Form990


Department of the TreasuryInternal Revenue Service
Return of Organization Exempt From Income Tax
Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private foundations)
Do not enter social security numbers on this form as it may be made public.
Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2025
Open to Public Inspection
A For the 2025 calendar year, or tax year beginning 01-01-2025 , and ending 12-31-2025
BCheck if applicable:
CName of organization
MUSCULAR DYSTROPHY ASSOCIATION
INC
 
Doing business as
 
 
Number and street (or P.O. box if mail is not delivered to street address)
1016 W JACKSON BLVD 1073
 
Room/suite
City or town, state or province, country, and ZIP or foreign postal code
CHICAGO, IL60607
D Employer identification number

13-1665552
E Telephone number

G Gross receipts $ 86,702,830
F Name and address of principal officer:
SHARON HESTERLEE PHD
1016 W JACKSON BLVD 1073
CHICAGO,IL60607
I
Tax-exempt status: (   ) (insert no.) or
J
Website:
WWW.MDA.ORG
H(a)
Is this a group return for
subordinates?
H(b)
Are all subordinates
included?
If "No," attach a list. See instructions.
H(c)
Group exemption number  
K Form of organization:  
L Year of formation: 1950
M State of legal domicile: NY
Part I
Summary
Activities & Governance 1 Briefly describe the organization’s mission or most significant activities: SEE SCHEDULE O
2 Check this box
3 Number of voting members of the governing body (Part VI, line 1a) ........ 3 18
4 Number of independent voting members of the governing body (Part VI, line 1b) ..... 4 18
5 Total number of individuals employed in calendar year 2025 (Part V, line 2a) ...... 5 272
6 Total number of volunteers (estimate if necessary) ............. 6 934
7a Total unrelated business revenue from Part VIII, column (C), line 12 ........ 7a 654,688
b Net unrelated business taxable income from Form 990-T, Part I, line 11 ......... 7b 0
Revenues Prior Year Current Year
8 Contributions and grants (Part VIII, line 1h) ......... 54,195,181 54,355,588
9 Program service revenue (Part VIII, line 2g) ......... 0 0
10 Investment income (Part VIII, column (A), lines 3, 4, and 7d ) .... 5,248,735 4,498,056
11 Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e) 912,328 5,306,388
12 Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12) 60,356,244 64,160,032
Expenses; 13 Grants and similar amounts paid (Part IX, column (A), lines 1–3 )... 16,658,993 14,147,711
14 Benefits paid to or for members (Part IX, column (A), line 4)..... 0 0
15 Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10) 29,117,549 29,175,286
16a Professional fundraising fees (Part IX, column (A), line 11e) ..... 33,625 1,152,729
b Total fundraising expenses (Part IX, column (D), line 25) 14,758,982    
17 Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e).... 20,155,219 17,272,380
18 Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25) 65,965,386 61,748,106
19 Revenue less expenses. Subtract line 18 from line 12....... -5,609,142 2,411,926
Net Assets or Fund Balances; Beginning of Current Year End of Year
20 Total assets (Part X, line 16)............. 57,971,496 50,874,216
21 Total liabilities (Part X, line 26)............. 54,536,026 41,176,797
22 Net assets or fund balances. Subtract line 21 from line 20..... 3,435,470 9,697,419
Part II
Signature Block
Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it is true, correct, and complete. Declaration of preparer (other than officer) is based on all information of which preparer has any knowledge.
Sign Here
Signature of officer Date
Type or print name and title
Paid Preparer Use Only
Print/Type preparer's name
Preparer's signature
Date
PTIN
Firm's name

Firm's EIN
Firm's address



Phone no.
May the IRS discuss this return with the preparer shown above? See Instructions. ..........
For Paperwork Reduction Act Notice, see the separate instructions.
Cat. No. 11282Y Form 990 (2025)
Form 990 (2025)
Page 2
Part III
Statement of Program Service Accomplishments
Check if Schedule O contains a response or note to any line in this Part III..............
1
Briefly describe the organization’s mission: MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.
2
Did the organization undertake any significant program services during the year which were not listed on
the prior Form 990 or 990-EZ? .....................
If "Yes," describe these new services on Schedule O.
3
Did the organization cease conducting, or make significant changes in how it conducts, any program
services? ...........................
If "Yes," describe these changes on Schedule O.
4
Describe the organization’s program service accomplishments for each of its three largest program services, as measured by expenses. Section 501(c)(3) and 501(c)(4) organizations are required to report the amount of grants and allocations to others, the total expenses, and revenue, if any, for each program service reported.
4a (Code:   ) (Expenses $ 21,968,472 including grants of $ 7,228,714 ) (Revenue $   )
HEALTH CARE AND COMMUNITY SERVICES: MDA IS COMMITTED TO EMPOWERING PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH RESEARCH, CARE, AND ADVOCACY. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. (CONT. SCHEDULE O)EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OFTHE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES.
4b (Code:   ) (Expenses $ 7,773,027 including grants of $ 6,893,247 ) (Revenue $   )
RESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING STRATEGIC RESEARCH FOR MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. (CONT. SCHEDULE O)MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES.
4c (Code:   ) (Expenses $ 14,068,409 including grants of $ 25,750 ) (Revenue $   )
PROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE WORLD, OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. (CONT. SCHEDULE O)AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE AND MDA ACCESS EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NEUROMUSCULARCOMMUNITY IN-PERSON AND VIRTUALLY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL CONNECTIONS.
4d Other program services (Describe in Schedule O.)
(Expenses $   including grants of $   ) (Revenue $   )
4e Total program service expenses43,809,908
Form 990 (2025)
Form 990 (2025)
Page 3
Part IV
Checklist of Required Schedules
Yes
No
1
Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)? If "Yes," complete Schedule AClick to see attachment
List of Attached Documents:
// Content
.....................
1
Yes
 
2
Is the organization required to complete Schedule B, Schedule of Contributors? See instructions. Click to see attachment
List of Attached Documents:
// Content
...
2
Yes
 
3
Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office? If "Yes," complete Schedule C, Part IClick to see attachment
List of Attached Documents:
// Content
.............
3
 
No
4
Section 501(c)(3) organizations. Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year? If "Yes," complete Schedule C, Part IIClick to see attachment
List of Attached Documents:
// Content
.........
4
Yes
 
5
Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Rev. Proc. 98-19? If "Yes," complete Schedule C, Part IIIClick to see attachment
List of Attached Documents:
// Content
..
5
 
No
6
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts? If "Yes," complete Schedule D, Part IClick to see attachment
List of Attached Documents:
// Content
.........................
6
 
No
7
Did the organization receive or hold a conservation easement, including easements to preserve open space,
the environment, historic land areas, or historic structures? If "Yes," complete Schedule D, Part IIClick to see attachment
List of Attached Documents:
// Content
....
7
 
No
8
Did the organization maintain collections of works of art, historical treasures, or other similar assets? If "Yes,"
complete Schedule D, Part IIIClick to see attachment
List of Attached Documents:
// Content
..............
8
 
No
9
Did the organization report an amount in Part X, line 21 for escrow or custodial account liability; serve as a custodian for amounts not listed in Part X; or provide credit counseling, debt management, credit repair, or debt negotiation services? If "Yes," complete Schedule D, Part IVClick to see attachment
List of Attached Documents:
// Content
..............
9
 
No
10
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi endowments? If "Yes," complete Schedule D, Part V......
10
Yes
 
11
If the organization’s answer to any of the following questions is "Yes," then complete Schedule D, Parts VI, VII, VIII, IX, or X, as applicable.
a
Did the organization report an amount for land, buildings, and equipment in Part X, line 10? If "Yes," complete
Schedule D, Part VI. Click to see attachment
List of Attached Documents:
// Content
...................
11a
Yes
 
b
Did the organization report an amount for investments—other securities in Part X, line 12 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIClick to see attachment
List of Attached Documents:
// Content
.......
11b
 
No
c
Did the organization report an amount for investments—program related in Part X, line 13 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIIClick to see attachment
List of Attached Documents:
// Content
.......
11c
 
No
d
Did the organization report an amount for other assets in Part X, line 15 that is 5% or more of its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part IXClick to see attachment
List of Attached Documents:
// Content
............
11d
 
No
e
Did the organization report an amount for other liabilities in Part X, line 25? If "Yes," complete Schedule D, Part XClick to see attachment
List of Attached Documents:
// Content
11e
Yes
 
f
Did the organization’s separate or consolidated financial statements for the tax year include a footnote that addresses the organization’s liability for uncertain tax positions under FIN 48 (ASC 740)? If "Yes," complete Schedule D, Part XClick to see attachment
List of Attached Documents:
// Content
11f
Yes
 
12a
Did the organization obtain separate, independent audited financial statements for the tax year? If "Yes," complete
Schedule D, Parts XI and XIIClick to see attachment
List of Attached Documents:
// Content
......................
12a
Yes
 
b
Was the organization included in consolidated, independent audited financial statements for the tax year? If "Yes," and if the organization answered "No" to line 12a, then completing Schedule D, Parts XI and XII is optional Click to see attachment
List of Attached Documents:
// Content
12b
 
No
13
Is the organization a school described in section 170(b)(1)(A)(ii)? If "Yes," complete Schedule E
13
 
No
14a
Did the organization maintain an office, employees, or agents outside of the United States? .....
14a
 
No
b
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more? If "Yes," complete Schedule F, Parts I and IV.........Click to see attachment
List of Attached Documents:
// Content
14b
Yes
 
15
Did the organization report on Part IX, column (A), line 3, more than $5,000 of grants or other assistance to or for any foreign organization? If “Yes,” complete Schedule F, Parts II and IV.....Click to see attachment
List of Attached Documents:
// Content
15
Yes
 
16
Did the organization report on Part IX, column (A), line 3, more than $5,000 of aggregate grants or other assistance to or for foreign individuals? If “Yes,” complete Schedule F, Parts III and IV...Click to see attachment
List of Attached Documents:
// Content
16
 
No
17
Did the organization report a total of more than $15,000 of expenses for professional fundraising services on Part IX, column (A), lines 6 and 11e? If "Yes," complete Schedule G, Part I. See instructions. ....Click to see attachment
List of Attached Documents:
// Content
17
Yes
 
18
Did the organization report more than $15,000 total of fundraising event gross income and contributions on Part VIII, lines 1c and 8a? If "Yes," complete Schedule G, Part II............ Click to see attachment
List of Attached Documents:
// Content
18
Yes
 
19
Did the organization report more than $15,000 of gross income from gaming activities on Part VIII, line 9a? If "Yes," complete Schedule G, Part III...................Click to see attachment
List of Attached Documents:
// Content
19
 
No
20a
Did the organization operate one or more hospital facilities? If "Yes," complete Schedule H....
20a
 
No
b
If "Yes" to line 20a, did the organization attach a copy of its audited financial statements to this return?
20b
 
 
21
Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government on Part IX, column (A), line 1? If “Yes,” complete Schedule I, Parts I and II.....Click to see attachment
List of Attached Documents:
// Content
21
Yes
 
Form 990 (2025)
Form 990 (2025)
Page 4
Part IV
Checklist of Required Schedules (continued)
Yes
No
22
Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals on Part IX, column (A), line 2? If “Yes,” complete Schedule I, Parts I and III........Click to see attachment
List of Attached Documents:
// Content
22
 
No
23
Did the organization answer "Yes" to Part VII, Section A, line 3, 4, or 5, about compensation of the organization’s current and former officers, directors, trustees, key employees, and highest compensated employees? If "Yes," complete Schedule J....................... Click to see attachment
List of Attached Documents:
// Content
23
Yes
 
24a
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002? If “Yes,” answer lines 24b through 24d and complete Schedule K. If “No,” go to line 25a...............
24a
 
No
b
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?...
24b
 
 
c
Did the organization maintain an escrow account other than a refunding escrow at any time during the year
to defease any tax-exempt bonds? ...............
24c
 
 
d
Did the organization act as an "on behalf of" issuer for bonds outstanding at any time during the year?...
24d
 
 
25a
Section 501(c)(3), 501(c)(4), and 501(c)(29) organizations. Did the organization engage in an excess benefit transaction with a disqualified person during the year? If "Yes," complete Schedule L, Part I ....
25a
 
No
b
Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization’s prior Forms 990 or 990-EZ? If "Yes," complete Schedule L, Part I.......................
25b
 
No
26
Did the organization report any amount on Part X, line 5 or 22 for receivables from or payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons? If "Yes," complete Schedule L, Part II...........
26
 
No
27
Did the organization provide a grant or other assistance to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or employee thereof, a grant selection committee member, or to a 35% controlled entity (including an employee thereof) or family member of any of these persons?
If "Yes," complete
Schedule L, Part III.........................
27
 
No
28
Was the organization a party to a business transaction with one of the following parties (see the Schedule L, Part IV instructions for applicable filing thresholds, conditions, and exceptions):
a
A current or former officer, director, trustee, key employee, creator or founder, or substantial contributor? If "Yes," complete Schedule L, Part IV......................
28a
 
No
b
A family member of any individual described in line 28a? If "Yes," complete Schedule L, Part IV.....
28b
 
No
c
A 35% controlled entity of one or more individuals and/or organizations described in line 28a or 28b? If "Yes," complete Schedule L, Part IV.....................
28c
 
No
29
Did the organization receive more than $25,000 in non-cash contributions? If "Yes," complete Schedule M..Click to see attachment
List of Attached Documents:
// Content
29
Yes
 
30
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions? If "Yes," complete Schedule M .................Click to see attachment
List of Attached Documents:
// Content
30
 
No
31
Did the organization liquidate, terminate, or dissolve and cease operations? If "Yes," complete Schedule N, Part I
31
 
No
32
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets? If "Yes," complete Schedule N, Part II........................
32
 
No
33
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3? If "Yes," complete Schedule R, Part I............
33
 
No
34
Was the organization related to any tax-exempt or taxable entity? If "Yes," complete Schedule R, Part II, III, or IV, and Part V, line 1.........................
34
 
No
35a
Did the organization have a controlled entity within the meaning of section 512(b)(13)?
35a
 
No
b
If ‘Yes’ to line 35a, did the organization receive any payment from or engage in any transaction with a controlled entity within the meaning of section 512(b)(13)? If "Yes," complete Schedule R, Part V, line 2 ...
35b
 
 
36
Section 501(c)(3) organizations. Did the organization make any transfers to an exempt non-charitable related organization? If "Yes," complete Schedule R, Part V, line 2.............
36
 
No
37
Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes? If "Yes," complete Schedule R, Part VI
37
 
No
38
Did the organization complete Schedule O and provide explanations on Schedule O for Part VI, lines 11b and 19? Note. All Form 990 filers are required to complete Schedule O. ............
38
Yes
 
Part V
Statements Regarding Other IRS Filings and Tax Compliance
Check if Schedule O contains a response or note to any line in this Part V...........
Yes
No
1a
Enter the number reported in box 3 of Form 1096. Enter -0- if not applicable ..
1a
176
b
Enter the number of Forms W-2G included on line 1a. Enter -0- if not applicable .
1b
0
c
Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners? ..................
1c
Yes
 
Form 990 (2025)
Form 990 (2025)
Page 5
Part V
Statements Regarding Other IRS Filings and Tax Compliance (continued)
2a
Enter the number of employees reported on Form W-3, Transmittal of Wage and
Tax Statements, filed for the calendar year ending with or within the year covered by this return ..................
2a
272
b
If at least one is reported on line 2a, did the organization file all required federal employment tax returns?
2b
Yes
 
3a
Did the organization have unrelated business gross income of $1,000 or more during the year?...
3a
Yes
 
b
If “Yes,” has it filed a Form 990-T for this year? If “No” to line 3b, provide an explanation in Schedule O...
3b
Yes
 
4a
At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)? ..
4a
 
No
b
If "Yes," enter the name of the foreign country:
See instructions for filing requirements for FinCEN Form 114, Report of Foreign Bank and Financial Accounts (FBAR).
5a
Was the organization a party to a prohibited tax shelter transaction at any time during the tax year? ..
5a
 
No
b
Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?
5b
 
No
c
If "Yes," to line 5a or 5b, did the organization file Form 8886-T? ............
5c
 
 
6a
Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions? ...
6a
 
No
b
If "Yes," did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible? ......................
6b
 
 
7
Organizations that may receive deductible contributions under section 170(c).
a
Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor? ....................
7a
Yes
 
b
If "Yes," did the organization notify the donor of the value of the goods or services provided? .....
7b
Yes
 
c
Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282? .........................
7c
 
No
d
If "Yes," indicate the number of Forms 8282 filed during the year ....
7d
 
e
Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?
7e
 
No
f
Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract? ..
7f
 
No
g
If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required? ......................
7g
 
 
h
If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C? ..........................
7h
 
 
8
Sponsoring organizations maintaining donor advised funds. Did a donor advised fund maintained by the sponsoring organization have excess business holdings at any time during the year? ........
8
 
 
9
Sponsoring organizations maintaining donor advised funds.
a
Did the sponsoring organization make any taxable distributions under section 4966?........
9a
 
 
b
Did the sponsoring organization make a distribution to a donor, donor advisor, or related person?...
9b
 
 
10
Section 501(c)(7) organizations. Enter:
a
Initiation fees and capital contributions included on Part VIII, line 12 ...
10a
 
b
Gross receipts, included on Form 990, Part VIII, line 12, for public use of club facilities
10b
 
11
Section 501(c)(12) organizations. Enter:
a
Gross income from members or shareholders .........
11a
 
b
Gross income from other sources. (Do not net amounts due or paid to other sources against amounts due or received from them.) ..........
11b
 
12a
Section 4947(a)(1) non-exempt charitable trusts. Is the organization filing Form 990 in lieu of Form 1041?
12a
 
 
b
If "Yes," enter the amount of tax-exempt interest received or accrued during the year.
12b
 
13
Section 501(c)(29) qualified nonprofit health insurance issuers.
a
Is the organization licensed to issue qualified health plans in more than one state? .........
Note. See the instructions for additional information the organization must report on Schedule O.
13a
 
 
b
Enter the amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans ....
13b
 
c
Enter the amount of reserves on hand ............
13c
 
14a
Did the organization receive any payments for indoor tanning services during the tax year?.....
14a
 
No
b
If "Yes," has it filed a Form 720 to report these payments? If "No," provide an explanation in Schedule O..
14b
 
 
15
Is the organization subject to the section 4960 tax on payment(s) of more than $1,000,000 in remuneration or excess parachute payment(s) during the year? ....................
If "Yes," see the instructions and file Form 4720, Schedule N.
15
 
No
16
Is the organization an educational institution subject to the section 4968 excise tax on net investment income? ..
If "Yes," complete Form 4720, Schedule O.
16
 
No
17
Section 501(c)(21) organizations. Did the trust, or any disqualified or other person engage in any activities that would result in the imposition of an excise tax under section 4951, 4952, or 4953? ..
If "Yes," complete Form 6069.
17
 
 
Form 990 (2025)
Form 990 (2025)
Page 6
Part VI
Governance, Management, and Disclosure. For each "Yes" response to lines 2 through 7b below, and for a "No" response to lines 8a, 8b, or 10b below, describe the circumstances, processes, or changes in Schedule O. See instructions.
Check if Schedule O contains a response or note to any line in this Part VI..............
Section A. Governing Body and Management
Yes
No
1a
Enter the number of voting members of the governing body at the end of the tax year
1a
18
If there are material differences in voting rights among members of the governing body, or if the governing body delegated broad authority to an executive committee or similar committee, explain in Schedule O.
b
Enter the number of voting members included in line 1a, above, who are independent
1b
18
2
Did any officer, director, trustee, or key employee have a family relationship or a business relationship with any other officer, director, trustee, or key employee? .................
2
 
No
3
Did the organization delegate control over management duties customarily performed by or under the direct supervision of officers, directors or trustees, or key employees to a management company or other person? .
3
 
No
4
Did the organization make any significant changes to its governing documents since the prior Form 990 was filed? .
4
 
No
5
Did the organization become aware during the year of a significant diversion of the organization’s assets? .
5
 
No
6
Did the organization have members or stockholders? ................
6
 
No
7a
Did the organization have members, stockholders, or other persons who had the power to elect or appoint one or more members of the governing body? ....................
7a
 
No
b
Are any governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or persons other than the governing body? ...................
7b
 
No
8
Did the organization contemporaneously document the meetings held or written actions undertaken during the year by the following:
a
The governing body? .......................
8a
Yes
 
b
Each committee with authority to act on behalf of the governing body? ............
8b
Yes
 
9
Is there any officer, director, trustee, or key employee listed in Part VII, Section A, who cannot be reached at the organization’s mailing address? If "Yes," provide the names and addresses in Schedule O.......
9
 
No
Section B. Policies (This Section B requests information about policies not required by the Internal Revenue Code.)
Yes
No
10a
Did the organization have local chapters, branches, or affiliates? ............
10a
 
No
b
If "Yes," did the organization have written policies and procedures governing the activities of such chapters, affiliates, and branches to ensure their operations are consistent with the organization's exempt purposes?
10b
 
 
11a
Has the organization provided a complete copy of this Form 990 to all members of its governing body before filing the form? ............................
11a
Yes
 
b
Describe on Schedule O the process, if any, used by the organization to review this Form 990. .....
12a
Did the organization have a written conflict of interest policy? If "No," go to line 13.......
12a
Yes
 
b
Were officers, directors, or trustees, and key employees required to disclose annually interests that could give rise to conflicts? ..........................
12b
Yes
 
c
Did the organization regularly and consistently monitor and enforce compliance with the policy? If "Yes," describe on Schedule O how this was done...................
12c
Yes
 
13
Did the organization have a written whistleblower policy? ...............
13
Yes
 
14
Did the organization have a written document retention and destruction policy? .........
14
Yes
 
15
Did the process for determining compensation of the following persons include a review and approval by independent persons, comparability data, and contemporaneous substantiation of the deliberation and decision?
a
The organization’s CEO, Executive Director, or top management official ...........
15a
Yes
 
b
Other officers or key employees of the organization ................
15b
Yes
 
If "Yes" to line 15a or 15b, describe the process on Schedule O. See instructions.
16a
Did the organization invest in, contribute assets to, or participate in a joint venture or similar arrangement with a taxable entity during the year? ......................
16a
 
No
b
If "Yes," did the organization follow a written policy or procedure requiring the organization to evaluate its participation in joint venture arrangements under applicable federal tax law, and take steps to safeguard the organization’s exempt status with respect to such arrangements? ............
16b
 
 
Section C. Disclosure
17
List the states with which a copy of this Form 990 is required to be filed
AL , AK , AZ , CA , CO , CT , DE , FL , GA , HI , ID , IL , IN , IA , KS , KY , LA , ME , MD , MA , MI , MN , MO , MT , NE , NV , NJ , NM , NY , NC , ND , OH , OK , OR , PA , PR , RI , SC , SD , TN , UT , VA , WA , WV , WI , WY
18
Section 6104 requires an organization to make its Form 1023 (1024 or 1024-A, if applicable), 990, and 990-T (section 501(c)(3)s only) available for public inspection. Indicate how you made these available. Check all that apply.
19
Describe in Schedule O whether (and if so, how) the organization made its governing documents, conflict of interest policy, and financial statements available to the public during the tax year.
20
State the name, address, and telephone number of the person who possesses the organization's books and records:
PAMELA KOURNETAS CFO1016 W JACKSON BLVD 1073   CHICAGO,IL60607 (917) 693-1872
Form 990 (2025)
Form 990 (2025)
Page 7
Part VII
Compensation of Officers, Directors,Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors
Check if Schedule O contains a response or note to any line in this Part VII..............
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
1a Complete this table for all persons required to be listed. Report compensation for the calendar year ending with or within the organization’s tax year.
RoundBullet List all of the organization’s current officers, directors, trustees (whether individuals or organizations), regardless of amount
of compensation. Enter -0- in columns (D), (E), and (F) if no compensation was paid.

RoundBullet List all of the organization’s current key employees, if any. See the instructions for definition of "key employee."
RoundBullet List the organization’s five current highest compensated employees (other than an officer, director, trustee or key employee)
who received reportable compensation (box 5 of Form W-2, box 6 of Form 1099-MISC, and/or box 1 of Form 1099-NEC) of more than $100,000 from the organization and any related organizations.

RoundBullet List all of the organization’s former officers, key employees, or highest compensated employees who received more than $100,000
of reportable compensation from the organization and any related organizations.

RoundBullet List all of the organization’s former directors or trustees that received, in the capacity as a former director or trustee of the
organization, more than $10,000 of reportable compensation from the organization and any related organizations.

See the instructions for the order in which to list the persons above.
Check this box if neither the organization nor any related organization compensated any current officer, director, or trustee.
(A)
Name and title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W-2/1099-MISC/1099-NEC) 		(E)
Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(1) ANJAN ARALIHALLI......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(2) BARRY BYRNE MD PHD......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(3) BENJAMIN CUMBO III......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(4) CHARLES D SCHOOR ESQ......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(5) CHRISTOPHER ROSA......................................................................
VICE CHAIRMAN
 5.00
.................
  		X   X       0 0 0
(6) DAN FRIES......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(7) ELIZABETH MCNALLY MD PHD......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(8) GOVERNOR BRAD HENRY......................................................................
CHAIRMAN
 5.00
.................
  		X   X       0 0 0
(9) HON ROBERT E PIPIA......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(10) JOHN COSTANTINO......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(11) JOHN E HOWELL......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(12) LILIAN WU PHD......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(13) LOUIS KUNKEL PHD......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(14) MARK SMITH......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(15) MATT PLUMMER......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
(16) MIKE ROWLETT......................................................................
OUTGOING DIRECTOR
 1.00
.................
  		X           0 0 0
(17) NANCY KINDELAN......................................................................
DIRECTOR
 1.00
.................
  		X           0 0 0
Form 990 (2025)
Form 990 (2025)
Page 8
Part VII
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (continued)
(A)
Name and title 		(B)
Average hours per week (list any hours for related organizations below dotted line) 		(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee) 		(D)
Reportable compensation from the organization (W-2/1099-MISC/1099-NEC) 		(E)
Reportable compensation from related organizations (W-2/1099-MISC/1099-NEC) 		(F)
Estimated amount of other compensation from the organization and related organizations
Individual Trustee or Director; Institutional Trustee; OfficerInd; Key Employee; Highest compensated employee; FormerOfcrDirectorTrusteeInd;
(18) STEVE FURNARY........................................................................
DIRECTOR
 1.00
.......................   		X           0 0 0
(19) TOM SIMON........................................................................
DIRECTOR
 1.00
.......................   		X           0 0 0
(20) DONALD WOOD........................................................................
OUTGOING PRESIDENT & CEO
 50.00
.......................   		    X       662,437 0 17,405
(21) HENRY LANMAN........................................................................
COO & CHIEF LEGAL OFFICER
 50.00
.......................   		    X       380,303 0 56,441
(22) MICHAEL KENNEDY........................................................................
OUTGOING TREASURER & CFO
 50.00
.......................   		    X       158,297 0 11,653
(23) SHARON HESTERLEE........................................................................
PRESIDENT & CEO
 50.00
.......................   		    X       421,661 0 70,765
(24) JON VAN COTT........................................................................
INTERIM CFO & CONTROLLER
 50.00
.......................   		      X     213,151 0 48,058
(25) ANGELA LEK........................................................................
CHIEF RESEARCH OFFICER
 50.00
.......................   		        X   221,940 0 13,910
(26) MARY ROTH........................................................................
CHIEF MARKETING OFFICER
 50.00
.......................   		        X   259,355 0 54,791
(27) NORA CAPOCCI........................................................................
EVP, HEALTHCARE SERVICES
 50.00
.......................   		        X   227,925 0 24,094
(28) PERIPEDES GONDIM........................................................................
OUTGOING EVP, HR & VOLUNTEERS
 50.00
.......................   		        X   235,864 0 15,493
(29) RUTH DAILEY........................................................................
CHIEF DEVELOPMENT OFFICER
 50.00
.......................   		        X   304,413 0 29,955


1b Sub-Total..............
c Total from continuation sheets to Part VII, Section A..
d Total (add lines 1b and 1c)......... 3,085,346 0 342,565
2
Total number of individuals (including but not limited to those listed above) who received more than $100,000 of reportable compensation from the organization 56
Yes
No
3
Did the organization list any former officer, director or trustee, key employee, or highest compensated employee on line 1a? If "Yes," complete Schedule J for such individual ..............
3
 
No
4
For any individual listed on line 1a, is the sum of reportable compensation and other compensation from the organization and related organizations greater than $150,000? If "Yes," complete Schedule J for such
individual...........................
4
Yes
 
5
Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services rendered to the organization? If "Yes," complete Schedule J for such person ........
5
 
No
Section B. Independent Contractors
1
Complete this table for your five highest compensated independent contractors that received more than $100,000 of compensation from the organization. Report compensation for the calendar year ending with or within the organization’s tax year.
(A)
Name and business address 		(B)
Description of services 		(C)
Compensation
YES & HOLDINGS LLC

1700 DIAGONAL ROAD SUITE 700
ALEXANDRIA,VA22314 		MARKETING SERVICES 995,973
MOORE A SERIES LLC

4200 PARLIAMENT PLACE 3RD FLOOR
LANHAM,MD20703 		DIRECT MAIL MARKETING 756,396
BACK POCKET AGENCY LLC

1647 W OLIVE AVE
CHICAGO,IL60660 		CONTENT MARKETING AGENCY 601,287
CADENT MEDICAL COMMUNICATIONS LLC

200 VESEY STREET 40TH FL
NEW YORK,NY10281 		MANAGEMENT AND LOGISTICAL SUPPPORT 552,008
MWW GROUP LLC

ONE MEADOWLANDS PLAZA 15TH FL
EAST RUTHERFORD,NJ07073 		MARKETING SERVICES 404,000
2
Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization 12
Form 990 (2025)
Form 990 (2025)
Page 9
Part VIII
Statement of Revenue
Check if Schedule O contains a response or note to any line in this Part VIII.............
(A)
Total revenue 		(B)
Related or
exempt
function
revenue 		(C)
Unrelated
business
revenue 		(D)
Revenue
excluded from
tax under sections
512 - 514
Contributions, Gifts, Grants, and OtherAmt Similar Amounts 1a Federated campaigns..1a 291,115
b Membership dues..1b  
c Fundraising events..1c 33,197,103
d Related organizations1d  
e Government grants (contributions)1e 193,656
f All other contributions, gifts, grants, and similar amounts not included above1f 20,673,714
g Noncash contributions included in lines 1a - 1f:$ 1g 317,030
h Total. Add lines 1a-1f....... 54,355,588
Program Service RevenueAmt Business Code
2a
b
c
d
e
f All other program service revenue.        
g Total. Add lines 2a–2f .....  
OtherAmtRevenueAmt 3 Investment income (including dividends, interest, and othersimilar amounts) ...... 1,037,478     1,037,478
4 Income from investment of tax-exempt bond proceeds        
5 Royalties........... 6,063,508     6,063,508
(i) Real (ii) Personal
6a Gross rents 6a 4,250  
b Less: rental expenses 6b 0  
c Rental income or (loss) 6c 4,250  
d Net rental income or (loss)....... 4,250     4,250
(i) Securities (ii) Other
7a Gross amount from sales of assets other than inventory 7a 21,664,886  
b Less: cost or other basis and sales expenses 7b 18,204,308  
c Gain or (loss) 7c 3,460,578  
d Net gain or (loss)......... 3,460,578     3,460,578
8a Gross income from fundraising events (not including $ 33,197,103of contributions reported on line 1c). See Part IV, line 18 ....
8a 2,922,432
b Less: direct expenses ... 8b 4,338,490
c Net income or (loss) from fundraising events.. -1,416,058   -1,416,058
9a Gross income from gaming activities.
See Part IV, line 19 ...
9a  
b Less: direct expenses ... 9b  
c Net income or (loss) from gaming activities..        
10a Gross sales of inventory, less
returns and allowances ..
10a  
b Less: cost of goods sold .. 10b  
c Net income or (loss) from sales of inventory..        
OtherRevenueMiscAmt
Business Code
11a QUEST ADVERTISING 541800 654,688   654,688  
b            
c            
d All other revenue ....        
e Total. Add lines 11a–11d ...... 654,688
12 Total revenue. See instructions..... 64,160,032 0 654,688 9,149,756
Form 990 (2025)
Form 990 (2025)
Page 10
Part IX
Statement of Functional Expenses
Section 501(c)(3) and 501(c)(4) organizations must complete all columns. All other organizations must complete column (A).Check if Schedule O contains a response or note to any line in this Part IX..............
Do not include amounts reported on lines 6b,
7b, 8b, 9b, and 10b of Part VIII. 		(A)
Total expenses 		(B)
Program service expenses 		(C)
Management and general expenses 		(D)
Fundraising
expenses
1 Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21 .... 12,790,451 12,790,451
2 Grants and other assistance to domestic individuals. See Part IV, line 22 ...........    
3 Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, lines 15 and 16. ............. 1,357,260 1,357,260
4 Benefits paid to or for members .......    
5 Compensation of current officers, directors, trustees, and key employees ........... 2,040,172 1,313,151 96,314 630,707
6 Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) .........        
7 Other salaries and wages........ 20,884,236 13,442,078 985,925 6,456,233
8 Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions) .... 388,108 249,805 18,322 119,981
9 Other employee benefits ....... 4,129,118 2,657,694 194,932 1,276,492
10 Payroll taxes ........... 1,733,652 1,115,860 81,844 535,948
11 Fees for services (non-employees):        
a Management ......        
b Legal ......... 300,691 33,367 88,048 179,276
c Accounting ........... 130,450 51,227 15,487 63,736
d Lobbying ........... 420,000 420,000    
e Professional fundraising services. See Part IV, line 17 1,152,729 1,152,729
f Investment management fees ...... 123,958   123,958  
g Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O) 1,218,465 1,145,811 72,654  
12 Advertising and promotion .... 1,803,589 1,798,731   4,858
13 Office expenses ....... 2,131,273 916,427 220,470 994,376
14 Information technology ...... 2,266,089 800,624 769,082 696,383
15 Royalties ..        
16 Occupancy ........... 105,641 64 77,563 28,014
17 Travel ............ 2,228,542 1,577,311 76,280 574,951
18 Payments of travel or entertainment expenses for any federal, state, or local public officials .        
19 Conferences, conventions, and meetings .... 1,041,529 1,041,488   41
20 Interest ........... 777,554 305,341 92,312 379,901
21 Payments to affiliates .......        
22 Depreciation, depletion, and amortization .. 657,418 535,102 122,316  
23 Insurance ... 473,662 186,004 56,234 231,424
24 Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a EVENT EXPENSES 2,448,636 1,052,794   1,395,842
b PRODUCTION COSTS 955,424 955,424    
c
d
e All other expenses 189,459 63,894 87,475 38,090
25 Total functional expenses. Add lines 1 through 24e 61,748,106 43,809,908 3,179,216 14,758,982
26 Joint costs. Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation. Check here if following SOP 98-2 (ASC 958-720). 1,512,828 605,131 0 907,697
Form 990 (2025)
Form 990 (2025)
Page 11
Part X
Balance Sheet
Check if Schedule O contains a response or note to any line in this Part IX..............
(A)
Beginning of year 		(B)
End of year
Assets 1 Cash–non-interest-bearing ........ 4,374,392 1 3,486,720
2 Savings and temporary cash investments ......... 1,562,462 2 5,591,799
3 Pledges and grants receivable, net ...... 4,089,647 3 4,315,250
4 Accounts receivable, net .............   4  
5 Loans and other receivables from any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .......
  5  
6 Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), and persons described in section 4958(c)(3)(B) ...
  6  
7 Notes and loans receivable, net ...........   7  
8 Inventories for sale or use ............   8  
9 Prepaid expenses and deferred charges ...... 2,604,547 9 1,565,963
10a Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D 10a 5,597,533
b Less: accumulated depreciation 10b 5,205,918 1,014,299 10c 391,615
11 Investments—publicly traded securities . 44,214,583 11 35,421,745
12 Investments—other securities. See Part IV, line 11 ..... 76,213 12 76,213
13 Investments—program-related. See Part IV, line 11 ..   13  
14 Intangible assets ............... 10,442 14  
15 Other assets. See Part IV, line 11 ........... 24,911 15 24,911
16 Total assets. Add lines 1 through 15 (must equal line 33)... 57,971,496 16 50,874,216
Liabilities 17 Accounts payable and accrued expenses ..... 7,831,569 17 2,334,615
18 Grants payable ... 1,079,496 18 178,924
19 Deferred revenue ......... 4,618,055 19 5,840,048
20 Tax-exempt bond liabilities .........   20  
21 Escrow or custodial account liability. Complete Part IV of Schedule D   21  
22 Loans and other payables to any current or former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35% controlled entity or family member of any of these persons .........
  22  
23 Secured mortgages and notes payable to unrelated third parties .. 10,768,117 23 10,179,517
24 Unsecured notes and loans payable to unrelated third parties ..   24  
25 Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17 - 24). Complete Part X of Schedule D 30,238,789 25 22,643,693
26 Total liabilities. Add lines 17 through 25.. 54,536,026 26 41,176,797
Net Assets or Fund Balance Organizations that follow FASB ASC 958, check here and complete lines 27, 28, 32, and 33.
27 Net assets without donor restrictions .......... -1,508,923 27 4,359,739
28 Net assets with donor restrictions ........... 4,944,393 28 5,337,680
Organizations that do not follow FASB ASC 958, check here right arrow and complete lines 29 through 33.
29 Capital stock or trust principal, or current funds .....   29  
30 Paid-in or capital surplus, or land, building or equipment fund ...   30  
31 Retained earnings, endowment, accumulated income, or other funds   31  
32 Total net assets or fund balances ........... 3,435,470 32 9,697,419
33 Total liabilities and net assets/fund balances ........ 57,971,496 33 50,874,216
Form 990 (2025)
Form 990 (2025)
Page 12
Part XI
Reconcilliation of Net Assets
Check if Schedule O contains a response or note to any line in this Part XI..............
1
Total revenue (must equal Part VIII, column (A), line 12) ............
1
64,160,032
2
Total expenses (must equal Part IX, column (A), line 25) ............
2
61,748,106
3
Revenue less expenses. Subtract line 2 from line 1 ..............
3
2,411,926
4
Net assets or fund balances at beginning of year (must equal Part X, line 32, column (A)) ..
4
3,435,470
5
Net unrealized gains (losses) on investments ...............
5
-22,871
6
Donated services and use of facilities .................
6
 
7
Investment expenses .....................
7
 
8
Prior period adjustments .....................
8
 
9
Other changes in net assets or fund balances (explain in Schedule O) ........
9
3,872,894
10
Net assets or fund balances at end of year. Combine lines 3 through 9 (must equal Part X, line 32, column (B))
10
9,697,419
Part XII
Financial Statements and Reporting
Check if Schedule O contains a response or note to any line in this Part XII.............
Yes
No
1
Accounting method used to prepare the Form 990:  
If the organization changed its method of accounting from a prior year or checked "Other," explain on
Schedule O.
2a
Were the organization’s financial statements compiled or reviewed by an independent accountant?
2a
 
No
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were compiled or reviewed on a separate basis, consolidated basis, or both:
b
Were the organization’s financial statements audited by an independent accountant?
2b
Yes
 
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were audited on a separate basis, consolidated basis, or both:
c
If "Yes," to line 2a or 2b, does the organization have a committee that assumes responsibility for oversight of the audit, review, or compilation of its financial statements and selection of an independent accountant?
2c
Yes
 
If the organization changed either its oversight process or selection process during the tax year, explain in Schedule O.
3a
As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Uniform Guidance, 2 C.F.R. Part 200, Subpart F?
3a
 
No
b
If "Yes," did the organization undergo the required audit or audits? If the organization did not undergo the required audit or audits, explain why in Schedule O and describe any steps taken to undergo such audits.
3b
 
 
Form 990 (2025)
Form 990 (2025)
Additional Data


Software ID:  
Software Version:  
Form 990, Special Condition Description:
Special Condition Description
SCHEDULE A
(Form 990)

Department of the Treasury
Internal Revenue Service
Public Charity Status and Public Support
Complete if the organization is a section 501(c)(3) organization or a section 4947(a)(1) nonexempt charitable trust.
Attach to Form 990 or Form 990-EZ.
Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2025
Open to Public
Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION
INC
Employer identification number

13-1665552
Part I
Reason for Public Charity Status (All organizations must complete this part.) See instructions.
The organization is not a private foundation because it is: (For lines 1 through 12, check only one box.)
1
2
3
4
5
6
7
8
9
10
11
12
a
b
c
d
e
f
Enter the number of supported organizations ...........................  
g
Provide the following information about the supported organization(s).
(i) Name of supported organization (ii) EIN (iii) Type of organization (described on lines 1- 10 above (see instructions)) (iv) Is the organization listed in your governing document? (v) Amount of monetary support (see instructions) (vi) Amount of other support (see instructions)
Yes No
Total
 
   
For Paperwork Reduction Act Notice, see the Instructions for
Form 990 or 990-EZ.
Cat. No. 11285F
Schedule A (Form 990) 2025

Schedule A (Form 990) 2025
Page 2
Part II
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)
(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization failed to qualify under the tests listed below, please complete Part III.)
Section A. Public Support
Calendar year (or fiscal year beginning in) (a) 2021 (b) 2022 (c) 2023 (d) 2024 (e) 2025 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grant.") .. 60,181,680 59,144,929 56,761,618 54,195,181 54,355,588 284,638,996
2 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf ....            
3 The value of services or facilities furnished by a governmental unit to the organization without charge..            
4 Total. Add lines 1 through 3 60,181,680 59,144,929 56,761,618 54,195,181 54,355,588 284,638,996
5 The portion of total contributions by each person (other than a governmental unit or publicly supported organization) included on line 1 that exceeds 2% of the amount shown on line 11, column (f) .. 4,205,198
6 Public support. Subtract line 5 from line 4. 280,433,798
Section B. Total Support
Calendar year (or fiscal year beginning in) (a) 2021 (b) 2022 (c) 2023 (d) 2024 (e) 2025 (f) Total
7 Amounts from line 4.. 60,181,680 59,144,929 56,761,618 54,195,181 54,355,588 284,638,996
8 Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources... 968,429 1,684,474 2,629,877 2,224,872 7,105,236 14,612,888
9 Net income from unrelated business activities, whether or not the business is regularly carried on..   10,004       10,004
10 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.)..            
11 Total support. Add lines 7 through 10 299,261,888
12
12
 
13
First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here ........................................
Section C. Computation of Public Support Percentage
14
14
93.710 %
15
15
95.410 %
16a
33 1/3% support test—2025. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization .......................
b
33 1/3% support test—2024. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this
box and stop here. The organization qualifies as a publicly supported organization .....................
17a
10%-facts-and-circumstances test—2025. If the organization did not check a box on line 13, 16a, or 16b, and line 14 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ............
b
10%-facts-and-circumstances test—2024. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line 15 is 10% or more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ............
18
Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see
instructions .....................................................
Schedule A (Form 990) 2025

Schedule A (Form 990) 2025
Page 3
Part III
Support Schedule for Organizations Described in Section 509(a)(2)
(Complete only if you checked the box on line 10 of Part I or if the organization failed to qualify under Part II. If the organization fails to qualify under the tests listed below, please complete Part II.)
Section A. Public Support
Calendar year (or fiscal year beginning in) (a) 2021 (b) 2022 (c) 2023 (d) 2024 (e) 2025 (f) Total
1 Gifts, grants, contributions, and membership fees received. (Do not include any "unusual grants.")            
2 Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose            
3 Gross receipts from activities that are not an unrelated trade or business under section 513 .....            
4 Tax revenues levied for the organization's benefit and either paid to or expended on its behalf...            
5 The value of services or facilities furnished by a governmental unit to the organization without charge            
6 Total. Add lines 1 through 5            
7a Amounts included on lines 1, 2, and 3 received from disqualified persons            
b Amounts included on lines 2 and 3 received from other than disqualified persons that exceed the greater of $5,000 or 1% of the amount on line 13 for the year.            
c Add lines 7a and 7b..            
8 Public support. (Subtract line 7c from line 6.)  
Section B. Total Support
Calendar year (or fiscal year beginning in) (a) 2021 (b) 2022 (c) 2023 (d) 2024 (e) 2025 (f) Total
9 Amounts from line 6            
10a Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources            
b Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975            
c Add lines 10a and 10b            
11 Net income from unrelated business activities not included on line 10b, whether or not the business is regularly carried on.            
12 Other income. Do not include gain or loss from the sale of capital assets (Explain in Part VI.) ..            
13 Total support. (Add lines 9, 10c, 11, and 12.)..            
14
First 5 years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization, check this box and stop here.................................................
Section C. Computation of Public Support Percentage
15
15
 
16
16
 
Section D. Computation of Investment Income Percentage
17
17
 
18
18
 
19a
33 1/3% support tests-2025. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization .......
b
33 1/3 % support tests—2024. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3% and line 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization .....
20
Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions ....
Schedule A (Form 990) 2025

Schedule A (Form 990) 2025
Page 4
Part IV
Supporting Organizations
(Complete only if you checked a box on line 12 of Part I. If you checked box 12a, of Part I, complete Sections A and B. If you checked box 12b, of Part I, complete Sections A and C. If you checked box 12c, of Part I, complete Sections A, D, and E. If you checked box12d, of Part I, complete Sections A and D, and complete Part V.)
Section A. All Supporting Organizations
Yes
No
1
Are all of the organization’s supported organizations listed by name in the organization’s governing documents?
If "No," describe in Part VI how the supported organizations are designated. If designated by class or purpose,
describe the designation. If historic and continuing relationship, explain.
1
 
 
2
Did the organization have any supported organization that does not have an IRS determination of status under section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported organization was described in section 509(a)(1) or (2).
2
 
 
3a
Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer lines 3b and 3c below.
3a
 
 
b
Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) and satisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how the organization made the determination.
3b
 
 
c
Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.
3c
 
 
4a
Was any supported organization not organized in the United States ("foreign supported organization")? If “Yes” and if you checked box 12a or 12b in Part I, answer lines 4b and 4c below.
4a
 
 
b
Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign supported organization? If “Yes,” describe in Part VI how the organization had such control and discretion despite being controlled or supervised by or in connection with its supported organizations.
4b
 
 
c
Did the organization support any foreign supported organization that does not have an IRS determination under sections 501(c)(3) and 509(a)(1) or (2)? If “Yes,” explain in Part VI what controls the organization used to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B) purposes.
4c
 
 
5a
Did the organization add, substitute, or remove any supported organizations during the tax year? If “Yes,” answer lines 5b and 5c below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN numbers of the supported organizations added, substituted, or removed; (ii) the reasons for each such action; (iii) the authority under the organization's organizing document authorizing such action; and (iv) how the action was accomplished (such as by amendment to the organizing document).
5a
 
 
b
Type I or Type II only. Was any added or substituted supported organization part of a class already designated in the organization's organizing document?
5b
 
 
c
Substitutions only. Was the substitution the result of an event beyond the organization's control?
5c
 
 
6
Did the organization provide support (whether in the form of grants or the provision of services or facilities) to anyone other than (i) its supported organizations, (ii) individuals that are part of the charitable class benefited by one or more of its supported organizations, or (iii) other supporting organizations that also support or benefit one or more of the filing organization’s supported organizations? If “Yes,” provide detail in Part VI.
6
 
 
7
Did the organization provide a grant, loan, compensation, or other similar payment to a substantial contributor (defined in section 4958(c)(3)(C)), a family member of a substantial contributor, or a 35% controlled entity with regard to a substantial contributor? If “Yes,” complete Part I of Schedule L (Form 990) .
7
 
 
8
Did the organization make a loan to a disqualified person (as defined in section 4958) not described on line 7? If “Yes,” complete Part I of Schedule L (Form 990).
8
 
 
9a
Was the organization controlled directly or indirectly at any time during the tax year by one or more disqualified persons, as defined in section 4946 (other than foundation managers and organizations described in section 509(a)(1) or (2))? If “Yes,” provide detail in Part VI.
9a
 
 
b
Did one or more disqualified persons (as defined on line 9a) hold a controlling interest in any entity in which the supporting organization had an interest? If “Yes,” provide detail in Part VI.
9b
 
 
c
Did a disqualified person (as defined on line 9a) have an ownership interest in, or derive any personal benefit from, assets in which the supporting organization also had an interest? If “Yes,” provide detail in Part VI.
9c
 
 
10a
Was the organization subject to the excess business holdings rules of section 4943 because of section 4943(f) (regarding certain Type II supporting organizations, and all Type III non-functionally integrated supporting organizations)? If “Yes,” answer line 10b below.
10a
 
 
b
Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to determine whether the organization had excess business holdings).
10b
 
 
Schedule A (Form 990) 2025

Schedule A (Form 990) 2025
Page 5
Part IV
Supporting Organizations (continued)
Yes
No
11
Has the organization accepted a gift or contribution from any of the following persons?
a
A person who directly or indirectly controls, either alone or together with persons described on lines 11b and 11c below, the governing body of a supported organization?
11a
 
 
b
A family member of a person described on 11a above?
11b
 
 
c
A 35% controlled entity of a person described on line 11a or 11b above? If “Yes” to 11a, 11b, or 11c, provide detail in Part VI.
11c
 
 
Section B. Type I Supporting Organizations
Yes
No
1
Did the officers, directors, trustees, or membership of one or more supported organizations have the power to regularly appoint or elect at least a majority of the organization’s directors or trustees at all times during the tax year? If “No,” describe in Part VI how the supported organization(s) effectively operated, supervised, or controlled the organization’s activities. If the organization had more than one supported organization, describe how the powers to appoint and/or remove directors or trustees were allocated among the supported organizations and what conditions or restrictions, if any, applied to such powers during the tax year.
1
 
 
2
Did the organization operate for the benefit of any supported organization other than the supported organization(s) that operated, supervised, or controlled the supporting organization? If “Yes,” explain in Part VI how providing such benefit carried out the purposes of the supported organization(s) that operated, supervised or controlled the supporting organization.
2
 
 
Section C. Type II Supporting Organizations
Yes
No
1
Were a majority of the organization’s directors or trustees during the tax year also a majority of the directors or trustees of each of the organization’s supported organization(s)? If “No,” describe in Part VI how control or management of the supporting organization was vested in the same persons that controlled or managed the supported organization(s).
1
 
 
Section D. All Type III Supporting Organizations
Yes
No
1
Did the organization provide to each of its supported organizations, by the last day of the fifth month of the organization’s tax year, (i) a written notice describing the type and amount of support provided during the prior tax year, (ii) a copy of the Form 990 that was most recently filed as of the date of notification, and (iii) copies of the organization’s governing documents in effect on the date of notification, to the extent not previously provided?
1
 
 
2
Were any of the organization’s officers, directors, or trustees either (i) appointed or elected by the supported organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how the organization maintained a close and continuous working relationship with the supported organization(s).
2
 
 
3
By reason of the relationship described in line 2 above, did the organization’s supported organizations have a significant voice in the organization’s investment policies and in directing the use of the organization’s income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization’s supported organizations played in this regard.
3
 
 
Section E. Type III Functionally-Integrated Supporting Organizations
1
Check the box next to the method that the organization used to satisfy the Integral Part Test during the year (see instructions):
a
b
c
2
Activities Test. Answer lines 2a and 2b below.
Yes
No
a
Did substantially all of the organization’s activities during the tax year directly further the exempt purposes of its supported organization(s)? If "Yes," then in Part VI identify those supported organizations and explain how these activities directly furthered their exempt purposes, how the organization was responsive to each of its supported organizations, and how the organization determined that these activities constituted substantially all of its activities.
2a
 
 
b
Did the activities described on line 2a, above, constitute activities that, but for the organization’s involvement, one or more of the organization’s supported organization(s) would have been engaged in? If “Yes,” explain in Part VI the reasons for the organization’s position that its supported organization(s) would have engaged in these activities but for the organization’s involvement.
2b
 
 
3
Parent of Supported Organizations. Answer lines 3a, 3b, and 3c below.
a
Are the organization and its supported organization(s) part of an integrated system (for example, a hospital system)? If “Yes,” provide details in Part VI.
3a
 
 
b
Did the organization direct the policies, programs, and activities of each of its supported organizations? If "Yes," describe in Part VI the role played by the organization in this regard.
3b
 
 
c
Did the organization have the power to regularly appoint or elect (and remove) a majority of the officers, directors, or trustees of each of the supported organizations?If "Yes" or "No", provide details in Part VI.
3c
 
 
Schedule A (Form 990) 2025

Schedule A (Form 990) 2025
Page 6
Part V
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations
1
Section A - Adjusted Net Income (A) Prior Year (B) Current Year
(optional)
1 Net short-term capital gain 1    
2 Recoveries of prior-year distributions 2    
3 Other gross income (see instructions) 3    
4 Add lines 1 through 3 4    
5 Depreciation and depletion 5    
6 Portion of operating expenses paid or incurred for production or collection of gross income or for management, conservation, or maintenance of property held for production of income (see instructions) 6    
7 Other expenses (see instructions) 7    
8 Adjusted Net Income (subtract lines 5, 6 and 7 from line 4) 8    
Section B - Minimum Asset Amount (A) Prior Year (B) Current Year
(optional)
1 Aggregate fair market value of all non-exempt-use assets (see instructions for short tax year or assets held for part of year): 1
a Average monthly value of securities 1a    
b Average monthly cash balances 1b    
c Fair market value of other non-exempt-use assets 1c    
d Total (add lines 1a, 1b, and 1c) 1d    
e Discount claimed for blockage or other factors
(explain in detail in Part VI):  
2 Acquisition indebtedness applicable to non-exempt use assets 2    
3 Subtract line 2 from line 1d 3    
4 Cash deemed held for exempt use. Enter 0.015 of line 3 (for greater amount, see instructions). 4    
5 Net value of non-exempt-use assets (subtract line 4 from line 3) 5    
6 Multiply line 5 by 0.035 6    
7 Recoveries of prior-year distributions 7    
8 Minimum Asset Amount (add line 7 to line 6) 8    
Section C - Distributable Amount Current Year
1 Adjusted net income for prior year (from Section A, line 8, Column A) 1  
2 Enter 85% of line 1 2  
3 Minimum asset amount for prior year (from Section B, line 8, Column A) 3  
4 Enter greater of line 2 or line 3 4  
5 Income tax imposed in prior year 5  
6 Distributable Amount. Subtract line 5 from line 4, unless subject to emergency temporary reduction (see instructions) 6  
7
Schedule A (Form 990) 2025

Schedule A (Form 990) 2025
Page 7
Part V
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations(continued)
Section D - Distributions Current Year
1 Amounts paid to supported organizations to accomplish exempt purposes 1  
2 Amounts paid to perform activity that directly furthers exempt purposes of supported organizations, in
excess of income from activity 		2  
3 Administrative expenses paid to accomplish exempt purposes of supported organizations 3  
4 Amounts paid to acquire exempt-use assets 4  
5 Qualified set-aside amounts (prior IRS approval required - provide details in Part VI) 5  
6Total annual distributions. Add lines 1 through 5. 6  
7 Distributions to attentive supported organizations to which the organization is responsive (provide
details in Part VI). See instructions 		7  
8 Distributable amount for 2025 from Section C, line 6 8  
9 Line 7 amount divided by Line 8 amount 9  
Section E - Distribution Allocations (see instructions) (i)
Excess Distributions 		(ii)
Underdistributions
Pre-2025 		(iii)
Distributable
Amount for 2025
1 Distributable amount for 2025 from Section C, line 6  
2 Underdistributions, if any, for years prior to 2025 (reasonable cause required-- explain in Part VI).
See instructions.		  
3 Excess distributions carryover, if any, to 2025:
a From 2020.......  
b From 2021.......  
c From 2022.......  
d From 2023.......  
e From 2024.......  
fTotal of lines 3a through e  
g Applied to underdistributions of prior years  
h Applied to 2025 distributable amount  
i Carryover from 2020 not applied (see
instructions) 		 
j Remainder. Subtract lines 3g, 3h, and 3i from line 3f.  
4Distributions for 2025 from Section D, line 6:
$  
a Applied to underdistributions of prior years  
b Applied to 2025 distributable amount  
c Remainder. Subtract lines 4a and 4b from line 4.  
5 Remaining underdistributions for years prior to
2025, if any. Subtract lines 3g and 4a from line 2.
If the amount is greater than zero, explain in Part VI.
See instructions. 		 
6 Remaining underdistributions for 2025. Subtract
lines 3h and 4b from line 1. If the amount is greater
than zero, explain in Part VI. See instructions. 		 
7 Excess distributions carryover to 2026. Add lines
3j and 4c. 		 
8 Breakdown of line 7:
a Excess from 2021.....  
b Excess from 2022.....  
c Excess from 2023.....  
d Excess from 2024.....  
e Excess from 2025.....  
Schedule A (Form 990) (2025)

Schedule A (Form 990) 2025
Page 8
Part VI
Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; Part III, line 12; Part IV, Section A, lines 1, 2, 3b, 3c, 4b, 4c, 5a, 6, 9a, 9b, 9c, 11a, 11b, and 11c; Part IV, Section B, lines 1 and 2; Part IV, Section C, line 1; Part IV, Section D, lines 2 and 3; Part IV, Section E, lines 1c, 2a, 2b, 3a, 3b, and 3c; Part V, line 1; Part V, Section B, line 1e; Part V Section D, lines 5 and 7; and Part V, Section E, lines 2, 5, and 6. Also complete this part for any additional information. (See instructions).
Facts And Circumstances Test
 
Return Reference Explanation
Schedule A (Form 990) 2025


Additional Data


Software ID:  
Software Version:  
Schedule B
(Form 990)
(Rev. January 2025)
Department of the Treasury
Internal Revenue Service
Schedule of Contributors

Attach to Form 990, 990-EZ, or 990-PF.
Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION
INC
Employer identification number

13-1665552
Organization type (check one):
Filers of:
Section:
Form 990 or 990-EZ
501(c)( ) (enter number) organization

4947(a)(1) nonexempt charitable trust not treated as a private foundation

527 political organization


Form 990-PF
501(c)(3) exempt private foundation

4947(a)(1) nonexempt charitable trust treated as a private foundation

501(c)(3) taxable private foundation
Check if your organization is covered by the General Rule or a Special Rule.  
Note:  Only a section 501(c)(7), (8), or (10) organization can check boxes for both the General Rule and a Special Rule. See instructions.
General Rule
For an organization filing Form 990, 990-EZ, or 990-PF that received, during the year, contributions totaling $5,000 or more (in money or other property) from any one contributor. Complete Parts I and II. See instructions for determining a contributor's total contributions.
Special Rules
For an organization described in section 501(c)(3) filing Form 990 or 990-EZ that met the 331/3% support test of the regulations
under sections 509(a)(1) and 170(b)(1)(A)(vi), that checked Schedule A (Form 990 or 990-EZ), Part II, line 13, 16a, or 16b, and that received from any one contributor, during the year, total contributions of the greater of (1) $5,000 or (2) 2% of the amount on (i) Form 990, Part VIII, line 1h, or (ii) Form 990-EZ, line 1. Complete Parts I and II.
For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, total contributions of more than $1,000 exclusively for religious, charitable, scientific, literary, or educational purposes, or for the prevention of cruelty to children or animals. Complete Parts I, II, and III.
For an organization described in section 501(c)(7), (8), or (10) filing Form 990 or 990-EZ that received from any one contributor,
during the year, contributions exclusively for religious, charitable, etc., purposes, but no such contributions totaled more than $1,000. If this box is checked, enter here the total contributions that were received during the year for an exclusively religious, charitable, etc., purpose. Don't complete any of the parts unless the General Rule applies to this organization because it received nonexclusively religious, charitable, etc., contributions totaling $5,000 or more during the year ......... $  
Caution: An organization that isn't covered by the General Rule and/or the Special Rules doesn't file Schedule B (Form 990,
990-EZ, or 990-PF), but it must answer “No” on Part IV, line 2, of its Form 990; or check the box on line H of its Form 990-EZ
or on its Form 990PF, Part I, line 2, to certify that it doesn't meet the filing requirements of Schedule B (Form 990,
990-EZ, or 990-PF).
For Paperwork Reduction Act Notice, see the Instructions
for Form 990, 990-EZ, or 990-PF.
Cat. No. 30613XSchedule B (Form 990) (Rev. 1-2025)
Schedule B (Form 990) (Rev. 2025) Page 2
Name of organization
MUSCULAR DYSTROPHY ASSOCIATION
INC 		Employer identification number
13-1665552
Part I
Contributors (see instructions). Use duplicate copies of Part I if additional space is needed.
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
RESTRICTED
 
 
 
 
  ,    

$ RESTRICTED


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
(a)
No.		 (b)
Name, address, and ZIP + 4		 (c)
Total contributions		 (d)
Type of contribution
 
 
 
 

$  


(Complete Part II for noncash contributions.)
Schedule B (Form 990) (Rev. 1-2025)
Schedule B (Form 990) (Rev. 1-2025)
Page 3
Name of organization
MUSCULAR DYSTROPHY ASSOCIATION
INC 		Employer identification number

13-1665552
Part II
Noncash Property (see instructions). Use duplicate copies of Part II if additional space is needed.
(a)
No. from Part I 		(b)
Description of noncash property given 		(c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I 		(b)
Description of noncash property given 		(c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I 		(b)
Description of noncash property given 		(c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I 		(b)
Description of noncash property given 		(c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I 		(b)
Description of noncash property given 		(c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
(a)
No. from Part I 		(b)
Description of noncash property given 		(c)
FMV (or estimate)
(See instructions) 		(d)
Date received
 
$    
Schedule B (Form 990) (Rev. 1-2025)
Schedule B (Form 990) (Rev. 1-2025)
Page 4
Name of organization
MUSCULAR DYSTROPHY ASSOCIATION
INC 		Employer identification number

13-1665552
Part III
Exclusively religious, charitable, etc., contributions to organizations described in section 501(c) (7), (8), or (10) that total more than $1,000 for the year from any one contributor. Complete columns (a) through (e) and the following line entry. For organizations completing Part III, enter the total of exclusively religious, charitable, etc., contributions of $1,000 or less for the year. (Enter this information once. See instructions.) $  
Use duplicate copies of Part III if additional space is needed.
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
(a)
No. from Part I		 (b) Purpose of gift (c) Use of gift (d) Description of how gift is held
 
(e) Transfer of gift
Transferee's name, address, and ZIP 4 Relationship of transferor to transferee
 
 
     
 
Schedule B (Form 990) (Rev. 1-2025)
Additional Data


Software ID:  
Software Version:  
SCHEDULE C
(Form 990)

Department of the Treasury
Internal Revenue Service
Political Campaign and Lobbying Activities

For Organizations Exempt From Income Tax Under section 501(c) and section 527

Complete if the organization is described below. Attach to Form 990 or Form 990-EZ.
Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
2025
Open to Public
Inspection
If the organization answered "Yes" on Form 990, Part IV, Line 3, or Form 990-EZ, Part V, line 46 (Political Campaign Activities), then
Round Bullet Section 501(c)(3) organizations: Complete Parts I-A and B. Do not complete Part I-C.
Round Bullet Section 501(c) (other than section 501(c)(3)) organizations: Complete Parts I-A and C below. Do not complete Part I-B.
Round Bullet Section 527 organizations: Complete Part I-A only.
If the organization answered "Yes" on Form 990, Part IV, Line 4, or Form 990-EZ, Part VI, line 47 (Lobbying Activities), then
Round Bullet Section 501(c)(3) organizations that have filed Form 5768 (election under section 501(h)): Complete Part II-A. Do not complete Part II-B.
Round Bullet Section 501(c)(3) organizations that have NOT filed Form 5768 (election under section 501(h)): Complete Part II-B. Do not complete Part II-A.
If the organization answered "Yes" on Form 990, Part IV, Line 5 (Proxy Tax) (see separate instructions) or Form 990-EZ, Part V, line 35c (Proxy Tax) (see separate instructions), then
Round Bullet Section 501(c)(4), (5), or (6) organizations: Complete Part III.
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION
INC
Employer identification number

13-1665552
Part I-A
Complete if the organization is exempt under section 501(c) or is a section 527 organization.

1
Provide a description of the organization’s direct and indirect political campaign activities in Part IV. See instructions for definition of “political campaign activities."

2
Political campaign activity expenditures. See instructions ....................................................................
$  
3
Volunteer hours for political campaign activities. See instructions ..................................................................
 

Part I-B
Complete if the organization is exempt under section 501(c)(3).
1
Enter the amount of any excise tax incurred by the organization under section 4955 ................................
$  
2
Enter the amount of any excise tax incurred by organization managers under section 4955 .......................
$  
3
If the organization incurred a section 4955 tax, did it file Form 4720 for this year? .........................................
4a
Was a correction made? ......................................................................................................................
b
If "Yes," describe in Part IV.
Part I-C
Complete if the organization is exempt under section 501(c), except section 501(c)(3).
1
Enter the amount directly expended by the filing organization for section 527 exempt function activities .....
$  
2
Enter the amount of the filing organization's funds contributed to other organizations for section 527 exempt function activities ............................................................................................................................

$  
3
Total exempt function expenditures. Add lines 1 and 2. Enter here and on Form 1120-POL, line 17b...........

$  
4
Did the filing organization file Form 1120-POL for this year? ...................................................................
5
Enter the names, addresses and employer identification number (EIN) of all section 527 political organizations to which the filing
organization made payments. For each organization listed, enter the amount paid from the filing organization’s funds. Also enter the amount of political contributions received that were promptly and directly delivered to a separate political organization, such as a separate segregated fund or a political action committee (PAC). If additional space is needed, provide information in Part IV.
(a) Name (b) Address (c) EIN (d) Amount paid from filing organization's funds. If none, enter -0-. (e) Amount of political contributions received and promptly and directly delivered to a separate political organization. If none, enter -0-.
1
2
3
4
5
6
For Paperwork Reduction Act Notice, see the instructions for Form 990.
Cat. No. 50084S
Schedule C (Form 990) 2025

Schedule C (Form 990) 2025
Page 2
Part II-A
Complete if the organization is exempt under section 501(c)(3) and filed Form 5768 (election under section 501(h)).
A Check expenses, and share of excess lobbying expenditures).
B Check
Limits on Lobbying Expenditures
(The term "expenditures" means amounts paid or incurred.) 		(a) Filing
organization's
totals 		(b) Affiliated group totals
1a Total lobbying expenditures to influence public opinion (grass roots lobbying) ......................    
b Total lobbying expenditures to influence a legislative body (direct lobbying) ........................ 420,000  
c Total lobbying expenditures (add lines 1a and 1b) ............................................................ 420,000  
d Other exempt purpose expenditures ............................................................................... 43,389,908  
e Total exempt purpose expenditures (add lines 1c and 1d) .................................................. 43,809,908  
f Lobbying nontaxable amount. Enter the amount from the following table in both
columns.		 1,000,000  
If the amount on line 1e, column (a) or (b) is:The lobbying nontaxable amount is:
Not over $500,00020% of the amount on line 1e.
Over $500,000 but not over $1,000,000$100,000 plus 15% of the excess over $500,000.
Over $1,000,000 but not over $1,500,000$175,000 plus 10% of the excess over $1,000,000.
Over $1,500,000 but not over $17,000,000$225,000 plus 5% of the excess over $1,500,000.
Over $17,000,000$1,000,000.
g Grassroots nontaxable amount (enter 25% of line 1f) ................................................. 250,000  
h Subtract line 1g from line 1a. If zero or less, enter -0-. ................................................ 0  
i Subtract line 1f from line 1c. If zero or less, enter -0-. ................................................ 0  
j If there is an amount other than zero on either line 1h or line 1i, did the organization file Form 4720 reporting
section 4911 tax for this year? ...................................................................................................................

4-Year Averaging Period Under Section 501(h)
(Some organizations that made a section 501(h) election do not have to complete all of the five
columns below. See the separate instructions for lines 2a through 2f.)
Lobbying Expenditures During 4-Year Averaging Period
Calendar year (or fiscal year
beginning in) 		(a) 2022 (b) 2023 (c) 2024 (d) 2025 (e) Total
2a Lobbying nontaxable amount 1,000,000 1,000,000 1,000,000 1,000,000 4,000,000
b Lobbying ceiling amount
(150% of line 2a, column(e)) 		6,000,000
c Total lobbying expenditures 869,855 847,575 998,305 420,000 3,135,735
d Grassroots nontaxable amount 250,000 250,000 250,000 250,000 1,000,000
e Grassroots ceiling amount
(150% of line 2d, column (e))		 1,500,000
f Grassroots lobbying expenditures          
Schedule C (Form 990) 2025


Schedule C (Form 990) 2025
Page 3
Part II-B
Complete if the organization is exempt under section 501(c)(3) and has NOT filed Form 5768 (election under section 501(h)).
For each "Yes" response on lines 1a through 1i below, provide in Part IV a detailed description of the lobbying activity.
(a)
Yes
No
(b)
Amount
1
During the year, did the filing organization attempt to influence foreign, national, state or local legislation, including any attempt to influence public opinion on a legislative matter or referendum, through the use of:
a
Volunteers? ...........................................................................................................
 
 
b
Paid staff or management (include compensation in expenses reported on lines 1c through 1i)? ........
 
 
c
Media advertisements? ...................................................................................................
 
 
 
d
Mailings to members, legislators, or the public? .............................................................................
 
 
 
e
Publications, or published or broadcast statements? ...........................................................
 
 
 
f
Grants to other organizations for lobbying purposes? ..........................................................
 
 
 
g
Direct contact with legislators, their staffs, government officials, or a legislative body? .......................
 
 
 
h
Rallies, demonstrations, seminars, conventions, speeches, lectures, or any similar means? ..................
 
 
 
i
Other activities? ...................................................................................................................
 
 
 
j
Total. Add lines 1c through 1i ....................................................................................................
 
2a
Did the activities in line 1 cause the organization to be not described in section 501(c)(3)? .....
 
 
b
If "Yes," enter the amount of any tax incurred under section 4912 ...........................................
 
c
If "Yes," enter the amount of any tax incurred by organization managers under section 4912 ...................
 
d
If the filing organization incurred a section 4912 tax, did it file Form 4720 for this year? ........................
 
 
Part III-A
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6).
Yes
No
1
Were substantially all (90% or more) dues received nondeductible by members? ...............................................
1
 
 
2
Did the organization make only in-house lobbying expenditures of $2,000 or less? ............................................
2
 
 
3
Did the organization agree to carry over lobbying and political expenditures from the prior year? .................................
3
 
 
Part III-B
Complete if the organization is exempt under section 501(c)(4), section 501(c)(5), or section 501(c)(6) and if either (a) BOTH Part III-A, lines 1 and 2, are answered "No" OR (b) Part III-A, line 3, is answered “Yes."
1
Dues, assessments and similar amounts from members ......................................................................
1
 
2
Section 162(e) nondeductible lobbying and political expenditures (do not include amounts of political expenses for which the section 527(f) tax was paid).
a
Current year .............................................................................................................................
2a
 
b
Carryover from last year ............................................................................................................
2b
 
c
Total ...........................................................................................................................................
2c
 
3
Aggregate amount reported in section 6033(e)(1)(A) notices of nondeductible section 162(e) dues .
3
 
4
If notices were sent and the amount on line 2c exceeds the amount on line 3, what portion of the excess does the organization agree to carryover to the reasonable estimate of nondeductible lobbying and political expenditure next year? ......................................................................................................................
4
 
5
Taxable amount of lobbying and political expenditures. See Instructions .........................................
5
 
Part IV
Supplemental Information
Provide the descriptions required for Part I-A, line 1; Part I-B, line 4; Part I-C, line 5; Part II-A (affiliated group list); Part II-A, lines 1 and 2 (see instructions), and Part II-B, line 1. Also, complete this part for any additional information.
Return Reference Explanation
Schedule C (Form 990) 2025


Additional Data


Software ID:  
Software Version:  

SCHEDULE D
(Form 990)

Department of the Treasury
Internal Revenue Service
Supplemental Financial Statements
Complete if the organization answered "Yes," on Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
Attach to Form 990.
Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
Open to Public Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION
INC
Employer identification number

13-1665552
Part I
Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts. Complete if the organization answered "Yes" on Form 990, Part IV, line 6.
(a) Donor advised funds (b) Funds and other accounts
1 Total number at end of year .........    
2 Aggregate value of contributions to (during year)    
3 Aggregate value of grants from (during year)    
4 Aggregate value at end of year ........    
5
Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds are the organization’s property, subject to the organization’s exclusive legal control? ............
6
Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring impermissible private benefit? ...................................
Part II
Conservation Easements.
Complete if the organization answered "Yes" on Form 990, Part IV, line 7.
1
Purpose(s) of conservation easements held by the organization (check all that apply).
2
Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last day of the tax year.
Held at the End of the Year
a Total number of conservation easements ...................... 2a  
b Total acreage restricted by conservation easements .................... 2b  
c Number of conservation easements on a certified historic structure included in (a) ..... 2c  
d Number of conservation easements included in (c) acquired after July 25, 2006, and not on a historic structure listed in the National Register ... 2d  
3
Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the
tax year  
4
Number of states where property subject to conservation easement is located  
5
Does the organization have a written policy regarding the periodic monitoring, inspection, handling of violations, and enforcement of the conservation easements it holds? ............
6
Staff and volunteer hours devoted to monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
 
7
Amount of expenses incurred in monitoring, inspecting, handling of violations, and enforcing conservation easements during the year
$  
8
Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i) and section 170(h)(4)(B)(ii)? .............................
9
In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and
balance sheet, and include, if applicable, the text of the footnote to the organization’s financial statements that describes
the organization’s accounting for conservation easements.
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.
Complete if the organization answered "Yes" on Form 990, Part IV, line 8.
1a
If the organization elected, as permitted under FASB ASC 958, not to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII, the text of the footnote to its financial statements that describes these items.
b
If the organization elected, as permitted under FASB ASC 958, to report in its revenue statement and balance sheet works of art, historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts relating to these items:
(i)
Revenue included on Form 990, Part VIII, line 1 ......................... $  
(ii)
Assets included in Form 990, Part X ............................... $  
2
If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide the
following amounts required to be reported under FASB ASC 958 relating to these items:
a
Revenue included on Form 990, Part VIII, line 1 .......................... $  
b
Assets included in Form 990, Part X ............................... $  
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 52283D
Schedule D (Form 990) (Rev. 1-2025)

Schedule D (Form 990) (Rev. 1-2025)
Page 2
Part III
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets (continued)
3
Using the organization’s acquisition, accession, and other records, check any of the following that are a significant use of its collection items (check all that apply):
a
d
b
e
 
c
4
Provide a description of the organization’s collections and explain how they further the organization’s exempt purpose in
Part XIII.
5
During the year, did the organization solicit or receive donations of art, historical treasures or other similar
assets to be sold to raise funds rather than to be maintained as part of the organization’s collection?...
Part IV
Escrow and Custodial Arrangements. Complete if the organization answered "Yes" on Form 990, Part IV, line 9, or reported an amount on Form 990, Part X, line 21.
1a
Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not
included on Form 990, Part X? ....................................
b If "Yes," explain the arrangement in Part XIII and complete the following table: Amount
c Beginning balance ............................. 1c  
d Additions during the year ............................ 1d  
e Distributions during the year .......................... 1e  
f Ending balance ................................ 1f  
2a
Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ...
b
If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII ....
Part V
Endowment Funds.
Complete if the organization answered "Yes" on Form 990, Part IV, line 10.
(a) Current year (b) Prior year (c) Two years back (d) Three years back (e) Four years back
1a Beginning of year balance .... 790,233 816,802 982,396 1,191,057 1,077,753
b Contributions ...     24,380    
c Net investment earnings, gains, and losses 102,391 77,476 133,867 -195,884 126,644
d Grants or scholarships ...          
e Other expenditures for facilities
and programs ... 		    312,379    
f Administrative expenses .... 65,855 104,045 11,462 12,777 13,340
g End of year balance ...... 826,769 790,233 816,802 982,396 1,191,057
2
Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:
a
Board designated or quasi-endowment  
b
Permanent endowment 100.000 %
c
Term endowment  
The percentages on lines 2a, 2b, and 2c should equal 100%.
3a
Are there endowment funds not in the possession of the organization that are held and administered for the
organization by:

Yes
No
(i) Unrelated organizations .................
3a(i)
 
No
(ii) Related organizations .................
3a(ii)
 
No
b
If "Yes" on 3a(ii), are the related organizations listed as required on Schedule R? .........
3b
 
 
4
Describe in Part XIII the intended uses of the organization's endowment funds.
Part VI
Land, Buildings, and Equipment.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11a. See Form 990, Part X, line 10.
Description of property (a) Cost or other basis
(investment) 		(b) Cost or other basis (other) (c) Accumulated depreciation (d) Book value
1a Land .....      
b Buildings ....        
c Leasehold improvements        
d Equipment ....   5,597,533 5,205,918 391,615
e Other .....        
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10(c).).. 391,615
Schedule D (Form 990) (Rev. 1-2025)

Schedule D (Form 990) (Rev. 1-2025)
Page 3
Part VII
Investments - Other Securities.
Complete if the organization answered "Yes" on Form 990, Part IV, line 11b. See Form 990, Part X, line 12.
(a) Description of security or category
(including name of security)		 (b) Book value (c) Method of valuation:
Cost or end-of-year market value
(1) Financial derivatives.........    
(2) Closely-held equity interests........    
(3)Other
(A)
(B)
(C)
(D)
(E)
(F)
(G)
(H)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 12.)  
Part VIII
Investments - Program Related. Complete if the organization answered 'Yes' on Form 990, Part IV, line 11c. See Form 990, Part X, line 13.
(a) Description of investment (b) Book value (c) Method of valuation:
Cost or end-of-year market value
(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 13.)  
Part IX
Other Assets.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11d. See Form 990, Part X, line 15.
(a) Description (b) Book value
(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col.(B) line 15.)...........  
Part X
Other Liabilities.
Complete if the organization answered 'Yes' on Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.
1.(a) Description of liability (b) Book value
(1) Federal income taxes  
ACCRUED PENSION COST 22,643,693








Total. (Column (b) must equal Form 990, Part X, col.(B) line 25.) 22,643,693
2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports the organization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII
Schedule D (Form 990) (Rev. 1-2025)

Schedule D (Form 990) (Rev. 1-2025)
Page 4
Part XI Reconciliation of Revenue per Audited Financial Statements With Revenue per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1 Total revenue, gains, and other support per audited financial statements ....... 1 68,006,515
2 Amounts included on line 1 but not on Form 990, Part VIII, line 12:
a Net unrealized gains (losses) on investments .... 2a -22,871
b Donated services and use of facilities ......... 2b 1,032,831
c Recoveries of prior year grants ........... 2c  
d Other (Describe in Part XIII.) ........... 2d 2,964,731
e Add lines 2a through 2d ..................... 2e 3,974,691
3 Subtract line 2e from line 1.................. 3 64,031,824
4 Amounts included on Form 990, Part VIII, line 12, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b . 4a 123,958
b Other (Describe in Part XIII.) ........... 4b 4,250
c Add lines 4a and 4b.................... 4c 128,208
5 Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) ...... 5 64,160,032
Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return. Complete if the organization answered 'Yes' on Form 990, Part IV, line 12a.
1 Total expenses and losses per audited financial statements ........... 1 61,744,566
2 Amounts included on line 1 but not on Form 990, Part IX, line 25:
a Donated services and use of facilities ......... 2a 1,032,831
b Prior year adjustments ............ 2b  
c Other losses ................ 2c  
d Other (Describe in Part XIII.) ........... 2d -4,250
e Add lines 2a through 2d.................... 2e 1,028,581
3 Subtract line 2e from line 1................... 3 60,715,985
4 Amounts included on Form 990, Part IX, line 25, but not on line 1:
a Investment expenses not included on Form 990, Part VIII, line 7b .. 4a 123,958
b Other (Describe in Part XIII.) ........... 4b 908,163
c Add lines 4a and 4b..................... 4c 1,032,121
5 Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ...... 5 61,748,106
Part XIII
Supplemental Information
Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part IV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI, lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.
Return Reference Explanation
PART V, LINE 4: THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED TO SUPPORT DUCHENNE MUSCULAR DYSTROPHY RESEARCH THAT HAS BEEN APPROVED FOR FUNDING BY THE ASSOCIATION. THE ASSOCIATION MANAGES THIS ENDOWMENT IN ACCORDANCE WITH THE NEW YORK PRUDENT MANAGEMENT OF INSTITUTIONAL FUNDS ACT (NYPMIFA). THE ASSOCIATION HAS INTERPRETED NYPMIFA AS ALLOWING IT TO APPROPRIATE FOR FUTURE EXPENDITURE OR TO ACCUMULATE SO MUCH OF DONOR-RESTRICTED ENDOWMENT FUNDS AS IS PRUDENT FOR THE USES, BENEFITS, PURPOSES AND DURATION FOR WHICH THE ENDOWMENT FUND IS ESTABLISHED, SUBJECT TO THE INTENT OF THE DONOR AS EXPRESSED IN THE GIFT INSTRUMENT AND ABSENT EXPLICIT DONOR STIPULATIONS TO THE CONTRARY. PER THE DONOR'S DESIGNATION, THE ASSOCIATION IS TO DISBURSE APPROXIMATELY 85% OF ANNUAL NET INCOME OF ITS ENDOWED FUND AND THE REMAINING 15% RETURNS TO PRINCIPAL.
PART X, LINE 2: U.S. GAAP PROVIDES ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2025, 2024, 2023, 2022 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ASSOCIATION AND HAS CONCLUDED THAT, AS OF DECEMBER 31, 2025, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY (OR ASSET) OR DISCLOSURE IN THE FINANCIAL STATEMENTS.
PART XI, LINE 2D - OTHER ADJUSTMENTS: CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS 2,965,008. FUNDRAISING EXPENSES -277.
PART XI, LINE 4B - OTHER ADJUSTMENTS: SUBLEASE RENTAL 4,250.
PART XII, LINE 2D - OTHER ADJUSTMENTS: SUBLEASE RENTAL -4,250.
PART XII, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 277. GRANTS WRITTEN OFF 907,886.
Schedule D (Form 990) (Rev. 1-2025)


Additional Data


Software ID:  
Software Version:  




SCHEDULE F(Form 990)
(Rev. January 2025)
Department of the Treasury
Internal Revenue Service
Statement of Activities Outside the United States
Complete if the organization answered "Yes" to Form 990, Part IV, line 14b, 15, or 16.Attach to Form 990.Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
Open to Public Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION
INC
Employer identification number

13-1665552
Part I
General Information on Activities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 14b.
1
For grantmakers. Does the organization maintain records to substantiate the amount of its grants and
other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used
to award the grants or assistance? . . . . . . . . . . . . . . . . . . . . . . . . .
2
For grantmakers. Describe in Part V the organization’s procedures for monitoring the use of its grants and other assistance outside the United States.
3
Activites per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)
(a) Region (b) Number of offices in the region (c) Number of employees, agents, and independent contractors in the region (d) Activities conducted in region (by type) (such as, fundraising, program services, investments, grants to recipients located in the region) (e) If activity listed in (d) is a program service, describe specific type of
service(s) in the region		 (f) Total expenditures
for and investments
in the region
EAST ASIA AND THE PACIFIC 0 0 PROGRAM SERVICES RESEARCH GRANT 183,407
EUROPE 0 0 PROGRAM SERVICES RESEARCH GRANT 761,308
NORTH AMERICA 0 0 PROGRAM SERVICES RESEARCH GRANT 264,812
MIDDLE EAST AND NORTH AFRICA 0 0 PROGRAM SERVICES RESEARCH GRANT 147,733
           
           
           
           
           
           
           
           
           
           
           
           
           
3a Sub-total .... 0 0 1,357,260
b Total from continuation sheets to Part I ... 0 0 0
c Totals (add lines 3a and 3b) 0 0 1,357,260
For Paperwork Reduction Act Notice, see the Instructions for Form 990.Cat. No. 50082W Schedule F (Form 990) (Rev. 1-2025)
Schedule F (Form 990) (Rev. 1-2025)
Page 2
Part II
Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.
1 (a) Name of organization (b) IRS code section
and EIN (if applicable)		 (c) Region (d) Purpose of
grant 		(e) Amount of
cash grant 		(f) Manner of
cash
disbursement 		(g) Amount
of noncash
assistance 		(h) Description
of noncash
assistance 		(i) Method of
valuation
(book, FMV,
appraisal, other)
EAST ASIA AND THE PACIFIC RESEARCH 183,407 CHECK/WIRE 0    
EUROPE RESEARCH 761,308 CHECK/WIRE 0    
NORTH AMERICA RESEARCH 264,812 CHECK/WIRE 0    
MIDDLE EAST AND NORTH AFRICA RESEARCH 147,733 CHECK/WIRE 0    
             
             
             
             
             
             
             
             
             
             
             
             
2 Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter .......
0
3 Enter total number of other organizations or entities .......................
26
Schedule F (Form 990) (Rev. 1-2025)
Schedule F (Form 990) (Rev. 1-2025)Page 3
Part III
Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 16.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Region (c) Number of recipients (d) Amount of
cash grant 		(e) Manner of cash
disbursement 		(f) Amount of
noncash
assistance 		(g) Description
of noncash
assistance 		(h) Method of
valuation
(book, FMV,
appraisal, other)
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
               
Schedule F (Form 990) (Rev. 1-2025)
Schedule F (Form 990) (Rev. 1-2025)
Page 4
Part IV
Foreign Forms
1 Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign Corporation (see Instructions for Form 926). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
2 Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization may be required to separately file Form 3520, Annual Return to Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see Instructions for Forms 3520 and 3520-A; don't file with Form 990). . . . . . . . . . . . . . . . . . . . . . . .
3 Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions for Form 5471). . . . . . . . . . . . . . . . . . . . . . . . . . . .
4 Was the organization a direct or indirect shareholder of a passive foreign investment company or a qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621, Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund. (see Instructions for Form 8621) .
5 Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships (see Instructions for Form 8865). . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
6 Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the organization may be required to separately file Form 5713, International Boycott Report (see Instructions for Form 5713; don't file with Form 990).. . . . . . . . . . . . . . . . . . . . . . . . . . . .
Schedule F (Form 990) (Rev. 1-2025)
Schedule F (Form 990) (Rev. 1-2025)
Page 5
Part V
Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information. See instructions.
ReturnReference Explanation
PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES.
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
Schedule F (Form 990) (Rev. 1-2025)
Additional Data


Software ID:  
Software Version:  



SCHEDULE G (Form 990)
(Rev. January 2025)
Department of the Treasury
Internal Revenue Service
Supplemental Information Regarding
Fundraising or Gaming Activities
Complete if the organization answered "Yes" on Form 990, Part IV, lines 17, 18, or 19, or if the organization entered more than $15,000 on Form 990-EZ, line 6a. Attach to Form 990 or Form 990-EZ.
Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
Open to Public Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION
INC
Employer identification number

13-1665552
Part I
Fundraising Activities.Complete if the organization answered "Yes" on Form 990, Part IV, line 17.
Form 990-EZ filers are not required to complete this part.
1
Indicate whether the organization raised funds through any of the following activities. Check all that apply.
a e
b f
c g
d
2a
Did the organization have a written or oral agreement with any individual (including officers, directors, trustees
or key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?
b
If "Yes," list the 10 highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is
to be compensated at least $5,000 by the organization.


(i) Name and address of individual
or entity (fundraiser) 		(ii) Activity (iii) Did fundraiser have custody or control of contributions? (iv) Gross receipts
from activity 		(v) Amount paid to
(or retained by)
fundraiser listed in
col. (i) 		(vi) Amount paid to
(or retained by)
organization
Yes No
 
MOORE A SERIES LLC
4200 PARLIAMENT PLACE 3RD FLOOR
 
LANHAM, MD20703 		DIRECT MAIL MARKETING   No 2,892,688 756,396 2,136,292
 
STREETLIGHT DIGITAL
PO BOX 75
 
CONIFER, CO80433 		DIGITAL MARKETING   No 1,332,228 396,333 935,895
             
             
             
             
             
             
             
             
Total . . . . . . . . . . . . . . . . . . . . 4,224,916 1,152,729 3,072,187
3
List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration or licensing.
AL, AK, AZ, CA, CO, CT, DE, FL, GA, HI, ID, IL, IN, IA, KS, KY, LA, ME, MD, MA, MI, MN, MO, MT, NE, NV, NJ, NM, NY, NC, ND, OH, OK, OR, PA, RI, SC, SD, TN, UT, VA, WA, WV, WI, WY
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 50083H
Schedule G (Form 990) (Rev. 1-2025)
Schedule G (Form 990) (Rev. 1-2025)
Page 2
Part II
Fundraising Events. Complete if the organization answered "Yes" on Form 990, Part IV, line 18, or reported more than $15,000 of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.






VerticalRevenue
(a) Event #1

SPECIAL EVENTS
(event type) 		(b) Event #2

DISTINGUISHED EVENTS
(event type) 		(c) Other events

101
(total number) 		(d) Total events
(add col. (a) through col. (c))

1
Gross receipts . . . . .
17,404,222
12,136,635
6,578,678
36,119,535

2
Less: Contributions . . . .
15,000,609
11,912,541
6,283,953
33,197,103
3 Gross income (line 1 minus
line 2) . . . . . .
2,403,613
224,094
294,725
2,922,432



VerticalDirectExpenses
4 Cash prizes . . . . .        
5 Noncash prizes . . . . 173,336 946,726 91,808 1,211,870
6 Rent/facility costs . . . . 222,292 1,242,133 360,990 1,825,415
7 Food and beverages . . . 34,495 514,012 6,914 555,421
8 Entertainment . . . . 148,706 268,082 2,677 419,465
9 Other direct expenses . . . 56,406 21,576 248,337 326,319
10 Direct expense summary. Add lines 4 through 9 in column (d) . . . . . . . . . . 4,338,490
11 Net income summary. Subtract line 10 from line 3, column (d). . . . . . . . . . -1,416,058
Part III
Gaming. Complete if the organization answered "Yes" on Form 990, Part IV, line 19, or reported more than $15,000 on Form 990-EZ, line 6a.
VerticalRevenue
(a) Bingo (b) Pull tabs/Instant
bingo/progressive bingo 		(c) Other gaming (d) Total gaming (add col.(a) through col.(c))

1
Gross revenue . . . . .
 
 
 
 
VerticalDirectExpenses

2
Cash prizes . . . . .
 
 
 
 

3
Noncash prizes . . . .
 
 
 
 

4
Rent/facility costs . . . .
 
 
 
 

5
Other direct expenses . . .
 
 
 
 


6

Volunteer labor . . . .
%
%
%


7
Direct expense summary. Add lines 2 through 5 in column (d) . . . . . . . . . .
 

8
Net gaming income summary. Subtract line 7 from line 1, column (d). . . . . . . . .
 

9
Enter the state(s) in which the organization conducts gaming activities:
a
Is the organization licensed to conduct gaming activities in each of these states? . . . . . . . .
YesNo
b
If "No," explain:
 
10a
Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? . . .
YesNo
b
If "Yes," explain:
 
Schedule G (Form 990) (Rev. 1-2025)
Schedule G (Form 990) (Rev. 1-2025)
Page 3
11
Does the organization conduct gaming activities with nonmembers? . . . . . . . . . . .
YesNo
12
Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity
formed to administer charitable gaming? . . . . . . . . . . . . . . . . .
YesNo
13
Indicate the percentage of gaming activity conducted in:
a
The organization's facility . . . . . . . . . . . . . . . . . .
13a
%
b
An outside facility . . . . . . . . . . . . . . . . . . . .
13b
%
14
Enter the name and address of the person who prepares the organization's gaming/special events books and records:
Name
Address
15a
Does the organization have a contract with a third party from whom the organization receives gaming
revenue? . . . . . . . . . . . . . . . . . . . . . . . .
b
If "Yes," enter the amount of gaming revenue received by the organization $   and the
amount of gaming revenue retained by the third party $   .
c
If "Yes," enter name and address of the third party:
Name
Address
16
Gaming manager information:
Name
Gaming manager compensation $  
Description of services provided
 
17
Mandatory distributions:
a
Is the organization required under state law to make charitable distributions from the gaming proceeds to
retain the state gaming license? . . . . . . . . . . . . . . . . . . .
b
Enter the amount of distributions required under state law distributed to other exempt organizations or spent
in the organization's own exempt activities during the tax year $  
Part IV
Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v); and Part III, lines 9, 9b, 10b, 15b, 15c, 16, and 17b, as applicable. Also provide any additional information. See instructions.
Return Reference Explanation
Schedule G (Form 990) (Rev. 1-2025)
Additional Data


Software ID:  
Software Version:  

Note: To capture the full content of this document, please select landscape mode (11" x 8.5") when printing.

Schedule I
(Form 990)
(Rev. January 2025)
Department of the Treasury
Internal Revenue Service
Grants and Other Assistance to Organizations,
Governments and Individuals in the United States
Complete if the organization answered "Yes," on Form 990, Part IV, line 21 or 22.
Attach to Form 990.
Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
Open to Public
Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION
INC
Employer identification number
13-1665552
Part I
General Information on Grants and Assistance
1
Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and
the selection criteria used to award the grants or assistance? ........................
2
Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.
Part II
Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" on Form 990, Part IV, line 21, for any recipient
that received more than $5,000. Part II can be duplicated if additional space is needed.
(a) Name and address of organization
or government		 (b) EIN (c) IRC section
(if applicable)		 (d) Amount of cash grant (e) Amount of non-cash
assistance		 (f) Method of valuation
(book, FMV, appraisal,
other)		 (g) Description of
noncash assistance		 (h) Purpose of grant
or assistance
(1) ADVENTHEALTH ORLANDO
601 E ROLLINS STREET BOX 37
ORLANDO,FL328031248 		59-0724459 501(C)(3) 30,000 0     MEDICAL DIAGNOSIS
(2) ALBERGUE OLIMPICO DE PUERTO RICO
PR-712 KM 03
SALINAS,PR00751 		66-0630488 501(C)(3) 21,574 0     MEDICAL DIAGNOSIS AND RESEARCH
(3) ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO BOX 4
CHICAGO,IL60611 		36-2170833 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS
(4) ASCENSION SETON
4900 MUELLER BLVD
AUSTIN,TX78735 		74-1109643 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(5) ATRIUM HEALTH FOUNDATION
208 EAST BOULEVARD
CHARLOTTE,NC28203 		56-6060481 501(C)(3) 90,000 0     MEDICAL DIAGNOSIS
(6) ATRIUM HEALTH WFB
PO BOX 604096
CHARLOTTE,NC282604096 		22-3849199 501(C)(3) 30,000 0     MEDICAL DIAGNOSIS
(7) BAYCARE MEDICAL GROUP
2985 DREW STREET MS 1027
CLEARWATER,FL33759 		59-3140335 501(C)(3) 25,000 0     MEDICAL DIAGNOSIS
(8) BAYLOR COLLEGE OF MEDICINE
PO BOX 30120 7
DALLAS,TX753031207 		74-1613878 501(C)(3) 131,500 0     MEDICAL DIAGNOSIS AND RESEARCH
(9) BEAUMONT HEALTH SYSTEM
3535 WEST 13 MILE ROAD PEDIATRIC
ADMINISTRATION SUITE 709
ROYAL OAK,MI48073 		38-1459362 501(C)(3) 25,000 0     MEDICAL DIAGNOSIS
(10) BILLINGS CLINIC FOUNDATION
PO BOX 31031
BILLINGS,MT591071031 		81-0407289 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(11) BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY
PO BOX 19616
SPRINGFIELD,IL627949616 		37-6005961 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(12) BOSTON CHILDREN'S HOSPITAL
1295 BOYLSTON ST 4TH FLOOR
BOSTON,MA033265724 		04-2774441 501(C)(3) 144,824 0     MEDICAL DIAGNOSIS AND RESEARCH
(13) BRIGHAM AND WOMENS HOSPITAL RESEARCH
PO BOX 3149
BOSTON,MA022413149 		04-2312909 501(C)(3) 30,000 0     MEDICAL DIAGNOSIS
(14) CALIFORNIA PACIFIC MEDICAL CENTER FOUNDATION
PO BOX 160045
SACRAMENTO,CA95816 		94-2728423 501(C)(3) 92,650 0     MEDICAL DIAGNOSIS
(15) CAMP ALDERSGATE INC
2000 ALDERSGATE RD
LITTLE ROCK,AR72205 		71-0265209 501(C)(3) 32,000 0     MEDICAL DIAGNOSIS AND RESEARCH
(16) CAMP ARANZAZU
5420 LOOP 1781
ROCKPORT,TX78382 		74-3032285 501(C)(3) 11,080 0     MEDICAL DIAGNOSIS AND RESEARCH
(17) CAMP CAVELL CONSERVANCY
3335 LAKESHORE RD
LEXINGTON,MI48450 		46-2336793 501(C)(3) 39,950 0     MEDICAL DIAGNOSIS AND RESEARCH
(18) CAMP COLE
1571 CROSSING CREEK ROAD
EASTOVER,SC29044 		82-1387411 501(C)(3) 42,974 0     MEDICAL DIAGNOSIS AND RESEARCH
(19) CAMP COURAGEOUS OF IOWA
12007 190TH STREET PO BOX 418
MONTICELLO,IA52310 		23-7210932 501(C)(3) 56,000 0     MEDICAL DIAGNOSIS AND RESEARCH
(20) CAMP FOR ALL
3701 KIRBY DRIVE SUITE 570
HOUSTON,TX77098 		76-0404267 501(C)(3) 43,750 0     MEDICAL DIAGNOSIS AND RESEARCH
(21) CAMP JOHN MARC
4925 GREENVILLE AVESUITE400
DALLAS,TX75206 		75-2205242 501(C)(3) 41,760 0     MEDICAL DIAGNOSIS AND RESEARCH
(22) CAMP RONALD MCDONALD FOR GOOD TIMES
1250 LYMAN PLACE
LOS ANGELES,CA90029 		95-3167869 501(C)(3) 49,666 0     MEDICAL DIAGNOSIS AND RESEARCH
(23) CAMP TWIN LAKES
1100 SPRING STREET SUITE 406
ATLANTA,GA30309 		58-1826782 501(C)(3) 33,155 0     MEDICAL DIAGNOSIS AND RESEARCH
(24) CEDARS-SINAI MEDICAL CENTER
6500 WILSHIRE BLVD STE 1150
LOS ANGELES,CA90048 		95-1644600 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS
(25) CENTER FOR COURAGEOUS KIDS
1501 BURNLEY ROAD
SCOTTSVILLE,KY42164 		20-1789905 501(C)(3) 16,000 0     MEDICAL DIAGNOSIS AND RESEARCH
(26) CENTRAL TEXAS NEUROLOGY CONSULTANTS
16040 PARK VALLEY DR B 100
ROUND ROCK,TX78681 		74-2710396   10,000 0     MEDICAL DIAGNOSIS
(27) CHARCOT-MARIE-TOOTH ASSOCIATION
PO BOX 105
GLENOLDEN,PA19036 		22-2480896 501(C)(3) 29,999 0     RESEARCH
(28) CHILD CRISIS ARIZONA
PO BOX 105
GLENOLDEN,PA19036 		86-0324144 501(C)(3) 46,481 0     MEDICAL DIAGNOSIS AND RESEARCH
(29) CHILDRENS CLINICS FOR REHABILITATIVE SERVICES
2600 NORTH WYATT DRIVE
TUCSON,AZ85712 		86-0667510 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(30) CHILDREN'S HEALTHCARE OF ATLANTA FOUNDATION
PO BOX 101012
ATLANTA,GA303921012 		58-1710601 501(C)(3) 35,000 0     MEDICAL DIAGNOSIS
(31) CHILDRENS HOSPITAL COLORADO MUSCLE CLINIC
13123 E 16TH AVENUE BOX 285
AURORA,CO80045 		84-0166760 501(C)(3) 55,000 0     MEDICAL DIAGNOSIS
(32) CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BLVD MAILSTOP 97
LOS ANGELES,CA90027 		95-1690977 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(33) CHILDRENS HOSPITAL MEDICAL CENTER
3333 BURNET AVE
CINCINNATI,OH452293039 		31-0833936 501(C)(3) 65,000 0     MEDICAL DIAGNOSIS
(34) CHILDREN'S HOSPITAL OF ORANGE COUNTY
1201 W LA VETA AVE
ORANGE,CA928683874 		95-2321786 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(35) CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD
PHILADELPHIA,PA19104 		23-1352166 501(C)(3) 83,300 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(36) CHILDRENS HOSPITAL OF PITTSBURGH FOUNDATION
4401 PENN AVENUE CENTRAL PLANT
FLOOR 3
PITTSBURGH,PA15224 		25-1865744 501(C)(3) 25,000 0     MEDICAL DIAGNOSIS
(37) CHILDRENS HOSPITAL OF THE KINGS DAUGHTERS INC
601 CHILDRENS LANE
NORFOLK,VA23507 		54-0506321 501(C)(3) 30,000 0     MEDICAL DIAGNOSIS
(38) CHILDREN'S HOSPITAL OF WISCONSIN
8701 WATERTOWN PLANK RD
MILWAUKEE,WI53226 		39-0806261 501(C)(3) 6,025 0     MOVR REGISTRY SUPPORT
(39) CHILDRENS HOSPITAL NEW ORLEANS
200 HENRY CLAY AVENUE
NEW ORLEANS,LA70118 		72-0467503 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(40) CHILDRENS NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NW
WASHINGTON,DC20010 		52-1640403 501(C)(3) 25,000 0     MEDICAL DIAGNOSIS
(41) CHILDREN'S RESEARCH INSTITUTE (CNMC)
111 MICHIGAN AVENUE NW
WASHINGTON,DC20010 		52-1654453 501(C)(3) 258,963 0     RESEARCH
(42) CLINICAL NEUROLOGY PC
PC 4221 S WESTERN SUITE 5010
OKLAHOMA CITY,OK73109 		41-2141136 501(C)(3) 75,000 0     MEDICAL DIAGNOSIS
(43) COLUMBIA UNIVERSITY MEDICAL CENTER
COLUMBIA UNIVERSITY 630 WEST 168TH
STREET BOX 49
NEW YORK,NY10032 		13-5598093 501(C)(3) 196,318 0     RESEARCH
(44) COMMUNITY HOSPITALS OF CENTRAL CALIFORNIA FOUNDATION
1530 E SHAW AVE STE 106
FRESNO,CA93710 		77-0191730 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(45) CONNECTICUT CHILDREN'S MEDICAL CENTER
282 WASHINGTON STREET
HARTFORD,CT061063322 		06-0646755 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(46) COOK CHILDRENS MEDICAL CENTER
801 SEVENTH AVENUE FT
WORTH,TX76104 		75-2705881 501(C)(3) 26,200 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(47) COPAMARINA BEACH RESORT & SPA PR
PO BOX 805
GUANICA,PR00653 		66-0479688   50,769 0     MEDICAL DIAGNOSIS AND RESEARCH
(48) CURATORS OF THE UNIVERSITY OF MISSOURI
AR PO BOX 807012
KANSAS CITY,MO641807012 		43-6003859 501(C)(3) 40,900 0     MEDICAL DIAGNOSIS RESEARCH AND MOVR REGISTRY SUPPORT
(49) CURE CMD
3217 E CARSON ST 1014
LAKEWOOD,CA90712 		26-2640975 501(C)(3) 17,000 0     RESEARCH
(50) DANA-FARBER CANCER INSTITUTE INC
450 BROOKLINE AVENUE
BOSTON,MA022155450 		04-2263040 501(C)(3) 75,000 0     RESEARCH
(51) DARTMOUTH-HITCHCOCK MEDICAL CENTER
ONE MEDICAL CENTER DRIVE
LEBANON,NH03756 		02-0222140 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(52) DENT NEUROLOGIC INSTITUTE
3980 SHERIDAN DRIVE 5TH FLOOR
AMHERST,NY14226 		16-1582336 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(53) DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL & MEDICAL CENTER
350 W THOMAS RD
PHOENIX,AZ85013 		94-1196203 501(C)(3) 80,000 0     RESEARCH
(54) DIGNITY HEALTH ST JOSEPHS HOSPITAL AZ
MISC A/R CASE FILE 57431
LOS ANGELES,CA900748781 		86-0096787 501(C)(3) 60,000 0     MEDICAL DIAGNOSIS
(55) DUKE UNIVERSITY MEDICAL CENTER
PO BOX 602651
CHARLOTTE,NC282602651 		56-2070036 501(C)(3) 100,000 0     MEDICAL DIAGNOSIS
(56) EASTER SEALS COLORADO
393 S HARLAN ST
LAKEWOOD,CO80226 		84-0412575 501(C)(3) 46,706 0     MEDICAL DIAGNOSIS AND RESEARCH
(57) EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLOOR
MAILSTOP
ATLANTA,GA30322 		58-0566256 501(C)(3) 159,603 0     RESEARCH
(58) EMORY UNIVERSITY
12 EXECUTIVE PARK DR NE RM 433
ATLANTA,GA30329 		58-2030692 501(C)(3) 100,000 0     MEDICAL DIAGNOSIS
(59) FLORIDA ELKS YOUTH CAMP INC
24175 SE HIGHWAY 450
UMATILLA,FL32784 		59-3415374 501(C)(3) 33,262 0     MEDICAL DIAGNOSIS AND RESEARCH
(60) FRIEDREICH'S ATAXIA RESEARCH ALLIANCE
PO BOX 1537
SPRINGFIELD,VA22151 		52-2122720 501(C)(3) 113,159 0     RESEARCH
(61) GEISINGER CLINIC
100 N ACADEMY AVE
DANVILLE,PA178223057 		23-6291113 501(C)(3) 20,075 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(62) GILLETTE CHILDRENS SPECIALTY HEALTHCARE
200 EAST UNIVERSITY AVENUE
ST PAUL,MN55101 		36-3379150 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS
(63) GORDON RESEARCH CONFERENCES
5586 POST ROAD
EAST GREENWICH,RI02818 		26-0150662 501(C)(3) 10,000 0     RESEARCH
(64) HAPPINESS IS CAMPING INC
62 SUNSET LAKE RD
HARDWICK,NJ07825 		13-2556242 501(C)(3) 45,280 0     MEDICAL DIAGNOSIS AND RESEARCH
(65) HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVENUE
NEW BRITAIN,CT06053 		06-0646766 501(C)(3) 51,125 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(66) HUDSONALPHA INSTITUTE FOR BIOTECHNOLOGY
601 GENOME WAY
HUNTSVILLE,AL35806 		43-2059317 501(C)(3) 38,588 0     RESEARCH
(67) IDAHO PHYSICAL MEDICINE AND REHABILITATION
P O BOX 1128 ATTN
IDAHO,ID83701 		82-0435241   15,300 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(68) INDIANA UNIVERSITY HEALTH INC
IU HEALTH 2227 RELIABLE PARKWAY
CHICAGO,IL606860022 		35-1955872 501(C)(3) 40,000 0     MEDICAL DIAGNOSIS
(69) INDIANA UNIVERSITY
1024 EAST 3RD STREET ROOM 132
BLOOMINGTON,IN47405 		35-6001673 501(C)(3) 54,900 0     MEDICAL DIAGNOSIS AND RESEARCH
(70) INSTITUTO REHABILITACION DEL CARIBE
PO BOX 363792
SAN JUAN,PR00936 		66-0704444   20,000 0     MEDICAL DIAGNOSIS
(71) IOWA STATE UNIVERSITY OF SCIENCE AND TECHNOLOGY
1350 BEARDSHEAR HALL515 MORRILL RD
AMES,IA500112103 		42-6004224 STATE OF IOWA 40,000 0     RESEARCH
(72) JOHNS HOPKINS ALL CHILDREN'S HOSPITAL ST PETE FL
601 5TH STREET SOUTH SUITE 302
ST PETERSBURG,FL34655 		59-0683252 501(C)(3) 15,000 0     MEDICAL DIAGNOSIS
(73) JOHNS HOPKINS UNIVERSITY- CG
733 NORTH BROADWAY SUITE 117
BALTIMORE,MD21205 		52-0595110 501(C)(3) 578,750 0     MEDICAL DIAGNOSIS AND RESEARCH
(74) KUMC RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD MS 1039
KANSAS CITY,KS66160 		48-1108830 501(C)(3) 75,000 0     MEDICAL DIAGNOSIS
(75) LOMA LINDA UNIVERSITY
24887 TAYLOR STREET SUITE 202
LOMA LINDA,CA92350 		95-1816009 501(C)(3) 60,000 0     MEDICAL DIAGNOSIS
(76) LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER-NEW ORLEANS
1542 TULANE AVE ROOM 763A
NEW ORLEANS,LA70112 		72-6087770 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(77) LSUHSC-SHREVEPORT
1501 KINGS HWY ROOM 3-408 C
SHREVEPORT,LA71103 		72-0702002 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(78) MAINE MEDICAL CENTER
92 CAMPUS DRIVE2ND FLOOR SUITE
SCARBOROUGH,ME04074 		01-0238552 501(C)(3) 15,000 0     MEDICAL DIAGNOSIS
(79) MASSACHUSETTS GENERAL HOSPITAL
PO BOX 414876
BOSTON,MA022414876 		04-2697983 501(C)(3) 377,699 0     MEDICAL DIAGNOSIS AND RESEARCH
(80) MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD
JACKSONVILLE,FL32224 		59-3337028 501(C)(3) 45,000 0     MEDICAL DIAGNOSIS
(81) MAYO CLINIC
PO BOX 860334
MINNEAPOLIS,MN554860334 		41-6011702 501(C)(3) 30,000 0     MEDICAL DIAGNOSIS
(82) MCV ASSOCIATED PHYSICIANS
1101 EAST MARSHALL STREET RM6-015
BOX 980599
RICHMOND,VA232980599 		54-1581185 501(C)(3) 40,000 0     MEDICAL DIAGNOSIS
(83) MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK RD
MILWAUKEE,WI53226 		39-0806261 501(C)(3) 30,000 0     MEDICAL DIAGNOSIS
(84) MEDICAL UNIVERSITY OF SOUTH CAROLINA
19 HAGOOD AVENUE SUITE 606 MSC 808
CHARLESTON,SC294258080 		57-6000722 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(85) MEDSTAR GEORGETOWN UNIVERSITY HOSPITAL
3800 RESERVOIR RD NW 7TH FLOOR PHC
WASHINGTON,DC20007 		52-2218584 501(C)(3) 30,000 0     MEDICAL DIAGNOSIS
(86) METHODIST LE BONHEUR COMMUNITY OUTREACH
GARY COOK 600 JEFFERSON AVE
MEMPHIS,TN38105 		62-1251288 501(C)(3) 50,900 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(87) MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD ROOM 2 EAST
LANSING,MI48824 		38-6005984 501(C)(3) 25,000 0     MEDICAL DIAGNOSIS
(88) MILLER SCHOOL OF MEDICINE OF THE UNIVERSITY OF MIAMI
PO BOX 405803
ATLANTA,GA303845803 		59-0624458 501(C)(3) 157,732 0     RESEARCH
(89) MONTEFIORE MEDICAL CENTER
555 S BROADWAY BLDG A 1ST FL RM
A1-R61
BRONX,NY10467 		13-1740114 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS
(90) MT HOOD KIWANIS CAMP INC
10725 SW BARBUR BLVD SUITE 50
PORTLAND,OR97219 		93-0422242 501(C)(3) 18,322 0     MEDICAL DIAGNOSIS AND RESEARCH
(91) NATIONAL ABILITY CENTER
1000 ABILITY
WAY PARK CITY,UT84060 		94-3025807 501(C)(3) 16,803 0     MEDICAL DIAGNOSIS AND RESEARCH
(92) NATIONAL INSTITUTES OF NEUROLOGICAL DISORDERS AND STROKE NIH NINDS
PO BOX 5801
BETHESDA,MD20824 		52-0858115 SEC 115 49,112 0     RESEARCH
(93) NEMOURS FOUNDATION
10140 CENTURION PARKWAY N
JACKSONVILLE,FL32256 		59-0634433 501(C)(3) 100,000 0     MEDICAL DIAGNOSIS
(94) NEUROLOGY LLPC
1919 S WHEELING AVENUE SUITE 707
TULSA,OK74104 		73-1502318   6,250 0     MEDICAL DIAGNOSIS
(95) NEW YORK UNIVERSITY SCHOOL OF MEDICINE
PO BOX 415026
BOSTON,MA022415026 		13-5562308 STATE OF NY 50,000 0     MEDICAL DIAGNOSIS
(96) NORTHWESTERN MEDICAL GROUP DEPARTMENT OF NEUROLOGY
259 E ERIE ST SUITE 1900
CHICAGO,IL60611 		36-3382383 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS
(97) NORTON HEALTHCARE
224 E BROADWAY 5TH FLOOR
LOUISVILLE,KY402021959 		61-1276316 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(98) OLIVE VIEW-UCLA EDUCATION & RESEARCH INSTITUTE
14445 OLIVE VIEW DRIVE RESEARCH
ADMINISTRATION OFFICE
SYLMAR,CA913421495 		95-2249539 501(C)(3) 25,000 0     MEDICAL DIAGNOSIS
(99) OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD MAIL
CODE L106OPAM
PORTLAND,OR97239 		93-1176109 STATE OF OR 99,994 0     RESEARCH
(100) OSF MULTI-SPECIALTY GROUP DBA ILLINOIS NEUROLOGICAL INSTITUTE
800 NE GLEN OAK AVE
PEORIA,IL61603 		38-3852646 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(101) PINE TREE SOCIETY INC
149 FRONT STREET
BATH,ME04530 		01-0212442 501(C)(3) 35,000 0     MEDICAL DIAGNOSIS AND RESEARCH
(102) PONCE HEALTH SCIENCES UNIVERSITY
PO BOX 7004
PONCE,PR007327004 		66-0379122 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(103) PRISMA HEALTH GRANTS AND TRIALS
PO BOX 748580
ATLANTA,GA303748580 		81-1723202 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(104) PROVIDENCE MEDICAL GROUP
101 W 8TH AVE
SPOKANE,WA99204 		51-0216586 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(105) RADY CHILDRENS HOSPITAL FOUNDATION - SAN DIEGO
3020 CHILDRENS WAY MC 5005
SAN DIEGO,CA921234282 		33-0170626 501(C)(3) 30,000 0     MEDICAL DIAGNOSIS
(106) RECREATION UNLIMITED FARM AND FUN
7700 PIPER ROAD
ASHLEY,OH43003 		31-1813336 501(C)(3) 39,807 0     MEDICAL DIAGNOSIS AND RESEARCH
(107) REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
4860 Y STREET SUITE 3850
SACRAMENTO,CA95817 		94-6036494 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS
(108) REGENTS OF THE UNIVERSITY OF MINNESOTA - TWIN CITIES
NW 5957 PO BOX 1450
MINNEAPOLIS,MN554855957 		41-6007513 501(C)(3) 272,950 0     RESEARCH
(109) RUSH UNIVERSITY MEDICAL CENTER
1700 W VAN BUREN STREET SUITE 250
CHICAGO,IL60612 		36-2174823 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(110) RUTGERS THE STATE UNIVERSITY OF NEW JERSEY-RBHS-NJMS
33 KNIGHTSBRIDGE ROAD 2ND FLOOR
EAST
PISCATAWAY,NJ08854 		46-2354111 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS
(111) SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE
10901 NORTH TORREY PINES RD
LA JOLLA,CA92037 		51-0197108 501(C)(3) 31,500 0     RESEARCH
(112) SANFORD MEDICAL CENTER FARGO
P O BOX 2010
FARGO,ND58122 		45-0226909 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(113) SARASOTA MEMORIAL HOSPITAL
1700 TAMIAMI TRAIL ATTN PAT BURKE
SARASOTA,FL34239 		59-6012500 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(114) SEATTLE CHILDRENS HOSPITAL
4300 ROOSEVELT WAY NE M/S RC 507
SEATTLE,WA98105 		91-0564748 501(C)(3) 12,500 0     MEDICAL DIAGNOSIS
(115) SEMMES-MURPHEY CLINIC
PO BOX 1000 DEPT 575
MEMPHIS,TN38148 		62-0642575 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS
(116) SHRINERS HOSPITAL FOR CHILDREN PORTLAND
3101 SW SAM JACKSON PARK RD
PORTLAND,OR97239 		36-2193608 501(C)(3) 25,000 0     MEDICAL DIAGNOSIS
(117) SIERRA NEVADA JOURNEYS
PO BOX 1631
RENO,NV89505 		01-0881587 501(C)(3) 71,200 0     MEDICAL DIAGNOSIS AND RESEARCH
(118) SPECTRUM HEALTH FOUNDATION
100 MICHIGAN NE MC 004
GRAND RAPIDS,MI49503 		38-2752328 501(C)(3) 15,000 0     MEDICAL DIAGNOSIS
(119) ST CHARLES HOSPITAL FOUNDATION
200 BELLE TERRE ROAD
PORT JEFFERSON,NY11777 		41-2076312 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(120) ST JUDE CHILDREN'S RESEARCH HOSPITAL INC
262 DANNY THOMAS PLACE
MEMPHIS,TN381053678 		62-0646012 501(C)(3) 75,000 0     RESEARCH
(121) ST LUKES HEALTH SYSTEM
PO BOX 1663
IDAHO,ID837011663 		45-2716222 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(122) ST PETERS HOSPITAL
310 S MANNING BLVD
ALBANY,NY12208 		22-2262982 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS
(123) STANFORD CHILD HEALTH RESEARCH INSTITUTE
4100 BOHANNON RD MAIL CODE 5894
MENLO PARK,CA94025 		77-0003859 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS
(124) STANFORD HEALTH CARE
315 MONTGOMERY STREET
SAN FRANCISCO,CA94104 		94-6174066 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS
(125) STANFORD UNIVERSITY
PO BOX 884253
LOS ANGELES,CA900884253 		94-1156365 501(C)(3) 57,500 0     RESEARCH
(126) TEMPLE UNIVERSITY
PO BOX 22432
NEW YORK,NY100872432 		23-1365971 501(C)(3) 18,575 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(127) TEXAS NEUROLOGY PA
MD 6080 NORTH CENTRAL EXPRESSWAY
SUITE 100
DALLAS,TX75206 		75-2654757 501(C)(3) 49,000 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(128) THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
UW-MADISON GAR ACCOUNT OFFICE FOR
RESEARCH SPONSORED PROGRAMS DRAWER
MILWAUKEE,WI532780538 		39-6006492 501(C)(3) 20,725 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(129) THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS - UNIV OF ILLINOIS AT
28395 NETWORK PLACE
CHICAGO,IL606731283 		37-6000511 STATE OF IL 189,982 0     RESEARCH
(130) THE HOSPITAL FOR SPECIAL SURGERY
535 EAST 70TH STREET
NEW YORK,NY100214872 		13-1624135 501(C)(3) 26,300 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(131) THE METHODIST HOSPITAL FOUNDATION
6560 FANNIN STREET 802
HOUSTON,TX77030 		57-1201170 501(C)(3) 100,000 0     MEDICAL DIAGNOSIS
(132) THE METROHEALTH SYSTEM
PO BOX 73308
CLEVELAND,OH44193 		34-6004382 501(C)(3) 25,000 0     MEDICAL DIAGNOSIS
(133) THE OHIO STATE UNIVERSITY
1072 GRAVES HALL 333 W 10TH AVE
COLUMBUS,OH43210 		31-6025986 STATE OF OHIO 102,325 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(134) THE PAINTED TURTLE
1300 4TH STREET SUITE 300
SANTA MONICA,CA90401 		95-4612481 501(C)(3) 80,000 0     MEDICAL DIAGNOSIS AND RESEARCH
(135) THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE
MAIL CODE H157 500 UNIVERSITY DRIVE
HERSHEY,PA17033 		24-6000376 STATE OF PA 35,000 0     MEDICAL DIAGNOSIS
(136) THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
PO BOX 400195
CHARLOTTESVILLE,VA229044195 		54-6001796 501(C)(3) 30,000 0     MEDICAL DIAGNOSIS
(137) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (IRVINE)
228 ALDRICH HALL
IRVINE,CA926971050 		95-2226406 501(C)(3) 106,500 0     RESEARCH
(138) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UNIVERSITY OF CALIFORNIA DAVIS
1125 MURPHY HALL 405 HILGARD AVENUE
LOS ANGELES,CA900959000 		94-6036494 501(C)(3) 188,722 0     RESEARCH
(139) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
9500 GILMAN DRIVE DEPT 0934 USCD
FUND 8987EA
LA JOLLA,CA920930934 		95-6006143 501(C)(3) 410,998 0     MEDICAL DIAGNOSIS RESEARCH AND MOVR REGISTRY SUPPORT
(140) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
PO BOX 748872
LOS ANGELES,CA900744872 		95-6006144 501(C)(3) 30,000 0     MEDICAL DIAGNOSIS
(141) THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
1850 RESEARCH PARK DRIVE SUITE 300
DAVIS,CA95618 		94-6036493 501(C)(3) 133,975 0     MEDICAL DIAGNOSIS RESEARCH AND MOVR REGISTRY SUPPORT
(142) THE REGENTS OF THE UNIVERSITY OF MICHIGAN
BOX 223131 PAF 17-PAF00659
PITTSBURGH,PA152512131 		38-6006309 501(C)(3) 112,366 0     MEDICAL DIAGNOSIS AND RESEARCH
(143) THE RESEARCH FOUNDATION FOR THE STATE UNIVERSITY OF NEW YORK
CAB209 750 EAST ADAMS STREET
SYRACUSE,NY13210 		14-1368361 501(C)(3) 189,470 0     RESEARCH
(144) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
PO BOX 78000
DETROIT,MI482781653 		31-6056230 501(C)(3) 12,500 0     MEDICAL DIAGNOSIS
(145) THE RYR-1 FOUNDATION
PO BOX 13312
PITTSBURGH,PA15243 		47-1094057 501(C)(3) 7,000 0     RESEARCH
(146) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
PO BOX 29789 GENERAL POST OFFICE
NEW YORK,NY100879789 		13-5598093 501(C)(3) 250,000 0     RESEARCH
(147) THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
PO BOX 785541
PHILADELPHIA,PA191785541 		23-1352685 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS
(148) THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1600 7TH AVENUE S LOWDER 608 ATTN
TRINA IRBY
BIRMINGHAM,AL35233 		63-6005396 STATE OF AL 30,000 0     MEDICAL DIAGNOSIS
(149) THE UNIVERSITY OF IOWA
2410 UCC 201 ST CLINTON
IOWA CITY,IA522424034 		42-6004813 501(C)(3) 144,401 0     RESEARCH
(150) THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR SUITE 2200 CAMPUS
BOX 1350
CHAPEL HILL,NC275991350 		56-6001393 501(C)(3) 35,000 0     MEDICAL DIAGNOSIS
(151) THOMAS JEFFERSON UNIVERSITY
1101 MARKET STREET 29TH FLOOR
PHILADELPHIA,PA191072934 		23-1352651 501(C)(3) 35,000 0     RESEARCH
(152) TIMBER POINTE OUTDOOR CENTER
TIMBER POINTE LANE
HUDSON,IL61748 		37-0686250 501(C)(3) 54,124 0     MEDICAL DIAGNOSIS AND RESEARCH
(153) TRINITY HEALTH DBA MERCY HEALTH SAINT MARYS
200 JEFFERSON SE
GRAND RAPIDS,MI49503 		27-2491974 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(154) TRUE FRIENDS
10509 108TH ST NW
ANNANDALE,MN55302 		41-1543013 501(C)(3) 43,060 0     MEDICAL DIAGNOSIS AND RESEARCH
(155) TRUSTEES OF THE UNIVERSITY OF PENNYSYLVANIA
3451 WALNUT STREET FRANKLIN
BUILDING 5TH FLOOR
PHILADELPHIA,PA19104 		23-1352685 501(C)(3) 40,000 0     RESEARCH
(156) TRUSTEES OF TUFTS COLLEGE
136 HARRISON AVE
BOSTON,MA02111 		04-2103634 501(C)(3) 74,982 0     RESEARCH
(157) UMASS CHAN MEDICAL SCHOOL
55 LAKE AVENUE
NORTH WORCESTER,MA01655 		04-3167352 STATE OF MA 30,000 0     MEDICAL DIAGNOSIS
(158) UNIVERSITY HOSPITAL BROOOKLYN SUNY DOWNSTATE MED CTR
450 CLARKSON AVENUE BOX 35
BROOKLYN,NY11203 		14-6013200 STATE OF NY 35,000 0     MEDICAL DIAGNOSIS
(159) UNIVERSITY NEUROLOGY INC
77 GOODELL ST SUITE 310
BUFFALO,NY14203 		16-1359213 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(160) UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 7TH AVENUE SOUTH SC 460A
BIRMINGHAM,AL35233 		63-6005396 STATE OF AL 30,000 0     MEDICAL DIAGNOSIS
(161) UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
4301 WEST MARKHAM STREET 812
LITTLE ROCK,AR72205 		71-6046242 STATE OF AR 30,000 0     MEDICAL DIAGNOSIS
(162) UNIVERSITY OF CINCINNATI PHYSICIANS
260 STETSON STREET SUITE 2300 ML
0525
CINCINNATI,OH45219 		27-3850988 501(C)(3) 35,000 0     MEDICAL DIAGNOSIS
(163) UNIVERSITY OF CINCINNATI
PO BOX 210140
CINCINNATI,OH452210140 		31-6000989 501(C)(3) 7,000 0     MEDICAL DIAGNOSIS AND RESEARCH
(164) UNIVERSITY OF COLORADO DENVER
170801-SR PO BOX 910238
DENVER,CO802910238 		84-6000555 STATE OF CO 100,000 0     MEDICAL DIAGNOSIS
(165) UNIVERSITY OF FLORIDA
33 TIGERT HALL
GAINESVILLE,FL32611 		59-6002052 STATE OF FLORIDA 191,500 0     RESEARCH
(166) UNIVERSITY OF IOWA
118 S CLINTON STREET
IOWA CITY,IA52242 		42-6004813 501(C)(3) 100,000 0     MEDICAL DIAGNOSIS
(167) UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD MS 1039
KANSAS CITY,KS66160 		48-1108830 501(C)(3) 206,922 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(168) UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET SUITE 300
LOUISVILLE,KY402021959 		61-1029626 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(169) UNIVERSITY OF MASSACHUSETTS CHAN MEDICAL SCHOOL
55 LAKE AVENUE
NORTH WORCESTER,MA01666 		04-3167352 501(C)(3) 105,000 0     RESEARCH
(170) UNIVERSITY OF MIAMI
PO BOX 405803
ATLANTA,GA303845803 		59-0624458 501(C)(3) 128,050 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(171) UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
POST-AWARD 2500 NORTH STATE STREET
JACKSON,MS392164505 		64-6008520 STATE OF MS 20,000 0     MEDICAL DIAGNOSIS
(172) UNIVERSITY OF NEBRASKA MEDICAL CENTER
988435 NEBRASKA MEDICAL CENTER
OMAHA,NE681988435 		47-0049123 STATE OF NE 35,000 0     MEDICAL DIAGNOSIS
(173) UNIVERSITY OF NEW MEXICO HSC
1 UNIVERSITY OF NEW MEXICO MSC09
5225
ALBUQUERQUE,NM871310001 		85-6000642 STATE OF NM 35,000 0     MEDICAL DIAGNOSIS
(174) UNIVERSITY OF PITTSBURGH
PO BOX 640458
PITTSBURGH,PA152640458 		23-2919472 501(C)(3) 81,212 0     MEDICAL DIAGNOSIS
(175) UNIVERSITY OF PUERTO RICO MEDICAL SCIENCES
CLINICA LAS AMERICAS 400 FD
ROOSEVELT AVE
SAN JUAN,PR009182162 		66-0433762 501(C)(3) 40,000 0     MEDICAL DIAGNOSIS
(176) UNIVERSITY OF ROCHESTER -
910 GENESEE STREET SUITE 200
ROCHESTER,NY146113847 		16-0743209 501(C)(3) 398,910 0     RESEARCH
(177) UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DRIVE MSC 7828
SAN ANTONIO,TX782293900 		74-1586031 STATE OF TX 75,000 0     MEDICAL DIAGNOSIS
(178) UNIVERSITY OF UTAH
PO BOX 581374
SALT LAKE CITY,UT84158 		87-6000525 STATE OF UT 85,000 0     MEDICAL DIAGNOSIS
(179) UNIVERSITY OF VERMONT MEDICAL CENTER
PO BOX 1902
BURLINGTON,VT054011902 		03-0219309 STATE OF VT 20,000 0     MEDICAL DIAGNOSIS
(180) UNIVERSITY OF WASHINGTON MEDICAL CENTER
4333 BROOKLYN AVE NE BOX 359472
SEATTLE,WA98195 		91-6001537 STATE OF WA 641,819 0     MEDICAL DIAGNOSIS
(181) UT SOUTHWESTERN MEDICAL CENTER
BOX 356143 1959 NE PACIFIC
SEATTLE,WA981956143 		75-6002868 STATE OF WA 96,250 0     MEDICAL DIAGNOSIS
(182) UW HOSPITAL & CLINICS AUTHORITY
DRAWER 853
MILWAUKEE,WI53278 		39-1835630 501(C)(3) 20,000 0     MEDICAL DIAGNOSIS
(183) VALLEY CHILDRENS HOSPITAL
9300 VALLEY CHILDRENS PLACE
MADERA,CA93636 		94-1294954 501(C)(3) 10,000 0     MEDICAL DIAGNOSIS
(184) VANDERBILT UNIVERSITY MEDICAL CENTER
PO BOX 121236
DALLAS,TX753121236 		35-2528741 501(C)(3) 125,550 0     MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
(185) VARIETY - THE CHILDREN'S CHARITY OF THE DELAWARE VALLEY
PO BOX 609 2950 POTSHOP ROAD
WORCESTER,PA19490 		23-1556195 501(C)(3) 50,500 0     MEDICAL DIAGNOSIS AND RESEARCH
(186) VICTORY JUNCTION
4500 ADAMS WAY
RANDLEMAN,NC27317 		56-2215292 501(C)(3) 50,000 0     MEDICAL DIAGNOSIS AND RESEARCH
(187) VIRGINIA COMMONWEALTH UNIVERSITY
800 EAST LEIGH STREET SUITE 3100
RICHMOND,VA232843039 		54-6001758 STATE OF VA 122,759 0     RESEARCH
(188) WASHINGTON UNIVERSITY IN ST LOUIS
700 ROSEDALE AVE CAMPUS BOX 1034
ST LOUIS,MO63112 		43-0653611 501(C)(3) 125,000 0     MEDICAL DIAGNOSIS
(189) WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
1300 YORK AVENUE BOX 89
NEW YORK,NY10065 		13-1623978 501(C)(3) 40,000 0     RESEARCH
(190) WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD
MORGANTOWN,WV26506 		55-0665758 501(C)(3) 7,500 0     MEDICAL DIAGNOSIS
(191) WONDERLAND CAMP & CONFERENCE CENTER
9241 CAMP LAKE ROAD
SALEM,WI53168 		36-2167909 CHURCH 31,317 0     MEDICAL DIAGNOSIS AND RESEARCH
(192) YALE UNIVERSITY
PO BOX 208087
NEW HAVEN,CT065208087 		06-0646973 501(C)(3) 101,876 0     MEDICAL DIAGNOSIS RESEARCH AND MOVR REGISTRY SUPPORT
(193) YMCA CAMP SEYMOUR
9725 CRAMER RD NW GIG
HARBOUR,WA98329 		91-0565562 501(C)(3) 49,334 0     MEDICAL DIAGNOSIS AND RESEARCH
2
Enter total number of section 501(c)(3) and government organizations listed in the line 1 table .................
192
3
Enter total number of other organizations listed in the line 1 table ........................ .
7
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50055P
Schedule I (Form 990) Rev. 1-2025

Schedule I (Form 990) Rev. 1-2025
Page 2
Part III
Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" on Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance (b) Number of
recipients		 (c) Amount of
cash grant		 (d) Amount of
noncash assistance		 (e) Method of valuation (book,
FMV, appraisal, other)		 (f) Description of noncash assistance
(1)
(2)
(3)
(4)
(5)
(6)
(7)
Part IV
Supplemental Information. Provide the information required in Part I, line 2; Part III, column (b); and any other additional information.
Return Reference Explanation
PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES.
Schedule I (Form 990) Rev. 1-2025



Additional Data


Software ID:  
Software Version:  


Schedule J
(Form 990)
(Rev. January 2025)
Department of the Treasury
Internal Revenue Service
Compensation Information
For certain Officers, Directors, Trustees, Key Employees, and Highest
Compensated Employees
Complete if the organization answered "Yes" on Form 990, Part IV, line 23.
Attach to Form 990.
Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
Open to Public Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION
INC
Employer identification number

13-1665552
Part I
Questions Regarding Compensation
Yes
No
1a
Check the appropiate box(es) if the organization provided any of the following to or for a person listed on Form
990, Part VII, Section A, line 1a. Complete Part III to provide any relevant information regarding these items.
b
If any of the boxes on Line 1a are checked, did the organization follow a written policy regarding payment or reimbursement or provision of all of the expenses described above? If "No," complete Part III to explain .....
1b
 
 
2
Did the organization require substantiation prior to reimbursing or allowing expenses incurred by all
directors, trustees, officers, including the CEO/Executive Director, regarding the items checked on Line 1a? ....
2
 
 
3
Indicate which, if any, of the following the filing organization used to establish the compensation of the
organization's CEO/Executive Director. Check all that apply. Do not check any boxes for methods
used by a related organization to establish compensation of the CEO/Executive Director, but explain in Part III.
4
During the year, did any person listed on Form 990, Part VII, Section A, line 1a, with respect to the filing organization or a related organization:
a
Receive a severance payment or change-of-control payment? .............
4a
Yes
 
b
Participate in, or receive payment from, a supplemental nonqualified retirement plan? .........
4b
 
No
c
Participate in, or receive payment from, an equity-based compensation arrangement? .........
4c
 
No
If "Yes" to any of lines 4a-c, list the persons and provide the applicable amounts for each item in Part III.
Only 501(c)(3), 501(c)(4), and 501(c)(29) organizations must complete lines 5-9.
5
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the revenues of:
a
The organization? ....................
5a
 
No
b
Any related organization? .......................
5b
 
No
If "Yes," on line 5a or 5b, describe in Part III.
6
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization pay or accrue any
compensation contingent on the net earnings of:
a
The organization? ..................
6a
 
No
b
Any related organization? ......................
6b
 
No
If "Yes," on line 6a or 6b, describe in Part III.
7
For persons listed on Form 990, Part VII, Section A, line 1a, did the organization provide any nonfixed
payments not described in lines 5 and 6? If "Yes," describe in Part III ............
7
Yes
 
8
Were any amounts reported on Form 990, Part VII, paid or accured pursuant to a contract that was
subject to the initial contract exception described in Regulations section 53.4958-4(a)(3)? If "Yes," describe
in Part III ..........................
8
 
No
9
If "Yes" on line 8, did the organization also follow the rebuttable presumption procedure described in Regulations section 53.4958-6(c)? .........................
9
 
 
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 50053T
Schedule J (Form 990) (Rev. 1-2025)

Schedule J (Form 990) (Rev. 1-2025)
Page 2
Part II
Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees. Use duplicate copies if additional space is needed.
For each individual whose compensation must be reported on Schedule J, report compensation from the organization on row (i) and from related organizations, described in the
instructions, on row (ii). Do not list any individuals that are not listed on Form 990, Part VII.
Note. The sum of columns (B)(i)-(iii) for each listed individual must equal the total amount of Form 990, Part VII, Section A, line 1a, applicable column (D) and (E) amounts for that individual.
(A) Name and Title (B) Breakdown of W-2, 1099-MISC compensation, and/or 1099-NEC (C) Retirement and other deferred compensation (D) Nontaxable
benefits		 (E) Total of columns
(B)(i)-(D) 		(F) Compensation in column (B) reported as deferred on prior Form 990
(i) Base
compensation 		(ii) Bonus & incentive
compensation 		(iii) Other reportable compensation
1DONALD WOOD
OUTGOING PRESIDENT & CEO 		(i)

(ii)		 247,116
-------------
0 		81,000
-------------
0 		334,321
-------------
0 		0
-------------
0 		17,405
-------------
0 		679,842
-------------
0 		0
-------------
0
2SHARON HESTERLEE
PRESIDENT & CEO 		(i)

(ii)		 390,615
-------------
0 		31,046
-------------
0 		0
-------------
0 		31,000
-------------
0 		39,765
-------------
0 		492,426
-------------
0 		0
-------------
0
3HENRY LANMAN
COO & CHIEF LEGAL OFFICER 		(i)

(ii)		 380,303
-------------
0 		0
-------------
0 		0
-------------
0 		21,040
-------------
0 		35,401
-------------
0 		436,744
-------------
0 		0
-------------
0
4RUTH DAILEY
CHIEF DEVELOPMENT OFFICER 		(i)

(ii)		 293,237
-------------
0 		11,176
-------------
0 		0
-------------
0 		29,361
-------------
0 		594
-------------
0 		334,368
-------------
0 		0
-------------
0
5MARY ROTH
CHIEF MARKETING OFFICER 		(i)

(ii)		 231,341
-------------
0 		28,014
-------------
0 		0
-------------
0 		34,750
-------------
0 		20,041
-------------
0 		314,146
-------------
0 		0
-------------
0
6JON VAN COTT
INTERIM CFO & CONTROLLER 		(i)

(ii)		 199,591
-------------
0 		0
-------------
0 		13,560
-------------
0 		0
-------------
0 		48,058
-------------
0 		261,209
-------------
0 		0
-------------
0
7NORA CAPOCCI
EVP, HEALTHCARE SERVICES 		(i)

(ii)		 203,913
-------------
0 		24,012
-------------
0 		0
-------------
0 		23,500
-------------
0 		594
-------------
0 		252,019
-------------
0 		0
-------------
0
8PERIPEDES GONDIM
OUTGOING EVP, HR & VOLUNTEERS 		(i)

(ii)		 148,669
-------------
0 		23,283
-------------
0 		63,912
-------------
0 		15,128
-------------
0 		365
-------------
0 		251,357
-------------
0 		0
-------------
0
9ANGELA LEK
CHIEF RESEARCH OFFICER 		(i)

(ii)		 221,940
-------------
0 		0
-------------
0 		0
-------------
0 		13,316
-------------
0 		594
-------------
0 		235,850
-------------
0 		0
-------------
0
10MICHAEL KENNEDY
OUTGOING TREASURER & CFO 		(i)

(ii)		 59,653
-------------
0 		0
-------------
0 		98,644
-------------
0 		5,546
-------------
0 		6,107
-------------
0 		169,950
-------------
0 		0
-------------
0
Schedule J (Form 990) (Rev. 1-2025)

Schedule J (Form 990) (Rev. 1-2025)
Page 3
Part III
Supplemental Information
Provide the information, explanation, or descriptions required for Part I, lines 1a, 1b, 3, 4a, 4b, 4c, 5a, 5b, 6a, 6b, 7, and 8, and for Part II. Also complete this part for any additional information.
Return Reference Explanation
PART I, LINE 4A THE FOLLOWING INDIVIDUALS RECEIVED SEVERANCE: - DONALD WOOD, OUTGOING PRESIDENT & CEO RECEIVED $315,000 - MICHAEL KENNEDY, OUTGOING TREASURER & CFO RECEIVED $97,308. - PERIPEDES GONDIM, OUTGOING EVP, HUMAN RESOURCES & VOLUNTEERS RECEIVED $59,371
PART I, LINE 7 INCLUDED ON SCHEDULE J, PART II, COLUMN B(II) REPRESENTS EMPLOYEE BONUSES BASED ON INDIVIDUAL AND ORGANIZATIONAL PERFORMANCE METRICS. THESE PAYMENTS ARE SUBJECT TO FINAL BOARD APPROVAL.
Schedule J (Form 990) (Rev. 1-2025)

Additional Data


Software ID:  
Software Version:  
SCHEDULE M
(Form 990)

Department of the Treasury
Internal Revenue Service
Noncash Contributions
Complete if the organizations answered "Yes" on Form 990, Part IV, lines 29 or 30.
Attach to Form 990.
Go to www.irs.gov/Form990 for the latest information.
OMB No. 1545-0047
2025
Open to Public Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION
INC
Employer identification number

13-1665552
Part I
Types of Property
(a)
Check if applicable 		(b)
Number of contributions or items contributed 		(c)
Noncash contribution amounts reported on
Form 990, Part VIII, line 1g 		(d)
Method of determining
noncash contribution amounts
1 Art—Works of art ....        
2 Art—Historical treasures .        
3 Art—Fractional interests ..        
4 Books and publications ..      
5 Clothing and household
goods ....... 		     
6 Cars and other vehicles ..        
7 Boats and planes ....        
8 Intellectual property ...        
9 Securities—Publicly traded .        
10 Securities—Closely held stock .        
11 Securities—Partnership, LLC,
or trust interests .... 		       
12 Securities—Miscellaneous ..        
13 Qualified conservation
contribution—Historic
structures ..... 		       
14 Qualified conservation
contribution—Other ... 		       
15 Real estate—Residential .        
16 Real estate—Commercial ..        
17 Real estate—Other ...        
18 Collectibles .....        
19 Food inventory ...        
20 Drugs and medical supplies . X 6 45,171 FMV
21 Taxidermy ......        
22 Historical artifacts ....        
23 Scientific specimens ..        
24 Archeological artifacts ...        
25 Other ( AUCTION ITEMS ) X 9 271,859 FMV
26 Other ( )
27 Other ( )
28 Other ( )
29
Number of Forms 8283 received by the organization during the tax year for contributions
for which the organization completed Form 8283, Part IV, Donee Acknowledgement
29
 
Yes
No
30a
During the year, did the organization receive by contribution any property reported in Part I, lines 1 through 28, that it must hold for at least three years from the date of the initial contribution, and which isn't required to be used for exempt purposes for the entire holding period? ...................
30a
 
No
b
If "Yes," describe the arrangement in Part II.
31
Does the organization have a gift acceptance policy that requires the review of any nonstandard contributions?
31
 
No
32a
Does the organization hire or use third parties or related organizations to solicit, process, or sell noncash
contributions? ..........................
32a
 
No
b
If "Yes," describe in Part II.
33
If the organization didn't report an amount in column (c) for a type of property for which column (a) is checked,
describe in Part II.
For Paperwork Reduction Act Notice, see the Instructions for Form 990.
Cat. No. 51227J
Schedule M (Form 990) (2025)
Schedule M (Form 990) (2025)
Page 2
Part IISupplemental Information. Provide the information required by Part I, lines 30b, 32b, and 33, and whether the organization is reporting in Part I, column (b), the number of contributions, the number of items received, or a combination of both. Also complete this part for any additional information.
Return Reference Explanation
PART I, COLUMN (B): COLUMN B REPRESENTS NUMBER OF CONTRIBUTIONS.
Schedule M (Form 990) (2025)

Additional Data


Software ID:  
Software Version:  
SCHEDULE O
(Form 990)
(Rev. January 2025)
Department of the Treasury
Internal Revenue Service
Supplemental Information to Form 990 or 990-EZ

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
Attach to Form 990 or 990-EZ.
 Go to www.irs.gov/Form990 for instructions and the latest information.
OMB No. 1545-0047
Open to Public
Inspection
Name of the organization
MUSCULAR DYSTROPHY ASSOCIATION
INC
Employer identification number

13-1665552
Return Reference Explanation
FORM 990, PART I, LINE 1 MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.
FORM 990, PART VI, SECTION B, LINE 11B ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCES DEPARTMENT IN CONJUNCTION WITH LEGAL. BOARD MEMBERS ARE REQUIRED TO SIGN AN CONFLICT OF INTEREST DISCLOSURE ANNUALLY. WHEN A CONFLICT OF INTEREST ARISES, THE PERSON WITH THE CONFLICT IS REQUIRED TO RECUSE HIS/HERSELF FROM THE MATTER AND DISCUSSION INVOLVED.
FORM 990, PART VI, SECTION B, LINE 15 MDA HAS A COMPENSATION COMMITTEE OF THE GOVERNING BOARD THAT REVIEWS THE CEO AND EXECUTIVE TEAM COMPENSATION. A COMPENSATION STUDY IS COMPLETED BY AN INDEPENDENT CONSULTANT AND REVIEWED WITH THE COMPENSATION COMMITTEE. ANNUAL REVIEWS ARE COMPLETED AND CONTRACTS ARE AMENDED AS THEY EXPIRE.
FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON MDA'S WEBSITE.
FORM 990, PART XI, LINE 9: CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS 2,965,008. GRANTS WRITTEN OFF 907,886.
For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
Cat. No. 51056K
Schedule O (Form 990) (Rev. 1-2025)


Additional Data


Software ID:  
Software Version: