Attach to Form 990 or Form 990-EZ.
Go to
www.irs.gov/Form990 for instructions and the latest information.
| (i) Name of supported organization | (ii) EIN | (iii) Type of organization (described on lines 1- 10 above (see instructions)) | (iv) Is the organization listed in your governing document? | (v) Amount of monetary support (see instructions) | (vi) Amount of other support (see instructions) | |
|---|---|---|---|---|---|---|
| Yes | No | |||||
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Total |
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Calendar year
(or fiscal year beginning in)
![]() |
(a) 2020 | (b) 2021 | (c) 2022 | (d) 2023 | (e) 2024 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. | 655,945 | 688,436 | 896,701 | 849,639 | 1,080,382 | 4,171,103 |
| 2 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf .... | ||||||
| 3 | The value of services or facilities furnished by a governmental unit to the organization without charge.. | ||||||
| 4 | Total. Add lines 1 through 3 | 655,945 | 688,436 | 896,701 | 849,639 | 1,080,382 | 4,171,103 |
| 5 | The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f) .. | 908,706 | |||||
| 6 | Public support. Subtract line 5 from line 4. | 3,262,397 | |||||
Calendar year
(or fiscal year beginning in)
![]() |
(a) 2020 | (b) 2021 | (c) 2022 | (d) 2023 | (e) 2024 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 7 | Amounts from line 4.. | 655,945 | 688,436 | 896,701 | 849,639 | 1,080,382 | 4,171,103 |
| 8 | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... | 1,079 | 358 | 2,160 | 75,892 | 39,143 | 118,632 |
| 9 | Net income from unrelated business activities, whether or not the business is regularly carried on.. | ||||||
| 10 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.).. | 458 | 458 | ||||
| 11 | Total support. Add lines 7 through 10 | 4,290,193 | |||||
Calendar year (or fiscal
year beginning in) ![]() |
(a) 2020 | (b) 2021 | (c) 2022 | (d) 2023 | (e) 2024 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 1 | Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") . | ||||||
| 2 | Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose | ||||||
| 3 | Gross receipts from activities that are not an unrelated trade or business under section 513 ..... | ||||||
| 4 | Tax revenues levied for the organization's benefit and either paid to or expended on its behalf... | ||||||
| 5 | The value of services or facilities furnished by a governmental unit to the organization without charge | ||||||
| 6 | Total. Add lines 1 through 5 | ||||||
| 7a | Amounts included on lines 1, 2, and 3 received from disqualified persons | ||||||
| b | Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year. | ||||||
| c | Add lines 7a and 7b.. | ||||||
| 8 | Public support. (Subtract line 7c from line 6.) | ||||||
Calendar year
(or fiscal year beginning in)
![]() |
(a) 2020 | (b) 2021 | (c) 2022 | (d) 2023 | (e) 2024 | (f) Total | |
|---|---|---|---|---|---|---|---|
| 9 | Amounts from line 6... | ||||||
| 10a | Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources.. | ||||||
| b | Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975. | ||||||
| c | Add lines 10a and 10b. | ||||||
| 11 | Net income from unrelated business activities not included on line 10b, whether or not the business is regularly carried on. | ||||||
| 12 | Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) .. | ||||||
| 13 | Total support. (Add lines 9, 10c, 11, and 12.).. | ||||||
| Section A - Adjusted Net Income | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Net short-term capital gain | 1 | ||||
| 2 | Recoveries of prior-year distributions | 2 | ||||
| 3 | Other gross income (see instructions) | 3 | ||||
| 4 | Add lines 1 through 3 | 4 | ||||
| 5 | Depreciation and depletion | 5 | ||||
| 6 | Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) | 6 | ||||
| 7 | Other expenses (see instructions) | 7 | ||||
| 8 | Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) | 8 | ||||
| Section B - Minimum Asset Amount | (A) Prior Year |
(B) Current Year (optional) |
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| 1 | Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): | 1 | ||||
| a | Average monthly value of securities | 1a | ||||
| b | Average monthly cash balances | 1b | ||||
| c | Fair market value of other non-exempt-use assets | 1c | ||||
| d | Total (add lines 1a, 1b, and 1c) | 1d | ||||
| e |
Discount claimed for blockage or other factors (explain in detail in Part VI): |
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| 2 | Acquisition indebtedness applicable to non-exempt use assets | 2 | ||||
| 3 | Subtract line 2 from line 1d | 3 | ||||
| 4 | Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions). | 4 | ||||
| 5 | Net value of non-exempt-use assets (subtract line 4 from line 3) | 5 | ||||
| 6 | Multiply line 5 by 0.035 | 6 | ||||
| 7 | Recoveries of prior-year distributions | 7 | ||||
| 8 | Minimum Asset Amount (add line 7 to line 6) | 8 | ||||
| Section C - Distributable Amount | Current Year | |||||
| 1 | Adjusted net income for prior year (from Section A, line 8, Column A) | 1 | ||||
| 2 | Enter 85% of line 1 | 2 | ||||
| 3 | Minimum asset amount for prior year (from Section B, line 8, Column A) | 3 | ||||
| 4 | Enter greater of line 2 or line 3 | 4 | ||||
| 5 | Income tax imposed in prior year | 5 | ||||
| 6 | Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) | 6 | ||||
| Section D - Distributions | Current Year | |
|---|---|---|
| 1 Amounts paid to supported organizations to accomplish exempt purposes | 1 | |
|
2
Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity |
2 | |
| 3 Administrative expenses paid to accomplish exempt purposes of supported organizations | 3 | |
| 4 Amounts paid to acquire exempt-use assets | 4 | |
| 5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI) | 5 | |
| 6 Other distributions (describe in Part VI). See instructions | 6 | |
| 7Total annual distributions. Add lines 1 through 6. | 7 | |
|
8
Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions |
8 | |
| 9 Distributable amount for 2024 from Section C, line 6 | 9 | |
| 10 Line 8 amount divided by Line 9 amount | 10 | |
| Section E - Distribution Allocations (see instructions) |
(i) Excess Distributions |
(ii) Underdistributions Pre-2024 |
(iii) Distributable Amount for 2024 |
|
|---|---|---|---|---|
| 1 Distributable amount for 2024 from Section C, line 6 | ||||
|
2
Underdistributions, if any, for years prior to 2024 (reasonable cause required-- explain in Part VI).
See instructions. |
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| 3 Excess distributions carryover, if any, to 2024: | ||||
| a From 2019....... | ||||
| b From 2020....... | ||||
| c From 2021....... | ||||
| d From 2022....... | ||||
| e From 2023....... | ||||
| fTotal of lines 3a through e | ||||
| g Applied to underdistributions of prior years | ||||
| h Applied to 2024 distributable amount | ||||
|
i
Carryover from 2019 not applied (see instructions) |
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| j Remainder. Subtract lines 3g, 3h, and 3i from line 3f. | ||||
| 4Distributions for 2024 from Section D, line 7: | ||||
| $ | ||||
| a Applied to underdistributions of prior years | ||||
| b Applied to 2024 distributable amount | ||||
| c Remainder. Subtract lines 4a and 4b from line 4. | ||||
|
5
Remaining underdistributions for years prior to 2024, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions. |
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|
6
Remaining underdistributions for 2024. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions. |
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7 Excess distributions carryover to 2025. Add lines 3j and 4c. |
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| 8 Breakdown of line 7: | ||||
| a Excess from 2020..... | ||||
| b Excess from 2021..... | ||||
| c Excess from 2022..... | ||||
| d Excess from 2023..... | ||||
| e Excess from 2024..... | ||||
| Facts And Circumstances Test |
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| Return Reference | Explanation |
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| PART II, LINE 10 | MISCELLANEOUS 458 |
| Software ID: | |
| Software Version: |
| Return Reference | Explanation |
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| FORM 990 - ORGANIZATION'S MISSION | THE MISSION OF COURAGEOUS PARENTS NETWORK IS TO SUPPORT PARENTS AND FAMILIES OF CHILDREN LIVING WITH LIFELIMITING ILLNESS WITH THE TOOLS THEY NEED AS THEY ADJUST TO THE PROGNOSIS AND THEN WHEN THEY CONTEMPLATE THEIR CHILDS TRANSITION TO ENDOFLIFE. |
| FORM 990, PAGE 2, PART III, LINE 4A | COURAGEOUS PARENTS NETWORK IS RECOGNIZED BY CLINICIANS, PATIENT GROUPS AND INDUSTRY AS A TRUSTED AUTHORITY AND THOUGHT LEADER-PARTNER REPRESENTING THE LIVED EXPERIENCE AND NEEDS OF FAMILIES CARING FOR A CHILD WITH A SERIOUS MEDICAL CONDITION. HIGHLIGHTS FOR 2024 INCLUDE COLLABORATIONS WITH: RONALD MCDONALD HOUSE CHARITIES 2024 BROUGHT NEW OPPORTUNITIES FOR PARTNERING WITH RONALD MCDONALD HOUSE CHARITIES (RMHC). IN JANUARY, CPN DIRECTOR OF CLINICIAN ENGAGEMENT AND OUTREACHDR. CHRISSY SALLEY AND PARENT CHAMPIONS EMILY CALLAWAY AND PARVATHY RAMAN PRESENTED A WEBINAR ON PEDIATRIC PALLIATIVE CARE TO RMHC STAFF AND VOLUNTEERS. CHRISSY AND PARENT CHAMPION ASHLEY WADDELL TINGSTAD ALSO PRESENTED AT THE RMHC INTERNATIONAL CONFERENCE IN JULY, 2024, WHERE THEY DISCUSSED HOW RONALD MCDONALD HOUSE STAFF AND VOLUNTEERS, IN THEIR VITAL ROLE AS SUPPORT TO FAMILIES, CAN EMPOWER THE CAREGIVERS WHO STAY WITH THEM DURING THEIR CHILD'S ILLNESS. THEN, IN DECEMBER, CHRISSY WAS JOINED BY PARENTS LINDSEY TOPPING, NAOMI WILLIAMS, CAROLINE MENZIA AND AMY GRAVER TO PRESENT A WEBINAR ON COMMUNICATING WITH PARENTS OF CHILDREN WITH MEDICAL COMPLEXITY. STANFORD MEDICINE CPN WORKS WITH THE QUALITY OF LIFE AND PEDIATRIC PALLIATIVE CARE TEAM (QOLA PROGRAM) AT STANFORD MEDICINE UNDER THE LEADERSHIP OF DR. CLAIRE WAKEFIELD TO EXPLORE CLINICIAN AND PARENT PERSPECTIVES ON NEUROJOURNEY. STANFORD'S FORTHCOMING QUALITATIVE RESEARCH STUDY WILL RESULT IN DATA TO HELP CPN AND CLINICIANS BETTER UNDERSTAND THE IMPACT OF NEUROJOURNEY IN CLINICAL SETTINGS, AND PROVIDE INSIGHT INTO AREAS OF STRENGTH AND OPPORTUNITIES FOR IMPROVEMENT. AMERICAN ACADEMY OF PEDIATRICS SECTION ON HOSPICE AND PALLIATIVE MEDICINE COURAGEOUS PARENTS NETWORK CONTINUED OUR FORMAL LIAISON RELATIONSHIP WITH THE AMERICAN ACADEMY OF PEDIATRICS SECTION ON HOSPICE AND PALLIATIVE MEDICINE (SOHPM). ITS REPRESENTATIVE, LIZ MORRIS, SHARED KNOWLEDGE AND PERSPECTIVES REGARDING THE PATIENT AND FAMILY EXPERIENCE AT MONTHLY EXECUTIVE COMMITTEE MEETINGS AND ANNUAL PLANNING SESSIONS. LIZ ALSO SERVED AS A CO-AUTHOR FOR SOHPM'S UPDATED PEDIATRIC PALLIATIVE CARE POLICY STATEMENT IN PROCESS. UPDATES TO THIS STATEMENT WILL PROVIDE CONCRETE GUIDANCE TO ALL PEDIATRIC PROVIDERS REGARDING EVIDENCE-BASED APPROACHES TO PROVIDING PALLIATIVE INFORMED CARE. FURTHER, LIZ HELPED IDENTIFY PARENT VOICES FROM WITHIN THE NETWORK TO OFFER FAMILY EXPERTISE TO THE GROWING FIELD OF PEDIATRIC PALLIATIVE CARE. ALSO, CPN PARENT CHAMPION ASHLEY WADDELL TINGSTAD PRESENTED AT THE 2024 AAP NATIONAL CONFERENCE & EXHIBITION ON "WHEN DECISIONS CAN'T BE SHARED: SUPPORTING BIRTHING FAMILIES THROUGH LIMITED OPTIONS." FINALLY, CPN FAMILIES HAVE BEEN FEATURED IN A STANDING PARENT COLUMN IN THE SOHPM QUARTERLY PERSPECTIVES PUBLICATION, WHICH REACHES APPROXIMATELY 1,700 INDIVIDUALS THROUGH THE SOHPM LISTSERV FOR CLINICIANS AND OTHER AFFILIATED PROVIDERS. COURAGEOUS PROVIDER AWARD THE COURAGEOUS PROVIDER AWARD ANNUALLY RECOGNIZES CLINICIANS PROVIDING EXCEPTIONAL FAMILY-CENTERED CARE IN CIRCUMSTANCES OF SERIOUS CHILDHOOD ILLNESS. NOMINEES MUST DEMONSTRATE EXCELLENCE IN ENGAGING WITH PATIENTS, PARENTS OR OTHER CAREGIVERS, AND/OR OTHER PEDIATRIC SPECIALISTS IN A HOLISTIC, MULTIDISCIPLINARY APPROACH TO CARE. THEY MUST DEMONSTRATE QUALITIES OF COMPASSION, TENACITY AND EMPATHY IN JOURNEYING WITH CHILDREN AND THEIR FAMILIES. THE 2024 COURAGEOUS PROVIDER AWARD WAS MADE POSSIBLE WITH FUNDING FROM THE ILENE BEAL CHARITABLE FOUNDATION. TWO CLINICIANS WERE RECOGNIZED: CAROL MAY, RN, MSN, MBA, CHPPN, UPMC CHILDREN'S HOSPITAL OF PITTSBURGH ZEENA AUDI-SABA, MD HASSENFELD CHILDREN'S HOSPITAL, NYU LANGONE HEALTH NEUROJOURNEY COURAGEOUS PARENTS NETWORK LAUNCHED NEUROJOURNEY IN SPANISH (TEXT AND AUDIO). THROUGH THIS AND FORTHCOMING TRANSLATIONS, WE AFFIRM OUR COMMITMENT TO INCLUSIVITY AND ACCESSIBILITY, ENSURING THAT MORE FAMILIES CAN FIND COMMUNITY AND EMPOWERMENT ALONG THEIR JOURNEY. SPANISH TRANSLATION WAS MADE POSSIBLE THANKS TO GENEROUS SUPPORT FROM SANOFI AND STANFORD MEDICINE. IN THE ROOM LIVE-STREAMED EVENTS IN 2024, CPN HOSTED ELEVEN LIVE-STREAMED IN THE ROOM EVENTS EXPLORING PRESSING ISSUES FACED BY PARENTS AND THE CLINICIANS WHO SUPPORT THEIR FAMILIES. MORE THAN 1,000 PARTICIPANTS REGISTERED FOR THESE PROGRAMS. A SPECIAL SESSION INTRODUCED THE FACES BEHIND COURAGEOUS PARENTS NETWORK TOGETHER WITH PARENTS AND PROVIDERS WHO REFLECTED ON THEIR SHARED JOURNEY IN CELEBRATION OF CPN'S 10 YEARS. OTHER METRICS IN 2024, COURAGEOUS PARENTS NETWORK HAD: 60,500 UNIQUE VISITORS TO ITS DIGITAL PLATFORM 140,132 PAGE VIEWS ON ITS DIGITAL PLATFORM 210,580 VIDEO VIEWS 4400 FAMILY MEMBERS 3876 CLINICIAN MEMBERS 37,000 CLINICIANS AND PARENTS REACHED IN LIVE PRESENTATIONS AND GRAND ROUNDS |
| FORM 990, PAGE 6, PART VI, LINE 11B | THE FORM 990 AND STATE INFORMATION RETURN IS DISTRIBUTED TO THE BOARD, WHO REVIEWS AND APPROVES GIVES ITS APPROVAL TO FILE. |
| FORM 990, PAGE 6, PART VI, LINE 15A | COMPENSATION IS SET BY BOARD OF DIRECTORS. ENTIRE BOARD REVIEWED A COMPARATIVE STUDY OF COMPENSATION PACKAGES OF NON-PROFIT ORGANIZATIONS IN NEW ENGLAND AND APPROVED THE PACKAGE. |
| FORM 990, PAGE 6, PART VI, LINE 15B | COMPENSATION IS SET BY BOARD OF DIRECTORS. ENTIRE BOARD REVIEWED A COMPARATIVE STUDY OF COMPENSATION PACKAGES OF NON-PROFIT ORGANIZATIONS IN NEW ENGLAND AND APPROVED THE PACKAGE. |
| FORM 990, PAGE 6, PART VI, LINE 19 | GOVERNING DOCUMENTS, CONFLICT OF INTEREST, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. NO REQUESTS WERE RECEIVED DURING THE YEAR. |
| FORM 990, PART IX, LINE 11G | CONTENT DEVELOPMENT ADVISORS 166,624 0 3,281 MARKETING 99,297 0 0 STRATEGIC ADVISORS 68,700 27,500 0 DATA ANALYTICS 28,000 0 0 OTHER CONTRACT SERVICES 4,600 1,629 0 TOTAL 367,221 29,129 3,281 |
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| Software Version: |