TY 2024 Form 990

(A) Name and title	(B) Average hours per week (list any hours for related organizations below dotted line)	(C) Position (do not check more than one box, unless person is both an officer and a director/trustee)	(E) Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC)
(1) MICHAEL P BOYLE MD...................................................................... PRESIDENT & CEO	40.0 ................. 1.0	X	X	1,054,388	220,763
(2) CAROLE B GRIEGO MD...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(3) DAVID A MOUNT...................................................................... TREASURER	5.0 ................. 0.0	X		0	0
(4) DODZIE SOGAH PHD...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(5) DOMINIC J CARUSO...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(6) ELISE EBERWEIN...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(7) ERIC R OLSON PHD...................................................................... VICE CHAIR	5.0 ................. 0.0	X		0	0
(8) ERIC SCHNEIDER MD...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(9) JESSICA H BOYD MD...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(10) JOHN S WEINBERG...................................................................... EXECUTIVE VICE CHAIR	5.0 ................. 0.0	X		0	0
(11) KATE O'DONNELL...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(12) KC BRYAN WHITE...................................................................... CHAIR	8.0 ................. 0.0	X		0	0
(13) LOUIS A DEFALCO...................................................................... VICE CHAIR	5.0 ................. 0.0	X		0	0
(14) PAUL A MOTENKO...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(15) ROBERT H NIEHAUS...................................................................... VICE CHAIR	5.0 ................. 0.0	X		0	0
(16) STEVEN SHAK MD...................................................................... TRUSTEE	3.0 ................. 0.0	X		0	0
(17) TERESA L ELDER...................................................................... VICE CHAIR	5.0 ................. 0.0	X		0	0

(A) Name and title	(B) Average hours per week (list any hours for related organizations below dotted line)	(E) Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC)	(F) Estimated amount of other compensation from the organization and related organizations
(18) IRENA BARISIC........................................................................ EVP & CHIEF OPERATING & FINANCIAL OFFICER	40.0 .......................1.0	X			761,939	0	82,616
(19) MICHAEL B CAVADEL........................................................................ SVP, CHIEF LEGAL OFFICER	40.0 .......................0.0	X			558,135	0	103,062
(20) ALBERT FARO MD........................................................................ Chief Medical Officer Beg. 7/1/2024	40.0 .......................0.0		X		571,672	0	99,918
(21) BRUCE MARSHALL MD........................................................................ Chief Medical Officer Ending 7/1/2024	40.0 .......................0.0		X		515,472	0	34,656
(22) JOHN C MAHLER JR MD........................................................................ CHIEF INVESTMENT OFFICER	40.0 .......................0.0		X		1,866,868	0	75,759
(23) JOHN P CLANCY MD........................................................................ SVP, CLINICAL RESEARCH	40.0 .......................0.0		X		669,826	0	95,378
(24) STEVEn ROWE MD........................................................................ EVP, Chief Scientific Officer	32.0 .......................0.0		X		534,655	0	132,551
(25) ANDREW LEWIS........................................................................ MANAGING DIRECTOR, INVESTMENTS	40.0 .......................0.0			X	1,363,454	0	38,260
(26) EARL A LEE........................................................................ MANAGING DIRECTOR, INVESTMENTS	40.0 .......................0.0			X	1,226,269	0	368,483
(27) ENRIQUE LIN SHIAO PHD........................................................................ Principal of Mission Related Investments	40.0 .......................0.0			X	507,691	0	81,951
(28) ERIC KOEHRSEN........................................................................ MANAGING DIRECTOR, INVESTMENTS	40.0 .......................0.0			X	976,105	0	304,602
(29) GENTIANA S AROVAS........................................................................ MANAGING DIRECTOR, INVESTMENTS OPERATIONS	40.0 .......................0.0			X	642,532	0	177,127

(A) Name and business address	(B) Description of services	(C) Compensation
VERTEX PHARMACEUTICALS INC 50 NORTHERN AVE BOSTON,MA02210	CONTRACTED RESEARCH	12,500,000
Prime Medicine Inc 21 Erie Street Cambridge,MA02139	Contracted Research	6,000,000
ANAGRAM THERAPEUTICS INC 10 SPEEN ST STE 302 FRAMINGHAM,MA01701	CONTRACTED RESEARCH	5,500,000
PIONEERING MEDICINE (CF) LLC 55 CAMBRIDGE PKWY STE 800E CAMBRIDGE,MA02142	CONTRACTED RESEARCH	5,211,571
Slalom LLC 821 2ND AVE SUITE 1900 SEATTLE,WA98104	Technology Consulting	3,656,673
2 Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization 125

- TIN:

SCHEDULE A
(Form 990)

Department of the Treasury
Internal Revenue Service

Public Charity Status and Public Support

Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
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Attach to Form 990 or Form 990-EZ.
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Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2024

Open to Public
Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Reason for Public Charity Status (All organizations must complete this part.) See instructions.

The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)

A church, convention of churches, or association of churches described in section 170(b)(1)(A)(i).

A school described in section 170(b)(1)(A)(ii). (Attach Schedule E (Form 990).)

A hospital or a cooperative hospital service organization described in section 170(b)(1)(A)(iii).

A medical research organization operated in conjunction with a hospital described in section 170(b)(1)(A)(iii). Enter the hospital's name, city, and state:

An organization operated for the benefit of a college or university owned or operated by a governmental unit described in section 170(b)(1)(A)(iv). (Complete Part II.)

A federal, state, or local government or governmental unit described in section 170(b)(1)(A)(v).

An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi). (Complete Part II.)

A community trust described in section 170(b)(1)(A)(vi). (Complete Part II.)

An agricultural research organization described in 170(b)(1)(A)(ix) operated in conjunction with a land-grant college or university or a non-land grant college of agriculture. See instructions. Enter the name, city, and state of the college or university:

An organization that normally receives: (1) more than 33 1/3% of its support from contributions, membership fees, and gross receipts from activities related to its exempt functions—subject to certain exceptions, and (2) no more than 33 1/3% of its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses acquired by the organization after June 30, 1975. See section 509(a)(2). (Complete Part III.)

An organization organized and operated exclusively to test for public safety. See section 509(a)(4).

An organization organized and operated exclusively for the benefit of, to perform the functions of, or to carry out the purposes of one or more publicly supported organizations described in section 509(a)(1) or section 509(a)(2). See section 509(a)(3). Check the box on lines 12a through 12d that describes the type of supporting organization and complete lines 12e, 12f, and 12g.

Type I. A supporting organization operated, supervised, or controlled by its supported organization(s), typically by giving the supported organization(s) the power to regularly appoint or elect a majority of the directors or trustees of the supporting organization. You must complete Part IV, Sections A and B.

Type II. A supporting organization supervised or controlled in connection with its supported organization(s), by having control or management of the supporting organization vested in the same persons that control or manage the supported organization(s). You must complete Part IV, Sections A and C.

Type III functionally integrated. A supporting organization operated in connection with, and functionally integrated with, its supported organization(s) (see instructions). You must complete Part IV, Sections A, D, and E.

Type III non-functionally integrated. A supporting organization operated in connection with its supported organization(s) that is not functionally integrated. The organization generally must satisfy a distribution requirement and an attentiveness requirement (see instructions). You must complete Part IV, Sections A and D, and Part V.

Check this box if the organization received a written determination from the IRS that it is a Type I, Type II, Type III functionally integrated, or Type III non-functionally integrated supporting organization.

Enter the number of supported organizations ...............................

Provide the following information about the supported organization(s).

(i) Name of supported organization	(ii) EIN	(iv) Is the organization listed in your governing document?		(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)
(i) Name of supported organization	(ii) EIN	Yes	No	(v) Amount of monetary support (see instructions)	(vi) Amount of other support (see instructions)


Total

For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.

Cat. No. 11285F

Schedule A (Form 990) 2024

Page 2

Part II

Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2020	(b) 2021	(c) 2022	(d) 2023	(e) 2024	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") ..	73,199,355	86,536,159	97,948,958	86,607,373	95,892,261	440,184,106
2	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf ....						0
3	The value of services or facilities furnished by a governmental unit to the organization without charge..						0
4	Total. Add lines 1 through 3	73,199,355	86,536,159	97,948,958	86,607,373	95,892,261	440,184,106
5	The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f) ..						0
6	Public support. Subtract line 5 from line 4.						440,184,106

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2020	(b) 2021	(c) 2022	(d) 2023	(e) 2024	(f) Total
7	Amounts from line 4..	73,199,355	86,536,159	97,948,958	86,607,373	95,892,261	440,184,106
8	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources...	95,019,118	74,598,441	75,903,369	88,665,749	98,908,144	433,094,821
9	Net income from unrelated business activities, whether or not the business is regularly carried on..						0
10	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.)..	9,386,514	6,491,041	12,503,243	14,646,633	15,429,604	58,457,035
11	Total support. Add lines 7 through 10						931,735,962

Gross receipts from related activities, etc. (see instructions) ..................

56,595,821

First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here ........................................ right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2024 (line 6, column (f) divided by line 11, column (f)) .........

47.243 %

Public support percentage for 2023 Schedule A, Part II, line 14 ...............

48.114 %

16a

33 1/3% support test—2024. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization ....................... right arrow

33 1/3% support test—2023. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization ..................... right arrow

17a

10%-facts-and-circumstances test—2024. If the organization did not check a box on line 13, 16a, or 16b, and line 14 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ............ right arrow

10%-facts-and-circumstances test—2023. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line 15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ............ right arrow

Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions ..................................................... right arrow

Schedule A (Form 990) 2024

Page 3

Part III

Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)

Section A. Public Support

Calendar year (or fiscal year beginning in)		(a) 2020	(b) 2021	(c) 2022	(d) 2023	(e) 2024	(f) Total
1	Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.") .
2	Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose
3	Gross receipts from activities that are not an unrelated trade or business under section 513 .....
4	Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...
5	The value of services or facilities furnished by a governmental unit to the organization without charge
6	Total. Add lines 1 through 5
7a	Amounts included on lines 1, 2, and 3 received from disqualified persons
b	Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.
c	Add lines 7a and 7b..
8	Public support. (Subtract line 7c from line 6.)

Section B. Total Support

Calendar year (or fiscal year beginning in)		(a) 2020	(b) 2021	(c) 2022	(d) 2023	(e) 2024	(f) Total
9	Amounts from line 6...
10a	Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources..
b	Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975.
c	Add lines 10a and 10b.
11	Net income from unrelated business activities not included on line 10b, whether or not the business is regularly carried on.
12	Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..
13	Total support. (Add lines 9, 10c, 11, and 12.)..

First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here................................................. right arrow

Section C. Computation of Public Support Percentage

Public support percentage for 2024 (line 8, column (f) divided by line 13, column (f)) .........

Public support percentage from 2023 Schedule A, Part III, line 15 ...............

Section D. Computation of Investment Income Percentage

Investment income percentage for 2024 (line 10c, column (f) divided by line 13, column (f)) ......

Investment income percentage from 2023 Schedule A, Part III, line 17 .............

19a

33 1/3% support tests-2024. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ....... right arrow

33 1/3 % support tests—2023. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ..... right arrow

Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions .... right arrow

Schedule A (Form 990) 2024

Page 4

Part IV

Supporting Organizations

(Complete only if you checked a box on line 12 of Part I. If you checked box 12a, of Part I, complete Sections A and B. If you checked box 12b, of Part I, complete Sections A and C. If you checked box 12c, of Part I, complete Sections A, D, and E. If you checked box12d, of Part I, complete Sections A and D, and complete Part V.)

Section A. All Supporting Organizations

Yes

Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.

Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).

Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer lines 3b and 3c below.

Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.

Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.

Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked box 12a or 12b in Part I, answer lines 4b and 4c below.

Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.

Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.

Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer lines 5b and 5c below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).

Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?

Substitutions only. Was the substitution the result of an event beyond the organization's control?

Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.

Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990) .

Did the organization make a loan to a disqualified person (as defined in section 4958) not described on line 7? If “Yes,” complete Part I of Schedule L (Form 990).

Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons, as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.

Did one or more disqualified persons (as defined on line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.

Did a disqualified person (as defined on line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.

10a

Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.

10a

Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).

10b

Schedule A (Form 990) 2024

Page 5

Part IV

Supporting Organizations (continued)

Yes

Has the organization accepted a gift or contribution from any of the following persons?

A person who directly or indirectly controls, either alone or together with persons described on lines 11b and 11c below, the governing body of a supported organization?

11a

A family member of a person described on 11a above?

11b

A 35% controlled entity of a person described on line 11a or 11b above? If “Yes” to 11a, 11b, or 11c, provide detail in Part VI.

11c

Section B. Type I Supporting Organizations

Yes

Did the officers, directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.

Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.

Section C. Type II Supporting Organizations

Yes

Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).

Section D. All Type III Supporting Organizations

Yes

Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?

Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).

By reason of the relationship described in line 2 above, did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.

Section E. Type III Functionally-Integrated Supporting Organizations

Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):

The organization satisfied the Activities Test. Complete line 2 below.

The organization is the parent of each of its supported organizations. Complete line 3 below.

The organization supported a governmental entity. Describe in Part VI how you supported a government entity (see instructions)

Activities Test. Answer lines 2a and 2b below.

Yes

Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of the supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to those supported organizations, and how the organization determined that these activities constituted substantially all of its activities.

Did the activities described on line 2a, above constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If "Yes," explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.

Parent of Supported Organizations. Answer lines 3a and 3b below.

Did the organization have the power to regularly appoint or elect a majority of the officers, directors, or trustees of each of the supported organizations?If "Yes" or "No", provide details in Part VI.

Did the organization exercise a substantial degree of direction over the policies, programs and activities of each of its supported organizations? If "Yes," describe in Part VI. the role played by the organization in this regard.

Schedule A (Form 990) 2024

Page 6

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations

Check here if the organization satisfied the Integral Part Test as a qualifying trust on Nov. 20, 1970 (explain in Part VI). See instructions. All other Type III non-functionally integrated supporting organizations must complete Sections A through E.

	Section A - Adjusted Net Income		(A) Prior Year	(B) Current Year (optional)
1	Net short-term capital gain	1
2	Recoveries of prior-year distributions	2
3	Other gross income (see instructions)	3
4	Add lines 1 through 3	4
5	Depreciation and depletion	5
6	Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions)	6
7	Other expenses (see instructions)	7
8	Adjusted Net Income (subtract lines 5, 6 and 7 from line 4)	8

	Section B - Minimum Asset Amount		(A) Prior Year	(B) Current Year (optional)
1	Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year):	1
a	Average monthly value of securities	1a
b	Average monthly cash balances	1b
c	Fair market value of other non-exempt-use assets	1c
d	Total (add lines 1a, 1b, and 1c)	1d
e	Discount claimed for blockage or other factors (explain in detail in Part VI):
2	Acquisition indebtedness applicable to non-exempt use assets	2
3	Subtract line 2 from line 1d	3
4	Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions).	4
5	Net value of non-exempt-use assets (subtract line 4 from line 3)	5
6	Multiply line 5 by 0.035	6
7	Recoveries of prior-year distributions	7
8	Minimum Asset Amount (add line 7 to line 6)	8

	Section C - Distributable Amount		Current Year
1	Adjusted net income for prior year (from Section A, line 8, Column A)	1
2	Enter 85% of line 1	2
3	Minimum asset amount for prior year (from Section B, line 8, Column A)	3
4	Enter greater of line 2 or line 3	4
5	Income tax imposed in prior year	5
6	Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions)	6

Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (see instructions)

Schedule A (Form 990) 2024

Page 7

Part V

Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)

Section D - Distributions		Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes	1
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in excess of income from activity	2
3 Administrative expenses paid to accomplish exempt purposes of supported organizations	3
4 Amounts paid to acquire exempt-use assets	4
5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI)	5
6 Other distributions (describe in Part VI). See instructions	6
7Total annual distributions. Add lines 1 through 6.	7
8 Distributions to attentive supported organizations to which the organization is responsive (provide details in Part VI). See instructions	8
9 Distributable amount for 2024 from Section C, line 6	9
10 Line 8 amount divided by Line 9 amount	10

Section E - Distribution Allocations (see instructions)		(i) Excess Distributions	(ii) Underdistributions Pre-2024	(iii) Distributable Amount for 2024
1 Distributable amount for 2024 from Section C, line 6
2 Underdistributions, if any, for years prior to 2024 (reasonable cause required-- explain in Part VI). See instructions.
3 Excess distributions carryover, if any, to 2024:
a From 2019.......
b From 2020.......
c From 2021.......
d From 2022.......
e From 2023.......
fTotal of lines 3a through e
g Applied to underdistributions of prior years
h Applied to 2024 distributable amount
i Carryover from 2019 not applied (see instructions)
j Remainder. Subtract lines 3g, 3h, and 3i from line 3f.
4Distributions for 2024 from Section D, line 7:
$
a Applied to underdistributions of prior years
b Applied to 2024 distributable amount
c Remainder. Subtract lines 4a and 4b from line 4.
5 Remaining underdistributions for years prior to 2024, if any. Subtract lines 3g and 4a from line 2. If the amount is greater than zero, explain in Part VI. See instructions.
6 Remaining underdistributions for 2024. Subtract lines 3h and 4b from line 1. If the amount is greater than zero, explain in Part VI. See instructions.
7 Excess distributions carryover to 2025. Add lines 3j and 4c.
8 Breakdown of line 7:
a Excess from 2020.....
b Excess from 2021.....
c Excess from 2022.....
d Excess from 2023.....
e Excess from 2024.....

Schedule A (Form 990) (2024)

Schedule A (Form 990) 2024

Page 8

Part VI

Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a and 3b; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5, 6, and 8; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).

Facts And Circumstances Test

Return Reference	Explanation
Schedule A, Part II, Line 12 THE CF FOUNDATION HAS PROVIDED GROSS RECEIPTS FROM RELATED ACTIVITIES.	THE CF FOUNDATION HAS INCLUDED REGISTRATION FEES FROM THE ANNUAL SCIENTIFIC CONFERENCE THAT IT HOSTS, THE NORTH AMERICAN CYSTIC FIBROSIS CONFERENCE ("NACFC"). NACFC BRINGS TOGETHER SCIENTISTS, CLINICIANS, AND CAREGIVERS TO SHARE THIER CF RESEARCH AND EXPERIENCES. THE CF FOUNDATION HAS ALSO INCLUDED REIMBURSEMENTS FOR COSTS RELATED TO THE DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE ON LINE 12.
Schedule A, Part II, Line 10 Other Income	DESCRIPTION - GROSS FUNDRAISING REVENUE, COLUMN A - 3754416.0, COLUMN B - 3443701.0, COLUMN C - 12338183.0, COLUMN D - 14594252.0, COLUMN E - 15278139.0, COLUMN F - 49408691.0; DESCRIPTION - GROSS GAMING REVENUE, COLUMN A - 89000.0, COLUMN B - 14800.0, COLUMN C - 106070.0, COLUMN D - 21710.0, COLUMN E - 16130.0, COLUMN F - 247710.0; DESCRIPTION - EMPLOYEE RETENTION CREDIT, COLUMN A - 2653151.0, COLUMN B - 3025780.0, COLUMN C - 0.0, COLUMN D - 0.0, COLUMN E - 0.0, COLUMN F - 5678931.0; DESCRIPTION - OTHER MISC. REVENUE, COLUMN A - 2889947.0, COLUMN B - 6760.0, COLUMN C - 58990.0, COLUMN D - 30671.0, COLUMN E - 135335.0, COLUMN F - 3121703.0;

Return Reference

Explanation

Schedule A, Part II, Line 12 THE CF FOUNDATION HAS PROVIDED GROSS RECEIPTS FROM RELATED ACTIVITIES.

THE CF FOUNDATION HAS INCLUDED REGISTRATION FEES FROM THE ANNUAL SCIENTIFIC CONFERENCE THAT IT HOSTS, THE NORTH AMERICAN CYSTIC FIBROSIS CONFERENCE ("NACFC"). NACFC BRINGS TOGETHER SCIENTISTS, CLINICIANS, AND CAREGIVERS TO SHARE THIER CF RESEARCH AND EXPERIENCES. THE CF FOUNDATION HAS ALSO INCLUDED REIMBURSEMENTS FOR COSTS RELATED TO THE DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE ON LINE 12.

Schedule A, Part II, Line 10 Other Income

DESCRIPTION - GROSS FUNDRAISING REVENUE, COLUMN A - 3754416.0, COLUMN B - 3443701.0, COLUMN C - 12338183.0, COLUMN D - 14594252.0, COLUMN E - 15278139.0, COLUMN F - 49408691.0; DESCRIPTION - GROSS GAMING REVENUE, COLUMN A - 89000.0, COLUMN B - 14800.0, COLUMN C - 106070.0, COLUMN D - 21710.0, COLUMN E - 16130.0, COLUMN F - 247710.0; DESCRIPTION - EMPLOYEE RETENTION CREDIT, COLUMN A - 2653151.0, COLUMN B - 3025780.0, COLUMN C - 0.0, COLUMN D - 0.0, COLUMN E - 0.0, COLUMN F - 5678931.0; DESCRIPTION - OTHER MISC. REVENUE, COLUMN A - 2889947.0, COLUMN B - 6760.0, COLUMN C - 58990.0, COLUMN D - 30671.0, COLUMN E - 135335.0, COLUMN F - 3121703.0;

Schedule A (Form 990) 2024

Additional Data

Software ID:	24020961
Software Version:	2024v5.1

- TIN:

Schedule B
(Form 990)
(Rev. January 2025)

Department of the Treasury
Internal Revenue Service

Schedule of Contributors

Attach to Form 990, 990-EZ, or 990-PF.

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Organization type (check one):

Filers of:

Section:

Form 990 or 990-EZ

501(c)( ) (enter number) organization

4947(a)(1) nonexempt charitable trust not treated as a private foundation

527 political organization

Form 990-PF

501(c)(3) exempt private foundation

4947(a)(1) nonexempt charitable trust treated as a private foundation

501(c)(3) taxable private foundation

Check if your organization is covered by the General Rule or a Special Rule.
Note: Only a section 501(c)(7), (8), or (10) organization can check boxes for both the General Rule and a Special Rule. See instructions.

General Rule

For an organization filing Form 990, 990-EZ, or 990-PF that received, during the year, contributions totaling $5,000 or more (in money or other property) from any one contributor. Complete Parts I and II. See instructions for determining a contributor's total contributions.

Special Rules

For an organization described in section 501(c)(3) filing Form 990 or 990-EZ that met the 33¹/3% support test of the regulations
under sections 509(a)(1) and 170(b)(1)(A)(vi), that checked Schedule A (Form 990 or 990-EZ), Part II, line 13, 16a, or 16b, and that received from any one contributor, during the year, total contributions of the greater of (1) $5,000 or (2) 2% of the amount on (i) Form 990, Part VIII, line 1h, or (ii) Form 990-EZ, line 1. Complete Parts I and II.

For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, total contributions of more than $1,000 exclusively for religious, charitable, scientific, literary, or educational purposes, or for the prevention of cruelty to children or animals. Complete Parts I, II, and III.

For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, contributions exclusively for religious, charitable, etc., purposes, but no such contributions totaled more than $1,000. If this box is checked, enter here the total contributions that were received during the year for an exclusively religious, charitable, etc., purpose. Don't complete any of the parts unless the General Rule applies to this organization because it received nonexclusively religious, charitable, etc., contributions totaling $5,000 or more during the year ......... Right Arrow

Caution: An organization that isn't covered by the General Rule and/or the Special Rules doesn't file Schedule B (Form 990,
990-EZ, or 990-PF), but it must answer “No” on Part IV, line 2, of its Form 990; or check the box on line H of its Form 990-EZ
or on its Form 990PF, Part I, line 2, to certify that it doesn't meet the filing requirements of Schedule B (Form 990,
990-EZ, or 990-PF).

For Paperwork Reduction Act Notice, see the Instructions
for Form 990, 990-EZ, or 990-PF.

Cat. No. 30613XSchedule B (Form 990) (Rev. 1-2025)

Schedule B (Form 990) (Rev. 1-2025) Page 2

Name of organization CYSTIC FIBROSIS FOUNDATION

Part I	Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
RESTRICTED	,	$ RESTRICTED	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
(a) No.	(b) Name, address, and ZIP + 4	(c) Total contributions	(d) Type of contribution
		$	Person Payroll Noncash (Complete Part II for noncash contributions.)
Schedule B (Form 990) (Rev. 1-2025)

Schedule B (Form 990) (Rev. 1-2025)

Page 3

Name of organization CYSTIC FIBROSIS FOUNDATION		Employer identification number 13-1930701

Part II	Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
(a) No. from Part I	(b) Description of noncash property given	(c) FMV (or estimate) (See instructions)	(d) Date received
		$
Schedule B (Form 990) (Rev. 1-2025)

Schedule B (Form 990) (Rev. 1-2025)

Page 4


Name of organization CYSTIC FIBROSIS FOUNDATION			Employer identification number 13-1930701
Part III Exclusively religious, charitable, etc., contributions to organizations described in section 501(c) (7), (8), or (10) that total more than $1,000 for the year from any one contributor. Complete columns (a) through (e) and the following line entry. For organizations completing Part III, enter the total of exclusively religious, charitable, etc., contributions of $1,000 or less for the year. (Enter this information once. See instructions.) $ Use duplicate copies of Part III if additional space is needed.

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

(a)
No. from Part I

(b) Purpose of gift

(d) Description of how gift is held

(e) Transfer of gift
Transferee's name, address, and ZIP 4	Relationship of transferor to transferee

Schedule B (Form 990) (Rev. 1-2025)

Additional Data

Software ID:	24020961
Software Version:	2024v5.1

- TIN:

SCHEDULE C
(Form 990)

Department of the Treasury
Internal Revenue Service

Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527

right arrow

Complete if the organization is described below. right arrow

Attach to Form 990 or Form 990-EZ.
right arrow

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

2024

Open to Public
Inspection

If the organization answered "Yes" on Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet

Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet

Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet

Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" on Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet

Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet

Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" on Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet

Section 501(c)(4), (5), or (6) organizations: Complete Part III.

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I-A

Complete if the organization is exempt under section 501(c) or is a section 527 organization.

Provide a description of the organization’s direct and indirect political campaign activities in Part IV. See instructions for definition of “political campaign activities."

Political campaign activity expenditures. See instructions .................................................................... right arrow

Volunteer hours for political campaign activities. See instructions ..................................................................

Part I-B

Complete if the organization is exempt under section 501(c)(3).

Enter the amount of any excise tax incurred by the organization under section 4955 ................................ right arrow

Enter the amount of any excise tax incurred by organization managers under section 4955 ....................... right arrow

If the organization incurred a section 4955 tax, did it file Form 4720 for this year? .........................................

Yes No

Was a correction made? ......................................................................................................................

Yes No

If "Yes," describe in Part IV.

Part I-C

Complete if the organization is exempt under section 501(c), except section 501(c)(3).

Enter the amount directly expended by the filing organization for section 527 exempt function activities ..... right arrow

Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ............................................................................................................................ right arrow

Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b........... right arrow

Did the filing organization file Form 1120-POL for this year? ...................................................................

Yes No

Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.

(a) Name	(b) Address	(c) EIN	(d) Amount paid from filing organization's funds. If none, enter -0-.	(e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.
1
2
3
4
5
6

For Paperwork Reduction Act Notice, see the instructions for Form 990.

Cat. No. 50084S

Schedule C (Form 990) 2024

Page 2

Part II-A

Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).

A Check right arrow

if the filing organization belongs to an affiliated group (and list in Part IV each affiliated group member's name, address, EIN, expenses, and share of excess lobbying expenditures).
B Check right arrow

if the filing organization checked box A and "limited control" provisions apply.

Limits on Lobbying Expenditures (The term "expenditures" means amounts paid or incurred.)		(b) Affiliated group totals
1a	Total lobbying expenditures to influence public opinion (grass roots lobbying) ......................
b	Total lobbying expenditures to influence a legislative body (direct lobbying) ........................
c	Total lobbying expenditures (add lines 1a and 1b) ............................................................
d	Other exempt purpose expenditures ...............................................................................
e	Total exempt purpose expenditures (add lines 1c and 1d) ..................................................
f	Lobbying nontaxable amount. Enter the amount from the following table in both columns.
	If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
	Not over $500,00020% of the amount on line 1e.
	Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
	Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
	Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
	Over $17,000,000$1,000,000.

g	Grassroots nontaxable amount (enter 25% of line 1f) .................................................
h	Subtract line 1g from line 1a. If zero or less, enter -0-. ................................................
i	Subtract line 1f from line 1c. If zero or less, enter -0-. ................................................
j	If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting section 4911 tax for this year? ...................................................................................................................	Yes No

4-Year Averaging Period Under Section 501(h) (Some organizations that made a section 501(h) election do not have to complete all of the five columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
	Calendar year (or fiscal year beginning in)	(a) 2021	(b) 2022	(c) 2023	(d) 2024	(e) Total

2a	Lobbying nontaxable amount

b	Lobbying ceiling amount (150% of line 2a, column(e))

c	Total lobbying expenditures

d	Grassroots nontaxable amount

e	Grassroots ceiling amount (150% of line 2d, column (e))

f	Grassroots lobbying expenditures

Schedule C (Form 990) 2024

Page 3

Part II-B

Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).

For each "Yes" response on lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.

(a)

Yes

(b)

Amount

During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:

Volunteers? ...........................................................................................................

Yes

Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ........

Yes

Media advertisements? ...................................................................................................

Mailings to members, legislators, or the public? .............................................................................

Publications, or published or broadcast statements? ...........................................................

Yes

1,117

Grants to other organizations for lobbying purposes? ..........................................................

Direct contact with legislators, their staffs, government officials, or a legislative body? .......................

Yes

1,718,977

Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ..................

Other activities? ...................................................................................................................

Yes

11,637

Total. Add lines 1c through 1i ....................................................................................................

1,731,731

Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....

If "Yes," enter the amount of any tax incurred under section 4912 ...........................................

If "Yes," enter the amount of any tax incurred by organization managers under section 4912 ...................

If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? ........................

Part III-A

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).

Yes

Were substantially all (90% or more) dues received nondeductible by members? ...............................................

Did the organization make only in-house lobbying expenditures of $2,000 or less? ............................................

Did the organization agree to carry over lobbying and political expenditures from the prior year? .................................

Part III-B

Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."

Dues, assessments and similar amounts from members ......................................................................

Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political expenses for which the section 527(f) tax was paid).

Current year .............................................................................................................................

Carryover from last year ............................................................................................................

Total ...........................................................................................................................................

Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .

If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ......................................................................................................................

Taxable amount of lobbying and political expenditures. See Instructions .........................................

Part IV

Supplemental Information

Provide the descriptions required for Part l-A, line 1; Part l-B, line 4; Part l-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part ll-B, line 1. Also, complete this part for any additional information.

Return Reference	Explanation
Schedule C, Part II-B, Line 1 DETAILED DESCRIPTION OF THE LOBBYING ACTIVITY	THE CF FOUNDATION IS FOCUSED ON CURING CF AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CF RESEARCH, THE CF FOUNDATION ADVOCATES FOR POLICIES THAT SUPPORT BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH, DRIVE THE DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CF, AND PROMOTE ACCESS TO HIGH-QUALITY, SPECIALIZED CARE FOR EVERYONE LIVING WITH THE DISEASE. ADVOCACY ACTIVITIES INCLUDE MEETINGS WITH LAWMAKERS AND THEIR STAFF, EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CF COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CF COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, Making public statements on issues that directly impact the CF Community and Foundation, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.

Return Reference

Explanation

Schedule C, Part II-B, Line 1 DETAILED DESCRIPTION OF THE LOBBYING ACTIVITY

THE CF FOUNDATION IS FOCUSED ON CURING CF AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CF RESEARCH, THE CF FOUNDATION ADVOCATES FOR POLICIES THAT SUPPORT BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH, DRIVE THE DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CF, AND PROMOTE ACCESS TO HIGH-QUALITY, SPECIALIZED CARE FOR EVERYONE LIVING WITH THE DISEASE. ADVOCACY ACTIVITIES INCLUDE MEETINGS WITH LAWMAKERS AND THEIR STAFF, EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CF COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CF COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, Making public statements on issues that directly impact the CF Community and Foundation, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.

Schedule C (Form 990) 2024

Additional Data

Software ID:	24020961
Software Version:	2024v5.1

- TIN:

SCHEDULE D
(Form 990)

Department of the Treasury
Internal Revenue Service

Supplemental Financial Statements

Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
right arrow

Attach to Form 990.
right arrow

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.

		(a) Donor advised funds	(b) Funds and other accounts
1	Total number at end of year .........
2	Aggregate value of contributions to (during year)
3	Aggregate value of grants from (during year)
4	Aggregate value at end of year ........

Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............

Yes No

Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................

Yes No

Part II

Conservation Easements.
Complete if the organization answered "Yes" on Form 990, Part IV, line 7.

Purpose(s) of conservation easements held by the organization (check all that apply).

Preservation of land for public use (e.g., recreation or education) Preservation of an historically important land area

Protection of natural habitat Preservation of a certified historic structure

Preservation of open space

Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.


a	Total number of conservation easements ......................	2a
b	Total acreage restricted by conservation easements ....................	2b
c	Number of conservation easements on a certified historic structure included in (a) .....	2c
d	Number of conservation easements included in (c) acquired after July 25, 2006, and not on a historic structure listed in the National Register ...	2d

Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year right arrow

Number of states where property subject to conservation easement is located right arrow

Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............

Yes No

Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
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Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
right arrow

Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................

Yes No

In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.

If the organization elected, as permitted under FASB ASC 958, not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.

If the organization elected, as permitted under FASB ASC 958, to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:

(i)

Revenue included on Form 990, Part VIII, line 1 ......................... right arrow

(ii)

Assets included in Form 990, Part X ............................... right arrow

If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under FASB ASC 958 relating to these items:

Revenue included on Form 990, Part VIII, line 1 .......................... right arrow

Assets included in Form 990, Part X ............................... right arrow

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 52283D

Schedule D (Form 990) (Rev. 1-2025)

Page 2

Part III

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)

Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):

Public exhibition

Loan or exchange programs

Scholarly research

Other

Preservation for future generations

Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.

During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...

Yes No

Part IV

Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.

Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................

Yes No


b	If "Yes," explain the arrangement in Part XIII and complete the following table:		Amount
c	Beginning balance .............................	1c
d	Additions during the year ............................	1d
e	Distributions during the year ..........................	1e
f	Ending balance ................................	1f

Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...

Yes No

If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....

Part V

Endowment Funds.
Complete if the organization answered "Yes" on Form 990, Part IV, line 10.

		(a) Current year	(b) Prior year	(c) Two years back	(d) Three years back	(e) Four years back

1a	Beginning of year balance ....
b	Contributions ...
c	Net investment earnings, gains, and losses
d	Grants or scholarships ...
e	Other expenditures for facilities and programs ...
f	Administrative expenses ....
g	End of year balance ......

Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:

Board designated or quasi-endowment right arrow

Permanent endowment right arrow

Term endowment right arrow

The percentages on lines 2a, 2b, and 2c should equal 100%.

Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes

(i) Unrelated organizations .................

3a(i)

(ii) Related organizations .................

3a(ii)

If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........

Describe in Part XIII the intended uses of the organization's endowment funds.

Part VI

Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.

Description of property		(a) Cost or other basis (investment)	(b) Cost or other basis (other)	(c) Accumulated depreciation	(d) Book value

1a	Land .....
b	Buildings ....
c	Leasehold improvements	6,656,489	4,204,724	2,451,765
d	Equipment ....	28,946,167	21,668,684	7,277,483
e	Other .....
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).)..				9,729,248

Schedule D (Form 990) (Rev. 1-2025)

Page 3

Part VII

Investments - Other Securities.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.

(a) Description of security or category (including name of security)	(b) Book value	(c) Method of valuation: Cost or end-of-year market value
(1) Financial derivatives.........
(2) Closely-held equity interests........
(3) Other (A) Closely-held equity interests
(B) Financial derivatives
(C) PVT EQTY & OTHR ILLIQUID
(D) OPPORTUNISTIC
(E) GLOBAL PUBLIC EQUITY
(F) PERPETUAL TRUSTS & OTHER
(G) PERPETUAL TRUSTS	4,504,202	F
(H) GLOBAL PUBLIC EQUITY	94,046,759	F
(I) OPPORTUNISTIC	456,083,030	F
(J) PVT EQTY & OTHR ILLIQUID	1,326,700,948	F
(K) Credit	46,824,376	F
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)	1,928,159,315

Part VIII

Investments - Program Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.

(a) Description of investment	(b) Book value	(c) Method of valuation: Cost or end-of-year market value

(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)

Part IX

Other Assets.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.

(a) Description				(b) Book value

(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........

Part X

Other Liabilities.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.

1.(a) Description of liability	(b) Book value
(1) Federal income taxes
Federal Income Taxes
OPERATING LEASE LIABILITIES
OPERATING LEASE LIABILITIES	22,148,464






Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.)	22,148,464
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII

Schedule D (Form 990) (Rev. 1-2025)

Page 4

Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total revenue, gains, and other support per audited financial statements .......			1	523,975,413
2	Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a	Net unrealized gains (losses) on investments ....	2a	184,008,805
b	Donated services and use of facilities .........	2b	343,639
c	Recoveries of prior year grants ...........	2c
d	Other (Describe in Part XIII.) ...........	2d	0
e	Add lines 2a through 2d .....................			2e	184,352,444
3	Subtract line 2e from line 1..................			3	339,622,969
4	Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b .	4a	16,175,351
b	Other (Describe in Part XIII.) ...........	4b	0
c	Add lines 4a and 4b....................			4c	16,175,351
5	Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ......			5	355,798,320

Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1	Total expenses and losses per audited financial statements ...........			1	423,307,207
2	Amounts included on line 1 but not on Form 990, Part IX, line 25:
a	Donated services and use of facilities .........	2a	343,639
b	Prior year adjustments ............	2b
c	Other losses ................	2c
d	Other (Describe in Part XIII.) ...........	2d	0
e	Add lines 2a through 2d....................			2e	343,639
3	Subtract line 2e from line 1...................			3	422,963,568
4	Amounts included on Form 990, Part IX, line 25, but not on line 1:
a	Investment expenses not included on Form 990, Part VIII, line 7b ..	4a	16,175,351
b	Other (Describe in Part XIII.) ...........	4b	0
c	Add lines 4a and 4b.....................			4c	16,175,351
5	Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ......			5	439,138,919

Part XIII

Supplemental Information

Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part lV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.

Return Reference

Explanation

Schedule D, Part X, Line 2 FIN 48 (ASC 740) footnote

The Foundation is a not-for-profit voluntary health organization exempt from Federal income taxes under Section 501(c)(3) of the Internal Revenue Code (the Code) and from state taxes and has been classified as an organization that is not a private foundation under Section 509(a) of the Code. The Foundation does not have a material unrelated business income tax liability as of December 31, 2024 and 2023. Contributions to the Foundation qualify for the charitable contributions deduction to the extent provided by Section 170 of the Code. The Foundation is not aware of any tax position taken that requires disclosure based on current facts and circumstances. The Foundation annually reviews its tax positions and has determined that there are no material uncertain tax positions that require recognition or disclosure in the financial statements. In 2024, the Foundation began separately reporting unrelated business income tax expense within the other changes in net assets section of the statement of activities. This expense was previously reported within net nonoperating investment income. This change in presentation is due to the increase in unrelated business income tax expense generated by certain alternative investments.

Schedule D (Form 990) (Rev. 1-2025)

Additional Data

Software ID:	24020961
Software Version:	2024v5.1

- TIN:

SCHEDULE F(Form 990)
(Rev. January 2025)

Department of the Treasury
Internal Revenue Service

Statement of Activities Outside the United States

Complete if the organization answered "Yes" to Form 990, Part IV, line 14b, 15, or 16. Right arrow

Attach to Form 990. Right arrow

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

Open to Public Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

General Information on Activities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 14b.

For grantmakers. Does the organization maintain records to substantiate the amount of its grants and

other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used

to award the grants or assistance? . . . . . . . . . . . . . . . . . . . . . . . . .

Yes

For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.

Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)

(a) Region		(b) Number of offices in the region	(c) Number of employees, agents, and independent contractors in the region	(d) Activities conducted in region (by type) (such as, fundraising, program services, investments, grants to recipients located in the region)	(e) If activity listed in (d) is a program service, describe specific type of service(s) in the region	(f) Total expenditures for and investments in the region
	Central America and the Caribbean			Investments	NONE	780,922,982
	East Asia and the Pacific			Investments	NONE	79,983,461
	East Asia and the Pacific			Grantmaking	NONE	532,103
	East Asia and the Pacific			Program Services	CONTRACTED RESEARCH	207,000
	Europe (Including Iceland and Greenland)			Grantmaking	NONE	7,778,176
	Europe (Including Iceland and Greenland)			Investments	NONE	132,126,305
	Europe (Including Iceland and Greenland)			Mission Related Investments	NONE	5,412,733
	Europe (Including Iceland and Greenland)			Program Services	CONTRACTED RESEARCH	58,305
	Middle East and North Africa			Grantmaking	NONE	140,000
	Middle East and North Africa			Investments	NONE	999,645
	Middle East and North Africa			Mission Related Investments	NONE	18,213,731
	North America (Canada & Mexico only)			Grantmaking	NONE	3,205,493
	North America (Canada & Mexico only)			Investments	NONE	30,576,512
	South Asia			Program Services	CONTRACTED RESEARCH	290,000



3a	Sub-total ....	0	0			1,060,446,446
b	Total from continuation sheets to Part I ...	0	0			0
c	Totals (add lines 3a and 3b)	0	0			1,060,446,446

For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) (Rev. 1-2025)

Schedule F (Form 990) (Rev. 1-2025)

Page 2

Part II

Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.

(c) Region	(d) Purpose of grant	(e) Amount of cash grant	(f) Manner of cash disbursement
East Asia and the Pacific	CLINICAL RESEARCH	223,134	Wire
East Asia and the Pacific	PILOT STUDY	55,531	Wire
East Asia and the Pacific	PILOT STUDY	89,594	Wire
East Asia and the Pacific	RESEARCH	163,844	Wire
East Asia and the Pacific	THERAPEUTICS DEVELOPMENT AWARD	207,000	Wire
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH	1,334,899	Wire
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH	340,205	Wire
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH	343,967	Wire
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH CENTER	983,151	Wire
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH STUDY	93,028	Wire
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH STUDY	1,040,970	Wire
Europe (Including Iceland and Greenland)	PILOT STUDY	56,000	Wire
Europe (Including Iceland and Greenland)	PILOT STUDY	55,980	Wire
Europe (Including Iceland and Greenland)	PILOT STUDY	50,000	Wire
Europe (Including Iceland and Greenland)	PILOT STUDY	112,000	Wire
Europe (Including Iceland and Greenland)	QUALITY IMPROVEMENT	150,000	Wire
Europe (Including Iceland and Greenland)	QUALITY IMPROVEMENT	999,500	Wire
Europe (Including Iceland and Greenland)	QUALITY IMPROVEMENT	80,689	Wire
Europe (Including Iceland and Greenland)	RESEARCH	167,955	Wire
Europe (Including Iceland and Greenland)	RESEARCH	124,688	Wire
Europe (Including Iceland and Greenland)	RESEARCH	157,494	Wire
Europe (Including Iceland and Greenland)	RESEARCH	156,016	Wire
Europe (Including Iceland and Greenland)	RESEARCH	165,417	Wire
Europe (Including Iceland and Greenland)	RESEARCH	127,614	Wire
Europe (Including Iceland and Greenland)	RESEARCH	126,075	Wire
Europe (Including Iceland and Greenland)	RESEARCH	310,566	Wire
Europe (Including Iceland and Greenland)	RESEARCH	154,907	Wire
Europe (Including Iceland and Greenland)	RESEARCH STUDY	83,085	Wire
Europe (Including Iceland and Greenland)	THERAPEUTICS DISCOVERY RESEARCH	358,785	Wire
Europe (Including Iceland and Greenland)	THERAPEUTICS DISCOVERY RESEARCH	201,185	Wire
Europe (Including Iceland and Greenland)	TRAINING	4,000	Wire
Europe (Including Iceland and Greenland)	THERAPEUTICS DEVELOPMENT AWARD	58,305	Wire
Middle East and North Africa	CLINICAL RESEARCH STUDY	84,000	Wire
Middle East and North Africa	PILOT STUDY	56,000	Wire
North America (Canada & Mexico only)	CLINICAL CARE RESEARCH	332,511	Wire
North America (Canada & Mexico only)	CLINICAL RESEARCH	747,519	Wire
North America (Canada & Mexico only)	CLINICAL RESEARCH CENTER	42,860	Wire
North America (Canada & Mexico only)	CLINICAL RESEARCH CENTER	143,397	Wire
North America (Canada & Mexico only)	CLINICAL RESEARCH STUDY	169,145	Wire
North America (Canada & Mexico only)	CLINICAL RESEARCH STUDY	201,208	Wire
North America (Canada & Mexico only)	CLINICAL RESEARCH STUDY	168,000	Wire
North America (Canada & Mexico only)	CLINICAL RESEARCH STUDY	106,784	Wire
North America (Canada & Mexico only)	PILOT STUDY	56,000	Wire
North America (Canada & Mexico only)	PILOT STUDY	56,000	Wire
North America (Canada & Mexico only)	PILOT STUDY	55,300	Wire
North America (Canada & Mexico only)	PILOT STUDY	56,000	Wire
North America (Canada & Mexico only)	PILOT STUDY	111,760	Wire
North America (Canada & Mexico only)	PILOT STUDY	55,984	Wire
North America (Canada & Mexico only)	QUALITY IMPROVEMENT	67,116	Wire
North America (Canada & Mexico only)	RESEARCH	335,999	Wire
North America (Canada & Mexico only)	RESEARCH	157,560	Wire
North America (Canada & Mexico only)	RESEARCH	168,000	Wire
North America (Canada & Mexico only)	RESEARCH	167,350	Wire
South Asia	THERAPEUTICS DEVELOPMENT AWARD	290,000	Wire

2	Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter .......	53
3	Enter total number of other organizations or entities .......................	3

Schedule F (Form 990) (Rev. 1-2025)

Schedule F (Form 990) (Rev. 1-2025)Page 3

Part III

Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 16.

Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance		(b) Region	(c) Number of recipients	(d) Amount of cash grant	(e) Manner of cash disbursement	(f) Amount of noncash assistance	(g) Description of noncash assistance	(h) Method of valuation (book, FMV, appraisal, other)

Schedule F (Form 990) (Rev. 1-2025)

Page 4

Part IV

Foreign Forms

Schedule F (Form 990) (Rev. 1-2025)

Page 5

Part V

Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information. See instructions.

ReturnReference	Explanation
Schedule F, Part I, Line 2 Procedures for monitoring use of grant funds	THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE U.S. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE CF FOUNDATION AND THE SPONSORED INSTITUTION. SPONSORED INSITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE CF FOUNDATION'S SCIENTIFIC STAFF TO REVIEW PROGRESS, AND FINANCIAL REPORTS ARE REVIEWED BY GRANTS MANAGEMENT STAFF TO ENSURE FUNDS WERE USED AS INTENDED. THE FINAL GRANT PAYMENT IS TYPICALLY CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES AND THE FINAL SCIENTIFIC REPORT.

Schedule F (Form 990) (Rev. 1-2025)

Additional Data

Software ID:	24020961
Software Version:	2024v5.1

- TIN:

SCHEDULE G (Form 990)
(Rev. January 2025)

Department of the Treasury
Internal Revenue Service

Supplemental Information Regarding
Fundraising or Gaming Activities

Complete if the organization answered "Yes" on Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. right arrow

Attach to Form 990 or Form 990-EZ.
right arrow

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

Open to Public Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Fundraising Activities.Complete if the organization answered "Yes" on Form 990, Part IV, line 17.

Form 990-EZ filers are not required to complete this part.

Indicate whether the organization raised funds through any of the following activities. Check all that apply.

a	Mail solicitations	e	Solicitation of non-government grants
b	Internet and email solicitations	f	Solicitation of government grants
c	Phone solicitations	g	Special fundraising events
d	In-person solicitations

Did the organization have a written or oral agreement with any individual (including officers, directors, trustees

or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?

YesNo

If "Yes," list the 10 highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.

(i) Name and address of individual or entity (fundraiser)		(ii) Activity	(iii) Did fundraiser have custody or control of contributions?		(iv) Gross receipts from activity	(v) Amount paid to (or retained by) fundraiser listed in col. (i)	(vi) Amount paid to (or retained by) organization
			Yes	No
	LAUTMAN MASKA NEILL & COMPANY 1730 RHODE ISLAND AVE NW WASHINGTON, FM20036	MAIL COUNSEL		No	11,672,048	228,000	11,444,048
	Graham Pelton 39 Beechwood Road Summit, NJ07901	Fundraising advisory		No		100,000	-100,000
	Allen Balik 1 Canopy Lane Napa, CA94558	Fundraising advisory		No		25,500	-25,500







Total . . . . . . . . . . . . . . . . . . . .					11,672,048	353,500	11,318,548

List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.

CA, CO, CT, DE, FL, GA, AL, HI, ID, IL, IN, IA, KS, KY, LA, ME, AK, MD, MA, MI, MN, MS, MO, MT, NE, NV, NH, NJ, NM, NY, NC, ND, OH, OK, OR, PA, AZ, RI, SC, SD, TN, TX, UT, VT, VA, AR, WA, WV, WI, WY

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 50083H

Schedule G (Form 990) (Rev. 1-2025)

Page 2

Part II

Fundraising Events. Complete if the organization answered "Yes" on Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.

		(a) Event #1 Ski Event (event type)	(b) Event #2 Atlanta Walk (event type)	(c) Other events 748 (total number)	(d) Total events (add col. (a) through col. (c))
1	Gross receipts . . . . .	2,598,020	2,362,136	63,178,436	68,138,592
2	Less: Contributions . . . .	652,851	2,272,671	49,934,933	52,860,455
3	Gross income (line 1 minus line 2) . . . . . .	1,945,169	89,465	13,243,503	15,278,137

4	Cash prizes . . . . .
5	Noncash prizes . . . .	837	629	76,347	77,813
6	Rent/facility costs . . . .	1,061,676	21,729	6,110,984	7,194,389
7	Food and beverages . . .	473,265	27,866	3,355,826	3,856,957
8	Entertainment . . . .	38,066	1,250	505,762	545,078
9	Other direct expenses . . .	371,325	37,991	3,194,584	3,603,900
10	Direct expense summary. Add lines 4 through 9 in column (d) . . . . . . . . . .				15,278,137
11	Net income summary. Subtract line 10 from line 3, column (d). . . . . . . . . .				0

Part III

Gaming. Complete if the organization answered "Yes" on Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.

		(a) Bingo	(b) Pull tabs/Instant bingo/progressive bingo	(c) Other gaming	(d) Total gaming (add col.(a) through col.(c))
1	Gross revenue . . . . .			16,130	16,130

2	Cash prizes . . . . .
3	Noncash prizes . . . .	11,599	11,599
4	Rent/facility costs . . . .
5	Other direct expenses . . .

Volunteer labor . . . .

	Yes0 %
	No

	Yes0 %
	No

	Yes85 %
	No

Direct expense summary. Add lines 2 through 5 in column (d) . . . . . . . . . . right arrow

Net gaming income summary. Subtract line 7 from line 1, column (d). . . . . . . . . right arrow

Enter the state(s) in which the organization conducts gaming activities: NH

Is the organization licensed to conduct gaming activities in each of these states? . . . . . . . .

YesNo

If "No," explain:

LICENSING WAS NOT REQUIRED FOR THE EVENT HELD IN THIS STATE.

10a

Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? . . .

YesNo

If "Yes," explain:

Schedule G (Form 990) (Rev. 1-2025)

Page 3

Does the organization conduct gaming activities with nonmembers? . . . . . . . . . . .

YesNo

Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity

formed to administer charitable gaming? . . . . . . . . . . . . . . . . .

YesNo

Indicate the percentage of gaming activity conducted in:

The organization's facility . . . . . . . . . . . . . . . . . .

13a

0 %

An outside facility . . . . . . . . . . . . . . . . . . . .

13b

100 %

Enter the name and address of the person who prepares the organization's gaming/special events books and records:

Name

CYSTIC FIBROSIS FOUNDATION

Address

4550 MONTGOMERY AVE SUITE 1100N BETHESDA, MD20814

15a

Does the organization have a contract with a third party from whom the organization receives gaming

revenue? . . . . . . . . . . . . . . . . . . . . . . . .

YesNo

If "Yes," enter the amount of gaming revenue received by the organization right arrow

$ and the

amount of gaming revenue retained by the third party right arrow

$ .

If "Yes," enter name and address of the third party:

Name

Address

Gaming manager information:

Name

Gaming manager compensation right arrow

Description of services provided right arrow

Director/officer Employee Independent contractor

Mandatory distributions:

Is the organization required under state law to make charitable distributions from the gaming proceeds to

retain the state gaming license? . . . . . . . . . . . . . . . . . . .

YesNo

Enter the amount of distributions required under state law distributed to other exempt organizations or spent

in the organization's own exempt activities during the tax year right arrow

Part IV

Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v); and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information. See instructions.

Return Reference

Explanation

Schedule G, Part IV

1. LAUTMAN MASKA NEIL & COMPANY: OUR PARTNERSHIP WITH LAUTMAN IS AIMED AT BOLSTERING FUNDRAISING FOR OUR ANNUAL FUND PROGRAM WHICH GENERATES NEARLY $12 MILLION IN DONATIONS EACH YEAR. OUR ANNUAL FUND APPEALS, 65 ROSES CLUB MONTHLY GIVING PROGRAM, GIVINGTUESDAY CAMPAIGN, AND CHAPTER AND YEAR END GIVING EFFORTS ARE ALL EXAMPLES OF FUNDRAISING ACTIVITIES STRENGTHENED BY OUR PARTNERSHIP WITH LAUTMAN. 2. GRAHAM PELTON: WE HAVE PARTNERED WITH GRAHAM PELTON, A NATIONALLY RECOGNIZED FUNDRAISING AND NONPROFIT MANAGEMENT FIRM, TO HELP CONDUCT A THOROUGH ASSESSMENT OF OUR COMPREHENSIVE FUNDRAISING ACTIVITIES. THEY WILL ASSIST IN SHAPING OUR FUNDRAISING PROGRAM WITH THE ULTIMATE GOAL OF RAISING THE FUNDS NEEDED TO ADVANCE OUR MISSION. 3. ALLEN BALIK: WITH HIS EXTENSIVE EXPERIENCE IN THE WINE INDUSTRY, MR. BALIK HAS BEEN ENGAGED TO PROVIDE STRATEGIC AND LOGISTICAL COUNSEL ON THE CF FOUNDATION'S WINEMASTERS FUNDRAISING EVENT.

Schedule G (Form 990) (Rev. 1-2025)

Additional Data

Software ID:	24020961
Software Version:	2024v5.1

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Schedule I
(Form 990)
(Rev. January 2025)

Department of the Treasury
Internal Revenue Service

Grants and Other Assistance to Organizations,
Governments and Individuals in the United States

Complete if the organization answered "Yes," on Form 990, Part IV, line 21 or 22.
lBullet

Attach to Form 990.
lBullet

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

Open to Public
Inspection

Name of the organization
CYSTIC FIBROSIS FOUNDATION

Employer identification number
13-1930701

Part I

General Information on Grants and Assistance

Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ........................

Yes No

Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.

Part II

Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" on Form 990, Part IV, line 21, for any recipient

that received more than $5,000. Part II can be duplicated if additional space is needed.

(a) Name and address of organization or government	(b) EIN	(c) IRC section (if applicable)	(d) Amount of cash grant	(h) Purpose of grant or assistance
(1) Advocate Charitable Foundation 2025 Windsor Dr Oak Brook,IL60523	36-3297360	501C(3)	43,047	ADULT CARE
(2) Advocate Charitable Foundation	36-3297360	501C(3)	204,730	CF CARE CENTER
(3) Albany Medical College	14-1338310	501c(3)	202,590	CF CARE CENTER
(4) Albert Einstein College of Medicine	83-0621846	501C(3)	56,000	PILOT STUDY
(5) All Children's Research Institute Inc	59-2481742	501c(3)	168,372	CLINICAL RESEARCH CENTER
(6) Ann & Robert H Lurie Children's Hospital of Chicago	36-2170833	501c(3)	56,172	ADULT CARE
(7) Ann & Robert H Lurie Children's Hospital of Chicago	36-2170833	501c(3)	173,000	CF CARE CENTER
(8) Ann & Robert H Lurie Children's Hospital of Chicago	36-2170833	501c(3)	111,237	CLINICAL RESEARCH CENTER
(9) Ann & Robert H Lurie Children's Hospital of Chicago	36-2170833	501c(3)	130,000	RESEARCH
(10) Ann & Robert H Lurie Children's Hospital of Chicago	36-2170833	501c(3)	134,000	TRAINING
(11) Arkansas Children's Hospital Research Institute Inc	71-0694931	501C(3)	162,520	CF CARE CENTER
(12) Arkansas Children's Hospital Research Institute Inc	71-0694931	501C(3)	49,999	CLINICAL RESEARCH STUDY
(13) Ascension Seton	74-1109643	501c(3)	394,953	CF CARE CENTER
(14) Ascension Seton	74-1109643	501c(3)	105,526	CLINICAL RESEARCH CENTER
(15) Ascension Seton	74-1109643	501c(3)	55,999	QUALITY IMPROVEMENT
(16) Atlantic Health System Inc	52-1958352	501c(3)	190,338	CF CARE CENTER
(17) Atlantic Health System Inc	52-1958352	501c(3)	104,622	CLINICAL RESEARCH CENTER
(18) Atrium Health Foundation	56-6060481	501C(3)	36,960	ADULT CARE
(19) Atrium Health Foundation	56-6060481	501C(3)	344,313	CF CARE CENTER
(20) Augusta University Research Institute Inc	58-1418202	501c(3)	220,173	CF CARE CENTER
(21) Augusta University Research Institute Inc	58-1418202	501c(3)	92,128	CLINICAL RESEARCH CENTER
(22) Augusta University Research Institute Inc	58-1418202	501c(3)	84,000	QUALITY IMPROVEMENT
(23) Baylor College of Medicine	74-1613878	501c(3)	19,455	ADHERENCE
(24) Baylor College of Medicine	74-1613878	501c(3)	575,049	CF CARE CENTER
(25) Baylor College of Medicine	74-1613878	501c(3)	197,668	CLINICAL RESEARCH CENTER
(26) Baylor College of Medicine	74-1613878	501c(3)	16,663	CLINICAL RESEARCH STUDY
(27) Baylor Scott & White Health	46-3131350	501C(3)	123,310	CF CARE CENTER
(28) Baystate Medical Center Inc	04-2790311	501C(3)	63,210	CF CARE CENTER
(29) Baystate Medical Center Inc	04-2790311	501C(3)	66,990	TRAINING
(30) Benaroya Research Institute at Virginia Mason	91-0653422	501C(3)	166,387	RESEARCH
(31) Beth Israel Deaconess Medical Center Inc	04-2103881	501c(3)	57,780	CLINICAL RESEARCH
(32) Billings Clinic Foundation	81-0407289	501C(3)	181,940	CF CARE CENTER
(33) Billings Clinic Foundation	81-0407289	501C(3)	72,333	CLINICAL RESEARCH CENTER
(34) Board of Regents of the University of Nebraska	47-0049123	501c(3)	442,698	CF CARE CENTER
(35) Board of Regents of the University of Nebraska	47-0049123	501c(3)	120,718	CLINICAL RESEARCH CENTER
(36) Board of Regents of the University of Oklahoma Health Sciences Center	73-1563627	501C(3)	281,890	CF CARE CENTER
(37) Board of Regents of the University of Oklahoma Health Sciences Center	73-1563627	501C(3)	127,019	CLINICAL RESEARCH CENTER
(38) Board of Regents of the University of Oklahoma Health Sciences Center	73-1563627	501C(3)	10,000	TRAINING
(39) Board of Regents of the University of Wisconsin System	39-6006492	IRC 115	223,862	ADHERENCE
(40) Board of Regents of the University of Wisconsin System	39-6006492	IRC 115	389,501	CF CARE CENTER
(41) Board of Regents of the University of Wisconsin System	39-6006492	IRC 115	180,190	CLINICAL RESEARCH CENTER
(42) Board of Trustees of Michigan State University	38-6005984	501C(3)	33,974	ADULT CARE
(43) Board of Trustees of Michigan State University	38-6005984	501C(3)	149,385	CF CARE CENTER
(44) Board of Trustees of Michigan State University	38-6005984	501C(3)	119,499	THERAPEUTICS DISCOVERY RESEARCH
(45) Board of Trustees of Southern Illinois University	37-6005961	501C(3)	43,576	CF CARE CENTER
(46) Board of Trustees of the Leland Stanford Junior University	94-1156365	501c(3)	23,520	ADHERENCE
(47) Board of Trustees of the Leland Stanford Junior University	94-1156365	501c(3)	143,516	ADULT CARE
(48) Board of Trustees of the Leland Stanford Junior University	94-1156365	501c(3)	376,770	CF CARE CENTER
(49) Board of Trustees of the Leland Stanford Junior University	94-1156365	501c(3)	217,172	CLINICAL CARE RESEARCH
(50) Board of Trustees of the Leland Stanford Junior University	94-1156365	501c(3)	138,650	CLINICAL RESEARCH CENTER
(51) Board of Trustees of the Leland Stanford Junior University	94-1156365	501c(3)	27,604	QUALITY IMPROVEMENT
(52) Board of Trustees of the Leland Stanford Junior University	94-1156365	501c(3)	418,000	RESEARCH
(53) Board of Trustees of the Leland Stanford Junior University	94-1156365	501c(3)	152,000	RESEARCH STUDY
(54) Board of Trustees of the Leland Stanford Junior University	94-1156365	501c(3)	67,000	TRAINING
(55) Boston Children's Health Physicians LLP	13-3956599	LLP	227,920	CF CARE CENTER
(56) Boston Children's Health Physicians LLP	13-3956599	LLP	129,900	CLINICAL RESEARCH CENTER
(57) Brigham and Women's Hospital Inc	04-2312909	501C(3)	170,755	PILOT STUDY
(58) Brigham and Women's Hospital Inc	04-2312909	501C(3)	76,000	RESEARCH STUDY
(59) Brigham and Women's Hospital Inc	04-2312909	501C(3)	130,601	TRAINING
(60) CAMC Health Education and Research Institute Inc	55-0753754	501C(3)	93,620	CF CARE CENTER
(61) Carnegie Mellon University	25-0969449	501C(3)	50,000	CLINICAL RESEARCH STUDY
(62) Carnegie Mellon University	25-0969449	501C(3)	56,000	PILOT STUDY
(63) Carnegie Mellon University	25-0969449	501C(3)	110,000	RESEARCH STUDY
(64) Case Western Reserve University	34-1018992	501c(3)	168,000	CLINICAL RESEARCH CENTER
(65) Case Western Reserve University	34-1018992	501c(3)	112,000	PILOT STUDY
(66) Case Western Reserve University	34-1018992	501c(3)	2,183,802	RESEARCH
(67) Case Western Reserve University	34-1018992	501c(3)	2,022,810	RESEARCH CENTER
(68) Case Western Reserve University	34-1018992	501c(3)	156,890	RESEARCH STUDY
(69) Case Western Reserve University	34-1018992	501c(3)	107,287	TRAINING
(70) Cedars Sinai Medical Center	95-1644600	501c(3)	112,000	PILOT STUDY
(71) Cedars Sinai Medical Center	95-1644600	501c(3)	586,000	RESEARCH
(72) Cedars Sinai Medical Center	95-1644600	501c(3)	250,000	RESEARCH CENTER
(73) Cedars Sinai Medical Center	95-1644600	501c(3)	151,000	RESEARCH STUDY
(74) Cedars Sinai Medical Center	95-1644600	501c(3)	224,000	THERAPEUTICS DISCOVERY RESEARCH
(75) Center for Public Health Innovation	93-4703123	501C(3)	299,118	CLINICAL CARE RESEARCH
(76) Center for Public Health Innovation	93-4703123	501C(3)	83,009	QUALITY IMPROVEMENT
(77) Central Florida Pulmonary Group PA	59-1760017	C CORP	160,750	CF CARE CENTER
(78) Central Florida Pulmonary Group PA	59-1760017	C CORP	72,188	CLINICAL RESEARCH CENTER
(79) Chattanooga Hamilton County Hospital Authority	62-6000101	501C(3)	82,670	CF CARE CENTER
(80) Children's Health Care	41-1754276	501c(3)	137,920	CF CARE CENTER
(81) Children's Health Care	41-1754276	501c(3)	132,508	CLINICAL RESEARCH CENTER
(82) Children's Hospital Corporation	04-2774441	501c(3)	1,738,647	ADHERENCE
(83) Children's Hospital Corporation	04-2774441	501c(3)	539,799	CF CARE CENTER
(84) Children's Hospital Corporation	04-2774441	501c(3)	931,134	CLINICAL RESEARCH CENTER
(85) Children's Hospital Corporation	04-2774441	501c(3)	716,089	CLINICAL RESEARCH STUDY
(86) Children's Hospital Corporation	04-2774441	501c(3)	111,998	QUALITY IMPROVEMENT
(87) Children's Hospital Corporation	04-2774441	501c(3)	436,054	RESEARCH
(88) Children's Hospital Corporation	04-2774441	501c(3)	75,000	RESEARCH STUDY
(89) Children's Hospital Corporation	04-2774441	501c(3)	134,000	TRAINING
(90) Children's Hospital Los Angeles	95-1690977	501c(3)	156,820	CF CARE CENTER
(91) Children's Hospital Los Angeles	95-1690977	501c(3)	119,481	CLINICAL RESEARCH CENTER
(92) Children's Hospital Los Angeles	95-1690977	501c(3)	50,000	CLINICAL RESEARCH STUDY
(93) Children's Hospital Los Angeles	95-1690977	501c(3)	298,964	RESEARCH
(94) Children's Hospital Los Angeles	95-1690977	501c(3)	200,099	TRAINING
(95) Children's Hospital Medical Center	31-0833936	501c(3)	33,593	ADHERENCE
(96) Children's Hospital Medical Center	31-0833936	501c(3)	210,850	CF CARE CENTER
(97) Children's Hospital Medical Center	31-0833936	501c(3)	352,110	CLINICAL RESEARCH
(98) Children's Hospital Medical Center	31-0833936	501c(3)	286,542	CLINICAL RESEARCH CENTER
(99) Children's Hospital Medical Center	31-0833936	501c(3)	317,070	CLINICAL RESEARCH STUDY
(100) Children's Hospital Medical Center	31-0833936	501c(3)	296,617	QUALITY IMPROVEMENT
(101) Children's Hospital Medical Center	31-0833936	501c(3)	547,992	RESEARCH CENTER
(102) Children's Hospital Medical Center	31-0833936	501c(3)	75,000	RESEARCH STUDY
(103) Children's Hospital Medical Center	31-0833936	501c(3)	267,321	TRAINING
(104) Children's Hospital Medical Center of Akron	34-0714357	501c(3)	36,523	ADULT CARE
(105) Children's Hospital Medical Center of Akron	34-0714357	501c(3)	255,580	CF CARE CENTER
(106) Children's Hospital Medical Center of Akron	34-0714357	501c(3)	138,421	CLINICAL RESEARCH CENTER
(107) Children's Hospital of Orange County	95-2321786	501C(3)	115,980	CF CARE CENTER
(108) Children's Hospital of Orange County	95-2321786	501C(3)	84,481	CLINICAL RESEARCH CENTER
(109) Children's Hospital of Orange County	95-2321786	501C(3)	56,000	QUALITY IMPROVEMENT
(110) Children's Hospital of Pittsburgh Foundation	25-1865744	501C(3)	465,730	CF CARE CENTER
(111) Children's Lung Specialists Craig Nakamura MD LTD	88-0271963	501C(3)	190,780	CF CARE CENTER
(112) Children's Research Institute	52-1654453	501C(3)	189,490	CF CARE CENTER
(113) Children's Research Institute	52-1654453	501C(3)	99,568	CLINICAL RESEARCH CENTER
(114) Children's Specialty Group PLLC	54-1871633	LLC	192,250	CF CARE CENTER
(115) Christiana Care Health Services Inc	51-0103684	501C(3)	43,047	ADULT CARE
(116) Christiana Care Health Services Inc	51-0103684	501C(3)	47,884	CF CARE CENTER
(117) Clemson University	57-6000254	501C(3)	50,000	CLINICAL RESEARCH STUDY
(118) Colorado State University	84-6000545	IRC 115	111,128	PILOT STUDY
(119) Colorado State University	84-6000545	IRC 115	167,996	RESEARCH
(120) Connecticut Children's Medical Center	06-0646755	501c(3)	100,905	CF CARE CENTER
(121) Cook Children's Medical Center	75-2051646	501c(3)	353,350	CF CARE CENTER
(122) Cook Children's Medical Center	75-2051646	501c(3)	166,732	CLINICAL RESEARCH CENTER
(123) Cook Children's Medical Center	75-2051646	501c(3)	84,000	QUALITY IMPROVEMENT
(124) Curators of the University of Missouri	43-6003859	501C(3)	263,588	CF CARE CENTER
(125) Curators of the University of Missouri	43-6003859	501C(3)	56,000	PILOT STUDY
(126) Curators of the University of Missouri	43-6003859	501C(3)	168,000	RESEARCH
(127) Curators of the University of Missouri	43-6003859	501C(3)	76,000	RESEARCH STUDY
(128) Dartmouth-Hitchcock Clinic	22-2519596	501C(3)	249,146	CLINICAL RESEARCH STUDY
(129) Dayton Childrens Hospital	31-0672132	501c(3)	220,190	CF CARE CENTER
(130) Dayton Childrens Hospital	31-0672132	501c(3)	105,963	CLINICAL RESEARCH CENTER
(131) Drexel University	23-1352630	501C(3)	93,780	CF CARE CENTER
(132) Driscoll Children's Hospital	74-2577746	501C(3)	89,130	CF CARE CENTER
(133) Duke University	56-0532129	501c(3)	42,007	ADULT CARE
(134) Duke University	56-0532129	501c(3)	195,714	CF CARE CENTER
(135) Duke University	56-0532129	501c(3)	773,403	CLINICAL CARE RESEARCH
(136) Duke University	56-0532129	501c(3)	129,478	CLINICAL RESEARCH STUDY
(137) Duke University	56-0532129	501c(3)	84,803	TRAINING
(138) East Carolina University	56-6000403	IRC 115	43,090	CF CARE CENTER
(139) East Tennessee Children's Hospital Association Inc	62-6002604	501C(3)	151,040	CF CARE CENTER
(140) Eastern Maine Medical Center	01-0211501	501C(3)	65,880	CF CARE CENTER
(141) Emory University	58-0566256	501c(3)	23,519	ADHERENCE
(142) Emory University	58-0566256	501c(3)	613,061	CF CARE CENTER
(143) Emory University	58-0566256	501c(3)	383,813	CLINICAL CARE RESEARCH
(144) Emory University	58-0566256	501c(3)	283,584	CLINICAL RESEARCH CENTER
(145) Emory University	58-0566256	501c(3)	398,060	CLINICAL RESEARCH STUDY
(146) Emory University	58-0566256	501c(3)	207,349	QUALITY IMPROVEMENT
(147) Emory University	58-0566256	501c(3)	1,078,305	RESEARCH
(148) Emory University	58-0566256	501c(3)	152,999	RESEARCH STUDY
(149) Emory University	58-0566256	501c(3)	633,668	THERAPEUTICS DISCOVERY RESEARCH
(150) Emory University	58-0566256	501c(3)	204,999	TRAINING
(151) Fred Hutchinson Cancer Center	91-1935159	501C(3)	85,000	RESEARCH STUDY
(152) Geisinger Clinic	23-6291113	501C(3)	258,858	CF CARE CENTER
(153) Georgia Department of Public Health	90-0676388	GOVERNMENT ENTITY	78,168	QUALITY IMPROVEMENT
(154) Georgia Tech Research Corporation	58-0603146	IRC 115	56,000	PILOT STUDY
(155) Georgia Tech Research Corporation	58-0603146	IRC 115	156,250	RESEARCH
(156) Georgia Tech Research Corporation	58-0603146	IRC 115	75,000	RESEARCH STUDY
(157) Georgia Tech Research Corporation	58-0603146	IRC 115	425,879	THERAPEUTICS DISCOVERY RESEARCH
(158) Gundersen Lutheran Medical Foundation Inc	39-1249705	501C(3)	63,755	CF CARE CENTER
(159) Hartford Hospital	06-0646668	501C(3)	103,730	CF CARE CENTER
(160) Health Research Inc New York State Department of Health	14-1402155	501C(3)	81,572	QUALITY IMPROVEMENT
(161) HEALTHWELL FOUNDATION	20-0413676	501C(3)	3,000,000	Patient Assistance
(162) Henry M Jackson Foundation for the advancement of Military Medicine Inc	52-1317896	501C(3)	47,500	CF CARE CENTER
(163) HMH Hospitals Corporation	22-1487576	501C(3)	124,999	RESEARCH
(164) HMH Hospitals Corporation	22-1487576	501C(3)	200,000	THERAPEUTICS DISCOVERY RESEARCH
(165) ICAHN School of Medicine at Mount Sinai	13-6171197	501C(3)	111,929	PILOT STUDY
(166) ICAHN School of Medicine at Mount Sinai	13-6171197	501C(3)	335,350	RESEARCH
(167) Inova Health Care Services	54-0620889	501C(3)	43,866	ADULT CARE
(168) Inova Health Care Services	54-0620889	501C(3)	277,570	CF CARE CENTER
(169) Inova Health Care Services	54-0620889	501C(3)	67,536	CLINICAL RESEARCH CENTER
(170) IOM Health Systems LP	35-1963748	C CORP	61,840	CF CARE CENTER
(171) Iowa Health Foundation	42-1467682	501C(3)	108,260	CF CARE CENTER
(172) Jaeb Center for Health Research Foundation Inc	59-3187624	501C(3)	6,907,230	CLINICAL RESEARCH STUDY
(173) Joe DiMaggio Children's Hospital Foundation Inc	65-0492343	501C(3)	69,943	CF CARE CENTER
(174) Joe DiMaggio Children's Hospital Foundation Inc	65-0492343	501C(3)	11,200	CLINICAL RESEARCH CENTER
(175) Joe DiMaggio Children's Hospital Foundation Inc	65-0492343	501C(3)	59,523	CLINICAL RESEARCH STUDY
(176) Johns Hopkins All Children's Hospital Inc	59-0683252	501c(3)	190,990	CF CARE CENTER
(177) Johns Hopkins All Children's Hospital Inc	59-0683252	501c(3)	84,000	QUALITY IMPROVEMENT
(178) Johns Hopkins University	52-0595110	501c(3)	23,520	ADHERENCE
(179) Johns Hopkins University	52-0595110	501c(3)	55,592	ADULT CARE
(180) Johns Hopkins University	52-0595110	501c(3)	476,660	CF CARE CENTER
(181) Johns Hopkins University	52-0595110	501c(3)	993,137	CLINICAL CARE RESEARCH
(182) Johns Hopkins University	52-0595110	501c(3)	245,601	CLINICAL RESEARCH CENTER
(183) Johns Hopkins University	52-0595110	501c(3)	875,850	CLINICAL RESEARCH STUDY
(184) Johns Hopkins University	52-0595110	501c(3)	280,000	RESEARCH
(185) Johns Hopkins University	52-0595110	501c(3)	74,996	RESEARCH STUDY
(186) Johns Hopkins University	52-0595110	501c(3)	1,178,622	THERAPEUTICS DISCOVERY RESEARCH
(187) Johns Hopkins University	52-0595110	501c(3)	172,000	TRAINING
(188) Kaiser Foundation Research Institute a division of Kaiser Foundation Hospit als	94-1105628	501C(3)	545,982	CF CARE CENTER
(189) Landon Pediatric Foundation	93-1097216	501C(3)	43,710	CF CARE CENTER
(190) Lee Memorial Health System Foundation Inc	65-0645343	501C(3)	49,520	CF CARE CENTER
(191) Lehigh Valley Hospital Inc	23-1689692	501C(3)	87,300	CF CARE CENTER
(192) Lenox Hill Hospital	13-1624070	501C(3)	175,820	CF CARE CENTER
(193) Lenox Hill Hospital	13-1624070	501C(3)	192,578	CLINICAL RESEARCH CENTER
(194) Life Sciences Research Foundation	52-1231801	501C(3)	86,240	THERAPEUTICS DISCOVERY RESEARCH
(195) Loma Linda University	95-1816009	501C(3)	92,280	CF CARE CENTER
(196) Long Island Jewish Medical Center	11-2241326	501C(3)	258,740	CF CARE CENTER
(197) Long Island Jewish Medical Center	11-2241326	501C(3)	153,398	CLINICAL RESEARCH CENTER
(198) Louisiana State University Health Sciences Center	72-0702002	501C(3)	167,170	CF CARE CENTER
(199) Loyola University Chicago	36-1408475	501c(3)	214,760	CLINICAL CARE RESEARCH
(200) Loyola University Medical Center	36-4015560	501C(3)	96,660	CF CARE CENTER
(201) Maine Medical Center	01-0238552	501c(3)	245,960	CF CARE CENTER
(202) Maine Medical Center	01-0238552	501c(3)	138,038	CLINICAL RESEARCH CENTER
(203) Marshfield Clinic Inc	39-0452970	501C(3)	60,520	CF CARE CENTER
(204) Mary Bridge Children's Foundation	94-3030039	501C(3)	132,805	CF CARE CENTER
(205) Massachusetts Institute of Technology	04-2103594	501C(3)	85,000	RESEARCH STUDY
(206) Mayo Clinic	41-6011702	501C(3)	162,460	CF CARE CENTER
(207) Mayo Clinic Jacksonville	59-3337028	501C(3)	104,070	CF CARE CENTER
(208) Mayo Clinic Jacksonville	59-3337028	501C(3)	2,800	CLINICAL RESEARCH STUDY
(209) Medical University of South Carolina	57-6000722	IRC 115	43,047	ADULT CARE
(210) Medical University of South Carolina	57-6000722	IRC 115	236,590	CF CARE CENTER
(211) Medical University of South Carolina	57-6000722	IRC 115	213,297	CLINICAL RESEARCH CENTER
(212) Memorial Health Services	95-1643381	501C(3)	119,267	CLINICAL RESEARCH CENTER
(213) Memorial Medical Center Foundation	95-6105984	501C(3)	209,100	CF CARE CENTER
(214) MH Mission Hospital LLLP	83-2048706	LLP	55,010	CF CARE CENTER
(215) Middle East Cystic Fibrosis Association	85-1096028	170(B)(1)(A)(VI)	74,895	QUALITY IMPROVEMENT
(216) Monmouth Medical Center Foundation	22-2456079	501C(3)	153,800	CF CARE CENTER
(217) National Disease Research Interchange	23-2213205	501C(3)	246,727	THERAPEUTICS DISCOVERY RESEARCH
(218) National Jewish Health	74-2044647	501c(3)	23,520	ADHERENCE
(219) National Jewish Health	74-2044647	501c(3)	468,421	CF CARE CENTER
(220) National Jewish Health	74-2044647	501c(3)	392,074	CLINICAL RESEARCH
(221) National Jewish Health	74-2044647	501c(3)	618,968	CLINICAL RESEARCH CENTER
(222) National Jewish Health	74-2044647	501c(3)	1,170,525	CLINICAL RESEARCH STUDY
(223) National Jewish Health	74-2044647	501c(3)	111,627	PILOT STUDY
(224) National Jewish Health	74-2044647	501c(3)	155,970	RESEARCH
(225) National Jewish Health	74-2044647	501c(3)	76,000	RESEARCH STUDY
(226) New York University	13-5562308	501C(3)	132,940	CF CARE CENTER
(227) New York University	13-5562308	501C(3)	168,000	RESEARCH
(228) North Suburban Pulmonary and Critical Care Consultants SC	36-4393017	C CORP	45,720	CF CARE CENTER
(229) Northwestern University	36-2167817	501c(3)	63,881	ADHERENCE
(230) Northwestern University	36-2167817	501c(3)	150,460	CF CARE CENTER
(231) Northwestern University	36-2167817	501c(3)	94,759	CLINICAL RESEARCH CENTER
(232) Northwestern University	36-2167817	501c(3)	138,751	CLINICAL RESEARCH STUDY
(233) Northwestern University	36-2167817	501c(3)	101,500	TRAINING
(234) Oklahoma State University	73-1383996	501C(3)	18,118	ADHERENCE
(235) Oregon Health & Science University	93-1176109	501c(3)	110,272	ADULT CARE
(236) Oregon Health & Science University	93-1176109	501c(3)	408,894	CF CARE CENTER
(237) Oregon Health & Science University	93-1176109	501c(3)	249,318	CLINICAL RESEARCH CENTER
(238) Oregon Health & Science University	93-1176109	501c(3)	154,555	QUALITY IMPROVEMENT
(239) Oregon State University	61-1730890	IRC 115	56,000	PILOT STUDY
(240) Oregon State University	61-1730890	IRC 115	168,000	RESEARCH
(241) Oregon State University	61-1730890	IRC 115	74,995	RESEARCH STUDY
(242) Orlando Health Foundation Inc	59-2244943	501C(3)	108,420	CF CARE CENTER
(243) Parkview Hospital Inc	35-0868085	501C(3)	55,400	CF CARE CENTER
(244) Pensacola Lung Group MDs PA	59-2313481	501C(3)	72,500	CF CARE CENTER
(245) Phoenix Children's Hospital Foundation	74-2421549	501C(3)	412,480	CF CARE CENTER
(246) Phoenix Children's Hospital Foundation	74-2421549	501C(3)	110,611	CLINICAL RESEARCH CENTER
(247) Prisma Health - Upstate	81-1723202	501C(3)	46,005	ADULT CARE
(248) Prisma Health - Upstate	81-1723202	501C(3)	158,850	CF CARE CENTER
(249) Prisma HealthMidlands	58-2296052	501C(3)	158,830	CF CARE CENTER
(250) Providence Health & Services - Washington	51-0216586	501C(3)	297,610	CF CARE CENTER
(251) Providence Health & Services - Washington	51-0216586	501C(3)	132,179	CLINICAL RESEARCH CENTER
(252) Regents of the University of California at Irvine	95-2226406	501C(3)	77,000	RESEARCH STUDY
(253) Regents of the University of California Davis	94-6036494	501c(3)	190,040	CF CARE CENTER
(254) Regents of the University of California Davis	94-6036494	501c(3)	81,410	CLINICAL RESEARCH CENTER
(255) Regents of the University of California San Diego	95-6006144	501c(3)	46,079	ADULT CARE
(256) Regents of the University of California San Diego	95-6006144	501c(3)	445,006	CF CARE CENTER
(257) Regents of the University of California San Diego	95-6006144	501c(3)	169,790	CLINICAL RESEARCH CENTER
(258) Regents of the University of California San Diego	95-6006144	501c(3)	168,000	CLINICAL RESEARCH STUDY
(259) Regents of the University of California San Diego	95-6006144	501c(3)	75,995	RESEARCH STUDY
(260) Regents of the University of Michigan	38-6006309	501c(3)	23,520	ADHERENCE
(261) Regents of the University of Michigan	38-6006309	501c(3)	101,408	ADULT CARE
(262) Regents of the University of Michigan	38-6006309	501c(3)	484,600	CF CARE CENTER
(263) Regents of the University of Michigan	38-6006309	501c(3)	237,977	CLINICAL RESEARCH CENTER
(264) Regents of the University of Michigan	38-6006309	501c(3)	450,390	CLINICAL RESEARCH STUDY
(265) Regents of the University of Michigan	38-6006309	501c(3)	112,000	PILOT STUDY
(266) Regents of the University of Michigan	38-6006309	501c(3)	186,000	QUALITY IMPROVEMENT
(267) Regents of the University of Michigan	38-6006309	501c(3)	1,215,200	RESEARCH
(268) Regents of the University of Michigan	38-6006309	501c(3)	250,000	RESEARCH CENTER
(269) Regents of the University of Michigan	38-6006309	501c(3)	109,997	RESEARCH STUDY
(270) Regents of the University of Michigan	38-6006309	501c(3)	83,600	TRAINING
(271) Regents of the University of Minnesota	41-6007513	IRC 115	34,865	ADHERENCE
(272) Regents of the University of Minnesota	41-6007513	IRC 115	59,429	ADULT CARE
(273) Regents of the University of Minnesota	41-6007513	IRC 115	536,117	CF CARE CENTER
(274) Regents of the University of Minnesota	41-6007513	IRC 115	84,117	CLINICAL RESEARCH
(275) Regents of the University of Minnesota	41-6007513	IRC 115	295,163	CLINICAL RESEARCH CENTER
(276) Regents of the University of Minnesota	41-6007513	IRC 115	51,376	QUALITY IMPROVEMENT
(277) Regents of the University of Minnesota	41-6007513	IRC 115	133,998	TRAINING
(278) Renown Health Foundation	94-2972749	501C(3)	65,450	CF CARE CENTER
(279) Rhode Island Hospital	05-0258954	501C(3)	51,740	ADULT CARE
(280) Rhode Island Hospital	05-0258954	501C(3)	181,659	CF CARE CENTER
(281) Rhode Island Hospital	05-0258954	501C(3)	130,795	RESEARCH
(282) Rush University Medical Center	36-2174823	501C(3)	155,279	CF CARE CENTER
(283) Rutgers The State University of New Jersey	22-6001086	501C(3)	36,960	ADULT CARE
(284) Rutgers The State University of New Jersey	22-6001086	501C(3)	177,600	CF CARE CENTER
(285) Rutgers The State University of New Jersey	22-6001086	501C(3)	98,291	CLINICAL RESEARCH CENTER
(286) Rutgers The State University of New Jersey	22-6001086	501C(3)	168,000	RESEARCH
(287) RWJ Barnabas Health Inc	22-1494440	501C(3)	35,300	ADULT CARE
(288) RWJ Barnabas Health Inc	22-1494440	501C(3)	59,620	CF CARE CENTER
(289) Saint Francis Medical Center	37-0662569	501c(3)	169,330	CF CARE CENTER
(290) Sanford Clinic	46-0447693	501c(3)	190,050	CF CARE CENTER
(291) Sanford Medical Center Fargo	45-0226909	501C(3)	57,620	CF CARE CENTER
(292) Santa Barbara Cottage Hospital	95-1644629	501C(3)	98,080	CF CARE CENTER
(293) Seattle Children's Hospital	91-0564748	501c(3)	18,450	ADHERENCE
(294) Seattle Children's Hospital	91-0564748	501c(3)	182,800	CF CARE CENTER
(295) Seattle Children's Hospital	91-0564748	501c(3)	5,459,200	CLINICAL RESEARCH
(296) Seattle Children's Hospital	91-0564748	501c(3)	10,180,397	CLINICAL RESEARCH CENTER
(297) Seattle Children's Hospital	91-0564748	501c(3)	12,893,328	CLINICAL RESEARCH STUDY
(298) Seattle Children's Hospital	91-0564748	501c(3)	56,000	QUALITY IMPROVEMENT
(299) Seattle Children's Hospital	91-0564748	501c(3)	52,449	RESEARCH
(300) Seattle Children's Hospital	91-0564748	501c(3)	97,729	TRAINING
(301) South Broward Hospital District	59-6014973	501C(3)	216,850	CF CARE CENTER
(302) Spectrum Health Foundation	38-2752328	501c(3)	387,397	CF CARE CENTER
(303) Spectrum Health Foundation	38-2752328	501c(3)	182,986	CLINICAL RESEARCH CENTER
(304) Spectrum Health Foundation	38-2752328	501c(3)	50,848	QUALITY IMPROVEMENT
(305) St Alexius Medical Center	45-0226711	501C(3)	37,270	CF CARE CENTER
(306) St Joseph's Hospital and Medical Center	22-1487602	501C(3)	49,810	CF CARE CENTER
(307) St Jude Children's Research Hospital Inc	62-0646012	501C(3)	84,000	RESEARCH STUDY
(308) St Jude Children's Research Hospital Inc	62-0646012	501C(3)	337,598	THERAPEUTICS DISCOVERY RESEARCH
(309) St Louis University	43-0654872	501c(3)	214,370	CF CARE CENTER
(310) St Louis University	43-0654872	501c(3)	98,007	CLINICAL RESEARCH CENTER
(311) St Louis University	43-0654872	501c(3)	966,263	CLINICAL RESEARCH STUDY
(312) St Luke's Regional Medical Center LTD	82-0161600	501c(3)	205,240	CF CARE CENTER
(313) St Luke's Regional Medical Center LTD	82-0161600	501c(3)	142,557	CLINICAL RESEARCH CENTER
(314) St Vincent Hospital of the Hospital Sisters of the Third Order of St Franci s	39-0817529	501C(3)	167,360	CF CARE CENTER
(315) Stanford Health Care	94-6174066	501C(3)	63,333	CF CARE CENTER
(316) State of Maryland University of Maryland - College ParkBaltimore	52-6002033	IRC 115	56,000	PILOT STUDY
(317) State of Maryland University of Maryland - College ParkBaltimore	52-6002033	IRC 115	78,158	QUALITY IMPROVEMENT
(318) State of Maryland University of Maryland - College ParkBaltimore	52-6002033	IRC 115	489,004	RESEARCH
(319) State of Mississippi - University of Mississippi Medical Center	64-6008520	501C(3)	204,930	CF CARE CENTER
(320) State University of Iowa	42-6004813	IRC 115	287,125	CF CARE CENTER
(321) State University of Iowa	42-6004813	IRC 115	139,157	CLINICAL RESEARCH CENTER
(322) State University of Iowa	42-6004813	IRC 115	422,230	CLINICAL RESEARCH STUDY
(323) State University of Iowa	42-6004813	IRC 115	110,619	PILOT STUDY
(324) State University of Iowa	42-6004813	IRC 115	955,934	RESEARCH
(325) State University of Iowa	42-6004813	IRC 115	900,000	RESEARCH CENTER
(326) State University of Iowa	42-6004813	IRC 115	2,053,746	THERAPEUTICS DISCOVERY RESEARCH
(327) State University of Iowa	42-6004813	IRC 115	7,730	TRAINING
(328) Sutter Bay Hospitals	94-0562680	501C(3)	51,470	CF CARE CENTER
(329) Sutter Medical Center Sacramento	94-1156621	501C(3)	174,088	CF CARE CENTER
(330) Texas A&M AgriLife Research	74-6000541	501C(3)	168,000	RESEARCH
(331) Texas Tech University Health Sciences Center	75-2668014	IRC 115	74,660	CF CARE CENTER
(332) The Administrators of the Tulane Educational Fund	72-0423889	501C(3)	240,750	CF CARE CENTER
(333) The Administrators of the Tulane Educational Fund	72-0423889	501C(3)	113,780	CLINICAL RESEARCH CENTER
(334) The Administrators of the Tulane Educational Fund	72-0423889	501C(3)	273,966	RESEARCH
(335) The American Society of Gene Cell Therapy	91-1766321	C CORP	100,000	THERAPEUTICS DISCOVERY RESEARCH
(336) The Board of Trustees of the University of Arkansas acting for and behalf o f the University of Arkansas for Medical Sciences	71-6046242	IRC 115	244,272	CF CARE CENTER
(337) The Board of Trustees of the University of Arkansas acting for and behalf o f the University of Arkansas for Medical Sciences	71-6046242	IRC 115	165,529	CLINICAL RESEARCH CENTER
(338) The Carle Foundation	37-1119538	501C(3)	67,050	CF CARE CENTER
(339) The Charlotte-Mecklenburg Hospital Authority	56-0529945	501C(3)	184,838	CLINICAL RESEARCH STUDY
(340) The Children's Hospital of Philadelphia	23-1352166	501c(3)	53,794	ADULT CARE
(341) The Children's Hospital of Philadelphia	23-1352166	501c(3)	215,780	CF CARE CENTER
(342) The Children's Hospital of Philadelphia	23-1352166	501c(3)	248,108	CLINICAL RESEARCH
(343) The Children's Hospital of Philadelphia	23-1352166	501c(3)	246,986	CLINICAL RESEARCH CENTER
(344) The Children's Hospital of Philadelphia	23-1352166	501c(3)	588,374	CLINICAL RESEARCH STUDY
(345) The Children's Hospital of Philadelphia	23-1352166	501c(3)	169,446	QUALITY IMPROVEMENT
(346) The Children's Hospital of Philadelphia	23-1352166	501c(3)	75,999	RESEARCH STUDY
(347) The Children's Hospital of Philadelphia	23-1352166	501c(3)	314,265	TRAINING
(348) The Children's Mercy Hospital	44-0605373	501c(3)	191,710	CF CARE CENTER
(349) The Children's Mercy Hospital	44-0605373	501c(3)	168,921	CLINICAL RESEARCH CENTER
(350) The Cleveland Clinic Foundation	34-0714585	501c(3)	60,480	ADULT CARE
(351) The Cleveland Clinic Foundation	34-0714585	501c(3)	185,285	CF CARE CENTER
(352) The Cleveland Clinic Foundation	34-0714585	501c(3)	1,050,149	CLINICAL CARE RESEARCH
(353) The Cleveland Clinic Foundation	34-0714585	501c(3)	90,824	CLINICAL RESEARCH CENTER
(354) The Cleveland Clinic Foundation	34-0714585	501c(3)	50,000	CLINICAL RESEARCH STUDY
(355) The Cleveland Clinic Foundation	34-0714585	501c(3)	28,170	QUALITY IMPROVEMENT
(356) The Cleveland Clinic Foundation	34-0714585	501c(3)	168,000	RESEARCH
(357) The Feinstein Institutes for Medical Research	11-2673595	501c(3)	51,083	ADULT CARE
(358) The General Hospital Corporation	04-2697983	501c(3)	272,130	CF CARE CENTER
(359) The General Hospital Corporation	04-2697983	501c(3)	536,392	CLINICAL CARE RESEARCH
(360) The General Hospital Corporation	04-2697983	501c(3)	626,133	CLINICAL RESEARCH
(361) The General Hospital Corporation	04-2697983	501c(3)	265,735	CLINICAL RESEARCH CENTER
(362) The General Hospital Corporation	04-2697983	501c(3)	556,578	CLINICAL RESEARCH STUDY
(363) The General Hospital Corporation	04-2697983	501c(3)	129,999	RESEARCH
(364) The General Hospital Corporation	04-2697983	501c(3)	138,000	TRAINING
(365) The Hitchcock Foundation	02-0222139	501c(3)	311,878	CF CARE CENTER
(366) The Hitchcock Foundation	02-0222139	501c(3)	152,373	CLINICAL RESEARCH CENTER
(367) The Medical College of Wisconsin Inc	39-0806261	501c(3)	407,218	CF CARE CENTER
(368) The Medical College of Wisconsin Inc	39-0806261	501c(3)	140,474	CLINICAL RESEARCH CENTER
(369) The Medical College of Wisconsin Inc	39-0806261	501c(3)	51,679	QUALITY IMPROVEMENT
(370) The Medical College of Wisconsin Inc	39-0806261	501c(3)	202,791	TRAINING
(371) The Nemours Foundation	59-0634433	501c(3)	23,128	ADHERENCE
(372) The Nemours Foundation	59-0634433	501c(3)	448,060	CF CARE CENTER
(373) The Nemours Foundation	59-0634433	501c(3)	84,132	CLINICAL RESEARCH CENTER
(374) The Nemours Foundation	59-0634433	501c(3)	71,520	QUALITY IMPROVEMENT
(375) The Ohio State University	31-6025986	IRC 115	36,929	ADULT CARE
(376) The Ohio State University	31-6025986	IRC 115	492,280	RESEARCH
(377) The Ohio State University	31-6025986	IRC 115	99,146	TRAINING
(378) The Pennsylvania State University	24-6000376	IRC 115	234,570	CF CARE CENTER
(379) The Pennsylvania State University	24-6000376	IRC 115	100,736	CLINICAL RESEARCH CENTER
(380) The Rector and Visitors of the University of Virginia	54-6001796	501c(3)	299,830	CF CARE CENTER
(381) The Rector and Visitors of the University of Virginia	54-6001796	501c(3)	155,090	CLINICAL RESEARCH CENTER
(382) The Rector and Visitors of the University of Virginia	54-6001796	501c(3)	318,437	CLINICAL RESEARCH STUDY
(383) The Rector and Visitors of the University of Virginia	54-6001796	501c(3)	508,351	QUALITY IMPROVEMENT
(384) The Regents of the University of California Los Angeles	95-6006143	501C(3)	141,654	ADULT CARE
(385) The Regents of the University of California Los Angeles	95-6006143	501C(3)	298,153	CF CARE CENTER
(386) The Regents of the University of California Los Angeles	95-6006143	501C(3)	444,869	CLINICAL CARE RESEARCH
(387) The Regents of the University of California Los Angeles	95-6006143	501C(3)	96,000	CLINICAL RESEARCH
(388) The Regents of the University of California Los Angeles	95-6006143	501C(3)	58,206	CLINICAL RESEARCH CENTER
(389) The Regents of the University of California Los Angeles	95-6006143	501C(3)	144,944	CLINICAL RESEARCH STUDY
(390) The Regents of the University of California Los Angeles	95-6006143	501C(3)	1,117,717	RESEARCH
(391) The Regents of the University of California Los Angeles	95-6006143	501C(3)	224,000	THERAPEUTICS DISCOVERY RESEARCH
(392) The Regents of the University of California Los Angeles	95-6006143	501C(3)	10,000	TRAINING
(393) The Regents of the University of California San Francisco	94-6036493	501c(3)	46,079	ADULT CARE
(394) The Regents of the University of California San Francisco	94-6036493	501c(3)	406,092	CF CARE CENTER
(395) The Regents of the University of California San Francisco	94-6036493	501c(3)	710,753	CLINICAL CARE RESEARCH
(396) The Regents of the University of California San Francisco	94-6036493	501c(3)	155,878	CLINICAL RESEARCH CENTER
(397) The Regents of the University of California San Francisco	94-6036493	501c(3)	233,000	RESEARCH
(398) The Regents of the University of California San Francisco	94-6036493	501c(3)	341,000	TRAINING
(399) The Regents of the University of Colorado	84-6000555	501c(3)	23,383	ADHERENCE
(400) The Regents of the University of Colorado	84-6000555	501c(3)	35,237	ADULT CARE
(401) The Regents of the University of Colorado	84-6000555	501c(3)	332,628	CF CARE CENTER
(402) The Regents of the University of Colorado	84-6000555	501c(3)	84,184	CLINICAL CARE RESEARCH
(403) The Regents of the University of Colorado	84-6000555	501c(3)	570,397	CLINICAL RESEARCH
(404) The Regents of the University of Colorado	84-6000555	501c(3)	662,964	CLINICAL RESEARCH CENTER
(405) The Regents of the University of Colorado	84-6000555	501c(3)	447,422	CLINICAL RESEARCH STUDY
(406) The Regents of the University of Colorado	84-6000555	501c(3)	159,000	RESEARCH
(407) The Regents of the University of Colorado	84-6000555	501c(3)	76,000	RESEARCH STUDY
(408) The Regents of the University of Colorado	84-6000555	501c(3)	584,109	TRAINING
(409) The Research Foundation for State University of New York	14-1368361	501c(3)	20,761	ADHERENCE
(410) The Research Foundation for State University of New York	14-1368361	501c(3)	46,079	ADULT CARE
(411) The Research Foundation for State University of New York	14-1368361	501c(3)	538,995	CF CARE CENTER
(412) The Research Foundation for State University of New York	14-1368361	501c(3)	124,813	CLINICAL RESEARCH CENTER
(413) The Research Foundation for State University of New York	14-1368361	501c(3)	761,029	CLINICAL RESEARCH STUDY
(414) The Research Foundation for State University of New York	14-1368361	501c(3)	84,000	QUALITY IMPROVEMENT
(415) The Research Institute at Nationwide Children's Hospital	31-6056230	501c(3)	87,499	ADULT CARE
(416) The Research Institute at Nationwide Children's Hospital	31-6056230	501c(3)	452,700	CF CARE CENTER
(417) The Research Institute at Nationwide Children's Hospital	31-6056230	501c(3)	205,134	CLINICAL RESEARCH CENTER
(418) The Research Institute at Nationwide Children's Hospital	31-6056230	501c(3)	50,000	CLINICAL RESEARCH STUDY
(419) The Research Institute at Nationwide Children's Hospital	31-6056230	501c(3)	84,000	QUALITY IMPROVEMENT
(420) The Research Institute at Nationwide Children's Hospital	31-6056230	501c(3)	285,631	RESEARCH
(421) The Research Institute at Nationwide Children's Hospital	31-6056230	501c(3)	650,000	RESEARCH CENTER
(422) The Research Institute at Nationwide Children's Hospital	31-6056230	501c(3)	419,978	THERAPEUTICS DISCOVERY RESEARCH
(423) The Research Institute at Nationwide Children's Hospital	31-6056230	501c(3)	134,000	TRAINING
(424) The Tampa General Hospital Foundation	23-7354477	501C(3)	232,690	CF CARE CENTER
(425) The Toledo Hospital	34-4428256	501c(3)	188,152	CF CARE CENTER
(426) The Toledo Hospital	34-4428256	501c(3)	104,000	CLINICAL RESEARCH CENTER
(427) The Trustees of Columbia University in the City of New York	13-5598093	501c(3)	58,648	ADULT CARE
(428) The Trustees of Columbia University in the City of New York	13-5598093	501c(3)	390,492	CF CARE CENTER
(429) The Trustees of Columbia University in the City of New York	13-5598093	501c(3)	271,068	CLINICAL CARE RESEARCH
(430) The Trustees of Columbia University in the City of New York	13-5598093	501c(3)	259,160	CLINICAL RESEARCH CENTER
(431) The Trustees of Columbia University in the City of New York	13-5598093	501c(3)	196,000	QUALITY IMPROVEMENT
(432) The Trustees of Columbia University in the City of New York	13-5598093	501c(3)	1,202,973	RESEARCH
(433) The Trustees of Columbia University in the City of New York	13-5598093	501c(3)	1,415,822	THERAPEUTICS DISCOVERY RESEARCH
(434) The Trustees of Columbia University in the City of New York	13-5598093	501c(3)	201,000	TRAINING
(435) The University of Arizona	74-2652689	IRC 115	23,520	ADHERENCE
(436) The University of Arizona	74-2652689	IRC 115	40,376	ADULT CARE
(437) The University of Arizona	74-2652689	IRC 115	198,750	CF CARE CENTER
(438) The University of Arizona	74-2652689	IRC 115	265,689	CLINICAL RESEARCH CENTER
(439) The University of Arizona	74-2652689	IRC 115	450,232	CLINICAL RESEARCH STUDY
(440) The University of Chicago	36-2177139	501C(3)	127,050	CF CARE CENTER
(441) The University of Tennessee	62-6001636	IRC 115	251,779	CF CARE CENTER
(442) The University of Tennessee	62-6001636	IRC 115	55,168	RESEARCH
(443) The University of Texas Health Science Center at Houston	74-1761309	IRC 115	125,000	RESEARCH
(444) The University of Texas Health Science Center at San Antonio	74-1586031	501C(3)	81,706	ADULT CARE
(445) The University of Texas Health Science Center at San Antonio	74-1586031	501C(3)	248,150	CF CARE CENTER
(446) The University of Texas Health Science Center at San Antonio	74-1586031	501C(3)	74,480	CLINICAL RESEARCH CENTER
(447) The University of Texas Health Science Center at San Antonio	74-1586031	501C(3)	129,411	RESEARCH
(448) The University of Texas Southwestern Medical Center	75-6002868	IRC 115	23,262	ADHERENCE
(449) The University of Texas Southwestern Medical Center	75-6002868	IRC 115	574,800	CF CARE CENTER
(450) The University of Texas Southwestern Medical Center	75-6002868	IRC 115	403,941	CLINICAL RESEARCH CENTER
(451) The University of Texas Southwestern Medical Center	75-6002868	IRC 115	125,395	CLINICAL RESEARCH STUDY
(452) The University of Texas Southwestern Medical Center	75-6002868	IRC 115	304,567	QUALITY IMPROVEMENT
(453) The University of Texas Southwestern Medical Center	75-6002868	IRC 115	135,990	TRAINING
(454) The University of Vermont and State Agricultural College	03-0179440	501c(3)	174,669	CLINICAL RESEARCH CENTER
(455) The University of Vermont and State Agricultural College	03-0179440	501c(3)	168,000	RESEARCH
(456) The University of Vermont Medical Center Inc	03-0219309	501C(3)	15,635	ADHERENCE
(457) The University of Vermont Medical Center Inc	03-0219309	501C(3)	60,480	ADULT CARE
(458) The University of Vermont Medical Center Inc	03-0219309	501C(3)	193,020	CF CARE CENTER
(459) Thomas Jefferson University	23-1352651	501C(3)	43,046	ADULT CARE
(460) Thomas Jefferson University	23-1352651	501C(3)	100,690	CF CARE CENTER
(461) Trustees of Boston University	04-2103547	501C(3)	130,000	RESEARCH
(462) Trustees of Dartmouth College	02-0222111	501c(3)	416,694	CLINICAL RESEARCH STUDY
(463) Trustees of Dartmouth College	02-0222111	501c(3)	56,000	PILOT STUDY
(464) Trustees of Dartmouth College	02-0222111	501c(3)	1,026,711	RESEARCH
(465) Trustees of Dartmouth College	02-0222111	501c(3)	939,998	RESEARCH CENTER
(466) Trustees of Dartmouth College	02-0222111	501c(3)	77,000	RESEARCH STUDY
(467) Trustees of Indiana University	35-6001673	501c(3)	42,778	ADULT CARE
(468) Trustees of Indiana University	35-6001673	501c(3)	678,111	CF CARE CENTER
(469) Trustees of Indiana University	35-6001673	501c(3)	400,493	CLINICAL RESEARCH CENTER
(470) Trustees of Indiana University	35-6001673	501c(3)	4,014,448	CLINICAL RESEARCH STUDY
(471) Trustees of Indiana University	35-6001673	501c(3)	56,000	PILOT STUDY
(472) Trustees of Indiana University	35-6001673	501c(3)	160,061	QUALITY IMPROVEMENT
(473) Trustees of Indiana University	35-6001673	501c(3)	110,000	RESEARCH STUDY
(474) Trustees of Indiana University	35-6001673	501c(3)	267,992	TRAINING
(475) Trustees of the University of Pennsylvania	23-1352685	501c(3)	60,477	ADULT CARE
(476) Trustees of the University of Pennsylvania	23-1352685	501c(3)	361,925	CF CARE CENTER
(477) Trustees of the University of Pennsylvania	23-1352685	501c(3)	127,512	CLINICAL CARE RESEARCH
(478) Trustees of the University of Pennsylvania	23-1352685	501c(3)	98,575	CLINICAL RESEARCH CENTER
(479) Trustees of the University of Pennsylvania	23-1352685	501c(3)	392,098	CLINICAL RESEARCH STUDY
(480) Trustees of the University of Pennsylvania	23-1352685	501c(3)	56,000	PILOT STUDY
(481) Trustees of the University of Pennsylvania	23-1352685	501c(3)	168,000	RESEARCH
(482) Trustees of the University of Pennsylvania	23-1352685	501c(3)	4,000	TRAINING
(483) University at Buffalo Pediatric Associates	16-1238821	501c(3)	205,850	CF CARE CENTER
(484) University at Buffalo Pediatric Associates	16-1238821	501c(3)	83,998	QUALITY IMPROVEMENT
(485) University Health System Inc	31-1626179	501C(3)	166,210	CF CARE CENTER
(486) University Hospitals Cleveland Medical Center	34-1567805	501c(3)	44,006	ADULT CARE
(487) University Hospitals Cleveland Medical Center	34-1567805	501c(3)	356,960	CF CARE CENTER
(488) University Hospitals Cleveland Medical Center	34-1567805	501c(3)	199,358	CLINICAL RESEARCH CENTER
(489) University Hospitals Cleveland Medical Center	34-1567805	501c(3)	115,589	CLINICAL RESEARCH STUDY
(490) University Hospitals Cleveland Medical Center	34-1567805	501c(3)	83,982	QUALITY IMPROVEMENT
(491) University of Alabama at Birmingham	63-6005396	501c(3)	23,520	ADHERENCE
(492) University of Alabama at Birmingham	63-6005396	501c(3)	73,187	ADULT CARE
(493) University of Alabama at Birmingham	63-6005396	501c(3)	478,301	CF CARE CENTER
(494) University of Alabama at Birmingham	63-6005396	501c(3)	90,047	CLINICAL RESEARCH
(495) University of Alabama at Birmingham	63-6005396	501c(3)	664,412	CLINICAL RESEARCH CENTER
(496) University of Alabama at Birmingham	63-6005396	501c(3)	755,978	CLINICAL RESEARCH STUDY
(497) University of Alabama at Birmingham	63-6005396	501c(3)	49,622	PILOT STUDY
(498) University of Alabama at Birmingham	63-6005396	501c(3)	838,749	QUALITY IMPROVEMENT
(499) University of Alabama at Birmingham	63-6005396	501c(3)	2,962,497	RESEARCH
(500) University of Alabama at Birmingham	63-6005396	501c(3)	815,000	RESEARCH CENTER
(501) University of Alabama at Birmingham	63-6005396	501c(3)	110,000	RESEARCH STUDY
(502) University of Alabama at Birmingham	63-6005396	501c(3)	1,671,124	THERAPEUTICS DISCOVERY RESEARCH
(503) University of Alabama at Birmingham	63-6005396	501c(3)	167,000	TRAINING
(504) University of Cincinnati	31-6000989	501C(3)	43,047	ADULT CARE
(505) University of Cincinnati	31-6000989	501C(3)	146,041	CF CARE CENTER
(506) University of Cincinnati	31-6000989	501C(3)	75,741	CLINICAL RESEARCH CENTER
(507) University of Cincinnati	31-6000989	501C(3)	55,960	QUALITY IMPROVEMENT
(508) University of Cincinnati	31-6000989	501C(3)	163,263	RESEARCH
(509) University of Connecticut Health Center	52-1725543	501C(3)	164,371	RESEARCH
(510) University of Florida	59-6002052	IRC 115	53,823	ADULT CARE
(511) University of Florida	59-6002052	IRC 115	289,602	CF CARE CENTER
(512) University of Florida	59-6002052	IRC 115	214,387	CLINICAL RESEARCH CENTER
(513) University of Georgia Research Foundation Inc	58-1353149	501C(3)	192,640	RESEARCH
(514) University of Kansas Medical Center Research Institute Inc	48-1108830	501C(3)	26,654	ADHERENCE
(515) University of Kansas Medical Center Research Institute Inc	48-1108830	501C(3)	302,890	CF CARE CENTER
(516) University of Kansas Medical Center Research Institute Inc	48-1108830	501C(3)	168,615	CLINICAL RESEARCH CENTER
(517) University of Kansas Medical Center Research Institute Inc	48-1108830	501C(3)	50,000	CLINICAL RESEARCH STUDY
(518) University of Kansas Medical Center Research Institute Inc	48-1108830	501C(3)	56,000	PILOT STUDY
(519) University of Kansas Medical Center Research Institute Inc	48-1108830	501C(3)	287,109	RESEARCH
(520) University of Kansas Medical Center Research Institute Inc	48-1108830	501C(3)	75,600	TRAINING
(521) University of Kentucky Research Foundation	61-6033693	501C(3)	334,600	CF CARE CENTER
(522) University of Kentucky Research Foundation	61-6033693	501C(3)	137,600	CLINICAL RESEARCH CENTER
(523) University of Kentucky Research Foundation	61-6033693	501C(3)	163,024	CLINICAL RESEARCH STUDY
(524) University of Louisville Research Foundation Inc	61-1029626	501C(3)	317,846	CF CARE CENTER
(525) University of Louisville Research Foundation Inc	61-1029626	501C(3)	55,827	PILOT STUDY
(526) University of Massachusetts	04-3167352	IRC 115	46,078	ADULT CARE
(527) University of Massachusetts	04-3167352	IRC 115	162,990	CF CARE CENTER
(528) University of Massachusetts	04-3167352	IRC 115	97,003	CLINICAL RESEARCH CENTER
(529) University of Miami	59-0624458	501c(3)	30,369	ADULT CARE
(530) University of Miami	59-0624458	501c(3)	217,429	CF CARE CENTER
(531) University of Miami	59-0624458	501c(3)	224,056	CLINICAL RESEARCH CENTER
(532) University of New Mexico	85-6000642	IRC 115	317,600	CF CARE CENTER
(533) University of North Carolina at Chapel Hill	56-6001393	501c(3)	43,047	ADULT CARE
(534) University of North Carolina at Chapel Hill	56-6001393	501c(3)	574,348	CF CARE CENTER
(535) University of North Carolina at Chapel Hill	56-6001393	501c(3)	105,280	CLINICAL RESEARCH
(536) University of North Carolina at Chapel Hill	56-6001393	501c(3)	969,087	CLINICAL RESEARCH CENTER
(537) University of North Carolina at Chapel Hill	56-6001393	501c(3)	526,225	CLINICAL RESEARCH STUDY
(538) University of North Carolina at Chapel Hill	56-6001393	501c(3)	56,000	PILOT STUDY
(539) University of North Carolina at Chapel Hill	56-6001393	501c(3)	172,835	QUALITY IMPROVEMENT
(540) University of North Carolina at Chapel Hill	56-6001393	501c(3)	1,044,102	RESEARCH
(541) University of North Carolina at Chapel Hill	56-6001393	501c(3)	900,000	RESEARCH CENTER
(542) University of North Carolina at Chapel Hill	56-6001393	501c(3)	377,000	RESEARCH STUDY
(543) University of North Carolina at Chapel Hill	56-6001393	501c(3)	1,258,183	THERAPEUTICS DISCOVERY RESEARCH
(544) University of North Carolina at Chapel Hill	56-6001393	501c(3)	316,500	TRAINING
(545) University of Pittsburgh	25-0965591	501c(3)	19,612	ADHERENCE
(546) University of Pittsburgh	25-0965591	501c(3)	57,731	CLINICAL CARE RESEARCH
(547) University of Pittsburgh	25-0965591	501c(3)	397,920	CLINICAL RESEARCH CENTER
(548) University of Pittsburgh	25-0965591	501c(3)	583,738	CLINICAL RESEARCH STUDY
(549) University of Pittsburgh	25-0965591	501c(3)	111,879	PILOT STUDY
(550) University of Pittsburgh	25-0965591	501c(3)	144,821	RESEARCH
(551) University of Pittsburgh	25-0965591	501c(3)	109,036	RESEARCH CENTER
(552) University of Pittsburgh	25-0965591	501c(3)	148,000	TRAINING
(553) University of Rochester	16-0743209	501c(3)	46,079	ADULT CARE
(554) University of Rochester	16-0743209	501c(3)	205,810	CF CARE CENTER
(555) University of Rochester	16-0743209	501c(3)	83,428	CLINICAL RESEARCH CENTER
(556) University of Rochester	16-0743209	501c(3)	55,682	PILOT STUDY
(557) University of South Alabama	63-0477348	501C(3)	76,000	RESEARCH STUDY
(558) University of South Florida	59-3102112	IRC 115	77,440	CF CARE CENTER
(559) University of South Florida	59-3102112	IRC 115	59,497	RESEARCH
(560) University of South Florida	59-3102112	IRC 115	4,000	TRAINING
(561) University of Southern California	95-1642394	501c(3)	197,187	CF CARE CENTER
(562) University of Southern California	95-1642394	501c(3)	53,911	CLINICAL RESEARCH CENTER
(563) University of Southern California	95-1642394	501c(3)	163,995	RESEARCH
(564) University of Texas Health Science Center at Tyler	75-6001354	501C(3)	88,560	CF CARE CENTER
(565) University of Texas Health Science Center at Tyler	75-6001354	501C(3)	18,739	CLINICAL RESEARCH CENTER
(566) University of Texas Health Science Center at Tyler	75-6001354	501C(3)	149,999	RESEARCH
(567) University of Texas MD Anderson Cancer Center	74-6001118	IRC 115	125,000	RESEARCH
(568) University of Utah	87-6000525	501c(3)	60,480	ADULT CARE
(569) University of Utah	87-6000525	501c(3)	648,411	CF CARE CENTER
(570) University of Utah	87-6000525	501c(3)	209,221	CLINICAL RESEARCH CENTER
(571) University of Utah	87-6000525	501c(3)	56,000	QUALITY IMPROVEMENT
(572) University of Utah	87-6000525	501c(3)	67,000	TRAINING
(573) University of Washington	91-6001537	IRC 115	243,970	CF CARE CENTER
(574) University of Washington	91-6001537	IRC 115	414,043	CLINICAL CARE RESEARCH
(575) University of Washington	91-6001537	IRC 115	1,709,639	CLINICAL RESEARCH
(576) University of Washington	91-6001537	IRC 115	477,035	CLINICAL RESEARCH CENTER
(577) University of Washington	91-6001537	IRC 115	2,155,537	CLINICAL RESEARCH STUDY
(578) University of Washington	91-6001537	IRC 115	55,592	PILOT STUDY
(579) University of Washington	91-6001537	IRC 115	374,000	RESEARCH
(580) University of Washington	91-6001537	IRC 115	900,000	RESEARCH CENTER
(581) University of Washington	91-6001537	IRC 115	304,000	RESEARCH STUDY
(582) University of Washington	91-6001537	IRC 115	23,906	THERAPEUTICS DISCOVERY RESEARCH
(583) University of Washington	91-6001537	IRC 115	184,100	TRAINING
(584) University Psychiatric Practice Inc	16-1426208	501C(3)	26,888	CF CARE CENTER
(585) University System of New Hampshire	02-6000937	501C(3)	46,000	QUALITY IMPROVEMENT
(586) Utah State University	87-6000528	501c(3)	124,981	RESEARCH
(587) Valley Children's Hospital	94-1294954	501C(3)	117,300	CF CARE CENTER
(588) Vanderbilt University Medical Center	35-2528741	501c(3)	55,691	ADULT CARE
(589) Vanderbilt University Medical Center	35-2528741	501c(3)	415,748	CF CARE CENTER
(590) Vanderbilt University Medical Center	35-2528741	501c(3)	163,621	CLINICAL RESEARCH CENTER
(591) Vanderbilt University Medical Center	35-2528741	501c(3)	112,000	QUALITY IMPROVEMENT
(592) Variety Children's Hospital	59-0638499	501C(3)	60,120	CF CARE CENTER
(593) VHS Children's Hospital of Michigan Inc	27-2845064	C CORP	107,400	CF CARE CENTER
(594) Via Christi Hospitals Wichita Inc	48-1172106	501C(3)	155,340	CF CARE CENTER
(595) Virginia Commonwealth University	54-6001758	IRC 115	23,520	ADHERENCE
(596) Virginia Commonwealth University	54-6001758	IRC 115	337,871	CF CARE CENTER
(597) Virginia Commonwealth University	54-6001758	IRC 115	107,087	CLINICAL RESEARCH CENTER
(598) Virginia Commonwealth University	54-6001758	IRC 115	111,998	QUALITY IMPROVEMENT
(599) Virginia Polytechnic Institute and State University	54-6001805	501C(3)	166,921	RESEARCH
(600) Wake Forest University Health Sciences	22-3849199	501c(3)	43,047	ADULT CARE
(601) Wake Forest University Health Sciences	22-3849199	501c(3)	175,612	CF CARE CENTER
(602) Wake Forest University Health Sciences	22-3849199	501c(3)	135,817	CLINICAL RESEARCH CENTER
(603) Warren Clinic Inc	73-1310891	501C(3)	123,110	CF CARE CENTER
(604) WASHINGTON HOSPITAL CENTER CORPORATION	52-1272129	501C(3)	43,047	ADULT CARE
(605) Washington University	43-0653611	501c(3)	506,972	CF CARE CENTER
(606) Washington University	43-0653611	501c(3)	441,996	CLINICAL CARE RESEARCH
(607) Washington University	43-0653611	501c(3)	254,010	CLINICAL RESEARCH CENTER
(608) Washington University	43-0653611	501c(3)	596,645	CLINICAL RESEARCH STUDY
(609) Washington University	43-0653611	501c(3)	250,000	RESEARCH CENTER
(610) Washington University	43-0653611	501c(3)	865,569	THERAPEUTICS DISCOVERY RESEARCH
(611) Wayne State University	38-6028429	501c(3)	110,810	CF CARE CENTER
(612) Wayne State University	38-6028429	501c(3)	140,496	CLINICAL RESEARCH CENTER
(613) Weill Medical College of Cornell University	13-1623978	501C(3)	245,582	TRAINING
(614) West Virginia University Research Corporation	55-0665758	501C(3)	201,530	CF CARE CENTER
(615) West Virginia University Research Corporation	55-0665758	501C(3)	76,942	CLINICAL RESEARCH CENTER
(616) West Virginia University Research Corporation	55-0665758	501C(3)	220,218	CLINICAL RESEARCH STUDY
(617) Western Michigan University School of Medicine	45-4135256	501C(3)	40,917	CF CARE CENTER
(618) Yale University	06-0646973	501c(3)	77,534	ADULT CARE
(619) Yale University	06-0646973	501c(3)	229,630	CF CARE CENTER
(620) Yale University	06-0646973	501c(3)	111,981	PILOT STUDY
(621) Yale University	06-0646973	501c(3)	335,930	RESEARCH
(622) Yale University	06-0646973	501c(3)	75,000	RESEARCH STUDY
(623) Yale University	06-0646973	501c(3)	109,000	TRAINING
(624) ZEPHYRX LLC	84-2846558	LLC	95,534	CF CARE CENTER

Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ................. Bullet Image

215

Enter total number of other organizations listed in the line 1 table ........................ . Bullet Image

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50055P

Schedule I (Form 990) Rev. 1-2025

Page 2

Part III

Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" on Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.

(a) Type of grant or assistance	(b) Number of recipients	(c) Amount of cash grant	(d) Amount of noncash assistance	(e) Method of valuation (book, FMV, appraisal, other)	(f) Description of noncash assistance

(1) FELLOWSHIPS	69	580,008
(2) COMMUNITY IMPACT	7	68,903
(2)
(3)
(4)
(5)
(6)
(7)

Part IV

Supplemental Information. Provide the information required in Part I, line 2; Part III, column (b); and any other additional information.

Return Reference

Explanation

Schedule I, Part III

SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS.

Schedule I, Part I, Line 2 Procedures for monitoring use of grant funds

THE CF FOUNDATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE CF FOUNDATION'S SCIENTIFIC STAFF TO ASSESS RESEARCH PROGRESS and grants management staff review financial reports to ensure funders were used as intended. THE FINAL GRANT PAYMENT IS TYPICALLY CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES AND THE FINAL SCIENTIFIC REPORT. In addition, the CF Foundation awards scientific research grants to an academic institution and its affiliate where a key employee also performs part-time cystic fibrosis research. The CF Foundation, the institution, and the individual have established and agreed upon appropriate safeguards to manage potential conflicts of interest, while enabling this mission-critical research to continue.

Schedule I (Form 990) Rev. 1-2025

Additional Data

Software ID:	24020961
Software Version:	2024v5.1

- TIN:

Schedule J
(Form 990)
(Rev. January 2025)

Department of the Treasury
Internal Revenue Service

Compensation Information

For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
medium right arrow graphic

Complete if the organization answered "Yes" on Form 990, Part IV, line 23.
medium right arrow graphic

Attach to Form 990.
medium right arrow graphic

Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Questions Regarding Compensation

Yes

Check the appropiate box(es) if the organization provided any of the following to or for a person listed on Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.

First-class or charter travel Housing allowance or residence for personal use

Travel for companions Payments for business use of personal residence

Tax idemnification and gross-up payments Health or social club dues or initiation fees

Discretionary spending account Personal services (e.g., maid, chauffeur, chef)

If any of the boxes on Line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain .....

Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked on Line 1a? ....

Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.

Compensation committee Written employment contract

Independent compensation consultant Compensation survey or study

Form 990 of other organizations Approval by the board or compensation committee

During the year, did any person listed on Form 990, Part VII, Section A, line 1a, with respect to the filing organization or a related organization:

Receive a severance payment or change-of-control payment? .............

Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........

Yes

Participate in, or receive payment from, an equity-based compensation arrangement? .........

If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.

Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:

The organization? ....................

Yes

Any related organization? .......................

If "Yes," on line 5a or 5b, describe in Part III.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:

The organization? ..................

Any related organization? ......................

If "Yes," on line 6a or 6b, describe in Part III.

For persons listed on Form 990, Part VII, Section A, line 1a, did the organization provide any nonfixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............

Yes

Were any amounts reported on Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III ..........................

If "Yes" on line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 50053T

Schedule J (Form 990) (Rev. 1-2025)

Page 2

Part II

Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.

For each individual whose compensation must be reported on Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.

(A) Name and Title		(B) Breakdown of W-2, 1099-MISC compensation, and/or 1099-NEC			(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)	(F) Compensation in column (B) reported as deferred on prior Form 990
(A) Name and Title		(i) Base compensation	(ii) Bonus & incentive compensation	(iii) Other reportable compensation	(C) Retirement and other deferred compensation	(D) Nontaxable benefits	(E) Total of columns (B)(i)-(D)
1MICHAEL P BOYLE MD PRESIDENT & CEO	(i) (ii)	721,173 ------------- 0	311,579 ------------- 0	21,636 ------------- 0	163,962 ------------- 0	56,801 ------------- 0	1,275,151 ------------- 0	110,514 ------------- 0
2IRENA BARISIC EVP & CHIEF OPERATING & FINANCIAL OFFICER	(i) (ii)	610,580 ------------- 0	150,219 ------------- 0	1,140 ------------- 0	80,370 ------------- 0	2,246 ------------- 0	844,555 ------------- 0	0 ------------- 0
3MICHAEL B CAVADEL SVP, CHIEF LEGAL OFFICER	(i) (ii)	470,090 ------------- 0	86,964 ------------- 0	1,081 ------------- 0	65,989 ------------- 0	37,073 ------------- 0	661,197 ------------- 0	0 ------------- 0
4STEVEn ROWE MD EVP, Chief Scientific Officer	(i) (ii)	438,558 ------------- 0	93,679 ------------- 0	2,418 ------------- 0	78,210 ------------- 0	54,341 ------------- 0	667,206 ------------- 0	0 ------------- 0
5JOHN C MAHLER JR MD CHIEF INVESTMENT OFFICER	(i) (ii)	766,301 ------------- 0	1,091,398 ------------- 0	9,169 ------------- 0	34,656 ------------- 0	41,103 ------------- 0	1,942,627 ------------- 0	0 ------------- 0
6BRUCE MARSHALL MD Chief Medical Officer Ending 7/1/2024	(i) (ii)	359,859 ------------- 0	150,051 ------------- 0	5,562 ------------- 0	34,656 ------------- 0	0 ------------- 0	550,128 ------------- 0	39,825 ------------- 0
7JOHN P CLANCY MD SVP, CLINICAL RESEARCH	(i) (ii)	523,667 ------------- 0	138,635 ------------- 0	7,524 ------------- 0	41,817 ------------- 0	53,561 ------------- 0	765,204 ------------- 0	33,111 ------------- 0
8ALBERT FARO MD Chief Medical Officer Beg. 7/1/2024	(i) (ii)	480,427 ------------- 0	83,943 ------------- 0	7,302 ------------- 0	37,474 ------------- 0	62,444 ------------- 0	671,590 ------------- 0	14,536 ------------- 0
9EARL A LEE MANAGING DIRECTOR, INVESTMENTS	(i) (ii)	665,920 ------------- 0	558,525 ------------- 0	1,824 ------------- 0	349,255 ------------- 0	19,228 ------------- 0	1,594,752 ------------- 0	174,565 ------------- 0
10ERIC KOEHRSEN MANAGING DIRECTOR, INVESTMENTS	(i) (ii)	600,659 ------------- 0	374,293 ------------- 0	1,153 ------------- 0	248,801 ------------- 0	55,801 ------------- 0	1,280,707 ------------- 0	156,672 ------------- 0
11ANDREW LEWIS MANAGING DIRECTOR, INVESTMENTS	(i) (ii)	469,402 ------------- 0	891,950 ------------- 0	2,102 ------------- 0	20,856 ------------- 0	17,404 ------------- 0	1,401,714 ------------- 0	0 ------------- 0
12GENTIANA S AROVAS MANAGING DIRECTOR, INVESTMENTS OPERATIONS	(i) (ii)	478,673 ------------- 0	161,598 ------------- 0	2,261 ------------- 0	122,786 ------------- 0	54,341 ------------- 0	819,659 ------------- 0	53,221 ------------- 0
13ENRIQUE LIN SHIAO PHD Principal of Mission Related Investments	(i) (ii)	241,850 ------------- 0	265,203 ------------- 0	638 ------------- 0	34,656 ------------- 0	47,295 ------------- 0	589,642 ------------- 0	0 ------------- 0

Schedule J (Form 990) (Rev. 1-2025)

Page 3

Part III

Supplemental Information

Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II. Also complete this part for any additional information.

Return Reference	Explanation
Schedule J, Part I, Line 4b Supplemental nonqualified retirement plan	THE EXECUTIVE LISTED BELOW PARTICIPATED IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. TOTAL PAYMENTS MADE BY THE PLAN TO THE EXECUTIVE DURING THE REPORTING YEAR IS PROVIDED BELOW: NAME: MICHAEL P. BOYLE, M.D. AMOUNT: $14,112
Schedule J, Part I, Line 5a Compensation contingent on revenues of the organization	The CF Foundation Investments Department Incentive Compensation and Retention Plan provides annual cash incentives to the CIO and certain Investment department staff, based on both quantitative and qualitative performance. For eligible staff, a portion is deferred and vests after three years, accruing interest tied to portfolio returns during the deferral period. Awards may be forfeited or paid pro-rata upon death, disability, or separation from service.
Schedule J, Part I, Line 7 Non-fixed payments	SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, PARTICIPATED IN THE CF FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN MAKES NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON the achievement of long-term performance objectives established in ADVANCE BY THE COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PLAN DO NOT INCLUDE PROGRAM RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS.

Schedule J (Form 990) (Rev. 1-2025)

Additional Data

Software ID:	24020961
Software Version:	2024v5.1

- TIN:

SCHEDULE M
(Form 990)

Department of the Treasury

Internal Revenue Service

Noncash Contributions

Complete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Right pointing arrow large image

Attach to Form 990.
Right pointing arrow large image

Go to www.irs.gov/Form990 for the latest information.

OMB No. 1545-0047

2024

Open to Public Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Part I

Types of Property

	(a) Check if applicable	(b) Number of contributions or items contributed	(c) Noncash contribution amounts reported on Form 990, Part VIII, line 1g	(d) Method of determining noncash contribution amounts
1 Art—Works of art ....
2 Art—Historical treasures .
3 Art—Fractional interests ..
4 Books and publications ..
5 Clothing and household goods .......
6 Cars and other vehicles ..		34	25,196	Other - NET CASH RECEIPTS
7 Boats and planes ....
8 Intellectual property ...
9 Securities—Publicly traded .		115	1,647,245	Other - NET CASH RECEIPTS
10 Securities—Closely held stock .
11 Securities—Partnership, LLC, or trust interests ....
12 Securities—Miscellaneous ..
13 Qualified conservation contribution—Historic structures .....
14 Qualified conservation contribution—Other ...
15 Real estate—Residential .
16 Real estate—Commercial ..
17 Real estate—Other ...
18 Collectibles .....
19 Food inventory ...
20 Drugs and medical supplies .
21 Taxidermy ......
22 Historical artifacts ....
23 Scientific specimens ..
24 Archeological artifacts ...
25 Other ( TANGIBLE AND SERVICE AUCTION ITEMS )	X	12,633	7,104,616	Other - NET CASH RECEIPTS
26 Other ( )
27 Other ( )
28 Other ( )

Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement

Yes

30a

During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that it must hold for at least three years from the date of the initial contribution, and which isn't required to be used for exempt purposes for the entire holding period? ...................

30a

If "Yes," describe the arrangement in Part II.

Does the organization have a gift acceptance policy that requires the review of any nonstandard contributions?

Yes

32a

Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash

contributions? ..........................

32a

Yes

If "Yes," describe in Part II.

If the organization didn't report an amount in column (c) for a type of property for which column (a) is checked,

describe in Part II.

For Paperwork Reduction Act Notice, see the Instructions for Form 990.

Cat. No. 51227J

Schedule M (Form 990) (2024)

Page 2

Part IISupplemental Information. Provide the information required by Part I, lines 30b, 32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.

Return Reference	Explanation
Schedule M, Part I, Line 6	THE CF FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS.

Schedule M (Form 990) (2024)

Additional Data

Software ID:	24020961
Software Version:	2024v5.1

- TIN:

SCHEDULE O
(Form 990)
(Rev. January 2025)
Department of the Treasury
Internal Revenue Service

Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
Attach to Form 990 or 990-EZ.
Go to www.irs.gov/Form990 for instructions and the latest information.

OMB No. 1545-0047

Open to Public
Inspection

Name of the organization

CYSTIC FIBROSIS FOUNDATION

Employer identification number

13-1930701

Return Reference	Explanation
Form 990, Part III, Line 1	THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION (CF FOUNDATION) IS TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.
Form 990, Part III, Line 4a	MEDICAL AND RESEARCH PROGRAMS - THE CF FOUNDATION IS THE WORLD'S LEADER IN THE SEARCH FOR A CURE FOR CF, A PROGRESSIVE, GENETIC DISEASE THAT AFFECTS APPROXIMATELY 40,000 PEOPLE IN THE UNITED STATES, AND MORE THAN 100,000 WORLDWIDE, FROM ANY BACKGROUND. THE CF FOUNDATION ANNUALY FUNDS OVER $250 MILLION IN RESEARCH TO HELP DISCOVER AND DEVELOP EFFECTIVE CF THERAPIES, LEARN MORE ABOUT THE SCIENCE OF CF, AND PROMOTE HIGHLY SPECIALIZED CARE. DUE IN PART TO THE CF FOUNDATION'S EFFORTS, THE AVERAGE LIFE EXPECTANCY OF PEOPLE BORN TODAY WITH CF IS NOW MORE THAN 60 YEARS OF AGE, MORE THAN DOUBLE WHAT IT WAS IN 2000. THE CF FOUNDATION FUNDS DISCOVERY AND DEVELOPMENT RESEARCH CONDUCTED BY BIOTECHNOLOGY AND PHARMACEUTICAL COMPANIES AND ACADEMIC RESEARCH CENTERS. THE CF FOUNDATION DRUG DEVELOPMENT PIPELINE HAS DOZENS OF THERAPIES IN DEVELOPMENT INCLUDING TREATMENTS THAT ADDRESS COMPLICATIONS, LIKE INFECTIONS, AND GENETIC THERAPIES THAT COULD ONE DAY LEAD TO A CURE FOR ALL PEOPLE WITH CF, INCLUDING THOSE WITH RARE AND NONSENSE DISEASE-CAUSING MUTATIONS. THE CF FOUNDATION THERAPEUTICS LAB HELPS EXPEDITE THE EARLY STAGES OF DRUG DISCOVERY THAT COULD CORRECT OR IMPROVE THE FUNCTION OF THE DEFECTIVE CYSTIC FIBROSIS TRANSMEMBRANE CONDUCTANCE REGULATOR (CFTR) PROTEIN. THE LAB BRIDGES THE GAP BETWEEN DISCOVERIES MADE AT ACADEMIC INSTITUTIONS AND THE DEVELOPMENT OF NEW MEDICATIONS BY THE PHARMACEUTICAL INDUSTRY. TO SUPPORT ITS MISSION, THE CF FOUNDATION ALSO FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF MORE THAN 100 CARE CENTERS AT HOSPITALS ACROSS THE COUNTRY. THIS NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. IN 2024, THE FOUNDATION PROVIDED MORE THAN $45 MILLION IN FUNDING FOR CARE CENTERS AND CLINICIANS. THIS WORK INCLUDES DEVELOPING CARE GUIDELINES, FUNDING PROFESSIONAL DEVELOPMENT AWARDS, AND ADVANCING QUALITY IMPROVEMENT OF THE HIGHLY SPECIALIZED CARE NEEDED TO LIVE WITH THE DISEASE. THE CF FOUNDATION ALSO MANAGES A PATIENT REGISTRY OF MORE THAN 30,000 PEOPLE WITH CF. THIS INVALUABLE TOOL HELPS IDENTIFY NEW HEALTH TRENDS TO INFORM DEVELOPMENT OF EFFECTIVE TREATMENTS AND IMPROVEMENT OF QUALITY CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR NONPROFIT HEALTH ORGANIZATIONS, INCLUDING OTHER CF ADVOCACY GROUPS.
Form 990, Part III, Line 4c	COMMUNITY SERVICES - THE CF FOUNDATION PROVIDES SUPPORT FOR PEOPLE WITH CF AND THEIR FAMILIES AS THEY MANAGE THE PHYSICAL, EMOTIONAL, AND FINANCIAL CHALLENGES OF LIVING WITH CF. THIS IS ACHIEVED BY SUPPORTING HIGH QUALITY, SPECIALIZED CARE, OFFERING RESOURCES AND TOOLS TO HELP PEOPLE DIRECT THEIR OWN CARE, AND DEVELOPING PROGRAMS TO HELP PEOPLE WITH CF AND THEIR LOVED ONES CONNECT, LEARN FROM ONE ANOTHER, AND CELEBRATE THEIR JOURNEYS TOGETHER. LACK OF ADEQUATE INSURANCE COVERAGE FOR CF THERAPIES HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. THE CF FOUNDATION'S COMPASS PROGRAM IS A HIGHLY PERSONALIZED SERVICE THAT HELPS PEOPLE LIVING WITH CF AND THEIR FAMILIES NAVIGATE CHALLENGES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TO CF THERAPIES AND CARE. IN 2024, SKILLED COMPASS CASE MANAGERS RESPONDED TO MORE THAN 6,000 INQUIRIES FROM PEOPLE WITH CF, THEIR FAMILIES, AND THEIR HEALTHCARE PROVIDERS, ASSISTING THEM WITH UNDERSTANDING AND MAXIMIZING THEIR INSURANCE COVERAGE AND BENEFITS, AS WELL AS OFFERING SUPPORT FOR OTHER ASPECTS OF DAILY LIFE WITH CF. CASE MANAGERS ALSO HELPED CONNECT INDIVIDUALS WITH CF TO RESOURCES FOR CHALLENGES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. THROUGH THESE EFFORTS, THE CF FOUNDATION SAVED CLIENTS MORE THAN $3 MILLION IN 2024. THE CF FOUNDATION TYPICALLY HOSTS MORE THAN 1,000 NATIONAL AND CHAPTER EVENTS ANNUALLY FOR PEOPLE WITH CF, THEIR FAMILY MEMBERS, AND VOLUNTEERS. VIRTUAL EVENTS, INCLUDING BREATHECON, RESEARCHCON, AND ROSEUP, WERE DESIGNED BY AND FOR ADULTS WITH CF, THEIR FAMILIES, CLINICIANS, AND RESEARCHERS AS A WAY FOR THE CF COMMUNITY TO CONNECT, SHARE, AND LEARN FROM PEERS THROUGH OPEN AND HONEST DIALOGUE.
Form 990, Part III, Line 4b	PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION - TO SUPPORT ITS MISSION, THE CF FOUNDATION CREATED EDUCATIONAL CONTENT DESIGNED TO INFORM AND SUPPORT PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS, AND THE GENERAL PUBLIC ABOUT THE DISEASE THAT IS MADE AVAILABLE ON ITS WEBSITE AND SOCIAL MEDIA CHANNELS. EACH YEAR, MILLIONS VISIT THE CF FOUNDATION'S WEBSITE, WHICH IS REGULARLY UPDATED WITH A LARGE VOLUME OF ORIGINAL AND UPDATED CONTENT, INCLUDING NEWS STORIES, EDUCATIONAL PAGES, VIDEOS, AND COMMUNITY BLOG POSTS. YEAR-ROUND MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS, AND ALLIED HEALTH PROFESSIONALS AND CREATE OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS.
Form 990, Part VI, Line 10b	THE CF FOUNDATION HAS NUMEROUS OFFICES LOCATED ACROSS THE U.S. THAT ADHERE TO THE POLICIES AND PROCEDURES OF THE ORGANIZATION.
Form 990, Part VI, Line 11b Review of form 990 by governing body	THE CF FOUNDATION PRESENTS AN INITIAL DRAFT OF THE FORM 990 TO ITS BOARD OF TRUSTEES FOR REVIEW AND FEEDBACK. THE COMPENSATION COMMITTEE OF THE BOARD, ALONG WITH THE CF FOUNDATION'S ERISA ATTORNEYS, SPECIFICALLY REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. ADDITIONALLY, THE AUDIT COMMITTEE OF THE BOARD REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. THE BOARD OF TRUSTEES RECEIVES THE FINAL, COMPLETED VERSION OF THE FORM 990 PRIOR TO ITS FILING.
Form 990, Part VI, Line 12c Conflict of interest policy	THE CF FOUNDATION HAS A WRITTEN CONFLICT OF INTEREST POLICY, WHICH REQUIRES OFFICERS, TRUSTEES, AND KEY EMPLOYEES TO ANNUALLY DISCLOSE THEIR INTERESTS THAT COULD GIVE RISE TO CONFLICTS. BOARD OFFICER AND TRUSTEE DISCLOSURES ARE REVIEWED BY THE BOARD'S GOVERNANCE COMMITTEE. KEY EMPLOYEE DISCLOSURES ARE REVIEWED BY THE CHIEF LEGAL OFFICER. THE CF FOUNDATION WILL WORK TO MITIGATE ANY CONFLICTS OF INTEREST. IF A CONFLICT OF INTEREST IS UNABLE TO BE MITIGATED, THE CF FOUNDATION MAY REQUIRE OTHER ACTIONS AS APPROPRIATE.
Form 990, Part VI, Line 15a Process to establish compensation of top management official	THE TOTAL COMPENSATION OF EXECUTIVES AT THE CF FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED TALENT TO FULFILL THE CF FOUNDATION'S CRITCALLY IMPORTANT MISSION. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES; (2) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL; (3) REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S COMPENSATION, BEFORE ANY NEW COMPENSATION ARRANGEMENT IS IMPLEMENTED, TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BASED ON THE APPROPRIATE COMPARABILITY DATA AND THE EXECUTIVE'S PERFORMANCE; AND (4) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE.
Form 990, Part VI, Line 15b Process to establish compensation of other employees	THE PROCESS DESCRIBED ABOVE WAS most recently used TO ESTABLISH 2024 COMPENSATION FOR THE FOLLOWING OFFICERS and KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT AND CEO EXECUTIVE VICE PRESIDENT, CHIEF OPERATING & FINANCIAL OFFICER CHIEF INVESTMENT OFFICER SENIOR VICE PRESIDENT, CLINICAL RESEARCH EXECUTIVE VICE PRESIDENT AND CHIEF SCIENTIFIC OFFICER STRATEGIC ADVISOR, EXECUTIVE VICE PRESIDENT, AND CHIEF MEDICAL OFFICER SENIOR VICE PRESIDENT AND CHIEF MEDICAL OFFICER
Form 990, Part VI, Line 19 Required documents available to the public	THE CF FOUNDATION MADE THE FOLLOWING DOCUMENTS AVAILABLE TO THE PUBLIC DURING THE TAX YEAR: THE CF FOUNDATION'S FORMS 1023 AND 990 WERE AVAILABLE ON ITS WEBSITE, WWW.CFF.ORG. THE CF FOUNDATION'S GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE CF FOUNDATION IN WRITING. THE CF FOUNDATION'S BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE CF FOUNDATION'S WEBSITE, WWW.CFF.ORG.
Form 990, Part VIII, Line 11d Other Miscellaneous Revenue	- Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0;

For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

Cat. No. 51056K

Schedule O (Form 990) (Rev. 1-2025)

Additional Data

Software ID:	24020961
Software Version:	2024v5.1

1	Briefly describe the organization’s mission or most significant activities: TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.
2	Check this box
3	Number of voting members of the governing body (Part VI, line 1a) ........	3	17
4	Number of independent voting members of the governing body (Part VI, line 1b) .....	4	16
5	Total number of individuals employed in calendar year 2024 (Part V, line 2a) ......	5	875
6	Total number of volunteers (estimate if necessary) .............	6	56,403
7a	Total unrelated business revenue from Part VIII, column (C), line 12 ........	7a	35,543,466
b	Net unrelated business taxable income from Form 990-T, Part I, line 11 .........	7b	34,190,123

		Prior Year	Current Year
8	Contributions and grants (Part VIII, line 1h) .........	86,607,373	95,892,260
9	Program service revenue (Part VIII, line 2g) .........	3,437,695	3,272,736
10	Investment income (Part VIII, column (A), lines 3, 4, and 7d ) ....	179,149,610	231,324,892
11	Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e)	22,821,602	25,308,432
12	Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)	292,016,280	355,798,320
13	Grants and similar amounts paid (Part IX, column (A), lines 1–3 )...	200,455,461	202,017,166
14	Benefits paid to or for members (Part IX, column (A), line 4).....		0
15	Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10)	127,953,243	143,748,863
16a	Professional fundraising fees (Part IX, column (A), line 11e) .....	176,400	353,500
b	Total fundraising expenses (Part IX, column (D), line 25) 35,110,169
17	Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e)....	114,819,495	93,019,390
18	Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25)	443,404,599	439,138,919
19	Revenue less expenses. Subtract line 18 from line 12.......	-151,388,319	-83,340,599
		Beginning of Current Year	End of Year
20	Total assets (Part X, line 16).............	4,885,921,122	4,986,222,387
21	Total liabilities (Part X, line 26).............	292,964,822	292,597,881
22	Net assets or fund balances. Subtract line 21 from line 20.....	4,592,956,300	4,693,624,506

Sign Here

	Signature of officer	Date

	Type or print name and title


4a	(Code: ) (Expenses $ 306,392,964 including grants of $ 198,809,390 ) (Revenue $ 16,435,185 )
	Medical Program Expenses. SEE SCHEDULE O.

4b	(Code: ) (Expenses $ 22,163,320 including grants of $ 0 ) (Revenue $ 0 )
	Education Program Expenses. See Schedule O.

4c	(Code: ) (Expenses $ 18,153,082 including grants of $ 3,207,776 ) (Revenue $ 0 )
	Community Service Program Expenses. SEE SCHEDULE O.

4d	Other program services (Describe in Schedule O.)
	(Expenses $ including grants of $ ) (Revenue $ )
4e	Total program service expenses346,709,366

1b	Sub-Total..............
c	Total from continuation sheets to Part VII, Section A..
d	Total (add lines 1b and 1c).........	11,249,006	0	1,815,126

1a	Federated campaigns..		1a	220,756
b	Membership dues..		1b
c	Fundraising events..		1c	52,860,455
d	Related organizations		1d
e	Government grants (contributions)		1e

f	All other contributions, gifts, grants, and similar amounts not included above		1f	42,811,049

g	Noncash contributions included in lines 1a - 1f:$		1g	8,777,057

h Total. Add lines 1a-1f.......		95,892,260

		Business Code
2a	SCIENTIFIC CONFERENCE	611600	3,015,236	3,015,236
b	DATA SAFETY MONITORING BOARD REVENUE	541900	257,500	257,500
c
d
e
f	All other program service revenue.		0	0	0	0
g	Total. Add lines 2a–2f .....		3,272,736

3 Investment income (including dividends, interest, and othersimilar amounts) ......			86,902,027		35,543,466	51,358,561
4 Income from investment of tax-exempt bond proceeds
5 Royalties...........			12,346,115	339,998		12,006,117
			(i) Real	(ii) Personal
6a	Gross rents	6a
b	Less: rental expenses	6b
c	Rental income or (loss)	6c	0	0
d	Net rental income or (loss).......
			(i) Securities	(ii) Other
7a	Gross amount from sales of assets other than inventory	7a	1,636,572,899
b	Less: cost or other basis and sales expenses	7b	1,492,150,032
c	Gain or (loss)	7c	144,422,867	0
d	Net gain or (loss).........			144,422,865			144,422,865
8a	Gross income from fundraising events (not including $ 52,860,455of contributions reported on line 1c). See Part IV, line 18 ....
			8a	15,278,137
b	Less: direct expenses ...		8b	15,278,137
c	Net income or (loss) from fundraising events..
9a	Gross income from gaming activities. See Part IV, line 19 ...
			9a	16,130
b	Less: direct expenses ...		9b	11,599
c	Net income or (loss) from gaming activities..			4,531			4,531
10a	Gross sales of inventory, less returns and allowances ..
			10a	0
b	Less: cost of goods sold ..		10b	0
c	Net income or (loss) from sales of inventory..

Business Code
11a	REFUNDED OR CANCELLED GRANTS		900099	12,822,451	12,822,451	0	0
b	OTHER MISCELLANEOUS REVENUE		900099	135,335	0	0	135,335
c				0	0	0	0
d	All other revenue ....			0	0	0	0
e	Total. Add lines 11a–11d ......			12,957,786
12	Total revenue. See instructions.....			355,798,320	16,435,185	35,543,466	207,927,409

1	Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 ....	189,712,483	189,712,483
2	Grants and other assistance to domestic individuals. See Part IV, line 22 ...........	648,911	648,911
3	Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. .............	11,655,772	11,655,772
4	Benefits paid to or for members .......
5	Compensation of current officers, directors, trustees, and key employees ...........	7,377,657	4,454,463	2,668,623	254,571
6	Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .........	109,686	104,204	5,482
7	Other salaries and wages........	103,316,517	54,900,056	29,590,592	18,825,869
8	Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) ....	7,591,804	4,101,309	2,061,086	1,429,409
9	Other employee benefits .......	18,310,800	9,380,238	4,628,915	4,301,647
10	Payroll taxes ...........	7,042,399	3,771,085	1,903,150	1,368,164
11	Fees for services (non-employees):
a	Management ......
b	Legal .........	610,499	289,235	298,573	22,691
c	Accounting ...........	515,914	1,624	514,290
d	Lobbying ...........	840,554	840,554
e	Professional fundraising services. See Part IV, line 17	353,500			353,500
f	Investment management fees ......	3,153,831		3,153,831
g	Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O)	7,184,578	4,934,416	2,250,162	0
12	Advertising and promotion ....	120,179	92,759	8,774	18,646
13	Office expenses .......	5,517,115	2,991,090	527,317	1,998,708
14	Information technology ......	14,237,632	8,180,444	3,420,824	2,636,364
15	Royalties ..
16	Occupancy ...........	7,667,521	4,585,375	1,566,658	1,515,488
17	Travel ............	2,562,131	1,484,177	554,960	522,994
18	Payments of travel or entertainment expenses for any federal, state, or local public officials .
19	Conferences, conventions, and meetings ....	11,407,805	9,210,895	861,488	1,335,422
20	Interest ...........
21	Payments to affiliates .......
22	Depreciation, depletion, and amortization ..	2,645,604	1,882,652	455,272	307,680
23	Insurance ...	792,595	504,491	258,372	29,732
24	Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a	CONTRACTED RESEARCH	31,692,660	31,692,660
b	Other Taxes and Fees	2,124,394	555,746	1,498,875	69,773
c	TRAINING	759,753	409,381	269,835	80,537
d	Miscellaneous	713,382	186,622	503,330	23,430
e	All other expenses	473,243	138,723	318,976	15,544
25	Total functional expenses. Add lines 1 through 24e	439,138,919	346,709,365	57,319,385	35,110,169
26	Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here if following SOP 98-2 (ASC 958-720).

1	Cash–non-interest-bearing ........			20,000	1	20,000
2	Savings and temporary cash investments .........			109,087,327	2	93,127,571
3	Pledges and grants receivable, net ......			15,055,739	3	15,058,913
4	Accounts receivable, net .............			22,382,858	4	20,660,450
5	Loans and other receivables from any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
					5	0
6	Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
					6	0
7	Notes and loans receivable, net ...........				7
8	Inventories for sale or use ............			206,966	8	126,801
9	Prepaid expenses and deferred charges ......			4,831,329	9	5,773,137
10a	Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D	10a	35,602,656
b	Less: accumulated depreciation	10b	25,873,408	8,863,037	10c	9,729,248
11	Investments—publicly traded securities .			2,705,339,108	11	2,761,100,818
12	Investments—other securities. See Part IV, line 11 .....			1,764,791,266	12	1,928,159,315
13	Investments—program-related. See Part IV, line 11 ..			88,133,200	13	99,228,437
14	Intangible assets ...............				14
15	Other assets. See Part IV, line 11 ...........			167,210,292	15	53,237,697
16	Total assets. Add lines 1 through 15 (must equal line 33)...			4,885,921,122	16	4,986,222,387

17	Accounts payable and accrued expenses .....	37,939,543	17	39,199,190
18	Grants payable ...	226,220,440	18	228,373,004
19	Deferred revenue .........	2,685,701	19	2,877,223
20	Tax-exempt bond liabilities .........		20
21	Escrow or custodial account liability. Complete Part IV of Schedule D		21
22	Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
			22	0
23	Secured mortgages and notes payable to unrelated third parties ..		23
24	Unsecured notes and loans payable to unrelated third parties ..		24
25	Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D	26,119,138	25	22,148,464
26	Total liabilities. Add lines 17 through 25..	292,964,822	26	292,597,881

	Organizations that follow FASB ASC 958, check here and complete lines 27, 28, 32, and 33.
27	Net assets without donor restrictions ..........	4,576,101,051	27	4,673,524,731
28	Net assets with donor restrictions ...........	16,855,249	28	20,099,775
	Organizations that do not follow FASB ASC 958, check here and complete lines 29 through 33.
29	Capital stock or trust principal, or current funds .....		29
30	Paid-in or capital surplus, or land, building or equipment fund ...		30
31	Retained earnings, endowment, accumulated income, or other funds		31
32	Total net assets or fund balances ...........	4,592,956,300	32	4,693,624,506
33	Total liabilities and net assets/fund balances ........	4,885,921,122	33	4,986,222,387

1	Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
2	Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to separately file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A; don't file with Form 990). . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
3	Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471). . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
4	Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621) .	Yes	No
5	Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships (see Instructions for Form 8865). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No
6	Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to separately file Form 5713, International Boycott Report (see Instructions for Form 5713; don't file with Form 990).. . . . . . . . . . . . . . . . . . . . . . . . . . . .	Yes	No

(a) Name, address, and EIN (if applicable) of disregarded entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Total income	(e) End-of-year assets	(f) Direct controlling entity
(1) Oaktree QR CLV LP 333 S GRAND AVE LOS ANGELES,CA90071	Investments	DE	251,866	13,751,866	Cystic Fibrosis Foundation

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Exempt Code section	(e) Public charity status (if section 501(c)(3))	(f) Direct controlling entity	(g) Section 512(b)(13) controlled entity?
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Exempt Code section	(e) Public charity status (if section 501(c)(3))	(f) Direct controlling entity	Yes	No
(1)CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC 4550 MONTGOMERY AVE STE 110 BETHESDA,MD20814 91-2059167	RESEARCH	MD	501(c)(3)	Type I	CFF	Yes

(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity	(e) Predominant income(related, unrelated, excluded from tax under sections 512-514)	(f) Share of total income	(g) Share of end-of-year assets	(h) Disproprtionate allocations?		(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	(j) General or managing partner?		(k) Percentage ownership
(a) Name, address, and EIN of related organization	(b) Primary activity	(c) Legal domicile (state or foreign country)	(d) Direct controlling entity		(f) Share of total income	(g) Share of end-of-year assets	Yes	No	(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	Yes	No	(k) Percentage ownership
(1) AXAR QR OPPORTUNISTIC CREDIT FUND LP 402 WEST 13TH STREET FLOOR 5 NEW YORK,NY10014 93-3694283	INVESTMENTS	DE		Excluded	838,845	22,761,571		No			No	92.141 %
(2) LF-CFF INCUBATOR FUND II LP 800 BOYLSTON STREET SUITE 1715 BOSTON,MA02199 87-3507143	INVESTMENTS	DE		Excluded	-641,159	31,178		No			No	100 %
(3) LF-CFF INCUBATOR FUND LP 800 BOYLSTON STREET SUITE 1715 BOSTON,MA02199 85-1584805	INVESTMENTS	DE		Excluded	-1,686,725	14,780,680		No			No	100 %

(a) Name of related organization	(b) Transaction type (a-s)	(c) Amount involved	(d) Method of determining amount involved
(1) AXAR QR OPPORTUNISTIC CREDIT FUND LP	B	16,000,000	CASH
(2) LF-CFF INCUBATOR FUND LP	B	6,283,000	CASH
(3) LF-CFF INCUBATOR FUND II LP	B	494,000	CASH

(a) Name, address, and EIN of entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	(e) Are all partners section 501(c)(3) organizations?		(f) Share of total income	(g) Share of end-of-year assets	(h) Disproprtionate allocations?		(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	(j) General or managing partner?		(k) Percentage ownership
(a) Name, address, and EIN of entity	(b) Primary activity	(c) Legal domicile (state or foreign country)	Yes	No	(f) Share of total income	(g) Share of end-of-year assets	Yes	No	(i) Code V-UBI amount in box 20 of Schedule K-1 (Form 1065)	Yes	No	(k) Percentage ownership