THE RARE DISEASE CHARITABLE FOUNDATION

Lexington, MA EIN 45-3132103 Philanthropy & GrantmakingT23 501C3 PRIVATE FOUNDATION

$162.8M

Revenue

Filings

$328.5M

Total Grants

Grant Records

Latest Financial Summary

Fiscal Year	Revenue	Expenses	Net Assets	Contributions
FY 2022	$162.8M	$171.3M	$0	$162.8M

Full Financial History

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Key Officers

Karen Shahinian

Chair

Janeen Blake

Vice Chair

Ryan McCarthy

Secretary

Executive Compensation

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Top Grant Recipients (Teaser)

Approximately 449 Patients $171.3M

Approximately 389 Patients $157.2M

2 total grants · $328.5M total giving

Complete Grants Database

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Filing History

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