Attach to Form 990 or Form 990-EZ.
Go to
www.irs.gov/Form990 for instructions and the latest information.
| (i) Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 10 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
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Total |
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Calendar year
(or fiscal year beginning in)
![]() |
(a) 2019 | (b) 2020 | (c) 2021 | (d) 2022 | (e) 2023 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. | 91,485 | 96,278 | 185,646 | 81,186 | 55,309 | 509,904 |
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf .... | ||||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 4 | Total. Add lines 1 through 3 | 91,485 | 96,278 | 185,646 | 81,186 | 55,309 | 509,904 |
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f) .. | 106,223 | |||||
| 6 | Public support. Subtract line 5 from line 4. | 403,681 | |||||
Calendar year
(or fiscal year beginning in)
![]() |
(a) 2019 | (b) 2020 | (c) 2021 | (d) 2022 | (e) 2023 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | 91,485 | 96,278 | 185,646 | 81,186 | 55,309 | 509,904 |
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | 2,898 | 2,322 | 2,323 | 2,073 | 9,927 | 19,543 |
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | ||||||
| 11 | Total support. Add lines 7 through 10 | 529,597 | |||||
Calendar year (or fiscal
year beginning in) ![]() |
(a) 2019 | (b) 2020 | (c) 2021 | (d) 2022 | (e) 2023 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | ||||||
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose | ||||||
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513 ..... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge | ||||||
| 6 | Total. Add lines 1 through 5 | ||||||
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | ||||||
Calendar year
(or fiscal year beginning in)
![]() |
(a) 2019 | (b) 2020 | (c) 2021 | (d) 2022 | (e) 2023 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | ||||||
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | ||||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included on line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | ||||||
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
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| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by 0.035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | 1 | |
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
2 | |
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | 3 | |
| 4 Amounts paid to acquire exempt-use assets | 4 | |
| 5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI) | 5 | |
| 6 Other distributions (describe in Part VI). See instructions | 6 | |
| 7Total annual distributions. Add lines 1 through 6. | 7 | |
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
8 | |
| 9 Distributable amount for 2023 from Section C, line 6 | 9 | |
| 10 Line 8 amount divided by Line 9 amount | 10 | |
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2023 |
(iii) Distributable Amount for 2023 |
|
|---|---|---|---|---|
| 1 Distributable amount for 2023 from Section C, line 6 | ||||
|
2
Underdistributions, if any, for years prior to 2023 (reasonable cause required-- explain in Part VI).
See instructions. |
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| 3 Excess distributions carryover, if any, to 2023: | ||||
| a From 2018....... | ||||
| b From 2019....... | ||||
| c From 2020....... | ||||
| d From 2021....... | ||||
| e From 2022....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2023 distributable amount | ||||
|
i
Carryover from 2018 not applied (see instructions) |
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| j Remainder. Subtract lines 3g, 3h, and 3i from line 3f. | ||||
| 4Distributions for 2023 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2023 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from line 4. | ||||
|
5
Remaining underdistributions for years prior to 2023, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
6
Remaining underdistributions for 2023. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions. |
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7 Excess distributions carryover to 2024. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a Excess from 2019..... | ||||
| b Excess from 2020..... | ||||
| c Excess from 2021..... | ||||
| d Excess from 2022..... | ||||
| e Excess from 2023..... | ||||
| Facts And Circumstances Test |
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| Return Reference | Explanation |
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| Software ID: | |
| Software Version: |
| Return Reference | Explanation |
|---|---|
| FORM 990-EZ, PART I, LINE 16 | EXPENSES SUPPLIES 106 SUPPLIES 67 WEBSITE & INTERNET 6,450 WEBSITE/INTERNET 2,192 TRAVEL EXPENSE 8 INSURANCE EXPENSE 823 LICENSE & ANNUAL FEES 128 TELEPHONE 1,084 CREDIT CARD PROCESSING 1,323 TOTAL 12,181 |
| FORM 990-EZ, PART I, LINE 20 | UNREALIZED GAIN ON INVESTMENTS 1,777 UNREALIZED LOSS ON STOCKS -421 |
| FORM 990-EZ, PART II, LINE 24 | 12,310 12,310 LESS ACCUMULATED DEPRECIATION 12,310 12,310 6,075 6,075 LESS ACCUMULATED AMORTIZATION 6,075 6,075 TOTAL 0 0 |
| FORM 990-EZ, PART II, LINE 26 | ACCOUNTS PAYABLE AND ACCRUED EXPENSES 3,348 1,577 |
| FORM 990-EZ, PART III | TO PROVIDE EDUCATIONAL AND SUPPORT PROGRAMS TO THOSE BORN WITH A GENETIC DISORDER CALLED ANIRIDIA SYNDROME, WHICH DUE TO UNDERDEVELOPED EYE STRUCTURES RENDERS THE CHILD TO LIVE LIFE WITH LOW VISION OR BLINDNESS AND OTHER MEDICAL CONDITIONS. THE MEDICAL CONFERENCES PROVIDES ALL ASPECTS: EDUCATION, CRITICAL SUPPORT AND OPPORTUNITIES TO BE SEEN BY EXPERT OPHTHALMOLOGISTS WHO VOLUNTEER THEIR TIME. IT ALSO GIVES PHYSICIANS AND RESEARCHERS QUALITY TIME TO DISCUSS AND BRAINSTORM IN EFFORTS TO WORK TOGETHER. ANIRIDIA FOUNDATION INTERNATIONAL (AFI) ALSO FUNDS ANIRIDIA RESEARCH AND PROVIDES IMPORTANT DATA TO RESEARCHERS IN HOPES THAT ADVANCING RESEARCH WILL IMPROVE THEIR QUALITY OF LIFE UNTIL THERE IS A CURE. ANIRIDIA SYNDROME IS COMPRISED OF CONDITIONS WHICH CAN CAUSE FURTHER LOSS OF VISION AND MEDICAL CONDITIONS ANYTIME FROM BIRTH ONWARD. THOSE WITH THIS GENETIC DISORDER STRUGGLE WITH DIFFICULT TO CONTROL GLAUCOMA, CHILDHOOD CATARACTS, CORNEAL SCARRING, RETINAL DETACHMENTS OR ANIRIDIA FIBROSIS SYNDROME. MEDICALLY, SOME LIVE WITH METABOLISM ISSUES, INSULIN RESISTANCE / DIABETES, AND AUTISM SPECTRUM DISORDERS AS THE GENE IS RESPONSIBLE FOR DEVELOPMENT AND MAINTENANCE OF THE EYES, THE PANCREAS, CENTRAL NERVOUS SYSTEM, PARTS OF THE BRAIN, THE OLFACTORY SYSTEM AND POSSIBLY MORE. WHILE THESE CONDITIONS ARE ALSO FOUND IN THE GENERAL POPULATION, IT IS UNCOMMON FOR MOST IF NOT ALL OF THEM TO BE FOUND IN ONE SINGLE CHILD OR ADULT. AFI SEEKS TO DELVE MORE INTO THIS RESEARCH AREA WITH THE HELP OF OUR MEDICAL AND SCIENTIFIC ADVISORY COUNCIL, THROUGH THE RESERACH PROGRAM OF THE AFI MEDICAL REGISTRY, TO CONTINUE TO FUND VARIOUS RESEARCH AREAS RELATED TO ANIRIDIA SYNDROME AND CO-FUND RESEARCH WITH OTHER VISION ORGANIZATIONS. |
| FORM 990-EZ, PART III, LINE 28 | AFI "MAKE A MIRACLE" CONFERENCES, EDUCATIONAL AND SUPPORT PROGRAMS: THE AFI "MAKE A MIRACLE" EDUCATIONAL CONFERENCES ARE UNIQUE. FOR THOSE WITH ANIRIDIA SYNDROME, WE BRING IN TOP PHYSICIANS AND RESEARCHERS TO PRESENT TO THE FAMILIES AND INDIVIDUALS WITH ANIRIDIA THE LATEST INFORMATION ABOUT THEIR GENETIC DISORDER. THESE PROFESSIONALS ALSO HAVE MEETINGS OF THEIR OWN TO DISCUSS, SHARE AND BRAINSTORM AS THEY TYPICALLY ATTEND THEIR OWN MEDICAL OR SCIENTIFIC MEETINGS AND DO NOT INTERACT PHYSICALLY. THIS CONFERENCE GIVES THEM THAT OPPORTUNITY. AFTER THE MEDICAL AND SCIENTIFIC PRESENTATIONS END THERE IS SUPPORT, NETWORKING AND DISCUSSION GROUPS FOR THOSE AFFECTED. AT SOME OF THE CONFERENCES, WE PROVIDE A FREE "SEE THE EXPERTS" EYE CLINIC IN WHICH VARIOUS MEMBERS OF OUR AFI MEDICAL ADVISORY COUNCIL VOLUNTEER THEIR TIME TO EXAMINE AND PROVIDE CRITICAL KNOWLEDGEABLE CARE FOR THOSE WITH ANIRIDIA SYNDROME. OVER THE YEARS THIS HAS SAVED A MANY PEOPLE'S VISION AS THEIR PROBLEMS WERE NOT DIAGNOSED OR PROPERLY TREATED BY THEIR LOCAL DOCTORS WHO WERE NOT AWARE OF CURRENT ANIRIDIA SYNDROME ISSUES. WHILE THE PARENTS ARE LISTENING TO THE PROFESSIONAL'S PRESENTATIONS, WE HAVE A CHILD CARE AND TEEN PROGRAM WHEE THEY HAVE FUN, LEARN IMPORTANT COPING SKILLS AND MEET THEIR PEERS WHO ALSO HAVE ANIRIDIA SYNDROME MAKING LIFE LONG FRIENDSHIPS AND SUPPORT SYSTEMS. OUR PARENT SUPPORT DISCUSSIONS ARE HELPFUL BECAUSE HAVING A CHILD OR CHILDREN WITH THIS INHERITED GENETIC DISORDER CAN BE EMOTIONALLY AND FINANCIALLY DRAINING. IT ALWAYS HELPS TO HAVE SOMEONE WHO HAS WALKED IN YOUR SHOES THERE TO UNDERSTAND. ONE OF OUR NEWER PROGRAMS IS THE CHRIS ALBRECHT HOPE FUND. "HOPE" STANDS FOR HELPING OTHER PEOPLE, WHICH IS PART OF AFI'S MISSION TO HELP THOSE IN NEED THROUGH VARIOUS WAYS. THE BOOK "ANIRIDIA AND WAGR SYNDROME: A GUIDE FOR PATIENTS AND THEIR FAMILIES IS ONE OF THE EDUCATIONAL TOOLS WE OFFER TO THOSE WANTING ANSWERS AND HOPE. ALONG WITH A WEBSITE, FACEBOOK AND TWITTER PRESENCE, WE WILL BE OPENING A PRIVATE DISCUSSION AREA SO THOSE AFFECTED CAN SHARE MORE PRIVATELY ABOUT THEIR PERSONAL EXPERIENCES OR ISSUES AMONGST THEMSELVES TO FIND ANSWERS AND SUPPORT. VARIOUS VOLUNTEERS OFFER SPECIAL COUNSELING FROM CAREER BASED AREAS AND THOSE WHO HAVE LIVED WITH ANIRIDIA THEMSELVES. AFI ALSO HELPS THOSE AFFECTED WHO ARE IN NEED BY PAYING FOR THEIR GENETIC TESTING (PAX6 SEQUENCING) WHICH CAN BE VERY EXPENSIVE EVEN WITH INSURANCE. THIS INFORMAITON WILL BECOME MORE IMPORTANT AS THE MEDICAL AND RESEARCH COMMUNITY MOVE TOWARDS TREATMENTS AND HOPEFULLY A CURE THROUGH GENETICS. KNOWING WHAT YOUR MUTATION RELATED TO ANIRIDIA IS WILL BENEFIT THOSE WE HELP AND EVEN MORE SO IN THE FUTURE. |
| FORM 990-EZ, PART III, LINE 29 | PROFESSIONAL AND PUBLIC AWARENESS AND LEARNING AFI COLLABORATES WITH THE MEDICAL AND RESEARCH COMMUNITY AND SPREADS AWARENESSS. THE DIRECTOR / FOUNDER OF AFI IS AN INTERNATIONALLY KNOWN INVITED GUEST SPEAKER AT MEDICAL, SCIENTIFIC AND VISION RELATED MEETINGS EDUCATING AND PROMOTING ANIRIDIA SYNDROME. SHE IS AN ACCOMPLISHED AUTHOR ON THIS GENETIC DISORDER AND HAS CREATED AWARENESS THROUGH NETWORKING AT THESE MEETINGS. |
| FORM 990-EZ, PART III, LINE 30 | RESEARCH AFI HAS BEEN A LEADER IN FACILITATING ANIRIDIA SYNDROME RESEARCH THROUGH TWO AVENUES: 1. PROVIDING FUNDING FOR VARIOUS ANIRIDIA RELATED RESEARCH STUDIES EITHER AS SOLE FUNDERS OR AS CO-FUNDERS PARTNERING WITH OTHER VISION ORGANIZATIONS. 2. COLLECTING IMPORTANT HUMAN DATA FROM THOSE WITH ANIRIDIA SYNDROME WHO VOLUNTARILY PROVIDE THEIR DATA AS THEY WISH TO HELP WORK TOWARDS BETTER TREATMENTS TO RETAIN VISION AND A CURE. THE AFI MEDICAL REGISTRY PROGRAM ACCEPTS DATA FROM THEM AND THEN IT IS DE-IDENTIFIED BEFORE RESEARCHERS RECEIVE THIS DATA. RESEARCHERS WHO WISH TO HAVE THIS HUMAN DATA TO COMPARE TO THEIR ANIMAL MODELS MUST GO THROUGH A VETTING PROCESS INVOLVING OPINIONS FROM OUR MEDICAL AND SCIENTIFIC ADVISORS. |
| FORM 990-EZ, PART III, LINE 31 | THE CHRIS ALBRECHT HOPE (HELPING OTHER PEOPLE) FUND IS AN APPLICATION "BASED ON FINANCIAL NEED" TO HELP THOSE WITH ANIRIDIA SYNDROME IN VARIOUS WAYS FROM NON-MEDICAL TO MEDICAL ASSISTANCE, INCLUDING MENTAL HEALTH LEVELS OF SUPPORT. |
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| Software Version: |