Attach to Form 990 or Form 990-EZ.
Go to
www.irs.gov/Form990 for instructions and the latest information.
| (i) Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 10 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
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Total |
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Calendar year
(or fiscal year beginning in)
![]() |
(a) 2019 | (b) 2020 | (c) 2021 | (d) 2022 | (e) 2023 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. | 626,283 | 655,945 | 688,436 | 896,701 | 849,639 | 3,717,004 |
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf .... | ||||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 4 | Total. Add lines 1 through 3 | 626,283 | 655,945 | 688,436 | 896,701 | 849,639 | 3,717,004 |
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f) .. | 828,055 | |||||
| 6 | Public support. Subtract line 5 from line 4. | 2,888,949 | |||||
Calendar year
(or fiscal year beginning in)
![]() |
(a) 2019 | (b) 2020 | (c) 2021 | (d) 2022 | (e) 2023 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | 626,283 | 655,945 | 688,436 | 896,701 | 849,639 | 3,717,004 |
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | 7,442 | 1,079 | 358 | 2,160 | 75,892 | 86,931 |
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | 378 | 458 | 836 | |||
| 11 | Total support. Add lines 7 through 10 | 3,804,771 | |||||
Calendar year (or fiscal
year beginning in) ![]() |
(a) 2019 | (b) 2020 | (c) 2021 | (d) 2022 | (e) 2023 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | ||||||
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose | ||||||
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513 ..... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge | ||||||
| 6 | Total. Add lines 1 through 5 | ||||||
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | ||||||
Calendar year
(or fiscal year beginning in)
![]() |
(a) 2019 | (b) 2020 | (c) 2021 | (d) 2022 | (e) 2023 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | ||||||
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | ||||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included on line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | ||||||
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
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| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by 0.035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | 1 | |
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
2 | |
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | 3 | |
| 4 Amounts paid to acquire exempt-use assets | 4 | |
| 5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI) | 5 | |
| 6 Other distributions (describe in Part VI). See instructions | 6 | |
| 7Total annual distributions. Add lines 1 through 6. | 7 | |
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
8 | |
| 9 Distributable amount for 2023 from Section C, line 6 | 9 | |
| 10 Line 8 amount divided by Line 9 amount | 10 | |
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2023 |
(iii) Distributable Amount for 2023 |
|
|---|---|---|---|---|
| 1 Distributable amount for 2023 from Section C, line 6 | ||||
|
2
Underdistributions, if any, for years prior to 2023 (reasonable cause required-- explain in Part VI).
See instructions. |
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| 3 Excess distributions carryover, if any, to 2023: | ||||
| a From 2018....... | ||||
| b From 2019....... | ||||
| c From 2020....... | ||||
| d From 2021....... | ||||
| e From 2022....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2023 distributable amount | ||||
|
i
Carryover from 2018 not applied (see instructions) |
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| j Remainder. Subtract lines 3g, 3h, and 3i from line 3f. | ||||
| 4Distributions for 2023 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2023 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from line 4. | ||||
|
5
Remaining underdistributions for years prior to 2023, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
6
Remaining underdistributions for 2023. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions. |
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7 Excess distributions carryover to 2024. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a Excess from 2019..... | ||||
| b Excess from 2020..... | ||||
| c Excess from 2021..... | ||||
| d Excess from 2022..... | ||||
| e Excess from 2023..... | ||||
| Facts And Circumstances Test |
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| Return Reference | Explanation |
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| PART II, LINE 10 | MISCELLANEOUS 836 |
| Software ID: | |
| Software Version: |
| Return Reference | Explanation |
|---|---|
| FORM 990 - ORGANIZATION'S MISSION | THE MISSION OF COURAGEOUS PARENTS NETWORK IS TO SUPPORT PARENTS AND FAMILIES OF CHILDREN LIVING WITH LIFELIMITING ILLNESS WITH THE TOOLS THEY NEED AS THEY ADJUST TO THE PROGNOSIS AND THEN WHEN THEY CONTEMPLATE THEIR CHILDS TRANSITION TO ENDOFLIFE. |
| FORM 990, PAGE 2, PART III, LINE 4A | 2023 ACCOMPISHMENTS: LAUNCHING JOURNEYMAP 1)PRESENTATION OF THE JOURNEY MAP AT AAHPM MARCH 2023 AND NHPCO'S VIRTUAL EDUCATIONAL CONFERENCE. 2)BETA-TESTING OF THE JOURNEY MAP WITH A COLLECTION OF EXEMPLARY END-USERS RECRUITMENT OF 38 TESTERS (12 CLINICIANS, 7 PATIENT DISEASE GROUPS; 19 PARENTS - APRIL-MAY 2023) DESIGN OF THE BETA-TEST TOOL - SURVEY DISTRIBUTED VIA SURVEYMONKEY (MAY 2023) DISTRIBUTION OF THE SURVEY TO 38 TESTERS - (MAY 2023) COLLECTION AND DISTILLATION OF FEEDBACK FROM SURVEY (MAY-JUNE 2023) 3)PRE-LAUNCH ACTIVITIES -INTEGRATION OF SURVEY FEEDBACK, WHICH CONSISTED PRIMARILY OF EDITING CONTENT AND REPUBLISHING IN THE CONTENT MANAGEMENT SYSTEM -RECORDING OF AUDIO FILES TO ACCOMPANY ALL TEXT FIELDS TO SUPPORT CAREGIVERS LESS PROFICIENT IN READING OR THOSE WHO PREFER TO LISTEN -PRODUCTION OF INTRO VIDEO, INCLUDING ANIMATION -CREATION OF MESSAGING AND POSITIONING MATERIALS -INCLUDING OF AUDIO/LISTEN FEATURE AND RECORDING OF AUDIO FILES IN ENGLISH FOR EVERY INFORMATION PAGE 4)LAUNCH OF NEUROJOURNEY.ORG - NOVEMBER 1, 2023 5)OUTREACH AND COMMUNICATIONS - ONGOING -INCLUSION OF LINKS TO NEUROJOURNEY.ORG IN EACH SEMI-MONTHLY EMAIL COMMUNICATION TO CLINICIAN AND CAREGIVER MEMBERS (APPROXIMATELY 7000 INDIVIDUALS TOTAL) -DRUMBEAT ABOUT NEUROJOURNEY ON CPN'S SOCIAL MEDIA PLATFORMS, INCLUDING LINKEDIN, INSTAGRAM AND FACEBOOK AND TWITTER -OPENPEDIATRICS COMPLEX CARE PODCAST FEATURING DR. JULIE HAUER AND CPN'S JENNIFER SIEDMAN -2 DEMO PRESENTATIONS ON ZOOM BY CPN STAFF TO A TOTAL OF 38 PARENTS AND CLINICIANS -DIRECT PRESENTATIONS - VIA ZOOM - TO HOSPITAL-BASED CLINICIAN GROUPS. AS OF 2/14/24, CPN HAS PRESENTED DIRECTLY TO 260 PEDIATRIC CLINICIANS, INCLUDING NURSE CASE MANAGERS, COMPLEX CARE CLINICIANS, PALLIATIVE CARE CLINICIANS, NEUROLOGISTS AND TWO GROUPS OF PEDIATRIC RESIDENTS: DIVERSIFYING CPN'S DEMOGRAPHIC, CULTURAL, AND GEOGRAPHICAL REACH. -DIVERSIFYING THE VOICES ON THE CPN PLATFORM (VIDEOS, BLOG AUTHORS) AND IN LIVE PRESENTATIONS THAT WE GIVE. DIVERSITY ACROSS RACE (1) AND GEOGRAPHICAL REACH (2.) THIS IS DIRECTED AT BELONGING -ASSESSING RELEVANCE OF CURRENT CPN MATERIALS TO A WIDER RANGE OF FAMILIES - RACE; AND WHAT NEEDS AND EXPERIENCES, ROOTED IN SYSTEMIC RACISM, EXIST THAT CPN 'COULD' DO SOMETHING TO ADDRESS (BEING TRUE TO OUR MODEL). WE ARE WORKING WITH HEALTH RESOURCES IN ACTION TO INTERVIEW PARENTS OF COLOR ABOUT THIS. -ASSESSING ACCESSIBILITY OF CPN'S CONTENT AND WHAT CAN WE DO TO MAKE IT MORE ACCESSIBLE -- LANGUAGE, INFORMATION GRAPHICS, SUBTITLES ON VIDEOS ETC. -ULTIMATELY, WE WILL LIKELY HIRE AN EXPERIENCED PERSON FROM THE BIPOC COMMUNITY (PARENT OR CLINICIAN) TO LEAD THIS PART OF THE PROGRAMMING. -ADDING A CLINICIAN OF COLOR WHO IS PRIORITIZING HEALTH EQUITY IN THEIR WORK, TO THE BOARD. SCALING BY DEVELOPING A BROADER AND LARGER NUMBER OF CAREGIVERS ABLE TO (RE)PRESENT CPN. LAUNCHED THE PARENT CHAMPION PROGRAM/BLOGGER IN RESIDENCE -OCTOBER TRAINING OF 6 CHAMPIONS PLUS 2 FORMER BLOGGERS IN RESIDENCE INCLUDED FORMAL ADVOCACY STORYTELLING AND PRESENTATION AT MGH. -PARENT CHAMPIONS HAVE ALREADY PARTICIPATED IN 2 PRESENTATIONS; 1 PODCAST -PARENT CHAMPION PROGRAM WILL BE THE FOCUS OF GIVING TUESDAY CAMPAIGN PRESENTATIONS 12/10/23 MOTT CHILDREN'S PEDS RESIDENTS 25 12/1/23 PEDIPALS 11 11/17/23 CT PEDIATRIC PALLIATIVE CARE COALITION (BUILIDING) AT HOLE IN THE WALL 25 11/16/23 HEBREW COLLEGE: SPIRITUAL COUNSELING SEMINAR 10 11/7/23 ST. LOUIS PFAC 15 10/31/23 PHOENIX CHILDREN'S 119 10/26/23 UW PEDIATRIC GRAND ROUNDS 95 10/25/23 NYC PALLIATIVE CARE COALITION 10 10/6/23 LEUKEMIA & LYMPHOMA SOCIETY - INFORMATION RESOURCE CENTER STAFF 24 10/4/23 RWJ BARNABAS PRIMARY PEDIATRIC PALL CARE EDUCATION TRAINING, COHORT 326 9/21/23CLEVELAND CLINIC COMPLEX CARE 14 |
| FORM 990, PAGE 6, PART VI, LINE 11B | THE FORM 990 AND STATE INFORMATION RETURN IS DISTRIBUTED TO THE BOARD, WHO REVIEWS AND APPROVES GIVES ITS APPROVAL TO FILE. |
| FORM 990, PAGE 6, PART VI, LINE 15A | COMPENSATION IS SET BY BOARD OF DIRECTORS. ENTIRE BOARD REVIEWED A COMPARATIVE STUDY OF COMPENSATION PACKAGES OF NON-PROFIT ORGANIZATIONS IN NEW ENGLAND AND APPROVED THE PACKAGE. |
| FORM 990, PAGE 6, PART VI, LINE 15B | COMPENSATION IS SET BY BOARD OF DIRECTORS. ENTIRE BOARD REVIEWED A COMPARATIVE STUDY OF COMPENSATION PACKAGES OF NON-PROFIT ORGANIZATIONS IN NEW ENGLAND AND APPROVED THE PACKAGE. |
| FORM 990, PAGE 6, PART VI, LINE 19 | GOVERNING DOCUMENTS, CONFLICT OF INTEREST, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. NO REQUESTS WERE RECEIVED DURING THE YEAR. |
| FORM 990, PART IX, LINE 11G | CONTENT DEVELOPMENT ADVISORS 155,407 0 6,181 MARKETING/ PROGRAM ADVISORS 112,313 0 0 STRATEGIC ADVISORS 0 29,000 0 DATA ANALYTICS 28,750 0 0 DIVERSITY EQUITY AND INCLUSIO 0 28,500 0 OTHER CONTRACT SERVICES 0 2,246 0 TOTAL 296,470 59,746 6,181 |
| Software ID: | |
| Software Version: |