support. (Add lines 9, 10c, 11, and 12.)..	103,785	847,514	2,119,857	1,006,610	987,715	5,065,481

First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here................................................. right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2022 (line 8, column (f) divided by line 13, column (f)) .........

99.740 %

Public support percentage from 2021 Schedule A, Part III, line 15 ...............

99.540 %

Section D. Computation of Investment Income Percentage

Investment income percentage for 2022 (line 10c, column (f) divided by line 13, column (f)) ......

0 %

Investment income percentage from 2021 Schedule A, Part III, line 17 .............

0 %

19a

33 1/3% support tests-2022. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ....... right arrow

33 1/3% support tests—2021. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ..... right arrow

Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions .... right arrow

Schedule A (Form 990) 2022

Page 4

Part IV

Supporting Organizations

(Complete only if you checked a box on line 12 of Part I. If you checked box 12a, of Part I, complete Sections A and B. If you checked box 12b, of Part I, complete Sections A and C. If you checked box 12c, of Part I, complete Sections A, D, and E. If you checked box12d, of Part I, complete Sections A and D, and complete Part V.)

Section A. All Supporting Organizations

Yes

Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.

Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).

Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer lines 3b and 3c below.

Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.

Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.

Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked box 12a or 12b in Part I, answer lines 4b and 4c below.

Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.

Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.

Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer lines 5b and 5c below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).

Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?

Substitutions only. Was the substitution the result of an event beyond the organization's control?

Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.

Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990) .

Did the organization make a loan to a disqualified person (as defined in section 4958) not described on line 7? If “Yes,” complete Part I of Schedule L (Form 990).

Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons, as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.

Did one or more disqualified persons (as defined on line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.

Did a disqualified person (as defined on line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.

10a

Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.

10a

Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).

10b

Schedule A (Form 990) 2022

Page 5

Part IV

Supporting Organizations (continued)

Yes

Has the organization accepted a gift or contribution from any of the following persons?

A person who directly or indirectly controls, either alone or together with persons described on lines 11b and 11c below, the governing body of a supported organization?

11a

A family member of a person described on 11a above?

11b

A 35% controlled entity of a person described on line 11a or 11b above? If “Yes” to 11a, 11b, or 11c, provide detail in Part VI.

11c

Section B. Type I Supporting Organizations

Yes

Did the officers, directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.

Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.

Section C. Type II Supporting Organizations

Yes

Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).

Section D. All Type III Supporting Organizations

Yes

Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?

Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).

By reason of the relationship described in line 2 above, did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.

Section E. Type III Functionally-Integrated Supporting Organizations

Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):

The organization satisfied the Activities Test. Complete line 2 below.

The organization is the parent of each of its supported organizations. Complete line 3 below.

The organization supported a governmental entity. Describe in Part VI how you supported a government entity (see instructions)

Activities Test. Answer lines 2a and 2b below.

Yes

Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.

Did the activities described on line 2a, above constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.

Parent of Supported Organizations. Answer lines 3a and 3b below.

Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations?If "Yes" or "No", provide details in Part VI.

Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.

Schedule A (Form 990) 2022

Page 6

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations

Check here if the organization satisfied the Integral Part Test as a qualifying trust on Nov. 20, 1970 (explain in Part VI). See instructions. All other Type III non-functionally integrated supporting organizations must complete Sections A through E.

	Section A - Adjusted Net Income		(A) Prior Year	(B) Current Year (optional)
1	Net short-term capital gain	1
2	Recoveries of prior-year distributions	2
3	Other gross income (see instructions)	3
4	Add lines 1 through 3	4
5	Depreciation and depletion	5
6	Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions)	6
7	Other expenses (see instructions)	7
8	Adjusted Net Income (subtract lines 5, 6 and 7 from line 4)	8

	Section B - Minimum Asset Amount		(A) Prior Year	(B) Current Year (optional)
1	Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year):	1
a	Average monthly value of securities	1a
b	Average monthly cash balances	1b
c	Fair market value of other non-exempt-use assets	1c
d	Total (add lines 1a, 1b, and 1c)	1d
e	Discount claimed for blockage or other factors (explain in detail in Part VI):
2	Acquisition indebtedness applicable to non-exempt use assets	2
3	Subtract line 2 from line 1d	3
4	Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions).	4
5	Net value of non-exempt-use assets (subtract line 4 from line 3)	5
6	Multiply line 5 by 0.035	6
7	Recoveries of prior-year distributions	7
8	Minimum Asset Amount (add line 7 to line 6)	8

	Section C - Distributable Amount		Current Year
1	Adjusted net income for prior year (from Section A, line 8, Column A)	1
2	Enter 85% of line 1	2
3	Minimum asset amount for prior year (from Section B, line 8, Column A)	3
4	Enter greater of line 2 or line 3	4
5	Income tax imposed in prior year	5
6	Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions)	6

Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (see instructions)

Schedule A (Form 990) 2022

Page 7

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)

Section D - Distributions		Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes	1
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity	2
3 Administrative expenses paid to accomplish exempt purposes of supported organizations	3
4 Amounts paid to acquire exempt-use assets	4
5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI)	5
6 Other distributions (describe in Part VI). See instructions	6
7Total annual distributions. Add lines 1 through 6.	7
8 Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions	8
9 Distributable amount for 2022 from Section C, line 6	9
10 Line 8 amount divided by Line 9 amount	10

Section E - Distribution Allocations (see instructions)		(i) Excess Distributions	(ii) Underdistributions Pre-2022	(iii) Distributable Amount for 2022
1 Distributable amount for 2022 from Section C, line 6
2 Underdistributions, if any, for years prior to 2022 (reasonable cause required-- explain in Part VI). See instructions.
3 Excess distributions carryover, if any, to 2022:
a From 2017.......
b From 2018.......
c From 2019.......
d From 2020.......
e From 2021.......
fTotal of lines 3a through e
g Applied to underdistributions of prior years
h Applied to 2022 distributable amount
i Carryover from 2017 not applied (see instructions)
j Remainder. Subtract lines 3g, 3h, and 3i from line 3f.
4Distributions for 2022 from Section D, line 7:
$
a Applied to underdistributions of prior years
b Applied to 2022 distributable amount
c Remainder. Subtract lines 4a and 4b from line 4.
5 Remaining underdistributions for years prior to 2022, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions.
6 Remaining underdistributions for 2022. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions.
7 Excess distributions carryover to 2023. Add lines 3j and 4c.
8 Breakdown of line 7:
a Excess from 2018.....
b Excess from 2019.....
c Excess from 2020.....
d Excess from 2021.....
e Excess from 2022.....

Schedule A (Form 990) (2022)

Schedule A (Form 990) 2022

Page 8

Part VI

Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).

Facts And Circumstances Test

Return Reference	Explanation

Schedule A (Form 990) 2022

Additional Data

Software ID:
Software Version:

- TIN:

Schedule B
(Form 990)

Department of the Treasury
Internal Revenue Service

Schedule of Contributors

Attach to Form 990, 990-EZ, or 990-PF.

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2022

Name of the organization

RELAPSING POLYCHONDRITIS AWARENESS
AND SUPPORT FOUNDATION INC

Employer identification number

46-2458916

Organization type (check one):

Filers of:

Section:

Form 990 or 990-EZ

501(c)( ) (enter number) organization

4947(a)(1) nonexempt charitable trust not treated as a private foundation

527 political organization

Form 990-PF

501(c)(3) exempt private foundation

4947(a)(1) nonexempt charitable trust treated as a private foundation

501(c)(3) taxable private foundation

Check if your organization is covered by the General Rule or a Special Rule.
Note: Only a section 501(c)(7), (8), or (10) organization can check boxes for both the General Rule and a Special Rule. See instructions.

General Rule

For an organization filing Form 990, 990-EZ, or 990-PF that received, during the year, contributions totaling $5,000 or more (in money or other property) from any one contributor. Complete Parts I and II. See instructions for determining a contributor's total contributions.

Special Rules

For an organization described in section 501(c)(3) filing Form 990 or 990-EZ that met the 33¹/3% support test of the regulations
under sections 509(a)(1) and 170(b)(1)(A)(vi), that checked Schedule A (Form 990 or 990-EZ), Part II, line 13, 16a, or 16b, and that received from any one contributor, during the year, total contributions of the greater of (1) $5,000 or (2) 2% of the amount on (i) Form 990, Part VIII, line 1h, or (ii) Form 990-EZ, line 1. Complete Parts I and II.

For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, total contributions of more than $1,000 exclusively for religious, charitable, scientific, literary, or educational purposes, or for the prevention of cruelty to children or animals. Complete Parts I, II, and III.

For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, contributions exclusively for religious, charitable, etc., purposes, but no such contributions totaled more than $1,000. If this box is checked, enter here the total contributions that were received during the year for an exclusively religious, charitable, etc., purpose. Don't complete any of the parts unless the General Rule applies to this organization because it received nonexclusively religious, charitable, etc., contributions totaling $5,000 or more during the year ......... Arrow Bullet

Caution: An organization that isn't covered by the General Rule and/or the Special Rules doesn't file Schedule B (Form 990,
990-EZ, or 990-PF), but it must answer “No” on Part IV, line 2, of its Form 990; or check the box on line H of its Form 990-EZ
or on its Form 990PF, Part I, line 2, to certify that it doesn't meet the filing requirements of Schedule B (Form 990,
990-EZ, or 990-PF).

For Paperwork Reduction Act Notice, see the Instructions
for Form 990, 990-EZ, or 990-PF.

Cat. No. 30613XSchedule B (Form 990) (2022)

Schedule B (Form 990) (2022) Page 2

Name of organization RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC

Part I Contributors	Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
RESTRICTED	,	$ RESTRICTED	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
Schedule B (Form 990) (2022)

Schedule B (Form 990) (2022)

Page 3

Name of organization RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC		Employer identification number 46-2458916

Part II	Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
Schedule B (Form 990) (2022)

Schedule B (Form 990) (2022)

Page 4


Name of organization RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC			Employer identification number 46-2458916
Part III Exclusively religious, charitable, etc., contributions to organizations described in section 501(c)(7), (8), or (10) that total more than $1,000 for the year from any one contributor. Complete columns (a) through (e) and the following line entry. For organizations completing Part III, enter the total of exclusively religious, charitable, etc., contributions of $1,000 or less for the year. (Enter this information once. See instructions.) $ Use duplicate copies of Part III if additional space is needed.

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

Schedule B (Form 990) (2022)

Additional Data

Software ID:
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- TIN:

Note: To capture the full content of this document, please select landscape mode (11" x 8.5") when printing.

Schedule I
(Form 990)

Department of the Treasury
Internal Revenue Service

Grants and Other Assistance to Organizations,
Governments and Individuals in the United States

Complete if the organization answered "Yes," on Form 990, Part IV, line 21 or 22.
lBullet

Attach to Form 990.
lBullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2022

Open to Public
Inspection

Name of the organization
RELAPSING POLYCHONDRITIS AWARENESS
AND SUPPORT FOUNDATION INC

Employer identification number
46-2458916

Part I

General Information on Grants and Assistance

Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ........................

Yes No

Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.

Part II

Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" on Form 990, Part IV, line 21, for any recipient

that received more than $5,000. Part II can be duplicated if additional space is needed.

(a) Name and address of organization or government	(d) Amount of cash grant	(h) Purpose of grant or assistance
(1) NYU LANGONE HEALTH 550 FIRST AVENUE HCC-15 NEW YORK,NY10016	125,000	RESEARCH
(2) UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER PO BOX 4266 HOUSTON,TX772104266	207,400	RESEARCH
(3) FRIENDS OF PATIENTS AT THE NIH FRIENDS OF PATIENTS AT THE NIH PO BOX 34139 BETHESDA,MD20827	10,000	RESEARCH

Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................. Bullet Image

Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50055P

Schedule I (Form 990) 2022

Page 2

Part III

Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" on Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance	(b) Number of recipients	(c) Amount of cash grant	(d) Amount of noncash assistance	(e) Method of valuation (book, FMV, appraisal, other)	(f) Description of noncash assistance

(1)
(2)
(3)
(4)
(5)
(6)
(7)

Part IV

Supplemental Information. Provide the information required in Part I, line 2; Part III, column (b); and any other additional information.

Return Reference	Explanation

Schedule I (Form 990) 2022

Additional Data

Software ID:
Software Version:

- TIN:

SCHEDULE O
(Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
MediumBullet

Attach to Form 990 or 990-EZ.
MediumBullet

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2021

Open to Public
Inspection

Name of the organization

RELAPSING POLYCHONDRITIS AWARENESS
AND SUPPORT FOUNDATION INC

Employer identification number

46-2458916

Return Reference	Explanation
FORM 990 - ORGANIZATION'S MISSION	THE RP FOUNDATION'S MISSION IS TO: (A) INCREASE AWARENESS ABOUT RELAPSING POLYCHONDRITIS; (B) PROVIDE SUPPORT (PRIMARILY THROUGH THE USE OF THE INTERNET, SOCIAL MEDIA, AND PATIENT ADVOCACY PROGRAMS) FOR THOSE WHO ARE AFFECTED BY RELAPSING POLYCHONDRITIS, SUPPORT RESEARCH TO ADVANCE A CURE FOR RELAPSING POLYCHONDRITIS; (C) PROMOTE QUALITY CARE FOR RELAPSING POLYCHONDRITIS PATIENTS; AND (D) ENGAGE IN SUCH OTHER ACTIVITIES IN CONNECTION THEREWITH THAT THE BOARD OF DIRECTORS MAY AUTHORIZE, IN ALL CASES SUBJECT TO THE PROVISION OF SECTION 501(C)(3) OF THE INTERNAL REVENU CODE OF 1986, AS AMENDED, OR THE CORRESPONDING PROVISIONS OF ANY SUBSEQUENT FEDERAL TAX LAW (THE "CODE").
FORM 990, PAGE 2, PART III, LINE 4A	AWARENESS: THE RELAPSING POLYCHONDRITIS FOUNDATION (RP FOUNDATION) PARTNERED WITH RACE FOR RP AND SIX INTERNATIONALLY RECOGNIZED MOTORSPORTS TEAMS TO PROUDLY SHOWCASE OUR LOGO AND PROMOTE OUR PURPOSE. THE FOUNDATION LAUNCHED FULL THROTTLE, A NEW RP AWARENESS PODCAST, HOSTED BY GREG CREAMER. FULL THROTTLE PROVIDED EXCLUSIVE INTERVIEWS AND INSIGHTS REGARDING RP, RELATED AUTOIMMUNE DISEASES, AND RACING TO ENGAGE AND ENERGIZE MOTORSPORTS FANS. IT ALSO FEATURED FOUNDATION-SUPPORTED COLLABORATIVE RESEARCH PROJECTS THAT ARE ADVANCING CLINICAL KNOWLEDGE REGARDING RP AND USHERING IN A NEW ERA OF HOPE FOR PATIENTS WITH RP. CBS SPORTS INTERVIEWED THE RP FOUNDATION DURING THE NASHVILLE GRAND PRIX AND FEATURED RACE FOR RP DURING THE FERRARI CHALLENGE NORTH AMERICA. THE RP FOUNDATION LAUNCHED A YOUTUBE CHANNEL AND IGNITED COMMUNICATION VIA SOCIAL PLATFORMS AND AN ENEWSLETTER TO INCREASE AWARENESS AND SUPPORT FOR THE INNOVATIVE RESEARCH THAT THE FOUNDATION IS INVESTING IN. AS A RESULT OF ROBUST COMMUNICATIONS ACROSS ALL SOCIAL MEDIA CHANNELS, THE RP FOUNDATION EXPERIENCED SUBSTANTIAL GROWTH IN THE NUMBER OF FOLLOWERS, WITH ENEWSLETTERS DEMONSTRATING A 60% OPEN RATE (SIGNIFICANTLY EXCEEDING INDUSTRY STANDARDS).
FORM 990, PAGE 2, PART III, LINE 4B	RESEARCH: THE RP FOUNDATION MADE SIGNIFICANT INVESTMENTS IN COLLABORATIVE RESEARCH THAT HELPED DRIVE RP AND RELATED AUTOIMMUNE DISEASES TO THE FOREFRONT OF GROUND-BREAKING DISCOVERIES. THE FOUNDATION SUPPORTED RESEARCH BEING CONDUCTED AT THE UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER AND NYU GROSSMAN SCHOOL OF MEDICINE TO SEARCH FOR GENETIC MARKERS IN PATIENTS WITH RP-RELATED AUTOIMMUNE DISEASE AND BONE MARROW DISEASES. THIS STUDY IS EXPLORING THE MECHANISMS OF PROGRESSION OF RELAPSING POLYCHONDRITIS (RP) TO MYELODYSPLASTIC SYNDROMES (MDS) AND BLOOD-BASED MALIGNANCIES AND WILL MAP THE HEMATOLOGIC CHANGES THAT TAKE PLACE DURING THE TRAJECTORY OF DISEASE USING STATE-OF-THE-ART GENETIC AND TRANSCRIPTOMIC APPROACHES. THE FOUNDATION'S INVESTMENTS IN THE NYU GROSSMAN SCHOOL OF MEDICINE AND NIH VEXAS (VACUOLES, E1 ENZYME, X-LINKED, AUTOINFLAMMATORY, SOMATIC) SYNDROME RESEARCH CONTINUES TO ADVANCE SCIENTIFIC KNOWLEDGE AND IMPROVE PATIENT CARE. IN 2022, VEXAS WAS DEEMED THE "YEAR'S BEST ADVANCEMENT IN HEMATOLOGY-RELATED DIAGNOSES" BY THE AMERICAN SOCIETY OF HEMATOLOGY. CLINICAL SCIENTISTS BELIEVE KNOWLEDGE GAINED FROM VEXAS RESEARCH WILL POTENTIALLY IMPROVE THE CLASSIFICATION OF BLOOD-BASED AND ADULT-ONSET RECURRENT AUTOIMMUNE DISEASES LIKE RELAPSING POLYCHONDRITIS. VEXAS SYNDROME RESEARCH ALSO BROUGHT SEVERAL AUTOIMMUNE DISEASES CLOSER TO THE DISCOVERY OF A BIOMARKER BY DEMONSTRATING THAT AUTOIMMUNE DISORDERS PREVIOUSLY THOUGHT TO BE UNRELATED TO EACH OTHER, LIKE RELAPSING POLYCHONDRITIS (RP), POLYARTERITIS NODOSA, SWEET SYNDROME, AND GIANT CELL ARTERITIS, SHARE A COMMON ACQUIRED, SOMATIC MUTATION IN THE UBA1 GENE. TWO GLOBALLY RENOWNED HEALTHCARE ORGANIZATIONS, THE INTERNATIONAL CONSENSUS CLASSIFICATION SYSTEM (ICC) AND THE WORLD HEALTH ORGANIZATION (WHO), ADDED VEXAS TO THEIR CLASSIFICATION SYSTEMS FOR HEMATOLOGICAL CANCERS. THE ICC LISTED VEXAS UNDER THE SPECTRUM OF PRE-MALIGNANT "CLONAL CYTOPENIAS,- AND THE WHO ACKNOWLEDGED THE CLOSE RELATIONSHIP BETWEEN SYSTEMIC INFLAMMATION, CLONAL SOMATIC MUTATIONS, AND MYELOID MALIGNANCIES BASED ON DATA FROM VEXAS WITH UBA1 MUTATIONS AND OTHER EMERGING ENTITIES. THE INCLUSION OF VEXAS IN THE CLASSIFICATION RESOURCES THAT CLINICIANS USE TO CATEGORIZE BLOOD-BASED CANCERS IS EXTREMELY IMPORTANT. IT INCREASES AWARENESS OF VEXAS AND RELATED SYSTEMIC INFLAMMATORY DISEASES AMONG CLINICIANS AND PATHOLOGISTS AND PROMOTES A HOLISTIC APPROACH TO PATIENT CARE, FROM DIAGNOSIS TO POST- DIAGNOSIS MANAGEMENT. THE RP FOUNDATION INVESTED IN THE NEXT PHASE OF VEXAS RESEARCH THAT'S SEARCHING FOR ADDITIONAL GENETIC MUTATIONS IN PATIENTS WITH AUTOIMMUNE DISEASES AND IS BEING CONDUCTED BY A COLLABORATIVE NETWORK OF TALENTED RESEARCHERS IN THE INFLAMMATORY DISEASE GENETICS PROGRAM AT NYU LANGONE AND THE RELAPSING POLYCHONDRITIS AND AUTOINFLAMMATORY CLINICS AT THE NATIONAL INSTITUTES OF HEALTH (NIH). THE RP FOUNDATION ALSO ASSISTED IN THE ESTABLISHMENT OF THE VEXAS FOUNDATION TO HELP PROVIDE A RESOURCE FOR VEXAS PATIENTS, RESEARCHERS, AND CLINICIANS. ADDITIONALLY, THE FOUNDATION SUPPORTED PURPOSE BIOBANK WHICH WILL CREATE A CENTRALIZED, STATE-OF-THE-ART COLLECTION OF CLINICAL AND RESEARCH DATA SO RESEARCHERS CAN VASTLY IMPROVE OUR COLLECTIVE UNDERSTANDING OF RELAPSING POLYCHONDRITIS AND RELATED DISEASES. THE FOUNDATION ALSO SUPPORTED THE "FRIENDS OF PATIENTS AT NIH RP FUND" WHICH IS ADMINISTERED BY THE NIH AND PROVIDES FUNDING FOR TRAVEL AND LODGING TO ELIGIBLE PATIENTS TRAVELING TO THE NIH FOR TREATMENT.
FORM 990, PAGE 2, PART III, LINE 4C	EDUCATION: THE RP FOUNDATION SUPPORTED SEVERAL RP PATIENTS, ADVOCATES, AND RESEARCHERS WHO EXHIBITED AT THIS YEAR'S RARE DISEASE DAY AT THE NATIONAL INSTITUTES OF HEALTH. THIS YEAR'S RARE DISEASE DAY EXHIBITS INCLUDED A PRESENTATION BY MIKE LINN, DIRECTOR OF THE RP FOUNDATION, AND DR. MARCELA FERRADA, RESEARCHER AT THE NIH. THEIR PRESENTATION TITLED, "WHERE THERE IS RESEARCH, THERE IS HOPE", HIGHLIGHTED THE COLLABORATIVE RESEARCH INITIATIVES THE RP FOUNDATION SUPPORTS AND DISCUSSED HOW THESE PROJECTS BRING PATIENTS HOPE. THE FOUNDATION ALSO SUPPORTED RP PATIENT, MELISSA ALLMAN, PH.D.'S SCIENTIFIC POSTER TITLED, "IT IS DUE TO STRESS - BUT WHICH TYPE OF STRESS?" WHICH WAS SELECTED FOR DISPLAY AT THE AMERICAN COLLEGE OF RHEUMATOLOGY'S (ACR) ANNUAL MEETING IN PHILADELPHIA, PA.
FORM 990, PAGE 2, PART III, LINE 4D	FUNDRAISING FUNDRAISING FUELS AND DRIVES THE RP FOUNDATION'S RESEARCH INITIATIVES. IN 2022, THE FOUNDATION INVESTED IN INNOVATIVE, ENGAGING WAYS TO RAISE FUNDS. THE HIGHLIGHTS INCLUDE: "INAUGURAL RP WARRIOR 5K WALK. ORGANIZED BY RP WARRIOR, DAN SMITH, THE INAUGURAL 5K WARRIOR WALK WAS A TREMENDOUS SUCCESS. FROM CALIFORNIA TO FLORIDA AND EVEN CANADA TO ISRAEL, RP WARRIORS AND THEIR SUPPORTERS SHOWED UP IN A BIG WAY. TWENTY-FIVE TEAMS AND DOZENS OF INDIVIDUALS PARTICIPATED IN THE WALK, AND ENGAGED MORE THAN 260 DONORS TO FUEL RELAPSING POLYCHONDRITIS RESEARCH. "INAUGURAL ERACE FOR RP. RACE FOR RP PARTNERED WITH PODIUM ESPORTS AND MONDAY NIGHT RACING FOR THE INAUGURAL SIMULATION ERACING CHARITY EVENT. THE EVENT WAS HELD ON THE IRACING.COM PLATFORM AT DAYTONA INTERNATIONAL SPEEDWAY'S ROAD COURSE IN A TWO-HOUR TIMED ENDURANCE RACE. THANKS TO THE GENEROSITY OF A LONG-STANDING PARTNER WHO PROVIDED A 3:1 MATCH FOR GIFTS RECEIVED, THE SIM ERACE RAISED 401,000 TO SUPPORT RP AND RELATED AUTOIMMUNE RESEARCH. "NEW RP FOUNDATION WEBSITE. THE RP FOUNDATION DESIGNED AND IMPLEMENTED A NEW, HIGHLY ENGAGING WEBSITE TO INCREASE AWARENESS REGARDING THE BOLD, PURPOSEFUL RESEARCH WE'RE INVESTING IN.
FORM 990, PAGE 6, PART VI, LINE 2	MICHAEL LINN NANCY LINN VICE CHAIR CHAIR SIBLINGS
FORM 990, PAGE 6, PART VI, LINE 11B	THE FORM 990 IS PROVIDED TO THE BOARD WHICH IS REVIEWED AND DISCUSSED AT A MEETING.
FORM 990, PAGE 6, PART VI, LINE 12C	POLICY IS EMAILED, SIGNED BY MEMBERS AND RETAINED BY TREASURER. THIS IS DONE ANNUALLY.
FORM 990, PAGE 6, PART VI, LINE 15A	AN INFORMAL MARKET SURVEY REGARDING PAY RATES AND RESPONSIBILITIES FOR EQUIVALENT DIRECTOR POSITIONS IN SIMILAR NON-PROFIT ORGANIZATIONS WAS PERFORMED. THE RESPONSIBILITIES/ACCOMPLISHMENTS OF THE CURRENT CONTRACTUAL DIRECTOR/PRESIDENT WAS REVIEWED. COMPENSATION WAS BASED ON THE BOARD DISCUSSION AND MARKET SURVEY.
FORM 990, PAGE 6, PART VI, LINE 15B	SEE RESPONSE TO 15A. THERE ARE NO OTHER EMPLOYEES.
FORM 990, PAGE 6, PART VI, LINE 18	ALSO AVAILABLE ON WWW.GUIDESTAR.ORG
FORM 990, PAGE 6, PART VI, LINE 19	GOVERNING DOCUMENTS ARE AVAILABLE ON REQUEST.

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 51056K

Schedule O (Form 990) 2021

Additional Data

Software ID:
Software Version:

1	Briefly describe the organization’s mission or most significant activities: THE RP FOUNDATION'S MISSION IS TO: (A) INCREASE AWARENESS ABOUT RELAPSING POLYCHONDRITIS; (B) PROVIDE SUPPORT (PRIMARILY THROUGH THE USE OF THE INTERNET, SOCIAL MEDIA, AND PATIENT ADVOCACY PROGRAMS) FOR THOSE WHO ARE AFFECTED BY RELAPSING POLYCHONDRITIS, SUPPORT RESEARCH TO ADVANCE A CURE FOR RELAPSING POLYCHONDRITIS; (C) PROMOTE QUALITY CARE FOR RELAPSING POLYCHONDRITIS PATIENTS; AND (D) ENGAGE IN SUCH OTHER ACTIVITIES IN CONNECTION THEREWITH THAT THE BOARD OF DIRECTORS MAY AUTHORIZE, IN ALL CASES SUBJECT TO THE PROVISION OF SECTION 501(C)(3) OF THE INTERNAL REVENU CODE OF 1986, AS AMENDED, OR THE CORRESPONDING PROVISIONS OF ANY SUBSEQUENT FEDERAL TAX LAW (THE "CODE").
2	Check this box
3	Number of voting members of the governing body (Part VI, line 1a) ........	3	5
4	Number of independent voting members of the governing body (Part VI, line 1b) .....	4	5
5	Total number of individuals employed in calendar year 2021 (Part V, line 2a) ......	5	1
6	Total number of volunteers (estimate if necessary) .............	6
7a	Total unrelated business revenue from Part VIII, column (C), line 12 ........	7a	0
b	Net unrelated business taxable income from Form 990-T, Part I, line 11 .........	7b

		Prior Year	Current Year
8	Contributions and grants (Part VIII, line 1h) .........	1,004,262	982,259
9	Program service revenue (Part VIII, line 2g) .........		0
10	Investment income (Part VIII, column (A), lines 3, 4, and 7d ) ....	2,348	5,456
11	Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e)		0
12	Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)	1,006,610	987,715
13	Grants and similar amounts paid (Part IX, column (A), lines 1–3 )...	100,000	342,400
14	Benefits paid to or for members (Part IX, column (A), line 4).....		0
15	Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10)	80,000	134,562
16a	Professional fundraising fees (Part IX, column (A), line 11e) .....		0
b	Total fundraising expenses (Part IX, column (D), line 25) 94,867
17	Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e)....	926,195	913,118
18	Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25)	1,106,195	1,390,080
19	Revenue less expenses. Subtract line 18 from line 12.......	-99,585	-402,365
		Beginning of Current Year	End of Year
20	Total assets (Part X, line 16).............	1,026,239	626,337
21	Total liabilities (Part X, line 26).............		2,463
22	Net assets or fund balances. Subtract line 21 from line 20.....	1,026,239	623,874

Sign Here

	Signature of officer	Date

	Type or print name and title


4a	(Code: ) (Expenses $ 426,776 including grants of $ ) (Revenue $ )
	AWARENESS: THE RELAPSING POLYCHONDRITIS FOUNDATION (RP FOUNDATION) PARTNERED WITH RACE FOR RP AND SIX INTERNATIONALLY RECOGNIZED MOTORSPORTS TEAMS TO PROUDLY SHOWCASE OUR LOGO AND PROMOTE OUR PURPOSE. THE FOUNDATION LAUNCHED FULL THROTTLE, A NEW RP AWARENESS PODCAST, HOSTED BY GREG CREAMER. FULL THROTTLE PROVIDED EXCLUSIVE INTERVIEWS AND INSIGHTS REGARDING RP, RELATED AUTOIMMUNE DISEASES, AND RACING TO ENGAGE AND ENERGIZE MOTORSPORTS FANS. IT ALSO FEATURED FOUNDATION-SUPPORTED COLLABORATIVE RESEARCH PROJECTS THAT ARE ADVANCING CLINICAL KNOWLEDGE REGARDING RP AND USHERING IN A NEW ERA OF HOPE FOR PATIENTS WITH RP. CBS SPORTS INTERVIEWED THE RP FOUNDATION DURING THE NASHVILLE GRAND PRIX AND FEATURED RACE FOR RP DURING THE FERRARI CHALLENGE NORTH AMERICA. THE RP FOUNDATION LAUNCHED A YOUTUBE CHANNEL AND IGNITED COMMUNICATION VIA SOCIAL PLATFORMS AND AN ENEWSLETTER TO INCREASE AWARENESS AND SUPPORT FOR THE INNOVATIVE RESEARCH THAT THE FOUNDATION IS INVESTING IN. AS A RESULT OF ROBUST COMMUNICATIONS ACROSS ALL SOCIAL MEDIA CHANNELS, THE RP FOUNDATION EXPERIENCED SUBSTANTIAL GROWTH IN THE NUMBER OF FOLLOWERS, WITH ENEWSLETTERS DEMONSTRATING A 60% OPEN RATE (SIGNIFICANTLY EXCEEDING INDUSTRY STANDARDS).

4b	(Code: ) (Expenses $ 536,130 including grants of $ 342,400 ) (Revenue $ )
	RESEARCH: THE RP FOUNDATION MADE SIGNIFICANT INVESTMENTS IN COLLABORATIVE RESEARCH THAT HELPED DRIVE RP AND RELATED AUTOIMMUNE DISEASES TO THE FOREFRONT OF GROUND-BREAKING DISCOVERIES. THE FOUNDATION SUPPORTED RESEARCH BEING CONDUCTED AT THE UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER AND NYU GROSSMAN SCHOOL OF MEDICINE TO SEARCH FOR GENETIC MARKERS IN PATIENTS WITH RP-RELATED AUTOIMMUNE DISEASE AND BONE MARROW DISEASES. THIS STUDY IS EXPLORING THE MECHANISMS OF PROGRESSION OF RELAPSING POLYCHONDRITIS (RP) TO MYELODYSPLASTIC SYNDROMES (MDS) AND BLOOD-BASED MALIGNANCIES AND WILL MAP THE HEMATOLOGIC CHANGES THAT TAKE PLACE DURING THE TRAJECTORY OF DISEASE USING STATE-OF-THE-ART GENETIC AND TRANSCRIPTOMIC APPROACHES. THE FOUNDATION'S INVESTMENTS IN THE NYU GROSSMAN SCHOOL OF MEDICINE AND NIH VEXAS (VACUOLES, E1 ENZYME, X-LINKED, AUTOINFLAMMATORY, SOMATIC) SYNDROME RESEARCH CONTINUES TO ADVANCE SCIENTIFIC KNOWLEDGE AND IMPROVE PATIENT CARE. IN 2022, VEXAS WAS DEEMED THE "YEAR'S BEST ADVANCEMENT IN HEMATOLOGY-RELATED DIAGNOSES" BY THE AMERICAN SOCIETY OF HEMATOLOGY. CLINICAL SCIENTISTS BELIEVE KNOWLEDGE GAINED FROM VEXAS RESEARCH WILL POTENTIALLY IMPROVE THE CLASSIFICATION OF BLOOD-BASED AND ADULT-ONSET RECURRENT AUTOIMMUNE DISEASES LIKE RELAPSING POLYCHONDRITIS. VEXAS SYNDROME RESEARCH ALSO BROUGHT SEVERAL AUTOIMMUNE DISEASES CLOSER TO THE DISCOVERY OF A BIOMARKER BY DEMONSTRATING THAT AUTOIMMUNE DISORDERS PREVIOUSLY THOUGHT TO BE UNRELATED TO EACH OTHER, LIKE RELAPSING POLYCHONDRITIS (RP), POLYARTERITIS NODOSA, SWEET SYNDROME, AND GIANT CELL ARTERITIS, SHARE A COMMON ACQUIRED, SOMATIC MUTATION IN THE UBA1 GENE. TWO GLOBALLY RENOWNED HEALTHCARE ORGANIZATIONS, THE INTERNATIONAL CONSENSUS CLASSIFICATION SYSTEM (ICC) AND THE WORLD HEALTH ORGANIZATION (WHO), ADDED VEXAS TO THEIR CLASSIFICATION SYSTEMS FOR HEMATOLOGICAL CANCERS. THE ICC LISTED VEXAS UNDER THE SPECTRUM OF PRE-MALIGNANT "CLONAL CYTOPENIAS,- AND THE WHO ACKNOWLEDGED THE CLOSE RELATIONSHIP BETWEEN SYSTEMIC INFLAMMATION, CLONAL SOMATIC MUTATIONS, AND MYELOID MALIGNANCIES BASED ON DATA FROM VEXAS WITH UBA1 MUTATIONS AND OTHER EMERGING ENTITIES. THE INCLUSION OF VEXAS IN THE CLASSIFICATION RESOURCES THAT CLINICIANS USE TO CATEGORIZE BLOOD-BASED CANCERS IS EXTREMELY IMPORTANT. IT INCREASES AWARENESS OF VEXAS AND RELATED SYSTEMIC INFLAMMATORY DISEASES AMONG CLINICIANS AND PATHOLOGISTS AND PROMOTES A HOLISTIC APPROACH TO PATIENT CARE, FROM DIAGNOSIS TO POST- DIAGNOSIS MANAGEMENT. THE RP FOUNDATION INVESTED IN THE NEXT PHASE OF VEXAS RESEARCH THAT'S SEARCHING FOR ADDITIONAL GENETIC MUTATIONS IN PATIENTS WITH AUTOIMMUNE DISEASES AND IS BEING CONDUCTED BY A COLLABORATIVE NETWORK OF TALENTED RESEARCHERS IN THE INFLAMMATORY DISEASE GENETICS PROGRAM AT NYU LANGONE AND THE RELAPSING POLYCHONDRITIS AND AUTOINFLAMMATORY CLINICS AT THE NATIONAL INSTITUTES OF HEALTH (NIH). THE RP FOUNDATION ALSO ASSISTED IN THE ESTABLISHMENT OF THE VEXAS FOUNDATION TO HELP PROVIDE A RESOURCE FOR VEXAS PATIENTS, RESEARCHERS, AND CLINICIANS. ADDITIONALLY, THE FOUNDATION SUPPORTED PURPOSE BIOBANK WHICH WILL CREATE A CENTRALIZED, STATE-OF-THE-ART COLLECTION OF CLINICAL AND RESEARCH DATA SO RESEARCHERS CAN VASTLY IMPROVE OUR COLLECTIVE UNDERSTANDING OF RELAPSING POLYCHONDRITIS AND RELATED DISEASES. THE FOUNDATION ALSO SUPPORTED THE "FRIENDS OF PATIENTS AT NIH RP FUND" WHICH IS ADMINISTERED BY THE NIH AND PROVIDES FUNDING FOR TRAVEL AND LODGING TO ELIGIBLE PATIENTS TRAVELING TO THE NIH FOR TREATMENT.

4c	(Code: ) (Expenses $ 223,369 including grants of $ ) (Revenue $ )
	EDUCATION: THE RP FOUNDATION SUPPORTED SEVERAL RP PATIENTS, ADVOCATES, AND RESEARCHERS WHO EXHIBITED AT THIS YEAR'S RARE DISEASE DAY AT THE NATIONAL INSTITUTES OF HEALTH. THIS YEAR'S RARE DISEASE DAY EXHIBITS INCLUDED A PRESENTATION BY MIKE LINN, DIRECTOR OF THE RP FOUNDATION, AND DR. MARCELA FERRADA, RESEARCHER AT THE NIH. THEIR PRESENTATION TITLED, "WHERE THERE IS RESEARCH, THERE IS HOPE", HIGHLIGHTED THE COLLABORATIVE RESEARCH INITIATIVES THE RP FOUNDATION SUPPORTS AND DISCUSSED HOW THESE PROJECTS BRING PATIENTS HOPE. THE FOUNDATION ALSO SUPPORTED RP PATIENT, MELISSA ALLMAN, PH.D.'S SCIENTIFIC POSTER TITLED, "IT IS DUE TO STRESS - BUT WHICH TYPE OF STRESS?" WHICH WAS SELECTED FOR DISPLAY AT THE AMERICAN COLLEGE OF RHEUMATOLOGY'S (ACR) ANNUAL MEETING IN PHILADELPHIA, PA.

	(Code: ) (Expenses $ including grants of $ ) (Revenue $ )
	FUNDRAISING FUNDRAISING FUELS AND DRIVES THE RP FOUNDATION'S RESEARCH INITIATIVES. IN 2022, THE FOUNDATION INVESTED IN INNOVATIVE, ENGAGING WAYS TO RAISE FUNDS. THE HIGHLIGHTS INCLUDE: "INAUGURAL RP WARRIOR 5K WALK. ORGANIZED BY RP WARRIOR, DAN SMITH, THE INAUGURAL 5K WARRIOR WALK WAS A TREMENDOUS SUCCESS. FROM CALIFORNIA TO FLORIDA AND EVEN CANADA TO ISRAEL, RP WARRIORS AND THEIR SUPPORTERS SHOWED UP IN A BIG WAY. TWENTY-FIVE TEAMS AND DOZENS OF INDIVIDUALS PARTICIPATED IN THE WALK, AND ENGAGED MORE THAN 260 DONORS TO FUEL RELAPSING POLYCHONDRITIS RESEARCH. "INAUGURAL ERACE FOR RP. RACE FOR RP PARTNERED WITH PODIUM ESPORTS AND MONDAY NIGHT RACING FOR THE INAUGURAL SIMULATION ERACING CHARITY EVENT. THE EVENT WAS HELD ON THE IRACING.COM PLATFORM AT DAYTONA INTERNATIONAL SPEEDWAY'S ROAD COURSE IN A TWO-HOUR TIMED ENDURANCE RACE. THANKS TO THE GENEROSITY OF A LONG-STANDING PARTNER WHO PROVIDED A 3:1 MATCH FOR GIFTS RECEIVED, THE SIM ERACE RAISED 401,000 TO SUPPORT RP AND RELATED AUTOIMMUNE RESEARCH. "NEW RP FOUNDATION WEBSITE. THE RP FOUNDATION DESIGNED AND IMPLEMENTED A NEW, HIGHLY ENGAGING WEBSITE TO INCREASE AWARENESS REGARDING THE BOLD, PURPOSEFUL RESEARCH WE'RE INVESTING IN.

4d	Other program services (Describe in Schedule O.)
	(Expenses $ including grants of $ ) (Revenue $ )
4e	Total program service expenses1,186,275

1b	Sub-Total................
c	Total from continuation sheets to Part VII, Section A....
d	Total (add lines 1b and 1c)...........	100,000

1a	Federated campaigns..		1a
b	Membership dues..		1b
c	Fundraising events..		1c
d	Related organizations		1d
e	Government grants (contributions)		1e

f	All other contributions, gifts, grants, and similar amounts not included above		1f	982,259

g	Noncash contributions included in lines 1a - 1f:$		1g

h Total. Add lines 1a-1f.......		982,259

		Business Code
2a
b
c
d
e
f	All other program service revenue.
g	Total. Add lines 2a–2f .....

3 Investment income (including dividends, interest, and othersimilar amounts) ......			5,456		5,456
4 Income from investment of tax-exempt bond proceeds
5 Royalties...........
		(ii) Personal	(i) Real
6a	Gross rents			6a
b	Less: rental expenses			6b
c	Rental income or (loss)			6c
d	Net rental income or (loss).......
		(ii) Other	(i) Securities
7a	Gross amount from sales of assets other than inventory			7a
b	Less: cost or other basis and sales expenses			7b
c	Gain or (loss)			7c
d	Net gain or (loss).........
8a	Gross income from fundraising events (not including $ of contributions reported on line 1c). See Part IV, line 18 ....
			8a
b	Less: direct expenses ...		8b
c	Net income or (loss) from fundraising events..
9a	Gross income from gaming activities. See Part IV, line 19 ...
			9a
b	Less: direct expenses ...		9b
c	Net income or (loss) from gaming activities..
10a	Gross sales of inventory, less returns and allowances ..
			10a
b	Less: cost of goods sold ..		10b
c	Net income or (loss) from sales of inventory..
Business Code			Miscellaneous Revenue
11a
b
c
d	All other revenue ....
e	Total. Add lines 11a–11d ......
12	Total revenue. See instructions.....			987,715		5,456

1	Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 ....	342,400	342,400
2	Grants and other assistance to domestic individuals. See Part IV, line 22 ...........
3	Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. .............
4	Benefits paid to or for members .......
5	Compensation of current officers, directors, trustees, and key employees ...........	125,000	37,500	62,500	25,000
6	Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .........
7	Other salaries and wages........
8	Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) ....
9	Other employee benefits .......
10	Payroll taxes ...........	9,562	2,869	4,781	1,912
11	Fees for services (non-employees):
a	Management ......
b	Legal .........	86		86
c	Accounting ...........	17,020		17,020
d	Lobbying ...........
e	Professional fundraising services. See Part IV, line 17
f	Investment management fees ......
g	Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O)
12	Advertising and promotion ....	416,951	361,636	16,197	39,118
13	Office expenses .......	6,176	1,149	797	4,230
14	Information technology ......	52,620	35,749	6,146	10,725
15	Royalties ..
16	Occupancy ...........
17	Travel ............	35,188	34,415	773
18	Payments of travel or entertainment expenses for any federal, state, or local public officials .
19	Conferences, conventions, and meetings ....
20	Interest ...........
21	Payments to affiliates .......
22	Depreciation, depletion, and amortization ..
23	Insurance ...
24	Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a	PUBLIC AWARENESS	272,598	272,598
b	BRAND AMBASSADOR	91,838	91,838
c	SUPPLIES	13,882			13,882
d	MEALS & ENTERTAINMENT	6,100	6,100
e	All other expenses	659	21	638
25	Total functional expenses. Add lines 1 through 24e	1,390,080	1,186,275	108,938	94,867
26	Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here if following SOP 98-2 (ASC 958-720).

1	Cash–non-interest-bearing ........			1
2	Savings and temporary cash investments .........		1,026,239	2	626,337
3	Pledges and grants receivable, net ......			3
4	Accounts receivable, net .............			4
5	Loans and other receivables from any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
				5
6	Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
				6
7	Notes and loans receivable, net ...........			7
8	Inventories for sale or use ............			8
9	Prepaid expenses and deferred charges ......			9
10a	Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D	10a
b	Less: accumulated depreciation	10b		10c
11	Investments—publicly traded securities .			11
12	Investments—other securities. See Part IV, line 11 .....			12
13	Investments—program-related. See Part IV, line 11 ..			13
14	Intangible assets ...............			14
15	Other assets. See Part IV, line 11 ...........			15
16	Total assets. Add lines 1 through 15 (must equal line 33)...		1,026,239	16	626,337

17	Accounts payable and accrued expenses .....		17	2,463
18	Grants payable ...		18
19	Deferred revenue .........		19
20	Tax-exempt bond liabilities .........		20
21	Escrow or custodial account liability. Complete Part IV of Schedule D		21
22	Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
			22
23	Secured mortgages and notes payable to unrelated third parties ..		23
24	Unsecured notes and loans payable to unrelated third parties ..		24
25	Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D		25
26	Total liabilities. Add lines 17 through 25..	0	26	2,463

	Organizations that follow FASB ASC 958, check here and complete lines 27, 28, 32, and 33.
27	Net assets without donor restrictions ..........	1,026,239	27	623,874
28	Net assets with donor restrictions ...........		28
	Organizations that do not follow FASB ASC 958, check here and complete lines 29 through 33.
29	Capital stock or trust principal, or current funds .....		29
30	Paid-in or capital surplus, or land, building or equipment fund ...		30
31	Retained earnings, endowment, accumulated income, or other funds		31
32	Total net assets or fund balances ...........	1,026,239	32	623,874
33	Total liabilities and net assets/fund balances ........	1,026,239	33	626,337