Form990


Department of the TreasuryInternal Revenue Service
Return of Organization Exempt From Income Tax
Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private foundations)
Do not enter social security numbers on this form as it may be made public.
Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2023
Open to Public Inspection
A For the 2023 calendar year, or tax year beginning 01-01-2023 , and ending 12-31-2023
BCheck if applicable:
CName of organization
CYSTIC FIBROSIS FOUNDATION
 
 
Doing business as
 
 
Number and street (or P.O. box if mail is not delivered to street address)
4550 MONTGOMERY AVENUE 1100N
 
Room/suite
City or town, state or province, country, and ZIP or foreign postal code
BETHESDA, MD20814
D Employer identification number

13-1930701
E Telephone number

G Gross receipts $ 1,810,280,197
F Name and address of principal officer:
MICHAEL P BOYLE MD
4550 MONTGOMERY AVENUE 1100N
BETHESDA,MD20814
I
Tax-exempt status: (   ) (insert no.) or
J
Website:
WWW.CFF.ORG
H(a)
Is this a group return for
subordinates?
H(b)
Are all subordinates
included?
If "No," attach a list. See instructions.
H(c)
Group exemption number  
K Form of organization:  
L Year of formation: 1955
M State of legal domicile: DE
Part I
Summary
Activities  & Governance 1 Briefly describe the organization’s mission or most significant activities: TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE (CONTINUED ON SCH O) OPPORTUNITY TO LEAD LONG, FULFILLING LIVES.
2 Check this box
3 Number of voting members of the governing body (Part VI, line 1a) ........ 3 16
4 Number of independent voting members of the governing body (Part VI, line 1b) ..... 4 15
5 Total number of individuals employed in calendar year 2023 (Part V, line 2a) ...... 5 847
6 Total number of volunteers (estimate if necessary) ............. 6 53,389
7a Total unrelated business revenue from Part VIII, column (C), line 12 ........ 7a 8,541,916
b Net unrelated business taxable income from Form 990-T, Part I, line 11 ......... 7b 1,930,665
Revenues Prior Year Current Year
8 Contributions and grants (Part VIII, line 1h) ......... 97,948,958 86,607,373
9 Program service revenue (Part VIII, line 2g) ......... 2,555,705 3,437,695
10 Investment income (Part VIII, column (A), lines 3, 4, and 7d ) .... 128,066,687 179,149,610
11 Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e) 20,059,002 22,821,602
12 Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12) 248,630,352 292,016,280
Expenses; 13 Grants and similar amounts paid (Part IX, column (A), lines 1–3 )... 184,032,962 200,455,461
14 Benefits paid to or for members (Part IX, column (A), line 4)..... 0 0
15 Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10) 116,829,042 127,953,243
16a Professional fundraising fees (Part IX, column (A), line 11e) ..... 176,400 176,400
b Total fundraising expenses (Part IX, column (D), line 25) 32,375,523    
17 Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e).... 95,625,710 114,819,495
18 Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25) 396,664,114 443,404,599
19 Revenue less expenses. Subtract line 18 from line 12....... -148,033,762 -151,388,319
Net Assets or Fund Balances; Beginning of Current Year End of Year
20 Total assets (Part X, line 16)............. 4,735,058,992 4,885,921,122
21 Total liabilities (Part X, line 26)............. 291,339,976 292,964,822
22 Net assets or fund balances. Subtract line 21 from line 20..... 4,443,719,016 4,592,956,300
Part II
Signature Block
Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it is true, correct, and complete. Declaration of preparer (other than officer) is based on all information of which preparer has any knowledge.
Sign Here
Signature of officer Date
Type or print name and title
Paid Preparer Use Only
Print/Type preparer's name
Preparer's signature
Date
PTIN
Firm's name

Firm's EIN
Firm's address



Phone no.
May the IRS discuss this return with the preparer shown above? See Instructions. ..........
For Paperwork Reduction Act Notice, see the separate instructions.
Cat. No. 11282Y Form 990 (2023)
Form 990 (2023)
Page 2
Part III
Statement of Program Service Accomplishments
Check if Schedule O contains a response or note to any line in this Part III..............
1
Briefly describe the organization’s mission: SEE SCHEDULE O
2
Did the organization undertake any significant program services during the year which were not listed on
the prior Form 990 or 990-EZ? .....................
If "Yes," describe these new services on Schedule O.
3
Did the organization cease conducting, or make significant changes in how it conducts, any program
services? ...........................
If "Yes," describe these changes on Schedule O.
4
Describe the organization’s program service accomplishments for each of its three largest program services, as measured by expenses. Section 501(c)(3) and 501(c)(4) organizations are required to report the amount of grants and allocations to others, the total expenses, and revenue, if any, for each program service reported.
4a (Code:   ) (Expenses $ 317,894,830 including grants of $ 193,918,675 ) (Revenue $ 13,902,161 )
SEE SCHEDULE O
4b (Code:   ) (Expenses $ 23,754,437 including grants of $ 6,194,892 ) (Revenue $   )
SEE SCHEDULE O
4c (Code:   ) (Expenses $ 20,162,835 including grants of $   ) (Revenue $   )
SEE SCHEDULE O
4d Other program services (Describe in Schedule O.)
(Expenses $   including grants of $   ) (Revenue $   )
4e Total program service expenses361,812,102
Form 990 (2023)
Form 990 (2023)
Page 3
Part IV
Checklist of Required Schedules
Yes
No
1
Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)? If "Yes," complete Schedule AClick to see attachment
List of Attached Documents:
// Content
.....................
1
Yes
 
2
Is the organization required to complete Schedule B, Schedule of Contributors? See instructions. Click to see attachment
List of Attached Documents:
// Content
...
2
Yes
 
3
Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office? If "Yes," complete Schedule C, Part IClick to see attachment
List of Attached Documents:
// Content
.............
3
 
No
4
Section 501(c)(3) organizations. Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year? If "Yes," complete Schedule C, Part IIClick to see attachment
List of Attached Documents:
// Content
.........
4
Yes
 
5
Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Rev. Proc. 98-19? If "Yes," complete Schedule C, Part IIIClick to see attachment
List of Attached Documents:
// Content
..
5
 
No
6
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts? If "Yes," complete Schedule D, Part IClick to see attachment
List of Attached Documents:
// Content
.........................
6
 
No
7
Did the organization receive or hold a conservation easement, including easements to preserve open space,
the environment, historic land areas, or historic structures? If "Yes," complete Schedule D, Part IIClick to see attachment
List of Attached Documents:
// Content
....
7
 
No
8
Did the organization maintain collections of works of art, historical treasures, or other similar assets? If "Yes,"
complete Schedule D,
Part IIIClick to see attachment
List of Attached Documents:
// Content
..............
8
 
No
9
Did the organization report an amount in Part X, line 21 for escrow or custodial account liability; serve as a custodian for amounts not listed in Part X; or provide credit counseling, debt management, credit repair, or debt negotiation services? If "Yes," complete Schedule D, Part IVClick to see attachment
List of Attached Documents:
// Content
..............
9
 
No
10
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi endowments? If "Yes," complete Schedule D, Part V......
10
 
No
11
If the organization’s answer to any of the following questions is "Yes," then complete Schedule D, Parts VI, VII, VIII, IX, or X, as applicable.
a
Did the organization report an amount for land, buildings, and equipment in Part X, line 10? If "Yes," complete
Schedule D,
Part VI. Click to see attachment
List of Attached Documents:
// Content
...................
11a
Yes
 
b
Did the organization report an amount for investments—other securities in Part X, line 12 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIClick to see attachment
List of Attached Documents:
// Content
.......
11b
Yes
 
c
Did the organization report an amount for investments—program related in Part X, line 13 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIIClick to see attachment
List of Attached Documents:
// Content
.......
11c
 
No
d
Did the organization report an amount for other assets in Part X, line 15 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part IXClick to see attachment
List of Attached Documents:
// Content
............
11d
 
No
e
Did the organization report an amount for other liabilities in Part X, line 25? If "Yes," complete Schedule D, Part XClick to see attachment
List of Attached Documents:
// Content
11e
Yes
 
f
Did the organization’s separate or consolidated financial statements for the tax year include a footnote that addresses the organization’s liability for uncertain tax positions under FIN 48 (ASC 740)? If "Yes," complete Schedule D, Part XClick to see attachment
List of Attached Documents:
// Content
11f
Yes
 
12a
Did the organization obtain separate, independent audited financial statements for the tax year? If "Yes," complete
Schedule D, Parts XI and XII
Click to see attachment
List of Attached Documents:
// Content
......................
12a
Yes
 
b
Was the organization included in consolidated, independent audited financial statements for the tax year? If "Yes," and if the organization answered "No" to line 12a, then completing Schedule D, Parts XI and XII is optional Click to see attachment
List of Attached Documents:
// Content
12b
 
No
13
Is the organization a school described in section 170(b)(1)(A)(ii)? If "Yes," complete Schedule E
13
 
No
14a
Did the organization maintain an office, employees, or agents outside of the United States? .....
14a
 
No
b
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more? If "Yes," complete Schedule F, Parts I and IV.........Click to see attachment
List of Attached Documents:
// Content
14b
Yes
 
15
Did the organization report on Part IX, column (A), line 3, more than $5,000 of grants or other assistance to or for any foreign organization? If “Yes,” complete Schedule F, Parts II and IV.....Click to see attachment
List of Attached Documents:
// Content
15
Yes
 
16
Did the organization report on Part IX, column (A), line 3, more than $5,000 of aggregate grants or other assistance to or for foreign individuals? If “Yes,” complete Schedule F, Parts III and IV...Click to see attachment
List of Attached Documents:
// Content
16
 
No
17
Did the organization report a total of more than $15,000 of expenses for professional fundraising services on Part IX, column (A), lines 6 and 11e? If "Yes," complete Schedule G, Part I. See instructions. ....Click to see attachment
List of Attached Documents:
// Content
17
Yes
 
18
Did the organization report more than $15,000 total of fundraising event gross income and contributions on Part VIII, lines 1c and 8a? If "Yes," complete Schedule G, Part II............ Click to see attachment
List of Attached Documents:
// Content
18
Yes
 
19
Did the organization report more than $15,000 of gross income from gaming activities on Part VIII, line 9a? If "Yes," complete Schedule G, Part III...................Click to see attachment
List of Attached Documents:
// Content
19
Yes
 
20a
Did the organization operate one or more hospital facilities? If "Yes," complete Schedule H....
20a
 
No
b
If "Yes" to line 20a, did the organization attach a copy of its audited financial statements to this return?
20b
 
 
21
Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government on Part IX, column (A), line 1? If “Yes,” complete Schedule I, Parts I and II.....Click to see attachment
List of Attached Documents:
// Content
21
Yes
 
Form 990 (2023)
Form 990 (2023)
Page 4
Part IV
Checklist of Required Schedules (continued)
Yes
No
22
Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals on Part IX, column (A), line 2? If “Yes,” complete Schedule I, Parts I and III........Click to see attachment
List of Attached Documents:
// Content
22
Yes
 
23
Did the organization answer "Yes" to Part VII, Section A, line 3, 4, or 5, about compensation of the organization’s current and former officers, directors, trustees, key employees, and highest compensated employees? If "Yes," complete Schedule J....................... Click to see attachment
List of Attached Documents:
// Content
23
Yes
 
24a
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002? If “Yes,” answer lines 24b through 24d and complete Schedule K. If “No,” go to line 25a...............
24a
 
No
b
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?...
24b
 
 
c
Did the organization maintain an escrow account other than a refunding escrow at any time during the year
to defease any tax-exempt bonds? ...............
24c
 
 
d
Did the organization act as an "on behalf of" issuer for bonds outstanding at any time during the year?...
24d
 
 
25a
Section 501(c)(3), 501(c)(4), and 501(c)(29) organizations. Did the organization engage in an excess benefit transaction with a disqualified person during the year? If "Yes," complete Schedule L, Part I ....
25a
 
No
b
Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization’s prior Forms 990 or 990-EZ? If "Yes," complete Schedule L, Part I.......................
25b
 
No
26
Did the organization report any amount on Part X, line 5 or 22 for receivables from or payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons? If "Yes," complete Schedule L, Part II...........
26
 
No
27
Did the organization provide a grant or other assistance to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or employee thereof, a grant selection committee member, or to a 35% controlled entity (including an employee thereof) or family member of any of these persons?
If "Yes," complete
Schedule L, Part III.........................
27
 
No
28
Was the organization a party to a business transaction with one of the following parties (see the Schedule L, Part IV instructions for applicable filing thresholds, conditions, and exceptions):
a
A current or former officer, director, trustee, key employee, creator or founder, or substantial contributor? If "Yes," complete Schedule L, Part IV......................
28a
 
No
b
A family member of any individual described in line 28a? If "Yes," complete Schedule L, Part IV.....
28b
 
No
c
A 35% controlled entity of one or more individuals and/or organizations described in line 28a or 28b? If "Yes," complete Schedule L, Part IV.....................
28c
 
No
29
Did the organization receive more than $25,000 in non-cash contributions? If "Yes," complete Schedule M..Click to see attachment
List of Attached Documents:
// Content
29
Yes
 
30
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions? If "Yes," complete Schedule M .................Click to see attachment
List of Attached Documents:
// Content
30
 
No
31
Did the organization liquidate, terminate, or dissolve and cease operations? If "Yes," complete Schedule N, Part I
31
 
No
32
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets? If "Yes," complete Schedule N, Part II........................
32
 
No
33
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3? If "Yes," complete Schedule R, Part I............Click to see attachment
List of Attached Documents:
// Content
33
 
No
34
Was the organization related to any tax-exempt or taxable entity? If "Yes," complete Schedule R, Part II, III, or IV, and Part V, line 1.........................Click to see attachment
List of Attached Documents:
// Content
34
Yes
 
35a
Did the organization have a controlled entity within the meaning of section 512(b)(13)?
35a
Yes
 
b
If ‘Yes’ to line 35a, did the organization receive any payment from or engage in any transaction with a controlled entity within the meaning of section 512(b)(13)? If "Yes," complete Schedule R, Part V, line 2 ...Click to see attachment
List of Attached Documents:
// Content
35b
Yes
 
36
Section 501(c)(3) organizations. Did the organization make any transfers to an exempt non-charitable related organization? If "Yes," complete Schedule R, Part V, line 2............. Click to see attachment
List of Attached Documents:
// Content
36
 
No
37
Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes? If "Yes," complete Schedule R, Part VIClick to see attachment
List of Attached Documents:
// Content
37
 
No
38
Did the organization complete Schedule O and provide explanations on Schedule O for Part VI, lines 11b and 19? Note. All Form 990 filers are required to complete Schedule O. ............
38
Yes
 
Part V
Statements Regarding Other IRS Filings and Tax Compliance
Check if Schedule O contains a response or note to any line in this Part V...........
Yes
No
1a
Enter the number reported in box 3 of Form 1096. Enter -0- if not applicable ..
1a
1,440
b
Enter the number of Forms W-2G included on line 1a. Enter -0- if not applicable .
1b
1
c
Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners? ..................
1c
Yes
 
Form 990 (2023)
Form 990 (2023)
Page 5
Part V
Statements Regarding Other IRS Filings and Tax Compliance (continued)
2a
Enter the number of employees reported on Form W-3, Transmittal of Wage and
Tax Statements, filed for the calendar year ending with or within the year covered by this return ..................
2a
847
b
If at least one is reported on line 2a, did the organization file all required federal employment tax returns?
2b
Yes
 
3a
Did the organization have unrelated business gross income of $1,000 or more during the year?...
3a
Yes
 
b
If “Yes,” has it filed a Form 990-T for this year? If “No” to line 3b, provide an explanation in Schedule O...
3b
Yes
 
4a
At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)? ..
4a
 
No
b
If "Yes," enter the name of the foreign country:
See instructions for filing requirements for FinCEN Form 114, Report of Foreign Bank and Financial Accounts (FBAR).
5a
Was the organization a party to a prohibited tax shelter transaction at any time during the tax year? ..
5a
 
No
b
Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?
5b
 
No
c
If "Yes," to line 5a or 5b, did the organization file Form 8886-T? ............
5c
 
 
6a
Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions? ...
6a
 
No
b
If "Yes," did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible? ......................
6b
 
 
7
Organizations that may receive deductible contributions under section 170(c).
a
Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor? ....................
7a
Yes
 
b
If "Yes," did the organization notify the donor of the value of the goods or services provided? .....
7b
Yes
 
c
Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282? .........................
7c
 
No
d
If "Yes," indicate the number of Forms 8282 filed during the year ....
7d
 
e
Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?
7e
 
No
f
Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract? ..
7f
 
No
g
If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required? ......................
7g
 
 
h
If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C? ..........................
7h
Yes
 
8
Sponsoring organizations maintaining donor advised funds. Did a donor advised fund maintained by the sponsoring organization have excess business holdings at any time during the year? ........
8
 
 
9
Sponsoring organizations maintaining donor advised funds.
a
Did the sponsoring organization make any taxable distributions under section 4966?........
9a
 
 
b
Did the sponsoring organization make a distribution to a donor, donor advisor, or related person?...
9b
 
 
10
Section 501(c)(7) organizations. Enter:
a
Initiation fees and capital contributions included on Part VIII, line 12 ...
10a
 
b
Gross receipts, included on Form 990, Part VIII, line 12, for public use of club facilities
10b
 
11
Section 501(c)(12) organizations. Enter:
a
Gross income from members or shareholders .........
11a
 
b
Gross income from other sources. (Do not net amounts due or paid to other sources against amounts due or received from them.) ..........
11b
 
12a
Section 4947(a)(1) non-exempt charitable trusts. Is the organization filing Form 990 in lieu of Form 1041?
12a
 
 
b
If "Yes," enter the amount of tax-exempt interest received or accrued during the year.
12b
 
13
Section 501(c)(29) qualified nonprofit health insurance issuers.
a
Is the organization licensed to issue qualified health plans in more than one state? .........
Note. See the instructions for additional information the organization must report on Schedule O.
13a
 
 
b
Enter the amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans ....
13b
 
c
Enter the amount of reserves on hand ............
13c
 
14a
Did the organization receive any payments for indoor tanning services during the tax year?.....
14a
 
No
b
If "Yes," has it filed a Form 720 to report these payments? If "No," provide an explanation in Schedule O..
14b
 
 
15
Is the organization subject to the section 4960 tax on payment(s) of more than $1,000,000 in remuneration or excess parachute payment(s) during the year? ....................
If "Yes," see the instructions and file Form 4720, Schedule N.
15
Yes
 
16
Is the organization an educational institution subject to the section 4968 excise tax on net investment income? ..
If "Yes," complete Form 4720, Schedule O.
16
 
No
17
Section 501(c)(21) organizations. Did the trust, or any disqualified or other person engage in any activities that would result in the imposition of an excise tax under section 4951, 4952, or 4953? ..
If "Yes," complete Form 6069.
17
 
 
Form 990 (2023)
Form 990 (2023)
Page 6
Part VI
Governance, Management, and Disclosure. For each "Yes" response to lines 2 through 7b below, and for a "No" response to lines 8a, 8b, or 10b below, describe the circumstances, processes, or changes in Schedule O. See instructions.
Check if Schedule O contains a response or note to any line in this Part VI..............
Section A. Governing Body and Management
Yes
No
1a
Enter the number of voting members of the governing body at the end of the tax year
1a
16
If there are material differences in voting rights among members of the governing body, or if the governing body delegated broad authority to an executive committee or similar committee, explain in Schedule O.
b
Enter the number of voting members included in line 1a, above, who are independent
1b
15
2
Did any officer, director, trustee, or key employee have a family relationship or a business relationship with any other officer, director, trustee, or key employee? .................
2
 
No
3
Did the organization delegate control over management duties customarily performed by or under the direct supervision of officers, directors or trustees, or key employees to a management company or other person? .
3
 
No
4
Did the organization make any significant changes to its governing documents since the prior Form 990 was filed? .
4
 
No
5
Did the organization become aware during the year of a significant diversion of the organization’s assets? .
5
 
No
6
Did the organization have members or stockholders? ................
6
 
No
7a
Did the organization have members, stockholders, or other persons who had the power to elect or appoint one or more members of the governing body? ....................
7a
 
No
b
Are any governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or persons other than the governing body? ...................
7b
 
No
8
Did the organization contemporaneously document the meetings held or written actions undertaken during the year by the following:
a
The governing body? .......................
8a
Yes
 
b
Each committee with authority to act on behalf of the governing body? ............
8b
Yes
 
9
Is there any officer, director, trustee, or key employee listed in Part VII, Section A, who cannot be reached at the organization’s mailing address? If "Yes," provide the names and addresses in Schedule O.......
9
 
No
Section B. Policies (This Section B requests information about policies not required by the Internal Revenue Code.)
Yes
No
10a
Did the organization have local chapters, branches, or affiliates? ............
10a
Yes
 
b
If "Yes," did the organization have written policies and procedures governing the activities of such chapters, affiliates, and branches to ensure their operations are consistent with the organization's exempt purposes?
10b
Yes
 
11a
Has the organization provided a complete copy of this Form 990 to all members of its governing body before filing the form? ............................
11a
Yes
 
b
Describe on Schedule O the process, if any, used by the organization to review this Form 990. .....
12a
Did the organization have a written conflict of interest policy? If "No," go to line 13.......
12a
Yes
 
b
Were officers, directors, or trustees, and key employees required to disclose annually interests that could give rise to conflicts? ..........................
12b
Yes
 
c
Did the organization regularly and consistently monitor and enforce compliance with the policy? If "Yes," describe on Schedule O how this was done...................
12c
Yes
 
13
Did the organization have a written whistleblower policy? ...............
13
Yes
 
14
Did the organization have a written document retention and destruction policy? .........
14
Yes
 
15
Did the process for determining compensation of the following persons include a review and approval by independent persons, comparability data, and contemporaneous substantiation of the deliberation and decision?
a
The organization’s CEO, Executive Director, or top management official ...........
15a
Yes
 
b
Other officers or key employees of the organization ................
15b
Yes
 
If "Yes" to line 15a or 15b, describe the process on Schedule O. See instructions.
16a
Did the organization invest in, contribute assets to, or participate in a joint venture or similar arrangement with a taxable entity during the year? ......................
16a
Yes
 
b
If "Yes," did the organization follow a written policy or procedure requiring the organization to evaluate its participation in joint venture arrangements under applicable federal tax law, and take steps to safeguard the organization’s exempt status with respect to such arrangements? ............
16b
Yes
 
Section C. Disclosure
17
List the states with which a copy of this Form 990 is required to be filed
AL , AR , CA , FL , GA , HI , IL , KS , KY , MD , MA , MI , MN , MS , NH , NJ , NM , NY , ND , OR , PA , RI , SC , TN , UT , VA , WV , WI
18
Section 6104 requires an organization to make its Form 1023 (1024 or 1024-A, if applicable), 990, and 990-T (section 501(c)(3)s only) available for public inspection. Indicate how you made these available. Check all that apply.
19
Describe in Schedule O whether (and if so, how) the organization made its governing documents, conflict of interest policy, and financial statements available to the public during the tax year.
20
State the name, address, and telephone number of the person who possesses the organization's books and records:
IRENA BARISIC & MICHAEL CAVADEL4550 MONTGOMERY AVENUE   SUITE N BETHESDA,MD20814 (301) 951-4422
Form 990 (2023)
Form 990 (2023)
Page 7
Part VII
Compensation of Officers, Directors,Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors
Check if Schedule O contains a response or note to any line in this Part VII..............
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
1a Complete this table for all persons required to be listed. Report compensation for the calendar year ending with or within the organization’s tax year.
RoundBullet List all of the organization’s current officers, directors, trustees (whether individuals or organizations), regardless of amount
of compensation. Enter -0- in columns (D), (E), and (F) if no compensation was paid.

RoundBullet List all of the organization’s current key employees, if any. See the instructions for definition of "key employee."
RoundBullet List the organization’s five current highest compensated employees (other than an officer, director, trustee or key employee)
who received reportable compensation (box 5 of Form W-2, box 6 of Form 1099-MISC, and/or box 1 of Form 1099-NEC) of more than $100,000 from the organization and any related organizations.

RoundBullet List all of the organization’s former officers, key employees, or highest compensated employees who received more than $100,000
of reportable compensation from the organization and any related organizations.

RoundBullet List all of the organization’s former directors or trustees that received, in the capacity as a former director or trustee of the
organization, more than $10,000 of reportable compensation from the organization and any related organizations.

See the instructions for the order in which to list the persons above.
Check this box if neither the organization nor any related organization compensated any current officer, director, or trustee.
(A)
Name and title
(B)
Average hours per week (list any hours for related organizations below dotted line)
(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee)
(D)
Reportable compensation from the organization (W-2/1099-MISC/1099-NEC)
(E)
Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC)
(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(1) LOUIS A DEFALCO......................................................................
VICE CHAIR
5.00
.................
0.00
X           0 0 0
(2) CAROLE B GRIEGO MD......................................................................
TRUSTEE
3.00
.................
0.00
X           0 0 0
(3) KATE O'DONNELL......................................................................
TRUSTEE
3.00
.................
0.00
X           0 0 0
(4) DODZIE SOGAH PHD......................................................................
TRUSTEE
3.00
.................
0.00
X           0 0 0
(5) DAVID A MOUNT......................................................................
TREASURER
3.00
.................
0.00
X           0 0 0
(6) ROBERT H NIEHAUS......................................................................
VICE CHAIR
5.00
.................
0.00
X           0 0 0
(7) ERIC R OLSON PHD......................................................................
VICE CHAIR
5.00
.................
0.00
X           0 0 0
(8) DOMINIC J CARUSO......................................................................
TRUSTEE
3.00
.................
0.00
X           0 0 0
(9) PAUL A MOTENKO......................................................................
TRUSTEE
3.00
.................
0.00
X           0 0 0
(10) TERESA L ELDER......................................................................
VICE CHAIR
5.00
.................
0.00
X           0 0 0
(11) ERIC SCHNEIDER MD......................................................................
TRUSTEE
3.00
.................
0.00
X           0 0 0
(12) STEVEN SHAK MD......................................................................
TRUSTEE
3.00
.................
0.00
X           0 0 0
(13) JOHN S WEINBERG......................................................................
EXECUTIVE VICE CHAIR
5.00
.................
0.00
X           0 0 0
(14) KC BRYAN WHITE......................................................................
CHAIR
8.00
.................
0.00
X           0 0 0
(15) JESSICA H BOYD MD......................................................................
TRUSTEE
3.00
.................
0.00
X           0 0 0
(16) MICHAEL P BOYLE MD......................................................................
PRESIDENT & CEO
40.00
.................
1.00
X   X       1,372,546 0 100,236
(17) IRENA BARISIC......................................................................
EVP, CHIEF OPER/FIN OFFICER
40.00
.................
1.00
    X       692,433 0 50,204
Form 990 (2023)
Form 990 (2023)
Page 8
Part VII
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (continued)
(A)
Name and title
(B)
Average hours per week (list any hours for related organizations below dotted line)
(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee)
(D)
Reportable compensation from the organization (W-2/1099-MISC/1099-NEC)
(E)
Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC)
(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(18) MICHAEL B CAVADEL........................................................................
SVP, CHIEF LEGAL OFFICER
40.00
.......................0.00
    X       494,693 0 81,854
(19) JOHN C MAHLER JR........................................................................
CHIEF INVESTMENT OFFICER
40.00
.......................0.00
      X     2,747,771 0 74,825
(20) BRUCE MARSHALL MD........................................................................
EVP & CHIEF MEDICAL OFFICER
40.00
.......................0.00
      X     741,926 0 36,032
(21) JOHN P CLANCY MD........................................................................
SVP, CLINICAL RESEARCH
40.00
.......................0.00
      X     659,434 0 89,921
(22) EARL A LEE........................................................................
MANAGING DIRECTOR, INVESTMENTS
40.00
.......................0.00
        X   1,114,424 0 282,686
(23) ERIC KOEHRSEN........................................................................
MANAGING DIRECTOR, INVESTMENTS
40.00
.......................0.00
        X   949,505 0 269,002
(24) ANDREW LEWIS........................................................................
MANAGING DIRECTOR, INVESTMENTS
40.00
.......................0.00
        X   1,268,837 0 49,610
(25) GENTIANA S AROVAS........................................................................
MANAGING DIRECTOR, INVESTMENTS
40.00
.......................0.00
        X   541,296 0 190,441
(26) ALBERT FARO........................................................................
VP CLINICAL AFFAIRS
40.00
.......................0.00
        X   517,875 0 124,895
(27) PRESTON W CAMPBELL III MD........................................................................
FORMER CEO & STRATEGIC ADVISOR
40.00
.......................0.00
          X 241,993 0 15,498
(28) WILLIAM SKACH MD........................................................................
EVP & CHIEF SCIENTIFIC OFFICER
40.00
.......................0.00
          X 277,714 0 1,590




1b Sub-Total..............
c Total from continuation sheets to Part VII, Section A..
d Total (add lines 1b and 1c)......... 11,620,447 0 1,366,794
2
Total number of individuals (including but not limited to those listed above) who received more than $100,000 of reportable compensation from the organization 335
Yes
No
3
Did the organization list any former officer, director or trustee, key employee, or highest compensated employee on line 1a? If "Yes," complete Schedule J for such individual ..............
3
Yes
 
4
For any individual listed on line 1a, is the sum of reportable compensation and other compensation from the organization and related organizations greater than $150,000? If "Yes," complete Schedule J for such
individual
...........................
4
Yes
 
5
Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services rendered to the organization? If "Yes," complete Schedule J for such person ........
5
 
No
Section B. Independent Contractors
1
Complete this table for your five highest compensated independent contractors that received more than $100,000 of compensation from the organization. Report compensation for the calendar year ending with or within the organization’s tax year.
(A)
Name and business address
(B)
Description of services
(C)
Compensation
PIONEERING MEDICINE (CF) LLC

55 CAMBRIDGE PKWY STE 800E
CAMBRIDGE,MA02142
CONTRACTED RESEARCH 16,730,000
ARCTURUS THERAPEUTICS INC

10628 SCIENCE CENTER DR STE 250
SAN DIEGO,CA92121
CONTRACTED RESEARCH 11,065,017
VERTEX PHARMACEUTICALS INC

50 NORTHERN AVE
BOSTON,MA02210
CONTRACTED RESEARCH 7,500,000
ANAGRAM THERAPEUTICS INC

10 SPEEN ST STE 302
FRAMINGHAM,MA01701
CONTRACTED RESEARCH 6,500,000
FREEMAN DECORATING CO

PO BOX 660613
DALLAS,TX75266
EVENT SERVICES 1,722,580
2
Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization 110
Form 990 (2023)
Form 990 (2023)
Page 9
Part VIII
Statement of Revenue
Check if Schedule O contains a response or note to any line in this Part VIII.............
(A)
Total revenue
(B)
Related or
exempt
function
revenue
(C)
Unrelated
business
revenue
(D)
Revenue
excluded from
tax under sections
512 - 514
Contributions, Gifts, Grants, and OtherAmt Similar Amounts 1a Federated campaigns..1a 270,118
b Membership dues..1b  
c Fundraising events..1c 53,390,590
d Related organizations1d  
e Government grants (contributions)1e  
f All other contributions, gifts, grants, and similar amounts not included above1f 32,946,665
g Noncash contributions included in lines 1a - 1f:$ 1g 10,370,204
h Total. Add lines 1a-1f....... 86,607,373
 Program Service RevenueAmt Business Code
2a SCIENTIFIC CONFERENCE 611600 3,103,695 3,103,695    
b DATA SAFETY MONITORING 541900 334,000 334,000    
c
d
e
f All other program service revenue.        
g Total. Add lines 2a–2f ..... 3,437,695
 OtherAmtRevenueAmt 3 Investment income (including dividends, interest, and othersimilar amounts) ...... 76,349,644   8,541,916 67,807,728
4 Income from investment of tax-exempt bond proceeds        
5 Royalties........... 12,545,463 229,359   12,316,104
(i) Real (ii) Personal
6a Gross rents 6a    
b Less: rental expenses 6b    
c Rental income or (loss) 6c    
d Net rental income or (loss).......        
(i) Securities (ii) Other
7a Gross amount from sales of assets other than inventory 7a 1,606,458,282  
b Less: cost or other basis and sales expenses 7b 1,503,658,316  
c Gain or (loss) 7c 102,799,966  
d Net gain or (loss)......... 102,799,966     102,799,966
8a Gross income from fundraising events (not including $ 53,390,590of contributions reported on line 1c). See Part IV, line 18 ....
8a 14,594,252
b Less: direct expenses ... 8b 14,594,252
c Net income or (loss) from fundraising events.. 0    
9a Gross income from gaming activities.
See Part IV, line 19 ...
9a 21,710
b Less: direct expenses ... 9b 11,349
c Net income or (loss) from gaming activities.. 10,361     10,361
10a Gross sales of inventory, less
returns and allowances ..
10a  
b Less: cost of goods sold .. 10b  
c Net income or (loss) from sales of inventory..        
 OtherRevenueMiscAmt
Business Code
11a REFUND/CANCELED GRANTS 900099 10,235,107 10,235,107    
b OTHER MISC REVENUE 900099 30,671     30,671
c            
d All other revenue ....        
e Total. Add lines 11a–11d ...... 10,265,778
12 Total revenue. See instructions..... 292,016,280 13,902,161 8,541,916 182,964,830
Form 990 (2023)
Form 990 (2023)
Page 10
Part IX
Statement of Functional Expenses
Section 501(c)(3) and 501(c)(4) organizations must complete all columns. All other organizations must complete column (A).Check if Schedule O contains a response or note to any line in this Part IX..............
Do not include amounts reported on lines 6b,
7b, 8b, 9b, and 10b of Part VIII.
(A)
Total expenses
(B)
Program service expenses
(C)
Management and general expenses
(D)
Fundraising
expenses
1 Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 .... 186,907,445 186,907,445
2 Grants and other assistance to domestic individuals. See Part IV, line 22 ........... 342,968 342,968
3 Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. ............. 13,205,048 13,205,048
4 Benefits paid to or for members .......    
5 Compensation of current officers, directors, trustees, and key employees ........... 7,141,874 3,835,249 1,994,317 1,312,308
6 Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) ......... 567,040 304,505 158,342 104,193
7 Other salaries and wages........ 90,365,830 48,316,291 25,361,237 16,688,302
8 Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) .... 7,114,223 3,942,789 1,912,780 1,258,654
9 Other employee benefits ....... 16,308,874 8,846,577 4,500,717 2,961,580
10 Payroll taxes ........... 6,455,402 3,576,339 1,610,993 1,268,070
11 Fees for services (non-employees):        
a Management ......        
b Legal ......... 299,115 23,140 275,507 468
c Accounting ........... 463,476   463,476  
d Lobbying ........... 803,465 803,465    
e Professional fundraising services. See Part IV, line 17 176,400 176,400
f Investment management fees ...... 2,657,320   2,657,320  
g Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O) 6,394,897 4,799,509 1,562,035 33,353
12 Advertising and promotion .... 27,455 9,060 4,667 13,728
13 Office expenses ....... 5,682,132 3,245,372 424,652 2,012,108
14 Information technology ...... 13,032,957 7,462,272 2,721,270 2,849,415
15 Royalties ..        
16 Occupancy ........... 7,666,750 4,851,778 1,358,001 1,456,971
17 Travel ............ 2,978,569 1,843,875 574,877 559,817
18 Payments of travel or entertainment expenses for any federal, state, or local public officials .        
19 Conferences, conventions, and meetings .... 8,660,244 7,027,449 533,069 1,099,726
20 Interest ...........        
21 Payments to affiliates .......        
22 Depreciation, depletion, and amortization .. 2,742,703 2,051,076 395,123 296,504
23 Insurance ... 720,002 467,811 222,979 29,212
24 Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a CONTRACTED RESEARCH 58,687,072 58,687,072    
b TRAINING 503,760 319,681 124,205 59,874
c
d
e All other expenses 3,499,578 943,331 2,361,407 194,840
25 Total functional expenses. Add lines 1 through 24e 443,404,599 361,812,102 49,216,974 32,375,523
26 Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here if following SOP 98-2 (ASC 958-720).        
Form 990 (2023)
Form 990 (2023)
Page 11
Part X
Balance Sheet
Check if Schedule O contains a response or note to any line in this Part IX..............
(A)
Beginning of year
(B)
End of year
Assets 1 Cash–non-interest-bearing ........ 825 1 20,000
2 Savings and temporary cash investments ......... 89,344,692 2 109,087,327
3 Pledges and grants receivable, net ...... 16,374,636 3 15,055,739
4 Accounts receivable, net ............. 23,189,779 4 22,382,858
5 Loans and other receivables from any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
  5  
6 Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
  6  
7 Notes and loans receivable, net ...........   7  
8 Inventories for sale or use ............ 209,153 8 206,966
9 Prepaid expenses and deferred charges ...... 5,923,684 9 4,831,329
10a Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D 10a 32,090,841
b Less: accumulated depreciation 10b 23,227,804 10,429,968 10c 8,863,037
11 Investments—publicly traded securities . 2,713,899,331 11 2,705,339,108
12 Investments—other securities. See Part IV, line 11 ..... 1,734,329,559 12 1,764,791,266
13 Investments—program-related. See Part IV, line 11 .. 75,899,728 13 88,133,200
14 Intangible assets ...............   14  
15 Other assets. See Part IV, line 11 ........... 65,457,637 15 167,210,292
16 Total assets. Add lines 1 through 15 (must equal line 33)... 4,735,058,992 16 4,885,921,122
Liabilities 17 Accounts payable and accrued expenses ..... 32,393,816 17 37,939,543
18 Grants payable ... 226,137,686 18 226,220,440
19 Deferred revenue ......... 2,196,254 19 2,685,701
20 Tax-exempt bond liabilities .........   20  
21 Escrow or custodial account liability. Complete Part IV of Schedule D   21  
22 Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
  22  
23 Secured mortgages and notes payable to unrelated third parties ..   23  
24 Unsecured notes and loans payable to unrelated third parties ..   24  
25 Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D 30,612,220 25 26,119,138
26 Total liabilities. Add lines 17 through 25.. 291,339,976 26 292,964,822
Net Assets or Fund Balance Organizations that follow FASB ASC 958, check here and complete lines 27, 28, 32, and 33.
27 Net assets without donor restrictions .......... 4,421,196,361 27 4,576,101,051
28 Net assets with donor restrictions ........... 22,522,655 28 16,855,249
Organizations that do not follow FASB ASC 958, check here right arrow and complete lines 29 through 33.
29 Capital stock or trust principal, or current funds .....   29  
30 Paid-in or capital surplus, or land, building or equipment fund ...   30  
31 Retained earnings, endowment, accumulated income, or other funds   31  
32 Total net assets or fund balances ........... 4,443,719,016 32 4,592,956,300
33 Total liabilities and net assets/fund balances ........ 4,735,058,992 33 4,885,921,122
Form 990 (2023)
Form 990 (2023)
Page 12
Part XI
Reconcilliation of Net Assets
Check if Schedule O contains a response or note to any line in this Part XI..............
1
Total revenue (must equal Part VIII, column (A), line 12) ............
1
292,016,280
2
Total expenses (must equal Part IX, column (A), line 25) ............
2
443,404,599
3
Revenue less expenses. Subtract line 2 from line 1 ..............
3
-151,388,319
4
Net assets or fund balances at beginning of year (must equal Part X, line 32, column (A)) ..
4
4,443,719,016
5
Net unrealized gains (losses) on investments ...............
5
300,625,603
6
Donated services and use of facilities .................
6
 
7
Investment expenses .....................
7
 
8
Prior period adjustments .....................
8
 
9
Other changes in net assets or fund balances (explain in Schedule O) ........
9
0
10
Net assets or fund balances at end of year. Combine lines 3 through 9 (must equal Part X, line 32, column (B))
10
4,592,956,300
Part XII
Financial Statements and Reporting
Check if Schedule O contains a response or note to any line in this Part XII.............
Yes
No
1
Accounting method used to prepare the Form 990:  
If the organization changed its method of accounting from a prior year or checked "Other," explain on
Schedule O.
2a
Were the organization’s financial statements compiled or reviewed by an independent accountant?
2a
 
No
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were compiled or reviewed on a separate basis, consolidated basis, or both:
b
Were the organization’s financial statements audited by an independent accountant?
2b
Yes
 
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were audited on a separate basis, consolidated basis, or both:
c
If "Yes," to line 2a or 2b, does the organization have a committee that assumes responsibility for oversight of the audit, review, or compilation of its financial statements and selection of an independent accountant?
2c
Yes
 
If the organization changed either its oversight process or selection process during the tax year, explain in Schedule O.
3a
As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Uniform Guidance, 2 C.F.R. Part 200, Subpart F?
3a
 
No
b
If "Yes," did the organization undergo the required audit or audits? If the organization did not undergo the required audit or audits, explain why in Schedule O and describe any steps taken to undergo such audits.
3b
 
 
Form 990 (2023)
Form 990 (2023)
Additional Data


Software ID:  
Software Version:  
Form 990, Special Condition Description:
Special Condition Description
SCHEDULE A
(Form 990)

Department of the Treasury
Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
right arrow Attach to Form 990 or Form 990-EZ.
right arrow Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2023
Open to Public
Inspection
Name of the organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number

13-1930701
Part I
Reason for Public Charity Status (All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)
1
A church, convention of churches, or association of churches described in section 170(b)(1)(A)(i).
2
A school described in section 170(b)(1)(A)(ii). (Attach Schedule E (Form 990).)
3
A hospital or a cooperative hospital service organization described in section 170(b)(1)(A)(iii).
4
A medical research organization operated in conjunction with a hospital described in section 170(b)(1)(A)(iii). Enter the hospital's name, city, and state:

5
An organization operated for the benefit of a college or university owned or operated by a governmental unit described in section 170(b)(1)(A)(iv). (Complete Part II.)
6
A federal, state, or local government or governmental unit described in section 170(b)(1)(A)(v).
7
An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi). (Complete Part II.)
8
A community trust described in section 170(b)(1)(A)(vi). (Complete Part II.)
9
An agricultural research organization described in 170(b)(1)(A)(ix) operated in conjunction with a land-grant college or university or a non-land grant college of agriculture. See instructions. Enter the name, city, and state of the college or university:
10
An organization that normally receives: (1) more than 33 1/3% of its support from contributions, membership fees, and gross receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 33 1/3% of its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)
11
12
An organization organized and operated exclusively for the benefit of, to perform the functions of, or to carry out the purposes of one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2). See section 509(a)(3). Check the box on lines 12a through 12d that describes the type of supporting organization and complete lines 12e, 12f, and 12g.
a
Type I. A supporting organization operated, supervised, or controlled by its supported organization(s), typically by giving the supported organization(s) the power to regularly appoint or elect a majority of the directors or trustees of the supporting organization. You must complete Part IV, Sections A and B.
b
Type II. A supporting organization supervised or controlled in connection with its supported organization(s), by having control or management of the supporting organization vested in the same persons that control or manage the supported organization(s). You must complete Part IV, Sections A and C.
c
Type III functionally integrated. A supporting organization operated in connection with, and functionally integrated with, its supported organization(s) (see instructions). You must complete Part IV, Sections A, D, and E.
d
Type III non-functionally integrated. A supporting organization operated in connection with its supported organization(s) that is not functionally integrated. The organization generally must satisfy a distribution requirement and an attentiveness requirement (see instructions). You must complete Part IV, Sections A and D, and Part V.
e
Check this box if the organization received a written determination from the IRS that it is a Type I, Type II, Type III functionally integrated, or Type III non-functionally integrated supporting organization.
f
Enter the number of supported organizations ...............................  
g
Provide the following information about the supported organization(s).
(i) Name of supported organization (ii) EIN (iii) Type of organization (described on lines 1- 10 above (see instructions)) (iv) Is the organization listed in your governing document? (v) Amount of monetary support (see instructions) (vi) Amount of other support (see instructions)
Yes No
Total
 
   
For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.
Cat. No. 11285F
Schedule A (Form 990) 2023

Schedule A (Form 990) 2023
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2019 (b) 2020 (c) 2021 (d) 2022 (e) 2023 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. 108,894,890 73,199,355 86,536,159 97,948,958 86,607,373 453,186,735
2 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf ....            
3 The value of services or facilities furnished by a governmental unit to the organization without charge..            
4 Total. Add lines 1 through 3 108,894,890 73,199,355 86,536,159 97,948,958 86,607,373 453,186,735
5 The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f) ..  
6 Public support. Subtract line 5 from line 4. 453,186,735
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2019 (b) 2020 (c) 2021 (d) 2022 (e) 2023 (f) Total
7 Amounts from line 4.. 108,894,890 73,199,355 86,536,159 97,948,958 86,607,373 453,186,735
8 Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... 95,519,254 95,019,118 74,598,441 75,903,369 88,665,749 429,705,931
9 Net income from unrelated business activities, whether or not the business is regularly carried on..            
10 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. 15,976,419 9,386,514 6,491,041 12,503,243 14,646,633 59,003,850
11 Total support. Add lines 7 through 10 941,896,516
12
12
74,506,298
13
First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here ........................................right arrow
Section C. Computation of Public Support Percentage
14
14
48.110 %
15
15
50.380 %
16a
33 1/3% support test—2023. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization .......................right arrow
b
33 1/3% support test—2022. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization ..................... right arrow
17a
10%-facts-and-circumstances test—2023. If the organization did not check a box on line 13, 16a, or 16b, and line 14 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ............ right arrow
b
10%-facts-and-circumstances test—2022. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line 15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ............ right arrow
18
Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow
Schedule A (Form 990) 2023

Schedule A (Form 990) 2023
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in) right arrow (a) 2019 (b) 2020 (c) 2021 (d) 2022 (e) 2023 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .            
2 Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose            
3 Gross receipts from activities that are not an unrelated trade or business under section 513 .....            
4 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...            
5 The value of services or facilities furnished by a governmental unit to the organization without charge            
6 Total. Add lines 1 through 5            
7a Amounts included on lines 1, 2, and 3 received from disqualified persons            
b Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.            
c Add lines 7a and 7b..            
8 Public support. (Subtract line 7c from line 6.)  
Section B. Total Support
Calendar year (or fiscal year beginning in) right arrow (a) 2019 (b) 2020 (c) 2021 (d) 2022 (e) 2023 (f) Total
9 Amounts from line 6...            
10a Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..            
b Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.            
c Add lines 10a and 10b.            
11 Net income from unrelated business activities not included on line 10b, whether or not the business is regularly carried on.            
12 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..            
13 Total support. (Add lines 9, 10c, 11, and 12.)..            
14
First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here................................................. right arrow
Section C. Computation of Public Support Percentage
15
15
 
16
16
 
Section D. Computation of Investment Income Percentage
17
17
 
18
18
 
19a
33 1/3% support tests-2023. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ....... right arrow
b
33 1/3 % support tests—2022. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ..... right arrow
20
Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions .... right arrow
Schedule A (Form 990) 2023

Schedule A (Form 990) 2023
Page 4
Part IV
Supporting Organizations
(Complete only if you checked a box on line 12 of Part I. If you checked box 12a, of Part I, complete Sections A and B. If you checked box 12b, of Part I, complete Sections A and C. If you checked box 12c, of Part I, complete Sections A, D, and E. If you checked box12d, of Part I, complete Sections A and D, and complete Part V.)
Section A. All Supporting Organizations
Yes
No
1
Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.
1
 
 
2
Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).
2
 
 
3a
Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer lines 3b and 3c below.
3a
 
 
b
Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.
3b
 
 
c
Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.
3c
 
 
4a
Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked box 12a or 12b in Part I, answer lines 4b and 4c below.
4a
 
 
b
Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.
4b
 
 
c
Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.
4c
 
 
5a
Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer lines 5b and 5c below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).
5a
 
 
b
Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?
5b
 
 
c
Substitutions only. Was the substitution the result of an event beyond the organization's control?
5c
 
 
6
Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.
6
 
 
7
Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990) .
7
 
 
8
Did the organization make a loan to a disqualified person (as defined in section 4958) not described on line 7? If “Yes,” complete Part I of Schedule L (Form 990).
8
 
 
9a
Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons, as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.
9a
 
 
b
Did one or more disqualified persons (as defined on line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.
9b
 
 
c
Did a disqualified person (as defined on line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.
9c
 
 
10a
Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.
10a
 
 
b
Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).
10b
 
 
Schedule A (Form 990) 2023

Schedule A (Form 990) 2023
Page 5
Part IV
Supporting Organizations (continued)
Yes
No
11
Has the organization accepted a gift or contribution from any of the following persons?
a
A person who directly or indirectly controls, either alone or together with persons described on lines 11b and 11c below, the governing body of a supported organization?
11a
 
 
b
A family member of a person described on 11a above?
11b
 
 
c
A 35% controlled entity of a person described on line 11a or 11b above? If “Yes” to 11a, 11b, or 11c, provide detail in Part VI.
11c
 
 
Section B. Type I Supporting Organizations
Yes
No
1
Did the officers, directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.
1
 
 
2
Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.
2
 
 
Section C. Type II Supporting Organizations
Yes
No
1
Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).
1
 
 
Section D. All Type III Supporting Organizations
Yes
No
1
Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?
1
 
 
2
Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).
2
 
 
3
By reason of the relationship described in line 2 above, did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.
3
 
 
Section E. Type III Functionally-Integrated Supporting Organizations
1
Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):
a
b
c
2
Activities Test. Answer lines 2a and 2b below.
Yes
No
a
Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.
2a
 
 
b
Did the activities described on line 2a, above constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.
2b
 
 
3
Parent of Supported Organizations. Answer lines 3a and 3b below.
a
Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations?If "Yes" or "No", provide details in Part VI.
3a
 
 
b
Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.
3b
 
 
Schedule A (Form 990) 2023

Schedule A (Form 990) 2023
Page 6
Part V
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations
1
Check here if the organization satisfied the Integral Part Test as a qualifying trust on Nov. 20, 1970 (explain in Part VI). See instructions. All other Type III non-functionally integrated supporting organizations must complete Sections A through E.
Section A - Adjusted Net Income (A) Prior Year (B) Current Year
(optional)
1 Net short-term capital gain 1    
2 Recoveries of prior-year distributions 2    
3 Other gross income (see instructions) 3    
4 Add lines 1 through 3 4    
5 Depreciation and depletion 5    
6 Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) 6    
7 Other expenses (see instructions) 7    
8 Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) 8    
Section B - Minimum Asset Amount (A) Prior Year (B) Current Year
(optional)
1 Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): 1
a Average monthly value of securities 1a    
b Average monthly cash balances 1b    
c Fair market value of other non-exempt-use assets 1c    
d Total (add lines 1a, 1b, and 1c) 1d    
e Discount claimed for blockage or other factors
(explain in detail in Part VI):  
2 Acquisition indebtedness applicable to non-exempt use assets 2    
3 Subtract line 2 from line 1d 3    
4 Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions). 4    
5 Net value of non-exempt-use assets (subtract line 4 from line 3) 5    
6 Multiply line 5 by 0.035 6    
7 Recoveries of prior-year distributions 7    
8 Minimum Asset Amount (add line 7 to line 6) 8    
Section C - Distributable Amount Current Year
1 Adjusted net income for prior year (from Section A, line 8, Column A) 1  
2 Enter 85% of line 1 2  
3 Minimum asset amount for prior year (from Section B, line 8, Column A) 3  
4 Enter greater of line 2 or line 3 4  
5 Income tax imposed in prior year 5  
6 Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) 6  
7
Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (see instructions)
Schedule A (Form 990) 2023

Schedule A (Form 990) 2023
Page 7
Part V
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)
Section D - Distributions Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes 1  
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in
excess of income from activity
2  
3 Administrative expenses paid to accomplish exempt purposes of supported organizations 3  
4 Amounts paid to acquire exempt-use assets 4  
5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI) 5  
6 Other distributions (describe in Part VI). See instructions 6  
7Total annual distributions. Add lines 1 through 6. 7  
8 Distributions to attentive supported organizations to which the organization is responsive (provide
details in Part VI
). See instructions
8  
9 Distributable amount for 2023 from Section C, line 6 9  
10 Line 8 amount divided by Line 9 amount 10  
Section E - Distribution Allocations (see instructions) (i)
Excess Distributions
(ii)
Underdistributions
Pre-2023
(iii)
Distributable
Amount for 2023
1 Distributable amount for 2023 from Section C, line 6  
2 Underdistributions, if any, for years prior to 2023 (reasonable cause required-- explain in Part VI).
See instructions.
 
3 Excess distributions carryover, if any, to 2023:
a From 2018.......  
b From 2019.......  
c From 2020.......  
d From 2021.......  
e From 2022.......  
fTotal of lines 3a through e  
g Applied to underdistributions of prior years  
h Applied to 2023 distributable amount  
i Carryover from 2018 not applied (see
instructions)
 
j Remainder. Subtract lines 3g, 3h, and 3i from line 3f.  
4Distributions for 2023 from Section D, line 7:
$  
a Applied to underdistributions of prior years  
b Applied to 2023 distributable amount  
c Remainder. Subtract lines 4a and 4b from line 4.  
5 Remaining underdistributions for years prior to
2023, if any. Subtract lines 3g and 4a from line 2.
If the amount is greater than zero, explain in Part VI.
See instructions.
 
6 Remaining underdistributions for 2023. Subtract
lines 3h and 4b from line 1. If the amount is greater
than zero, explain in Part VI. See instructions.
 
7 Excess distributions carryover to 2024. Add lines
3j and 4c.
 
8 Breakdown of line 7:
a Excess from 2019.....  
b Excess from 2020.....  
c Excess from 2021.....  
d Excess from 2022.....  
e Excess from 2023.....  
Schedule A (Form 990) (2023)

Schedule A (Form 990) 2023
Page 8
Part VI
Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
 


Return Reference Explanation
SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: REIMBURSEMENT PROCEEDS - 2019 AMOUNT: $ 29,624. 2020 AMOUNT: $ 2,889,947. 2021 AMOUNT: $ 6,760. 2022 AMOUNT: $ 58,990. 2023 AMOUNT: $ 30,671. EMPLOYEE RETENTION CREDIT - 2019 AMOUNT: $ 0. 2020 AMOUNT: $ 2,653,151. 2021 AMOUNT: $ 3,025,780. 2022 AMOUNT: $ 0. 2023 AMOUNT: $ 0. GROSS FUNDRAISING REVENUE - 2019 AMOUNT: $ 15,811,603. 2020 AMOUNT: $ 3,754,416. 2021 AMOUNT: $ 3,443,701. 2022 AMOUNT: $ 12,338,183. 2023 AMOUNT: $ 14,594,252. GROSS GAMING REVENUE - 2019 AMOUNT: $ 135,192. 2020 AMOUNT: $ 89,000. 2021 AMOUNT: $ 14,800. 2022 AMOUNT: $ 106,070. 2023 AMOUNT: $ 21,710.
PART II, LINE 12 GROSS RECEIPTS FROM RELATED ACTIVITIES THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE THAT PROVIDES A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATION RESULTS WITH ONE ANOTHER. REGISTRATION FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. REIMBURSEMENTS FOR DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE RELATED COSTS ARE REPORTED ON LINE 12.
Schedule A (Form 990) 2023


Additional Data


Software ID:  
Software Version:  
Schedule B
(Form 990)
Department of the Treasury
Internal Revenue Service
Schedule of Contributors

Arrow Bullet Attach to Form 990, 990-EZ, or 990-PF.
Arrow Bullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2023
Name of the organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number

13-1930701
Organization type (check one):
Filers of:
Section:
Form 990 or 990-EZ






Form 990-PF




Check if your organization is covered by the General Rule or a Special Rule.  
Note: Only a section 501(c)(7), (8), or (10) organization can check boxes for both the General Rule and a Special Rule. See instructions.
General Rule
Special Rules
......... Arrow Bullet $  
Caution: An organization that isn't covered by the General Rule and/or the Special Rules doesn't file Schedule B (Form 990,
990-EZ, or 990-PF), but it must answer “No” on Part IV, line 2, of its Form 990; or check the box on line H of its Form 990-EZ
or on its Form 990PF, Part I, line 2, to certify that it doesn't meet the filing requirements of Schedule B (Form 990,
990-EZ, or 990-PF).
For Paperwork Reduction Act Notice, see the Instructions
for Form 990, 990-EZ, or 990-PF.
Cat. No. 30613XSchedule B (Form 990) (2023)
Schedule B (Form 990) (2023) Page 2
Name of organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number
13-1930701
Part I
Contributors
Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
(a)
No.
(b)
Name, address, and ZIP + 4
(c)
Total contributions
(d)
Type of contribution
RESTRICTED
 
 
 
 
  ,    

$ RESTRICTED


(Complete Part II for noncash contributions.)
(a)
No.
(b)
Name, address, and ZIP + 4
(c)
Total contributions
(d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.
(b)
Name, address, and ZIP + 4
(c)
Total contributions
(d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.
(b)
Name, address, and ZIP + 4
(c)
Total contributions
(d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.
(b)
Name, address, and ZIP + 4
(c)
Total contributions
(d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.
(b)
Name, address, and ZIP + 4
(c)
Total contributions
(d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
Schedule B (Form 990) (2023)
Schedule B (Form 990) (2023)
Page 3
Name of organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number

13-1930701
Part II
Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
(a)
No. from Part I
(b)
Description of noncash property given
(c)
FMV (or estimate)
(See instructions)
(d)
Date received
 
$    
(a)
No. from Part I
(b)
Description of noncash property given
(c)
FMV (or estimate)
(See instructions)
(d)
Date received
 
$    
(a)
No. from Part I
(b)
Description of noncash property given
(c)
FMV (or estimate)
(See instructions)
(d)
Date received
 
$    
(a)
No. from Part I
(b)
Description of noncash property given
(c)
FMV (or estimate)
(See instructions)
(d)
Date received
 
$    
(a)
No. from Part I
(b)
Description of noncash property given
(c)
FMV (or estimate)
(See instructions)
(d)
Date received
 
$    
(a)
No. from Part I
(b)
Description of noncash property given
(c)
FMV (or estimate)
(See instructions)
(d)
Date received
 
$    
Schedule B (Form 990) (2023)
Schedule B (Form 990) (2023)
Page 4
Name of organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number

13-1930701
Part III
Exclusively religious, charitable, etc., contributions to organizations described in section 501(c)(7), (8), or (10) that total more than $1,000 for the year from any one contributor. Complete columns (a) through (e) and the following line entry. For organizations completing Part III, enter the total of exclusively religious, charitable, etc., contributions of $1,000 or less for the year. (Enter this information once. See instructions.) Arrow Bullet$  
Use duplicate copies of Part III if additional space is needed.
(a)
No. from Part I
(b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I
(b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I
(b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I
(b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
Schedule B (Form 990) (2023)
Additional Data


Software ID:  
Software Version:  
SCHEDULE C
(Form 990)

Department of the Treasury
Internal Revenue Service
Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527

right arrow Complete if the organization is described below. right arrow Attach to Form 990 or Form 990-EZ.
right arrowGo to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2022
Open to Public
Inspection
If the organization answered "Yes" on Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" on Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" on Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet Section 501(c)(4), (5), or (6) organizations: Complete Part III.
Name of the organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number

13-1930701
Part I-A
Complete if the organization is exempt under section 501(c) or is a section 527 organization.

1
Provide a description of the organization’s direct and indirect political campaign activities in Part IV. See instructions for definition of “political campaign activities."

2
Political campaign activity expenditures. See instructions ....................................................................right arrow
$  
3
Volunteer hours for political campaign activities. See instructions ..................................................................
 

Part I-B
Complete if the organization is exempt under section 501(c)(3).
1
Enter the amount of any excise tax incurred by the organization under section 4955 ................................right arrow
$  
2
Enter the amount of any excise tax incurred by organization managers under section 4955 .......................right arrow
$  
3
If the organization incurred a section 4955 tax, did it file Form 4720 for this year? .........................................
4a
Was a correction made? ......................................................................................................................
b
If "Yes," describe in Part IV.
Part I-C
Complete if the organization is exempt under section 501(c), except section 501(c)(3).
1
Enter the amount directly expended by the filing organization for section 527 exempt function activities ..... right arrow
$  
2
Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ............................................................................................................................right arrow

$  
3
Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b...........right arrow

$  
4
Did the filing organization file Form 1120-POL for this year? ...................................................................
5
Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.
(a) Name (b) Address (c) EIN (d) Amount paid from filing organization's funds. If none, enter -0-. (e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.
1
2
3
4
5
6
For Paperwork Reduction Act Notice, see the instructions for Form 990.
Cat. No. 50084S
Schedule C (Form 990) 2022

Schedule C (Form 990) 2022
Page 2
Part II-A
Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).
A Check right arrowexpenses, and share of excess lobbying expenditures).
B Check right arrow
Limits on Lobbying Expenditures
(The term "expenditures" means amounts paid or incurred.)
(a) Filing
organization's
totals
(b) Affiliated group totals
1a Total lobbying expenditures to influence public opinion (grass roots lobbying) ......................    
b Total lobbying expenditures to influence a legislative body (direct lobbying) ........................    
c Total lobbying expenditures (add lines 1a and 1b) ............................................................    
d Other exempt purpose expenditures ...............................................................................    
e Total exempt purpose expenditures (add lines 1c and 1d) ..................................................    
f Lobbying nontaxable amount. Enter the amount from the following table in both
columns.
   
If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
Not over $500,00020% of the amount on line 1e.
Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
Over $17,000,000$1,000,000.
g Grassroots nontaxable amount (enter 25% of line 1f) .................................................    
h Subtract line 1g from line 1a. If zero or less, enter -0-. ................................................    
i Subtract line 1f from line 1c. If zero or less, enter -0-. ................................................    
j If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting
section 4911 tax for this year? ...................................................................................................................

4-Year Averaging Period Under Section 501(h)
(Some organizations that made a section 501(h) election do not have to complete all of the five
columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
Calendar year (or fiscal year
beginning in)
(a) 2019 (b) 2020 (c) 2021 (d) 2022 (e) Total
2a Lobbying nontaxable amount          
b Lobbying ceiling amount
(150% of line 2a, column(e))
 
c Total lobbying expenditures          
d Grassroots nontaxable amount          
e Grassroots ceiling amount
(150% of line 2d, column (e))
 
f Grassroots lobbying expenditures          
Schedule C (Form 990) 2022


Schedule C (Form 990) 2022
Page 3
Part II-B
Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).
For each "Yes" response on lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.
(a)
Yes|No
(b)
Amount
1
During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:
a
Volunteers? ...........................................................................................................
Yes
 
b
Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ........
Yes
 
c
Media advertisements? ...................................................................................................
 
No
 
d
Mailings to members, legislators, or the public? .............................................................................
 
No
 
e
Publications, or published or broadcast statements? ...........................................................
Yes
 
58
f
Grants to other organizations for lobbying purposes? ..........................................................
 
No
 
g
Direct contact with legislators, their staffs, government officials, or a legislative body? .......................
Yes
 
1,546,284
h
Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ..................
 
No
 
i
Other activities? ...................................................................................................................
Yes
 
57,558
j
Total. Add lines 1c through 1i ....................................................................................................
1,603,900
2a
Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....
 
No
b
If "Yes," enter the amount of any tax incurred under section 4912 ...........................................
 
c
If "Yes," enter the amount of any tax incurred by organization managers under section 4912 ...................
 
d
If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? ........................
 
 
Part III-A
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).
Yes
No
1
Were substantially all (90% or more) dues received nondeductible by members? ...............................................
1
 
 
2
Did the organization make only in-house lobbying expenditures of $2,000 or less? ............................................
2
 
 
3
Did the organization agree to carry over lobbying and political expenditures from the prior year? .................................
3
 
 
Part III-B
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."
1
Dues, assessments and similar amounts from members ......................................................................
1
 
2
Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political expenses for which the section 527(f) tax was paid).
a
Current year .............................................................................................................................
2a
 
b
Carryover from last year ............................................................................................................
2b
 
c
Total ...........................................................................................................................................
2c
 
3
Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .
3
 
4
If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ......................................................................................................................
4
 
5
Taxable amount of lobbying and political expenditures. See Instructions .........................................
5
 
Part IV
Supplemental Information
Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.
Return Reference Explanation
PART II-B, LINE 1: LOBBYING ACTIVITY THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.
Schedule C (Form 990) 2022


Additional Data


Software ID:  
Software Version:  

SCHEDULE D
(Form 990)
Department of the Treasury
Internal Revenue Service
Supplemental Financial Statements
right arrow Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
right arrow Attach to Form 990.
right arrow Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2022
Open to Public Inspection
Name of the organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number

13-1930701
Part I
Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.
(a) Donor advised funds (b) Funds and other accounts
1 Total number at end of year .........    
2 Aggregate value of contributions to (during year)    
3 Aggregate value of grants from (during year)    
4 Aggregate value at end of year ........    
5
Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............
6
Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................
Part II
Conservation Easements.
Complete if the organization answered "Yes" on Form 990, Part IV, line 7.
1
Purpose(s) of conservation easements held by the organization (check all that apply).
2
Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.
Held at the End of the Year
a Total number of conservation easements ...................... 2a  
b Total acreage restricted by conservation easements .................... 2b  
c Number of conservation easements on a certified historic structure included in (a) ..... 2c  
d Number of conservation easements included in (c) acquired after July 25, 2006, and not on a historic structure listed in the National Register ... 2d  
3
Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year right arrow  
4
Number of states where property subject to conservation easement is located right arrow  
5
Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............
6
Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
right arrow  
7
Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
right arrow $  
8
Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................
9
In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.
1a
If the organization elected, as permitted under FASB ASC 958, not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.
b
If the organization elected, as permitted under FASB ASC 958, to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:
(i)
Revenue included on Form 990, Part VIII, line 1 .........................right arrow $  
(ii)
Assets included in Form 990, Part X ...............................right arrow $  
2
If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under FASB ASC 958 relating to these items:
a
Revenue included on Form 990, Part VIII, line 1 ..........................right arrow $  
b
Assets included in Form 990, Part X ...............................right arrow $  
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 52283D
Schedule D (Form 990) 2022

Schedule D (Form 990) 2022
Page 2
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)
3
Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):
a
d
b
e
 
c
4
Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.
5
During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...
Part IV
Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.
1a
Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................
b If "Yes," explain the arrangement in Part XIII and complete the following table: Amount
c Beginning balance ............................. 1c  
d Additions during the year ............................ 1d  
e Distributions during the year .......................... 1e  
f Ending balance ................................ 1f  
2a
Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...
b
If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....
Part V
Endowment Funds.
Complete if the organization answered "Yes" on Form 990, Part IV, line 10.
(a) Current year (b) Prior year (c) Two years back (d) Three years back (e) Four years back
1a Beginning of year balance ....          
b Contributions ...          
c Net investment earnings, gains, and losses          
d Grants or scholarships ...          
e Other expenditures for facilities
and programs ...
         
f Administrative expenses ....          
g End of year balance ......          
2
Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:
a
Board designated or quasi-endowment right arrow  
b
Permanent endowment right arrow  
c
Term endowment right arrow  
The percentages on lines 2a, 2b, and 2c should equal 100%.
3a
Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes
No
(i) Unrelated organizations .................
3a(i)
 
 
(ii) Related organizations .................
3a(ii)
 
 
b
If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........
3b
 
 
4
Describe in Part XIII the intended uses of the organization's endowment funds.
Part VI
Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.
Description of property (a) Cost or other basis
(investment)
(b) Cost or other basis (other) (c) Accumulated depreciation (d) Book value
1a Land .....      
b Buildings ....        
c Leasehold improvements   6,436,948 3,572,495 2,864,453
d Equipment ....   25,653,893 19,655,309 5,998,584
e Other .....        
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).)..right arrow 8,863,037
Schedule D (Form 990) 2022

Schedule D (Form 990) 2022
Page 3
Part VII
Investments - Other Securities.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.
(a) Description of security or category
(including name of security)
(b) Book value (c) Method of valuation:
Cost or end-of-year market value
(1) Financial derivatives.........    
(2) Closely-held equity interests........    
(3) Other
(A) PVT EQTY & OTHR ILLIQUID
1,197,228,606 F

(B) OPPORTUNISTIC
422,653,845 F

(C) GLOBAL PUBLIC EQUITY
140,708,378 F

(D) PERPETUAL TRUSTS & OTHER
4,200,437 F
(D)
(E)
(F)
(G)
(H)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)right arrow 1,764,791,266
Part VIII
Investments - Program Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.
(a) Description of investment (b) Book value (c) Method of valuation:
Cost or end-of-year market value
(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)right arrow  
Part IX
Other Assets.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.
(a) Description (b) Book value
(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........right arrow  
Part X
Other Liabilities.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.
1.(a) Description of liability (b) Book value
(1) Federal income taxes  
OPERATING LEASE LIABILITIES 26,119,138








Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)right arrow 26,119,138
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII
Schedule D (Form 990) 2022

Schedule D (Form 990) 2022
Page 4
Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1 Total revenue, gains, and other support per audited financial statements ....... 1 576,582,381
2 Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a Net unrealized gains (losses) on investments .... 2a 300,625,597
b Donated services and use of facilities ......... 2b  
c Recoveries of prior year grants ........... 2c  
d Other (Describe in Part XIII.) ........... 2d  
e Add lines 2a through 2d ..................... 2e 300,625,597
3 Subtract line 2e from line 1.................. 3 275,956,784
4 Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b . 4a 16,059,496
b Other (Describe in Part XIII.) ........... 4b  
c Add lines 4a and 4b.................... 4c 16,059,496
5 Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ...... 5 292,016,280
Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1 Total expenses and losses per audited financial statements ........... 1 427,345,103
2 Amounts included on line 1 but not on Form 990, Part IX, line 25:
a Donated services and use of facilities ......... 2a  
b Prior year adjustments ............ 2b  
c Other losses ................ 2c  
d Other (Describe in Part XIII.) ........... 2d  
e Add lines 2a through 2d.................... 2e 0
3 Subtract line 2e from line 1................... 3 427,345,103
4 Amounts included on Form 990, Part IX, line 25, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b .. 4a 16,059,496
b Other (Describe in Part XIII.) ........... 4b  
c Add lines 4a and 4b..................... 4c 16,059,496
5 Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ...... 5 443,404,599
Part XIII
Supplemental Information
Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.
Return Reference Explanation
PART X, LINE 2: THE FOUNDATION IS A NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE A MATERIAL UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2023 AND 2022. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.
Schedule D (Form 990) 2022


Additional Data


Software ID:  
Software Version:  




SCHEDULE F(Form 990)
Department of the Treasury
Internal Revenue Service
Statement of Activities Outside the United States
Right arrow Complete if the organization answered "Yes" to Form 990, Part IV, line 14b, 15, or 16.Right arrow Attach to Form 990.Right arrow Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2023
Open to Public Inspection
Name of the organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number

13-1930701
Part I
General Information on Activities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 14b.
1
For grantmakers. Does the organization maintain records to substantiate the amount of its grants and
other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used
to award the grants or assistance? . . . . . . . . . . . . . . . . . . . . . . . . .
2
For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.
3
Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)
(a) Region (b) Number of offices in the region (c) Number of employees, agents, and independent contractors in the region (d) Activities conducted in region (by type) (such as, fundraising, program services, investments, grants to recipients located in the region) (e) If activity listed in (d) is a program service, describe specific type of
service(s) in the region
(f) Total expenditures
for and investments
in the region
EUROPE     GRANTMAKING NONE 6,640,470
NORTH AMERICA     GRANTMAKING NONE 3,776,281
EAST ASIA AND THE PACIFIC     GRANTMAKING NONE 2,679,377
MIDDLE EAST AND NORTH AFRICA     GRANTMAKING NONE 108,920
CENTRAL AMERICA & CARIBBEAN     INVESTMENTS   842,835,660
EAST ASIA & PACIFIC     INVESTMENTS   105,610,159
EUROPE     INVESTMENTS   150,554,741
NORTH AMERICA     INVESTMENTS   36,252,462
MIDDLE EAST AND NORTH AFRICA     INVESTMENTS   9,629,941
MIDDLE EAST AND NORTH AFRICA     MISSION RELATED INVESTMENTS   7,531,941
EUROPE     MISSION RELATED INVESTMENTS   3,759,820
NORTH AMERICA     PROGRAM SERVICES CONTRACTED RESEARCH 256,028
EUROPE     PROGRAM SERVICES CONTRACTED RESEARCH 64,485
EAST ASIA AND THE PACIFIC     PROGRAM SERVICES CONTRACTED RESEARCH 100,000
SOUTH ASIA     PROGRAM SERVICES CONTRACTED RESEARCH 78,619
           
           
3a Sub-total .... 0 0 1,148,458,070
b Total from continuation sheets to Part I ... 0 0 21,420,834
c Totals (add lines 3a and 3b) 0 0 1,169,878,904
For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) 2023
Schedule F (Form 990) 2023
Page 2
Part II
Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.
1 (a) Name of organization (b) IRS code section
and EIN (if applicable)
(c) Region (d) Purpose of
grant
(e) Amount of
cash grant
(f) Manner of
cash
disbursement
(g) Amount
of noncash
assistance
(h) Description
of noncash
assistance
(i) Method of
valuation
(book, FMV,
appraisal, other)
EAST ASIA AND THE PACIFIC CLINICAL CARE RESEARCH 38,600 WIRE 0    
EUROPE CLINICAL CARE RESEARCH 151,439 WIRE 0    
NORTH AMERICA CLINICAL CARE RESEARCH 310,569 WIRE 0    
NORTH AMERICA CLINICAL RESEARCH 445,400 WIRE 0    
EUROPE CLINICAL RESEARCH 1,747,346 WIRE 0    
EUROPE CLINICAL RESEARCH 328,568 WIRE 0    
EUROPE CLINICAL RESEARCH 348,483 WIRE 0    
EUROPE CLINICAL RESEARCH 109,692 WIRE 0    
MIDDLE EAST AND NORTH AFRICA CLINICAL RESEARCH 52,920 WIRE 0    
NORTH AMERICA CLINICAL RESEARCH 470,347 WIRE 0    
NORTH AMERICA CLINICAL RESEARCH CENTER 44,860 WIRE 0    
EUROPE CLINICAL RESEARCH STUDY 59,993 WIRE 0    
NORTH AMERICA CLINICAL RESEARCH STUDY 283,268 WIRE 0    
EUROPE CLINICAL RESEARCH STUDY 143,426 WIRE 0    
EUROPE CLINICAL RESEARCH STUDY 403,011 WIRE 0    
NORTH AMERICA CLINICAL RESEARCH STUDY 445,494 WIRE 0    
EUROPE CLINICAL RESEARCH STUDY 1,146,760 WIRE 0    
EAST ASIA AND THE PACIFIC CLINICAL RESEARCH STUDY 2,640,777 WIRE 0    
NORTH AMERICA CLINICAL RESEARCH STUDY 131,525 WIRE 0    
EUROPE PILOT STUDY 56,000 WIRE 0    
EUROPE PILOT STUDY 55,942 WIRE 0    
NORTH AMERICA PILOT STUDY 56,000 WIRE 0    
MIDDLE EAST AND NORTH AFRICA PILOT STUDY 56,000 WIRE 0    
NORTH AMERICA PILOT STUDY 111,660 WIRE 0    
EUROPE PILOT STUDY 50,000 WIRE 0    
NORTH AMERICA PILOT STUDY 56,000 WIRE 0    
EUROPE PILOT STUDY 49,850 WIRE 0    
NORTH AMERICA PILOT STUDY 56,000 WIRE 0    
NORTH AMERICA PILOT STUDY 55,760 WIRE 0    
EUROPE QUALITY IMPROVEMENT 136,734 WIRE 0    
EUROPE QUALITY IMPROVEMENT 75,412 WIRE 0    
EUROPE RESEARCH 168,000 WIRE 0    
EUROPE RESEARCH 139,979 WIRE 0    
NORTH AMERICA RESEARCH 335,999 WIRE 0    
EUROPE RESEARCH 166,472 WIRE 0    
NORTH AMERICA RESEARCH 164,330 WIRE 0    
EUROPE RESEARCH 132,486 WIRE 0    
EUROPE RESEARCH 104,770 WIRE 0    
EUROPE RESEARCH 157,408 WIRE 0    
NORTH AMERICA RESEARCH 168,000 WIRE 0    
NORTH AMERICA RESEARCH 136,061 WIRE 0    
EUROPE RESEARCH 164,278 WIRE 0    
NORTH AMERICA RESEARCH 167,190 WIRE 0    
EUROPE THERAPEUTICS DEVELOPMENT AWARD 16,127 WIRE 0    
NORTH AMERICA THERAPEUTICS DEVELOPMENT AWARD 45,023 WIRE 0    
SOUTH ASIA THERAPEUTICS DEVELOPMENT AWARD 78,619 WIRE 0    
EUROPE THERAPEUTICS DEVELOPMENT AWARD 48,358 WIRE 0    
EAST ASIA AND THE PACIFIC THERAPEUTICS DEVELOPMENT AWARD 100,000 WIRE 0    
NORTH AMERICA THERAPEUTICS DEVELOPMENT AWARD 211,005 WIRE 0    
EUROPE THERAPEUTICS DISCOVERY RESEARCH 421,480 WIRE 0    
NORTH AMERICA THERAPEUTICS DISCOVERY RESEARCH 204,774 WIRE 0    
NORTH AMERICA THERAPEUTICS DISCOVERY RESEARCH 129,044 WIRE 0    
EUROPE THERAPEUTICS DISCOVERY RESEARCH 319,941 WIRE 0    
2 Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter .......MediumBullet
213
3 Enter total number of other organizations or entities .......................MediumBullet
25
Schedule F (Form 990) 2023
Schedule F (Form 990) 2023Page 3
Part III
Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 16.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Region (c) Number of recipients (d) Amount of
cash grant
(e) Manner of cash
disbursement
(f) Amount of
noncash
assistance
(g) Description
of noncash
assistance
(h) Method of
valuation
(book, FMV,
appraisal, other)
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
Schedule F (Form 990) 2023
Schedule F (Form 990) 2023
Page 4
Part IV
Foreign Forms
1 Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
2 Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to separately file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A; don't file with Form 990). . . . . . . . . . . . . . . . . . . . . . . .
3 Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471). . . . . . . . . . . . . . . . . . . . . . . . . . . .
4 Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621) .
5 Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships (see Instructions for Form 8865). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
6 Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to separately file Form 5713, International Boycott Report (see Instructions for Form 5713; don't file with Form 990).. . . . . . . . . . . . . . . . . . . . . . . . . . . .
Schedule F (Form 990) 2023
Schedule F (Form 990) 2023
Page 5
Part V
Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information. See instructions.
ReturnReference Explanation
SCHEDULE F, PART IV PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S. THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE U.S. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES AS WELL AS APPLICABLE PUBLICATIONS OF THE U.S. INTERNAL REVENUE SERVICE. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT REGULAR REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. A FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES AND THE FINAL SCIENTIFIC REPORT. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE.
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
Schedule F (Form 990) 2023
Additional Data


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SCHEDULE G (Form 990)
Department of the Treasury
Internal Revenue Service
Supplemental Information Regarding
Fundraising or Gaming Activities
Complete if the organization answered "Yes" on Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrowAttach to Form 990 or Form 990-EZ.
right arrowGo to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2023
Open to Public Inspection
Name of the organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number

13-1930701
Part I
Fundraising Activities.Complete if the organization answered "Yes" on Form 990, Part IV, line 17.
Form 990-EZ filers are not required to complete this part.
1
Indicate whether the organization raised funds through any of the following activities. Check all that apply.
a e
b f
c g
d
2a
Did the organization have a written or oral agreement with any individual (including officers, directors, trustees
or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?
b
If "Yes," list the 10 highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.


(i) Name and address of individual
or entity (fundraiser)
(ii) Activity (iii) Did fundraiser have custody or control of contributions? (iv) Gross receipts
from activity
(v) Amount paid to
(or retained by)
fundraiser listed in
col. (i)
(vi) Amount paid to
(or retained by)
organization
Yes No
 
LAUTMAN MASKA NEILL & COMPANY
1730 RHODE ISLAND AVE NW
 
WASHINGTON, DC20036
MAIL COUNSEL   No 11,425,692 176,400 11,141,942
             
             
             
             
             
             
             
             
             
Total . . . . . . . . . . . . . . . . . . . . right arrow 11,425,692 176,400 11,141,942
3
List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.
AL, AK, AZ, AR, CA, CO, CT, DE, FL, GA, HI, ID, IL, IN, IA, KS, KY, LA, ME, MD, MA, MI, MN, MS, MO, MT, NE, NV, NH, NJ, NM, NY, NC, ND, OH, OK, OR, PA, RI, SC, SD, TN, TX, UT, VT, VA, WA, WV, WI, WY
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 50083H
Schedule G (Form 990) 2023
Schedule G (Form 990) 2023
Page 2
Part II
Fundraising Events. Complete if the organization answered "Yes" on Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.









VerticalRevenue
(a) Event #1

SKI EVENT
(event type)
(b) Event #2

ATLANTA WALK
(event type)
(c) Other events

544
(total number)
(d) Total events
(add col. (a) through col. (c))

1

Gross receipts . . . . .

2,621,320

2,342,196

63,021,326

67,984,842

2

Less: Contributions . . . .

710,538

2,263,131

50,416,921

53,390,590
3 Gross income (line 1 minus
line 2) . . . . . .

1,910,782

79,065

12,604,405

14,594,252



VerticalDirectExpenses
4 Cash prizes . . . . .        
5 Noncash prizes . . . .     72,908 72,908
6 Rent/facility costs . . . . 838,534 23,081 6,208,816 7,070,431
7 Food and beverages . . . 504,664 26,260 2,654,627 3,185,551
8 Entertainment . . . .   1,250 442,164 443,414
9 Other direct expenses . . . 567,584 28,474 3,225,890 3,821,948
10 Direct expense summary. Add lines 4 through 9 in column (d) . . . . . . . . . . right arrow 14,594,252
11 Net income summary. Subtract line 10 from line 3, column (d). . . . . . . . . . right arrow 0
Part III
Gaming. Complete if the organization answered "Yes" on Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.
VerticalRevenue
(a) Bingo (b) Pull tabs/Instant
bingo/progressive bingo
(c) Other gaming (d) Total gaming (add col.(a) through col.(c))

1

Gross revenue . . . . .

 

 

21,710

21,710
VerticalDirectExpenses

2

Cash prizes . . . . .

 

 

 

 

3

Noncash prizes . . . .

 

 

11,349

11,349

4

Rent/facility costs . . . .

 

 

 

 

5

Other direct expenses . . .

 

 

 

 


6


Volunteer labor . . . .
%
%
85.000 %


7

Direct expense summary. Add lines 2 through 5 in column (d) . . . . . . . . . . right arrow

11,349

8

Net gaming income summary. Subtract line 7 from line 1, column (d). . . . . . . . . right arrow

10,361

9
Enter the state(s) in which the organization conducts gaming activities: NH
a
Is the organization licensed to conduct gaming activities in each of these states? . . . . . . . .
YesNo
b
If "No," explain:
LICENSING WAS NOT REQUIRED FOR THE EVENT HELD IN THIS STATE.
10a
Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? . . .
YesNo
b
If "Yes," explain:
 
Schedule G (Form 990) 2023
Schedule G (Form 990) 2023
Page 3
11
Does the organization conduct gaming activities with nonmembers? . . . . . . . . . . .
YesNo
12
Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity
formed to administer charitable gaming? . . . . . . . . . . . . . . . . .
YesNo
13
Indicate the percentage of gaming activity conducted in:
a
The organization's facility . . . . . . . . . . . . . . . . . .
13a
0 %
b
An outside facility . . . . . . . . . . . . . . . . . . . .
13b
100.000 %
14
Enter the name and address of the person who prepares the organization's gaming/special events books and records:
Name right arrow
CYSTIC FIBROSIS FOUNDATION
Address right arrow
4550 MONTGOMERY AVE SUITE 1100N   BETHESDA, MD20814
15a
Does the organization have a contract with a third party from whom the organization receives gaming
revenue? . . . . . . . . . . . . . . . . . . . . . . . .
b
If "Yes," enter the amount of gaming revenue received by the organization right arrow $   and the
amount of gaming revenue retained by the third party right arrow $   .
c
If "Yes," enter name and address of the third party:
Name right arrow
Address right arrow
16
Gaming manager information:
Name right arrow
Gaming manager compensation right arrow $  
Description of services provided right arrow
 
17
Mandatory distributions:
a
Is the organization required under state law to make charitable distributions from the gaming proceeds to
retain the state gaming license? . . . . . . . . . . . . . . . . . . .
b
Enter the amount of distributions required under state law distributed to other exempt organizations or spent
in the organization's own exempt activities during the tax year right arrow$  
Part IV
Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v); and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information. See instructions.
Return Reference Explanation
PART IV: PROFESSIONAL FUNDRAISING SERVICES CFF HAD A WRITTEN CONTRACT WITH LAUTMAN MASKA NEILL & COMPANY TO CONSULT ON ITS DIRECT MAIL AND ANNUAL FUND EFFORTS DURING 2023. THE EXPENSE FOR THE PROJECT IS $14,700 PER MONTH OR $176,400 FOR THE ENTIRE YEAR OF SERVICES. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED LAUTMAN MASKA NEILL & COMPANY FOR CREATIVE DEVELOPMENT. LAUTMAN MASKA NEILL & COMPANY DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM MAILINGS WITH WHICH LAUTMAN MASKA NEILL & COMPANY ASSISTS ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION.
Schedule G (Form 990) 2023
Additional Data


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Schedule I
(Form 990)
Department of the Treasury
Internal Revenue Service
Grants and Other Assistance to Organizations,
Governments and Individuals in the United States
Complete if the organization answered "Yes," on Form 990, Part IV, line 21 or 22.
lBullet Attach to Form 990.
lBullet Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2023
Open to Public
Inspection
Name of the organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number
13-1930701
Part I
General Information on Grants and Assistance
1
Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ........................
2
Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.
Part II
Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" on Form 990, Part IV, line 21, for any recipient
that received more than $5,000. Part II can be duplicated if additional space is needed.
(a) Name and address of organization
or government
(b) EIN (c) IRC section
(if applicable)
(d) Amount of cash grant (e) Amount of non-cash
assistance
(f) Method of valuation
(book, FMV, appraisal,
other)
(g) Description of
noncash assistance
(h) Purpose of grant
or assistance
(1) ADVOCATE CHARITABLE FOUNDATION
2025 WINDSOR DR
OAK BROOK,IL60523
36-3297360 501(C)(3) 157,450 0     CF CARE CENTER
(2) ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVE
ALBANY,NY12208
14-1338310 501(C)(3) 182,845 0     CF CARE CENTER
(3) ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVE
ALBANY,NY12208
14-1338310 501(C)(3) 98,560 0     CLINICAL RESEARCH CENTER
(4) ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVE
ALBANY,NY12208
14-1338310 501(C)(3) 4,000 0     TRAINING
(5) ALBERT EINSTEIN COLLEGE OF MEDICINE
1300 MORRIS PARK AVE
BRONX,NY10461
83-0621846 501(C)(3) 56,000 0     PILOT STUDY
(6) ALL CHILDREN'S RESEARCH INSTITUTE INC
501 6TH AVE S DEPT 9581
ST PETERSBURG,FL33701
59-2481742 501(C)(3) 149,987 0     CLINICAL RESEARCH CENTER
(7) ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO AVE 205
CHICAGO,IL60611
36-2170833 501(C)(3) 54,700 0     ADULT CARE
(8) ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO AVE 205
CHICAGO,IL60611
36-2170833 501(C)(3) 172,325 0     CF CARE CENTER
(9) ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO AVE 205
CHICAGO,IL60611
36-2170833 501(C)(3) 186,573 0     CLINICAL RESEARCH CENTER
(10) ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO AVE 205
CHICAGO,IL60611
36-2170833 501(C)(3) 130,000 0     RESEARCH
(11) ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO AVE 205
CHICAGO,IL60611
36-2170833 501(C)(3) 133,000 0     TRAINING
(12) ARKANSAS CHILDREN'S HOSPITAL RESEARCH INSTITUTE INC
13 CHILDRENS WAY
LITTLE ROCK,AR72202
71-0694931 501(C)(3) 162,590 0     CF CARE CENTER
(13) ASCENSION SETON
1345 PHILOMENA ST
AUSTIN,TX78723
74-1109643 501(C)(3) 311,421 0     CF CARE CENTER
(14) ASCENSION SETON
1345 PHILOMENA ST
AUSTIN,TX78723
74-1109643 501(C)(3) 111,922 0     CLINICAL RESEARCH CENTER
(15) ASCENSION SETON
1345 PHILOMENA ST
AUSTIN,TX78723
74-1109643 501(C)(3) 55,999 0     QUALITY IMPROVEMENT
(16) ATLANTIC HEALTH SYSTEM INC
475 SOUTH ST
MORRISTON,NJ07960
52-1958352 501(C)(3) 191,080 0     CF CARE CENTER
(17) ATLANTIC HEALTH SYSTEM INC
475 SOUTH ST
MORRISTON,NJ07960
52-1958352 501(C)(3) 138,285 0     CLINICAL RESEARCH CENTER
(18) ATRIUM HEALTH FOUNDATION
208 EAST BLVD
CHARLOTTE,NC28203
56-6060481 501(C)(3) 73,920 0     ADULT CARE
(19) ATRIUM HEALTH FOUNDATION
208 EAST BLVD
CHARLOTTE,NC28203
56-6060481 501(C)(3) 341,443 0     CF CARE CENTER
(20) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC
1120 15TH ST CJ3301
AUGUSTA,GA30912
58-1418202 501(C)(3) 214,362 0     CF CARE CENTER
(21) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC
1120 15TH ST CJ3301
AUGUSTA,GA30912
58-1418202 501(C)(3) 182,479 0     CLINICAL RESEARCH CENTER
(22) AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC
1120 15TH ST CJ3301
AUGUSTA,GA30912
58-1418202 501(C)(3) 84,000 0     QUALITY IMPROVEMENT
(23) BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA BCM 310
HOUSTON,TX77030
74-1613878 501(C)(3) 35,392 0     ADHERENCE
(24) BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA BCM 310
HOUSTON,TX77030
74-1613878 501(C)(3) 42,542 0     ADULT CARE
(25) BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA BCM 310
HOUSTON,TX77030
74-1613878 501(C)(3) 512,470 0     CF CARE CENTER
(26) BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA BCM 310
HOUSTON,TX77030
74-1613878 501(C)(3) 234,682 0     CLINICAL RESEARCH CENTER
(27) BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA BCM 310
HOUSTON,TX77030
74-1613878 501(C)(3) 15,935 0     CLINICAL RESEARCH STUDY
(28) BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA BCM 310
HOUSTON,TX77030
74-1613878 501(C)(3) 130,000 0     RESEARCH
(29) BAYLOR SCOTT & WHITE HEALTH
2401 S 31ST ST
TEMPLE,TX76508
46-3131350 501(C)(3) 119,600 0     CF CARE CENTER
(30) BAYSTATE MEDICAL CENTER INC
759 CHESNUT ST
SPRINGFIELD,MA01199
04-2790311 501(C)(3) 62,240 0     CF CARE CENTER
(31) BENAROYA RESEARCH INSTITUTE AT VIRGINIA MASON
1201 9TH AVE
SEATTLE,WA98101
91-0653422 501(C)(3) 163,112 0     RESEARCH
(32) BETH ISRAEL DEACONESS MEDICAL CENTER INC
330 BROOKLINE AVE
BOSTON,MA02215
04-2103881 501(C)(3) 161,731 0     ADULT CARE
(33) BETH ISRAEL DEACONESS MEDICAL CENTER INC
330 BROOKLINE AVE
BOSTON,MA02215
04-2103881 501(C)(3) 30,780 0     CLINICAL RESEARCH
(34) BILLINGS CLINIC FOUNDATION
2917 TENTH AVE NORTH PO BOX 31031
BILLINGS,MT59101
81-0407289 501(C)(3) 171,080 0     CF CARE CENTER
(35) BILLINGS CLINIC FOUNDATION
2917 TENTH AVE NORTH PO BOX 31031
BILLINGS,MT59101
81-0407289 501(C)(3) 118,882 0     CLINICAL RESEARCH CENTER
(36) BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA
987835 NEBRASKA MEDICAL CENTER
OMAHA,NE68198
47-0049123 501(C)(3) 489,755 0     CF CARE CENTER
(37) BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA
987835 NEBRASKA MEDICAL CENTER
OMAHA,NE68198
47-0049123 501(C)(3) 130,470 0     CLINICAL RESEARCH CENTER
(38) BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER
PO BOX 26901 RP 865 RM 450
OKLAHOMA CITY,OK73126
73-1563627 501(C)(3) 343,072 0     CF CARE CENTER
(39) BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER
PO BOX 26901 RP 865 RM 450
OKLAHOMA CITY,OK73126
73-1563627 501(C)(3) 123,347 0     CLINICAL RESEARCH CENTER
(40) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK ST STE 6301
MADISON,WI53715
39-6006492 501(C)(3) 223,988 0     ADHERENCE
(41) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK ST STE 6301
MADISON,WI53715
39-6006492 501(C)(3) 368,724 0     CF CARE CENTER
(42) BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK ST STE 6301
MADISON,WI53715
39-6006492 501(C)(3) 228,452 0     CLINICAL RESEARCH CENTER
(43) BOARD OF TRUSTEES OF MICHIGAN STATE UNIVERSITY
426 AUDITORIUM RD
EAST LANSING,MI48824
38-6005984 501(C)(3) 33,116 0     ADULT CARE
(44) BOARD OF TRUSTEES OF MICHIGAN STATE UNIVERSITY
426 AUDITORIUM RD
EAST LANSING,MI48824
38-6005984 501(C)(3) 149,322 0     CF CARE CENTER
(45) BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY
PO BOX 19616
SPRINGFIELD,IL62794
37-6005961 501(C)(3) 42,281 0     CF CARE CENTER
(46) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY UNIVERSITY HALL 3RD FL
REDWOOD CITY,CA94062
94-1156365 501(C)(3) 34,720 0     ADHERENCE
(47) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY UNIVERSITY HALL 3RD FL
REDWOOD CITY,CA94062
94-1156365 501(C)(3) 143,516 0     ADULT CARE
(48) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY UNIVERSITY HALL 3RD FL
REDWOOD CITY,CA94062
94-1156365 501(C)(3) 421,605 0     CF CARE CENTER
(49) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY UNIVERSITY HALL 3RD FL
REDWOOD CITY,CA94062
94-1156365 501(C)(3) 205,576 0     CLINICAL CARE RESEARCH
(50) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY UNIVERSITY HALL 3RD FL
REDWOOD CITY,CA94062
94-1156365 501(C)(3) 216,825 0     CLINICAL RESEARCH CENTER
(51) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY UNIVERSITY HALL 3RD FL
REDWOOD CITY,CA94062
94-1156365 501(C)(3) 50,000 0     CLINICAL RESEARCH STUDY
(52) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY UNIVERSITY HALL 3RD FL
REDWOOD CITY,CA94062
94-1156365 501(C)(3) 89,600 0     QUALITY IMPROVEMENT
(53) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY UNIVERSITY HALL 3RD FL
REDWOOD CITY,CA94062
94-1156365 501(C)(3) 293,000 0     RESEARCH
(54) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY UNIVERSITY HALL 3RD FL
REDWOOD CITY,CA94062
94-1156365 501(C)(3) 295,696 0     RESEARCH STUDY
(55) BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY UNIVERSITY HALL 3RD FL
REDWOOD CITY,CA94062
94-1156365 501(C)(3) 61,995 0     TRAINING
(56) BOSTON CHILDREN'S HEALTH PHYSICIANS LLP
40 SUNSHINE COTTAGE RD SKYLINE STE
1N-C08
VALHALLA,NY06488
13-3956599   239,090 0     CF CARE CENTER
(57) BOSTON CHILDREN'S HEALTH PHYSICIANS LLP
40 SUNSHINE COTTAGE RD SKYLINE STE
1N-C08
VALHALLA,NY06488
13-3956599   163,835 0     CLINICAL RESEARCH CENTER
(58) BRIGHAM AND WOMEN'S HOSPITAL INC
75 FRANCIS ST
BOSTON,MA02115
04-2312909 501(C)(3) 108,707 0     PILOT STUDY
(59) BRIGHAM AND WOMEN'S HOSPITAL INC
75 FRANCIS ST
BOSTON,MA02115
04-2312909 501(C)(3) 75,000 0     RESEARCH STUDY
(60) BRIGHAM AND WOMEN'S HOSPITAL INC
75 FRANCIS ST
BOSTON,MA02115
04-2312909 501(C)(3) 61,762 0     TRAINING
(61) CAMC HEALTH EDUCATION AND RESEARCH INSTITUTE INC
PO BOX 1547
CHARLESTON,WV25326
55-0753754 501(C)(3) 97,410 0     CF CARE CENTER
(62) CARNEGIE MELLON UNIVERSITY
5000 FORBES AVE
PITTSBURGH,PA15213
25-0969449 501(C)(3) 1,881,551 0     THERAPEUTICS DISCOVERY RESEARCH
(63) CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVE
CLEVELAND,OH44106
34-1018992 501(C)(3) 168,000 0     CLINICAL RESEARCH CENTER
(64) CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVE
CLEVELAND,OH44106
34-1018992 501(C)(3) 392,000 0     CLINICAL RESEARCH STUDY
(65) CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVE
CLEVELAND,OH44106
34-1018992 501(C)(3) 112,000 0     PILOT STUDY
(66) CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVE
CLEVELAND,OH44106
34-1018992 501(C)(3) 2,000,900 0     RESEARCH
(67) CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVE
CLEVELAND,OH44106
34-1018992 501(C)(3) 1,856,021 0     RESEARCH CENTER
(68) CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVE
CLEVELAND,OH44106
34-1018992 501(C)(3) 110,000 0     RESEARCH STUDY
(69) CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVE
CLEVELAND,OH44106
34-1018992 501(C)(3) 395,082 0     THERAPEUTICS DISCOVERY RESEARCH
(70) CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVE
CLEVELAND,OH44106
34-1018992 501(C)(3) 103,999 0     TRAINING
(71) CEDARS SINAI MEDICAL CENTER
8700 BEVERLY BLVD
LOS ANGELES,CA90048
95-1644600 501(C)(3) 56,000 0     PILOT STUDY
(72) CEDARS SINAI MEDICAL CENTER
8700 BEVERLY BLVD
LOS ANGELES,CA90048
95-1644600 501(C)(3) 168,000 0     RESEARCH
(73) CEDARS SINAI MEDICAL CENTER
8700 BEVERLY BLVD
LOS ANGELES,CA90048
95-1644600 501(C)(3) 250,000 0     RESEARCH CENTER
(74) CEDARS SINAI MEDICAL CENTER
8700 BEVERLY BLVD
LOS ANGELES,CA90048
95-1644600 501(C)(3) 152,000 0     RESEARCH STUDY
(75) CEDARS SINAI MEDICAL CENTER
8700 BEVERLY BLVD
LOS ANGELES,CA90048
95-1644600 501(C)(3) 246,400 0     THERAPEUTICS DISCOVERY RESEARCH
(76) CENTRAL FLORIDA PULMONARY GROUP PA
1115 EAST RIDGEWOOD ST
ORLANDO,FL32803
59-1760017   167,010 0     CF CARE CENTER
(77) CENTRAL FLORIDA PULMONARY GROUP PA
1115 EAST RIDGEWOOD ST
ORLANDO,FL32803
59-1760017   109,189 0     CLINICAL RESEARCH CENTER
(78) CHATTANOOGA HAMILTON COUNTY HOSPITAL AUTHORITY
975 EAST THIRD ST
CHATTANOOGA,TN37403
62-6000101 501(C)(3) 81,180 0     CF CARE CENTER
(79) CHILDREN'S HEALTH CARE
2525 CHICAGO AVE SOUTH
MINNEAPOLIS,MN55404
41-1754276 501(C)(3) 135,832 0     ADHERENCE
(80) CHILDREN'S HEALTH CARE
2525 CHICAGO AVE SOUTH
MINNEAPOLIS,MN55404
41-1754276 501(C)(3) 149,795 0     CF CARE CENTER
(81) CHILDREN'S HEALTH CARE
2525 CHICAGO AVE SOUTH
MINNEAPOLIS,MN55404
41-1754276 501(C)(3) 143,289 0     CLINICAL RESEARCH CENTER
(82) CHILDREN'S HOSPITAL CORPORATION
BOSTON CHILDRENS HOSPITAL 300
LONGWOOD AVE
BOSTON,MA02115
04-2774441 501(C)(3) 1,754,602 0     ADHERENCE
(83) CHILDREN'S HOSPITAL CORPORATION
BOSTON CHILDRENS HOSPITAL 300
LONGWOOD AVE
BOSTON,MA02115
04-2774441 501(C)(3) 63,978 0     ADULT CARE
(84) CHILDREN'S HOSPITAL CORPORATION
BOSTON CHILDRENS HOSPITAL 300
LONGWOOD AVE
BOSTON,MA02115
04-2774441 501(C)(3) 554,683 0     CF CARE CENTER
(85) CHILDREN'S HOSPITAL CORPORATION
BOSTON CHILDRENS HOSPITAL 300
LONGWOOD AVE
BOSTON,MA02115
04-2774441 501(C)(3) 100,549 0     CLINICAL RESEARCH CENTER
(86) CHILDREN'S HOSPITAL CORPORATION
BOSTON CHILDRENS HOSPITAL 300
LONGWOOD AVE
BOSTON,MA02115
04-2774441 501(C)(3) 403,841 0     CLINICAL RESEARCH STUDY
(87) CHILDREN'S HOSPITAL CORPORATION
BOSTON CHILDRENS HOSPITAL 300
LONGWOOD AVE
BOSTON,MA02115
04-2774441 501(C)(3) 156,800 0     QUALITY IMPROVEMENT
(88) CHILDREN'S HOSPITAL CORPORATION
BOSTON CHILDRENS HOSPITAL 300
LONGWOOD AVE
BOSTON,MA02115
04-2774441 501(C)(3) 168,000 0     RESEARCH
(89) CHILDREN'S HOSPITAL CORPORATION
BOSTON CHILDRENS HOSPITAL 300
LONGWOOD AVE
BOSTON,MA02115
04-2774441 501(C)(3) 32,850 0     RESEARCH STUDY
(90) CHILDREN'S HOSPITAL CORPORATION
BOSTON CHILDRENS HOSPITAL 300
LONGWOOD AVE
BOSTON,MA02115
04-2774441 501(C)(3) 228,991 0     TRAINING
(91) CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BLVD
LOS ANGELES,CA90027
95-1690977 501(C)(3) 153,970 0     CF CARE CENTER
(92) CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BLVD
LOS ANGELES,CA90027
95-1690977 501(C)(3) 296,899 0     RESEARCH
(93) CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BLVD
LOS ANGELES,CA90027
95-1690977 501(C)(3) 124,578 0     TRAINING
(94) CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVE
CINCINNATI,OH45229
31-0833936 501(C)(3) 214,280 0     CF CARE CENTER
(95) CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVE
CINCINNATI,OH45229
31-0833936 501(C)(3) 223,996 0     CLINICAL CARE RESEARCH
(96) CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVE
CINCINNATI,OH45229
31-0833936 501(C)(3) 1,014,767 0     CLINICAL RESEARCH
(97) CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVE
CINCINNATI,OH45229
31-0833936 501(C)(3) 334,704 0     CLINICAL RESEARCH CENTER
(98) CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVE
CINCINNATI,OH45229
31-0833936 501(C)(3) 373,413 0     CLINICAL RESEARCH STUDY
(99) CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVE
CINCINNATI,OH45229
31-0833936 501(C)(3) 348,795 0     QUALITY IMPROVEMENT
(100) CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVE
CINCINNATI,OH45229
31-0833936 501(C)(3) 600,000 0     RESEARCH CENTER
(101) CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVE
CINCINNATI,OH45229
31-0833936 501(C)(3) 258,000 0     TRAINING
(102) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON
ONE PERKINS SQUARE
AKRON,OH44308
34-0714357 501(C)(3) 36,523 0     ADULT CARE
(103) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON
ONE PERKINS SQUARE
AKRON,OH44308
34-0714357 501(C)(3) 258,300 0     CF CARE CENTER
(104) CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON
ONE PERKINS SQUARE
AKRON,OH44308
34-0714357 501(C)(3) 185,752 0     CLINICAL RESEARCH CENTER
(105) CHILDREN'S HOSPITAL OF ORANGE COUNTY
1201 WEST LA VETA AVE
ORANGE,CA92868
95-2321786 501(C)(3) 109,150 0     CF CARE CENTER
(106) CHILDREN'S HOSPITAL OF ORANGE COUNTY
1201 WEST LA VETA AVE
ORANGE,CA92868
95-2321786 501(C)(3) 104,762 0     CLINICAL RESEARCH CENTER
(107) CHILDREN'S HOSPITAL OF ORANGE COUNTY
1201 WEST LA VETA AVE
ORANGE,CA92868
95-2321786 501(C)(3) 115,298 0     CLINICAL RESEARCH STUDY
(108) CHILDREN'S HOSPITAL OF ORANGE COUNTY
1201 WEST LA VETA AVE
ORANGE,CA92868
95-2321786 501(C)(3) 56,000 0     QUALITY IMPROVEMENT
(109) CHILDREN'S HOSPITAL OF PITTSBURGH FOUNDATION
4401 PENN AVE
PITTSBURGH,PA15224
25-1865744 501(C)(3) 462,570 0     CF CARE CENTER
(110) CHILDREN'S LUNG SPECIALISTS CRAIG NAKAMURA MD LTD
3196 S MARYLAND PARKWAY STE 400
LAS VEGAS,NV89109
88-0271963 501(C)(3) 193,930 0     CF CARE CENTER
(111) CHILDREN'S RESEARCH INSTITUTE
111 MICHIGAN AVE NW
WASHINGTON,DC20010
52-1654453 501(C)(3) 196,965 0     CF CARE CENTER
(112) CHILDREN'S RESEARCH INSTITUTE
111 MICHIGAN AVE NW
WASHINGTON,DC20010
52-1654453 501(C)(3) 140,001 0     RESEARCH
(113) CHILDREN'S RESEARCH INSTITUTE
111 MICHIGAN AVE NW
WASHINGTON,DC20010
52-1654453 501(C)(3) 10,000 0     TRAINING
(114) CHILDREN'S SPECIALTY GROUP PLLC
811 REDGATE AVE
NORFOLK,VA23507
54-1871633   178,000 0     CF CARE CENTER
(115) CHRISTIANA CARE HEALTH SERVICES INC
PO BOX 2653
WILMINGTON,DE19805
51-0103684 501(C)(3) 60,700 0     CF CARE CENTER
(116) COLORADO STATE UNIVERSITY
555 SOUTH HOWES 6003 CAMPUS
DELIVERY
FORT COLLINS,CO80523
84-6000545 115 49,999 0     THERAPEUTICS DISCOVERY RESEARCH
(117) COLORADO STATE UNIVERSITY
555 SOUTH HOWES 6003 CAMPUS
DELIVERY
FORT COLLINS,CO80523
84-6000545 115 4,000 0     TRAINING
(118) CONNECTICUT CHILDREN'S MEDICAL CENTER
202 WASHINGTON ST
HARTFORD,CT06106
06-0646755 501(C)(3) 94,090 0     CF CARE CENTER
(119) COOK CHILDREN'S MEDICAL CENTER
801 SEVENTH AVE
FORT WORTH,TX76104
75-2051646 501(C)(3) 261,775 0     CF CARE CENTER
(120) COOK CHILDREN'S MEDICAL CENTER
801 SEVENTH AVE
FORT WORTH,TX76104
75-2051646 501(C)(3) 193,956 0     CLINICAL RESEARCH CENTER
(121) COOK CHILDREN'S MEDICAL CENTER
801 SEVENTH AVE
FORT WORTH,TX76104
75-2051646 501(C)(3) 84,000 0     QUALITY IMPROVEMENT
(122) CURATORS OF THE UNIVERSITY OF MISSOURI
601 TURNER AVE SPONSORED PROGRAMS
ADMIN TAG RM 201
COLUMBIA,MO65211
43-6003859 501(C)(3) 303,073 0     CF CARE CENTER
(123) CURATORS OF THE UNIVERSITY OF MISSOURI
601 TURNER AVE SPONSORED PROGRAMS
ADMIN TAG RM 201
COLUMBIA,MO65211
43-6003859 501(C)(3) 56,000 0     PILOT STUDY
(124) CURATORS OF THE UNIVERSITY OF MISSOURI
601 TURNER AVE SPONSORED PROGRAMS
ADMIN TAG RM 201
COLUMBIA,MO65211
43-6003859 501(C)(3) 168,000 0     RESEARCH
(125) CURATORS OF THE UNIVERSITY OF MISSOURI
601 TURNER AVE SPONSORED PROGRAMS
ADMIN TAG RM 201
COLUMBIA,MO65211
43-6003859 501(C)(3) 150,999 0     RESEARCH STUDY
(126) DARTMOUTH-HITCHCOCK CLINIC
ONE MEDICAL CENTER DR
LEBANON,NH03756
22-2519596 501(C)(3) 331,390 0     CLINICAL RESEARCH STUDY
(127) DARTMOUTH-HITCHCOCK CLINIC
ONE MEDICAL CENTER DR
LEBANON,NH03756
22-2519596 501(C)(3) 254,999 0     RESEARCH
(128) DAYTON CHILDRENS HOSPITAL
ONE CHILDRENS PLAZA
DAYTON,OH45404
31-0672132 501(C)(3) 217,060 0     CF CARE CENTER
(129) DAYTON CHILDRENS HOSPITAL
ONE CHILDRENS PLAZA
DAYTON,OH45404
31-0672132 501(C)(3) 119,350 0     CLINICAL RESEARCH CENTER
(130) DEPARTMENT OF GENERAL SERVICES
1100 BANK ST
RICHMOND,VA23219
54-1056975 VA GOVT 83,547 0     QUALITY IMPROVEMENT
(131) DREXEL UNIVERSITY
3201 ARCH ST STE 420
PHILADELPHIA,PA19104
23-1352630 501(C)(3) 91,730 0     CF CARE CENTER
(132) DRISCOLL CHILDREN'S HOSPITAL
3533 SOUTH ALAMEDA
CORPUS CHRISTI,TX78411
74-2577746 501(C)(3) 87,010 0     CF CARE CENTER
(133) DUKE UNIVERSITY
324 BLACKWELL ST WASHIN BLDG NO 850
DURHAM,NC27701
56-0532129 501(C)(3) 40,787 0     ADULT CARE
(134) DUKE UNIVERSITY
324 BLACKWELL ST WASHIN BLDG NO 850
DURHAM,NC27701
56-0532129 501(C)(3) 242,989 0     CF CARE CENTER
(135) DUKE UNIVERSITY
324 BLACKWELL ST WASHIN BLDG NO 850
DURHAM,NC27701
56-0532129 501(C)(3) 1,214,635 0     CLINICAL CARE RESEARCH
(136) DUKE UNIVERSITY
324 BLACKWELL ST WASHIN BLDG NO 850
DURHAM,NC27701
56-0532129 501(C)(3) 30,438 0     THERAPEUTICS DISCOVERY RESEARCH
(137) DUKE UNIVERSITY
324 BLACKWELL ST WASHIN BLDG NO 850
DURHAM,NC27701
56-0532129 501(C)(3) 4,000 0     TRAINING
(138) EAST CAROLINA UNIVERSITY
GREENVILLE CENTRE STE 2900 2200 S
CHARLES BLVD
GREENVILLE,NC27858
56-6000403 115 44,900 0     CF CARE CENTER
(139) EAST TENNESSEE CHILDREN'S HOSPITAL ASSOCIATION INC
PO BOX 15010
KNOXVILLE,TN37901
62-6002604 501(C)(3) 144,265 0     CF CARE CENTER
(140) EASTERN MAINE MEDICAL CENTER
489 STATE ST PO BOX 404
BANGOR,ME04402
01-0211501 501(C)(3) 71,710 0     CF CARE CENTER
(141) EMORY UNIVERSITY
1599 CLIFTON RD 4TH FL
ATLANTA,GA30322
58-0566256 501(C)(3) 36,954 0     ADULT CARE
(142) EMORY UNIVERSITY
1599 CLIFTON RD 4TH FL
ATLANTA,GA30322
58-0566256 501(C)(3) 614,957 0     CF CARE CENTER
(143) EMORY UNIVERSITY
1599 CLIFTON RD 4TH FL
ATLANTA,GA30322
58-0566256 501(C)(3) 398,173 0     CLINICAL CARE RESEARCH
(144) EMORY UNIVERSITY
1599 CLIFTON RD 4TH FL
ATLANTA,GA30322
58-0566256 501(C)(3) 497,300 0     CLINICAL RESEARCH CENTER
(145) EMORY UNIVERSITY
1599 CLIFTON RD 4TH FL
ATLANTA,GA30322
58-0566256 501(C)(3) 842,029 0     CLINICAL RESEARCH STUDY
(146) EMORY UNIVERSITY
1599 CLIFTON RD 4TH FL
ATLANTA,GA30322
58-0566256 501(C)(3) 191,343 0     QUALITY IMPROVEMENT
(147) EMORY UNIVERSITY
1599 CLIFTON RD 4TH FL
ATLANTA,GA30322
58-0566256 501(C)(3) 372,408 0     RESEARCH
(148) EMORY UNIVERSITY
1599 CLIFTON RD 4TH FL
ATLANTA,GA30322
58-0566256 501(C)(3) 227,998 0     RESEARCH STUDY
(149) EMORY UNIVERSITY
1599 CLIFTON RD 4TH FL
ATLANTA,GA30322
58-0566256 501(C)(3) 1,588,365 0     THERAPEUTICS DISCOVERY RESEARCH
(150) EMORY UNIVERSITY
1599 CLIFTON RD 4TH FL
ATLANTA,GA30322
58-0566256 501(C)(3) 213,485 0     TRAINING
(151) FISHER BIOSERVICES INC
14665 ROTHGEB DR
ROCKVILLE,MD20850
54-1348241   273,830 0     BIOMARKERS DEVELOPMENT
(152) FRED HUTCHINSON CANCER CENTER
1100 FAIRVIEW AVE NORTH
SEATTLE,WA98109
91-1935159 501(C)(3) 140,039 0     RESEARCH STUDY
(153) GEISINGER CLINIC
100 N ACADEMY AVE MC 3057
DANVILLE,PA17822
23-6291113 501(C)(3) 265,289 0     CF CARE CENTER
(154) GEORGIA TECH RESEARCH CORPORATION
926 DALNEY ST NW
ATLANTA,GA30332
58-0603146 501(C)(3) 56,000 0     PILOT STUDY
(155) GEORGIA TECH RESEARCH CORPORATION
926 DALNEY ST NW
ATLANTA,GA30332
58-0603146 501(C)(3) 163,800 0     RESEARCH
(156) GUNDERSEN LUTHERAN MEDICAL FOUNDATION INC
1836 SOUTH AVE
LA CROSSE,WI54601
39-1249705 501(C)(3) 64,046 0     CF CARE CENTER
(157) HARTFORD HOSPITAL
80 SEYMOUR ST PO BOX 5037
HARTFORD,CT06102
06-0646668 501(C)(3) 101,760 0     CF CARE CENTER
(158) HEALTH RESEARCH INC NEW YORK STATE DEPARTMENT OF HEALTH
150 BROADWAY STE 280
MENANDS,NY12204
14-1402155 170(B)(1)(A)(VI) 83,974 0     QUALITY IMPROVEMENT
(159) HEALTHWELL FOUNDATION
PO BOX 4133
GAITHERSBURG,MD20885
20-0413676 501(C)(3) 6,000,000 0     PATIENT ASSISTANCE
(160) HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF MILITARY MEDICINE INC
6720A ROCKLEDGE DR NO 100
BETHESDA,MD20817
52-1317896 501(C)(3) 32,906 0     CF CARE CENTER
(161) HMH HOSPITALS CORPORATION
343 THORNALL ST BUILDING 102 LEVEL
5
EDISON,NJ08837
22-1487576 501(C)(3) 137,000 0     RESEARCH
(162) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE
NEW YORK,NY10029
13-6171197 501(C)(3) 160,590 0     CLINICAL RESEARCH CENTER
(163) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE
NEW YORK,NY10029
13-6171197 501(C)(3) 111,929 0     PILOT STUDY
(164) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE
NEW YORK,NY10029
13-6171197 501(C)(3) 335,909 0     RESEARCH
(165) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE
NEW YORK,NY10029
13-6171197 501(C)(3) 16 0     TRAINING
(166) INOVA HEALTH CARE SERVICES
8110 GATEHOUSE RD STE 400W
FALLS CHURCH,VA22042
54-0620889 501(C)(3) 84,769 0     ADULT CARE
(167) INOVA HEALTH CARE SERVICES
8110 GATEHOUSE RD STE 400W
FALLS CHURCH,VA22042
54-0620889 501(C)(3) 284,499 0     CF CARE CENTER
(168) IOM HEALTH SYSTEMS LP
7950 W JEFFERSON
FORT WAYNE,IN46804
35-1963748   70,967 0     CF CARE CENTER
(169) IOWA HEALTH FOUNDATION
1415 WOODLAND AVE NO E-200
DES MOINES,IA50309
42-1467682 501(C)(3) 110,020 0     CF CARE CENTER
(170) JAEB CENTER FOR HEALTH RESEARCH FOUNDATION INC
15310 AMBERLY DR STE 350
TAMPA,FL33647
59-3187624 501(C)(3) 7,020,681 0     CLINICAL RESEARCH STUDY
(171) JOE DIMAGGIO CHILDREN'S HOSPITAL FOUNDATION INC
3329 JOHNSON ST
HOLLYWOOD,FL33021
65-0492343 501(C)(3) 65,433 0     CF CARE CENTER
(172) JOE DIMAGGIO CHILDREN'S HOSPITAL FOUNDATION INC
3329 JOHNSON ST
HOLLYWOOD,FL33021
65-0492343 501(C)(3) 110,880 0     CLINICAL RESEARCH CENTER
(173) JOHNS HOPKINS ALL CHILDREN'S HOSPITAL INC
501 SIXTH AVE SOUND
ST PETERSBURG,FL33701
59-0683252 501(C)(3) 189,390 0     CF CARE CENTER
(174) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD NO N4327B
BALTIMORE,MD21211
52-0595110 501(C)(3) 2,389,289 0     ADHERENCE
(175) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD NO N4327B
BALTIMORE,MD21211
52-0595110 501(C)(3) 54,135 0     ADULT CARE
(176) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD NO N4327B
BALTIMORE,MD21211
52-0595110 501(C)(3) 455,505 0     CF CARE CENTER
(177) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD NO N4327B
BALTIMORE,MD21211
52-0595110 501(C)(3) 755,048 0     CLINICAL CARE RESEARCH
(178) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD NO N4327B
BALTIMORE,MD21211
52-0595110 501(C)(3) 355,535 0     CLINICAL RESEARCH CENTER
(179) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD NO N4327B
BALTIMORE,MD21211
52-0595110 501(C)(3) 205,225 0     CLINICAL RESEARCH STUDY
(180) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD NO N4327B
BALTIMORE,MD21211
52-0595110 501(C)(3) 374,708 0     QUALITY IMPROVEMENT
(181) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD NO N4327B
BALTIMORE,MD21211
52-0595110 501(C)(3) 465,989 0     RESEARCH
(182) JOHNS HOPKINS UNIVERSITY
3910 KESWICK RD NO N4327B
BALTIMORE,MD21211
52-0595110 501(C)(3) 1,132,214 0     THERAPEUTICS DISCOVERY RESEARCH
(183) KAISER FOUNDATION RESEARCH INSTITUTE A DIVISION OF KAISER FOUNDATION HOSPI
1 KAISER PLAZA 22ND FL
OAKLAND,CA94612
94-1105628 501(C)(3) 592,134 0     CF CARE CENTER
(184) KAPIOLANI MEDICAL CENTER FOR WOMEN AND CHILDREN
1319 PUNAHOU ST
HONOLULU,HI96826
99-0177350 501(C)(3) 84,999 0     ADULT CARE
(185) LANDON PEDIATRIC FOUNDATION
340 HILLMONT STE 302
VENTURA,CA93003
93-1097216 501(C)(3) 42,480 0     CF CARE CENTER
(186) LEE MEMORIAL HEALTH SYSTEM FOUNDATION INC
9800 SOUTH HEALTHPARK DR 405
FORT MYERS,FL33908
65-0645343 501(C)(3) 52,615 0     CF CARE CENTER
(187) LEHIGH VALLEY HOSPITAL INC
2100 MACK BLVD
ALLENTOWN,PA18103
23-1689692 501(C)(3) 86,420 0     CF CARE CENTER
(188) LENOX HILL HOSPITAL
100 E 77TH ST
NEW YORK,NY10075
13-1624070 501(C)(3) 312,788 0     CF CARE CENTER
(189) LIFE SCIENCES RESEARCH FOUNDATION
3020-I PROSPERITY CHURCH RD STE 267
CHARLOTTE,NC28269
52-1231801 501(C)(3) 86,240 0     THERAPEUTICS DISCOVERY RESEARCH
(190) LOMA LINDA UNIVERSITY
11145 ANDERSON ST
LOMA LINDA,CA92354
95-1816009 501(C)(3) 93,125 0     CF CARE CENTER
(191) LONG ISLAND JEWISH MEDICAL CENTER
270-05 76TH AVE
NEW HYDE PARK,NY11040
11-2241326 501(C)(3) 253,480 0     CF CARE CENTER
(192) LONG ISLAND JEWISH MEDICAL CENTER
270-05 76TH AVE
NEW HYDE PARK,NY11040
11-2241326 501(C)(3) 185,761 0     CLINICAL RESEARCH CENTER
(193) LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER
PO BOX 33932
SHREVEPORT,LA71130
72-0702002 501(C)(3) 166,040 0     CF CARE CENTER
(194) LOYOLA UNIVERSITY CHICAGO
820 NORTH MICHIGAN AVE
CHICAGO,IL60611
36-1408475 501(C)(3) 106,055 0     CF CARE CENTER
(195) LOYOLA UNIVERSITY CHICAGO
820 NORTH MICHIGAN AVE
CHICAGO,IL60611
36-1408475 501(C)(3) 48,860 0     CLINICAL CARE RESEARCH
(196) MAINE MEDICAL CENTER
22 BRAMHALL ST
PORTLAND,ME04102
01-0238552 501(C)(3) 236,447 0     CF CARE CENTER
(197) MAINE MEDICAL CENTER
22 BRAMHALL ST
PORTLAND,ME04102
01-0238552 501(C)(3) 199,950 0     CLINICAL RESEARCH CENTER
(198) MARSHFIELD CLINIC INC
1000 N OAK AVE
MARSHFIELD,WI54449
39-0452970 501(C)(3) 58,465 0     CF CARE CENTER
(199) MARY BRIDGE CHILDREN'S FOUNDATION
PO BOX 5299
TACOMA,WA98415
94-3030039 501(C)(3) 161,690 0     CF CARE CENTER
(200) MASSACHUSETTS INSTITUTE OF TECHNOLOGY
77 MASSACHUSETTS AVE BUILDING
NE18-901
CAMBRIDGE,MA02139
04-2103594 501(C)(3) 84,000 0     RESEARCH STUDY
(201) MASSACHUSETTS INSTITUTE OF TECHNOLOGY
77 MASSACHUSETTS AVE BUILDING
NE18-901
CAMBRIDGE,MA02139
04-2103594 501(C)(3) 38,500 0     THERAPEUTICS DISCOVERY RESEARCH
(202) MASSACHUSETTS INSTITUTE OF TECHNOLOGY
77 MASSACHUSETTS AVE BUILDING
NE18-901
CAMBRIDGE,MA02139
04-2103594 501(C)(3) 3,997 0     TRAINING
(203) MAYO CLINIC
200 FIRST ST SW
ROCHESTER,MN55905
41-6011702 501(C)(3) 142,050 0     CF CARE CENTER
(204) MAYO CLINIC JACKSONVILLE
4500 SAN PABLO RD
JACKSONVILLE,FL32224
59-3337028 501(C)(3) 90,550 0     CF CARE CENTER
(205) MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVE
CHARLESTON,SC29425
57-6000722 501(C)(3) 46,080 0     ADULT CARE
(206) MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVE
CHARLESTON,SC29425
57-6000722 501(C)(3) 231,920 0     CF CARE CENTER
(207) MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVE
CHARLESTON,SC29425
57-6000722 501(C)(3) 195,510 0     CLINICAL RESEARCH CENTER
(208) MEMORIAL HEALTH SERVICES
17360 BROOKHURST ST
FOUNTAIN VALLEY,CA92708
95-1643381 501(C)(3) 254,080 0     CLINICAL RESEARCH CENTER
(209) MEMORIAL MEDICAL CENTER FOUNDATION
2801 ATLANTIC AVE
LONG BEACH,CA90806
95-6105984 501(C)(3) 212,765 0     CF CARE CENTER
(210) MH MISSION HOSPITAL LLLP
PO BOX 550
NASHVILLE TN,MD37202
83-2048706   57,230 0     CF CARE CENTER
(211) MICHIGAN DEPARTMENT OF HEALTH AND HUMAN SERVICES
235 SOUTH GRAND AVE STE 800
LANSING,MI48933
38-6000134 MI GOVT 77,767 0     QUALITY IMPROVEMENT
(212) MIDDLE EAST CYSTIC FIBROSIS ASSOCIATION
675 VFW PARKWAY STE 226
CHESTNUT HILL,MA02467
85-1096028 170(B)(1)(A)(VI) 286,983 0     QUALITY IMPROVEMENT
(213) MONMOUTH MEDICAL CENTER FOUNDATION
300 SECOND AVE
LONG BRANCH,NJ07740
22-2456079 501(C)(3) 163,525 0     CF CARE CENTER
(214) NATIONAL JEWISH HEALTH
1400 JACKSON ST
DENVER,CO80206
74-2044647 501(C)(3) 28,553 0     ADHERENCE
(215) NATIONAL JEWISH HEALTH
1400 JACKSON ST
DENVER,CO80206
74-2044647 501(C)(3) 457,411 0     CF CARE CENTER
(216) NATIONAL JEWISH HEALTH
1400 JACKSON ST
DENVER,CO80206
74-2044647 501(C)(3) 396,059 0     CLINICAL RESEARCH
(217) NATIONAL JEWISH HEALTH
1400 JACKSON ST
DENVER,CO80206
74-2044647 501(C)(3) 904,691 0     CLINICAL RESEARCH CENTER
(218) NATIONAL JEWISH HEALTH
1400 JACKSON ST
DENVER,CO80206
74-2044647 501(C)(3) 1,286,927 0     CLINICAL RESEARCH STUDY
(219) NATIONAL JEWISH HEALTH
1400 JACKSON ST
DENVER,CO80206
74-2044647 501(C)(3) 317,995 0     RESEARCH
(220) NATIONAL JEWISH HEALTH
1400 JACKSON ST
DENVER,CO80206
74-2044647 501(C)(3) 72,694 0     RESEARCH CENTER
(221) NATIONAL JEWISH HEALTH
1400 JACKSON ST
DENVER,CO80206
74-2044647 501(C)(3) 75,000 0     RESEARCH STUDY
(222) NEW YORK UNIVERSITY
1 PARK AVE
NEW YORK,NY10016
13-5562308 501(C)(3) 123,702 0     CF CARE CENTER
(223) NORTH SUBURBAN PULMONARY AND CRITICAL CARE CONSULTANTS SC
9201N WAUKEGAN RD
MORTON GROVE,IL60053
36-4393017   54,400 0     CF CARE CENTER
(224) NORTHWESTERN UNIVERSITY
633 CLARK ST SQ 5-526
EVANSTON,IL60208
36-2167817 501(C)(3) 88,149 0     ADHERENCE
(225) NORTHWESTERN UNIVERSITY
633 CLARK ST SQ 5-526
EVANSTON,IL60208
36-2167817 501(C)(3) 136,190 0     CF CARE CENTER
(226) NORTHWESTERN UNIVERSITY
633 CLARK ST SQ 5-526
EVANSTON,IL60208
36-2167817 501(C)(3) 158,530 0     CLINICAL RESEARCH CENTER
(227) NORTHWESTERN UNIVERSITY
633 CLARK ST SQ 5-526
EVANSTON,IL60208
36-2167817 501(C)(3) 63,447 0     CLINICAL RESEARCH STUDY
(228) NORTHWESTERN UNIVERSITY
633 CLARK ST SQ 5-526
EVANSTON,IL60208
36-2167817 501(C)(3) 101,500 0     RESEARCH
(229) OKLAHOMA STATE UNIVERSITY
401 WHITEHURST
STILLWATER,OK74107
73-1383996 501(C)(3) 125,000 0     RESEARCH
(230) OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD
L106OPAM
PORTLAND,OR97239
93-1176109 501(C)(3) 95,050 0     ADULT CARE
(231) OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD
L106OPAM
PORTLAND,OR97239
93-1176109 501(C)(3) 433,608 0     CF CARE CENTER
(232) OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD
L106OPAM
PORTLAND,OR97239
93-1176109 501(C)(3) 329,347 0     CLINICAL RESEARCH CENTER
(233) OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD
L106OPAM
PORTLAND,OR97239
93-1176109 501(C)(3) 526,812 0     CLINICAL RESEARCH STUDY
(234) OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD
L106OPAM
PORTLAND,OR97239
93-1176109 501(C)(3) 168,580 0     QUALITY IMPROVEMENT
(235) OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD
L106OPAM
PORTLAND,OR97239
93-1176109 501(C)(3) 335,560 0     RESEARCH
(236) ORLANDO HEALTH FOUNDATION INC
3160 SOUTHGATE COMMERCE BLVD STE
ORLANDO,FL32806
59-2244943 501(C)(3) 117,705 0     CF CARE CENTER
(237) PARKVIEW HOSPITAL INC
10501 CORPORATE DR
FORT WAYNE,IN46845
35-0868085 501(C)(3) 55,460 0     CF CARE CENTER
(238) PENSACOLA LUNG GROUP MDS PA
4700 BAYOU BLVD STE 6
PENSACOLA,FL32503
59-2313481 501(C)(3) 70,530 0     CF CARE CENTER
(239) PHOENIX CHILDREN'S HOSPITAL FOUNDATION
2929 CAMELBACK RD STE 122
PHOENIX,AZ85016
74-2421549 501(C)(3) 405,950 0     CF CARE CENTER
(240) PRISMA HEALTH - UPSTATE
300 EAST MCBEE ST
GREENVILLE,SC29601
81-1723202 501(C)(3) 46,005 0     ADULT CARE
(241) PRISMA HEALTHMIDLANDS
1301 TAYLOR ST STE 9A
COLUMBIA,SC29203
58-2296052 501(C)(3) 196,538 0     CF CARE CENTER
(242) PRISMA HEALTHMIDLANDS
1301 TAYLOR ST STE 9A
COLUMBIA,SC29203
58-2296052 501(C)(3) 79,850 0     CLINICAL RESEARCH CENTER
(243) PROVIDENCE HEALTH & SERVICES - WASHINGTON
101 W EIGHTH ST
SPOKANE,WA99204
51-0216586 170(B)(1)(A)(III) 306,420 0     CF CARE CENTER
(244) PROVIDENCE HEALTH & SERVICES - WASHINGTON
101 W EIGHTH ST
SPOKANE,WA99204
51-0216586 170(B)(1)(A)(III) 205,226 0     CLINICAL RESEARCH CENTER
(245) REGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE
OFFICE OF RESEARCH 160 ALDRICH HALL
IRVINE,CA92697
95-2226406 501(C)(3) 75,999 0     RESEARCH STUDY
(246) REGENTS OF THE UNIVERSITY OF CALIFORNIA BERKELEY
1608 FOURTH ST STE 201 MAILCODE
1103
BERKELEY,CA94720
94-6002123 501(C)(3) 507,278 0     THERAPEUTICS DISCOVERY RESEARCH
(247) REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
ONE SHIELDS AVE
DAVIS,CA95618
94-6036494 501(C)(3) 185,950 0     CF CARE CENTER
(248) REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
ONE SHIELDS AVE
DAVIS,CA95618
94-6036494 501(C)(3) 106,243 0     CLINICAL RESEARCH CENTER
(249) REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DR
LA JOLLA,CA92093
95-6006144 501(C)(3) 46,079 0     ADULT CARE
(250) REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DR
LA JOLLA,CA92093
95-6006144 501(C)(3) 377,950 0     CF CARE CENTER
(251) REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DR
LA JOLLA,CA92093
95-6006144 501(C)(3) 202,545 0     CLINICAL RESEARCH CENTER
(252) REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DR
LA JOLLA,CA92093
95-6006144 501(C)(3) 168,000 0     RESEARCH
(253) REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DR
LA JOLLA,CA92093
95-6006144 501(C)(3) 75,000 0     RESEARCH STUDY
(254) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST FIRST FL
ANN ARBOR,MI48109
38-6006309 501(C)(3) 28,000 0     ADHERENCE
(255) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST FIRST FL
ANN ARBOR,MI48109
38-6006309 501(C)(3) 99,145 0     ADULT CARE
(256) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST FIRST FL
ANN ARBOR,MI48109
38-6006309 501(C)(3) 480,982 0     CF CARE CENTER
(257) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST FIRST FL
ANN ARBOR,MI48109
38-6006309 501(C)(3) 411,731 0     CLINICAL CARE RESEARCH
(258) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST FIRST FL
ANN ARBOR,MI48109
38-6006309 501(C)(3) 284,242 0     CLINICAL RESEARCH CENTER
(259) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST FIRST FL
ANN ARBOR,MI48109
38-6006309 501(C)(3) 207,852 0     CLINICAL RESEARCH STUDY
(260) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST FIRST FL
ANN ARBOR,MI48109
38-6006309 501(C)(3) 112,000 0     PILOT STUDY
(261) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST FIRST FL
ANN ARBOR,MI48109
38-6006309 501(C)(3) 56,000 0     QUALITY IMPROVEMENT
(262) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST FIRST FL
ANN ARBOR,MI48109
38-6006309 501(C)(3) 1,477,000 0     RESEARCH
(263) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST FIRST FL
ANN ARBOR,MI48109
38-6006309 501(C)(3) 110,000 0     RESEARCH STUDY
(264) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST FIRST FL
ANN ARBOR,MI48109
38-6006309 501(C)(3) 444,542 0     THERAPEUTICS DISCOVERY RESEARCH
(265) REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST FIRST FL
ANN ARBOR,MI48109
38-6006309 501(C)(3) 79,600 0     TRAINING
(266) REGENTS OF THE UNIVERSITY OF MINNESOTA
450 MCNAMARA ALUMNI CENTER 200 OAK
ST SE
MINNEAPOLIS,MN55455
41-6007513 501(C)(3) 58,128 0     ADHERENCE
(267) REGENTS OF THE UNIVERSITY OF MINNESOTA
450 MCNAMARA ALUMNI CENTER 200 OAK
ST SE
MINNEAPOLIS,MN55455
41-6007513 501(C)(3) 794,717 0     ADULT CARE
(268) REGENTS OF THE UNIVERSITY OF MINNESOTA
450 MCNAMARA ALUMNI CENTER 200 OAK
ST SE
MINNEAPOLIS,MN55455
41-6007513 501(C)(3) 536,097 0     CF CARE CENTER
(269) REGENTS OF THE UNIVERSITY OF MINNESOTA
450 MCNAMARA ALUMNI CENTER 200 OAK
ST SE
MINNEAPOLIS,MN55455
41-6007513 501(C)(3) 188,708 0     CLINICAL CARE RESEARCH
(270) REGENTS OF THE UNIVERSITY OF MINNESOTA
450 MCNAMARA ALUMNI CENTER 200 OAK
ST SE
MINNEAPOLIS,MN55455
41-6007513 501(C)(3) 274,512 0     CLINICAL RESEARCH CENTER
(271) REGENTS OF THE UNIVERSITY OF MINNESOTA
450 MCNAMARA ALUMNI CENTER 200 OAK
ST SE
MINNEAPOLIS,MN55455
41-6007513 501(C)(3) 179,200 0     CLINICAL RESEARCH STUDY
(272) REGENTS OF THE UNIVERSITY OF MINNESOTA
450 MCNAMARA ALUMNI CENTER 200 OAK
ST SE
MINNEAPOLIS,MN55455
41-6007513 501(C)(3) 51,520 0     QUALITY IMPROVEMENT
(273) REGENTS OF THE UNIVERSITY OF MINNESOTA
450 MCNAMARA ALUMNI CENTER 200 OAK
ST SE
MINNEAPOLIS,MN55455
41-6007513 501(C)(3) 166,800 0     RESEARCH
(274) REGENTS OF THE UNIVERSITY OF MINNESOTA
450 MCNAMARA ALUMNI CENTER 200 OAK
ST SE
MINNEAPOLIS,MN55455
41-6007513 501(C)(3) 76,000 0     RESEARCH STUDY
(275) REGENTS OF THE UNIVERSITY OF MINNESOTA
450 MCNAMARA ALUMNI CENTER 200 OAK
ST SE
MINNEAPOLIS,MN55455
41-6007513 501(C)(3) 135,775 0     TRAINING
(276) REGENTS OF UNIVERSITY OF CALIFORNIA SANTA BARBARA
3227 CHEADLE HALL 3RD FL
SANTA BARBARA,CA93106
95-6006145 501(C)(3) 160,560 0     RESEARCH
(277) REGENTS OF UNIVERSITY OF CALIFORNIA SANTA BARBARA
3227 CHEADLE HALL 3RD FL
SANTA BARBARA,CA93106
95-6006145 501(C)(3) 76,000 0     RESEARCH STUDY
(278) RENOWN HEALTH FOUNDATION
1155 MILL ST O2
RENO,NV89502
94-2972749 501(C)(3) 65,810 0     CF CARE CENTER
(279) RHODE ISLAND HOSPITAL
593 EDDY ST
PROVIDENCE,RI02903
05-0258954 501(C)(3) 51,740 0     ADULT CARE
(280) RHODE ISLAND HOSPITAL
593 EDDY ST
PROVIDENCE,RI02903
05-0258954 501(C)(3) 192,054 0     CF CARE CENTER
(281) RHODE ISLAND HOSPITAL
593 EDDY ST
PROVIDENCE,RI02903
05-0258954 501(C)(3) 129,033 0     RESEARCH
(282) ROSALIND FRANKLIN UNIVERSITY OF MEDICINE AND SCIENCE
3333 GREEN BAY RD
NORTH CHICAGO,IL60064
36-2181973 501(C)(3) 158,252 0     RESEARCH
(283) RUSH UNIVERSITY MEDICAL CENTER
1653 W CONGRESS PARKWAY
CHICAGO,IL60612
36-2174823 501(C)(3) 154,160 0     CF CARE CENTER
(284) RUSH UNIVERSITY MEDICAL CENTER
1653 W CONGRESS PARKWAY
CHICAGO,IL60612
36-2174823 501(C)(3) 83,715 0     QUALITY IMPROVEMENT
(285) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 BERGEN ST STE 538
NEWARK,NJ07103
22-6001086 501(C)(3) 36,960 0     ADULT CARE
(286) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 BERGEN ST STE 538
NEWARK,NJ07103
22-6001086 501(C)(3) 166,130 0     CF CARE CENTER
(287) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 BERGEN ST STE 538
NEWARK,NJ07103
22-6001086 501(C)(3) 119,475 0     CLINICAL RESEARCH CENTER
(288) SAINT BARNABAS MEDICAL CENTER
94 OLD SHORT HILLS RD
LIVINGSTON,NJ07039
22-1494440 501(C)(3) 61,000 0     CF CARE CENTER
(289) SAINT FRANCIS MEDICAL CENTER
530 NE GLEN OAK AVE
PEORIA,IL61637
37-0662569 501(C)(3) 171,765 0     CF CARE CENTER
(290) SAINT FRANCIS MEDICAL CENTER
530 NE GLEN OAK AVE
PEORIA,IL61637
37-0662569 501(C)(3) 90,948 0     CLINICAL RESEARCH CENTER
(291) SANFORD CLINIC
PO BOX 5039 RTE 5218
SIOUX FALLS,SD57117
46-0447693 501(C)(3) 184,180 0     CF CARE CENTER
(292) SANFORD CLINIC
PO BOX 5039 RTE 5218
SIOUX FALLS,SD57117
46-0447693 501(C)(3) 111,895 0     CLINICAL RESEARCH CENTER
(293) SANFORD MEDICAL CENTER FARGO
PO BOX 2010
FARGO,ND58122
45-0226909 501(C)(3) 61,950 0     CF CARE CENTER
(294) SANTA BARBARA COTTAGE HOSPITAL
400 WEST PUEBLO ST
SANTA BARBARA,CA93105
95-1644629 501(C)(3) 95,380 0     CF CARE CENTER
(295) SEATTLE CHILDREN'S HOSPITAL
4800 SAND POINT WAY NE
SEATTLE,WA98105
91-0564748 501(C)(3) 189,500 0     CF CARE CENTER
(296) SEATTLE CHILDREN'S HOSPITAL
4800 SAND POINT WAY NE
SEATTLE,WA98105
91-0564748 501(C)(3) 4,959,644 0     CLINICAL RESEARCH
(297) SEATTLE CHILDREN'S HOSPITAL
4800 SAND POINT WAY NE
SEATTLE,WA98105
91-0564748 501(C)(3) 7,999,704 0     CLINICAL RESEARCH CENTER
(298) SEATTLE CHILDREN'S HOSPITAL
4800 SAND POINT WAY NE
SEATTLE,WA98105
91-0564748 501(C)(3) 7,928,169 0     CLINICAL RESEARCH STUDY
(299) SEATTLE CHILDREN'S HOSPITAL
4800 SAND POINT WAY NE
SEATTLE,WA98105
91-0564748 501(C)(3) 321,929 0     QUALITY IMPROVEMENT
(300) SEATTLE CHILDREN'S HOSPITAL
4800 SAND POINT WAY NE
SEATTLE,WA98105
91-0564748 501(C)(3) 59,149 0     RESEARCH
(301) SEATTLE CHILDREN'S HOSPITAL
4800 SAND POINT WAY NE
SEATTLE,WA98105
91-0564748 501(C)(3) 169,999 0     TRAINING
(302) SEATTLE INSTITUTE FOR BIOMEDICAL AND CLINICAL RESEARCH
1660 S COLUMBIAN WAY SIBCR 116
MIRECC
SEATTLE,WA98108
91-1452438 501(C)(3) 153,566 0     RESEARCH
(303) SOUTH BROWARD HOSPITAL DISTRICT
3501 JOHNSON ST
HOLLYWOOD,FL33021
59-6014973 501(C)(3) 217,300 0     CF CARE CENTER
(304) SPECTRUM HEALTH FOUNDATION
100 MICHIGAN ST NE MC 004
GRAND RAPIDS,MI49503
38-2752328 501(C)(3) 369,347 0     CF CARE CENTER
(305) SPECTRUM HEALTH FOUNDATION
100 MICHIGAN ST NE MC 004
GRAND RAPIDS,MI49503
38-2752328 501(C)(3) 260,841 0     CLINICAL RESEARCH CENTER
(306) SPECTRUM HEALTH FOUNDATION
100 MICHIGAN ST NE MC 004
GRAND RAPIDS,MI49503
38-2752328 501(C)(3) 50,848 0     QUALITY IMPROVEMENT
(307) ST ALEXIUS MEDICAL CENTER
900 EAST BROADWAY AVE
BISMARCK,ND58501
45-0226711 501(C)(3) 62,840 0     CF CARE CENTER
(308) ST JOSEPH'S HOSPITAL AND MEDICAL CENTER
703 MAIN ST
PETERSON,NJ07503
22-1487602 501(C)(3) 54,705 0     CF CARE CENTER
(309) ST JUDE CHILDREN'S RESEARCH HOSPITAL INC
262 DANNY THOMAS PL
MEMPHIS,TN38105
62-0646012 501(C)(3) 83,000 0     RESEARCH STUDY
(310) ST JUDE CHILDREN'S RESEARCH HOSPITAL INC
262 DANNY THOMAS PL
MEMPHIS,TN38105
62-0646012 501(C)(3) 328,330 0     THERAPEUTICS DISCOVERY RESEARCH
(311) ST LOUIS UNIVERSITY
221 NORTH GRAND BLVD
ST LOUIS,MO63103
43-0654872 501(C)(3) 205,385 0     CF CARE CENTER
(312) ST LOUIS UNIVERSITY
221 NORTH GRAND BLVD
ST LOUIS,MO63103
43-0654872 501(C)(3) 128,169 0     CLINICAL RESEARCH CENTER
(313) ST LOUIS UNIVERSITY
221 NORTH GRAND BLVD
ST LOUIS,MO63103
43-0654872 501(C)(3) 829,337 0     CLINICAL RESEARCH STUDY
(314) ST LUKE'S REGIONAL MEDICAL CENTER LTD
190 E BANNOCK
BOISE,ID83712
82-0161600 501(C)(3) 204,600 0     CF CARE CENTER
(315) ST LUKE'S REGIONAL MEDICAL CENTER LTD
190 E BANNOCK
BOISE,ID83712
82-0161600 501(C)(3) 170,695 0     CLINICAL RESEARCH CENTER
(316) STANFORD HEALTH CARE
300 PASTEUR DR MC 5616
STANFORD,CA94035
94-6174066 501(C)(3) 126,666 0     CF CARE CENTER
(317) STATE OF MISSISSIPPI - UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE ST
JACKSON,MS39216
64-6008520 501(C)(3) 193,540 0     CF CARE CENTER
(318) STATE UNIVERSITY OF IOWA
105 JESSUP HALL 200 MEDICINE
ADMINISTRATION BUILDING
IOWA CITY,IA52242
42-6004813 501(C)(3) 243,458 0     CF CARE CENTER
(319) STATE UNIVERSITY OF IOWA
105 JESSUP HALL 200 MEDICINE
ADMINISTRATION BUILDING
IOWA CITY,IA52242
42-6004813 501(C)(3) 260,432 0     CLINICAL RESEARCH CENTER
(320) STATE UNIVERSITY OF IOWA
105 JESSUP HALL 200 MEDICINE
ADMINISTRATION BUILDING
IOWA CITY,IA52242
42-6004813 501(C)(3) 79,837 0     CLINICAL RESEARCH STUDY
(321) STATE UNIVERSITY OF IOWA
105 JESSUP HALL 200 MEDICINE
ADMINISTRATION BUILDING
IOWA CITY,IA52242
42-6004813 501(C)(3) 111,150 0     PILOT STUDY
(322) STATE UNIVERSITY OF IOWA
105 JESSUP HALL 200 MEDICINE
ADMINISTRATION BUILDING
IOWA CITY,IA52242
42-6004813 501(C)(3) 832,602 0     RESEARCH
(323) STATE UNIVERSITY OF IOWA
105 JESSUP HALL 200 MEDICINE
ADMINISTRATION BUILDING
IOWA CITY,IA52242
42-6004813 501(C)(3) 600,000 0     RESEARCH CENTER
(324) STATE UNIVERSITY OF IOWA
105 JESSUP HALL 200 MEDICINE
ADMINISTRATION BUILDING
IOWA CITY,IA52242
42-6004813 501(C)(3) 2,781,744 0     THERAPEUTICS DISCOVERY RESEARCH
(325) STATE UNIVERSITY OF IOWA
105 JESSUP HALL 200 MEDICINE
ADMINISTRATION BUILDING
IOWA CITY,IA52242
42-6004813 501(C)(3) 4,000 0     TRAINING
(326) SUTTER BAY HOSPITALS
475 BRANNAN ST STE 130
SAN FRANCISCO,CA94107
94-0562680 501(C)(3) 44,900 0     CF CARE CENTER
(327) SUTTER MEDICAL CENTER SACRAMENTO
PO BOX 160727
SACRAMENTO,CA95833
94-1156621 501(C)(3) 170,200 0     CF CARE CENTER
(328) TEXAS A&M AGRILIFE RESEARCH
PO BOX 10420 STE 300
COLLEGE STATION,TX77842
74-6000541 501(C)(3) 167,998 0     RESEARCH
(329) TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER
3601 4TH ST STOP 6209
LUBBOCK,TX79430
75-2668014 501(C)(3) 117,420 0     CF CARE CENTER
(330) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND
6823 ST CHARLES AVE
NEW ORLEANS,LA70118
72-0423889 501(C)(3) 227,607 0     CF CARE CENTER
(331) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND
6823 ST CHARLES AVE
NEW ORLEANS,LA70118
72-0423889 501(C)(3) 135,110 0     CLINICAL RESEARCH CENTER
(332) THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND
6823 ST CHARLES AVE
NEW ORLEANS,LA70118
72-0423889 501(C)(3) 105,056 0     RESEARCH
(333) THE AMERICAN SOCIETY OF GENE CELL THERAPY
20800 SWENSON DR STE 300
WAUKESHA,WI53186
91-1766321   300,000 0     THERAPEUTICS DISCOVERY RESEARCH
(334) THE BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA
FIVE PARTNERS PLACE STE 3100 201
STEPHENSON PARKWAY
NORMAN,OK73019
73-1377584 501(C)(3) 8,000 0     TRAINING
(335) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ARKANSAS ACTING FOR AND BEHALF O
4301 WEST MARKHAM ST 812
LITTLE ROCK,AR72205
71-6046242 501(C)(3) 42,149 0     ADULT CARE
(336) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ARKANSAS ACTING FOR AND BEHALF O
4301 WEST MARKHAM ST 812
LITTLE ROCK,AR72205
71-6046242 501(C)(3) 233,362 0     CF CARE CENTER
(337) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ARKANSAS ACTING FOR AND BEHALF O
4301 WEST MARKHAM ST 812
LITTLE ROCK,AR72205
71-6046242 501(C)(3) 193,641 0     CLINICAL RESEARCH CENTER
(338) THE CARLE FOUNDATION
611 WEST PARK
URBANA,IL61801
37-1119538 501(C)(3) 64,005 0     CF CARE CENTER
(339) THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104
23-1352166 501(C)(3) 89,350 0     ADULT CARE
(340) THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104
23-1352166 501(C)(3) 223,590 0     CF CARE CENTER
(341) THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104
23-1352166 501(C)(3) 282,340 0     CLINICAL RESEARCH
(342) THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104
23-1352166 501(C)(3) 300,556 0     CLINICAL RESEARCH CENTER
(343) THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104
23-1352166 501(C)(3) 573,261 0     CLINICAL RESEARCH STUDY
(344) THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104
23-1352166 501(C)(3) 54,447 0     PILOT STUDY
(345) THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104
23-1352166 501(C)(3) 427,315 0     QUALITY IMPROVEMENT
(346) THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104
23-1352166 501(C)(3) 126,491 0     RESEARCH
(347) THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104
23-1352166 501(C)(3) 75,000 0     RESEARCH STUDY
(348) THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104
23-1352166 501(C)(3) 168,500 0     TRAINING
(349) THE CHILDREN'S MERCY HOSPITAL
2401 GILLHAM RD
KANSAS CITY,MO64108
44-0605373 501(C)(3) 194,790 0     CF CARE CENTER
(350) THE CHILDREN'S MERCY HOSPITAL
2401 GILLHAM RD
KANSAS CITY,MO64108
44-0605373 501(C)(3) 312,277 0     CLINICAL RESEARCH CENTER
(351) THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVE JJN5
CLEVELAND,OH44131
34-0714585 501(C)(3) 104,163 0     ADULT CARE
(352) THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVE JJN5
CLEVELAND,OH44131
34-0714585 501(C)(3) 205,510 0     CF CARE CENTER
(353) THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVE JJN5
CLEVELAND,OH44131
34-0714585 501(C)(3) 1,312,516 0     CLINICAL CARE RESEARCH
(354) THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVE JJN5
CLEVELAND,OH44131
34-0714585 501(C)(3) 168,107 0     CLINICAL RESEARCH CENTER
(355) THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVE JJN5
CLEVELAND,OH44131
34-0714585 501(C)(3) 50,000 0     CLINICAL RESEARCH STUDY
(356) THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVE JJN5
CLEVELAND,OH44131
34-0714585 501(C)(3) 28,170 0     QUALITY IMPROVEMENT
(357) THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVE JJN5
CLEVELAND,OH44131
34-0714585 501(C)(3) 168,000 0     RESEARCH
(358) THE FEINSTEIN INSTITUTES FOR MEDICAL RESEARCH
350 COMMUNITY DR
MANHASSET,NY11030
11-2673595 501(C)(3) 51,083 0     ADULT CARE
(359) THE FEINSTEIN INSTITUTES FOR MEDICAL RESEARCH
350 COMMUNITY DR
MANHASSET,NY11030
11-2673595 501(C)(3) 20,557 0     CLINICAL RESEARCH STUDY
(360) THE FEINSTEIN INSTITUTES FOR MEDICAL RESEARCH
350 COMMUNITY DR
MANHASSET,NY11030
11-2673595 501(C)(3) 87,272 0     QUALITY IMPROVEMENT
(361) THE GENERAL HOSPITAL CORPORATION
55 FRUIT ST
BOSTON,MA02114
04-2697983 501(C)(3) 275,100 0     CF CARE CENTER
(362) THE GENERAL HOSPITAL CORPORATION
55 FRUIT ST
BOSTON,MA02114
04-2697983 501(C)(3) 51,508 0     CLINICAL CARE RESEARCH
(363) THE GENERAL HOSPITAL CORPORATION
55 FRUIT ST
BOSTON,MA02114
04-2697983 501(C)(3) 504,440 0     CLINICAL RESEARCH
(364) THE GENERAL HOSPITAL CORPORATION
55 FRUIT ST
BOSTON,MA02114
04-2697983 501(C)(3) 329,647 0     CLINICAL RESEARCH CENTER
(365) THE GENERAL HOSPITAL CORPORATION
55 FRUIT ST
BOSTON,MA02114
04-2697983 501(C)(3) 650,891 0     CLINICAL RESEARCH STUDY
(366) THE GENERAL HOSPITAL CORPORATION
55 FRUIT ST
BOSTON,MA02114
04-2697983 501(C)(3) 50,000 0     QUALITY IMPROVEMENT
(367) THE GENERAL HOSPITAL CORPORATION
55 FRUIT ST
BOSTON,MA02114
04-2697983 501(C)(3) 259,929 0     RESEARCH
(368) THE GENERAL HOSPITAL CORPORATION
55 FRUIT ST
BOSTON,MA02114
04-2697983 501(C)(3) 158,798 0     THERAPEUTICS DISCOVERY RESEARCH
(369) THE GENERAL HOSPITAL CORPORATION
55 FRUIT ST
BOSTON,MA02114
04-2697983 501(C)(3) 131,496 0     TRAINING
(370) THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DR
LEBANON,NH03756
02-0222139 501(C)(3) 299,825 0     CF CARE CENTER
(371) THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DR
LEBANON,NH03756
02-0222139 501(C)(3) 256,996 0     CLINICAL RESEARCH CENTER
(372) THE MEDICAL COLLEGE OF WISCONSIN INC
8701 WATERTOWN PLANK RD STE B620
MILWAUKEE,WI53226
39-0806261 501(C)(3) 417,947 0     CF CARE CENTER
(373) THE MEDICAL COLLEGE OF WISCONSIN INC
8701 WATERTOWN PLANK RD STE B620
MILWAUKEE,WI53226
39-0806261 501(C)(3) 177,401 0     CLINICAL RESEARCH CENTER
(374) THE MEDICAL COLLEGE OF WISCONSIN INC
8701 WATERTOWN PLANK RD STE B620
MILWAUKEE,WI53226
39-0806261 501(C)(3) 51,673 0     QUALITY IMPROVEMENT
(375) THE MEDICAL COLLEGE OF WISCONSIN INC
8701 WATERTOWN PLANK RD STE B620
MILWAUKEE,WI53226
39-0806261 501(C)(3) 131,443 0     TRAINING
(376) THE NEMOURS FOUNDATION
1701 ROCKLAND RD ROCKLAND CENTER 1
WILMINGTON,DE19803
59-0634433 501(C)(3) 455,680 0     CF CARE CENTER
(377) THE NEMOURS FOUNDATION
1701 ROCKLAND RD ROCKLAND CENTER 1
WILMINGTON,DE19803
59-0634433 501(C)(3) 301,459 0     CLINICAL RESEARCH CENTER
(378) THE NEMOURS FOUNDATION
1701 ROCKLAND RD ROCKLAND CENTER 1
WILMINGTON,DE19803
59-0634433 501(C)(3) 72,645 0     QUALITY IMPROVEMENT
(379) THE OHIO STATE UNIVERSITY
130B MOUNT HALL 1050 CARMACK RD
COLUMBUS,OH43210
31-6025986 115 36,956 0     ADULT CARE
(380) THE OHIO STATE UNIVERSITY
130B MOUNT HALL 1050 CARMACK RD
COLUMBUS,OH43210
31-6025986 115 56,000 0     PILOT STUDY
(381) THE OHIO STATE UNIVERSITY
130B MOUNT HALL 1050 CARMACK RD
COLUMBUS,OH43210
31-6025986 115 168,000 0     RESEARCH
(382) THE OHIO STATE UNIVERSITY
130B MOUNT HALL 1050 CARMACK RD
COLUMBUS,OH43210
31-6025986 115 200,000 0     RESEARCH CENTER
(383) THE OHIO STATE UNIVERSITY
130B MOUNT HALL 1050 CARMACK RD
COLUMBUS,OH43210
31-6025986 115 363,303 0     THERAPEUTICS DISCOVERY RESEARCH
(384) THE OHIO STATE UNIVERSITY
130B MOUNT HALL 1050 CARMACK RD
COLUMBUS,OH43210
31-6025986 115 3,990 0     TRAINING
(385) THE PENNSYLVANIA STATE UNIVERSITY
500 UNIVERSITY DR MAIL CODE H157
HERSHEY,PA17033
24-6000376 115 244,750 0     CF CARE CENTER
(386) THE PENNSYLVANIA STATE UNIVERSITY
500 UNIVERSITY DR MAIL CODE H157
HERSHEY,PA17033
24-6000376 115 146,132 0     CLINICAL RESEARCH CENTER
(387) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
1001 NORTH EMMET ST PO BOX 400195
CHARLOTTESVILLE,VA22904
54-6001796 501(C)(3) 295,060 0     CF CARE CENTER
(388) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
1001 NORTH EMMET ST PO BOX 400195
CHARLOTTESVILLE,VA22904
54-6001796 501(C)(3) 180,675 0     CLINICAL RESEARCH CENTER
(389) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
1001 NORTH EMMET ST PO BOX 400195
CHARLOTTESVILLE,VA22904
54-6001796 501(C)(3) 508,351 0     QUALITY IMPROVEMENT
(390) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10889 WILSHIRE BLVD STE 700 BOX
951406
LOS ANGELES,CA90095
95-6006143 501(C)(3) 46,079 0     ADULT CARE
(391) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10889 WILSHIRE BLVD STE 700 BOX
951406
LOS ANGELES,CA90095
95-6006143 501(C)(3) 337,270 0     CF CARE CENTER
(392) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10889 WILSHIRE BLVD STE 700 BOX
951406
LOS ANGELES,CA90095
95-6006143 501(C)(3) 515,697 0     CLINICAL CARE RESEARCH
(393) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10889 WILSHIRE BLVD STE 700 BOX
951406
LOS ANGELES,CA90095
95-6006143 501(C)(3) 60,206 0     CLINICAL RESEARCH CENTER
(394) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10889 WILSHIRE BLVD STE 700 BOX
951406
LOS ANGELES,CA90095
95-6006143 501(C)(3) 490,490 0     CLINICAL RESEARCH STUDY
(395) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10889 WILSHIRE BLVD STE 700 BOX
951406
LOS ANGELES,CA90095
95-6006143 501(C)(3) 168,000 0     RESEARCH
(396) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10889 WILSHIRE BLVD STE 700 BOX
951406
LOS ANGELES,CA90095
95-6006143 501(C)(3) 224,000 0     THERAPEUTICS DISCOVERY RESEARCH
(397) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS ST 4TH FL
SAN FRANCISCO,CA94143
94-6036493 501(C)(3) 46,079 0     ADULT CARE
(398) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS ST 4TH FL
SAN FRANCISCO,CA94143
94-6036493 501(C)(3) 409,957 0     CF CARE CENTER
(399) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS ST 4TH FL
SAN FRANCISCO,CA94143
94-6036493 501(C)(3) 182,435 0     CLINICAL CARE RESEARCH
(400) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS ST 4TH FL
SAN FRANCISCO,CA94143
94-6036493 501(C)(3) 250,461 0     CLINICAL RESEARCH CENTER
(401) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS ST 4TH FL
SAN FRANCISCO,CA94143
94-6036493 501(C)(3) 224,000 0     CLINICAL RESEARCH STUDY
(402) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS ST 4TH FL
SAN FRANCISCO,CA94143
94-6036493 501(C)(3) 55,194 0     PILOT STUDY
(403) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS ST 4TH FL
SAN FRANCISCO,CA94143
94-6036493 501(C)(3) 291,392 0     RESEARCH
(404) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS ST 4TH FL
SAN FRANCISCO,CA94143
94-6036493 501(C)(3) 191,500 0     TRAINING
(405) THE REGENTS OF THE UNIVERSITY OF COLORADO
1800 GRANT ST STE 600
DENVER,CO80203
84-6000555 501(C)(3) 37,378 0     ADHERENCE
(406) THE REGENTS OF THE UNIVERSITY OF COLORADO
1800 GRANT ST STE 600
DENVER,CO80203
84-6000555 501(C)(3) 35,640 0     ADULT CARE
(407) THE REGENTS OF THE UNIVERSITY OF COLORADO
1800 GRANT ST STE 600
DENVER,CO80203
84-6000555 501(C)(3) 326,373 0     CF CARE CENTER
(408) THE REGENTS OF THE UNIVERSITY OF COLORADO
1800 GRANT ST STE 600
DENVER,CO80203
84-6000555 501(C)(3) 212,490 0     CLINICAL CARE RESEARCH
(409) THE REGENTS OF THE UNIVERSITY OF COLORADO
1800 GRANT ST STE 600
DENVER,CO80203
84-6000555 501(C)(3) 597,432 0     CLINICAL RESEARCH
(410) THE REGENTS OF THE UNIVERSITY OF COLORADO
1800 GRANT ST STE 600
DENVER,CO80203
84-6000555 501(C)(3) 813,143 0     CLINICAL RESEARCH CENTER
(411) THE REGENTS OF THE UNIVERSITY OF COLORADO
1800 GRANT ST STE 600
DENVER,CO80203
84-6000555 501(C)(3) 355,593 0     CLINICAL RESEARCH STUDY
(412) THE REGENTS OF THE UNIVERSITY OF COLORADO
1800 GRANT ST STE 600
DENVER,CO80203
84-6000555 501(C)(3) 44,098 0     QUALITY IMPROVEMENT
(413) THE REGENTS OF THE UNIVERSITY OF COLORADO
1800 GRANT ST STE 600
DENVER,CO80203
84-6000555 501(C)(3) 340,297 0     RESEARCH
(414) THE REGENTS OF THE UNIVERSITY OF COLORADO
1800 GRANT ST STE 600
DENVER,CO80203
84-6000555 501(C)(3) 75,000 0     RESEARCH STUDY
(415) THE REGENTS OF THE UNIVERSITY OF COLORADO
1800 GRANT ST STE 600
DENVER,CO80203
84-6000555 501(C)(3) 446,494 0     TRAINING
(416) THE RESEARCH FOUNDATION FOR STATE UNIVERSITY OF NEW YORK
PO BOX 9
ALBANY,NY12201
14-1368361 501(C)(3) 30,670 0     ADHERENCE
(417) THE RESEARCH FOUNDATION FOR STATE UNIVERSITY OF NEW YORK
PO BOX 9
ALBANY,NY12201
14-1368361 501(C)(3) 46,079 0     ADULT CARE
(418) THE RESEARCH FOUNDATION FOR STATE UNIVERSITY OF NEW YORK
PO BOX 9
ALBANY,NY12201
14-1368361 501(C)(3) 519,986 0     CF CARE CENTER
(419) THE RESEARCH FOUNDATION FOR STATE UNIVERSITY OF NEW YORK
PO BOX 9
ALBANY,NY12201
14-1368361 501(C)(3) 241,752 0     CLINICAL RESEARCH CENTER
(420) THE RESEARCH FOUNDATION FOR STATE UNIVERSITY OF NEW YORK
PO BOX 9
ALBANY,NY12201
14-1368361 501(C)(3) 156,004 0     CLINICAL RESEARCH STUDY
(421) THE RESEARCH FOUNDATION FOR STATE UNIVERSITY OF NEW YORK
PO BOX 9
ALBANY,NY12201
14-1368361 501(C)(3) 84,000 0     QUALITY IMPROVEMENT
(422) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DR
COLUMBUS,OH43205
31-6056230 501(C)(3) 49,248 0     ADULT CARE
(423) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DR
COLUMBUS,OH43205
31-6056230 501(C)(3) 433,640 0     CF CARE CENTER
(424) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DR
COLUMBUS,OH43205
31-6056230 501(C)(3) 285,873 0     CLINICAL RESEARCH CENTER
(425) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DR
COLUMBUS,OH43205
31-6056230 501(C)(3) 50,000 0     CLINICAL RESEARCH STUDY
(426) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DR
COLUMBUS,OH43205
31-6056230 501(C)(3) 44,800 0     QUALITY IMPROVEMENT
(427) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DR
COLUMBUS,OH43205
31-6056230 501(C)(3) 124,982 0     RESEARCH
(428) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DR
COLUMBUS,OH43205
31-6056230 501(C)(3) 500,000 0     RESEARCH CENTER
(429) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DR
COLUMBUS,OH43205
31-6056230 501(C)(3) 39,390 0     THERAPEUTICS DISCOVERY RESEARCH
(430) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DR
COLUMBUS,OH43205
31-6056230 501(C)(3) 129,000 0     TRAINING
(431) THE TAMPA GENERAL HOSPITAL FOUNDATION
PO BOX 1289
TAMPA,FL33601
23-7354477 501(C)(3) 222,960 0     CF CARE CENTER
(432) THE TOLEDO HOSPITAL
2142 N COVE BLVD
TOLEDO,OH43606
34-4428256 501(C)(3) 185,610 0     CF CARE CENTER
(433) THE TOLEDO HOSPITAL
2142 N COVE BLVD
TOLEDO,OH43606
34-4428256 501(C)(3) 119,490 0     CLINICAL RESEARCH CENTER
(434) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 6TH FL MC 8725
NEW YORK,NY10027
13-5598093 501(C)(3) 58,648 0     ADULT CARE
(435) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 6TH FL MC 8725
NEW YORK,NY10027
13-5598093 501(C)(3) 411,350 0     CF CARE CENTER
(436) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 6TH FL MC 8725
NEW YORK,NY10027
13-5598093 501(C)(3) 527,984 0     CLINICAL CARE RESEARCH
(437) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 6TH FL MC 8725
NEW YORK,NY10027
13-5598093 501(C)(3) 336,770 0     CLINICAL RESEARCH CENTER
(438) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 6TH FL MC 8725
NEW YORK,NY10027
13-5598093 501(C)(3) 136,000 0     QUALITY IMPROVEMENT
(439) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 6TH FL MC 8725
NEW YORK,NY10027
13-5598093 501(C)(3) 308,000 0     RESEARCH
(440) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 6TH FL MC 8725
NEW YORK,NY10027
13-5598093 501(C)(3) 1,136,136 0     THERAPEUTICS DISCOVERY RESEARCH
(441) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131ST ST 6TH FL MC 8725
NEW YORK,NY10027
13-5598093 501(C)(3) 191,000 0     TRAINING
(442) THE UNIVERSITY OF ARIZONA
845 NORTH PARK AVE RM 538
TUCSON,AR85721
74-2652689 115 34,720 0     ADHERENCE
(443) THE UNIVERSITY OF ARIZONA
845 NORTH PARK AVE RM 538
TUCSON,AR85721
74-2652689 115 85,692 0     ADULT CARE
(444) THE UNIVERSITY OF ARIZONA
845 NORTH PARK AVE RM 538
TUCSON,AR85721
74-2652689 115 248,443 0     CF CARE CENTER
(445) THE UNIVERSITY OF ARIZONA
845 NORTH PARK AVE RM 538
TUCSON,AR85721
74-2652689 115 176,330 0     CLINICAL RESEARCH CENTER
(446) THE UNIVERSITY OF ARIZONA
845 NORTH PARK AVE RM 538
TUCSON,AR85721
74-2652689 115 551,258 0     CLINICAL RESEARCH STUDY
(447) THE UNIVERSITY OF ARIZONA
845 NORTH PARK AVE RM 538
TUCSON,AR85721
74-2652689 115 83,998 0     QUALITY IMPROVEMENT
(448) THE UNIVERSITY OF CHICAGO
5801 SOUTH ELLIS AVE
CHICAGO,IL60637
36-2177139 501(C)(3) 255,070 0     CF CARE CENTER
(449) THE UNIVERSITY OF TENNESSEE
63 SOUTH DUNLAP ST STE 300
MEMPHIS,TN38163
62-6001636 115 304,977 0     CF CARE CENTER
(450) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON
7000 FANNIN ST
HOUSTON,TX77030
74-1761309 501(C)(3) 168,000 0     RESEARCH
(451) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DR
SAN ANTONIO,TX78229
74-1586031 501(C)(3) 78,184 0     ADULT CARE
(452) THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DR
SAN ANTONIO,TX78229
74-1586031 501(C)(3) 233,750 0     CF CARE CENTER
(453) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BVD MC 9029
DALLAS,TX75390
75-6002868 170(B)(1)(A)(V) 28,144 0     ADHERENCE
(454) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BVD MC 9029
DALLAS,TX75390
75-6002868 170(B)(1)(A)(V) 535,135 0     CF CARE CENTER
(455) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BVD MC 9029
DALLAS,TX75390
75-6002868 170(B)(1)(A)(V) 432,859 0     CLINICAL RESEARCH CENTER
(456) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BVD MC 9029
DALLAS,TX75390
75-6002868 170(B)(1)(A)(V) 213,266 0     CLINICAL RESEARCH STUDY
(457) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BVD MC 9029
DALLAS,TX75390
75-6002868 170(B)(1)(A)(V) 313,593 0     QUALITY IMPROVEMENT
(458) THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BVD MC 9029
DALLAS,TX75390
75-6002868 170(B)(1)(A)(V) 124,000 0     TRAINING
(459) THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL COLLEGE
85 SOUTH PROSPECT TREET
BURLINGTON,VT05405
03-0179440 501(C)(3) 221,550 0     CLINICAL RESEARCH CENTER
(460) THE UNIVERSITY OF VERMONT MEDICAL CENTER INC
111 COLCHESTER AVE
BURLINGTON,VT05401
03-0219309 501(C)(3) 15,635 0     ADHERENCE
(461) THE UNIVERSITY OF VERMONT MEDICAL CENTER INC
111 COLCHESTER AVE
BURLINGTON,VT05401
03-0219309 501(C)(3) 60,480 0     ADULT CARE
(462) THE UNIVERSITY OF VERMONT MEDICAL CENTER INC
111 COLCHESTER AVE
BURLINGTON,VT05401
03-0219309 501(C)(3) 204,120 0     CF CARE CENTER
(463) THOMAS JEFFERSON UNIVERSITY
1020 WALNUT ST
PHILADELPHIA,PA19107
23-1352651 501(C)(3) 75,270 0     CF CARE CENTER
(464) THOMAS JEFFERSON UNIVERSITY
1020 WALNUT ST
PHILADELPHIA,PA19107
23-1352651 501(C)(3) 148,422 0     CLINICAL RESEARCH CENTER
(465) TRUSTEES OF BOSTON UNIVERSITY
881 COMMONWEALTH AVE M-921
BOSTON,MA02215
04-2103547 501(C)(3) 130,000 0     RESEARCH
(466) TRUSTEES OF BOSTON UNIVERSITY
881 COMMONWEALTH AVE M-921
BOSTON,MA02215
04-2103547 501(C)(3) 75,000 0     RESEARCH STUDY
(467) TRUSTEES OF BOSTON UNIVERSITY
881 COMMONWEALTH AVE M-921
BOSTON,MA02215
04-2103547 501(C)(3) 224,000 0     THERAPEUTICS DISCOVERY RESEARCH
(468) TRUSTEES OF DARTMOUTH COLLEGE
OFFICE OF SPONSORED PROJECTS 11
ROPE FERRY RD
HANOVER,NH03755
02-0222111 501(C)(3) 176,161 0     CLINICAL RESEARCH STUDY
(469) TRUSTEES OF DARTMOUTH COLLEGE
OFFICE OF SPONSORED PROJECTS 11
ROPE FERRY RD
HANOVER,NH03755
02-0222111 501(C)(3) 1,112,862 0     RESEARCH
(470) TRUSTEES OF DARTMOUTH COLLEGE
OFFICE OF SPONSORED PROJECTS 11
ROPE FERRY RD
HANOVER,NH03755
02-0222111 501(C)(3) 800,000 0     RESEARCH CENTER
(471) TRUSTEES OF DARTMOUTH COLLEGE
OFFICE OF SPONSORED PROJECTS 11
ROPE FERRY RD
HANOVER,NH03755
02-0222111 501(C)(3) 306,050 0     RESEARCH STUDY
(472) TRUSTEES OF INDIANA UNIVERSITY
509 EAST 3RD ST
BLOOMINGTON,IN47401
35-6001673 501(C)(3) 650,838 0     CF CARE CENTER
(473) TRUSTEES OF INDIANA UNIVERSITY
509 EAST 3RD ST
BLOOMINGTON,IN47401
35-6001673 501(C)(3) 330,553 0     CLINICAL CARE RESEARCH
(474) TRUSTEES OF INDIANA UNIVERSITY
509 EAST 3RD ST
BLOOMINGTON,IN47401
35-6001673 501(C)(3) 500,209 0     CLINICAL RESEARCH CENTER
(475) TRUSTEES OF INDIANA UNIVERSITY
509 EAST 3RD ST
BLOOMINGTON,IN47401
35-6001673 501(C)(3) 33,780 0     CLINICAL RESEARCH STUDY
(476) TRUSTEES OF INDIANA UNIVERSITY
509 EAST 3RD ST
BLOOMINGTON,IN47401
35-6001673 501(C)(3) 56,000 0     PILOT STUDY
(477) TRUSTEES OF INDIANA UNIVERSITY
509 EAST 3RD ST
BLOOMINGTON,IN47401
35-6001673 501(C)(3) 110,000 0     RESEARCH STUDY
(478) TRUSTEES OF INDIANA UNIVERSITY
509 EAST 3RD ST
BLOOMINGTON,IN47401
35-6001673 501(C)(3) 190,996 0     TRAINING
(479) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT ST 5TH FL FRANKLIN
BUILDING
PHILADELPHIA,PA19104
23-1352685 501(C)(3) 125,981 0     ADULT CARE
(480) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT ST 5TH FL FRANKLIN
BUILDING
PHILADELPHIA,PA19104
23-1352685 501(C)(3) 370,003 0     CF CARE CENTER
(481) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT ST 5TH FL FRANKLIN
BUILDING
PHILADELPHIA,PA19104
23-1352685 501(C)(3) 224,956 0     CLINICAL CARE RESEARCH
(482) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT ST 5TH FL FRANKLIN
BUILDING
PHILADELPHIA,PA19104
23-1352685 501(C)(3) 108,621 0     CLINICAL RESEARCH CENTER
(483) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT ST 5TH FL FRANKLIN
BUILDING
PHILADELPHIA,PA19104
23-1352685 501(C)(3) 50,000 0     CLINICAL RESEARCH STUDY
(484) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT ST 5TH FL FRANKLIN
BUILDING
PHILADELPHIA,PA19104
23-1352685 501(C)(3) 168,000 0     RESEARCH
(485) UNIVERSITY AT BUFFALO PEDIATRIC ASSOCIATES
1001 MAIN ST 5TH FL
BUFFALO,NY14203
16-1238821 501(C)(3) 208,365 0     CF CARE CENTER
(486) UNIVERSITY AT BUFFALO PEDIATRIC ASSOCIATES
1001 MAIN ST 5TH FL
BUFFALO,NY14203
16-1238821 501(C)(3) 84,000 0     QUALITY IMPROVEMENT
(487) UNIVERSITY HEALTH SYSTEM INC
1924 ALCOA HIGHWAY
KNOXVILLE,TN37920
31-1626179 501(C)(3) 153,160 0     CF CARE CENTER
(488) UNIVERSITY HOSPITALS CLEVELAND MEDICAL CENTER
11100 EUCLID AVE
CLEVELAND,OH44106
34-1567805 501(C)(3) 44,006 0     ADULT CARE
(489) UNIVERSITY HOSPITALS CLEVELAND MEDICAL CENTER
11100 EUCLID AVE
CLEVELAND,OH44106
34-1567805 501(C)(3) 347,840 0     CF CARE CENTER
(490) UNIVERSITY HOSPITALS CLEVELAND MEDICAL CENTER
11100 EUCLID AVE
CLEVELAND,OH44106
34-1567805 501(C)(3) 80,646 0     CLINICAL RESEARCH
(491) UNIVERSITY HOSPITALS CLEVELAND MEDICAL CENTER
11100 EUCLID AVE
CLEVELAND,OH44106
34-1567805 501(C)(3) 292,341 0     CLINICAL RESEARCH CENTER
(492) UNIVERSITY HOSPITALS CLEVELAND MEDICAL CENTER
11100 EUCLID AVE
CLEVELAND,OH44106
34-1567805 501(C)(3) 83,982 0     QUALITY IMPROVEMENT
(493) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 33,226 0     ADHERENCE
(494) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 130,172 0     ADULT CARE
(495) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 462,799 0     CF CARE CENTER
(496) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 66,593 0     CLINICAL CARE RESEARCH
(497) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 95,447 0     CLINICAL RESEARCH
(498) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 742,187 0     CLINICAL RESEARCH CENTER
(499) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 305,118 0     CLINICAL RESEARCH STUDY
(500) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 49,622 0     PILOT STUDY
(501) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 580,254 0     QUALITY IMPROVEMENT
(502) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 1,793,091 0     RESEARCH
(503) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 749,035 0     RESEARCH CENTER
(504) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 184,803 0     RESEARCH STUDY
(505) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 1,314,765 0     THERAPEUTICS DISCOVERY RESEARCH
(506) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SOUTH AB 1170
BIRMINGHAM,AL35294
63-6005396 501(C)(3) 100,000 0     TRAINING
(507) UNIVERSITY OF CINCINNATI
51 GOODMAN DR
CINCINNATI,OH45221
31-6000989 501(C)(3) 124,753 0     CF CARE CENTER
(508) UNIVERSITY OF CINCINNATI
51 GOODMAN DR
CINCINNATI,OH45221
31-6000989 501(C)(3) 74,830 0     CLINICAL RESEARCH CENTER
(509) UNIVERSITY OF CINCINNATI
51 GOODMAN DR
CINCINNATI,OH45221
31-6000989 501(C)(3) 55,960 0     QUALITY IMPROVEMENT
(510) UNIVERSITY OF CINCINNATI
51 GOODMAN DR
CINCINNATI,OH45221
31-6000989 501(C)(3) 291,326 0     RESEARCH
(511) UNIVERSITY OF CONNECTICUT HEALTH CENTER
263 FARMINGTON AVE
FARMINGTON,CT06030
52-1725543 501(C)(3) 167,315 0     RESEARCH
(512) UNIVERSITY OF FLORIDA
STE 1250 EAST CAMPUS OFFICE
BUILDING PO BOX 113201
GAINESVILLE,FL32611
59-6002052 115 53,823 0     ADULT CARE
(513) UNIVERSITY OF FLORIDA
STE 1250 EAST CAMPUS OFFICE
BUILDING PO BOX 113201
GAINESVILLE,FL32611
59-6002052 115 295,158 0     CF CARE CENTER
(514) UNIVERSITY OF FLORIDA
STE 1250 EAST CAMPUS OFFICE
BUILDING PO BOX 113201
GAINESVILLE,FL32611
59-6002052 115 280,179 0     CLINICAL RESEARCH CENTER
(515) UNIVERSITY OF FLORIDA
STE 1250 EAST CAMPUS OFFICE
BUILDING PO BOX 113201
GAINESVILLE,FL32611
59-6002052 115 89,511 0     CLINICAL RESEARCH STUDY
(516) UNIVERSITY OF FLORIDA
STE 1250 EAST CAMPUS OFFICE
BUILDING PO BOX 113201
GAINESVILLE,FL32611
59-6002052 115 3,975 0     TRAINING
(517) UNIVERSITY OF GEORGIA RESEARCH FOUNDATION INC
310 EAST CAMPUS RD
ATHENS,GA30602
58-1353149 501(C)(3) 56,000 0     PILOT STUDY
(518) UNIVERSITY OF GEORGIA RESEARCH FOUNDATION INC
310 EAST CAMPUS RD
ATHENS,GA30602
58-1353149 501(C)(3) 310,779 0     RESEARCH
(519) UNIVERSITY OF GEORGIA RESEARCH FOUNDATION INC
310 EAST CAMPUS RD
ATHENS,GA30602
58-1353149 501(C)(3) 4,000 0     TRAINING
(520) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
MSN 1039 3901 RAINBOW BLVD
KANSAS CITY,KS66103
48-1108830 501(C)(3) 44,791 0     ADHERENCE
(521) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
MSN 1039 3901 RAINBOW BLVD
KANSAS CITY,KS66103
48-1108830 501(C)(3) 317,180 0     CF CARE CENTER
(522) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
MSN 1039 3901 RAINBOW BLVD
KANSAS CITY,KS66103
48-1108830 501(C)(3) 223,031 0     CLINICAL RESEARCH CENTER
(523) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
MSN 1039 3901 RAINBOW BLVD
KANSAS CITY,KS66103
48-1108830 501(C)(3) 50,000 0     CLINICAL RESEARCH STUDY
(524) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
MSN 1039 3901 RAINBOW BLVD
KANSAS CITY,KS66103
48-1108830 501(C)(3) 292,847 0     RESEARCH
(525) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
MSN 1039 3901 RAINBOW BLVD
KANSAS CITY,KS66103
48-1108830 501(C)(3) 75,600 0     TRAINING
(526) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
109 KINKEAD HALL 109 KINKEAD HALL
LEXINGTON,KY40506
61-6033693 501(C)(3) 298,133 0     CF CARE CENTER
(527) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
109 KINKEAD HALL 109 KINKEAD HALL
LEXINGTON,KY40506
61-6033693 501(C)(3) 165,880 0     CLINICAL RESEARCH CENTER
(528) UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
109 KINKEAD HALL 109 KINKEAD HALL
LEXINGTON,KY40506
61-6033693 501(C)(3) 165,869 0     CLINICAL RESEARCH STUDY
(529) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET ST STE 300
LOUISVILLE,KY40202
61-1029626 501(C)(3) 36,596 0     ADULT CARE
(530) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET ST STE 300
LOUISVILLE,KY40202
61-1029626 501(C)(3) 323,339 0     CF CARE CENTER
(531) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET ST STE 300
LOUISVILLE,KY40202
61-1029626 501(C)(3) 113,372 0     CLINICAL RESEARCH CENTER
(532) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET ST STE 300
LOUISVILLE,KY40202
61-1029626 501(C)(3) 55,897 0     PILOT STUDY
(533) UNIVERSITY OF MARYLAND - COLLEGE PARKBALTIMORE
3112 LEE BUILDING 7809 REGENTS DR
COLLEGE PARK,MD20742
52-6002033 115 330,600 0     RESEARCH
(534) UNIVERSITY OF MARYLAND - COLLEGE PARKBALTIMORE
3112 LEE BUILDING 7809 REGENTS DR
COLLEGE PARK,MD20742
52-6002033 115 8,000 0     TRAINING
(535) UNIVERSITY OF MASSACHUSETTS
55 NORTH LAKE AVE MEDICAL SCHOOL
BLDG RM 3S-24
WORCESTER,MA01655
04-3167352 115 46,078 0     ADULT CARE
(536) UNIVERSITY OF MASSACHUSETTS
55 NORTH LAKE AVE MEDICAL SCHOOL
BLDG RM 3S-24
WORCESTER,MA01655
04-3167352 115 161,400 0     CF CARE CENTER
(537) UNIVERSITY OF MASSACHUSETTS
55 NORTH LAKE AVE MEDICAL SCHOOL
BLDG RM 3S-24
WORCESTER,MA01655
04-3167352 115 116,710 0     CLINICAL RESEARCH CENTER
(538) UNIVERSITY OF MIAMI
PO BOX 248106 CONTROLLERS OFFICE
CORAL GABLES,FL33124
59-0624458 501(C)(3) 30,327 0     ADULT CARE
(539) UNIVERSITY OF MIAMI
PO BOX 248106 CONTROLLERS OFFICE
CORAL GABLES,FL33124
59-0624458 501(C)(3) 202,450 0     CF CARE CENTER
(540) UNIVERSITY OF MIAMI
PO BOX 248106 CONTROLLERS OFFICE
CORAL GABLES,FL33124
59-0624458 501(C)(3) 116,285 0     CLINICAL RESEARCH CENTER
(541) UNIVERSITY OF NEW MEXICO
1 UNIVERSITY OF NEW MEXICO MSC09
5225
ALBUQUERQUE,NM87131
85-6000642 115 310,349 0     CF CARE CENTER
(542) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 36,960 0     ADULT CARE
(543) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 560,063 0     CF CARE CENTER
(544) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 16,162 0     CLINICAL RESEARCH
(545) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 828,443 0     CLINICAL RESEARCH CENTER
(546) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 478,704 0     CLINICAL RESEARCH STUDY
(547) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 51,968 0     PILOT STUDY
(548) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 259,788 0     QUALITY IMPROVEMENT
(549) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 2,279,374 0     RESEARCH
(550) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 550,000 0     RESEARCH CENTER
(551) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 215,213 0     RESEARCH STUDY
(552) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 701,622 0     THERAPEUTICS DISCOVERY RESEARCH
(553) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 235,496 0     TRAINING
(554) UNIVERSITY OF PITTSBURGH
300 MURDOCH BUILDING 3420 FORBES
AVE
PITTSBURGH,PA15260
25-0965591 501(C)(3) 1,601,705 0     CLINICAL CARE RESEARCH
(555) UNIVERSITY OF PITTSBURGH
300 MURDOCH BUILDING 3420 FORBES
AVE
PITTSBURGH,PA15260
25-0965591 501(C)(3) 393,411 0     CLINICAL RESEARCH CENTER
(556) UNIVERSITY OF PITTSBURGH
300 MURDOCH BUILDING 3420 FORBES
AVE
PITTSBURGH,PA15260
25-0965591 501(C)(3) 902,789 0     CLINICAL RESEARCH STUDY
(557) UNIVERSITY OF PITTSBURGH
300 MURDOCH BUILDING 3420 FORBES
AVE
PITTSBURGH,PA15260
25-0965591 501(C)(3) 55,880 0     PILOT STUDY
(558) UNIVERSITY OF PITTSBURGH
300 MURDOCH BUILDING 3420 FORBES
AVE
PITTSBURGH,PA15260
25-0965591 501(C)(3) 640,990 0     RESEARCH
(559) UNIVERSITY OF PITTSBURGH
300 MURDOCH BUILDING 3420 FORBES
AVE
PITTSBURGH,PA15260
25-0965591 501(C)(3) 674,064 0     RESEARCH CENTER
(560) UNIVERSITY OF PITTSBURGH
300 MURDOCH BUILDING 3420 FORBES
AVE
PITTSBURGH,PA15260
25-0965591 501(C)(3) 76,952 0     RESEARCH STUDY
(561) UNIVERSITY OF PITTSBURGH
300 MURDOCH BUILDING 3420 FORBES
AVE
PITTSBURGH,PA15260
25-0965591 501(C)(3) 351,193 0     TRAINING
(562) UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING
ROCHESTER,NY14627
16-0743209 501(C)(3) 46,079 0     ADULT CARE
(563) UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING
ROCHESTER,NY14627
16-0743209 501(C)(3) 191,542 0     CF CARE CENTER
(564) UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING
ROCHESTER,NY14627
16-0743209 501(C)(3) 142,517 0     CLINICAL RESEARCH CENTER
(565) UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING
ROCHESTER,NY14627
16-0743209 501(C)(3) 56,000 0     PILOT STUDY
(566) UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING
ROCHESTER,NY14627
16-0743209 501(C)(3) 336,000 0     RESEARCH
(567) UNIVERSITY OF SOUTH ALABAMA
307 UNIVERSITY BLVD
MOBILE,AL36688
63-0477348 501(C)(3) 75,000 0     RESEARCH STUDY
(568) UNIVERSITY OF SOUTH FLORIDA
4202 EAST FOWLER AVE SVC 1039
TAMPA,FL33620
59-3102112 115 85,730 0     CF CARE CENTER
(569) UNIVERSITY OF SOUTH FLORIDA
4202 EAST FOWLER AVE SVC 1039
TAMPA,FL33620
59-3102112 115 324,992 0     RESEARCH
(570) UNIVERSITY OF SOUTH FLORIDA
4202 EAST FOWLER AVE SVC 1039
TAMPA,FL33620
59-3102112 115 4,000 0     TRAINING
(571) UNIVERSITY OF SOUTHERN CALIFORNIA
DEPARTMENT OF CONTRACTS AND GRANTS
3720 S FLOWER ST THIRD FL
LOS ANGELES,CA90089
95-1642394 501(C)(3) 189,100 0     CF CARE CENTER
(572) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER
11937 US HIGHWAY 271
TYLER,TX75708
75-6001354 501(C)(3) 94,510 0     CF CARE CENTER
(573) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER
11937 US HIGHWAY 271
TYLER,TX75708
75-6001354 501(C)(3) 110,097 0     CLINICAL RESEARCH CENTER
(574) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER
11937 US HIGHWAY 271
TYLER,TX75708
75-6001354 501(C)(3) 149,764 0     RESEARCH
(575) UNIVERSITY OF TOKYO
104 AIRPORT DR STE 2200 CAMPUS BOX
1350
CHAPEL HILL,NC27599
56-6001393 501(C)(3) 56,000 0     PILOT STUDY
(576) UNIVERSITY OF UTAH
201 S PRESIDENTS CIRCLE RM 210
SALT LAKE CITY,UT84112
87-6000525 501(C)(3) 60,480 0     ADULT CARE
(577) UNIVERSITY OF UTAH
201 S PRESIDENTS CIRCLE RM 210
SALT LAKE CITY,UT84112
87-6000525 501(C)(3) 681,460 0     CF CARE CENTER
(578) UNIVERSITY OF UTAH
201 S PRESIDENTS CIRCLE RM 210
SALT LAKE CITY,UT84112
87-6000525 501(C)(3) 293,589 0     CLINICAL RESEARCH CENTER
(579) UNIVERSITY OF UTAH
201 S PRESIDENTS CIRCLE RM 210
SALT LAKE CITY,UT84112
87-6000525 501(C)(3) 56,000 0     QUALITY IMPROVEMENT
(580) UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472
SEATTLE,WA98195
91-6001537 115 230,260 0     CF CARE CENTER
(581) UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472
SEATTLE,WA98195
91-6001537 115 287,128 0     CLINICAL CARE RESEARCH
(582) UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472
SEATTLE,WA98195
91-6001537 115 354,073 0     CLINICAL RESEARCH
(583) UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472
SEATTLE,WA98195
91-6001537 115 182,568 0     CLINICAL RESEARCH CENTER
(584) UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472
SEATTLE,WA98195
91-6001537 115 1,340,870 0     CLINICAL RESEARCH STUDY
(585) UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472
SEATTLE,WA98195
91-6001537 115 130,000 0     RESEARCH
(586) UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472
SEATTLE,WA98195
91-6001537 115 550,000 0     RESEARCH CENTER
(587) UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472
SEATTLE,WA98195
91-6001537 115 226,000 0     RESEARCH STUDY
(588) UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472
SEATTLE,WA98195
91-6001537 115 177,100 0     TRAINING
(589) UNIVERSITY PSYCHIATRIC PRACTICE INC
462 GRIDER ST
BUFFALO,NY14215
16-1426208 501(C)(3) 41,996 0     CF CARE CENTER
(590) UNIVERSITY SYSTEM OF NEW HAMPSHIRE
51 COLLEGE RD SPONSORED PROGRAMS
ADMINISTRATION
DURHAM,NH03824
02-6000937 501(C)(3) 700,000 0     QUALITY IMPROVEMENT
(591) UPSTATE AFFILIATE ORGANIZATION
300 E MCBEE AVE STE 500
GREENVILLE,SC29601
81-1723202 501(C)(3) 114,510 0     CF CARE CENTER
(592) UTAH STATE UNIVERSITY
1415 OLD MAIN HILL
LOGAN,UT84322
87-6000528 501(C)(3) 124,986 0     RESEARCH
(593) VALLEY CHILDREN'S HOSPITAL
9300 VALLEY CHILDRENS PLACE MS PC
05
MADERA,CA93636
94-1294954 501(C)(3) 128,165 0     CF CARE CENTER
(594) VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SOUTH D-3300 MEDICAL
CENTER NORTH
NASHVILLE,TN37232
35-2528741 501(C)(3) 54,710 0     ADULT CARE
(595) VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SOUTH D-3300 MEDICAL
CENTER NORTH
NASHVILLE,TN37232
35-2528741 501(C)(3) 432,470 0     CF CARE CENTER
(596) VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SOUTH D-3300 MEDICAL
CENTER NORTH
NASHVILLE,TN37232
35-2528741 501(C)(3) 185,332 0     CLINICAL RESEARCH CENTER
(597) VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SOUTH D-3300 MEDICAL
CENTER NORTH
NASHVILLE,TN37232
35-2528741 501(C)(3) 112,000 0     QUALITY IMPROVEMENT
(598) VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SOUTH D-3300 MEDICAL
CENTER NORTH
NASHVILLE,TN37232
35-2528741 501(C)(3) 115,000 0     RESEARCH
(599) VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SOUTH D-3300 MEDICAL
CENTER NORTH
NASHVILLE,TN37232
35-2528741 501(C)(3) 4,000 0     TRAINING
(600) VARIETY CHILDREN'S HOSPITAL
3100 SW 62ND AVE
MIAMI,FL33155
59-0638499 501(C)(3) 55,150 0     CF CARE CENTER
(601) VHS CHILDREN'S HOSPITAL OF MICHIGAN INC
3901 BEAUBIEN BLVD
DETROIT,MI48201
27-2845064   110,540 0     CF CARE CENTER
(602) VIA CHRISTI HOSPITALS WICHITA INC
929 N SAINT FRANCIS
WICHITA,KS67214
48-1172106 501(C)(3) 158,220 0     CF CARE CENTER
(603) VIRGINIA COMMONWEALTH UNIVERSITY
800 E LEIGH ST PO BOX 843035
RICHMOND,VA23219
54-6001758 115 35,840 0     ADHERENCE
(604) VIRGINIA COMMONWEALTH UNIVERSITY
800 E LEIGH ST PO BOX 843035
RICHMOND,VA23219
54-6001758 115 353,547 0     CF CARE CENTER
(605) VIRGINIA COMMONWEALTH UNIVERSITY
800 E LEIGH ST PO BOX 843035
RICHMOND,VA23219
54-6001758 115 252,917 0     CLINICAL RESEARCH CENTER
(606) VIRGINIA COMMONWEALTH UNIVERSITY
800 E LEIGH ST PO BOX 843035
RICHMOND,VA23219
54-6001758 115 89,644 0     CLINICAL RESEARCH STUDY
(607) VIRGINIA COMMONWEALTH UNIVERSITY
800 E LEIGH ST PO BOX 843035
RICHMOND,VA23219
54-6001758 115 111,998 0     QUALITY IMPROVEMENT
(608) VIRGINIA COMMONWEALTH UNIVERSITY
800 E LEIGH ST PO BOX 843035
RICHMOND,VA23219
54-6001758 115 4,000 0     TRAINING
(609) VIRGINIA POLYTECHNIC INSTITUTE AND STATE UNIVERSITY
300 TURNER ST NW STE 4200 MC 0170
BLACKSBURG,VA24060
54-6001805 501(C)(3) 166,723 0     RESEARCH
(610) WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD
WINSTONSALEM,NC27157
22-3849199 501(C)(3) 190,672 0     CF CARE CENTER
(611) WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD
WINSTONSALEM,NC27157
22-3849199 501(C)(3) 98,123 0     CLINICAL RESEARCH CENTER
(612) WARREN CLINIC INC
6600 S YALE AVE STE 400
TULSA,OK74136
73-1310891 501(C)(3) 131,930 0     CF CARE CENTER
(613) WASHINGTON UNIVERSITY
1 BROOKINGS DR MSC 1034-0423-02
ST LOUIS,MO63130
43-0653611 501(C)(3) 477,455 0     CF CARE CENTER
(614) WASHINGTON UNIVERSITY
1 BROOKINGS DR MSC 1034-0423-02
ST LOUIS,MO63130
43-0653611 501(C)(3) 188,789 0     CLINICAL CARE RESEARCH
(615) WASHINGTON UNIVERSITY
1 BROOKINGS DR MSC 1034-0423-02
ST LOUIS,MO63130
43-0653611 501(C)(3) 327,425 0     CLINICAL RESEARCH CENTER
(616) WASHINGTON UNIVERSITY
1 BROOKINGS DR MSC 1034-0423-02
ST LOUIS,MO63130
43-0653611 501(C)(3) 103,279 0     CLINICAL RESEARCH STUDY
(617) WASHINGTON UNIVERSITY
1 BROOKINGS DR MSC 1034-0423-02
ST LOUIS,MO63130
43-0653611 501(C)(3) 110,000 0     RESEARCH STUDY
(618) WAYNE STATE UNIVERSITY
5057 WOODWARD AVE 13TH FL
DETROIT,MI48202
38-6028429 501(C)(3) 101,710 0     CF CARE CENTER
(619) WAYNE STATE UNIVERSITY
5057 WOODWARD AVE 13TH FL
DETROIT,MI48202
38-6028429 501(C)(3) 184,408 0     CLINICAL RESEARCH CENTER
(620) WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
1300 YORK AVE
NEW YORK,NY10065
13-1623978 501(C)(3) 251,660 0     TRAINING
(621) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE RD
MORGANTOWN,WV26506
55-0665758 501(C)(3) 34,609 0     ADHERENCE
(622) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE RD
MORGANTOWN,WV26506
55-0665758 501(C)(3) 189,020 0     CF CARE CENTER
(623) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE RD
MORGANTOWN,WV26506
55-0665758 501(C)(3) 123,844 0     CLINICAL RESEARCH CENTER
(624) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE RD
MORGANTOWN,WV26506
55-0665758 501(C)(3) 223,675 0     CLINICAL RESEARCH STUDY
(625) WESTERN MICHIGAN UNIVERSITY SCHOOL OF MEDICINE
1000 OAKLAND DR
KALAMAZOO,MI49008
45-4135256 501(C)(3) 55,480 0     CF CARE CENTER
(626) WRIGHT STATE UNIVERSITY
3640 COLONEL GLENN HIGHWAY
DAYTON,OH45435
31-0732831 115 41,110 0     ADULT CARE
(627) YALE UNIVERSITY
150 MUNSON ST PO BOX 208327
NEW HAVEN,CT06520
06-0646973 501(C)(3) 75,647 0     ADULT CARE
(628) YALE UNIVERSITY
150 MUNSON ST PO BOX 208327
NEW HAVEN,CT06520
06-0646973 501(C)(3) 210,935 0     CF CARE CENTER
(629) YALE UNIVERSITY
150 MUNSON ST PO BOX 208327
NEW HAVEN,CT06520
06-0646973 501(C)(3) 156,468 0     CLINICAL RESEARCH CENTER
(630) YALE UNIVERSITY
150 MUNSON ST PO BOX 208327
NEW HAVEN,CT06520
06-0646973 501(C)(3) 168,000 0     CLINICAL RESEARCH STUDY
(631) YALE UNIVERSITY
150 MUNSON ST PO BOX 208327
NEW HAVEN,CT06520
06-0646973 501(C)(3) 111,981 0     PILOT STUDY
(632) YALE UNIVERSITY
150 MUNSON ST PO BOX 208327
NEW HAVEN,CT06520
06-0646973 501(C)(3) 418,000 0     RESEARCH
(633) YALE UNIVERSITY
150 MUNSON ST PO BOX 208327
NEW HAVEN,CT06520
06-0646973 501(C)(3) 4,000 0     TRAINING
2
Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................. Bullet Image
227
3
Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image
9
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50055P
Schedule I (Form 990) 2023

Schedule I (Form 990) 2023
Page 2
Part III
Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" on Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Number of
recipients
(c) Amount of
cash grant
(d) Amount of
noncash assistance
(e) Method of valuation (book,
FMV, appraisal, other)
(f) Description of noncash assistance
(1) FELLOWSHIPS 42 266,592      
(2) COMMUNITY IMPACT 7 76,376      
(2)
(3)
(4)
(5)
(6)
(7)
Part IV
Supplemental Information. Provide the information required in Part I, line 2; Part III, column (b); and any other additional information.
Return Reference Explanation
PART I, LINE 2: THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED AND FINANCIAL REPORTS ARE REVIEWED BY GRANTS MANAGEMENT STAFF TO ENSURE FUNDS WERE USED AS INTENDED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES AND THE FINAL SCIENTIFIC REPORT.
SCHEDULE I, PART III: SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS.
Schedule I (Form 990) 2023



Additional Data


Software ID:  
Software Version:  


Schedule J
(Form 990)
Department of the Treasury
Internal Revenue Service
Compensation Information
For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
medium right arrow graphic Complete if the organization answered "Yes" on Form 990, Part IV, line 23.
medium right arrow graphic Attach to Form 990.
medium right arrow graphic Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2023
Open to Public Inspection
Name of the organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number

13-1930701
Part I
Questions Regarding Compensation
Yes
No
1a
Check the appropiate box(es) if the organization provided any of the following to or for a person listed on Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.
b
If any of the boxes on Line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain .....
1b
 
 
2
Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked on Line 1a? ....
2
 
 
3
Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.
4
During the year, did any person listed on Form 990, Part VII, Section A, line 1a, with respect to the filing organization or a related organization:
a
Receive a severance payment or change-of-control payment? .............
4a
 
No
b
Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........
4b
Yes
 
c
Participate in, or receive payment from, an equity-based compensation arrangement? .........
4c
 
No
If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.
Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.
5
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:
a
The organization? ....................
5a
 
No
b
Any related organization? .......................
5b
 
No
If "Yes," on line 5a or 5b, describe in Part III.
6
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:
a
The organization? ..................
6a
 
No
b
Any related organization? ......................
6b
 
No
If "Yes," on line 6a or 6b, describe in Part III.
7
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization provide any nonfixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............
7
Yes
 
8
Were any amounts reported on Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III ..........................
8
 
No
9
If "Yes" on line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................
9
 
 
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50053T
Schedule J (Form 990) 2023

Schedule J (Form 990) 2023
Page 2
Part II
Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.
For each individual whose compensation must be reported on Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.
(A) Name and Title (B) Breakdown of W-2, 1099-MISC compensation, and/or 1099-NEC (C) Retirement and other deferred compensation (D) Nontaxable
benefits
(E) Total of columns
(B)(i)-(D)
(F) Compensation in column (B) reported as deferred on prior Form 990
(i) Base
compensation
(ii) Bonus & incentive
compensation
(iii) Other reportable compensation
1JOHN C MAHLER JR
CHIEF INVESTMENT OFFICER
(i)

(ii)
731,770
-------------
0
1,685,373
-------------
0
330,628
-------------
0
33,192
-------------
0
41,633
-------------
0
2,822,596
-------------
0
696,223
-------------
0
2MICHAEL P BOYLE MD
PRESIDENT & CEO
(i)

(ii)
678,428
-------------
0
384,290
-------------
0
309,828
-------------
0
45,745
-------------
0
54,491
-------------
0
1,472,782
-------------
0
365,959
-------------
0
3EARL A LEE
MANAGING DIRECTOR, INVESTMENTS
(i)

(ii)
462,638
-------------
0
650,071
-------------
0
1,715
-------------
0
264,863
-------------
0
17,823
-------------
0
1,397,110
-------------
0
128,353
-------------
0
4ANDREW LEWIS
MANAGING DIRECTOR, INVESTMENTS
(i)

(ii)
422,884
-------------
0
843,750
-------------
0
2,203
-------------
0
33,192
-------------
0
16,418
-------------
0
1,318,447
-------------
0
0
-------------
0
5ERIC KOEHRSEN
MANAGING DIRECTOR, INVESTMENTS
(i)

(ii)
426,621
-------------
0
521,753
-------------
0
1,131
-------------
0
214,961
-------------
0
54,041
-------------
0
1,218,507
-------------
0
114,841
-------------
0
6BRUCE MARSHALL MD
EVP & CHIEF MEDICAL OFFICER
(i)

(ii)
561,070
-------------
0
166,024
-------------
0
14,832
-------------
0
36,032
-------------
0
0
-------------
0
777,958
-------------
0
59,805
-------------
0
7JOHN P CLANCY MD
SVP, CLINICAL RESEARCH
(i)

(ii)
498,512
-------------
0
153,438
-------------
0
7,484
-------------
0
37,070
-------------
0
52,851
-------------
0
749,355
-------------
0
49,722
-------------
0
8IRENA BARISIC
EVP, CHIEF OPER/FIN OFFICER
(i)

(ii)
576,604
-------------
0
114,689
-------------
0
1,140
-------------
0
48,033
-------------
0
2,171
-------------
0
742,637
-------------
0
0
-------------
0
9GENTIANA S AROVAS
MANAGING DIRECTOR, INVESTMENTS
(i)

(ii)
377,927
-------------
0
161,385
-------------
0
1,984
-------------
0
137,360
-------------
0
53,081
-------------
0
731,737
-------------
0
44,099
-------------
0
10ALBERT FARO
VP CLINICAL AFFAIRS
(i)

(ii)
423,333
-------------
0
87,989
-------------
0
6,553
-------------
0
67,372
-------------
0
57,523
-------------
0
642,770
-------------
0
22,867
-------------
0
11MICHAEL B CAVADEL
SVP, CHIEF LEGAL OFFICER
(i)

(ii)
447,893
-------------
0
45,776
-------------
0
1,024
-------------
0
47,929
-------------
0
33,925
-------------
0
576,547
-------------
0
0
-------------
0
12WILLIAM SKACH MD
EVP & CHIEF SCIENTIFIC OFFICER
(i)

(ii)
144,310
-------------
0
98,922
-------------
0
34,482
-------------
0
1,590
-------------
0
0
-------------
0
279,304
-------------
0
41,733
-------------
0
13PRESTON W CAMPBELL III MD
FORMER CEO & STRATEGIC ADVISOR
(i)

(ii)
44,685
-------------
0
63,140
-------------
0
134,168
-------------
0
9,274
-------------
0
6,224
-------------
0
257,491
-------------
0
63,140
-------------
0
Schedule J (Form 990) 2023

Schedule J (Form 990) 2023
Page 3
Part III
Supplemental Information
Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II. Also complete this part for any additional information.
Return Reference Explanation
PART I, LINE 4B: THE TWO EXECUTIVES LISTED BELOW PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. INFORMATION REGARDING THE AMOUNT OF PAYMENTS MADE BY THE PLAN DURING THE REPORTING YEAR IS PROVIDED BELOW. NAME: JOHN C. MAHLER JR AMOUNT: $320,595 NAME: MICHAEL P. BOYLE, M.D. AMOUNT: $304,926
PART I, LINE 7: SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, PARTICIPATED IN THE FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENTS OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS.
Schedule J (Form 990) 2023

Additional Data


Software ID:  
Software Version:  
SCHEDULE M
(Form 990)


Department of the Treasury
Internal Revenue Service
Noncash Contributions
Right pointing arrow large image Complete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image Attach to Form 990.
Right pointing arrow large image Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2023
Open to Public Inspection
Name of the organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number

13-1930701
Part I
Types of Property
(a)
Check if applicable
(b)
Number of contributions or items contributed
(c)
Noncash contribution amounts reported on
Form 990, Part VIII, line 1g
(d)
Method of determining
noncash contribution amounts
1 Art—Works of art ....        
2 Art—Historical treasures .        
3 Art—Fractional interests ..        
4 Books and publications ..      
5 Clothing and household
goods .......
     
6 Cars and other vehicles .. X 29 22,417 NET CASH RECEIPTS
7 Boats and planes ....        
8 Intellectual property ...        
9 Securities—Publicly traded . X 89 1,314,690 NET CASH RECEIPTS
10 Securities—Closely held stock .        
11 Securities—Partnership, LLC,
or trust interests ....
       
12 Securities—Miscellaneous ..        
13 Qualified conservation
contribution—Historic
structures .....
       
14 Qualified conservation
contribution—Other ...
       
15 Real estate—Residential .        
16 Real estate—Commercial ..        
17 Real estate—Other ...        
18 Collectibles .....        
19 Food inventory ...        
20 Drugs and medical supplies .        
21 Taxidermy ......        
22 Historical artifacts ....        
23 Scientific specimens ..        
24 Archeological artifacts ...        
25 Other Right pointing arrow large image ( TANGIBLE AUCTION ITEMS ) X 12,440 6,644,188 NET CASH RECEIPTS
26 Other Right pointing arrow large image ( )
27 Other Right pointing arrow large image ( )
28 Other Right pointing arrow large image ( )
29
Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement
29
 
Yes
No
30a
During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that it must hold for at least three years from the date of the initial contribution, and which isn't required to be used for exempt purposes for the entire holding period? ...................
30a
 
No
b
If "Yes," describe the arrangement in Part II.
31
Does the organization have a gift acceptance policy that requires the review of any nonstandard contributions?
31
Yes
 
32a
Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash
contributions? ..........................
32a
Yes
 
b
If "Yes," describe in Part II.
33
If the organization didn't report an amount in column (c) for a type of property for which column (a) is checked,
describe in Part II.
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 51227J
Schedule M (Form 990) (2023)
Schedule M (Form 990) (2023)
Page 2
Part IISupplemental Information. Provide the information required by Part I, lines 30b, 32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.
Return Reference Explanation
SCHEDULE M, PART I, LINE 6: THIRD PARTY SELLER CYSTIC FIBROSIS FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS.
Schedule M (Form 990) (2023)

Additional Data


Software ID:  
Software Version:  
SCHEDULE O
(Form 990)

Department of the Treasury
Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
Attach to Form 990 or 990-EZ.
Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2023
Open to Public
Inspection
Name of the organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number

13-1930701
Return Reference Explanation
FORM 990, PART III, LINE 1: THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION IS TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.
FORM 990, PART III, LINE 4A: MEDICAL (AND RESEARCH) PROGRAMS - THE CYSTIC FIBROSIS FOUNDATION IS THE WORLD'S LEADER IN THE SEARCH FOR A CURE FOR CYSTIC FIBROSIS, A PROGRESSIVE, GENETIC DISEASE THAT AFFECTS APPROXIMATELY 40,000 PEOPLE IN THE U.S., AND MORE THAN 100,000 WORLDWIDE, WHICH CAN INCLUDE PEOPLE FROM EVERY RACIAL AND ETHNIC GROUP. THE CF FOUNDATION FUNDS HUNDREDS OF MILLIONS OF DOLLARS IN RESEARCH TO HELP DISCOVER/DEVELOP EFFECTIVE CF THERAPIES AND PROMOTE HIGHLY SPECIALIZED CARE, WITH $250 MILLION INVESTED. DUE IN PART TO THE CF FOUNDATION'S EFFORTS, THE LIFE EXPECTANCY OF PEOPLE WITH CF HAS MORE THAN DOUBLED IN THE LAST 30 YEARS. THE CF FOUNDATION FUNDS DISCOVERY AND DEVELOPMENT RESEARCH CONDUCTED BY BIOTECHNOLOGY COMPANIES AND ACADEMIC RESEARCH CENTERS. IT FUNDS A SPECIALIZED CF CLINICAL TRIALS NETWORK OF 91 FOUNDATION-ACCREDITED CARE CENTERS. AS OF DECEMBER 2023, THE CF FOUNDATION DRUG DEVELOPMENT PIPELINE HAD 38 THERAPIES IN DEVELOPMENT INCLUDING TREATMENTS THAT ADDRESS COMPLICATIONS, LIKE INFECTIONS, AND GENETIC THERAPIES THAT COULD ONE DAY LEAD TO A CURE FOR ALL PEOPLE WITH CYSTIC FIBROSIS, INCLUDING THOSE WITH RARE AND NONSENSE DISEASE-CAUSING MUTATIONS. TO SUPPORT ITS MISSION, THE CF FOUNDATION ALSO FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF MORE THAN 130 CARE CENTERS. THIS NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. IN 2023, THE FOUNDATION PROVIDED MORE THAN $49 MILLION FOR CARE CENTERS AND CLINICIANS. THIS WORK INCLUDES DEVELOPING CARE GUIDELINES, FUNDING PROFESSIONAL DEVELOPMENT AWARDS, AND ADVANCING QUALITY IMPROVEMENT OF THE HIGHLY SPECIALIZED CARE NEEDED TO LIVE WITH THE DISEASE. THE CF FOUNDATION ALSO MANAGES A PATIENT REGISTRY OF MORE THAN 32,600 PEOPLE WITH CF, 752 OF WHOM ARE NEWLY DIAGNOSED. THIS INVALUABLE TOOL HELPS IDENTIFY NEW HEALTH TRENDS AND EFFECTIVE TREATMENTS AND IMPROVE THE QUALITY OF CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR OTHER NONPROFIT HEALTH ORGANIZATIONS, INCLUDING OTHER CF ADVOCACY GROUPS.
FORM 990, PART III, LINE 4B: COMMUNITY SERVICES - THE FOUNDATION PROVIDES SUPPORT FOR PEOPLE WITH CF AND THEIR FAMILIES AS THEY MANAGE THE PHYSICAL, EMOTIONAL, AND FINANCIAL CHALLENGES OF LIVING WITH CF. THIS IS DONE THROUGH SUPPORTING HIGH-QUALITY, SPECIALIZED CARE, PROVIDING INFORMATION AND TOOLS TO HELP PEOPLE DIRECT THEIR OWN CARE, AND DEVELOPING PROGRAMS TO HELP PEOPLE WITH CF AND THEIR LOVED ONES CONNECT SO THEY CAN LEARN FROM AND CELEBRATE EACH OTHER. LACK OF ADEQUATE INSURANCE COVERAGE FOR CF THERAPIES HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. THE CF FOUNDATION COMPASS IS A HIGHLY PERSONALIZED SERVICE THAT IS TAILORED TO AN INDIVIDUAL'S CIRCUMSTANCES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TO CF THERAPIES AND CARE. IN 2023, SKILLED COMPASS CASE MANAGERS ADDRESSED 6,678 INQUIRIES FROM PEOPLE WITH CF, THEIR FAMILIES, AND THEIR PROVIDER NETWORK, HELPING PEOPLE BETTER UNDERSTAND AND MAXIMIZE THEIR INSURANCE COVERAGE AND BENEFITS, AND GET HELP WITH OTHER NEEDS RELATED TO DAILY LIFE WITH CF. CASE MANAGERS ALSO ASSISTED WITH FINDING RESOURCES FOR ISSUES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. BY CONNECTING PEOPLE WITH CF TO RESOURCES TO HELP THEM PAY BILLS OR OTHER SERVICES, THE CF FOUNDATION SAVED CLIENTS MORE THAN $1.8 MILLION IN 2023. THE CF FOUNDATION HELD MORE THAN 1,000 NATIONAL AND CHAPTER EVENTS IN 2023 FOR PEOPLE WITH CF AND THEIR FAMILY MEMBERS. VIRTUAL EVENTS, INCLUDING BREATHECON, RESEARCHCON, AND ROSEUP, WERE DESIGNED BY AND FOR ADULTS WITH CF, THEIR FAMILIES, CLINICIANS, AND RESEARCHERS. THESE GATHERINGS PROVIDED AN OPPORTUNITY FOR THE CF COMMUNITY TO CONNECT, SHARE, AND LEARN FROM PEERS THROUGH OPEN AND HONEST DIALOGUE.
FORM 990, PART III, LINE 4C: PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION - TO SUPPORT ITS MISSION, THE CF FOUNDATION CREATED EDUCATIONAL CONTENT DESIGNED TO INFORM AND SUPPORT PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS, AND THE GENERAL PUBLIC ABOUT THE DISEASE. IN 2023, THERE WERE 106 PUBLICATIONS AND 64 VIDEOS PRODUCED AND MADE AVAILABLE TO SUPPORT EDUCATION AND AWARENESS. YEAR-ROUND MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS, AND ALLIED HEALTH PROFESSIONALS AND CREATE OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2023, 2.1 MILLION UNIQUE VISITORS CAME TO THE CF FOUNDATION'S WEBSITE. THE CF FOUNDATION PUBLISHED 212 NEW CONTENT PAGES, MADE 177 CONTENT UPDATES, AND PUBLISHED 75 CF COMMUNITY BLOG POSTS.
FORM 990, PART VI, SECTION B, LINE 11B REVIEW OF 990 BY GOVERNING BODY THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A DRAFT OF THE FORM 990 PRIOR TO IT BEING FILED, WITH TIME FOR REVIEW AND COMMENT. THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES AND THE FOUNDATION'S ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. THE AUDIT COMMITTEE OF THE BOARD OF TRUSTEES ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED.
FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST MONITORING A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. POTENTIAL CONFLICTS FOR BOARD MEMBERS AND OFFICERS ARE REPORTED TO THE BOARD'S GOVERNANCE COMMITTEE. THE CF FOUNDATION MAINTAINED THE POLICY IN 2023.
FORM 990, PART VI, SECTION B, LINE 15 DETERMINING COMPENSATION: LINES 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED TALENT TO FULFILL THE CF FOUNDATION'S CRITCALLY IMPORTANT MISSION. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. (2) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. (3) REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S COMPENSATION, BEFORE ANY NEW COMPENSATION ARRANGEMENT IS IMPLEMENTED, TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BASED ON THE APPROPRIATE COMPARABILITY DATA AND THE EXECUTIVE'S PERFORMANCE. (4) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT, CHIEF OPERATING & FINANCIAL OFFICER CHIEF INVESTMENT OFFICER SENIOR VICE PRESIDENT, CLINICAL RESEARCH EXECUTIVE VICE PRESIDENT & CHIEF SCIENTIFIC OFFICER EXECUTIVE VICE PRESIDENT & CHIEF MEDICAL OFFICER THE PROCESS WAS LAST UNDERTAKEN IN 2022 WITH RESPECT TO COMPENSATION TO BE PAID IN 2023 TO THE OFFICERS/KEY EMPLOYEES NAMED ABOVE.
FORM 990, PART VI, SECTION C, LINE 19 PUBLIC INSPECTION FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG. THE FOUNDATION'S GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE CYSTIC FIBROSIS FOUNDATION IN WRITING. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2023. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2023.
FORM 990, PART VI, LINE 10B: CYSTIC FIBROSIS FOUNDATION HAS NUMEROUS OFFICES LOCATED ACROSS THE U.S. WHICH ADHERE TO THE POLICIES AND PROCEDURES OF THE ORGANIZATION.
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 51056K
Schedule O (Form 990) 2023


Additional Data


Software ID:  
Software Version:  
SCHEDULE R
(Form 990)

Department of the Treasury
Internal Revenue Service
Related Organizations and Unrelated Partnerships
Complete if the organization answered "Yes" on Form 990, Part IV, line 33, 34, 35b, 36, or 37.
Attach to Form 990.
Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047
2023
Open to Public Inspection
Name of the organization
CYSTIC FIBROSIS FOUNDATION
 
Employer identification number

13-1930701
Part I
Identification of Disregarded Entities. Complete if the organization answered "Yes" on Form 990, Part IV, line 33.
(a)
Name, address, and EIN (if applicable) of disregarded entity


(b)
Primary activity


(c)
Legal domicile (state
or foreign country)

(d)
Total income


(e)
End-of-year assets


(f)
Direct controlling
entity











Part II
Identification of Related Tax-Exempt Organizations. Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related tax-exempt organizations during the tax year.
(a)
Name, address, and EIN of related organization


(b)
Primary activity


(c)
Legal domicile (state
or foreign country)

(d)
Exempt Code section


(e)
Public charity status
(if section 501(c)(3))

(f)
Direct controlling
entity

(g)
Section 512(b)(13) controlled entity?
Yes No
(1)CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC
4550 MONTGOMERY AVE STE 110

BETHESDA,MD20814
91-2059167
RESEARCH MD 501(C)(3) LINE 12A, I CFF
 
Yes
 












For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50135Y
Schedule R (Form 990) 2023
Schedule R (Form 990) 2023
Page 2
Part III
Identification of Related Organizations Taxable as a Partnership. Complete if the organization answered "Yes" on Form 990, Part IV, line 34, because it had one or more related organizations treated as a partnership during the tax year.
(a)
Name, address, and EIN of
related organization



(b)
Primary activity




(c)
Legal
domicile
(state or foreign
country)


(d)
Direct controlling
entity



(e)
Predominant income(related, unrelated, excluded from tax under sections 512-514)

(f)
Share of total income




(g)
Share of end-of-year
assets



(h)
Disproprtionate allocations?




(i)
Code V-UBI
amount in box 20 of
Schedule K-1
(Form 1065)
(j)
General or
managing
partner?



(k)
Percentage
ownership


Yes No Yes No
(1) NANTAHALA CAPITAL PARTNERS QR LP

130 MAIN ST 2ND FLOOR
NEW CANNAN,CT06840
INVESTMENTS CT  
EXCLUDED 9,285,933     No     No 100.000 %
(2) LF-CFF INCUBATOR FUND LP

800 BOYLSTON STREET SUITE 1555
BOSTON,MA02199
85-1584805
INVESTMENTS DE  
EXCLUDED -405,351 10,080,405   No     No 100.000 %
(3) AXAR QR OPPORTUNISTIC CREDIT FUND LP

402 W 13TH STREET 5TH FLOOR
NEW YORK,NY10014
INVESTMENTS DE  
EXCLUDED -77,274 5,922,726   No     No 99.190 %
(4) LONGWOOD - LF CFF INCUBATOR FND II

800 BOYLSTON STREET SUITE 1715
BOSTON,MA02199
87-3507143
INVESTMENTS DE  
EXCLUDED -643,337 178,337   No     No 100.000 %






Part IV
Identification of Related Organizations Taxable as a Corporation or Trust. Complete if the organization answered "Yes" on Form 990, Part IV, line 34 because it had one or more related organizations treated as a corporation or trust during the tax year.
(a)
Name, address, and EIN of
related organization
(b)
Primary activity
(c)
Legal
domicile
(state or foreign
country)
(d)
Direct controlling
entity
(e)
Type of entity
(C corp, S corp,
or trust)
(f)
Share of total income
(g)
Share of end-of-year
assets
(h)
Percentage
ownership
(i)
Section 512(b)(13) controlled entity?
Yes No
(1) CHARITABLE REMAINDER TRUST (2)

 
 
FIDUCIARY CA N/A
T         No
(2) CHARITABLE REMAINDER TRUST

 
 
FIDUCIARY TN N/A
T         No
(3) CHARITABLE REMAINDER TRUST

 
 
FIDUCIARY NM N/A
T         No
(4) PERPETUAL TRUST

 
 
FIDUCIARY MA N/A
T         No






Schedule R (Form 990) 2023
Schedule R (Form 990) 2023
Page 3
Part V
Transactions With Related Organizations. Complete if the organization answered "Yes" on Form 990, Part IV, line 34, 35b, or 36.
Note. Complete line 1 if any entity is listed in Parts II, III, or IV of this schedule.
Yes
No
1 During the tax year, did the orgranization engage in any of the following transactions with one or more related organizations listed in Parts II-IV?
a Receipt of (i) interest, (ii) annuities, (iii) royalties, or (iv) rent from a controlled entity .....................
1a
 
No
b Gift, grant, or capital contribution to related organization(s) ............................
1b
Yes
 
c Gift, grant, or capital contribution from related organization(s) ............................
1c
 
No
d Loans or loan guarantees to or for related organization(s) ............................
1d
 
No
e Loans or loan guarantees by related organization(s) ............................
1e
 
No
f Dividends from related organization(s) ............................
1f
 
No
g Sale of assets to related organization(s) ............................
1g
 
No
h Purchase of assets from related organization(s) ............................
1h
 
No
i Exchange of assets with related organization(s) ............................
1i
 
No
j Lease of facilities, equipment, or other assets to related organization(s) .......................
1j
 
No
k Lease of facilities, equipment, or other assets from related organization(s) ......................
1k
 
No
l Performance of services or membership or fundraising solicitations for related organization(s) .....................
1l
 
No
m Performance of services or membership or fundraising solicitations by related organization(s) .................
1m
 
No
n Sharing of facilities, equipment, mailing lists, or other assets with related organization(s) ...................
1n
 
No
o Sharing of paid employees with related organization(s) ............................
1o
 
No
p Reimbursement paid to related organization(s) for expenses ............................
1p
 
No
q Reimbursement paid by related organization(s) for expenses ............................
1q
 
No
r Other transfer of cash or property to related organization(s) ............................
1r
 
No
s Other transfer of cash or property from related organization(s) ............................
1s
Yes
 
2
If the answer to any of the above is "Yes," see the instructions for information on who must complete this line, including covered relationships and transaction thresholds.
(a)
Name of related organization
(b)
Transaction
type (a-s)
(c)
Amount involved
(d)
Method of determining amount involved
(1) AXAR QR OPPORTUNISTIC CREDIT FUND LP

B 6,000,000 CASH
(2) LF-CFF INCUBATOR FUND LP

B 2,975,416 CASH
(3) LF-CFF INCUBATOR FUND II LP

B 652,416 CASH
(4) NANTAHALA CAPITAL PARTNERS QR LP

S 15,374,156 FAIR MARKET VALUE
(5) NANTAHALA CAPITAL PARTNERS QR LP

S 15,119,959 CASH

Schedule R (Form 990) 2023
Schedule R (Form 990) 2023
Page 4
Part VI
Unrelated Organizations Taxable as a Partnership. Complete if the organization answered "Yes" on Form 990, Part IV, line 37.
Provide the following information for each entity taxed as a partnership through which the organization conducted more than five percent of its activities (measured by total assets or gross revenue) that was not a related organization. See instructions regarding exclusion for certain investment partnerships.
(a)
Name, address, and EIN of entity
(b)
Primary activity
(c)
Legal domicile
(state or foreign
country)
(d)
Predominant income (related, unrelated, excluded from tax under sections 512-514)

(e)
Are all partners
section
501(c)(3)
organizations?
(f)
Share of total income




(g)
Share of
end-of-year
assets
(h)
Disproprtionate allocations?
(i)
Code V-UBI
amount in box 20
of Schedule K-1
(Form 1065)
(j)
General or
managing
partner?
(k)
Percentage
ownership


Yes No Yes No Yes No






























Schedule R (Form 990) 2023
Schedule R (Form 990) 2023
Page 5
Part VII
Supplemental Information
Provide additional information for responses to questions on Schedule R. See instructions.
Return Reference Explanation
Schedule R (Form 990) 2023

Additional Data


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